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1

Abid, L. "Épidémiologie des cancers en Algérie: problématique des registres des cancers." Journal africain du cancer / African Journal of Cancer 1, no. 2 (2009): 98–103. http://dx.doi.org/10.1007/s12558-009-0019-y.

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2

de Brauer, Camille, Camille Lecoffre-Bernard, Zoé Uhry, et al. "Un programme de travail partenarial pour l’épidémiologie des cancers : bilan 2014-2019." Santé Publique 37, no. 2 (2025): 145–57. https://doi.org/10.3917/spub.252.0145.

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En France, la surveillance épidémiologique des cancers repose sur un système de surveillance multi-sources et un programme de travail partenarial (PTP) définis et réalisés par le Réseau français des registres des cancers (Francim), le Service de biostatistique-bioinformatique des Hospices Civils de Lyon, Santé publique France et l’Institut national du cancer. Cet article présente le bilan du PTP Cancer 2014-2019. Un questionnaire portant sur la réalisation et les moyens financiers engagés a été complété pour les 56 projets du PTP. Parmi les 49 projets réalisés figurent des estimations national
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3

de Brauer, Camille, Camille Lecoffre-Bernard, Zoé Uhry, et al. "Un programme de travail partenarial pour l’épidémiologie des cancers : bilan 2014-2019." Santé Publique Prépublications (January 1, 2030): I69—XIII. https://doi.org/10.3917/spub.pr2.0069.

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En France, la surveillance épidémiologique des cancers repose sur un système de surveillance multi-sources et un programme de travail partenarial (PTP) définis et réalisés par le Réseau français des registres des cancers (Francim), le Service de biostatistique-bioinformatique des Hospices Civils de Lyon, Santé publique France et l’Institut national du cancer. Cet article présente le bilan du PTP Cancer 2014-2019.Un questionnaire portant sur la réalisation et les moyens financiers engagés a été complété pour les 56 projets du PTP. Parmi les 49 projets réalisés figurent des estimations nationale
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4

Sommelet, D., J. Clavel, and B. Lacour. "Apport des registres nationaux des cancers de l'enfant : surveillance et recherche." Archives de Pédiatrie 12, no. 6 (2005): 814–16. http://dx.doi.org/10.1016/j.arcped.2005.04.039.

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5

Launoy, Guy. "Cancer : les causes de l’augmentation du nombre de cas en France." Questions de santé publique, no. 4 (April 2009): 1–4. http://dx.doi.org/10.1051/qsp/2009004.

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Le nombre de cancers a doublé entre 1980 et 2008 en France, alors que la mortalité par cancer ne cesse de diminuer. Grâce aux 21 registres de cancer, coordonnés par le réseau FRANCIM, 20 % à 25 % des nouveaux cas sont enregistrés et des estimations nationales régulières peuvent être fournies. Près de la moitié de l’augmentation du nombre de cas de cancers est due à l’augmentation de la population française et à son vieillissement. Si l’on prend en compte ces évolutions, l’augmentation du nombre de cas est d’abord due aux modifications des pratiques de soins : développement des techniques d’ima
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6

Grosclaude, P., C. Dentan, B. Trétarre, M. Velten, E. Fournier, and F. Molinié. "Les bases médico-administratives pour la surveillance des cancers. Comparaison avec les registres." Revue d'Épidémiologie et de Santé Publique 60 (September 2012): S65—S66. http://dx.doi.org/10.1016/j.respe.2012.06.079.

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7

Aubert, M., and Y. Panis. "Wasmuth HH, Færden AE, Myklebust TÅ, et al (2020) Transanal total mesorectal excision for rectal cancer has been suspended in Norway. Br J Surg 107:121–30." Côlon & Rectum 14, no. 3 (2020): 155–58. http://dx.doi.org/10.3166/cer-2020-0146.

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Contexte : L’exérèse totale du mésorectum par voie transanale (TaTME) pour la prise en charge du cancer du rectum est récemment apparue comme alternative à l’exérèse totale du mésorectum par voie abdominale. Cependant, certaines inquiétudes à propos des résultats oncologiques de cette technique chirurgicale ont émergé. Le but de cette étude était d’évaluer le taux de récidives locales après TaTME. Les objectifs secondaires s’intéressaient à la mortalité postopératoire, au taux de fistule anastomotique et au taux de stomie définitive. Méthodes : Les données de tous les patients opérés par TaTME
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8

Baysson, H., T. Roué, S. Caër-Lorho, et al. "Croisement des données d’incidence de cancer issues d’un service de santé au travail avec celles issues de registres de cancers." Archives des Maladies Professionnelles et de l'Environnement 74, no. 6 (2013): 674. http://dx.doi.org/10.1016/j.admp.2013.09.034.

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9

Roué, T., H. Baysson, S. Caër-Lorho, et al. "Croisement des données d’incidence de cancer issues d’un service de santé au travail avec celles issues de registres de cancers." Archives des Maladies Professionnelles et de l'Environnement 76, no. 3 (2015): 231–36. http://dx.doi.org/10.1016/j.admp.2014.10.007.

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10

Bossard, N., M. Velten, L. Remontet, et al. "Survie des patients atteints de cancer en France: principaux résultats de la première étude du réseau des registres français des cancers (Francim)." Oncologie 9, no. 7-8 (2007): 574–80. http://dx.doi.org/10.1007/s10269-007-0721-2.

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11

Martin-Scholz, Anja, Anne Mayère, and François Lambotte. "Rendre compte du travail d’instauration et d’assemblage des données en santé : le cas de Registres des cancers en France." Communication et organisation, no. 59 (June 1, 2021): 215–30. http://dx.doi.org/10.4000/communicationorganisation.10195.

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12

Raymond, L., F. Levi, and A. J. Tuyns. "Cancers recto-coliques: épidémiologie, dépistage et follow-up Thème d'un symposium organisé par l'Association suisse des registres des tumeurs." Sozial- und Präventivmedizin SPM 31, no. 2 (1986): 65. http://dx.doi.org/10.1007/bf02091583.

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13

De Camargo Cancela, M., F. Chapuis, J. P. Auray, and M. P. Curado. "Cancers de la cavité orale et de l’oropharynx : stade lors du diagnostic dans les registres de cancer populationnels, 1998–2002, une étude internationale." Revue d'Épidémiologie et de Santé Publique 58 (September 2010): S82—S83. http://dx.doi.org/10.1016/j.respe.2010.06.114.

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14

Wilson, Sarah, Joséphine Gardy, Anne-Valérie Guizard, Véronique Bouvier, Francim Groupe, and Guy Launoy. "Association entre l’accès aux soins primaires et la mortalité en excès des patients atteints de cancers en France : résultats portant sur l’étude de 21 registres de cancers français." Santé Publique 36, HS1 (2024): 1. http://dx.doi.org/10.3917/spub.hs1.2024.0001.

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15

Hammas, K., C. Nardin, S. Boyer, C. Michel, F. Aubin, and A. S. Woronoff. "Incidence du carcinome basocellulaire en France et tendances entre 1980 et 2019 : étude en population à partir de registres des cancers." Annales de Dermatologie et de Vénéréologie - FMC 3, no. 8 (2023): A103. http://dx.doi.org/10.1016/j.fander.2023.09.111.

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16

Carré, N., Z. Uhry, M. Velten, et al. "Valeur prédictive et sensibilité du programme de médicalisation des systèmes d’information (PMSI) par rapport aux registres des cancers : application au cancer de la thyroïde (1999-2000)." Revue d'Épidémiologie et de Santé Publique 54, no. 4 (2006): 367–76. http://dx.doi.org/10.1016/s0398-7620(06)76731-1.

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17

Mitton, N., L. Remontet, N. Bossard, and M. Colonna. "Estimations départementales de l’incidence des cancers en 2007 à partir des données des registres et des données du programme de médicalisation des systèmes d’information, France." Revue d'Épidémiologie et de Santé Publique 58 (April 2010): S13—S14. http://dx.doi.org/10.1016/j.respe.2010.02.029.

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18

Cherif, M. Hamdi. "Implementation and Incidence Data of Cancer Registries Network in Algeria." Journal of Global Oncology 4, Supplement 2 (2018): 154s. http://dx.doi.org/10.1200/jgo.18.66000.

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Background and context: Cancer is becoming a true health public problem in Algeria in the last years. The National Cancer Plan (2015-2019), has given a priority to cancer registration, and the Ministry of Health proceeded to the institutionalization of cancer registries. Aim: The objective is to implement a cancer registries network covering a large population, and provide cancer incidence data for Algeria. Strategy/Tactics: Regional organization of the cancer registries network. Training of coordinators of cancer registries on cancer registration tools. The new cases recorded were from 18 reg
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19

Hawkins, M. M. "Multiple primary cancers in population-based cancer registries." European Journal of Cancer 32, no. 8 (1996): 1279–80. http://dx.doi.org/10.1016/0959-8049(96)00095-0.

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20

Skytthe, Axel, Jennifer R. Harris, Kamila Czene, et al. "Cancer Incidence and Mortality in 260,000 Nordic Twins With 30,000 Prospective Cancers." Twin Research and Human Genetics 22, no. 2 (2019): 99–107. http://dx.doi.org/10.1017/thg.2019.10.

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AbstractThe Nordic countries have comprehensive, population-based health and medical registries linkable on individually unique personal identity codes, enabling complete long-term follow-up. The aims of this study were to describe the NorTwinCan cohort established in 2010 and assess whether the cancer mortality and incidence rates among Nordic twins are similar to those in the general population. We analyzed approximately 260,000 same-sexed twins in the nationwide twin registers in Denmark, Finland, Norway and Sweden. Cancer incidence was determined using follow-up through the national cancer
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21

Kry, S. F., and R. M. Howell. "Second solid cancers after radiotherapy for breast cancer in SEER cancer registries." Breast Diseases: A Year Book Quarterly 21, no. 3 (2010): 271–72. http://dx.doi.org/10.1016/s1043-321x(10)79599-0.

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22

Berrington de Gonzalez, A., R. E. Curtis, E. Gilbert, et al. "Second solid cancers after radiotherapy for breast cancer in SEER cancer registries." British Journal of Cancer 102, no. 1 (2009): 220–26. http://dx.doi.org/10.1038/sj.bjc.6605435.

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23

Ravn, Sissel, Christian F. Christiansen, Rikke H. Hagemann-Madsen, Victor J. Verwaal, and Lene H. Iversen. "The Validity of Registered Synchronous Peritoneal Metastases from Colorectal Cancer in the Danish Medical Registries." Clinical Epidemiology Volume 12 (March 2020): 333–43. http://dx.doi.org/10.2147/clep.s238193.

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24

Bouhidel, Mohamed Larbi, Fayçal Beichi, Atika Bouhidel, et al. "Cancer register in the Wilaya of Batna. The 2011 report." Batna Journal of Medical Sciences (BJMS) 2, no. 2 (2012): 126–28. http://dx.doi.org/10.48087/bjmsoa.2015.2205.

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Le registre du cancer de la wilaya de Batna est un registre de population, couvrant 1.173.852 habitants en 2011 (estimation avec un taux d’accroissement annuel de 1,58% à partir du recensement général de la population et de l’habitat RGPH 2008). Au total, 768 nouveaux cas de cancer ont été notifiés ; ce qui représente une incidence standardisée de 78,2 cas pour 100 000 habitants. Les cancers les plus fréquents chez l’homme sont respectivement : le cancer broncho-pulmonaire (12,2 cas/100 000 hbts) suivi du cancer colorectal et du cancer de la vessie. Chez la femme, le cancer du sein occupe larg
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25

Krishnatreya, Manigreeva. "Epidemiological research on cancers by cancer registries: A view point." South Asian Journal of Cancer 04, no. 01 (2015): 050. http://dx.doi.org/10.4103/2278-330x.149957.

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26

Levi, Fabio, Lalao Randimbison, Blanc-Moya Rafael, Maspoli-Conconi Manuela, and Carlo La Vecchia. "Second primary cancers in the Vaud and Neuchâtel Cancer Registries." European Journal of Cancer Prevention 24, no. 2 (2015): 150–54. http://dx.doi.org/10.1097/cej.0000000000000085.

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27

Okuyama, Ayako, Yoichiro Tsukada, and Takahiro Higashi. "Coverage of the hospital-based cancer registries and the designated cancer care hospitals in Japan." Japanese Journal of Clinical Oncology 51, no. 6 (2021): 992–98. http://dx.doi.org/10.1093/jjco/hyab036.

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Abstract Background Hospital-based cancer registries were developed to describe and improve clinical care for cancer patients. We described the hospital-based cancer registry coverage as a reference for the users, including researchers, policymakers and clinicians. Methods The hospital-based cancer registry coverage was defined as the proportion of new cases registered in the hospital-based cancer registry to the National Cancer Registry as the denominator. To examine the coverage of respective cancer types, age groups and prefecture in the hospital-based cancer registry, cases were grouped ba
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28

Tuffs, Annette. "Germany: Cancer registries." Lancet 336, no. 8711 (1990): 364–65. http://dx.doi.org/10.1016/0140-6736(90)91895-h.

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29

Katalinic, Alexander, Marco Halber, Martin Meyer, et al. "Population-Based Clinical Cancer Registration in Germany." Cancers 15, no. 15 (2023): 3934. http://dx.doi.org/10.3390/cancers15153934.

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Introduction: In 2013, a new federal law obligated all German federal states to collect additional clinical data in population-based cancer registries as an active tool for monitoring and improving the quality of cancer care, increasing transparency and promoting health research. Now, 10 years later, the current status of the expanded cancer registration is presented, including current figures on cancer in Germany. Methods: Reporting of cancer is mandatory for physicians, and about 5 to 10 reports from different healthcare providers are expected for each case. A uniform national dataset of abo
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30

Mihor, Ana, Carmen Martos, Francesco Giusti, et al. "The Population-Level Surveillance of Childhood and Adolescent Cancer and Its Late Effects in Europe with an Example of an Effective System at the Slovenian Cancer Registry." Cancers 17, no. 4 (2025): 580. https://doi.org/10.3390/cancers17040580.

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Background: The registry-based collection of detailed cancer and late effect (LE) data in childhood and adolescent cancer (CAC) is rarely explored. Aim: We aimed to provide an overview of CAC registration practices in Europe and share a Slovenian example. Methods: We distributed a questionnaire among European cancer registries on disease, treatment and LE registration and present the system at the Slovenian Cancer Registry along with an example of retrospectively collected LE data from a cohort of central nervous system tumour survivors from 1983 to 2000. Kaplan–Meier and Cox regression were u
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31

Teixeira, Isabelly Montenegro, Larissa Sena de Lucena, Zhandra Gramigna Giampietro, et al. "Epidemiological profile of cancer cases registered in a state in the northern region." Núcleo do Conhecimento 07, no. 11 (2022): 05–17. https://doi.org/10.32749/nucleodoconhecimento.com.br/health/cancer-cases.

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Cancer encompasses a group of chronic pathologies with multifactorial causes and high levels of mortality in Brazil and worldwide. In addition, they constitute diseases with a great impact on the morbidity and mortality of patients and a high burden for the health system. Thus, the research seeks to outline the epidemiological profile of cancer in the state of Amapá from January 2018 to March 2021. For this, a descriptive, retrospective, cross-sectional study was used based on secondary public data from the "Panel Oncologia" , obtained from the Department of Informatics of the Unified Health S
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32

Boice, J. D., N. E. Day, A. Andersen, et al. "Second Cancers Following Radiation Treatment for Cervical Cancer. An International Collaboration Among Cancer Registries." Journal of Urology 134, no. 6 (1985): 1307. http://dx.doi.org/10.1016/s0022-5347(17)47726-3.

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33

Miladinov-Mikov, Marica. "What are cancer registries." Medical review 57, no. 1-2 (2004): 27–29. http://dx.doi.org/10.2298/mpns0402027m.

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Introduction Population-based cancer registries attempt to collect, process, analyze, store and interpret data on persons with cancer in a certain population (most frequently a geographical area). Hospital-based cancer registries register all cases in a given hospital, usually without knowledge of the background population; the emphasis is to serve the needs of the hospital administration, the hospital cancer program, and, above all, the individual patient. History of Cancer Registries Registration of persons suffering from cancer is a slow process. Around the year 1900, England and Germany de
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34

Miller, M., I. Schmidtmann, J. Michaelis, and K. Pommerening. "Pseudonyms for Cancer Registries." Methods of Information in Medicine 35, no. 02 (1996): 112–21. http://dx.doi.org/10.1055/s-0038-1634649.

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AbstractIn order to conform to the rigid German legislation on data privacy and security we developed a new concept of data flow and data storage for population-based cancer registries. A special trusted office generates a pseudonym for each case by a cryptographic procedure. This office also handles the notification of cases and communicates with the reporting physicians. It passes pseudonymous records to the registration office for permanent storage. The registration office links the records according to the pseudonyms. Starting from a requirements analysis we show how to construct the pseud
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35

James, N., and G. Lawrence. "Future of cancer registries." BMJ 309, no. 6967 (1994): 1514. http://dx.doi.org/10.1136/bmj.309.6967.1514.

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36

McLaughlin, Robert H., Christina A. Clarke, LaVera M. Crawley, and Sally L. Glaser. "Are cancer registries unconstitutional?" Social Science & Medicine 70, no. 9 (2010): 1295–300. http://dx.doi.org/10.1016/j.socscimed.2010.01.032.

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37

Scheuermann, Wolfgang, and E. Nüssel. "Cancer registries in Germany." Lancet 336, no. 8715 (1990): 634. http://dx.doi.org/10.1016/0140-6736(90)93434-q.

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38

Anazawa, Takayuki, Hiroaki Miyata, and Mitsukazu Gotoh. "Cancer registries in Japan: National Clinical Database and site-specific cancer registries." International Journal of Clinical Oncology 20, no. 1 (2014): 5–10. http://dx.doi.org/10.1007/s10147-014-0757-4.

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39

Baldé, Salif, O. Ba, Mamadou Diop, et al. "Establishment of a Cancer Registry in Senegal: Preliminary results." African Journal of Oncology 1, no. 1 (2021): 15–16. http://dx.doi.org/10.54266/ajo.1.1.15.15.

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INTRODUCTION: Senegal with the support of WHO has undertaken the establishment of a National Cancer Registry. The objective of this work was to assess the preliminary results. MATERIALS AND METHODS: We conducted a non-exhaustive preliminary study over a period of three months from January 1, 2013 to March 31, 2013 at four hospitals in Dakar. RESULTS: Two hundred and eighty-nine cases were identified. These were 127 men (44%) and 126 women (56%) with a sex-ratio of 0.8. The ages ranged from 20 to 90 with an average of 50. The main mode of diagnosis was essentially histological with 76% of cases
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40

Teppo, Lyly. "Cancer registries in environmental cancer epidemiology." Scandinavian Journal of Work, Environment & Health 24, no. 1 (1998): 1–2. http://dx.doi.org/10.5271/sjweh.270.

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41

Buiatti, E., E. Crocetti, S. Acciai, et al. "Incidence of second primary cancers in three Italian population-based cancer registries." European Journal of Cancer 33, no. 11 (1997): 1829–34. http://dx.doi.org/10.1016/s0959-8049(97)00173-1.

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42

陳㻰玫, 陳㻰玫, 陳嬿晴 陳嬿晴, 林嘉淦 林嘉淦 та ін. "品質-提升癌症登記編碼品質審查之時效". 醫療品質雜誌 19, № 1 (2025): 054–58. https://doi.org/10.53106/199457952025011901007.

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<p>癌症登記編碼正確性對於國家衛生政策至關重要,本院編碼審查過程耗時,經過一個月的審查表格回收率為53%,而全部完成需要兩個月。本專案目的在於提高癌症登記編碼品質審查的效率,確認影響審查進度的因素,使用SIPOC模型說明癌症登記編碼品質審查工作流程,並與跨領域專家合作擬定改善對策,期望提升整個審查過程的效率。</p> <p>以使用者為中心思考,結合雲端導入電子病歷、強化醫院虛擬私人網路(Virtual Private Network, VPN)加密通道使用、設定自動發送審查通知簡訊、癌症期別自動組合,實現智能化審查流程。最終,成功將整體病歷審查時間由之前的19,199分鐘降低至7,048分鐘,達成改善目標。除此之外,節省相關成本,符合環境、社會和公司治理的期望。這項改善計畫不僅提升審查效率,還推動院方的無紙化作業,為未來的醫療資訊化水平提升和癌症診療品質提供了堅實基礎。</p> <p> </p><p>Accurate cancer registration coding is crucial fornational health policies. However, the review process at the study hospital has proven to be
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43

Guidoum, Mona, Hind Kherfi-Kadi, Ouahiba Benharkat-Boughaba, et al. "Patterns of Benign and Malignant Lesions of the Thyroid in Two Wilayahs of Northeastern Algeria." Journal of Cancer Epidemiology 2015 (2015): 1–5. http://dx.doi.org/10.1155/2015/849416.

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The aim of this study is to compare histological patterns and to estimate the burden of thyroid cancers in the two Wilayahs (departments) of El-Taref and Guelma in northeast of Algeria (total population 0.9 million), locally reputed as having different rates of endemic thyroid diseases and cancer. A retrospective analysis of central pathology registers and clinical records of patients with thyroid diseases, covering the period 2008–2012, was conducted. A total of 145 cases of thyroid cancers with histological confirmation were registered in the two Wilayahs during the period, with a female to
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44

Ramirez, Amelie G., Alexander R. Miller, Kipling Gallion, Sandra San Miguel de Majors, Patricia Chalela, and Sandra García Arámburo. "Testing Three Different Cancer Genetics Registry Recruitment Methods with Hispanic Cancer Patients and Their Family Members Previously Registered in Local Cancer Registries in Texas." Community Genetics 11, no. 4 (2008): 215–23. http://dx.doi.org/10.1159/000116882.

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45

Capocaccia, Riccardo, Carlotta Buzzoni, Enrico Grande, et al. "Estimated and Observed Cancer Incidence in Italy: A Validation Study." Tumori Journal 93, no. 4 (2007): 387–91. http://dx.doi.org/10.1177/030089160709300410.

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Aims and background The study aimed to validate model-based incidence estimates by means of observed incidence rates provided by Italian cancer registries, for five major cancer sites (stomach, colon and rectum, lung, breast and prostate cancers) and for all cancers together. Methods Recent incidence rates observed by Italian population-based cancer registries were extracted from the data base of the Italian Association of Cancer Registries. Regional estimates of incidence rates for the same cancers were obtained by the MIAMOD method. Observed and estimated crude incidence rates and incidence
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46

Labani, Satyanarayana, Smita Asthana, and Rubal Khenchi. "Incidence of colorectal cancers in India: A review from population-based cancer registries." Current Medicine Research and Practice 11, no. 2 (2021): 91. http://dx.doi.org/10.4103/cmrp.cmrp_65_20.

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47

Kapoor, Gauri, Ramandeep Singh Arora, Venkatraman Radhakrishnan, et al. "Profile of Childhood Cancers From Hospital-Based Cancer Registries in India, 2012–19." Indian Pediatrics 61, no. 1 (2024): 39–44. http://dx.doi.org/10.1007/s13312-024-3085-4.

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48

Giles, Graham G. "In praise of cancer registries." ANZ Journal of Surgery 74, no. 4 (2004): 190. http://dx.doi.org/10.1111/j.1445-2197.2004.02979.x.

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49

Brown, P. "Cancer registries fear imminent collapse." BMJ 321, no. 7265 (2000): 849. http://dx.doi.org/10.1136/bmj.321.7265.849.

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50

Bell, C. M. J., G. Lawrence, D. F. H. Pheby, J. Smith, and M. P. Coleman. "The role of cancer registries." Clinical Oncology 7, no. 3 (1995): 143–44. http://dx.doi.org/10.1016/s0936-6555(05)80503-5.

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