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Articles de revues sur le sujet « Child life specialist »

Auteur : Grafiati

Publié le 4 juin 2021

Mis à jour le 1 février 2022

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1

Parvin, Katie V., and George E. Dickinson. "End-of-Life Issues in US Child Life Specialist Programs." Child & Youth Care Forum 39, no. 1 (2009): 1–9. http://dx.doi.org/10.1007/s10566-009-9086-6.

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AIYOSHI, Megumi. "Child Development and Perception of Anesthesia —Collaboration with Anesthesiologists and Child Life Specialist—." JOURNAL OF JAPAN SOCIETY FOR CLINICAL ANESTHESIA 29, no. 7 (2009): 771–79. http://dx.doi.org/10.2199/jjsca.29.771.

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Páll, Nikoletta, Erzsébet Gorove, and Ildikó Baji. "A child life specialist szakemberek helye a magyarországi egészségügyi ellátási rendszerben." Egészségfejlesztés 62, no. 3 (2021): 3–14. http://dx.doi.org/10.24365/ef.v62i3.6143.

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Bevezetés: A gyermekek kórházi kezelése során nyújtott pszichés támogatás és gyermekbarát ellátás mind a hazai, mind a nemzetközi kutatásokban kiemelt jelentőséggel bír. Külföldi kórházak gyermekgyógyászati osztályán és ambulanciáján child life specialist szakember segít a gyermekeknek és családoknak megbirkózni a kórházi ellátás, a betegség és a fogyatékosság kihívásaival. Célkitűzés: A vizsgálat során a magyarországi gyermekellátás során nyújtott pszichés felkészítést és támogatást vizsgáltuk szülői vélemények alapján. Célunk volt továbbá, hogy megismerjük a gyermekápolók véleményét és

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Canares, Therese, Carisa Parrish, Christine Santos, et al. "Pediatric Coping During Venipuncture With Virtual Reality: Pilot Randomized Controlled Trial." JMIR Pediatrics and Parenting 4, no. 3 (2021): e26040. http://dx.doi.org/10.2196/26040.

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Background Virtual reality (VR) has shown promise in reducing children’s pain and anxiety during venipuncture, but studies on VR lack objective observations of pediatric coping. Notably, the process of capturing objective behavioral coping data can be labor- and personnel-intensive. Objective The primary aims of this pilot trial were to assess the feasibility of conducting a trial of VR in a pediatric emergency department and the feasibility of documenting observed coping behaviors during pediatric procedures. Secondarily, this study examined whether VR affects child and caregiver coping and d

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Brooks, J. G. "Consultation with the Specialist: Apparent Life-Threatening Events." Pediatrics in Review 17, no. 7 (1996): 257–59. http://dx.doi.org/10.1542/pir.17-7-257.

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Bloom, Brittnie E., Héctor E. Alcalá, and Jorge Delva. "Early life adversity, use of specialist care and unmet specialist care need among children." Journal of Child Health Care 23, no. 3 (2018): 392–402. http://dx.doi.org/10.1177/1367493518807830.

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Adverse childhood experiences (ACEs) are linked to increased utilization of health care among adults; however, the impact of ACEs on nonmental health specialist care has been largely overlooked. To address this, data from the 2011–2012 National Survey of Children’s Health ( n = 89,357) were used to assess the health of children aged 0–17 living with a parent or guardian. Use of specialist care among children in the past 12 months was the outcome of interest and experiencing any one of nine ACEs was the independent variable of interest. After adjusting for confounders in logistic regression mod

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McGee, Kristen. "The role of a child life specialist in a pediatric radiology department." Pediatric Radiology 33, no. 7 (2003): 467–74. http://dx.doi.org/10.1007/s00247-003-0900-2.

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Desai, Priti P., Samantha L. Flick, Susanne Knutsson, and Andrew S. Brimhall. "Practices and Perceptions of Nurses Regarding Child Visitation in Adult Intensive Care Units." American Journal of Critical Care 29, no. 3 (2020): 195–203. http://dx.doi.org/10.4037/ajcc2020370.

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Background Provision of developmentally appropriate support for child visitors in adult intensive care units (ICUs) would benefit patients and young visitors. Research on best practices for child visitation in adult ICUs is limited. Objectives To explore the perceptions and practices of nurses working in adult ICUs in the United States regarding child visitation and the role of child life specialists in this setting. Methods Data were collected from 446 adult ICU nurses via a cross-sectional survey. The survey explored perceptions and practices regarding child visitation, access to child-frien

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LeBlanc, Chantal K., Krista Naugler, Kate Morrison, Jennifer A. Parker, and Christine T. Chambers. "Parent Perceptions and Satisfaction with Inpatient Child Life Specialist Interventions and the Role of Child Temperament." Children's Health Care 43, no. 3 (2014): 253–72. http://dx.doi.org/10.1080/02739615.2013.845732.

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Lowenstein, Daniel B., Mackenzie C. Cervenka, Lauren Mitchell, Noelle Stewart, Eric H. Kossoff, and Sarah A. Kelley. "Child Life Services in an Epilepsy Monitoring Unit." Clinical Pediatrics 57, no. 11 (2018): 1269–74. http://dx.doi.org/10.1177/0009922818769469.

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The goal of this study was to determine the value of a certified child life specialist (CCLS) on the patient and staff experiences in an epilepsy monitoring unit (EMU). We integrated a CCLS into the EMU for all children as well as adults with intellectual disability. We surveyed families to determine the impact of child life services on their stay. EMU staff completed questionnaires to determine perceived impact to their job performance from the integration of the CCLS. All of the families (pediatric and adult patients) who responded to the survey reported the presence of the CCLS improved the

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Krasnova, Anzhela, and Lyubov' Glavinskaya. "LABOR PROTECTION IN THE CHILD CARE CENTER." Modern Technologies and Scientific and Technological Progress 1, no. 1 (2021): 258–59. http://dx.doi.org/10.36629/2686-9896-2021-1-1-258-259.

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The article is devoted to the study of the work of a specialist in labor protection of  the Center for Assistance to children. The article analyzes the implementation of the work on the crea tion of an integrated system of protection of life, health, safety, fire safety, labor protect

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Tamura, Madoka, Norihide Fukushima, and Isao Shiraishi. "The Roles of Child Life Specialist in the Field of Pediatric Heart Transplantation." Pediatric Cardiology and Cardiac Surgery 33, no. 2 (2017): 100–109. http://dx.doi.org/10.9794/jspccs.33.100.

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Stallard, Paul, Michelle Maguire, Justin Daddow, Rosie Shepperd, Mike Foster, and Jill Berry. "Unexpected deaths of children and young people in the UK." BJPsych Bulletin 40, no. 2 (2016): 68–71. http://dx.doi.org/10.1192/pb.bp.114.049825.

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Aims and methodTo review the deaths of children and young people who took their own life. We conducted a retrospective analysis of serious incident reports from a National Health Service trust and reviews by the child death overview panels of the local safeguarding children boards.ResultsWe identified 23 deaths, with annual rates varying considerably between local authorities and over time. Over half of the children (n = 13, 56%) were not known to specialist child and adolescent mental health services, with 11 having no contact with any agency at the time of their death. Hanging was the most c

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Rodger, Sylvia. "A Comparison between Parenting a Normal and a Handicapped Child throughout a Life Span." British Journal of Occupational Therapy 50, no. 5 (1987): 167–70. http://dx.doi.org/10.1177/030802268705000505.

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This paper addresses the changing demands of parenting handicapped and normal children throughout various stages of the life span — Pregnancy, the toddler, childhood and adolescent years, and adult children. Various issues which become critical at each of these stages are discussed and similarities and differences in parenting and child-rearing practices for these two groups are outlined. The paper highlights the fact that occupational therapists have many valuable specialist skills and a broad knowledge base from which to offer assistance to parents grappling with parenting a handicapped chil

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Naidina, I. V. "Why the process is so Important for a DIRFloortime specialist." Autism and Developmental Disorders 17, no. 2 (2019): 97–105. http://dx.doi.org/10.17759/autdd.2019170208.

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DIRFloortime® is a learning approach tailored to individual characteristics of the adult and child and based on establishing emotionally charged relationships, which is successfully used to help children with autistic spectrum disorders. An expert trained in DIRFloortime® offers her thoughts on the importance of the interaction process between children and adults during sessions and in the real-life setting. The paper reviews following the child’s lead and challenging — the main strategies of the DIRFloortime approach. It describes the concept of the circle of communication and characteristics

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Drayton, Nicola A., Shannan Waddups, and Tanya Walker. "Exploring distraction and the impact of a child life specialist: Perceptions from nurses in a pediatric setting." Journal for Specialists in Pediatric Nursing 24, no. 2 (2019): e12242. http://dx.doi.org/10.1111/jspn.12242.

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Lysecki, David, Daryl Bainbridge, Tracy Akitt, Georgia Georgiou, Ralph M. Meyer, and Jonathan Sussman. "Feasibility of a child life specialist program for oncology patients with minor children at home: Qualitative analysis." Journal of Clinical Oncology 39, no. 28_suppl (2021): 30. http://dx.doi.org/10.1200/jco.2020.39.28_suppl.30.

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30 Background: Up to 24% of adult oncology patients have minor children at home, who may experience negative short- and long-term health outcomes as a result. Typical support networks often fail to meet the needs of these families. To address this, an innovative Child Life Specialist (CLS) program was embedded within the psychosocial support team at a tertiary oncology center. The program provided direct consultation to families (adults and children) including guidance on talking with children, provision of resources, diagnostic teaching, end-of-life support, grief support, and emotional expre

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Sanchez Cristal, Natasha, Jennifer Staab, Rachel Chatham, Sarah Ryan, Brian Mcnair, and Joseph A. Grubenhoff. "Child Life Reduces Distress and Pain and Improves Family Satisfaction in the Pediatric Emergency Department." Clinical Pediatrics 57, no. 13 (2018): 1567–75. http://dx.doi.org/10.1177/0009922818798386.

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This study evaluated the effects of Certified Child Life Specialist (CCLS) intervention on pediatric distress and pain and family satisfaction during routine peripheral intravenous (PIV) line placement in the emergency department (ED). A convenience sample of 78 children (3-13 years) requiring PIV placement for their treatment at a regional level 1 pediatric trauma center ED with 70 000 annual visits were selected to receive either standard nursing care or CCLS intervention for PIV placement. CCLS involvement was associated with fewer negative emotional behaviors as indicated by a lower score

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Baker, R. "Support by another mother and a child-life specialist decreased anxiety in mothers of children with chronic illnesses." Evidence-Based Medicine 7, no. 1 (2002): 23. http://dx.doi.org/10.1136/ebm.7.1.23.

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Schlechter, John A., Anna L. Avik, and Stephanie DeMello. "Is there a role for a child life specialist during orthopedic cast room procedures? A prospective-randomized assessment." Journal of Pediatric Orthopaedics B 26, no. 6 (2017): 575–79. http://dx.doi.org/10.1097/bpb.0000000000000310.

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Martin, Heather A. "The Power of Lidocaine, Epinephrine, and Tetracaine (LET) and a Child Life Specialist When Suturing Lacerations in Children." Journal of Emergency Nursing 43, no. 2 (2017): 169–70. http://dx.doi.org/10.1016/j.jen.2016.12.019.

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Lysecki, David, Daryl Bainbridge, Tracy Akitt, Georgia Georgiou, Ralph M. Meyer, and Jonathan Sussman. "Feasibility of a child life specialist program for oncology patients with minor children at home: Demand and implementation." Journal of Clinical Oncology 39, no. 28_suppl (2021): 28. http://dx.doi.org/10.1200/jco.2020.39.28_suppl.28.

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28 Background: Up to 24% of adult oncology patients have minor children at home. Children may experience emotional problems, somatic complaints, social isolation, depression, and post-traumatic stress as a result. Typical support networks often fail to meet the needs of these families. To address this gap, an innovative Child Life Specialist (CLS) program for patients with minor children at home was offered at a tertiary oncology center. Methods: To understand the feasibility of this program, we examined the demand for and implementation of the CLS program over its initial 10 months. Demand wa

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Mulligan, Shane, Suzanne Guerin, Aidan McKiernan, et al. "The core features and outcomes of a specialised camp programme for children with life-limiting conditions and their families: A qualitative multi-perspective approach." Journal of Child Health Care 24, no. 4 (2019): 515–28. http://dx.doi.org/10.1177/1367493519875593.

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Previous research has reported that the families of children with enduring and life-limiting health conditions are at risk of negative psychosocial effects. Adjunct to medical interventions, specialist camp programmes have been developed to promote familial adjustment. However, limited research has been carried out in this area. The aim of this study was to describe the core features and outcomes of a specialised camp programme for children with life-limiting conditions (LLC) and their family. Semi-structured interviews were conducted with four professionals, three volunteers involved in facil

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McDowell, Michael M., Daniela Ortega Peraza, and Taylor J. Abel. "Development and implementation of a novel child life protocol to enhance psychosocial support for pediatric awake craniotomies: technical note." Neurosurgical Focus 48, no. 2 (2020): E5. http://dx.doi.org/10.3171/2019.11.focus19774.

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Awake craniotomies are a crucial tool for identifying eloquent cortex, but significant limitations frequently related to patient tolerance have limited their applicability in pediatric cases. The authors describe a comprehensive, longitudinal protocol developed in collaboration with a certified child life specialist (CCLS) in order to enhance patient experiences and develop resiliency related to the intraoperative portion of cases. This protocol includes preoperative conditioning, intraoperative support, and postoperative positive reinforcement and debriefing. A unique coping plan is developed

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Byford, Sarah, Hristina Petkova, Ruth Stuart, et al. "Alternative community-based models of care for young people with anorexia nervosa: the CostED national surveillance study." Health Services and Delivery Research 7, no. 37 (2019): 1–78. http://dx.doi.org/10.3310/hsdr07370.

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Background Evidence suggests that investing in specialist eating disorders services for young people with anorexia nervosa could have important implications for the NHS, with the potential to improve health outcomes and reduce costs through reductions in the number and length of hospital admissions. Objectives The primary objectives were to evaluate the costs and cost-effectiveness of alternative community-based models of service provision for young people with anorexia nervosa and to model the impact of potential changes to the provision of specialist services. Design Observational surveillan

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Malcolm, Cari, and Katherine Knighting. "What does effective end-of-life care at home for children look like? A qualitative interview study exploring the perspectives of bereaved parents." Palliative Medicine 35, no. 8 (2021): 1602–11. http://dx.doi.org/10.1177/02692163211023300.

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Background: End-of-life care for children with life-shortening conditions is provided in a range of settings including hospital, hospice and home. What home-based, end-of-life care should entail or what best practice might look like is not widely reported, particularly from the perspective of parents who experienced the death of a child at home. Aim: To explore the value and assess the effectiveness of an innovative model of care providing home-based, end-of-life care as perceived by families who accessed the service. Design: A qualitative descriptive study design was employed with in-depth se

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Odukwe, Francis, and Francis Ezeh. "What is palliative care?" InnovAiT: Education and inspiration for general practice 14, no. 1 (2020): 19–26. http://dx.doi.org/10.1177/1755738020966780.

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In 1990, the World Health Organisation (WHO) recognised palliative care as a distinct specialty dedicated to relieving suffering and improving quality of life for patients with life-limiting illnesses or serious injuries. Fourteen years later, the WHO in its publication ‘ Global Atlas of Palliative Care at the End of Life’, projected that, ‘each year in the world, around 377 per 100,000 of the adult (over 15 years of age) population and 63 per 100,000 of the child population (under 15 years of age) will require “palliative care at the end of life’. This article will discuss what constitutes pa

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Mitchell, S., A. Morris, K. Bennett, and J. Dale. "G517(P) Do specialist paediatric palliative care services benefit children and young people patients with life-limiting or life-threatening conditions and their families?" Archives of Disease in Childhood 101, Suppl 1 (2016): A306.1—A306. http://dx.doi.org/10.1136/archdischild-2016-310863.504.

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Bhatnagar, Neha, and Georgina W. Hall. "Major bleeding disorders: diagnosis, classification, management and recent developments in haemophilia." Archives of Disease in Childhood 103, no. 5 (2017): 509–13. http://dx.doi.org/10.1136/archdischild-2016-311018.

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In this review, we outline the standard of care for children in the UK with the most common major bleeding disorder, haemophilia, and how exciting new developments in therapy have the potential for further improvements in quality of life and clinical outcome. The combination of comprehensive specialist medical care, safer factor concentrates, earlier introduction of prophylaxis and patient-specific education has allowed the current generation of patients with haemophilia to grow into adulthood with excellent joint function, pursuing full-time employment with a good quality of life. We are ente

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Mateiko, N., and А. Lyshak. "CLINICAL-PSYCHOLOGICAL COMPETENCE OF THE SPECIALIST IN THE PERFORMANCE OF FORENSIC-PSYCHOLOGICAL EXAMINATION." Criminalistics and Forensics, no. 65 (May 18, 2020): 643–53. http://dx.doi.org/10.33994/kndise.2020.65.63.

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The article is dedicated to the importance by expert’s psychologist clinical and psychological competence, because its purpose is to identify the mental characteristics of a particular person and its behavior in the legally relevant circumstances during preliminary and pretrial investigation in criminal and civil cases. Forensic psychological examination establishes the presence or absence of pathological deviations in mental functioning of the subject person and their impact on the ability to display, reflect, and regulate incriminating activities, solves the question of the interaction of ps

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Office, Editorial. "Incorporating a holistic view into the art of healing." Advances in Modern Oncology Research 3, no. 1 (2017): 8. http://dx.doi.org/10.18282/amor.v3.i1.205.

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<p>Nuclear Medicine Specialist Dr. Kornélia Kajȧry recalls the period during her childhood when her parents’ career had helped spark her interest in medicine. “Both of my parents worked in the field of health. My father practiced his profession as a general practitioner, therefore medicine became a part of everyday life in our family. When I was a child, my father told me and explained a lot about his work, which made me more interested in the art of healing,” the Researcher in Spotlight reminisces.</p>

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Journault, Marina, Simone Stenekes, Robin McClure, and Chelsea Ruth. "108 Palliative care for neonates: Retrospective mixed methods review of infant death in the Neonatal Intensive Care Unit." Paediatrics & Child Health 25, Supplement_2 (2020): e45-e45. http://dx.doi.org/10.1093/pch/pxaa068.107.

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Abstract Background Neonatal palliative care is an under researched yet growing field in the provision of intensive care to neonates. There are currently no studies which explore infant death in the Neonatal Intensive Care Unit (NICU) itself where a shift from intensive to palliative care may occur. Objectives The purpose of this study was to explore the circumstances of infant death in the NICU and understand current utilization of specialist palliative care in this area. It aimed to characterize the infants’ clinical course and add unique understanding by analyzing documentation related to e

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Spanaki, Adriani, Sara O’Curry, Jasmine Winter-Beatty, et al. "Psychosocial adjustment and quality of life in children undergoing screening in a specialist paediatric hypertrophic cardiomyopathy clinic." Cardiology in the Young 26, no. 5 (2015): 961–67. http://dx.doi.org/10.1017/s1047951115001717.

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AbstractObjectiveThis study aimed to assess the psychological well-being and quality of life in children with hypertrophic cardiomyopathy and the potential psychosocial impact of screening.MethodsA total of 152 children (aged 3–18 years) attending a specialist paediatric hypertrophic cardiomyopathy clinic, and their parents completed the Generic Core Scales and Cardiac Module of the Paediatric Quality of Life Inventory (PedsQL) questionnaire as well as the Strengths and Difficulties Questionnaire; 21 patients (14%) had hypertrophic cardiomyopathy (group A); 23 children (15%) harboured hypertro

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Rayanov, Nail V., R. N. Rayanov, and N. R. Nizaev. "ANALISIS OF THE STTUCTURE OF ABDOMINAL PAIN SINDROME IN CHILDREN IN CONDITIONS OF THE CENTRAL REPUBLICAN HOSPITAL." Russian Journal of Pediatric Surgery 23, no. 1 (2019): 35–37. http://dx.doi.org/10.18821/1560-9510-2019-23-1-35-37.

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Abdominal pain is a serious problem in pediatric surgery. Abdominal pain is one of the most frequent complaints addressed by children and their parents to doctors of various specialties: pediatrician, gastroenterologist, infectious diseases specialist, pediatric surgeon, ambulance workers. Abdominal pain is a symptom of many diseases of organs of abdominal cavity. It may be of a functional nature, which does not pose a threat to the life of the child and does not require surgical intervention, and pain associated with acute pathology of the abdominal organs (acute appendicitis, invagination of

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Crider, Jan, and Mary Frances D. Pate. "Helping Children Say Goodbye to Loved Ones in Adult and Pediatric Intensive Care Units: Certified Child Life Specialist—Critical Care Nurse Partnership." AACN Advanced Critical Care 22, no. 2 (2011): 109–12. http://dx.doi.org/10.4037/nci.0b013e31820810b6.

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Wrana, Jan. "Forms of therapy of disabled children and role of architecture in this process." Budownictwo i Architektura 14, no. 1 (2015): 135–43. http://dx.doi.org/10.35784/bud-arch.1679.

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The article presents the examples of the different forms of education in the period of building a civil society, and the deliberate creation of equal opportunities and development of the child, foster the construction of curriculum system: "To better developed skills supported the efforts in improving the function of a child with disabilities." Formed integration education and sports centres, primary and secondary s with all facilities where children are educated together in full working order and state disability after diagnosis (with no significant motor impairment), assisted activity of sch

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Zayats, M. V. "Implementation of a Token Economy in the Process of Skills Development in Distance Learning Classes with a Child with ASD." Autism and Developmental Disorders 71, no. 2 (2021): 59–68. http://dx.doi.org/10.17759/autdd.2021710207.

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The research conducted with a five-year-old child diagnosed with childhood autism evaluates the effectiveness of using of a token economy reinforcer system and discrete trial teaching method for establishing matching and discrimination skills (animal discrimination and matching identical stimuli), as well as answering yes/no questions about preferred items. Due to the pandemic, the child did not have the opportunity to attend rehabilitation centers, so the parents agreed to work in a distance format. For this study, the child’s mother was involved as a tutor, who was previously trained to prov

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Lynch, Paul, Melissa Gladstone, Michael McLinden, et al. "‘I have learnt to love the child and give opportunities to play with peers’: A feasibility study of the training programme to support parents of young children with visual impairment in Malawi." Journal of Early Childhood Research 16, no. 2 (2018): 210–25. http://dx.doi.org/10.1177/1476718x18761219.

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This is a first mixed-methods study, which created, adapted and tested the feasibility of a training programme targeted at parents, community professionals, specialist teachers and volunteers to provide advice on developmental stimulation for children with visual impairment in their homes in rural and urban settings of Malawi. The study followed guidance from the Medical Research Council Framework for Developing and Evaluating Complex Interventions and drew on a bioecological model to help understand the feasibility of a new intervention in Malawi for 30 children with visual impairment and the

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Piazza, Julie, Sandra Merkel, Harry Neusius, et al. "It's Not Just a Needlestick: Exploring Phlebotomists' Knowledge, Training, and Use of Comfort Measures in Pediatric Care to Improve the Patient Experience." Journal of Applied Laboratory Medicine 3, no. 5 (2019): 847–56. http://dx.doi.org/10.1373/jalm.2018.027573.

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Abstract Background Blood draws are a routine element of the pediatric patient experience. They are also associated with the greatest fear and pain for a child. Because of the limited literature regarding phlebotomists' knowledge, experience, training, or stress related to their use of comfort techniques during pediatric blood draws, this study explored current practices and training methods. Phlebotomist training tends to focus on clinical technique rather than pediatric or patient comfort support. The study includes aims to develop a measurement for phlebotomists' use of comfort techniques f

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Charlett, S. D., J. W. Moor, C. N. Jenkins, and A. P. Coatesworth. "A quartet of lateral sinus thrombosis, extradural abscess, subdural abscess and occipital abscess: complications of acute mastoiditis in a pre-adolescent child." Journal of Laryngology & Otology 120, no. 9 (2006): 781–83. http://dx.doi.org/10.1017/s0022215106002271.

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Neurological complications of acute mastoiditis are rare but can be life threatening. Their presentation may be masked by the use of antibiotics. We present a unique case of acute otitis media progressing to occipital, extradural and subdural abscess formation and lateral sinus thrombosis in a child. The clinical course and management of a pre-adolescent male is presented and discussed. We review the incidence, presentation and treatment of occipital abscesses and lateral sinus thrombosis with acute mastoiditis. Following extended cortical mastoidectomy, neck exploration and broad spectrum int

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Cook, P., and V. Walker. "Investigation of the child with an acute metabolic disorder." Journal of Clinical Pathology 64, no. 3 (2011): 181–91. http://dx.doi.org/10.1136/jcp.2009.067884.

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Inherited biochemical defects may present with acute life-threatening illness with a high mortality and morbidity. Some are treatable and have a good outcome with early appropriate intervention. However, because of their rarity, diagnosis is often delayed; they are not considered or investigated appropriately. This is especially likely in those presenting in previously healthy adults. The collection of acute samples is crucial. There are numerous disorders, and front-line tests must cast a wide net. A small core of emergency tests generally indicates which metabolic pathway is defective and pr

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Perasso, Giulia. "The Play Specialist in the pediatric healthcare: Evidence-based professionalism, issues in practice, and training across different countries." International Journal of Science Annals 4, no. 1 (2021): 45–47. http://dx.doi.org/10.26697/ijsa.2021.1.7.

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For developmental psychologists, playing is a crucial parameter to monitor children and adolescents’ physical, emotional, cognitive, and executive development and wellbeing. In the psychotherapy setting, play is a promotor of positive therapeutic change because it allows the child to express beliefs, memories, wishes, feelings, and subconscious contents, from a safe and indirect point of view. Play is a fundamental human right during the whole life cycle, and it becomes even more important for those children and adolescents who are hospitalized or experiencing medical treatments at home (Europ

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Tyack, Zephanie, Megan Simons, Steven M. McPhail, et al. "Improving the patient-centred care of children with life-altering skin conditions using feedback from electronic patient-reported outcome measures: protocol for a hybrid effectiveness-implementation study (PEDS-ePROM)." BMJ Open 11, no. 4 (2021): e041861. http://dx.doi.org/10.1136/bmjopen-2020-041861.

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IntroductionUsing patient-reported outcome measures (PROMs) with children have been described as ‘giving a voice to the child’. Few studies have examined the routine use of these measures as potentially therapeutic interventions. This study aims to investigate: (1) the effectiveness of feedback using graphical displays of information from electronic PROMs (ePROMs) that target health-related quality of life, to improve health outcomes, referrals and treatment satisfaction and (2) the implementation of ePROMs and graphical displays by assessing acceptability, sustainability, cost, fidelity and c

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Wileczek, Anna. "Linguistic images of modern parenthood on parenting websites." Kwartalnik Pedagogiczny 64, no. 4 (254 (2020): 197–215. http://dx.doi.org/10.5604/01.3001.0013.8469.

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Contemporary socio-cultural transformations of family life can be observed in the area of non-specialist parental discourse in terms of both modern parenthood and the celebration of childhood. The new quality in the experience and creation of parenthood is noticeable especially in the communication performed with the help of Web 2.0 tools (which are currently among the most important platforms for the exchange of particularly valued “unscientific” – experience, because it is based on empirical knowledge). Internet messages (entries, posts, comments) create an involved parenting and glorify a s

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McMahon, Des L., Marie Twomey, Maeve O’Reilly, and Mary Devins. "Referrals to a perinatal specialist palliative care consult service in Ireland, 2012–2015." Archives of Disease in Childhood - Fetal and Neonatal Edition 103, no. 6 (2017): F573—F576. http://dx.doi.org/10.1136/archdischild-2017-313183.

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ObjectiveTo analyse the referral patterns of perinatal patients referred to a specialist palliative care service (SPCS), their demographics, diagnoses, duration of illness, place of death and symptom profile.DesignA retrospective chart review of all perinatal referrals over a 4-year period to the end of 2015.SettingA consultant-led paediatric SPCS at Our Lady’s Children’s Hospital, Crumlin, Dublin, and the Coombe Women & Infants University Hospital, Dublin.Results83 perinatal referrals were received in a 4-year period. Chromosomal abnormalities accounted for 35% of diagnoses, congenital he

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Zangari, Paola, Maia De Luca, Alberto Villani, and Andrzej Krzysztofiak. "Brain Abscesses: An Overview in Children." Journal of Pediatric Infectious Diseases 14, no. 01 (2017): 002–5. http://dx.doi.org/10.1055/s-0037-1615786.

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AbstractBrain abscesses in infants and children might be life threatening if not managed properly. They occur more frequently in the first two decades of life despite the reduced incidence of sinus and ear infections in pediatrics. The features of brain abscess in terms of location, pathogens, and symptoms depend on age and thus on predisposing factors. In infants and toddlers, bacterial meningitis or bacteremia is the major cause, and in older children, immunosuppression and cyanotic congenital heart diseases are common predisposing factors. The therapeutic management of brain abscesses invol

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Engelhard, Matthew, Samuel Berchuck, Jyotsna Garg, Shelley Rusincovitch, Geraldine Dawson, and Scott Kollins. "Patterns of Health Services Use Before Age 1 in Children Later Diagnosed With ADHD." Journal of Attention Disorders 25, no. 12 (2021): 1639. http://dx.doi.org/10.1177/1087054720914352.

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Background: Children with ADHD have 2 to 3 times increased health care utilization and annual costs once diagnosed, but little is known about utilization patterns early in life, prior to diagnosis. Quantifying early health services use among children later diagnosed with ADHD could help us understand the early life impact of the disorder and uncover health care utilization patterns associated with higher ADHD risk. Methods: Electronic health record (EHR) data from the Duke University Health System (DUHS) was analyzed for patients born October 1, 2006–October 1, 2016. Those with at least two we

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Ekberg, Stuart, Susan Danby, Anthony Herbert, Natalie K. Bradford, and Patsy Yates. "Affording opportunities to discuss deterioration in paediatric palliative care consultations: a conversation analytic study." BMJ Supportive & Palliative Care 10, no. 2 (2017): e13-e13. http://dx.doi.org/10.1136/bmjspcare-2016-001130.

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ObjectiveDiscussing the potential deterioration of a child who has a life-limiting condition has recognised benefits for future care, but can be challenging in a clinical context where uncertain illness trajectories are common. Existing research is restricted to indirect forms of evidence such as self-report data from clinicians and families. This study directly explores how discussions about deterioration are managed within actual paediatric palliative care consultations.Methods9 consultations were video recorded in an Australian paediatric palliative care service. Each consultation involved

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Lion, Alex, Saneta Maiko, Csaba Szilagyi, James Slaven, and Christina Puchalski. "QOL-48. INTERDISCIPLINARY SPIRITUAL CARE TRAINING IN PEDIATRIC NEURO-ONCOLOGY." Neuro-Oncology 22, Supplement_3 (2020): iii439—iii440. http://dx.doi.org/10.1093/neuonc/noaa222.703.

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Abstract INTRODUCTION Pediatric neuro-oncology requires attention to not only cancer biology and therapeutics, but also to the suffering of the patient. In addressing patient suffering, consensus guidelines direct attention to the spiritual distress and resources of patients and families. A lack of training has been a key barrier to integrating this aspect of health into patient care. METHODS A neuro-oncologist and a chaplain participated in a train the trainer for the Interprofessional Spiritual Care Education Curriculum (ISPEC) through the George Washington University’s Institute for Spiritu

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Fraser, Lorna K., and Roger Parslow. "Children with life-limiting conditions in paediatric intensive care units: a national cohort, data linkage study." Archives of Disease in Childhood 103, no. 6 (2017): 540–47. http://dx.doi.org/10.1136/archdischild-2017-312638.

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ObjectiveTo determine how many children are admitted to paediatric intensive care unit (PICU) with life-limiting conditions (LLCs) and their outcomes.DesignNational cohort, data-linkage study.SettingPICUs in England.PatientsChildren admitted to a UK PICU (1 January 2004 and 31 March 2015) were identified in the Paediatric Intensive Care Audit Network dataset. Linkage to hospital episodes statistics enabled identification of children with a LLC using an International Classification of Diseases (ICD10) code list.Main outcome measuresRandom-effects logistic regression was undertaken to assess ris

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