Livres : « Ethics and self-care »

1

Advanced practice nursing : Ethics in chronic disease self-management. New York : Springer, 2013.

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Woody, Robert Henley. Legal self-defense for mental health practitioners : Quality care and risk management strategies. New York, NY : Springer Pub. Co., 2012.

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Fuller, Robert C. Ecology of care : An interdisciplinary analysis of the self and moral obligation. Louisville, Ky : Westminster/John Knox Press, 1992.

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Funck-Brentano, J. L. Le désordre médical et les moyens d'y remédier. Paris : Hermann, 1994.

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5

Schmidt, Silke. editor of compilation, Rienhoff, O. (Otto), 1949- editor of compilation et PHM Ethics (Project), dir. Interdisciplinary assessment of personal health monitoring. Amsterdam : IOS Press, 2013.

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Ghaye, Tony. Learning journals and critical incidents : Reflective practice for health care professionals. Dinton : Quay, 1997.

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Damon, William, et Anne Colby. Some Do Care : Contemporary Lives of Moral Commitment. New York, USA : Free Press, 1994.

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Christensen, Alice. Yoga of the heart : Ten ethical principles for gaining limitless growth, confidence, and achievement. New York : Daybreak Books, 1998.

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Alternatives in Jewish bioethics. Albany : State University of New York Press, 1997.

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10

Christopher, Lukas, dir. Staying in charge : Practical plans for the end of your life. Hoboken, N.J : J. Wiley & Sons, 2004.

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Kaplan, Karen Orloff. Staying in Charge. New York : John Wiley & Sons, Ltd., 2004.

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Mahbub, Amina. Perspective of women about their own illness. Dhaka : BRAC-ICDDR,B Joint Research Project, 1997.

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Bignall, Tracey. Something to do : The development of peer support groups for young black and minority ethnic disabled people. Bristol : Policy, 2002.

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Foucault, Michel. CARE OF SELF V3 (History of Sexuality, Vol 3). Pantheon, 1986.

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Lefebvre, Alexandre. Human Rights and the Care of the Self. Duke University Press, 2018.

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Lefebvre, Alexandre. Human rights and the care of the self. 2018.

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Year of Living Kindfully : Week-By-week Activities That Will Enrich Your Life Through Self-care and Kindness to Others. Ryland Peters & Small, 2020.

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The Patient Self-Determination Act : Meeting the Challenges in Patient Care (Clinical Medical Ethics (Washington, D.C.).). Georgetown University Press, 2001.

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Tools for Practitioners in Child Care Settings (Standards of Practice ; Code of Ethics ; Guide to Self-Reflection). Canadian Child Care Federation, 2000.

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The Patient Self-Determination Act : Meeting the Challenges in Patient Care (Clinical Medical Ethics (Georgetown Univ Pr)). Georgetown Univ Pr, 1999.

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B, Kapp Marshall, dir. Patient self-determination in long-term care : Implementing the PSDA in medical decisions. New York : Springer Pub. Co., 1994.

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Kapp, Marshall B. Patient Self-Determination in Long-Term Care : Implementing the Psda in Medical Decisions (Springer Series on Ethics, Law, and Aging). Springer Publishing Company, 1994.

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I Can't Do That ! : My Social Stories To Help With Communication, Self-Care and Personal Skills (Lucky Duck Books). Paul Chapman Educational Publishing, 2006.

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Candilis, Philip J., Gregory B. Leong et Robert Weinstock. Ethics in Geriatric Forensic Assessment. Oxford University Press, 2017. http://dx.doi.org/10.1093/med/9780199374656.003.0028.

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The ethics of geriatric forensic practice are governed by frameworks that help guide common elder activities, such as medical and financial decision-making, self-care, driving, and making choices at the end of life. Practitioners must be aware of countervailing and often contradictory considerations among older patients and forensic evaluees, including their empowerment and protection and the protection of others. As in most decision-making, families, communities, and other citizens may be affected by decisions taken by older persons, whether to plead guilty, drive, make a will, or participate in physician-assisted dying. Consequently, clinical and forensic practitioners may need to be aware of the principles, professional guidelines, habits, and skills that apply to their work. This chapter offers a number of ethical models for informing evaluations of geriatric populations and applies them to an array of activities scrutinized in older persons.

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Marsh, Pamela. Timely Endings and the Ethics of “Being Heard”. Sous la direction de John Z. Sadler, K. W. M. Fulford et Cornelius Werendly van Staden. Oxford University Press, 2015. http://dx.doi.org/10.1093/oxfordhb/9780198732365.013.9.

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The author reflects on her bout of complex post-traumatic stress disorder (C-PTSD) as well as her encounters with psychiatrists/psychotherapists and other mental health professionals. She recalls first being admitted to a psychiatric ward in 1996, to be followed by many more admissions for crisis intervention, self-harm, and suicide attempts. She says the therapy she received was sometimes traumatic and exacerbated the distress of her symptoms, while also significantly delaying her recovery. She thinks that the mental health care professionals, including psychiatrists, did not seem to understand what she was telling them about her thyroid illness. Had this been diagnosed and treated properly, its impact on her life would not have been as great as it was. Finally, she stresses the importance of a holistic approach in helping patients recover, recognizing when it is time to stop therapy, and the ethics of listening and “being heard” as part of psychotherapy.

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translator, Kwŏn Sŭng-wŏn, dir. Pyŏngwŏn, kagi chŏn e ilgŏya hal ch'aek : Ŭisa in nae ka ijeya an kŏt hwanja p'ildok. 2016.

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Learning Journals and Critical Incidents. Quay Books,a division of Mark Allen Publishing Ltd, 1997.

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Competence and Self-Care in Counselling and Psychotherapy. Taylor & Francis Group, 2014.

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Hughes, Gerrie. Competence and Self-Care in Counselling and Psychotherapy. Taylor & Francis Group, 2014.

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Villarruel, Antonia Maria. MEXICAN-AMERICAN CULTURAL MEANINGS, EXPRESSIONS, SELF-CARE AND DEPENDENT-CARE ACTIONS ASSOCIATED WITH EXPERIENCES OF PAIN (MEXICAN AMERICAN). 1993.

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Knocking on heaven's door : The path to a better way of death. 2013.

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Graham, George. Identity and Agency. Sous la direction de John Z. Sadler, K. W. M. Fulford et Cornelius Werendly van Staden. Oxford University Press, 2014. http://dx.doi.org/10.1093/oxfordhb/9780198732365.013.29.

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Even the best moral principles for patient care and psychiatric ethics are likely to be misapplied or stumble in clinical practice, without sound and sensible recognition of how to understand the concepts of a patient’s personal identity and self-responsible or reflective agency. In this chapter I sketch an account of how personal identity and self-responsible agentive capacity are best described for understanding mental illness and in clinical practice. The account aims to be true to the subjective experience of reflective personhood and self-responsible agency as well as to the perspective of the mental health care clinician. Special attention is given to certain background moral principles that help to clinically frame the importance of patient identity and agency.

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Barclay, Katie. Caritas. Oxford University Press, 2021. http://dx.doi.org/10.1093/oso/9780198868132.001.0001.

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Caritas, a form of divine grace that transformed neighbourly love into moral action, was a key concept in early modern Europe, guiding ideas about morality, the self, and becoming an embodied ethic. This book introduces the concept of an ‘emotional ethic’ to help explain the role of caritas in early modern communities, where love was not simply how one should feel about one’s neighbour but the ways that our bodies and emotions guide us to ethical action. It explores how an emotional ethic operates through a study of how caritas was deployed amongst the lower orders in eighteenth-century Scotland. With chapters that focus on marriage, childhood and youth, ‘sinful sex’, privacy and secrecy, and hospitality towards the itinerant poor, the ways in which caritas was learned and deployed as part of everyday social practice are highlighted. Caritas enjoined Christians to modesty, chastity, control of dress, and passion, but also to a generous love and care, imagined in familial terms. As an ethic that was enacted through the body, caritas produced a particular form of sociable self. Over the eighteenth century, new ideas of romantic love, as well as more secular social emotions like fraternity and benevolence, offered alternative mechanisms for justifying feeling and behaviour. This book explores how new ideas about emotion intertwined with an older model of neighbourly love, explaining not only deviant behaviours but also how the self came to be formed in this new context.

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Canty, Janie Lee. AN INVESTIGATION OF LIFE CHANGE EVENTS, HOPE AND SELF-CARE AGENCY IN INNER CITY ADOLESCENTS. 1993.

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Kristjánsson, Kristján. Educating Emotions. Oxford University Press, 2018. http://dx.doi.org/10.1093/oso/9780198809678.003.0009.

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Chapter 9 rehearses Aristotle’s somewhat unsystematic remarks about emotion education. Moreover, the chapter subjects to critical scrutiny six different discourses on emotion education in addition to Aristotle’s: care ethics; social and emotional learning; positive psychology; emotion-regulation discourse; academic-emotions discourse; and social intuitionism. Four differential criteria are used to analyse the content of the discourses: valence of emotions to be educated; value ontology; general aims of emotion education; and self-related goals. Possible criticisms of all the discourses are presented. Subsequently, seven strategies of emotion education (behavioural strategies; ethos modification and emotion contagion; cognitive reframing; service learning/habituation; direct teaching; role modelling; and the arts) are introduced to explore how the seven discourses avail themselves of each strategy. It is argued that there is considerably more convergence in the practical strategies than there is in the theoretical underpinnings of the seven discourses.

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Galvin, Richard. Obligations to the Cognitively Impaired in Non-Structured Contexts. Oxford University Press, 2018. http://dx.doi.org/10.1093/oso/9780198812876.003.0012.

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This chapter focuses on the obligations that individuals who are not designated care-givers have toward those whose disability involves severe cognitive impairment in “non-structured contexts”. This might include casual encounters in routine day-to-day activities. The argument is that familiar accounts of normative ethics, including virtue ethics and (broadly) utilitarian and Kantian views, if unsupplemented and unmodified, fail to provide an adequate account of both the content of and the ground for such obligations. A more promising alternative account suggests that such obligations should be seen as aiding the severely cognitively impaired in acquiring three important human goods: engaging in cooperative efforts, achieving some level of agency, and developing self-respect. Those of us who are not designated care-givers both can and should interact with the severely cognitively impaired in non-structured contexts in ways that assist them in achieving these goods.

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Watson, Max, Caroline Lucas, Andrew Hoy et Jo Wells. Paediatric palliative care. Oxford University Press, 2010. http://dx.doi.org/10.1093/med/9780199234356.003.0025.

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This chapter on paediatric palliative care covers who needs paediatric palliative care, the differences between paediatric and adult palliative care, ethical issues, psychosocial needs in paediatric palliative care, supporting the sick child, supporting parents, parents’ needs and the role of the health professional, sibling needs, community-based care, bereavement, strategies for self-care, and the Association for Children with Life Threatening or Terminal Conditions and their Families (ACT) Charter. The second half of the chapter is divided into the common symptoms experienced by very ill children and outlines a management system for each. There is also an emergency drugs summary.

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Fleischman, Alan R. Ethical Issues in the Care of Adolescents. Oxford University Press, 2016. http://dx.doi.org/10.1093/med/9780199354474.003.0008.

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This chapter describes the dramatic physical and emotional changes that occur during adolescence. It examines the concept of evolving autonomy as young teens begin to develop the capacity to participate fully in decision-making for their care. Ethical issues concerning the relationship of an adolescent patient and his or her parents, including confidentiality and truth telling are discussed. The chapter focuses on empowering adolescents to take responsibility for their health and their healthcare. Ethical concerns for the adolescent with no family, the homosexual and transgender adolescent, and the adolescent with mental health, behavior problems, and eating disorders are all examined.The role and limits of patient confidentiality are discussed, particularly in terms of patient self-harm.

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Zamir, Tzachi. Fourth Crossroad. Oxford University Press, 2017. http://dx.doi.org/10.1093/oso/9780190695088.003.0010.

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The spiritual mistake of attempting self-authorship is exposed. Without the needs of a dependent, created entity, gratitude—the unique love that such an entity can experience and that God cannot—will not be possible. A contrast is drawn between philosophy’s attraction to ideals such as self-authorship or autonomy, and the acceptance of human neediness encouraged by the poem. Not all philosophers champion self-sufficiency, and enable the embracing of human vulnerability to become an objective (care ethics is mentioned in this context). Nevertheless, these attempts to formulate a positive outlook on human neediness still differ from the poem’s. Once again, while a philosopher will argue for some immanent value that accepting needs creates, a religious justification of the same neediness will appeal to the manner whereby such acceptance bonds the believer further to God.

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Ortiz-Martinez, Miguel A. THE SELF-CARE MODEL FOR NURSING IN PUERTO RICO : A CROSS-CULTURAL STUDY OF THE IMPLEMENTATION OF CHANGE (SPANISH TEXT, PSYCHICS). 1994.

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Szmukler, George. Challenges to the orthodoxy. Oxford University Press, 2017. http://dx.doi.org/10.1093/med/9780198801047.003.0004.

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Two comparatively recent developments in health care ethics and policy further challenge the conventional bases for involuntary treatment in mental health care. First has been the shift in general medicine over the past 50 years from ‘paternalism’ and large medical discretion to patient ‘autonomy’. Interventions require ‘informed consent’; treatment without a patient’s consent can only occur if the person lacks ‘decision-making capacity’ and the treatment is judged to be in the person’s ‘best interests’. The treatment decision of a general medical patient who has decisional capacity is respected even if it appears to be unwise. This shift to respect for patient self-determination has been largely ignored in psychiatry. The second policy development is the extension in mental health care of involuntary treatment into the community, greatly increasing the scope for the exercise of compulsion. What constitutes an appropriate level of risk to justify compulsion in the community is unclear.

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Krauter, Cheryl. A Conversation of Hope and Healing. Sous la direction de Cheryl Krauter. Oxford University Press, 2018. http://dx.doi.org/10.1093/med/9780190636364.003.0004.

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Cultural humility is described as a lifelong process and a commitment to self-evaluation and self-reflection that encourages an appreciation of growth and understanding. This puts healthcare providers and patients in a mutually beneficial relationship that attempts to diminish damaging power dynamics. The chapter includes the presentation and discussion of the following attributes of introspection: awareness of self and other; supportive interactions; mutual empowerment; partnerships; respect; optimal care; and lifelong learning. Cultural humility applies a variety of contexts, from ethnic and racial differences, to sexual orientation and identity, to social status, to interpersonal communication styles of different cultures, cultural belief systems, and practices.

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Baker, Eileen F., dir. Legal and Ethical Issues in Emergency Medicine. Oxford University Press, 2020. http://dx.doi.org/10.1093/med/9780190066420.001.0001.

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Part of the “What Do I Do Now?: Emergency Medicine” series, Legal and Ethical Issues in Emergency Medicine uses a case-based approach to cover common and important topics in the legal and ethical dilemmas that surface in the practice of emergency medicine. Each unique case draws upon the four well-established principles of bioethics: beneficence, non-maleficence, respect for autonomy, and justice. Other ethical principles, such as honesty and personal integrity, are also addressed. Chapters are rounded out by key points to remember and selected references for further reading. Legal and Ethical Issues in Emergency Medicine addresses a wide range of topics including HIPPA and confidentiality, advance directives, suicidal patients, refusal of care, expert witness testimony, and more. This book is an engaging collection of thought-provoking cases which clinicians can utilize when they encounter difficult situations in the emergency department. The volume is also a self-assessment tool that tests the reader’s ability to answer the question, “What do I do now?”

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Ferrell, Betty Rolling, et Judith A. Paice, dir. Oxford Textbook of Palliative Nursing. Oxford University Press, 2019. http://dx.doi.org/10.1093/med/9780190862374.001.0001.

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The Oxford Textbook of Palliative Nursing is a comprehensive textbook on the art and science of palliative care nursing. Including new chapters on advance care planning, organ donation, self-care, global palliative care, and the ethos of palliative nursing, each chapter is rich with tables and figures, case examples for improved learning, and a strong evidence-based practice to support the highest quality of care. The book offers a valuable and practical resource for students and clinicians across all settings of care. Developed with the intention of emphasizing the need to extend palliative care beyond the specialty to be integrated in all settings and by all clinicians caring for the seriously ill, this new edition will continue to serve as the cornerstone of palliative care education. The content is relevant for specialty hospice agencies and palliative care programs, as well as generalist knowledge for schools of nursing, oncology, critical care, and pediatric.

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Macauley, Robert C. Neuropalliative Care (DRAFT). Sous la direction de Robert C. Macauley. Oxford University Press, 2018. http://dx.doi.org/10.1093/med/9780199313945.003.0015.

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Neuropalliative care encompasses disorders of consciousness, cognitive impairment, trauma, and other conditions. Each prompts specific ethical considerations, such as the often shifting values (and even personalities) of patients with dementia, forcing one to determine whether previously expressed wishes are determinative. Patients with amyotrophic lateral sclerosis maintain cognition long after motor failure, and the predicable trajectory makes possible specific advance care planning. Patients who have suffered acute spinal cord injury may initially demand withdrawal of life sustaining medical treatment, yet studies have shown a significant proportion eventually achieve a quality of life acceptable to them. And patients who have suffered a stroke often recover significant function, thus making early limitation of treatment a potential “self-fulfilling prophecy.”

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Davidson, Arnold. Spiritual Exercises, Improvisation, and Moral Perfectionism. Sous la direction de George E. Lewis et Benjamin Piekut. Oxford University Press, 2016. http://dx.doi.org/10.1093/oxfordhb/9780195370935.013.26.

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Abstract: Beginning with Pierre Hadot’s idea of spiritual exercises and Stanley Cavell’s conception of moral perfectionism, this essay argues that improvisation can be understood as a practice of spiritual self-transformation. Focusing on the example of Sonny Rollins, the essay investigates the ways in which Rollins’ improvisations embody a series of philosophical concepts and practices: the care of the self, the Stoic exercise of cosmic consciousness, the problem of moral exemplarity, the ideas, found in the later Foucault, of a limit attitude and an experimental attitude, and so on. The underlying claim of the essay is that improvisation is not only an aesthetic exercise, but also a social and ethical practice that can give rise to existential transformations.

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McKee, Kimberly D., et Denise A. Delgado. Degrees of Difference. University of Illinois Press, 2020. http://dx.doi.org/10.5622/illinois/9780252043185.001.0001.

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Degrees of Difference: Reflections of Women of Color on Graduate School uses personal narrative supported by scholarly research to identify the struggles faced by women of color in graduate school and the methods deployed by women to mitigate the academic and emotional struggles they face. Contributors represent a diverse group of women from different ethnic, racial, and national origin backgrounds in fields ranging from the humanities to sciences. The essays engage common themes that recur in many women of color’s narratives: racial microaggressions, alienation, disillusionment, a lack of departmental and institutional support, imposter syndrome, a lack of self-care, and limited support from family and partners. The authors then discuss the specific steps taken to resist the roadblocks that stop many women of color from completing their degrees. Focusing on self-care, the creation of supportive communities, finding like-minded mentors, and strategies on resisting racism and unsupportive faculty and graduate students, the contrubtors offer solutions and possible avenues to support other women of color’s success in academia.

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Trestman, Robert, Kenneth Appelbaum et Jeffrey Metzner, dir. Oxford Textbook of Correctional Psychiatry. Oxford University Press, 2015. http://dx.doi.org/10.1093/med/9780199360574.001.0001.

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The Oxford Textbook of Correctional Psychiatry addresses the history, structure, and processes of correctional psychiatry, including case law, human rights, ethics, organization and funding of systems, as well as stages of patient management that cover initial assessments through re-entry. It also discusses management issues, emergencies, psychopharmacology topics, sleep, detoxification, reassessment of community diagnoses and treatments, diversion programs, levels of care, malingering, substance use within facilities, and formulary management. It also covers common psychiatric disorders, relevant medical disorders, pain management, psychotherapeutic options, suicide risk management, and addictions treatment. Specific focus is given to aggression, self-injury, and other behavioral challenges, and it also reviews unique assessment and treatment needs of many distinct population groups. Special topics such as forensics, psychological testing, sexual assaults, quality improvement, training, and research are also covered, followed by a section devoted exclusively to current resources in correctional healthcare.

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Rushton, Cynda Hylton, dir. Moral Resilience. Oxford University Press, 2018. http://dx.doi.org/10.1093/med/9780190619268.001.0001.

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Suffering is an unavoidable reality in healthcare. Not only are patients and families suffering but also the clinicians who care for them. Commonly the suffering experienced by clinicians is moral in nature, in part a reflection of the increasing complexity of health care, their roles within it, and the expanding range of available interventions that challenge their moral foundations. Moral suffering is the anguish that arises occurs in response to moral adversity that challenges clinicians’ integrity: the inner harmony that arises when their essential values and commitments are aligned with their choices and actions. The sources and sequelae of moral distress, one type of moral suffering, have been documented among clinicians across specialties. Transforming their suffering will require solutions that expanded individual and system strategies. Moral resilience, the capacity of an individual to restore or sustain integrity in response to moral adversity, offers a path forward. It encompasses capacities aimed at developing self- regulation and self-awareness, buoyancy, moral efficacy, self-stewardship and ultimately personal and relational integrity. Whether it involves gradual or profound radical change clinicians have the potential to transform themselves and their clinical practice in ways that more authentically reflect their character, intentions and values. The burden of healing our healthcare system is not the sole responsibility of individuals. Clinicians and healthcare organizations must work together to transform moral suffering by cultivating the individual capacities for moral resilience and designing a new architecture to support ethical practice. Used worldwide for scalable and sustainable change, the Conscious Full Spectrum approach, offers a method to solve problems to support integrity, shift patterns that undermine moral resilience and ethical practice, and leverage the inner potential of clinicians and leaders to produce meaningful and sustainable results that benefit all.

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Sullivan, Mark D. Escaping the Autonomy Versus Objectivity Trap by Repersonalizing the Clinical Problem. Oxford University Press, 2016. http://dx.doi.org/10.1093/med/9780195386585.003.0004.

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Respect for patient autonomy has been sought as the antidote to the depersonalization that ails modern medicine. It serves as a challenge to the dominance of impersonal disease diagnosis in treatment choice. We now repersonalize treatment at a late stage through the informed consent process. If we are to find another way to repersonalize health care, we need to understand the historical roots of the patient autonomy versus objective disease dynamic in which we are trapped. The same disengaged self that sees ethics in terms of autonomy also sees disease as an observable tissue lesion within the body at autopsy. Clinico-pathological correlation offers a gold standard for clinical diagnosis and a completely objective access to disease. This ability to diagnose objective disease is the source of physician paternalism. It can be countered by incorporating the patient’s view of the clinical problem back into the diagnostic process.

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