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Letteratura scientifica selezionata sul tema "Family-centered care"

Autore: Grafiati

Pubblicato: 4 giugno 2021

Ultima modifica: 28 gennaio 2023

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Articoli di riviste sul tema "Family-centered care"

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Kitchen, Bonnie E. "Family-Centered Care . Family-Centered Care: A Case Study". Journal for Specialists in Pediatric Nursing 10, n. 2 (aprile 2005): 93–97. http://dx.doi.org/10.1111/j.1744-6155.2005.00012.x.

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Cunningham, Robert D. "Family-Centered Care". Pediatrics 93, n. 6 (1 giugno 1994): 1023–24. http://dx.doi.org/10.1542/peds.93.6.1023b.

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I read "The Principles for Family-Centered Neonatal Care" with great interest. As a physician who has worked in a state government-operated neonatal intensive care unit follow-up clinic, I agree wholeheartedly with the principle of open and honest communication between parents and professionals, especially regarding poor developmental outcomes. Unfortunately, physicians, despite their own feelings about this issue, may come under pressure from third parties to withhold certain information from families. In my own experiences, I have been drawn aside in private conversations and told that if I continue to tell parents that their child is mentally retarded or has cerebral palsy, it might have an adverse impact on my career.

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Davidson, Judy E. "Family-Centered Care". AACN Advanced Critical Care 28, n. 2 (15 giugno 2017): 136–37. http://dx.doi.org/10.4037/aacnacc2017803.

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RUSHTON, CINDY HYLTON. "FAMILY-CENTERED CARE". AACN Clinical Issues: Advanced Practice in Acute and Critical Care 4, n. 3 (agosto 1993): 530. http://dx.doi.org/10.1097/00044067-199308000-00025.

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Williams, Wendy G. "Family-Centered Care." Journal for Specialists in Pediatric Nursing 11, n. 3 (luglio 2006): 203–6. http://dx.doi.org/10.1111/j.1744-6155.2006.00068.x.

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Hink, Holly, e Dennis Schellhase. "Family-Centered Care." Journal for Specialists in Pediatric Nursing 11, n. 4 (ottobre 2006): 260–63. http://dx.doi.org/10.1111/j.1744-6155.2006.00080.x.

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Chia-Chen Chen, Angela, e Elaine Adams Thompson. "Family-Centered Care." Journal for Specialists in Pediatric Nursing 12, n. 2 (aprile 2007): 119–22. http://dx.doi.org/10.1111/j.1744-6155.2007.00101.x.

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Power, Nina, Christina Liossi e Linda S. Franck. "Family-Centered Care." Journal for Specialists in Pediatric Nursing 12, n. 3 (luglio 2007): 203–9. http://dx.doi.org/10.1111/j.1744-6155.2007.00113.x.

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Handmaker, Stanley D., e Elizabeth S. Stewart. "Family-Centered Care". Children's Health Care 17, n. 2 (settembre 1988): 68–70. http://dx.doi.org/10.1207/s15326888chc1702_1.

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Hostler, Sharon L. "Family-Centered Care". Pediatric Clinics of North America 38, n. 6 (dicembre 1991): 1545–60. http://dx.doi.org/10.1016/s0031-3955(16)38236-0.

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Tesi sul tema "Family-centered care"

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Kirk, C., e Jean Croce Hemphill. "Family Centered Care for the Homeless". Digital Commons @ East Tennessee State University, 1992. https://dc.etsu.edu/etsu-works/7599.

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Pollock-Robinson, M. Catherine. "Family-centered care, patient-centered care, and culturally competent care common themes and background meanings /". Pullman, Wash. : Washington State University, 2009. http://www.dissertations.wsu.edu/Thesis/Spring2009/m_pollockrobinson_042409.pdf.

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Blackwelder, Reid B. "Patient-Centered Care". Digital Commons @ East Tennessee State University, 2010. https://dc.etsu.edu/etsu-works/6982.

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Bloch, Elise M. "Occupational therapists' attitudes toward family-centered care". FIU Digital Commons, 2004. http://digitalcommons.fiu.edu/etd/2016.

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The purpose of this study was to examine pediatric occupational therapists attitudes towards family-centered care. Specific attributes identified by the literature (professional characteristics, educational experiences and organizational culture) were investigated to determine their influence on these attitudes. Study participants were 250 pediatric occupational therapists who were randomly selected from the American Occupational Therapy Association special interest sections. Participants received a mail packet with three instruments to complete and mail back within 2 weeks. The instruments were (a) the Professional Attitude Scale (b) the Professional Characteristics Questionnaire, and (c) the Family-Centered Program Rating Scale. There was a 50% return rate. Data analysis was conducted in SPSS using descriptive statistics, correlations and regression analysis. The analysis showed that pediatric occupational therapists working in various practice settings demonstrate favorable attitudes toward family-centered care as measured by the Professional Attitude Scale. There was no correlation between professional characteristics and educational experiences to therapists' attitudes. A moderate correlation (r=.368, p These study findings suggest that organizational culture has some influence on occupational therapists attitudes toward family-centered care (R2 =.16). These findings suggest educators should consider families as valuable resources when considering program planning in family-centered care at preservice and workplace settings.

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MacKay, Lyndsay Jerusha, e University of Lethbridge Faculty of Health Sciences. "Exploring family-centered care among pediatric oncology nurses". Thesis, Lethbridge, Alta. : University of Lethbridge, Faculty of Health Sciences, c2009, 2009. http://hdl.handle.net/10133/2483.

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Family-centered care (FCC) is important within the practice of pediatric oncology nurses. Such nurses face challenges and barriers when attempting to provide FCC. The purpose of this study was to understand the experiences of pediatric oncology nurses in relation to FCC; identify how pediatric oncology nurses implemented FCC into their practice; identify what facilitated and enabled pediatric oncology nurses to implement FCC; and discern the barriers and challenges that were present in their setting when implementing FCC. A qualitative approach utilizing person-centered interviewing was used to collect data. Nurses (N=20) from the Alberta Children‟s Hospital were recruited through purposeful convenience sampling and were then interviewed. Five major themes were identified from the data set: ACH support f FCC, How participants defined FCC, Establishing FCC, Enhancing FCC, and Barriers and Challenges to providing FCC. Recommendations for future research and implications for practice and education are offered.
xii, 191 leaves ; 29 cm

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Blackwelder, Reid B. "Patient-Centered Care: Transforming Our Practices". Digital Commons @ East Tennessee State University, 2007. https://dc.etsu.edu/etsu-works/6984.

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Rose, Douglas, Leonard Brian Cross e Ivy A. Click. "The Patient-Centered Care Committee (PC3)". Digital Commons @ East Tennessee State University, 2013. https://dc.etsu.edu/etsu-works/6396.

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Mayo-Bruinsma, Liesha. "Family-centered Care Delivery: Comparing Models of Primary Care Service Delivery in Ontario". Thèse, Université d'Ottawa / University of Ottawa, 2011. http://hdl.handle.net/10393/19952.

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Family-centered care (FCC) focuses on considering the family in planning/implementing care and is associated with increased patient satisfaction. Little is known about factors that influence FCC. Using linear mixed modeling and Generalized Estimating Equations to analyze data from a cross-sectional survey of primary care practices in Ontario, this study sought to determine whether models of primary care service delivery differ in their provision of FCC and to identify characteristics of primary care practices associated with FCC. Patient-reported scores of FCC were high, but did not differ significantly among primary care models. After accounting for patient characteristics, practice characteristics were not significantly associated with patient-reported FCC. Provider-reported scores of FCC were significantly higher in Community Health Centres than in Family Health Networks. Higher numbers of nurse practitioners and clinical services on site were associated with higher FCC scores but scores decreased as the number of family physicians at a site increased.

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Jagani, Tasnim-e.-zehra. "Barriers in the implementation of family-centered care during pediatric hospitalizations". Honors in the Major Thesis, University of Central Florida, 2010. http://digital.library.ucf.edu/cdm/ref/collection/ETH/id/1429.

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This item is only available in print in the UCF Libraries. If this is your Honors Thesis, you can help us make it available online for use by researchers around the world by following the instructions on the distribution consent form at http://library.ucf.edu/Systems/DigitalInitiatives/DigitalCollections/InternetDistributionConsentAgreementForm.pdf You may also contact the project coordinator, Kerri Bottorff, at kerri.bottorff@ucf.edu for more information.
Bachelors
Nursing
Nursing

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Kirk, C., e Jean Croce Hemphill. "Outcomes of Family Centered Care in a Nurse Managed Homeless Clinic". Digital Commons @ East Tennessee State University, 1994. https://dc.etsu.edu/etsu-works/7594.

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Più fonti

Libri sul tema "Family-centered care"

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author, Disch Joanne Marilyn, Walton Mary K. author e Sigma Theta Tau International, a cura di. Person- and family-centered care. Indianapolis, IN: Sigma Theta Tau International, Honor Society of Nursing, 2014.

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Mabel, Hunsberger, e Tackett-Anderson Jo Joyce, a cura di. Family-centered nursing care of children. Philadelphia: Saunders, 1989.

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Mabel, Hunsberger, Wright Stephanie Ph D e Foster Roxie L. Romness, a cura di. Family-centered nursing care of children. 2^a ed. Philadelphia: W.B. Saunders, 1994.

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1945-, Doherty William J., e Baird Macaran A, a cura di. Family-centered medical care: A clinical casebook. New York: Guilford Press, 1987.

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Essentials of maternity nursing: Family-centered care. Philadelphia: Lippincott, 1991.

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F, Noonan Catherine, e London Marcia L, a cura di. Maternal-newborn & child nursing: Family-centered care. Upper Saddle River, NJ: Prentice Hall, 2003.

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Olson, Marianne E. Manual for family centered care program development. Rochester, Minn. (P.O. Box 245, Rochester 55903): ChildBearing Years, 1993.

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Shelton, Terri L. Family-centered care for children with special health care needs. 2^a ed. Washington, D.C: Association for the Care of Children's Health, 1989.

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Gonzalez-Mena, Janet. Child, family, and community: Family-centered early care and education. 5^a ed. Upper Saddle River, N.J: Merrill Prentice Hall, 2009.

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Child, family, and community: Family-centered early care and education. 6^a ed. Boston: Pearson, 2013.

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Capitoli di libri sul tema "Family-centered care"

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Naar-King, Sylvie. "Family-Centered Care". In Encyclopedia of Clinical Neuropsychology, 1023. New York, NY: Springer New York, 2011. http://dx.doi.org/10.1007/978-0-387-79948-3_1545.

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Naar-King, Sylvie. "Family-Centered Care". In Encyclopedia of Clinical Neuropsychology, 1. Cham: Springer International Publishing, 2017. http://dx.doi.org/10.1007/978-3-319-56782-2_1545-2.

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Naar-King, Sylvie. "Family-Centered Care". In Encyclopedia of Clinical Neuropsychology, 1402. Cham: Springer International Publishing, 2018. http://dx.doi.org/10.1007/978-3-319-57111-9_1545.

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Ward, Tracey, Raphael Bernier, Cora Mukerji, Danielle Perszyk, James C. McPartland, Ellen Johnson, Susan Faja et al. "Family-Centered Care". In Encyclopedia of Autism Spectrum Disorders, 1252–53. New York, NY: Springer New York, 2013. http://dx.doi.org/10.1007/978-1-4419-1698-3_774.

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Peters, Lisa M. "Family-Centered Care". In Encyclopedia of Pain, 1256–59. Berlin, Heidelberg: Springer Berlin Heidelberg, 2013. http://dx.doi.org/10.1007/978-3-642-28753-4_4971.

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Saultz, John W. "Family-Centered Health Care". In Family Medicine, 28–34. New York, NY: Springer New York, 1988. http://dx.doi.org/10.1007/978-1-4757-1998-7_3.

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Lewis, Laura Foran. "Family-Centered Care, 2nd edition". In Encyclopedia of Autism Spectrum Disorders, 1–2. New York, NY: Springer New York, 2018. http://dx.doi.org/10.1007/978-1-4614-6435-8_102252-1.

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Lewis, Laura Foran. "Family-Centered Care, Second Edition". In Encyclopedia of Autism Spectrum Disorders, 1–2. New York, NY: Springer New York, 2020. http://dx.doi.org/10.1007/978-1-4614-6435-8_102252-2.

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Lewis, Laura Foran. "Family-Centered Care, Second Edition". In Encyclopedia of Autism Spectrum Disorders, 1987–88. Cham: Springer International Publishing, 2021. http://dx.doi.org/10.1007/978-3-319-91280-6_102252.

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Mooney-Doyle, Kim, Maiara Rodrigues dos Santos e Roberta L. Woodgate. "Family-Centered Care in Pediatric Oncology". In Pediatric Oncology, 7–19. Cham: Springer International Publishing, 2020. http://dx.doi.org/10.1007/978-3-030-25804-7_2.

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Atti di convegni sul tema "Family-centered care"

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Johnson, Janet, Evan Schmitz, Venktesh Ramnath e Nadir Weibel. "Designing Family-Centered Aids for the Intensive Care Unit". In CHI '19: CHI Conference on Human Factors in Computing Systems. New York, NY, USA: ACM, 2019. http://dx.doi.org/10.1145/3290607.3312799.

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Arief, Yuni Sufyanti, Nursalam, I. Dewa Gede Ugrasena e Shrimarti Rukmini Devy. "Family-Centered Empowerment in Caring Children with Leukemia". In The 9th International Nursing Conference: Nurses at The Forefront Transforming Care, Science and Research. SCITEPRESS - Science and Technology Publications, 2018. http://dx.doi.org/10.5220/0008328905760579.

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Anderson, Jesse Boyett, Alida Yee, Allie Kiley, Kristin Shadman, Shardha Srinivasan e Margo Hoover-Regan. "Family Centered Care For Patients With Congenital Heart Defects: Enhancing The Role Of Palliative Care". In AAP National Conference & Exhibition Meeting Abstracts. American Academy of Pediatrics, 2021. http://dx.doi.org/10.1542/peds.147.3_meetingabstract.530-a.

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Anderson, Sharon, Lesley Charles, Sheny Khera e jasneet parmar. "Co-design and evaluation of health care workforce education to provide Person-Centered care for family caregivers". In NAPCRG 49th Annual Meeting — Abstracts of Completed Research 2021. American Academy of Family Physicians, 2022. http://dx.doi.org/10.1370/afm.20.s1.2756.

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Amherdt, Sarah, Mir Abdul Basir e Mir Basir. "Recognizing Digital Multimedia’s Potential as a Teaching Tool to Improve Family-centered Care in Our Technology-centered Society in the Neonatal Intensive Care Unit". In Selection of Abstracts From NCE 2016. American Academy of Pediatrics, 2018. http://dx.doi.org/10.1542/peds.141.1_meetingabstract.237.

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Wicaksono, Kurniawan Erman, Ristya Widi Endah Yani e Elfian Zulkarnain. "Effectiveness Difference of Family Psychoeducation Model and Family Centered Empowerment Model on Knowledge and Attitude in The Poor Family of Preventing Hypertention on Families in Distric Jember". In The 9th International Nursing Conference: Nurses at The Forefront Transforming Care, Science and Research. SCITEPRESS - Science and Technology Publications, 2018. http://dx.doi.org/10.5220/0008320700730077.

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Fernandes, Ashley K., Shalini G. Forbis, Bette S. Sydelko, Laura Gruber e Elise Kwizera. "Do Family-Centered Rounds Lead to More Humanistic Pediatric Care? a Systematic Review of the Literature". In Selection of Abstracts From NCE 2015. American Academy of Pediatrics, 2017. http://dx.doi.org/10.1542/peds.140.1_meetingabstract.21.

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Hany, Alfrina, Kharisma Hadi e Renny Nova. "The effect of Nurse’s Knowledge about Family Centered Care on Self-Care of Heart Failure Patients on Self-Efficacy of Nurses in Intensive Care Rooms". In Proceedings of the 6th Batusangkar International Conference, BIC 2021, 11 - 12 October, 2021, Batusangkar-West Sumatra, Indonesia. EAI, 2022. http://dx.doi.org/10.4108/eai.11-10-2021.2319555.

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Cadwalladera, Jason, Steve Mellemab e Nancy J. Lightnera. "Using Simulation to Provide Insights into the Concept Development of Patient-Centered Care Services". In Applied Human Factors and Ergonomics Conference. AHFE International, 2021. http://dx.doi.org/10.54941/ahfe100495.

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The United States’ Institute of Medicine established patient-centered care as an aim for the 21st-century health care system. Patient-centered care focuses on the patient, their family members and staff experience, while ensuring patient safety and high clinical quality. A medical center in the Veterans Affairs healthcare system approached the Veterans Affairs Center for Applied Systems Engineering to assist in the redesign of the facility that provides medical cancer care. Their goals were to design a patient-centered, state-of-the-art center. Discrete event simulation provided rough order of magnitude estimates for facility and resource planning. Primary metrics of concern were patient length of stay, patient wait time, and room and staff utilization. The simulation included an animated visualization of ‘a day in the life’ of a patient. It also collected metrics on patient experience and center efficiency. Watching the patient flow animation provided two primary insights to the stakeholders. First, it was evident that the patient care process was patient-centered in that it limited patient movement. Second, observations of traffic flow indicated that the design can accommodate the desired patient demand. The visualization showed that increasing the number of providers resulted in reductions in patient wait times and that reducing the number of exam rooms did not significantly affect patient wait time. This exercise demonstrated the value of simulation in the planning and analysis of facility configurations when considering patient-centered design.

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Richmond, Deborah. "Empowered Mobility: Supply Chain Thinking for Youth in Foster Care". In 2016 ACSA International Conference. ACSA Press, 2016. http://dx.doi.org/10.35483/acsa.intl.2016.29.

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The application of global container logistics to high mobility children, such as those in foster care, asks designers to consider an empathic, human-centered approach to an institutionalized system of involuntary mobility, which can result in as many as 3-4 family “placements” per year for some children. In spite of grim statistics for youth in foster care related to graduation, teen pregnancy, drug use and imprisonment, these children develop many positive resiliencies around adaptability, emotional intelligence, empathy and efficiency. Working with a non-profit serving youth in foster care in Watts, Los Angeles, called Peace4Kids, whose motto is “community as family,” the concept of a “mobile village” was born. Following their lead, paired with a deep understanding of consumer culture’s collective intelligence around moving goods through cities, an innovative strategy was used to create a literal delivery platform for educational programming, in partnership with other non-profits, around food equity, social justice and eventually other vocational skills such as apparel arts, machine arts, fine arts and early education.

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Rapporti di organizzazioni sul tema "Family-centered care"

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DeCandia, Carmela J. DeCandia, Libby Hayes Hayes e Marvin So So. Family Experiences of Homelessness in Massachusetts: The Case for Family-Centered Care. Homes for Families, febbraio 2017. http://dx.doi.org/10.15868/socialsector.27476.

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Chouraya, Caspian, Nobuble Mthethwa, Lynne Mofenson, Philisiwe Khumalo, Lydia Mpango, Munamato Mirira, Rhoderick Machekano, Leila Katirayi e Kim Ashburn. Piloting and evaluating family-centered HIV care in Eswatini. Population Council, 2020. http://dx.doi.org/10.31899/hiv12.1023.

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Faccio, Bianca, Deja Logan, Ria Shelton, Sydney Briggs, Bonnie Solomon e Jennifer Manlove. Family Planning Clients’ Experiences With Providers Can Inform Patient-centered Care. Child Trends, Inc., gennaio 2023. http://dx.doi.org/10.56417/6691k6666e.

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Ndhlovu, Lewis. Quality of care and utilisation of MCH and FP services at Kenyan health facilities. Population Council, 1999. http://dx.doi.org/10.31899/rh1999.1017.

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Quality of services is playing an increasingly important role in many family planning (FP) programs. In 1995, a national Situation Analysis Study of 254 health facilities was conducted in Kenya to assess the status and quality of FP services in the country. An in-depth survey of a subsample of 28 health facilities was conducted the following year. From these facilities, 1,834 women were interviewed about their experiences with services at facilities when they sought antenatal, child health, and FP services. The goal of the survey was to examine the links between quality of care in FP services and contraceptive behavior. A key focus was directed at information and counseling as elements of service quality. Further, the subject of quality was explored in the context of how women switched facilities for the same and different services of antenatal care, child health, and FP. As noted in this report, this study highlights the gap that exists in the provision of quality reproductive health services. Despite the call for client-centered services, there is evidence that a wide gap still remains in providing relevant information to clients.

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Patton, Amy, Kylie Dunavan, Kyla Key, Steffani Takahashi, Kathryn Tenner e Megan Wilson. Reducing Stress, Anxiety, and Depression for NICU Parents. University of Tennessee Health Science Center, maggio 2021. http://dx.doi.org/10.21007/chp.mot2.2021.0012.

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This project aims to appraise evidence of the effectiveness of various practices on reducing stress, anxiety, and depression among parents of infants in the neonatal intensive care unit (NICU). The project contains six research articles from both national and international journals. Study designs include one meta-analysis, one randomized controlled trial, one small scale randomized controlled trial, one prospective phase lag cohort study, on pretest-posttest study, and one mixed-methods pretest-posttest study. Recommendations for effective interventions were based on best evidence discovered through quality appraisal and study outcomes. All interventions, except for educational programs and Kangaroo Care, resulted in a statistically significant reduction of either stress, anxiety, and/ or depression. Family centered care and mindfulness-based intervention reduced all barriers of interest. There is strong and high-quality evidence for the effect of Cognitive Behavioral Therapy on depression, moderate evidence for the effect of activity-based group therapy on anxiety, and promising evidence for the effect of HUG Your Baby on stress.

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Leavy, Michelle B., Costas Boussios, Robert L. Phillips, Jr., Diana Clarke, Barry Sarvet, Aziz Boxwala e Richard Gliklich. Outcome Measure Harmonization and Data Infrastructure for Patient-Centered Outcomes Research in Depression: Final Report. Agency for Healthcare Research and Quality (AHRQ), giugno 2022. http://dx.doi.org/10.23970/ahrqepcwhitepaperdepressionfinal.

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Objective. The objective of this project was to demonstrate the feasibility and value of collecting harmonized depression outcome measures in the patient registry and health system settings, displaying the outcome measures to clinicians to support individual patient care and population health management, and using the resulting measures data to support patient-centered outcomes research (PCOR). Methods. The harmonized depression outcome measures selected for this project were response, remission, recurrence, suicide ideation and behavior, adverse effects of treatment, and death from suicide. The measures were calculated in the PRIME Registry, sponsored by the American Board of Family Medicine, and PsychPRO, sponsored by the American Psychiatric Association, and displayed on the registry dashboards for the participating pilot sites. At the conclusion of the data collection period (March 2020-March 2021), registry data were analyzed to describe implementation of measurement-based care and outcomes in the primary care and behavioral health care settings. To calculate and display the measures in the health system setting, a Substitutable Medical Apps, Reusable Technology (SMART) on Fast Healthcare Interoperability Resource (FHIR) application was developed and deployed at Baystate Health. Finally a stakeholder panel was convened to develop a prioritized research agenda for PCOR in depression and to provide feedback on the development of a data use and governance toolkit. Results. Calculation of the harmonized outcome measures within the PRIME Registry and PsychPRO was feasible, but technical and operational barriers needed to be overcome to ensure that relevant data were available and that the measures were meaningful to clinicians. Analysis of the registry data demonstrated that the harmonized outcome measures can be used to support PCOR across care settings and data sources. In the health system setting, this project demonstrated that it is technically and operationally feasible to use an open-source app to calculate and display the outcome measures in the clinician’s workflow. Finally, this project produced tools and resources to support future implementations of harmonized measures and use of the resulting data for research, including a prioritized research agenda and data use and governance toolkit. Conclusion. Standardization of outcome measures across patient registries and routine clinical care is an important step toward creating robust, national-level data infrastructure that could serve as the foundation for learning health systems, quality improvement initiatives, and research. This project demonstrated that it is feasible to calculate the harmonized outcome measures for depression in two patient registries and a health system setting, display the results to clinicians to support individual patient management and population health, and use the outcome measures data to support research. This project also assessed the value and burden of capturing the measures in different care settings and created standards-based tools and other resources to support future implementations of harmonized outcome measures in depression and other clinical areas. The findings and lessons learned from this project should serve as a roadmap to guide future implementations of harmonized outcome measures in depression and other clinical areas.

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Leavy, Michelle B., Danielle Cooke, Sarah Hajjar, Erik Bikelman, Bailey Egan, Diana Clarke, Debbie Gibson, Barbara Casanova e Richard Gliklich. Outcome Measure Harmonization and Data Infrastructure for Patient-Centered Outcomes Research in Depression: Report on Registry Configuration. Agency for Healthcare Research and Quality (AHRQ), novembre 2020. http://dx.doi.org/10.23970/ahrqepcregistryoutcome.

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Background: Major depressive disorder is a common mental disorder. Many pressing questions regarding depression treatment and outcomes exist, and new, efficient research approaches are necessary to address them. The primary objective of this project is to demonstrate the feasibility and value of capturing the harmonized depression outcome measures in the clinical workflow and submitting these data to different registries. Secondary objectives include demonstrating the feasibility of using these data for patient-centered outcomes research and developing a toolkit to support registries interested in sharing data with external researchers. Methods: The harmonized outcome measures for depression were developed through a multi-stakeholder, consensus-based process supported by AHRQ. For this implementation effort, the PRIME Registry, sponsored by the American Board of Family Medicine, and PsychPRO, sponsored by the American Psychiatric Association, each recruited 10 pilot sites from existing registry sites, added the harmonized measures to the registry platform, and submitted the project for institutional review board review Results: The process of preparing each registry to calculate the harmonized measures produced three major findings. First, some clarifications were necessary to make the harmonized definitions operational. Second, some data necessary for the measures are not routinely captured in structured form (e.g., PHQ-9 item 9, adverse events, suicide ideation and behavior, and mortality data). Finally, capture of the PHQ-9 requires operational and technical modifications. The next phase of this project will focus collection of the baseline and follow-up PHQ-9s, as well as other supporting clinical documentation. In parallel to the data collection process, the project team will examine the feasibility of using natural language processing to extract information on PHQ-9 scores, adverse events, and suicidal behaviors from unstructured data. Conclusion: This pilot project represents the first practical implementation of the harmonized outcome measures for depression. Initial results indicate that it is feasible to calculate the measures within the two patient registries, although some challenges were encountered related to the harmonized definition specifications, the availability of the necessary data, and the clinical workflow for collecting the PHQ-9. The ongoing data collection period, combined with an evaluation of the utility of natural language processing for these measures, will produce more information about the practical challenges, value, and burden of using the harmonized measures in the primary care and mental health setting. These findings will be useful to inform future implementations of the harmonized depression outcome measures.

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Effect of a family-centered model of HIV care on viral suppression and care retention among HIV-positive children in Swaziland. Population Council, 2017. http://dx.doi.org/10.31899/hiv6.1009.

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Philippines and Senegal: Services improve quality of care but fail to increase FP continuation. Population Council, 2002. http://dx.doi.org/10.31899/rh2002.1016.

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In 1999, Frontiers in Reproductive Health collaborated on studies on the impact of interventions to improve quality of care in the Philippines and Senegal. The two interventions were part of a multicountry Population Council study (also undertaken in Pakistan and Zambia) to test whether improving quality affects women’s contraceptive continuation. The Philippines study focused on training in family planning (FP), supportive supervision, and refresher courses to improve client-provider interaction. The Senegal study compared the impact of improved quality of care at five newly established “reference centers” with five clinics that served as controls. Data were gathered through analyses of quality of care at all 10 sites in 1997, when the reference centers had begun implementation, and in 1998, 16 months later. As detailed in this brief, the introduction of client-centered service delivery with a focus on the client-provider interaction resulted in better quality of care at sites in the Philippines and Senegal. However, improving quality of care alone was not found to be sufficient to significantly increase the length of time women continued to use contraception.

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Lactational amenhorrhoea method for birth spacing in Uttar Pradesh, India: Supporting technical data. Population Council, 1996. http://dx.doi.org/10.31899/rh1996.1014.

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Following the International Population and Development Conference in Cairo, there has been widespread consensus in the international community that family planning (FP) programs must be people-centered and focus not just on contraception, but on the reproductive health (RH) of men and women throughout their lives. This policy brief reviews the research and policy implications of promoting the Lactational Amenorrhea Method (LAM) as a component of FP counseling in India. The Government of India and the Population Council are using a pregnancy-based approach in Uttar Pradesh to improve the delivery of FP services through the rural primary health care system. Introducing pregnant women and their families to LAM offers a number of health benefits for mother and child. It promotes breastfeeding, which benefits the mother by reducing risk of postpartum hemorrhage and lowering risk of breast and ovarian cancers. The benefits to the fully breastfed infant include protection from hypothermia, neonatal hypoglycemia, and infections, in addition to nutritional advantages. Breastfeeding reduces postpartum fertility, thus delaying the need to use other contraceptive methods. LAM introduces couples to the concept of nonpermanent contraception and child spacing in a culturally acceptable way.

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