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Gesundheit, Benjamin, Ephraim Reichenberg e Rael D. Strous. "Personal Accounts: Resilience: Message From a “Mengele Twin” Survivor". Psychiatric Services 62, n. 10 (ottobre 2011): 1127–29. http://dx.doi.org/10.1176/ps.62.10.pss6210_1127.
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Stanton, Keith. "Joint bank accounts and survivorship". Common Law World Review 47, n. 3 (settembre 2018): 162–66. http://dx.doi.org/10.1177/1473779518791768.
Testo completoAbstract (sommario):
Who is beneficially entitled to the money deposited in a joint bank account? In the great majority of cases, it is clear that the money is jointly owned and will pass on the death of one of the account holders to the survivor. However, things are not always simple and the law then has to decide as to the ownership of the money in a dispute between the surviving account holder and the estate of the deceased. The decision of the Judicial Committee of the Privy Council in Whitlock v Moree, a case on appeal from the Court of Appeal of the Bahamas is the latest decision on this topic.
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Wood, Mark, Evelyn Rose e Chrissy Thompson. "Viral justice? Online justice-seeking, intimate partner violence and affective contagion". Theoretical Criminology 23, n. 3 (gennaio 2018): 375–93. http://dx.doi.org/10.1177/1362480617750507.
Testo completoAbstract (sommario):
What has been termed the survivor selfie is a recent and growing phenomenon whereby survivors of intimate partner violence or their close supporters upload graphic photos and accounts of their injuries and suffering to social media. In this article, we examine how the like economy of Facebook can lead to the rapid circulation of survivor selfies to large audiences, and in doing so, generate what we term viral justice: the outcome of a victim’s online justice-seeking post ‘going viral’ and quickly being viewed and shared-on by thousands of social media users. Through examining the trajectory and impact of one particular case—Ashlee Savins’s viral survivor selfie—we identify the technological preconditions of viral justice and three of its key dimensions: affective contagion; swarm sociality; and movement power. Through discussing the speed, sociality and contagion of viral justice, we critically consider some of its implications for online justice-seeking, and responding to intimate partner violence.
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Almeida, A., M. Adjuntsov, W. Bushura, E. Delgado, M. Drasher, M. Fernando-Pancho, M. Gasane et al. "Hear us! Accounts of people treated with injectables for drug-resistant TB". Public Health Action 11, n. 3 (21 settembre 2021): 146–54. http://dx.doi.org/10.5588/pha.21.0031.
Testo completoAbstract (sommario):
BACKGROUND: WHO drug-resistant TB (DR-TB) treatment recommendations now emphasize all-oral regimens, recommending against certain injectable agents and deprioritizing others due to inferior safety and efficacy. Despite increasing focus on patient-centered care, we are not aware of systematic attempts to qualitatively document patients’ perspectives on injectable agents. This may inform implementation of WHO guidelines, emphasizing the importance of consultation with affected communities.METHODS: Testimonies were provided by TB survivors who experienced hearing loss from treatment with injectable agents. Testimonies were submitted in writing in response to minimal, standardized, open-ended prompts. Participants provided a signed consent form (with options to participate anonymously or as a named co-author), and later gave input into the overall shape and recommendations of the article.RESULTS: Fourteen TB survivors in 12 countries contributed testimonies. The following common themes emerged: lack of access to appropriate testing, information, treatment, or a collaborative treatment environment; the power of supportive care and social environments; stigma and isolation from TB treatment itself and resultant disability; and inaccessibility of cochlear implants.CONCLUSIONS: Survivor testimonies indicate strong preferences for avoidance of injectable agents, supporting rapid implementation of revised WHO guidelines, as well as for quality and supportive care for both TB and disabilities.
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Harrington, Carol. "Neo-liberal Subjectivity, Self-branding and ‘My Rape Story’ YouTube Videos". Critical Sociology 45, n. 7-8 (23 maggio 2018): 1181–94. http://dx.doi.org/10.1177/0896920518778107.
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This article considers the YouTube ‘My Rape Story’ genre in light of critical feminist analyses of rape survivor stories. The feminist mobilization that developed out of the political ferment of 1968 told a ‘rape story’ of male power and women’s oppression. However, as first-hand rape stories proliferated in late 20th-century popular media, psychological experts typically framed them with therapeutic narratives of individual self-efficacy and self-transformation. Critical feminist analyses of such rape ‘survivor discourse’ called for new discursive spaces that would allow survivors to eschew therapeutic accounts. A new generation of women have spoken out on a variety of digital platforms, confronting established limits on talking about rape. Considering YouTube ‘My Rape Story’ videos as one manifestation of this new wave of speaking out, my analysis shows that examples of such videos evidence the impact of incitements to self-disclosure through self-branding built into much social media. I argue that these videos exemplify how first-hand rape stories can provide a site for the construction of neo-liberal subjectivity by positioning rape trauma as something survivors must work on in order to achieve self-efficacy. Nevertheless, these accounts also show resistance to victim-blaming rape myths.
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MacLeod, George. "Rendre audible la voix d’une rescapée tutsie : le rôle du paratexte dans Le Livre d’Élise". Varias, n. 39 (23 settembre 2015): 133–44. http://dx.doi.org/10.7202/1033137ar.
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This article uses trauma theory to show the unique paratextual framing of Tutsi genocide survivor Élise Rida Musomandera’s memoir, Le Livre d’Élise (Les Belles Lettres, 2014). While dozens of survivor accounts from the Tutsi diaspora have been published in the last two decades, Musomandera’s is the first eye-witness memoir written by a Tutsi survivor still living in Rwanda. The vast majority of these testimonial memoirs contain introductions and postfaces which present the text for a Western reader. These paratexts have tended to privilege one of two discourses, comparing the Tutsi survivor’s story either to a moral lesson or to Holocaust testimonies. In contrast, the introduction to Le Livre d’Élise emphasizes the encounter between Musomandera’s authorial voice and the reader. The introduction’s European co-authors suggest that in reading Musomandera’s text, the reader joins a community of attentive interlocutors who are participating in the ongoing process of helping her find agency and social recognition following the devastating impact of genocide.
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Sigurvinsdóttir, Rannveig. "„Þú veist þú vilt það“". Ritið 18, n. 3 (20 dicembre 2018): 151–71. http://dx.doi.org/10.33112/ritid.18.3.7.
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Explanations of sexual violence are an important topic because they reveal the societal context of violence. Perpetrators of violence commonly reject blame, explaining their actions with survivor behavior or the situation. In this study, 397 Icelandic social media posts from Facebook and Twitter were analyzed for explanations of violence. Societal explanations included general negative attitudes towards women, biological essentialism (that men cannot control their sex drive), the entitlement of men to sex and objectification. Survivor explanations included that the survivor had been drinking alcohol at the time of the violence, and that the survivor was expected to fight back to justify the event being classified as violence. The monster stereotype of perpetrators was salient in the accounts, either as fact, or to specifically challenge that idea. The results reveal powerful societal stereotypes when it comes to sexual violence, which need to be counteracted in the future.
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Richardson, Kate. "Dissecting Disbelief: Possible Reasons for the Denial of the Existence of Ritual Abuse in the United Kingdom". International Journal for Crime, Justice and Social Democracy 4, n. 2 (1 luglio 2015): 77–93. http://dx.doi.org/10.5204/ijcjsd.v4i2.228.
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When allegations of ritual abuse first came to light in the UK, they were met primarily with a ‘discourse of disbelief’ that left little room for the possibility accounts could be based in genuine experience. Despite convictions, recent criminological, sociological and psychological literature appears fixed on debunking ritual abuse’s existence through highly debated concepts such as ‘false memory’. This paper proposes three broad ‘reasons’ for the creation and maintenance of disbelief around ritual abuse, highlighting the importance of key cases in shaping press coverage of the issue during the 1980s and 1990s, and the role survivor advocates have played in distancing ritual abuse from established knowledge within both psychology and child protection. I argue that the tangibility of death and abject horror within survivor accounts, as well as the perceived religious motivations of perpetrators, make ritual abuse both experientially and conceptually alien to most members of late-modern societies.
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James, Charlotte. "‘They don’t play or run or shout...They’re slaves’:1 The First Survey of Children’s Literature on Modern Slavery". Journal of Modern Slavery 4, n. 2 (dicembre 2018): 143–68. http://dx.doi.org/10.22150/jms/oigs7032.
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This article provides the first survey of children’s literature on modern slavery and analyses the emergence of this movement. Exploring fictional texts and survivor accounts, this article explores how these texts bring modern slavery to children from the news and media. It examines the various trends that emerge from these pieces, including the countries included, types of slavery highlighted, the ages and genders of individuals, and the authors of these texts, survivors or not. It also includes preliminary conclusions about the effectiveness of those texts as educational tools, discussing how these texts highlight signs of slavery and unpack its scale.
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Wlodarski, Amy Lynn. "The Testimonial Aesthetics of Different Trains". Journal of the American Musicological Society 63, n. 1 (2010): 99–141. http://dx.doi.org/10.1525/jams.2010.63.1.99.
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Often praised as an exceptional artistic response to the Holocaust, Steve Reich's Different Trains adopts a documentary approach to Holocaust representation in which Reich assembled short excerpts from three survivor testimonies and published transcriptions of their accounts in his libretto for the work. This article explores the consequences that arise when fragments from very emotional testimonies are recast as purportedly unmediated documentary. The authority attributed to this sort of historical narrative has come under scrutiny in the field of Holocaust studies, in which it is called “secondary witness”—an intellectual interpretation of survivor testimonies advanced without the author revealing his or her own subjective standpoint or scholarly agenda. I argue that Reich's use of the voices of the survivors, Paul, Rachel, and Rachella, constitutes a form of secondary witness. Analysis of the original sources reveals that as Reich worked with extracts from the testimonies, in some cases his composition took on the aesthetics of the original testimonies, yet in other cases, he altered meaning and tone and even misheard certain phrases, producing transcription errors that reframed key moments by substituting his account of the Holocaust for that of the primary witness. Such revelations prompt reevaluation of the moral and political success that has been claimed for Different Trains, since the compositional process could never have been as objective and self-effacing as Reich and his critics suggest.
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Wellman, Ashley R. P. "Faith without Answers: The Use of Religion among Cold Case Homicide Survivors". OMEGA - Journal of Death and Dying 69, n. 1 (agosto 2014): 19–39. http://dx.doi.org/10.2190/om.69.1.b.
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Through data gathered from interviews with cold case homicide survivors, this article reveals the important role of religion and faith in the aftermath of an unsolved murder. Using qualitative methodology, the author highlights the lived experiences and personal journeys of cold case homicide surviving family members, who are often a forgotten and an overlooked segment of victims. Qualitative data suggests that these cold case homicide survivors found religion to be critical in the aftermath of their loved one's murder. Specifically, survivors indicated their faith was fundamental in coping with the homicide and provided hope for anticipating a resolution in their cases. From these intimate, personal survivor accounts, scholars and practitioners can begin to develop future research and programs that are specifically designed to highlight the role of religion in moving forward after an unsolved murder.
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Rahiem, Maila D. H., Husni Rahim e Robin Ersing. "Why did so many women die in the 2004 Aceh Tsunami? Child survivor accounts of the disaster". International Journal of Disaster Risk Reduction 55 (marzo 2021): 102069. http://dx.doi.org/10.1016/j.ijdrr.2021.102069.
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Bernstein, Jeffrey. "Jean Améry, Commemoration and Comparative Engagement". Journal of French and Francophone Philosophy 24, n. 3 (24 febbraio 2017): 1–2. http://dx.doi.org/10.5195/jffp.2016.783.
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2016 marks the 50th Anniversary of the publication of Jean Améry’s collection of essays dealing with his experiences at (and in the aftermath of) Auschwitz entitled Jenseits von Schuld und Sühne: Bewältigungsversuche eines Überwältigten. Translated into English as At The Mind’s Limits: Contemplations By A Survivor On Auschwitz And Its Realities, Améry’s collection immediately set a standard for philosophical accounts of the camps that even today remains unchanged. More uncompromising than the texts of Wiesenthal, Levi, Borowski, and Wiesel, Améry’s collection philosophically explores the extreme limit of the survivor’s experience in the camps as well as the ensuing trauma of living in its wake.
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Wessinger, Catherine. "Autobiographies of Three Surviving Branch Davidians". Fieldwork in Religion 1, n. 2 (1 settembre 2005): 165–97. http://dx.doi.org/10.1558/firn.v1i2.165.
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This article provides an initial report on oral histories being collected from three surviving Branch Davidians: Bonnie Haldeman, the mother of David Koresh, Clive Doyle, and Sheila Martin. Their accounts are being made into autobiographies. Interviews with a fourth survivor, Catherine Matteson, are being prepared for deposit in an archive and inform the material gathered from Bonnie Haldeman, Clive Doyle, and Sheila Martin. Oral histories provided by these survivors humanize the Branch Davidians, who were dehumanized and erased in 1993 by the application of the pejorative ‘cult’ stereotype by the media and American law enforcement agents. These Branch Davidian accounts provide alternate narratives of what happened in 1993 at Mount Carmel Center outside Waco, Texas, to those provided by American federal agents, and flesh out the human dimensions of the community and the tragedy. Branch Davidians are differentiated from many other people primarily by their strong commitment to doing God's will as they understand it from the Bible. Otherwise they are ordinary, intelligent people with the same emotions, loves, and foibles as others.
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Voyce, Andrew, e Jerome Carson. "Our lives in three parts: an autoethnographic account of two undergraduates and their respective psychiatric careers". Mental Health and Social Inclusion 24, n. 4 (2 settembre 2020): 197–205. http://dx.doi.org/10.1108/mhsi-07-2020-0045.
Testo completoAbstract (sommario):
Purpose The purpose of this paper is to provide an autoethnographic account of the stories of a mental health professional and a mental health survivor. Design/methodology/approach Using the autoethnographic approach, the authors provide summaries of their respective psychiatric careers in three parts. Findings The authors studied at the same University, Reading. Voyce failed his Politics finals and embarked on a trajectory as a mental patient. Carson graduated in Psychology and trained as a clinical psychologist. The recovery movement brought them together, and they have now established an educational and personal bond. Research limitations/implications These are of course only two accounts, yet both authors have played a role in developing the recovery model in Britain. The accounts and story show the benefits of adopting a partnership approach between professional and service user. Practical implications Both accounts are recovery journeys in their own way. Both highlight the value of education for recovery. Social implications There is no doubt that clinical psychologists are both highly valued and well paid for their expertise. However, the expertise gained through Andrew’s life experience is equally invaluable for today’s mental health professionals to learn from, but perhaps not as well remunerated. Originality/value Both accounts stretch back over 45 years and have covered the move from institutional to community care. This paper presents two contrasting perspectives on these changes and the lives of the two people involved.
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Staneva, Aleksandra A., Alexandra F. Gibson, Penelope M. Webb e Vanessa L. Beesley. "The Imperative for a Triumph-Over-Tragedy Story in Women’s Accounts of Undergoing Chemotherapy for Ovarian Cancer". Qualitative Health Research 28, n. 11 (24 giugno 2018): 1759–68. http://dx.doi.org/10.1177/1049732318778261.
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We aimed to examine how women construct their experiences of chemotherapy treatment for ovarian cancer. Through semistructured interviews, we explored the accounts of 18 Australian women about their experiences within a broader cultural imperative—or discourse—to “think positively.” By applying a critical realist lens to the analysis, we identified two discursive themes that shaped women’s accounts. The “feeling different and managing support” theme highlights the identity challenges women faced because of the lack of formal support for ovarian cancer. Conversely, the theme “women’s reconstructions of difficult experiences” illustrates the imperative for women to present a positive story as a way of restoring their position of a lucky and stoic survivor. Such speaking served to mask some of the underlying difficulties that were part of these women’s experiences. Health care professionals need to consider looking for the hidden stories of vulnerability that lie beneath the triumphant ones.
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Hartill, Mike. "Exploring Narratives of Boyhood Sexual Subjection in Male-Sport". Sociology of Sport Journal 31, n. 1 (marzo 2014): 23–43. http://dx.doi.org/10.1123/ssj.2012-0216.
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While little attention has been paid to stories of boyhood sexual abuse in sport, in recent years autobiographical accounts from male “survivors” have emerged in relatively quick succession. This paper argues that this is a significant development for the sports community which requires further attention. More specifically, it argues that the use of narrative analysis is vital to the development of this field of study and illustrates this through the presentation and analysis of two stories of boyhood sexual subjection in male-sport. It is argued that some stories of sexual subjection in male-sport may be well-received while others may not and that social science must be alert to those stories which may transgress dominant notions of the “survivor” story and may be silenced as a result.
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Kardos, Susan. ""Not Bread Alone": Clandestine Schooling and Resistance in the Warsaw Ghetto during the Holocaust". Harvard Educational Review 72, n. 1 (1 aprile 2002): 33–67. http://dx.doi.org/10.17763/haer.72.1.37523430721261lj.
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In this article, Susan Kardos speaks to the importance of education by looking at the forms and purposes of clandestine schooling in the Warsaw Ghetto during the Holocaust. Building on archival evidence and survivor accounts, Kardos recreates the moving spirit and multiple endeavors of schooling that prevailed in the Ghetto. Despite horrific conditions and great danger, individuals and organizations within the Ghetto devoted themselves to ensuring that educational activities would continue. According to Kardos, schooling became a form of resistance against Nazi attempts to eradicate the Jews and their culture. She argues that schooling was oriented simultaneously to the past, present, and future: to the past by defying cultural and historical annihilation; to the present by providing a sense of normalcy that helped Jews survive their daily struggles in the Ghetto; and to the future by providing a sense of hope for the Ghetto inhabitants. Kardos unearths this heroic and inspiring historical episode to illustrate the importance of schooling as a means of survival and resistance by people who would not allow themselves to be erased.
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Burghardt, Madeline. "Institutional Survivorship: Abandonment and the “Machinery of the Establishment”". Canadian Journal of Disability Studies 6, n. 3 (21 agosto 2017): 118. http://dx.doi.org/10.15353/cjds.v6i3.368.
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Institutions are a central and painful feature in the historical record of the treatment of people with intellectual disabilities in Canada. To date, scholarly work has provided a robust understanding of the multiple intersecting factors and “political rationalities” (Chapman, 2014) that have contributed to institutions’ development, including their relationship with capitalism’s “exploitative social relations of production and consumption” (Erevelles, 2014, para. 6). Accounts from institutional survivors that describe the direct and lived experience of institutionalization have begun to emerge in Canadian disability studies and historical canons. Based on research that examined the impact of institutionalization on families, this paper draws from survivor narratives to explore the alienation and abandonment that survivors experienced as a result of having been institutionalized. It interrogates the connection between survivors’ experiences and the function of their alienation in the workings of a capitalist system. Additionally, this paper addresses some of the historical, social and political conditions of the time and place of concern (post World War II Ontario), and discusses how those conditions created a discourse of persuasion in the institutionalization of children with intellectual disabilities.
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Wolf, Michaela. "“German speakers, step forward!”". Translation and Interpreting Studies 8, n. 1 (15 luglio 2013): 1–22. http://dx.doi.org/10.1075/tis.8.1.01wol.
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In Nazi concentration camps the prisoners were frequently of 30 to 40 different nationalities, and German and Polish Jews were in the majority. With German as the only official language in the lager, communication was vital for the prisoners’ survival. In the last few decades, there has been extensive research on the language inmates used (referred to as “lagerszpracha,” “lagerjargon,” or “Krematorium-Esperanto”); investigation, however, of the mediating role of interpreters between SS guards and prisoners, on the one hand, and among inmates, on the other, has been nearly inexistent. This paper claims that the different kinds of interpreting activities shaped the everyday life in concentration camps considerably. In what way has interpreting contributed to the survival of the deported? Did interpreting have an impact on the hierarchical order imposed on the prisoners? What metaphors can best describe the interpreting activity in order to convey the extreme terror the lager prisoners experienced? These questions will be explored through a series of survivor accounts.
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Dumas, Hélène. "When children remember: A history of the Tutsi genocide through the eyes of children (1994–2006)". International Review of the Red Cross 101, n. 910 (aprile 2019): 37–57. http://dx.doi.org/10.1017/s1816383119000171.
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AbstractDrawing on a corpus of accounts written by survivor children in 2006, this article looks at the Tutsi genocide through the eyes of children, enabling us to see the radical social and emotional transgressions of 1994 from a new angle. As members of society and prime targets of the genocide, these children tell how the world of their childhood was turned upside-down, through the unique intensity of their own words. An idealized “before”, inhabited by the beloved characters of their parents, brothers and sisters, is brutally swept away as everything they have known becomes inverted. Forced to watch killings and cruelty, they adopt survival strategies that show how thoroughly they understand the radical nature of what is unfolding. An extreme distrust of adults will forever mark these children – now orphans – who still live in “the time of the genocide”.
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Mcculley, Dale. "Satanic Ritual Abuse: A Question of Memory". Journal of Psychology and Theology 22, n. 3 (settembre 1994): 167–72. http://dx.doi.org/10.1177/009164719402200301.
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In spite of reports by thousands of adults who describe satanic ritual abuse in their backgrounds, the Special Issue of the Journal of Psychology and Theologyreveals obdurate skepticism regarding their credibility on the part of several contributors. Some of these disbelievers currently are citing experiments demonstrating extreme malleability for human memory as evidence that survivor accounts, especially those involving delayed memory, are fantasies implanted by incompetent clinicians. However, leading memory researchers such as Dr. Bessel van der Kolk of Harvard Medical School maintain that traumatic memories, which typically are engraved in the sensori-motor processes, are not subject to the same kinds of contamination that can affect normal memory. Traumatic amnesia, described in the DSM-III-R as psychogenic amnesia, is a phenomenon which has been known to mental health professionals for more than 100 years. The clinically observed characteristics of traumatic memory formation and retrieval match precisely the patterns of memory recovery exhibited by SRA survivors, and strongly confirm the reality of their cult abuse.
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Anae, Nicole. "Gothic Secret Histories and Representing Australian Colonial Deaths at Sea: The Case of Captain Charles Wright Harris and the Wreck of the SS Admella (1859)". Journal of Victorian Culture 25, n. 4 (8 luglio 2020): 512–36. http://dx.doi.org/10.1093/jvcult/vcz061.
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Abstract Extant ephemera documenting the wreck of the SS Admella off the South Australian coast on 6 August 1859 offers a compelling story of real-life maritime calamity characterized by death and extraordinary heroism. The much less written about account, however, is the story lying in between ‘official accounts’ of the wreck, and those that emerged in the contemporary reports of the day, including a body of verse termed ‘Admella poetry’. Verse forms and telegraphic reports of the wreck appear to be at odds with other witness statements, and official records have corrupted details from either telegraphic reports or published survivor statements, or both. This re-reading of one of the key heroic fatalities in the story of the wreck of the SS Admella – 37-year-old Captain Charles Wright Harris, a passenger aboard the Admella – theorizes on his death at sea as mapping plural histories. I argue that the account of the event preserved as political and bureaucratic memory – and its counterpoint – the account of the event preserved in the popular press and Admella poems, characterizes an alternative Victorian cultural memory, a gothic secret history concerning the wreck of the SS Admella and colonial deaths at sea.
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Lowe, Natalie M., Sean Loughran, Nicholas J. Slevin e Beng K. Yap. "Anaplastic Thyroid Cancer: The Addition of Systemic Chemotherapy to Radiotherapy Led to an Observed Improvement in Survival—A Single Centre Experience and Review of the Literature". Scientific World Journal 2014 (2014): 1–8. http://dx.doi.org/10.1155/2014/674583.
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Introduction. Anaplastic thyroid carcinoma (ATC) is rare yet accounts for up to 50% of all thyroid cancer deaths. This study reviews outcomes of patients with confirmed ATC referred to a tertiary oncology centre plus reviews the literature to explore how poor outcomes may be improved.Materials and Methods. The management and outcomes of 20 patients with ATC were reviewed.Results. Median age at diagnosis was 69.5 years. 19 patients died due to ATC, 40% of whom died from asphyxiation. Median survival for all cases was 59 days. Patients who had previous surgery prior to other treatment modalities had a longer median survival overall compared to those who had not had previous surgery (142 days compared to 59 days) and produced the one long-term survivor. Chemotherapy followed by radiotherapy (without previous surgery) was associated with longer median survival (220 days). Palliative radiotherapy alone did not decrease the rate of death by asphyxiation when compared to other single modality treatments.Conclusion. Multimodality treatment including surgery when feasible remains the best strategy to improve survival and prevent death from asphyxiation in the management of ATC. The addition of chemotherapy to our institutional protocol led to improved survival but prognosis remains very poor.
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Jones, Abigail C., Rachel Hilton, Blair Ely, Lovemore Gororo, Valerie Danesh, Carla M. Sevin, James C. Jackson e Leanne M. Boehm. "Facilitating Posttraumatic Growth After Critical Illness". American Journal of Critical Care 29, n. 6 (1 novembre 2020): e108-e115. http://dx.doi.org/10.4037/ajcc2020149.
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The theory of posttraumatic growth arose from accounts of various trauma survivors experiencing not only distress but also growth and change. An intensive care unit admission is an unplanned, sudden, and traumatic experience, and many survivors have posttraumatic stress that can lead to posttraumatic stress disorder. Survivors leave the intensive care unit with new functional impairments that drive depression, and they frequently experience anxiety. Amidst the stress of understanding the trauma of an intensive care unit admission, survivors can grow in their world views, relationships, and sense of self. Understanding posttraumatic growth in intensive care unit survivors will inform health care providers on how to help survivors understand their new difficulties after an intensive care unit stay and facilitate growth. This article is a conceptual review of posttraumatic growth, identifiers of posttraumatic growth, and how the tenets of the posttraumatic growth theory apply to intensive care unit survivors. Health care professionals, specifically nurses, can incorporate practices into their care during and after the intensive care unit stay that encourage understanding and positive accommodation of new difficulties brought on by the intensive care unit hospitalization to support survivor growth. Opportunities for research include incorporating posttraumatic growth assessments into post–intensive care unit clinics, self-help materials, and various programs or therapies. Outcomes associated with posttraumatic growth are listed to suggest directions for research questions concerning posttraumatic growth in intensive care unit survivors.
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Watenpaugh, Keith David. "The Drowned, the Saved, and the Forgotten: Genocide Survivors and Modern Humanitarianism". International Journal of Middle East Studies 48, n. 2 (7 aprile 2016): 367–71. http://dx.doi.org/10.1017/s0020743816000106.
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Dominant narratives of the Eastern Mediterranean's 20th century exclude the study of Western humanitarianism and refugee survivors of the 1915 genocide of the Ottoman Armenians. Reasons for this exclusion abound. At the forefront is the abject nature of the human beings who populate that history, something which often induces revulsion on the part of historians in the present: these were people who left little of the appealing and elegant traces left by a Beiruti journalist, a Damascene urban notable, or an elite Constantinopolitan feminist. They appear as an undifferentiated mass of survivors of intense violence, disease, and starvation who are bereft of any agency; slaves, and serially raped and pregnant teenagers in bureaucratic documents stored at the League of Nations archive or packs of feral emaciated street children roving the narrow alleyways of Aleppo's old city in the paternalistic memoirs of Western relief workers—usually American or Scandinavian female healthcare professionals. Their own voices are obscured, showing up in the occasional self-published autobiography written by an elderly genocide survivor for his grandchildren, or in handwritten accounts and letters in lost dialects inherited by descendants unable to read them.
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Hall, Daniel L., Rachel B. Jimenez, Giselle K. Perez, Julia Rabin, Katharine Quain, Gloria Y. Yeh, Elyse R. Park e Jeffrey M. Peppercorn. "Fear of Cancer Recurrence: A Model Examination of Physical Symptoms, Emotional Distress, and Health Behavior Change". Journal of Oncology Practice 15, n. 9 (settembre 2019): e787-e797. http://dx.doi.org/10.1200/jop.18.00787.
Testo completoAbstract (sommario):
PURPOSE: Fear of cancer recurrence is highly prevalent among adult survivors of cancer. The role of fear of recurrence in the emotional distress of survivors of cancer, as well as health behaviors that may directly affect their health, remains unclear. To advance oncology practice, this study sought to examine the extent to which fear of recurrence stemming from physical symptoms accounts for emotional distress in a large sample of adult survivors of cancer and to extend the model to explain postdiagnosis self-reported health behavior change. METHODS: In 2016, 258 survivors of cancer at an academic hospital completed a survey of psychosocial needs. Items assessed physical symptoms (checklist), fear of cancer recurrence (Assessment of Survivor Concerns), emotional distress (anxiety and depressed mood), and health behaviors (current alcohol use, physical activity, diet, and sunscreen use, as well as changes after cancer diagnosis) informed by National Comprehensive Cancer Network survivorship guidelines. Indirect effects regression models accounting for relevant covariates (age and treatment history) used 5,000-iteration bootstrapping. RESULTS: Higher fear of cancer recurrence was associated with greater number of physical symptoms ( P < .001), greater emotional distress ( P < .05), lower moderate or vigorous physical activity ( P < .05), higher sunscreen use ( P < .05), and postdiagnosis increases in alcohol use ( P < .01) and reductions in physical activity ( P < .01). Fear of cancer recurrence models accounted for almost half of the variance in distress of survivors of cancer ( R2 = 0.44, P < .001) and, to a lesser yet significant extent, changes in alcohol consumption ( R2 = 0.09, P < .001) and physical activity ( R2 = 0.06, P = .003). CONCLUSION: Fear of cancer recurrence plays a central role in the emotional distress and key health behaviors of survivors of cancer. These findings support fear of cancer recurrence as a potential target for emotional health and health behavior change interventions.
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Carter-White, Richard. "Auschwitz, Ethics, and Testimony: Exposure to the Disaster". Environment and Planning D: Society and Space 27, n. 4 (1 gennaio 2009): 682–99. http://dx.doi.org/10.1068/d11207.
Testo completoAbstract (sommario):
Witness testimonies provide a singular challenge to historians of Auschwitz. Survivor accounts offer a privileged perspective on the world of the camp, yet as recent conceptual work has shown the performative structure of these texts exceeds and eludes this representational duty. The challenge for historians is that, given their privileged, ‘insider’ status, any equivocality regarding the content of witness testimonies provides space for Holocaust denial. This paper offers a critical reading of one historical strategy for meeting this challenge: Exposing witness accounts to an uncompromising criteria of evidentiality and plausibility, designed to test their representational quality as a means of preempting negationist attempts to manipulate ‘faulty’ accounts. Drawing on Lyotard, I argue that, even as this strategy succeeds in refuting individual cases of denial, by refusing to enter into dialogue with the language game of testimony, and, more importantly, by invalidating any attempt to do so, this strategy actually reiterates the tactics of those deniers it is designed to oppose, thus undermining its own important work. Rather than rejecting this historical approach, I argue that it is compromised only by an historiographical insistence on imposing this ‘evidential’ language game as universal and representational; if we conversely recognise its performative, nonrepresentational status, it is more equipped to refute denial and without making of testimony a collateral damage.
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Rieg, Siegbert, Maja von Cube, Achim J. Kaasch, Bastian Bonaventura, Wolfgang Bothe, Martin Wolkewitz, Gabriele Peyerl-Hoffmann et al. "Investigating the Impact of Early Valve Surgery on Survival in Staphylococcus aureus Infective Endocarditis Using a Marginal Structural Model Approach: Results of a Large, Prospectively Evaluated Cohort". Clinical Infectious Diseases 69, n. 3 (22 ottobre 2018): 487–94. http://dx.doi.org/10.1093/cid/ciy908.
Testo completoAbstract (sommario):
Abstract Background The impact of valve surgery on outcomes of Staphylococcus aureus infective endocarditis (SAIE) remains controversial. We tested the hypothesis that early valve surgery (EVS) improves survival by using a novel approach that allows for inclusion of major confounders in a time-dependent way. Methods EVS was defined as valve surgery within 60 days. Univariable and multivariable Cox regression analyses were performed. To account for treatment selection bias, we additionally used a weighted Cox model (marginal structural model) that accounts for time-dynamic imbalances between treatment groups. To address survivor bias, EVS was included as a time-dependent variable. Follow-up of patients was 1 year. Results Two hundred and three patients were included in the analysis; 50 underwent EVS. All-cause mortality at day 30 was 26%. In the conventional multivariable Cox regression model, the effect of EVS on the death hazard was 0.85 (95% confidence interval [CI], .47–1.52). Using the weighted Cox model, the death hazard rate (HR) of EVS was 0.71 (95% CI, .34–1.49). In subgroup analyses, no survival benefit was observed in patients with septic shock (HR, 0.80 [CI, .26–2.46]), in NVIE (HR, 0.76 [CI, .33–1.71]) or PVIE (HR, 1.02 [CI, .29–3.54]), or in patients with EVS within 14 days (HR, 0.97 [CI, .46–2.07]). Conclusions Using both a conventional Cox regression model and a weighted Cox model, we did not find a survival benefit for patients who underwent EVS in our cohort. Until results of randomized controlled trials are available, EVS in SAIE should be based on individualized decisions of an experienced multidisciplinary team. Clinical Trials Registration German Clinical Trials registry (DRKS00005045).
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Asa, Blasius Trinold. "MEMAKNAI PENGALAMAN HIDUP ORANG DENGAN HIV/AIDS KDS FLORES PLUS SUPPORT: SEBUAH REFLEKSI TEOLOGIS-BIBLIS". Jurnal Ledalero 10, n. 2 (1 agosto 2018): 249. http://dx.doi.org/10.31385/jl.v10i2.139.249-264.
Testo completoAbstract (sommario):
There is increasing public attention about HIV/AIDS networks of concern. This option for and with HIV/AIDS survivors demonstrates human compassion but also expresses the struggle for life. And precisely here we find a unique, deep and challenging inspiration in the Bible. The story of the healing at the pool of Siloam/Bethzatha (John 5) is a cry for compassionate justice for those who suffer, including those surviving HIV/AIDS. This essay records a reading of John 5 by members of an HIV/AIDS survivor and mutual support group. They relate who Jesus is for them and how, in Jesus, they have regained their self respect and the will to live. Both their experience of pain and rejection by both the local church and their individual families, and their restored humanity accomplished by themselves through the healing touch of Jesus, challenges the rest of us to cast aside our ingrained prejudices and, together with these survivors, experience the liberating touch of Jesus in our lives too. The healing touch of Jesus can destroy any reluctance we might still have, based on the prejudiced values of the surrounding society. This “popular” reading of John 5 shows how Jesus opened up a circle of freedom and salvation and can be read alongside more academic exegetical accounts.
Keywords: penderita, ODHA, perhatian, belas kasih, demi kehidupan, kairos, peduli.
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Geurten, Claire, Marie Geurten, Claire Hoyoux e Marie-Christine Lebrethon. "Endocrine consequences of neuroblastoma treatment in children: 20 years’ experience of a single center". Journal of Pediatric Endocrinology and Metabolism 32, n. 4 (24 aprile 2019): 347–54. http://dx.doi.org/10.1515/jpem-2018-0273.
Testo completoAbstract (sommario):
Abstract Background Neuroblastoma (NBL) is a child neoplasia affecting extracranial tissue of neuroectodermal origin. It accounts for 10% of solid malignancies in children and is characterized by a survival rate approaching 70%, confronting physicians with the emergence of an adult survivor population who have been previously exposed to surgery, cytotoxic drugs, radiation therapy or metaiodobenzylguanidine (MIBG) therapy. All these treatments potentially affect the endocrine system. Our study consists in a retrospective review of late endocrine effects arising in survivors treated for NBL during childhood. Methods The medical files of 47 patients (M/F = 26/21) treated for NBL were reviewed. Collected data consisted of age, height, weight and biological hormonal values at diagnosis and at the last follow-up consultation. The incidence of late effects in our sample was compared to the data from the literature. Results Patients were between 0 and 15.8 years of age at diagnosis (median: 1.16 years) and between 1 and 25 years of age at last follow-up (median: 16 years). Twenty-six patients were treated with chemotherapy (CT), 11 underwent CT and radiation therapy and five were treated with CT and MIBG therapy. Ten percent of the patients died before reaching the end of therapy. Late effects occurred in 54% of the patients. Thirty-six percent of patients had non-endocrine complications (musculoskeletal, neurological, hematological or hepatic chronic conditions). Endocrine complications (28%) affected mainly patients treated with CT and consisted of gonadal dysfunction (up to 42% patients of over 12 years of age at follow-up) and hypothyroidism (21%). Our analysis revealed that CT had a significant impact on final height (p < 0.05). Conclusions Treatment for childhood malignancies exposes children to late effects affecting the endocrine system. In children treated for NBL, hypothyroidism, gonadal failure and impaired growth appear to be the main endocrine complications. Close follow-up of survivors is thus appropriate.
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Valentine, Christine. "The “Moment of Death”". OMEGA - Journal of Death and Dying 55, n. 3 (ottobre 2007): 219–36. http://dx.doi.org/10.2190/om.55.3.d.
Testo completoAbstract (sommario):
The “moment of death,” once a dominant concept in preparing for a “good death,” has been eclipsed by a focus on the wider concept of the “dying trajectory.” However, findings from interviews with 25 bereaved individuals suggest that dying loved ones' final moments may still be experienced as highly significant in their own right. In some accounts the dying individual's final moments did not feature or made little impression, either because the survivor was not present, or there was no obviously definable moment, or because other, usually medical factors, such as whether to resuscitate the person, took precedence. However, in six cases such moments were constructed as profound, special, and memorable occasions. These constructions are explored in relation to achieving a good death, the dying trajectory as a whole, and making sense of the bereavement experience. Their implications for sociological theories of identity and embodiment are also considered.
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Tanner, Laura E. "Holding On to 9/11: The Shifting Grounds of Materiality". PMLA/Publications of the Modern Language Association of America 127, n. 1 (gennaio 2012): 58–76. http://dx.doi.org/10.1632/pmla.2012.127.1.58.
Testo completoAbstract (sommario):
Cultural theorists interrogating the appropriation of 9/11 through nationalist, capitalist, and media forces have tended to deauthorize the general public's embodied and affective responses to that event. Instead of disavowing claims of mourning unsupported by geographic proximity or material connection, this essay situates such responses in contemporary screen culture to consider how the shifting grounds of materiality complicate the experience of bodily location at every level from the perceptual to the political. Using photographs, fiction, museum exhibits, and survivor accounts, the essay explores how the transformed relation between subjects and objects defines our apprehension of 9/11 in material, technological, and phenomenological terms. The complex dynamics of perception and embodiment unveiled through these representations suggest the need to rethink categories of experience and affect to accommodate new paradigms of proximity and connectedness increasingly liberated from the measures of geography and the borders of the body.
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Fry, P. S. "Grandparents' Reactions to the Death of a Grandchild: An Exploratory Factor Analytic Study". OMEGA - Journal of Death and Dying 35, n. 1 (agosto 1997): 119–40. http://dx.doi.org/10.2190/4fmb-elx3-juud-2ru0.
Testo completoAbstract (sommario):
One hundred and fifty-two grandparents who had experienced the death of a grandchild in the preceding three years or so served as subjects for two separate but related studies investigating the multidimensional nature of the grief reactions of grandparents. In Study 1, subjects responded to an open-ended questionnaire which asked for brief descriptions of their grief reactions immediately following the death of the grandchild, and perceived changes in their affective and behavioral responses with the passage of time. A principal component factor analysis procedure was used to identify the major dimensions in the grief reactions of grandparents. Of the six factors that emerged, Factor 1 (Emotional Rupturing) and Factor 2 (Survivor Guilt) accounted for 21.0 percent and 18.6 percent, respectively, of the total variance. In Study 2, a six-month longitudinal follow-up of seventeen grandparents was conducted by means of in-depth interviews. Subjects provided detailed personal accounts of their coping and recovery processes. Interview data were analyzed using a qualitative approach. The results of Study 2 corroborated and supported the factor analysis results obtained in Study 1. Both studies highlight the continuing need for gerontologists to investigate the complexity of grandparents' grief reactions. The studies draw attention to the mental health implications for older adults who have experienced loss and bereavement.
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Tetley, Charlotte, e Jerome Carson. "Remarkable lives: Charlotte Tetley in conversation with Jerome Carson". Mental Health and Social Inclusion 19, n. 3 (10 agosto 2015): 119–22. http://dx.doi.org/10.1108/mhsi-05-2015-0020.
Testo completoAbstract (sommario):
Purpose – The purpose of this paper is to provide a profile of Charlotte Tetley. Design/methodology/approach – Charlotte provides a short biographical account and is then interviewed by Jerome. In the biography Charlotte talks about her long battle with mental health problems and treatments that did not help. Findings – Charlotte’s mental health problems started at the age of 12 and eased when she left home at 17. It was in her final year at university that her problems returned. Research limitations/implications – Charlotte’s story is one of not just surviving long term mental health problems, but of coping with adversity and becoming a stronger person. It is one of thousands of remarkable survivor accounts. Practical implications – The story of the involvement of local police officers in Charlotte’s admission to hospital, is once more a sad indictment of the brutality handed out to many sufferers in acute mental distress. Social implications – Considering her background, 12 different schools, two exclusions, childhood mental health problems, Charlotte’s story shows the triumph of the human mind against social disadvantage. She is “somebody who conquered the storm”. Originality/value – Charlotte was helped by her indomitable spirit, by her mother, a therapist and a friend who stood by her. She tells us she can never be the same person she was before her mental health problems, but she has grown and in the process became a stronger person.
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Kurz, R. "The cremation of care ritual: Burning of effigies or human sacrifice murder? The importance of differentiating complex trauma from schizophrenia in extreme abuse settings". European Psychiatry 33, S1 (marzo 2016): S580. http://dx.doi.org/10.1016/j.eurpsy.2016.01.2149.
Testo completoAbstract (sommario):
IntroductionThis session explores Human Sacrifice killings in extreme abuse cult settings disclosure of which often leads to a misdiagnosis of ‘Schizophrenia’.ObjectivesThe purpose of the paper is to raise awareness and signpost professional development resources regarding extreme abuse ‘Death Cults’ that operate largely with impunity across the world.AimsCase study materials and documentary evidence will be utilised to illustrate criminal practices and the impact on survivors.MethodAccounts of extreme abuse and ritual violence were identified in the context of an adult survivor assessment intervention.ResultsThere are supporters of abuse survivors who bore witness to and believe disclosures of extreme abuse and ritual violence, and ‘False Memory’ adherents who consider Ritual Abuse an unfounded ‘moral panic’. Survivors provide chilling accounts of ritual killings in Scott (2001), Becker, Karriker, Overkamp and Rutz (2008) and Epstein, Schwartz and Schwartz (2011). In the wake of institutional abuse enquiries and the ‘unbelievable’ child abuse perpetrated by celebrities like Jimmy Saville and Ian Watkins, a ‘new reality’ is setting in that child abuse is pervasive and knows no limits. Reports of elaborate rituals with ‘mock’ human sacrifices at the highly secretive annual ‘Bohemian Grove’ summer festival point towards a pervasive interest in the occult in high society.ConclusionMental health professionals have a ‘duty of care’ towards their service users. Unless clear and irrefutable counter-evidence is available it is inappropriate to claim that disclosures of extreme abuse and/or human sacrifice rituals are ‘delusions’ and indicative of Schizophrenia.Disclosure of interestThe author has not supplied his/her declaration of competing interest.
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Idriss, Mohammad Mazher. "“The Mosques Are the Biggest Problem We’ve Got Right Now”: Key Agent and Survivor Accounts of Engaging Mosques With Domestic and Honor-Based Violence in the United Kingdom". Journal of Interpersonal Violence 35, n. 13-14 (20 aprile 2017): 2464–91. http://dx.doi.org/10.1177/0886260517703376.
Testo completoAbstract (sommario):
This article considers the role of mosques in addressing domestic violence (DV) and honor-based violence (HBV) in the United Kingdom. Utilizing data extracted from interviews with 38 key agents and survivors, this article will highlight that some mosques can be difficult to engage with when attempting to raise awareness on violence against women (VAW). Participants explained that the patriarchal nature of mosques contributes to this difficulty together with their exclusion of women within organizational structures. Some mosques also deny that VAW is even a problem within their communities. This is a worrying trend as those on the pulpit often possess significant powers of influence across large congregations and are perfectly placed to help provoke dialogue on these issues. Furthermore, it adds yet another layer of inequality experienced by Muslim women that makes reporting abuse and seeking intervention that much more difficult. In the face of this resistance, this article will consider some ways in which mosques can raise awareness about VAW and where Muslim women can access support. It will also explore additional strategies and recommendations in relation to overcoming mosques unwilling to support VAW initiatives.
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Student, R., Kathleen Kendall e Lawrence Day. "Being a Refugee University Student: A Collaborative Auto-ethnography". Journal of Refugee Studies 30, n. 4 (17 febbraio 2017): 580–604. http://dx.doi.org/10.1093/jrs/few045.
Testo completoAbstract (sommario):
AbstractIn this article, we adopt a collaborative auto-ethnographic approach to explore the experiences of one refugee university student. Our method involved all three authors systematically analysing narratives written by one of us: R Student. These accounts provide deep descriptions of his life while studying at three different United Kingdom universities and our analysis of them demonstrates that higher education was a double-edged sword for R Student. Our research illuminates how R Student’s past as a survivor of genocide and forced migration, his corrosive and supportive relationships, and neo-liberal policies and practices all intersected in complex ways to circumscribe his agency and inform his experience as a refugee student. This understanding runs counter to neo-liberal policies and practices within higher education which often blame individuals for the problems they encounter and obscure social and relational forces. In describing the operable effects of abstract policies and concepts upon R Student, our study provides a counter-narrative to neo-liberal discourse and identifies systemic issues that may affect other students, too.
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Alloa, Emmanuel. "Umkämpfte Zeugenschaft". Deutsche Zeitschrift für Philosophie 67, n. 6 (2 dicembre 2019): 1008–23. http://dx.doi.org/10.1515/dzph-2019-0074.
Testo completoAbstract (sommario):
Abstract The article focuses on a controversy between historians and psychoanalysts around the testimonial value of a Holocaust survivor (Serena N.). The survivor’s account of the Auschwitz uprising includes factual exaggerations, which has led historians to discard it. Psychoanalysts on the contrary stressed that the testimony accounted for something else: the possibility of resistance in the concentration camp, which gave the inmates hope in their struggle for survival. Survivors’ testimonies, so the argument, have both an epistemological and an ethical content. While philosophy’s insistence on the epistemological dimension of testimony has long generated a disregard for this ethical dimension, it would be equally wrong to construe a pure ethicality of testimony. Testimony is, first and foremost, an entangled social practice, which has tobe acknowledged in its agonal, its aporetic and its performative implications.
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SUEHR, QUINCY J., NATHAN M. ANDERSON e SUSANNE E. KELLER. "Desiccation and Thermal Resistance of Escherichia coli O121 in Wheat Flour". Journal of Food Protection 82, n. 8 (16 luglio 2019): 1308–13. http://dx.doi.org/10.4315/0362-028x.jfp-18-544.
Testo completoAbstract (sommario):
ABSTRACT Non-O157 Shiga toxin–producing Escherichia coli infections have recently been associated with wheat flour on two separate accounts in the United States and Canada. However, there is little information regarding the thermal resistance and longevity of non-O157 Shiga toxin–producing Escherichia coli during storage in low-moisture environments. The objectives of this study were to determine the thermal inactivation kinetics of E. coli O121 in wheat flour and to compare the thermal inactivation rates with those of other pathogens. Wheat flour, inoculated with E. coli O121, was equilibrated at 25°C to a water activity of 0.45 in a humidity-controlled conditioning chamber. Inoculated samples were treated isothermally at 70, 75, and 80°C, and posttreatment population survivor ratios were determined by plate counting. D- and z-values calculated with a log-linear model, were compared with those obtained in other studies. At 70, 75, and 80°C, the D-values for E. coli O121 were 18.16 ± 0.96, 6.47 ± 0.50, and 4.58 ± 0.40 min, respectively, and the z-value was 14.57 ± 2.21°C. Overall, E. coli O121 was observed to be slightly less thermally resistant than what has been previously reported for Salmonella Enteritidis PT30 in wheat flour as measured under the same conditions with the same methods.
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Delannoy, Andre, Véronique Lhéritier, Xavier Thomas, Sylvie Castaigne, Hassan Farhat, Françoise Rigal-Huguet, Emmanuel Raffoux et al. "Treatment of Philadelphia-Positive Acute Lymphocytic Leukemia (Ph+ ALL) in the Elderly with Imatinib Mesylate (STI571) and Chemotherapy. an Interim Analysis of the GRAALL AFR09 Trial." Blood 104, n. 11 (16 novembre 2004): 2742. http://dx.doi.org/10.1182/blood.v104.11.2742.2742.
Testo completoAbstract (sommario):
Abstract Ph+ ALL accounts for approximately one third of ALL cases in patients aged 55 years or older. The median survival of older Ph+ ALL patients is one year, with practically no long-term survivor (Blood, 98, Supp1 p319a, 2001). Imatinib has demonstrated remarkable, although transient, activity in relapsed and refractory Ph+ ALL, which prompted the GRAALL to implement a treatment protocol associating imatinib and chemotherapy in previously untreated elderly patients: ALL patients aged 55 years or older are treated with steroids during one week and Ph+ve cases are then offered a specific therapy including an induction treatment with steroids, cyclophosphamide, daunorubicin and vincristine, followed, irrespective of response to induction chemotherapy, by imatinib, 600 mg daily, combined with intermittent steroids during 2 months. Patients in complete response are then given 10 blocks of alternating chemotherapy, including 2 additional two-month blocks of imatinib, for a total treatment duration of 2 years. Therapy of occult central nervous system leukemia includes 5 intrathecal injections of methotrexate and cranial irradiation. The study is intended to include 30 patients and its main objective is to improve overall one-year survival to 70%. Results are compared with those obtained in 21 Ph+ ALL elderly patients treated according to our previous protocol. Since January 2003, 21 patients aged 58 to 78 years (median: 64.7 years) were included in the AFR09 protocol. Their median follow-up is 3 months. 15/19 patients are in complete response after induction chemotherapy vs 6/21 in the historical controls given similar induction regimen but with no steroids before chemotherapy (p=0.002). The projected overall survival is 95% at 9 months vs 62% in the control group (p=0.08, log-rank test). The 9-month projected event-free survival is 83% vs 10% (p<0.0001) and the projected 6-month relapse-free survival is 79% vs 22% (p=0.006, log-rank test). In conclusion, although preliminary, this interim analysis suggests that the use of imatinib in elderly patients with Ph+-ALL is very likely to dramatically improve prognosis. Of note, an unexpected high proportion of patients accrued in this study achieved a CR after induction chemotherapy possibly denoting a beneficial impact of steroids given before starting chemotherapy.
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Palmer, Tanya. "Failing to See the Wood for the Trees: Chronic Sexual Violation and Criminal Law". Journal of Criminal Law 84, n. 6 (dicembre 2020): 573–95. http://dx.doi.org/10.1177/0022018320976414.
Testo completoAbstract (sommario):
This article argues that sexual violation can take both ‘chronic’ and ‘acute’ forms. The latter, encapsulated by the offences of rape and sexual assault, refers to a discrete incident in which a victim’s sexual autonomy is violated. By contrast, the article articulates an original concept of ‘chronic sexual violation’, in which the victim’s autonomy is gradually eroded over a longer period of time, for example in an abusive relationship. In such a case it may be difficult to identify specific sexual encounters as non-consensual, and yet the victim is left with little or no control over whether and on what terms they engage in sexual activity. This conceptualisation builds on Evan Stark’s theory of coercive control, and is grounded in survivor accounts of the lived experience of sexual violation within ongoing relationships drawn from existing studies of abusive relationships, my own empirical interview data, and case law. The article contends that the limitations of law and policy responses to sexual violation within relationships can be partly explained by the illegibility of chronic sexual violation within a legal framework premised on the notion that a crime is a discrete incident. The concept of chronic sexual violation offers a way forward for crafting legal responses to this specific and pervasive form of harm, while resisting hierarchical constructions of sexual violation within intimate relationships as less serious than ‘real rape’.
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Royse, David, e Karen Badger. "Burn Survivors’ Near-Death Experiences: A Qualitative Examination". OMEGA - Journal of Death and Dying 80, n. 3 (29 gennaio 2018): 440–57. http://dx.doi.org/10.1177/0030222818755286.
Testo completoAbstract (sommario):
Persons who come close to death but survive catastrophic accidents sometimes report very vivid experiences during times when their survival was in doubt, when they were believed to be dead, and during resuscitation efforts. This qualitative study builds upon existing research on near-death experiences (NDEs) by focusing on the oral accounts from a sample of individuals with large and life-threatening burns. The NDE accounts were obtained from burn survivors attending the Phoenix Society’s World Burn Congress and are similar to reports by notable researchers ( Greyson, 2003 ; Moody, 1975 ; Ring, 1980 ) while reflecting the uniqueness of the individual survivor’s experiences. Six major themes are reported. Counselors and health professionals need to be aware of and educated about NDEs as these experiences can have profound effects upon the individual. Patients who have had NDEs may need to discuss them but fear professionals will reject their stories as being crazy.
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Wong, F. Lennie, Jennifer Berano Teh, Liezl Atencio, Tracey Stiller, Heeyoung Kim, Dayana Chanson, Stephen J. Forman, Ryotaro Nakamura e Saro H. Armenian. "Conditional Survival, Cause-Specific Mortality, and Risk Factors of Late Mortality After Allogeneic Hematopoietic Cell Transplantation". JNCI: Journal of the National Cancer Institute 112, n. 11 (11 febbraio 2020): 1153–61. http://dx.doi.org/10.1093/jnci/djaa022.
Testo completoAbstract (sommario):
Abstract Background Long-term mortality after hematopoietic cell transplantation (HCT) is conventionally calculated from the time of HCT, ignoring temporal changes in survivors’ mortality risks. Conditional survival rates, accounting for time already survived, are relevant for optimal delivery of survivorship care but have not been widely quantified. We estimated conditional survival by elapsed survival time in allogeneic HCT patients and examined cause-specific mortality. Methods We calculated conditional survival rates and standardized mortality ratio for overall and cause-specific mortality in 4485 patients who underwent HCT for malignant hematologic diseases at a large transplant center during 1976–2014. Statistical tests were two-sided. Results The 5-year survival rate from HCT was 48.6%. After surviving 1, 2, 5, 10, and 15 years, the subsequent 5-year survival rates were 71.2%, 78.7%, 87.4%, 93.5%, and 86.2%, respectively. The standardized mortality ratio was 30.3 (95% confidence interval [CI] = 29.2 to 35.5). Although the standardized mortality ratio declined in longer surviving patients, it was still elevated by 3.6-fold in survivors of 15 years or more (95% CI = 3.0 to 4.1). Primary disease accounted for 50% of deaths in the overall cohort and only 10% in 15-year survivors; the leading causes of nondisease-related mortality were subsequent malignancy (26.1%) and cardiopulmonary diseases (20.2%). We also identified the risk factors for nondisease-related mortality in 1- and 5-year survivors. Conclusion Survival probability improves the longer patients survive after HCT. However, HCT recipients surviving 15 years or more remain at elevated mortality risk, largely because of health conditions other than their primary disease. Our study findings help inform preventive and interventional strategies to improve long-term outcomes after allogeneic HCT.
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Seligmann, Matthew S. "The ‘Lusitania’ Sinking: Eyewitness accounts from survivors". Mariner's Mirror 105, n. 4 (2 ottobre 2019): 487. http://dx.doi.org/10.1080/00253359.2019.1665346.
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Pike, Patricia L., e Richard J. Mohline. "Ritual Abuse and Recovery: Survivors’ Personal Accounts". Journal of Psychology and Theology 23, n. 1 (marzo 1995): 45–55. http://dx.doi.org/10.1177/009164719502300105.
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Mahata, Sushil K., Malapaka Kiranmayi e Nitish R. Mahapatra. "Catestatin: A Master Regulator of Cardiovascular Functions". Current Medicinal Chemistry 25, n. 11 (17 aprile 2018): 1352–74. http://dx.doi.org/10.2174/0929867324666170425100416.
Testo completoAbstract (sommario):
Background: Cardiovascular disease (CVD), the most common cause of death globally, accounts for ~30% of all deaths worldwide. Hypertension is a common contributor to morbidity and mortality from CVD. Methods and Results: The plasma concentration of chromogranin A (CgA) is elevated in patients with CVD as well as patients with established human essential hypertension and heart failure (HF). In contrast, the plasma level of the CgA-derived peptide catestatin (CST) is diminished in human essential hypertension. Low conversion of CgA-to-CST has been associated with increased mortality in patients hospitalized with acute HF. Consistent with human findings, the lack of CST in CgA knockout (Chga-KO) mice eventuates in the development of hypertension and supplementation of CST to Chga-KO mice restores blood pressure, implicating CST as a key player in regulating hypertension. In the peripheral system, CST decreases blood pressure by stimulating histamine release, inhibiting catecholamine secretion, or causing vasodilation. Centrally, CST improves baroreflex sensitivity (BRS) and heart rate variability (HRV) by exciting GABAergic neurons in the caudal ventrolateral medulla (CVLM) and pyramidal neurons of the central amygdala; CST also decreases BRS by exciting glutamatergic rostral ventrolateral medulla (RVLM) neurons. In addition, CST provides cardioprotection by inhibiting inotropy and lusitropy; activating mitochondrial KATP channels, and stimulating reperfusion injury salvage kinase (RISK) and survivor activating factor enhancement (SAFE) pathways and consequent inhibition of mitochondrial permeability transition pore (mPTP). CST modulates cardiomyocyte Ca2+ levels by direct inhibition of Ca2+/calmodulin-dependent protein kinase IIδ (CaMKIIδ) activity and consequent reduction in phosphorylation of phospholamban and ryanodine receptor 2, thereby providing support for a direct functional role of CST in the failing myocardium. Conclusion: These multitude of effects establish CST as a master regulator of cardiovascular functions.
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Lalani, Saher. "Malaria - A Survivor's Account". Einstein Journal of Biology and Medicine 28, n. 1 (2 marzo 2016): 43. http://dx.doi.org/10.23861/ejbm20122812.
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Walsh, Elizabeth Paige, Catherine Riessman e Paul Mathew. "Distress themes encoded in narratives of the “last day”: A study among surviving caregivers." Journal of Clinical Oncology 33, n. 29_suppl (10 ottobre 2015): 23. http://dx.doi.org/10.1200/jco.2015.33.29_suppl.23.
Testo completoAbstract (sommario):
23 Background: Survey studies have determined the prevalence of dissatisfaction among survivor caregivers related to end of life care. Toward improvement in care at EOL, we hypothesized that novel themes of distress would be identified in narratives of the “last day” from the recently bereaved. Methods: Extended narrative accounts of patients’ last day of life were collected from adult, English-speaking, caregivers (n=5) present at the death of a cancer patient. Interviews (45-120 minutes) featured open-ended questions prompting the subject to share an account of the last day, their care and coping experience. Interviews were conducted and transcribed by the author and analyzed thematically. Results: A theme of distressed communication with health care providers [HCP] could be identified in narrative segments in all 5 interviews, linked to transitions such as changes in treatment or clinical status. Narrative fragments exemplary of distress arising from communication are presented. I. A pain crisis so severe “she asked God to take her.” “I am ready to call the nurse practitioner…and she wouldn’t allow it... She doesn’t want to be a burden.” II. “I said, I don’t want you telling him directly anything. I want you to tell me first so we can go in together and tell him…the right way” including an option to “spend time together.” Soon after, the physician “came rushing into the room and as if we’d never had the conversation…, OK, we’re going to take you to the ICU.” III. “I had asked the nurse…to make sure that she had her clothes on when the funeral parlor came.” It was “important to me for her dignity.” The nurse responded: “they just cut the clothes off anyhow.” IV. “Now you’re going to pull chemo out of your hat? Look at him!...He doesn’t want to leave us but he’s ready to go.” “After we said no to chemo, [his doctor] never came near S again.” Conclusions: This pilot study of last day narratives obtained from surviving caregivers points toward a high prevalence of distress content relating to impaired communication with HCP with consequences including uncontrolled pain, conflict, perceived loss of dignity and abandonment. These data indicate the need for larger-scale studies focused on the content and style of bidirectional communication at the EOL.
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Biro, Ruth G. "Review Article: "A Hungarian Refugee in England and Holland." Pogany, George. 2012. When Even the Poets Were Silent: The Life of a Jewish Hungarian Holocaust Survivor under Nazism and Communism. Afterword by Istvan Pogany. Kenilworth, UK: Brandram, Imprint of Takaway Publishing. 263 pp.; Pogany, George. 2014. Where Is My Home? A Hungarian Refugee in England and Holland. Lexington KY: CreateSpace. 209 pp. Illus." Hungarian Cultural Studies 9 (11 ottobre 2016): 220–30. http://dx.doi.org/10.5195/ahea.2016.257.
Testo completoAbstract (sommario):
The personal experiences of individuals who lived through the catastrophes of World War II, the Holocaust and the 1956 Hungarian Revolution have been told in many recent memoirs, greatly expanding our understanding of these historical events. In addition to the experiences of the narrators, the fate of their family members, friends, colleagues and entire communities who were all impacted by these events are also illuminated in these accounts. The two memoirs by George Pogany (b. 1928) cover his life since the early 1930s in Hungary, the Holocaust, communism, his escape to the West in 1956, his settlement in England, resettlement in Holland and his years as an international management consultant in several countries. Few memoirs transmit so vigorously the sweep, resiliency, and duration of the author's life and reflections as in Pogany's exceptionally detailed and insightful twofold memoir.