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Rozprawy doktorskie na temat „Chronically ill children”

Autor: Grafiati

Data publikacji: 4 czerwca 2021

Data aktualizacji: 29 lipca 2024

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1

Fiala, Samuel E. "Camp counselors working with chronically ill children." Texas A&M University, 2005. http://hdl.handle.net/1969.1/3210.

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A growing body of empirical evidence suggests that attending specialized summer camps is beneficial for chronically ill youth (Briery & Rabian, 1999). However, there is some inconsistency across studies regarding these benefits (Hazzard & Angert, 1986). One potential explanation for these differences across camps is that they may differ in how well they recruit and train effective volunteer camp counselors. This possibility cannot be explored until more research is conducted identifying what type of person volunteers to work with chronically ill children and how they differ from others. In res

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2

Lindström, Caisa. "Burnout in parents of chronically ill children." Doctoral thesis, Örebro universitet, Institutionen för hälsovetenskaper, 2016. http://urn.kb.se/resolve?urn=urn:nbn:se:oru:diva-47391.

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Parents of children with a chronic disease are usually highly involved in their child’s treatment and may be affected by the heavy demands and constant stress. This can increase the risk of developing burnout, which is an individual reaction to long-term stress consisting of symptoms associated with emotional exhaustion, as well as physical and cognitive fatigue. The overall aim was to estimate the prevalence of burnout in parents of children with Type 1 Diabetes Mellitus (T1DM) and inflammatory bowel disease (IBD) (paper I), identify the risk factors associated with parenting a child with T1D

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3

Fung, Shuk-man Amy. "Psychosocial risk and protective factors in chronic childhood illnesses : the case of thalassaemia major /." Hong Kong : University of Hong Kong, 1996. http://sunzi.lib.hku.hk/hkuto/record.jsp?B17390084.

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Driskill, Gail. "Chronically Ill Children: Maternal Stress and Psychological Symptomatology." Thesis, University of North Texas, 1995. https://digital.library.unt.edu/ark:/67531/metadc279114/.

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This study used a parenting stress and coping model to identify predictors of symptomatology for 13 8 mothers of medically compromised children. This model proposed that: child characteristics (severity of the chronic illness and child related parenting stressors); parent characteristics (self-esteem, sense of competence, and parents' perceived stress/distress); and environmental characteristics (social support, general life stressor events, and demographic variables) contribute to psychological symptomatology for these mothers. Multiple regression analysis found a relationship between general

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5

Lees, Nancy Berman. "The self-esteem of chronically ill adolescents." CSUSB ScholarWorks, 1991. https://scholarworks.lib.csusb.edu/etd-project/852.

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Rodak, Rina S. "Chronically and terminally ill children and medical decision-making." Thesis, National Library of Canada = Bibliothèque nationale du Canada, 2000. http://www.collectionscanada.ca/obj/s4/f2/dsk2/ftp03/MQ55708.pdf.

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7

Fritts, Sharon Louise. "The impact of chronic illness on the family, the educators, and the community : an ethnographic research study /." For electronic version search Digital dissertations database. Restricted to UC campuses. Access is free to UC campus dissertations, 2004. http://uclibs.org/PID/11984.

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Thesis (Ph. D.)--Joint Doctoral Program in Educational Leadership (California State University, Fresno and University of California, Davis).<br>Typescript. Includes bibliographical references. Also available via the World Wide Web. (Restricted to UC campuses)

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8

Thompson, Jacquelyn J. "How chronic illness affects family relationships and the individual." Online version, 2009. http://www.uwstout.edu/lib/thesis/2009/2009thompsonj.pdf.

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9

Myers, Basil Joseph. "School, hospital information exchange, boundary spanning for chronically ill children." Thesis, National Library of Canada = Bibliothèque nationale du Canada, 1997. http://www.collectionscanada.ca/obj/s4/f2/dsk3/ftp04/nq20759.pdf.

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10

Ioannou, Chrissi. "Acute pain in chronically ill children : psychological assessment and intervention." Thesis, University of Leicester, 1992. http://hdl.handle.net/2381/34660.

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Five separate studies are reported on two groups of chronically ill children: children with end-stage renal failure who had received renal transplants and children with insulin dependent diabetes mellitus (IDDM). Assessment studies of both these groups investigated psychosocial factors influencing children's anxiety, pain and distress during venipunctures. Behavioural, cognitive and physiological measures of pain were used as well as standardized and structured interview questionnaires. The assessment studies involved 21 renal transplant children and 62 chidren with IDDM. The results found a r

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11

Jean, Raynice Eveline. "The perceptions among African American caregivers of children with chronic illnesses /." Digital version accessible at:, 1999. http://wwwlib.umi.com/cr/utexas/main.

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Reich, Julie A. "Perceptions of Parental Differential Treatment: Correlates in Chronically Ill and Non-Ill Samples of Children." [Tampa, Fla.] : University of South Florida, 2003. http://purl.fcla.edu/fcla/etd/SFE0000063.

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13

Blubaugh, Victoria G. "Self-concept in siblings of chronically ill children : Duchenne muscular dystrophy /." The Ohio State University, 1986. http://rave.ohiolink.edu/etdc/view?acc_num=osu1487265555440494.

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14

Tew, Kristi L. (Kristi Lee). "The Efficacy of Filial Therapy with Families with Chronically Ill Children." Thesis, University of North Texas, 1997. https://digital.library.unt.edu/ark:/67531/metadc277594/.

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This study was designed to determine the effectiveness of Filial Therapy as a method of intervention with families with chronically ill children. Filial Therapy is an intervention that focuses on strengthening and enhancing the parent-child relationship. Parents are trained to become the agents of change for their children's behaviors by utilizing basic child-centered play therapy skills in weekly play sessions. The purpose of this study was to a) determine the effectiveness in decreasing parental stress, b) determine the effectiveness in increasing parental acceptance, and c) determine the ef

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15

Shiu, Shiona. "Achieving equity in educational outcomes for students with chronic illness." View thesis, 2008. http://handle.uws.edu.au:8081/1959.7/19222.

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Thesis (Ed.D.)--University of Western Sydney, 2008.<br>A thesis submitted to the University of Western Sydney, College of Arts, School of Education, in fulfilment of the requirements for the degree of Doctor of Education. Includes bibliography.

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16

English, Amber L. "Measuring parenting stress in those with chronically ill children: A psychometric evaluation." Thesis, English, Amber L. (2020) Measuring parenting stress in those with chronically ill children: A psychometric evaluation. Masters by Coursework thesis, Murdoch University, 2020. https://researchrepository.murdoch.edu.au/id/eprint/60896/.

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This study examined the measurement of parenting stress in caregivers of chronically ill children (N=203). The evaluation was focussed on the two most popular measures in the literature; the Parenting Stress Index-Short Form and the Paediatric Inventory for Parents. The Parenting Stress Index-Short Form (PSI-SF) it the most commonly used measure. However, while the PSI-SF has been well-supported in the healthy populations it was designed for, the evidence was poor for its utility with parents of chronically ill children. The Paediatric Inventory for Parents (PIP), developed with parents of chi

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17

Bracey, Kimberly Vaunterice. "Experiences of Parents With Chronically Ill Children Regarding the Affordable Care Act." ScholarWorks, 2019. https://scholarworks.waldenu.edu/dissertations/6975.

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Ways in which the implementation of the Patient Protection and Affordable Care Act (ACA) affect parents with chronically ill children are not well understood. The purpose of this phenomenographic study was to gain greater insight into the perceived experiences of parents of chronically ill children regarding implementation of the ACA in a southern state. Argyris's intervention theory provided the framework for the study. Face-to-face interviews were conducted with a purposeful sample of 12 female parents who are caregivers of chronically ill children. Data were analyzed and coded to identify c

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Shiu, Shiona. "Achieving equity in educational outcomes for students with chronic illness." Thesis, View thesis, 2008. http://handle.uws.edu.au:8081/1959.7/19222.

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This portfolio documents an investigation of both parent and educator perspectives of managing a chronic illness at school with the aim of developing a framework to ensure that students with chronic illness have equitable access to the same educational outcomes as their healthy peers. This study provides an in-depth exploration of a number of facets of the impact of having a chronic illness, including social, emotional, cognitive and physical aspects. The use of both parent and teacher perspectives provides insights into the realities of having a child with chronic illness at school, and offer

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19

Haley, Janice M. "Voicing the strengths of parent caregivers of medically fragile children from the Pacific Islands and the Philippines." Thesis, University of Hawaii at Manoa, 2003. http://proquest.umi.com/pqdweb?index=0&did=764803621&SrchMode=1&sid=4&Fmt=2&VInst=PROD&VType=PQD&RQT=309&VName=PQD&TS=1233350447&clientId=23440.

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20

Mireau, Margaret Ruth. "The experience of women who are caregivers to their chronically mentally ill adult children." Thesis, National Library of Canada = Bibliothèque nationale du Canada, 2000. http://www.collectionscanada.ca/obj/s4/f2/dsk2/ftp03/MQ54734.pdf.

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21

Bendavid-Streiner, Zohar. "The relationship between coping strategies and psychological adjustment among siblings of chronically ill children." Thesis, National Library of Canada = Bibliothèque nationale du Canada, 2000. http://www.collectionscanada.ca/obj/s4/f2/dsk2/ftp02/NQ58264.pdf.

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22

Oliviero, Margaret C. "The relationship between frequency of hospitalization and the anxiety levels in chronically ill children /." Staten Island, N.Y. : [s.n.], 1993. http://library.wagner.edu/theses/nursing/1993/thesis_nur_1993_olivi_relat.pdf.

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Maggio, Barbara J. "The effect of nurses' parental status on attitude toward working with chronically ill children /." Staten Island, N.Y. : [s.n.], 1990. http://library.wagner.edu/theses/nursing/1990/thesis_nur_1990_maggi_effec.pdf.

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Chang, Lu-I. 1965. "Perceptions of parenting stress and family functioning among Taiwanese mothers with chronically ill children." Thesis, The University of Arizona, 1993. http://hdl.handle.net/10150/558217.

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Fung, Shuk-man Amy, and 馮淑敏. "Psychosocial risk and protective factors in chronic childhood illnesses: the case of thalassaemia major." Thesis, The University of Hong Kong (Pokfulam, Hong Kong), 1996. http://hub.hku.hk/bib/B31234847.

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Spencer, Patricia E. "From morphine to milk of magnesia : a case study of children and families living with M.E." Thesis, University of East Anglia, 1997. http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.338040.

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Ismail, Ahmad Faisal Bin. "Oral health status in children with type I diabetes mellitus." Thesis, The University of Hong Kong (Pokfulam, Hong Kong), 2014. http://hdl.handle.net/10722/206501.

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Diabetes mellitus is a metabolic disorder with varied etiology and diverse clinical course. World Health Organization (WHO) has distinguished three types of diabetes mellitus: insulin-dependent (Type I), non insulin-dependent (Type II) and associated with other disease and syndromes. Type I diabetes patients account for approximately 10% of all diabetics, in which children and adolescent almost exclusively develop Type I diabetes. Diabetes can be diagnosed on the basis of symptoms, such as excessive thirst appetite, polyuria, body weight reduction, glucosuria and hyperglycaemia, confirmed by

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28

Lindholm, Michelle Marie. "Chronic childhood disease and child abuse." CSUSB ScholarWorks, 1998. https://scholarworks.lib.csusb.edu/etd-project/1559.

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The purpose of the present research is to investigate whether or not chronically ill children are victims of child abuse more frequently than healthy children. The gender of the child and of the parent will also be examined for differences in the treatment children receive.

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Foster, Christine C. "Families of chronically ill children: The relationship between mothers' reports of normalization and social support." Thesis, University of Ottawa (Canada), 1996. http://hdl.handle.net/10393/9789.

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This study tested the hypotheses that mothers of chronically ill children who reported high use of normalization by their families had higher levels of perceived social support. Additionally, the internal reliability of the Normalization Scale (Murphy, 1992) was determined. A non-probability purposive sample of thirty-three mothers of chronically ill school-aged children was recruited from a medical day unit of a regional pediatric tertiary health setting. Employing the Family Management Style Model (Knafl & Deatrick, 1990) as a conceptual framework, the study used a descriptive correlational

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30

Chiriboga, Jennifer Ann. "The effects of gender, ethnicity, and social self concept, on behavioral intentions towards children with chronic illness." Virtual Press, 2005. http://liblink.bsu.edu/uhtbin/catkey/1317742.

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Spurrier, Nicola J. "Parent's management of childhood asthma : the relevance of psychosocial factors /." Title page, contents and abstract only, 1998. http://web4.library.adelaide.edu.au/theses/09PH/09phs7722.pdf.

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McIntyre, Carol Lynne. "The role of competency-enhancing helpgiving practices in parental adaptation for families of children with special needs /." Full text (PDF) from UMI/Dissertation Abstracts International, 2000. http://wwwlib.umi.com/cr/utexas/fullcit?p3004337.

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33

Lalkhen, Nuruneesa. "The quality of life of parents of children with epilepsy." Thesis, Stellenbosch : Stellenbosch University, 2002. http://hdl.handle.net/10019.1/53152.

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Thesis (MA)--Stellenbosch University, 2002.<br>ENGLISH ABSTRACT: The focus of the present review is the quality of life (QOL) of parents caring for a child with epilepsy. The review is informed by published books and articles available on the Psychlit and Medline databases. The paper provides an overview of epilepsy and the problems patients, particularly children, are confronted with. The important roles that parents fulfil in their child's life is followed by a discussion of the stress and burden experienced by parents caring for a child with epilepsy. Descriptions and definitions of t

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34

Halls, Terry T. "The experience of parents raising a child with special health care needs while living in a rural area." Laramie, Wyo. : University of Wyoming, 2008. http://proquest.umi.com/pqdweb?did=1798480931&sid=1&Fmt=2&clientId=18949&RQT=309&VName=PQD.

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35

Hattori, Keiko. "Good Death Among Elderly Japanese Americans in Hawaii." Diss., University of Hawaii at Manoa, 2007. http://hdl.handle.net/10125/22054.

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The purpose of this focused ethnographic study was to describe the patterns of a good death held by elderly Japanese Americans living in Hawaii. Eighteen "healthy active" elderly Japanese Americans were interviewed individually. In addition, supplementary data, such as interviews with experts and field observations were collected for triangulation of the data. Four themes were derived from 1224 keywords, 56 categories, and 13 patterns. These were: being a burden to the family, process of life and death, individual views on death, and Japanese culture in Hawaii. Being a burden to the family

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Whyte, Dorothy A. "The experience of families caring for a child with cystic fibrosis : a nursing response." Thesis, University of Edinburgh, 1989. http://hdl.handle.net/1842/8370.

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This thesis is concerned with families and chronic illness in childhood. The specific focus of the study is the nursing contribution to support of the family. A longitudinal study of the experience of four families caring for a child with cystic fibrosis was carried out using the ethnographic approach. Analysis of the four case studies provides insight to the effect of cystic fibrosis on each family member and on family interaction. The psychosocial transition by which the families moved from seeing themselves as healthy families to accepting the reality of a long-term health problem is descri

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37

Irwin, Mary Kay. "Educational Issues of Children who are Chronically Ill: A Qualitative Analysis of Patients’, Caregivers’, and Educators’ Beliefs." University of Cincinnati / OhioLINK, 2012. http://rave.ohiolink.edu/etdc/view?acc_num=ucin1353088496.

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Elam, Megan P. "Educational Issues of Children who are Chronically Ill: A Quantitative Analysis of Patients’, Caregivers’, and Educators’ Beliefs." University of Cincinnati / OhioLINK, 2012. http://rave.ohiolink.edu/etdc/view?acc_num=ucin1353088587.

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Johnson, Norah Louise. "Understanding Relationships in Health Related Quality of Life for Parents of Children with Autism Spectrum Disorder." [Milwaukee, Wis.] : e-Publications@Marquette, 2009. http://epublications.marquette.edu/dissertations_mu/6.

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Lam, Ching-yee. "The impacts of childhood cancer on siblings among Hong Kong Chinese : from parents' perspectives /." View the Table of Contents & Abstract, 2006. http://sunzi.lib.hku.hk/hkuto/record/B36396801.

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Cooke-O'Connor, Laura Elizabeth. "Evaluation of an intervention for siblings of children with chronic illness or disability : a pilot study /." Title page and table of contents only, 2003. http://web4.library.adelaide.edu.au/theses/09PMC/09pmcc7731.pdf.

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Thesis (M.Psych.(Clin.)) -- University of Adelaide, Dept. of Psychology, 2003.<br>"17 April 2003" "Research report attachments submitted in partial fulfilment of the requirements for the Master of Psychology (Clinical). Includes bibliographical references.

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42

Cavanagh, Ellyn Elizabeth. "Maintaining a childhood : a phenomenologic study of family experiences providing home care for chronically ill, technology-dependent children /." Thesis, Connect to this title online; UW restricted, 1999. http://hdl.handle.net/1773/7373.

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Tallon, Mary Margaret. "The formative evaluation of a psychosocial assessment framework for families of children who are seriously or chronically ill." Thesis, Curtin University, 2017. http://hdl.handle.net/20.500.11937/53043.

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The families of children who are seriously ill frequently experience distress that affects their ability to cope. A formative evaluation of a family psychosocial assessment framework was undertaken using mixed methods. The attitudes and perspectives of primary caregivers and healthcare providers regarding psychosocial assessment were examined. Rather than finalising a new screening instrument, a conceptual framework emerged to guide communication about psychosocial issues. The emergent conceptual model supports the implementation of a skilled-based practice intervention.

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44

Lai, Cheng Cheng-gea Alice. "Parenting and children's social competence in families with hepatitis B virus (HBV) in Guangzhou : an ecological study /." Hong Kong : University of Hong Kong, 1995. http://sunzi.lib.hku.hk/hkuto/record.jsp?B14035510.

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45

Albers-Pearce, Milja Desiree. "Investigation of anxiety and a cognitive-behavioural intervenion [i.e. intervention] to reduce anxiety in chronically ill children undergoing venepunctures." Thesis, University of Canterbury. Department of Psychology, 1989. http://hdl.handle.net/10092/4745.

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Twenty two chronically ill children-aged between three and ten participated in either a cognitive-behavioural package, or a placebo play condition, to reduce their anxiety associated with venepunctures. Behavioural, physiological and self reported anxiety measures were taken. The package included information, breathing, positive self talk statements, and modelling and behavioural practice. All children except those aged three to six, in the treatment group, had low anxiety throughout. The treatment did not reduce anxiety in these young children, but other factors such as parental presence, lac

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46

Spafford, Pamela Anne. "The role of illness representations in the coping and adjustment of children with asthma and their parents." University of Western Australia. School of Psychology, 2004. http://theses.library.uwa.edu.au/adt-WU2005.0046.

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The purpose of this study was to evaluate Leventhal, Nerenz, and Steele’s (1984) self-regulation model of adaptation to chronic illness when applied to children with asthma and their parents. The self-regulation model posits that illness representations influence coping, and via coping, adaptive outcomes. In the adult literature, illness representations or perceptions of symptoms, cause, time-line, consequences and control of illness have been found to be important determinants of coping and adjustment. No study, however, has examined illness representations in relation to coping and adjustmen

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47

HOWARD, JOANNE KAY HERGENROTHER. "COGNITIVE ADAPTATION AND THE SCHOOLAGER WITH ASTHMA." Diss., The University of Arizona, 1986. http://hdl.handle.net/10150/183895.

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The purpose of this study was to examine the interrelationships among the themes of Taylor's (1983) Cognitive Adaptation Theory for schoolagers with asthma. In addition, the influence of Taylor's (1983) themes on the children's social behavior was also tested. The three themes of Taylor's (1983) theory included A Search for Meaning, Restoration of Self-Esteem, and Gaining a Sense of Self-Mastery. Two components of A Search for Meaning included the Impact of Disease and the Cause of Disease. Relating Behaviors-Cooperating Behaviors was the index of social behavior. Forty-five Caucasian children

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Rodriguez, Francisco Jose. "Oral mucositis in children receiving bone marrow transplantation." Thesis, Birmingham, Ala. : University of Alabama at Birmingham, 2008. https://www.mhsl.uab.edu/dt/2008m/rodriguez.pdf.

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Ho, Hoe Yan Greenly. "Cognitive functioning and academic achievement in children and adolescents with chronic pain /." Burnaby B.C. : Simon Fraser University, 2005. http://ir.lib.sfu.ca/handle/1892/2354.

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Mendoza, Nydia Judith. "Children's chronic illness and family poverty in the El Paso/Ciudad Juárez border region." To access this resource online via ProQuest Dissertations and Theses @ UTEP, 2008. http://0-proquest.umi.com.lib.utep.edu/login?COPT=REJTPTU0YmImSU5UPTAmVkVSPTI=&clientId=2515.

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