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Artykuły w czasopismach na temat „Chronically ill children”

Autor: Grafiati

Data publikacji: 4 czerwca 2021

Data aktualizacji: 29 lipca 2024

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1

Vane, Julia R. "Dealing With Chronically Ill Children." Contemporary Psychology: A Journal of Reviews 31, no. 2 (February 1986): 150–51. http://dx.doi.org/10.1037/024533.

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Meleski, Debra D. "Families with Chronically Ill Children." American Journal of Nursing 102, no. 5 (May 2002): 47–54. http://dx.doi.org/10.1097/00000446-200205000-00036.

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Sochett, Etienne B., and Outi Mäkitie. "Osteoporosis in chronically ill children." Annals of Medicine 37, no. 4 (June 2005): 286–94. http://dx.doi.org/10.1080/07853890510007250.

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4

Jaudes, Paula Kienberger. "Neglect of Chronically Ill Children." Archives of Pediatrics & Adolescent Medicine 140, no. 7 (July 1, 1986): 655. http://dx.doi.org/10.1001/archpedi.1986.02140210053024.

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Blackford, Karen A. "The Children of Chronically Ill Parents." Journal of Psychosocial Nursing and Mental Health Services 26, no. 3 (March 1988): 33–36. http://dx.doi.org/10.3928/0279-3695-19880301-10.

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6

Kieckhefer, Gail M., Nicholas Hobbs, James M. Perrin, and Henry T. Ireys. "Chronically Ill Children and Their Families." American Journal of Nursing 86, no. 8 (August 1986): 975. http://dx.doi.org/10.2307/3425518.

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7

Smith, H. "Chronically ill children with their families." Archives of Disease in Childhood 61, no. 8 (August 1, 1986): 824–25. http://dx.doi.org/10.1136/adc.61.8.824-b.

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8

Martin, Sylvia S., Michael P. Brady, and Joseph A. Kotarba. "Families with Chronically Ill Young Children." Remedial and Special Education 13, no. 2 (March 1992): 6–15. http://dx.doi.org/10.1177/074193259201300203.

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9

Boling, Whitney. "The Health of Chronically Ill Children." Family & Community Health 28, no. 2 (April 2005): 176–83. http://dx.doi.org/10.1097/00003727-200504000-00009.

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10

B. Reichenbach, Mary Ann. "Promoting Normalcy in Chronically ill Children." Orthopaedic Nursing 15, no. 1 (January 1996): 37???42. http://dx.doi.org/10.1097/00006416-199601000-00008.

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11

Nelms, Bobbie Crew. "Emotional behaviors in chronically ill children." Journal of Abnormal Child Psychology 17, no. 6 (December 1989): 657–68. http://dx.doi.org/10.1007/bf00917729.

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12

Flegel, K. "Chronically ill children and fragile families." Canadian Medical Association Journal 186, no. 16 (October 14, 2014): 1195. http://dx.doi.org/10.1503/cmaj.141207.

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13

Cohn, Robert C., and Ben H. Brouhard. "Technical Skills in Chronically Ill Children." Clinical Pediatrics 39, no. 6 (June 2000): 347–49. http://dx.doi.org/10.1177/000992280003900604.

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14

Hobbs, Nicholas, M. James, Perrin, and Henry T. Ireys. "Chronically Ill Children and Their Families." MCN, The American Journal of Maternal/Child Nursing 11, no. 6 (November 1986): 424. http://dx.doi.org/10.1097/00005721-198611000-00022.

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15

WESOLOWSKI, CYNTHIA A. "Self-Contracts For Chronically Ill Children." MCN, The American Journal of Maternal/Child Nursing 13, no. 1 (January 1988): 20–23. http://dx.doi.org/10.1097/00005721-198801000-00008.

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16

Nisevic, Sanja. "The importance of social support to chronically ill adolescents." Medical review 59, no. 7-8 (2006): 331–34. http://dx.doi.org/10.2298/mpns0608331n.

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Introduction. Improvements in medicine have significantly prolonged life of chronically ill children and adolescents in the past several decades. There is a great variability in adaptation to illness among chronically ill persons - some of them seem to be very well adapted, with almost no problems. However, research results suggest that chronically ill children are more likely to have psychological problems than their healthy peers. Material and methods. Eighty-four subjects, all elementary school pupils, participated in the study. The first group included adolescents with chronical illness (m

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17

Rauch-Elnekave, H., N. Gabbai, M. Spitz, and I. Weissman. "PITY? WHAT CHRONICALLY ILL CHILDREN REALLY NEED." EDTNA-ERCA Journal 29, no. 1 (January 3, 2003): 11–14. http://dx.doi.org/10.1111/j.1755-6686.2003.tb00266.x.

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18

WEIL, WILLIAM B. "Review of 'Neglect of Chronically Ill Children'." Archives of Pediatrics & Adolescent Medicine 140, no. 7 (July 1, 1986): 628. http://dx.doi.org/10.1001/archpedi.1986.02140210026017.

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19

Nakamura, Miho, Yuriko Kanematsu, Midori Yokota, Junko Takeda, Nobue Nakamura, Mitsue Maru, Kayuri Furuya, Miwako Noguchi, Masayo Uchida, and Youko Sugimoto. "Social Support of Chronically-ill Children and Healthy Children." Journal of Japan Academy of Nursing Science 17, no. 1 (1997): 40–47. http://dx.doi.org/10.5630/jans1981.17.1_40.

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20

Plisková, Barbora, and Petr Snopek. "Primary School Teachers’ Awareness of Chronic Diseases of Children." Acta Educationis Generalis 7, no. 3 (December 20, 2017): 111–21. http://dx.doi.org/10.1515/atd-2017-0028.

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Abstract Introduction: More and more children and adolescents suffering from chronic diseases are included in common school education. Unfortunately, teachers do not feel confident enough about how to cope, fulfil and satisfy the needs of these children in the educational, social and emotional spheres. The aim ofp this part of research was to discover how teachers work with chronically ill children of younger school-age. There were three aims. The first aim was to investigate if teachers have basic awareness and knowledge about selected chronic diseases in children of younger school-age. The s

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21

Leone, Giovanna, and Francesca D'Errico. "Che ruolo ha la condizione lavorativa materna nella tendenza ad aiutare troppo un figlio malato cronico?" PSICOLOGIA DELLA SALUTE, no. 2 (November 2009): 99–118. http://dx.doi.org/10.3280/pds2009-002007.

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- The article presents an empirical research aimed to explore if employed (vs. not employed) mothers of chronically ill children (vs. healthy ones) overhelp more their ill children and express more negative emotions (shame, anxiety or sadness) when helping them. Twenty mother-child dyads, balanced for the child gender, were videotaped during a 10 min. gaming simulation, evoking the child's need of being helped in relation to a simple problemsolving (puzzle). Results show that unemployed mothers tend to overhelp more their children when they are healthy (vs. chronically ill), while employed mot

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22

Moura, Flávia Moura de, Áderson Luiz Costa Júnior, Meryeli Santos de Araújo Dantas, Gilvan da Cruz Barbosa Araújo, and Neusa Collet. "Playful intervention with chronically-ill children: promoting coping." Revista Gaúcha de Enfermagem 35, no. 2 (June 2014): 86–92. http://dx.doi.org/10.1590/1983-1447.2014.02.41822.

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Chronic diseases can adversely affect the development process of children. This qualitative, action-research study had the aim to analyze the effects of activities in the manual "Como Hóspede no Hospital" (As a patient in the hospital) on the coping process of children with chronic diseases. Study participants included six children and adolescents aged seven to 13 years, who suffered from a chronic disease. Data were collected in the pediatric clinic of a public hospital in the Brazilian state of Paraíba, through participant observation and individual sessions with activities from the manual.

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23

Powers, Gail M., Linda M. Gaudet, and Stephen Powers. "Coping Patterns of Parents of Chronically Ill Children." Psychological Reports 59, no. 2 (October 1986): 519–22. http://dx.doi.org/10.2466/pr0.1986.59.2.519.

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This study examined the coping patterns of 107 parents of chronically ill children in Southern Arizona. Coping patterns were measured with the Coping-Health Inventory of Parents. Mothers scored higher than fathers on strengthening the self and understanding the medical situation. Anglo-American parents scored higher than Hispanic-American on strengthening the self. No significant correlations were found between income, education or age with coping patterns of parents.

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24

Park, Eun Sook, Kee Hyoung Lee, Won Oak Oh, Yeo jin Im, and Eun ji Cho. "Parenting Experience of Parents with Chronically Ill Children." Child Health Nursing Research 21, no. 3 (July 31, 2015): 272–84. http://dx.doi.org/10.4094/chnr.2015.21.3.272.

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25

Sheetz, J. "Screening Parents of Chronically Ill Children for Depression." AAP Grand Rounds 26, no. 3 (September 1, 2011): 34. http://dx.doi.org/10.1542/gr.26-3-34.

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26

Spence, Linda J., and Lana Kaiser. "Companion Animals and Adaptation in Chronically Ill Children." Western Journal of Nursing Research 24, no. 6 (October 2002): 639–56. http://dx.doi.org/10.1177/019394502320555395.

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27

Seagle, Heather, Peggy Jessee, and M. Christine Nagy. "Altruism: Choices of healthy and chronically ill children." Early Child Development and Care 172, no. 6 (December 2002): 573–83. http://dx.doi.org/10.1080/03004430215097.

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28

Worchel-Prevatt, Frances F., Robert W. Heffer, Bruce C. Prevatt, Jennifer Miner, Tammi Young-Saleme, Daniel Horgan, Molly A. Lopez, William A. Rae, and Lawrence Frankel. "A School Reentry Program for Chronically Ill Children." Journal of School Psychology 36, no. 3 (September 1998): 261–79. http://dx.doi.org/10.1016/s0022-4405(98)00012-0.

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29

Giorgio, D., A. Liguori, T. Capriati, D. Elia, D. Marino, F. Romano, F. Bellucci, A. Cappelli, and A. Diamanti. "Nutritional status and morbidity in chronically ill children." Digestive and Liver Disease 48 (October 2016): e281. http://dx.doi.org/10.1016/j.dld.2016.08.106.

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30

Tew, Krisit, Garry L. Landreth, Kimberly D. Joiner, and Misty D. Solt. "Filial therapy with parents of chronically ill children." International Journal of Play Therapy 11, no. 1 (2002): 79–100. http://dx.doi.org/10.1037/h0088858.

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31

Fox, Harriette B., and Paul W. Newacheck. "Private Health Insurance of Chronically III Children." Pediatrics 85, no. 1 (January 1, 1990): 50–57. http://dx.doi.org/10.1542/peds.85.1.50.

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Accurate information regarding the adequacy of private health insurance coverage available to the families of chronically ill children is scarce. A national survey was conducted of firms offering health insurance to employees and their dependents. Data were collected concerning private health insurance coverage of services needed by chronically ill children, including basic medical care services, ancillary therapies, mental health services, and long-term care. Nearly all surveyed firms offered health insurance. Coverage of inpatient hospital care, outpatient physician services, medical supplie

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32

Piette, John D., Ann Marie Rosland, Maria Silveira, Mohammed Kabeto, and Kenneth M. Langa. "The case for involving adult children outside of the household in the self-management support of older adults with chronic illnesses." Chronic Illness 6, no. 1 (March 2010): 34–45. http://dx.doi.org/10.1177/1742395309347804.

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Objectives: This study sought to (1) identify barriers to spousal support for chronic illness self-care among community-dwelling older adults; and (2) describe the potential availability of self-care support from adult children living outside of the household. Methods: Nationally representative US sample of chronically ill adults aged 51+ were interviewed as part of the Health and Retirement Study (N = 14,862). Both participants and their spouses (when available) reported information about their health and functioning. Participants also reported information about their contact with adult child

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33

Verbianova, O. M., E. V. Ulybina, and O. V. Gruzdeva. "COMPARATIVE ANALYSIS OF VOLUNTARY QUALITIES DEVELOPMENT AMONG HEALTHY AND FREQUENTLY AND CHRONICALLY ILL CHILDREN OF SENIOR PRESCHOOL AGE." Bulletin of Krasnoyarsk State Pedagogical University named after V.P. Astafiev 59, no. 1 (March 30, 2022): 106–15. http://dx.doi.org/10.25146/1995-0861-2022-59-1-321.

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Statement of the problem. The period of preschool age is a necessary and significant period for the beginning of the formation of the volitional aspect of the personality. This predetermines the interest in studying this issue. The relevance of studying the development of volitional qualities of frequently and chronically ill children is explained by an increase in the proportion of somatically sick children and becomes especially important in connection with the search for effective ways of raising these children. The purpose of this article is to study the systemic characteristics of the dev

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34

Walęcka-Matyja, Katarzyna Kamila. "Family values vs parental involvement in families with a chronically ill child." Kwartalnik Naukowy Fides et Ratio 53, no. 1 (March 28, 2023): 47–61. http://dx.doi.org/10.34766/fetr.v53i1.1169.

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Introduction: The aim of the study was to determine the differences in family values and parental involvement in groups of parents raising a chronically ill child and a healthy child. In addition, it was checked whether family values allow predicting parental involvement. Method: The study was conducted using the CAWI method in a group of 160 adults, of whom 64 (40%) had a chronically ill child. Research tools with good psychometric properties were used: Familism Scale, Parental Involvement Questionnaire and a questionnaire. Results: It was found that mothers and fathers raising a chronically

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35

Bell, Megan F., Donna M. Bayliss, Rebecca Glauert, and Jeneva L. Ohan. "Developmental vulnerabilities in children of chronically ill parents: a population-based linked data study." Journal of Epidemiology and Community Health 73, no. 5 (February 21, 2019): 393–400. http://dx.doi.org/10.1136/jech-2018-210992.

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BackgroundCurrently, there is mixed evidence regarding the effects on children when a parent is chronically ill. Research has also primarily been conducted with adolescent samples. This study investigated developmental vulnerabilities in young children of parents with chronic illness.MethodsThis study used linked administrative data. The study population included children born in Western Australia during 2003–2004 (n=19 071; mean age 5.5 years). The outcome measure was a score in the bottom 25% on any of the five developmental domains (physical, social, emotional, communicative and cognitive)

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36

GIBSON, CHERYL H. "Facilitating critical reflection in mothers of chronically ill children." Journal of Clinical Nursing 8, no. 3 (May 1999): 305–12. http://dx.doi.org/10.1046/j.1365-2702.1999.00259.x.

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Hovey, Judith K. "Fathers Parenting Chronically Ill Children: Concerns and Coping Strategies." Issues in Comprehensive Pediatric Nursing 28, no. 2 (January 2005): 83–95. http://dx.doi.org/10.1080/01460860590950863.

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38

PELLETIER, L., G. GODIN, L. LEPAGE, and G. DUSSAULT. "Social support received by mothers of chronically ill children*." Child: Care, Health and Development 20, no. 2 (March 1994): 115–31. http://dx.doi.org/10.1111/j.1365-2214.1994.tb00858.x.

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39

Cantrell, Mary Ann, and Michelle M. Kelly. "Health-Related Quality of Life for Chronically Ill Children." MCN, The American Journal of Maternal/Child Nursing 40, no. 1 (2015): 24–31. http://dx.doi.org/10.1097/nmc.0000000000000090.

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Razaz, N., C. Hertzman, R. A. Marrie, H. Tremlett, and W. T. Boyce. "Children of chronically ill parents: the silence of research." Child: Care, Health and Development 40, no. 5 (August 11, 2014): 753–54. http://dx.doi.org/10.1111/cch.12120.

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41

Köhler, Lennart. "Chronically ill and handicapped children in the Nordic countries." International Journal of Rehabilitation Research 11, no. 2 (June 1988): 196. http://dx.doi.org/10.1097/00004356-198806000-00022.

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Belcher, John R. "Mothers Alone and Supporting Chronically Mentally Ill Adult Children." Women & Health 14, no. 2 (December 29, 1988): 61–80. http://dx.doi.org/10.1300/j013v14n02_05.

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43

Allen, Elizabeth R., Janet W. Horsley, and Patricia A. White. "School nutrition services for handicapped and chronically ill children." Journal of Nutrition Education 23, no. 5 (September 1991): 260C—261C. http://dx.doi.org/10.1016/s0022-3182(12)81285-4.

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Doron, Hadas, Meirav Hen, and Adi Sharabi-Nov. "Relationship Quality among Chronically Ill Children and their Parents." Journal of Child and Family Studies 27, no. 12 (August 13, 2018): 3866–76. http://dx.doi.org/10.1007/s10826-018-1228-8.

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Mahat, Ganga, Mary Ann Scoloveno, and Cassandra Barnette Donnelly. "Written educational materials for families of chronically ill children." Journal of the American Academy of Nurse Practitioners 19, no. 9 (September 2007): 471–76. http://dx.doi.org/10.1111/j.1745-7599.2007.00254.x.

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46

Rao, Pradeep, Prakash V. Pradhan, and Henal Shah. "Psychopathology and coping in parents of chronically ill Children." Indian Journal of Pediatrics 71, no. 8 (August 2004): 695–99. http://dx.doi.org/10.1007/bf02730656.

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Neff, John M. "Paid Family Leave for Parents of Chronically Ill Children." JAMA 300, no. 9 (September 3, 2008): 1080. http://dx.doi.org/10.1001/jama.300.9.1080.

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48

Günüşen, Neslihan Partlak, Marian Wilson, and Burcu Aksoy. "Secondary Traumatic Stress and Burnout Among Muslim Nurses Caring for Chronically Ill Children in a Turkish Hospital." Journal of Transcultural Nursing 29, no. 2 (January 30, 2017): 146–54. http://dx.doi.org/10.1177/1043659616689290.

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Purpose: This study investigated secondary traumatic stress and its relationship to burnout among nurses working at a Turkish hospital. Design: A mixed-methods design included a cross-sectional survey administering the Professional Quality of Life instrument and Maslach Burnout Inventory to 106 nurses. Interviews with a subgroup of eight participants explored nurses’ experiences and coping strategies related to caring for chronically ill pediatric patients. Results: High risk levels of secondary traumatic stress existed among 40.6% participants, and those over the age of 40 years were at great

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49

Newacheck, Paul W., Dana C. Hughes, Jeffrey J. Stoddard, and Neal Halfon. "Children With Chronic Illness and Medicaid Managed Care." Pediatrics 93, no. 3 (March 1, 1994): 497–500. http://dx.doi.org/10.1542/peds.93.3.497.

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Incorporating these suggestions would necessitate a significant commitment of funds and other resources on the part of federal and state governments. This level of commitment is necessary if children with chronic conditions from low-income families are to receive appropriate care and their sponsors receive fair value. However, attending to the suggestions made in this commentary—while necessary—will not automatically assure that chronically ill children receive the services they need. All too often the emphasis of Medicaid managed care is on managing costs rather than managing care. It is only

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50

Fauman, Karen R., Kenneth J. Pituch, Yong Y. Han, Matthew F. Niedner, Janella Reske, and Ann Marie LeVine. "Predictors of Depressive Symptoms in Parents of Chronically Ill Children Admitted to the Pediatric Intensive Care Unit." American Journal of Hospice and Palliative Medicine® 28, no. 8 (March 30, 2011): 556–63. http://dx.doi.org/10.1177/1049909111403465.

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Objective: To identify factors in the pediatric intensive care unit (PICU) patient population that may result in increased risk of depressive symptoms in their parents. Design: Six-month, prospective, observational study in a tertiary-level PICU on parents of chronically ill children admitted to PICU. Parents were assessed by background questionnaire and standardized depression scale. Results: Data was compared to various markers such as child’s diagnosis, admission reason, palliative care diagnosis type (ACT code), and course/length of disease. Incidence of depressive symptoms in parents was

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