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Saad, Rima, Lina Badr Kurdahi, Nuhad Yazbick-Dumit, Christelle Irani, and Samar Muwakkit. "Paediatric oncology providers' perspectives on early integration of paediatric palliative care." International Journal of Palliative Nursing 26, no. 3 (March 2, 2020): 100–109. http://dx.doi.org/10.12968/ijpn.2020.26.3.100.

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Background: Healthcare providers' perceptions of palliative care in children with cancer influence care management, specifically that of its early integration. Thus, it is crucial to understand the perspectives of the providers on early integration of palliative care so that measures to create informed care decisions are based on reconciling their views. Aims: To explore the perceptions of paediatric oncology providers at the Children's Cancer Institute (CCI) in Lebanon regarding the integration of early paediatric palliative care (PPC) in the management of children with cancer. Methods: A qua
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Paulovich, Belinda. "Clinicians as mediators in participatory design research: a communication design study in paediatric healthcare." J. of Design Research 17, no. 1 (2019): 47. http://dx.doi.org/10.1504/jdr.2019.10023871.

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Paulovich, Belinda. "Clinicians as mediators in participatory design research: a communication design study in paediatric healthcare." J. of Design Research 17, no. 1 (2019): 47. http://dx.doi.org/10.1504/jdr.2019.102231.

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Ekberg, Stuart, Anthony Herbert, Kristi Johns, Gabrielle Tarrant, Holly Sansone, Patsy Yates, Susan Danby, and Natalie K. Bradford. "Finding a way with words: Delphi study to develop a discussion prompt list for paediatric palliative care." Palliative Medicine 34, no. 3 (November 22, 2019): 291–99. http://dx.doi.org/10.1177/0269216319888988.

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Background: Effective communication is a cornerstone of quality paediatric palliative care. Families report struggling, however, to know what to discuss, with whom, and when. Although question prompt lists exist for adult palliative care, they do not suit the unique circumstances of paediatric palliative care. Aim: To develop a prompt list suitable for paediatric palliative care. Design: Underpinned by Delphi methodology, a six-phase procedure was adopted: (1) drafting items based on the findings of a literature review, (2) condensing the list of items based on group discussion, (3) refining i
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Falkenstein, Lina, Nathalie Eckel, Simone B. Kadel, Jochem Koenig, David Litaker, and Michael Eichinger. "Service provision and utilisation in German paediatric primary care practices during public health crises: Protocol of the mixed-methods COVID-19 PedCare Study." BMJ Open 12, no. 10 (October 2022): e054054. http://dx.doi.org/10.1136/bmjopen-2021-054054.

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IntroductionPublic health crises such as pandemics can cause serious disruptions to the utilisation and provision of healthcare services with negative effects on morbidity and mortality. Despite the important role of paediatric primary care in maintaining high-quality healthcare services during crises, evidence about service utilisation and provision remains limited especially in Germany. This study, therefore, explores the utilisation and provision of paediatric primary care services during the ongoing COVID-19 pandemic and their barriers and facilitators.Methods and analysisThe study uses a
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Hein, Kerstin, Kathrin Knochel, Vedrana Zaimovic, Daniel Reimann, Anna Monz, Nari Heitkamp, Gian Domenico Borasio, and Monika Führer. "Identifying key elements for paediatric advance care planning with parents, healthcare providers and stakeholders: A qualitative study." Palliative Medicine 34, no. 3 (January 27, 2020): 300–308. http://dx.doi.org/10.1177/0269216319900317.

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Background: Although international guidelines recommend discussions about goals of care and treatment options for children with severe and life-limiting conditions, there are still few structured models of paediatric advance care planning. Aim: The study aimed at identifying key components of paediatric advance care planning through direct discussions with all involved parties. Design: The study had a qualitative design with a participatory approach. Participants constituted an advisory board and took part in two transdisciplinary workshops. Data were collected in discussion and dialogue group
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Horavova, L., K. Nebeska, L. Souckova, R. Demlova, and P. Babula. "The Current Status of European and National Financial Sources for Clinical Research and Their Impact on Paediatric Non-commercial Clinical Trials: A Case Study of the Czech Republic." Therapeutic Innovation & Regulatory Science 54, no. 6 (June 5, 2020): 1461–72. http://dx.doi.org/10.1007/s43441-020-00173-9.

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Abstract Introduction Paediatric non-commercial interventional clinical trials (NICTs) are crucial for healthcare provision. In spite of the fact that current regulations and initiatives try to enhance the quantity and quality of paediatric NICTs, there are still shortcomings that need to be addressed in order to accelerate the conduct of relevant clinical trials in children. To improve the current landscape of paediatric clinical research, it is necessary to identify and analyse the main trends and shortcomings, along with their impact on national performance in paediatric NICTs and this is t
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McLaughlan, Rebecca, and Alan Pert. "Evidence and speculation: reimagining approaches to architecture and research within the paediatric hospital." Medical Humanities 44, no. 3 (November 25, 2017): 146–52. http://dx.doi.org/10.1136/medhum-2017-011285.

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As the dominant research paradigm within the construction of contemporary healthcare facilities, evidence-based design (EBD) will increasingly impact our expectations of what hospital architecture should be. Research methods within EBD focus on prototyping incremental advances and evaluating what has already been built. Yet medical care is a rapidly evolving system; changes to technology, workforce composition, patient demographics and funding models can create rapid and unpredictable changes to medical practice and modes of care. This dynamism has the potential to curtail or negate the useful
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Khan, Farrah. "P22 Developing a pharmacology module for the paediatric non-medical prescribing course." Archives of Disease in Childhood 105, no. 9 (August 19, 2020): e17.2-e18. http://dx.doi.org/10.1136/archdischild-2020-nppg.31.

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IntroductionDemand from local NHS stakeholders identified a gap for a taught education course tailored to the niche requirements of paediatric healthcare staff wishing to become non-medical prescribers. This was seen as an excellent opportunity to review and develop the pharmacology module within the Non-medical Prescribing (NMP) course by giving it a paediatric focus.AimTo develop a pharmacology module with an emphasis on paediatric prescribing that meets the professional requirements of the General Pharmaceutical Council (GPhC), the Nursing and Midwifery Council (NMC) and the Health Care Pro
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Jones, Catherine, Jennifer Fraser, and Sue Randall. "The evaluation of a home-based paediatric nursing service: concept and design development using the Kirkpatrick model." Journal of Research in Nursing 23, no. 6 (July 31, 2018): 492–501. http://dx.doi.org/10.1177/1744987118786019.

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Background A new paediatric hospital-in-the-home nursing service required evaluation. Aims To determine whether the education and training provided for nursing staff employed in the service was effective. Methods This paper presents the way in which a training evaluation model supported the design and evaluation of a training programme for registered nurses working in an out-of-hospital, home-based nursing service for paediatric patients. Results The Kirkpatrick model provides a framework for evaluating the effectiveness of workforce training for any industry including healthcare (Kirkpatrick,
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Nicholson, Emma, Therese McDonnell, Moayed Hamza, Michael Barrett, Christopher Brunsdon, Gerard Bury, Martin Charlton, et al. "Factors that influence family and parental preferences and decision making for unscheduled paediatric healthcare: a systematic review protocol." HRB Open Research 2 (June 14, 2019): 11. http://dx.doi.org/10.12688/hrbopenres.12897.1.

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There is a plethora of factors that dictate where parents and families choose to seek unscheduled healthcare for their child; and the complexity of these decisions can present a challenge for policy makers and healthcare planners as these behaviours can have a significant impact on resources in the health system. The systematic review will seek to identify the factors that influence parents’ and families’ preferences and decision making when seeking unscheduled paediatric healthcare. Five databases will be searched for published studies (CINAHL, PubMed, SCOPUS, PsycInfo, EconLit) and grey lite
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Nicholson, Emma, Therese McDonnell, Moayed Hamza, Michael Barrett, Christopher Brunsdon, Gerard Bury, Martin Charlton, et al. "Factors that influence family and parental preferences and decision making for unscheduled paediatric healthcare: a systematic review protocol." HRB Open Research 2 (September 30, 2019): 11. http://dx.doi.org/10.12688/hrbopenres.12897.2.

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There is a plethora of factors that dictate where parents and families choose to seek unscheduled healthcare for their child; and the complexity of these decisions can present a challenge for policy makers and healthcare planners as these behaviours can have a significant impact on resources in the health system. The systematic review will seek to identify the factors that influence parents’ and families’ preferences and decision making when seeking unscheduled paediatric healthcare. Five databases will be searched for published studies (CINAHL, PubMed, SCOPUS, PsycInfo, EconLit) and grey lite
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Anthony, Samantha J., Sarah J. Pol, Jia Lin, Melanie Barwick, Michael Brudno, Dorin Manase, Rulan Savita Parekh, Amanda Silva, and Jennifer Stinson. "Creation of an electronic patient-reported outcome measure platform Voxe: a mixed methods study protocol in paediatric solid organ transplantation." BMJ Open 11, no. 10 (October 2021): e053119. http://dx.doi.org/10.1136/bmjopen-2021-053119.

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IntroductionPatient-reported outcome measures (PROMs) provide an opportunity for meaningful patient engagement and shared decision-making. The objective of this research programme is to improve health outcomes for paediatric solid organ transplant patients by implementing PROMs into clinical care. The current study aims to create Voxe, a paediatric user-centred electronic PROM platform, by engaging patients and healthcare providers throughout the design and development process.Methods and analysisThe creation of Voxe will occur over two phases that build on previous research. The user interfac
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Bartholdson, Cecilia, Margareta af Sandeberg, Kim Lützén, Klas Blomgren, and Pernilla Pergert. "Healthcare professionals’ perceptions of the ethical climate in paediatric cancer care." Nursing Ethics 23, no. 8 (August 3, 2016): 877–88. http://dx.doi.org/10.1177/0969733015587778.

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Background: How well ethical concerns are handled in healthcare is influenced by the ethical climate of the workplace, which in this study is described as workplace factors that contribute to healthcare professionals’ ability to identify and deal with ethical issues in order to provide the patient with ethically good care. Objectives: The overall aim of the study was to describe perceptions of the paediatric hospital ethical climate among healthcare professionals who treat/care for children with cancer. Research design: Data were collected using the Hospital Ethical Climate Survey developed by
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Major, János, Zsófia K. Varga, Andrea Gyimesi-Szikszai, and Szilvia Ádám. "A two-week inpatient programme with a booster improved long-term management of severe chronic paediatric pain." Journal of Child Health Care 21, no. 2 (March 15, 2017): 171–80. http://dx.doi.org/10.1177/1367493517697479.

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In the context of limited healthcare resources and increasing demands for more cost-effective healthcare solutions, this study assessed the short- and long-term clinical outcomes and resource utilization of a two-week inpatient, interdisciplinary, pain treatment (IIPT) including individual and group cognitive behavioural, occupational, physical and recreational therapy, education and family intervention and a booster in the chronic paediatric pain setting. Using a longitudinal design with a two-year follow-up, two-week IIPT resulted in sustainable improvements in mean and maximum pain intensit
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Pergert, Pernilla, Cecilia Bartholdson, Klas Blomgren, and Margareta af Sandeberg. "Moral distress in paediatric oncology: Contributing factors and group differences." Nursing Ethics 26, no. 7-8 (November 9, 2018): 2351–63. http://dx.doi.org/10.1177/0969733018809806.

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Background: Providing oncological care to children is demanding and ethical issues concerning what is best for the child can contribute to moral distress. Objectives: To explore healthcare professionals’ experiences of situations that generate moral distress in Swedish paediatric oncology. Research design: In this national study, data collection was conducted using the Swedish Moral Distress Scale-Revised. The data analysis included descriptive statistics and non-parametric analysis of differences between groups. Participants and research context: Healthcare professionals at all paediatric onc
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Sever, Zoe, Luregn J. Schlapbach, Melanie Jessup, Shane George, and Amanda Harley. "Parental and healthcare professional concern in the diagnosis of paediatric sepsis: a protocol for a prospective multicentre observational study." BMJ Open 11, no. 9 (September 2021): e045910. http://dx.doi.org/10.1136/bmjopen-2020-045910.

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IntroductionPaediatric sepsis is a major contributor to morbidity and mortality worldwide. Assessing concern from parents and healthcare professionals to determine disease severity in a child evaluated for sepsis remains a field requiring further investigation. This study aims to determine the diagnostic accuracy of parental and healthcare professional concern in the diagnosis of children evaluated for sepsis.Methods and analysisThis prospective multicentre observational study will be conducted over a 24-month period in the paediatric emergency department (ED) at two tertiary Australian hospit
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Gilmore, Grace, Louise Kiernan, Eoin White, and Bernard Hartigan. "GROWING UP AND MOVING ON - INSIGHTS FROM THE HEALTH CARE PROFESSIONALS AND ADOLESCENTS’ PERSPECTIVES ON THE ISSUES AND BARRIERS IN THE TRANSFER OF CARE FROM PAEDIATRICS TO ADULT CARE." Proceedings of the Design Society 1 (July 27, 2021): 1677–86. http://dx.doi.org/10.1017/pds.2021.429.

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AbstractThe aim of this research is to report the finding from the perspective of the Healthcare Professionals and the adolescents and young adults (AYA's) to identify issues and barriers to a successful transition for adolescents with Juvenile Idiopathic Arthritis (JIA) as they move from Paediatric Healthcare setting to Adult Healthcare.Healthcare services that fail to adequately meet the needs of young people and their families at this time of considerable change may result in a decline in their health status that can have a negative long-term impact. Through a user-centered research design
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McLaughlan, Rebecca, and Alan Pert. "Briefing a children’s hospice: bridging the evidence gap and redefining value in contemporary healthcare design." Architectural Research Quarterly 24, no. 3 (September 2020): 265–76. http://dx.doi.org/10.1017/s1359135520000275.

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Increasingly, healthcare providers are asking for evidence based design solutions in the construction of new facilities. But where does a designer begin when there is no credible evidence to support the design process because it has yet to gain the attention of researchers? Within this paper we reflect on a university-practice partnership undertaken to provide a feasibility study for the future redevelopment of an eight-bed paediatric hospice in Australia. In embarking on this project, the project team assumed that a thorough literature review would furnish a body of research to rigorously inf
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Inhestern, Laura, Verena Paul, Jana Winzig, Stefan Rutkowski, Gabriele Escherich, and Corinna Bergelt. "Children with cancer and their families after active treatment: analyses of biopsychosocial needs and implications for healthcare – a study protocol." BMJ Open 12, no. 4 (April 2022): e055633. http://dx.doi.org/10.1136/bmjopen-2021-055633.

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IntroductionPatients and families affected by paediatric cancer experience psychosocial burden not only during active treatment but also during follow-up care. Use of health services during follow-up treatment should be organised according to patients’ and family members’ needs with regard to their physical and mental situation. This study aims (1) at analysing healthcare use (medical and psychosocial) and associated factors in follow-up care of paediatric cancer patients and (2) at investigating the psychosocial situation and support needs of children and their families during follow-up care.
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Wakawa, Usman Bukar, and Ismail Bin Said. "Natural Play Materials as Motivator for Health Restoration in Paediatric Ward of Nigerian Hospital." Advanced Materials Research 988 (July 2014): 407–10. http://dx.doi.org/10.4028/www.scientific.net/amr.988.407.

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In paediatric ward, children are exposed to new environment which can exposed them to psychological and emotional stress. The paediatric ward setting in developing countries like Nigeria, seldom provides an environment that has facilities for positive distraction. Understanding the importance of play activities as a result of natural play materials, will allow facilitators to provide space and materials for play activities in the ward. This study examines the effect of natural play materials as motivator in healthcare settings on the health restoration of paediatric patients. The study was con
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Curran, Janet A., Christine Cassidy, Andrea Bishop, Lori Wozney, Amy C. Plint, Krista Ritchie, Sharon E. Straus, et al. "Codesigning discharge communication interventions with healthcare providers, youth and parents for emergency practice settings: EDUCATE study protocol." BMJ Open 10, no. 5 (May 2020): e038314. http://dx.doi.org/10.1136/bmjopen-2020-038314.

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IntroductionDischarge communication is an important aspect of patient care but frequently has shortcomings in emergency departments (EDs). In a paediatric context, youth or parents with young children often leave the ED with minimal opportunity to ask questions or to ensure comprehension of important information. Strategies for improving discharge communication have primarily targeted patients and/or parents, although neither group has been engaged in intervention design or implementation. Furthermore, ED healthcare providers (HCPs), important actors in discharge communication practice, are ra
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Sharif, Muhammad, Aqsa ., Muhammad Soban Sharif, Hafiz Muhammad Arif, Ahmad Hassan, and Javaria . "Knowledge about Folic Acid Supplementation for Prevention of Neural Tube Defects among Gynecologist and Paediatric Surgeon." Pakistan Journal of Medical and Health Sciences 16, no. 2 (February 26, 2022): 179–81. http://dx.doi.org/10.53350/pjmhs22162179.

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Aim: To assess the knowledge of gynecologist & Paediatric Surgeon about the role of folic acid in prevention of neural tube defects. Study design: Cross Sectional Study Setting & duration of study: Department of Paediatirc Surgery, KEMU/Mayo Hospital Lahore from 1st November to 15 December. Methodology: After ethical approval data was collected on a questioner performa created on google doc regarding demographic variables, knowledge about neural tube defects, dose and timing of folic acid supplementation in prevention of neural tube birth defects. Results: 70% of the doctor who took pa
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Stark, Daniel, Sophie Thomas, David Dawson, Emily Talbot, Emily Bennett, and Arleta Starza-Smith. "Paediatric neuropsychological assessment: an analysis of parents’ perspectives." Social Care and Neurodisability 5, no. 1 (February 4, 2014): 41–50. http://dx.doi.org/10.1108/scn-07-2013-0027.

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Purpose – Modern healthcare services are commonly based on shared models of care, in which a strong emphasis is placed upon the views of those in receipt of services. The purpose of this paper is to examine the parents’ experiences of their child’s neuropsychological assessment. Design/methodology/approach – This was a mixed-methodology study employing both quantitative and qualitative measures. Findings – The questionnaire measure indicated a high overall level of satisfaction. Qualitative analysis of parental interviews provided a richer insight into the parental experience and indicated fou
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Greenfield, Katie, Simone Holley, Daniel E. Schoth, Emily Harrop, Richard F. Howard, Julie Bayliss, Lynda Brook, et al. "A mixed-methods systematic review and meta-analysis of barriers and facilitators to paediatric symptom management at end of life." Palliative Medicine 34, no. 6 (March 31, 2020): 689–707. http://dx.doi.org/10.1177/0269216320907065.

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Background: Symptom management for infants, children and young people at end of life is complex and challenging due to the range of conditions and differing care needs of individuals of different ages. A greater understanding of these challenges could inform the development of effective interventions. Aim: To investigate the barriers and facilitators experienced by patients, carers and healthcare professionals managing symptoms in infants, children and young people at end of life. Design: A mixed-methods systematic review and meta-analysis was undertaken (PROSPERO ID: CRD42019124797). Data sou
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Petersson, Christina, Karin Åkesson, Karina Huus, Karin Enskär, and Marie Golsäter. "To promote child involvement - healthcare professionals’ use of a health-related quality of life assessment tool during paediatric encounters." European Journal for Person Centered Healthcare 5, no. 1 (May 23, 2017): 26. http://dx.doi.org/10.5750/ejpch.v5i1.1201.

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Background, aims and objectives: Children and healthcare professionals should be provided with easy-to-use tools which could lead to actionable results. There is increasing interest in the use of patient-reported outcomes to aid management of individual care; therefore the use of health-related quality of life (HRQOL) assessments during consultations need to be studied. The aim of this study was to explore how healthcare professionals use a HRQOL assessment tool during paediatric encounters. Methods: A descriptive, explorative design with a qualitative approach based on video-recordings was ch
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Hirsch-Moverman, Yael, Michael Strauss, Gavin George, Anthony Mutiti, Arnold Mafukidze, Siphesihle Shongwe, Gloria Sisi Dube, Wafaa M. El Sadr, Joanne E. Mantell, and Andrea A. Howard. "Paediatric tuberculosis preventive treatment preferences among HIV-positive children, caregivers and healthcare providers in Eswatini: a discrete choice experiment." BMJ Open 11, no. 10 (October 2021): e048443. http://dx.doi.org/10.1136/bmjopen-2020-048443.

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ObjectiveIsoniazid preventive therapy initiation and completion rates are suboptimal among children. Shorter tuberculosis (TB) preventive treatment (TPT) regimens have demonstrated safety and efficacy in children and may improve adherence but are not widely used in high TB burden countries. Understanding preferences regarding TPT regimens’ characteristics and service delivery models is key to designing services to improve TPT initiation and completion rates. We examined paediatric TPT preferences in Eswatini, a high TB burden country.DesignWe conducted a sequential mixed-methods study utilisin
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Tomo, Andrea, and Stefania De Simone. "Using the job demands-resources approach to assess employee well-being in healthcare." Health Services Management Research 32, no. 2 (August 2, 2018): 58–68. http://dx.doi.org/10.1177/0951484818787687.

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The aim of this study is to advance a model to assess the overall level of well-being within healthcare organizations. Design/methodology/approach: The paper employs a job demands-resources approach by considering the multilevel model of employee well-being as theoretical framework, integrated with personal resources and health indicators. A specific case is built in the Italian context, with empirical data gathered from three Italian paediatric hospitals belonging to the same healthcare organizations. Findings: Results show that the job demand-resource model may well explain differences in th
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Holmström, Malin Rising, Marie Häggström, and Siv Söderberg. "Supporting young people with type 1 diabetes: experiences from healthcare professionals in Sweden." British Journal of Child Health 2, no. 3 (June 2, 2021): 117–24. http://dx.doi.org/10.12968/chhe.2021.2.3.117.

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Background Healthcare professionals in paediatric care face great demands to provide high-quality acute care and support for young people with long-term illnesses, such as type 1 diabetes. This study aims to describe healthcare professionals' experiences of supporting young people with type 1 diabetes in order to improve care. Methods A qualitative research design was used to conduct individual interviews with seven healthcare professionals. The interview transcripts were subjected to inductive qualitative thematic content analysis. Results Four themes were identified: strengthening young peop
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King, Carina, Nicholas Boyd, Isabeau Walker, Beatiwel Zadutsa, Abdullah H. Baqui, Salahuddin Ahmed, Mazharul Islam, et al. "Opportunities and barriers in paediatric pulse oximetry for pneumonia in low-resource clinical settings: a qualitative evaluation from Malawi and Bangladesh." BMJ Open 8, no. 1 (January 2018): e019177. http://dx.doi.org/10.1136/bmjopen-2017-019177.

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ObjectiveTo gain an understanding of what challenges pulse oximetry for paediatric pneumonia management poses, how it has changed service provision and what would improve this device for use across paediatric clinical settings in low-income countries.DesignFocus group discussions (FGDs), with purposive sampling and thematic analysis using a framework approach.SettingCommunity, front-line outpatient, and hospital outpatient and inpatient settings in Malawi and Bangladesh, which provide paediatric pneumonia care.ParticipantsHealthcare providers (HCPs) from Malawi and Bangladesh who had received
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McConnell, Tracey, David Scott, and Sam Porter. "Healthcare staff ’s experience in providing end-of-life care to children: A mixed-method review." Palliative Medicine 30, no. 10 (July 10, 2016): 905–19. http://dx.doi.org/10.1177/0269216316647611.

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Background: Staff who provide end-of-life care to children not only have to deal with their own sense of loss but also that of bereaved families. There is a dearth of knowledge on how they cope with these challenges. Aim: The aim of this review is to explore the experiences of healthcare professionals who provide end-of-life care to children in order to inform the development of interventions to support them, thereby improving the quality of paediatric care for both children and their families. Data sources: Searches included CINAHL, MEDLINE, Web of Science, EMBASE, PsychINFO and The Cochrane
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Norton-Westwood, Deborah, Alan Pearson, and Suzanne Robertson-Malt. "The ability of environmental healthcare design strategies To impact event related anxiety in paediatric patients: A comprehensive systematic review." JBI Database of Systematic Reviews and Implementation Reports 9, no. 44 (2011): 1828–82. http://dx.doi.org/10.11124/01938924-201109440-00001.

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Norton-Westwood, Deborah, Alan Pearson, and Suzanne Robertson-Malt. "The ability of environmental healthcare design strategies To impact event related anxiety in paediatric patients: A comprehensive systematic review." JBI Library of Systematic Reviews 9, no. 44 (2011): 1828–82. http://dx.doi.org/10.11124/jbisrir-2011-105.

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Lignou, Sapfo, Jenny Greenwood, Mark Sheehan, and Ingrid Wolfe. "Changes in Healthcare Provision During Covid-19 and Their Impact on Children With Chronic Illness: A Scoping Review." INQUIRY: The Journal of Health Care Organization, Provision, and Financing 59 (January 2022): 004695802210814. http://dx.doi.org/10.1177/00469580221081445.

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This paper provides an overview of the evidence around how the health systems and policy response to the Covid-19 pandemic affected children with long-term conditions in the UK. We conducted a scoping review guided by the PRISMA-ScR Checklist. The PubMed and PsycINFO databases (2019-August 2021) were searched and screened for papers (of any design) by 2 reviewers independently. The electronic database search was supplemented by manual searching. A total of 32 papers were identified, including studies on UK paediatric populations, studies on chronic illness in the UK, and international studies
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Ávila-Álvarez, Adriana, Jerónimo Pardo-Vázquez, Iván De-Rosende-Celeiro, Rita Jácome-Feijoo, and Gabriel Torres-Tobío. "Assessing the Outcomes of an Animal-Assisted Intervention in a Paediatric Day Hospital: Perceptions of Children and Parents." Animals 10, no. 10 (October 1, 2020): 1788. http://dx.doi.org/10.3390/ani10101788.

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There is a growing interest in the use of animal-assisted intervention (AAI) as a non-pharmacological strategy to improve child welfare in hospitals. However, the efficacy of implementation of programmes based on activities with dogs in a paediatric day hospital is not known. An intra-subject quasi-experimental longitudinal design was used for the purpose of assessing the feasibility of such an intervention, as well as exploring the perceptions of its outcomes by children and parents/guardians. A total of 55 children in outpatient care at a paediatric day hospital participated in an AAI sessio
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Dyson, Michele P., Kassi Shave, Allison Gates, Ricardo M. Fernandes, Shannon D. Scott, and Lisa Hartling. "Which outcomes are important to patients and families who have experienced paediatric acute respiratory illness? Findings from a mixed methods sequential exploratory study." BMJ Open 7, no. 12 (December 2017): e018199. http://dx.doi.org/10.1136/bmjopen-2017-018199.

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ObjectivesTo identify the outcome priorities of parents of children who had experienced an acute respiratory infection (ARI).DesignThis was a two-phase, mixed methods study with a sequential exploratory design. We used a cross-sectional quantitative web-based survey to elicit parents’ priorities for paediatric ARI. We then used a discussion moderated via Facebook to elucidate richer descriptions of parents’ priorities.SettingSurvey and discussion data were collected via the internet.Participants110 parents (90% women, median age 35 years, 92.7% urban dwelling, 94.5% with a postsecondary educat
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Marcinko, Josip, Julia Orkin, Eyal Cohen, Michelle Ho, Chitra Lalloo, Annie Jiwan, Adam McKillop, Yalinie Kulandaivelu, and Jennifer Stinson. "PAEDIATRIC PROJECT ECHO: EXPLORING THE EDUCATIONAL NEEDS OF ONTARIO HEALTHCARE PROVIDERS WITH INTEREST IN CARING FOR CHILDREN WITH MEDICAL COMPLEXITY." Paediatrics & Child Health 23, suppl_1 (May 18, 2018): e5-e6. http://dx.doi.org/10.1093/pch/pxy054.014.

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Abstract BACKGROUND Project ECHO® is an innovative, interactive model for medical education and healthcare delivery that expands access and capacity to provide evidence-informed care. This model virtually connects specialist interprofessional teams with community healthcare providers (HCPs). It aims to increase knowledge, build capacity, and ultimately, improve patient outcomes by bringing expertise to the community. This project focuses on the first paediatric implementation of Project ECHO for children with medical complexity. This is the first Project ECHO for this population. OBJECTIVES In
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Huang, I.-Anne, Yiing-Jenq Chou, I.-Jun Chou, Yu-Tung Huang, Jhen-Ling Huang, Tang-Her Jaing, Chang-Teng Wu, Hsiang-Ju Hsiao, and Nicole Huang. "Low acuity paediatric emergency visits under single-payer universal health insurance in Taiwan, 2000–2015: a population-based repeated cross-sectional design." BMJ Open 11, no. 1 (January 2021): e042084. http://dx.doi.org/10.1136/bmjopen-2020-042084.

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ObjectivesEmergency services utilisation is a critical policy concern. The paediatric population is the main user of emergency department (ED) services, and the main contributor to low acuity (LA) ED visits. We aimed to describe the trends of ED and LA ED visits under a comprehensive, universal health insurance programme in Taiwan, and to explore factors associating with potentially unnecessary ED utilisation.Design and settingWe used a population-based, repeated cross-sectional design to analyse the full year of 2000, 2005, 2010 and 2015 National Health Insurance claims data individually for
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Mello, Maria Júlia Gonçalves de, Maria de Fátima Pessoa Militão de Albuquerque, Heloísa Ramos Lacerda, Wayner Vieira de Souza, Jailson B. Correia, and Murilo Carlos Amorim de Britto. "Risk factors for healthcare-associated infection in pediatric intensive care units: a systematic review." Cadernos de Saúde Pública 25, suppl 3 (2009): S373—S391. http://dx.doi.org/10.1590/s0102-311x2009001500004.

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A systematic review of observational studies on risk factors for healthcare-associated infection in pediatric Intensive Care Units (ICU) was carried out. Studies indexed in MEDLINE, LILACS, Cochrane, BDENF, CAPES databases published in English, French, Spanish or Portuguese between 1987 and 2006 were included and cross references added. Key words for search were "cross infection" and "Pediatric Intensive Care Units" with others sub-terms included. 11 studies were selected from 419 originally found: four studies had healthcare-associated infection as the main outcome without a specific site; th
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Garland, Hilarie. "Impact of high flow nasal cannula implementation on the rate of intubation for bronchiolitis in Canada." Paediatrics & Child Health 23, suppl_1 (May 18, 2018): e32-e32. http://dx.doi.org/10.1093/pch/pxy054.082.

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Abstract BACKGROUND Bronchiolitis affects more than one-third of children less than two years of age and is the most common reason for admission to hospital in the first year of life. Hospitalization rates have been on the rise, leading to an increase in healthcare expense, morbidity and impact on families. Bronchiolitis can have a heavy burden on health care resources including intubation and Intensive Care Unit (ICU) admissions. Non-invasive respiratory support with high-flow nasal cannula (HFNC) is being used more routinely in paediatric centers, though evidence of efficacy in bronchiolitis
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Dharmaraj, Blossom, Catherine Diskin, Julia Orkin, Tanvi Agarwal, Arpita Parmar, Karima Karmali, and Jeremy Friedman. "88 Family Absence at the Bedside during the COVID-19 Pandemic." Paediatrics & Child Health 26, Supplement_1 (October 1, 2021): e64-e64. http://dx.doi.org/10.1093/pch/pxab061.070.

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Abstract Primary Subject area Hospital Paediatrics Background Child and family-centered care, a partnership approach to health care decision-making, is central to paediatric practice. To reduce transmission of SARS-CoV-2, healthcare institutions implemented policies to protect staff, patients and families. Family presence at the bedside was reduced to one caregiver, except in special circumstances requiring pre-approval by hospital leadership. Objectives We explored the impact of the COVID-19 pandemic on paediatric healthcare delivery, focusing on family presence. We describe the clinician's e
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Sengupta, Mitali, Satyajit Chakrabarti, and Indraneel Mukhopadhyay. "Waiting Time: The Expectations and Preferences of Patients in a Paediatric OPD." Journal of Health Management 21, no. 3 (September 2019): 427–42. http://dx.doi.org/10.1177/0972063419868586.

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Quality healthcare and satisfaction are gradually emerging as important areas, which need much attention. The factors of patient satisfaction have been identified under varied conditions globally. In the Indian context, one key patient satisfaction factor has been attributed to waiting time. Long waiting time has been one of the major reasons of patient dissatisfaction and assumes significance when associated with paediatric events. The following study has successfully identified key attributes, which are associated with long waiting times within paediatric outpatient department (OPD) settings
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Rizwan, Ayesha, and Shazeen Suleman. "115 An Evidence-Based Model of Care for Newcomer Children with Special Health Care Needs." Paediatrics & Child Health 25, Supplement_2 (August 2020): e47-e48. http://dx.doi.org/10.1093/pch/pxaa068.114.

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Abstract Background In 2018, Canada resettled the most refugees in the world, in response to the greatest migration crisis in global history. The refugee and resettlement experience at critical stages of children’s development places children at risk for a number of chronic illnesses. Newcomer children with chronic illnesses or special health care needs (NCSHCN) require services and care providers across many systems, but face greater barriers to healthcare access and are at an increased risk of unmet needs, yet no research has been done to identify best practices for this vulnerable populatio
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Ekenze, Sebastian O. "Funding paediatric surgery procedures in sub-Saharan Africa." Malawi Medical Journal 31, no. 3 (September 3, 2019): 233–39. http://dx.doi.org/10.4314/mmj.v31i3.13.

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BackgroundIn sub-Saharan Africa, there is a growing awareness of the burden of paediatric surgical diseases. This has highlighted the large discrepancy between the capacity to treat and the ability to afford treatment, and the effect of this problem on access to care. This review focuses on the sources and challenges of funding paediatric surgical procedures in sub-Saharan Africa. MethodsWe undertook a search for studies published between January 2007 and November 2016 that reported the specific funding of paediatric surgical procedures and were conducted in sub-Saharan Africa. Abstract screen
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Shannon, Meggie, Qendresa Sahiti, and Amy Ornstein. "30 Exploring the lived experience of non-offending caregivers in paediatric abusive head trauma." Paediatrics & Child Health 27, Supplement_3 (October 1, 2022): e15-e15. http://dx.doi.org/10.1093/pch/pxac100.029.

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Abstract Background Abusive head trauma (AHT) is the most common cause of death due to physical abuse and despite prevention efforts, the incidence remains largely unchanged. For survivors, there can be multiple adverse health consequences with lifetime costs in the range of millions per child. While studies have focused on both short- and long-term outcomes for children with AHT, little is known about the experience of their non-offending caregivers (NOCs). Objectives To explore the lived experience of NOCs in paediatric AHT, including their perspectives on paediatric practice and prevention
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Noman Ahmed, Mehatab Alam Khanzada, Nisar Ahmed Jandan, and Ashok Kumar Narsani. "Etiology, presentation and treatment of ocular trauma in paediatric population." Professional Medical Journal 29, no. 01 (December 31, 2021): 67–70. http://dx.doi.org/10.29309/tpmj/2022.29.01.6821.

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Objective: To determine the etiology, presentation and treatment of ocular trauma in paediatric population. Study Design: Cross Sectional Study. Setting: Institute of Ophthalmology, Liaquat University Hospital Jamshoro. Period: January, 2020 to December 2020. Material & Methods: Data was collected using a questionnaire having age, sex, cause of injury and time at presentation to the emergency. It also focused on which structures were damaged due to injury, investigations being used, and treatment performed. Results: In our study we found 80 cases of ocular trauma in pediatric population vi
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Ge, Yipeng, Radha Jetty, Dennis Newhook, Richard Webster, Amanda Mills, Victoria McCann, Sara Trincao-Batra, Katherine Baba, Stephanie Sutherland, and Deepti Reddy. "136 Characterizing the medical and social complexity of Inuit children, youth, and their families from Nunavut who access care at an urban tertiary level paediatric hospital – A retrospective chart review of an Inuit child health clinic." Paediatrics & Child Health 26, Supplement_1 (October 1, 2021): e95-e96. http://dx.doi.org/10.1093/pch/pxab061.108.

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Abstract Primary Subject area Social Paediatrics Background The Inuit Child Health Clinic is a consulting general pediatric outpatient clinic at an urban tertiary level paediatric designed to improve integration and coordination of care for Inuit children, youth, and their families from Nunavut. Characterizing medical and social complexity for this patient population will help to address existing gaps in health and social care, as well as contribute to the development of a culturally safe and sensitive determinants of health screening tool. Objectives To study and characterize the complexities
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Helmers, Andrew, Karen Dryden Palmer, and Rebecca A. Greenberg. "Moral distress: Developing strategies from experience." Nursing Ethics 27, no. 4 (April 2, 2020): 1147–56. http://dx.doi.org/10.1177/0969733020906593.

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Background Moral distress was first described by Jameton in 1984, and has been defined as distress experienced by an individual when they are unable to carry out what they believe to be the right course of action because of real or perceived constraints on that action. This complex phenomenon has been studied extensively among healthcare providers, and intensive care professionals in particular report high levels of moral distress. This distress has been associated with provider burnout and associated consequences such as job attrition, with potential impacts on patient and family care. There
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Maria Piras, Enrico, and Alberto Zanutto. "“One day it will be you who tells us doctors what to do!”. Exploring the “Personal” of PHR in paediatric diabetes management." Information Technology & People 27, no. 4 (October 28, 2014): 421–39. http://dx.doi.org/10.1108/itp-02-2013-0030.

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Purpose – Personal Health Record (PHR) systems make possible to integrate data from different sources and circulate them within the illness care and management network. The new arrangements prefigure a redefinition of the relations among healthcare practitioners, patients, and caregivers. The purpose of this paper is to consider the role and the meanings attributed to information when a technical artifact enables new forms of communication within the healthcare management network. Design/methodology/approach – The authors adopted a qualitative research design, conducting a pre-post analysis on
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Wray, Jo, and Geralyn Oldham. "Using parent-reported experience measures as quality improvement tools in paediatric cardiothoracic services: making it happen." International Journal for Quality in Health Care 32, no. 2 (March 2020): 140–48. http://dx.doi.org/10.1093/intqhc/mzaa001.

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Abstract Objective Patient experience is a core component of quality and service improvement. In the case of child health, it is parents who often report on their experiences of the child’s healthcare. However, these parent experiences are rarely used to drive change. Our aim was to develop and implement the systematic collection of parent experience data across a range of cardiothoracic services, using quality improvement methodology to implement change. Design Plan-Do-Study-Act methodology was used to develop parent-reported experience measures. Setting: Specialist children’s hospital. Parti
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