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1

Zuber, Mujeeb Shaikh. "Zuber's Ten Principles of Patient- Centric Patient Experience and a Framework." International Journal of Health Sciences and Pharmacy (IJHSP) 5, no. 1 (2021): 1–10. https://doi.org/10.5281/zenodo.4517634.

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A patient-centric patient experience is a key to high-quality healthcare service industry since; it has been observed that the patients with good experience add trust, cohesiveness with treating the healthcare team and a better continuity of care, which leads to a better outcome and excels patient experience. Objective: To develop a patient-centric patient experience framework. Method: This is a review of literature study and the data were collected with comprehensive searches in the online databases of goggle scholars and research gate. Conclusions: The study concluded with “ principles
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Agrawal, Amit Arvind. "Patient-centric periodontal research: A pioneering application of patient-reported outcome measures." World Journal of Clinical Cases 12, no. 18 (2024): 3281–84. http://dx.doi.org/10.12998/wjcc.v12.i18.3281.

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Conventional dentistry or periodontal research often ignores the human component in favor of clinical outcomes and biological causes. Clinical research is driven by the statistical significance of outcome parameters rather than the satisfaction level of the patient. In this context, patient-centric periodontal research (PCPR) is an approach that considers the patient´s feedback concerning their functional status, experience, clinical outcomes, and accessibility to their treatments. It is argued that data self-reported by the patient might have low reliability owing to the confounding effect of
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de Matta, Renato. "Patient-centric surgeons’ case mix problem." IISE Transactions on Healthcare Systems Engineering 12, no. 2 (2021): 111–29. http://dx.doi.org/10.1080/24725579.2021.1965676.

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Lamberti, Mary Jo, and Josephine Awatin. "Mapping the Landscape of Patient-centric Activities Within Clinical Research." Clinical Therapeutics 39, no. 11 (2017): 2196–202. http://dx.doi.org/10.1016/j.clinthera.2017.09.010.

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Greco, L., S. Engfer-Triebenach, and C. Conner Ziegler. "P2.02-01 ALKFusion and the Unmet Need of Patient-Centric Research." Journal of Thoracic Oncology 14, no. 10 (2019): S681—S682. http://dx.doi.org/10.1016/j.jtho.2019.08.1447.

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Ehirim, I. T., and O. C. Okeke. "Patient Centric Interactive Mobile Health (mHealth) Care Information Platform." Journal of Computer Science Review and Engineering 9, no. 1 (2025): 20–28. https://doi.org/10.5281/zenodo.15481873.

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<em>This study is focused on the development of a Patient-Centric Interactive Mobile Health (mHealth) Information Platform aimed at enhancing healthcare timely accessibility, patient engagement and communication, particularly in underserved and resource limited areas. This study eradicates the challenges of the current traditional health information system including limited access to healthcare information; patients struggle to access accurate, real time, and personalized medical information and Poor Communication Channels with health care provider. Object-Oriented Analysis and Design Methodol
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Koster, Remco A. "Have we got ‘patient-centric sampling’ right?" Bioanalysis 12, no. 13 (2020): 869–72. http://dx.doi.org/10.4155/bio-2020-0146.

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RA Koster currently works as Associate Director of Bioanalytical Science at the LC–MS/MS department at PRA Health Sciences in the Laboratory in Assen, The Netherlands. He is responsible for the LC–MS/MS analytical method development and leads a team of method development analysts and scientists. As global microsampling specialist within PRA he is interested in all developments regarding microsampling and aims to continuously improve microsampling techniques. He has been working in the field of bioanalysis for 19 years, in which he performed and supervised numerous analytical method development
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Adeogun, Ashiat, and Misa Faezipour. "Patient-Centric Paradigm: A Systems Thinking Approach to Enhance Healthcare." Healthcare 13, no. 3 (2025): 213. https://doi.org/10.3390/healthcare13030213.

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Objective: The study aims to investigate the impact of patient-centric approaches on patient health outcomes, identify key leverage points for enhancing patient-centered care, and evaluate the effectiveness of systems thinking in guiding healthcare transformations. Methods and Procedures: The research utilizes system dynamics methodology, combining qualitative and quantitative data with causal loop diagrams and simulation models. Using Vensim software, the study examines dynamic interactions, feedback loops, and the effects of patient-centric interventions. Sensitivity analysis assesses the im
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Prasanna Kumar C S. "An Exploratory Study on Enhancing Efficiency in Patient-Centric Clinical Trials Through Operational Management Strategies and its Impact on Research Outcome." Journal of Information Systems Engineering and Management 10, no. 31s (2025): 1032–47. https://doi.org/10.52783/jisem.v10i31s.5180.

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This exploratory study investigates the enhancement of efficiency in patient-centric clinical trials through the implementation of operational management strategies. As clinical trials increasingly prioritize patient engagement and outcomes, the need for effective operational frameworks becomes paramount. This research identifies key operational strategies, including streamlined patient recruitment processes, adaptive trial designs, and the integration of technology for real-time data collection and monitoring. By analyzing case studies and empirical data, the study evaluates the impact of the
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Saha, Saroni, Ramit Rahaman, Hiranmoy Mitra, Abantika Mondal, Sumana Roy, and Priyanka Ray. "A systematic review on patient centric buccal film." International Journal of Research in Pharmaceutical Sciences 16, no. 2 (2025): 31–44. https://doi.org/10.26452/ijrps.v16i2.4748.

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Buccal drug delivery devices present a promising alternative to systemic drug administration, especially for patients requiring rapid therapeutic effects. By bypassing hepatic first-pass metabolism, these systems promote direct absorption into the systemic circulation, thus enhancing bioavailability. This is particularly beneficial for patients who may have dysphagia, such as those in psychiatric, pediatric, or elderly populations. Recent advancements in formulation technology have led to the development of various mucoadhesive dosage forms, such as films, patches, and gels. These formulations
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Allegretti, Jessica R., Liliana G. Bordeianou, Oriana M. Damas, et al. "Challenges in IBD Research 2024: Pragmatic Clinical Research." Inflammatory Bowel Diseases 30, Supplement_2 (2024): S55—S66. http://dx.doi.org/10.1093/ibd/izae083.

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Abstract Pragmatic clinical research is 1 of the 5 focus areas of the Challenges in IBD Research 2024, a multidisciplinary effort by scientists, clinicians, patients, and funders to identify priorities for patient-centric research. This summary provides a comprehensive overview of current gaps in inflammatory bowel disease (IBD) clinical research and actionable approaches to address them. This review is focused on identifying research that is needed to achieve the best outcomes for patients in clinical practice. Research gaps include understanding the needs of understudied patient groups and a
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Ashkenazy, Rebecca, and Mary Elizabeth Peterson. "PAUSE: A Patient-Centric Tool to Support Patient-Provider Engagement on Menopause." Clinical Medicine Insights: Women's Health 11 (January 1, 2018): 1179562X1875746. http://dx.doi.org/10.1177/1179562x18757467.

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There are powerful demographic, political, and environmental trends shaping women’s health. Increases in life expectancy, literacy, and empowerment are fueling expansions in education and advocacy. Research and development focuses on women’s health and fertility across an expanded age spectrum. There is also a cultural emphasis on antiaging and aesthetics. In parallel, the digital revolution is changing how health care is accessed by and delivered to women. A women’s journey through menopause is at the crossroads of these transformations. Medical and social platforms encourage women to embrace
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Takeuchi, Hirofumi. "Contribution of Particle Design Research to the Development of Patient-Centric Dosage Forms." KONA Powder and Particle Journal 39 (January 10, 2022): 150–75. http://dx.doi.org/10.14356/kona.2022017.

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Bute, Jennifer J., S. Brantlee Broome, Jessica N. Marcus, Sandy Mikulcik, and Brian Vickery. "Development of a patient-centric food allergy research program: A model for action." Allergy 73, no. 7 (2018): 1551–53. http://dx.doi.org/10.1111/all.13452.

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Nembaware, Victoria, Nchangwi Syntia Munung, Alice Matimba, and Nicki Tiffin. "Patient-centric research in the time of COVID-19: conducting ethical COVID-19 research in Africa." BMJ Global Health 5, no. 8 (2020): e003035. http://dx.doi.org/10.1136/bmjgh-2020-003035.

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Fehlmann, Tara, Sarah Harvey, Parakkal Deepak, and Sirimon O'Charoen. "USING R TO ADVANCE PATIENT-CENTRIC RESEARCH IN THE STUDY OF A PROSPECTIVE ADULT RESEARCH COHORT." Inflammatory Bowel Diseases 29, Supplement_1 (2023): S23. http://dx.doi.org/10.1093/ibd/izac247.043.

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Abstract OBJECTIVE IBD Plexus is a data exchange platform that houses four cohorts, including The Study of a Prospective Adult Research Cohort with IBD (SPARC IBD). SPARC IBD is a multicentered, longitudinal cohort that follows patients through their standard of care. In IBD Plexus, patient reported data (eCRF) is linked with clinical and electronic medical record (EMR) data. Biospecimens are continuously collected and have been used to generate a myriad of molecular and biomarker data. To facilitate inflammatory bowel disease (IBD) research, we built an R package ‘ibdplexus’ (https://github.c
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Fehlmann, Tara, Sarah Harvey, Parakkal Deepak, and Sirimon O'Charoen. "USING R TO ADVANCE PATIENT-CENTRIC RESEARCH IN THE STUDY OF A PROSPECTIVE ADULT RESEARCH COHORT." Gastroenterology 164, no. 4 (2023): S29. http://dx.doi.org/10.1053/j.gastro.2023.03.060.

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Ibrahimova, N., J. Matero, O. Kotiranta, J. Thilaganathan, and P. O'Donohoe. "814 Accurate tracking of concomitant medication usage - a patient-centric, electronic solution." European Journal of Cancer 51 (September 2015): S137. http://dx.doi.org/10.1016/s0959-8049(16)30403-8.

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Kizito, Uzoma Ndugbu. "What is "Access to Care" in a Patient-Centric Care Model?" World Journal of Health and Medicine 2, no. 3 (2024): 7–15. https://doi.org/10.5281/zenodo.13573576.

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<strong>Abstract</strong> This study investigates the concept of "access to care" within a patient-centric care model, which prioritizes individualized, holistic, and collaborative healthcare. It explores how access involves the availability, affordability, and quality of healthcare services and how these dimensions align with patient-centered principles such as personalized care and shared decision-making. By providing blue ocean strategies to enhance access within this framework, the research highlights the importance of integrating patient needs and preferences into healthcare delivery to i
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Lakshmipriya Bachina, Dr.Anusha Kanagala. "An Adoption Of Artifical Intelligence(Ai) Technology For Patient- Centric Healthcare Solutions." Journal of Information Systems Engineering and Management 10, no. 29s (2025): 409–19. https://doi.org/10.52783/jisem.v10i29s.4491.

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The adoption of artificial intelligence (AI) in healthcare is still in its early stages. AI-powered diagnosis, decision support systems, predictive analytic tools, and remote patient monitoring devices can improve treatment plans, reduce costs, and enhance the patient’s experience. Objective: To analyze AI technology adoption and how healthcare professionals create personalized treatment journeys based on unique patient profiles by utilizing AI for more effective and specialized intervention. Method: The research obtained 399 peer-reviewed papers from the Scopus&amp; Web of Science database fu
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Hannon, Connor, Patrick L. Quinn, Stephanie Iacono, et al. "The impact of a pancreatic cancer multi-disciplinary clinic on patient-centric outcomes." Journal of Clinical Oncology 42, no. 3_suppl (2024): 641. http://dx.doi.org/10.1200/jco.2024.42.3_suppl.641.

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641 Background: A one-day multi-disciplinary clinic allows for a comprehensive evaluation of patients in a single-visit format. This study aims to evaluate the impact of a one-day pancreatic cancer multi-disciplinary clinic (PMDC) on patient-centric outcomes. Methods: Patients with pancreatic cancer who were seen at The Ohio State University PMDC from January 2021 to March 2023 were identified. Patient-centric outcomes were evaluated including time from diagnosis to first evaluation and treatment, number of supportive care referrals completed, and number of physical trips to the medical center
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Wilfong, Kadrin, Michael Beyer, Upal Kunal Basu Roy, et al. "Enhancing oncologist knowledge and skills through patient-centric medical education: A collaborative approach with LUNGevity." Journal of Clinical Oncology 42, no. 16_suppl (2024): e21007-e21007. http://dx.doi.org/10.1200/jco.2024.42.16_suppl.e21007.

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e21007 Background: Patient centricity in healthcare delivery has evolved, driven by accumulating evidence of improved outcomes through patient empowerment. PeerView partnered with LUNGevity Foundation to develop multiple educational initiatives with a patient-centered approach to lung cancer care. Methods: 4 live events and 4 online enduring activities were developed to improve the knowledge and skills of oncologists and other healthcare professionals (HCPs) involved in the management of patients with small cell and non–small cell lung cancer. These initiatives followed a patient-centric appro
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Dellon, Evan S., Colin Dai, Ellyn Kodroff, et al. "S3268 Development and Implementation of EGID Partners: A Global, Online, Patient-Centric Research Platform." American Journal of Gastroenterology 116, no. 1 (2021): S1347. http://dx.doi.org/10.14309/01.ajg.0000786604.91912.c7.

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Matrisian, Lynn M. "A Patient-centric Approach to Pancreatic Cancer Research: the Pancreatic Cancer Action Network Experience." Annals of Oncology 30 (October 2019): vi71. http://dx.doi.org/10.1093/annonc/mdz361.

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Powell, Sachia Stonefeld. "Survivor advocacy: I speak for those who can’t." International Journal of Gynecologic Cancer 29, Suppl 2 (2019): s22—s23. http://dx.doi.org/10.1136/ijgc-2019-000460.

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The 12th Biennial Ovarian Cancer Research Symposium held on September 13–15, 2018, brought together ovarian cancer scientists, clinicians, survivors, and advocates in Seattle, Washington. The Symposium featured a panel on 'The role of advocates in ovarian cancer research' aimed at facilitating discussion between scientists and patient advocates to enable a more patient-centric approach to ovarian cancer research. Here we describe learnings from panelists that included seasoned research scientists and patient advocates.
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Klein, Harry, Tali Mazor, Matthew Galvin, et al. "Abstract 1067: MatchMiner: An open-source AI precision medicine trial matching platform." Cancer Research 83, no. 7_Supplement (2023): 1067. http://dx.doi.org/10.1158/1538-7445.am2023-1067.

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Abstract As the number of precision medicine (PM) trials and patient genomic data has grown, it has become challenging for clinicians and trial staff to identify PM trial options for patients. Several trial matching software platforms have been developed to match genomic data from patients with PM trials, but these existing platforms are proprietary and are not easily accessible for adoption by institutions. At Dana-Farber Cancer Institute (DFCI), we have addressed this challenge by developing our own open-source institutional trial matching software, MatchMiner. MatchMiner algorithmically mat
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Journal, IJSREM. "Integrated Electronic Health Records (EHR) Platform: Enhancing Patient-Centric Healthcare Management." INTERANTIONAL JOURNAL OF SCIENTIFIC RESEARCH IN ENGINEERING AND MANAGEMENT 08, no. 03 (2024): 1–9. http://dx.doi.org/10.55041/ijsrem29122.

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In contemporary healthcare systems, digitizing medical records has become imperative to streamline and enhance patient care. This research paper explores the development and implementation of a website that integrates patients' medical records, aiming to provide a comprehensive and patient-centric approach to healthcare management. The platform seeks to facilitate seamless information exchange among healthcare providers, improve treatment decision- making, and empower patients in managing their health.
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De La Iglesia, B., S. Donell, V. Rayward-Smith, and J. Bettencourt-Silva. "On Creating a Patient-centric Database from Multiple Hospital Information Systems." Methods of Information in Medicine 51, no. 03 (2012): 210–20. http://dx.doi.org/10.3414/me10-01-0069.

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SummaryBackground: The information present in Hospital Information Systems (HIS) is heterogeneous and is used primarily by health practitioners to support and improve patient care. Conducting clinical research, data analyses or knowledge discovery projects using electronic patient data in secondary care centres relies on accurate data collection, which is often an ad-hoc process poorly described in the literature.Objectives: This paper aims at facilitating and expanding on the process of retrieving and collating patient-centric data from multiple HIS for the purpose of creating a research data
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Mani, Vinodhini, Prakash Manickam, Youseef Alotaibi, Saleh Alghamdi, and Osamah Ibrahim Khalaf. "Hyperledger Healthchain: Patient-Centric IPFS-Based Storage of Health Records." Electronics 10, no. 23 (2021): 3003. http://dx.doi.org/10.3390/electronics10233003.

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Blockchain-based electronic health system growth is hindered by privacy, confidentiality, and security. By protecting against them, this research aims to develop cybersecurity measurement approaches to ensure the security and privacy of patient information using blockchain technology in healthcare. Blockchains need huge resources to store big data. This paper presents an innovative solution, namely patient-centric healthcare data management (PCHDM). It comprises the following: (i) in an on-chain health record database, hashes of health records are stored as health record chains in Hyperledger
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Montgomery, Robert J., Aaron W. Gilkey, Joshua D. Kangas, Robert F. Murphy, and Arlette H. Uihlein. "Abstract 1121: Patient-centric Discovery by Active Learning (PeDAL) platform to predict drug response in a heterogeneous patient population." Cancer Research 83, no. 7_Supplement (2023): 1121. http://dx.doi.org/10.1158/1538-7445.am2023-1121.

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Abstract Even after thorough preclinical testing, only 5% of oncology drug candidates entering clinical trials ultimately get approved for use in patients. To find one drug that will be effective in the clinic, drug developers have to test 20 agents, 19 of which will ultimately prove ineffective. Such high attrition rates drive up the cost of treatment and delay getting effective drugs to the market. Here we describe the Patient-centric Discovery by Active Learning (PeDAL) platform and present results of a study that shows it can predict the effectiveness of a drug or a set of drugs in a patie
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Mutambik, Ibrahim, John Lee, Abdullah Almuqrin, and Zahyah H. Alharbi. "Identifying the Barriers to Acceptance of Blockchain-Based Patient-Centric Data Management Systems in Healthcare." Healthcare 12, no. 3 (2024): 345. http://dx.doi.org/10.3390/healthcare12030345.

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A number of recent studies have shown that wastage and inefficiency are a significant problem in all global healthcare systems. One initiative that could radically improve the operational efficiency of health systems is to make a paradigm shift in data ownership—that is, to transition such systems to a patient-centric model of data management by deploying blockchain technology. Such a development would not only make an economic impact, by radically cutting wastage, but would deliver significant social benefits by improving patient outcomes and satisfaction. However, a blockchain-based solution
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Goel, Niti, Denis O’Sullivan, Ingrid Steinkoenig, et al. "Tackling Patient Centricity: A Report from the GRAPPA 2016 Annual Meeting." Journal of Rheumatology 44, no. 5 (2017): 703–5. http://dx.doi.org/10.3899/jrheum.170152.

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In line with the global trend to have disease-related organizations be more patient-centric in their approach, the Group for Research and Assessment of Psoriasis and Psoriatic Arthritis (GRAPPA) has made substantial progress incorporating patient research partners (PRP) into psoriatic arthritis and psoriasis research. Herein we summarize the involvement of PRP at the GRAPPA 2016 annual meeting. Plans for future PRP engagement were also discussed.
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Parikh, Kinjal, Donna L. Topping, Saee Dhoble, et al. "Patient-centric care in bladder cancer: Virtual simulation to benefit clinical decision-making of oncologists." Journal of Clinical Oncology 39, no. 6_suppl (2021): 492. http://dx.doi.org/10.1200/jco.2021.39.6_suppl.492.

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492 Background: Immunotherapy (IO) utility in bladder cancer (UC) has expanded into multiple stages of disease. Employing IO optimally requires mastery of clinical trial data, patient eligibility criteria, and interpretation of biomarkers and determination of treatment sequencing. Given the nuanced therapeutic decision-making, education was developed in partnership between Medscape Oncology and Society for Immunotherapy of Cancer (SITC) to assist oncologists in improving their performance surrounding the management of patients with advanced UC. Methods: A virtual patient simulation (VPS) conti
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Karanja J., Otieno. "https://rojournals.org/understanding-patient-centric-approaches-to-medicinal-plant-use-in-diabetes/." Research Output Journal of Public Health and Medicine 5, no. 2 (2025): 99–106. https://doi.org/10.59298/rojphm/2025/5299106.

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The use of medicinal plants for managing type 2 diabetes mellitus (T2DM) is widespread across many cultures, particularly in resource-limited settings such as Belize. This study investigates patient-centric approaches to the use of traditional medicinal plants in diabetes care, employing a multi-method community-based research design. Using both qualitative methods such as in-depth interviews, focus group discussions, and observational ethnobotany and quantitative methods like free listing, this research explores the beliefs, preferences, and behavioral patterns of individuals living with T2DM
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Devadas, Rajeev Samuel. "Holochain-Based Electronic Health Records: A Segregated and Secure Approach." European Journal of Computer Science and Information Technology 13, no. 48 (2025): 126–41. https://doi.org/10.37745/ejcsit.2013/vol13n48126141.

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The management of electronic health records (EHRs) faces persistent challenges related to security vulnerabilities, interoperability limitations, and inadequate patient control. This paper explores Holochain as a transformative architecture for health information systems that addresses these issues through a distributed agent-centric approach. Unlike centralized EHR systems that create single points of failure or conventional blockchain implementations with scalability constraints, Holochain enables each participant to maintain their own immutable record chain while participating in a larger d
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Hamaguchi, A., D. Kondo, M. Yates, A. Pulfer, and D. Lambrelli. "RWD32 Hearing the Patient Voice in Japan – Utilisation of Patient-Reported Outcomes and Wearable Device Data for Patient-Centric Real-World Research." Value in Health 26, no. 12 (2023): S510. http://dx.doi.org/10.1016/j.jval.2023.09.2750.

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Jarke, Hannes, Steven Bourke, Robert Joyce, et al. "Introducing patient-centric electronic medicine leaflets in the European Union." Open Research Europe 3 (May 22, 2023): 84. http://dx.doi.org/10.12688/openreseurope.15764.1.

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Despite numerous advances in their content and structure over recent years, paper information leaflets for medicines are often hard to read for people with visual impairments, contain a lot of technical information, and people suffering from chronic conditions may find it challenging to identify all side-effects or dangers of taking a drug in their situation. Likewise, for people already taking different drugs, identifying contraindications may be time-intensive and easily overlooked, posing a risk for affected patients. Electronic product information (ePI), or eLeaflets, provide an opportunit
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Grewal, Anju, Gegal Pruthi, and Hemanthkumar Tamilchelva. "Are We Depleted of Research Questions in Regional Anaesthesia?" International Journal of Regional Anaesthesia 5, no. 1 (2024): 3–6. http://dx.doi.org/10.13107/ijra.2024.v05.i01.083.

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Regional anaesthesia has significantly evolved, shaping pain management in surgery. This article examines whether research question in this field are becoming exhausted, or if new avenues remain unexplored. Key trends include the integration of ultrasound guidance for precision, optimizing drug combinations for enhanced safety and efficacy, and focusing on patient-concerned outcomes to improve satisfaction and recovery. Tailored approaches for special populations and long-term safety studies are also crucial. Future research may explore innovations in drug delivery, novel local anaesthetic adj
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Craig, Jennifer. "Establishing a Clinical Research Collaboration: An SLP Perspective." Perspectives on Voice and Voice Disorders 24, no. 1 (2014): 15–20. http://dx.doi.org/10.1044/vvd24.1.15.

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Conducting research as a practicing clinician is difficult. Barriers include lack of time, education, and funding. Collaborating with other professionals is one way to facilitate research in the clinical setting. Practicing clinicians are exposed to real-world, clinically relevant, patient-centric problems on a daily basis. Refinement of these clinical questions makes excellent research questions, whose answers can guide clinical practice. Selection of a collaborative research team requires consideration toward interpersonal communication styles and each professional's knowledge, skills, and s
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Presant, Cary A., Kimlin Ashing, Sophia Yeung, et al. "Abstract 752: Increasing cancer patient acceptance of tobacco cessation by an innovative patient-centric personal pathway to success (PPS) program." Cancer Research 83, no. 7_Supplement (2023): 752. http://dx.doi.org/10.1158/1538-7445.am2023-752.

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Abstract Background: Participation in tobacco cessation programs by cancer patients (pts) is a challenge. We developed a cessation program Personal Pathway to Success (PPS) to increase diverse pts’ uptake of cessation services. Methods: City of Hope (COH) tobacco cessation program requires a tobacco use survey, and a Societal Determinants of Health Scale. 34 cessation services were offered to pts in PPS. All pts received 3 PPS services: motivational interview (MI) with a tobacco treatment specialist (TTS), a cessation educational video and brochure. Pts were classified as PPS+ (enhanced interv
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Seybold, Nancy, and Manju George. "Colontown University: Patient-created disease education." Journal of Clinical Oncology 40, no. 4_suppl (2022): 205. http://dx.doi.org/10.1200/jco.2022.40.4_suppl.205.

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205 Background: PALTOWN’s Facebook community, COLONTOWN, serves over 6,000 colorectal cancer (CRC) patients and caregivers. 81% of members are late stage patients (or late stage caregivers), and 85% are under the age of 60. They are highly motivated to find reliable information about treatment options as quickly as possible. Many arrive with little prior CRC education. Here we illustrate the creation of a patient-centric disease education program, COLONTOWN University (CTU), developed from the conversations and information journeys in COLONTOWN. Methods: CTU is a unique model for disseminating
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Li, Wei, Yunlan Zhou, Yanlin Deng, and Bee Luan Khoo. "Early Predictor Tool of Disease Using Label-Free Liquid Biopsy-Based Platforms for Patient-Centric Healthcare." Cancers 14, no. 3 (2022): 818. http://dx.doi.org/10.3390/cancers14030818.

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Cancer cells undergo phenotypic changes or mutations during treatment, making detecting protein-based or gene-based biomarkers challenging. Here, we used algorithmic analysis combined with patient-derived tumor models to derive an early prediction tool using patient-derived cell clusters from liquid biopsy (LIQBP) for cancer prognosis in a label-free manner. The LIQBP platform incorporated a customized microfluidic biochip that mimicked the tumor microenvironment to establish patient clusters, and extracted physical parameters from images of each sample, including size, thickness, roughness, a
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Skinner, Mark W., Gillian Hanson, Tao Xu, et al. "A Novel Methodology for Building Longitudinal, Patient-Centric Real World Datasets in Hemophilia A." Blood 138, Supplement 1 (2021): 594. http://dx.doi.org/10.1182/blood-2021-146160.

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Abstract Background: There are limited real-world data (RWD) available on the unmet needs of people with mild or moderate hemophilia A (PwHA). This population accounts for 40-52% of all PwHA, including nearly all women with hemophilia A (HA), and is under-represented in scientific literature (Michele, et al. Haemophilia 2014; Benson, et al. Blood Transfus 2018; Peyvandi, et al. Haemophilia 2019). Available claims data from payer databases are confined to billing codes, and lack key information on outcomes and disease characterization (e.g. severity, treatment response.) (Tyree, et al. Am J Med
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Khanna, Vinay, Ruchee Khanna, U. K. Chandrashekar, and Lena Ashok. "Employing patient-centric health education for the prevention of parasitic infections." Tropical Parasitology 14, no. 2 (2024): 95–99. http://dx.doi.org/10.4103/tp.tp_27_23.

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Abstract Background: Soil-transmitted infections such as Ascaris lumbricoides, Hookworm, Trichuris trichiura, and Strongyloides stercoralis are common in South India. Factors such as diet, sanitation, and living conditions play a role in the prevalence of helminthic diseases. Many individuals remain asymptomatic carriers. Timely intervention is essential to prevent these infections. Materials and Methods: This is a prospective, randomized intervention study that enrolled 52 participants, excluding children, all of whom had parasitic infections. A prevalidated questionnaire was given to assess
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Domadiya, Dipti H. "Revolutionizing Healthcare: Unleashing the Power of Machine Learning for Patient-Centric Solutions." Shodh Sari-An International Multidisciplinary Journal 03, no. 02 (2024): 64–76. http://dx.doi.org/10.59231/sari7688.

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The integration of Machine Learning (ML) in the healthcare sector signifies a ground breaking advancement with far-reaching implications. ML’s importance in healthcare cannot be overstated, as it brings forth a paradigm shift that transcends traditional models, offering innovative solutions tailored to the specific needs of patients. This research paper explores the transformative impact of Machine Learning (ML) on the healthcare sector, emphasizing a paradigm shift towards patient-centric solutions. As the forefront of a revolutionary transformation in healthcare, ML is examined across variou
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Mohsan, Syed Agha Hassnain, Abdul Razzaq, Shahbaz Ahmed Khan Ghayyur, Hend Khalid Alkahtani, Nouf Al-Kahtani, and Samih M. Mostafa. "Decentralized Patient-Centric Report and Medical Image Management System Based on Blockchain Technology and the Inter-Planetary File System." International Journal of Environmental Research and Public Health 19, no. 22 (2022): 14641. http://dx.doi.org/10.3390/ijerph192214641.

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Several academicians have been actively contributing to establishing a practical solution to storing and distributing medical images and test reports in the research domain of health care in recent years. Current procedures mainly rely on cloud-assisted centralized data centers, which raise maintenance expenditure, necessitate a large amount of storage space, and raise privacy concerns when exchanging data across a network. As a result, it is critically essential to provide a framework that allows for the efficient exchange and storage of large amounts of medical data in a secure setting. In t
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Kundavaram, RamMohan Reddy, Kawsher Rahman, Krishna Devarapu, et al. "Predictive Analytics and Generative AI for Optimizing Cer-vical and Breast Cancer Outcomes: A Data-Centric Approach." ABC Research Alert 6, no. 3 (2018): 214–23. http://dx.doi.org/10.18034/ra.v6i3.672.

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This research uses a data-centric approach to examine how predictive analytics and generative AI might improve cervical and breast cancer outcomes. The main goals are early identification, personalized therapy, patient monitoring, and health inequities. A thorough secondary data evaluation synthesizes information from numerous trials to assess these new clinical oncology methods. Significant results show that predictive analytics increases risk classification and therapy tailoring, while generative AI strengthens patient profiles for targeted treatments and dynamic monitoring. By detecting pat
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Viswanath Bandi and Rao O R S. "Role of Physician’s Personality on their Drug Prescription Behavior." International Journal of Research in Pharmaceutical Sciences 11, no. 4 (2020): 6954–61. http://dx.doi.org/10.26452/ijrps.v11i4.3700.

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Physicians Prescription behavior is the results of 4P's namely Product, Physicians, Promotion, and Patient's expectation. In today's world of evidence-based medicine with ever-growing demand in patient expectations, physician- Patient-centric managing a pathological condition is gaining acceptance from the normal disease management approach. Like all citizenry is Unique; similarly, physicians also possess a singular personality that responds differently even to an equivalent stimulus. Aiming for better patient care and Patient expectations, research work across the world has been administered
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Calabrese, Armando, Antonio D'Uffizi, Nathan Levialdi Ghiron, Luca Berloco, Elaheh Pourabbas, and Nathan Proudlove. "Design and development of a digital diagnostic clinical pathway: evidence from an action research study." European Journal of Innovation Management 27, no. 9 (2024): 94–126. http://dx.doi.org/10.1108/ejim-06-2023-0483.

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PurposeThe primary objective of this paper is to show a systematic and methodological approach for the digitalization of critical clinical pathways (CPs) within the healthcare domain.Design/methodology/approachThe methodology entails the integration of service design (SD) and action research (AR) methodologies, characterized by iterative phases that systematically alternate between action and reflective processes, fostering cycles of change and learning. Within this framework, stakeholders are engaged through semi-structured interviews, while the existing and envisioned processes are delineate
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Jahandideh, Sepideh, Elizabeth Kendall, Samantha Low-Choy, Kenneth Donald, and Rohan Jayasinghe. "The Process of Patient Engagement in Cardiac Rehabilitation: A Model-Centric Systematic Review." Behaviour Change 35, no. 4 (2018): 185–202. http://dx.doi.org/10.1017/bec.2018.20.

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AbstractThis study aimed to compile existing evidence about the proposed relationships among variables at three stages of the model of therapeutic engagement (MTE): patient intention to engage in cardiac rehabilitation (CR), CR initiation, and sustained engagement. This model has not been tested in any rehabilitation setting. Therefore, this systematic literature review is key to future research and application of MTE to predict and enhance patient engagement in CR. Model-centric systematic literature reviews have been conducted for each stage of the MTE. A coherent approach to understanding a
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