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Artykuły w czasopismach na temat „Support for carers”

Autor: Grafiati

Data publikacji: 4 czerwca 2021

Data aktualizacji: 20 lutego 2023

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Micklewright, Kerry, and Morag Farquhar. "58 Support needs of informal carers of patients with copd and implications for improving carer support." BMJ Supportive & Palliative Care 8, no. 3 (September 2018): 382.2–382. http://dx.doi.org/10.1136/bmjspcare-2018-mariecurie.58.

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IntroductionInformal carers play a key supportive role for patients with chronic obstructive pulmonary disease (COPD) but with considerable impact on their health and wellbeing.1 2 The literature on support needs of these carers has not been fully synthesised and our knowledge of the comprehensiveness of the Carer Support Needs Assessment Tool3 (CSNAT) for carers of patients with COPD is limited.AimTo identify relevant carer support needs from the published literature in order to explore the comprehensiveness of the CSNAT for carers of patients with COPD.MethodsEnglish language studies publish

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Diminic, S., E. Hielscher, M. G. Harris, Y. Y. Lee, J. Kealton, and H. A. Whiteford. "A profile of Australian mental health carers, their caring role and service needs: results from the 2012 Survey of Disability, Ageing and Carers." Epidemiology and Psychiatric Sciences 28, no. 6 (August 31, 2018): 670–81. http://dx.doi.org/10.1017/s2045796018000446.

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AbstractAimsPlanning mental health carer services requires information about the number of carers, their characteristics, service use and unmet support needs. Available Australian estimates vary widely due to different definitions of mental illness and the types of carers included. This study aimed to provide a detailed profile of Australian mental health carers using a nationally representative household survey.MethodsThe number of mental health carers, characteristics of carers and their care recipients, caring hours and tasks provided, service use and unmet service needs were derived from t

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Ewing, Gail, Sarah Croke, Christine Rowland, and Gunn Grande. "14 Enabling tailored and coordinated support for family carers of people with motor neurone disease through adaptation of a carer support needs assessment tool (CSNAT) intervention." BMJ Supportive & Palliative Care 8, no. 3 (September 2018): 365.1–365. http://dx.doi.org/10.1136/bmjspcare-2018-mariecurie.14.

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IntroductionFamily carers provide vital support for people with Motor Neurone Disease (MND) but caregiving can be very physically and mentally demanding. It is therefore crucial to ensure healthcare practitioners (HCPs) can provide timely support to carers fitting their individual needs. Currently there are no UK interventions for this.AimTo adapt an existing carer support needs assessment tool (CSNAT) intervention to support the needs and situation of family carers of people with MND.MethodsStages:Focus groups and interviews with 33 carers (14 bereaved 19 current carers) to capture support ne

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Attiwell, T., and L. Forster. "Carers support." BMJ Supportive & Palliative Care 1, no. 2 (September 1, 2011): 233. http://dx.doi.org/10.1136/bmjspcare-2011-000105.86.

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Swan, Susan, Richard Meade, and Emma Carduff. "10 Timely identification and support for carers of people at the end of life through the adult carer support plan: triangulating three data sources." BMJ Supportive & Palliative Care 8, no. 3 (September 2018): 363.2–363. http://dx.doi.org/10.1136/bmjspcare-2018-mariecurie.10.

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IntroductionThe Carers (Scotland) Act (2016) places a duty on local authorities to prepare an Adult Carer Support Plan (ACSP) and Young Carer Statement for any carer who requests one or is identified as such. From 2019 this will be assisted by a fast track process for carers of people in their last six months of life. Timely identification of unpaid carers assessment and support can; reduce the overwhelming pressure of caregiving increase competence confidence satisfaction and the quality of the care given.AimTo provide evidence on the supportive needs of carers to inform recommendations regar

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McConachy, Diana, and Karalyn McDonald. "Issues for Primary, Informal, Home-based Carers of People Living with AIDS." Australian Journal of Primary Health 5, no. 1 (1999): 30. http://dx.doi.org/10.1071/py99004.

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Central to the Australian national strategic response to HIV/AIDS is the need for training and support for volunteer carers of people with HIV/AIDS. However, the role of primary, informal, home-based carers of people with AIDS (PWA) is not clearly defined and the research about carers undertaken in Australia has not specifically looked at this group. The aim of the study described was to examine the experiences of primary, home-based carers of people with AIDS in order to inform policy and program development. Data were collected from 47 carers in New South Wales and Victoria between August an

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Visa, Bharat, and Carol Harvey. "Mental health carers’ experiences of an Australian Carer Peer Support program: Tailoring supports to carers’ needs." Health & Social Care in the Community 27, no. 3 (December 13, 2018): 729–39. http://dx.doi.org/10.1111/hsc.12689.

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Lara, Arsuffi, and Chemerynska Nataliya. "Families, carers and friends support group in a forensic inpatient mental health service: A new format of carer support." Forensic Update 1, no. 132 (December 2019): 4–10. http://dx.doi.org/10.53841/bpsfu.2019.1.132.4.

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The benefits of involving carers who support those with a severe mental illness have long been recognised in improving patients’ outcomes and reducing the cost of care. Despite various mental health standards requiring services to offer support to carers and involve them in patients’ care and treatment, not much guidance is offered on how this support and involvement can be implemented, especially in forensic inpatient services, where carers are reported to experience elevated stress levels compared to non-forensic carers. This paper outlines a new format for delivering carer-centred, co-produ

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Ewing, Gail, and Gunn Grande. "51 How do family carers feature in end of life care policy? scoping review and narrative summary of uk national policy/guidelines on implementing carer assessment and support." BMJ Supportive & Palliative Care 8, no. 3 (September 2018): 379.1–379. http://dx.doi.org/10.1136/bmjspcare-2018-mariecurie.51.

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BackgroundThe ethos of end-of-life-care (EOLC) embraces both carers and patients. For over a decade UK healthcare policy has acknowledged that carers’ needs should be assessed and addressed in EOLC.AimTo review national policy/guidelines on carers and EOLC examine how policy addresses carer assessment/support and its implementation in practice.MethodsScoping review through searches of public body websites (e.g., Department of Health and NICE); provider organisations (e.g., National Council for Palliative Care Hospice UK) and charities (e.g., Carers UK Carers Trust) personal sources (researcher

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Bell, Lorraine, Kate Anderson, Afaf Girgis, Samar Aoun, Joan Cunningham, Claire E. Wakefield, Shaouli Shahid, et al. "“We Have to Be Strong Ourselves”: Exploring the Support Needs of Informal Carers of Aboriginal and Torres Strait Islander People with Cancer." International Journal of Environmental Research and Public Health 18, no. 14 (July 7, 2021): 7281. http://dx.doi.org/10.3390/ijerph18147281.

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Informal carers provide an important role in supporting people with cancer. Aboriginal and Torres Strait Islander peoples experience higher cancer mortality than other Australians. To date, very little is known about the support needs of carers of Aboriginal and Torres Strait Islander adults with cancer. This article explored these needs through a qualitative study. Twenty-two semi-structured qualitative interviews and one focus group were conducted with carers of Aboriginal and Torres Strait Islander adults with cancer (n = 12) and Aboriginal and Torres Strait Islander cancer survivors (n = 1

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Ewing, Gail, Lynn Austin, Debra Jones, and Gunn Grande. "Who cares for the carers at hospital discharge at the end of life? A qualitative study of current practice in discharge planning and the potential value of using The Carer Support Needs Assessment Tool (CSNAT) Approach." Palliative Medicine 32, no. 5 (February 28, 2018): 939–49. http://dx.doi.org/10.1177/0269216318756259.

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Background: Carer factors prevent patients achieving timely and appropriate hospital discharge. There is a lack of research into interventions to support carers at hospital discharge. Aim: To explore whether and how family carers are currently supported during patient discharge at end of life; to assess perceived benefits, acceptability and feasibility of using The Carer Support Needs Assessment Tool (CSNAT) Approach in the hospital setting to support carers. Design: Qualitative. Setting/participants: Three National Health Service Trusts in England: focus groups with 40 hospital and community-

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Teahan, Áine, Patricia Carney, Suzanne Cahill, and Eamon O’Shea. "Establishing priorities for psychosocial supports and services among family carers of people with dementia in Ireland." Dementia 20, no. 6 (January 9, 2021): 2109–32. http://dx.doi.org/10.1177/1471301220984907.

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Introduction Many family carers, particularly those caring for people with dementia, report significant personal and social challenges associated with caring. The aim of this article is to identify the range of challenges experienced by family carers of people with dementia and to ascertain their preferences for various supports and services that address those challenges. Method Three modified nominal group technique (NGT) focus groups were conducted with family carers of people with dementia. The NGT groups were conducted with 17 participants in two stages, focusing separately on personal and

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Micklewright, Kerry, and Morag Farquhar. "Does the carer support needs assessment tool cover the established support needs of carers of patients with chronic obstructive pulmonary disease? A systematic literature search and narrative review." Palliative Medicine 34, no. 10 (July 16, 2020): 1305–15. http://dx.doi.org/10.1177/0269216320939243.

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Background: Informal carers play a key supportive role for patients with chronic obstructive pulmonary disease. However, caring can have a considerable impact on health and wellbeing. Carers may have unidentified support needs that could be a target for intervention. Literature on the support needs of informal carers has not been fully synthesised, and our knowledge of the comprehensiveness of the Carer Support Needs Assessment Tool for these individuals is limited. Aim: To explore whether the Carer Support Needs Assessment Tool covers the support needs of carers of patients with chronic obstr

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Darley, Sarah, Sarah Knowles, Kate Woodward-Nutt, Claire Mitchell, Gunn Grande, Gail Ewing, Sarah Rhodes, Audrey Bowen, and Emma Patchwood. "Challenges implementing a carer support intervention within a national stroke organisation: findings from the process evaluation of the OSCARSS trial." BMJ Open 11, no. 1 (January 2021): e038129. http://dx.doi.org/10.1136/bmjopen-2020-038129.

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Objectives To examine the implementation of an intervention to support informal caregivers and to help understand findings from the Organising Support for Carers of Stroke Survivors (OSCARSS) cluster randomised controlled trial (cRCT). Design Longitudinal process evaluation using mixed methods. Normalisation process theory informed data collection and provided a sensitising framework for analysis. Setting Specialist stroke support services delivered primarily in the homes of informal carers of stroke survivors. Participants OSCARSS cRCT participants including carers, staff, managers and senior

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van Haeften-van Dijk, A. Marijke, Franka J. M. Meiland, Bart J. J. Hattink, Ton J. E. M. Bakker, and Rose-Marie Dröes. "Community day care with carer support versus usual nursing home-based day care: effects on needs, behavior, mood, and quality of life of people with dementia." International Psychogeriatrics 28, no. 4 (December 7, 2015): 631–45. http://dx.doi.org/10.1017/s1041610215001921.

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ABSTRACTBackground:Several studies have shown that the combined community-based Meeting Centres Support Programme (MCSP) for people with mild to moderate dementia and their carers were more effective in reducing behavior and mood problems of people with dementia than traditional nursing home-based (NH) day care. We therefore investigated in this study whether community-based (CO) psychogeriatric day care for people with mild to severe dementia combined with carer support (in accordance with the MCSP), is more effective than regular NH day care.Methods:A pre-test–post-test control group design

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Hughes, Rhidian. "Support for carers." British Journal of Healthcare Assistants 3, no. 11 (November 2009): 566. http://dx.doi.org/10.12968/bjha.2009.3.11.45192.

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Ramsay, N. "Carers need support." BMJ 309, no. 6960 (October 15, 1994): 1017–18. http://dx.doi.org/10.1136/bmj.309.6960.1017d.

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ORPIN, PETER, CHRISTINE STIRLING, SHARON HETHERINGTON, and ANDREW ROBINSON. "Rural dementia carers: formal and informal sources of support." Ageing and Society 34, no. 2 (August 15, 2012): 185–208. http://dx.doi.org/10.1017/s0144686x12000827.

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ABSTRACTPrimary carers provide much of the day-to-day care for community-dwelling people living with dementia (PWD). Maintaining that contribution will require a more in-depth understanding of the primary carer role and the support needs that flow from that role. This study explored patterns of formal and informal support utilisation by people caring for a PWD in a rural-regional context. In-depth semi-structured interviews were conducted with 18 rural primary carers of a PWD and thematically analysed. Participant primary carers' almost total commitment to, and absorption in their role and the

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Ewing, Gail, Sarah Croke, Christine Rowland, and Gunn Grande. "Suitability and acceptability of the Carer Support Needs Assessment Tool (CSNAT) for the assessment of carers of people with MND: a qualitative study." BMJ Open 10, no. 12 (December 2020): e039031. http://dx.doi.org/10.1136/bmjopen-2020-039031.

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ObjectivesMotor neurone disease (MND) is a progressive, life-limiting illness. Caregiving impacts greatly on family carers with few supportive interventions for carers. We report Stages 1 and 2 of a study to: (1) explore experiences of MND caregiving and use carer-identified support needs to determine suitability and acceptability of the Carer Support Needs Assessment Tool (CSNAT), (2) adapt the CSNAT as necessary for comprehensive assessment and support of MND carers, prior to (Stage 3) feasibility testing.DesignQualitative: focus groups, interviews and carer workshops.SettingThree UK MND spe

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Fitzgerald, Leslie R., Michael Bauer, Susan H. Koch, and Susan J. King. "Hospital discharge: recommendations for performance improvement for family carers of people with dementia." Australian Health Review 35, no. 3 (2011): 364. http://dx.doi.org/10.1071/ah09811.

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Background. It is acknowledge that discharge planning benefits both consumers and hospitals. What is not widely understood is the experience that the family carer of a person with a dementia has and whether the hospitals meet their in-hospital and post-hospital needs. Objective. To explore whether metropolitan and rural hospital discharge practices meet the needs of the family carer of a person with dementia. Results. Although this and other research indicates that a continuum of care model is beneficial to family caregivers, no evidence has been identified that family carers currently experie

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Spencer, Sarah, and Deborah Swinglehurst. "Supporting carers." InnovAiT: Education and inspiration for general practice 13, no. 4 (February 3, 2020): 213–17. http://dx.doi.org/10.1177/1755738019898499.

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The number of individuals who provide unpaid care across the UK is rising: it currently stands at approximately 8 800 000 people. Some carers can experience a cycle of financial difficulty, isolation, physical and mental ill health. Recommendations for support of this marginalised group have become enshrined in national health policy and GPs have a pivotal role in delivering this help. Involving carers in management plans and providing appropriate support can improve a carer’s wellbeing, and reduce avoidable hospital admissions and residential placements, thus, enabling people to live independ

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O'Donnell, Deirdre. "65 The Health and Well-Being of Family Carers of Older People: An Exploratory Cross-Sectional Analysis." Age and Ageing 48, Supplement_3 (September 2019): iii1—iii16. http://dx.doi.org/10.1093/ageing/afz102.14.

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Abstract Background Family carers are critical to supporting older people to live well in their homes and demand for care at home is projected to increase dramatically into the future.1 The Irish state and health system, therefore, are dependent upon the supply of family care now and into the future. The health and well-being of older family carers, and carers providing care to older people in the community, is under-researched. Methods A combination of online and postal survey distribution achieved a convenience sample (N=1102) of carers from the membership and network reach of Ireland’s larg

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Graham, Candida R., Sube Banerjee, and Randeep S. Gill. "Using postal questionnaires to identify carer depression prior to initial patient contact." Psychiatric Bulletin 33, no. 5 (May 2009): 169–71. http://dx.doi.org/10.1192/pb.bp.108.020982.

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Aims and MethodTo assess whether postal questionnaires, used as a local initiative, were useful in identifying carer depression allowing early support for community-dwelling carers of older adults with mental health needs. the Geriatric Depression Scale and a questionnaire collecting information on the carer's circumstances were sent to carers of consecutive patients routinely referred to a community mental health team for older adults in south London. Rates of carer depression between postal questionnaire responders and non-responders were compared.ResultsThe response rate to the postal quest

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Cawley, Rosanne, Kathryn Dykes, Gill Drummond, and Ruth Watson. "The carers innovation project: Supporting inpatient dementia caregivers." FPOP Bulletin: Psychology of Older People 1, no. 130 (April 2015): 30–36. http://dx.doi.org/10.53841/bpsfpop.2015.1.130.30.

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The carers innovation project aimed to provide individualised support for inpatient carers to Greater Manchester West Mental Health NHS Foundation Trust’s (GMW) dementia care wards. If a carer ‘opted in’ to this service, they were offered either face-to-face meetings on the ward, home visits or telephone support with an assistant psychologist. Between May 2013 and December 2013 97 carers were referred. Of those carers contacted and offered the service, 78 per cent accepted support. The common areas of support wanted were: (i) psychological and emotional support; (ii) support and information ab

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Arber, Sara, G. Nigel Gilbert, and Maria Evandrou. "Gender, Household Composition and Receipt of Domiciliary Services by Elderly Disabled People." Journal of Social Policy 17, no. 2 (April 1988): 153–75. http://dx.doi.org/10.1017/s0047279400016615.

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ABSTRACTUsing data from the 1980 General Household Survey, differences in the provision of statutory domiciliary services to disabled elderly people are explored. Domiciliary services vary in their degree of ‘substitutability’, that is, in the extent to which the care may be performed either by state services or by other members of the elderly person's household. Domestic support services are substitutable by any available carer; personal health and hygiene services are partially substitutable depending on the relationship between the carer and the cared for; and medical services are not subst

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Gresswell, I., L. Lally, D. Adamis, and G. M. McCarthy. "Widening the net: exploring social determinants of burden of informal carers." Irish Journal of Psychological Medicine 35, no. 1 (August 23, 2017): 43–51. http://dx.doi.org/10.1017/ipm.2017.36.

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ObjectivesProviding care for a person with dementia or other chronic illness at home often places stress on the primary caregiver. In an Irish population, ~67% of carers reported experiencing extreme physical or mental tiredness. This study aimed to identify factors that influence carer burden and identify the sub-populations of carers who are most susceptible to burden.MethodsConsecutive carers referred to a local carers’ support organisation completed the following measurements: the Neuropsychiatric Inventory, Zarit Burden Interview, Social Network Index, General Health Questionnaire, Short

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Temple, Jeromey B., and Briony Dow. "The unmet support needs of carers of older Australians: prevalence and mental health." International Psychogeriatrics 30, no. 12 (May 25, 2018): 1849–60. http://dx.doi.org/10.1017/s104161021800042x.

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ABSTRACTBackground:Population aging places greater demands on the supply of informal carers. The aims of this study were to examine (1) the types of unmet support needs of carers of older Australians and (2) the association of unmet needs with mental health.Methods:Utilizing new data from the 2015 Australian Bureau of Statistics (ABS) Survey of Disability, Ageing and Carers, we calculated the prevalence of carers experiencing specific and multiple unmet needs for support, using single and multiple item measures. Logistic regression models were fitted to examine the association between unmet ne

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Gridley, Kate, Fiona Aspinal, Gillian Parker, Helen Weatherly, Rita Faria, Francesco Longo, and Bernard van den Berg. "Specialist nursing support for unpaid carers of people with dementia: a mixed-methods feasibility study." Health Services and Delivery Research 7, no. 12 (March 2019): 1–198. http://dx.doi.org/10.3310/hsdr07120.

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Background Unpaid carers are the mainstay of support for people with dementia. Admiral Nursing (AN) is the only specialist nursing service that specifically focuses on supporting such carers, but evidence of its effectiveness, costs and relationships with other health and social care services is limited. This project aimed to address this gap and explore the feasibility of a full-scale formal evaluation. Objectives To explore the relationships between characteristics of carers and people with dementia, service type and input and outcomes; to develop and test data collection methods for subsequ

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Roy, Dionne, and Mark Gillespie. "Who cares for the carers? A student's experience of providing carer support and education." British Journal of Nursing 20, no. 8 (April 27, 2011): 484–88. http://dx.doi.org/10.12968/bjon.2011.20.8.484.

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Ewing, Gail, and Gunn Grande. "5 What needs to change to better support carers at end of life? a multi-perspective mixed methods study to identify recommendations for change in organisational structures and processes." BMJ Supportive & Palliative Care 8, no. 3 (September 2018): 361.2–362. http://dx.doi.org/10.1136/bmjspcare-2018-mariecurie.5.

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IntroductionCarers play a vital role in supporting patients at end-of-life (EOL). EOL care policy promotes comprehensive person-centred assessment/support for carers but without a clear implementation strategy this will only remain an aspiration.AimTo develop recommendations for organisational structures/processes required for implementation of comprehensive person-centred comprehensive assessment/support for carers in EOL practice.MethodsSecondary analysis of qualitative data on implementation in 36 services to identify factors facilitating/hindering implementationExpert consultation (focus g

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Perera, Sharnel Miriam, Clare O’Callaghan, Anna Ugalde, Olinda Santin, Cassandra Beer, G. Prue, Katherine Lane, Gerard G. Hanna, and Penelope Schofield. "Codesigning a supportive online resource for Australian cancer carers: a thematic analysis of informal carers’ and healthcare professionals’ perspectives about carers’ responsibilities and content needs." BMJ Open 11, no. 10 (October 2021): e055026. http://dx.doi.org/10.1136/bmjopen-2021-055026.

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ObjectiveTo gather preliminary qualitative data that will assist in the codesign and development of a new informational and supportive website to assist informal cancer carers in Australia.Design and settingUtilising a previously tested codesign process, informal carers’ experiences and perspectives, including those of healthcare professionals’, were examined via focus groups and/or interviews. Data were analysed via thematic analysis.ParticipantsRural (n=9) and urban (n=11) carers’, and healthcare professionals’ (n=8) perspectives were collected. Carers participated in a focus group (n=9) or

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Spiers, Gemma F., Jennifer Liddle, Tafadzwa Patience Kunonga, Ishbel Orla Whitehead, Fiona Beyer, Daniel Stow, Claire Welsh, Sheena E. Ramsay, Dawn Craig, and Barbara Hanratty. "What are the consequences of caring for older people and what interventions are effective for supporting unpaid carers? A rapid review of systematic reviews." BMJ Open 11, no. 9 (September 2021): e046187. http://dx.doi.org/10.1136/bmjopen-2020-046187.

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ObjectivesTo identify and map evidence about the consequences of unpaid caring for all carers of older people, and effective interventions to support this carer population.DesignA rapid review of systematic reviews, focused on the consequences for carers of unpaid caring for older people, and interventions to support this heterogeneous group of carers. Reviews of carers of all ages were eligible, with any outcome measures relating to carers’ health, and social and financial well-being. Searches were conducted in MEDLINE, PsycInfo and Epistemonikos (January 2000 to January 2020). Records were s

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Khan-Shah, Fatima. "Support for unpaid carers: the working carers’ passport." British Journal of Community Nursing 25, no. 3 (March 2, 2020): 144–47. http://dx.doi.org/10.12968/bjcn.2020.25.3.144.

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Julieta, Camino, Khondoker Mizanur, Kishita Naoko, and Mioshi Eneida. "537 - Reported and observed task performance in dementia and the role of the carer management style." International Psychogeriatrics 33, S1 (October 2021): 81. http://dx.doi.org/10.1017/s1041610221002325.

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Background:Consistency between carers’ report of the people with dementia’s (PwD) performance of activities of daily living (ADLs) and observed performance has been an important topic in the literature, but most studies have investigated whether carer’s burden and depression affect this report.Objectives:To (1) investigate if carer’s report of PwD’s performance of ADLs is consistent with PwD’s observed performance; and to (2) evaluate if carer management style has an effect on this discrepancy.Methods:Sixty-four PwD completed a performance-based ADL assessment (Assessment of Motor and Process

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Larkin, Mary, and Alisoun Milne. "Carers and Empowerment in the UK: A Critical Reflection." Social Policy and Society 13, no. 1 (June 18, 2013): 25–38. http://dx.doi.org/10.1017/s1474746413000262.

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This article provides a critical reflection on carer empowerment in the UK, an issue which has received limited attention in policy and research. The arena is characterised by considerable conceptual confusion around key terminology, carer, care and caring, and by limited understanding of the meaning and outcomes of carer empowerment. Despite increased national acknowledgment of carers, a politically active carers' movement and a number of policies intended to enhance the recognition and rights of carers, many carers remain invisible and receive little support from services, to the detriment o

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Turley, Natalie, and Helen Sothcott. "Mutual support for carers." Elderly Care 5, no. 6 (November 1993): 28–29. http://dx.doi.org/10.7748/eldc.5.6.28.s31.

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Greenwood, Nan, Ruth Habibi, Ann Mackenzie, Vari Drennan, and Nicky Easton. "Peer Support for Carers." American Journal of Alzheimer's Disease & Other Dementiasr 28, no. 6 (June 30, 2013): 617–26. http://dx.doi.org/10.1177/1533317513494449.

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Payne, Sheila, and Hazel Morbey. "Support for family carers." Nursing Standard 28, no. 26 (February 26, 2014): 57. http://dx.doi.org/10.7748/ns2014.02.28.26.57.s53.

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Jackson, Graham A., and Debbie Browne. "Supporting carers of people with dementia: What is effective?" BJPsych Advances 23, no. 3 (May 2017): 179–86. http://dx.doi.org/10.1192/apt.bp.113.011288.

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Carer stress is well documented, especially in those caring for individuals with dementia. A recommendation of all national dementia strategies is to provide excellent support and information to informal carers of people with dementia. NICE guidance suggests that a range of tailored interventions, including psychological input, psychoeducation and training courses, should be offered to reduce caregiver burden and stress, although good-quality outcome-based evidence is lacking. On the basis of a narrative review of the literature, we describe individual and multicomponent carer support packages

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Marques, Maria J., Bob Woods, Eva Y. L. Tan, Marjolein de Vugt, and Frans Verhey. "325 - Relationship quality in dementia: Preliminary longitudinal analyses of the EU-JPND Actifcare cohort study." International Psychogeriatrics 32, S1 (October 2020): 83. http://dx.doi.org/10.1017/s1041610220002252.

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INTRODUCTIONRelationship quality (RQ) in dyads of persons with dementia and their family carers is important both as a clinical outcome and as a determinant of health and quality of life. In previous work we studied RQ using baseline data of a large-scale European longitudinal study on timely access to and use of community formal services in dementia (EU-JPND Acticare). We concluded that neuropsychiatric symptoms and carer stress contributed to discrepancies in RQ ratings within the dyad, which were less favourable when reported by family carers. This and other associations (e.g. between carer

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Linacre, Stephen, Suzanne Heywood-Everett, Vishal Sharma, and Andrew J. Hill. "Comparing carer wellbeing: implications for eating disorders." Mental Health Review Journal 20, no. 2 (June 8, 2015): 105–18. http://dx.doi.org/10.1108/mhrj-12-2014-0046.

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Purpose – Around 50 per cent of carers of people with eating disorders (EDs) experience mental health difficulties. The purpose of this paper is to investigate well-being of carers of people with ED and carers of people with severe and enduring eating disorders (SEEDs). Design/methodology/approach – Carers (n=104) were recruited from UK support groups and stratified using duration of the care recipient’s ED (0-2, 2-6, > 6 years), with the > 6 years category classified as SEED. Data were compared with existing carer well-being studies of other patient groups. Findings – Carers of people w

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Lalor, A., K. Ip, and D. Parikh. "P065 Sleep Perceptions of Carers in Palliative Care: A Qualitative Study." SLEEP Advances 3, Supplement_1 (October 1, 2022): A51. http://dx.doi.org/10.1093/sleepadvances/zpac029.136.

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Abstract Introduction Carers of individuals receiving palliative care have heightened responsibilities as part of their role which significantly affects their sleep. Despite the recognised importance of sleep, and the evidence regarding the impact of disturbed sleep on one’s physical and psychological wellbeing, sleep of carers is often overlooked. Furthermore, research regarding the lived experience of carers regarding their sleep is limited. This study aimed to explore carers’ sleep experiences, perceived factors related to sleep, and sleep management strategies that they adopt, in order to

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Jarvis, Alison, Mark Smith, Lynsey McAlpine, and David C. Gillespie. "Caring for the carer of someone who has had a stroke: findings from an innovative project." International Journal of Therapy and Rehabilitation 26, no. 8 (August 2, 2019): 1–11. http://dx.doi.org/10.12968/ijtr.2017.0167.

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Background/Aims Going into and coming out of hospital can be an uncertain and sometimes emotional experience for carers as well as patients. Many carers feel insufficiently involved and unsupported in the discharge process. However, we know that if hospital discharge is well-planned and the right services put in place then there is a much greater likelihood of the cared for person remaining at home with carer support and the carer feeling able to continue in their caring role. The aim of this article is to analyse an intervention that provided unpaid stroke carers with tailored support to meet

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Watts, Jacqueline H., and Joyce Cavaye. "Being a Former Carer: Impacts on Health and Well-Being." Illness, Crisis & Loss 26, no. 4 (December 5, 2016): 330–45. http://dx.doi.org/10.1177/1054137316679992.

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In the United Kingdom, policy has formalized the role of carers through the introduction of new rights and entitlements to support. However, this support is directed only at current carers with the needs of former carers being unacknowledged. Yet, when caregiving comes to an end, the transition to a life as a “former” carer can be challenging. This article reports findings from a small-scale qualitative study about the experiences of former carers conducted in the United Kingdom. Findings highlight the impact of caregiving on the health and well-being of former carers with feelings of loss and

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McConkey, Roy, Jayne McConaghie, Owen Barr, and Paul Roberts. "Views of family carers to the future accommodation and support needs of their relatives with intellectual disabilities." Irish Journal of Psychological Medicine 23, no. 4 (December 2006): 140–44. http://dx.doi.org/10.1017/s0790966700009940.

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AbstractObjectives: The demand for places in supported accommodation is likely to rise due to the increasing longevity of people with intellectual disabilities and as their parents become unavailable or unable to care for them. However few attempts have been made to ascertain carer's views on alternative accommodation.Method: Four studies were undertaken in Northern Ireland to ascertain carer's views using three different methods. In all, 387 carers participated with the response being greatest for individual interviews conducted in the family home and least for self-completed questionnaires a

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Johansson, Marcus, Kevin J. McKee, Lena Dahlberg, Martina Summer-Meranius, Christine Williams, and Lena Hammar. "Negative Impact and Positive Value of Caregiving in Spouse Carers of Persons With Dementia in Sweden." Innovation in Aging 5, Supplement_1 (December 1, 2021): 152–53. http://dx.doi.org/10.1093/geroni/igab046.586.

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Abstract As welfare providers struggle to meet the care needs of persons with dementia (PwDs), most of their needs are being met by a family carers, most often a spouse. The situation for spouse carers is unique, e.g., with grief, loneliness and loss of intimacy combining with stress and poor health. Research is needed to develop adequate support for spouse carers based on evidence of what influences negative and positive outcomes of care. The present study investigated psychosocial correlates of spouse carers’ (i) negative impact and (ii) positive value of caring. Data from a cross-sectional

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Røen, Ingebrigt, Hans Stifoss-Hanssen, Gunn Grande, Anne-Tove Brenne, Stein Kaasa, Kari Sand, and Anne Kari Knudsen. "Resilience for family carers of advanced cancer patients—how can health care providers contribute? A qualitative interview study with carers." Palliative Medicine 32, no. 8 (June 1, 2018): 1410–18. http://dx.doi.org/10.1177/0269216318777656.

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Background: Caring for advanced cancer patients affects carers’ psychological and physical health. Resilience has been defined as “the process of adapting well in the face of adversity, trauma, tragedy, threats or even significant sources of threat.” Aim: The aim of this study was to explore factors promoting carer resilience, based on carers’ experiences with and preferences for health care provider support. Design: Qualitative, semi-structured, individual interviews with family carers of advanced cancer patients were performed until data saturation. The interviews were recorded, transcribed,

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Hudson, Catherine, Kate Radford, and Jade Kettlewell. "A Qualitative Study to Understand the Impact of Caring for Traumatic Injury Survivors." International Journal of Environmental Research and Public Health 19, no. 23 (December 3, 2022): 16202. http://dx.doi.org/10.3390/ijerph192316202.

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Background: Following traumatic injury, an informal carer is often required to support recovery. Understanding the impact of caregiving is important to inform intervention design. Aim: to explore the impact of caring on family and caregiver finances, employment, social life, and psychological wellbeing. Method: Semi-structured interviews conducted with carers of traumatic injury survivors. Interviews were audio recorded, transcribed and thematically analysed, informed by the Roy Adaptation Model (RAM) and International Classification of Functioning, Disability and Health (ICF). Results: Ten pa

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Pickard, Susan, and Caroline Glendinning. "Caring for a relative with dementia: The perceptions of carers and CPNs." Quality in Ageing and Older Adults 2, no. 4 (December 1, 2001): 3–11. http://dx.doi.org/10.1108/14717794200100024.

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Older people with dementia living in the community are most likely to be cared for by other older people, predominantly spouses, who will be at increased risk of stress‐related health problems themselves. Appropriate support of such carers is crucial if carer breakdown and consequent care‐receiver admission to residential homes is to be avoided. This paper examines the experience of older carers of frail older people with dementia and examines the kind of support that is provided to such carers. In practice, the sole source of professional support received by older people in this study was fro

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McCarthy, G., I. Gresswell, and D. Adamis. "Burden of informal carers in northwest Ireland: A pilot study of factors that influence burden." European Psychiatry 33, S1 (March 2016): S188. http://dx.doi.org/10.1016/j.eurpsy.2016.01.420.

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IntroductionResearch has shown that approximately 67% of carers experience extreme mental tiredness, a decrease in their quality of life and a deterioration in their physical health since taking on a care-giving role.Aims and objectivesThis study aims to identify factors that influence carer burden and in doing so, identify the sub-populations of carers who are most susceptible to burden.MethodsIn northwest Ireland, 53 informal carers referred to the Carers Association, Sligo were contacted and met for a face-to-face interview. Measurements used included demographic data, the Neuropsychiatric

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