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Artigos de revistas sobre o tema "Patient Advocate"

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Autor: Grafiati

Publicado: 23 de junho de 2021

Última modificação: 1 de fevereiro de 2022

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1

Farrell, Jane. "Are Perioperative Nurses Really Patient Advocates?" British Journal of Perioperative Nursing (United Kingdom) 13, n.º 1 (janeiro de 2003): 24–28. http://dx.doi.org/10.1177/175045890301300103.

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The debate regarding the nurse as patient advocate continues to evoke strong feelings. This article will explore the concept of advocacy, where the notion originated, the qualities needed to be a patient advocate and whether nurses in the perioperative environment do advocate for their patients.

2

Edwards-Elliott, Ronisha, Robin Johnson, Divya Bhandar, Sharice Bradford, Caroline Hodgson, Susan Walsh, Patil Crystal e Angela Rivers. "Utilizing a Peer Patient Advocate to Develop Sickle Cell Transition Educational Materials". Blood 134, Supplement_1 (13 de novembro de 2019): 5807. http://dx.doi.org/10.1182/blood-2019-128533.

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Background: Peer patient advocates, also called peer advocates or peer supporters have the same chronic illness as the patients that they aid to manage their health care (MacLellan, 2017). Our team developed an interactive group educational program that aimed to prepare and guide adolescents and emerging adults (AEAs) with Sickle Cell Disease (SCD) as they transition from pediatric to adult care and included a peer patient advocate as a co-facilitator of the program. Here we describe a peer advocate led process to develop an educational booklet equipped with visual aids, tables, and pertinent definitions. To our knowledge, this is a novel use of a peer patient advocate as it has not been seen in the literature before. Methods: The first iteration of the booklet was developed by the peer patient advocate based on topics discovered as important to AEAs and parents through qualitative interviews. The intent of the booklet was to be a guide and resource to four AEA's ages 16-21 as they completed the group healthcare meetings The peer advocate drew on personal experiences with SCD to make the educational booklet as relevant as possible while integrating health information from the National Institutes of Health (National Institutes of Health, 2015), American Society of Hematology (American Society of Hematology, n.d.), and Got Transition (Got Transition, n.d.). The second iteration of the program and booklet facilitated by the peer patient advocate integrated lessons learned from the pilot and was used by twelve patients ranging in age from 14-21. Each AEA was called 1-7 days prior to the next group meeting to evaluate the educational material and share their experiences. These structured interviews took between 5-10 minutes to complete was audio-recorded and transcribed into a text file that could be used for feedback analysis. Results: The AEAs overall described the booklet as useful, easy to understand, and beneficial to their learning. It was described as a resources that they found useful to go to for quick information and they enjoyed that it was related to the information presented within the group. The project overall demonstrated that using peer patient advocates as guides to the healthcare team can be very instrumental in developing patient educational materials and programs. Although peer patient advocates are not experts in developing educational material, this project demonstrates that peer patient advocates can develop excellent patient educational materials that are usable and relatable to adolescent patients with sickle cell disease. Conclusions: Having a peer patient advocate as part of the team that creates the education material can increase pertinent, usable, and relatable information for AEAs with sickle cell disease. The team felt the peer advocate's contributions were vital to the booklet content. Including a peer patient advocate to develop patient education development for other chronic diseases may be valuable for AEAs with other chronic health conditions. Disclosures No relevant conflicts of interest to declare.

3

Claxton-Oldfield, Stephen, e Krystal Blacklock. "Hospice Palliative Care Volunteers as Program and Patient/Family Advocates". American Journal of Hospice and Palliative Medicine® 34, n.º 9 (21 de julho de 2016): 844–48. http://dx.doi.org/10.1177/1049909116659464.

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The objectives of this study were to examine (1) the extent to which hospice palliative care volunteers are involved in program and patient/family advocacy, (2) volunteers’ willingness to engage in program and patient/family advocacy, and (3) volunteers’ perceived needs for training on how to be an effective advocate. Thirty-four hospice palliative care volunteers responded to the survey developed for this study. The majority of the volunteers surveyed consider themselves advocates for their programs and many of those, who have not already done so, would be willing to promote their program (eg, give a community presentation, talk to local media) if asked. Half of the volunteers were aware of unmet needs of the patients/families they supported, and just over one-third wanted to advocate on behalf of their patients/families but did not know what to do or where to go. Recommendations for volunteer training are made.

4

Savery, Carol A., e Nichole Egbert. "Hospice volunteer as patient advocate: A trait approach". Palliative and Supportive Care 8, n.º 2 (23 de março de 2010): 159–67. http://dx.doi.org/10.1017/s1478951509990915.

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AbstractObjective:The purpose of this study is to examine traits of hospice volunteers that facilitate their success in this informal caregiving role, with the larger goal of alleviating the family caregiver burden and providing additional support to the hospice patient. To achieve this goal, a new scale was developed to tap into how hospice volunteers view their patient advocacy role.Method:Participants were 136 trained hospice volunteers from the Midwest who had direct contact with hospice patients. Volunteers mailed anonymous surveys that included measures of argumentativeness, locus of control, attitudes toward patient advocacy, and key demographic items. A new scale was developed to measure patient advocacy by hospice volunteers called the Hospice Volunteer as Patient Advocate.Results:Submitting this scale to exploratory factor analysis, two factors emerged: duty as patient advocate and support of patient rights. After performing a multiple regression analysis, results showed that female volunteers who were high in internal locus of control were more likely to perceive that volunteers have a duty as patient advocates. Younger volunteers with more years of volunteer experience, higher levels of internal locus of control, and lower external locus of control were more likely to support patient rights.Significance of results:The findings of this study could be used to formalize hospice volunteers' role as patient advocates, thus better utilizing them as committed, caring communicators and improving patient-centered care at end-of-life.

5

Kayser-Jones, Jeanie, e Marshall B. Kapp. "Advocacy for The Mentally Impaired Elderly: A Case Study Analysis". American Journal of Law & Medicine 14, n.º 4 (1989): 353–76. http://dx.doi.org/10.1017/s0098858800007656.

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The authors present a case study to illustrate how a mentally impaired but socially intact nursing home resident, who had no one to act as an advocate for her, was denied appropriate treatment for an acute illness which ultimately resulted in her death. The case raises important questions about advocacy for the mentally-impaired, acutely-ill institutionalized patient. This Article explores the role of the advocate, how advocates are selected, what qualities and talents they should possess, and what responsibilities should be assigned to them. The authors suggest that nursing home residents should be encouraged to engage in self-advocacy to the greatest extent possible. The competent elderly should be urged to name their preferred advocates. Individuals who serve in advocacy roles should be advised to seek information regarding the patient's wishes from those who know the patient well. Furthermore, there is a need for quality education and training of those who serve in advocacy roles on behalf of nursing home residents, and state laws need to specify the responsibilities of persons who serve as advocates.

6

Talley, C. Richard. "Patient Advocate". American Journal of Health-System Pharmacy 50, n.º 1 (1 de janeiro de 1993): 67. http://dx.doi.org/10.1093/ajhp/50.1.67.

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7

Dvaladze, Allison, Darya A. Kizub, Anna Cabanes, Gertrude Nakigudde, Bertha Aguilar, R. K. Pritam Singh, Jo Anne Zujewski, Catherine Duggan, Benjamin O. Anderson e Julie R. Gralow. "Breast Cancer Patient Advocacy: Challenges and Opportunities in Low- and Middle-Income Countries". JCO Global Oncology 6, Supplement_1 (julho de 2020): 39. http://dx.doi.org/10.1200/go.20.63000.

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PURPOSE Breast cancer advocacy movements, driven by advocate-led civil society organizations (CSOs), have proven to be a powerful force for the advancement of cancer control in high-income countries, playing a critical role in providing peer support, raising awareness, reducing stigma, educating the public, raising funds, influencing policy, and affecting national cancer research agendas by bringing the public’s concerns about cancer to policymakers and the medical community. Breast cancer patient advocacy movements are growing in low- and middle-income countries (LMICs) in response to an increasing cancer burden and disparities in outcomes; however, there are few studies on the experiences and needs of advocate-led breast cancer CSOs in LMICs. METHODS We conducted a qualitative study using in-depth interviews and focus group discussions with 98 participants representing 23 LMICs in Eastern Europe, Central Asia, East and Southern Africa, and Latin America. RESULTS Despite geographic, cultural, and socioeconomic differences, the common themes that emerged across the 3 regions are strikingly similar: trust, knowledge gaps, stigma, sharing experiences, and sustainability. We identified common facilitators—training/education, relationship building/networking, third-party facilitators, communication—and barriers—mistrust, stigma, organizational fragility, difficulty translating high-income country strategies—to establishing trust, collaboration, and advancing cancer advocacy efforts. To our knowledge, our study is the first to describe the role coalitions and regional networks play in advancing breast cancer advocacy in LMICs across multiple regions CONCLUSION Our findings reflect the importance of investing in three-way partnerships between CSOs, political leaders, and health experts. When provided with information that is evidence based and relevant to their respective environments, as well as opportunities to engage and network, advocates are better equipped to pursue evidence-based programs, advocate for appropriate solutions, and to hold their governments accountable to the commitments they make. Global and local actors can do more to create opportunities for education and engagement.

8

Altun, Insaf, e Nermin Ersoy. "Undertaking the Role of Patient Advocate: a longitudinal study of nursing students". Nursing Ethics 10, n.º 5 (setembro de 2003): 462–71. http://dx.doi.org/10.1191/0969733003ne628oa.

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Patient advocacy has been claimed as a new role for professional nurses and many codes of ethics for nurses state that they act as patient advocates. Nursing education is faced with the challenge of preparing nurses for this role. In this article we describe the results of a study that considered the tendencies of a cohort of nursing students at the Kocaeli University School of Nursing to act as advocates and to respect patients’ rights, and how their capacities to do so changed (or not) as a result of their nursing education. This longitudinal study used a questionnaire consisting of 10 statements relating to patient care. It was performed both at the start (1998) and at the end (2002) of the nursing training. At the beginning of their course 77 students participated; in the study. After four years, only 55 students participated, the reason for this drop in number being unknown. The questions asked nurses if patients should have: the right to receive health care; the right to participate in the decision-making process about their treatment; the right always to be told the truth; and the right to have access to their own medical records. They were also asked: if quality of life should be a criterion for discontinuing treatment; if patients have the right to die and the right to refuse treatment; if patients should be assisted to die or helped to undergo active euthanasia; and if severely disabled newborn babies should be allowed to die. The student nurses demonstrated considerable insight into contemporary nursing issues and were ready to act as patient advocates. Professional responsibility demands that good nurses advocate strongly for patients’ choices.

9

Fraser, Debbie. "Are You an Advocate for Your Patient?" Neonatal Network 28, n.º 5 (setembro de 2009): 279. http://dx.doi.org/10.1891/0730-0832.28.5.279.

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ADVOCACY HAS LONG BEEN DESCRIBED AS AN INHERENT PART of our role as nurses. Who better to speak for, or support patients and their families than nurses? For neonatal nurses this is especially true. Patient vulnerability is cited as a common reason that nurses take the role of an advocate.1 No population is more vulnerable than a sick or premature newborn, and, by extension, their parents.

10

Johnson, Jonas T. "Advocate for Patient Care". Laryngoscope 114, n.º 2 (fevereiro de 2004): 187. http://dx.doi.org/10.1097/00005537-200402000-00001.

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11

Friend, Michael. "Shakir Cannon, Patient Advocate". CRISPR Journal 1, n.º 1 (fevereiro de 2018): 24–25. http://dx.doi.org/10.1089/crispr.2018.29005.mfr.

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12

Elliott, Carl. "The Purchased Patient Advocate". Hastings Center Report 48, n.º 2 (março de 2018): 40–41. http://dx.doi.org/10.1002/hast.838.

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13

Hotchkiss, William S. "Doctor as Patient Advocate". JAMA: The Journal of the American Medical Association 258, n.º 7 (21 de agosto de 1987): 947. http://dx.doi.org/10.1001/jama.1987.03400070085041.

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14

Hotchkiss, W. S. "Doctor as patient advocate". JAMA: The Journal of the American Medical Association 258, n.º 7 (21 de agosto de 1987): 947–48. http://dx.doi.org/10.1001/jama.258.7.947.

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15

Johnson, G. Owen, Marilyn Kirschenbaum, Ginny Mason e Linda Riley Rush. "The Patient Advocate View". Breast Disease 22, n.º 1 (11 de abril de 2006): 3–8. http://dx.doi.org/10.3233/bd-2006-22102.

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16

Peate, Ian. "Advance the patient advocate". Practice Nursing 24, n.º 3 (março de 2013): 113. http://dx.doi.org/10.12968/pnur.2013.24.3.113.

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17

Ranawat, Chitranjan S., e Richard H. Rothman. "The Ideal Patient Advocate". Journal of Arthroplasty 26, n.º 5 (agosto de 2011): 667. http://dx.doi.org/10.1016/j.arth.2011.04.016.

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18

O’Connor, Tom, e Billy Kelly. "Bridging the Gap: a study of general nurses’ perceptions of patient advocacy in Ireland". Nursing Ethics 12, n.º 5 (setembro de 2005): 453–67. http://dx.doi.org/10.1191/0969733005ne814oa.

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Advocacy has become an accepted and integral attribute of nursing practice. Despite this adoption of advocacy, confusion remains about the precise nature of the concept and how it should be enacted in practice. The aim of this study was to investigate general nurses’ perceptions of being patient advocates in Ireland and how they enact this role. These perceptions were compared with existing theory and research on advocacy in order to contribute to the knowledge base on the subject. An inductive, qualitative approach was used for this study. Three focus group interviews with a total of 20 practising nurses were conducted with a sample representing different grades in a general hospital setting. Data analysis was carried out using elements of Strauss and Corbins’ approach to concept development. The findings indicate that the principal role of the nurse advocate is to act as an intermediary between the patient and the health care environment. The results highlight that advocacy did, however, result in nurses becoming involved in conflict and confrontation with others and that it could be detrimental to nurses both professionally and personally. It was also clear that when enacting advocacy, nurses distinguished between ‘clinical advocacy’ (acting directly for patients in the clinical environment) and organizational advocacy (acting on an organizational level for one or more patients).

19

Cole, Clare, Sally Wellard e Jane Mummery. "Problematising autonomy and advocacy in nursing". Nursing Ethics 21, n.º 5 (7 de janeiro de 2014): 576–82. http://dx.doi.org/10.1177/0969733013511362.

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Customarily patient advocacy is argued to be an essential part of nursing, and this is reinforced in contemporary nursing codes of conduct, as well as codes of ethics and competency standards governing practice. However, the role of the nurse as an advocate is not clearly understood. Autonomy is a key concept in understanding advocacy, but traditional views of individual autonomy can be argued as being outdated and misguided in nursing. Instead, the feminist perspective of relational autonomy is arguably more relevant within the context of advocacy and nurses’ work in clinical healthcare settings. This article serves to highlight and problematise some of the assumptions and influences around the perceived role of the nurse as an advocate for patients in contemporary Western healthcare systems by focusing on key assumptions concerning autonomy inherent in the role of the advocate.

20

Watson, Chanel L., e Tom O’Connor. "Legislating for advocacy: The case of whistleblowing". Nursing Ethics 24, n.º 3 (4 de setembro de 2015): 305–12. http://dx.doi.org/10.1177/0969733015600911.

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Background: The role of nurses as patient advocates is one which is well recognised, supported and the subject of a broad body of literature. One of the key impediments to the role of the nurse as patient advocate is the lack of support and legislative frameworks. Within a broad range of activities constituting advocacy, whistleblowing is currently the subject of much discussion in the light of the Mid Staffordshire inquiry in the United Kingdom (UK) and other instances of patient mistreatment. As a result steps to amend existing whistleblowing legislation where it exists or introduce it where it does not are underway. Objective: This paper traces the development of legislation for advocacy. Conclusion: The authors argue that while any legislation supporting advocacy is welcome, legislation on its own will not encourage or enable nurses to whistleblow.

21

Hyland, Deirdre. "An Exploration of the Relationship Between Patient Autonomy and Patient Advocacy: implications for nursing practice". Nursing Ethics 9, n.º 5 (setembro de 2002): 472–82. http://dx.doi.org/10.1191/0969733002ne537oa.

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The purpose of this article is to examine whether patient/client autonomy is always compatible with the nurse’s role of advocacy. The author looks separately at the concepts of autonomy and advocacy, and considers them in relation to the reality of clinical practice from professional, ethical and legal perspectives. Considerable ambiguity is found regarding the legitimacy of claims of a unique function for nurses to act as patient advocates. To act as an advocate may put nurses at personal and professional risk. It may also be deemed arrogant and insulting to other health care professionals. Patient autonomy can be seen as a subcategory of the right of every individual to self-determination, and as such is protected by law. However, it is questionable whether the traditionally paternalistic approach to health care provision truly respects the autonomous rights of each patient. The author considers examples and cases from the literature that resulted in professional and/or personal difficulties for the nurses involved, and also reflects on an incident from her own practice where a positive outcome was achieved that demonstrated compatibility between the concepts under consideration.

22

Mahlin, Margaret. "Individual patient advocacy, collective responsibility and activism within professional nursing associations". Nursing Ethics 17, n.º 2 (25 de fevereiro de 2010): 247–54. http://dx.doi.org/10.1177/0969733009351949.

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The systemic difficulties of health care in the USA have brought to light another issue in nurse—patient advocacy — those who require care yet have inadequate or non-existent access. Patient advocacy has focused on individual nurses who in turn advocate for individual patients, yet, while supporting individual patients is a worthy goal of patient advocacy, systemic problems cannot be adequately addressed in this way. The difficulties nurses face when advocating for patients is well documented in the nursing literature and I argue that, through collective advocacy, professional nursing associations ought to extend the reach of individual nurses in order to address systemic problems in health care institutions and bureaucracies.

23

Bernal, Ellen W. "The Nurse as Patient Advocate". Hastings Center Report 22, n.º 4 (julho de 1992): 18. http://dx.doi.org/10.2307/3563018.

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24

Jennings, Ralph H. "Presidential address: The patient advocate". American Journal of Obstetrics and Gynecology 177, n.º 2 (agosto de 1997): 251–55. http://dx.doi.org/10.1016/s0002-9378(97)70183-2.

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25

Hupp, James R. "Serving as a Patient Advocate". Journal of Oral and Maxillofacial Surgery 70, n.º 7 (julho de 2012): 1503–4. http://dx.doi.org/10.1016/j.joms.2012.04.017.

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26

TAYLOR, PHYLLIS, e GINETTE FERSZT. "THE nurse AS patient advocate". Nursing 28, n.º 8 (agosto de 1998): 70–71. http://dx.doi.org/10.1097/00152193-199808000-00029.

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27

Gottlieb, Samantha D. "The Patient-Consumer-Advocate Nexus". Medical Anthropology Quarterly 27, n.º 3 (setembro de 2013): 330–47. http://dx.doi.org/10.1111/maq.12046.

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28

Odom, Jan. "The nurse as patient advocate". Journal of PeriAnesthesia Nursing 17, n.º 2 (abril de 2002): 75–76. http://dx.doi.org/10.1053/jpan.2002.32812.

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29

Abrams, Fredrick R. "Patient Advocate or Secret Agent?" JAMA: The Journal of the American Medical Association 256, n.º 13 (3 de outubro de 1986): 1784. http://dx.doi.org/10.1001/jama.1986.03380130112038.

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30

Abrams, F. R. "Patient advocate or secret agent?" JAMA: The Journal of the American Medical Association 256, n.º 13 (3 de outubro de 1986): 1784–85. http://dx.doi.org/10.1001/jama.256.13.1784.

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31

Moore, Condict. "Need for a Patient Advocate". JAMA: The Journal of the American Medical Association 262, n.º 2 (14 de julho de 1989): 259. http://dx.doi.org/10.1001/jama.1989.03430020101038.

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32

Moore, C. "Need for a patient advocate". JAMA: The Journal of the American Medical Association 262, n.º 2 (14 de julho de 1989): 259–60. http://dx.doi.org/10.1001/jama.262.2.259.

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33

Lind, D. D. "The doctor as patient advocate". JAMA: The Journal of the American Medical Association 262, n.º 23 (15 de dezembro de 1989): 3269b—3269. http://dx.doi.org/10.1001/jama.262.23.3269b.

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34

Lind, Douglas D. "The Doctor as Patient Advocate". JAMA: The Journal of the American Medical Association 262, n.º 23 (15 de dezembro de 1989): 3269. http://dx.doi.org/10.1001/jama.1989.03430230041011.

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35

McWhorter, J. H. "The patient advocate as adversary." Journal of Medical Ethics 14, n.º 1 (1 de março de 1988): 55. http://dx.doi.org/10.1136/jme.14.1.55-a.

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36

Banja, John D. "The Nurse As Patient Advocate". Plastic Surgical Nursing 12, n.º 4 (1992): 159–61. http://dx.doi.org/10.1097/00006527-199201240-00007.

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37

Borwhat, Margaret. ""Perspective of the Patient Advocate"". Obstetrical & Gynecological Survey 53, Supplement (outubro de 1998): 23S—25S. http://dx.doi.org/10.1097/00006254-199810001-00010.

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38

Martin, Andrea. ""Perspective of the Patient Advocate"". Obstetrical & Gynecological Survey 53, Supplement (outubro de 1998): 39S—40S. http://dx.doi.org/10.1097/00006254-199810001-00021.

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39

Tyzenhouse, Phyllis. ""Perspective of the Patient Advocate"". Obstetrical & Gynecological Survey 53, Supplement (outubro de 1998): 48S. http://dx.doi.org/10.1097/00006254-199810001-00027.

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40

Parker, Barbara. ""Perspective of the Patient Advocate"". Obstetrical & Gynecological Survey 53, Supplement (outubro de 1998): 60S. http://dx.doi.org/10.1097/00006254-199810001-00032.

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41

Green, Bettye. ""Perspective of the Patient Advocate"". Obstetrical & Gynecological Survey 53, Supplement (outubro de 1998): 65S. http://dx.doi.org/10.1097/00006254-199810001-00035.

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42

Martin, Andrea. ""Perspective of the Patient Advocate"". Obstetrical & Gynecological Survey 53, Supplement (outubro de 1998): 65S—66S. http://dx.doi.org/10.1097/00006254-199810001-00036.

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43

Ford, Jane. ""Perspective of the Patient Advocate"". Obstetrical & Gynecological Survey 53, Supplement (outubro de 1998): 68S—69S. http://dx.doi.org/10.1097/00006254-199810001-00039.

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44

Douglas, Mary Sue. ""Perspective of the Patient Advocate"". Obstetrical & Gynecological Survey 53, Supplement (outubro de 1998): 69S. http://dx.doi.org/10.1097/00006254-199810001-00040.

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45

Rumen, Nina. ""Perspective of the Patient Advocate"". Obstetrical & Gynecological Survey 53, Supplement (outubro de 1998): 70S—71S. http://dx.doi.org/10.1097/00006254-199810001-00042.

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46

Toda, Yumiko, Masayo Sakamoto, Akira Tagaya, Mimi Takahashi e Anne J. Davis. "Patient advocacy". Nursing Ethics 22, n.º 7 (22 de setembro de 2014): 765–77. http://dx.doi.org/10.1177/0969733014547971.

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Resumo:

Background: Advocacy is an important role of psychiatric nurses because their patients are ethically, socially, and legally vulnerable. This study of Japanese expert psychiatric nurses’ judgments of interventions for patient advocacy will show effective strategies for ethical nursing practice and their relationship with Japanese culture. Objectives: This article explores Japanese psychiatric nurses’ decision to intervene as a patient advocate and examine their ethical, cultural, and social implications. Research design: Using semi-structured interviews verbatim, themes of the problems that required interventions were inductively summarized by a qualitative analysis and their contexts and nursing judgments were examined. Participants and research context: The participants were 21 nurses with 5 or more years of experience in psychiatric nursing. Ethical considerations: The research was approved by Institutional Review Board of research site and study facilities. The participants gave written informed consent. Findings: Analysis of 45 cases showed that nurses decided to intervene when (a) surrounding people’s opinions impeded patients’ safety, (b) healthcare professionals’ policies impeded patients’ decision-making, (c) own violent behaviors impeded treatment and welfare services for patients, (d) own or families’ low acceptance of illness impeded patients’ self-actualization, (e) inappropriate treatment or care impeded patients’ liberty, and (f) their families abused patients’ property. Discussion: To solve conflicts between patients and their surrounding people, the nurses sought reconciliation between them, which is in accordance with Japanese cultural norms respecting harmony. When necessary, however, they protected patients’ rights against cultural norms. Therefore, their judgments cannot be explained by cultural norms alone. Conclusion: The findings indicate that the nurses’ judgments were based on respect for patients’ rights apart from cultural norms, and they first sought solutions fitting the cultural norms before other solutions. This seems to be an ethical, effective strategy if advocates know the culture in depth.

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