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Bibliografias temáticas / Right to Genetic Identity / Livros

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Livros sobre o tema "Right to Genetic Identity"

Autor: Grafiati

Publicado: 4 de junho de 2021

Última modificação: 4 de fevereiro de 2022

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1

Akrivopoulou, Christina. Protecting the genetic self from biometric threats: Autonomy, identity, and genetic privacy. Hershey PA: Information Science Reference, 2015.

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2

Legacy: a genetic history of the Jewish people. Oxford: New York : Oxford University Press, 2012.

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3

Donders, Yvonne. Towards a right to cultural identity? Antwerp: Intersentia, 2002.

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4

Genetic disorders and Islamic identity among British Bangladeshis. Durham, North Carolina: Carolina Academic Press, 2013.

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5

Canada. Privacy Commissioner of Canada. Genetic testing and privacy. Ottawa, Ont: Privacy Commissioner of Canada, 1992.

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6

Patton, Ronald G. Interrupted identity: How to guard against & recover from having your identity stolen. San Jose [Calif.]: Writers Club Press, 2000.

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7

Nichols, Cindy. Medical identity theft. Chicago, Ill: AHIMA, 2008.

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8

Annas, George J. The Genetic Privacy Act and commentary. Boston, MA: Health Law Dept., Boston University School of Public Health, 1995.

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9

Challem, Jack. Feed Your Genes Right. New York: John Wiley & Sons, Ltd., 2005.

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10

Ordinary genomes: Science, citizenship, and genetic identities. Durham [NC]: Duke University Press, 2009.

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11

Collective identity, oppression, and the right to self-ascription. Lanham, Md: Lexington Books, 2012.

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12

Right Behind You. New York: Little, Brown Books for Young Readers, 2008.

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13

Diver, Alice. A Law of Blood-ties - The 'Right' to Access Genetic Ancestry. Cham: Springer International Publishing, 2014. http://dx.doi.org/10.1007/978-3-319-01071-7.

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14

Chow, Stephen Y., Barbara B. Anthony e Ellen M. Giblin. Identity theft--consumer view. Boston, MA: MCLE New England, 2014.

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15

The right to be born healthy: The ethical problems of human genetics in Hungary. New York: A.R. Liss, 1988.

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16

Endre, Czeizel. The right to be born healthy: The ethical problems of human genetics in Hungary. Budapest: Akadémiai Kiadó, 1988.

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17

Dass, Rajanish. Feasibility and sustainability model for identity management. Ahmedabad: Indian Institute of Management, 2009.

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18

Michigan Commission on Genetic Privacy and Progress. Michigan Commission on Genetic Privacy and Progress: Final report and recommendations. [East Lansing] Michigan: Dept. of Community Health, 1999.

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19

University of South Africa. Institute for Theological Research. Symposium. The right to life: Issues in bioethics : a collection of papers presented at the twelfth symposium of the Institute for Theological Research (Unisa) held at the University of South Africa in Pretoria on 7 and 8 September 1988. Editado por Vorster W. S. Pretoria: University of South Africa, 1988.

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20

Johansson, Thomas. Do the right thing: Lifestyle and identity in contemporary youth culture. Stockholm, Sweden: Almquist & Wiksell, 1992.

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21

Fredrik, Miegel, ed. Do the right thing: Lifestyle and identity in contemporary youth culture. Stockholm: Almqvist & Wiksell International, 1992.

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22

Right behind you: A novel. New York: Little, Brown, 2007.

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23

Judit, Sándor. Society and genetic information: Codes and laws in the genetic era. Budapest, Hungary: Central European University Press, 2004.

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24

United States. President's Identity Theft Task Force. Combating identity theft: A strategic plan. [Washington, D.C.]: President's Identity Theft Task Force, 2007.

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25

Turning your world right side up. Colorado Springs, Colo: Focus on the Family Pub., 1995.

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26

Genetic privacy: A challenge to medico-legal norms. Cambridge, U.K: Cambridge University Press, 2002.

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27

Cilliers, Paul. Complexity, Difference and Identity: An Ethical Perspective. Dordrecht: Springer Science+Business Media B.V., 2010.

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28

How to be invisible: A step-by-step guide to protecting your assets, your identity, and your life. New York: St. Martin's Press, 2000.

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29

Charrett, Sheldon. Identity, privacy, and personal freedom: Big brother vs. the new resistance. Boulder, Colo: Paladin Press, 1999.

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30

Lubis, Efridani. Perlindungan dan pemanfaatan sumber daya genetik: Berdasarkan penerapan konsep sovereign right dan hak kekayaan intelektual. Bandung: Alumni, 2009.

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31

Perlindungan dan pemanfaatan sumber daya genetik: Berdasarkan penerapan konsep sovereign right dan hak kekayaan intelektual. Bandung: Alumni, 2009.

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32

Religion and the racist right: The origins of the Christian Identity movement. Chapel Hill: University of North Carolina Press, 1994.

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33

(Zimbabwe), Research &. Advocacy Unit. A right or a privilege?: Access to identity and citizenship in Zimbabwe. Harare: Research & Advocacy Unit, 2009.

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34

A right or a privilege?: Access to identity and citizenship in Zimbabwe. Harare: Research & Advocacy Unit, 2009.

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35

(Zimbabwe), Research &. Advocacy Unit. A right or a privilege?: Access to identity and citizenship in Zimbabwe. Harare: Research & Advocacy Unit, 2009.

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36

Barkun, Michael. Religion and the racist right: The origins of the Christian Identity movement. Chapel Hill: University of North Carolina Press, 1997.

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37

Surveillance and identity: Discourse, subjectivity and the state. Farnham: Ashgate, 2012.

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38

Wexler, Barbara. Genetics and genetic engineering. 2^a ed. Detroit, MI: Thomson/Gale Group, 2006.

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39

Beaton, Alan. Left side, right side: A review of laterality research. New Haven: Yale University Press, 1986.

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40

Beaton, Alan. Left side, right side: A review of laterality research. London: Batsford Academic and Educational, 1985.

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41

Homocons: The rise of the gay right. London: Verso, 2003.

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42

On exit: Interdisciplinary perspectives on the right of exit in liberal multicultural societies. Boston: De Gruyter, 2012.

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43

Patrick, McNamara. Mind and variability: Mental Darwinism, memory, and self. Westport, Conn: Praeger, 1999.

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44

Syrris, Petros, e Alexandros Protonotarios. Arrhythmogenic right ventricular cardiomyopathy: genetics. Oxford University Press, 2018. http://dx.doi.org/10.1093/med/9780198784906.003.0359.

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Arrhythmogenic right ventricular cardiomyopathy (ARVC) is a disorder of the heart muscle which is typically inherited in an autosomal dominant manner. It is believed to be familial in over 50% of cases. A recessive mode of inheritance has also been reported in syndromic cases with cardiocutaneous features. The classic form of the disorder is considered to be ‘a disease of the desmosome’ as pathogenic variants have been identified in five genes encoding key desmosomal proteins: plakoglobin, desmoplakin, plakophilin-2, desmoglein-2, and desmocollin-2. Mutations in these genes account for 30–50% of ARVC cases. A further eight non-desmosomal genes have also been implicated in the pathogenesis of the disorder but only account for rare cases. Studies of patients with ARVC-associated gene mutations have revealed marked genetic heterogeneity and very limited genotype–phenotype correlation. Disease expression often varies significantly amongst individuals carrying the same mutation. It has been proposed that the presence of more than one sequence variant is required to determine overt clinical disease and patients with multiple variants have a more severe phenotype compared to single variant carriers. Identification of a potentially pathogenic variant comprises a major criterion in the diagnosis of ARVC but informative integration of genetic testing into clinical practice remains challenging. Gene testing should be used to identify asymptomatic family members at risk and only aids diagnosis in cases of high suspicion for ARVC, along with other evident features of the disease already present. However, genetic findings should be used with caution in clinical practice and their interpretation must be performed in expert centres.

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45

Hochschild, Jennifer, e Maya Sen. Americans’ Attitudes on Individual or Racially Inflected Genetic Inheritance. Oxford University Press, 2018. http://dx.doi.org/10.1093/oso/9780190465285.003.0003.

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This chapter proffers a political science perspective on how Americans view the ways in which genetics affect identity. It lays the groundwork for exploring possible relationships in the eyes of the public between genetics and race, by developing hypotheses based mainly on extrapolations from popular media or American history. Next the chapter introduces a 2011 public opinion survey of approximately 4,000 US adults. The Genomics Knowledge, Attitudes, and Politics Survey includes questions designed to reveal Americans' views about the importance of genetics in explaining various traits, behaviors, and diseases. The chapter then shows that respondents' understanding of the relationships among race, genes, and phenotypes is coherent and sensible (regardless of whether it is right or wrong).

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46

Moonrise: One Family, Genetic Identity, and Muscular Dystrophy. St. Martin's Press, 2003.

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47

Moonrise: One Family, Genetic Identity, and Muscular Dystrophy. St. Martin's Griffin, 2004.

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48

Rothstein, Mark A. Genetic Secrets: Protecting Privacy and Confidentiality in the Genetic Era. Yale University Press, 1999.

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49

Rothstein, Mark A. Genetic Secrets: Protecting Privacy and Confidentiality in the Genetic Era. Yale University Press, 1997.

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50

A, Rothstein Mark, ed. Genetic secrets: Protecting privacy and confidentiality in the genetic era. New Haven: Yale University Press, 1997.

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