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Bibliografias temáticas / Patient Advocate

Literatura científica selecionada sobre o tema "Patient Advocate"

Autor: Grafiati

Publicado: 23 de junho de 2021

Última modificação: 1 de fevereiro de 2022

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Artigos de revistas
Teses / dissertações
Livros
Capítulos de livros
Trabalhos de conferências
Relatórios de organizações

Artigos de revistas sobre o assunto "Patient Advocate":

1

Farrell, Jane. "Are Perioperative Nurses Really Patient Advocates?" British Journal of Perioperative Nursing (United Kingdom) 13, n.º 1 (janeiro de 2003): 24–28. http://dx.doi.org/10.1177/175045890301300103.

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The debate regarding the nurse as patient advocate continues to evoke strong feelings. This article will explore the concept of advocacy, where the notion originated, the qualities needed to be a patient advocate and whether nurses in the perioperative environment do advocate for their patients.

2

Edwards-Elliott, Ronisha, Robin Johnson, Divya Bhandar, Sharice Bradford, Caroline Hodgson, Susan Walsh, Patil Crystal e Angela Rivers. "Utilizing a Peer Patient Advocate to Develop Sickle Cell Transition Educational Materials". Blood 134, Supplement_1 (13 de novembro de 2019): 5807. http://dx.doi.org/10.1182/blood-2019-128533.

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Background: Peer patient advocates, also called peer advocates or peer supporters have the same chronic illness as the patients that they aid to manage their health care (MacLellan, 2017). Our team developed an interactive group educational program that aimed to prepare and guide adolescents and emerging adults (AEAs) with Sickle Cell Disease (SCD) as they transition from pediatric to adult care and included a peer patient advocate as a co-facilitator of the program. Here we describe a peer advocate led process to develop an educational booklet equipped with visual aids, tables, and pertinent definitions. To our knowledge, this is a novel use of a peer patient advocate as it has not been seen in the literature before. Methods: The first iteration of the booklet was developed by the peer patient advocate based on topics discovered as important to AEAs and parents through qualitative interviews. The intent of the booklet was to be a guide and resource to four AEA's ages 16-21 as they completed the group healthcare meetings The peer advocate drew on personal experiences with SCD to make the educational booklet as relevant as possible while integrating health information from the National Institutes of Health (National Institutes of Health, 2015), American Society of Hematology (American Society of Hematology, n.d.), and Got Transition (Got Transition, n.d.). The second iteration of the program and booklet facilitated by the peer patient advocate integrated lessons learned from the pilot and was used by twelve patients ranging in age from 14-21. Each AEA was called 1-7 days prior to the next group meeting to evaluate the educational material and share their experiences. These structured interviews took between 5-10 minutes to complete was audio-recorded and transcribed into a text file that could be used for feedback analysis. Results: The AEAs overall described the booklet as useful, easy to understand, and beneficial to their learning. It was described as a resources that they found useful to go to for quick information and they enjoyed that it was related to the information presented within the group. The project overall demonstrated that using peer patient advocates as guides to the healthcare team can be very instrumental in developing patient educational materials and programs. Although peer patient advocates are not experts in developing educational material, this project demonstrates that peer patient advocates can develop excellent patient educational materials that are usable and relatable to adolescent patients with sickle cell disease. Conclusions: Having a peer patient advocate as part of the team that creates the education material can increase pertinent, usable, and relatable information for AEAs with sickle cell disease. The team felt the peer advocate's contributions were vital to the booklet content. Including a peer patient advocate to develop patient education development for other chronic diseases may be valuable for AEAs with other chronic health conditions. Disclosures No relevant conflicts of interest to declare.

3

Claxton-Oldfield, Stephen, e Krystal Blacklock. "Hospice Palliative Care Volunteers as Program and Patient/Family Advocates". American Journal of Hospice and Palliative Medicine® 34, n.º 9 (21 de julho de 2016): 844–48. http://dx.doi.org/10.1177/1049909116659464.

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The objectives of this study were to examine (1) the extent to which hospice palliative care volunteers are involved in program and patient/family advocacy, (2) volunteers’ willingness to engage in program and patient/family advocacy, and (3) volunteers’ perceived needs for training on how to be an effective advocate. Thirty-four hospice palliative care volunteers responded to the survey developed for this study. The majority of the volunteers surveyed consider themselves advocates for their programs and many of those, who have not already done so, would be willing to promote their program (eg, give a community presentation, talk to local media) if asked. Half of the volunteers were aware of unmet needs of the patients/families they supported, and just over one-third wanted to advocate on behalf of their patients/families but did not know what to do or where to go. Recommendations for volunteer training are made.

4

Savery, Carol A., e Nichole Egbert. "Hospice volunteer as patient advocate: A trait approach". Palliative and Supportive Care 8, n.º 2 (23 de março de 2010): 159–67. http://dx.doi.org/10.1017/s1478951509990915.

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AbstractObjective:The purpose of this study is to examine traits of hospice volunteers that facilitate their success in this informal caregiving role, with the larger goal of alleviating the family caregiver burden and providing additional support to the hospice patient. To achieve this goal, a new scale was developed to tap into how hospice volunteers view their patient advocacy role.Method:Participants were 136 trained hospice volunteers from the Midwest who had direct contact with hospice patients. Volunteers mailed anonymous surveys that included measures of argumentativeness, locus of control, attitudes toward patient advocacy, and key demographic items. A new scale was developed to measure patient advocacy by hospice volunteers called the Hospice Volunteer as Patient Advocate.Results:Submitting this scale to exploratory factor analysis, two factors emerged: duty as patient advocate and support of patient rights. After performing a multiple regression analysis, results showed that female volunteers who were high in internal locus of control were more likely to perceive that volunteers have a duty as patient advocates. Younger volunteers with more years of volunteer experience, higher levels of internal locus of control, and lower external locus of control were more likely to support patient rights.Significance of results:The findings of this study could be used to formalize hospice volunteers' role as patient advocates, thus better utilizing them as committed, caring communicators and improving patient-centered care at end-of-life.

5

Kayser-Jones, Jeanie, e Marshall B. Kapp. "Advocacy for The Mentally Impaired Elderly: A Case Study Analysis". American Journal of Law & Medicine 14, n.º 4 (1989): 353–76. http://dx.doi.org/10.1017/s0098858800007656.

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The authors present a case study to illustrate how a mentally impaired but socially intact nursing home resident, who had no one to act as an advocate for her, was denied appropriate treatment for an acute illness which ultimately resulted in her death. The case raises important questions about advocacy for the mentally-impaired, acutely-ill institutionalized patient. This Article explores the role of the advocate, how advocates are selected, what qualities and talents they should possess, and what responsibilities should be assigned to them. The authors suggest that nursing home residents should be encouraged to engage in self-advocacy to the greatest extent possible. The competent elderly should be urged to name their preferred advocates. Individuals who serve in advocacy roles should be advised to seek information regarding the patient's wishes from those who know the patient well. Furthermore, there is a need for quality education and training of those who serve in advocacy roles on behalf of nursing home residents, and state laws need to specify the responsibilities of persons who serve as advocates.

6

Talley, C. Richard. "Patient Advocate". American Journal of Health-System Pharmacy 50, n.º 1 (1 de janeiro de 1993): 67. http://dx.doi.org/10.1093/ajhp/50.1.67.

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7

Dvaladze, Allison, Darya A. Kizub, Anna Cabanes, Gertrude Nakigudde, Bertha Aguilar, R. K. Pritam Singh, Jo Anne Zujewski, Catherine Duggan, Benjamin O. Anderson e Julie R. Gralow. "Breast Cancer Patient Advocacy: Challenges and Opportunities in Low- and Middle-Income Countries". JCO Global Oncology 6, Supplement_1 (julho de 2020): 39. http://dx.doi.org/10.1200/go.20.63000.

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PURPOSE Breast cancer advocacy movements, driven by advocate-led civil society organizations (CSOs), have proven to be a powerful force for the advancement of cancer control in high-income countries, playing a critical role in providing peer support, raising awareness, reducing stigma, educating the public, raising funds, influencing policy, and affecting national cancer research agendas by bringing the public’s concerns about cancer to policymakers and the medical community. Breast cancer patient advocacy movements are growing in low- and middle-income countries (LMICs) in response to an increasing cancer burden and disparities in outcomes; however, there are few studies on the experiences and needs of advocate-led breast cancer CSOs in LMICs. METHODS We conducted a qualitative study using in-depth interviews and focus group discussions with 98 participants representing 23 LMICs in Eastern Europe, Central Asia, East and Southern Africa, and Latin America. RESULTS Despite geographic, cultural, and socioeconomic differences, the common themes that emerged across the 3 regions are strikingly similar: trust, knowledge gaps, stigma, sharing experiences, and sustainability. We identified common facilitators—training/education, relationship building/networking, third-party facilitators, communication—and barriers—mistrust, stigma, organizational fragility, difficulty translating high-income country strategies—to establishing trust, collaboration, and advancing cancer advocacy efforts. To our knowledge, our study is the first to describe the role coalitions and regional networks play in advancing breast cancer advocacy in LMICs across multiple regions CONCLUSION Our findings reflect the importance of investing in three-way partnerships between CSOs, political leaders, and health experts. When provided with information that is evidence based and relevant to their respective environments, as well as opportunities to engage and network, advocates are better equipped to pursue evidence-based programs, advocate for appropriate solutions, and to hold their governments accountable to the commitments they make. Global and local actors can do more to create opportunities for education and engagement.

8

Altun, Insaf, e Nermin Ersoy. "Undertaking the Role of Patient Advocate: a longitudinal study of nursing students". Nursing Ethics 10, n.º 5 (setembro de 2003): 462–71. http://dx.doi.org/10.1191/0969733003ne628oa.

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Patient advocacy has been claimed as a new role for professional nurses and many codes of ethics for nurses state that they act as patient advocates. Nursing education is faced with the challenge of preparing nurses for this role. In this article we describe the results of a study that considered the tendencies of a cohort of nursing students at the Kocaeli University School of Nursing to act as advocates and to respect patients’ rights, and how their capacities to do so changed (or not) as a result of their nursing education. This longitudinal study used a questionnaire consisting of 10 statements relating to patient care. It was performed both at the start (1998) and at the end (2002) of the nursing training. At the beginning of their course 77 students participated; in the study. After four years, only 55 students participated, the reason for this drop in number being unknown. The questions asked nurses if patients should have: the right to receive health care; the right to participate in the decision-making process about their treatment; the right always to be told the truth; and the right to have access to their own medical records. They were also asked: if quality of life should be a criterion for discontinuing treatment; if patients have the right to die and the right to refuse treatment; if patients should be assisted to die or helped to undergo active euthanasia; and if severely disabled newborn babies should be allowed to die. The student nurses demonstrated considerable insight into contemporary nursing issues and were ready to act as patient advocates. Professional responsibility demands that good nurses advocate strongly for patients’ choices.

9

Fraser, Debbie. "Are You an Advocate for Your Patient?" Neonatal Network 28, n.º 5 (setembro de 2009): 279. http://dx.doi.org/10.1891/0730-0832.28.5.279.

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ADVOCACY HAS LONG BEEN DESCRIBED AS AN INHERENT PART of our role as nurses. Who better to speak for, or support patients and their families than nurses? For neonatal nurses this is especially true. Patient vulnerability is cited as a common reason that nurses take the role of an advocate.1 No population is more vulnerable than a sick or premature newborn, and, by extension, their parents.

10

Johnson, Jonas T. "Advocate for Patient Care". Laryngoscope 114, n.º 2 (fevereiro de 2004): 187. http://dx.doi.org/10.1097/00005537-200402000-00001.

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Teses / dissertações sobre o assunto "Patient Advocate":

1

Calabro, Kristin, e Whitney Shields. "Project SHAPE (Students Helping Advocate for Patient Education)". The University of Arizona, 2010. http://hdl.handle.net/10150/623898.

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Class of 2010 Abstract
OBJECTIVES: The purpose of Project SHAPE was to provide an interdisciplinary workshop for future practitioners from the Colleges of Pharmacy, Medicine and Public Health on health literacy to improve the communication between the patients and their providers. METHODS: Study participants were recruited via email from the Colleges of Pharmacy, Medicine, and Public Health at The University of Arizona. Participants attended a workshop that included a one-hour presentation by Dr. Barry Weiss followed by the development of educational materials on various health topics. A retrospective analysis of the health professional students’ knowledge of health literacy was performed. Materials were provided to El Rio Community Health Center, Colleges of Pharmacy, Medicine and Public Health to distribute to their patients in the Tucson community. RESULTS: Students’ overall knowledge on health literacy and communication with patients improved by 88% after the presentation. A total of nine different low literacy educational materials were developed by the students who attended the workshop. Copies of the educational materials were given to participating students from the other colleges to use in their patient outreach programs. The materials were also distributed to patients at a variety of brown bags, community health fairs, screenings, and El Rio Community Health Center. CONCLUSIONS: Project SHAPE has already affected many future healthcare practitioners through the interdisciplinary workshop. The educational materials will continue to be provided to patients in the Tucson community.

2

Lindeman, Sandra, e Andinsson Helena Josefsson. "Sjuksköterskan som patientens förespråkare : En litteraturstudie som beskriver faktorer som påverkar sjuksköterskan i rollen som förespråkare". Thesis, Ersta Sköndal högskola, Institutionen för vårdvetenskap, 2011. http://urn.kb.se/resolve?urn=urn:nbn:se:esh:diva-1422.

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Bakgrund: Sjuksköterskan har enligt kompetensbeskrivningen och ICN:s etiska kod ett ansvar att förespråka patienten. Begreppet advocacy myntades i USA under 1970-talet och sedan dess har begreppet diskuterats i litteraturen. Advocacy innebär att sjuksköterskan ska kunna uttyda patientens önskemål, kommunicera med patient och närstående, försäkra sig om patientens säkerhet, respektera och beskydda patientens rättigheter och tala samt agera på uppdrag av patienten. Syfte: Syftet är att beskriva faktorer som påverkar sjuksköterskan i rollen som patientens förespråkare. Metod: En litteraturstudie baserad på 13 vetenskapliga artiklar, varav tio kvalitativa och tre kvantitativa. Resultat: Författarna fann i det analyserade materialet, fyra huvudfaktorer som på olika sätt påverkade sjuksköterskan i rollen som förespråkare. Dessa huvudfaktorer är sjuksköterskan som person, sjuksköterskeprofession, samarbetet med läkaren och arbetsmiljön. I en av de analyserande studierna återfanns även anhöriga som en faktor. Diskussion: Att sjuksköterskan själv är en faktor som är viktig för patientvården är något som Jean Watson belyser i sin omvårdnadsteori. Hon menar att omsorgen inte får det utrymme den bör ha inom vården men också i övriga samhället och att det leder till svårigheter för bevarandet av den ursprungliga mänskliga omsorgen. Att stärka professionen och se den skild från det medicinska området är därför viktigt. Författarna menar att även om sjuksköterskan själv är en viktig faktor kommer hon likväl behöva en stödjande miljö för att orka och våga agera utifrån sina värderingar som person och profession fullt ut.
Background: The nurse has, according to the description of competence and the ethical code of ICN, a responsibility to advocate the patient. The idea of advocacy was coined in the USA during the 1970s and since then it has been discussed in the literature. Advocacy means that the nurse should be able to interpret the wishes of the patient, to communicate with the patient and his/hers relatives, to assure the safety of the patient, to respect and protect the rights of the patient and to speak and act on behalf of the patient. Aim: The aim is to describe factors that affect the nurse in her role as the patient’s advocate. Method: A literature review based on 13 research reports, of which ten are qualitative and three quantitative. Result: In the analyzed material the authors’ found four factors, which in different ways affected the nurse in her role as advocate. These factors are the nurse as a person, the nursing profession, the cooperation with the doctor, and the working environment. In one of the analyzed studies the family of the patient was also found as a factor. Discussion: That the nurse herself is an important factor for the care of the patient is something that Jean Watson illustrates in her nursing theory. She argued that human care do not get the space it should have in health care but also in the rest of society and that it leads to difficulties for the preservation of the original human care. To strengthen the profession and to view it as separated from the medical area is therefore important. The authors mean that even if the nurse in herself is one important factor she will, however, need a supportive environment to be able to fully sustain and dare to act according to her values as a person and profession.

3

Johnston, Sharon 1972. "Double agent dilemma : the Canadian physician: patient advocate and social agent". Thesis, McGill University, 1999. http://digitool.Library.McGill.CA:80/R/?func=dbin-jump-full&object_id=30308.

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This thesis considers the rationalization of health care in Canada. It focuses on the conflicting roles modern physicians play in our system, acting as both patient advocate and social agent. It begins by tracing the origin of both of these duties. It then examines the ethical, professional, and legal issues which arise in the limited circumstances where front-line physicians must participate in the rationing of health care. It offers a framework for resolving the double agent dilemma and states five interlocking recommendations which are the building blocks of the resolution.

4

Johnston, Sharon. "Double agent dilemma, the Canadian physician : patient advocate and social agent". Thesis, National Library of Canada = Bibliothèque nationale du Canada, 1999. http://www.collectionscanada.ca/obj/s4/f2/dsk2/ftp03/MQ64284.pdf.

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5

Hörnfeldt, Katarina, e Ulrica Johnsson. "Hur vårdrelationen etableras preoperativt för god personcentrerad vård : En litteraturstudie med syntes från Fundamentals of Care". Thesis, Uppsala universitet, Anestesiologi och intensivvård, 2021. http://urn.kb.se/resolve?urn=urn:nbn:se:uu:diva-446670.

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Bakgrund: Vårdrelationen som etableras mellan patienten och specialistsjuksköterskan inom anestesi i det tidsbegränsade preoperativa mötet är en förutsättning för att specialist-sjuksköterskan ska kunna ge personcentrerad vård. Det har tidigare inte studerats hur vårdrelationen etableras utifrån ramverket Fundamentals of Care i den preoperativa kontexten. Syfte: Att beskriva hur vårdrelationen etableras i det tidsbegränsade preoperativa mötet mellan patienten och specialistsjuksköterskan inom anestesi utifrån Fundamentals of Care. Metod: Litteraturstudie med systematisk ansats. Deduktiv innehållsanalys enligt Elo och Kyngäs. Resultat: Studiens resultat visar hur vårdrelationen kan etableras i det preoperativa mötet, beskrivet utifrån Fundamentals of Care, vilket inte gjorts tidigare. Resultatet visade på kunskap, erfarenheter, sinnen och förmågor som anestesisjuksköterskan behövde besitta för att etablera vårdrelationen. Det som kan lyftas fram var anestesisjuksköterskans speciella kommunikationsförmåga, mentala närvaro, metoder för att lugna patienten, olika sätt att visa fysisk närvaro samt hennes simultankapacitet för att etablera vårdrelationen preoperativt. Ramverket Fundamentals of Care gjorde det möjligt att överföra tidigare forskning för att beskriva etablerandet av vårdrelationen. Fortsatt fördjupning och forskning inom detta område skulle kunna ligga till grund för praktisk vägledning för specialistsjuksköterskan inom anestesi. Slutsats: Studien visar hur det är möjligt att etablera en vårdrelation i det tidsbegränsade preoperativa mötet mellan patienten och specialistsjuksköterskan inom anestesi, för att ge personcentrerad vård. Resultatet kan ses som en introduktion eller underlag för diskussion för nyexaminerade anestesisjuksköterskor om hur hon kan etablera en vårdrelation i det preoperativa mötet med patienten.
Background: The relationship established preoperatively between the patient and the nurse anesthetic specialist is a prerequisite for the nurse specialist to give person-centered care. The establishment of the caring relationship has not earlier been investigated using the Fundamentals of Care framework in the perioperative context. Aim: To describe the establishment of the relationship between the nurse anesthetic specialist and the patient within a limited period in the preoperative setting using Fundamentals of Care. Method: Literature review with a systematic approach. The collected data was analyzed with a deductive approach according to Elo and Kyngäs. Result: The result of the study shows how the establishment of the caring relationship in the preoperative setting, described from Fundamentals of Care, which have not been done before. The result brings forth knowledge, experiences, senses, and abilities that the nurse anesthetist needed to possess to establish the caring relationship. Skills worth mentioning are her specific communication skills, her mental attendance, methods of calming the patient, different ways of showing physical presence and her simultaneous capacity for establishing the perioperative relationship. The framework Fundamental of Care itself made it possible to transfer former research to describe the establishment of a caring relationship. Furthermore, in-depth research in this area could be the basis to practical guidance for the nurse anesthetist. Conclusions: The study shows how it is possible to establish a caring relationship between the patient and the nurse anesthetist within the limited period in the preoperative setting in order to deliver person-centered care. The result can be an introduction or basis for discussion for the new graduate nurse anesthetist about the establishment of a caring relationship in the preoperative meeting with the patient.

6

Sundqvist, Ann-Sofie. "Perioperative patient advocacy : having the patient's best interests at heart". Doctoral thesis, Örebro universitet, Institutionen för hälsovetenskaper, 2017. http://urn.kb.se/resolve?urn=urn:nbn:se:oru:diva-55998.

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Patient advocacy implies taking action on someone else’s behalf, and has been described as a key element of nurses’ professional care. In the perioperative setting, it involves not only critical decision making, but also all the small things that the nurses do for the sake of the patients during their working day. Since previous research on the advocacy role of a registered nurse anesthetist (RNA) is sparse, and has not been conducted in a Swedish context, this thesis was intended to contribute to a greater understanding of advocacy in the perioperative context. The overall aim was therefore to explore the characteristics and consequences of perioperative patient advocacy (Study I), and to describe RNAs’ views of advocacy in anesthetic nursing through interviews (Study II), a questionnaire (Study III), and observations (Study IV). The synthesis of the characteristics and consequences of perioperative patient advocacy was interpreted in this thesis as the RNAs having the patient’s best interests at heart, in that they (1) had control of the situation, (2) preserved human values, and finally (3) were emotionally affected, as the results from the four studies suggested this as the core of perioperative patient advocacy. Perioperative patient advocacy is not always perceived as easy. In praxis, it is linked to the code of ethics outlined by the International Council of Nurses, which states that all registered nurses, regardless of their working context, shall respect human rights, promote health, prevent illness, and ensure that the individual receives accurate and sufficient information. This thesis elaborates on how this is done by describing how RNAs exert perioperative patient advocacy and how they interact in order to facilitate the best possible care for the patient. The results deepen the understanding of perioperative patient advocacy from the RNA’s perspective and contribute to a new insight in the RNA’s professional role.

7

Malkin, Lisa Sohl. "Patients' and significant others' satisfaction with nursing activities in oncology ambulatory settings". Thesis, The University of Arizona, 1988. http://hdl.handle.net/10150/558093.

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Hamdy, R. C., J. V. Lewis, Amber Kinser, A. Depelteau, Rebecca Copeland, T. Kendall-Wilson e K. Whalen. "Too Many Choices Confuse Patients With Dementia". Digital Commons @ East Tennessee State University, 2017. https://dc.etsu.edu/etsu-works/1231.

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Choices are often difficult to make by patients with Alzheimer Dementia. They often become acutely confused when faced with too many options because they are not able to retain in their working memory enough information about the various individual choices available. In this case study, we describe how an essentially simple benign task (choosing a dress to wear) can rapidly escalate and result in a catastrophic outcome. We examine what went wrong in the patient/caregiver interaction and how that potentially catastrophic situation could have been avoided or defused.

9

Squires, Ruelokke Violet Doreen. "Nurses' perceptions of their empowerment to be patient advocates". Thesis, National Library of Canada = Bibliothèque nationale du Canada, 1999. http://www.collectionscanada.ca/obj/s4/f2/dsk1/tape9/PQDD_0007/MQ42449.pdf.

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10

Curran, Leah Jane. "The development of new instruments to assess and predict patient involvement in medical decision-making". Connect to full text, 2006. http://hdl.handle.net/2123/4014.

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Thesis (D.C.P. / M. Sc.)--School of Psychology, Faculty of Science, University of Sydney, 2007.
Title from title screen (viewed on February 3, 2009) Degree awarded 2007; thesis submitted 2006. Submitted in fulfilment of the requirements for the degree of Doctor of Clinical Psychology/Master of Science to the School of Psychology, Faculty of Science. Includes bibliographical references. Also issued in print.

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Livros sobre o assunto "Patient Advocate":

1

Wong, Kathy. Asthma patient advocate. Riverside, Calif: HealthScouter.com/Equity Press, 2009.

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2

Wong, Kathy. Infant safety: Patient advocate. Riverside, Calif: HealthScouter, 2009.

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3

Wong, Kathy, e Jessica Crawford. Alzheimer's disease: Patient advocate. Riverside, Calif: HealthScouter / Equity Press, 2009.

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4

HealthScouter. ALS: Lou Gehrig's disease: Patient advocate. Riverside, CA: Health Scouter - Equity Press, 2009.

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5

Ontario. Evaluation Committee for the Psychiatric Patient Advocate Office. Advocacy in psychiatric hospitals: Evaluation of the Psychiatric Patient Advocate Office. [Toronto, Ont.]: Ontario Ministry of Health, 1987.

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6

Esteb, William D. Looking up: Relentless observations of a chiropractic advocate. Colorado Springs, CO: Published by Orion Associates, 1998.

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7

Esteb, William D. Chiropractic Patientology: Further observations of a chiropractic advocate. Colorado Springs, CO: Orion Associates, 1996.

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8

Pettus, Mark C. The savvy patient: The ultimate advocate for quality health care. Sterling, Va: Capital Books, 2004.

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9

Monaghan, Gerri. When a loved one falls ill: How to be an effective patient advocate. New York: Workman Publishing, 2011.

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10

Monaghan, Gerri. When a loved one falls ill: How to be an effective patient advocate. New York: Workman Pub., 2011.

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Capítulos de livros sobre o assunto "Patient Advocate":

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Busch, Rebecca Mendoza Saltiel. "Patient Advocate Defined". In Patient’s Healthcare Portfolio, 1–4. Boca Raton : Taylor & Francis, 2017.: Productivity Press, 2017. http://dx.doi.org/10.1201/9781315154800-1.

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Annas, George J. "The Patient Rights Advocate". In The Rights of Patients, 258–74. Totowa, NJ: Humana Press, 1992. http://dx.doi.org/10.1007/978-1-4612-0397-1_15.

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Scott, P. Anne. "The Nurse as Patient Advocate?" In Key Concepts and Issues in Nursing Ethics, 101–13. Cham: Springer International Publishing, 2017. http://dx.doi.org/10.1007/978-3-319-49250-6_8.

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Maurer, Maureen, Pam Dardess e Tara Bristol Rouse. "Patient and Family Engagement in the United States: A Social Movement from Patient to Advocate to Partner". In Patient Engagement, 91–128. Cham: Springer International Publishing, 2019. http://dx.doi.org/10.1007/978-3-030-14101-1_5.

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Busch, Rebecca Mendoza Saltiel. "PHP Instructors’ Guide on Patient Advocate as Teacher". In Patient’s Healthcare Portfolio, 21–24. Boca Raton : Taylor & Francis, 2017.: Productivity Press, 2017. http://dx.doi.org/10.1201/9781315154800-5.

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Ravich, Ruth. "Patient Advocacy". In Advocacy in Health Care, 51–60. Totowa, NJ: Humana Press, 1986. http://dx.doi.org/10.1007/978-1-4612-5004-3_6.

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Coman, Catie. "Patient Advocacy Organizations". In Biologic and Systemic Agents in Dermatology, 553–55. Cham: Springer International Publishing, 2018. http://dx.doi.org/10.1007/978-3-319-66884-0_49.

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Chaite, Wendy. "Patient/Family Advocacy". In Lymphedema, 573–77. London: Springer London, 2011. http://dx.doi.org/10.1007/978-0-85729-567-5_69.

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Beleffi, Elena, Paola Mosconi e Susan Sheridan. "The Patient Journey". In Textbook of Patient Safety and Clinical Risk Management, 117–27. Cham: Springer International Publishing, 2020. http://dx.doi.org/10.1007/978-3-030-59403-9_10.

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Resumo:

AbstractThe wide implementation of patient safety improvement efforts continues to face many barriers including insufficient involvement of all stakeholders in healthcare, lack of individual and organizational learning when medical errors occur and scarce investments in patient safety. The promotion of systems-based approaches offers methods and tools to improve the safety of care. A multidisciplinary perspective must include the involvement of patients and citizens as fundamental contributors to the design, implementation, and delivery of health services.The patient journey is a challenging example of using a systems approach. The inclusion of the patient’s viewpoint and experience about their health journey throughout the time of care and across all the care settings represents a key factor in improving patient safety. Patient engagement ensures that the design of healthcare services are aligned with the values, the preferences, and needs of the patient community and integrates the real-life experience and the skills of the people to enhance patient safety in the patient journey.The utmost priority to implement patient engagement is the training of patients. Therefore, training for both patients/families/advocates and health professionals is the foundation on which to build active engagement of patients and consequently an effective and efficient patient journey.The chapter offers examples of successful training courses designed to foster strategic alliances among healthcare professionals and researchers with patients and their organizations. Training of patients constitutes the first step to develop shared knowledge, co-produced projects, and the achievement of active multilevel participation of patients for the implementation of patient safety in the patient journey.

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Quale, Diane Zipursky, e Rick Bangs. "Bladder cancer patient advocacy". In Bladder cancer, 402–8. Chichester, UK: John Wiley & Sons, Ltd, 2015. http://dx.doi.org/10.1002/9781118674826.ch36.

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Trabalhos de conferências sobre o assunto "Patient Advocate":

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Stanford, Sandi. "Abstract C19: [Advocate Abstract:] Patient advocate program". In Abstracts: Tenth AACR Conference on The Science of Cancer Health Disparities in Racial/Ethnic Minorities and the Medically Underserved; September 25-28, 2017; Atlanta, GA. American Association for Cancer Research, 2018. http://dx.doi.org/10.1158/1538-7755.disp17-c19.

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Dornan, Wayne. "Abstract A87: [Advocate Abstract:] Bridging the Gap Between Science and Patient Advocacy". In Abstracts: Ninth AACR Conference on the Science of Cancer Health Disparities in Racial/Ethnic Minorities and the Medically Underserved; September 25-28, 2016; Fort Lauderdale, FL. American Association for Cancer Research, 2017. http://dx.doi.org/10.1158/1538-7755.disp16-a87.

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Ford, Peg. "Abstract LB-67: From Patient to Advocate". In Proceedings: AACR 102nd Annual Meeting 2011‐‐ Apr 2‐6, 2011; Orlando, FL. American Association for Cancer Research, 2011. http://dx.doi.org/10.1158/1538-7445.am2011-lb-67.

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Fuller, Juliana. "Abstract A91: [Advocate Abstract:] Evidence-based, human-powered, patient-centric". In Abstracts: Tenth AACR Conference on The Science of Cancer Health Disparities in Racial/Ethnic Minorities and the Medically Underserved; September 25-28, 2017; Atlanta, GA. American Association for Cancer Research, 2018. http://dx.doi.org/10.1158/1538-7755.disp17-a91.

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Clarke-Sather, Abigail R., Kelly Cobb, Catherine Maloney e Hannah Young. "Contextual Design Theory Applied to Wearables That Facilitate Kangaroo Care by Interviewing Mothers of Hospitalized Infants". In 2018 Design of Medical Devices Conference. American Society of Mechanical Engineers, 2018. http://dx.doi.org/10.1115/dmd2018-6915.

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When considering how to design medical devices considering the needs of the patient and hospital staff may seem sufficient. Hospitalized infants are patients who cannot speak or advocate for their needs; the parents and the hospital staff caring for infant patients have different roles that together are integral to an infant’s recovery. Figure 1 shows how mothers, nurses, and infants form a system of care to promote infant patient healing. In particular caregiver behaviors such as kangaroo care (KC), are dependent upon the involvement of family. KC, defined as bare skin-to-skin contact between an infant and an adult caregiver, is usually done chest-to-chest. The design of wearables for the caregivers holding the infant patient can make KC easier and be part of wearable medical device design that improves infant patient outcomes.

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Gelb, Richard H. "Abstract C18: [Advocate Abstract:] The job or work of being a cancer patient: How to advocate for yourself and a loved one". In Abstracts: Tenth AACR Conference on The Science of Cancer Health Disparities in Racial/Ethnic Minorities and the Medically Underserved; September 25-28, 2017; Atlanta, GA. American Association for Cancer Research, 2018. http://dx.doi.org/10.1158/1538-7755.disp17-c18.

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Patterson, Angie. "Abstract LB-37: Cancer patient navigators of Georgia (CPNG) advocate for cancer survivors". In Proceedings: AACR 103rd Annual Meeting 2012‐‐ Mar 31‐Apr 4, 2012; Chicago, IL. American Association for Cancer Research, 2012. http://dx.doi.org/10.1158/1538-7445.am2012-lb-37.

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Branch, Vernal, Carolyn Achenbach, Kathleen G. Ross, Wendy F. Cohn, Martin D. Yaffe, William A. Knaus e Jennifer A. Harvey. "Abstract P2-09-03: Got patient advocates? The value of patient advocate participation in a large research study to develop personalized risk-based breast cancer screening strategies". In Thirty-Seventh Annual CTRC-AACR San Antonio Breast Cancer Symposium; December 9-13, 2014; San Antonio, TX. American Association for Cancer Research, 2015. http://dx.doi.org/10.1158/1538-7445.sabcs14-p2-09-03.

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Scroggins, Mary Jackson. "Abstract SS03-03: The promise and the challenge of personalized medicine: A patient advocate perspective". In Abstracts: Sixth AACR Conference: The Science of Cancer Health Disparities; December 6–9, 2013; Atlanta, GA. American Association for Cancer Research, 2014. http://dx.doi.org/10.1158/1538-7755.disp13-ss03-03.

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Perlmutter, J., E. Frank, B. LeStage e L. Esserman. "Abstract P5-07-02: I-SPY 2 Clinical Trial: Advocate Involvement in Protocol, Informed Consent and Patient Support Materials Development". In Abstracts: Thirty-Third Annual CTRC‐AACR San Antonio Breast Cancer Symposium‐‐ Dec 8‐12, 2010; San Antonio, TX. American Association for Cancer Research, 2010. http://dx.doi.org/10.1158/0008-5472.sabcs10-p5-07-02.

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Relatórios de organizações sobre o assunto "Patient Advocate":

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Mattson, Mary Pat, e Rachel Guinn. Advocate Lutheran General Hospital Patient Tower. Landscape Architecture Foundation, 2013. http://dx.doi.org/10.31353/cs0560.

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