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Journal articles on the topic 'Aboriginal and Torres Strait Islander community-based research'

Author: Grafiati

Published: 13 September 2024

Last updated: 31 July 2025

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1

Clark (Adnyamathanha), Justine R., Jessica Buck (Kamilaroi), Amanda Richards‐Satour (Adnyamathanha and Barngarla), Louise Lyons (Jaadwa), and Alex Brown (Yuin). "Towards precision cancer medicine for Aboriginal and Torres Strait Islander cancer health equity." Medical Journal of Australia 221, no. 1 (2024): 68–73. http://dx.doi.org/10.5694/mja2.52346.

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Summary Delivering cancer control at scale for Aboriginal and Torres Strait Islander communities is a national priority that requires Aboriginal and Torres Strait Islander leadership and codesign, as well as significant involvement of the Aboriginal community‐controlled health sector. The unique genomic variation observed among Aboriginal and Torres Strait Islander peoples may have implications for standard and precision medicine. Yet, Aboriginal and Torres Strait Islander peoples are absent from, or under‐represented within, human reference genome resources, genomic studies, cancer studies, c

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McGuffog, Romany, Catherine Chamberlain, Jaqui Hughes, et al. "Murru Minya–informing the development of practical recommendations to support ethical conduct in Aboriginal and Torres Strait Islander health research: a protocol for a national mixed-methods study." BMJ Open 13, no. 2 (2023): e067054. http://dx.doi.org/10.1136/bmjopen-2022-067054.

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IntroductionConducting ethical and high-quality health research is crucial for informing public health policy and service delivery to reduce the high and inequitable burden of disease experienced by Aboriginal and Torres Strait Islander people. Ethical guidelines and principles specifically for health research with Aboriginal and Torres Strait Islander people have been developed for use since 1987. However, there has been limited examination of how these are being applied to the conduct of research.Methods and analysisMurru Minyawill be a large-scale national study to examine the implementatio

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Brinckley, Makayla-May, Sarah Bourke, Felecia Watkin Lui, and Raymond Lovett. "Knowledge translation in Aboriginal and Torres Strait Islander research contexts in Australia: scoping review protocol." BMJ Open 12, no. 7 (2022): e060311. http://dx.doi.org/10.1136/bmjopen-2021-060311.

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IntroductionKnowledge translation (KT) involves bridging the gaps between research knowledge and research application or practice, by sharing this knowledge with knowledge-users. KT is increasingly being used in research with Indigenous peoples globally to address the top-down and inappropriate research approaches commonly used in Indigenous research. Employing KT in Indigenous research in Australia is an emergent field, despite Aboriginal and Torres Strait Islander peoples having conducted KT for generations.There is limited evidence which demonstrates how KT is applied in the Aboriginal/Torr

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Henson, Connie, Boe Rambaldini, Bronwyn Carlson, Monika Wadolowski, Carol Vale, and Kylie Gwynne. "A new path to address health disparities: How older Aboriginal & Torres Strait Islander women use social media to enhance community health (Protocol)." DIGITAL HEALTH 8 (January 2022): 205520762210844. http://dx.doi.org/10.1177/20552076221084469.

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Background Digital health offers a fresh avenue to address health disparities experienced by Aboriginal and Torres Strait Islanders. Despite the scant evidence about how Aboriginal and Torres Strait Islanders access and use health technology, the Australian government has prioritised research that uses technology to enable people to manage their health and promote better health outcomes. Older Aboriginal and Torres Strait Islander women are cultural leaders in their communities, enabling them to provide valuable insights about the safety and efficacy of health care messaging. However, no resea

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Garvey, Gail, Kate Anderson, Alana Gall, et al. "What Matters 2 Adults (WM2Adults): Understanding the Foundations of Aboriginal and Torres Strait Islander Wellbeing." International Journal of Environmental Research and Public Health 18, no. 12 (2021): 6193. http://dx.doi.org/10.3390/ijerph18126193.

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Aboriginal and Torres Strait Islander people experience a greater range of health and social disadvantages compared to other Australians. Wellbeing is a culturally-bound construct, and to date, a national evidence base around the components of wellbeing for Aboriginal and Torres Strait Islander people is lacking. Understanding and measurement of wellbeing for this population is critical in achieving health equity. This paper aims to identify and describe the foundations of wellbeing for Aboriginal and Torres Strait Islander adults. This national qualitative study was underpinned by an Indigeni

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Gooda, Mick. "The research road less travelled." Microbiology Australia 30, no. 5 (2009): 169. http://dx.doi.org/10.1071/ma09169.

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If there is one thing that should be clear by now to anyone working in the area of Aboriginal and Torres Strait Islander health, it is that biomedical research carried out in isolation from the Aboriginal and Torres Strait Islander community will not significantly improve health outcomes for Australia?s Indigenous peoples.

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Wells, Shavaun, Makayla-May Brinckley, Katherine Ann Thurber, et al. "Kulay Kalingka, a national cohort study of Aboriginal and Torres Strait Islander peoples’ cancer experiences: a study protocol." BMJ Open 13, no. 5 (2023): e072045. http://dx.doi.org/10.1136/bmjopen-2023-072045.

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IntroductionAboriginal and Torres Strait Islander peoples are the First Peoples of Australia. Since settler colonisation, Aboriginal and Torres Strait Islander peoples have experienced disparities in health outcomes, including cancer, when compared with non-Indigenous Australians, including higher cancer incidence and mortality rates, and lower participation in cancer screening programmes. Data to monitor and improve outcomes are limited.Aims, method and analysisThe Kulay Kalingka Study will be a national cohort study aiming to understand Aboriginal and Torres Strait Islander people’s beliefs

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Pearce, Leilani, and Bronwyn Fredericks. "Establishing a Community-Controlled Multi-Institutional Centre for Clinical Research Excellence in Aboriginal and Torres Strait Islander Health." Australian Journal of Indigenous Education 36, S1 (2007): 121–28. http://dx.doi.org/10.1017/s1326011100004798.

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AbstractThe Queensland Aboriginal and Islander Health Council (QAIHC) lead and govern the Centre for Clinical Research Excellence (CCRE), which has a focus on circulatory and associated conditions in urban Aboriginal and Torres Strait Islander communities. The CCRE is a partnership between QAIHC and Monash University, the Queensland University of Technology, the University of Queensland, James Cook University, the National Heart Foundation, and the University of Wollongong. The establishment of the CCRE under the community-controlled model of governance is unique and presents both opportunitie

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McGuffog, Romany, Jamie Bryant, Kade Booth, et al. "Exploring the Reported Strengths and Limitations of Aboriginal and Torres Strait Islander Health Research: A Narrative Review of Intervention Studies." International Journal of Environmental Research and Public Health 20, no. 5 (2023): 3993. http://dx.doi.org/10.3390/ijerph20053993.

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High quality intervention research is needed to inform evidence-based practice and policy for Aboriginal and Torres Strait Islander communities. We searched for studies published from 2008–2020 in the PubMed database. A narrative review of intervention literature was conducted, where we identified researcher reported strengths and limitations of their research practice. A total of 240 studies met inclusion criteria which were categorised as evaluations, trials, pilot interventions or implementation studies. Reported strengths included community engagement and partnerships; sample qualities; Ab

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Salisbury, Christine. "A Health Service and Aboriginal & Torres Strait Islander Partnership to Develop and Plan Mental Health Services." Australian Journal of Primary Health 4, no. 4 (1998): 18. http://dx.doi.org/10.1071/py98058.

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The aim of this study was to examine the effects of an action research partnership between the Tweed Valley Health Service (TVHS) and the Aboriginal & Torres Strait Islander community for the development and delivery of Aboriginal & Torres Strait Islander Mental Health Services. This partnership was based upon Labonte's (1989) view of empowerment where it is suggested that to be empowered means to have increased capacity to define, analyse and act upon one's problems. It was proposed that the establishment of a 'partnership' based upon these principles would assist in operationalising

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Spurling, Geoffrey K., Chelsea J. Bond, Philip J. Schluter, Corey I. Kirk, and Deborah A. Askew. "'I'm not sure it paints an honest picture of where my health's at' – identifying community health and research priorities based on health assessments within an Aboriginal and Torres Strait Islander community: a qualitative study." Australian Journal of Primary Health 23, no. 6 (2017): 549. http://dx.doi.org/10.1071/py16131.

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Aboriginal and Torres Strait Islander health assessments are conducted annually in Australian primary care to detect risk factors, chronic diseases and implement preventive health measures. At the Inala Indigenous Health Service, health assessment data have also been used for research purposes. This research has been investigator-driven, which risks misinterpreting or ignoring community priorities compared with community-led research. The objective of this research was to learn about the Aboriginal and Torres Strait Islander community’s health priorities that could be translated into research

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Bovill, Michelle, Catherine Chamberlain, Jessica Bennett, et al. "Building an Indigenous-Led Evidence Base for Smoking Cessation Care among Aboriginal and Torres Strait Islander Women during Pregnancy and Beyond: Research Protocol for the Which Way? Project." International Journal of Environmental Research and Public Health 18, no. 3 (2021): 1342. http://dx.doi.org/10.3390/ijerph18031342.

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Strong and healthy futures for Aboriginal and Torres Strait Islander people requires engagement in meaningful decision making which is supported by evidence-based approaches. While a significant number of research publications state the research is co-designed, few describe the research process in relation to Indigenous ethical values. Improving the health and wellbeing of Aboriginal and Torres Strait Islander mothers and babies is crucial to the continuation of the oldest living culture in the world. Developing meaningful supports to empower Aboriginal and Torres Strait Islander mothers to qu

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Abbott, Penelope, Deborah Askew, Chelsea Watego, et al. "Randomised clinical trial research within Aboriginal and Torres Strait Islander primary health services: a qualitative study." BMJ Open 11, no. 12 (2021): e050839. http://dx.doi.org/10.1136/bmjopen-2021-050839.

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ObjectiveTo better understand how to undertake valuable, ethical and sustainable randomised controlled clinical trial (RCT) research within Aboriginal and Torres Strait Islander primary health services.DesignIn a qualitative approach, we utilised data collected between 2013 and 2020 during the planning and implementation of two RCTs. The data comprised agreed records of research meetings, and semistructured interviews with clinical trial stakeholders. The stakeholders were parents/carers of child participants, and site-based research officers, healthcare providers and community advisory groups

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Miller, Jenna, and Emily Berger. "A review of school trauma-informed practice for Aboriginal and Torres Strait Islander children and youth." Educational and Developmental Psychologist 37, no. 1 (2020): 39–46. http://dx.doi.org/10.1017/edp.2020.2.

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AbstractAboriginal and Torres Strait Islander people in Australia are especially vulnerable to traumatic and discriminatory experiences. However, limited literature and research has implemented and evaluated school-based interventions designed to assist Aboriginal and Torres Strait Islander children and young people to overcome their adversity and achieve their potential at school. This article reviews the literature and frameworks on school programs designed for Aboriginal and Torres Strait Islander students who have experienced trauma. The key aspects of trauma-informed programs in schools f

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Lee, Grace Yeeun, Julie Robotham, Yun Ju C. Song, et al. "Partnering with Aboriginal and Torres Strait Islander Peoples: An Evaluation Study Protocol to Strengthen a Comprehensive Multi-Scale Evaluation Framework for Participatory Systems Modelling through Indigenous Paradigms and Methodologies." International Journal of Environmental Research and Public Health 20, no. 1 (2022): 53. http://dx.doi.org/10.3390/ijerph20010053.

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The social and emotional wellbeing of young Aboriginal and Torres Strait Islander peoples should be supported through an Indigenous-led and community empowering approach. Applying systems thinking via participatory approaches is aligned with Aboriginal and Torres Strait Islander research paradigms and can be an effective method to deliver a decision support tool for mental health systems planning for Indigenous communities. Evaluations are necessary to understand the effectiveness and value of such methods, uncover protective and healing factors of social and emotional wellbeing, as well as to

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Lyall, Vivian, Sonya Egert, Natasha Reid, Karen Moritz, and Deborah Askew. "“Our Mothers Have Handed That to Us. Her Mother Has Handed That to Her”: Urban Aboriginal and Torres Strait Islander Yarning about Community Wellbeing, Healthy Pregnancies, and the Prevention of Fetal Alcohol Spectrum Disorder." International Journal of Environmental Research and Public Health 20, no. 9 (2023): 5614. http://dx.doi.org/10.3390/ijerph20095614.

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In Australia, fetal alcohol spectrum disorder (FASD) is a largely hidden disability that is currently under-recognized, under-resourced, and under- or misdiagnosed. Unsurprisingly, efforts to prevent FASD in urban Aboriginal and Torres Strait Islander communities are lacking. Further, mainstream approaches are not compatible with diverse and distinct Aboriginal and Torres Strait Islander ways of approaching family, pregnancy, and parenting life. To support the creation of culturally appropriate urban Aboriginal and Torres Strait Islander FASD prevention strategies, we sought to understand loca

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Nash, Kai, Kylie Gwynne, Yvonne Dimitropoulos, et al. "INdigenous Systems and Policies Improved and Reimagined for Ear and hearing care (INSPIRE): a multi-method study protocol." BMJ Open 14, no. 1 (2024): e079850. http://dx.doi.org/10.1136/bmjopen-2023-079850.

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IntroductionOtitis media (middle ear disease) severity and chronicity among Aboriginal and Torres Strait Islander people, as well as gaps in socioeconomic outcomes related to hearing loss, indicates a breakdown in the current ear and hearing care system. The ear and hearing care system spans multiple sectors due to long-term impacts of otitis media and hearing loss in health, education and employment, necessitating a multi-disciplinary cross-sectorial approach to ear and hearing care. Public policies shape the current ear and hearing care system and here it is argued that a critical public pol

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Guenther, John, Samantha Disbray, and Sam Osborne. "Building on ‘Red Dirt’ Perspectives: What Counts as Important for Remote Education?" Australian Journal of Indigenous Education 44, no. 2 (2015): 194–206. http://dx.doi.org/10.1017/jie.2015.20.

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The Remote Education Systems (RES) project within the Cooperative Research Centre for Remote Economic Participation (CRC-REP) has, over the last four years, gathered and analysed qualitative data directly from over 230 remote education stakeholders and from more than 700 others through surveys. The research was designed to answer four questions: (1) What is education for in remote Aboriginal and Torres Strait Islander communities?; (2) What defines ‘successful’ educational outcomes from the remote Aboriginal and Torres Strait Islander standpoint?; (3) How does teaching need to change in order

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O’Brien, Penny, Craig Sinclair, India Kinsey, et al. "Developing patient journey maps with Aboriginal and Torres Strait Islander peoples living with dementia or cognitive impairment and their carers: protocol." BMJ Open 15, no. 5 (2025): e090672. https://doi.org/10.1136/bmjopen-2024-090672.

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IntroductionAlthough Aboriginal and Torres Strait Islander peoples are increasingly living healthier and longer lives, they continue to experience a high prevalence and incidence of dementia and cognitive impairment. Navigating dementia care services is challenging, and there is limited availability of flexible, culturally secure health and community care services. The aim of this study is to use a culturally adapted patient journey mapping methodology to examine the lived experiences of Aboriginal and Torres Strait Islander Aboriginal peoples living with dementia/cognitive impairment and thei

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Rowley, Chelsea, Deanna Kalucy, Hilary Honeysett, et al. "Yalbilinya Miya (learn together): community-led program to support Aboriginal and Torres Strait Islander women through their breastfeeding journey—a protocol." BMJ Open 15, no. 5 (2025): e096288. https://doi.org/10.1136/bmjopen-2024-096288.

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IntroductionAboriginal and Torres Strait Islander women have been nurturing and sustaining babies through breastfeeding for over 65 000 years. Breastfeeding is an important practice for nutrition, culture, connection and well-being, and is associated with positive short- and long-term health and well-being outcomes for the mother and baby. Developing community-led supports that empower Aboriginal and Torres Strait Islander mothers through their breastfeeding journeys is vital for supporting the health and well-being of the next generations.Methods and analysisYalbilinya Miya is a holistic and

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McKay, Fiona H., and Stephanie L. Godrich. "Interventions to address food insecurity among Aboriginal and Torres Strait Islander people: a rapid review." Applied Physiology, Nutrition, and Metabolism 46, no. 12 (2021): 1448–58. http://dx.doi.org/10.1139/apnm-2020-1075.

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Food insecurity disproportionately impacts Aboriginal and Torres Strait Islander Australians. This review sought to investigate research and evaluations of programs and interventions implemented to address food insecurity among Aboriginal and Torres Strait Islander communities. A rapid review was conducted to collate the available research from 6 databases. The search was conducted in May 2020. Search constructs related to food insecurity, Aboriginal and Torres Strait Islander people, and Australia. Twenty-five publications were included in this review, 24 reported on an intervention, while 9

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Jacobsen, Damien. ""Hot Issue" Critical Review: The Aboriginalization of Inquiry: Tourism Research by and for Aboriginal and Torres Strait Islander People." Tourism Culture & Communication 20, no. 1 (2020): 51–56. http://dx.doi.org/10.3727/194341419x15554157596236.

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In this "hot issue" article, Jacobsen argues that even after decades of inquiry the level of Tourism Studies disconnect from Aboriginal and Torres Strait Islander people is troubling. He maintains that (relieved of Aboriginal or Torres Strait Islander voices for so long) the received literature on tourism is still dominated by non-indigenous academics who continue to forge a discourse based on "Othering." The purpose of his critical review article is to substantively engage with the disconnect that seemingly plagues inquiry about tourism for Aboriginal and Torres Strait Islander people in Aust

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Townsend, Philip. "Mobile Devices for Tertiary Study – Philosophy Meets Pragmatics for Remote Aboriginal and Torres Strait Islander Women." Australian Journal of Indigenous Education 44, no. 2 (2015): 139–49. http://dx.doi.org/10.1017/jie.2015.26.

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This paper outlines PhD research which suggests mobile learning fits the cultural philosophies and roles of Aboriginal and Torres Strait Islander women who are preservice teachers in the very remote Australian communities where the research was conducted. The problem which the research addresses is the low completion rates for two community-based Initial Teacher Education (ITE) programs in South Australia (SA) and Queensland (Qld). Over the past decade, the national completion rate of Aboriginal and Torres Strait Islander students in teacher training was 36 per cent, and in these two community

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Henson, Connie, Felicity Chapman, Gina Shepherd, et al. "Mature aged Aboriginal and Torres Strait Islander adults are using digital health technologies (original research)." DIGITAL HEALTH 8 (January 2022): 205520762211458. http://dx.doi.org/10.1177/20552076221145846.

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Background Aboriginal and Torres Strait Islander people avidly use technology for a variety of purposes. Digital health technologies offer a new way to build on Aboriginal and Torres Strait Islander peoples propensity for early adoption and innovation with technology. Only limited research has focused on mature aged adults in non-urban locations as partners in digital health research and there is no research related to wearables for health tracking for this cohort. Objective This paper provides insights into mature aged Aboriginal and Torres Strait Islander adults interest, use and trust of so

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Morseu-Diop, Ami, Tamara Butler, Kate Anderson, et al. "Stakeholder perspectives on HPV vaccination uptake among Aboriginal and Torres Strait Islander adolescents via the school immunisation programmes in Queensland: a qualitative study." BMJ Open 15, no. 6 (2025): e097518. https://doi.org/10.1136/bmjopen-2024-097518.

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IntroductionAboriginal and Torres Strait Islander women experience inequitable cervical cancer outcomes including higher incidence and mortality rates than other Australian women. Cervical cancer can be prevented through human papillomavirus (HPV) vaccination, which is primarily delivered through school immunisation programmes and found to be very effective. However, Aboriginal and Torres Strait Islander adolescents have lower rates of HPV vaccination uptake compared with non-Indigenous adolescents.ObjectivesThis study explored the perspectives and experiences of HPV vaccination programme prov

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Kennedy, Michelle, Amanual Getnet Mersha, Raglan Maddox, et al. "Koori Quit Pack mailout smoking cessation support for Aboriginal and Torres Strait Islander people who smoke: a feasibility study protocol." BMJ Open 12, no. 10 (2022): e065316. http://dx.doi.org/10.1136/bmjopen-2022-065316.

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IntroductionSmoking remains the leading preventable cause of death for Aboriginal and Torres Strait Islander people in Australia. Aboriginal and Torres Strait Islander people who smoke are more likely to make a quit attempt than their non-Aboriginal counterparts but less likely to sustain the quit attempt. There is little available evidence specifically for and by Indigenous peoples to inform best practice smoking cessation care.The provision of a free Koori Quit Pack with optional nicotine replacement therapy sent by mail may be a feasible, acceptable and effective way to access stop smoking

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Ryder, Courtney, Jacqueline H. Stephens, Shahid Ullah, et al. "Community Engagement and Psychometric Methods in Aboriginal and Torres Strait Islander Patient-Reported Outcome Measures and Surveys—A Scoping Review and Critical Analysis." International Journal of Environmental Research and Public Health 19, no. 16 (2022): 10354. http://dx.doi.org/10.3390/ijerph191610354.

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(1) Background: In healthcare settings, patient-reported outcome measures (PROMs) and surveys are accepted, patient-centered measures that provide qualitative information on dimensions of health and wellbeing. The level of psychometric assessment and engagement with end users for their design can vary significantly. This scoping review describes the psychometric and community engagement processes for PROMs and surveys developed for Aboriginal and Torres Strait Islander communities. (2) Methods: The PRISMA ScR guidelines for scoping reviews were followed, aimed at those PROMs and surveys that u

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Pegler, Emily, Gail Garvey, Lisa Fitzgerald, et al. "The Unique Experience of Intersectional Stigma and Racism for Aboriginal and Torres Strait Islander People Who Inject Drugs, and Its Effect on Healthcare and Harm Reduction Service Access." International Journal of Environmental Research and Public Health 22, no. 7 (2025): 1120. https://doi.org/10.3390/ijerph22071120.

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Aboriginal and Torres Strait Islander people who inject drugs face persistent health inequities, highlighting the need for programs that meet the needs of these groups. This study explored how intersectional stigma and discrimination affect Aboriginal and Torres Strait Islander people’s access to quality healthcare. Aboriginal and Torres Strait Islander participants aged ≥18 years who had injected drugs within the past 12 months were recruited from two regional needle and syringe programs (NSPs) and a major city NSP in Queensland, Australia. Participants completed a structured survey and yarne

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Kairuz, Camila, Kate Hunter, Keziah Bennett-Brook, et al. "Codesigning informative resources for families of Aboriginal and Torres Strait Islander children who sustained a burn injury: a protocol for a participatory action research study." BMJ Open 13, no. 5 (2023): e068530. http://dx.doi.org/10.1136/bmjopen-2022-068530.

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IntroductionParents of children hospitalised in a burn unit experience psychological trauma and later post-traumatic stress. Aboriginal and Torres Strait Islander families whose child has been admitted to a burn unit encounter additional burdens through a culturally unsafe healthcare system. Psychosocial interventions can help reduce anxiety, distress and trauma among children and parents. There remains a lack of interventions or resources that reflect Aboriginal and Torres Strait Islander people’s perspective of health. The objective of this study is to codevelop a culturally appropriate info

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Bobba, Samantha. "Ethics of medical research in Aboriginal and Torres Strait Islander populations." Australian Journal of Primary Health 25, no. 5 (2019): 402. http://dx.doi.org/10.1071/py18049.

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Conducting ethical health research in Aboriginal and Torres Strait Islander populations requires an understanding of their unique cultural values and the historical context. The assimilation of Indigenous people with the broader community through colonial policies such as the dispossession of land and forcible removal of children from their families in the Stolen Generation, deprived entire communities of their liberty. Poorly designed research protocols can perpetuate discriminatory values, reinforce negative stereotypes and stigmas and lead to further mistrust between the Indigenous communit

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Garvey, Gail, Kirsten Howard, Darren Garvey, et al. "What Matters to Aboriginal and Torres Strait Islander Youth (WM2Y): a study protocol to develop a national youth well-being measure." BMJ Open 14, no. 3 (2024): e076119. http://dx.doi.org/10.1136/bmjopen-2023-076119.

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IntroductionAdolescents face challenges associated with unprecedented environmental, social and technological changes. The impacts of colonisation, intergenerational trauma, racism and socioeconomic disadvantage intensify these challenges for many Aboriginal and Torres Strait Islander adolescents. However, Aboriginal and Torres Strait Islander adolescents also have cultural, spiritual, family and community capital that fosters their well-being.To date, little research has focused on understanding and appropriately measuring the well-being of Aboriginal and Torres Strait Islander adolescents, a

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Atkinson, Petah, Marilyn Baird, and Karen Adams. "Intersectionality Based Policy Analysis of How Racism is Framed in Medical Education Policies Guiding Aboriginal Health Curriculum." Journal of the Australian Indigenous HealthInfoNet 4, no. 2 (2023): 1–28. http://dx.doi.org/10.14221/aihjournal.v4n2.4.

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Introduction: Racism has a profound impact on health inequities for Aboriginal and Torres Strait Islander people. Australian medical schools are required to include Aboriginal and Torres Strait Islander health curriculum in their medical courses and policies have been developed to support this work. Methods: The research question was: how is racism framed in medical education policies guiding Aboriginal and Torres Strait Islander health curriculum for entry-level medical courses? Applying an Indigenous Research Paradigm and Intersectionality Based Policy Analysis, three key policies were analy

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Harrod, Mary Ellen, Sophia Couzos, James Ward, et al. "Gonorrhoea testing and positivity in non-remote Aboriginal Community Controlled Health Services." Sexual Health 14, no. 4 (2017): 320. http://dx.doi.org/10.1071/sh16046.

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Background Gonorrhoea occurs at high levels in young Aboriginal and Torres Strait Islander people living in remote communities, but there are limited data on urban and regional settings. An analysis was undertaken of gonorrhoea testing and positivity at four non-remote Aboriginal Community Controlled Health Services participating in a collaborative research network. Methods: This was a retrospective analysis of clinical encounter data derived from electronic medical records at participating services. Data were extracted using the GRHANITE program for all patients aged 15–54 years from 2009 to

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Kaladharan, Sid, Miranda E. Vidgen, John V. Pearson, et al. "Ask the people: developing guidelines for genomic research with Aboriginal and Torres Strait Islander peoples." BMJ Global Health 6, no. 11 (2021): e007259. http://dx.doi.org/10.1136/bmjgh-2021-007259.

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In health and medical research, guidelines are a set of statements and recommendations, whereby experts or stakeholders assess published literature to generate practical advice for a specific audience. This emphasis on guidelines development with expert consultation and published literature is not practical or inclusive when working in disciplines with minimal data and addressing issues that concern under-represented communities. Here we describe the process used for developing guidelines for the conduct of genomic research projects in partnership with Aboriginal and Torres Strait Islander peo

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Wotherspoon, Craig, and Cylie M. Williams. "Exploring the experiences of Aboriginal and Torres Strait Islander patients admitted to a metropolitan health service." Australian Health Review 43, no. 2 (2019): 217. http://dx.doi.org/10.1071/ah17096.

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Objective There continue to be disparate health outcomes for people who are Aboriginal and Torres Strait Islander. The aim of the present study was to measure whether there were any differences in in-patient experiences between Aboriginal and Torres Strait Islander people and those without an Aboriginal or Torres Strait Islander background. Methods Random samples of people were invited to complete a survey following admission at the hospitals at Peninsula Health, Victoria, Australia. This survey was based on the Victorian Patient Satisfaction Monitor. Open-ended questions were also asked to ga

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Whop, Lisa J., Tamara L. Butler, Julia M. L. Brotherton, et al. "Study protocol: Yarning about HPV Vaccination: a qualitative study of factors influencing HPV vaccination among Aboriginal and Torres Strait Islander adolescents in Australia." BMJ Open 11, no. 8 (2021): e047890. http://dx.doi.org/10.1136/bmjopen-2020-047890.

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IntroductionAboriginal and Torres Strait Islander women experience a higher burden of cervical cancer than non-Indigenous women in Australia. Cervical cancer is preventable partly through human papillomavirus (HPV) vaccination; in Australia, this is delivered through the national school-based immunisation programme. While HPV vaccination uptake is high among Australian adolescents, there remain gaps in uptake and completion among Aboriginal and Torres Strait Islander adolescents. This study aims to gain a comprehensive understanding of the barriers and facilitators to HPV vaccination uptake an

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Porykali, Bobby, Alyse Davies, Cassandra Brooks, Hannah Melville, Margaret Allman-Farinelli, and Julieann Coombes. "Effects of Nutritional Interventions on Cardiovascular Disease Health Outcomes in Aboriginal and Torres Strait Islander Australians: A Scoping Review." Nutrients 13, no. 11 (2021): 4084. http://dx.doi.org/10.3390/nu13114084.

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Nutrition interventions can support Aboriginal and Torres Strait Islander peoples to reduce their risk of cardiovascular disease (CVD). This review examines nutritional interventions aiming to improve CVD outcomes and appraises peer-reviewed interventions using an Aboriginal and Torres Strait Islander Quality Appraisal Tool. Five electronic databases and grey literature were searched, applying no time limit. Two reviewers completed the screening, data extraction and quality assessment independently. The study quality was assessed using the South Australian Health and Medical Research Institute

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Tieman, Jennifer J., Mikaela A. Lawrence, Raechel A. Damarell, Ruth M. Sladek, and Arwen Nikolof. "LIt.search: fast tracking access to Aboriginal and Torres Strait Islander health literature." Australian Health Review 38, no. 5 (2014): 541. http://dx.doi.org/10.1071/ah14019.

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Objective To develop and validate a PubMed search filter, LIt.search, that automatically retrieves Aboriginal and Torres Strait Islander health literature and to make it publicly accessible through the Lowitja Institute website. Methods Search filter development phases included: (1) scoping of the publication characteristics of Aboriginal and Torres Start Islander literature; (2) advisory group input and review; (3) systematic identification and testing of MeSH and text word terms; (4) relevance assessment of the search filter’s retrieved items; and (5) translation for use in PubMed through th

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Cox, Adele, Pat Dudgeon, Christopher Holland, Kerrie Kelly, Clair Scrine, and Roz Walker. "Using participatory action research to prevent suicide in Aboriginal and Torres Strait Islander communities." Australian Journal of Primary Health 20, no. 4 (2014): 345. http://dx.doi.org/10.1071/py14043.

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The National Empowerment Project is an innovative Aboriginal-led community empowerment project that has worked with eight Aboriginal and Torres Strait Islander communities across Australia over the period 2012–13. The aim of the Project was to develop, deliver and evaluate a program to: (1) promote positive social and emotional well-being to increase resilience and reduce the high reported rates of psychological distress and suicide among Aboriginal and Torres Strait Islander people; and (2) empower communities to take action to address the social determinants that contribute to psychological

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Bailey, Benjamin, and Joanne Arciuli. "Indigenous Australians with autism: A scoping review." Autism 24, no. 5 (2020): 1031–46. http://dx.doi.org/10.1177/1362361319894829.

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Aboriginal and Torres Strait Islander people with autism spectrum disorder, used interchangeably with the term autism, are among the most marginalised people in Australian society. This review maps out existing and emerging themes in the research involving Indigenous Australians with autism based on a search of the peer-reviewed and grey literature. Our search identified 1457 potentially relevant publications. Of these, 19 publications met our inclusion criteria and focused on autism spectrum disorder diagnosis and prevalence, as well as carer and service provider perspectives on autism, and a

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Leckning, Bernard, Tanja Hirvonen, Gregory Armstrong, et al. "Developing best practice guidelines for the psychosocial assessment of Aboriginal and Torres Strait Islander people presenting to hospital with self-harm and suicidal thoughts." Australian & New Zealand Journal of Psychiatry 54, no. 9 (2020): 874–82. http://dx.doi.org/10.1177/0004867420924082.

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Objective: To develop guidelines for the culturally responsive psychosocial assessment of Aboriginal and Torres Strait Islander people presenting to hospital with self-harm and suicidal thoughts. Method: The Delphi method was used to establish expert consensus. A systematic search and review of relevant research literature, existing guidelines and grey literature was undertaken to develop a 286-item questionnaire. The questionnaire contained best practice statements to guide clinicians undertaking psychosocial assessment of Aboriginal and Torres Strait Islander people presenting to hospital wi

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Kurji, Jaameeta, India Shackleford, Daniel McDonough, et al. "Generating evidence to inform responsive and effective actions for Aboriginal and Torres Strait Islander adolescent health and well-being: a mix method protocol for evidence integration ‘theRoadmap Project’." BMJ Open 14, no. 7 (2024): e085109. http://dx.doi.org/10.1136/bmjopen-2024-085109.

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BackgroundAustralia does not have a national strategy for Aboriginal and Torres Strait Islander adolescent health and as a result, policy and programming actions are fragmented and may not be responsive to needs. Efforts to date have also rarely engaged Aboriginal and Torres Strait Islander people in co-designing solutions. The Roadmap Project aims to work in partnership with young people to define priority areas of health and well-being need and establish the corresponding developmentally appropriate, evidence-based actions.Methods and analysisAll aspects of this project are governed by a gro

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Fitts, Michelle S., Jennifer Cullen, Gail Kingston, Elaine Wills, and Karen Soldatic. "“I Don’t Think It’s on Anyone’s Radar”: The Workforce and System Barriers to Healthcare for Indigenous Women Following a Traumatic Brain Injury Acquired through Violence in Remote Australia." International Journal of Environmental Research and Public Health 19, no. 22 (2022): 14744. http://dx.doi.org/10.3390/ijerph192214744.

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Aboriginal and Torres Strait Islander women experience high rates of traumatic brain injury (TBI) as a result of violence. While healthcare access is critical for women who have experienced a TBI as it can support pre-screening, comprehensive diagnostic assessment, and referral pathways, little is known about the barriers for Aboriginal and Torres Strait Islander women in remote areas to access healthcare. To address this gap, this study focuses on the workforce barriers in one remote region in Australia. Semi-structured interviews and focus groups were conducted with 38 professionals from var

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Tracy, Marguerite, Bradley Freeburn, Kylie Lee, Julie Woods, and Kate Conigrave. "Review of alcohol and drug treatment for Aboriginal and Torres Strait Islander peoples." Journal of the Australian Indigenous HealthInfoNet 4, no. 1 (2023): 1–32. http://dx.doi.org/10.14221/aihjournal.v4n1.1.

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This review provides an overview of treatments for problem alcohol and other drug (AOD) use for Aboriginal and Torres Strait Islander people. It includes information on the available research and discusses core principles for providing treatment. The review outlines how effective mainstream treatment approaches can be adapted to be more suitable for Aboriginal and Torres Strait Islander ways of being or worldview. It also highlights that services, such as those offered by Aboriginal community controlled health organisations are in a unique position to offer culturally secure treatment approach

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Gwynn, Josephine, Kyra Sim, Tania Searle, Alistair Senior, Amanda Lee, and Julie Brimblecombe. "Effect of nutrition interventions on diet-related and health outcomes of Aboriginal and Torres Strait Islander Australians: a systematic review." BMJ Open 9, no. 4 (2019): e025291. http://dx.doi.org/10.1136/bmjopen-2018-025291.

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ObjectiveTo review the literature on nutrition interventions and identify which work to improve diet-related and health outcomes in Australian Aboriginal and Torres Strait Islander people.Study designSystematic review of peer-reviewed literature.Data sourcesMEDLINE, PubMed, Embase, Science Direct, CINAHL, Informit, PsychInfo and Cochrane Library, Australian Indigenous Health InfoNet.Study selectionPeer-reviewed article describing an original study; published in English prior to December 2017; inclusion of one or more of the following outcome measures: nutritional status, food/dietary/nutrient

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Butler, Danielle, Anton Clifford-Motopi, Saira Mathew, et al. "Study protocol: primary healthcare transformation through patient-centred medical homes—improving access, relational care and outcomes in an urban Aboriginal and Torres Strait Islander population, a mixed methods prospective cohort study." BMJ Open 12, no. 9 (2022): e061037. http://dx.doi.org/10.1136/bmjopen-2022-061037.

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IntroductionFor over 40 years, Aboriginal and Torres Strait Islander Community-Controlled Health Services (ACCHS) in Australia have led strategic responses to address the specific needs of Aboriginal and Torres Strait Islander populations. Globally, there has been rapid growth in urban Indigenous populations requiring an adaptive primary healthcare response. Patient-centred medical homes (PCMH) are an evidenced-based model of primary healthcare suited to this challenge, underpinned by principles aligned with the ACCHS sector—relational care responsive to patient identified healthcare prioritie

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Taylor, Kylie, Katie Brett, Elizabeth Harwood, Charlee Law, Georgia Mason, and Kristy Crooks. "COVID-19: a mixed-methods study in a local health district." Australian Journal of Emergency Management 10.47389/40, No 2 (2025): 52–65. https://doi.org/10.47389/40.2.52.

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This study explored Aboriginal and Torres Strait Islander peoples’ experiences receiving Aboriginal cultural support from a public health unit in Hunter New England Local Health District in New South Wales. Using an Indigenist research approach, an online survey was conducted as well as yarning with Aboriginal and Torres Strait Islander people who had received cultural support while in isolation during the COVID-19 pandemic. Non-Aboriginal parents and carers of Aboriginal children were also eligible. Of 3,819 eligible individuals, 70 surveys were received with 55 valid responses after excludin

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Farnbach, Sara, John Evans, Anne-Marie Eades, et al. "Process evaluation of a primary healthcare validation study of a culturally adapted depression screening tool for use by Aboriginal and Torres Strait Islander people: study protocol." BMJ Open 7, no. 11 (2017): e017612. http://dx.doi.org/10.1136/bmjopen-2017-017612.

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IntroductionProcess evaluations are conducted alongside research projects to identify the context, impact and consequences of research, determine whether it was conducted per protocol and to understand how, why and for whom an intervention is effective. We present a process evaluation protocol for the Getting it Right research project, which aims to determine validity of a culturally adapted depression screening tool for use by Aboriginal and Torres Strait Islander people. In this process evaluation, we aim to: (1) explore the context, impact and consequences of conducting Getting It Right, (2

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Dasgupta, Paramita, John R. Condon, Lisa J. Whop, et al. "Access to Aboriginal Community-Controlled Primary Health Organizations Can Explain Some of the Higher Pap Test Participation Among Aboriginal and Torres Strait Islander Women in North Queensland, Australia." Frontiers in Oncology 11 (July 28, 2021). http://dx.doi.org/10.3389/fonc.2021.725145.

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BackgroundAboriginal and Torres Strait Islander Community-Controlled Health Organisations (ACCHOs) provides culturally appropriate primary care for Aboriginal and Torres Strait Islander people in Australia. The population of North Queensland has a higher proportion of Aboriginal and Torres Strait Islander people, a greater population coverage of ACCHOs, and higher cervical screening participation than the Rest of Queensland. The association between regional differences in the use of ACCHOs for cervical screening and variations in screening participation among Aboriginal and Torres Strait Islan

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Pickard, Anita, Thomas Stubbs, Emily Carter, et al. "Aboriginal Community Controlled Organisations Leading the Way in Child Health Research." Journal of Community Health, January 20, 2025. https://doi.org/10.1007/s10900-024-01433-7.

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Abstract Historically, Aboriginal and Torres Strait Islander research in Australia has adhered to Western research paradigms and contributed to the adverse impacts of colonisation. However, recent developments driven by Aboriginal and Torres Strait Islander people and scholars, and development of ethical guidelines for research, have promoted a more inclusive and collaborative research landscape. In this study, published papers and internal documents arising from a long-term partnership between Marninwarntikura Women’s Resource Centre (MWRC) and the University of Sydney (USYD) from 2009 to 202

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