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1

Koss, Catheryn. "Encounters With Health-Care Providers and Advance Directive Completion by Older Adults." Journal of Palliative Care 33, no. 3 (2018): 178–81. http://dx.doi.org/10.1177/0825859718769099.

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Background: The Patient Self-Determination Act (PSDA) requires hospitals, home health agencies, nursing homes, and hospice providers to offer new patients information about advance directives. There is little evidence regarding whether encounters with these health-care providers prompt advance directive completion by patients. Objective: To examine whether encounters with various types of health-care providers were associated with higher odds of completing advance directives by older patients. Method: Logistic regression using longitudinal data from the 2012 and 2014 waves of the Health and Re
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Murphy, Sheila T., Joycelynne M. Palmer, Stanley Azen, Gelya Frank, Vicki Michel, and Leslie J. Blackhall. "Ethnicity and Advance Care Directives." Journal of Law, Medicine & Ethics 24, no. 2 (1996): 108–17. http://dx.doi.org/10.1111/j.1748-720x.1996.tb01843.x.

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Advance care directives for health care have been promoted as a way to improve end-of-life decision making. These documents allow a patient to state, in advance of incapacity, the types of medical treatments they would like to receive (a living will), to name a surrogate to make those decisions (a durable power of attorney for health care), or to do both. Although studies have shown that both physicians and patients generally have positive attitudes about the use of these documents, relatively few individuals have actually completed one.What underlies this discrepancy between attitudes and beh
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3

Barnhart, Jacquelyn, Stacy Wells, Tasha Harris, and Banu Symington. "Improving end of life care with advance care planning in a rural cancer center." Journal of Clinical Oncology 39, no. 15_suppl (2021): e18637-e18637. http://dx.doi.org/10.1200/jco.2021.39.15_suppl.e18637.

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e18637 Background: We discovered four out of five Medical Oncology patients admitted to the hospital December 2019 and January 2020 were discharged to hospice and died within a week. None of those patients had advance directives. In November and December 2019, all oncology patient charts were reviewed and only 7% (12/174) had advance directives. We believe an established advance directive could have helped avoid unnecessary hospitalization, improved end of life care and reduced wasteful health care costs. This led to the question: Would process changes in a rural cancer center lead to an incre
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Takeshita, Yae, Mika Ikeda, Sayaka Sone, and Michiko Moriyama. "The Effect of Educational Intervention regarding Advance Care Planning for Advance Directives." Health 07, no. 08 (2015): 934–45. http://dx.doi.org/10.4236/health.2015.78111.

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5

Vuckovich, Paula K. "Psychiatric Advance Directives." Journal of the American Psychiatric Nurses Association 9, no. 2 (2003): 55–59. http://dx.doi.org/10.1016/107839030392003.

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Psychiatric advance directives (PADs) have been legally defined in 12 states and implemented in all but 9. PADs may prevent unwanted treatment and identify preferred treatment. They may also allow mentally ill persons to exercise autonomous control over care even during periods of illness-induced incompetence. PADs can be beneficial for intermittently psychotic patients who have a trusted health care provider and a surrogate decision maker. Because of the growing interest in the use of PADs, nurses should be informed about the intended purposes, benefits, and drawbacks of them.
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Lynn, Theresa, Amy Curtis, and Mary D. Lagerwey. "Association Between Attitude Toward Death and Completion of Advance Directives." OMEGA - Journal of Death and Dying 74, no. 2 (2016): 193–211. http://dx.doi.org/10.1177/0030222815598418.

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Advance directives provide health-care instruction for incapacitated individuals and authorize who may make health-care decisions for that individual. Identified factors do not explain all variance related to advance directive completion. This study was an analysis of an association between advance directive completion and death attitudes. Surveys that included the Death Attitude Profile—Revised were completed anonymously. Comparisons of means, chi-square, and logistic regression tests were conducted. Among individuals who did not consider themselves religious, the mean death avoidance attitud
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&NA;, &NA;. "Can Advance Directives Cut Health Care Costs?" AJN, American Journal of Nursing 94, no. 5 (1994): 9–10. http://dx.doi.org/10.1097/00000446-199405000-00004.

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8

Bravo, Gina, Marie-France Dubois, and Mariane Pâquet. "Advance Directives for Health Care and Research." Alzheimer Disease & Associated Disorders 17, no. 4 (2003): 215–22. http://dx.doi.org/10.1097/00002093-200310000-00004.

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9

Menikoff, Jerry A., Greg A. Sachs, and Mark Siegler. "Beyond Advance Directives — Health Care Surrogate Laws." New England Journal of Medicine 327, no. 16 (1992): 1165–69. http://dx.doi.org/10.1056/nejm199210153271612.

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10

Inoue, Megumi, Emily Ihara, and Albert Terrillion. "Making Your Wishes Known: Who Completes an Advance Directive and Shares It With Their Health Care Team or Loved Ones?" Journal of Applied Gerontology 38, no. 12 (2017): 1746–62. http://dx.doi.org/10.1177/0733464817748778.

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Using Andersen’s health behavioral model as a framework, this study examined factors associated with the completion of advance directives and the behavior of sharing them with one’s family and health care providers. Data were from the 2014 United States of Aging Survey ( N = 1,153; aged 60 or older), and multinomial logistic regression was used for analysis. We found that 73% of respondents had advance directives. However, 28% have not shared their advance directives with anyone. The sense of having completed a great deal of preparation for the future and the number of illnesses were found to
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Neuman, Karen, and Lois Wade. "Advance Directives." Social Work in Health Care 28, no. 3 (1999): 39–54. http://dx.doi.org/10.1300/j010v28n03_03.

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12

Elpern, EH, SB Yellen, and LA Burton. "A preliminary investigation of opinions and behaviors regarding advance directives for medical care." American Journal of Critical Care 2, no. 2 (1993): 161–67. http://dx.doi.org/10.4037/ajcc1993.2.2.161.

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BACKGROUND: Advance directives are a means of promoting patient autonomy in end-of-life decisions but are used infrequently. A recent federal law requires healthcare organizations to provide information to patients about advance directives. This study explored attitudes and behaviors related to the use of advance directives in three areas: familiarity with advance directives, reasons for completing or not completing advance directives and preferences for receiving information about advance directives. METHODS: A questionnaire was administered by personal interview to a nonrandomized convenienc
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13

Van Leuven, Karen. "Advance Care Planning in Healthy Older Adults." Californian Journal of Health Promotion 9, no. 2 (2011): 6–14. http://dx.doi.org/10.32398/cjhp.v9i2.1432.

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This article reports the secondary analysis of a qualitative study that examined the beliefs, values, lifestyles and health status of adults at least 75 years old (N=18). An unanticipated finding was that all participants who self-identified as healthy (N=14) had in place advance directives which dictated their end-of-life wishes. In contrast, participants who self-identified as fair or poor health (N=4) did not have advance directives (N=4). These "healthy" older adults also differed substantially from their counterparts in the degree in which they were socially engaged in their community and
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Cervantez, Sherri Rauenzahn, Sadiyah Hotakey, Amanda Hernandez, Stephanie Warren, Jennifer Quintero, and Cesar Garcia. "Synchronizing advance directives among patients across a health system." Journal of Clinical Oncology 38, no. 29_suppl (2020): 233. http://dx.doi.org/10.1200/jco.2020.38.29_suppl.233.

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233 Background: Advance directives (ADs) are legal tools that direct treatment or decision making and appoint a surrogate decision-maker (health care proxy). The presence of ADs is associated with decreased rates of hospitalization, use of life-sustaining treatment, and deaths in a hospital setting. Additionally, completed ADs lead to increased use of hospice or palliative care, more positive family outcomes, improved quality of life for patients, and reduced costs for healthcare. Despite the benefits of advance care planning, only 18-36% of adults have completed advance care plans. The aims o
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Gilbert, Julia, and Jane Boag. "Nonstandard Advance Health Care Directives in Emergency Departments." Advanced Emergency Nursing Journal 40, no. 4 (2018): 324–27. http://dx.doi.org/10.1097/tme.0000000000000214.

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16

Velasco-Sanz, T. R., and E. Rayón-Valpuesta. "Advance directives in intensive care: Health professional competences." Medicina Intensiva (English Edition) 40, no. 3 (2016): 154–62. http://dx.doi.org/10.1016/j.medine.2015.04.003.

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17

Flanagan, Abigail. "Deciding in Advance." Clinical Scholars Review 8, no. 2 (2015): 231–34. http://dx.doi.org/10.1891/1939-2095.8.2.231.

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Discussions about advance directives should begin before a hospitalization occurs, yet are sometimes initiated at the time of imminent death or during a life-altering medical event. A lack of knowledge in the general public perpetuates this practice because most people do not think about end-of-life choices and do not want to discuss the topic. Yet, family members naturally undertake surrogacy but often find themselves ill equipped to handle the moral and ethical situations that arise. Hence, it is important that health care providers engage patients to consider the completion of health care p
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18

D‘Amore, J. D., S. L. Jones, D. F. Sittig, R. B. Ness, and N. M. Wood. "Death, Taxes and Advance Directives." Applied Clinical Informatics 05, no. 02 (2014): 589–93. http://dx.doi.org/10.4338/aci-2013-12-ie-0099.

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SummarySuboptimal care at the end-of-life can be due to lack of access or knowledge of patient wishes. Ambiguity is often the result of non-standardized formats. Borrowing digital technology from other industries and using existing health information infrastructure can greatly improve the completion, storage, and distribution of advance directives. We believe several simple, low-cost adaptations to regional and federal programs can raise the standard of end-of-life care. Citation: Wood NM, D’Amore JD, Jones SL, Sittig DF, Ness RB. Death, taxes and advance directives. Appl Clin Inf 2014; 5: 589
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Andorno, Roberto, Susanne Brauer, and Nikola Biller-Andorno. "Advance Health Care Directives: Towards a Coordinated European Policy?" European Journal of Health Law 16, no. 3 (2009): 207–27. http://dx.doi.org/10.1163/157180909x453053.

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AbstractThe aim of this paper is to compare the different existing approaches to advance health care directives within the European context, and to explore the possibility of reaching a deeper consensus among countries on this subject. To this end, it first discusses the shortcomings of Article 9 of the Council of Europe's Biomedicine Convention. Second, it offers a comparative analysis of the legal status of advance directives in a number of European countries. Finally, it presents the conclusions of an international interdisciplinary workshop focused on this topic that was held in Zurich in
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Michael, Mary Chi. "533 - “Agitation and End-of-Life: Towards an Advance Directive that Prepare for Agitation and Behavioral Symptoms in Alzheimer’s Disease”." International Psychogeriatrics 33, S1 (2021): 77–78. http://dx.doi.org/10.1017/s1041610221002283.

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AbstractAdvance Directives provide legal documentation of a person’s wishes regarding medical treatment and care, allowing people and their families to decide in advance how care and treatment should be provided at end-of-life when a person is no longer capable of making independent decisions. For people living with advanced stages of Alzheimer’s, Advance Directives give specific, life-altering instructions to ensure a person’s will is being met. Yet Advance Directives that anticipate for the eventualities of Alzheimer’s Disease often fail to specifically prepare for the care and treatment dec
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Macedo, João Carlos, Francisca Rego, and Rui Nunes. "Perceptions, Attitudes, and Knowledge toward Advance Directives: A Scoping Review." Healthcare 11, no. 20 (2023): 2755. http://dx.doi.org/10.3390/healthcare11202755.

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(1) Background: Advance directives are an expression of a person’s autonomy regarding end-of-life care. Several studies have shown that the level of completion in countries where advance directives are legalised is low. To better understand this phenomenon, it is important to know the perceptions, attitudes, and knowledge that the population has about this instrument. The aim of this article was to explore a population’s perceptions and/or attitudes and/or knowledge toward advance directives. (2) Methods: A search was conducted in March 2023 in the ISI Web of Knowledge, Scopus, and PubMed data
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Holly, Cheryl Malahan. "Advance directives." Home Healthcare Nurse: The Journal for the Home Care and Hospice Professional 11, no. 5 (1993): 34–38. http://dx.doi.org/10.1097/00004045-199309000-00005.

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23

Hoffmann, Diane E., Sheryl Itkin Zimmerman, and Catherine J. Tompkins. "The Dangers of Directives or the False Security of Forms." Journal of Law, Medicine & Ethics 24, no. 1 (1996): 5–17. http://dx.doi.org/10.1111/j.1748-720x.1996.tb01829.x.

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During the past several years, numerous studies have been conducted regarding advance directives (that is, living wills and durable powers of attorney (DPAs) for health care). Studies have examined how many individuals have executed advance directives, who is more likely to execute such directives, and whether factors such as education, income, race, religiosity, or family status affect the likelihood of having executed an advance directive or one's willingness to do so. Studies have also investigated the effectiveness of different educational strategies aimed at increasing the number of indiv
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Mcauley, William J., Megan E. Mccutcheon, and Shirley S. Travis. "Advance Directives for Health Care among Older Community Residents." Journal of Health and Human Services Administration 30, no. 4 (2008): 402–19. http://dx.doi.org/10.1177/107937390803000404.

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Advance directives (ADs) for healthcare are useful planning tools for older people. In addition, the utilization of ADs is important for health and human services planners, administrators, and policy makers to understand because whether or not people have an AD, and what types of ADs they have can dramatically influence the treatment trajectories and the well-being of older people who can longer make decisions for themselves. Using telephone survey data with a random sample of Oklahoma residents age 60 and older, we examined the prevalence of four measures of AD use. Prior to the implementatio
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Tung, Ho-Jui, and Ming-Chin Yeh. "Use of Advance Directives in US Veterans and Non-Veterans: Findings from the Decedents of the Health and Retirement Study 1992–2014." Healthcare 11, no. 13 (2023): 1824. http://dx.doi.org/10.3390/healthcare11131824.

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Evidence shows that older patients with advance directives such as a living will, or durable power of attorney for healthcare, are more likely to receive care consistent with their preferences at the end of life. Less is known about the use of advance directives between veteran and non-veteran older Americans. Using data from the decedents of a longitudinal survey, we explore whether there is a difference in having an established advance directive between the veteran and non-veteran decedents. Data were taken from the Harmonized End of Life data sets, a linked collection of variables derived f
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Martins, Catarina Sampaio, Emanuel Cadavez, and Rui Nunes. "Advance directives in palliative care—a new tool to improve the communication between patients and caregivers?" International Journal of Palliative Nursing 29, no. 7 (2023): 344–49. http://dx.doi.org/10.12968/ijpn.2023.29.7.344.

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Background: In palliative care, caregivers frequently act as surrogate decision-makers, but their knowledge of patients' preferences for end-of-life care is sometimes scarce and incorrect. Advance Directives might be a powerful communication tool to promote the dialogue between patients and caregivers. Aims: This work aims to find evidence supporting the use of the Advance Directives documents by health practitioners as a communication tool to improve caregivers' capacity as health surrogates in palliative care. Methods: A literature review was conducted in four databases—Medline, Web of Scien
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Patel, Manali I., Jay Bhattacharya, Steven M. Asch, and James Kahn. "Do advance directives predict receipt of palliative care? An evaluation of a single-institution in the Veterans Administration health care system." Journal of Clinical Oncology 32, no. 30_suppl (2014): 203. http://dx.doi.org/10.1200/jco.2014.32.30_suppl.203.

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203 Background: Cancer-related deaths are often preceded by high utilization of non-beneficial care that may contribute to poor quality of life, adverse symptoms, and high costs. Over the past several years, there is increased attention on palliative care to limit these challenges. Yet, rates of palliative care referral at the end of life remain low, and there are few studies that evaluate why. Our objective is to study whether one potentially important factor among patients with advanced cancer, advance directives, influence referral to palliative care among patients with advanced cancer. Met
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Wareham, Pauline, Antoinette McCallin, and Kate Diesfeld. "Advance Directives: the New Zealand context." Nursing Ethics 12, no. 4 (2005): 349–59. http://dx.doi.org/10.1191/0969733005ne800oa.

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Advance directives convey consumers’ wishes about accepting or refusing future treatment if they become incompetent. They are designed to communicate a competent consumer’s perspective regarding the preferred treatment, should the consumer later become incompetent. There are associated ethical issues for health practitioners and this article considers the features that are relevant to nurses. In New Zealand, consumers have a legal right to use an advance directive that is not limited to life-prolonging care and includes general health procedures. Concerns may arise regarding a consumer’s compe
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Johnson, Claire E., Rachel Singer, Malcolm Masso, Marcus Sellars, and William Silvester. "Palliative care health professionals’ experiences of caring for patients with advance care directives." Australian Health Review 39, no. 2 (2015): 154. http://dx.doi.org/10.1071/ah14119.

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Objective To explore the health professionals’ (HPs) perceptions and experiences of advance care directives (ACDs) and advance care planning in Australian palliative care services. Methods A nationwide survey of 105 palliative care services was conducted, with two HPs from each service invited to participate. A qualitative analysis of open responses about advance care planning was undertaken. Results Sixty questionnaires were returned with open responses. Most responders were nurses (75%), aged ≥40 years (80%) and with a mean of 12 years palliative care experience. Data were grouped into four
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de Boer, Marike E., Cees M. P. M. Hertogh, Rose-Marie Dröes, Cees Jonker, and Jan A. Eefsting. "Advance directives in dementia: issues of validity and effectiveness." International Psychogeriatrics 22, no. 2 (2009): 201–8. http://dx.doi.org/10.1017/s1041610209990706.

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ABSTRACTBackground: Although advance directives may seem useful instruments in decision-making regarding incompetent patients, their validity in cases of dementia has been a much debated subject and little is known about their effectiveness in practice. This paper assesses the contribution of advance directives to decision-making in the care of people with dementia, with a special focus on non-treatment directives and directives for euthanasia.Methods: The relevant problems from the ethical debate on advance directives in cases of dementia are summarized and we discuss how these relate to what
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Bomba, Patricia A., and Daniel Vermilyea. "Integrating POLST into Palliative Care Guidelines: A Paradigm Shift in Advance Care Planning in Oncology." Journal of the National Comprehensive Cancer Network 4, no. 8 (2006): 819–29. http://dx.doi.org/10.6004/jnccn.2006.0069.

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Because predicting and outlining guidance for all possible scenarios is difficult, advance directives are rarely sufficiently precise to dictate patient preferences in specific situations as a disease progresses. Nonetheless, advance care planning is an essential process that should begin at the time of diagnosis, if not already initiated, to ensure that all patient and family rights are preserved. Communicating effectively with the patient and family and having the patient designate a surrogate decision-maker are critical. Attention must be paid to resolving conflicts among patient values and
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Holley, J. L., S. Nespor, and R. Rault. "Chronic in-center hemodialysis patients' attitudes, knowledge, and behavior towards advance directives." Journal of the American Society of Nephrology 3, no. 7 (1993): 1405–8. http://dx.doi.org/10.1681/asn.v371405.

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Forty-three chronic in-center hemodialysis patients were asked about their knowledge, attitudes, and behavior towards advance directives. The survey collected patient demographic data and assessed attitudes, knowledge, and behavior towards advance directives by agreement or disagreement with statements. Sixty-six percent of patients did not know what a health care proxy was, and 42% did not know the legal status of a living will. However, 90% of older patients (> or = 60 yr of age) understood living wills. Although 77% of the patients had discussed their wishes about life-sustaining care wi
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Koss, Catheryn S., and Tamara A. Baker. "Where There’s a Will: The Link Between Estate Planning and Disparities in Advance Care Planning by White and Black Older Adults." Research on Aging 40, no. 3 (2017): 281–302. http://dx.doi.org/10.1177/0164027517697116.

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Data from the Health and Retirement Study ( n = 6,946) were used to test whether differences in estate planning accounted for disparities in advance care planning between White and Black older adults. White participants were more likely to have advance directives after controlling for demographic, health, and financial variables. When estate planning was also controlled, the odds of having an advance directive were equal for White and Black participants. In contrast, Whites remained more likely to discuss end-of-life preferences after controlling for demographic, health, financial, and estate
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Papageorgiou, Alexia, Michael King, Anis Janmohamed, Oliver Davidson, and John Dawson. "Advance directives for patients compulsorily admitted to hospital with serious mental illness." British Journal of Psychiatry 181, no. 6 (2002): 513–19. http://dx.doi.org/10.1192/bjp.181.6.513.

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BackgroundAn advance directive is a statement of a person's preferences for treatment, should he or she lose capacity to make treatment decisions in the future.AimsTo evaluate whether use of advance directives by patients with mental illness leads to lower rates of compulsory readmission to hospital.MethodIn a randomised controlled trial in two psychiatric services in inner London, 156 in-patients about to be discharged from compulsory treatment under the Mental Health Act were recruited. The trial compared usual psychiatric care with usual care plus the completion of an advance directive. The
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Weaver, Meaghann S., Betty Anderson, Anne Cole, and Maureen E. Lyon. "Documentation of Advance Directives and Code Status in Electronic Medical Records to Honor Goals of Care." Journal of Palliative Care 35, no. 4 (2019): 217–20. http://dx.doi.org/10.1177/0825859719860129.

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Advance care planning is a process that supports conversations about the values that matter most to patients and their family members. The documentation of advance directives and code status in a patient’s electronic health record (EHR) is a critical step to ensure treatment preferences are honored in the medical care received. The current approach to advanced care planning documentation in electronic medical records often remains disparate within and across EHR systems. Without a standardized format for documentation or centralized location for documentation, advance directives and even code
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Dr., Dharmender Nehra, Savinder Singh Dr., and Pratik Kumar Dr. "Psychiatric Advance Directives: An Understanding." International Journal of Science and Healthcare Research 4, no. 1 (2019): 60–64. https://doi.org/10.5281/zenodo.3931710.

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Undoubtedly, 2017 is a watershed year for mental health professionals and sufferers; this year witnessed the historic moment of the advance of Mental Health Care Act (MHCA). The importance of this Act cannot be underestimated as it has come as a ray of hope as few rights have been given to the persons with mental illness, first time, like the right to make advance directives. Hence, it can be said that its coming is a tremendous achievement and a beacon of hope for the millions of people. It is a pivotal Act in the battle against the mental illness that also directs the public’s attentio
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Zhang, Weihua. "Older Adults Making End of Life Decisions: An Application of Roy's Adaptation Model." Journal of Aging Research 2013 (2013): 1–8. http://dx.doi.org/10.1155/2013/470812.

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Purpose. The purpose of this study was to identify variables that influenced completion of advanced directives in the context of adaptation from national data in older adults. Knowledge gained from this study would help us identify factors that might influence end of life discussions and shed light on strategies on effective communication on advance care planning.Design and Method. A model-testing design and path analysis were used to examine secondary data from 938 participants. Items were extracted from the data set to correspond to variables for this study. Scales were constructed and relia
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Foytack, Jane, and Daniel J. West. "Physician Management Guidelines for Advance Directives with Patients." OMEGA - Journal of Death and Dying 29, no. 2 (1994): 165–75. http://dx.doi.org/10.2190/7qn8-1q5g-45x9-yfth.

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There is growing concern regarding the proper implementation of advance directives. A workable model for physicians to use with patients along with appropriate guidelines is discussed in the context of the physician-patient relationship. Examined are variables involved in the establishment of guidelines for use by the physician in the office practice and inpatient settings. Key management and clinical factors for initiating and implementing an advance directive are identified for the practicing physician. Responsibility for the initiation of education regarding the advanced directive is discus
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Fong, Kristina Celeste, and Winston Chiong. "Understanding Advance Directives as a Component of Advance Care Planning." American Journal of Bioethics 20, no. 8 (2020): 67–69. http://dx.doi.org/10.1080/15265161.2020.1781974.

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Allen, Rose, and Nestor Ventura. "Advance Directives Use in Acute Care Hospitals." JONA's Healthcare Law, Ethics, and Regulation 7, no. 3 (2005): 86–91. http://dx.doi.org/10.1097/00128488-200507000-00007.

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Parekh, Rupal, Kathryn Betts Adams, and Donna Schuman. "ADVANCE DIRECTIVES: SOLO AGERS RISK OF BECOMING "UNBEFRIENDED"." Innovation in Aging 6, Supplement_1 (2022): 527. http://dx.doi.org/10.1093/geroni/igac059.2010.

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Abstract Solo agers are an at-risk population of almost 14 million older U.S. adults currently living alone (Administration for Community Living, 2018). Having been independent for most of their lives they often enter older age unprepared for declining health. Even though the numbers of solo agers are rapidly increasing with the aging of the Baby Boomer generation, research remains scant on this population (Colby & Ortman, 2014). A mounting concern facing solo agers is finding themselves “unbefriended” (i.e., having no one to act as health care proxy in the event of incapacitation due to a
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Lötjönen, Salla. "Medical Research on Patients with Dementia – the Role of Advance Directives in European Legal Instruments." European Journal of Health Law 13, no. 3 (2006): 235–61. http://dx.doi.org/10.1163/157180906778852394.

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AbstractCurrent international legal instruments recognise the use of advance directives to carry on the will of the dementing research participant beyond the boundaries of her present legal capacity. Advance directives are gaining greater recognition in patient care than in medical research, where their legal status is still somewhat unclear. In particular, the three major international documents on medical research – the Council of Europe Convention on Biomedicine and Human Rights (ETS 164), its Additional Protocol on Biomedical Research (ETS 195), and Directive 2001/20/EC on Clinical Trials
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Shewchuk, Tara Rayne. "Completing advance directives for health care decisions: Getting to yes." Psychology, Public Policy, and Law 4, no. 3 (1998): 703–18. http://dx.doi.org/10.1037/1076-8971.4.3.703.

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Zelle, Heather, Kathleen Kemp, and Richard J. Bonnie. "Advance directives in mental health care: evidence, challenges and promise." World Psychiatry 14, no. 3 (2015): 278–80. http://dx.doi.org/10.1002/wps.20268.

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Guirro, Úrsula Bueno do Prado, Fernanda de Souza Ferreira, Lorena van der Vinne, and Giovana Ferreira de Freitas Miranda. "Knowledge regarding advance directives in a teaching hospital." Revista Bioética 30, no. 1 (2022): 116–25. http://dx.doi.org/10.1590/1983-80422022301512en.

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Abstract This study evaluated the knowledge of health professionals and users regarding advance directives in a Brazilian teaching hospital. The study sample comprises 145 participants – 66.9% of them health professionals and 33.1% users. Most participants had no knowledge about advance directives, with a higher incidence among users (61.9% of professionals, 91.7% of users; p <0.001). After learning about advance directives, 97.9% of professionals and 95.8% of users ( p =0.60) stated that individuals should draft directives and that physicians were responsible for initiating the conversatio
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Bazargan, Mohsen, Sharon Cobb, Shervin Assari, and Lucy W. Kibe. "Awareness of Palliative Care, Hospice Care, and Advance Directives in a Racially and Ethnically Diverse Sample of California Adults." American Journal of Hospice and Palliative Medicine® 38, no. 6 (2021): 601–9. http://dx.doi.org/10.1177/1049909121991522.

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Background: Numerous studies have documented multilevel racial inequalities in health care utilization, medical treatment, and quality of care in minority populations in the United States. Palliative care for people with serious illness and hospice services for people approaching the end of life are no exception. It is also well established that Hispanics and non-Hispanic Blacks are more likely than non-Hispanic Whites to have less knowledge about advance care planning and directives, hospice, and palliative care. Both qualitative and quantitative research has identified lack of awareness of p
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Widdershoven, G. "Advance directives in psychiatric care: a narrative approach." Journal of Medical Ethics 27, no. 2 (2001): 92–97. http://dx.doi.org/10.1136/jme.27.2.92.

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Panjwani, Nasreen, Raisa Gul, Fauziya Ali, and Robyna Khan. "Physicians’ and Nurses’ perspectives on the importance of advance directives in tertiary care hospitals." Journal of Shifa Tameer-e-Millat University 1, no. 1 (2019): 3–9. http://dx.doi.org/10.32593/jstmu/vol1.iss1.31.

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Objective: This study aimed to explore and identify the nurses’ and physicians’ views about Advance Directives and identified their perspectives on its importance, in the context of Pakistan.
 Methodology: Using a purposive sample, six physicians and seven nurses from two tertiary care hospitals in Karachi participated in the study. Data was collected using semi structured interviews that were transcribed verbatim. The interviews were coded and categorized manually. Analysis of the data drew four categories: roles of physicians and nurses in the End of life care, challenges they faced whi
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Gomes, Paula Azambuja, and José Roberto Goldim. "Advance directives in a hospital emergency department." Revista Bioética 30, no. 1 (2022): 106–15. http://dx.doi.org/10.1590/1983-80422022301511en.

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Abstract Patient participation in planning their health care means respecting the patient’s right to self-determination. In this sense, this study aimed to examine the position of doctors working in the Hospital Emergency Service of the Hospital de Clínicas de Porto Alegre regarding patient advance directives. This is a cross-sectional study conducted with 32 physicians. Most participants (81.3%) declared to have knowledge about advance directives, but only 6.3% declared having sufficient knowledge; 87.5% were in favor of their use and the patient’s will was considered decisive in three of the
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Fusculim, Andréa Ricetti Bueno, Úrsula Bueno do Prado Guirro, Waldir Souza, and Carla Corradi-Perini. "Advance directives of will: bioethical support for ethical health issues." Revista Bioética 30, no. 3 (2022): 589–97. http://dx.doi.org/10.1590/1983-80422022303552en.

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Abstract This is an exploratory, cross-sectional study with a quantitative approach, with the participation of 143 physicians and nurses. An electronic questionnaire was applied on an online platform to analyze the current context of implementation of advance directives of will in Brazil from the perception of the participants. The results showed that professionals with training in palliative care have greater knowledge of advance directives (p<0.05) and feel easier to accept and implement them (p<0.001). Among those who answered that they were afraid to apply the advance directives (n=2
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