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1

De Leo, Diego, Benedetta Congregalli, Annalisa Guarino, Josephine Zammarrelli, Anna Valle, Stefano Paoloni, and Sabrina Cipolletta. "Communicating Unexpected and Violent Death: The Experiences of Police Officers and Health Care Professionals." International Journal of Environmental Research and Public Health 19, no. 17 (September 3, 2022): 11030. http://dx.doi.org/10.3390/ijerph191711030.

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Background: The notification of unexpected and violent death represents a challenging experience for police officers and health workers. These professionals are exposed to very intense emotions during this task. Aim: We aimed to investigate the degree of preparation, and the emotions and attitudes of police officers and health professionals while communicating such a death. Method: An ad hoc online questionnaire was created and disseminated through Qualtrics software. The participants were recruited through the institutional channels of Police, the College of Physicians, the ONG De Leo Fund an
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Gearing, Amanda. "Post-disaster recovery is a marathon, not a sprint: The need for a state-sponsored recovery scheme." Pacific Journalism Review : Te Koakoa 24, no. 1 (July 17, 2018): 52–68. http://dx.doi.org/10.24135/pjr.v24i1.402.

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This study explores the recovery experiences of survivors of a flash flood event, five years after a natural disaster in South East Queensland. In-depth interviews were conducted with 33 of the original cohort of 120 post-disaster interviewees who experienced sudden traumatic bereavement and/or their own near-death experience. The data reveals that many of the survivors and rescuers were in worse—or far worse—situations than they had been in the weeks and months immediately after the disaster. Interviewees identified the worsening of their situation as being caused by systems failures by civil
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Dennis, Brittany, Meredith Vanstone, Marilyn Swinton, Daniel Brandt Vegas, Joanna C. Dionne, Andrew Cheung, France J. Clarke, et al. "Sacrifice and solidarity: a qualitative study of family experiences of death and bereavement in critical care settings during the pandemic." BMJ Open 12, no. 1 (January 2022): e058768. http://dx.doi.org/10.1136/bmjopen-2021-058768.

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BackgroundPandemic-related restrictions are expected to continue to shape end-of-life care and impact the experiences of dying hospitalised patients and their families.ObjectiveTo understand families’ experiences of loss and bereavement during and after the death of their loved one amidst the SARS-CoV-2 (COVID-19) pandemic.DesignQualitative descriptive study.SettingThree acute care units in a Canadian tertiary care hospital.ParticipantsFamily members of 28 hospitalised patients who died from March–July 2020.Main outcome measuresQualitative semistructured interviews conducted 6–16 months after
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Antinienė, Dalia, and Žydrūnė Kaklauskaitė. "“What is worse than death?”: experience of critical events among physicians." Baltic Journal of Sport and Health Sciences 4, no. 111 (2018): 2–11. http://dx.doi.org/10.33607/bjshs.v4i111.672.

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Background. It is noticeable that doctors’ avoidant behavior while dealing with emotional consequences of critical events not only lowers physician’s quality of sleep (Kahn, Sheppes, & Sadeh, 2013), brings them less satisfaction with the results of their work (Gleichgerrcht & Decety, 2013), but also worsens medical care as they provide poorer services related to the patient (Austin Saylor, & Finley, 2017; Meier, Back, & Morrison, 2001). The lack of scientific publications shows that this topic is underresearched and relevant. The purpose of the study is to reveal physicians’ ex
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Kwilecki, Susan. "Twenty-First-Century American Ghosts: The After-Death Communication—Therapy and Revelation from beyond the Grave." Religion and American Culture: A Journal of Interpretation 19, no. 1 (2009): 101–33. http://dx.doi.org/10.1525/rac.2009.19.1.101.

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AbstractThis paper examines a recent arrival on the American pop cultural scene, a type of ghost encounter called After-Death Communications (ADCs). Delivered in dreams, visions, voices, odors, coincidences, etc., these cheerful greetings from deceased loved ones help bereaved survivors cope with their loss. Since the Enlightenment, spirits of the dead have become increasingly irrelevant to collective life. The new phantoms, however, are assigned roles in the family, health, and faith. How has this occurred? Strands of a complicated process are delineated, including medical origins in the bere
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Cawley, Paul, and Ela Chakkarapani. "Fifteen-minute consultation: Therapeutic hypothermia for infants with hypoxic ischaemic encephalopathy—translating jargon, prognosis and uncertainty for parents." Archives of disease in childhood - Education & practice edition 105, no. 2 (July 10, 2019): 75–83. http://dx.doi.org/10.1136/archdischild-2017-314116.

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Hypoxic ischaemic encephalopathy may lead to death or severe long-term morbidity. Therapeutic hypothermia (TH) increases survival without impairments in childhood, but prognostic uncertainty may remain for years after birth. Clear and accurate communication is imperative but challenging. This article explores the predictive value of routinely performed assessments during TH, as well as the qualitative research relating to parental experience. This article will benefit paediatric trainees, consultants and nurse practitioners in providing: (1) the background information needed for initiating a c
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Waldrop, Deborah P., Robert A. Milch, and Judith A. Skretny. "Understanding Family Responses to Life-Limiting Illness: In-depth Interviews with Hospice Patients and Their Family Members." Journal of Palliative Care 21, no. 2 (June 2005): 88–96. http://dx.doi.org/10.1177/082585970502100204.

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Understanding family dynamics is a key component in providing comprehensive care for persons with progressive illnesses and their caregivers. The purpose of this study was to investigate what families experience during an advancing illness and to describe their patterns of response. In-depth interviews (n=108) were conducted with families two weeks after hospice admission. Interviews were tape recorded, transcribed, and analyzed using qualitative methods. Six modes were distilled: reactive (illness generates intense responses), advocacy (vulnerability ignites assertive actions), fused (illness
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Novita, Regina Vidya Trias. "Caring Experience of Childbirth Primipara Undergone Emergency Cesarean Section: A Systematic Review." Jurnal Ilmu Keperawatan Maternitas 2, no. 1 (May 28, 2019): 25. http://dx.doi.org/10.32584/jikm.v2i1.285.

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Introduction: Childbirth is natural phenomenon. The statement ‘fear of death’ and ‘losing the child’ is manifest childbirth among the primipara (Nakano et al, 2012). Childbirth among the primipara manifest by ‘fear of death’ and ‘losing the child’. Even the mother was happy met her baby, but negative feelings, such as fear, guilt, or anger could lead their memories of the birth (Ryding, 1998). The problems during childbirth process can be affected both of the mother’s health and baby in the future. Even birth by EmCS, women could be helped to have more positive chilbirth experiences (Ayers et
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Vähäkangas, Auli, Suvi-Maria Saarelainen, and Jonna Ojalammi. "The Search for Meaning in Life Through Continuing and/or Transforming the Bond to a Deceased Spouse in Late Life." Pastoral Psychology 71, no. 1 (October 9, 2021): 43–59. http://dx.doi.org/10.1007/s11089-021-00979-w.

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AbstractBereavement is an ongoing process of negotiation and meaning-making in which widows and widowers make sense of the changed nature of their relationship with their deceased spouse. We analyzed the experiences of meaning in life among older widows and widowers (aged 65+) using interpretative phenomenological analysis (IPA; see Smith et al. in Interpretative phenomenological analysis: Theory, method and research, Sage, 2009), with the following question: How do widows and widowers search for meaning through continuing and/or transforming their bond to their deceased spouse? The results de
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Anderson, Natalie, Julia Slark, and Merryn Gott. "Unsuccessful, Unwanted, and Unwarranted Resuscitation: Exploring Ambulance Personnel Preparation and Support for Death in the Field." Prehospital and Disaster Medicine 34, s1 (May 2019): s54—s55. http://dx.doi.org/10.1017/s1049023x19001262.

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Introduction:In many countries, ambulance personnel are authorized to start or stop resuscitation efforts in accordance with clinical guidelines. Research shows that decisions to withhold or terminate resuscitation and manage patient death scenes can be particularly challenging.Aim:To identify preparation and support mechanisms for ambulance personnel who are authorized to withhold or terminate resuscitation efforts, and manage patient death in the field.Methods: A scoping review provided an overview of international research in this area. A qualitative exploratory study was then undertaken. F
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Umaretiya, Puja J., Arielle Spellun, and Angela Marie Feraco. "Describing the pediatric resident experience in caring for dying patients." Journal of Clinical Oncology 37, no. 31_suppl (November 1, 2019): 51. http://dx.doi.org/10.1200/jco.2019.37.31_suppl.51.

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51 Background: Cancer remains the leading cause of childhood death beyond infancy. Though growing subspecialty palliative care provides expertise in caring for dying children, all pediatricians encounter dying patients and should feel adequately prepared to participate in their care. Clinicians who feel insufficiently trained in communication or end-of-life care are more likely to distance themselves from seriously ill patients and report higher levels of distress and burnout. Pediatric residents are often responsible for the frontline care of dying children in the hospital and yet, most pedia
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Morris, Sue Ellen, and Susan Block. "Lessons from bereaved families: Insights about how the care of patients impacts bereavement." Journal of Clinical Oncology 35, no. 31_suppl (November 1, 2017): 87. http://dx.doi.org/10.1200/jco.2017.35.31_suppl.87.

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87 Background: Feedback from bereaved families, including surveys of family members’ experiences during the patient’s illness and final days, can provide important insights into ways to improve the care of patients with advanced illness and their families. Methods: A convenience sample of 140 bereaved family members from Dana-Farber Cancer Institute (DFCI) completed a survey developed by the authors about their bereavement experiences. Families were asked to describe ways in which the clinical team was helpful in dealing with their loss; what they wished the clinical team had done prior to the
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De Leo, Diego, Annalisa Guarino, Benedetta Congregalli, Josephine Zammarrelli, Anna Valle, Stefano Paoloni, and Sabrina Cipolletta. "Receiving Notification of Unexpected and Violent Death: A Qualitative Study of Italian Survivors." International Journal of Environmental Research and Public Health 19, no. 17 (August 28, 2022): 10709. http://dx.doi.org/10.3390/ijerph191710709.

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(1) Background: The loss of a significant person can be especially traumatic when death comes without warning and is due to causes such as suicide, murder and accidents. The way an individual is informed about the loss can affect the way of adapting to the loss and the quality of life of survivors. Communication modalities of the notifier may deeply influence the bereavement process. Aim: The present investigation aimed to explore the experience of those who received communication of such a type of death by a professional figure. (2) Method: Snowball sampling was used to recruit the participan
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Sweeney, Rory, Ben McNaughten, Andrew Thompson, Lesley Storey, Paul Murphy, and Thomas Bourke. "ACTup: advanced communication training simulation enhanced by actors trained in the Stanislavski system." BMJ Simulation and Technology Enhanced Learning 7, no. 1 (May 10, 2020): 35–37. http://dx.doi.org/10.1136/bmjstel-2019-000553.

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Strong communication, empathy and interpersonal skills are crucial to good clinical practice. Actors trained in interpretations of the Stanislavski system draw on their own life experience to develop the character. We hypothesised that simulation enhanced by trained actors would be an ideal way for our senior trainees to develop advanced communication skills. We developed a communication training course based on challenging situations which occur in paediatrics like child death and safeguarding. Actors were briefed and invited to develop characters that would behave and respond as a parent/car
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Bloomer, Melissa J., and Catherine Walshe. "Smiles behind the masks: A systematic review and narrative synthesis exploring how family members of seriously ill or dying patients are supported during infectious disease outbreaks." Palliative Medicine 35, no. 8 (August 18, 2021): 1452–67. http://dx.doi.org/10.1177/02692163211029515.

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Background: Infection control measures during infectious disease outbreaks can have significant impacts on seriously ill and dying patients, their family, the patient-family connection, coping, grief and bereavement. Aim: To explore how family members of patients who are seriously ill or who die during infectious disease outbreaks are supported and cared for during serious illness, before and after patient death and the factors that influence family presence around the time of death. Design: Systematic review and narrative synthesis. Data sources: CINAHL, Medline, APA PsycInfo and Embase were
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Abolghasemi, Hassan, Mohammad H. Radfar, Morteza Tabatabaee, Nasim S. Hosseini-Divkolayee, and Frederick M. Burkle. "Revisiting Blood Transfusion Preparedness: Experience from the Bam Earthquake Response." Prehospital and Disaster Medicine 23, no. 5 (October 2008): 391–94. http://dx.doi.org/10.1017/s1049023x00006117.

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AbstractBlood transfusion plays a critical role in the provision of medical care for disasters due to man-made and natural hazards. Although the short-term increase in blood donations following national disasters is well-documented, some aspects of blood transfusion during disasters remain under study. The 2003 earthquake in Bam, Iran resulted in the death of >29,000 people and injured 23,000. In total, 108,985 blood units were donated, but only 21,347 units (23%) actually were distributed to hospitals around the country. Kerman Province, the site of the disaster, received 1,231 (1.3%) of t
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Oosterman, Allison. "Malcolm Ross and the Samoan ‘troubles’ of 1899." Pacific Journalism Review : Te Koakoa 14, no. 2 (September 1, 2008): 163–82. http://dx.doi.org/10.24135/pjr.v14i2.950.

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New Zealand journalist Malcolm Ross was a witness to the international rivalries over Samoa between Germany, Britain and the United States, which came to a head in 1899. Civil war had broken out after the death of King Malietoa Laupepa in August 1898 over who would be his successor. The United States and Britain stepped in and supported Laupepa’s son while Germany supported a rival claimant, Mataafa. Malcolm Ross went to Samoa in late January to report on the ‘troubles’ for three New Zealand daily newspapers, the Otago Daily Times, The Press and the Evening Post. The Samoan trip was Ross’s fir
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Behrens, Brett C., and Matthew R. Sanders. "Prevention of Marital Distress: Current Issues in Programming and Research." Behaviour Change 11, no. 2 (June 1994): 82–93. http://dx.doi.org/10.1017/s0813483900004599.

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Marital dissatisfaction is the most common presenting problem in adults seeking psychological services and is rated as the second most severe stress adults can experience after a death in the family. Almost every married couple is, at some time, at risk for marital distress, conflict, separation, and divorce and for the resulting stress on themselves and their children. Traditionally, theory and practice have focused on tertiary prevention of marital distress (i.e., marital therapies). However, marital therapy has limited efficacy and accesses only limited numbers of couples. Poor communicatio
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Pascual-Ramos, Virginia, Irazú Contreras-Yáñez, Cesar Alejandro Arce Salinas, Miguel Angel Saavedra Salinas, Mónica Vázquez del Mercado Del Mercado, Judith López Zepeda, Sandra Muñoz López, et al. "Evaluation of medical ethics competencies in rheumatology: local experience during national accreditation process." Journal of Medical Ethics 45, no. 12 (October 11, 2019): 839–42. http://dx.doi.org/10.1136/medethics-2019-105717.

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IntroductionRheumatologists are the primary healthcare professionals responsible for patients with rheumatic diseases and should acquire medical ethical competencies, such as the informed consent process (ICP). The objective clinical structured examination is a valuable tool for assessing clinical competencies. We report the performance of 90 rheumatologist trainees participating in a station designed to evaluate the ICP during the 2018 and 2019 national accreditations.MethodsThe station was validated and represented a medical encounter in which the rheumatologist informed a patient with syste
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Pooler, Charlotte, Janice Richman-Eisenstat, and Meena Kalluri. "Early integrated palliative approach for idiopathic pulmonary fibrosis: A narrative study of bereaved caregivers’ experiences." Palliative Medicine 32, no. 9 (July 30, 2018): 1455–64. http://dx.doi.org/10.1177/0269216318789025.

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Background: Idiopathic pulmonary fibrosis has an uncertain and rapid trajectory after diagnosis. Palliative care is rarely utilized, although both patients and caregivers experience a distressingly high symptom burden. Most patients die in hospital. Aim: The purpose of this study was to explore bereaved caregivers’ experiences and perceptions of an early integrated palliative approach implemented at a Multidisciplinary Interstitial Lung Disease Clinic. Design: A narrative approach was used, with thematic and content analysis of open-ended interviews. Setting/participants: The clinic is located
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Al-haddad, Muhammad, Ibrahim M. Alananzeh, Heidi Green, Albara Alomari, and Ritin Fernandez. "Sexual experiences of cancer survivors: A qualitative study in Jordan." PLOS ONE 17, no. 8 (August 31, 2022): e0271264. http://dx.doi.org/10.1371/journal.pone.0271264.

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Background In Jordan, cancer is the second leading cause of death after cardiac disease. The impact of cancer on sexual relationships is a taboo subject and hence, such issues are underreported research among Jordanian people examining unmet needs. Aim To examine the experiences and preferences of Jordanian cancer survivors related to communication regarding their sexual needs. Methods Qualitative study conducted between May and June 2020 using semi-structured face-to-face interviews using the snow-balling approach for recruitment. Participants were recruited until data saturation was obtained
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VESA, COSMIN MIHAI, EMILIA SEVERIN, MARIUS BEMBEA, AMORIN REMUS POPA, ALINA SKLERNIACOF, CLAUDIA JURCA, KINGA KOZMA, et al. "Congenital diaphragmatic hernia: a retrospective study regarding the clinical experience of Bihor County Genetics Center." Romanian Biotechnological Letters 26, no. 3 (April 11, 2021): 2671–78. http://dx.doi.org/10.25083/rbl/26.3/2671-2678.

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Congenital diaphragmatic hernia is an abnormality of embryologic development characterized by the persistence of communication between the thoracic and abdominal cavities, followed by an extremely high death rate despite medical progress. In Bihor county, according to a retrospective analysis of patient records from the Regional Center of Genetics, 30 children were diagnosed with congenital diaphragmatic hernia over a span of 28 years, from 1990 to 2018, most being male (73.3%). Predominant were the complex congenital diaphragmatic cases, meaning the cases of diaphragmatic hernia associated wi
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Sulistini, Rumentalia, Musonathul Khasifah, and Hanna DL Damanik. "Kekuatan Genggaman Tangan pada Pasien Post Stroke." Jurnal Surya Medika 6, no. 2 (February 15, 2021): 1–4. http://dx.doi.org/10.33084/jsm.v6i2.1533.

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Stroke is a loss of brain function caused by the cessation of blood supply in part of the brain. Death of brain tissue due to stroke can cause muscle weakness in the affected limb such as fingers. This condition affects the ability to move and the quality of life of patients. Patients not only experience paralysis but also experience cognitive impairment, communication disorders, and visual field disorders or deficits in perception. Aims this study was to describe handgrip strength The average age of respondents was 60.5 years with the youngest age 41 years and 80 years of age. The average str
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Hedstrom, Anna B., Esther M. Choo, Keshet Ronen, Brenda Wandika, Wenwen Jiang, Lusi Osborn, Maneesh Batra, et al. "Risk factors for stillbirth and neonatal mortality among participants in Mobile WACh NEO pilot, a two-way SMS communication program in Kenya." PLOS Global Public Health 2, no. 7 (July 21, 2022): e0000812. http://dx.doi.org/10.1371/journal.pgph.0000812.

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Globally, 2.5 million neonates die and 2 million more are stillborn each year; the vast majority occur where access to life-saving care is limited. High quality, feasible interventions are needed to reach, educate and empower pregnant women and new mothers to improve care-seeking behaviors. Mobile WACh (Mobile solutions for Women’s and Children’s health) NEO is a human-computer hybrid mobile health (mHealth) system that allows for two-way short message service (SMS) communication between women and healthcare workers during the peripartum period. We performed a secondary prospective cohort anal
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Berry, Philip, Sreelakshmi Kotha, Giovanni Tritto, and Sabina DeMartino. "A three-tiered approach to investigating patient safety incidents in endoscopy: 4-year experience in a teaching hospital." Endoscopy International Open 09, no. 08 (July 16, 2021): E1188—E1195. http://dx.doi.org/10.1055/a-1479-2556.

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Abstract Background and study aims Patient safety incidents (PSIs) in endoscopy, although infrequent, can lead to significant morbidity or mortality. There is no commonly agreed strategy to investigate PSIs. We describe a three-tiered approach to investigation to facilitate appropriate action, shared learning, and timely disclosure to patients as mandated in the UK health system by the Duty of Candor (DoC). Methods PSIs were identified prospectively over a 3-year, 7-month period in a large teaching hospital. Level of investigation was agreed by a group of three senior clinicians. Levels of inv
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Wong, Eliza Lai-Yi, Janice Ying-Chui Lau, Patsy Yuen-Kwan Chau, Roger Yat-Nork Chung, Samuel Yeung-Shan Wong, Jean Woo, and Eng-Kiong Yeoh. "Caregivers’ Experience of End-of-Life Stage Elderly Patients: Longitudinal Qualitative Interview." International Journal of Environmental Research and Public Health 19, no. 4 (February 13, 2022): 2101. http://dx.doi.org/10.3390/ijerph19042101.

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Objectives: This study seeks to provide an understanding of the changing experiences in caregivers of end-of-life patients in Hong Kong through exploring their caregiving journey. Methods: Using longitudinal individual qualitative interviews, a total of 14 caregivers of community-dwelling elderly patients receiving end-of-life care were recruited between 2015 and 2016. A series of in-depth interviews and observations were conducted in 14 cases during the end-of-life journey. Results: A thematic analysis revealed four sequential experiential stages, abbreviated as “CAPE” that caregivers confron
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Shayganmehr, Aref, Fatemeh Hazratian, and Robabeh Emrouzi. "Lived Experience of Transportation Network Company Driver About the Causes of High-risk Driving Behaviors: A Thematic Analysis." Health in Emergencies & Disasters Quarterly 6, no. 3 (April 1, 2021): 169–78. http://dx.doi.org/10.32598/hdq.6.3.391.1.

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Background: Nowadays, industrialization, using cars and consequently traffic jams are part of human life which grows every day. Along with the expansion of communication and transportation speed, the number and severity of traffic accidents increases. According to the World Health Organization, traffic accidents are now recognized as the ninth cause of death worldwide. In Iran, traffic accidents after cardiovascular diseases are the second leading cause of death. Materials and Methods: This qualitative study was designed and implemented to determine driver’s views and opinions in two cities of
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Beaumont, C. Ellsworth, and C. Benjamin. "Identifying Gaps in Metastatic Breast Cancer Patient Knowledge and Their Communication Experiences With Health Care Professionals and Developing Visually Based Solutions to Overcome Those Gaps." Journal of Global Oncology 4, Supplement 2 (October 1, 2018): 108s. http://dx.doi.org/10.1200/jgo.18.66400.

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Background: Metastatic breast cancer (MBC) is the fifth most common cause of death from cancer globally.1 MBC is incurable and its trajectory complicated. Patients have only a few days to choose treatments after an unexpected diagnosis, and most conversations with health care professionals (HCPs) are oral, a communication method with low retention accuracy (14%).2 Patients and caregivers feel ill prepared and overwhelmed. Yet when visuals are introduced into HCP/patient communication, accurate recall can be as high as 85% for low-literacy populations.2 Aim: Test if visually based communication
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Clark, Jelisa S. "Breonna’s Song." Departures in Critical Qualitative Research 11, no. 3 (2022): 57–76. http://dx.doi.org/10.1525/dcqr.2022.11.3.57.

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After failing to indict officers involved in the shooting death of Breonna Taylor, Kentucky Attorney General Daniel Cameron explained, “My job as the special prosecutor was to put emotion aside and investigate facts.” The positivist values emphasized by Cameron (i.e., objectivity, validity, thoroughness, and truth) have consistently been referenced as the gold standard of research and been used to justify White supremacy and deny Black humanity. In this article, I use Unapologetic Black Inquiry (UBI) to analyze Cameron’s remarks. UBI values Black defiance and dissident knowledge to center Blac
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Matusiak, Thomas. "A jaguar in Paris: Teo Hernández’s shamanic cinema." Studies in Spanish & Latin-American Cinemas 18, no. 3 (September 1, 2021): 341–50. http://dx.doi.org/10.1386/slac_00060_1.

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Teo Hernández (Ciudad Hidalgo 1939‐Paris 1992) began a prolific career as an experimental filmmaker after entering a self-imposed exile in Paris in 1966. With no formal training, he completed dozens of films on the amateur format of Super 8 before his untimely death at the height of the AIDS epidemic in France. Hernández’s cinema cannot be separated from his postcolonial experience as an undocumented immigrant in Europe. Based on his audio-visual and written work, this article examines how the filmmaker elaborated a unique film theory grounded in an auto-ethnographic appropriation of primitivi
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Patton, Desmond Upton, Jamie MacBeth, Sarita Schoenebeck, Katherine Shear, and Kathleen McKeown. "Accommodating Grief on Twitter: An Analysis of Expressions of Grief Among Gang Involved Youth on Twitter Using Qualitative Analysis and Natural Language Processing." Biomedical Informatics Insights 10 (January 1, 2018): 117822261876315. http://dx.doi.org/10.1177/1178222618763155.

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There is a dearth of research investigating youths’ experience of grief and mourning after the death of close friends or family. Even less research has explored the question of how youth use social media sites to engage in the grieving process. This study employs qualitative analysis and natural language processing to examine tweets that follow 2 deaths. First, we conducted a close textual read on a sample of tweets by Gakirah Barnes, a gang-involved teenaged girl in Chicago, and members of her Twitter network, over a 19-day period in 2014 during which 2 significant deaths occurred: that of Ra
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Mohammad, K., I. Goswami, J. Buchhalter, and L. Bello-Espinosa. "Developing a Consultation Model for Neonatal Neurocritical Care: A 2-Year Experience." Paediatrics & Child Health 21, Supplement_5 (June 1, 2016): e86b-e87. http://dx.doi.org/10.1093/pch/21.supp5.e86b.

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Abstract BACKGROUND: Developing brain has unique pattern of injury and responds to injury differently. Management of neonatal seizures, perinatal asphyxia as well as ischemic-hemorrhagic preterm brain injury requires specific skill sets of neonatology, neurology, neurophysiology and neuroradiology. The impact of neurological conditions extends beyond neonatal intensive care unit stay warranting continuity of care in order to improve outcomes. OBJECTIVES: Establishing a special interest group to run within the existing intensive care facility based on separate subspeciality model of neurocritic
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Kaltman, Jessica, Anne Margaret Walling, and Neil Wenger. "Implementing the Bereaved Family Survey for an advanced cancer population." Journal of Clinical Oncology 35, no. 31_suppl (November 1, 2017): 76. http://dx.doi.org/10.1200/jco.2017.35.31_suppl.76.

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76 Background: Despite being endorsed as a National Quality Forum measure, the Bereaved Family Survey (BFS), a tool to assess a patient’s end-of-life (EOL) experience, has not been broadly used outside the Veteran’s Affairs Health System or in the outpatient setting. We adapted the BFS for an advanced cancer population and implemented it at an academic health system to identify areas for quality improvement in EOL care. Methods: Between August 2016 and May 2017, we surveyed caregivers of advanced cancer decedents. We included English-speaking decedents > 18 years of age who were continuity
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Butkevičienė, Rūta, Jolanta Kuznecovienė, David Harrison, Eimantas Peičius, Gvidas Urbonas, Kristina Astromskė, and Ramunė Kalėdienė. "Being Heard: A Qualitative Study of Lithuanian Health Care Professionals’ Perceptions of Dignity at the End-of-Life." Medicina 57, no. 12 (December 1, 2021): 1318. http://dx.doi.org/10.3390/medicina57121318.

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Background: The literature on professionals’ perceptions of dignity at the end-of-life (EOL) shows that there is a need for studies set in different cultural contexts. Lithuania represents one of these little-studied contexts. The aim of this study is to understand professionals’ attitudes, experiences, and suggestions concerning EOL dignity to provide knowledge upon which efforts to improve EOL care can be grounded. The research questions are “How do Lithuanian health care professionals understand the essence of dignity at the end-of-life of terminally ill patients?” and “How do they believe
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Stanytsina, Halyna, and Igor Zagorodniuk. "The European hamster (Cricetus cricetus) in captivity: keeping and breeding experience." Theriologia Ukrainica 2021, no. 21 (July 1, 2021): 152–64. http://dx.doi.org/10.15407/tu2114.

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Hamsters have long been considered agricultural pests and their abundance has been controlled. Now in many countries they are recognized as rare and endangered species that are at a risk of extinction. Among conservation measures to preserve and restore the population of many species is to gain experience in their keeping and reproduction in captivity. The experiments were carried out with hamsters obtained from the Crimea at different times. The keeping experience of hamsters in an ordinary residential apartment and the specifics of domestication of the animals caught in the nature are descri
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36

Walsh, Elizabeth Paige, Catherine Riessman, and Paul Mathew. "Distress themes encoded in narratives of the “last day”: A study among surviving caregivers." Journal of Clinical Oncology 33, no. 29_suppl (October 10, 2015): 23. http://dx.doi.org/10.1200/jco.2015.33.29_suppl.23.

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23 Background: Survey studies have determined the prevalence of dissatisfaction among survivor caregivers related to end of life care. Toward improvement in care at EOL, we hypothesized that novel themes of distress would be identified in narratives of the “last day” from the recently bereaved. Methods: Extended narrative accounts of patients’ last day of life were collected from adult, English-speaking, caregivers (n=5) present at the death of a cancer patient. Interviews (45-120 minutes) featured open-ended questions prompting the subject to share an account of the last day, their care and c
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Yazdani, Shahram, Elana Evan, Danielle Roubinov, Paul J. Chung, and Lonnie Zeltzer. "A longitudinal method of teaching pediatric palliative care to interns: Preliminary findings regarding changes in interns' comfort level." Palliative and Supportive Care 8, no. 1 (February 18, 2010): 35–40. http://dx.doi.org/10.1017/s147895150999068x.

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AbstractObjective:A longitudinal pediatric palliative care curriculum was introduced into the pediatric residency program at the University of California, Los Angeles. The present study explores the possible effects of this curriculum on the interns' self-assessed comfort levels regarding caring for children with life-threatening conditions.Methods:A newly created assessment tool was administered to interns in order to rate their comfort regarding pediatric palliative care at the beginning and conclusion of their intern year.Results:Twenty-two of the 29 interns completed this survey. Baseline
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GULÁŠOVÁ, Ivica, Nadežda PETERKOVÁ JUSTHOVÁ, and Jozef BABEČKA. "SOCIAL AND ECONOMIC ASPECT OF TREATMENT OF AN ONCOLOGICAL PATIENT IN SPA INSTITUTIONS." JOURNAL OF EUROPEAN ECONOMY, Vol 19, No 4 (2020) (December 2020): 711–25. http://dx.doi.org/10.35774/jee2020.04.711.

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The authors hereby discuss the social aspect of treatment of an oncological patient in a spa institution. The aim of this article is to analyse social changes and needs of an oncological patient, creating a burden to both the patient and their family. The disease is an unbalanced bio-psycho-socio-spiritual phenomenon affecting the quality of life. It is the result of interaction of pathologic and compensation processes that lead to the degeneration and damage of cells, tissues and systems of an organism. The way of coping with the disease is also influenced patients’ attitudes to the disease,
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39

Lawrence, Madelaine. "Near-Death and Other Transpersonal Experiences Occurring During Catastrophic Events." American Journal of Hospice and Palliative Medicine® 34, no. 5 (March 2, 2016): 486–92. http://dx.doi.org/10.1177/1049909116631298.

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The purpose of this article is to describe examples of near-death and other transpersonal experiences occurring during catastrophic events like floods, wars, bombings, and death camps. To date, researchers have limited their investigations of these transpersonal events to those occurring to seriously ill patients in hospitals, those dying from terminal illnesses, or to individuals experiencing a period of grief after the death of a loved one. Missing is awareness by first responders and emergency healthcare professionals about these transpersonal experiences and what to say to the individuals
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Wynne, Deborah. "Charlotte Brontë’s Gothic Fragment: ‘The Story of Willie Ellin’." Victoriographies 11, no. 1 (March 2021): 20–37. http://dx.doi.org/10.3366/vic.2021.0407.

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Charlotte Brontë’s eighteen-page fragment, ‘The Story of Willie Ellin’, written shortly after the publication of Villette in 1853, combines the gothic and realism and uses multiple narrators to tell a disturbing story of cruelty towards a child. The generic instability and disordered temporal framework of this fragment make it unlike anything Brontë had previously written, yet it has attracted the attention of few scholars. Those who have discussed it have condemned it as a failure; the later fragment ‘Emma’, also left incomplete by the author's premature death, has been seen as the more likel
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Mukhametshina, Dinara R., and Yulia Yu Danilova. "Political Soviet posters and modern multimodal texts: cognitive experience in the process of perception and categorization of reality." Current Issues in Philology and Pedagogical Linguistics, no. 4 (December 25, 2021): 90–103. http://dx.doi.org/10.29025/2079-6021-2021-4-90-103.

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In the work, the attempt to identify the features of the interaction of signs of different semiotic systems in the context of multimodal texts, which are considered as a special information construct and are perceived through the visual communication channel, which combines verbal, graphic, iconic, color codes. The aim of the work was an attempt to make a comprehensive analysis of multimodal political texts, an important element of which is the image of the historical personality of Stalin. This analysis allows us to trace the transformation of the perception and assessment of the life activit
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Lovrenčić, Petra, and Cecilija Rotim. "Evaluation and care of a polytraumatized patient." Croatian nursing journal 3, no. 1 (June 28, 2019): 93–102. http://dx.doi.org/10.24141/2/3/1/8.

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Polytrauma is a simultaneous severe injury to at least two body regions where at least one injury, or a combination of multiple injuries, endangers life. The spectrum of injuries and posttraumatic disorders is extremely wide. Most commonly they include shock, hypotension due to bleeding or vital organs injury. Injuries are the leading cause of death in developed countries today, and proportion of people who experience polytrauma in the total number of the injured is 3%, with a high mortality rate of 22%. Reanimation procedures and understanding of pathophysiology have progressed remarkably, an
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Zhu, Shuqin, Hanfei Zhu, Xintong Zhang, Kouying Liu, Zumei Chen, Xiaowen Yang, Changxian Sun, et al. "Care needs of dying patients and their family caregivers in hospice and palliative care in mainland China: a meta-synthesis of qualitative and quantitative studies." BMJ Open 11, no. 11 (November 2021): e051717. http://dx.doi.org/10.1136/bmjopen-2021-051717.

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ObjectiveTo investigate the care needs of dying patients and their family caregivers in hospice and palliative care in mainland China.MethodsA search for English and Chinese quantitative and qualitative studies was performed using the following English databases: PubMed (Medline), CINAHL and PsycINFO, as well as Chinese databases: SinoMed and CNKI. The records were independently screened by two reviewers and critiqued using Joanna Briggs Institute Critical Appraisal tools. All quantitative data were transformed into qualitative data, which were converted into textual descriptions. Due to the d
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Lage, Daniel E., Patrick Connor Johnson, Shira Hornstein, Isabel Neckermann, Alane Schmelkin, Connor Grayzel, Patricia Brown, et al. "Supportive oncology care at home after discharge for patients with advanced cancer." Journal of Clinical Oncology 40, no. 28_suppl (October 1, 2022): 295. http://dx.doi.org/10.1200/jco.2022.40.28_suppl.295.

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295 Background: Patients with advanced cancer often experience frequent and prolonged hospitalizations, and the transition from hospital to home represents a critical period for these individuals, as they prefer to maximize time at home and avoid readmissions. We sought to demonstrate the feasibility and acceptability of a Supportive Oncology Care at Home intervention to address the post-discharge needs of recently hospitalized patients with advanced cancer. Methods: We conducted a single-arm pilot trial at Massachusetts General Hospital (MGH). We enrolled English-speaking adults with advanced
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Oyedeji, Charity I., Tolulpe Oyesanya, Nathan Gray, and John J. Strouse. "Barriers and Facilitators of Advance Care Planning for Older Adults with Sickle Cell Disease." Blood 136, Supplement 1 (November 5, 2020): 58–59. http://dx.doi.org/10.1182/blood-2020-136231.

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Background Life expectancy for individuals with sickle cell disease (SCD) has improved significantly in the last 50 years, creating a new population of older adults with SCD; however, life expectancy of adults with SCD is still up to 30 years shorter than African Americans in the general population and much lower than whites. SCD complications cause significant morbidity, requiring patients to make complex decisions about end of life care. Yet, there is a paucity of literature on SCD advance care planning (ACP), to guide providers on how to address ACP in this population. Thus, the purpose of
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Taliotis, D. M., J. D. R. Thomson, and J. L. Gibbs. "Abstracts for the British Congenital Cardiac Association Annual Meeting: The Barbican, London, 24–25 November 2005: Poster Presentations: Assessment of the need for elective balloon atrial septostomy in patients with tricuspid atresia. a 25 year experience at the Yorkshire Heart Centre." Cardiology in the Young 16, no. 3 (June 2006): 320. http://dx.doi.org/10.1017/s1047951106300236.

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Introduction: Significant variation exists in the perceived indications for balloon atrial septostomy in children with tricuspid atresia (TA). Many units advocate early, elective balloon atrial septostomy due to potential progressive narrowing of the interatrial opening, especially after the insertion of an arterial shunt. Our practice is to perform an atrial septostomy only in children with clinical and/or echocardiographic features of a restrictive interatrial communication. The aim of the study was to assess our practice by retrospective evaluation of patients born with tricuspid atresia wi
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Kadkhoda, Haleh, Clare Karten, Emily Van Laar, Elisa Weiss, Kevin C. Oeffinger, John Krauss, and Emily S. Tonorezos. "Shared Care For Hematologic Malignancy Survivors: Challenges Between Primary Care Physicians and Hematologist/Oncologists." Blood 122, no. 21 (November 15, 2013): 2958. http://dx.doi.org/10.1182/blood.v122.21.2958.2958.

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Abstract Background Many cancer patients are cured, or have a series of remissions interspersed with periods of re-treatment. In 2006, the Institute of Medicine's From Cancer Patient to Cancer Survivor: Lost in Transition recommended comprehensive treatment summaries and follow-up care plans for all cancer survivors. [Parry 2013] There were about 14 million cancer survivors in the US as of January 2012; this population is expected to be 18 million by 2022. [Siegel 2012] Among survivors, 64% have survived 5 years or more; 40% have survived 10 years or more; and 15% have survived 20 years or mor
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Caleffi, Maira, Norah Ana Burchardt, Helio Pasqualotto Scapin, Isabel Crivelatti, Carlos Spode Gomes, Ana Lucia Gomes, and Paula Raffin Pohlmann. "Patient-reported outcomes in metastatic breast cancer: QoL, needs, and expectations of survivors." Journal of Clinical Oncology 35, no. 5_suppl (February 10, 2017): 228. http://dx.doi.org/10.1200/jco.2017.35.5_suppl.228.

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228 Background: Breast cancer is still a leading cause of death and suffering worldwide. To date, metastatic breast cancer (MBC) is a treatable but incurable disease. Molecular subtypes influence outcomes, with recent increase in median overall survival to 56 months in HER2+ disease (Swain et al NEJM 2015). The success of MBC treatment underscores the increasing importance of discussing quality of life (QoL) and patients’ needs. A survey evaluating patient-reported outcomes was carried out in a Brazilian center with the aim of evaluating patient’s QoL, needs and expectations. Methods: In this
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Maroshi, Valery V., and Geza Horvath. "Raskolnikov’s crime and repentance in Russian and Hungarian literature of the second half of the twentieth century." Imagologiya i komparativistika, no. 18 (2022): 168–90. http://dx.doi.org/10.17223/24099554/18/9.

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The article deals with the creative reception of a complex of motifs “sin - repentance - salvation” and the hero’s moral reflections that form the basis of Crime and Punishment and Fyodor Dostoevsky’s unfulfilled plan of a book about the “Great Sinner.” We analyze the works of several Russian and Hungarian authors of the 1960s-1990s. In Victor Pelevin’s novel Chapayev and Pustota, the hero involuntarily becomes a murderer. Instead of being exiled to Siberia, he ends up in a mental hospital, which functionally serves as a replacement for Raskolnikov’s “punishment” stage - a prison sentence. Aft
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Silva, Vladimir Araujo da, Rita de Cássia Frederico Silva, Ruth Natalia Teresa Turrini, Sonia Silva Marcon, and Maria Júlia Paes da Silva. "Characteristics of caregivers submitted to music therapy after the death of loved ones." Revista Brasileira de Enfermagem 72, no. 6 (December 2019): 1464–70. http://dx.doi.org/10.1590/0034-7167/2018-0076.

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ABSTRACT Objective: To describe the characteristics of bereaved caregivers submitted to post-loss music therapy. Method: This is a cross-sectional database from a randomized clinical trial that performed music therapy for caregivers who lost their loved ones to cancer. The following variables were used for this analysis: sociodemographic, religious beliefs, previous sound-musical experiences, and experiences related to care, loss and repair processes. Descriptive statistical analyzes were performed. Results: Of the 69 participants, 85.5% had a strong bond/secure attachment with their loved one
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