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1
Kimemia, Veronica. "CAREGIVER BURDEN AND COPING RESPONSES FOR FEMALES WHO ARE THE PRIMARY CAREGIVER FOR A FAMILY MEMBER LIVING WITH HIV/AIDS IN KENY." Doctoral diss., University of Central Florida, 2006. http://digital.library.ucf.edu/cdm/ref/collection/ETD/id/2682.
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Caring for a family member who is ill can be a draining experience (Cooper et al., 2006; Daire, 2002; Zarit et al, 1980). Providing care for a family member that is living with HIV/AIDS is potentially even more stressful because of social meanings associated with HIV/AIDS infection (Stajduhar, 1998) and the contagious nature of the HIV virus (Powell-Cope & Brown, 1992). Research indicates that most caregivers are female (Bunting, 2001; Songwathana, 2000). In Africa women bear the brunt of the burden of providing care for family members who are living with HIV/AIDS (Mushonga, 2001; Olenja, 1999). This study examined coping factors and caregiver burden among female caregivers (N=116) of a family member living with HIV/AIDS in Kenya. Coping factors were derived from a principal components factor analysis of the fourteen scales on the Brief Cope (Carver, 1997). Caregiver burden was measured using the Zarit Caregiver Burden Inventory. Multiple regression analysis was used to investigate the relationships between caregiver burden and coping factors. Post–hoc multiple regression analyses further investigated the relationship between caregiver burden and caregiver demographic characteristics. The relationship between caregiver burden and care recipient characteristics was also investigated. The principle components factor analysis of the Brief Cope yielded five coping factors that were labeled: Social support, Hope, Acceptance, Planning, and Disposition. The regression analysis that was conducted to investigate the relationships between these five coping factors and caregiver burden indicated a significant inverse relationship between Hope and caregiver burden. The post-hoc analyses investigating the relationship between various caregiver and care recipient characteristics indicated a significant relationship between the caregiver's age and caregiver burden, and education level and caregiver burden. An increase in age correlated with a decrease in caregiver burden. An increase in education level correlated with reduced caregiver burden. Implications of the findings for research and practice are discussed.Ph.D.
Department of Child, Family and Community Sciences
Education
Counselor Education
2
Wilbon, Doris Cooper. "African American caregivers of children affected by HIV/AIDS." Click here to access thesis, 2007. http://www.georgiasouthern.edu/etd/archive/fall2007/doris_c_wilbon/wilbon_doris_c_200708_ma.pdf.
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Thesis (M.A.)--Georgia Southern University, 2007."A thesis submitted to the Graduate Faculty of Georgia Southern University in partial fulfillment of the requirements for the degree Master of Arts." In Social Science, under the direction of Nancy Malcom. ETD. Electronic version approved: December 2007. Includes bibliographical references (p. 65-66) and appendices.
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Ryan, Scott Douglas. "Caregivers of Children Infected and/or Affected by HIV/AIDS." Case Western Reserve University School of Graduate Studies / OhioLINK, 2001. http://rave.ohiolink.edu/etdc/view?acc_num=case1042053063.
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Motaung, Elizabeth Qaliwe. "The difficulties experienced by caregivers of AIDS orphans / Elizabeth Qaliwe Motaung." Thesis, North-West University, 2007. http://hdl.handle.net/10394/2526.
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The aim of this study was to identify difficulties experienced by caregivers of children orphaned by HIV/AIDS. The aim was achieved through the following objectives: investigate the family background of caregivers of AIDS orphans; investigate the general emotional impact of caring for AIDS orphans on caregivers; investigate the health impact of caring for AIDS orphans on caregivers; investigate the extent of financial impact of caring for AIDS orphans on caregivers; investigate the impact of caring for AIDS orphans on the social life of caregivers; to make recommendations so as to assist in helping caregivers. A literature review and the qualitative empirical research method were used to achieve the aim and thus, the objectives stated above. The literature review revealed the following difficulties experienced by caregivers of AIDS orphans: lack of knowledge regarding the formal adoption of orphans; lengthy process administered by an increasingly overstretched system; bad behaviour by orphans; stress resulting to poor physical and mental health, strained personal relationships and lowering of standards of care; poverty; "role strain" and "identity";
interpersonal and family conflicts; isolation and fear for the future; excessive workload of having to care for children; and stigma and discrimination relating to HIV/AIDS. However, this study highlighted the following difficulties: poverty; stress and depression; family fights; adoption; bad influence on orphans by neighbours; education; lack of training; lack of social services support; lack of community support structures; and lack of prior planning by orphans' parents. The conclusions drawn from this study are that there were similar problems revealed in this study to those identified in the literature. For example, both literature and this study revealed poverty, stress and interpersonal and family conflicts as major problems experienced by caregivers. Grandparents and other family members who were caregivers in this study did not see "role strain" and "identity" as major stumbling blocks. Stigma and isolation were also some of the problems not directly experienced by most caregivers. However, it was evident that lack of involvement of some of these caregivers with the community, has led to their not experiencing stigmatisation and isolation.
The following recommendations were made: caregivers should be given adequate training on how to use the grants given to orphans; researchers should use their research findings to influence government policy regarding termination of grants for orphans, that is, as long as orphans are still attending school or university, grants should not be terminated; universities and government should set aside special bursaries or study loans for orphans at universities, and these loans must only be paid when the orphans are in the position to do so; government should make extra funds available to give to caregivers as incentives; Social Welfare Department should be strengthen so that free counselling could be given to caregivers whenever is necessary; School-Based Support Teams (SBST) committees in schools should be capacitated and empowered; capacitate and empower non -governmental organisations (NGOs); and there should be a strong interaction between schools, NGOs, social workers, nurses and police. Limitations of the current study were also identified. This study could not show with absolute certainty whether the problems identified are related to orphanhood in general, rather than orphanhood by HIV/AIDS. Thus it was deemed necessary in future to have a comparison group of caregivers of orphans due to reasons other than HIV/AIDS.
Other limitations included reliance on one population race. The study cannot ascertain whether these findings can be applicable to caregivers from other race groups such as white or coloured races. South Africa is a multicultural society with different norms and values. Thus, the way we react to certain stimuli might be influenced to a large extent by our customs and values.
Further limitations included reliance on one specific type of caregiving. The study did not explore other type such as orphanages, but concentrated on what is regarded as the traditional safety net.Thesis (M.Ed.)--North-West University, Vaal Triangle Campus, 2009.
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Vithayachockitikhun, Niranart. "The Experiences of Thai Caregivers of Persons Living with HIV/AIDS." Case Western Reserve University School of Graduate Studies / OhioLINK, 2009. http://rave.ohiolink.edu/etdc/view?acc_num=case1225264682.
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Mangerah, Munirah. "Hidden victims of HIV/AIDS : the impact of caregiving on elderly caregivers." Master's thesis, University of Cape Town, 2008. http://hdl.handle.net/11427/12415.
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Includes bibliographical references (leaves 92-107).The HIV/AIDS pandemic in South Africa and the concomitant high mortality rate of the middle generation has resulted in an increased number of orphans and vulnerable children (DVCs). The responsibility of care for these children has fallen to the extended family, especially elderly females. This study aimed to explore the impact of caregiving on grandmothers caring for DVCs in two Western Cape townships, and to statistically determine predictors of caregiver burden. Participants (n = 57) were members of a community-based supportive organisation, were grandmother caregivers to at least one grandchild, and lived in a household that was impacted by HIVI AIDS. A quantitative questionnaire, consisting of socio-demographic questions, as well as open-ended questions on participants' experiences within the organisation and of caregiving, was individually administered in Xhosa. The Burden Interview (BI), a standardised scale, was used to measure the impact of caregiving on the grandmothers across five dimensions (health, finances, psychological well-being, social life, and relationships). Descriptive statistical analysis of the socio-demographic questionnaire showed that caregiving occurred in the context of poverty, HIV/AIDS, chronic illness, and multigenerational households. Thematic analysis of the open-ended questions revealed that participants benefited financially and emotionally and gained knowledge and skills through membership of the community organisation. However, caregiving was commonly described as emotionally and physically exhausting. This burden was exacerbated by the age and health status of both caregiver and care-recipient, and behavioural difficulties in the care-recipient. A stepwise multiple regression analysis yielded three factors as significant predictors of burden (Rl = .41): the number of children for which the participant was the primary caregiver; the number of chronically ill people in the household; and the need for assistance with caregiving responsibilities. The latter finding probably implies that those who are the most stressed are most likely to require assistance with care. The findings highlight the important contribution of the elderly in buffering the psychosocial impact of the HIV/AIDS pandemic, sometimes at the expense of their own wellbeing. Policy-makers should consider the unique challenges and contributions of the elderly in this regard.
7
Williams, Margaret. "The experiences of caregivers in formal institutions caring for terminal AIDS patients." Thesis, Nelson Mandela Metropolitan University, 2007. http://hdl.handle.net/10948/644.
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One of the greatest challenges facing sub-Saharan Africa, which incorporates South Africa, is the AIDS pandemic. The devastation wrought by this disease is unsurpassed in recent times. The health and social development structures, already overburdened, are totally overwhelmed by the needs of povertystricken households and communities affected by AIDS. Caregivers attempting to support those affected and infected are also facing unique challenges and demands, particularly relating to dealing with the large numbers of deaths due to this disease. Experiences for these caregivers are likely to be varied, ranging on a continuum from positive to negative, for instance, the recovery of patients versus the death of patients. The objectives of this study are to explore and describe the lived experiences of caregivers working with AIDS patients, particularly patients who die from this disease whilst resident in a formal institution. The research is based on a qualitative, explorative, descriptive and contextual research design. The study is grounded in a phenomenological approach to inquiry. Caregivers working fulltime in a formal institution caring for patients who are dying from AIDS were interviewed in an in-depth, unstructured manner in order to gather spontaneous, rich descriptions of their experiences. Through this study the researcher wants their voices to be heard, the potential richness of their reflections acknowledged and the generated data to be applied to the benefit of the field of HIV/AIDS – both for staff and patients. Thirteen in-depth, unstructured interviews provided saturated data, which was then transcribed and coded to yield the central and sub-themes that were identified in this study. One central theme identified the fact that in their daily duties (at their place of work), caregivers experience various challenges as a result of having to deal with the death and dying of their patients suffering from AIDS. These caregivers face the death of their patients daily, from a disease that causes untold suffering to the patient, family members and to the caregivers themselves, who wish they could prevent the anguish, the pain and the inability of the medical profession to do more than they are at present towards curing this disease. ii By describing the lived experiences of these caregivers by means of the research interviews, the researcher gained a clear picture of the AIDS environment. The information shared by the participants formed the foundation of the broad guidelines that were formulated. These are intended to provide support for the caregivers centering around the equipping of mentors of the caregivers, to enable them to support the caregivers in their daily task of caring for patients dying from AIDS. These caregivers, thus supported, will then be in a position to provide optimal care for these dying patients. These broad guidelines are intended to provide support by focusing firstly on the physical environment in which these caregivers work; secondly in providing education for the caregivers to enable them to fulfill their duties, and thirdly to provide adequate counselling to ensure that they do not succumb to caregiver fatigue/burnout, a constant threat in this type of environment. The study concludes with recommendations regarding the areas of nursing practice, education and research.
8
Ukockis, Gail L. "Informal HIV/AIDS caregivers a study of their decision-making, experiences, and perspectives /." Columbus, Ohio : Ohio State University, 2007. http://rave.ohiolink.edu/etdc/view?acc%5Fnum=osu1179927683.
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Pallangyo, Eunice. "Experiences of informal women caregivers in caring for people living with HIV and AIDS in Dar es Salaam, Tanzania." Master's thesis, University of Cape Town, 2008. http://hdl.handle.net/11427/26622.
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Aim of the study: The aim of this study was to explore and describe the experiences of informal women caregivers of people living with HIV and AIDS at home in Dar es Salaam, Tanzania. The study took place in Temeke district in the Dar es Salaam region through the auspices of Pastoral Activities and Services for people with AIDS, Dar es Salaam Archdiocese (PASADA), a non-governmental organization that provides home-based care services. Research design and method: The research design was a qualitative, descriptive and exploratory study based on the interpretive paradigm. The study population was informal women caregivers looking after spouses or relatives at home who were living with HIV and AIDS (staged at World Health Organization clinical stages III and IV), some on antiretroviral therapy and others not. Purposive sampling was used to select participants who were attending PASADA's community centre. Data were collected using semi-structured· interviews which were audio-recorded. Eight participants were interviewed in order to explore their individual experiences of caring for people living with HIV and AIDS. Data collection continued until data saturation was achieved. The recorded data were transcribed verbatim and analysed using thematic analysis. Anonymity and confidentiality of the study participants was maintained throughout. Findings: Themes which emerged from the data were as follows: social and economic situation; HIV-related stigma and discrimination; stress and burn-out: treatment and support system; care burden and the challenges. Financial problems made an impact on food security, and the caregivers also had to cope with multiple illnesses in the people under their care. The lack of support for the caregivers increases their vulnerability to stress and burn-out.
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Munro, Ian. "The lived experience of gay men caring for others with HIV/AIDS living, loving, and dying in the era of HIV/AIDS /." Connect to this title online, 2002. http://tux.lib.deakin.edu.au/adt-VDU/public/adt-VDU20020913.150027/.
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De, Boever Dave. "Being a caregiver to people living with AIDS stages on the journey /." Theological Research Exchange Network (TREN), 1991. http://www.tren.com.
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Matebese, Dineo. "Primary caregivers' experiences of caring for HIV infected adolescents." Thesis, Nelson Mandela Metropolitan University, 2014. http://hdl.handle.net/10948/5745.
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HIV/AIDS has affected families in a profound and tragic way. Children whose parents have succumbed due to HIV/AIDS related infections have to be cared for by their relatives. This study focused on the experiences of primary caregivers of adolescents who are living with HIV in a semi-rural area of Eastern Cape Province, Grahamstown. There is a dearth of literature that is addressing the well-being, experiences and challenges of primary caregivers of adolescents living with HIV. Adolescence is a complex life stage during which adolescents usually present challenging behaviours and are grappling with moral issues. Caregiving to these youngsters who are burdened with HIV infection places additional demands on caregivers, especially so when they are experiencing poverty and poor social and welfare support. A qualitative study was most appropriate to explore and describe the experiences of adolescents infected with HIV. The population of this study was the primary caregivers of adolescents caring for adolescents with HIV in the area of Grahamstown, who are between 11 to 19 years old. A purposive sample of nine primary caregivers of adolescents living with HIV was selected. Data was collected by conducting individual interviews, using a semi-structured interview schedule. Data was analysed thematically according to prescribed theoretical guidelines. Data was verified by means of guidelines for the truth value, applicability, consistency, and neutrality of the study. The findings of the study indicated that primary caregivers experience that caring for adolescents who are living with HIV places a huge burden due to adolescents' negative behaviour, HIV stigma and discrimination, poor support from their families, being confronted with adolescents' emotional issues that they are not capacitated to deal with, and no adequate community resources to assist them. The challenges primary caregivers experience lead to negative effects on their health status. The findings of the study could be useful for informing intervention programmes that are targeting this group and policy development, and implementation of programmes benefiting both infected adolescents and their primary caregivers.
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Cadell, Susan. "The sun always comes out after it rains, exploring the experience of AIDS caregivers." Thesis, National Library of Canada = Bibliothèque nationale du Canada, 2000. http://www.collectionscanada.ca/obj/s4/f2/dsk2/ftp02/NQ53257.pdf.
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Kubeka, Phindile Bonakele. "Work related conditions affecting community caregivers providing services to persons living with HIV and AIDS at eMondlo Township." Thesis, University of Zululand, 2016. http://hdl.handle.net/10530/1522.
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A thesis submitted to the Faculty Arts in fulfilment of the requirements for the Degree of Masters in Social Work in the Department of Social Work at the University of Zululand, South Africa, 2016The study was about work related conditions affecting community caregivers on HIV/AIDS positive people at eMondlo Township, which is approximately 28 kilometres from Vryheid town in KwaZulu-Natal. Vryheid is located in the Northern part of KwaZulu-Natal province and forms part of the Zululand District Municipality. It has a population predominated of black people. Mondlo Township is the area that was established in 1963 as an exclusive African settlement through the process of forced removals according to the Apartheid Law of Group Areas Act of 1950. Many of whom individuals had freehold title to their land and residence were also removed from so-called “black spots” as well as farms surrounding Vryheid. The researcher’s intention was to establish how community caregivers are affected by their work, explore how community caregivers feel about their work related conditions and outline the consequences experienced by community caregivers. Community caregivers provide long term care to the community despite the challenges they encounter when executing their duties. The study was conducted at eMondlo Township using twenty four (24) participants from three different public health clinics. Eight (8) respondents were selected proportionally from these clinics. The researcher used qualitative research design. Content analysis was used to analyze data. Findings of the study indicated that the community caregivers are affected by their work. Various challenges have been identified, namely, shortage of resources, lack of substantial food, poor service from clinics officials, travelling long distances on foot, lack of debriefing and less salary. These findings show that the community caregivers are depressed. They have accepted living with the burden of caregiving, whereas it is slowly damaging their self-esteem and affecting their lives. The study indicates that community caregivers are now doing their work simply because they are passionate and are attached to their patients. Even the little salary they earn is the only income they have to support their families which sometimes end up being used in performing their work.
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Lashein, Adel. "Living with HIV in Egypt : an analysis of needs and caregivers' burden and strain." Thesis, McGill University, 2008. http://digitool.Library.McGill.CA:80/R/?func=dbin-jump-full&object_id=116000.
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As we enter the third decade of a devastating worldwide epidemic, much has been done to stem the flow of HIV/AIDS, in particular within North America and Western European urban centres. However, much is still needed in the developing world. In this study 153 people living with HIV/AIDS in Egypt were interviewed, along with their caregivers. Data were collected on demographics, burden and strain level of caregivers, as well as psychological, psychosocial and health needs.Using a cross-sectional design, it was found that HIV infection had a negative psychosocial impact on both those infected with and affected by it. Perceived or actual stigma, discrimination, health needs and sexual health status added to this impact. It was also found that caregivers' burden and strain level was higher than a sample of caregivers of renal transplant patients and a sample of caregivers of stroke patients respectively. This suggests that provision of different forms of psychosocial support would help people living with HIV and their caregivers in Egypt cope with the negative impacts of the infection.
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Bornman, Elsabé. "Omvattende behoeftegesentreerde tuisversorging vir pasiënte met VIGS in die Potchefstroom-distrik / Elsabé Bornman." Thesis, North-West University, 2005. http://hdl.handle.net/10394/967.
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In South Africa, with the highest HIV population in the world, more than 5 million
people live with HIV and AIDS, and it is predicted that deaths because of AlDS will
rise sharply up to 2010 (Evian, 2003:20; UNAIDS, 2003:19). Because of this, great
numbers of patients in the final stages of AlDS need support and homecare in areas
with little resources.
In this context of limited resources it became necessary for communities and health
care services to investigate alternatives for cost-effective and sustainable methods to
care for patients with AIDS. Patients are often discharged home to die because the
hospital staff can do nothing but palliative care and they feel that resources and
space can be better utilised on patients with a greater chance of recovery (Jackson,
2002:232). The government and non-governmental organisations established a
number of homecare services to care for patients with AlDS at home. The
Potchefstroom-district is no exception; the question however arises whether the care
needs of these patients are addressed.
The objective of this research was to identify the physical, psychological, spiritual and
social needs of patients with AlDS for home care and the perceptions of caregivers of
what these needs are. The ultimate objective was to formulate recommendations
from the results for need-centred homecare for patients with AlDS in the
Potchefstroom-district.
A two-phased design was used to reach this objective. These two phases took place
simultaneously. During phase one, caregivers operated as fieldworkers and
completed questionnaires on behalf of the patients on their needs for homecare.
During phase two the perceptions of caregivers of patients with AIDS's needs for
homecare were determined using the nominal group technique. The director of
health of the local authority gave consent for this research. The population of phase
one consisted of available patients with AlDS in the Potchefstroom-district of the
Northwest Province that compiled to the prerequisites of the research. The
population of phase two consisted of a group of caregivers from another area that did
not take part in phase one. After they gave consent a total of 24 patients with AlDS
and 31 caregivers took part in the research. Data analysis in the case of the
questionnaires was done by frequency distribution and for the nominal groups during
the group sessions.
On the grounds of the results the conclusion was made that patients with AlDS
experience a great deal of hopelessness and that their needs are mostly on the first
level of basic needs, according to the Maslow needs hierarchy. Higher levels of
needs like self-concept needs and self-actualisation came to the attention in the need
for spiritual support especially from their own church community. Social and financial
needs were also identified. The caregivers stressed the need for equipment when
caring for these patients, as there is nothing available for basic homecare.
Caregivers identified needs that were not mentioned by the patients and vice versa.
For patients an important need was pain relieve which the caregivers did not
mention. It appears from this research that the need for the involvement of the
multidisciplinary team is not being addressed.
Based on the results of this research guidelines were formulated for registered
nurses, that train and supervise the caregivers, to ensure that these patients receive
the comprehensive care they deserve.Thesis (M.Cur.)--North-West University, Potchefstroom Campus, 2006.
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Solomons, Daniel Peter. "Compassion fatigue : pastoral care to HIV and AIDS caregivers within the realm of the healing professions." Thesis, Stellenbosch : Stellenbosch University, 2014. http://hdl.handle.net/10019.1/86275.
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Thesis (MTh)--Stellenbosch University, 2014.ENGLISH ABSTRACT: This dissertation aims to address the phenomenon of compassion fatigue within the scenario - of the HIV and AIDS pandemic in South Africa where an estimated 5-6 million people are living with HIV and AIDS. One in every three patients is hospitalised at some stage of their sickness and sufferers of the pandemic come into contact with someone that gives care to HIV and AIDS infected persons, whether in a hospital, a clinic, in counselling or a hospice. Professional stress and emotional fatigue is an inherent feature of the life of caregivers, and there is growing evidence is that it is on the increase. Caregivers are generally compassionate people and the compassion that they have and share with suffering people can be depleted . Caregivers become fatigued by the plight and the situation that never lets up hence the concept compassion fatigue. In this regard, the meaning of this concept as applied to HIV and AIDS caregivers in the healing and helping professions in hospital care (chaplaincy) and different clinical settings was the focus of the research. Compassion fatigue relates to professional stress and can impair professional competency and performance within pastoral caregiving. The phenomenon was studied to distinguish between compassion fatigue burnout/burn up and vicarious traumatisation. A more comprehensive understanding of these concepts will help to clarify current misconceptions. Aspects that necessitate a closer look are whether compassion fatigue is fundamentally stress related or a kind of depletion within the self of the pastoral helper. Could it be some kind of affective exhaustion, or is it related fundamentally to the overexposure to human suffering? Is compassion fatigue then suffering related? The study focuses on the challenges that confront caregivers in the HIV and AIDS field. How can these challenges pose an existential threat to their being-function and human identity? The study also explores how the theology of the cross (from a pastoral approach) can assist caregivers to deal with the question of meaning in the suffering that their patients (and they) may experience. Research questions included how the phenomenon of compassion fatigue should be understood as an inherent feature of the life of caregivers to HIV and AIDS sufferers, and what caregiving should imply to the caregivers (“wounded healers”). What is clear is that those caregivers very definitely also need care. A viable possibility to render meaningful help to depleted caregivers is to take them out of the working place and give them time, space and means to become whole again. A retreat environment is indicated as a form of recuperation for caregivers. At this stage the study amounts to only first steps in that direction and emphasises the need to investigate the subject further.
AFRIKAANSE OPSOMMING: Hierdie verhandeling beoog om die fenomeen van medelye-moegheid te verstaan vanuit die agtergrond van die HIV en VIGS pandemie in Suid-Afrika waar daar 'n beraamde 5-6 miljoen mense met HIV en VIGS lewe. Dit word geskat dat 1 uit elke 3 pasiënte in 'n stadium of stadia van die siekte gehospitaliseer word en derhalwe kom die meeste lyers in aanraking met iemand wat sorg verleen aan MIV/VIGS geïnfekteerde persone, hetsy in 'n hospitaal, 'n kliniek, in berading of 'n hospice. Professionele stres en emosionele moegheid is 'n inherente kenmerk van die lewe van versorgers en daar is toenemende bewys dat dit vanweë die erns van die situasie toeneem. Versorgers is oor die algemeen deernisvolle mense en die deernis wat hulle het en deel met mense wat ly, kan uitgeput raak. Te wyte aan ʼn situasie wat toenemend versleg en nie in die afsienbare toekoms sal weggaan nie ervaar versorgers dat die blootstelling aan menslike lyding en ellende hulle vermoë om lydendes pastoraal te troos en by te staan, drasties opgebruik vandaar die begrip medelye-uitputting. In hierdie verband fokus die navorsing op die betekenis van die konsep medelye-uitputting, soos toegepas op MIV- en VIGS- sorggewers binne die kader van die genesing- en hulpverleningprofessies in die hospitaal (kapelaansdienste) en kliniese instellings. Die verskynsel van medelye-uitputting met betrekking tot professionele stres raak die professionele bevoegdheid en prestasie van versorgers in pastorale hulpverlening. In hierdie verband is die doel om te onderskei tussen medelye-uitputting, uitbranding en plaasvervangende traumatisering. Dit is aanvaarbaar dat 'n meer omvattende begrip van hierdie konsepte huidige wanopvattings daaroor beter kan toelig. 'n Aspek wat 'n nader beskouing noodsaak, is of medelye-moegheid fundamenteel stresverwant is of 'n soort uitputting van die pastorale helper self, of 'n soort affektiewe uitputting, en of dit verband hou met te veel blootstelling binne die sfeer van menslike lyding. Die studie fokus op die uitdagings wat deur versorgers in die HIV en VIGSversorgingsveld die hoof gebied moet word, en hoe hierdie uitdaging ’n eksistensiële bedreiging vir hulle kan inhou wat hulle menswees en identiteit negatief kan beïnvloed. Die studie verken hoe daar vanuit die verstaan van die kruis-teologie pastorale ondersteuning gebied kan word met die hantering/verstaan van lyding en die doel en betekenis daarvan. Navorsingsvrae sluit o.a. in hoe ons die fenomeen van medelye-moegheid as ʼn ontwikkelende verskynsel in die lewe van versorgers wat met MIV- en VIGS-lyers werk, behoort te verstaan en wat pastorale sorg aan uitgeputte versorgers sou impliseer. Wat duidelik na vore gekom het, is dat die helpende hande baie beslis self ook helpende hande benodig. ʼn Haalbare moontlikheid om betekenisvolle hulp aan uitgeputte versorgers te verleen, is aan die hand gedoen, naamlik om hulle uit die werkomgewing weg te neem. By ʼn rusplek (“retreat”) kan aan hulle die kans gegun word om te herstel, self ook weer heel te word. Hierdie vorm van herstel vir uitgeputte versorgers is kortliks hanteer en word voorgestel, maar dit is maar die eerste treë in so ’n navorsingsrigting, wat die noodsaaklikheid van verdere navorsing beklemtoon.
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Nyando, Mandayachepa Chriford. "The experiences of caregivers looking after a child living with HIV and AIDS in rural Malawi." Thesis, Cardiff University, 2014. http://orca.cf.ac.uk/70334/.
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The aim of this study was to examine how caregivers manage their day-to-day living and health care needs, care for themselves and their sick children with HIV and AIDS in rural Malawi. The study used a longitudinal descriptive qualitative research design, using the “lens” of a narrative analysis theoretical framework to explore the experiences of caregivers looking after a child living with HIV and AIDS in rural Malawi. In-depth Interviews (IDIs) with women caregivers (n=20) recruited from Mponela Rural Hospital catchment area were conducted and all twenty women caregivers participated in in-depth interviews. Direct Observations (DOs) of the environment where interviews were conducted and at a local rural hospital were used to explore the primary care and support available for these women caregivers and their children. Data were analysed manually using the thematic analysis of the narrative accounts , combined with a detailed narrative analysis of one carers experiences to better understand how women constructed their stories in their own particular cultural context. A summary of the narrative analysis accounts of the rest of the 19 participants has been done to exemplify the main key issues each one of them had told in her story of caring for a child living with HIV and AIDS.
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Phengjard, Johnphajong. "Family caregiving of persons living with HIV/AIDS in urban Thailand /." Thesis, Connect to this title online; UW restricted, 2001. http://hdl.handle.net/1773/7365.
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Hecker, Hilda Elizabeth. "The psyhological problems of children with HIV/AIDS in Tshwane." Diss., University of Pretoria, 2016. http://hdl.handle.net/2263/60364.
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In order to determine what mental health problems South African children living with HIV
experience, interviews were conducted with HIV-positive children and their caregivers at a
paediatric HIV clinic in Tshwane. The interviews with the children included assessments that
focused on the children's self-esteem (Self-Description Questionnaire), experiences of anxiety
(RCMAS), and the coping strategies that they employed in daily living (Kidcope). The
interviews with caregivers included a questionnaire about demographic details, the Parental
Stress Index (PSI), and the Coping with Children's Negative Emotions Scale (CCNES).
Caregivers also completed the Child Behaviour Checklist (CBCL), which assesses a range of
psychological problems in children. These results were compared to a sample of HIV-negative
children and their caregivers from the same community.
Although many children living with HIV-infection displayed clinical levels of somatic
and depressive symptoms, these did not differ at statistically significant rates from the HIVnegative
comparison group. Furthermore, children living with HIV were not found to experience
clinically significant levels of anxiety as assessed by the RCMAS. Children living with HIV
were found to employ more adaptive coping strategies than maladaptive coping strategies and
significantly fewer maladaptive coping strategies than HIV-uninfected children use. Children
living with HIV were also found to have significantly higher positive self-evaluations than HIVuninfected
children.
The results of the caregiver assessments indicated that caregivers of children living with
HIV experience more distress in their relationship with their child and tend to engage less with
negative emotional displays of their children than do caregivers of HIV-uninfected children.Dissertation (MA)--University of Pretoria, 2016.
Psychology
MA
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Myllykangas, Susan A. "Meaning of leisure : a case study of older women with HIV/AIDS and their female family caregivers /." [Bloomington, Ind.] : Indiana University, 2005. http://wwwlib.umi.com/dissertations/fullcit/3161796.
Full textAbstract:
Thesis (Ph.D.)--Indiana University, School of Health, Physical Education and Recreation, 2005.Title from PDF t.p. (viewed Dec. 1, 2008). Source: Dissertation Abstracts International, Volume: 66-01, Section: B, page: 0235. Adviser: Barbara A. Hawkins.
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Zwemstra, Pieter Jacobus. "Vrese en hanteringstrategieë van Wes-Kaapse MIV/VIGS-geaffekteerde kinders en versorgers : ‘n normatiewe populasie met ‘n spesiale leefwêreld." Thesis, Stellenbosch : Stellenbosch University, 2008. http://hdl.handle.net/10019.1/2179.
Full textAbstract:
Thesis (MSc (Psychology))--Stellenbosch University, 2008.As part of the South African government’s strategy to support those with HIV/AIDS and their relatives, HIV/AIDS service points have been established at Public Health Facilities. An increasing number of HIV-positive children and their caretakers receive treatment here. Indirectly the paediatric patients’ uninfected caretakers and the adult patients’ children also come into contact with the Public Health System during visits. The HIV-positive and uninfected children and caretakers form a heterogeneous HIV/AIDS-affected population, which may experience particular fears due to their particular circumstances. Circumstance-particular coping strategies may be necessary. Children do, however, also experience normative childhood fears and their coping strategies display developmental characteristics. Direct and indirect learning experiences furthermore may contribute to children’s experience of fear. The participants were 40 HIV/AIDS-affected children (M = 9.4 years; HIV-positive = 30.0%) and their caretakers (N = 34; M = 36.7 years; HIV-positive = 76.5%) who had been in contact with the Public Health System of the Western Cape Province, South Africa. There were five sub-objectives. Regarding the children the objectives were to consider, against the background of normative literature, whether the target group was a special population regarding their (1) fears and (2) coping strategies. Furthermore the objective was (3) to get to know the children’s world through their learning experiences. Concerning the caretakers the objectives were to explore their personal (4) fears and (5) coping strategies. In addition the caretakers’ perceptions about their children’s fears and coping strategies were gathered. The study was explorative and a mixed methodological research model was used. Data were gathered through individual interviews. The children also completed the Goodenough-Harris Drawing Test (GHD) and the caregivers a demographic questionnaire. Data were analysed by using a combination of qualitative and quantitative strategies. The children reported normative childhood fears, mainly of wild animals. A substantial minority of the children reported fears connected to crime, an unsafe transport system, death, illness, and HIV/AIDS and special circumstances were therefore identified. The children’s coping strategies were circumstance-specific and problem-focused avoidance reported most. Living in a modern society these children’s fears have also been influenced by for instance television. The fears and coping strategies reported by the children and their care-takers’ perceptions thereof, concurred. The caretakers’ personal fears mainly were connected to psycho-social needs and social roles, which stand central during adulthood. Specifically fears about the children’s welfare were reported most. The caretakers reported crime and animalrelated fears similar to their children. A search for social support as well as preventative action were the coping strategies that were reported most. A noteworthy preventative-action strategy seemed to be healthy eating habits, given the controversy about natural products being used as HIV/AIDS treatment within the South African context. The findings were integrated within a systems-theoretical framework. The fears and coping strategies of the HIV/AIDSaffected children and their caretakers were interpreted to be the result of an interaction between their personal characteristics and their social environment.
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Mayimele, Rachel Rirhandzu. "A communitarian programme for supporting AIDS orphaned learners / Rachel Rirhandzu Mayimele." Thesis, North-West University, 2009. http://hdl.handle.net/10394/4795.
Full textAbstract:
The aim of this research were to investigate by means of both the literature review and empirical research, the nature of externalising and internalising of AIDS orphan learners, to investigate the ideas of Ubuntu, Bathe, Vumunhu communitarianism in the context of AIDS orphans suffering as a result of the death of their parents, to investigate the nature what kind of the death of their parents, physical and social problems, to determine which social systems are available in communities to render psychological, physical and social support to AIDS orphan learners, to determine the nature and extent of the educator's knowledge about psychological, physical and social difficulties that AIDS orphan learners experience; and to develop a program with Ubuntu, Bathe and Vumunhu communitarian ideas for supporting AIDS orphan learners in various communities. Findings from the empirical research revealed among others, that orphans in most cases are not aware of the parents' status before they pass away, orphans after they had heard their parents' status, tend to get affected psychologically, socially and emotionally. Orphans are usually not coping with the circumstances they find themselves in, orphans tend to have fear of disclosing causes of death of their relatives, orphans of HIV/AIDS are normally stigmatised and discriminated against by their relatives and members of the community. Orphans usually blame themselves or are blamed by their relatives and community members for being affected and infected with HIV/AIDS. Orphans normally do not have support from their communities, orphans in most cases do not cope financially and materially and they need financial and materialistic support. Most of the orphans do not receive grants from Social Development because they do not have the necessary documentation. Most of the orphans, teachers are usually aware of their situations at homes as well as their parents. Caregivers in most cases are aware of what causes the death of their relatives, caregivers usually know the status of their relatives before they pass away. Caregivers usually do not tell their family members that they are staying with HIV/AIDS orphans, caregivers are normally devoid of family support as well as community and caregivers tend to struggle to survive with financial support. Educators in most cases know the orphans in their classes. Educators usually are aware of the orphan's social problems and orphans usually have a lot of problems that educators do not get help for, because educators have a lot of work to do. Social workers usually have challenges when working with HIV/AIDS orphaned learners. The recommend future research is that it should consist of a larger sample, including participants form different provinces in South Africa. This will help to provide more exact information about the nature and extent of lived experiences of HIV/AIDS orphan learners. There is a need to investigate ways in which educators can be trained by the Department of Education to support learners in the inclusive classroom setting.Thesis (Ph.D. (Education Management))--North-West University, Vaal Triangle Campus, 2010.
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Pretorius, Chereen Ann. "Caregivers’ experiences of stress while caring for orphaned and vulnerable children in an institution." Diss., University of Pretoria, 2013. http://hdl.handle.net/2263/40460.
Full textAbstract:
The context of working and living in a care institution is accepted as challenging for all concerned, yet there is a dearth of studies into the stress experiences of caregivers. This study investigated caregivers’ stress and coping in an institution where care was provided to children affected by HIV and AIDS. The study was informed by a qualitative and case study design within an interpretivist paradigm. In addition, it was guided by a theoretical framework derived from Folkman and Lazarus’ (1984) transactional model of stress and coping. A focus group discussion and individual interviews were utilised to gather data, and to clarify and probe responses on caregivers’ experiences of stress.
Thematic analysis of the data yielded the most significant themes and subthemes from caregivers’ subjective experiences and perceptions of the stress that they experienced in their daily work situation. The results of the study indicate that caregivers’ stress experiences need to be addressed if caregiving is to be provided effectively. This will require not only training and management support for caregivers in institutional context (e.g., to deal with challenges such as appropriate discipline for the children under care), but also personal support and counselling for caregivers in order to enable them to assess the signs of burnout and cope with stress effectively.Dissertation (MEd)--University of Pretoria, 2013.
gm2014
Educational Psychology
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Naidoo, Sherina. "The sense of coherence and coping resources of adult family caregivers of HIV/AIDS patients in the Kwazakhele area of Port Elizabeth." Thesis, Nelson Mandela Metropolitan University, 2009. http://hdl.handle.net/10948/1021.
Full textAbstract:
Human Immune Deficiency Virus (HIV), which results in Acquired Immune Deficiency Syndrome (AIDS), has many manifestations. Literature reveals that some of these manifestations may compromise the infected individual’s sense of well-being and negatively impact on health related quality of life. As the number of people living with HIV/AIDS disease grows, so does the need for their care. In the early days of the AIDS epidemic, care was primarily handled by special agencies, hospitals and clinics. These agencies have been inundated with the demands of people living with HIV/AIDS, while their resources are shrinking. As it stands now, the total assistance given to people living with HIV/AIDS is provided by relatives and this responsibility of caregiving will more increasingly rest with families. This situation is particularly salient for the rural community in South Africa, which has been disproportionately affected by the AIDS epidemic. AIDS has a tremendous impact on the entire family system, particularly on the individual who has primary responsibility for caregiving. The caregiver must cope with many circumstances that are frustrating and often beyond their control. Caring for a Person Living with HIV/AIDS (PLWHA) appears to be a major stressor in the lives of caregivers, and can be very demanding, impacting on carers financially, physically, emotionally and socially. Given the lack of research on HIV/AIDS family caregiving from a salutogenic approach, this study aimed to explore and describe the sense of coherence and coping of family caregivers of HIV/AIDS patients in the Kwazakhele area in Port Elizabeth. The sample consisted of 50 participants aged between 21 and 65 years, recruited via the Kwazakhele Masizakhe Project. An exploratory-descriptive design was employed. Data was obtained by a biographical questionnaire, the Coping Resources Inventory (CRI) and the Sense of Coherence (SOC-29) Questionnaire. A non-probability convenience sample of adult male and female family caregivers were sampled. Descriptive statistics and correlation coefficients were utilized to describe and explore the coping and sense of coherence of the family caregivers and the correlation between these constructs, respectively. The data obtained from the biographical questionnaire was analysed by using descriptive statistics and frequency counts. Key findings include the following: Results from the coping resources measure indicated that this sample perceived themselves as having an average level of coping resources. The sample tended to rely more readily on spiritual resources and less on cognitive resources. Results from the SOC-29 revealed fairly high mean scores. There is no positive relationship between the SOC-29 and the CRI for the current sample. No significant relationship existed between the SOC and the subscales of the CRI. Suggestions are made for future research, the limitations and value of research were outlined.
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Olivier, Korita. "An HIV and AIDS group work programme empowering adolescents for the possible death of their caregivers / Korita Olivier." Thesis, North-West University, 2009. http://hdl.handle.net/10394/5103.
Full textAbstract:
The overarching objective of this study was to develop and empirically evaluate an HIV and AIDS group work programme empowering adolescents to deal with the possible death of their parents/caregivers. This thesis comprised five sections:
Section A contains the problem statement, research objectives and the procedures that were followed. Furthermore the limitations of this study were discussed, the definitions of key words were given and an exposition was given of the composition of the research report. The problem statement can be condensed as follows:
The large and growing number of adolescents affected by HIV and AIDS makes knowledge concerning their needs essential so as to provide effective interventions. A better understanding of the emotional, social and health needs of adolescents of HIV-infected parents is essential. Responses to adolescents affected by HIV and AIDS should address their needs. Programme development must be done in response to adolescents' needs via their active participation in the entire process.
The problem statement led to five research aims. The concurrent embedded strategy was used in this study and was implemented with a mixed method design model. Interviews and questionnaires were used to collect qualitative and quantitative data simultaneously. Literature studies were conducted on the themes HIV and AIDS, adolescence, the needs of adolescents and group work.
Section B consists of four articles that together formed the report on the research outcomes. Each article was a report on a particular sub-project of the research and had, as a self-contained unit, an own research aim, research method and report. Each article was linked to the central aim, the objectives and the content of the umbrella research project. The four articles were:
> ARTICLE 1: A profile of adolescents' households infected with or affected by HIV and AIDS:
A comprehensive profile of adolescents' households infected with or affected by HIV and AIDS was drafted, based on the results gained from interviews with and the completion of questionnaires by 169 households. Data collected and discussed included various demographic data regarding the households, their health and well-being, school attendance as well as information on child-headed households.
> ARTICLE 2: The needs of adolescents in households infected with or affected by HIV and AIDS:
The needs of adolescents whose caregivers are infected with or affected by HIV and AIDS were discussed. Various basic and developmental needs of adolescents were discussed as well as specific needs they may experience when their caregivers become infected with or affected by HIV and AIDS.
> ARTICLE 3: An HIV and AIDS group work programme empowering adolescents to deal with the possible death of their parents/caregivers:
An HIV and AIDS group work programme was developed, preparing adolescents for the death of their parents/caretakers and empowering them with skills to be able to deal with it. A needs assessment was done on a large number of adolescents from households infected with or affected by HIV and AIDS. The selection of members for this programme, as well as guidelines for group work with adolescents, were discussed. This article focused mainly on the themes and contents of the designed group work programme.
> ARTICLE 4: The evaluation of an HIV and AIDS group work programme empowering adolescents for the possible death of their parents/caregivers:
The programme was implemented with 8 adolescents in an experimental group and 8 adolescents in the control group. The Child Functioning Inventory High School (CFI-HIGH) and the Generalized Contentment Scale (GCS) were used as quantitative measuring instruments at two occasions with both groups. The experimental group was also qualitatively and quantitatively evaluated by means of a self-developed questionnaire.
Section C provided a summary of the findings and conclusions of the research report in total and some recommendations are provided.
Section D consisted of various addenda, such as questionnaires and measuring instruments that were used.
Section E contained an integrated bibliography.Thesis (Ph.D. (Social Work))--North-West University, Potchefstroom Campus, 2009.
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Jepkemboi, Grace. "The educational and psychological experiences of children orphaned by AIDS in western Kenya." Birmingham, Ala. : University of Alabama at Birmingham, 2007. https://www.mhsl.uab.edu/dt/2007p/jepkemboi.pdf.
Full textAbstract:
Thesis (Ph. D.)--University of Alabama at Birmingham, 2007.Additional advisors: Gypsy Abbott, Lois M. Christensen, Lynn D. Kirkland, Maryann Manning. Description based on contents viewed Feb. 6, 2008; title from title screen. Includes bibliographical references (p. 101-104).
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Smith, Hermanus Arnoldus. "Die pastorale bediening van die plaaslike kerk aan substituutversorgers van MIV/VIGS geaffekteerdes / Hermanus Arnoldus Smith." Thesis, North-West University, 2009. http://hdl.handle.net/10394/3672.
Full textAbstract:
HIV/AIDS is a terrible scourge that affects the whole of humanity. This is something nobody can deny or ignore.
It is not only HIV infected people who are affected by this. Millions of others suffer too. Millions of Aids orphans live in poverty and are stigmatized by their communities. If one or both of the parents died of AIDS these orphans will have to burden the ensuing grief, hunger, illiteracy, sibling care, abuse and sometimes having AIDS themselves. Grandparents lose there children and get the responsibilities of raising their grandchildren thrust upon them. Other family members and friends sometimes have to share these unforeseen responsibilities too. The state faces an ever-increasing financial drain on its resources, and tries to keep up with ever changing legislation.
The church, especially the local church is also deeply affected by this reality. She cannot shirk her responsibilities in the matter. She cannot turn a blind eye to the overwhelming need out there.
The methodological model of Zerfass is being used in the study.
The crux of this study concerns the church's duty in this matter. Matthew 25 : 31 - 46 and their supportive texts will test the local church on their involvement in this universal need. This study endeavours to find adequate and novel ways and forms of dealing with need with reference to Practical Theology, relevant Scriptural quotes and the historical churchly tradition of communal aid as witnessed in the early church.
The social sciences are involved in this endeavour to fathom the depth of human need in connection with HIV/AIDS. This study clarifies what HIV/AIDS really means to people, the extent of the challenge, the stigma attached to the affliction, reasons for its spread, poverty, a shortage of ARV's, its incurability, the problems of Aids orphans. In addition this study will explore the challenges facing caregivers, substitute parents like grandparents or family members, formal or institutional care and children acting as heads of families. Their experiences are dealt with, as well as people's material and spiritual wants, and what they need, in order to survive and even grow in dire circumstances.
The local church has a pastoral duty that encompasses much more than the needs of its parishioners. It needs to equip church members with missionary skills to strengthen those in need with the hope and good news of the Gospel. The impact of a concerted effort of a possible 33 000 Christian congregations in South-Africa cannot be underestimated. A study on small groups identify small groups as empowering bodies in the church's pastoral obligation.
In one qualitative study the focus is on the daily life of a range of substitute caregivers: Grandparents, relatives, the experiences of substitute caregivers within institutionalized care, the experiences of people of European descent that run a house of safety and lastly the story of a kid acting as a family head over her siblings. There is the excitement of church involvement and the disappointment over church apathy.
This practical model envisions a coordinated plan whereby the local church can serve and aid these substitute caregivers, to be part of the solution and not of the problem concerning HIV/AIDS. This could be called a "Flexi model". All local churches do not have the same resources, training and infrastructure. Nevertheless several possible solutions are possible, so that caregivers can be involved and empowered, to do what they have to do. The consequences of a successful outreach could be spiritual growth in a local church, inner mental and spiritual health, identification of new and suitable caregivers, reciprocity, poverty alleviation, the breaching of boundaries, empowerment of church members in the exercising of spiritual gifts, development of spiritual zeal, information exchange about the real challenges of AIDS, and the ongoing empowerment of caregivers to the lasting benefit of Aids orphans.
The positive outcome is the inner transformation of a local church. Matthew 25 : 31 - 46 especially verse 40b will become relevant to everyone: "In as much as you have done it to the lesser most of these brethren, you have done it to me."Thesis (Ph.D. (Pastoral)--North-West University, Potchefstroom Campus, 2009.
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Shebi, Molemoeng. "The experiences and coping strategies of HIV/AIDS primary caregivers within two disadvantaged communities in the Western Cape metropole." Thesis, University of the Western Cape, 2006. http://etd.uwc.ac.za/index.php?module=etd&action=viewtitle&id=gen8Srv25Nme4_3484_1210839118.
Full textAbstract:
The Human Immuno-deficiency Virus (HIV) that leads to Acquired Immuno-Deficiency Syndrome (AIDS) is considered to be spreading at a high rate in South Africa. Research indicates that this disease is highly prevalent among people 15 and 49. It is estimated that one in five adults in South Africa is HIV positive. Community or home-based care nurses manage the treatment of sufferers at their homes while under the care of their family members, friends, spouses and significant others. The present study explored the experiences and coping strategies of HIV/AIDS primary caregivers.
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Motshome, Paul Oteng. "Disclosure of HIV infection by caregivers to children with HIV/AIDS in Thamaga Primary Hospital - Botswana : Reasons and experiences." Thesis, University of Limpopo (Medunsa Campus), 2011. http://hdl.handle.net/10386/879.
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Thesis (MPH) -- University of Limpopo, 2011.Introduction With the increased availability of the life-saving ARVs in most Sub-Saharan Africa more HIV -infected children are surviving into their adolescent years and beyond hence giving rise to the question of whether the caregiver should disclose or not disclose the child's HIV diagnosis to child. Little is known of the reasons and experiences that motive or hinder caregivers from disclosing the HIV diagnosis to the child. Study Aim and objectives This was aimed at identifying caregivers' reasons for HIV diagnosis disclosure and non-disclosure to HIV-infected children under their care. The study also explores their experience with process of HIV diagnosis disclosure and non-disclosure to the child. Study methodology Using qualitative descriptive research approach, twenty (20) caregivers of HIV¬infected children aged between 6 - 16 years receiving ART at Thamaga Primary Hospital IDee with unknown HIV diagnosis disclo~ure status were ~.ubjected to audio-taped in-depth interviews for data capturing. Thematic content analysis was used for data analysis using, Nvivo8 software and 16 themes with their sub categories were identified. Findings Both caregivers of disclosed and non-disclosed HIV-infected children perceived disclosure as a good thing to do with majority of the caregivers (60%) having disclosed. Reasons for telling the children their HIV diagnosis were that the child had the right to know his/her status; caregiver tired of keeping child HIV diagnosis a secret; the caregiver's believe that disclosure will improve the child's ART adherence and finally some caregivers felt the child had reached the right age or maturity for disclosure. Non-disclosing caregivers felt that health care workers should assist them in doing disclosure and identified the reasons for non-disclosure as the child being too young and not asking questions about their illness; fear that disclosure might hurt the child psychologically; fear that the child might not keep their HIV diagnosis a secret leading to discrimination in the community while some caregivers lack of knowledge on how to disclose. Non-disclosing caregivers managed disclosure by not telling the child the truth about their diagnosis and using threats to coerce them to take their ARV drugs. Conclusions and recommendations The decision to disclosure or not to disclose the HIV diagnosis to a child by a caregiver is influenced by a number of reasons and their experiences. Caregivers of HIV-infected children need to be assisted by a health care provider when disclosing to the child and further assessment should be made in making disclosure part of the holistic management of an HIV -infected child. v
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Nkomo, Thobeka Sweetness. "The needs of children in middle childhood orphaned by HIV/AIDS." Diss., Pretoria : [s.n.], 2008. http://upetd.up.ac.za/thesis/available/etd-11192008-174457.
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Too, Wesley. "Palliative care for people living with HIV/AIDS in Uganda : an investigation of patients and caregivers' outcome and professional perspectives." Thesis, University of Nottingham, 2011. http://eprints.nottingham.ac.uk/14296/.
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Background: Although antiretroviral treatment is expanding in sub-Saharan Africa, the World Health Organization advocates for integration of palliative care with HAAR T because pain, other distressing symptoms and complex psychosocial challenges persist throughout the HIV trajectory. Palliative care improves the outcome for patients with HIV and may complement antiretroviral treatment by increasing adherence through better management of side effects from the treatment, providing patient and family-centred holistic care, and giving end-of-life care when necessary. However, integrating what have become two disciplines is challenging. Aim: To study the implications for palliative care provision in the context of changing policy to universal access to HAART for people living with advanced AIDS (PLWA) in Uganda. Research questions addressed in the study included: 1. How do patients with advanced AIDS (stage III and IV) and with palliative care needs and their families experience care delivery and receipt over a period of 8 weeks? 2. How is the morphine roll-out programme among advanced AIDS patients operationalized in Uganda? 3. What are the challenges faced by health care workers involved in delivery and implementation of integrated palliative care for patients with advanced AIDS? 4. What are the views of key opinion leaders on development of palliative care policies in Uganda? Methods: A mixed methods approach was employed. The study comprised of three phases. In phase one, a consecutive sample of 30 newly enrolled patients advanced AIDS (stage III & IV) and their carers were recruited at Hospice Africa Uganda and followed up for 8 weeks. Qualitative interviews were conducted with patients and their carers at one time point and an outcome measure using African Palliative Care Association-Palliative Outcome Scale (APCA-POS) was used to assess changes in their experiences over 8 weeks, following access to palliative care. In phase two, 10 palliative care staff members participated in individual interviews and one focus group to explore the challenges they faced in delivering services to patients. Phase three explored, by the use of interviews with 7 key stakeholders, the broader context of palliative care policy development and opinions about key priorities for the future. Findings: Out of 30 patients, 14 were male and 16 were female. They ranged in age from 18-60 years. The majority of patients were bed-ridden and experienced distressing symptoms related to advanced AIDS and AIDS-defining cancers which necessitated timely palliative care intervention. The key findings of the study relate to the range of physical symptoms experienced by patients and the psychosocial challenges of disclosure and stigma encountered by patients and their families against a backdrop of profound poverty. Palliative care staff indicated two categories which broadly covered the challenges of palliative care delivery to PLWA in Uganda: service-linked and provider-linked challenges. Palliative health care staff and key stakeholders identified strategies to respond to palliative care needs for PLWA across four dimensions: a) partnerships or networking together with stakeholders; b) improving palliative care education; c) raising awareness of palliative care among communities and health care workers; d) advocacy and policies which support and strengthen initiation and expansion of palliative care services to PLWA, including the availability of morphine. Conclusion: The study shows the paramount importance of drawing on patients' and carers' experiences and concerns to shape models of African palliative care. Both palliative care staff and key informants' perspectives highlight successes, barriers and important lessons for palliative care service delivery in Uganda. These lessons have several implications across the dimensions of practice, education, policy and research. Palliative care staff need to work with several key players or stakeholders to address the many psychosocial issues affecting PLWA including support during treatment. The study indicates the need to translate government policies on palliative care into action.
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Diseko, Agnes Nkeba. "HIV/AIDS clients and their caregivers' perceptions of a community home-based care support programme in Botswana : a qualitative study." Master's thesis, University of Cape Town, 2006. http://hdl.handle.net/11427/9338.
Full textAbstract:
Includes bibliographical references (leaves 75-82).The study was undertaken at a village called Ramotswa in Botswana. Botswana is a small country in Southern Africa with a population of 1.7 million people (Botswana Housing and Population Census, 2001). The study explores HIV/AIDS clients' and caregivers' perceptions of the Community Home-Based Care support programme. The people involved in the community home-based care programme included nurses, family welfare educators (FWEs), social workers, community volunteers, and drivers. An exploratory qualitative design was used. Collection of data was through in-depth interviews, as well as a focus-group discussion. The sample was obtained through purposeful sampling, and there were nine HIV/AIDS clients, and seven caregivers who participated in the study. Results of the study were analysed themeativally. Resulst showed that many caregivers are women, and that they perform the task of care-giving under very difficult situations of poverty, social isolation, fear and stigma. They needed financial, material spiritual, as well as professional support from the home-based care team and community members.
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Zulu, Nompumelelo Patience. "The effect of an informal caregiver's programme on the care of patients infected with HIV/AIDS." Thesis, Stellenbosch : University of Stellenbosch, 2010. http://hdl.handle.net/10019.1/5382.
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Thesis (MCur (Interdisciplinary Health Sciences. Nursing Science))--University of Stellenbosch, 2010.ENGLISH ABSTRACT: Background & rationale: South Africa is faced with the major challenge of HIV/AIDS. Every South African has a vital role to play in managing this public health problem. One of the best ways of managing it is by informing and educating the communities about HIV/AIDS, as the communities lack knowledge about it. Problem statement: Due to the increase in the number of patients infected with HIV/AIDS, an informal caregiver’s programme was introduced to ensure that patients are better cared for at home, in a familiar environment and by their family members. Purpose and objectives: The purpose of the study was to evaluate the effect of an informal caregiver’s programme on the care of patients with HIV/AIDS. The objectives included evaluating the effect of care, physically, socially, spiritually, emotionally, information and educational support given. Methodology: A phenomenological research design was applied to evaluate the effects of an informal caregiver’s programme implemented for the care of patients infected with HIV/AIDS at Mfuleni Township in the Cape Metropolitan area. Population and sampling: The population of this study were HIV/AIDS infected patients who were participating in the informal caregiver’s programme. Ten of these patients, who gave consent, participated in the study. Reliability, validity & pilot study: The trustworthiness of this study was assured with the use of Lincoln and Guba criteria of credibility, transferability, dependability and conformability. A pre-test study was also completed. Ethical considerations: Ethical approval was obtained from the Stellenbosch University and the required consent from the individual participants. Data collection, analysis and results: Data was collected through an interview using an interview schedule based on the objectives. Data was analysed and the findings show that the care given to patients infected by HIV/AIDS at home through an informal caregiver’s programme has a positive outcome. Recommendations and conclusion: On the spot training of participants and their family members is recommended. The community health workers form a very strong support base for the participants.
AFRIKAANSE OPSOMMING: Agtergrond en rasionaal: Suid-Afrika kom te staan voor ’n reuse uitdaging t.o.v. HIV/VIGS. Elke Suid-Afrikaner het ’n belangrike rol te speel in die beheer van hierdie openbare gesondheidsprobleem. Een van die beste maniere om dit te beheer, is om gemeenskappe in te lig en op te voed aangaande MIV/VIGS, aangesien daar ’n gebrek aan kennis hieromtrent is. Probleemstelling: Weens die toename in die aantal pasiënte wat deur MIV/VIGS geaffekteer word, is ’n informele versorgingsprogram daarop ingestel om te verseker dat pasiënte beter tuis versorg word in ’n bekende omgewing en deur hul familielede. Doel en doelwitte: Die doel van hierdie studie was om die effek van ’n informele versorgingsprogram in die versorging van pasiënte met MIV/VIGS te evalueer. Die doelwitte is uiteengesit om die effek van die versorging wat gegee is, te evalueer met verwysing na die fisiese, sosiale, geestelike, emosionele, inligting en opvoedingsondersteuning te evalueer. Metodologie: ’n Fenomenologiese navorsingsontwerp is toegepas om die effekte te evalueer van ’n informele versorgingsprogram wat geïmplementeer is vir die versorging van pasiënte wat deur MIV/VIGS geaffekteer is in die Mfuleni woonbuurt in die Kaapse Metropolitaanse area te evalueer. Bevolking en steekproef: Die bevolking van hierdie studie is MIV/VIGS geaffekteerde pasiënte wat deelgeneem het aan die informele versorger se program. Tien van hierdie pasiënte wat toestemming verleen het, het deelgeneem aan hierdie studie. Betroubaarhied, geldigheid en loodsondersoek: Die betroubaarheid van hierdie studie is verseker deur die gebruik van Lincoln en Guba se kriteria van geloofwaardigheid, oordraagbaarheid, afhanklikheid en ooreenstemmigheid. ’n Aanvoortoets is ook voltooi. Etiese oorwegings: Etiese goedkeuring is van die Stellenbosch Universiteit en die vereiste toestemming van die individuele deelnemers verkry. Dataversameling, analise en uitslae: Data is ingesamel deur gebruik te maak van ’n onderhoudskedule wat gebaseer is op die doewitte. Data is geanaliseer en die bevindinge het bewys dat versorging wat by die huis deur ’n informele versorgingsprogram aan pasiënte gegee word wat met MIV/VIGS geaffekteer is, ’n positiewe uitkoms het. Aanbevelings en gevolgtrekkings: Op-die-plekopleiding van HIV geïnfekteerde pasiente en hul familielede word aanbeveel. Die gemeenskap se gesondheidswerkers bied ’n sterk ondersteuningsbasis aan die deelnemers.
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Joseph, Vanessa Belinda. "Care, caring and coping: attitudes of children orphaned by HIV/AIDS and their caregivers towards schooling in a South African Township." Thesis, University of the Western Cape, 2007. http://etd.uwc.ac.za/index.php?module=etd&action=viewtitle&id=gen8Srv25Nme4_2383_1256282262.
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In many countries, the scale of poverty, and the alarming number of children now being orphaned by HIV and AIDS, has increased the roles and responsibilities of grandparents as caregivers in their grandchildren's lives. Not only do grandparents have to care for their grandchildren on a daily basis but they also carry the burden of seeing them through school, possibly with the fear that they might not be able to see them achieve all their dreams. This study examined the complex issues surrounding school attendance for orphaned children in Mbekweni, a township in the Western Province, in South Africa. The study explored the relationship between the attitudes of orphaned learners and their caregivers towards education and schooling itself, uncovering the struggles and the strengths of caregivers and orphaned children that directly relate to success or faiolure in school.
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Mamaila, Tshifhiwa. "Community-based care for HIV/AIDS orphans." Diss., Pretoria : [s.n.], 2005. http://upetd.up.ac.za/thesis/available/etd-01312006-092356.
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Bester, Narina. "The role of Hospice T.L.C. caregivers in child and family care in the Kokstad area / N. Bester." Thesis, North-West University, 2009. http://hdl.handle.net/10394/4148.
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Section A: Article 1.Due to the increasing number of people being infected with or affected by HIV or AIDS, the need for home-based care services has increased. The psycho-social needs of families have also increased due to HIV infection resulting in a need for more extensive service rendering by relevant service providers. By exploring the role of Hospice T.L.C. caregivers in meeting these needs, recommendations could be made for service rendering to families infected with or affected by HIV or AIDS. Main focus areas for service rendering to these families were identified.Section B, Article 1: In Kokstad, Kwazulu-Natal Hospice caregivers have been rendering services to families infected with and affected by HIV and AIDS. The role of these caregivers was explored by means of a qualitative study making use of focus groups. The focus of this article is the role that Hospice caregivers fulfil in meeting the needs of these families. Through their training and knowledge they obtain access to families infected with and affected by HIV and AIDS. From the study, certain recommendations could be made that could improve future service rendering, and assist the caregivers in meeting the needs of their patients more effectively.
Section B, Article 2: Literature indicates that people are widely affected by the presence of HIV or AIDS in their lives. The effects are of a physical, psychological, as well as a social nature. This has several implications for the affected families. In this study the bio-psychosocial needs, as identified by families themselves, receive attention. This qualitative study was conducted with the help of caregivers of Hospice T.L.C. operating in the Kokstad area, Kwazulu-Natal and involved home visits to affected families where an interview schedule guided the process of data collection. Material needs, as well as a need for emotional support were the most prevalent. The relationship between the caregivers and affected families are very positive, allowing an open door for further service rendering.
Section B, Article 3: Hospice T.L.C. is a non-profit organization (NPO) operating since 2006. They are rendering holistic, palliative and frail care services to ail patients in the Kokstad area, southern. KwaZulu-Natal. This qualitative study was aimed at exploring the extent of involvement of welfare organisations in meeting the bio-psychosocial needs of families infected with and affected by HIV or AIDS. This article deals with the stakeholders rendering services to these families and possible ways in which service rendering could be improved. Data was obtained during a focus group session with the caregivers and their supervisor. Interviews were conducted with members of the relevant resources that could meet the bio-psychosocial needs of families infected with or affected by HIV and AIDS.
Thesis (M.A. (MW))--North-West University, Potchefstroom Campus, 2010.
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Chidubem, Michael Ebere. "Formats for storytelling by caregivers for sharing knowledge in home-based health care." Thesis, Cape Peninsula University of Technology, 2012. http://hdl.handle.net/20.500.11838/1326.
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Thesis submitted in fulfilment of the requirements for the degree
Master of Technology: Design
in the Faculty of Informatics and Design
at the Cape Peninsula University of Technology, 2012Home-Based Health Care (HBHC) is the provision of health services and social assistance to individuals in their homes. It is an indispensable service to communities in need; presently in South Africa, these health care services are provided by local non-profit and non-governmental organizations. It is mainly targeted at poverty-stricken and under resourced communities and is an important aspect of healthcare in South Africa. A lot of communities in South Africa are still under-resourced and live in impoverished conditions. This is reflected in poor living standards characterized by unemployment, uneasy access to basic amenities, unequal distribution of wealth, poor medical facilities in rural communities, etc. The prevalence of the HIV/AIDS endemic has also worsened the situation. However, the South African government has constantly supported initiatives to enhance better healthcare in rural communities. This research presents a case study of caregivers working in Du Noon, an informal settlement in Western Cape, South Africa. Du Noon is overpopulated and home to lots of foreigners who have migrated in search of better living standards thus stretching an already over-burdened community. Naturally, this development supports poor health practices which encourage the spread of diseases within the community. Health facilities do not sufficiently cater for the ever-increasing healthcare demands and as such lots of people depend on NGOs such as SALT (Sharing Abundant Life Together) who through the help of caregivers and community workers have been providing for some of the healthcare needs of the Du Noon community since 2000. Findings reveal that although caregivers in this community have lots of stories to share about their work practices, they do not have a platform to share these stories. This research focuses on identifying processes involved in capturing these stories and moderating them into educative and entertaining visual contents for the purpose of sharing the stories within the community. Using qualitative research methods, empirical and field study provides the needed data as well as understanding of the multi-dynamism of this community. Data analysis is done through interpretive methods for the purpose of understanding the data collected and analysed during the research process. Finally, as a possible research contribution, the research concludes by examining how other technology can enhance the storytelling experience using interaction design methods that enables caregivers participate in the entire design process. Suggestions are also given as to direction for further research within the subject area.
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Sturesson, Annika, and Sara Håkansson. "Oral hygiene experience, knowledge of oral health and oral diseases and attitudes about oral health care : A questionnaire study among students of nursing in Zambia." Thesis, Högskolan Kristianstad, Sektionen för Hälsa och Samhälle, 2010. http://urn.kb.se/resolve?urn=urn:nbn:se:hkr:diva-7367.
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The aim of the study was to investigate oral hygiene experience, knowledge of oral health and oral diseases and attitudes about oral health care among students of nursing at the School of Nursing in Livingstone, Zambia. The respondents were women and men in the ages between 20 and 43. A questionnaire consisting of 29 questions was handed out to 119 students. The results showed that the majority of the students brushed their teeth every day. Visits to dental clinics, however, were few. The most common reason for dental visits was pain. Most of the respondents knew about one or more HIV-related oral diseases, and the most common answer was oral candidosis. The overall knowledge of HIV/AIDS-related oral lesions was very high, and the majority of the respondents were interested to receive more information about the subject. The respondents had good knowledge in oral health and oral diseases, and the majority had a positive attitude concerning oral health care providers. The majority also considered collaboration between dental care and regular health care as essential. Although the knowledge about oral health was good, the result showed infrequent dental visits among the respondents.Syftet med studien var att undersöka sjuksköterskestudenters munhygienvanor, deras kunskaper om oral hälsa och orala sjukdomar samt attityder till munhälsovård. Ett frågeformulär med 29 frågor delades ut till 119 andra- och tredje års studenter på sjuksköterskeskolan i Livingstone, Zambia. Respondenterna var både kvinnor och män mellan 20 och 43 år. Resultatet visade att flertalet studenter borstade sina tänder dagligen. Däremot var det ovanligt med täta tandvårdsbesök och den vanligaste orsaken till besök var smärta. Majoriteten av studenterna hade goda kunskaper om HIV-relaterade orala lesioner och det vanligaste svaret de uppgav var oral candida. De generella kunskaperna om HIV/AIDS- relaterade orala lesioner var väldigt goda och majoriteten av respondenterna var intresserade av mer information i ämnet. Generellt hade respondenterna goda kunskaper om oral hälsa, orala sjukdomar och majoriteten hade en positiv attityd till munhälsovård. Flertalet ansåg att ett samarbete mellan tand- och sjukvård var betydelsefullt. Trots den höga kunskapsnivån om oral hälsa visar resultatet att respondenterna inte besöker tandvården regelbundet.
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Tshikongo, Aktofel Ndetshipanda. "To investigate factors preventing the care-givers from accessing the social grants and other benefits entitled to the orphans and vulnerable children (OVC) under their care." Thesis, Stellenbosch : Stellenbosch University, 2013. http://hdl.handle.net/10019.1/79963.
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Thesis (MPhil)-- Stellenbosch University, 2013.ENGLISH ABSTRACT: One of the consequences of HIV/AIDS is the large number of orphans and vulnerable children (OVC). Most OVC care givers in African communities are elders. The elders use their meagre pension hand out to support their OVC grandchildren. The Ministry of Gender Equality and Child Well Fare (MGECW) has responded to the financial burden of the OVC care-givers by issuing different social grants to the OVC. Due to preventing factors not all OVC are receiving these grants. The Namibian Government has formulated different policies protecting the rights of OVC. However, not all stakeholders are implementing these policies which lead to the OVC`s rights being compromised. This study was conducted in Omusati Region in Namibia to determine the factors that prevent some of the OVC care-givers from accessing the social grants and other benefits entitled to the OVC under their care. Data for this study have been obtained from four sources, using four different data collection methods. In depth interview have been used to collect data from twelve Community Childcare Workers (CCW) in the (MGECW) administering the OVC`s grants applications at twelve Constituencies. Some information was obtained using structured questionnaire from twenty four teachers dealing with OVC at twelve schools in twelve Constituencies. The officials from the Ministry of Home Affairs and Immigration (MHAI) have been engaged in focus group discussion to provide valuable information to this study. Literature has also been reviewed to shed more light on the subject under investigation. This study discovered that there are various impediments preventing the care-givers from obtain the OVC social grants. Lack of documents, transport costs and long distances coupled with cumbersome process of processing grants applications and issuing national documents are among the preventing factors. This project has been concluded with recommendations which if implemented will smoothen the process of grants accessibility.
AFRIKAANSE OPSOMMING: Een van die gevolge van MIV/Vigs is die groot aantal weeskinders en kwesbare kinders (OVC). OVC sorg gewers in Afrika-gemeenskappe is die ouderlinge. Die oudstes gebruik hul karige pensioen hand uit hul OVC kleinkinders te ondersteun. Die Ministerie van Geslagsgelykheid en Kinderwelsyn Wel Fare (MGECW) het gereageer op die finansiële las van die OVC versorgers deur die uitreiking van verskillende maatskaplike toelaes aan die OVC. As gevolg van die voorkoming van faktore nie alle OVC hierdie toekennings ontvang. Die Namibiese regering het verskillende beleide wat die beskerming van die regte van die OVC geformuleer. Egter nie alle belanghebbendes die implementering van hierdie beleid wat lei tot die OVC se regte word gekompromitteer. Hierdie studie is uitgevoer in die Omusati-streek in Namibië om die faktore wat verhoed dat sommige van die OVC versorgers van toegang tot die maatskaplike toelaes en ander voordele geregtig op die OVC onder hul sorg te bepaal. Data vir hierdie studie is verkry uit vier bronne, deur gebruik te maak van vier verskillende data-insamelingsmetodes. In diepte onderhoud is gebruik om data van twaalf Gemeenskap Kindersorg Werkers (CCW) te versamel in die (MGECW) die administrasie van die OVC se toelaes aansoeke op twaalf Kiesafdelings. Sommige inligting is verkry met behulp van gestruktureerde vraelys uit 24 onderwysers die hantering van OVC by twaalf skole in twaalf Kiesafdelings. Die amptenare van die Ministerie van Binnelandse Sake en Immigrasie (MHAI) is besig met die fokusgroepbespreking om waardevolle inligting te verskaf aan hierdie studie. Literatuur is ook hersien om meer lig te werp op die onderwerp wat ondersoek word. Hierdie studie het ontdek dat daar verskeie struikelblokke wat verhoed dat die versorgers van die OVC maatskaplike toelaes te verkry. Gebrek van dokumente, vervoerkoste en lang afstande, tesame met 'n omslagtige proses van die verwerking van toelaes aansoeke en die uitreiking van nasionale dokumente is onder die voorkoming van faktore. Hierdie projek is afgesluit met aanbevelings wat, indien dit geïmplementeer word, die toegang to toelaes sal verbeter.
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Nkulu, Kalengayi Faustine. "A world on the move : challenges and opportunities for hiv/aids and tuberculosis care and prevention among vulnerable migrant populations in Sweden." Doctoral thesis, Umeå universitet, Epidemiologi och global hälsa, 2013. http://urn.kb.se/resolve?urn=urn:nbn:se:umu:diva-67636.
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Background: Migration is a global phenomenon that characterize today’s globalized world. Although, the relationship between migration and health in the host countries is not always negative, many countries, including Sweden are concerned about possible spread of infectious diseases of public health significance such as HIV/AIDS and tuberculosis (TB). Moreover, apart from disease profiles, migrants also have different socio-cultural backgrounds, which may challenge health care access and provision. Objectives: To investigate, identify, and delineate potential challenges of relevance in the care and prevention of communicable diseases of public health significance in general and particularly HIV/AIDS and TB among migrants from countries where these infections are endemic, and eventually generate knowledge that could inform policies and practice. Methods: Data for this thesis were collected in four of the five counties of the Northern region in Sweden. Quantitative and qualitative methods were used including a survey of 268 migrant students in two language schools (I & II); an interview study with 10 care providers caring for patients with migrant backgrounds and observations of care encounters (III) and an interview study with 15 care providers experienced in screening migrants (IV). Descriptive and logistic regression analyses were used to summarize survey data whereas a thematic analysis approach was applied to the qualitative data within the interpretive description framework. Results: The students scored on average low on both HIV/AIDS and TB knowledge and displayed misconceptions and negative attitudes towards the two diseases and infected/sick persons. Knowledge level and attitude could be predicted by prior knowledge, years of previous education and geographic origin. In contrast, no association was found between being screened and the level of TB knowledge or attitude towards TB and infected/sick persons. However, fear of being deported appeared to be the main predictor of reluctance to seek HIV/AIDS care after controlling for socio-demographic factors, knowledge level, stigmatizing attitudes and fear of disclosure. Health care providers described complex and intertwined challenges that influenced both care delivery and receipt. The challenges described included language, the socio-cultural diversity within migrant groups and between migrants and the caregivers. These often resulted in divergent perceptions and expectations about care and caring. The participants highlighted the complexities of caring for diverse patients within different institutions with conflicting policies and frameworks. They also described the difficulties the migrants face in navigating the Swedish care system. Conclusions: This thesis illuminates complex challenges in the care of migrants. The findings emphasize the need for multilevel strategies in order to remove identified barriers. This requires accommodating diversity by improving care providers’ cultural competence and migrants’ health literacy. It further requires policies and practices that emphasize health services responsiveness in order to provide equal access and equitable care. Finally, it entails revisiting existing policies and legislative frameworks to promote a change in ways of thinking about and approaching migration, HIV/AIDS and TB issues, to address the specific vulnerabilities of mobile populations in a world on the move.
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Mataka, Anafi. "Perceptions of factors contributing to psychological distress in HIV positive children on antiretroviral therapy in Mochudi, Botswana : a family caregiver and health care worker analysis." University of the Western Cape, 2011. http://hdl.handle.net/11394/5301.
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Master of Public Health - MPHBackground: The repercussions of being HIV positive coupled by the complications of antiretroviral therapy are likely to cause distress, emotional and psychological problems particularly among children infected by the virus. The limited support services for children experiencing distress intensify the urgency to address this challenge. Despite the availability of social workers and nurses' interventions currently in place, the number of children in need of psychological care continues to increase. This is particularly true at Deborah Retief Memorial (DRM) hospital, one of the main antiretroviral therapy facilities in Kgatleng district, Botswana. Method: The purpose of this study was to explore and describe the perceptions of social workers, nurses and caregivers on key factors contributing to psychological distress of HIV positive children. A descriptive, exploratory qualitative study design that employed the use of in-depth interviews was used to conduct this study. Participants included four caregivers of HIV positive children who seek antiretroviral therapy at DRM hospital Infectious Diseases Control Clinic, together with five nurses and two social workers who worked in the same clinic. Conventional content analysis was used to analyse the in-depth interview transcripts. Results: Perceived psychological stressors for HIV positive children included disclosure of HIV status, orphanhood, social problems, lifelong treatment, stigma, poor caregiver-child relationship and lack of caregiver‟s love, care and support. However the caregivers did not fully understand the psychological distress the HIV positive children were experiencing, hence were unable to recognize it in these children. The study highlighted that major challenges faced by the health-workers included lack of qualified personnel, lack of adequate knowledge and skills, and a non-conducive working environment required to effectively assist children with psychological distress. The findings also indicated the need for education and support of caregivers and HIV positive children by the educators, family and health-worker systems. Conclusion: The profile of key stressors of psychological distress, the challenges and support needs suggested by the participants in this study can provide a framework for improving the existing services for HIV positive children with psychosocial problems. This information is important for use in training nurses and social workers involved with children with psychological behaviours.
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Bambani, Nomfezeko. "The utility of Weingarten's witness positions in the understanding of compassion fatigue in people who care for their own family members with AIDS." Thesis, Rhodes University, 2006. http://hdl.handle.net/10962/d1004465.
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This paper explores the utility of Weingarten's (2003) witness positions in the understanding of compassion fatigue in people who care for their own family members with AIDS. The research is embedded in Weingarten's theory of witnessing and narrative theory and practice. The literature review explores the shift from hospital-based care to community/home-based care which has led to family members assuming the role of caring for their family members with AIDS, an overview of the effects of caring for AIDS patients on caregivers and an overview of Weingarten's (2003) theory of witnessing with special emphasis on the witnessing positions and their consequences. Interviews, based on narrative theory and practice in which Weingarten's theory is rooted, gave access to the participants' experiences, which were then analysed and interpreted through a framework developed from the witnessing theory. This article demonstrates the utility of Weingarten's (2003) theory of witnessing to people who are caregivers to their own family members with AIDS. I argue that witness positions occupied by caregivers during witnessing determine whether the caregivers will experience compassion fatigue. The negative consequences related to compassion fatigue that will be reviewed could probably be prevented through active, intentional, compassionate witnessing.
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Ofunne, Ifeanyichukwu. "An assessment of the knowledge, attitudes and practices of caregivers of HIV positive children on treatment in Pretoria, South Africa : a case study of out-patients in Kalafong Hospital, Pretoria." Thesis, Stellenbosch : Stellenbosch University, 2014. http://hdl.handle.net/10019.1/86874.
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Thesis (MPhil)--Stellenbosch University, 2014.ENGLISH ABSTRACT: This study examines the level of HIV and AIDS knowledge, attitudes, as well as practices amongst caregivers of HIV infected children in Pretoria, using Kalafong hospital as a case study. The study uses a questionnaire as survey instrument. A total of 30 respondents participated in the study, which took place in October of 2013. The respondents were selected via simple random sampling and the results were analyzed. The results showed a remarkably high level of HIV and AIDS knowledge amongst the respondents, from which it was evident, that: A significant number of caregivers were aware of and able to take care of existing medical conditions arising from HIV in children. Most of the home-based care of children living with HIV was carried out by women in a very disproportionate ratio to men. In this regard, the study offers a range of suggestions and recommendations as well as existing best practices, such as the UNAIDS booklet on caregiving within the context of HIV and AIDS. The study was undertaken with the realization that generalizations cannot be made through extrapolation to the larger society because of limitations, such as the sample size of this study.
AFRIKAANSE OPSOMMING:Hierdie studie ondersoek die vlak van MIV/VIGS kennis, houdings teenoor dieselfde, sowel as praktyke onder versorgers van MIV-besmette kinders in Pretoria, met behulp van Kalafonghospitaal as 'n gevallestudie. Die studie maak gebruik van 'n vraelys as opname instrument. 'n Totaal van 30 respondente het deelgeneem aan die studie, wat in Oktober 2013 plaasgevind het. Die respondente is gekies deur 'n eenvoudige ewekansige steekproefneming en die resultate is ontleed. Die resultate toon 'n merkwaardig hoë vlak van MIV en VIGS kennis onder die respondente. Hierdie kennis, houdings en praktyke opgedoen was voldoende om daarop te let: • 'n beduidende aantal van die versorgers is bewus van en in staat om bestaande toestande in MIV-sorg in kinders te versorg. • Die meeste van die tuisversorging van kinders wat met MIV leef is uitgevoer deur vroue in 'n baie oneweredige verhouding met mans. In hierdie verband bied die studie 'n verskeidenheid van voorstelle en aanbevelings sowel as die bestaande beste praktyke soos die UNAIDS boekie oor versorging binne die konteks van MIV en VIGS. Die studie is gedoen onder die besef dat veralgemenings nie gemaak kan word deur ekstrapolasie na die groter samelewing nie, as gevolg van beperkings soos die monster grootte van hierdie studie
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Earnshaw, Samantha Sibusisiwe. "The health and living conditions of children in child-headed households in Siteki, Swaziland." Diss., Access to E-Thesis, 2007. http://upetd.up.ac.za/thesis/available/etd-05312010-142537/.
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Shonhai, Venencia F. "Social learning processes of HIV/AIDS women caregivers on their use of traditional foods and medicinal plants : the case of Raphael Centre and Keiskamma Art and Health Centre communities of practice, Eastern Cape Province, South Africa." Thesis, Rhodes University, 2009. http://hdl.handle.net/10962/d1003653.
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The scale of people being infected by HIV/AIDS (Human Immunodeficiency Virus /Acquired Immune Deficiency Syndrome) has meant that the family and the community have had to become involved in caring for the sick (Van Dyk, 2005). This has inevitably led to the emergence of informal caregivers in the form of family members caring for their relatives (Kipp, Nkosi, Laing & Jhangri, 2006). The research investigated the social learning of women caregivers looking after people living with HIV/AIDS, with emphasis on caregiving practices related to how they use traditional foods and medicinal plants. The research was undertaken in Grahamstown at the Raphael Centre and in Hamburg at Keiskkamma Health Centre and Art Project, Eastern Cape, South Africa. Data was collected using interviews, focus group discussions and diaries written by participants. The data was analyzed in two phases: the first phase involved reading the interview transcripts and collating the responses into analytical memos that were captured into broad categories, while the second phase made use of the community of practice analytical framework to further analyze the data to get better understanding of the social learning processes. This study reveals that participating in a community of practice like Raphael Centre and Keiskamma Health Centre enables caregivers to learn about caregiving. It also reveals that within these communities of practice there are varied learning processes that take place, such as observational and collaborative learning. The research also revealed that caregivers learn from the communities from which they come, for example caregivers learn about traditional food and medicinal plants which they use from their family members, friends, other caregivers as well as non governmental organizations. The research found that caregivers are influenced in their learning and practices by a number of factors which include their own experiences, ambivalent messages from different stakeholders concerned with fighting HIV/AIDS and exposure to new information. The research recommends that diverse learning processes in a community of practice and outside a community of practice should be encouraged and strengthened. It also recommends that HIV/AIDS caregiving options should be strengthened by drawing on experience and knowledge of caregivers. Caregivers should be encouraged to be selfsustaining to improve their caregiving practices. Stakeholders in the field of HIV/AIDS should be alert to and address ambivalence on use of medicinal plants. Existing programmes that enable women to learn about new information on HIV/AIDS should be strengthened.
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Griffiths, Mikaela Ceridwen. "A profile of needs music therapy with HIV infected children in a South African institution /." Diss., Pretoria : [s.n.], 2003. http://upetd.up.ac.za/thesis/available/etd-02232005-104125/.
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Razera, Ana Paula Ribeiro. "Video educativo como estratégia de treinamento para cuidadores de crianças com fissura labiopalatina em pós-operatório de queiloplastia e palatoplastia." Universidade de São Paulo, 2017. http://www.teses.usp.br/teses/disponiveis/61/61132/tde-13062017-114041/.
Full textAbstract:
Objetivo: verificar o padrão de informação adquirido por cuidadores informais de crianças com fissura labiopalatina sobre os cuidados pós-operatórios de queiloplastia e palatoplastia por meio da utilização de um vídeo educativo. Método: estudo clínico randomizado, realizado com 80 cuidadores de crianças com fissura labiopalatina isolada submetidas às cirurgias de queiloplastia e/ou palatoplastia, compondo dois grupos, experimental (G1) e comparativo (G2). A coleta de dados ocorreu durante o período de hospitalização da criança, em três etapas, prétreinamento, treinamento e pós-treinamento. No pré-treinamento, foi aplicado o questionário de sondagem contendo questões referentes à caracterização da amostra (G1 e G2) e identificação de informações sobre os cuidados pós-operatórios de queiloplastia e palatoplastia dos participantes. Em seguida, foram administrados os instrumentos: Inventário de sintomas de stress para adultos, Inventário de Beck para depressão, Inventário de Beck para ansiedade, Teste não verbal de inteligência e Escala de Bourden Interview, em ambos os grupos, para a identificação do perfil comportamental dos cuidadores. Na segunda etapa, os cuidadores receberam treinamento com orientações sobre os cuidados necessários com a criança no período pós-operatório. Para o treinamento do G1, foi construído e validado um vídeo educativo sobre os cuidados pós-operatórios das cirurgias primárias de queiloplastia e palatoplastia, apresentado aos cuidadores na forma individual. Para o G2, foram fornecidas orientações pós-operatórias de rotina, realizadas pelos enfermeiros da unidade hospitalar. No pós-treinamento, foi reaplicado o questionário de sondagem sobre as orientações fornecidas, em ambos os grupos, visando à identificação do padrão de informação adquirido sobre os cuidados pós-operatórios e a comparação dos resultados. Na análise estatística, utilizaram-se os testes Quiquadrado, Exato de Fisher, Mann-Whitney, Wilcoxon e McNemar. Em todos os testes adotou-se o nível de significância de 5%. Resultados: em ambos os grupos foram evidenciados ganhos no padrão de informação sobre os cuidados pósoperatórios no pós-treinamento. Porém, o G1 apresentou maior nível de informação sobre os cuidados pós-operatórios de queiloplastia e palatoplastia com o uso do vídeo educativo, em comparação ao G2. Conclusão: considerando os ganhos póstreinamento no padrão de informação do grupo experimental, comparado ao grupo comparativo, o vídeo educativo, construído e validado no presente estudo, evidenciou-se como uma ferramenta educativa facilitadora na aquisição sobre o manejo dos cuidados pós-operatórios de queiloplastia e palatoplastia.Objective: to analyze the information achieved by informal caregivers of children with cleft lip and palate about the postoperative care after lip and palate repair, by the utilization of an educational video. Method: randomized clinical study, conducted on 80 caregivers of children with isolated cleft lip and palate submitted to lip and/or palate repair surgeries, comprising two groups, study (G1) and control (G2). Data were collected during hospitalization of children at three stages, namely pre-training, training and post-training. At pre-training, a screening questionnaire was applied containing questions related to sample characterization (G1 and G2) and identification of information on the postoperative care after lip and palate repair of the participants. Then, the following instruments were applied: Stress Symptoms Inventory for Adults, Beck Depression Inventory, Nonverbal Intelligence Test and Bourden Interview Scale, for both groups, to identify the behavioral profile of caregivers. On the second stage, the caregivers received training with information about the care required by the child during the postoperative period. Individuals in G1 were trained by a constructed and validated educational video about the postoperative care after primary lip and palate repair surgeries, individually exhibited to the caregivers. Individuals in G2 received routine postoperative counseling by the nursing staff from the hospital. At post-training, the screening questionnaire addressing the information provided was again applied to both groups, aiming to identify the pattern of information achieved about the postoperative care and to compare the results. Statistical analysis was performed by the chi-square, Fishers exact, Mann-Whitney, Wilcoxon and McNemar tests, all at a significance level of 5%. Results: both groups exhibited improved information about the postoperative care at post-training. However, G1 exhibited higher level of information about the postoperative care after lip and palate repair by utilization of the educational video, compared to G2. Conclusion: considering the post-training achievements in the pattern of information for the study group, compared to the control group, the educational video constructed and validated for the present study presented to be an educational tool that enhanced the knowledge about the management of postoperative care after lip and palate repair.
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Williams, Joanne Tracey. "A yoga intervention program for HIV/AIDS caregivers." Thesis, 2005. http://hdl.handle.net/10530/1022.
Full textAbstract:
A dissertation submitted in partial fulfillment of the requirements for the degree of Master of Arts (Clinical Psychology) in the Department of Psychology University of Zululand, South Africa, 2005.HIV/AIDS has reached alarming proportions in South Africa, with many people's lives being affected. This research project looked more closely at caregivers involved in HIV/AIDS work, examining their stress levels and their psychological well-being. A yoga intervention program was implemented with a sample of caregivers at the Holy Cross Hospice, Emoyeni, in Zululand. The effectiveness of the program was evaluated using both qualitative and quantitative measures. Overall, this yoga intervention program was effective with many of the caregivers reporting noted improvements in their stress levels and psychological well-being.
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Naidu, Nemsha. "Experiences of caregivers working with children living with HIV/AIDS." Thesis, 2005. http://hdl.handle.net/10413/2697.
Full textAbstract:
The present study aims to explore the experiences of caregivers working with children living with HIV/AIDS in the context of a children's home. While there has been research conducted on family members as well as community based caregivers of people living with HIV/AIDS, there has been a paucity of research on caregivers of children living with HIV/AIDS in Children's homes. There is a strong need to address this area of deficit in order to identify and tackle areas of difficulty as well as rewarding aspects to enhance the caregiving experience This pilot study adopted the interpretive research paradigm, is qualitative in nature and utilized in depth interviews as a means of data collection. Four women working as caregivers at the children's home were interviewed and the data obtained was analysed using thematic content analysis. The present study highlights the positive as well as the negative aspects of caregiving from the perspective of the caregivers. While caregivers identify the difficulties that they face as a result of caregiving, they also acknowledge the rewards that they attain from their line of work. Furthermore the present study emphasises the coping strategies employed by the caregivers on a personal and an organisational level as well as the resources that aid coping and the constraints against utilising the coping resources. In addition issues of attachment and detachment associated with caring for children, that are particularly pertinent to these non -familial caregivers have been explored.Thesis (M.A.)-University of KwaZulu-Natal, Durban, 2005.