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Relevant bibliographies by topics / AIDS (Disease), Palliative treatment. Rwanda / Books

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Books on the topic 'AIDS (Disease), Palliative treatment. Rwanda'

Author: Grafiati

Published: 4 June 2021

Last updated: 8 February 2022

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1

Seaton, Richard, and Joan Holloway. Palliative care in resource-constrained settings for people living with HIV/AIDS and other life-threatening illnesses: Presentations from the 14th International Congress on the Care of the Terminally Ill, Montreal, Canada, October 2002. Edited by International Congress on the Care of the Terminally Ill (2002 : Montréal, Québec). Rockville, MD: U.S. Dept. of Health and Human Services, Health Resources and Services Administration, HIV/AIDS Bureau, 2003.

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2

Gordon, Hewitt, and Music Therapy Services of Metropolitan Toronto., eds. Last songs: AIDS and the music therapist. 2nd ed. Toronto: Music Therapy Services of Metropolitan Toronto, 1994.

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3

Federal Centre for AIDS (Canada). Expert Working Group on Integrated Palliative Care for Persons with AIDS. Caring together: The report of the Expert Working Group on Integrated Palliative Care for Persons with AIDS to Health and Welfare Canada, Federal Centre for AIDS. [Ottawa]: The Centre, 1989.

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4

Music at the edge: The music therapy experiences of a musician with AIDS. London: Routledge, 1996.

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5

O'Neill, Joseph F., Peter A. Selvyn, and Helen Schietinger. A clinical guide to supportive & palliative care for HIV/AIDS. 2nd ed. [Rockville, Md.]: U.S. Dept. of Health and Human Services, Health Resources and Services Administration, HIV/AIDS Bureau, 2003.

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6

Lee, Colin. Music at the edge: Music therapy experiences of a musician with AIDS. London: Routledge, 1996.

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7

Woodruff, Roger. Palliative medicine: Symptomatic and supportive care for patients with advanced cancer and AIDS. 3rd ed. Oxford: Oxford University Press, 1999.

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8

Woodruff, Roger. Palliative medicine: Symptomatic and supportive care for patients with advanced cancer and AIDS. Melbourne: Asperula, 1993.

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9

Johnson, Andrew S. Living with dying, dying at home: An AIDS care team resource manual. Toronto: AIDS Committee of Toronto, 1994.

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10

Hospital, Canada Mount Sinai. A comprehensive guide for the care of persons with HIV Disease: Module 4. Toronto: Mount Sinai Hospital, 1995.

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11

Palliative medicine: Evidence-based symptomatic and supportive care for patients with advanced cancer. 4th ed. Oxford: Oxford University Press, 2004.

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12

Fighting back: What some people are doing about AIDS. New York: Putnam, 1988.

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13

Kuklin, Susan. Fighting back: What some people are doing about AIDS. New York: Four Winds Press, 1989.

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14

Sanctuary: Stories from Casey House Hospice. Scarborough, Ont: Prentice-Hall Canada, 1991.

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15

KUBLER-ROSS, Elisabeth. AIDS: The ultimatechallenge. New York: Collier Books, 1989.

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16

Among friends: Hospice care for the person with AIDS. Buffalo, N.Y: Prometheus Books, 1992.

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17

AIDS: The ultimate challenge. New York: Collier Books, 1993.

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18

KUBLER-ROSS, Elisabeth. AIDS: The ultimate challenge. New York: Macmillan, 1987.

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19

KUBLER-ROSS, Elisabeth. AIDS: The ultimate challenge. New York: Collier Books, 1989.

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20

Caring for persons with AIDS and cancer: Ethical reflections on palliative care for the terminally ill. St. Louis, MO: Catholic Health Association of the United States, 1988.

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21

KUBLER-ROSS, Elisabeth. Sida: El gran desafío. Barcelona: Martínez Roca, 2002.

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22

Aids: The ultimate challenge. New York: Macmillan Publ, 1987.

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23

Patricia, Gibbons, and National Hospice Organization (U.S.). AIDS Resource Committee., eds. Resource manual for providing hospice care and people living with AIDS. Arlington, Va: National Hospice Organization, 1996.

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24

O'Rawe, Amenta Madalon, and Tehan Claire B, eds. AIDS and the hospice community. New York: Haworth Press, 1991.

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25

AIDS and the hospice community. New York: Harrington Park Press, 1991.

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26

Woodruff, Roger. Palliative Medicine: Symptomatic and Supportive Care for Patients with Advanced Cancer and AIDS. 2nd ed. Asperula Pty Ltd, 1996.

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27

Achim, Weber, and Gekeler Corinna, eds. Selbstbestimmt versorgt am Lebensende?: Grenzwanderungen zwischen Aids- und Hospizbewegung. 2nd ed. Berlin: Deutsche AIDS-Hilfe e.V., 2007.

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28

Fighting Back: What Some People Are Doing About AIDS. Putnam Pub Group Juv, 1992.

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29

Kuklin, Susan. Fighting Back: What Some People Are Doing About AIDS. Backinprint.com, 2001.

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30

Kuklin, Susan. Fighting Back: What Some People Are Doing about AIDS. Tandem Library, 2000.

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31

KUBLER-ROSS, Elisabeth. AIDS: The Ultimate Challenge. Macmillan Pub Co, 1987.

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32

KUBLER-ROSS, Elisabeth. AIDS: The Ultimate Challenge. Macmillan Pub Co, 1987.

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33

KUBLER-ROSS, Elisabeth. AIDS: The Ultimate Challenge. Collier Books, 1989.

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34

AIDS: The Ultimate Challenge. Scribner Paper Fiction, 1997.

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35

KUBLER-ROSS, Elisabeth. AIDS: The Ultimate Challenge. Collier Books, 1989.

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36

KUBLER-ROSS, Elisabeth. AIDS: The Ultimate Challenge. Scribner, 1993.

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37

KUBLER-ROSS, Elisabeth. AIDS: The Ultimate Challenge. Scribner, 1993.

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38

KUBLER-ROSS, Elisabeth. Sida: El Gran Desafio (Coleccion Manuales Practicos MR). Martinez Roca, 2002.

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39

Pahuja, Meera, Jessica S. Merlin, and Peter A. Selwyn. HIV/AIDS. Oxford University Press, 2015. http://dx.doi.org/10.1093/med/9780199656097.003.0151.

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In less than two decades, AIDS has been transformed from a rapidly fatal, untreatable illness to a manageable chronic disease. Early in the AIDS epidemic, HIV care and palliative care were inseparable; over time, these two treatment paradigms diverged. In the developed world, and to a lesser but increasing extent in the developing world, decreasing mortality rates have resulted in growing numbers of HIV-infected patients living with the disease for many years. As this long-surviving population increases, the challenges of chronic disease management, an expanding range of co-morbidities, and a process that has been described as ‘accelerated ageing’, have all emerged to present new needs and opportunities for palliative care expertise. Earlier in the epidemic, palliative care for AIDS focused primarily on end-of-life care and pain and symptom management related to the manifestations of AIDS-specific opportunistic infections and malignancies. Currently, pain and symptoms may be related to these as well as other co-morbid chronic diseases which commonly occur in HIV-infected patients, including cardiovascular, pulmonary, renal, hepatic, metabolic, and neurocognitive complications. Attention to these symptoms, quality of life issues, and psychosocial problems in long-surviving patients over many years will be increasingly important to support engagement with care and effective adherence with antiretroviral therapy over time. End-of-life care, while less frequent, also remains important, as patients may still die from AIDS, or even more commonly, from end-organ failure, non-AIDS defining malignancies, and/or other complications of ageing and chronic co-morbid disease. All these converging factors have now resulted in a new need for the re-integration of HIV care and palliative care, both to help HIV-infected patients live better and longer, as well as manage late-stage and end-of-life issues when they emerge.

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40

Lou, Galantino Mary, ed. Clinical assessment and treatment of HIV: Rehabilitation of a chronic illness. Thorofare, NJ: Slack, 1992.

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41

Rayment, Clare, and Michael I. Bennett. Definition and assessment of chronic pain in advanced disease. Oxford University Press, 2015. http://dx.doi.org/10.1093/med/9780199656097.003.0093.

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This chapter discusses the various definitions applied to pain including chronic, nociceptive, neuropathic, and breakthrough. It gives a broad overview of the epidemiology of pain including its prevalence of greater than 50% in those patients with advanced disease and its under-treatment. The second part of the chapter explains how best to characterize the pain complaint. It acknowledges the importance of a thorough history, including pain characteristics such as severity and associated features. Several pain measurement scales, which can be used both in clinical practice and research, are presented. Clinical examination and imaging are also discussed as aids to diagnosis and management of pain. It concludes with how to assess pain in the context of a palliative plan of care, stressing the need to consider the many challenges that patients face with advancing disease and how the management of pain is affected by other symptoms patients may have.

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42

Hardy, Janet R., Paul Glare, Patsy Yates, and Kathryn A. Mannix. Palliation of nausea and vomiting. Oxford University Press, 2015. http://dx.doi.org/10.1093/med/9780199656097.003.0202.

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Nausea and vomiting (NV) are unpleasant symptoms reported as highly distressing by sufferers and have a significant impact on activities of daily living. The prevalence of nausea is 6-68% in people with advanced cancer, 17-48% in heart disease, 30-43% in renal disease, and 43-49% in people with AIDS and is not always associated with vomiting. Several multifactorial clinical syndromes can contribute to NV in patients with advanced illness. Two strategies have been proposed for the management of nausea and vomiting: the mechanistic and the empirical approach. Most of the evidence supporting the use of antiemetic drugs in palliative care has been extrapolated from trials of chemotherapy- and radiotherapy-induced NV. An ideal measurement tool for the assessment of NV and retching has yet to be developed. Inherent in the management of NV is to maximize treatment of those symptoms commonly associated with NV.

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