Academic literature on the topic 'Alzheimer's disease – Patients – Family'

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Journal articles on the topic "Alzheimer's disease – Patients – Family"

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Neumann, Solange Maria Freire, and Cristina Maria de Souza Brito Dias. "Living with Alzheimer's Disease in the family." Revista de Enfermagem UFPE on line 5, no. 4 (May 31, 2011): 967. http://dx.doi.org/10.5205/reuol.1302-9310-1-le.0504201116.

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ABSTRACTObjective: to investigate the effects that occurs in families of patientes whit Alzheimer’s disease. Method: this is a qualitative research and the sample surveyed was composed of six relatives of elderly people attending a reference center of the state of Pernambuco for patients with the Alzheimer's disease. Data collect instrument was a structured interview with some questions regard to the goals and socio demographic data of the relatives. The interviews were conducted individually and were recorded and later transcribed. The technique used for data analysis was the content analysis. Results: the main impact occurred in the family context refers to a big change in its routine and the relationship established between the patient and other family members. Conclusion: it is emphasized that these families need professional assistance to guide them how to deal with various situations that arise in the course of the disease. Descriptors: Alzheimer disease; family; family caregiver.RESUMOObjetivo: investigar as repercussões que ocorrem na família de pacientes com a doença de Alzheimer. Método: trata-se de uma pesquisa qualitativa e a amostra pesquisada foi composta por seis familiares de idosos atendidos em um centro de referência do Estado de Pernambuco e portadores da Doença de Alzheimer. O instrumento foi um roteiro de entrevista contendo questões relacionadas aos objetivos e aos dados sociodemográficos dos familiares. As entrevistas foram realizadas individualmente, tendo sido gravadas e posteriormente transcritas. A técnica utilizada para análise dos dados foi a Análise de Conteúdo Temática. Resultados: as principais repercussões ocorridas no contexto familiar referem-se a uma grande mudança na sua rotina e na relação estabelecida entre o paciente e os demais membros da família. Conclusão: ressalta-se que essas famílias necessitam de uma assistência profissional que as oriente no sentido de como lidar com várias situações que aparecem no decorrer da doença. Descritores: doença de Alzheimer; família; familiar cuidador.RESUMENObjetivo: investigar los efectos que se producen en las familias de pacientes con la enfermedad de Alzheimer. Método: se trata de una investigación cualitativa y la muestra fue compuesta por seis familiares de ancianos, los cuales asisten a un centro de referencia del estado de Pernambuco, y pacientes con la enfermedad de Alzheimer. El instrumento fue una entrevista estructurada que contenía preguntas relacionadas con las metas y los datos sociodemográficos de los familiares. Las entrevistas se llevaron a cabo individualmente y fueron grabadas y, posteriormente, transcritas. La técnica utilizada para el análisis de datos fue el análisis del contenido temático. Resultados: las principales repercusiones que se produjo en el contexto familiar se refieren a un gran cambio en su rutina y en la relación que se establece entre el paciente y los otros miembros de la familia. Conclusión: se destaca que estas familias necesitan asistencia profesional que las oriente para hacer frente a las diversas situaciones que se plantean en el curso de la enfermedad. Descriptores: enfermedad de Alzheimer; familia; cuidador familiar.
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Al-Zyoud, Eman, Mahmoud Maharmeh, and Muayyad Ahmad. "Family experiences of caregiving to patients with Alzheimer." Working with Older People 25, no. 2 (February 22, 2021): 115–22. http://dx.doi.org/10.1108/wwop-02-2020-0006.

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Purpose This paper aims to describe and understand the family experience of caregiving to their Alzheimer patients and to explore the impact of caregiving on the family’s caregiver well-being. Design/methodology/approach The study involved eight family caregivers from the outpatient department, specifically from the neurology-medical clinic. A descriptive phenomenological approach was used for data collection through in-depth semi-structured interviews. Findings Four themes emerged: caregiver perception, tension, the sense of duty and commitment and altruism and sacrifice. The experience of family caregivers was different from their experiences with other chronic illnesses. Originality/value The family caregivers experience new life when providing care to their patients with Alzheimer's. The impact of the process of caregiving on whole life appeared in both positive and negative aspects. The perception and awareness of family caregivers toward Alzheimer’s disease were poor.
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Talkington-boyer, Shannon, and Douglas K. Snyder. "Assessing impact on family caregivers to Alzheimer's disease patients." American Journal of Family Therapy 22, no. 1 (March 1994): 57–66. http://dx.doi.org/10.1080/01926189408251297.

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Wykle, May L. "Interventions for Family Management of Patients With Alzheimer's Disease." International Psychogeriatrics 8, S1 (October 1996): 109–11. http://dx.doi.org/10.1017/s1041610296003195.

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As the 21st century approaches, ever-increasing life expectancy and longevity bring into awareness the concerns of an aging population. One of these concerns pertains to the care of patients with Alzheimer's disease (AD). The cause of AD continues to baffle science in spite of its high research priority in recent years. However, while we wait for science to discover both causative and curative factors, the illness continues to take its toll, placing the burden of care on the families of those stricken. The increased responsibility for care of dementia patients by families in the community calls for interventions that reduce family stress and provide support for caregivers who manage the behavioral manifestations of the dementia.
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Wang, Huayuan, Ruihua Sun, Yingying Shi, Mingrong Xia, Jing Zhao, Miaomiao Yang, Limin Ma, et al. "Probable Novel PSEN1 Gln222Leu Mutation in a Chinese Family with Early-Onset Alzheimer's Disease." Current Alzheimer Research 16, no. 8 (October 11, 2019): 764–69. http://dx.doi.org/10.2174/1567205016666190806161342.

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Background: The rate of occurrence of Alzheimer’s disease is increasing around the world. However, there is still no significant breakthrough in the study of its etiology and pathogenesis. Objective: To screen Alzheimer's disease pathogenic genes, which may be conducive to the elucidation of the pathogenic mechanisms of Alzheimer's disease And predict the pathogenicity by various computer software. Method: Clinical and neuroimaging examination, Whole Exome Sequencing, and Sanger sequencing were performed in the proband. Mutation sites were verified in 158 subjects. Results: We reported a proband carrying a probably novel pathogenic mutation, which clinically manifests as progressive memory loss, visual-spatial disorders, apraxia, psychobehavioral disorders, and temperamental and personality changes. Whole Exome Sequencing detected a novel missense mutation at codon 222 (Q222L), which is a heterozygous A to T point mutation at position 665 (c.665A>T) in exon 5 of the presenilin 1 leading to a glutamine-to-leucine substitution. The mutation was also identified by Sanger sequencing in one family member; nevertheless, it was not detected in the other 7 unaffected family members, 50 sporadic Alzheimer's disease patients and 100 control subjects. Conclusion: A novel mutation in exon 5 of the presenilin 1 gene (Gln222Leu) in a Chinese family with early-onset Alzheimer’s disease has been reported, besides, it was predicted that the missense mutation was probably a novel pathogenic mutation that was reported for the first time in a Chinese family with early-onset Alzheimer’s disease.
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Lin, Ker-Neng, Yi-Chu Liao, Pei-Ning Wang, and Hsiu-Chih Liu. "Family members favor disclosing the diagnosis of Alzheimer's disease." International Psychogeriatrics 17, no. 4 (September 27, 2005): 679–88. http://dx.doi.org/10.1017/s1041610205001675.

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Background: Past negative attitudes towards patients with Alzheimer's disease (AD) have changed in recent years. However, the disclosure of AD diagnosis to patients and family remains an unresoved issue. In this study, we surveyed the family members of neurological patients in Taiwan for the purpose of assessing their attitudes towards the disclosure of AD diagnosis.Methods: The study sample consisted of family members (150, age range 23–89 years, mean 55.0±14.3) who accompanied patients to a neurology outpatient clinic from September 15 to November 24, 2003. The subjects were given an Attitude Questionnaire on AD Disclosure.Results: An overwhelming majority (93%) of subjects favored disclosure of the diagnosis if, hypothetically, they personally were affected by AD. However, a smaller majority of family members (76%) favored disclosure of the diagnosis to current AD patients. Reasons for favoring disclosure included a patient's or family member's right to know, the possibility of assistance in coping with and understanding dementia, and slowing down the progression of the disease by early treatment, as well as the increased probability of accepting treatment and life activity training. Reasons for favoring the withholding of disclosure included the risk of causing the patient emotional disturbance, worsening the disease, the irrelevance of disclosure to drug therapy, and the possibility of causing suicidal ideation. Subjects' attitudes towards disclosure of AD diagnosis were unaffected by their knowledge of dementia, the presence of a family member with AD, their role as the primary caregiver, the length of time that AD symptoms persisted, and the number of hours per day spent in caring for AD patients.Conclusions: In Taiwan, family members of neurological patients strongly favor being informed and the disclosure of AD diagnosis to the family.
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Moraes, Sandra Renata Pinatti de, and Luis Sidônio Teixeira da Silva. "An evaluation of the burden of Alzheimer patients on family caregivers." Cadernos de Saúde Pública 25, no. 8 (August 2009): 1807–15. http://dx.doi.org/10.1590/s0102-311x2009000800017.

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Caregivers are indispensable to persons living with Alzheimer's disease; however, such care involves hard work, and the consequences of this activity on caregivers are often neglected. The objective of this study was to construct a profile for caregivers of Alzheimer patients and to evaluate the burden such care imposes on them. It is a transversal study of 122 caregivers from the metropolitan region of Londrina, Paraná State, Brazil. Socio-demographic data for the caregivers were analyzed, while the Katz scale and Lawton index were used to evaluate the functionality of Alzheimer's patients, and the Burden Interview Scale assessed the burden these patients impose on caregivers. Caregivers are predominantly married, are daughters who have learned to care for the patient on a daily basis, usually with some help, and they do so out of love. The caregiver's age (p < 0.01), whether or not the caregiver had help (p < 0.01), and the number of hours caring for the patient (p = 0.01) were associated with the impact. Results showed that the burden imposed on caregivers by Alzheimer patients is a heavy one.
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Kosloski, Karl, and Rhonda Montgomery. "Service Use by Family Caregivers of Patients with Alzheimer's Disease." Seminars in Speech and Language 15, no. 03 (August 1994): 226–35. http://dx.doi.org/10.1055/s-2008-1064147.

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Wasow, Mona. "Support Groups for Family Caregivers of Patients with Alzheimer's Disease." Social Work 31, no. 2 (March 1, 1986): 93–97. http://dx.doi.org/10.1093/sw/31.2.93.

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Kaufer, Daniel I., Soo Borson, Paul Kershaw, and Kay Sadik. "Reduction of Caregiver Burden in Alzheimer's Disease by Treatment with Galantamine." CNS Spectrums 10, no. 6 (June 2005): 481–88. http://dx.doi.org/10.1017/s1092852900023178.

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AbstractAlzheimer's disease is a progressive condition characterized by a loss of cognition, altered behavior, and a loss of functional ability, such as bathing, dressing, toileting, and organizing finances. Family and friends provide nearly three quarters of all care for patients with Alzheimer's disease. This informal care results in significant burden to caregivers. Caregiver burden is the set of physical, psychological or emotional, social, and financial problems that family members may experience when caring for impaired older adults. Caregivers of Alzheimer's disease patients report higher rates of physical symptoms, mortality, depression, and fatigue, as well as adverse effects on employment compared with those who are not caregivers for Alzheimer's disease patients. In many cases, the same family members are responsible for both out-of-pocket expenditures and caregiving duties. For this article, a MEDLINE search using the key words “caregiver and Alzheimer's disease” and “cost and Alzheimer's disease” was performed. The purpose of this article is to review the literature on caregiver burden, the components of caregiver burden, effects of caregiving on the health of caregivers, the cost of Alzheimer's disease on the caregiver and society, and the benefits attainable with treatment.
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Dissertations / Theses on the topic "Alzheimer's disease – Patients – Family"

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Bizzell, Laurie. "Stressors, Resources, and Psychological Symptomatology for Family Caregivers of Alzheimer's Patients." Thesis, University of North Texas, 1993. https://digital.library.unt.edu/ark:/67531/metadc500551/.

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The purpose of this study was to examine the relationship between life stressors, resources, and psychological symptomatology of 20 family caregivers of Alzheimer's patients. Stressors were categorized as stressors specific to the caregiving role and general life stressors. Resources were also categorized as resources specific to the caregiving role and general life resources. Multiple regression determined which stressors, resources, and demographic variables predicted psychological symptomatology. Specific stressors that were significant predictors included: caregiving events, caregiving event chronicity, and mean burden scores. Significant general stressors included: size of caregivers' household, non-caregiving events and non-caregiving event chronicity. Significant resources included: other caregivers, the duties other caregivers provided, and caregiver's educational level. No Other Demographic Variables were found to be significant predictors.
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Reisler, Steven E. (Steven Elliot). "Coping strategies employed by in-home family caregivers of Alzheimer's patients." Thesis, McGill University, 1994. http://digitool.Library.McGill.CA:80/R/?func=dbin-jump-full&object_id=35326.

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Most demented individuals are now cared for at home by family members. The present study examined the coping strategies employed by family caregivers, their perception of burden, and the internal dialogues employed by caregivers to stressful events. Sixteen (13 females, 3 males) participants with an average age of 67.4 years were interviewed. Results indicate that caregivers who spend less hours per week caring for their care receiver perceived less overall burden and caregivers who subjectively felt that they were coping with their role tended to use more coping strategies. Caregivers' internal dialogues and comments concerning problems coping with Alzheimer's patients are included.
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Driskill, Gail. "Effects of an Intervention Program on Caregiver Coping Efficacy." Thesis, University of North Texas, 1993. https://digital.library.unt.edu/ark:/67531/metadc500883/.

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The purpose of this study was to examine the effect of an intervention program for Alzheimer's patients on coping efficacy of their family caregivers. Using a pre-post repeated measures design, 16 family caregivers were interviewed before and after a medical, nursing, and social service intervention. Self-report measures, adjusted for caregiver satisfaction and caregiver mastery, were used to determine if there was a change in: resources, burden, and coping efficacy with caregiver specific and general life events. Results showed a marginal effect [F = 2.6, df(4,10), p<.10] for the omnibus MANCOVA. Most of this change was due to an increase in resources. Covariates of caregiver satisfaction and mastery were correlated with average burden. Results suggest that interventions such as this will be helpful for family caregivers of Alzheimer's patients.
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Straw, Lorraine B. "Impact of Alzheimer's disease on family caregivers : support group participation and other predictor variables /." The Ohio State University, 1987. http://rave.ohiolink.edu/etdc/view?acc_num=osu1487585645578764.

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Warner, Judy A. "Perceptions of family caregivers of non-institutionalized Alzheimer's patients about support groups." Virtual Press, 1999. http://liblink.bsu.edu/uhtbin/catkey/1133742.

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The purpose of this descriptive study was to document and analyze the perceptions of family caregivers of non-institutionalized Alzheimer's patients about the benefits and limitations of Alzheimer's support groups. Survey methodology was used to survey caregivers and support group leaders from eight Alzheimer's support groups in the central Indiana area. Several of the major findings challenge the literature. These findings are as follows: The majority of caregivers attended the support group to receive information. None of the caregivers attended the support group due to frustration, and only one caregiver responded that relieving frustration was a benefit of participating in the support group. A majority of caregivers and support group leaders were positive about mixed (spouses and adult children) support groups. A majority of caregivers responded that they did not have guilt, anger, fears about caregiving in the future, or stress concerning their caregiving responsibilities. The study generated several implications that can be used by planners to improve support groups.
Department of Educational Leadership
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Tu, Su-Fen. "The Relationship Between Leisure and Perceived Burden of Spouse Caregivers of Persons with Alzheimer's Disease." Thesis, University of North Texas, 1993. https://digital.library.unt.edu/ark:/67531/metadc501255/.

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The problem of this study was to better understand spouse caregivers' leisure involvement, experience, and barriers and their relationships with perceived burden. Thirty-six wife and 19 husband caregivers of persons with Alzheimer's disease and related disorders volunteered to participate in this study, either by mailed questionnaire or interview. Respondents were primarily female, white, with an average age of 72 years. The conclusions of the study were: (a) caregivers significantly reduce both their leisure involvement; (b) self-reported health, perceived social supports, income level, use of paid help, and leisure activity patterns are major factors associated with caregivers' leisure; and (c) leisure barriers are a significant contributor to caregivers' perceived burden. Recommendations were presented for caregivers, practitioners, and future study.
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Zhao, Huan, and 赵环. "Living and loving: adaptive experiences of caregiving to a spouse with Alzheimer's disease in Shanghai, China." Thesis, The University of Hong Kong (Pokfulam, Hong Kong), 2012. http://hub.hku.hk/bib/B48329599.

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This qualitative study is an attempt to explore the adaptive experiences of elderly Chinese caregivers who have to take care of their spousal partners who are suffering from Alzheimer’s disease (AD). As the illness is known to be chronic and degenerative in nature, caregivers are thus faced with many stressful situations and adjustments are necessary. The purpose of this study is to examine how these caregivers in AD situations are interpreting the factors that might have influenced their adjustments. The sample consists of 26 participants aged 60 and above that have been a primary caregiver for not less than a year. Three in-depth interviews were conducted with each participant during the study period, which lasted for about two years. Findings show that most of them had to adjust to stressful situations in various aspects of life. They also developed many strategies for life adaption, which can be summarized in the following six adjustment themes. First, after hearing the AD diagnosis, they initially experienced a series of shocks and false hopes, and subsequent adjustments include eliminating uncertainty, establishing reasonable expectations toward both the disease and treatment, learning to take on the caregiver role, and finally, separating the disease from their partner’s personality. Second, these elderly caregivers gradually learned to attain inner peace through converting to various religions, searching for meanings within their stressful situations, and reconstructing rational explanations for their negative emotions. Third, in the area of spousal interaction, adaptive strategies included staying connected with their sick partners, reinforcing their caregiving motivations, completing the “familiar-strange-familiar” cycle, and re-establishing daily routines. Fourth, in situations involving other family members, such as adult children, the adjustment strategies included sharing economic burdens, re-allocating housework chores, delegating care responsibilities, and emotionally supporting one another. Fifth, in terms of social network, the main support that caregivers received usually came from informal sources; formal support is extremely limited. Findings further show a connection between the input and output of social support and personal capacity. Sixth, elderly spousal caregivers often possessed the ability to re-position and re-construct their self-confidence while adjusting to their new life rhythm. They were also able to achieve a balance between their private lives and their care responsibilities, which helps to maintain their well-being and neutralize their distresses. In summary, participants of the study often utilized more than one strategy in adjusting to their situations. The six aspects of adjustments are thus put together in this study as an integrated model of life adaptation and survival tactics adopted by elderly Chinese AD spousal caregivers. Also, whether these caregivers are successful in adapting depends on their abilities to accept changes in themselves and their environment, and achieve a compromise between the two. Based on the above findings, a culturally sensitive perspective is thus put forward to enhance the understanding of studied phenomenon within the contemporary Chinese context. Recommendations are also made regarding the needed policy changes and the revisions of social work practices in support of the elderly suffering from AD and their caregiving spouses.
published_or_final_version
Social Work and Social Administration
Doctoral
Doctor of Philosophy
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Holt, Jim, Lynetta Stiltner, and Rick Wallace. "Do Patients at High Risk of Alzheimer’s Disease Benefit from Early Treatment?" Digital Commons @ East Tennessee State University, 2006. https://dc.etsu.edu/etsu-works/6485.

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Holt, Jim, Lynetta Stiltner, and Rick L. Wallace. "Do Patients at High Risk of Alzheimer’s Disease Benefit from Early Treatment?" Digital Commons @ East Tennessee State University, 2009. https://dc.etsu.edu/etsu-works/6485.

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Anderson, Cristina L. (Cristina Lee). "Caregiver Personality as a Contributing Factor in Caregiver Burden." Thesis, University of North Texas, 1994. https://digital.library.unt.edu/ark:/67531/metadc500270/.

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Personality characteristics of spousal and adult children and active potential caregivers of persons with Alzheimer's Disease were studied in order to better predict caregiver burden and aspects of well-being. Contrary to prediction, no differences were found between spouse and adult children active caregivers on measures of well-being. Additionally, adult children potential caregivers indicated feeling less control over their lives than spouse potential caregivers. When social desirability was controlled, active caregivers reported greater fluctuations in affect than did potential caregivers. As predicted, personality characteristics of individuals were found to have the biggest role in determining which individuals experience stress or burden.
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Books on the topic "Alzheimer's disease – Patients – Family"

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Caregiving to family members with Alzheimer's disease. New York: Garland Pub., 1995.

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I can't remember: Family stories of Alzheimer's disease. Philadelphia, Pa: Temple University Press, 1997.

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Journey with Grandpa: Our family's struggle with Alzheimer's disease. Baltimore: Johns Hopkins University Press, 1988.

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Coughlan, Patricia Brown. Facing Alzheimer's: Family caregivers speak. New York: Ballantine Books, 1993.

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Powell, Lenore S. Alzheimer's disease: A guide for families. Reading, Mass: Addison-Wesley, 1993.

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Krishna: Living with Alzheimer's. New Delhi: Women Unlimited, an associate of Kali for Women, 2015.

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Rector, Rebecca. Alzheimer's disease and family caregivers: A selective bibliography. Monticello, Ill., USA: Vance Bibliographies, 1987.

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Schiff, Myra. Alzheimer: A Canadian family resource guide. Toronto: McGraw-Hill Ryerson, 1989.

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Glimpses of grace: A family struggles with Alzheimer's. Grand Rapids, Mich: Baker Book House, 1990.

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Gruetzner, Howard. Alzheimer's: A caregiver's guide and sourcebook. New York: Wiley, 1988.

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Book chapters on the topic "Alzheimer's disease – Patients – Family"

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Bartels, C. F., P. L. Moriearty, R. E. Becker, C. P. Mountjoy, and O. Lockridge. "Acetylcholinesterase Gene Sequence and Copy Number are Normal in Alzheimer’s Disease Patients Treated with the Organophosphate Metrifonate." In Enzymes of the Cholinesterase Family, 479–80. Boston, MA: Springer US, 1995. http://dx.doi.org/10.1007/978-1-4899-1051-6_103.

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Kim, Hyon Hee, Sohee Jeong, Annie Kim, and Donghee Shin. "Analyzing Twitter Data of Family Caregivers of Alzheimer’s Disease Patients Based on the Depression Ontology." In Advances in Computer Science and Ubiquitous Computing, 30–35. Singapore: Springer Singapore, 2019. http://dx.doi.org/10.1007/978-981-13-9341-9_6.

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Pridgeon, Hilda. "Impact of Alzheimer’s Disease and the Role of the Patient’s Family." In Alzheimer’s Dementia, 51–58. Totowa, NJ: Humana Press, 1985. http://dx.doi.org/10.1007/978-1-4612-5174-3_5.

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Burke, Anna, Geri R. Hall, Roy Yaari, Adam Fleisher, Jan Dougherty, Jeffery Young, Helle Brand, and Pierre Tariot. "Managing Patients with Alzheimer’s Disease and Related Dementias." In Pocket Reference to Alzheimer's Disease Management, 51–79. Tarporley: Springer Healthcare Ltd., 2015. http://dx.doi.org/10.1007/978-1-910315-22-4_5.

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Miller, Freda D., and David R. Kaplan. "Nervous System Aging, Degeneration, and the p53 Family." In Research and Perspectives in Alzheimer's Disease, 83–93. Berlin, Heidelberg: Springer Berlin Heidelberg, 2010. http://dx.doi.org/10.1007/978-3-642-16602-0_7.

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Ishikawa, Atsushi, Keiko Tanaka, Akira Koyama, and Tadashi Miyatake. "A Patient Presenting Mainly Dystonia in a Family with Juvenile Parkinsonism." In Basic, Clinical, and Therapeutic Aspects of Alzheimer’s and Parkinson’s Diseases, 227–33. Boston, MA: Springer US, 1990. http://dx.doi.org/10.1007/978-1-4684-5847-3_49.

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Labott, Susan M. "Family challenges and social support." In Psychological treatment of patients with chronic respiratory disease., 115–25. Washington: American Psychological Association, 2020. http://dx.doi.org/10.1037/0000189-010.

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Seibyl, John P. "PET and SPECT in the Evaluation of Patients with Central Motor Disorders." In PET in the Evaluation of Alzheimer's Disease and Related Disorders, 67–92. New York, NY: Springer New York, 2009. http://dx.doi.org/10.1007/978-0-387-76420-7_4.

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Seibyl, John P. "PET and SPECT in the Evaluation of Patients with Central Motor Disorders." In PET in the Evaluation of Alzheimer's Disease and Related Disorders, 1–26. New York, NY: Springer New York, 2009. http://dx.doi.org/10.1007/b102284_4.

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Bales, Kelly R., and Frank S. Menniti. "Chapter 16. Promoting Synaptic Resilience in Alzheimer's Disease Patients Through Phosphodiesterases Inhibition." In Drug Discovery, 21–42. Cambridge: Royal Society of Chemistry, 2010. http://dx.doi.org/10.1039/9781849731072-00021.

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Conference papers on the topic "Alzheimer's disease – Patients – Family"

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Ferretti, Ceres, Ricardo Nitrini, and Sonia Brucki. "VIRTUAL SUPPORT IN DEMENTIA A POSSIBLE VIABLE STRATEGY FOR CAREGIVERS." In XIII Meeting of Researchers on Alzheimer's Disease and Related Disorders. Zeppelini Editorial e Comunicação, 2021. http://dx.doi.org/10.5327/1980-5764.rpda046.

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Background: In the last 10 months, amid the Covid-19 pandemic, several studies have demonstrated the viability of health education and virtual support strategies for caregivers of dementia patients to provide home care. Low and middle-income countries in particular, have sought to use these approaches to reduce the daily burden of caregivers, through virtual meetings providing education and support. Objectives: To present the feasibility of a pilot study on the use of a care support action under the CAAD Project - indirect costs of dementia – run by the HC-FMUSP. Methods: An observational study of 93 caregivers invited to participate in virtual 1-hour meetings three times a week was conducted. Results: Of the 93 family members who took part, 42 answered the eight questions about the effectiveness of the action after 3 months. The rate of positive responses for program satisfaction was high, ranging from 86% to 100%. Conclusion: The study results of this simple intervention suggest the utility of the program for caregivers of dementia patients in primary care. The intervention can provide a better understanding of difficulties faced by caregivers in their daily care of dementia patients and daily management guidance on a case-by-case basis. The program also promoted the implementation of an education strategy on the importance of understanding and recognizing anatomical-physiological changes in the aging process and their implications for the invisible line between senescence and senility. This process empowers the caregiver to feel able to protect both the patient and themselves by preventing the emergence of common diseases in this age group. Further studies are needed to explore this non-pharmacological support approach.
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Freitas, Maria Isabel, and Ricardo Nitrini. "FEASIBILITY OF AN INTENSIVE SPEECHLANGUAGE THERAPY PROGRAM FOR PRIMARY PROGRESSIVE APHASIA." In XIII Meeting of Researchers on Alzheimer's Disease and Related Disorders. Zeppelini Editorial e Comunicação, 2021. http://dx.doi.org/10.5327/1980-5764.rpda048.

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Background: Primary progressive aphasia (PPA) is caused by selective neurodegeneration of the specific language areas in the brain. Until recently, this area had been dominated by impairment-focused interventions, more specifically, word-retrieval therapies. The compensatory-based approach targets everyday use of conversation between a people with PPA (pwPPA) and the family member or carer, and is underpinned by an assessment of those strategies which facilitate communication and those that act as a barrier. Objective: To analyze the feasibility of an intensive SLT program for pwPPA. Methods: Three patients with PPA (1 with PPA-S, 1 PPA-NF and 1 PPA-L) received the treatment (2 by face-to-face format and one by videoconference/telerehabilitation). The program comprised an initial evaluation of 2 hours (day 1), five 1-hour treatment sessions on consecutive days (days 2 to 6), followed by a post-treatment evaluation (day 7) to determine the results of the intensive therapy. Results: The treatment provided a greater load of cognitive-linguistic stimuli, which promoted some gains in speech intelligibility, functional communication improving general desire to engage in communicative exchanges relative to baseline. Conclusions: The intensive program was feasible and that some gains in functional communication can be made after five consecutive sessions in the same week.
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Balog, Kornelija Petr, Sanjica Faletar Tanackovic, and Sanda Erdelez. "Information support system for Alzheimer’s disease patients’ caregivers in Croatia: a phenomenological approach." In ISIC: the Information Behaviour Conference. University of Borås, Borås, Sweden, 2020. http://dx.doi.org/10.47989/irisic2011.

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Introduction. The paper presents findings from a study that investigated information needs of caregivers of Alzheimer’s disease patients’ in Croatia, a country in which health and social care systems for such persons are insufficiently developed. Special emphasis is put on the barriers caregivers face in obtaining required information or services. Methods. Interviews with 11 Alzheimer’s disease patients’ caregivers from the area of Eastern Croatia were conducted. Interpretative phenomenological analysis was chosen as the best method to interpret the caregivers’ experience of information support received from the Croatian system. Analysis. Topics were defined for each interview and then superordinate topics were defined for the whole sample. Results. Results show that Alzheimer’s disease patients’ caregivers in Croatia are faced with numerous obstacles. No organised information support system was detected. Conclusions. A more holistic approach to information support is needed. Authors suggest an Alzheimer’s disease information package to be distributed through the family doctors’ practices.
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Jedidi, Anis, Faiez Gargouri, Fahmi Bellalouna, and Mika Luimula. "VR-App for a Virtual Perception of Memory Impairment in Alzheimer’s Patients." In 13th International Conference on Applied Human Factors and Ergonomics (AHFE 2022). AHFE International, 2022. http://dx.doi.org/10.54941/ahfe1002088.

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Augmented, Virtual and Mixed Reality Technology (AR / VR / MR) - also known as xR technology - is one of the key technologies of digital transformation. Thanks to the existing powerful immersive hardware systems, complex technical and natural systems can be digitally represented in a realistic virtual environment. This enables users to completely immerse in the virtual environment and to observe and interact with the systems and objects contained therein without major restrictions, or to augment real products and systems with digital data in runtime. This creates new opportunities to present the behaviour and functionalities of complex systems in a tangible and understandable way. Therefore, the xR technology can revolutionize learning and training methods, especially in the qualification of specialists and experts. This paper will introduce the international project “International Cooperation on VR/AR Projects” (IC xR-P). The target of “IC xR-P” is the implementation of a practice-oriented xR training applications in the areas of medical training, rescue and Knowledge transfer in schools and universities and their testing and evaluation with selected experts. “IC xR-P” is an international cooperation between the University of Applied Sciences Karlsruhe from Germany, University of Applied Sciences Turku from Finland and the Higher Institute of Computer Science and Multimedia Sfax from Tunisia. Among the learning projects in the ICxRP, we focus in this paper on the implementation of VR training apps for medical training in this paper, we centred on the Perception of Memory Impairment in Alzheimer’s Patients. Patients with early Alzheimer’s disease may have spatial and time-oriented disorders. The objective is to use immersion in a virtual environment. This allows the user to experience a multisensory experience during which the user can feel and interact naturally and intuitively in real time via sensory interfaces. VR offers different levels of interaction, from the minimum level where the subject remains passive, looking at the environment, to more interactive levels where the subject is active, controlling its movement to the first person in the virtual environment via various interaction tools immersive.Within this project a VR-Training App will be designed and implemented, which fulfill the following functions with different virtual games facilitating the communication of the patient with the virtual environment. This application can develop the creating immersion and feeling of presence in patients. Also, we propose Family/Entourage Show service, it’s a memory stimulation exercise by integrating the family photos. We propose in addition a VR creation of patients’ usual living environment (home, hallway, bedroom…). We improve the valuing specific objects and places in the house to facilitate the orientation and the exploration of the environment. Finally, we propose à musical Training service: it offers a question-answer game that aims to stimulate the patient’s memory. From here, player can choose which exercise they want to play or focused on. We propose the orientation exercise, the memory exercise with the card-game, the recognizing game, and the exercise of leisure activities. These last exercises will also stimulate their memory by singing along to some songs, guessing animals, and making a tasty hamburger following the right steps. For most of the game, there will always be an evaluation of the player’s performance at the end. It will either displays on the television screen or a screen will pop out to show the results.
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Fiscon, Giulia, Emanuel Weitschek, Giovanni Felici, Paola Bertolazzi, Simona De Salvo, Placido Bramanti, and Maria Cristina De Cola. "Alzheimer's disease patients classification through EEG signals processing." In 2014 IEEE Symposium on Computational Intelligence and Data Mining (CIDM). IEEE, 2014. http://dx.doi.org/10.1109/cidm.2014.7008655.

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Ghorbel, Fatma, Nebrasse Ellouze, Elisabeth Metais, Faycal Hamdi, and Faiez Gargouri. "MEMO_Calendring: A smart reminder for Alzheimer's disease patients." In 2017 International Conference on Smart, Monitored and Controlled Cities (SM2C). IEEE, 2017. http://dx.doi.org/10.1109/sm2c.2017.8071848.

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Escudero, J., D. Abasolo, R. Hornero, P. Espino, and M. Lopez. "Electroencephalograms multiscale entropy analysis of Alzheimer's disease patients." In IET 3rd International Conference MEDSIP 2006. Advances in Medical, Signal and Information Processing. IEE, 2006. http://dx.doi.org/10.1049/cp:20060348.

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Paiva, Nathalia, and Tatiana Escovedo. "Detecção Precoce de Alzheimer Usando Machine Learning." In Congresso Brasileiro de Inteligência Computacional. SBIC, 2021. http://dx.doi.org/10.21528/cbic2021-2.

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Alzheimer’s disease is a neurodegenerative disease, responsible for approximately 60% to 80% of cases of dementia in the world and, as it still has no cure, it can end the life or family of the individual who presents its symptoms. Its diagnosis is made through the results of laboratory exams, cognitive tests and image exams, and MRIs are the most accurate method. As it is a disease without cure, the ideal is that it is diagnosed as soon as possible, so that doctors can slow down its evolution and the patient can maintain a life without depending on other people. Knowing that data science has been shown to be effective in supporting diagnosis in several areas of medicine, that is why in the present work we tested the performance of intelligent algorithms in the classification of characteristics extracted from magnetic resonance images. We achieved an accuracy of approximately 90% by predicting cognitive decline based on characteristics extracted from the OASIS-1 dataset, made available by the Open Access Series of Imaging Studies, using the logistic regression algorithm. Different classifier configurations were used in order to evaluate them, based on maximizing performance and minimizing computational cost. We concluded that it is possible to predict the disease using characteristics such as age, socioeconomic status and level of education.
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Varlamova, Anastasia, Konstantin Yazikov, and Yuliya Duibanova. "PROBLEM OF DEPRESSIVE CONDITIONS IN PATIENTS WITH ALZHEIMER'S DISEASE." In XV International interdisciplinary congress "Neuroscience for Medicine and Psychology". LLC MAKS Press, 2019. http://dx.doi.org/10.29003/m341.sudak.ns2019-15/113-114.

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Gomez, C., R. Hornero, D. Abasolo, M. Lopez, and A. Fernandez. "Decreased Lempel-Ziv complexity in Alzheimer's disease patients' magnetoencephalograms." In 2005 IEEE Engineering in Medicine and Biology 27th Annual Conference. IEEE, 2005. http://dx.doi.org/10.1109/iembs.2005.1615472.

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Reports on the topic "Alzheimer's disease – Patients – Family"

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Zhao, Peng, and XinYI Chen. Effects of exercise intervention on cognitive function and quality of life in Patients with Alzheimer's disease: a systematic review and meta-analysis. INPLASY - International Platform of Registered Systematic Review and Meta-analysis Protocols, February 2022. http://dx.doi.org/10.37766/inplasy2022.2.0038.

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Hu, XinYi, JingXuan Hao, and HangYue Wang. Improvement of Environmental enrichment on Cognitive Functions in Patients and animals : A systematic review and meta-analysis. INPLASY - International Platform of Registered Systematic Review and Meta-analysis Protocols, December 2022. http://dx.doi.org/10.37766/inplasy2022.12.0014.

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Review question / Objective: To study the relationship between environmental enrichment and cognitive function through a meta-analysis of the literature, analyze its effects on the improvement of cognitive function in patients and animals, and evaluate the effects of different environmental enrichment measures on cognitive function improvement. Condition being studied: Cognitive decline refers to an individual's memory, language, reasoning and other aspects of cognitive function showing obvious, measurable decline or abnormal. The causes of cognitive decline are various, including neurodegeneration, cerebrovascular disease, infection, trauma, and depression. Alzheimer's disease and stroke are the most common.
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Liu, Puqing, Jingwen Chen, Jun Chen, Xuefeng Wang, and Zhangxuan Shou. The efficacy and safety of butylphthalide combined with donepezil in the treatment of vascular dementia: A meta-analysis. INPLASY - International Platform of Registered Systematic Review and Meta-analysis Protocols, January 2023. http://dx.doi.org/10.37766/inplasy2023.1.0057.

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Review question / Objective: The efficacy and safety of butylphthalide combined with donepezil in the treatment of vascular dementia: Ameta-analysis. Condition being studied: Vascular dementia is the second most common cause of dementia and a major health concern worldwide, only after to Alzheimer's disease. As the increasing aging of the global population, the number of vascular dementia patients is expected to increase year by year, which will bring great economic burden to all countries in the world. In recent years, more and more published RCT studies have shown that butylphthalide can further improve behavioral ability and dementia symptoms in vascular dementia patients based on donepezil treatment. Our study aimed to systematically evaluate the efficacy and safety of butylphthalide combined with donepezil in the treatment of vascular dementia through meta-analysis, providing an objective and scientific reference for the clinical use of butylphthalide.
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Wu, Xiaoqi, Maoxia Fan, Yaobo Pan, and Dona Guo. Quality of Evidence Supporting the Effects of Ginkgo Terpene Lactone Preparations in Ischemic Stroke: An Overview of Systematic Reviews and Meta-Analyses. INPLASY - International Platform of Registered Systematic Review and Meta-analysis Protocols, September 2022. http://dx.doi.org/10.37766/inplasy2022.9.0124.

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Review question / Objective: 2.2.1 Type of studies SRs/MAs of Randomized Controlled Trials (RCTs) of GTLP for IS in any language. 2.2.2 Type of Participants Included patients were diagnosed with IS according to international or national standards, regardless of race, age, gender, time of onset, and source of cases. 2.2.3 Type of Intervention The intervention method in the control group was routine treatment, and the intervention method in the intervention group was GTLP treatment or GTLP combined with the treatment of the control group. 2.2.4 Types of outcomes Conclusions at least need to include clinical efficacy analysis and National Institute of Health Stroke Scale (NIHSS). Condition being studied: Stroke is the second leading cause of death and third leading cause of disability globally.Among them, ischemic stroke (IS) accounts for 70% of all stroke types. It is a central nervous system disease caused by cerebral blood circulation disorder, ischemia and hypoxia .The incidence rate is high and increasing year by year, the age of onset is younger, the disability rate is high, and most patients have different degrees of limb motor dysfunction.In order to reduce the burden of stroke on the society and the patient's family, many articles proposed to strengthen the primary stroke prevention - behavior change and drug intervention.
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