Academic literature on the topic 'Autistic people's writings'

The writing skills of autistic university students have received very little empirical attention. Previous research has suggested that autistic people may struggle with writing, in part, due to challenges with Theory of Mind. However, other research indicates that Theory of Mind difficulties are far from universal in autism, varying across developmental and social contexts. Through a participatory research approach, autistic university students contributed to the current study examining the writing strengths and challenges of autistic ( n = 25) and nonautistic ( n = 25) university students. Autistic participants demonstrated more advanced writing skills, more perfectionistic attitudes about writing, and heightened nonverbal intelligence relative to nonautistic students. Autistic students did not exhibit reduced Theory of Mind skills. Although heightened nonverbal intelligence and being autistic were both initially predictive of writing quality, autism was no longer associated with writing quality after accounting for nonverbal intelligence. Findings suggest that autistic university students may often have enhanced cognitive and writing skills but may face challenges overcoming perfectionism. This research highlights the value of participatory collaborations with autistic students for identifying strengths that can help autistic students succeed in college. Lay abstract We do not know very much about the writing skills of autistic university students. Studies with autistic children and teenagers show that some autistic young people have difficulties writing. Other autistic people are talented writers. In fact, some autistic people would rather write than speak. Good writers often imagine other people’s points of view when writing. Autistic people sometimes have difficulties understanding others’ points of view. Yet, autistic people often work much harder to understand others’ points of view than not-autistic people do. We collaborated with autistic university student researchers to see if autistic university students are better or worse at writing than nonautistic students. Autistic university students in our study were better writers than nonautistic students. Autistic students in our study had higher nonverbal intelligence than nonautistic students. Autistic students also put themselves under more pressure to write perfectly than nonautistic students did. Autistic students did not show any difficulties understanding other minds. This study shows that some autistic university students have stronger writing skills and higher intelligence than nonautistic university students. Yet, autistic students may be too hard on themselves about their writing. Fun activities that help students explore their ideas without pressure (like theater games) may help autistic students be less hard on their writing. Teachers can help autistic students express themselves through writing by encouraging them to write about their interests, by giving them enough time to write, and by letting them write using computers if they want to. This study shows that collaborations with autistic people can help us understand strengths that can help autistic people succeed.

Introduction: Our current obsession with the lives of others “Biography—that is to say, our creative and non-fictional output devoted to recording and interpreting real lives—has enjoyed an extraordinary renaissance in recent years,” writes Nigel Hamilton in Biography: A Brief History (1). Ian Donaldson agrees that biography is back in fashion: “Once neglected within the academy and relegated to the dustier recesses of public bookstores, biography has made a notable return over recent years, emerging, somewhat surprisingly, as a new cultural phenomenon, and a new academic adventure” (23). For over a decade now, commentators having been making similar observations about our obsession with the intimacies of individual people’s lives. In a lecture in 1994, Justin Kaplan asserted the West was “a culture of biography” (qtd. in Salwak 1) and more recent research findings by John Feather and Hazel Woodbridge affirm that “the undiminished human curiosity about other peoples lives is clearly reflected in the popularity of autobiographies and biographies” (218). At least in relation to television, this assertion seems valid. In Australia, as in the USA and the UK, reality and other biographically based television shows have taken over from drama in both the numbers of shows produced and the viewers these shows attract, and these forms are also popular in Canada (see, for instance, Morreale on The Osbournes). In 2007, the program Biography celebrated its twentieth anniversary season to become one of the longest running documentary series on American television; so successful that in 1999 it was spun off into its own eponymous channel (Rak; Dempsey). Premiered in May 1996, Australian Story—which aims to utilise a “personal approach” to biographical storytelling—has won a significant viewership, critical acclaim and professional recognition (ABC). It can also be posited that the real home movies viewers submit to such programs as Australia’s Favourite Home Videos, and “chat” or “confessional” television are further reflections of a general mania for biographical detail (see Douglas), no matter how fragmented, sensationalized, or even inane and cruel. A recent example of the latter, the USA-produced The Moment of Truth, has contestants answering personal questions under polygraph examination and then again in front of an audience including close relatives and friends—the more “truthful” their answers (and often, the more humiliated and/or distressed contestants are willing to be), the more money they can win. Away from television, but offering further evidence of this interest are the growing readerships for personally oriented weblogs and networking sites such as MySpace and Facebook (Grossman), individual profiles and interviews in periodical publications, and the recently widely revived newspaper obituary column (Starck). Adult and community education organisations run short courses on researching and writing auto/biographical forms and, across Western countries, the family history/genealogy sections of many local, state, and national libraries have been upgraded to meet the increasing demand for these services. Academically, journals and e-mail discussion lists have been established on the topics of biography and autobiography, and North American, British, and Australian universities offer undergraduate and postgraduate courses in life writing. The commonly aired wisdom is that published life writing in its many text-based forms (biography, autobiography, memoir, diaries, and collections of personal letters) is enjoying unprecedented popularity. It is our purpose to examine this proposition. Methodological problems There are a number of problems involved in investigating genre popularity, growth, and decline in publishing. Firstly, it is not easy to gain access to detailed statistics, which are usually only available within the industry. Secondly, it is difficult to ascertain how publishing statistics are gathered and what they report (Eliot). There is the question of whether bestselling booklists reflect actual book sales or are manipulated marketing tools (Miller), although the move from surveys of booksellers to electronic reporting at point of sale in new publishing lists such as BookScan will hopefully obviate this problem. Thirdly, some publishing lists categorise by subject and form, some by subject only, and some do not categorise at all. This means that in any analysis of these statistics, a decision has to be made whether to use the publishing list’s system or impose a different mode. If the publishing list is taken at face value, the question arises of whether to use categorisation by form or by subject. Fourthly, there is the bedeviling issue of terminology. Traditionally, there reigned a simple dualism in the terminology applied to forms of telling the true story of an actual life: biography and autobiography. Publishing lists that categorise their books, such as BookScan, have retained it. But with postmodern recognition of the presence of the biographer in a biography and of the presence of other subjects in an autobiography, the dichotomy proves false. There is the further problem of how to categorise memoirs, diaries, and letters. In the academic arena, the term “life writing” has emerged to describe the field as a whole. Within the genre of life writing, there are, however, still recognised sub-genres. Academic definitions vary, but generally a biography is understood to be a scholarly study of a subject who is not the writer; an autobiography is the story of a entire life written by its subject; while a memoir is a segment or particular focus of that life told, again, by its own subject. These terms are, however, often used interchangeably even by significant institutions such the USA Library of Congress, which utilises the term “biography” for all. Different commentators also use differing definitions. Hamilton uses the term “biography” to include all forms of life writing. Donaldson discusses how the term has been co-opted to include biographies of place such as Peter Ackroyd’s London: The Biography (2000) and of things such as Lizzie Collingham’s Curry: A Biography (2005). This reflects, of course, a writing/publishing world in which non-fiction stories of places, creatures, and even foodstuffs are called biographies, presumably in the belief that this will make them more saleable. The situation is further complicated by the emergence of hybrid publishing forms such as, for instance, the “memoir-with-recipes” or “food memoir” (Brien, Rutherford and Williamson). Are such books to be classified as autobiography or put in the “cookery/food & drink” category? We mention in passing the further confusion caused by novels with a subtitle of The Biography such as Virginia Woolf’s Orlando. The fifth methodological problem that needs to be mentioned is the increasing globalisation of the publishing industry, which raises questions about the validity of the majority of studies available (including those cited herein) which are nationally based. Whether book sales reflect what is actually read (and by whom), raises of course another set of questions altogether. Methodology In our exploration, we were fundamentally concerned with two questions. Is life writing as popular as claimed? And, if it is, is this a new phenomenon? To answer these questions, we examined a range of available sources. We began with the non-fiction bestseller lists in Publishers Weekly (a respected American trade magazine aimed at publishers, librarians, booksellers, and literary agents that claims to be international in scope) from their inception in 1912 to the present time. We hoped that this data could provide a longitudinal perspective. The term bestseller was coined by Publishers Weekly when it began publishing its lists in 1912; although the first list of popular American books actually appeared in The Bookman (New York) in 1895, based itself on lists appearing in London’s The Bookman since 1891 (Bassett and Walter 206). The Publishers Weekly lists are the best source of longitudinal information as the currently widely cited New York Times listings did not appear till 1942, with the Wall Street Journal a late entry into the field in 1994. We then examined a number of sources of more recent statistics. We looked at the bestseller lists from the USA-based Amazon.com online bookseller; recent research on bestsellers in Britain; and lists from Nielsen BookScan Australia, which claims to tally some 85% or more of books sold in Australia, wherever they are published. In addition to the reservations expressed above, caveats must be aired in relation to these sources. While Publishers Weekly claims to be an international publication, it largely reflects the North American publishing scene and especially that of the USA. Although available internationally, Amazon.com also has its own national sites—such as Amazon.co.uk—not considered here. It also caters to a “specific computer-literate, credit-able clientele” (Gutjahr: 219) and has an unashamedly commercial focus, within which all the information generated must be considered. In our analysis of the material studied, we will use “life writing” as a genre term. When it comes to analysis of the lists, we have broken down the genre of life writing into biography and autobiography, incorporating memoir, letters, and diaries under autobiography. This is consistent with the use of the terminology in BookScan. Although we have broken down the genre in this way, it is the overall picture with regard to life writing that is our concern. It is beyond the scope of this paper to offer a detailed analysis of whether, within life writing, further distinctions should be drawn. Publishers Weekly: 1912 to 2006 1912 saw the first list of the 10 bestselling non-fiction titles in Publishers Weekly. It featured two life writing texts, being headed by an autobiography, The Promised Land by Russian Jewish immigrant Mary Antin, and concluding with Albert Bigelow Paine’s six-volume biography, Mark Twain. The Publishers Weekly lists do not categorise non-fiction titles by either form or subject, so the classifications below are our own with memoir classified as autobiography. In a decade-by-decade tally of these listings, there were 3 biographies and 20 autobiographies in the lists between 1912 and 1919; 24 biographies and 21 autobiographies in the 1920s; 13 biographies and 40 autobiographies in the 1930s; 8 biographies and 46 biographies in the 1940s; 4 biographies and 14 autobiographies in the 1950s; 11 biographies and 13 autobiographies in the 1960s; 6 biographies and 11 autobiographies in the 1970s; 3 biographies and 19 autobiographies in the 1980s; 5 biographies and 17 autobiographies in the 1990s; and 2 biographies and 7 autobiographies from 2000 up until the end of 2006. See Appendix 1 for the relevant titles and authors. Breaking down the most recent figures for 1990–2006, we find a not radically different range of figures and trends across years in the contemporary environment. The validity of looking only at the top ten books sold in any year is, of course, questionable, as are all the issues regarding sources discussed above. But one thing is certain in terms of our inquiry. There is no upwards curve obvious here. If anything, the decade break-down suggests that sales are trending downwards. This is in keeping with the findings of Michael Korda, in his history of twentieth-century bestsellers. He suggests a consistent longitudinal picture across all genres: In every decade, from 1900 to the end of the twentieth century, people have been reliably attracted to the same kind of books […] Certain kinds of popular fiction always do well, as do diet books […] self-help books, celebrity memoirs, sensationalist scientific or religious speculation, stories about pets, medical advice (particularly on the subjects of sex, longevity, and child rearing), folksy wisdom and/or humour, and the American Civil War (xvii). Amazon.com since 2000 The USA-based Amazon.com online bookselling site provides listings of its own top 50 bestsellers since 2000, although only the top 14 bestsellers are recorded for 2001. As fiction and non-fiction are not separated out on these lists and no genre categories are specified, we have again made our own decisions about what books fall into the category of life writing. Generally, we erred on the side of inclusion. (See Appendix 2.) However, when it came to books dealing with political events, we excluded books dealing with specific aspects of political practice/policy. This meant excluding books on, for instance, George Bush’s so-called ‘war on terror,’ of which there were a number of bestsellers listed. In summary, these listings reveal that of the top 364 books sold by Amazon from 2000 to 2007, 46 (or some 12.6%) were, according to our judgment, either biographical or autobiographical texts. This is not far from the 10% of the 1912 Publishers Weekly listing, although, as above, the proportion of bestsellers that can be classified as life writing varied dramatically from year to year, with no discernible pattern of peaks and troughs. This proportion tallied to 4% auto/biographies in 2000, 14% in 2001, 10% in 2002, 18% in 2003 and 2004, 4% in 2005, 14% in 2006 and 20% in 2007. This could suggest a rising trend, although it does not offer any consistent trend data to suggest sales figures may either continue to grow, or fall again, in 2008 or afterwards. Looking at the particular texts in these lists (see Appendix 2) also suggests that there is no general trend in the popularity of life writing in relation to other genres. For instance, in these listings in Amazon.com, life writing texts only rarely figure in the top 10 books sold in any year. So rarely indeed, that from 2001 there were only five in this category. In 2001, John Adams by David McCullough was the best selling book of the year; in 2003, Hillary Clinton’s autobiographical Living History was 7th; in 2004, My Life by Bill Clinton reached number 1; in 2006, Nora Ephron’s I Feel Bad About My Neck: and Other Thoughts on Being a Woman was 9th; and in 2007, Ishmael Beah’s discredited A Long Way Gone: Memoirs of a Boy Soldier came in at 8th. Apart from McCulloch’s biography of Adams, all the above are autobiographical texts, while the focus on leading political figures is notable. Britain: Feather and Woodbridge With regard to the British situation, we did not have actual lists and relied on recent analysis. John Feather and Hazel Woodbridge find considerably higher levels for life writing in Britain than above with, from 1998 to 2005, 28% of British published non-fiction comprising autobiography, while 8% of hardback and 5% of paperback non-fiction was biography (2007). Furthermore, although Feather and Woodbridge agree with commentators that life writing is currently popular, they do not agree that this is a growth state, finding the popularity of life writing “essentially unchanged” since their previous study, which covered 1979 to the early 1990s (Feather and Reid). Australia: Nielsen BookScan 2006 and 2007 In the Australian publishing industry, where producing books remains an ‘expensive, risky endeavour which is increasingly market driven’ (Galligan 36) and ‘an inherently complex activity’ (Carter and Galligan 4), the most recent Australian Bureau of Statistics figures reveal that the total numbers of books sold in Australia has remained relatively static over the past decade (130.6 million in the financial year 1995–96 and 128.8 million in 2003–04) (ABS). During this time, however, sales volumes of non-fiction publications have grown markedly, with a trend towards “non-fiction, mass market and predictable” books (Corporall 41) resulting in general non-fiction sales in 2003–2004 outselling general fiction by factors as high as ten depending on the format—hard- or paperback, and trade or mass market paperback (ABS 2005). However, while non-fiction has increased in popularity in Australia, the same does not seem to hold true for life writing. Here, in utilising data for the top 5,000 selling non-fiction books in both 2006 and 2007, we are relying on Nielsen BookScan’s categorisation of texts as either biography or autobiography. In 2006, no works of life writing made the top 10 books sold in Australia. In looking at the top 100 books sold for 2006, in some cases the subjects of these works vary markedly from those extracted from the Amazon.com listings. In Australia in 2006, life writing makes its first appearance at number 14 with convicted drug smuggler Schapelle Corby’s My Story. This is followed by another My Story at 25, this time by retired Australian army chief, Peter Cosgrove. Jonestown: The Power and Myth of Alan Jones comes in at 34 for the Australian broadcaster’s biographer Chris Masters; the biography, The Innocent Man by John Grisham at 38 and Li Cunxin’s autobiographical Mao’s Last Dancer at 45. Australian Susan Duncan’s memoir of coping with personal loss, Salvation Creek: An Unexpected Life makes 50; bestselling USA travel writer Bill Bryson’s autobiographical memoir of his childhood The Life and Times of the Thunderbolt Kid 69; Mandela: The Authorised Portrait by Rosalind Coward, 79; and Joanne Lees’s memoir of dealing with her kidnapping, the murder of her partner and the justice system in Australia’s Northern Territory, No Turning Back, 89. These books reveal a market preference for autobiographical writing, and an almost even split between Australian and overseas subjects in 2006. 2007 similarly saw no life writing in the top 10. The books in the top 100 sales reveal a downward trend, with fewer titles making this band overall. In 2007, Terri Irwin’s memoir of life with her famous husband, wildlife warrior Steve Irwin, My Steve, came in at number 26; musician Andrew Johns’s memoir of mental illness, The Two of Me, at 37; Ayaan Hirst Ali’s autobiography Infidel at 39; John Grogan’s biography/memoir, Marley and Me: Life and Love with the World’s Worst Dog, at 42; Sally Collings’s biography of the inspirational young survivor Sophie Delezio, Sophie’s Journey, at 51; and Elizabeth Gilbert’s hybrid food, self-help and travel memoir, Eat, Pray, Love: One Woman’s Search for Everything at 82. Mao’s Last Dancer, published the year before, remained in the top 100 in 2007 at 87. When moving to a consideration of the top 5,000 books sold in Australia in 2006, BookScan reveals only 62 books categorised as life writing in the top 1,000, and only 222 in the top 5,000 (with 34 titles between 1,000 and 1,999, 45 between 2,000 and 2,999, 48 between 3,000 and 3,999, and 33 between 4,000 and 5,000). 2007 shows a similar total of 235 life writing texts in the top 5,000 bestselling books (75 titles in the first 1,000, 27 between 1,000 and 1,999, 51 between 2,000 and 2,999, 39 between 3,000 and 3,999, and 43 between 4,000 and 5,000). In both years, 2006 and 2007, life writing thus not only constituted only some 4% of the bestselling 5,000 titles in Australia, it also showed only minimal change between these years and, therefore, no significant growth. Conclusions Our investigation using various instruments that claim to reflect levels of book sales reveals that Western readers’ willingness to purchase published life writing has not changed significantly over the past century. We find no evidence of either a short, or longer, term growth or boom in sales in such books. Instead, it appears that what has been widely heralded as a new golden age of life writing may well be more the result of an expanded understanding of what is included in the genre than an increased interest in it by either book readers or publishers. What recent years do appear to have seen, however, is a significantly increased interest by public commentators, critics, and academics in this genre of writing. We have also discovered that the issue of our current obsession with the lives of others tends to be discussed in academic as well as popular fora as if what applies to one sub-genre or production form applies to another: if biography is popular, then autobiography will also be, and vice versa. If reality television programming is attracting viewers, then readers will be flocking to life writing as well. Our investigation reveals that such propositions are questionable, and that there is significant research to be completed in mapping such audiences against each other. This work has also highlighted the difficulty of separating out the categories of written texts in publishing studies, firstly in terms of determining what falls within the category of life writing as distinct from other forms of non-fiction (the hybrid problem) and, secondly, in terms of separating out the categories within life writing. Although we have continued to use the terms biography and autobiography as sub-genres, we are aware that they are less useful as descriptors than they are often assumed to be. In order to obtain a more complete and accurate picture, publishing categories may need to be agreed upon, redefined and utilised across the publishing industry and within academia. This is of particular importance in the light of the suggestions (from total sales volumes) that the audiences for books are limited, and therefore the rise of one sub-genre may be directly responsible for the fall of another. Bair argues, for example, that in the 1980s and 1990s, the popularity of what she categorises as memoir had direct repercussions on the numbers of birth-to-death biographies that were commissioned, contracted, and published as “sales and marketing staffs conclude[d] that readers don’t want a full-scale life any more” (17). Finally, although we have highlighted the difficulty of using publishing statistics when there is no common understanding as to what such data is reporting, we hope this study shows that the utilisation of such material does add a depth to such enquiries, especially in interrogating the anecdotal evidence that is often quoted as data in publishing and other studies. Appendix 1 Publishers Weekly listings 1990–1999 1990 included two autobiographies, Bo Knows Bo by professional athlete Bo Jackson (with Dick Schaap) and Ronald Reagan’s An America Life: An Autobiography. In 1991, there were further examples of life writing with unimaginative titles, Me: Stories of My Life by Katherine Hepburn, Nancy Reagan: The Unauthorized Biography by Kitty Kelley, and Under Fire: An American Story by Oliver North with William Novak; as indeed there were again in 1992 with It Doesn’t Take a Hero: The Autobiography of Norman Schwarzkopf, Sam Walton: Made in America, the autobiography of the founder of Wal-Mart, Diana: Her True Story by Andrew Morton, Every Living Thing, yet another veterinary outpouring from James Herriot, and Truman by David McCullough. In 1993, radio shock-jock Howard Stern was successful with the autobiographical Private Parts, as was Betty Eadie with her detailed recounting of her alleged near-death experience, Embraced by the Light. Eadie’s book remained on the list in 1994 next to Don’t Stand too Close to a Naked Man, comedian Tim Allen’s autobiography. Flag-waving titles continue in 1995 with Colin Powell’s My American Journey, and Miss America, Howard Stern’s follow-up to Private Parts. 1996 saw two autobiographical works, basketball superstar Dennis Rodman’s Bad as I Wanna Be and figure-skater, Ekaterina Gordeeva’s (with EM Swift) My Sergei: A Love Story. In 1997, Diana: Her True Story returns to the top 10, joining Frank McCourt’s Angela’s Ashes and prolific biographer Kitty Kelly’s The Royals, while in 1998, there is only the part-autobiography, part travel-writing A Pirate Looks at Fifty, by musician Jimmy Buffet. There is no biography or autobiography included in either the 1999 or 2000 top 10 lists in Publishers Weekly, nor in that for 2005. In 2001, David McCullough’s biography John Adams and Jack Welch’s business memoir Jack: Straight from the Gut featured. In 2002, Let’s Roll! Lisa Beamer’s tribute to her husband, one of the heroes of 9/11, written with Ken Abraham, joined Rudolph Giuliani’s autobiography, Leadership. 2003 saw Hillary Clinton’s autobiography Living History and Paul Burrell’s memoir of his time as Princess Diana’s butler, A Royal Duty, on the list. In 2004, it was Bill Clinton’s turn with My Life. In 2006, we find John Grisham’s true crime (arguably a biography), The Innocent Man, at the top, Grogan’s Marley and Me at number three, and the autobiographical The Audacity of Hope by Barack Obama in fourth place. Appendix 2 Amazon.com listings since 2000 In 2000, there were only two auto/biographies in the top Amazon 50 bestsellers with Lance Armstrong’s It’s Not about the Bike: My Journey Back to Life about his battle with cancer at 20, and Dave Eggers’s self-consciously fictionalised memoir, A Heartbreaking Work of Staggering Genius at 32. In 2001, only the top 14 bestsellers were recorded. At number 1 is John Adams by David McCullough and, at 11, Jack: Straight from the Gut by USA golfer Jack Welch. In 2002, Leadership by Rudolph Giuliani was at 12; Master of the Senate: The Years of Lyndon Johnson by Robert Caro at 29; Portrait of a Killer: Jack the Ripper by Patricia Cornwell at 42; Blinded by the Right: The Conscience of an Ex-Conservative by David Brock at 48; and Louis Gerstner’s autobiographical Who Says Elephants Can’t Dance: Inside IBM’s Historic Turnaround at 50. In 2003, Living History by Hillary Clinton was 7th; Benjamin Franklin: An American Life by Walter Isaacson 14th; Dereliction of Duty: The Eyewitness Account of How President Bill Clinton Endangered America’s Long-Term National Security by Robert Patterson 20th; Under the Banner of Heaven: A Story of Violent Faith by Jon Krakauer 32nd; Leap of Faith: Memoirs of an Unexpected Life by Queen Noor of Jordan 33rd; Kate Remembered, Scott Berg’s biography of Katharine Hepburn, 37th; Who’s your Caddy?: Looping for the Great, Near Great and Reprobates of Golf by Rick Reilly 39th; The Teammates: A Portrait of a Friendship about a winning baseball team by David Halberstam 42nd; and Every Second Counts by Lance Armstrong 49th. In 2004, My Life by Bill Clinton was the best selling book of the year; American Soldier by General Tommy Franks was 16th; Kevin Phillips’s American Dynasty: Aristocracy, Fortune and the Politics of Deceit in the House of Bush 18th; Timothy Russert’s Big Russ and Me: Father and Son. Lessons of Life 20th; Tony Hendra’s Father Joe: The Man who Saved my Soul 23rd; Ron Chernow’s Alexander Hamilton 27th; Cokie Roberts’s Founding Mothers: The Women Who Raised our Nation 31st; Kitty Kelley’s The Family: The Real Story of the Bush Dynasty 42nd; and Chronicles, Volume 1 by Bob Dylan was 43rd. In 2005, auto/biographical texts were well down the list with only The Year of Magical Thinking by Joan Didion at 45 and The Glass Castle: A Memoir by Jeanette Walls at 49. In 2006, there was a resurgence of life writing with Nora Ephron’s I Feel Bad About My Neck: and Other Thoughts on Being a Woman at 9; Grisham’s The Innocent Man at 12; Bill Buford’s food memoir Heat: an Amateur’s Adventures as Kitchen Slave, Line Cook, Pasta-Maker, and Apprentice to a Dante-Quoting Butcher in Tuscany at 23; more food writing with Julia Child’s My Life in France at 29; Immaculée Ilibagiza’s Left to Tell: Discovering God amidst the Rwandan Holocaust at 30; CNN anchor Anderson Cooper’s Dispatches from the Edge: A Memoir of War, Disasters and Survival at 43; and Isabella Hatkoff’s Owen & Mzee: The True Story of a Remarkable Friendship (between a baby hippo and a giant tortoise) at 44. In 2007, Ishmael Beah’s discredited A Long Way Gone: Memoirs of a Boy Soldier came in at 8; Walter Isaacson’s Einstein: His Life and Universe 13; Ayaan Hirst Ali’s autobiography of her life in Muslim society, Infidel, 18; The Reagan Diaries 25; Jesus of Nazareth by Pope Benedict XVI 29; Mother Teresa: Come be my Light 36; Clapton: The Autobiography 40; Tina Brown’s The Diana Chronicles 45; Tony Dungy’s Quiet Strength: The Principles, Practices & Priorities of a Winning Life 47; and Daniel Tammet’s Born on a Blue Day: Inside the Extraordinary Mind of an Autistic Savant at 49. Acknowledgements A sincere thank you to Michael Webster at RMIT for assistance with access to Nielsen BookScan statistics, and to the reviewers of this article for their insightful comments. Any errors are, of course, our own. References Australian Broadcasting Commission (ABC). “About Us.” Australian Story 2008. 1 June 2008. ‹http://www.abc.net.au/austory/aboutus.htm>. 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Online edition. 1 June 2008 ‹http://www.time.com/time/magazine/article/0%2C9171%2C1569514%2C00.html>. Gutjahr, Paul C. “No Longer Left Behind: Amazon.com, Reader Response, and the Changing Fortunes of the Christian Novel in America.” Book History 5 (2002): 209–36. Hamilton, Nigel. Biography: A Brief History. Cambridge, MA: Harvard UP, 2007. Kaplan, Justin. “A Culture of Biography.” The Literary Biography: Problems and Solutions. Ed. Dale Salwak. Basingstoke: Macmillan, 1996. 1–11. Korda, Michael. Making the List: A Cultural History of the American Bestseller 1900–1999. New York: Barnes & Noble, 2001. Miller, Laura J. “The Bestseller List as Marketing Tool and Historical Fiction.” Book History 3 (2000): 286–304. Morreale, Joanne. “Revisiting The Osbournes: The Hybrid Reality-Sitcom.” Journal of Film and Video 55.1 (Spring 2003): 3–15. Rak, Julie. “Bio-Power: CBC Television’s Life & Times and A&E Network’s Biography on A&E.” LifeWriting 1.2 (2005): 1–18. 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IntroductionIn 2017, both the disability community and popular culture are using the term “inspiration porn” to describe one form of discrimination against people with disability. ABC’s Speechless, “a sitcom about a family with a son who has a disability, (has) tackled why it’s often offensive to call people with disabilities ‘inspirational’” (Wanshel). The reasons why inspiration porn is considered to be discriminatory have been widely articulated online by people with disability. Amongst them is Carly Findlay, a disabled writer, speaker, and appearance activist, who has written that:(inspiration porn) shows non-disabled people doing good deeds for disabled people—feeding them chips at McDonald’s—’serving us all lessons in kindness’: or taking them to the high school dance. These stories usually always go viral. The person with disability probably never gave their permission for the photo or story to be used in a meme or told to the media (Findlay).The definition and dynamics of inspiration porn as illustrated in this quote will be expanded upon in this paper’s critical analysis of captions. Here, the term captions is used to describe both writing found on memes and on Facebook posts (created by a “poster”), and the comments written below these posts (created by “commenters”). Facebook threads underneath posts about people with disability both “reflect and create” (Barnes, Mercer and Shakespeare 202) current societal attitudes towards disability. That is, such threads not only illustrate negative societal attitudes towards disability, but can also perpetuate these attitudes by increasing people’s exposure to them. This paper will focus on a specific case study of inspiration porn on Facebook—the crowning of a student with autism as prom king—and consider both the conflict of whether people’s kind words are patronising use of language, as well as the concerns of over-disclosure used in this thread.What Is Inspiration Porn?The genesis of the term inspiration porn is commonly attributed to the late Stella Young, a disabled woman who was an advocate for people with disability. However, the term has been traced to a blog post written in February 2012 (bear). Anecdotal evidence from Lisa Harris, a disability consultant and advocate with over 20 years’ disability education experience, suggests that the term was blogged about as far back as 2006 on Rachel Cohen-Rottenberg’s Webpage Disability and Representation (Harris). However, it was Young who popularised the term with her 2012 article We’re Not Here for Your Inspiration and 2014 TED Talk I’m Not Your Inspiration, Thank You Very Much. Young defined inspiration porn as “an image of a person with a disability, often a kid, doing something completely ordinary—like playing, or talking, or running, or drawing a picture, or hitting a tennis ball—carrying a caption like ‘your excuse is invalid’ or ‘before you quit, try’”.It is worth noting that the use of the word porn has been considered controversial in this context. Yet it can be argued that the perception of the person with disability having achieved something great gives the person without disability a hit of positive “inspired” emotion. In this way, such inspiration could be termed as porn as it serves the purpose of fulfilling the “pornographic” self-gratification of people without disability.The term inspiration porn has historically been used in disability studies in two ways. Firstly, it has been used to describe the “ableist gaze” (Davis), which is when a person with disability is ‘seen’ through the eyes of someone without disability. Indeed, just as the “male gaze” (Mulvey) is implicit in sexualised porn, so too the “ableist gaze” is implicit in inspiration porn. Secondly, it has been used to highlight the lack of power experienced by people with disability in cultural representation (Barnes, Mercer, and Shakespeare 201). This study is a good example of the latter—it is not uncommon for people with disability to be refuted when they speak out against the inherent discrimination found within captions of (intended) kindness on Facebook threads.Inspiration porn is also a form of “objectification” (Perry) of people with disability, and is based on stereotypes (Haller and Zhang 22) about disability held by people without disability. According to Dr. Paul Sinclair, a disability scholar with 15 years’ experience in disability education, objectification and stereotyping are essential factors to understanding inspiration porn as discrimination:when a person with disability engages in their daily life, it is possible that a person without disability sees them as inspirational by superimposing his/her stereotypical perception of, or understanding about, people with disability onto the identity of the person, as a human being.Such objectification and stereotyping of people with disability is evident across various media captioning. This is particularly so in social media which often includes memes of images with “inspiring” captions—such as the ones Young highlighted as clear examples of inspiration porn, which “feature the Hamilton quote (‘The only disability in life is a bad attitude’)”. Another example of this kind of captioning is found in news items such as the 2015 article Disabled Teen Crowned Homecoming Queen in Awesome Way as featured in the article USA Today (Saggio). This article described how a student not identified as having a disability gave her homecoming queen crown to a student with a disability and captioned the YouTube clip of these students with, “High school senior [Name] was hoping she’d be crowned homecoming queen. She has cerebral palsy and has never felt like she fit in at school. What happened during the crowning ceremony will warm your heart” (Saggio). The fact that the young woman was pleased with getting the crown does not mitigate the objectifying dynamics of inspiration porn present within this example. Captioning such as this both creates and reflects some of the existing attitudes—including charity and its appeal to emotionality—that perpetuate inspiration porn.Measuring Inspiration Porn with Sentiment AnalysisThe challenge for the researcher analysing Facebook threads is how to meaningfully interpret the captions’ numerous contexts. The methodology of this research used a quantitative approach to gather numerical data about selected Facebook captions. This paper discusses data gained from a sentiment analysis (Pang and Lee; Thelwall et al.; Driscoll) of these captions within the contexts of my own and other researchers’ analyses of inspiration porn, as well as the perspectives of people with disability.The sentiment analysis was conducted using SentiStrength, a software tool that extracts both positive and negative sentiment strengths “from short informal electronic text” (Thelwall et al., 2545), and ranks it “on a numerical scale” (Driscoll 3). Sentiment analysis and SentiStrength are useful, but not perfect, tools with which to analyse Facebook captions. For example, SentiStrength determines two scales: a positive emotion measurement scale ranging from +1 (neutral) to +5 (most positive), and a negative emotion measurement scale ranging from –1 (neutral) to –5 (most negative). It calculates the positive and negative scores concurrently rather than averaging them out in order to acknowledge that captions can and do express mixed emotion (Driscoll 5).News articles about people with disability attending proms and comparable events, such as the homecoming queen example described above, are often criticised by disability activists for perpetuating inspiration porn (Mort; Findlay; Brown). Based on this criticism, sentiment analysis was used in this research to measure the emotional strength of captions—particularly their possible use of patronising language—using the Autism Speaks Facebook post as a case study. The post featured an image of a high school student with autism who had been crowned prom king.The Autism Speaks Facebook page was set up to fund “research into the causes, prevention, treatments and a cure for autism; increas(e) awareness of autism spectrum disorders; and advocat(e) for the needs of individuals with autism and their families” (Autism Speaks). The location of the prom was not specified; however, Autism Speaks is based in New York. This particular Facebook page was selected for this study based on criticism that Autism Speaks receives from disability advocates. One of the major critiques is that “(its) advertising depends on offensive and outdated rhetoric of fear and pity, presenting the lives of autistic people as tragic burdens on our families and society” (Boycott Autism Speaks). Autism Speaks has also been described as a problematic example of an organisation that “dictate(s) how disability should be perceived and dealt with. Often without input of disabled people either in the design or implementation of these organizations” (crippledscholar). This article goes on to state that “charities always frame what they do as positive and helpful even when the people who are the intended recipients disagree.”The prom king post included a photo of a young man with autism after he was crowned. He was standing beside a woman who wasn’t identified. The photo, posted by the young man’s aunt on the Autism Speaks Facebook page, included a status update that read:My autistic nephew won PROM KING today! Just so you all know, having a disability doesn’t hold you back if you don’t let it! GO [NAME]. #AutismAwareness (Autism Speaks)The following caption from the comment thread of the same Facebook post is useful as an example of how SentiStrength works. The caption read:Tears of Joy! Thank you for posting!!! Wow this gives me hope for his and my son’s and everyone’s special wonderful child nephew and niece! Way cool!However, because SentiStrength does not always accurately detect and measure sarcasm or idiomatic language usage, ”Tears” (the only negatively interpreted word in this caption) has been scored as –4, while the overall positive sentiment was scored as 3. Therefore, the final SentiStrength score of this caption was 3, –4, thereby demonstrating both the utility and limitations of SentiStrength as a sentiment analysis tool. This is useful to understand when analysing the data it produces.When analysing the entire thread, the sentiment analysis results across 238 captions, showed that 2 was the average strength of positive emotion, and that –1.16 was the average strength of negative emotion. The following section will analyse how a specific caption chosen from the most positively-scored captions from these data indicates that inspiration porn is possibly evident within.Use of Language: Kind, or Patronising?This discussion analyses the use of language in one caption from this thread, focusing on the way it likely demonstrated the ableist gaze. The caption was the most positive one from these data as scored by SentiStrength (5, –1) and read, ”CONGRATULATIONS SWEETIE!!!”. While it is noted that basing this analysis primarily on one caption provides limited insight into the dynamics of inspiration porn, this analysis forms a basis from which to consider other “inspirational” Facebook posts about people with disability. As well as this caption, this discussion will also draw upon other examples mentioned in this paper—from the homecoming queen article in USA Today to another caption on the Autism Speaks thread—to illustrate the dynamics of inspiration porn.On the surface, this congratulatory caption seems like a kind thing to post. However, inspiration porn has been identified in this analysis based on the caption’s effusive use of punctuation coupled with use of capital letters and the word “sweetie”. The excitement depicted through use of multiple exclamation marks and capital letters implies that the commenter has a personal connection with the prom king, which is a possibility. However, this possibility becomes less feasible when the caption is considered within the context of other captions that display not dissimilar use of language, as well as some that also display intimate emojis, such as grin faces and love heart eyes. Further, when this use of language is used with any consistency across a thread and is not coupled with textual information that implies a personal connection between the commenter/s and the prom king, it could be interpreted as patronising, condescending and/or infantilising. In addition, “sweetie” is a term of endearment commonly used in conversation with a romantic partner, child, or someone the speaker/writer knows intimately. While, again, it is possible that these commenters knew the prom king intimately, a more likely possibility is that he was being written to by strangers, yet using language that implied he was close to them—which would then have the same patronising connotations as above. It can therefore be argued that there is a strong possibility that this heightened use of intimate and emotional language was chosen based on his autism diagnosis.The conclusion drawn above is based in part on contextual similarities between the Autism Speaks post and its associated thread, and the aforementioned homecoming queen news article. In the former, it is likely that the young prom king was congratulated effusively because of his autism diagnosis. Similarly, in the latter article, the young woman was crowned not because she was named homecoming queen, but because the crown was given to her because of her diagnosis of cerebral palsy. As both gestures appear to have been based on others’ perceptions of these individuals’ disabilities rather than on their achievements, they are both likely to be patronising gestures.Over-DisclosureIn addition to use of language, another noteworthy issue in the captions thread on the Autism Speaks Facebook page was that many of them were from parents disclosing the diagnosis of their child. One example of this was a post from a mother that read (in part):I’ll be over here worried & concerned with the other 9,999 & ½ things to deal with, keeping up with new therapies, current therapy, we came in progress from any past therapies, meltdowns, dietary restrictions, educational requirements, The joy and difficulties of not just learning a new word but actually retaining that word, sleep, being hit, keeping him from hitting himself, tags on clothes etc. etc. [sic] (Autism Speaks)The above commenter listed a number of disability-specific issues that she experienced while raising her son who has autism. The context for her caption was a discussion, unrelated to the original post, that had sparked underneath a sub-thread regarding whether the use of person-first language (“person with autism”) or identity-first language (“Autistic person”) was best when referring to someone with autism. The relationship between inspiration porn and this intimately negative post about someone with disability is that both types of post are examples of the “ableist gaze”: inspiration porn demonstrates an exaggerated sense of positivity based on someone’s disability, and this post demonstrates disregard for the privacy of the person being posted about—perhaps due to his disability. The ease with which this negative comparison (over-disclosure) can be made between ‘inspirational’ and ‘negative’ posts illustrates in part why inspiration porn is a form of discrimination—intentional or otherwise.Furthermore, some of the children who were disclosed about on the main thread were too young to be asked consent, and it is unclear whether those who were old enough had the capacity to provide informed consent. Research has found that online over-disclosure in general is a matter of concern.The specific practice of online over-disclosure from parents about their children—with or without disability—has been raised by Leaver (151), “what happens before young people have the agency, literacy or skills to take the reins of their own selves online? Parents, guardians, loved ones and others inevitably set the initial identity parameters for young people online.” Over-disclosure is therefore also an issue that concerns people with disability, and the people closest to them.There exists both anecdotal evidence and academic research regarding online over-disclosure about people with disability. The research states that when people with physical disability disclose online, they employ strategic approaches that involve the degree to which they disclose (Furr, Carreiro, and McArthur). This suggests that there are complex factors to consider around such disclosure. Also relevant is that the practice of over-disclosure about another person’s disability, regardless of whether that disclosure is made by a close family member, has been critiqued by people (Findlay; Stoltz) within the disability community: “would you publicly share this information about your other children, an aging parent, or yourself?” (Stoltz). Finally, the practice of disability over-disclosure by anyone other than the person themselves supports the understanding that inspiration porn is not about the “object” of inspiration; rather, it serves to give pleasure (and/or pain) to the objectifier.ConclusionInspiration porn via the ableist gaze is discriminatory because it focuses on a (societally) undesirable trait in a way that serves the “gazer” at the expense of the “gazed-at”. That is, people with disability are objectified and exploited in various ways that can initially appear to be positive to people without disability. For example, when someone with disability posts or is posted about on Facebook, a person without disability might then add a caption—possibly with good intentions—that serves as their “inspired” response to what it “must” be like to have a disability. It can be argued that such captions, whether on news articles or when framing social media images, therefore either reflect or create existing social inequalities—and possibly do both.In continuing to use the term inspiration porn to describe one form of discrimination against people with disability, both the disability community and popular culture are contributing to an important narrative that scholarship needs to continue to address. Indeed, the power imbalance that is celebrated within inspiration porn is in some ways more insidious than malicious discrimination against people with disability, because it is easier to mistake as kindness. The research sample presented in this paper supports the countless expressions of anecdotal evidence given by people with disability that this “kindness” is inspiration porn; a damaging expression of the ableist gaze.ReferencesAutism Speaks. Facebook 21 May 2017 <https://www.facebook.com/autismspeaks>.Barnes, Colin, Geof Mercer, and Tom Shakespeare. Exploring Disability. 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London: Verso, 1995.Driscoll, Beth. “Sentiment Analysis and the Literary Festival Audience.” Continuum 29.6 (2015): 861–873.Findlay, Carly. “Inspiration and Objectification of People with Disability – A Resource for Teachers and Parents.” Tune into Radio Carly 5 Feb. 2017. 21 May 2017 <http://carlyfindlay.blogspot.com.au/2017/02/inspiration-and-objectification-of.html>.Findlay, Carly. “When Parents Overshare Their Children’s Disability.” Sydney Morning Herald 23 July 2015. 21 May 2017 <http://www.smh.com.au/lifestyle/news-and-views/opinion/when-parents-overshare-their-childrens-disability-20150724-gijtw6.html>.Furr, June B., Alexis Carreiro, and John A. McArthur. “Strategic Approaches to Disability Disclosure on Social Media.” Disability & Society 31.10 (2016): 1353–1368.Haller, Beth, and Lingling Zhang. “Stigma or Empowerment? What Do Disabled People Say about Their Representation in News and Entertainment Media?” Review of Disability Studies: An International Journal 9.4 (2014).Harris, Lisa. “Genesis of Term ‘Inspiration Porn’?” Letter. 5 Oct. 2016.Leaver, Tama. “Born Digital? Presence, Privacy, and Intimate Surveillance.” Re-Orientation: Translingual Transcultural Transmedia. Studies in Narrative, Language, Identity, and Knowledge. Eds. John Hartley and Weigou Qu. 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Reviewing Melissa Lucashenko’s Mullumbimby (2013), Eve Vincent notes that it shares with Keri Hulme’s The Bone People (1984) one significant feature: “a glossary of Indigenous words.” Working with various forms of the term “abroad”, this article surveys the debate The Bone People ignited around the relative merits of such a glossary in texts written predominantly in English, the colonizing language. At stake here is the development of a post-colonial community that incorporates Indigenous identity and otherness (Maori or Aboriginal) with the historical legacy of the English/Indigenous-language multi-lingualism of multi-cultural Australia and New Zealand. I argue that the terms of this debate have remained static since 1984 and that this creates a problem for post-colonial theory. Specifically, the debate has favoured a binary either/or approach, whereby either the Indigenous language or English has been empowered with authority over the text’s linguistic, historical, cultural and political territory. Given that the significations of “abroad” include a travelling encounter with overseas places and the notion of being widely scattered or dispersed, the term has value for an investigation into how post-colonialism as a historical circumstance is mediated and transformed within literature. Post-colonial literature is a response to the “homeland” encounter with a foreign “abroad” that creates particular wide scatterings or dispersals of writing within literary texts.In 1989, Maryanne Dever wrote that “some critics have viewed [The Bone People’s] glossary as a direct denial of otherness. … It can be argued, however, that the glossary is in fact a further way of asserting that otherness” (24). Dever is responding to Simon During, who wrote in 1985 that “by translating the Maori words into English [the glossary allows] them no otherness within its Europeanising apparatus” (During 374). Dever continues: “[The glossary] is a considered statement of the very separateness of the Maori language. In this way, the text inverts the conventional sense of privileging, the glossary forming the key into a restricted or privileged form of knowledge” (24). Dever’s language is telling: “direct denial of otherness,” “asserting that otherness,” and “the very separateness of the Maori language,” reinforce a binary way of thinking that is reproduced by Vincent in 2013 (24).This binary hinders a considered engagement with post-colonial difference because it produces hierarchal outcomes. For Toril Moi, “binary oppositions are heavily imbricated in the patriarchal value system: each opposition can be analysed as a hierarchy where the ‘feminine’ side is always seen as the negative, powerless instance” (104). Inspired by Elizabeth M. DeLoughrey’s concept of “tidalectics”, my article argues that the neologism “glossary islands” provides a more productive way of thinking about the power relations of the relationship of glossaries of Indigenous words to Hulme’s and Lucashenko’s mainly English-language, post-colonial novels. Resisting a binary either/or approach, “glossary islands” engages with the inevitable intermingling of languages of post-colonial and multi-cultural nations and holds value for a new methodological approach to the glossary as an element of post-colonial (islandic) literature.Both The Bone People and Mullumbimby employ female protagonists (Kerewin Holmes and Jo Breen respectively) to explore how family issues resolve into an assertion of place-based community for people othered by enduring colonial forces. Difficult loves and difficult children provide opportunities for tension and uneasy resolution in each text. In Hulme’s novel, Kerewin resists the romantic advances of Joe Gillayley to the end, without ever entirely rejecting him. Similarly, in Mullumbimby, Jo and Twoboy Jackson conduct a vacillating relationship, though one that ultimately steadies. The Bone People tells of an autistic child, Simon P. Gillayley, while Mullumbimby thematises a difficult mother-daughter relationship in its narration of single-mother Jo’s struggles with Ellen. Furthermore, employing realist and magic realist techniques, both novels present family and love as allegories of post-colonial community, thereby exemplifying Stephen Slemon’s thesis that “the real social relations of post-colonial cultures appear, through the mediation of the text’s language of narration, in the thematic dimension of the post-colonial magic realist work” (12).Each text also shows how post-colonial literature always engages with the “abroad” by virtue of the post-colonial relationship of the indigenous “homeland” to the colonial “imported abroad”. DeLoughrey characterises this post-colonial relationship to the “abroad” by a “homeland” as a “tidalectics”, meaning “a dynamic and shifting relationship between land and sea that allows island literatures to be engaged in their spatial and historical complexity” (2-3). The Bone People and Mullumbimby are examples of island literatures for their geographic setting. But DeLoughrey does not compress “tidalectics” to such a reductionist definition. The term itself is as “dynamic and shifting” as what it signifies, and available for diverse post-colonial redeployments (DeLoughrey 2).The margin of land and sea that DeLoughrey foregrounds as constitutive of “tidalectics” is imaginatively re-expressed in both The Bone People and Mullumbimby. Lucashenko’s novel is set in the Byron Bay hinterland, and the text is replete with teasing references to “tidalectics”. For example, “Jo knew that the water she watched was endlessly cycling upriver and down, travelling constantly between the saltwater and the fresh” (Lucashenko 260-61). The writing, however, frequently exceeds a literal “tidalectics”: “Everything in the world was shapeshifting around her, every moment of every day. Nothing remained as it was” (Lucashenko 261).Significantly, Jo is no passive figure at the centre of such “shapeshifting”. She actively takes advantage of the “dynamic and shifting” interplay between elemental presences of her geographical circumstances (DeLoughrey 2). It is while “resting her back against the granite and bronze directional marker that was the last material evidence of humanity between Ocean Shores and New Zealand,” that Jo achieves her major epiphany as a character (Lucashenko 261). “Her eyelids sagged wearily. … Jo groaned aloud, exhausted by her ignorance and the unending demands being made on her to exceed it. The temptation to fall asleep in the sun, and leave these demands far behind, began to take her over. … No. We need answers” (Lucashenko 263). The “tidalectics” of her epiphany is telling: the “silence then splintered” (262) and “momentarily the wrens became, not birds, but mere dark movement” (263). The effect is dramatic: “The hairs on Jo’s arms goosepimpled. Her breathing grew fast” (263). “With an unspoken curse for her own obtuseness”, Jo becomes freshly decisive (264). Thus, a “tidalectics” is not a mere geographic backdrop. Rather, a “dynamic and shifting” landscape—a metamorphosis—energizes Jo’s identity in Mullumbimby. In the “homeland”/“abroad” flux of “tidalectics”, post-colonial community germinates.The geography of The Bone People is also a “tidalectics”, as demonstrated, for instance, by chapter five’s title: “Spring Tide, Neap Tide, Ebb Tide, Flood” (Hulme 202). Hulme’s novel contains literally hundreds of such passages that dramatise the margin of land and sea as “dynamic and shifting” (DeLoughrey 2). Again: “She’s standing on the orangegold shingle, arms akimbo, drinking the beach in, absorbing sea and spindrift, breathing it into her dusty memory. It’s all here, alive and salt and roaring and real. The vast cold ocean and the surf breaking five yards away and the warm knowledge of home just up the shore” (163). Like the protagonist of Mullumbimby, Kerewin Holmes is an energised subject at the margin of land and sea. Geography as “tidalectics” is activated in the construction of character identity. Kerewin involves her surroundings with her sense of self, as constituted through memory, in a fashion that enfolds the literal with the metaphorical: memory is “dusty” in the midst of “vast” waters (163).Thus, at least three senses of “abroad” filter through these novels. Firstly, the “abroad” exists in the sense of an abroad-colonizing power retaining influence even in post-colonial times, as elaborated in Simon During’s distinction between the “post-colonised” and the “post-colonisers” (Simon 460). Secondly, the “abroad” reveals itself in DeLoughrey’s related conceptualisation of “tidalectics” as a specific expression of the “abroad”/“homeland” relationship. Thirdly, the “abroad” is present by virtue of the more general definition it shares with “tidalectics”; for “abroad”, like “tidalectics”, also signifies being widely scattered, at large, ranging freely. There is both denotation and connotation in “tidalectics”, which Lucashenko expresses here: “the world was nothing but water in the air and water in the streams” (82). That is, beyond any “literal littoral” geography, “abroad” is linked to “tidalectics” in this more general sense of being widely scattered, dispersed, ranging freely.The “tidalectics” of Lucashenko’s and Hulme’s novels is also shared across their form because each novel is a complex interweaving of English and the Indigenous language. Here though, we encounter a clear difference between the two novels, which seems related to the predominant genres of the respective texts. In Lucashenko’s largely realist mode of writing, the use of Indigenous words is more transparent to a monolingual English speaker than is Hulme’s use of Maori in her novel, which tends more towards magic realism. A monolingual English speaker can often translate Lucashenko almost automatically, through context, or through an in-text translation of the words worked into the prose. With Hulme, context usually withholds adequate clues to the meaning of the Maori words, nor are any in-text translations of the Maori commonly offered.Leaving aside for now any consideration of their glossaries, each novel presents a different representation of the post-colonial/“abroad” relationship of an Indigenous language to English. Mullumbimby is the more conservative text in this respect. The note prefacing Mullumbimby’s Glossary reads: “In this novel, Jo speaks a mixture of Bundjalung and Yugambeh languages, interspersed with a variety of Aboriginal English terms” (283). However, the Indigenous words often shade quite seamlessly into their English translation, and the “Aboriginal English” Jo speaks is actually not that different from standard English dialogue as found in many contemporary Australian novels. If anything, there is only a slight, distinguishing American flavour to Jo’s dialogue. In Mullumbimby, the Indigenous tongue tends to disappear into the text’s dominant language: English.By contrast, The Bone People contains many instances where Maori presents in all its bold strangeness to a monolingual English speaker. My reading experience consisted in running my eyes over the words but not really taking them in, except insofar as they represented a portion of Maori of unknown meaning. I could look up the recondite English words (of which there were many) in my dictionary or online, but it was much harder to conveniently source definitions of the Maori words, especially when they formed larger syntactic units.The situation is reversed, however, when one considers the two glossaries. Mullumbimby’s glossary asserts the difference of the Indigenous language(s) by having no page numbers alongside its Indigenous words (contrast The Bone People’s glossary) and because, despite being titled Glossary as a self-sufficient part of the book, it is not mentioned in any Contents page. One comes across Lucashenko’s glossary, at the end of her novel, quite unexpectedly. Conversely, Hulme’s glossary is clearly referenced on its Contents page, where it is directly described as a “Translation of Maori Words and Phrases” commencing on page 446. Hulme’s glossary appears predictably, and contains page references to all its Maori words or phrases. This contrasts with Lucashenko’s glossary, which follows alphabetical order, rather than the novel’s order. Mullumbimby’s glossary is thus a more assertive textual element than The Bone People’s glossary, which from the Contents page on is more homogenised with the prevailing English text.Surely the various complexities of these two glossaries show the need for a better way of critically engaging with them that does not lead to the re-accentuation of the binary terms in which the scholarly discussion about their genre has been couched so far. Such a methodology needs to be sensitive to the different forms of these glossaries and of others like them in other texts. But some terminological minesweeping is required in order to develop this methodology, for a novel and a glossary are different textual forms and should not be compared like for like. A novel is a work of the imagination in fictional form whereas a glossary is a meta-text that, according to The New Shorter Oxford English Dictionary, comprises “a list with explanations, often accompanying a text, of abstruse, obsolete, dialectal, or technical terms.” The failure to take this difference substantially into account explains why the debate around Hulme’s and Lucashenko’s glossaries as instruments of post-colonial language relationships has defaulted, thus far, to a binary approach insensitive to the complexities of linguistic relations in post-colonial and multi-cultural nations. Ignoring the formal difference between novel and glossary patronises a reading that proceeds by reference to binary opposition, and thus hierarchy.By contrast, my approach is to read these glossaries as texts that can be read and interpreted as one might read and interpret the novels they adjoin, and also with close attention to the architecture of their relationship to the novels they accompany. This close reading methodology enables attention to the differences amongst glossaries, as much as to the differences between them and the texts they gloss. One consequence of this is that, as I have shown above, a text might be conservative so far as its novel segment is concerned, yet radical so far as its glossary is concerned (Mullumbimby), or vice versa (The Bone People).To recap, “tidalectics” provides a way of engaging with the post-colonial/“abroad” (linguistic) complexities of island nations and literatures. It denotes “a dynamic and shifting relationship between land and sea that allows island literatures to be engaged in their spatial and historical complexity” (DeLoughrey 2-3). The methodological challenge for my article is to show how “tidalectics” is useful to a consideration of that sub-genre of post-colonial novels containing glossaries. Elizabeth M. DeLoughrey’s unpacking of “tidalectics” considers not just islands but also the colonial relationships of (archetypally mainland European) colonial forces to islands. Referring to the popularity of “desert-island stories” (12), DeLoughrey notes how “Since the colonial expansion of Europe, its literature has increasingly inscribed the island as a reflection of various political, sociological, and colonial practices” (13). Further, “European inscriptions of island topoi have often upheld imperial logic and must be recognized as ideological tools that helped make colonial expansion possible” (13). DeLoughrey also underscores the characteristics of such “desert-island stories” (12), including how accidental colonization of “a desert isle has been a powerful and repeated trope of empire building and of British literature of the eighteenth and nineteenth centuries” (13). Shipwrecks are the most common narrative device of such “accidents”.Drawing on the broad continuum of the several significations of “abroad”, one can draw a parallel between the novel-glossary relationship and the mainland-island relationship DeLoughrey outlines. I recall here Stephen Slemon’s suggestion that “the real social relations of post-colonial cultures appear, through the mediation of the text’s language of narration, in the thematic dimension of the post-colonial magic realist work” (12). Adapting Slemon’s approach, one might read the formal (as opposed to thematic) dimension of the glossary in a post-colonial narrative like The Bone People or Mullumbimby as another literary appearance of “the real social relations of post-colonial cultures” (Slemon 12). What’s appearing is the figure of the island in the form of the glossary: hence, my neologism “glossary islands”. These novels are thus not only examples of island novels to be read via “tidalectics”, but of novels with their own islands appended to them, as glossaries, in the “abroad” of their textuality.Thus, rather than seeing a glossary in a binary either/or way as a sign of the (artificial) supremacy of either English or the Indigenous language, one could use the notion of “glossary islands” to more fully engage with the complexities of post-colonialism as expressed in literature. Seen in this light, a glossary (as to The Bone People or Mullumbimby) can be read as an “abroad” through which the novel circulates its own ideas or inventions of post-colonial community. In this view, islands and glossaries are linked through being intensified sites of knowledge, as described by DeLoughrey. Crucially, the entire, complex, novel-glossary relationship needs to be analysed, and it is possible (though space considerations mediate against pursuing this here) that a post-colonial novel’s glossary expresses the (Freudian) unconscious knowledge of the novel itself.Clearly then, there is a deep irony in how what Simon During calls the “Europeanising apparatus” of the glossary itself becomes, in Mullumbimby, an object of colonisation (During 374). (Recall how one comes across the glossary at the end of Lucashenko’s novel unexpectedly—accidentally—as a European might be cast up upon a desert island.) I hazard the suggestion that a post-colonial novel is more radical in its post-colonial politics the more “island-like” its glossary is, because this implies that the “glossary island” is being used to better work out the nature of post-colonial community as expressed and proposed in the novel itself. Here then, again, the seemingly more radical novel linguistically, The Bone People, seems in fact to be less radical than Mullumbimby, given the latter’s more “island-like” glossary. Certainly their prospects for post-colonial community are being worked out on different levels.Working with the various significations of “abroad” that span the macro level of historical circumstances and the micro levels of post-colonial literature, this article has introduced a new methodological approach to engaging with Indigenous language glossaries at the end of post-colonial texts written largely in English. This methodology responds to the need to go beyond the binary either/or approach that has characterised the debate in this patch of post-colonial studies so far. A binary view of language relations, I suggest, is debilitating to prospects for post-colonial community in post-colonial, multi-cultural and island nations like Australia and New Zealand, where language flows are multifarious and complex. My proposed methodology, as highlighted in the neologism “glossary islands”, seems to show promise for the (re-)interpretation of Mullumbimby and The Bone People as texts that deal, albeit in different ways, with similar issues of language relations and of community. An “abroad” methodology provides a powerful infrastructure for engagement with domains such as post-colonialism that, as Stephen Slemon indicates, involve the intensive intermingling of the largest geo-historical circumstances with the detail, even minutiae, of the textual expression of those circumstances, as in literature.ReferencesDeLoughrey, Elizabeth M. Routes and Roots: Navigating Caribbean and Pacific Island Literatures. Honolulu: U of Hawai’i P, 2007.Dever, Maryanne. “Violence as Lingua Franca: Keri Hulme’s The Bone People.” World Literature Written in English 29.2 (1989): 23-35.During, Simon. “Postmodernism or Postcolonialism?” Landfall 39.3 (1985): 366-80.———. “Postmodernism or Post-Colonialism Today.” Postmodernism: A Reader. Ed. Thomas Docherty. New York: Harvester Wheatsheaf, 1993. 448-62.Hulme, Keri. The Bone People. London: Pan-Picador, 1986.Lucashenko, Melissa. Mullumbimby. St Lucia, Queensland: U of Queensland P, 2013.Moi, Toril. Sexual/Textual Politics: Feminist Literary Theory. London: Routledge, 1985.Slemon, Stephen. “Magic Realism as Post-Colonial Discourse.” Canadian Literature 116 (Spring 1988): 9-24.The New Shorter Oxford English Dictionary. Ed. Lesley Brown. Oxford: Clarendon P, 1993.Vincent, Eve. “Country Matters.” Sydney Review of Books. Sydney: The Writing and Society Research Centre at the University of Western Sydney, 2013. 8 Aug. 2016 <http://sydneyreviewofbooks.com/country-matters/>.

“Communicating deep feeling in linear solid blocks of print felt arcane, a method beyond me” — Audre Lorde in an interview with Adrienne Rich (Lorde 87) How do you disclose? In writing, in spoken words, in movements, in sounds, in the quiet energetic vibration and its trace in discourse? Is disclosure a narrative account of a self, or a poetic fragment, sent into the world outside the sanction of a story or another recognisable form (see fig. 1)?These are the questions that guide my exploration in this essay. I meditate on them from the vantage point of my own self-narrative, as a community performance practitioner and writer, a poet whose artistry, in many ways, relies on the willingness of others to disclose, to open themselves, and yet who feels ambivalent about narrative disclosures. What I share with you, reader, are my thoughts on what some may call compassion fatigue, on boredom, on burn-out, on the inability to be moved by someone’s hard-won right to story her life, to tell his narrative, to disclose her pain. I find it ironic that for as long as I can remember, my attention has often wandered when someone tells me their story—how this cancer was diagnosed, what the doctors did, how she coped, how she garnered support, how she survived, how that person died, how she lived. The story of how addiction took over her life, how she craved, how she hated, how someone sponsored her, listened to her, how she is making amends, how she copes, how she gets on with her life. The story of being born this way, being prodded this way, being paraded in front of doctors just like this, being operated on, being photographed, being inappropriately touched, being neglected, being forgotten, being unloved, being lonely. Listening to these accounts, my attention does wander, even though this is the heart blood of my chosen life—these are the people whose company I seek, with whom I feel comfortable, with whom I make art, with whom I make a life, to whom I disclose my own stories. But somehow, when we rehearse these stories in each others’s company (for rehearsal, polishing, is how I think of storytelling), I drift. In this performance-as-research essay about disclosure, I want to draw attention to what does draw my attention in community art situations, what halts my drift, and allows me to find connection beyond a story that is unique and so special to this individual, but which I feel I have heard so many times. What grabs me, again and again, lies beyond the words, beyond the “I did this… and that… and they did this… and that,” beyond the story of hardship and injury, recovery and overcoming. My moment of connection tends to happen in the warmth of this hand in mine. It occurs in the material connection that seems to well up between these gray eyes and my own deep gaze. I can feel the skin change its electric tonus as I am listening to the uncoiling account. There’s a timbre in the voice that I follow, even as I lose the words. In the moment of verbal disclosure, physical intimacy changes the time and space of encounter. And I know that the people I sit with are well aware of this—it is not lost on them that my attention isn’t wholly focused on the story they are telling, that I will have forgotten core details when next we work together. But they are also aware, I believe, of those moments of energetic connect that happen through, beyond and underneath the narrative disclosure. There is a physical opening occurring here, right now, when I tell this account to you, when you sit by my side and I confess that I can’t always keep the stories of my current community participants straight, that I forget names all the time, that I do not really wish to put together a show with lots of testimony, that I’d rather have single power words floating in space.Figure 1. Image: Keira Heu-Jwyn Chang. Performer: Neil Marcus.”water burns sun”. Burning. 2009. Orientation towards the Frame: A Poetics of VibrationThis essay speaks about how I witness the uncapturable in performance, how the limits of sharing fuel my performance practice. I also look at the artistic processes of community performance projects, and point out traces of this other attention, this poetics of vibration. One of the frames through which I construct this essay is a focus on the formal in practice: on an attention to the shapes of narratives, and on the ways that formal experimentation can open up spaces beyond and beneath the narratives that can sound so familiar. An attention to the formal in community practice is often confused with an elitist drive towards quality, towards a modern or post-modern play with forms that stands somehow in opposition to how “ordinary people” construct their lives. But there are other ways to think about “the formal,” ways to question the naturalness with which stories are told, poems are written, the ease of an “I”, the separation between self and those others (who hurt, or love, or persecute, or free), the embedment of the experience of thought in institutions of thinking. Elizabeth St. Pierre frames her own struggle with burn-out, falling silent, and the need to just keep going even if the ethical issues involved in continuing her research overwhelm her. She charts out her thinking in reference to Michel Foucault’s comments on how to transgress into a realm of knowing that stretches a self, allows it “get free of oneself.”Getting free of oneself involves an attempt to understand the ‘structures of intelligibility’ (Britzman, 1995, p. 156) that limit thought. Foucault (1984/1985) explaining the urgency of such labor, says, ‘There are times in life when the question of knowing if one can think differently than one thinks, and perceive differently than one sees, is absolutely necessary if one is to go on looking and reflecting at all’ (p. 8). (St. Pierre 204)Can we think outside the structure of story, outside the habits of thought that make us sense and position ourselves in time and space, in power and knowledge? Is there a way to change the frame, into a different format, to “change our mind”? And even if there is not, if the structures of legibility always contain what we can think, there might be riches in that borderland, the bordercountry towards the intelligible, the places where difference presses close in an uncontained, unstoried way. To think differently, to get free of oneself: all these concerns resonate deeply with me, and with the ways that I wish to engage in community art practice. Like St. Pierre, I try to embrace Deleuzian, post-structuralist approaches to story and self:The collective assemblage is always like the murmur from which I take my proper name, the constellation of voices, concordant or not, from which I draw my voice. […] To write is perhaps to bring this assemblage of the unconscious to the light of day, to select the whispering voices, to gather the tribes and secret idioms from which I extract something I call myself (moi). I is an order word. (Deleuze and Guattari 84).“I” wish to perform and to write at the moment when the chorus of the voices that make up my “I” press against my skin, from the inside and the outside, query the notion of ‘skin’ as barrier. But can “I” stay in that vibrational moment? This essay will not be an exercise in quotation marks, but it is an essay of many I’s, and—imagine you see this essay performed—I invite the vibration of the hand gestures that mark small breaches in the air next to my head as I speak.Like St. Pierre, I get thrown off those particular theory horses again and again. But curiosity drives me on, and it is a curiosity nourished not by the absence of (language) connection, by isolation, but by the fullness of those movements of touch and density I described above. That materiality of the tearful eye gaze, the electricity of those fine skin hairs, the voice shivering me: these are not essentialist connections that somehow reveal or disclose a person to me, but these matters make the boundaries of “me” and “person” vibrate. Disclose here becomes the density of living itself, the flowing, non-essential process of shaping lives together. Deleuze and Guattari (1987) have called this bordering “deterritorialization,” always already bound to the reterritorialisation that allows the naming of the experience. Breath-touch on the limits of territories.This is not a shift from verbal to a privileging of non-verbal communication, finding richness and truth in one and less in the other. Non-verbal communication can be just as conventional as spoken language. When someone’s hand reaches out to touch someone who is upset, that gesture can feel ingrained and predictable, and the chain of caretaking that is initiated by the gesture can even hinder the flow of disclosure the crying or upset person might be engaged in. Likewise, I believe the common form of the circle, one I use in nearly every community session I lead, does not really create more community than another format would engender. The repetition of the circle just has something very comforting, it can allow all participants to drop into a certain kind of ease that is different from the everyday, but the rules of that ease are not open—circles territorialise as much as they de-territorialise: here is an inside, here an outside. There is nothing inherently radical in them. But circles might create a radical shift in communication situations when they break open other encrusted forms—an orientation to a leader, a group versus individual arrangement, or the singularity of islands out in space. Circles brings lots of multiples into contact, they “gather the tribes.” What provisional I’s we extract from them in each instance is our ethical challenge.Bodily Fantasies on the Limit: BurningEven deeply felt inner experiences do not escape the generic, and there is lift available in the vibration between the shared fantasy and the personal fantasy. I lead an artists’ collective, The Olimpias, and in 2008/2009, we created Burning, a workshop and performance series that investigated cell imagery, cancer imagery, environmental sensitivity and healing journeys through ritual-based happenings infused with poetry, dramatic scenes, Butoh and Contact Improvisation dances, and live drawing (see: http://www.olimpias.org/).Performance sites included the Subterranean Arthouse, Berkeley, July and October 2009, the Earth Matters on Stage Festival, Eugene, Oregon, May 2009, and Fort Worden, Port Townsend, Washington State, August 2009. Participants for each installation varied, but always included a good percentage of disabled artists.(see fig. 2).Figure 2. Image: Linda Townsend. Performers: Participants in the Burning project. “Burning Action on the Beach”. Burning. 2009. In the last part of these evening-long performance happenings, we use meditation techniques to shift the space and time of participants. We invite people to lie down or otherwise become comfortable (or to observe in quiet). I then begin to lead the part of the evening that most closely dovetails with my personal research exploration. With a slow and reaching voice, I ask people to breathe, to become aware of the movement of breath through their bodies, and of the hollows filled by the luxuriating breath. Once participants are deeply relaxed, I take them on journeys which activate bodily fantasies. I ask them to breathe in colored lights (and leave the specific nature of the colors to them). I invite participants to become cell bodies—heart cells, liver cells, skin cells—and to explore the properties and sensations of these cell environments, through both internal and external movement. “What is the surface, what is deep inside, what does the granular space of the cell feel like? How does the cell membrane move?” When deeply involved in these explorations, I move through the room and give people individual encounters by whispering to them, one by one—letting them respond bodily to the idea that their cell encounters alchemical elements like gold and silver, lead or mercury, or other deeply culturally laden substances like oil or blood. When I am finished with my individual instruction to each participant, all around me, people are moving gently, undulating, contracting and expanding, their eyes closed and their face full of concentration and openness. Some have dropped out of the meditation and are sitting quietly against a wall, observing what is going on around them. Some move more than others, some whisper quietly to themselves.When people are back in spoken-language-time, in sitting-upright-time, we all talk about the experiences, and about the cultural body knowledges, half-forgotten healing practices, that seem to emerge like Jungian archetypes in these movement journeys. During the meditative/slow movement sequence, some long-standing Olimpias performers in the room had imagined themselves as cancer cells, and gently moved with the physical imagery this brought to them. In my meditation invitations during the participatory performance, I do not invite community participants to move as cancer cells—it seems to me to require a more careful approach, a longer developmental period, to enter this darkly signified state, even though Olimpias performers do by no means all move tragically, darkly, or despairing when entering “cancer movement.” In workshops in the weeks leading up to the participatory performances, Olimpias collaborators entered these experiences of cell movement, different organ parts, and cancerous movement many times, and had time to debrief and reflect on their experiences.After the immersion exercise of cell movement, we ask people how it felt like to lie and move in a space that also held cancer cells, and if they noticed different movement patterns, different imaginaries of cell movement, around them, and how that felt. This leads to rich discussions, testimonies of poetic embodiment, snippets of disclosures, glimpses of personal stories, but the echo of embodiment seems to keep the full, long stories at bay, and outside of the immediacy of our sharing. As I look around myself while listening, I see some hands intertwined, some gentle touches, as people rock in the memory of their meditations.nowyour light shines very brightlybut I want youto knowyour darkness alsorichand beyond fear (Lorde 87)My research aim with these movement meditation sequences is not to find essential truths about human bodily imagination, but to explore the limits of somatic experience and cultural expression, to make artful life experiential and to hence create new tools for living in the chemically saturated world we all inhabit.I need to add here that these are my personal aims for Burning—all associated artists have their own journey, their own reasons for being involved, and there is no necessary consensus—just a shared interest in transformation, the cultural images of disease, disability and addiction, the effects of invasion and touch in our lives, and how embodied poetry can help us live. (see fig. 3). For example, a number of collaborators worked together in the participatory Burning performances at the Subterranean Arthouse, a small Butoh performance space in Berkeley, located in an old shop, complete with an open membrane into the urban space—a shop-window and glass door. Lots of things happen with and through us during these evenings, not just my movement meditations.One of my colleagues, Sadie Wilcox, sets up live drawing scenarios, sketching the space between people. Another artist, Harold Burns, engages participants in contact dance, and invites a crossing of boundaries in and through presence. Neil Marcus invites people to move with him, gently, and blindfolded, and to feel his spastic embodiment and his facility with tender touch. Amber diPietra’s poem about cell movement and the journeys from one to another sounds out in the space, set to music by Mindy Dillard. What I am writing about here is my personal account of the actions I engage in, one facet of these evenings—choreographing participants’ inner experiences.Figure 3. Image: Keira Heu-Jwyn Chang. Performers: Artists in the Burning project. “water burns sun”. Burning. 2009. My desires echo Lorde’s poem: “I want you”—there’s a sensual desire in me when I set up these movement meditation scenes, a delight in an erotic language and voice touch that is not predicated on sexual contact, but on intimacy, and on the borderlines, the membranes of the ear and the skin; ‘to know’—I continue to be intrigued and obsessed, as an artist and as a critic, by the way people envision what goes on inside them, and find agency, poetic lift, in mobilising these knowledges, in reaching from the images of bodies to the life of bodies in the world. ‘your darkness also’—not just the bright light, no, but also the fears and the strengths that hide in the blood and muscle, in the living pulsing shadow of the heart muscle pumping away, in the dark purple lobe of the liver wrapping itself around my middle and purifying, detoxifying, sifting, whatever sweeps through this body.These meditative slow practices can destabilise people. Some report that they experience something quite real, quite deep, and that there is transformation to be gained in these dream journeys. But the framing within which the Burning workshops take place question immediately the “authentic” of this experiential disclosure. The shared, the cultural, the heritage and hidden knowledge of being encultured quickly complicate any essence. This is where the element of formal enframing enters into the immediacy of experience, and into the narration of a stable, autonomous “I.” Our deepest cellular experience, the sounds and movements we listen to when we are deeply relaxed, are still cultured, are still shared, come to us in genres and stable image complexes.This form of presentation also questions practices of self-disclosure that participate in trauma narratives through what Canadian sociologist Erving Goffman has called “impression management” (208). Goffman researched the ways we play ourselves as roles in specific contexts, how we manage acts of disclosure and knowledge, how we deal with stigma and stereotype. Impression management refers to the ways people present themselves to others, using conscious or unconscious techniques to shape their image. In Goffman’s framing of these acts of self-presentation, performance and dramaturgical choices are foregrounded: impression management is an interactive, dynamic process. Disclosure becomes a semiotic act, not a “natural,” unfiltered display of an “authentic” self, but a complex engagement with choices. The naming and claiming of bodily trauma can be part of the repertoire of self-representation, a (stock-)narrative that enables recognition and hence communication. The full traumatic narrative arc (injury, reaction, overcoming) can here be a way to manage the discomfort of others, to navigate potential stigma.In Burning, by-passing verbal self-disclosure and the recitation of experience, by encountering ourselves in dialogue with our insides and with foreign elements in this experiential way, there is less space for people to speak managed, filtered personal truths. I find that these truths tend to either close down communication if raw and direct, or become told as a story in its complete, polished arc. Either form leaves little space for dialogue. After each journey through bodies, cells, through liver and heart, breath and membrane, audience members need to unfold for themselves what they felt, and how that felt, and how that relates to the stories of cancer, environmental toxins and invasion that they know.It is not fair. We should be able to have dialogues about “I am poisoned, I live with environmental sensitivities, and they constrict my life,” “I survived cancer,” “I have multiple sclerosis,” “I am autistic,” “I am addicted to certain substances,” “I am injured by certain substances.” But tragedy tugs at these stories, puts their narrators into the realm of the inviolate, as a community quickly feel sorry for these persons, or else feels attacked by them, in particular if one does not know how to help. Yes, we know this story: we can manage her identity for her, and his social role can click into fixity. The cultural weight of these narratives hinders flow, become heavily stigmatised. Many contemporary writers on the subjects of cancer and personhood recognise the (not always negative) aspects of this stigma, and mobilise them in their narratives. As Marisa Acocella Marchetto in the Cancer-Vixen: A True Story puts it: ‘Play the cancer card!’ (107). The cancer card appears in this graphic novel memoir in the form of a full-page spoof advertisement, and the card is presented as a way to get out of unwanted social obligations. The cancer card is perfectly designed to create the communal cringe and the hasty retreat. If you have cancer, you are beyond the pale, and ordinary rules of behavior do no longer apply. People who experience these life-changing transformational diagnoses often know very well how isolating it can be to name one’s personal story, and many are very careful about how they manage disclosure, and know that if they choose to disclose, they have to manage other people’s discomfort. In Burning, stories of injury and hurt swing in the room with us, all of these stories are mentioned in our performance program, but none of them are specifically given individual voice in our performance (although some participants chose to come out in the sharing circle at the end of the event). No one owns the diagnoses, the identity of “survivor,” and the presence of these disease complexes are instead dispersed, performatively enacted and brought in experiential contact with all members of our temporary group. When you leave our round, you most likely still do not know who has multiple sclerosis, who has substance addiction issues, who is sensitive to environmental toxins.Communication demands territorialisation, and formal experimentation alone, unanchored in lived experience, easily alienates. So how can disclosure and the storytelling self find some lift, and yet some connection, too? How can the Burning cell imaginary become both deep, emotionally rich and formal, pointing to its constructed nature? That’s the question that each of the Olimpias’ community performance experiments begins with.How to Host a Past Collective: Setting Up a CirclePreceding Burning, one of our recent performance investigations was the Anarcha Project. In this multi-year, multi-site project, we revisited gynecological experiments performed on slave women in Montgomery, Alabama, in the 1840s, by J. Marion Sims, the “father of American gynecology.” We did so not to revictimise historical women as suffering ciphers, or stand helpless at the site of historical injury. Instead, we used art-based methods to investigate the heritage of slavery medicine in contemporary health care inequalities and women’s health care. As part of the project, thousands of participants in multiple residencies across the U.S. shared their stories with the project leaders—myself, Aimee Meredith Cox, Carrie Sandahl, Anita Gonzalez and Tiye Giraud. We collected about two hundred of these fragments in the Anarcha Anti-Archive, a website that tries, frustratingly, to undo the logic of the ordered archive (Cox et al. n.p).The project closed in 2008, but I still give presentations with the material we generated. But what formal methods can I select, ethically and responsibly, to present the multivocal nature of the Anarcha Project, given that it is now just me in the conference room, given that the point of the project was the intersection of multiple stories, not the fetishisation of individual ones? In a number of recent presentations, I used a circle exercise to engage in fragmented, shrouded disclosure, to keep privacies safe, and to find material contact with one another. In these Anarcha rounds, we all take words into our mouths, and try to stay conscious to the nature of this act—taking something into our mouth, rather than acting out words, normalising them into spoken language. Take this into your mouth—transgression, sacrament, ritual, entrainment, from one body to another.So before an Anarcha presentation, I print out random pages from our Anarcha Anti-Archive. A number of the links in the website pull up material through chance procedures (a process implemented by Olimpias collaborator Jay Steichmann, who is interested in digital literacies). So whenever you click that particular link, you get to a different page in the anti-archive, and you can not retrace your step, or mark you place in an unfolding narrative. What comes up are poems, story fragments, images, all sent in in response to cyber Anarcha prompts. We sent these prompts during residencies to long-distance participants who could not physically be with us, and many people, from Wales to Malaysia, sent in responses. I pull up a good number of these pages, combined with some of the pages written by the core collaborators of our project. In the sharing that follows, I do not speak about the heart of the project, but I mark that I leave things unsaid. Here is what I do not say in the moment of the presentation—those medical experiments were gynecological operations without anesthesia, executed to close vaginal fistula that were leaking piss and shit, executed without anesthesia not because it was not available, but because the doctor did not believe that black women felt pain. I can write this down, here, in this essay, as you can now stop for a minute if you need to collect yourself, as you listen to what this narrative does to your inside. You might feel a clench deep down in your torso, like many of us did, a kinesthetic empathy that translates itself across text, time and space, and which became a core choreographic element in our Anarcha poetics.I do not speak about the medical facts directly in a face-to-face presentation where there is no place to hide, no place to turn away. Instead, I point to a secret at the heart of the Anarcha Project, and explain where all the medical and historical data can be found (in the Anarcha Project essay, “Remembering Anarcha,” in the on-line performance studies journal Liminalities site, free and accessible to all without subscription, now frequently used in bioethics education (see: http://www.liminalities.net/4-2). The people in the round, then, have only a vague sense of what the project is about, and I explain why this formal frame appears instead of open disclosure. I ask their permission to proceed. They either give it to me, or else our circle becomes something else, and we speak about performance practices and formal means of speaking about trauma instead.Having marked the space as one in which we agree on a specific framework or rule, having set up a space apart, we begin. One by one, raw and without preamble, people in the circle read what they have been given. The meaning of what they are reading only comes to them as they are reading—they have had little time to familiarise themselves with the words beforehand. Someone reads a poem about being held as a baby by one’s mother, being accepted, even through the writer’s body is so different. Someone reads about the persistence of shame. Someone reads about how incontinence is so often the borderline for independent living in contemporary cultures—up to here, freedom; past this point, at the point of leakage, the nursing home. Someone reads about her mother’s upset about digging up that awful past again. Someone reads about fibroid tumors in African-American women. Someone reads about the Venus Hottentott. Someone begins to cry (most recently at a Feminisms and Rhetorics conference), crying softly, and there is no knowing about why, but there is companionship, and quiet contemplation, and it is ok. These presentations start with low-key chatting, setting up the circle, and end the same way—once we have made our way around, once our fragments are read out, we just sit and talk, no “presentation-mode” emerges, and no one gets up into high drama. We’ve all taken strange things into our mouths, talked of piss and shit and blood and race and oppression and love and survival. Did we get free of ourselves, of the inevitability of narrative, in the attention to articulation, elocution, the performance of words, even if just for a moment? Did we taste the words on our tongues, material physical traces of a different form of embodiment? Container/ConclusionThe poet Anne Carson attended one of our Anarcha presentations, and her comments to us that evening helped to frame our subsequent work for me—she called our work creating a container, a vessel for experience, without sharing the specifics of that experience. I have since explored this image further, thought about amphorae as commemorative vases, thought of earth and clay as materials, thought of the illustrations on ancient vessels, on pattern and form, flow and movement. The vessel as matter: deterritorialising and reterritorialising, familiar and strange, shaping into form, and shaped out of formlessness, fired in the light and baked in the earth’s darkness, hardened only to crumble and crack again with the ages, returning to dust. These disclosures are in time and space—they are not narratives that create an archive or a body of knowledge. They breathe, and vibrate, and press against skin. What can be contained, what leaks, what finds its way through the membrane?These disclosures are traces of life, and I can touch them. I never get bored by them. Come and sit by my side, and we share in this river flow border vessel cell life.ReferencesBritzman, Deborah P. "Is There a Queer Pedagogy? Or, Stop Reading Straight." Educational Theory 45:2 (1995): 151–165. Burning. The Olimpias Project. Berkley; Eugene; Fort Worden. May-October, 2009Deleuze, Gilles, and Felix Guattari. A Thousand Plateaus: Capitalism and Schizophrenia. Trans. Brian Massumi. Minneapolis: University of Minnesota Press, 1987.Foucault, Michel. The History of Sexuality: Vol. 2. The Use of Pleasure. Trans. Robert Hurley. New York: Vintage, 1985.Goffman, Erving. Presentation of Self in Everyday Life. New York: Anchor, 1969Kuppers, Petra. “Remembering Anarcha: Objection in the Medical Archive.” Liminalities: A Journal of Performance Studies 4.2 (2006): n.p. 24 July 2009 < http://liminalities.net/4-2 >.Cox, Aimee Meredith, Tiye Giraud, Anita Gonzales, Petra Kuppers, and Carrie Sandahl. “The Anarcha-Anti-Archive.” Liminalities: A Journal of Performance Studies 4.2 (2006): n.p. 24 July 2009 < http://liminalities.net/4-2 >.Lorde, Audre. Sister Outsider: Essays and Speeches. Berkeley: The Crossing Press, 1984.Marchetto, Marisa Acocella. Cancer Vixen: A True Story. New York: Knopf, 2006.St. Pierre, Elizabeth Adams. “Circling the Text: Nomadic Writing Practices.” Qualitative Inquiry 3.4 (1997): 403–18.

It is not uncommon to find people with manual difficulties due to problems of motor coordination or some physical or neurological deficiency. This can hamper, among other things, the learning of writing digits and letters of the alphabet. In this article, we present a tool, developed in Python, to be used in tablets or phones with Android system. The tool can help users with some kind of hand handicap in the learning of letters or numbers writing, through their interaction with the electronic device. This system uses a CNN for recognizing the letters or digits and to give a feedback positive or negative for the user. Further, it can help users to learn about the corresponding image and sound, for each respective letter or digit. The mobile application is easy to use and has been tested in the learning of autistic children for 4 months. During training, the children demonstrated a good familiarity with the software and improved writing performance.