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1

Self-care: Embodiment, personal autonomy and the shaping of health consciousness. London: Routledge, 2004.

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2

Dixon, Stella R. Autonomy and dependence in residential care: An evaluation of a project to promote self determination in a home for older people. London: Age Concern England, 1991.

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3

1963-, Froehner Melissa Alberti, ed. Teen esteem: A self-direction manual for young adults. 3rd ed. Atascadero, Calif: Impact Publishers, 2009.

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4

Palmer, Pat. Teen esteem: A self-direction manual for young adults. 3rd ed. Atascadero, Calif: Impact Publishers, 2010.

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5

1963-, Froehner Melissa Alberti, ed. Teen esteem: A self-direction manual for young adults. San Luis Obispo, Calif: Impact Publishers, 1989.

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6

1963-, Froehner Melissa Alberti, ed. Teen esteem: A self-direction manual for young adults. 2nd ed. Atascadero, Calif: Impact Publishers, 2000.

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7

Barrett, J. Older and independent: Information, advice, equipment. Oxford: Disability Information Trust, 2001.

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8

Trust, Disability Information, ed. Older and independent: Information, advice, equipment. Oxford: Disability Information Trust, 2001.

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9

translator, You Yunxin, ed. Chao yi liu jing ying no "jian kang" ao mi: Chōichiryū no hito no kenkō no gokui. Taibei Shi: Chun tian chu ban guo ji wen hua you xian gong si, 2015.

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10

editor, Sentō Seishirō 1957, and Cai Lirong translator, eds. Dong dong kou no zi lü shen jing hui fu fa: Kuchi o pakupaku suruto chōkenkō ni naru. Xinbei Shi: Hui hong qi ye gu fen you xian gong si, 2016.

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11

Ziguras, Christopher. Self-Care: Embodiment, Personal Autonomy and the Shaping of Health Consciousness. Taylor & Francis Group, 2013.

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12

Ziguras, Christopher. Self-Care: Embodiment, Autonomy and the Shaping of Health Consciousness (Routledge Advances in Sociology, 10). Routledge, 2003.

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13

Monsen, Rita Black. AUTONOMY, COPING, AND SELF-CARE AGENCY IN HEALTHY ADOLESCENTS AND IN ADOLESCENTS WITH SPINA BIFIDA. 1988.

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14

Person-Centered Care for Mental Illness: The Evolution of Adherence and Self-Determination. American Psychological Association, 2015.

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15

Hertz, Judith Eileen Griffith. THE PERCEIVED ENACTMENT OF AUTONOMY SCALE: MEASURING THE POTENTIAL FOR SELF-CARE ACTION IN THE ELDERLY (ROLE-MODELING). 1991.

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16

Sullivan, Mark D. Escaping the Autonomy Versus Objectivity Trap by Repersonalizing the Clinical Problem. Oxford University Press, 2016. http://dx.doi.org/10.1093/med/9780195386585.003.0004.

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Respect for patient autonomy has been sought as the antidote to the depersonalization that ails modern medicine. It serves as a challenge to the dominance of impersonal disease diagnosis in treatment choice. We now repersonalize treatment at a late stage through the informed consent process. If we are to find another way to repersonalize health care, we need to understand the historical roots of the patient autonomy versus objective disease dynamic in which we are trapped. The same disengaged self that sees ethics in terms of autonomy also sees disease as an observable tissue lesion within the body at autopsy. Clinico-pathological correlation offers a gold standard for clinical diagnosis and a completely objective access to disease. This ability to diagnose objective disease is the source of physician paternalism. It can be countered by incorporating the patient’s view of the clinical problem back into the diagnostic process.
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17

Appelbaum, Kenneth L. Self-injurious behaviors. Oxford University Press, 2015. http://dx.doi.org/10.1093/med/9780199360574.003.0049.

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One of the most challenging management challenges in correctional settings is self-injurious behavior (SIB). Often, the motivations, demographics, and characteristics are distinct from SIB found in the community. In community samples, about 4% of adults report a history of SIB with no significant gender differences in rate. Despite its serious consequences in jails and prisons, reliable data on self-injury in those settings remains sparse. A survey of the 51 state and federal directors of correctional mental health services in the United States found that less than 2% of inmates per year self-injure. Although relatively few inmates engage in this behavior, they do so often enough that almost all systems that responded to the survey reported at least weekly incidents and over 70% of systems had episodes occurring several times per week to more than once per day. The most common psychiatric conditions associated with SIB include psychotic, personality, cognitive, and mood disorders. Environmental factors, which include behavioral triggers and responses, often play a key role in SIB, especially in jails and prisons. Self-injury can return a degree of control and autonomy to inmates who otherwise have limited means to affect their environment, cope with stress, or get what they want. Effective management of self-injurious behaviors in correctional settings almost always requires partnership and cooperation between health care and custody staff. This chapter reviews context and nosology, epidemiology and best practices for assessment, diagnosis, and intervention in jail and prison settings.
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18

Fleischman, Alan R. Ethical Issues in the Care of Adolescents. Oxford University Press, 2016. http://dx.doi.org/10.1093/med/9780199354474.003.0008.

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This chapter describes the dramatic physical and emotional changes that occur during adolescence. It examines the concept of evolving autonomy as young teens begin to develop the capacity to participate fully in decision-making for their care. Ethical issues concerning the relationship of an adolescent patient and his or her parents, including confidentiality and truth telling are discussed. The chapter focuses on empowering adolescents to take responsibility for their health and their healthcare. Ethical concerns for the adolescent with no family, the homosexual and transgender adolescent, and the adolescent with mental health, behavior problems, and eating disorders are all examined.The role and limits of patient confidentiality are discussed, particularly in terms of patient self-harm.
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19

Froehner, Melissa Alberti, and Pat Palmer. Teen Esteem: A Self-Direction Manual for Young Adults. Impact Publishers, 1992.

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20

Froehner, Melissa Alberti, and Pat Palmer. Teen Esteem: A Self-Direction Manual for Young Adults (Little Imp Books). 2nd ed. Impact Publishers, 2000.

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21

Ruck, Martin D. Children's understanding of nurturance and self-determination rights. 1994.

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22

O'Neil, Eileen Patricia Kinsella. SELF-PERCEPTION OF ORGANIZATIONAL STRUCTURE, PROFESSIONAL AUTONOMY, AND JOB SATISFACTION OF FIRST-LINE NURSING MANAGERS. 1991.

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23

Carper, Diane C. A STUDY OF HOW GREATER AUTONOMY/CONTROL WITHIN A HOSPICE NURSE'S POSITION IS RELATED TO INCREASED SELF-EFFICACY AND JOB SATISFACTION WHICH CAN INCREASE ORGANIZATIONAL RETENTION (AUTONOMY, NURSING). 1996.

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24

Zamir, Tzachi. Fourth Crossroad. Oxford University Press, 2017. http://dx.doi.org/10.1093/oso/9780190695088.003.0010.

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The spiritual mistake of attempting self-authorship is exposed. Without the needs of a dependent, created entity, gratitude—the unique love that such an entity can experience and that God cannot—will not be possible. A contrast is drawn between philosophy’s attraction to ideals such as self-authorship or autonomy, and the acceptance of human neediness encouraged by the poem. Not all philosophers champion self-sufficiency, and enable the embracing of human vulnerability to become an objective (care ethics is mentioned in this context). Nevertheless, these attempts to formulate a positive outlook on human neediness still differ from the poem’s. Once again, while a philosopher will argue for some immanent value that accepting needs creates, a religious justification of the same neediness will appeal to the manner whereby such acceptance bonds the believer further to God.
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25

Sullivan, Mark D. Advancing from Activated Patient to Autonomous Patient. Oxford University Press, 2016. http://dx.doi.org/10.1093/med/9780195386585.003.0008.

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Patient action in chronic disease care may not be best understood as “behavior.” Healthy patients do not just emit healthy behaviors but act as agents in their own lives. Bandura revolutionized health psychology through his “agentic” approach that emphasized patient confidence or self-efficacy. Now, the personal importance of behavior change is elicited using techniques like motivational interviewing. These and other approaches that include personal goals and identity shift our focus from behavior to action. Health action includes not just management of a disease separate from the self, but self-transformation. Achieving lasting change in health actions requires attention to the autonomous quality of patient motivation. Self-determination theory offers a useful theory of intrinsic motivation and an understanding of the process of internalization of motivation. This helps us understand the promise of shared decision-making and its difference from informed consent. Ultimately, patient empowerment must be understood as fostering patient autonomy.
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26

Szmukler, George. Challenges to the orthodoxy. Oxford University Press, 2017. http://dx.doi.org/10.1093/med/9780198801047.003.0004.

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Two comparatively recent developments in health care ethics and policy further challenge the conventional bases for involuntary treatment in mental health care. First has been the shift in general medicine over the past 50 years from ‘paternalism’ and large medical discretion to patient ‘autonomy’. Interventions require ‘informed consent’; treatment without a patient’s consent can only occur if the person lacks ‘decision-making capacity’ and the treatment is judged to be in the person’s ‘best interests’. The treatment decision of a general medical patient who has decisional capacity is respected even if it appears to be unwise. This shift to respect for patient self-determination has been largely ignored in psychiatry. The second policy development is the extension in mental health care of involuntary treatment into the community, greatly increasing the scope for the exercise of compulsion. What constitutes an appropriate level of risk to justify compulsion in the community is unclear.
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27

Woodward, Sue, and Catheryne Waterhouse, eds. Oxford Handbook of Neuroscience Nursing. 2nd ed. Oxford University Press, 2020. http://dx.doi.org/10.1093/med/9780198831570.001.0001.

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The field of neuroscience nursing practice relates to a wide range of neurological disorders, many of which are progressive, deteriorating, life-changing, and life-limiting conditions affecting not only the patient but their families and carers. At the same time, the care of the patient following acute-onset injury and trauma presents different challenges in terms of support in critical care and ongoing rehabilitation. Brain damage and injury, irrespective of the causative factors, invariably can have a devastating effect on an individual’s physical, psychological, and cognitive functioning impairing their ability for self-autonomy and independence. The Oxford Handbook of Neuroscience Nursing begins to equip the practitioner with a basic knowledge of the complex needs and specialist management of this group of patients. It gives some insight into the patient’s perspective of living with a neurological condition and presents the best available evidence to inform practice and nursing care.
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28

Meuser, Thomas M., and David B. Carr. Assessment and Counseling of Older Drivers. Oxford University Press, 2017. http://dx.doi.org/10.1093/med/9780199374656.003.0013.

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Driving a motor vehicle is an important instrumental activity of daily living and thus a target for health-related assessment and assistance. Most older drivers self-regulate in response to changes in medical and functional status. A minority may not recognize the impact of such changes on driving (e.g., in dementia) and so may continue driving when no longer safe to do so, despite warning signs. When evaluating driver fitness, clinicians must weigh individual rights of autonomy and choice against objective findings of deficits and broader safety considerations. Driver evaluation requires a sensitive, individualized approach that also takes daily-life mobility into account. This chapter discusses driver fitness evaluation in the context of patient-centered care and resources to support patients in the transition in mobility from driving to not driving.
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29

Baker, Eileen F., ed. Legal and Ethical Issues in Emergency Medicine. Oxford University Press, 2020. http://dx.doi.org/10.1093/med/9780190066420.001.0001.

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Part of the “What Do I Do Now?: Emergency Medicine” series, Legal and Ethical Issues in Emergency Medicine uses a case-based approach to cover common and important topics in the legal and ethical dilemmas that surface in the practice of emergency medicine. Each unique case draws upon the four well-established principles of bioethics: beneficence, non-maleficence, respect for autonomy, and justice. Other ethical principles, such as honesty and personal integrity, are also addressed. Chapters are rounded out by key points to remember and selected references for further reading. Legal and Ethical Issues in Emergency Medicine addresses a wide range of topics including HIPPA and confidentiality, advance directives, suicidal patients, refusal of care, expert witness testimony, and more. This book is an engaging collection of thought-provoking cases which clinicians can utilize when they encounter difficult situations in the emergency department. The volume is also a self-assessment tool that tests the reader’s ability to answer the question, “What do I do now?”
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30

Zavella, Patricia. The Movement for Reproductive Justice. NYU Press, 2020. http://dx.doi.org/10.18574/nyu/9781479829200.001.0001.

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Working on behalf of women of color, the movement for reproductive justice incorporates intersectionality and human rights to advocate for women’s right to bear children free from coercion or abuse, terminate their pregnancies without obstacles or judgment, and raise their children in healthy environments as well as the right to bodily autonomy and gender self-identification. The movement for reproductive justice takes health advocacy further by pushing for women’s human right to access health care with dignity and to express their full selves, including their spiritual beliefs, as well as policies that address social inequalities and lead to greater wellness in communities of color. The evidence is drawn from ethnographic research with thirteen organizations located throughout the United States. The overall argument is that the organizations discussed here provide a compelling model for negotiating across differences within constituencies. This movement has built a repertoire of “ready-to-work skills” or methodology that includes cross-sector coalition building, storytelling in safer spaces, and strengths-based messaging. In the ongoing political clashes in which the war on women’s reproductive rights and targeting of immigrants seem particularly egregious and there are widespread questions about whether “the resistance” can maintain its cohesion, the movement for reproductive justice offers a model for multiscalar politics in opposition to conservative agendas and the disparagement of specific social categories. Using grassroots organizing, culture shift work, and policy advocacy, this movement also offers visions of the strength, resiliency, and dignity of people of color.
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