Journal articles on the topic 'Benevolent Organisation for Development, Health, and Insight'

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1

Neagu, Olimpia, Vasile Lazar, Mircea Teodoru, and Simona Macarie. "Human Capital Quality and Development: An Employers' and Employees' Comparative Insight." Studia Universitatis „Vasile Goldis” Arad – Economics Series 26, no. 3 (2016): 62–73. http://dx.doi.org/10.1515/sues-2016-0015.

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Abstract The aim of the paper is to compare the employers' and employees' insights on human capital quality defining and human capital development at organisational level, based on a survey carried out in the county of Satu Mare, Romania. Our findings show that as human capital buyers, employers understand by human capital quality professional background and skills, professional behaviour and efficiency and productivity for the organisation. As human capital sellers, for employees human capital quality means health and the ability to learn and to be suitable to the job requirements. Regarding the opportunities to develop the organisational human capital, the views of employers and employees are very different when the level of discussion is international (macro-level). Employees consider that the international environment has a greater impact on human capital development in their organisation as the employers.
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Watkins, Scott Christopher, Christine Hammerschmidt, Geoffrey M. Gray, Angela Green, Anna Varughese, and Luis Ahumada. "How do we measure organisational wellness? Development of a comprehensive patient-centred and employee-centred visual analytical solution." BMJ Open Quality 11, no. 4 (2022): e002081. http://dx.doi.org/10.1136/bmjoq-2022-002081.

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BackgroundDashboards are visual information systems frequently employed by healthcare organisations to track key quality improvement and patient safety performance metrics. The typical healthcare dashboard focuses on specific metrics, disease processes or units within a larger healthcare organisation. Here, we describe the development of a visual analytical solution (keystone dashboard) for monitoring an entire healthcare organisation.MethodsThe improvement team reviewed and assessed various data sources across the organisation and selected a group of patient and employee related metrics that afforded a broad overview of the organisation’s well-being. Metrics spanned the organisation and included data from patient safety, quality improvement, human resources, risk management and medical staff affairs. Each metric was assigned a numeric weight that correlated with its impact. A visual model incorporating the various data fields was then constructed.ResultsThe keystone dashboard incorporates a data heatmap and density visualisation to emphasis areas of higher density and/or weighted values. The heatmap is used to indicate the weight/magnitude of each metric within a data range in two dimensions: location and time. The visualisation ‘heats up’ depending on the combination of counts events and their assigned impact for the reporting month. Most data sources update in near real time.SummaryThe keystone dashboard serves as a comprehensive and collaborative integration of data from patient safety, quality improvement, human resources, risk management and medical staff affairs. This visual analytical solution incorporates and analyses metrics into a single view with the intent of providing valuable insight into the health of an entire organisation. This dashboard is unique as it provides a broad overview of a healthcare organisation by incorporating key metrics that span the organisation.
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Lee, Albert, Lawrence St Leger, and Alysoun Moon. "Evaluating health promotion in schools: a case study of design, implementation and results from the Hong Kong Healthy Schools Award Scheme." Promotion & Education 12, no. 3-4 (2005): 123–30. http://dx.doi.org/10.1177/10253823050120030105.

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Health promoting schools (HPS) and Healthy Schools Award Schemes from a number of countries have demonstrated positive changes in children's health behaviours and the culture and organisation of the school. The Hong Kong Healthy Schools Award Scheme (HKHSA) aims to promote staff development, parental education, involvement of the whole school community, and linkage with different stakeholders to improve the health and well-being of the pupils, parents and staff, and the broader community, supported by a system to monitor the achievement. This concept is very much in line with the research literature on school effectiveness and improvement. The indicators examined to evaluate the success of the HKHSA reflect outcomes related to both health and education and are not limited to changes in population health status. The early results demonstrated significant improvements in various aspects of student health and also improvement in school culture and organisation. The evaluation framework described in this paper and data collected to assess how schools perform in the HKHSA scheme, provides insight into how HPSs could lead to better outcomes for both education and health.
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Kisa, Adnan. "Analysis of the pharmaceuticals market and its technological development in Turkey." International Journal of Technology Assessment in Health Care 22, no. 4 (2006): 537–42. http://dx.doi.org/10.1017/s026646230605149x.

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Objectives: The objectives of this study were to analyze the current structure of the Turkish pharmaceuticals market to explain the latest developments and to offer some insight into the likely policy issues that this sector will face.Methods: Systematic searches of the relevant Turkish and English research literature were made, using electronic databases in addition to written reports.Results: The pharmaceutical industry in Turkey currently has eighty-seven manufacturing firms, eleven raw material manufacturers and thirty-eight importing firms. These add up to a total of 136 firms, 35 of which are driven by foreign capital, with 8 of these foreign-run firms having their own plants in Turkey. The industry employs approximately 19,000 personnel. In terms of growth, the value of pharmaceutical products in Turkey recently has exceeded that in Europe. In addition, per capita drug consumption levels are quite low compared with the Organisation for Economic Co-operation and Development and European Union countries. Major international players in the medical equipment and pharmaceutical products sector have also been opening offices in Turkey to reap the benefits of this rapidly evolving market.Conclusions: The pharmaceutical industry in Turkey is quite advanced and diverse, with high quality, generic pharmaceutical products being manufactured as well as poor quality copies that have not been appropriately tested in terms of bioequivalence and bioavailability. The country faces a low level of drug consumption due to economic and cultural constraints compared with Western countries. Governmental control and regulations are key issues because the majority of drug purchases (70–80 percent) throughout the country are currently reimbursable through public sector agencies such as the Pension Fund and the Social Insurance Organization.
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Gradidge, Philippe Jean-Luc, Daleen Casteleijn, António Palmeira, Ralph Maddison, and Catherine E. Draper. "Employee perceptions of non-communicable diseases health risks, absenteeism and the role of organisational support in a South African pharmaceutical manufacturing company." PLOS ONE 17, no. 12 (2022): e0279008. http://dx.doi.org/10.1371/journal.pone.0279008.

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Background The growing prevalence of non-communicable diseases (NCDs) in South African workers has been shown to be associated with absenteeism and increased risk of morbidity. Low-income workers living in urban settings are particularly vulnerable. Consultation with workers is crucial for understanding risks and identifying opportunities for intervention to promote health in the workplace. The purpose of this study was to examine South African pharmaceutical manufacturing workers’ perspectives of health risk factors and absenteeism, and to identify how they perceived a role for the organisation to initiate interventions to improve their health. Materials and methods Five focus groups were conducted to capture 27 employees’ perspectives. The semi-structured focus group discussions were recorded and analysed using a thematic content analysis approach. Results Participants indicated that they were aware of behavioural health risks such as prolonged sitting. They showed insight into strategies to prevent injuries and stay healthy, but also expressed dissatisfaction about the lack of organisational support, leading to stress and consequently absenteeism. Participants emphasized the responsibility of the organisation to support a range of health promoting strategies Conclusions The findings of this study are important for cultivating a tailored workplace intervention to reduce NCD risk factors in the pharmaceutical manufacturing workforce. It is vital that these be supported by leadership of the company through the provision of funding and the development of internal healthcare services.
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BURR, VIV, and HELEN COLLEY. "‘I just felt as though I had to drop something’: the implications of care for female working elder carers’ working lives." Ageing and Society 39, no. 5 (2017): 877–98. http://dx.doi.org/10.1017/s0144686x17001179.

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AbstractThis paper explores the challenges that female elder carers in the United Kingdom face in combining paid work with elder care, and the implications of this care for their current and future working lives. In-depth interviews with 11 working women from a large organisation were conducted, and five of the women were re-interviewed after a period of one year to examine any changes in their situation. The interviews revealed the precarious nature of their daily schedules, which required constant effort to maintain, the intrusion of elder care into their working lives, and the impact it had upon their career development and future aspirations. The findings provide insight into the reasons why carers, especially women, are more likely to reduce their working hours, do not take advantage of training opportunities and retire early. The findings are discussed in relation to the expectation of an extended working age and gender equality.
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Boyd, Amanda D., Chris M. Furgal, Alyssa M. Mayeda, Cindy G. Jardine, and S. Michelle Driedger. "Exploring the role of trust in health risk communication in Nunavik, Canada." Polar Record 55, no. 4 (2019): 235–40. http://dx.doi.org/10.1017/s003224741900010x.

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AbstractCommunicating about health risks in the Arctic can be challenging. Numerous factors can hinder or promote effective communication. One of the most important components in effective communication is trust in an information source. This is particularly true when a risk is unfamiliar or complex because the public must rely on expert assessment rather than personal evaluation of the risk. A total of 112 Inuit residents from Nunavik, Canada, were interviewed to better understand the factors that influence trust in individuals or organisations. Results indicate that there are six primary factors that influence trust in an information source. These factors include: (1) whether the information source is a friend or family member; (2) past performance of the individual or organisation; (3) the general disposition of the audience member (that is, he or she believes that most people are trustworthy); (4) the openness or candidness of the source; (5) value similarity (referring to the perceived correspondence in values between the audience member and communicator); and (6) the credibility of the source. The results of this study can help determine who or what agencies should provide messages about health risks in the Arctic. It also provides insight about effective strategies for engendering trust among Arctic residents.
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Bongers, Ilja L., David C. Buitenweg, Romy E. F. M. van Kuijk, and Chijs van Nieuwenhuizen. "I Need to Know: Using the CeHRes Roadmap to Develop a Treatment Feedback Tool for Youngsters with Mental Health Problems." International Journal of Environmental Research and Public Health 19, no. 17 (2022): 10834. http://dx.doi.org/10.3390/ijerph191710834.

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Patient-Reported Outcome Measures (PROMs) are often used to monitor treatment outcomes in youth mental health care. Unfortunately, youngsters are rarely informed about the results of their PROMs or, when they are, it is in an insufficient manner. Therefore, a web application was developed—together with youngsters—aimed at giving them feedback about their PROMs. The aim of this study is to describe the development process of the application. An expert panel consisting of youngsters, web designers and researchers, as well as a representative from a client organisation, developed the e-health application INK (short for ‘I Need to Know’) in an iterative process based on the Centre for eHealth Research roadmap (CeHRes roadmap). Youngsters prefer, among other aspects, a simple, easy-to-use e-health application with a colourful appearance and want to be able to compare their results across different time points and informants. The INK tool provides youngsters with insight into their PROM results. Based on the youngsters’ preferences, INK users can choose which feedback information is visible. INK facilitates youngsters’ active participation in their treatment as well as shared decision-making with their professional caregivers.
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Allain-Dupré, Dorothée. "The multi-level governance imperative." British Journal of Politics and International Relations 22, no. 4 (2020): 800–808. http://dx.doi.org/10.1177/1369148120937984.

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Governments are facing increasingly complex policy challenges, ranging from climate change, demographic pressures, rising inequalities and discontent, to the global health crisis that countries are presently confronting. Successful responses require more integrated approaches to policy making at all levels of government, so that economic, social and environmental actions reinforce each other rather than compete. They also require effective coordination across levels of government to manage shared responsibilities, mutual dependence and common challenges. This commentary highlights the progress in the multi-level governance concept since its first use, and focuses on some current dynamics driving multi-level governance, in particular the trend towards differentiated subnational governance. It then highlights that the way multi-level governance systems are designed has a direct impact on policy outcomes, hence the imperative to strengthen multi-level governance systems. The commentary offers insight into how the Organisation for Economic Co-operation and Development is tacking this imperative to best support countries in their development processes.
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Case, Stephen. "Strategic complexities and opportunities in Welsh youth justice: exploring YJB Cymru." Safer Communities 13, no. 3 (2014): 109–19. http://dx.doi.org/10.1108/sc-05-2014-0007.

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Purpose – The paper presents and discusses the findings of a Strategic Insight Programme placement that explored the Youth Justice Board for Wales (YJB Cymru), a division of the YJB for England and Wales since the abolition of the regional structure in April 2012. The focus of the placement was on exploring the role of YJB Cymru in the development of youth justice policy and practice in the unique, partially devolved context of Wales. The paper aims to discuss these issues. Design/methodology/approach – The research was conducted over a six-month period from February to July 2013. A multiple methods design was adopted, consisting of semi-structured interviews with key stakeholders (YJB Cymru staff, Welsh Government staff and Youth Offending Team staff), observations of policy and practice mechanisms (YJB Cymru meetings, YOT projects) and documentary analysis of YJB Cymru publications. Findings – Thematic analyses demonstrated that YJB Cymru has an increasingly important role in policy and practice development structures and processes in England and Wales more broadly (e.g. within the YJB for England and Wales) and in the Welsh national context specifically. YJB Cymru fulfills a role of dual influence – working both with government (UK and Welsh) and youth justice practitioners (mainly YOT managers and staff) to mediate and manage youth justice tensions in the partially devolved Welsh policy context through relationships of reflective and critical engagement. Originality/value – This study draws inspiration from the groundbreaking research of Souhami (2011) and builds on those findings to provide a unique insight into the organisation and role YJB Cymru in the complex and dynamic context of youth justice in Wales.
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Wang, Weihao, Jian Xiao, Wenye Li, and Jijun Yao. "How School Climate Affects the Development of the Social and Emotional Skills of Underprivileged-Background Students—An Empirical Study Based on the SSES2019 Data." Children 9, no. 12 (2022): 1812. http://dx.doi.org/10.3390/children9121812.

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Background: Promoting the development of the social and emotional skills of underprivileged-background students is an integral part of educational and social equity. To date, there has been a lack of relevant research in this field. Aims: This study investigated the impacts of cooperative school climate and competitive school climate on the development of the social and emotional skills of underprivileged-background students. Sample: This study used the data of Chinese underprivileged-background students (N = 1739) from the Study on Social and Emotional Skills conducted by the Organisation for Economic Cooperation and Development (OECD-SSES2019). Methods: This study selected the ordinary least squares (OLS) analysis method and the quantile regression (QR) analysis method. Results: The ordinary least squares (OLS) analysis results showed that cooperative school climates promoted the development of various dimensions of the social and emotional skills of underprivileged-background students, while competitive school climates had significant negative impacts on the collaboration and emotional regulation of underprivileged-background students and had no significant impact on the other three major domains, namely engagement with others, open-mindedness, and task performance. A quantile regression analysis further explored the heterogeneity in the impacts of cooperative school climate and competitive school climate on the development of the social and emotional skills of underprivileged-background students through quantile regression and found that the impacts of a competitive school climate on underprivileged-background students with different levels of social and emotional skills were homogeneous, while the impacts of a competitive school climate on underprivileged-background students with different levels of social and emotional skills were heterogeneous. Conclusions: These findings provide a greater insight into the roles of school cooperative climate and school competitive climate in the development process of the social and emotional skills of underprivileged-background students.
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Ojo, Lekan Damilola, Onaopepo Adeniyi, Olajide Emmanuel Ogundimu, and Olasunkanmi Ososanmi Alaba. "Rethinking Green Supply Chain Management Practices Impact on Company Performance: A Close-Up Insight." Sustainability 14, no. 20 (2022): 13197. http://dx.doi.org/10.3390/su142013197.

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Manufacturing organisations have contributed to a poor living environment via unsustainable practices in the production process and the entire service delivery operation. More importantly, the health performance of manufacturing employees may also be affected by unsustainable production practices in the industry. Therefore, the green supply chain management (GSCM) practice has become a topical issue in recent decades due to its significant impact on the ecosystem at large. Via green practices, various performances have been achieved in organisations; meanwhile, the relationships between the practices and performance metrics in most developing countries are unclear, although there have been supposed general submissions. In addition, the study of relationships in a leading business conglomerate in developing nations is rare. Therefore, this paper investigated relationships between GSCM practices and performance metrics in a leading manufacturing organisation in Africa by using a close-up study approach with data collected from 154 respondents. The data were analysed using multiple methods such as factor analysis to consolidate the measured variables; correlation, multiple regression analysis with stepwise estimation, and structural equation modelling (SEM) were used to examine the relationships between GSCM practices and performance. The results of these analyses revealed that environmental performance is significantly predicted by the measure of the organisation’s commitment to GSCM vision, while financial performance is significantly impacted by eco-centric consumption and education. This study concludes that inhouse-drafted strategies based on the insight from the study will facilitate the optimisation of GSCM practices.
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Day-Duro, Emma, Guy Lubitsh, and Gillian Smith. "Understanding and investing in healthcare innovation and collaboration." Journal of Health Organization and Management 34, no. 4 (2020): 469–87. http://dx.doi.org/10.1108/jhom-07-2019-0206.

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PurposeTo understand the partnership between clinicians and academics who come together to provide high-quality care alongside research and innovation, identifying challenges and productive conditions for innovation and collaboration across multi-disciplinary teams.Design/methodology/approachAn explorative action research methodology was adopted. Semi-structured interviews were conducted with 15 clinical, academic and executive leads at a large metropolitan tertiary care hospital with an academic health services portfolio in the UK.FindingsClinical leaders recognise the division of limited resource, restrictive employment contracts and the divergent priorities of each organisation as challenges hindering the collaborative process and derailing innovation. Developing a culture of respect, valuing and investing in individuals and allowing time and space for interaction help facilitate successful innovation and collaboration. Successfully leading collaborative innovation requires a combination of kindness, conviction and empowerment, alongside the articulation of a vision and accountability.Research limitations/implicationsAction research continues at this site, and further enquiry into the experiences, challenges and solutions of non-leaders when collaborating and innovating will be captured to present views across the organisation.Practical implicationsClinical and academic collaboration and innovation are essential to the continued success of healthcare. To ensure hospitals can continue to facilitate this in increasingly challenging circumstances, they must ensure longevity and stability of teams, devote time and resource to research and innovation, nurture interpersonal skills and develop kind and empowering leaders.Originality/valueThis work uniquely focuses on a real-time collaborative and innovative development. By employing action research while this development was happening, we were able to access the real time views of those at the centre of that collaboration. We offer insight into the challenges and effective solutions that consultant-level clinical leaders encounter when attempting to innovate and collaborate in practice.
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Behrouzi, Farshad, Awaluddin Mohamed Shaharoun, and Azanizawati Ma'aram. "Applications of the balanced scorecard for strategic management and performance measurement in the health sector." Australian Health Review 38, no. 2 (2014): 208. http://dx.doi.org/10.1071/ah13170.

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In order to attain a useful balanced scorecard (BSC), appropriate performance perspectives and indicators are crucial to reflect all strategies of the organisation. The objectives of this survey were to give an insight regarding the situation of the BSC in the health sector over the past decade, and to afford a generic approach of the BSC development for health settings with specific focus on performance perspectives, performance indicators and BSC generation. After an extensive search based on publication date and research content, 29 articles published since 2002 were identified, categorised and analysed. Four critical attributes of each article were analysed, including BSC generation, performance perspectives, performance indicators and auxiliary tools. The results showed that ‘internal business process’ was the most notable BSC perspective as it was included in all reviewed articles. After investigating the literature, it was concluded that its comprehensiveness is the reason for the importance and high usage of this perspective. The findings showed that 12 cases out of 29 reviewed articles (41%) exceeded the maximum number of key performance indicators (KPI) suggested in a previous study. It was found that all 12 cases were large organisations with numerous departments (e.g. national health organisations). Such organisations require numerous KPI to cover all of their strategic objectives. It was recommended to utilise the cascaded BSC within such organisations to avoid complexity and difficulty in gathering, analysing and interpreting performance data. Meanwhile it requires more medical staff to contribute in BSC development, which will result in greater reliability of the BSC. What is known about the topic? Although there was initially a low perception of the BSC within the health sector, over the past decade interest in BSC utilisation has been growing among health service providers around the world in both developed and developing countries. Some papers have described the development or diffusion of the BSC in health settings. Some examples of BSC utilisation for private and public hospitals have been presented in the literature. However, the necessity of a comprehensive review of published articles in the health area is crucial in order to derive the most appropriate way to design and implement the BSC in the health sector in terms of perspectives and KPI. What does this paper add? This paper has analysed articles on the BSC in the health sector published over the last 10 years. The analysis is based on the following items: BSC generations; BSC perspectives; BSC indicators; auxiliary tools. This paper gives an insight into the situation of the BSC in the health sector over the past decade and affords a generic approach of BSC development for health settings in terms of the four items above. What are the implications for practitioners? This paper can be beneficial for managers and decision makers of all healthcare organisations. It can help them to change their thinking about performance assessment and to have a structural BSC approach for performance measurement and strategic management in healthcare. It presents an insight on designing BSC to help managers adopt appropriate performance perspectives and KPI. In addition, it introduces the cascaded BSC, which is useful for large health settings with too many KPI. It also presents all BSC generations to help healthcare managers utilise proper BSC based on their own requirements and strategic objectives.
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Haycock, David, Jon Jones, and Andy Smith. "Developing young people’s mental health awareness through education and sport: Insights from the Tackling the Blues programme." European Physical Education Review 26, no. 3 (2020): 664–81. http://dx.doi.org/10.1177/1356336x20942264.

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There is growing national and international concern about the mental health of children and young people, and in countries such as England there is now a political and policy commitment to developing whole-school approaches to mental health. This paper presents new evidence on how pupils’ mental health is being addressed in schools using learning activities associated with physical education, sport and physical activity, as part of a school-based sport- and mental health-themed programme (‘Tackling the Blues’) for pupils aged 6–16 years old in north-west England. In particular, we examine how pupil-centred learning activities have been used in weekly multi-sport activity sessions and related classroom-based workshops, and draw upon insight from 29 focus groups to explore pupils’ ( n = 116) mental health awareness and associated socio-emotional learning (SEL). The learning activities led pupils to focus on the impact personal relationships with family and friends, feelings and emotions, and experiences of stress, anger and entrapment can have on mental health. It is argued that embedding socially relevant learning activities into the content, organisation and delivery of school curricula may help improve pupils’ sense of enjoyment, participation and achievement which are important for enhancing their knowledge and awareness of mental health, and developing SEL. However, we conclude that the effectiveness of whole-school approaches also depends, perhaps to a greater degree, on the wider educational systems in which schools are located and especially the widening social, economic and health inequalities which have profound impacts on child development, educational and other outcomes, and mental health.
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Takács, Bence, and Gergő Merész. "PP135 Setting The Scope For Assessing e-Health Technologies In Hungary." International Journal of Technology Assessment in Health Care 35, S1 (2019): 63. http://dx.doi.org/10.1017/s0266462319002514.

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IntroductionE-health and m-health are emerging health technology fields that could possibly give a new scope to health technology assessment (HTA). The Division for Health Technology Assessment (DfHTA) is currently assessing medicines and non-drug technologies (medical devices intended for patient use or for use in hospitals). The experience assessing medical devices for use in hospitals yielded difficulties which could also arise from the critical appraisal of e-health or m-health technologies. The objective of this study was to explore the foundations for HTA guidance on e-health or m-health technologies.MethodsA targeted literature review was conducted to map the current status of technology assessment practices for e-health and m-health technologies and to assess its concordance with current reimbursement processes in countries belonging to the Organisation for Economic Co-operation and Development. Experiences from past evaluations of other medical devices that could not be evaluated under the current guidance guided the literature search. The findings of this research were used to create a recommendation to amend the current Hungarian Guideline for Health Economic Analyses.ResultsThe resulting articles of the targeted literature review provided an insight into current practices on of assessing e-health and m-health products, particularly with respect to the domains of safety, quality, and impact. Recommendations suggested including a list of requirements for companies to submit for critical evaluations of e-health and m-health technologies, in support of a self-assessment approach.ConclusionsAs for other HTA bodies, there is an urgent need for the DfHTA to increase its capacity to assess digital health technologies for entry into the healthcare system, with a focus on the relevant clinical domains. The reimbursement process for these technologies remains a challenge for public funding bodies.
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Wilkinson, Andrew, and Pavan Srireddy. "Patient Initiated Follow-Up (PIFU) Within Adult Secondary Care Mental Health Services." BJPsych Open 8, S1 (2022): S124—S125. http://dx.doi.org/10.1192/bjo.2022.368.

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AimsThe traditional ‘one size fits all’ model within secondary care mental health (MH) settings of regular appointments scheduled by a clinician at defined intervals isn't always responsive to an individual's changing needs. Previous reviews have shown significant levels of patient and clinician satisfaction with Patient initiated models of review in a variety of healthcare settings but its use within secondary care MH settings has been relatively limited. We describe the development and implementation of a Patient initiated follow-up (PIFU) pathway within MH services in NHS Greater Glasgow and Clyde (GG&C).MethodsThe pathway was developed by a small working group of clinicians with input from local management and eHealth colleagues with an emphasis on the principles of Realistic Medicine. There was input from peer support workers and the Mental Health network, a local service user organisation, into the development of the pathway. The pathway underwent a ‘test of implementation’ within three adult CMHT's with support from the development group. Feedback from the test sites was used to modify the pathway and ultimately support the wider rollout of the model across all seventeen CMHTs within NHS GG&C over the course of 2021. Formal evaluation of the pathway, including patient and clinician satisfaction, service utilisation as well as safety measures, is due to be undertaken at 12 months after full implementation.ResultsThe tests of implementation identified a range of factors that needed to be considered as part of the introduction of a PIFU model into MH settings.Patient choice and shared decision making along with other clinical factors such as level of insight, availability of other supports, shared risk assessments and current clinical need were identified as relevant patient related factors. Clinician related factors included concerns about applicability within MH settings, perception of risk, increase in workload and appropriate identification of suitable patients. Regular meetings between the clinicians in the test sites and members of the development group as part of the implementation process helped address clinicians concerns and ultimately supported uptake of the model.ConclusionOur experience highlighted the potential for a personalised approach to care planning in empowering patients have a more active role in the way they access services as part of their recovery journey. It also highlighted patient and clinician related factors that need to be considered for a successful adoption of the model.
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Moreno, Almudena, and Alfonso Lara Montero. "Children’s services in Spain: a study of the organisation and implementation of children’s services in three regions in response to European recommendations." Journal of Children's Services 11, no. 4 (2016): 300–316. http://dx.doi.org/10.1108/jcs-03-2016-0005.

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Purpose The purpose of this paper is to map the current organisation and implementation of children’s services in three regions of Spain, to identify strengths and gaps and to suggest proposals for improvement in line with European recommendations. Design/methodology/approach Spain features a decentralised approach when it comes to the organisation of children’s services. This means that relevant themes for children’s services refer to decentralised policies, which diverge within the regions in the country and therefore to illustrate this the authors focus on three specific regions. The study used an exploratory case study design and relied on qualitative methods, including the answers to open questionnaires provided by senior civil servants at key regional child welfare agencies, children’s services directors and service providers. Findings The main finding from the review of the legislation and the answers to the questionnaires is that public social services still follow an assistance logic rather than a social investment approach in regards to children’s services. Although a significant development of laws and policies has taken place, ensuring the implementation, monitoring and evaluation of programmes and services for children remains a challenge. Research limitations/implications The answers provided by the respondents may be subject to limitations imposed by the agencies for which they work. A general disadvantage of qualitative research is the use of subjective criteria to interpret the relevance of the results. The study was further challenged by differences across regions when it comes to their legal and policy frameworks, development of provisions and implementation and outcomes’ evaluation. Practical implications The findings could be used to assess the state of play in regards to children’s services across the regions studied and beyond with a focus on children being placed at the centre of public services’ intervention, using a comprehensive approach and promoting critical thinking and reflective practice. Social implications The three selected case studies provide additional insight into policy and legal developments, implementation and evaluation of activities and efforts to improve policy and practice in children’s services. Originality/value This paper contributes to the evaluation of the current situation of children’s services in Spain from a decentralised perspective with the aim to facilitate changes to improve planning, implementation and evaluation of children’s services and secure better outcomes for children.
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Stein, Melina, Luca Nitschke, Laura Trost, Ansgar Dirschauer, and Jutta Deffner. "Impacts of Commuting Practices on Social Sustainability and Sustainable Mobility." Sustainability 14, no. 8 (2022): 4469. http://dx.doi.org/10.3390/su14084469.

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Commuting is an integral part of many people’s everyday life providing a transition between private and working life. It does, however, lead to negative impacts at a personal and social-ecological level (health impacts, lack of time, climate emissions, etc.). This article is based on the transdisciplinary research project “CommuterLab” (PendelLabor), which investigates commuting practices in the German Rhine-Main region. Using a practice-theoretical approach, we conducted a qualitative empirical study to explore how commuters organise the transition between their personal life and job. Through our analysis, we were able to identify different meanings of commuting and its strong interconnection with other everyday practices. This allowed us to gain deep insight into the social (non-)sustainability of commuting. At the core of our results are four different types of commuting practice whose impact on social sustainability differs widely. Furthermore, since the interviews were conducted during the coronavirus pandemic, respondents had their first experience of strongly reduced commuting. This in turn allowed insights into the changing organisation of everyday life and the impact of reconfigured commuting practices on social sustainability. Based on these results, we drew conclusions about the dynamics of commuting in terms of social sustainability.
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Bloomquist, Kira, Lars H. Tang, Sissel Kjelsbak, Linea L. Hansen, and Jan Christensen. "National mapping of municipality-based rehabilitation services for patients recovering from COVID-19 in Denmark: a cross-sectional study." International Journal of Therapy and Rehabilitation 29, no. 11 (2022): 1–11. http://dx.doi.org/10.12968/ijtr.2021.0167.

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Background/aims A lack of knowledge exists as to how municipalities are meeting the rehabilitation needs of patients recovering from COVID-19. This poses a potential barrier when referring patients for rehabilitation. The aim of this study was to map and describe municipality-based rehabilitation services for patients recovering from COVID-19 in Denmark. Methods This was a cross-sectional, nation-wide survey. Key staff members from all 98 municipalities in Denmark were invited to participate. Participants had insight into the organisation and professional content of municipal rehabilitation. Structured telephone interviews were conducted by three interviewers between October and November 2020. The interview guide consisted of items that asked about the availability, content and organisation of municipality-based rehabilitation services. Results A total of 91 municipalities (93% response rate) participated in the study. Rehabilitation could be provided within pre-existing services in 98% of municipalities and 93% systematically assessed individual rehabilitation needs using a variety of measurement methods. All municipalities reported that they had services in place to provide functional rehabilitation (eg gait training) and over 90% provided physical, cognitive and lifestyle-related rehabilitation. In contrast, 70% could provide COVID-19 education and 64% psychological therapy. Overall, 32% of municipalities had not received referrals for COVID-19 rehabilitation. Of the 62 municipalities that had COVID-19 rehabilitation experience, 73% rated the degree to which they could deliver coherent and coordinated rehabilitation for patients with complex rehabilitation needs as high or very high. Conclusions Overall, Danish municipalities reported that pre-existing services are in place to provide relevant, individualised rehabilitation for patients recovering from COVID-19. Nonetheless, future efforts should ensure that patient education is established, in step with health care providers accumulating knowledge, as well as integrated referral pathways between sectors, to deliver rehabilitation to patients with complex needs. Further, implementation of a national data collection strategy would strengthen and inform future development of relevant services both nationally and internationally.
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Adderley, Simon, and Duane Mellor. "Who's influencing whom? Developing sustainable business partnerships." EuroMed Journal of Business 9, no. 1 (2014): 60–74. http://dx.doi.org/10.1108/emjb-06-2013-0033.

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Purpose – Recently David Jones in Who Cares Wins proposed sustainability as being essential for businesses success over the coming decades. The purpose of this paper is to present a case study of the development of a partnership between an environmental non-government organisation (NGO) (world wildlife fund-UK) and a major retailer (Marks and Spencer). The partnership developed three “types”, sponsorship, technical and communication partnerships. Design/methodology/approach – A grounded theory approach was taken; information was gathered using semi-structured interviews. Data from these interviews were then triangulated with corporate materials to allow generalisations to develop. Findings – Through the three “types” of partnership themes of conflict and project drift were identified, although the overarching “Plan A” commitment is seen as a potential exemplar in sustainability. Difficulties were identified with respect to the dissemination of the outputs from the partnership, some of which were too complex, where others appeared to change to be more appealing to the consumer. Social implications – Although a single case study, it highlights the challenges and benefits to both partners. As such, it provides insight into the practical issues of delivering sustainability commitments and projects in partnership. Such approaches are critical not only for the viability of business, but also for the long-term health of our planet. Originality/value – This represents a case study of the development of a sustainable partnership between a large corporate and an NGO, which could represent a template for sustainable business. This paper in responds to the growing demand for such case-study examples.
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de Boer, Dolf, Michael van den Berg, Marta Ballester, et al. "Assessing the outcomes and experiences of care from the perspective of people living with chronic conditions, to support countries in developing people-centred policies and practices: study protocol of the International Survey of People Living with Chronic Conditions (PaRIS survey)." BMJ Open 12, no. 9 (2022): e061424. http://dx.doi.org/10.1136/bmjopen-2022-061424.

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IntroductionIn view of growing populations with chronic conditions, many countries are redesigning their health systems. However, little information is available about how health systems perform from the perspective of people living with chronic conditions. The Organisation for Economic Co-operation and Development (OECD) Member States therefore mandated the OECD to initiate the International Survey of People Living with Chronic Conditions (PaRIS survey), which aims to provide insight in outcomes and experiences of care as reported by people living with chronic conditions. The PaRIS-SUR consortium has been tasked by the OECD to support the development and implementation of the survey.Methods and analysisAs primary care services play a pivotal role in the management of chronic conditions, the PaRIS survey will be implemented in the primary care setting. Data will be collected with a survey among users of primary care services aged 45 years or older, of whom many have chronic conditions. An additional survey is conducted among their primary care providers. The nested study design will allow analysis of the patient-reported data in relation to characteristics of and care provided by primary care providers within and across countries. In 2022, the survey will be tested in a Field Trial in participating countries. Data for cross-country comparison will be collected by the Main Survey in 2023.Ethics and disseminationInformed consent will be obtained from primary care providers and service users. National Project Managers search ethical approval of the survey in their country, if required. Reporting by the OECD will focus on questions for international comparison. A secured information technology platform will be developed for participants and stakeholders in countries to receive feedback and answer their own questions. Findings will also be disseminated through an international OECD flagship report, conferences, scientific papers and policy briefs, to inform strategies to improve care for people living with chronic conditions throughout the world.
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Liukinevičienė, Laima, and Jurgita Blažienė. "The Discourse of the Resilience of Hospitals in the Theoretical Context of the Organisation’s Concept of Resilience and Factors." Socialiniai tyrimai 45, no. 1 (2022): 8–35. http://dx.doi.org/10.15388/soctyr.45.1.1.

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Recovery and resilience, the ability to operate under the conditions of uncertainty – these challenges are now becoming the key tasks for each organisation. The research of the organisation’s concept of resilience is primarily linked to ecological sciences, followed by studies in social sciences linked to vulnerability and resilience of social groups, communities, cities, and organizations as systems. The efforts of scientists to develop the analysis, measurement instruments of resilience, observable resilience indicators systems, indices, regional vulnerability maps, development of regional resilience policies, etc. are visible. Scientists indicate that resilience is a complex ability and process and can be defined differently, depending on the contexts, but all of them are united by the notion that it is a positive effect in preparing for or after challenges, that it must be encouraged (Lee et al., 2016). The organisation’s theoretical concept of resilience is not widely developed and there is a lack of information on how organisations become resilient.The research aims to define the concept of organisation’s resilience, its features and factors as well as to reveal the concept of the resilience of hospitals in the theoretical context of the resilience of the organisation. The following research methods were used: the analysis, generalization and systematization of the content of scientific literature, synthesis of ideas based on scientific analysis.The definition of the concept of organisation’s resilience is based on a previous empirical research conducted by Barasa et al. (2018) as well as on the latest scientific insights: According to Jucevičius et al. (2017), resilience as the ability to regain strength after changes or errors is conceptually different from the concept of robustness, which describes systems that ignore environmental impacts. The resilience of an organization is the intrinsic ability of an organization to maintain and return to a dynamically stable state. It is the maintenance of resources in a sufficiently flexible form to allow them to be spontaneously adapted in the event of an unforeseen threat. Continuous harmonisation of the monitoring of small errors with improvisation provides employees with expert and wider competencies for more flexible adaptation. The idea proposed by Gricevičius (2019) to link the resilience of the organization to the ability to survive and even thrive during a crisis supports the idea of Gečienė and Raišienė (2019, 2020) that the resilience of the organization should be understood more as a capacity and process than a result, and as adaptation rather than stability (Gečienė et al., 2020). Insight into the fact that we are constantly strengthening the resilience of organisations by adapting to changes at three levels: the potential of the resources available in the system, participants in the internal communication system and variables, creative and flexible responses to the challenges (Holling and Gunderson, 2002, cited in Gečienė, 2020); that the resilience of the organisation must be perceived as a long-term goal (Litz, 2005, cited in Gečienė, 2020). Beuran and Santos (2019) consider that three definitions are important in the organisation’s conceptualisation of resilience: resilience as an organisational characteristic; resilience as a result of the organisation’s activities; resilience as an identification of disorders that the organisation can tolerate. The theoretical concept of organization’s resilience is developed by defining external and internal factors of resilience. The external factors of the resilience of public sector organisations include the following: 1) political factors that directly or indirectly influence organisations’ involvement in a greater focus on the organisation’s sustainable development, unforeseen challenges in the long term; 2) economic factors (e.g. availability of financial resources); 3) technological factors (e.g. availability of hardware and software; digital progress), social factors (e.g. decentralisation as management practice in the public sector, coordination of systems, greater awareness of resilience in society, etc.). Disseminating the experience of business organisations in adapting to challenges in the media has also become a social factor.According to scientific practice (Barasa et al. (2018); Gečienė (2020)), to analyse the passive and active resilience of the organisation, we have divided the internal factors of the organization’s resilience into two groups: 1. Passive or operational, adaptive resilience of the organisation. The factors are as follows: 1) prudent management of public (physical, economic, organisational, social, human) capital, assets held or entrusted with management; management of organisational change management, absorption, adaptability, reconstruction capacity is essential; 2) a balanced organisational routine and structure; 3) management and continuous improvement of internal information and communication systems; 4) management (managerial) practices; 5) organizational culture.2. Active or planned, strategic, otherwise capability-oriented resilience of the organization. The factors are as follows: 1) the organisation’s resilience planning, strategy; 2) the organisation’s external policy focused on strengthening resilience; 3) continuous involvement in the analysis, application, development of managerial innovations; 4) leadership and continuous improvement of the organisation’s resilience competencies.Hospitals are organisations whose management is subject to the same managerial principles as in budgetary institutions in general, and therefore the analyzed resilience features of organizations are also applicable to hospitals. Due to the specific purpose of organisations (human health is one of the most important values, health care is a constitutionally justified objective and public interest) and relevance during the 2020–2021 pandemic, there is an increase in the discourse of the scientific resilience of the health system, driven also by increased interaction between politicians, scientists and medical professionals. The resilience of the health system and individual health care institutions is becoming a priority objective of public policy, and the issue of resilience is linked not only to post-crisis recovery but also to the active prospect of resilience – to be prepared for future challenges. In addition to adaptive and planned resilience in the discourse of health system, science activates a discussion on the concept of everyday resilience, as hospitals have to deal with unforeseen challenges every day, the consequences of which can affect patients.
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Nelson, Michelle LA, Alana Armas, Rachel Thombs, et al. "Synthesising evidence regarding hospital to home transitions supported by volunteers of third sector organisations: a scoping review protocol." BMJ Open 11, no. 7 (2021): e050479. http://dx.doi.org/10.1136/bmjopen-2021-050479.

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IntroductionGiven the risks inherent in care transitions, it is imperative that patients discharged from hospital to home receive the integrated care services necessary to ensure a successful transition. Despite efforts by the healthcare sector to develop health system solutions to improve transitions, problems persist. Research on transitional support has predominantly focused on services delivered by healthcare professionals; the evidence for services provided by lay navigators or volunteers in this context has not been synthesised. This scoping review will map the available literature on the engagement of volunteers within third sector organisations supporting adults in the transition from hospital to home.Methods and analysisUsing the well-established scoping review methodology outlined by the Joanna Briggs Institute, a five-stage review is outlined: (1) determining the research question, (2) search strategy, (3) inclusion criteria, (4) data extraction and (5) analysis and presentation of the results. The search strategy will be applied to 10 databases reflecting empirical and grey literature. A two-stage screening process will be used to determine eligibility of articles. To be included in the review, articles must describe a community-based programme delivered by a third sector organisation that engages volunteers in the provisions of services that support adults transitioning from hospital to home. All articles will be independently assessed for eligibility, and data from eligible articles will be extracted and charted using a standardised form. Extracted data will be analysed using narrative and descriptive analyses.Ethics and disseminationEthics approval is not required for this scoping review. Members of an international special interest group focused on the voluntary sector will be consulted to provide insight and feedback on study findings, help with dissemination of the results and engage in the development of future research proposals. Dissemination activities will include peer-reviewed publications and academic presentations.
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Heijsters, Florence, Jesse Santema, Margriet Mullender, Mark-Bram Bouman, Martine de Bruijne, and Femke van Nassau. "Stakeholders barriers and facilitators for the implementation of a personalised digital care pathway: a qualitative study." BMJ Open 12, no. 11 (2022): e065778. http://dx.doi.org/10.1136/bmjopen-2022-065778.

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ObjectiveA prerequisite for patient-centredness in healthcare organisations is offering patients access to adequate health information, which fits their needs. A personalised digital care pathway (PDCP) is a tool that facilitates the provision of tailored and timely information. Despite its potential, barriers influence the implementation of digital tools in healthcare organisations. Therefore, we investigated the perceived barriers and facilitators for implementation of the PDCP among stakeholders.DesignA qualitative study was conducted to acquire insight into perceptions of the stakeholders involved in the implementation of a digital care pathway in three diverse patient groups.SettingThis study is part of the PDCP research project in a large academic hospital in the Netherlands.ParticipantsPurposive sampling was used to recruit internal stakeholders (eg, healthcare professionals, employees of the supporting departments) and external stakeholders (eg, employees of the external PDCP supplier). In addition, existing semistructured interviews with patients involved in pilot implementation (n=24) were used to verify the findings.ResultsWe conducted 25 semistructured interviews using the Consolidated Framework for Implementation Research. Content analyses yielded four themes: (1) stakeholders’ perceptions of the PDCP (eg, perceived usefulness); (2) characteristics of the individuals involved and the implementation process (eg, individuals express resistance to change); (3) organisational readiness (eg, lack of resources); and (4) collaboration within the organisation (eg, mutual communication, multidisciplinary codesign). The main barriers mentioned by patients were duration of first activation and necessity for up-to-date content. In addition, the most facilitating factor for patients was user-friendliness.ConclusionOur findings emphasise the importance of gaining insights into the various perspectives of stakeholder groups, including patients, regarding the implementation of the PDCP. The perceived barriers and facilitators can be used to improve the PDCP implementation plan and tailor the development and improvement of other digital patient communication tools.
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Tarrant, Carolyn, Emma Angell, Richard Baker, et al. "Responsiveness of primary care services: development of a patient-report measure – qualitative study and initial quantitative pilot testing." Health Services and Delivery Research 2, no. 46 (2014): 1–368. http://dx.doi.org/10.3310/hsdr02460.

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BackgroundPrimary care service providers do not always respond to the needs of diverse groups of patients, and so certain patients groups are disadvantaged. General practitioner (GP) practices are increasingly encouraged to be more responsive to patients’ needs in order to address inequalities.Objectives(1) Explore the meaning of responsiveness in primary care. (2) Develop a patient-report questionnaire for use as a measure of patient experience of responsiveness by a range of primary care organisations (PCOs). (3) Investigate methods of population mapping available to GP practices.Design settingPCOs, including GP practices, walk-in centres and community pharmacies.ParticipantsPatients and staff from 12 PCOs in the East Midlands in the development stage, and 15 PCOs across three different regions of England in stage 3.InterventionsTo investigate what responsiveness means, we conducted a literature review and interviews with patients and staff in 12 PCOs. We developed, tested and piloted the use of a questionnaire. We explored approaches for GP practices to understand the diversity of their populations.Main outcome measures(1) Definition of primary care responsiveness. (2) Three patient-report questionnaires to provide an assessment of patient experience of GP, pharmacy and walk-in centre responsiveness. (3) Insight into challenges in collecting diversity data in primary care.ResultsThe literature covers three overlapping themes of service quality, inequalities and patient involvement. We suggest that responsiveness is achieved through alignment between service delivery and patient needs, involving strategies to improve responsive service delivery, and efforts to manage patient expectations. We identified three components of responsive service delivery: proactive population orientation, reactive population orientation and individual patient orientation. PCOs tend to utilise reactive strategies rather than proactive approaches. Questionnaire development involved efforts to include patients who are ‘seldom heard’. The questionnaire was checked for validity and consistency and is available in three versions (GP, pharmacy, and walk-in centre), and in Easy Read format. We found the questionnaires to be acceptable to patients, and to have content validity. We produced some preliminary evidence of reliability and construct validity. Measuring and improving responsiveness requires PCOs to understand the characteristics of their patient population, but we identified significant barriers and challenges to this.ConclusionsResponsiveness is a complex concept. It involves alignment between service delivery and the needs of diverse patient groups. Reactive and proactive strategies at individual and population level are required, but PCOs mainly rely on reactive approaches. Being responsive means giving good care equally to all, and some groups may require extra support. What this extra support is will differ in different patient populations, and so knowledge of the practice population is essential. Practices need to be motivated to collect and use diversity data. Future work needed includes further evaluation of the patient-report questionnaires, including Easy Read versions, to provide further evidence of their quality and acceptability; research into how to facilitative the use of patient experience data in primary care; and implementation of strategies to improve responsiveness, and evaluation of effectiveness.FundingThe National Institute for Health Research Service Delivery and Organisation programme.
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Meier, A. J. L., Y. Van Eijk-Hustings, and B. Maat. "FRI0626-HPR DEVELOPMENT OF A TOOL TO SUPPORT PATIENT AND NURSE IN COMMUNICATING ON SELF-MANAGEMENT SUPPORT NEEDS PROJECT OF V&VN RHEUMATOLOGY RESEARCH GROUP." Annals of the Rheumatic Diseases 79, Suppl 1 (2020): 917.1–918. http://dx.doi.org/10.1136/annrheumdis-2020-eular.4437.

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Background:Self-management, ability of patients to optimally integrate their illness or disorder into their daily lives, is explicitly part of the new definition of health.Self-management is considered essential in rheumatology care but is also a challenge for patients and rheumatology nurses. Often patients need support, but clarifying their support needs is difficult. Also, nurses experience difficulties in providing self-management support. A communication tool might help patients and nurses.Objectives:In preparation for development of an online self-management program, a framework comprising 55 needs from 11 different domains has been developed (1).The objective of this study is to develop a tool, based on this existing framework that can support patients and nurses in making targeted choices for adequate support.Methods:The tool was developed in two steps. First, it was explored if existing framework as such was useful as a basis for the tool. It was discussed in a brainstorming session with rheumatology patients and rheumatology nurses. Second, two additional workshops, one with patients and one with nurses were organised. In these sessions, yellow cards with 55 needs from the framework (1) were compared with a more generic framework for self-management support in chronic diseases: the self-management web (2), figure 1. Goal of the workshop was to gain insight into usability of models and to gauge the ideas for a tool. The choice for these two models was based on the scientific background as well as the use with patients with a chronic or rheumatic disease.Picture 1: WorkshopResults:In the first brainstorming session 5 patients and 5 rheumatology nurses participated.In the workshops, 11 patients and 130 nurses participated. Eligible adult patients, diagnosed with a rheumatic disease, were recruited by newsletter from the Dutch Arthritis Foundation. Nurses were recruited by newsletter from the Dutch Nurses Organisation (V&VN).According to participants, the framework alone is only useable when additional explanation and illustration of concepts will be provided and following missing topics are added; communication between specialisms, knowledge of the healthcare system, responsibility allocation, faith, religion, culture, nutrition, lifestyle, prevention.The self-management web appeared to be helpful. Not all cards with needs could be placed in this web. It was suggested to add following topics to the web: Peer support or experience experts’ contact, handling treatment recommendations, patient empowerment, defining limitations and supporting services like physiotherapy and municipality.There is overlap between topics of the web: Lifestyle, leisure and self-care. It was suggested to place associated topics together or give the same colour.Practical ideas for application of the web and about involving an experienced expert were discussed as well as the role of health professionals. Integration in e-health, linked to the medical file with visual support is preferred. Patients have to prepare themselves for consulting the nurse or doctor.Communication plays a very important role for all elements. The tool should be usable for people with limited health literacy skills and nurses need skills like motivational interviewing for using the tool.Conclusion:Existing frameworks seem useful as a scientific basis for the development of a communication tool for self-management support. Usability of a draft tool will be explored in a pilot study.References:[1] Ammerlaan J. Preferences and needs of patients with a rheumatic disease regarding the structure and content of online self-management support. Pat Educ Counsel. 2017;100(3):501-8.[2]Been-Dahmen, J.M.J. (2018). Self-Management Support: A broader perspective on what patients need and nurses could provide.Disclosure of Interests:A.J.L. Meier: None declared, Yvonne van Eijk-Hustings Grant/research support from: grand from sanofi and UCB, Consultant of: fee from amgen, Bertha Maat: None declared
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Walters, Julie Lynette, Shylie Mackintosh, and Lorraine Sheppard. "The journey to total hip or knee replacement." Australian Health Review 36, no. 2 (2012): 130. http://dx.doi.org/10.1071/ah11050.

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Objectives. Despite the incidence of joint replacements in Australia, there is a paucity of information regarding how patients progress from their referral to their surgery. The aim of this study was to describe a patient pathway from referral to receipt of total hip replacement (THR) or total knee replacement (TKR) surgery in South Australian public hospitals. Methods. Patient perspectives of the pathway to THR and TKR surgery were obtained via a postal survey (n = 450) and hospital employee perspectives were attained via semi-structured interviews (n = 19). Survey data were analysed using descriptive statistics and interview data were analysed thematically. Results. A typical patient pathway to THR and TKR surgery can be divided into two distinct phases; referral-to-initial appointment (9–24 months), and initial appointment-to-surgery (12–15 months). This gives an overall waiting period between 2 and 3 years for THR or TKR surgery. Conclusions. Waiting times for THR and TKR surgery reported in this study were longer than other reports in the literature. Current Australian health policy does not consider the first (and longest) phase of the patient pathway. Excluding this initial phase could be generating an erroneous perception of the patient pathway to THR or TKR surgery, possibly leading to poorly considered health reforms. What is known about the topic? Meeting the demand for elective surgery services in public hospitals is an ongoing challenge for governments and health systems alike. The persistent mismatch between supply and demand has resulted in the development of waiting lists for elective total hip replacement (THR) and total knee (TKR) replacement surgery in Australia. Current state-level health policies such as the Policy Framework and Associated Procedural Guidelines for Elective Surgery Services in South Australia or the Elective Surgery Access Policy in Victoria, outline a generic pathway consisting of a few linear steps that occur immediately before receipt of surgery, without consideration of the early stages of the journey. Aside from these types of policies, we were unable to identify any published literature outlining the patient journey from referral to receipt of THR or TKR surgery. As such, our understanding of the issue is inadequate due the paucity of existing research evidence. What does this paper add? Our current understanding of the patient journey to THR and TKR surgery is limited to the perspective of the policy-makers, whose focus is the organisation of waiting lists and the systematic progression of an individual through the elective surgery system. This perspective reinforces the assumption that it is a simple, linear process and may lead to erroneous judgements regarding the impact that the patient pathway has on an individual and the time it takes to progress along that pathway. This study presents the patient pathway from the perspective of individuals working within the systems responsible for delivering THR and TKR surgery and from patients who have received a joint replacement in a South Australian public hospital. As such, this paper provides new insight into the length, impact and features of the entire patient journey, rather than a snap-shot of the final stages. What are the implications for practitioners? This study is the first step towards better understanding of the patient pathway to joint replacement surgery in Australian public hospitals. Greater understanding of the complete pathway and identification of areas of congestion within the pathway, as evidenced by longer waiting periods, offers insight into areas with the potential for effective reforms. Should the patient pathway be significantly altered, the experience of practitioners responsible for the interim and postoperative management of patients undergoing THR and TKR surgery will also be changed. Additionally, practitioners currently frustrated by the long delays experienced by their patients who are in need of elective surgery in Australian public hospitals, could have that frustration abated by system improvements that reduce the length and complexity of the pathway to joint replacement surgery.
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Johnson, B. N., H. E. Peters, C. B. Lambalk, et al. "Male microchimerism in females: a quantitative study of twin pedigrees to investigate mechanisms." Human Reproduction 36, no. 9 (2021): 2529–37. http://dx.doi.org/10.1093/humrep/deab170.

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Abstract STUDY QUESTION Does having a male co-twin, older brothers, or sons lead to an increased probability of persistent male microchimerism in female members of twin pedigrees? SUMMARY ANSWER The presence of a male co-twin did not increase risk of male microchimerism and the prevalence of male microchimerism was not explained by having male offspring or by having an older brother. WHAT IS KNOWN ALREADY Microchimerism describes the presence of cells within an organism that originate from another zygote and is commonly described as resulting from pregnancy in placental mammals. It is associated with diseases with a female predilection including autoimmune diseases and pregnancy-related complications. However, microchimerism also occurs in nulliparous women; signifying gaps in the understanding of risk factors contributing to persistent microchimerism and the origin of the minor cell population. STUDY DESIGN, SIZE, DURATION This cross-sectional study composed of 446 adult female participants of the Netherlands Twin Register (NTR). PARTICIPANTS/MATERIALS, SETTING, METHODS Participants included in the study were female monozygotic (MZ) twins, female dizygotic same-sex twins and females of dizygotic opposite-sex twin pairs, along with the mothers and sisters of these twins. Peripheral blood samples collected from adult female participants underwent DNA extraction and were biobanked prior to the study. To detect the presence of male-origin microchimerism, DNA samples were tested for the relative quantity of male specific Y chromosome gene DYS14 compared to a common β-globin gene using a highly sensitive quantitative PCR assay. MAIN RESULTS AND THE ROLE OF CHANCE We observed a large number of women (26.9%) having detectable male microchimerism in their peripheral blood samples. The presence of a male co-twin did not increase risk of male microchimerism (odds ratio (OR) = 1.23: SE 0.40, P = 0.61) and the prevalence of male microchimerism was not explained by having male offspring (OR 0.90: SE 0.19, P = 0.63) or by having an older brother (OR = 1.46: SE 0.32, P = 0.09). The resemblance (correlation) for the presence of microchimerism was similar (P = 0.66) in MZ pairs (0.27; SE 0.37) and in first-degree relatives (0.091; SE 0.092). However, age had a positive relationship with the presence of male microchimerism (P = 0.02). LIMITATIONS, REASONS FOR CAUTION After stratifying for variables of interest, some participant groups resulted in a low numbers of subjects. We investigated microchimerism in peripheral blood due to the proposed mechanism of cell acquisition via transplacental blood exchange; however, this does not represent global chimerism in the individual and microchimerism may localize to numerous other tissues. WIDER IMPLICATIONS OF THE FINDINGS Immune regulation during pregnancy is known to mitigate allosensitization and support tolerance to non-inherited antigens found on donor cells. While unable to identify a specific source that promotes microchimerism prevalence within pedigrees, this study points to the underlying complexities of natural microchimerism in the general population. These findings support previous studies which have identified the presence of male microchimerism among women with no history of pregnancy, suggesting alternative sources of microchimerism. The association of detectable male microchimerism with age is suggestive of additional factors including time, molecular characteristics and environment playing a critical role in the prevalence of persistent microchimerism. The present study necessitates investigation into the molecular underpinnings of natural chimerism to provide insight into women’s health, transplant medicine and immunology. STUDY FUNDING/COMPETING INTEREST(S) This work is funded by Royal Netherlands Academy of Science Professor Award (PAH/6635 to D.I.B.); The Netherlands Organisation for Health Research and Development (ZonMw)—Genotype/phenotype database for behavior genetic and genetic epidemiological studies (ZonMw 911-09-032); Biobanking and Biomolecular Research Infrastructure (BBMRI–NL, 184.021.007; 184.033.111); The Netherlands Organisation for Scientific Research (NWO)—Netherlands Twin Registry Repository (NWO-Groot 480-15-001/674); the National Institutes of Health—The Rutgers University Cell and DNA Repository cooperative agreement (NIMH U24 MH068457-06), Grand Opportunity grants Integration of genomics and transcriptomics in normal twins and major depression (NIMH 1RC2 MH089951-01), and Developmental trajectories of psychopathology (NIMH 1RC2 MH089995); and European Research Council—Genetics of Mental Illness (ERC 230374). C.B.L. declares a competing interest as editor-in-chief of Human Reproduction and his department receives unrestricted research grants from Ferring, Merck and Guerbet. All remaining authors have no conflict-of-interest to declare in regards to this work. TRIAL REGISTRATION NUMBER N/A.
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Holtzhausen, Marlie, and Jason Musyoka. "A Case for a Relational Approach in Development Interventions: Measuring the Relationships of an NGO in South Africa." Southern African Journal of Social Work and Social Development 33, no. 2 (2021). http://dx.doi.org/10.25159/2708-9355/8146.

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This article argues in favour of relationships as a measure of development. The study gathered primary data from the James 1:27 Trust, a non-governmental organisation providing socio-economic and psychological support to vulnerable households in Pretoria, South Africa. The data were gathered through a qualitative method by which three officials from the James 1:27 Trust and seven participants from three households targeted by the James 1:27 Trust were interviewed. The in-depth interviews were complemented by a focus group discussion, which combined the Trust officials and the households. A thematic content analysis was used to interpret and analyse the data. The study concluded that the nature and extent of relationships in the examined non-governmental organisation present an opportunity to understand and measure development differently from the way it is understood and measured in orthodox development. The participants used burdened words such as family, belonging, appreciation, value, bonding, paying attention, and honesty as proxies for measuring development. These findings provide insight into the meaning of relationships in development processes and outcomes. The article recommends that care relationships be moved from the shadows to the mainstream of development practice.
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Isabekova, Gulnaz. "Mutual learning on the local level: The Swiss Red Cross and the Village Health Committees in the Kyrgyz Republic." Global Social Policy, August 28, 2020, 146801812095003. http://dx.doi.org/10.1177/1468018120950032.

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The importance of mutual learning between providers and recipients of development assistance has been emphasised for decades. Nevertheless, its practical implementation remains limited, primarily due to organisational issues and unequal power relations in development aid. Using the ‘design-thinking’ approach, this study demonstrates the possibility of mutual learning utilising the example of the Swiss Red Cross and the Village Health Committees in the Kyrgyz Republic. Based on the related project documentation and interviews with relevant partners, this article provides an insight into the factors enabling mutual learning in practice. It suggests that decentralisation of the organisation, its leadership and response to failures, continuous contact between provider and recipient of development assistance, and emphasis on local expertise contribute to learning. Although context-specific, these findings are essential to understanding the mutual learning in general and taking this phenomenon from theory to practice.
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Gerritsen, Sylvia, Anne Laura Van Melle, Lieke Johanna Cornelia Zomer, Guy Antoine Marie Widdershoven, and Yolande Voskes. "Communities of Practice in Acute and Forensic Psychiatry: Lessons Learned and Perceived Effects." Psychiatric Quarterly, June 9, 2021. http://dx.doi.org/10.1007/s11126-021-09923-w.

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AbstractIn the Netherlands, two new approaches have been developed for acute and forensic psychiatry, called High and Intensive Care (HIC) and Forensic High and Intensive Care (FHIC). The models provide standards for temporary high-quality clinical care for patients in crisis and combine practices to reduce seclusion. To support the implementation of these approaches, Communities of Practice (CoPs) were created, including peer providers, mental health nurses, psychiatrists and managers. CoPs are increasingly used in healthcare. However, CoPs vary greatly in form and objective, and more insight is needed in the organisation and facilitation of CoPs. Therefore, the aim of this study is to gain insight into the lessons learned and perceived effects of the CoPs. A qualitative approach was used. Data were collected through focus groups (n = 3) with participants in the CoPs, feedback meetings with teams implementing HIC (n = 78) or FHIC (n = 23), and observations by the researchers. Data were analysed thematically. Lessons learned are: 1) create an ambassador role for CoP participants, 2) organize concrete activities, 3) take care of a multidisciplinary composition, and 4) foster shared responsibility and work on sustainability. Perceived effects of the CoPs were: 1) support of HIC and FHIC implementation, 2) creation of a national movement, and 3) further development of the HIC and FHIC approaches. The audits served as an important vehicle to activate the CoPs, and stimulated the implementation of HIC and FHIC. The findings may help others in creating a CoP when it comes to the implementation of best practices and improving healthcare.
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van der Scheer, Jan W., Akbar Ansari, Meredith McLaughlin, et al. "Guiding organisational decision-making about COVID-19 asymptomatic testing in workplaces: mixed-method study to inform an ethical framework." BMC Public Health 22, no. 1 (2022). http://dx.doi.org/10.1186/s12889-022-13993-1.

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Abstract Background Workplace programmes to test staff for asymptomatic COVID-19 infection have become common, but raise a number of ethical challenges. In this article, we report the findings of a consultation that informed the development of an ethical framework for organisational decision-making about such programmes. Methods We conducted a mixed-method consultation – a survey and semi-structured interviews during November–December 2020 in a UK case study organisation that had introduced asymptomatic testing for all staff working on-site in its buildings. Analysis of closed-ended survey data was conducted descriptively. An analysis approach based on the Framework Method was used for the open-ended survey responses and interview data. The analyses were then integrated to facilitate systematic analysis across themes. Inferences were based on the integrated findings and combined with other inputs (literature review, ethical analysis, legal and public health guidance, expert discussions) to develop an ethical framework. Results The consultation involved 61 staff members from the case study organisation (50 survey respondents and 11 interview participants). There was strong support for the asymptomatic testing programme: 90% of the survey respondents viewed it as helpful or very helpful. Open-ended survey responses and interviews gave insight into participants’ concerns, including those relating to goal drift, risk of false negatives, and potential negative impacts for household members and people whose roles lacked contractual and financial stability. Integration of the consultation findings and the other inputs identified the importance of a whole-system approach with appropriate support for the key control measure of isolation following positive tests. The need to build trust in the testing programme, for example through effective communication from leaders, was also emphasised. Conclusions The consultation, together with other inputs, informed an ethical framework intended to support employers. The framework may support organisational decision-making in areas ranging from design and operation of the programme through to choices about participation. The framework is likely to benefit from further consultation and refinement in new settings.
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Caslin, Marie, and Charlene Davies. "The challenges of assessing the impact of a comedy programme aimed at improving the mental well-being of young people." Research for All 6, no. 1 (2022). http://dx.doi.org/10.14324/rfa.06.1.11.

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Assessing the impact of community-based programmes presents many challenges. One difficulty encountered is how to develop appropriate research methods to capture the impact of the work while also meeting the demands of external funders. For almost two decades, the charity organisation The Comedy Trust (TCT) have attempted to navigate these challenges. In 2018, TCT had the opportunity to work with a university-based researcher to develop their approaches to research. We aimed to explore what happens when you move away from quantifiable predetermined methods to take a more participatory approach to work alongside the participants of the programme. We decided to focus on their Feeling Funny Youth programme, which is aimed at young people to support their mental health and well-being. This paper is a case study of how the programme worked with a group of young people based within a youth organisation. In this paper, we offer a comparison of the standardised tool adopted by TCT with the development of more creative and participatory methods developed in collaboration with young people who participated in the programme. We offer an insight into what can be gained by adopting more creative and participatory methods to capture the experiences of young people, as this enabled us to really hear the important messages they want to share.
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Lang, Sarah, Sarah Loving, Noel Denis McCarthy, Mary Elizabeth Ramsay, David Salisbury, and Andrew J. Pollard. "Two centuries of immunisation in the UK (part 1)." Archives of Disease in Childhood, July 4, 2019, archdischild—2019–317314. http://dx.doi.org/10.1136/archdischild-2019-317314.

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The impact of immunisation is best understood through a historical lens, since so many of the diseases which placed a burden on our population have been eliminated or controlled through immunisation. The United Kingdom (UK) National Health Service (NHS), which celebrated its 70thbirthday in 2018, is responsible for delivering the highly successful universal national immunisation programme. However, the first vaccines used in the UK were not part of a centrally coordinated programme until the 1960s. Resources that summarise the first 200 years of immunisation in the UK are not readily accessible. Here we provide a two part chronological insight into the history of the UK immunisation programme from primary sources. In Part I, we highlight the importance of wartime conditions, unprecedented vaccine development, and the polio outbreaks in the in driving developments in immunisation and discuss subsequent changes in the use of the original vaccines of the immunisation programme, namely, diphtheria, tetanus, pertussis, and polio. In Part 2, we discuss the formation of the Joint Committee on Vaccination and Immunisation and its role, working with public health agencies and advising the UK Governments on vaccine policy, to bring a comprehensive programme to defend the health of the population against serious infectious diseases, highlighting the importance of programme organisation and leadership.
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Niven, Ailsa, James A. Ainge, Mary Allison, et al. "Building partnerships: A case study of physical activity researchers and practitioners collaborating to build evidence to inform the delivery of a workplace step count challenge." Frontiers in Sports and Active Living 4 (January 4, 2023). http://dx.doi.org/10.3389/fspor.2022.1067127.

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BackgroundWalking is an integral part of Scotland's National Physical Activity Strategy, and the charity Paths for All's Workplace Step Count Challenge is a flagship programme within this strategy to promote physical activity. Effectively promoting physical activity requires collaborative engagement between stakeholders. However, there is limited guidance on how to do this. The aim of this case study is to share an example of a partnership between Paths for All and researchers to inform the development and delivery of the Workplace Step Count Challenge.MethodAn overview of the partnership, example activities, reflections on opportunities and challenges, and suggestions for future partnership working are considered.ResultsThe partnership has evolved and strengthened over time through building trust. Many of the research activities provide an evidence base for the intervention. This work is mutually beneficial providing support for the work of the organisation, and opportunities for researchers to undertake “real world” research, leading to formal outputs and funding. The “real world” nature is challenging to integrate the most robust research designs. Recommendations for developing future partnerships were identified.ConclusionPromoting physical activity effectively requires partnership working, and this paper provides insight into how such partnerships can work to inform future collaborations.
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Rotenberg, Daniel Kaminski, Brendon Stewart-Freedman, Jes Søgaard, Shlomo Vinker, Amnon Lahad, and Jens Søndergaard. "Similarities and differences between two well-performing healthcare systems: a comparison between the Israeli and the Danish healthcare systems." Israel Journal of Health Policy Research 11, no. 1 (2022). http://dx.doi.org/10.1186/s13584-022-00524-x.

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Abstract Background Denmark and Israel both have highly rated and well-performing healthcare systems with marked differences in funding and organization of primary healthcare. Although better population health outcomes are seen in Israel, Denmark has a substantially higher healthcare expenditure. This has caused Danish policy makers to take an interest in Israeli community care organization. Consequently, we aim to provide a more detailed insight into differences between the two countries’ healthcare organization and cost, as well as health outcomes. Methods A comparative analysis combining data from OECD, WHO, and official sources. World Health Organization (WHO) and the Organisation for Economic Co-operation and Development (OECD) statistics were used, and national official sources were procured from the two healthcare systems. Literature searches were performed in areas relevant to expenditure and outcome. Data were compared on health care expenditure and selected outcome measures. Expenditure was presented as purchasing power parity and as percentage of gross domestic product, both with and without adjustment for population age, and both including and excluding long-term care expenditure. Results Denmark’s healthcare expenditure is higher than Israel’s. However, corrected for age and long-term care the difference diminishes. Life expectancy is lower in Denmark than in Israel, and Israel has a significantly better outcome regarding cancer as well as a lower number of Years of Potential Life Lost. Israelis have a healthier lifestyle, in particular a much lower alcohol consumption. Conclusion Attempting to correct for what we deemed to be the most important influencing factors, age and different inclusions of long-term care costs, the Israeli healthcare system still seems to be 25% less expensive, compared to the Danish one, and with better health outcomes. This is not necessarily a function of the Israeli healthcare system but may to a great extent be explained by cultural factors, mainly a much lower Israeli alcohol consumption.
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Pepper, Ian, and Colin Rogers. "Valuing volunteers: emerging trends in the training of Volunteer Police Cadet Leaders." Journal of Criminological Research, Policy and Practice, December 14, 2022. http://dx.doi.org/10.1108/jcrpp-06-2022-0022.

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Purpose This paper aims to consider the training provided to Volunteer Police Cadet (VPC) Leaders in police forces across England and Wales who, as part of the wider policing volunteer family, lead organised youth development activities for uniformed police cadets. Design/methodology/approach An online ethically approved questionnaire was administered to volunteer leaders across six VPC schemes hosted by police forces in England and Wales. The sample population being selected due to their geographical spread across both nations, along with the similarities of their VPC schemes. The questionnaire collected demographic information of respondents, then used a blend of closed questions. Likert scales and free text boxes to explore attitudes. Findings The training for the volunteer leaders seems to focus on the mandated elements provided to protect the cadets from harm and also the organisation from litigation. With little development of additional knowledge, skills and behaviours (and in some cases required qualifications) to enhance the service and opportunities delivered to the young people by the volunteers. Research limitations/implications Due in part to the limited response rate, this research cannot claim to be representative of all individuals engaged in this voluntary role; it does however provide insights into the training of such volunteers. Practical implications The research informs the decision makers of how the training of volunteer cadet leaders within forces seems to focus on the completion of the mandatory elements, with little further development of the volunteers to deliver both varied and challenging activities for the cadets. Originality/value The research provides an insight for decision makers on how the training of volunteer cadet leaders within forces seems to focus on the mandatory elements, with few opportunities for further development of volunteer leaders to deliver new, varied and challenging activities for the cadets.
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Burns, R., P. Graversen, A. Miller, et al. "Left behind: the state of universal health coverage in Europe." European Journal of Public Health 30, Supplement_5 (2020). http://dx.doi.org/10.1093/eurpub/ckaa165.248.

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Abstract Background Barriers to access healthcare and lack of data undermine Universal Health Coverage (UHC) in Europe, despite the region's clear commitment to the Sustainable Development Goals and UHC. Current indicators measuring unmet healthcare needs in the European Union (EU) often exclude more marginalised groups, further rendering their health needs invisible and the data to inform policy flawed. For effective evaluation of UHC, comprehensive data on the health of these groups is needed. Methods We conducted an evaluation of humanitarian healthcare provision of people attending Médecins du Monde (MdM) programmes in seven countries in Europe (Belgium, France, Germany, Luxembourg, Sweden, Switzerland, and the United Kingdom). MdM is a humanitarian organisation, providing care to those excluded from mainstream healthcare services. We describe the characteristics of MdM service users, their determinants of health and healthcare access. Results A total of 29,359 people were seen between January 2017 and December 2018. Nearly all were migrants (97.2%, 21,591/22,136), with 66.3% (11,690/17,629) of people reported not having a right or permission to reside in the country they presented in. A majority were living below the poverty line (92.6%, 7,660/8,268), residing in insecure housing (44.3%, 8,895/20,097) or living as street homeless or in emergency shelters (20.4%, 4,107/20,097). Most people reported having no healthcare coverage (81.7%, 14,848/18,164). When asked about barriers to accessing healthcare, 20.8% of responses reported economic barriers (3,960/19,020) and 14.3% reported a lack of knowledge of health system/entitlements (2,718/19,020). Conclusions This humanitarian service evaluation highlights the intersecting vulnerabilities and barriers to access healthcare for people excluded from mainstream healthcare systems across Europe. Our findings provide a unique insight into the extent of unmet healthcare needs of migrants and other marginalised populations. Key messages UHC requires comprehensive data on the population groups who are many times left without access to health services and who are often excluded from national data collection and research. A majority of MdM service users do not have healthcare coverage and experience multiple and intersecting barriers to access healthcare across Europe.
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Smith, Victoria, Claire Maxwell, and Lisa Robinson. "To dictate or collaborate? A phenomenological exploration of physiotherapists’ leadership styles." BMJ Leader, October 13, 2021, leader—2020–000403. http://dx.doi.org/10.1136/leader-2020-000403.

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ObjectivesSelection of effective leadership styles within healthcare is linked to high quality, safe care for patients. Within the literature attention has been given to medical and nursing professions, failing to acknowledge the contribution made by physiotherapy leaders. This study aims to consider the leadership styles used by physiotherapists in a designated leadership role, specifically exploring the barriers they face and the strategies employed to overcome current leadership dilemmas.DesignA qualitative, phenomenological design was used. Consent was obtained from each participant for one semistructured interview which was audio recorded and transcribed verbatim. Framework analysis was used to analyse the data.SettingA large National Health Service Foundation Trust within the North East of England.ParticipantsA purposive sample of ten physiotherapy team leaders.ResultsThe theoretical leadership framework that emerged demonstrated the daily tensions experienced by physiotherapy team leaders in regard to being a transactional or transformational leader. Within this, three superordinate themes exist: the individual, the team and the organisation and beyond. Each theme contained barriers and enablers which related to transactional and transformational leadership styles, respectively.ConclusionsThe framework identified gives insight into a group of clinical leaders not yet explored and provides a foundation for the development of leadership behaviours throughout physiotherapy. These clinicians should be supported by senior leaders to develop more transformational styles which have the potential to impact on staff well-being and patient care. Future research should compare these findings with studies involving larger sample sizes that span the health and social care system.
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Zennaro, Carlotta. "What Is the Role of the Environment (Exposome) in Inflammatory Bowel Disease?" EMJ Gastroenterology, March 17, 2022, 20–22. http://dx.doi.org/10.33590/emjgastroenterol/22f0317-2.

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OPENING Day 2 of the 17th Congress of European Crohn’s and Colitis Organisation (ECCO), James Lindsay, Professor of Inflammatory Bowel Disease, Barts Health NHS Trust, London, UK, and The London School of Medicine, Queen Mary University of London, UK, discussed the influence of the environment on the risk of developing inflammatory bowel disease (IBD). The presentation discussed the pathways that mediate environmental impact on IBD as well as the limitations of presently available research, giving a valuable insight into what future studies could be conducted to ultimately determine the role of environmental factors in IBD. The present understanding of IBD, an inflammatory disease, which includes Crohn’s disease (CD) and ulcerative colitis (UC), is that the condition arises from an immune response to micro-organisms of the intestinal flora in genetically susceptible individuals. In addition to disease pathogenesis, other important aspects such as progression, extraintestinal manifestations, and immunogenicity to therapies, are yet to be well understood. While the genetics base is clear, it does not account for the discordance of disease in monozygotic twins, the increased incidence in second generation immigrants, or the rapid increase in IBD cases in the last 50 years. In light of these observations, Lindsay expressed the importance of examining the role of the environment, which, he stressed, does not comprise a single factor, but a multitude of factors that are likely to impact disease onset and natural history.
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Rodgers, F., A. Abbara, and M. Omar. "The benefits and challenges of cash transfer programmes in Greece, with a focus on protection." European Journal of Public Health 29, Supplement_4 (2019). http://dx.doi.org/10.1093/eurpub/ckz186.071.

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Abstract Introduction This qualitative study evaluates cash transfer programmes (CTPs) in forcibly displaced populations, specifically in Greece. There is a focus on protection, encompassing health, gender, child protection and disability. The Greece Cash Alliance, run by the United Nations High Commissioner for Refugees (UNHCR), currently supports 63,853 individuals with cash via a pre-paid card. This study provides insight into challenges encountered by implementers of cash programmes in Greece, and the potential protection issues faced with the changing climate of the cash programme in Greece. Methods A literature review of academic and grey literature and semi-structured key informant interviews with stakeholders including Non-Governmental Organisation and United Nations agency staff were performed. Key informants were identified through purposive sampling. An inductive thematic approach was taken in analysis. Results Main emerging themes included the benefits and challenges of CTPs and their role in protection. Challenges included the mobile, heterogenous population and benefits included economic development in Greece and restored choice to beneficiaries. With regards to protection, informants reported a positive impact through allowing refugees to meet their basic needs and prioritise other needs and CTPs providing consistent access to refugees which could allow identification of protection risks. However, protection was not considered in the design of all CTPs. Conclusions Due to the multi-sectoral nature of the response, there is no standard integration of protection into cash programmes. Cash programming offers unique, regular contact with beneficiaries and chances to identify protection risks that are not always utilised due to minimal staff training in protection. Cash assistance in Greece allows people to meet their basic needs and gives people space and funds to prioritise other needs such as health and education, inherently improving their protection status. Key messages With cash assistance growing in popularity in humanitarian programming, consideration of protection is important as it can improve the health, safety and dignity of beneficiaries. In Greece the cash programme was only designed to meet basic needs but broader effects on protection were seen.
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Bam, Armand, and Linda Ronnie. "Inclusion at the Workplace: An Exploratory Study of People with Disabilities in South Africa." International Journal of Disability Management 15 (2020). http://dx.doi.org/10.1017/idm.2020.5.

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Abstract Research on the employment experiences of persons with disabilities on a global level indicates that this group is faced with the challenge of inclusion in the workplace. While South Africa has a well-defined legislative framework that has been determined in consultation with disabled people’s organisations, compliance with legislation appears to have failed to ensure that employment targets are met. As a response to these challenges, this study explored the early inclusion experiences of persons with disabilities in the workplace via a qualitative, explorative, case study. Semi-structured interviews were conducted with 12 people with a range of different disabilities and working for different organisations, in order to provide insight into the initial experiences of inclusion for persons with disabilities in the workplace. Findings showed challenges in induction and orientation practices, struggles with disclosure of disability to coworkers, a desire to strive for ‘normality’, and frustration and vulnerability in the workplace. Taken together, the findings point to the importance of early experiences of inclusion in the workplace – that is, inclusionary practices during the employee induction phase. This study offers insights to organisations and management practitioners for the promotion of better employment experiences. Recommendations include the appointment of a disability champion to account for disability equity within the organisation, the development of more inclusive recruitment and orientation practices, drawing on coworkers for support, and the active involvement of persons with disabilities in shaping onboarding processes. Embarking on these steps may ultimately result in a more diverse workforce within South Africa.
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Fillis, Ian, Boram Lee, and Ian Fraser. "The role of institutional relationships in shaping the career development of emerging artists." Arts and the Market, August 9, 2022. http://dx.doi.org/10.1108/aam-04-2022-0021.

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PurposeThe authors consider the role of institutional relationships in providing an exhibition as a launching platform for emerging artists to develop their careers, as well as contributing to the broader creative economy. The authors view this as an entrepreneurial intervention in challenging the status quo through its potential to stimulate artist career development.Design/methodology/approachData were collected using a case study approach in order to understand the complex inter-relationships between stakeholders of an emerging artists' exhibition at a well-known art institution. A total of 26 interviews were held with a selection of the exhibiting artists, artists from previous years' exhibitions, institution staff, the exhibition selection panel and major prize givers.FindingsThe main relationship value created by the institution as perceived by the exhibiting artists was high-level publicity and exposure of their work. Related benefits such as the potential to build career-enhancing networks were also emphasised. Some of the artists interviewed were aware of the art market structure and how they could create and sustain value within it. Others expressed a lack of awareness of and interest in its operationalisation where more assistance from the institution could help.Research limitations/implicationsThis research focussed on the institutional relationships relating to one organisation, albeit one which leads the way in terms of helping to accelerate emerging artist careers. However, best practice lessons emerge from the research in terms of informing similar institutions elsewhere. The authors move beyond quantitative measurement of cultural value activities in developing in-depth qualitative insight into these relationships so that more nuanced understanding is revealed.Practical implicationsThere is a need to develop pathways to assist new graduates and for a more strategic focus by art institutions to help develop their careers by creating and sustaining impact and engagement in the marketplace. This will be of interest to policy makers in helping to shape programmes of assistance in the future beyond the art institution. The authors also uncover broader cultural value impacts beyond the exhibition site where these institutional relationships can contribute positively to health and well-being.Originality/valueThe exhibition is one of only a very limited number of similar events throughout the UK and can be viewed as a successful entrepreneurial intervention.
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Oliver, Nathan, Kirsty Marks, Siobhan Connolly, and Ashley Meldrum. "Exploding silos: hacks in creating national simulation networks." International Journal of Healthcare Simulation, November 15, 2022. http://dx.doi.org/10.54531/wgfe8219.

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Silos of work are a reality in virtually every large organisation and invariably create duplicated workloads, inefficiencies, and in some cases a sense of ‘tribalism’ which risks the integrity and effectiveness of teams [1]. As simulation-based education gains traction and momentum as a teaching approach across Scotland and the UK, silos of work have emerged and risk the effectiveness and efficiency of programme delivery. Our aim was to create an effective simulation user network across the 14 Health Boards of Scotland to eliminate silos and create a collaboration of work across the country. Thanks to an investment from NHS Education for Scotland (NES), insight from the NHS Scotland Academy, and the expertise of the Clinical Skills Managed Education Network (CSMEN), a team of regional Senior Educators were recruited to create a functional regional and national collaborative for simulation in Scotland. The story here is how the team have come together and the lessons learned in networking, negotiating, and establishing a new and growing sense of collegiately across the country. Starting in the East of Scotland, a questionnaire was designed and delivered across simulation teams and stakeholders across four Health Boards. The data collected was used to feed discussion at an East Scotland Simulation Collaborative scoping meeting which was attended by representatives of all four Health Boards and included medics, nurses, physiotherapists, and pharmacist teams delivering simulation to both undergraduate and postgraduate teams. An East Scotland Simulation Collaborative has been formally established with its inaugural meeting in Autumn 2023. An online space has been established to promote communication and the sharing of resources, and both a quarterly meeting and annual faculty development day designed for the group. Discussions are now ongoing for the development of an East Scotland Simulation Research group to develop new opportunities to conduct multisite studies for the first time. From a national perspective, North and West Scotland Simulation Collaborative groups are now in their formation stages. Like weeds in a garden, silos of work will grow all by itself. Like roses in a garden, an effective network takes both time and tending, but the investment pays dividends. 1. Beattie A. War and peace among the health tribes. 1995. In: Soothill K, Mackay L, Webb C (Eds). Interprofessional relations in health care. London: Edward Arnold.
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Burns, Joseph, Amy Basken, Rebeka Acosta, Mauricio Garnier-Villarreal, Aparna Kulkarni, and Denise A. Hayes. "Identification of research priorities in CHD: empowering patients and families through participation in the development of formal research agendas." Cardiology in the Young, March 24, 2022, 1–6. http://dx.doi.org/10.1017/s104795112200066x.

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Abstract Background: Conquering CHD, formerly known as the Pediatric Congenital Heart Association (PCHA), is the leading congenital heart disease (CHD) patient advocacy organisation in the United States of America, and places high priority on patient engagement in the research process. Participatory design is an approach to problem-solving that utilises the knowledge and opinions of groups of people to generate plans and new ideas. Utilising this mode of patient engagement, patients and families engaged with Conquering CHD assisted in developing a list of research priorities which was then distributed to the larger membership with instructions to rank the priorities in order of importance. Upon completion, these items were compared to the current scientific literature to assess correlation with current publications. This cross-sectional study and literature review aimed to assess the priorities of patients and families in CHD research and to determine the reflection of these areas in the current body of scientific literature. Methods: This cross-sectional study utilised a survey asking participants to rank the importance of research items within categories including “Technology Advances,” “Genetic and Cellular Research,” “Broad Understanding of CHD,” and “Psychosocial Outcomes” which was distributed through social media and email to 43,168 accounts across all platforms. Respondents were asked to place each item in a ranked order in each category, with the value “1” representing the most preferred for each participant. Anyone engaged with Conquering CHD was eligible to complete the study, including patients and families. Subsequently, a literature review of the largest medical databases including PubMed, Scopus, and ScienceDirect was undertaken to determine the number of articles published per each topic which was then assessed to determine if there is a correlation between patient-ranked priorities and the current body of literature. Results: The study generated a total response of 527 participants. Regarding “Technology Advances,” valve replacement was the preferred topic (mean rank 2.07, IQR 2). Stem cell research was the favoured topic in “Genetic and Cellular Research” (mean rank 2.53, IQR 2). Access to care was the priority in the “Broadening Understanding of CHD” (mean rank 1.24, IQR 1). Pertaining to “Psychosocial Outcomes”, psychological/emotional effects was the highest ranked topic (mean rank 1.46, IQR 1). The literature review returned a total of 135,672 articles in the areas of interest. For “Valve Replacement”, 8361 articles resulted reflecting a proportion of 0.097 of total articles. For “Stem Cell Research”, 9921 articles resulted reflecting a proportion of 0.115 of total articles. For “Access to Care”, 7845 articles resulted reflecting a proportion of 0.091 of total articles. For “Psychological/Emotional Effects”, 6422 articles resulted reflecting a proportion of 0.074 of total articles. A Spearman’s correlation demonstrated no correlation between the preferred domain of CHD research and the number of articles published for that domain (rs = 0.02, p = 0.94). Conclusions: This process demonstrates the effectiveness of participatory design, using a patient and family network to determine the research items of concern to those affected by CHD. The cross-sectional survey was effective in assessing patient and family priorities but was limited by access to reliable internet and delivery only in English. Though the study had a large response rate, it was limited to patients already engaged with Conquering CHD. For these reasons, it may not completely reflect the opinions of the total population affected by CHD. However, this offers valuable insight into patient-determined priorities and reveals that the current scientific literature does not correlate with these items. These data serve to inform individual and institutional research agendas to better reflect the needs and desires of this population.
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Zaat, T., J. P. De Bruin, M. Goddijn, M. Van Wely, and F. Mol. "P-499 Facilitators and barriers for home-based monitoring to time frozen embryo transfers in IVF." Human Reproduction 37, Supplement_1 (2022). http://dx.doi.org/10.1093/humrep/deac105.121.

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Abstract Study question What are the facilitators and barriers concerning the implementation of home-based monitoring for natural-cycle-frozen-embryo-transfer (NC-FET) from perspective of patients and healthcare providers in the Netherlands? Summary answer Most important facilitator was optimal pregnancy chance, and most important barriers were risk of missing an ovulation for patients and laboratory capacity for healthcare providers. What is known already The number of FET cycles is increasing, mainly due to improvement in laboratory techniques. Based on current evidence, there is no difference in effectiveness when NC-FET is compared to artificial-cycle-FET (AC-FET) in ovulatory women. However, NC-FET is associated with lower risk of adverse obstetric and neonatal outcomes compared with AC-FET. NC-FET is performed based on ovulation monitoring, which can be hospital-based (ultrasounds and ovulation triggering) or home-based (LH-urine-tests). Home-based-monitoring has the advantage of being the most natural protocol for FET. A systematic approach for the implementation of home-based monitoring has to start with exploring the perspectives of all stakeholders. Study design, size, duration Both patients and healthcare providers participated in the present study. A panel of experts (n = 8) hypothesised on barriers and facilitators for the implementation of home-based-monitoring during the proposal phase of the Antarctica-2 randomised controlled trial. Two different questionnaires were developed in order to investigate facilitators and barriers for patients and for health care providers. Participants/materials, setting, methods The following stakeholders participated in the study: Patients – represented by the Dutch Patient Organisation for Couples with Fertility Problems. Healthcare providers – represented by gynaecologists (Netherlands Society of Obstetrics and Gynaecology), embryologists (Dutch Federation of Clinical Embryology) and fertility doctors. Based on our power analysis we aimed for 300 completed questionnaires for the patients and a 90 completed questionnaires for the health care providers. Facilitators and barriers were analysed using frequencies, mean (SD) and ranking. Main results and the role of chance A total of 311 patients filled out the questionnaire of whom 86.8% underwent FET previously. The facilitators and barriers were ranked on a scale of 1-10 with 10 being very important. The highest priority for the patients was to implement the strategy with the highest chance of pregnancy (mean 9.7; 95% CI 9.6 – 9.7) and the lowest priority risk of missing the ovulation (mean 8.4; 95% CI 8.2 – 8.6)). A total of 96 health care providers filled out the questionnaire. According to health care providers patients would accept the strategy when it causes less interference with patients’ work and private life (mean 7.5; 95% CI 7.1 – 8.0) and with a low risk of missing the ovulation (mean 7.6; 95% CI 7.1 – 8.0). The most important facilitator for implementation of home-based monitoring for health care workers was optimising cumulative pregnancy rates (mean 8.1; 95% CI 7.7 – 8.4) and most important barrier the lack of laboratory capacity and flexibility (mean 6.4; 95% CI 5.8 – 7.0). Limitations, reasons for caution The barrier lack of laboratory capacity especially in weekends might differ between centres. We did not identify the number of centres who might experience this problem. Furthermore, these results only apply for the applicability of NC-FET in the Netherlands. Wider implications of the findings Our interpretation is that NC-FET is the preferred treatment in ovulatory women. We gained insight in the facilitators and barriers for implementation of NC-FET. Discussing results of this study with all stakeholders involved should stimulate incorporation in guidelines, especially as key professionals in guideline development took part in this study. Trial registration number The Antarctica-2 RCT (NTR: 27578) is supported by a grant of the Netherlands Organisation for Health Research and Development (ZonMw 843002807).
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48

Zaat, T. R., J. P. de Bruin, F. Mol, and M. van Wely. "Facilitators and barriers for home-based monitoring to time frozen embryo transfers in IVF among women and healthcare providers." Human Reproduction Open, May 30, 2022. http://dx.doi.org/10.1093/hropen/hoac021.

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Abstract STUDY QUESTION What are the facilitators and barriers concerning the implementation of home-based monitoring for natural cycle frozen embryo transfer (NC-FET) from the perspectives of patients and healthcare providers in the Netherlands? SUMMARY ANSWER The most important facilitator was optimal pregnancy chance for both the patients and healthcare providers, and the most important barriers were risk of missing an ovulation for the patients and laboratory capacity for the healthcare providers. WHAT IS KNOWN ALREADY The share of FET cycles in IVF treatments is increasing and therefore it is important to optimize protocols for FET. Monitoring of ovulation, which is used in NC-FET, can be hospital-based (ultrasounds and ovulation triggering) or home-based (LH urine tests). Home-based monitoring has the advantage of being the most natural protocol for FET and provides the feeling of empowerment and discretion for patients. A systematic approach for the implementation of home-based monitoring has to start with an exploration of the perspectives of all stakeholders. STUDY DESIGN, SIZE, DURATION Stakeholders (patients and healthcare providers) involved in the implementation process in the Netherlands participated in the present study. Patients were represented by the Dutch Patient Organisation for Couples with Fertility Problems (FREYA) and healthcare providers were represented by gynaecologists and their society (The Netherlands Society of Obstetrics and Gynaecology), embryologists and their society (The Dutch Federation of Clinical Embryology) as well as fertility doctors. A panel of experts hypothesised on barriers and facilitators for the implementation of home-based monitoring during the proposal phase of the Antarctica-2 randomised controlled trial (RCT). PARTICIPANTS/MATERIALS, SETTING, METHODS All stakeholders were represented during the study. Two different questionnaires were developed in order to investigate facilitators and barriers for the patients and for healthcare providers. The facilitators and barriers were ranked on a scale of 1-10 with 10 being the most important. Based on our power analysis we aimed for a minimum of 300 completed questionnaires for the patients and a minimum of 90 completed questionnaires for the healthcare providers. Facilitators and barriers were analysed using frequencies, mean (SD) and ranking. MAIN RESULTS AND THE ROLE OF CHANCE A total of 311 patients filled out the questionnaire of whom 86.8% underwent FET previously. The most important facilitator for the patients was to implement the strategy with the highest chance of pregnancy (mean 9.7; 95% CI 9.6–9.7) and the most important barrier was risk of missing ovulation (mean 8.4; 95% CI 8.2–8.6). A total of 96 healthcare providers filled out the questionnaire. According to healthcare providers, patients would accept the strategy when it causes less interference with their work and private life (mean 7.5; 95% CI 7.1–8.0) and has a low risk of missing the ovulation (mean 7.6; 95% CI 7.1–8.0). The most important facilitator for implementation of home-based monitoring for healthcare providers was optimising cumulative pregnancy rates (mean 8.1; 95% CI 7.7–8.4) and most important barrier was the lack of laboratory capacity and flexibility (mean 6.4; 95% CI 5.8–7.0). LIMITATIONS, REASONS FOR CAUTION Facilitators and barriers were selected based on expert opinion. Currently there are no validated questionnaires that aim to assess facilitators and barriers for implementation of treatments in fertility care. WIDER IMPLICATIONS OF THE FINDINGS During our study we gained insight into barriers and facilitators for implementation of home-based monitoring of NC-FET at an early phase. Early sharing and discussion of the results of this study with all stakeholders involved should stimulate a fast incorporation in guidelines, especially as key professionals in guideline development took part in this study. Also, based on our results we can advise guideline developers to add tools to the guideline that may help overcome the implementation barriers. STUDY FUNDING/COMPETING INTERESTS The Antarctica-2 RCT is supported by a grant from the Netherlands Organisation for Health Research and Development (ZonMw 843002807). No authors have any competing interests to declare. TRIAL REGISTRATION NUMBER Trial NL6414 (NTR6590).
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Razzi, F., E. Regar, J. Dijkstra, et al. "Relation between pre-existing plaque size and neointimal healing in an adult porcine model of familial hypercholesterolemia." European Heart Journal 41, Supplement_2 (2020). http://dx.doi.org/10.1093/ehjci/ehaa946.2542.

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Abstract Background Despite the efficacy of novel drug eluting stents (DES) in preventing restenosis, this complication still occurs, as do neo-atherosclerosis development and poor stent strut coverage that are associated with stent thrombosis. Safety and efficacy of novel coronary stents are preclinically being tested using an established porcine coronary model. However, the use of young healthy animal only allow limited conclusions to be drawn on the long-term effects, as the artieries do not reflect human pathology of advanced atherosclerosis. A key unresolved question is whether and how the presence, size and composition of pre-existing atherosclerotic plaque affect neointimal healing. Purpose The objective of this study is to understand the role of atherosclerotic plaque in neointimal response following DES placement in a large animal model of coronary artery disease by using optical coherence tomography (OCT) analysis. Methods The study was approved by the animal ethics committee. Familial hypercholesterolemia (FH) swine (n=6 Bretoncelles-Meishan) were given a high fat diet for 12 months to develop atherosclerosis. Stents (n=14) were implanted in n=14 coronary arteries under guidance of OCT with a stent-artery ratio of 1.1:1 at sites of atherosclerotic plaque, and animals were sacrificed after 28 days. Two types of Sirolimus eluting stents with different release profiles were implanted. Serial OCT pullbacks were taken before and after stent placement and after 28 days (follow-up), quantitatively analyzed and compared using dedicated software. The lumen area, stent area, plaque size (calculated as external elastic lamina (EEL) area - lumen area) and neointima (calculated as stent area – lumen area) were evaluated for each frame and averaged per stent. The plaque burden before stent implantation was evaluated at the same site of stent placement using coronary side branches as reference. Results The graph shows the association between the pre-existing plaque size before stenting and neointima formation after 28 days. Surprisingly, more pre-existing plaque size resulted in less neointima (P<0.01). There was one outlier, a stent with long dissection and extensive malapposition at baseline which showed an excessive tissue response at follow-up. The response in this animal model shows similarity to human vessel response as both regions with thin neointima formation as well as poor strut coverage were observed for both stent types. Conclusion The novel model of adult FH swine shows long-term vessel response to DES, that is similar to human response. This work shows that pre-existing atherosclerotic plaque affects the neointima after DES implantation. This insight highlights the necessity to use relevant disease models for safety and efficacy testing. Plaque size and neointima relation Funding Acknowledgement Type of funding source: Public grant(s) – National budget only. Main funding source(s): The Netherlands Organisation for Health Research and Development (ZonMw)
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Gilbert, Paul, Jaskaran K. Basran, Joanne Raven, et al. "Compassion Focused Group Therapy for People With a Diagnosis of Bipolar Affective Disorder: A Feasibility Study." Frontiers in Psychology 13 (July 20, 2022). http://dx.doi.org/10.3389/fpsyg.2022.841932.

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BackgroundCompassion focused therapy (CFT) is an evolutionary informed, biopsychosocial approach to mental health problems and therapy. It suggests that evolved motives (e.g., for caring, cooperating, competing) are major sources for the organisation of psychophysiological processes which underpin mental health problems. Hence, evolved motives can be targets for psychotherapy. People with certain types of depression are psychophysiologically orientated towards social competition and concerned with social status and social rank. These can give rise to down rank-focused forms of social comparison, sense of inferiority, worthlessness, lowered confidence, submissive behaviour, shame proneness and self-criticism. People with bipolar disorders also experience elevated aspects of competitiveness and up rank status evaluation. These shift processing to a sense of superiority, elevated confidence, energised behaviour, positive affect and social dominance. This is the first study to explore the feasibility of a 12 module CFT group, tailored to helping people with a diagnosis of bipolar disorder understand the impact of evolved competitive, status-regulating motivation on their mental states and the value of cultivating caring and compassion motives and their psychophysiological regulators.MethodsSix participants with a history of bipolar disorder took part in a CFT group consisting of 12 modules (over 25 sessions) as co-collaborators to explore their personal experiences of CFT and potential processes of change. Assessment of change was measured via self-report, heart rate variability (HRV) and focus groups over three time points.ResultsAlthough changes in self-report scales between participants and across time were uneven, four of the six participants consistently showed improvements across the majority of self-report measures. Heart rate variability measures revealed significant improvement over the course of the therapy. Qualitative data from three focus groups revealed participants found CFT gave them helpful insight into: how evolution has given rise to a number of difficult problems for emotion regulation (called tricky brain) which is not one’s fault; an evolutionary understanding of the nature of bipolar disorders; development of a compassionate mind and practices of compassion focused visualisations, styles of thinking and behaviours; addressing issues of self-criticism; and building a sense of a compassionate identity as a means of coping with life difficulties. These impacted their emotional regulation and social relationships.ConclusionAlthough small, the study provides evidence of feasibility, acceptability and engagement with CFT. Focus group analysis revealed that participants were able to switch from competitive focused to compassion focused processing with consequent improvements in mental states and social behaviour. Participants indicated a journey over time from ‘intellectually’ understanding the process of building a compassionate mind to experiencing a more embodied sense of compassion that had significant impacts on their orientation to (and working with) the psychophysiological processes of bipolar disorder.
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