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1

Lenk, Christian, Judit Sándor, and Bert Gordijn, eds. Biobanks and Tissue Research. Springer Netherlands, 2011. http://dx.doi.org/10.1007/978-94-007-1673-5.

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1958-, Gottweis Herbert, and Petersen, Alan R., Ph. D., eds. Biobanks: Governance in comparative perspective. Routledge, 2008.

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3

Gert, Almind, ed. Health science information banks: Biobanks. Danish Medical Research Council, 1996.

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4

1958-, Gottweis Herbert, and Petersen, Alan R., Ph. D., eds. Biobanks: Governance in comparative perspective. Routledge, 2008.

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5

Robbio, Antonella De. Biobanks: Patents or open science? Woodhead Publishing, 2013.

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6

Matera-Witkiewicz, Agnieszka, Joanna Gleńska-Olender, Izabela Uhrynowska-Tyszkiewicz, et al. Manual of Biobank Quality Management. Springer International Publishing, 2023. http://dx.doi.org/10.1007/978-3-031-12559-1.

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7

1975-, Nishi Yoshito, ed. Coca: Un biobanco : investigación científica sobre alimentación, curación y regeneración. t'ika & teko, 2012.

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8

Chen, Zhengming, ed. Population Biobank Studies: A Practical Guide. Springer Singapore, 2020. http://dx.doi.org/10.1007/978-981-15-7666-9.

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9

1962-, Kaye Jane, and Stranger Mark, eds. Principles and practice in biobank governance. Ashgate, 2009.

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10

Institute, Cambridge Healthtech. The Science of BioBanking: Investing in the future : November 16-17, 2009, Crowne Plaza, Philadelphia City Center, Philadelphia, PA : highlights of conference presentations. Cambridge Healthtech Institute, 2009.

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11

Pascuzzi, Giovanni, Umberto Izzo, and Matteo Macilotti, eds. Comparative Issues in the Governance of Research Biobanks. Springer Berlin Heidelberg, 2013. http://dx.doi.org/10.1007/978-3-642-33116-9.

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12

Dierickx, Kris. New challenges for biobanks: Ethics, law, and governance. Intersentia, 2009.

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13

Kris, Dierickx, and Borry Pascal 1976-, eds. New challenges for biobanks: Ethics, law, and governance. Intersentia, 2009.

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14

Kaye, Jane. Governing biobanks: Understanding the interplay between law and practice. Hart Pub., 2012.

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15

Gordijn, Bert, Christian Lenk, and Judit Sándor. Biobanks and tissue research: The public, the patient and the regulation. Springer, 2011.

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16

Sargsyan, Karine, Berthold Huppertz, and Svetlana Gramatiuk, eds. Biobanks in Low- and Middle-Income Countries: Relevance, Setup and Management. Springer International Publishing, 2022. http://dx.doi.org/10.1007/978-3-030-87637-1.

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17

Beier, Katharina, Silvia Schnorrer, Nils Hoppe, and Christian Lenk, eds. The ethical and legal regulation of human tissue and biobank research in Europe. Göttingen University Press, 2011. http://dx.doi.org/10.17875/gup2011-386.

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18

Panel, Connecticut Biobank Feasibility Expert. Feasibility study for a statewide biobank to study preterm births and birth defects: A report to the Commissioner, Department of Public Health. Connecticut Dept. of Public Health, 2007.

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19

Connecticut. Biobank Feasibility Expert Panel. Feasibility study for a statewide biobank to study preterm births and birth defects: A report to the Commissioner, Department of Public Health. Connecticut Dept. of Public Health, 2007.

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20

Issenhuth-Scharly, Ghislaine. Autonomie individuelle et biobanques: Étude de droit comparé (droit européen, droit franc̦ais, droit suisse). Schulthess Médias Juridiques, 2009.

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21

Pascuzzi, Giovanni. Comparative Issues in the Governance of Research Biobanks: Property, Privacy, Intellectual Property, and the Role of Technology. Springer Berlin Heidelberg, 2013.

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22

Solbakk, Jan Helge. The ethics of research biobanking. Springer, 2009.

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23

De Robbio, Antonella. Biobanks. Woodhead Publishing Limited, 2013. http://dx.doi.org/10.1533/9781908818614.

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24

Gottweis, Herbert, and Alan Petersen, eds. Biobanks. Routledge, 2008. http://dx.doi.org/10.4324/9780203927991.

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25

Hoffman, Paul, and Marius Illie. Biobanks. Elsevier, 2020.

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26

Hoffman, Paul, and Marius Illie. Biobanks. ISTE Press Limited - Elsevier Incorporated, 2020.

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27

Gibbons, Susan M. C. Governing Biobanks. Bloomsbury Publishing Plc, 2012.

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28

Reciprocity in Population Biobanks. Elsevier, 2022. http://dx.doi.org/10.1016/c2020-0-04162-9.

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29

Sleeboom-Faulkner, Margaret. Human Genetic Biobanks in Asia. Routledge, 2008. http://dx.doi.org/10.4324/9780203884607.

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30

Elger, Bernice. Ethical Issues in Governing Biobanks. Routledge, 2016. http://dx.doi.org/10.4324/9781315580289.

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31

Biobanks: Governance in Comparative Perspective. Taylor & Francis Group, 2008.

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32

Biobanks: Governance in Comparative Perspective. Routledge, 2008.

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33

Of Populations, Biobanks and Ethics. Recorded Books, 2003.

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34

Biobanks: Governance in Comparative Perspective. Routledge, 2008.

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35

Petersen, Alan, and Herbert Gottweis. Biobanks: Governance in Comparative Perspective. Taylor & Francis Group, 2008.

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36

Robbio, Antonella De. Biobanks: Patents or Open Science? Elsevier Science & Technology, 2012.

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37

Petersen, Alan, and Herbert Gottweis. Biobanks: Governance in Comparative Perspective. Taylor & Francis Group, 2008.

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38

Biobanks: Governance in Comparative Perspective. Taylor & Francis Group, 2008.

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39

Matera-Witkiewicz, Agnieszka, Joanna Gleńska-Olender, Izabela Uhrynowska-Tyszkiewicz, Małgorzata Witoń, and Karolina Zagórska. Manual of Biobank Quality Management. Springer International Publishing AG, 2022.

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40

Manual of Biobank Quality Management. Springer International Publishing AG, 2024.

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41

Gao, Hengjun. Exploration and Practice in Clinical Biobanks. Springer, 2023.

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42

Hallinan, Dara. Protecting Genetic Privacy in Biobanking through Data Protection Law. Oxford University Press, 2021. http://dx.doi.org/10.1093/oso/9780192896476.001.0001.

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Biobanks are critical infrastructure for medical research. Biobanks, however, are also the subject of considerable ethical and legal uncertainty. Given that biobanks process large quantities of genomic data, questions have emerged as to how genetic privacy should be protected. What types of genetic privacy rights and rights holders should be protected and to what extent? Since 25 May 2018, the General Data Protection Regulation (GDPR) has applied and now occupies a key position in the European legal framework for the regulation of biobanking. This book takes an in-depth look at the function, p
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43

Principles and practice in biobank governance. Ashgate, 2009.

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44

Stranger, Mark. Principles and Practice in Biobank Governance. Routledge, 2016. http://dx.doi.org/10.4324/9781315602158.

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45

Stranger, Mark, and Jane Kaye. Principles and Practice in Biobank Governance. Taylor & Francis Group, 2016.

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46

Stranger, Mark, and Jane Kaye. Principles and Practice in Biobank Governance. Taylor & Francis Group, 2016.

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47

Chen, Zhengming. Population Biobank Studies: A Practical Guide. Springer Singapore Pte. Limited, 2020.

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48

Chen, Zhengming. Population Biobank Studies: A Practical Guide. Springer Singapore Pte. Limited, 2021.

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49

Stranger, Mark, and Jane Kaye. Principles and Practice in Biobank Governance. Taylor & Francis Group, 2016.

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50

Capron, Alexander M., Nikola Biller-Andorno, and Bernice Elger. Ethical Issues in Governing Biobanks: Global Perspectives. Taylor & Francis Group, 2016.

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