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Journal articles on the topic 'Biobanca'

Author: Grafiati

Published: 9 March 2023

Last updated: 31 July 2025

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1

Meškys, Edvinas. "BIOBANKŲ SAMPRATA IR STATUS QUO LIETUVOJE." Teisė 92 (February 11, 2015): 80–95. http://dx.doi.org/10.15388/teise.2014..3908.

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 Šiame straipsnyje siekiama atskleisti žmogaus biobanko sampratą ir parodyti šios sampratos įvairiapusiškumą užsienio šalių praktikoje, dėl kurio dažnai atsiranda teisinių kliūčių bendrai plėtoti tarpvalstybinius ar tarptautinius mokslinius projektus, kurti europinį biobankų tinklą. Kartu bandoma palyginti biobanką su kitomis biologinių mėginių kolekcijomis ir nustatyti, koks biobanko apibrėžimas galėtų būti priimtinas Lietuvoje. Galiausiai, daug dėmesio straipsnyje skiriama atskirų Lietuvos Respublikos įstatymų analizei, siekiant įvertinti, ar esama teisinė aplinka sukuria pakankamą pag

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Meškys, Edvinas. "TRADICINIO INFORMUOTO ASMENS SUTIKIMO PRITAIKYMO MOKSLINIAMS BIOBANKAMS LIETUVOJE GALIMYBĖS." Teisė 92 (February 11, 2015): 96–108. http://dx.doi.org/10.15388/teise.2014..3907.

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 Šiame straipsnyje siekiama įvertinti medicinos praktikoje išvystyto informuoto asmens sutikimo pritaikymo problematiką mokslinių biobankų veikloje, tai yra, paimant, tvarkant ir atliekant tyrimus su iš žmogaus gauta biologine medžiaga (organais ar jų dalimis, audiniais, ląstelėmis ar jų komponentais), su šia medžiaga susijusia medicinine ar kita asmenį identifikuojančia informacija. Straipsnyje analizuojama, ar nežinant mokslinio tyrimo tikslo, jo trukmės ir galimų padarinių, bei galimo kito, nei buvo išreikštas sutikimas, panaudojimo tikslo asmuo gali būti laikomas tinkamai sutikęs dal

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Veloza Cabrera, Luis Alberto, Carolina Wiesner Ceballos, Martha Lucía Serrano López, Nelsy Ruth Peñaranda Correa, and Antonio Huertas Salgado. "Consideraciones éticas y legales de los biobancos para investigación." Revista Colombiana de Bioética 5, no. 1 (2015): 121. http://dx.doi.org/10.18270/rcb.v5i1.1287.

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<p> Un biobanco es una colección de muestras biológicas y datos asociados con fines diagnósticos, terapéuticos o de investigación. Las actividades llevadas a cabo por los bancos de muestras biológicas conllevan muchos dilemas éticos y legales, por lo que en el ámbito internacional existen diversas normas y recomendaciones establecidas para salvaguardar los derechos de los donantes. En Colombia, el Instituto Nacional de Cancerología considera prioritario la creación de un biobanco con fines de investigación. El propósito de este artículo es realizar una revisión de la literatura, internac

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Salokannel, Marjut, Heta Tarkkala, and Karoliina Snell. "Legacy samples in Finnish biobanks: social and legal issues related to the transfer of old sample collections into biobanks." Human Genetics 138, no. 11-12 (2019): 1287–99. http://dx.doi.org/10.1007/s00439-019-02070-0.

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Abstract Biobank operations started officially in Finland in 2013 when the Biobank Act defining and regulating biobank operations came into force. Since then, ten biobanks have been established and they have started to collect new prospective samples with broad consent. The main corpus of biobank samples, however, consists of approximately 10 million “legacy samples”. These are old diagnostic or research samples that were transferred to biobanks in accordance with the Biobank Act. The focus of this article is on ambiguities concerning these legacy samples and their transfer in terms of legalit

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Verlinden, Michiel, Herman Nys, Nadine Ectors, and Isabelle Huys. "Access to Biobanks: Harmonization Across Biobank Initiatives." Biopreservation and Biobanking 12, no. 6 (2014): 415–22. http://dx.doi.org/10.1089/bio.2014.0034.

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6

Artene, Stefan-Alexandru, Marius Eugen Ciurea, Stefana Oana Purcaru, et al. "Biobanking in a Constantly Developing Medical World." Scientific World Journal 2013 (2013): 1–5. http://dx.doi.org/10.1155/2013/343275.

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Biobank is a very sophisticated system that consists of a programmed storage of biological material and corresponding data. Biobanks are created to be used in medical research, in clinical and translational medicine, and in healthcare. In the past 20 years, a large number of biobanks have been set up around the world, to support the modern research directions in medicine such as omix and personalized medicine. More recently, embryonic and adult stem cell banks have been developed. Stem cell banking was reported to be required for medical research as well as clinical transplant applications. Th

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7

Kryukova, E. S., and V. D. Ruzanova. "Legal regime of biobanks in domestic legislation." Juridical Journal of Samara University 7, no. 1 (2021): 57–62. http://dx.doi.org/10.18287/2542-047x-2021-7-1-57-62.

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In the article on the basis of a critical analysis of the existing positions in the doctrine the concept of a biobank as an object of rights was formulated. At the same time, it is proposed to distinguish between the organizations in charge of biobanks and the collections themselves. It was concluded that biobank is a complex object, which is differentiated unity, since its elements, on the one hand, are autonomous, but on the other hand, are interconnected and interdependent. It is emphasized that the formation of a single legal regime of biobanks is complicated by the substantive heterogenei

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Kaye, Jane, Jessica Bell, Linda Briceno, and Colin Mitchell. "Biobank Report: United Kingdom." Journal of Law, Medicine & Ethics 44, no. 1 (2016): 96–105. http://dx.doi.org/10.1177/1073110516644202.

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The United Kingdom is a leader in genomics research, and the presence of numerous types of biobanks and the linking of health data and research within the UK evidences the importance of biobank-based research in the UK. There is no biobank-specific law in the UK and research on biobank materials is governed by a confusing set of statutory law, common law, regulations, and guidance documents. Several layers of applicable law, from European to local, further complicate an understanding of privacy protections. Finally, biobanks frequently contain data in addition to the samples; the legal framewo

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Cervo, Silvia, Paolo De Paoli, Tiziana Perin, Vincenzo Canzonieri, and Agostino Steffan. "Cost-Effective Organization of an Institutional Human Cancer Biobank in a Clinical Setting: CRO-Biobank Experience Toward Harmonization." International Journal of Biological Markers 30, no. 2 (2015): 243–51. http://dx.doi.org/10.5301/jbm.5000138.

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This report describes the organization of the Biobank of the CRO Aviano National Cancer Institute, Aviano (CRO- Biobank), Italy, implemented as a structured facility dedicated to collecting human biological samples. It describes a particular disease-specific biobank and the integration of a research biobank in a clinical setting. The CRO-Biobank's mission is rooted in supporting and implementing cancer research, with its main focus on optimizing technical and quality processes, while also investigating ethical, legal and IT topics. The CRO-Biobank has implemented processes aimed at guaranteein

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Jiménez-Gómez, Giovanny, María L. Luna-González, Silvia Becerra-Bayona, Norma Serrano Díaz, Elizabeth Guio-Mahecha, and René Lobo-Quintero. "Aplicación de las TIC para monitoreo remoto de biobancos con fines de investigación." Revista Facultad de Ciencias de la Salud UDES 4, no. 2.S1 (2017): 18. http://dx.doi.org/10.20320/rfcsudes.v4i2.s1.r05.

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Introducción. Los biobancos se encargan de gestionar colecciones de material biológico (MB) con fines diagnósticos o de investigación biomédica, por lo cual deben estar organizados como unidades técnicas con criterios de calidad, orden y destino. La Universidad Autónoma de Bucaramanga cuenta con un biobanco formado por ocho ultracongeladores que contienen MB colectado en proyectos de investigación y que requiere de supervisión para garantizar un entorno óptimo. Objetivo. Diseñar y validar un sistema de monitoreo para un biobanco utilizando hardware libre que vigile de manera constante las cond

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De Palma, Giuseppe, Giulia Bolondi, Antonio Tufaro, et al. "Identification and Assessment of Risks in Biobanking: The Case of the Cancer Institute of Bari." Cancers 14, no. 14 (2022): 3460. http://dx.doi.org/10.3390/cancers14143460.

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Although research biobanks are among the most promising tools to fight disease and improve public health, there are a range of risks biobanks may face that mainly need to be assessed in an attempt to be relieved. We conducted a strategic insurance review of an institutional cancer biobank with the aim of both identifying the insurable risks of our own Biobank and gathering useful evidence of primary exposure to insurable risks. In this practical scenario, risks have been outlined and categorized into inherent and residual risks, along with their possible impact on biobank maintenance. Results

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Zalaf, Bianca Rapini, Mayara Bringel, Paula Karine Jorge, et al. "A Biobank of Stem Cells of Human Exfoliated Deciduous Teeth: Overview of Applications and Developments in Brazil." Cells Tissues Organs 209, no. 1 (2020): 37–42. http://dx.doi.org/10.1159/000506677.

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A biobank is an organized collection of biological human material and its associated information stored for research according to regulations under institutional responsibility, without commercial purposes, being a mandatory and strategical activity for research, regenerative medicine, and innovation. Stem cells have largely been employed in research and frequently stored in biobanks, which have been used as an essential source of biological materials. Stem cells of human exfoliated deciduous teeth (SHED) are stem cells which have a high multipotency and can be easily obtained. Besides, this e

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Shickle, Darren, Marcus Griffin, and Karen El-Arifi. "Inter- and Intra-Biobank Networks: Classification of Biobanks." Pathobiology 77, no. 4 (2010): 181–90. http://dx.doi.org/10.1159/000292651.

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14

Karaman, Paola Andrea Paz. "BIOBANCOS: CASOS DE ESTUDIO Y LECCIONES PARA COLOMBIA." Revista de Direito Sanitário 16, no. 3 (2015): 102. http://dx.doi.org/10.11606/issn.2316-9044.v16i3p102-121.

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En este artículo se describen a partir de dos casos, el biobanco de Islandia y el de Estonia, los elementos característicos de cada biobanco y las condiciones necesarias para su creación. Igualmente se analizan el interés político, médico y económico vinculado a los biobancos en el marco de los derechos individuales y el Estado. Posteriormente se analiza la iniciativa de Proyecto de Ley que pretendía crear el primer banco de ADN financiado por el Estado colombiano, sus carencias y repercusiones en la sociedad colombiana.

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Sánchez-López, Ana María, Purificación Catalina, Fernando Franco, et al. "Data Model for the Comprehensive Management of Biobanks and Its Contribution to Personalized Medicine." Journal of Personalized Medicine 14, no. 7 (2024): 668. http://dx.doi.org/10.3390/jpm14070668.

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Biobanks are infrastructures essential for research involving multi-disciplinary teams and an increasing number of stakeholders. In the field of personalized medicine, biobanks play a key role through the provision of well-characterized and annotated samples protecting at the same time the right of donors. The Andalusian Public Health System Biobank (SSPA Biobank) has implemented a global information management system made up of different modules that allow for the recording, traceability and monitoring of all the information associated with the biobank operations. The data model, designed in

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McInnes, Gregory, Yosuke Tanigawa, Chris DeBoever, et al. "Global Biobank Engine: enabling genotype-phenotype browsing for biobank summary statistics." Bioinformatics 35, no. 14 (2018): 2495–97. http://dx.doi.org/10.1093/bioinformatics/bty999.

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Abstract Summary Large biobanks linking phenotype to genotype have led to an explosion of genetic association studies across a wide range of phenotypes. Sharing the knowledge generated by these resources with the scientific community remains a challenge due to patient privacy and the vast amount of data. Here, we present Global Biobank Engine (GBE), a web-based tool that enables exploration of the relationship between genotype and phenotype in biobank cohorts, such as the UK Biobank. GBE supports browsing for results from genome-wide association studies, phenome-wide association studies, gene-

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Hartung, Mara Lena, Ronny Baber, Esther Herpel, et al. "Harmonization of Biobank Education for Biobank Technicians: Identification of Learning Objectives." BioTech 10, no. 2 (2021): 7. http://dx.doi.org/10.3390/biotech10020007.

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The quality of biospecimens stored in a biobank depends tremendously on the technical personnel responsible for processing, storage, and release of biospecimens. Adequate training of these biobank employees would allow harmonization of correct sample handling and thus ensure a high and comparable quality of samples across biobank locations. However, in Germany there are no specific training opportunities for technical biobank staff. To understand the educational needs of the technical personnel a web-based survey was sent to all national biobanks via established e-mail registers. In total, 79

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Aquilante, Christina L., David P. Kao, Katy E. Trinkley, et al. "Clinical implementation of pharmacogenomics via a health system-wide research biobank: the University of Colorado experience." Pharmacogenomics 21, no. 6 (2020): 375–86. http://dx.doi.org/10.2217/pgs-2020-0007.

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In recent years, the genomics community has witnessed the growth of large research biobanks, which collect DNA samples for research purposes. Depending on how and where the samples are genotyped, biobanks also offer the potential opportunity to return actionable genomic results to the clinical setting. We developed a preemptive clinical pharmacogenomic implementation initiative via a health system-wide research biobank at the University of Colorado. Here, we describe how preemptive return of clinical pharmacogenomic results via a research biobank is feasible, particularly when coupled with str

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Shekhovtsov, Volodymyr A., and Johann Eder. "Metadata Quality for Biobanks." Applied Sciences 12, no. 19 (2022): 9578. http://dx.doi.org/10.3390/app12199578.

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The mission of biobanks is to provide biological material and data for medical research. Reproducible medical studies of high quality require material and data with established quality. Metadata, defined as data that provides information about other data, represents the content of biobank collections, particularly which data accompanies the stored samples and which quality the available data features. The quality of biobank metadata themselves, however, is currently neither properly defined nor investigated in depth. We list the properties of biobanks that are most important for metadata quali

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Kim, Jong Ok, Chungyeul Kim, Sangyong Song, et al. "Professional biobanking education in Korea based on ISO 20387." Journal of Pathology and Translational Medicine 59, no. 1 (2025): 11–25. https://doi.org/10.4132/jptm.2024.11.04.

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To ensure high-quality bioresources and standardize biobanks, there is an urgent need to develop and disseminate educational training programs in accordance with ISO 20387, which was developed in 2018. The standardization of biobank education programs is also required to train biobank experts. The subdivision of categories and levels of education is necessary for jobs such as operations manager (bank president), quality manager, practitioner, and administrator. Essential training includes programs tailored for beginner, intermediate, and advanced practitioners, along with customized training f

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Aleni, Chiara, Carmela Rinaldi, Valentina Bettio, et al. "Public Attitude towards Biobanking: An Italian University Survey." International Journal of Environmental Research and Public Health 19, no. 20 (2022): 13041. http://dx.doi.org/10.3390/ijerph192013041.

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Biobanks have established a critical role in biomedical research by collecting, preserving, organizing, and disseminating biospecimens and related health data, contributing to precision medicine development. Participation in biobanks is influenced by several factors, such as trust in institutions and scientists, knowledge about biobanking, and the consideration of benefit sharing. Understanding public attitudes, fears, and concerns toward biobanking is fundamental to designing targeted interventions to increase trust towards biobanks. The aim of our study was to investigate the level of knowle

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Antonova, N. A., K. Y. Eritsyan, and L. A. Tsvetkova. "Attitudes towards Biobank Donation Among University Community." Social Psychology and Society 10, no. 1 (2019): 169–81. http://dx.doi.org/10.17759/sps.2019100110.

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Worldwide significant efforts are invested in building biobanks—specialized facilities for storing biological materials for research and medical purposes. The successful functioning of biobanks depends directly on people’s willingness to donate their biological materials. Fragmentary empirical studies of people’s attitudes toward donations to biobanks have been undertaken in Russia. The goal of this study was to measure at titudes toward biobank donation among Russians population and to evaluate potential sociopsychological factors that play a role in a person’s readiness to become a donor. Da

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Soini, Sirpa. "Biobanks as a Central Part of the Finnish Growth and Genomic Strategies: How to Balance Privacy in an Innovation Ecosystem?" Journal of Law, Medicine & Ethics 44, no. 1 (2016): 24–34. http://dx.doi.org/10.1177/1073110516644187.

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Finland has aimed to make itself an international leader in genomic research and related business and, in working towards that goal, has enacted biobank legislation. The Biobank Act requires biobanks to gain approval, be supervised, and register at the national level. Numerous other laws may also apply in any given research setting, such as the Personal Data Act, the Medical Research Act, and the Act on Medical Use of Human Organs and Tissues. In terms of privacy protection, anonymization is generally not permitted under Finnish law and therefore most biobanks pseudonomize data and samples. Ho

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Dallari, Sueli Gandolfi, Felipe Angel Bocchi Castellaro, and Iara Coelho Zito Guerriero. "Biobanking and Privacy Law in Brazil." Journal of Law, Medicine & Ethics 43, no. 4 (2015): 714–25. http://dx.doi.org/10.1111/jlme.12314.

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Recent scientific and technological developments have promoted the emergence of biobanks on a population scale. Although the storage of human biological material has taken place for a long time, it is only recently that biobanks have acquired a broader scientific significance, especially for genomic research. The increase in biobanks creates many ethical dilemmas, such as the protection of privacy, and creates the need for a new regulatory framework, which must enable the sustainable development of biobanks while also protecting the rights of research subjects and biobank participants.

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Krekora-Zając, Dorota. "Legal aspects of biobanking HBS for scientific purposes in Poland." Studia Prawnicze 220, no. 4 (2020): 165–84. https://doi.org/10.5281/zenodo.3694918.

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Legal issues related to the biobanking of human biological samples are one of the extremely important areas of European law. Biobanks created in Poland as well as the Polish Biobank Network created under the auspices of the Ministry of Science and Higher Education have become a catalyst for the search for solutions and the basis of rights for the functioning of biobanks in Poland as well as the protection of donor rights. Undoubtedly, the lack of legal regulation of biobanks and biomedical research on human biological samples could become a significant problem limiting the development of bioba

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Quinn, Carmel M., Mamta Porwal, Nicola S. Meagher, et al. "Moving with the Times: The Health Science Alliance (HSA) Biobank, Pathway to Sustainability." Biomarker Insights 16 (January 2021): 117727192110057. http://dx.doi.org/10.1177/11772719211005745.

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Human biobanks are recognised as vital components of translational research infrastructure. With the growth in personalised and precision medicine, and the associated expansion of biomarkers and novel therapeutics under development, it is critical that researchers can access a strong collection of patient biospecimens, annotated with clinical data. Biobanks globally are undertaking transformation of their operating models in response to changing research needs; transition from a ‘classic’ model representing a largely retrospective collection of pre-defined specimens to a more targeted, prospec

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Kinkorová, Judita, Ondřej Topolčan, and Radek Kučera. "Informed Consent in the Newly Established Biobank." International Journal of Environmental Research and Public Health 16, no. 20 (2019): 3943. http://dx.doi.org/10.3390/ijerph16203943.

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Informed consent is an important document for every existing biobank or repository to obtain, store and use human biospecimens and associated data and information for current and future research. Biobanks have undergone great progress worldwide during the last three decades and have become an integral part of personalized medicine and health care systems and due to new scientific and social questions to be solved. Ethical, legal and social issues (ELSI) guarantee safe sample and data management, and informed consent is one of the key ELSI documents. The form and the consent given in biobank in

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Lazareva, Tatyana E., Yury A. Barbitoff, Anton I. Changalidis, et al. "Biobanking as a Tool for Genomic Research: From Allele Frequencies to Cross-Ancestry Association Studies." Journal of Personalized Medicine 12, no. 12 (2022): 2040. http://dx.doi.org/10.3390/jpm12122040.

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In recent years, great advances have been made in the field of collection, storage, and analysis of biological samples. Large collections of samples, biobanks, have been established in many countries. Biobanks typically collect large amounts of biological samples and associated clinical information; the largest collections include over a million samples. In this review, we summarize the main directions in which biobanks aid medical genetics and genomic research, from providing reference allele frequency information to allowing large-scale cross-ancestry meta-analyses. The largest biobanks grea

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Osmanova, D. S. "Competitivity Issues Related to Biobank Activity." Lex Genetica 3, no. 1 (2024): 7–32. http://dx.doi.org/10.17803/lexgen-2024-3-1-7-32.

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The recent development of biomedical research and greater attention to the use of human bio-material has led to an increase in the number of studies devoted to biobanks. In considering the question of whether a biobank can be subject to insolvency, the present article discusses multiple points of view related to the legal status of biobanks according to which they are perceived either as an object or subject of law. From an analysis of the various organizational forms of biobank activity, the author argues that biobanks should be considered as subjects of law. Here considerations include acces

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Barcan, Edmond, Stefan-Alexandru Artene, and Anica Dricu. "BIOBANKS. ASSOCIATED RISKS AND BENEFITS." Medico Oncology 1, no. 1 (2021): 61–69. http://dx.doi.org/10.52701/monc.2020.v1i1.11.

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Biobanks are repositories of human organic material, that have an important role in the clinic. The World Health Organization (WHO) and the Global Health Ethics Unit have a great contribution considering the ideology of a well-functioning biobank. At the European Union, the functioning of biobanks is strictly regulated and research is being sustained by programs financed at a community level. The administration of biobanks brings both advantages and risks socially. To prevent these, international standards have been implemented for biobanks. In the research domain but also in the public health

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Dwianingsih, Ery Kus, Junaedy Yunus, Lutfan Lazuardi, et al. "Building a Biobank Network for Health Research in Indonesia." Open Access Macedonian Journal of Medical Sciences 10, A (2022): 1067–73. http://dx.doi.org/10.3889/oamjms.2022.8875.

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BACKGROUND: Biobanks play an essential role in the development of personalized medicine since they collect large numbers of high-quality biomaterials corresponding to clinical data. Despite its extensive population diversity, research institutions in Indonesia have indicated less awareness regarding biobanking for research practices. AIM: The journey to harmonize the knowledge and understanding of biobanks for health research and the development of the network in Indonesia has been summarized in this article. METHODS: To build a national biobank network, in 2015 the Faculty of Medicine, Public

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Borisova, A. L., M. S. Pokrovskaya, A. N. Meshkov, V. A. Metelskaya, A. M. Shatalova, and O. M. Drapkina. "ISO 20387 biobanking standard. Analysis of requirements and experience of implementation." Russian Clinical Laboratory Diagnostics 65, no. 9 (2020): 587–92. http://dx.doi.org/10.18821/0869-2084-2020-65-9-587-592.

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Currently one of the most important problems facing biobanking specialists is the standardization of biobanks operation. Close attention is paid to this issue by international biobanking organizations, such as ISBER and BBMRI-ERIC, which develop regulatory documentation in this area. The article provides examples of standardization tools - implementation of the ISO 9001 quality standard and ISBER Best Practices. General information about the development, scope, and structure of the ISO 20387 standard is provided. The standard does not provide ready-made solutions and does not contain specific

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Nuñez Vaca, Evelyn Cristina. "Caracterización de las directrices éticas, legales y sociales para la conformación de un biobanco de investigación en el Ecuador, desde la perspectiva de los principios de confidencialidad, dignidad y autonomía. Una revision sistemática." Revista Iberoamericana de Bioética, no. 25 (July 15, 2024): 01–25. http://dx.doi.org/10.14422/rib.i25.y2024.011.

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Se realizó una revisión sistemática para conocer las implicaciones éticas, legales y sociales de la creación de un biobanco de investigación desde la perspectiva de los principios de confidencialidad, dignidad y autonomía, con la finalidad de aplicarla a la creación de un biobanco de investigación en el Ecuador. Se incluyeron todos aquellos artículos conteniendo los términos (DECS/MESH): “biobancos de investigación” y “ética”, “dignidad”, “autonomía”, “confidencialidad” y “cuestiones éticas, legales y sociales”. Entre enero del 2021 y mayo del 2022, se hizo uso de los motores de búsqueda Pubme

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Pereira, Alexandre C., Isabela M. Bensenor, Ligia M. Fedeli, et al. "Delineamento e implementacao do biobanco do ELSA-Brasil: estudo prospectivo na populacao brasileira." Revista de Saúde Pública 47, suppl 2 (2013): 72–78. http://dx.doi.org/10.1590/s0034-8910.2013047003822.

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O Estudo Longitudinal de Saúde do Adulto (ELSA-Brasil) é uma coorte prospectiva multicêntrica de funcionários públicos delineada para avaliar os determinantes das doenças crônicas, principalmente a doença cardiovascular e o diabetes tipo 2. Neste artigo são descritos os principais pontos do delineamento e implementação do projeto do biobanco do ELSA-Brasil. São detalhados aspectos econômicos, políticos, logísticos e tecnológicos do estudo. O artigo também discute o protocolo final de estocagem de material biológico e as instalações implementadas para atingir esse objetivo. O processo de deline

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Han, Ji Eun, Min Kyu Park, Ju Hyun Jin, et al. "Consensus Definition of Blood Samples from the Subcategorized Normal Controls in the Korea Biobank Network." Journal of Clinical Medicine 12, no. 9 (2023): 3080. http://dx.doi.org/10.3390/jcm12093080.

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A control group is defined as a group of people used for comparison. Depending on the type of study, it can be a group of healthy people or a group not exposed to risk factors. It is important to allow researchers to select the appropriate control participants. The Korea Biobank Project-sponsored biobanks are affiliated with the Korea Biobank Network (KBN), for which the National Biobank of Korea plays a central coordinating role among KBN biobanks. KBN organized several working groups to address new challenges and needs in biobanking. The “Normal Healthy Control Working Group” developed stand

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Riso, Brígida. "“Not Storing the Samples It’s Certainly Not a Good Service for Patients”: Constructing the Biobank as a Health Place." Societies 12, no. 4 (2022): 113. http://dx.doi.org/10.3390/soc12040113.

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Biobanks have been established from the beginning of the millennium as relevant infrastructures to support biomedical research. These repositories have also transformed the paradigm of collecting and storing samples and associated clinical data, moving these practices from the healthcare services and research laboratories to dedicated services. In Portugal, the establishment of biobanks is happening in the absence of a specific legal framework, turning it difficult to fully understand the scope of their action. This ethnographic research explored how establishing a biobank challenges the dynam

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Vergès, Claude, María Angélica Sotomayor Saavedra, Patricia Sorokin, and Luis Manuel López Dávila. "Propuestas para “democratizar” los beneficios de los biobancos en América Latina." Revista Grafía- Cuaderno de trabajo de los profesores de la Facultad de Ciencias Humanas. Universidad Autónoma de Colombia 12, no. 2 (2015): 50. http://dx.doi.org/10.26564/16926250.547.

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ResumenEl desarrollo de biobancos conlleva diversas interrogantes. Nuestro objetivo se circunscribe a cuestiones de confidencialidad y confianza pública en la ciencia y las instituciones. Un problema actual y acuciante en investigaciones biomédicas transnacionales, es la recolección de muestras para almacenamiento y exportación con consentimientos abiertos, con riesgo de violación de la privacidad personal. La necesidad de contar con biobancos para investigación, de proteger el reparto de beneficios de la investigación y la participación de las minorías étnicas presentes en América Latina, nos

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Capocasa, Marco, Paolo Anagnostou, Flavio D’Abramo, et al. "Samples and data accessibility in research biobanks: an explorative survey." PeerJ 4 (February 25, 2016): e1613. http://dx.doi.org/10.7717/peerj.1613.

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Biobanks, which contain human biological samples and/or data, provide a crucial contribution to the progress of biomedical research. However, the effective and efficient use of biobank resources depends on their accessibility. In fact, making bio-resources promptly accessible to everybody may increase the benefits for society. Furthermore, optimizing their use and ensuring their quality will promote scientific creativity and, in general, contribute to the progress of bio-medical research. Although this has become a rather common belief, several laboratories are still secretive and continue to

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Sazonovs, A., K. Schut, N. Plevris, et al. "OP19 Pre- and Post-diagnostic Metabolomic Biomarker Profiling of Over 700,000 Individuals in Three National Biobanks Enables Prediction of Inflammatory Bowel Disease Onset and Complications." Journal of Crohn's and Colitis 19, Supplement_1 (2025): i38—i41. https://doi.org/10.1093/ecco-jcc/jjae190.0019.

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Abstract Background We currently lack sensitive and specific prognostic biomarkers of inflammatory bowel disease (IBD) onset and severity. In three large, population-scale cohorts, we investigated metabolomic biomarkers for predicting disease onset and course. Methods We measured 250 metabolomic biomarkers using nuclear magnetic resonance (NMR) in ~500,000 individuals from the UK Biobank [1]. 2036 individuals had prevalent Crohn’s disease (CD) and 4029 had ulcerative colitis (UC) at recruitment. 1242 participants developed incident CD and 2283 incident UC during 10-year follow-up, allowing us

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Pokrovskaya, M. S., A. L. Borisova, O. V. Sivakova, et al. "QUALITY MANAGEMENT IN BIOBANK. WORLD TENDENCIES AND EXPERIENCE OF BIOBANK OF FSI «NMRC FOR PREVENTIVE MEDICINE» OF THE MINISTRY OF HEALTHCARE OF RUSSIA." Russian Clinical Laboratory Diagnostics 64, no. 6 (2019): 380–84. http://dx.doi.org/10.18821/0869-2084-2019-64-6-380-384.

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This paper provides several definitions of the term “biobank”; a list of standards developed by the International Organization for Standardization (ISO) applicable to the activities of biobanks; analyzes the legal and ethical requirements; the Russian legal framework in the field of biobanking, the best international practices and recommendations; describes the experience of the development and implementation of quality management systems according to ISO 9001 in Biobanks established in different countries, and the experience of the Bank of Biological Material of the National Medical Research

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Jahns, Roland, Jörg Geiger, Irene Schlünder, Daniel Strech, Matthias Brumhard, and Sebastian Graf von Kielmansegg. "Broad donor consent for human biobanks in Germany and Europe: a strategy to facilitate cross-border sharing and exchange of human biological materials and related data." Journal of Laboratory Medicine 43, no. 6 (2019): 291–99. http://dx.doi.org/10.1515/labmed-2017-0064.

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Abstract Background Human biobanks are generally recognized as essential resources for effective biomedical research. All over the world biosamples and data from human subjects are collected in large biobanks. The biological material is stored long term for current and future (undetermined) research issues, which often require cross-border exchange of biosamples and related data. Content Commonly, the informed consent for research on human biospecimen is intended to cover only defined, specific research objectives. In June 2016, the biobank Task-Force of the Working Party of the German Medical

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Caenazzo, Luciana, and Pamela Tozzo. "The Future of Biobanking: What Is Next?" BioTech 9, no. 4 (2020): 23. http://dx.doi.org/10.3390/biotech9040023.

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Biobanks are an extraordinary tool for research and scientific progress. Since their origin, the debate on the main technical, regulatory and ethical aspects has not stopped. The future of biobanks should take into account many factors: the need to improve the technical standards of collection, conservation and use of the sample, the usefulness of achieving forms of harmonization and common governance, the improvement of biobank networks, including through public–private partnerships and improving the sustainability of these infrastructures.

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Jain, Jugnu, Sreevatsa Natarajan, and Soma Chatterjee. "Using human medical waste to build biobanks." International Journal of Molecular and Immuno Oncology 1, no. 1 (2016): 24. http://dx.doi.org/10.18203/issn.2456-3994.intjmolimmunooncol20164385.

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India has a high disease burden and a large number of patients. There is a tremendous need for Indian biobanks to preserve Indian samples, to capture the great diversity of diseases to spur research into earlier, more precise diagnosis and better treatments for diseases plaguing India. This review article summarizes the key components of building a systematic comprehensive biobank, type and formats of sample and data, and the ethical and regulatory guidelines in India. An example of a growing Indian biobank, Sapien Biosciences, is shared along with its business model to reach sustainability. T

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Soini, Sirpa. "Finland on a Road towards a Modern Legal Biobanking Infrastructure." European Journal of Health Law 20, no. 3 (2013): 289–94. http://dx.doi.org/10.1163/15718093-12341278.

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Abstract Finland has enacted a Biobank Act that will come into force on 1 September 2013. Finland is regarded as a highly successful environment for medical research using population samples and data for many reasons. One of the rationales behind the new legislation was to solve the problems due to the overly strict informed consent doctrine hindering access to old samples and data and asking for multi-purpose consents. Yet although consent is the primary justification to use biobank samples and data, the Biobank Act allows asking for a consent for several unspecified future research purposes.

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Gusakova, A. M., E. S. Kravchenko, T. E. Suslova, S. V. Popov, and A. A. Boshchenko. "Biobanks in cardiovascular disease research." Cardiovascular Therapy and Prevention 23, no. 11 (2024): 4170. https://doi.org/10.15829/1728-8800-2024-4170.

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A systematic review of publications from the PubMed and eLibrary. ru databases, Biobanking and Biomolecular Resources Research Infrastructure — European Research Infrastructure Consortium (BBMRI-ERIC) and ClinicalTrials.gov studies was carried out for 15 years. The aim was to find priority areas for the use of biobanks in cardiology. The key areas of research on blood and heart tissue biobanks are the study of pathogenetic mechanisms, creation of innovative methods for diagnosis, treatment and prevention of cardiovascular diseases (CVDs). The use of modern technologies such as genomics, transc

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Lhousni, Saida, Karam Yahya Belmokhtar, Ihab Belmokhtar, et al. "Morocco’s First Biobank: Establishment, Ethical Issues, Biomedical Research Opportunities, and Challenges." BioMed Research International 2020 (December 8, 2020): 1–11. http://dx.doi.org/10.1155/2020/8812609.

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Background. Biobanks are highly organized infrastructures that allow the storage of human biological specimens associated with donors’ personal and clinical data. These infrastructures play a key role in the development of translational medical research. In this context, we launched, in November 2015, the first biobank in Morocco (BRO Biobank) in order to promote biomedical research and provide opportunities to include Moroccan and North African ethnic groups in international biomedical studies. Here, we present the setup and the sample characteristics of BRO Biobank. Methods. Patients were re

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O’Doherty, K. C., and M. M. Burgess. "Engaging the Public on Biobanks: Outcomes of the BC Biobank Deliberation." Public Health Genomics 12, no. 4 (2009): 203–15. http://dx.doi.org/10.1159/000167801.

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Busby, Helen, and Paul Martin. "Biobanks, national identity and imagined communities: The case of UK biobank." Science as Culture 15, no. 3 (2006): 237–51. http://dx.doi.org/10.1080/09505430600890693.

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Andry, Chris, Elizabeth Duffy, Christopher A. Moskaluk, Shannon McCall, Michael H. A. Roehrl, and Daniel Remick. "Biobanking—Budgets and the Role of Pathology Biobanks in Precision Medicine." Academic Pathology 4 (January 1, 2017): 237428951770292. http://dx.doi.org/10.1177/2374289517702924.

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Biobanks have become an important component of the routine practice of pathology. At the 2016 meeting of the Association of Pathology Chairs, a series of presentations covered several important aspects of biobanking. An often overlooked aspect of biobanking is the fiscal considerations. A biobank budget must address the costs of consenting, procuring, processing, and preserving high-quality biospecimens. Multiple revenue streams will frequently be necessary to create a sustainable biobank; partnering with other key stakeholders has been shown to be successful at academic institutions which may

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Cruz, Rafael Evangelista da, Hanna Gabriela da Silva Oliveira, and Felipe Masiero Salvarani. "Biobancos de animais selvagens: revisão de literatura." Research, Society and Development 11, no. 8 (2022): e48411831268. http://dx.doi.org/10.33448/rsd-v11i8.31268.

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Um banco de amostras biológicas ou biobanco é, por definição, uma coleção biológica de qualquer amostra humana, animal, vegetal ou microbiana, associadas com os dados da amostra, gerenciados de acordo com padrões técnico-científicos. O objetivo deste artigo foi realizar um estudo retrospectivo acerca dos biobancos de animais selvagens, enfatizando sua importância na conservação de espécies, assim como os procedimentos necessários para sua formação, gerenciamento de dados e desafios. Os biobancos devem ser encarados como uma enorme oportunidade de conservação da vida selvagem, por meio da manut

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