Relevant bibliographies by topics / Caregivers Alzheimer's disease

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  1. Journal articles
  2. Dissertations / Theses
  3. Books
  4. Book chapters
  5. Conference papers
  6. Reports

Academic literature on the topic 'Caregivers Alzheimer's disease'

Author: Grafiati
Published: 4 June 2021
Last updated: 1 February 2022

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Journal articles on the topic "Caregivers Alzheimer's disease"

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Novak, Mark, and Carol Guest. "Caregiver Response to Alzheimer's Disease." International Journal of Aging and Human Development 28, no. 1 (January 1989): 67–79. http://dx.doi.org/10.2190/4w02-hlmk-hamj-utqp.

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Research on Alzheimer's Disease caregivers has tried to find a link between 1) the length of time a caregiver has been giving care; or 2) the physical condition of the patient and the experiences and needs of the caregiver. This study found no significant correlation between length of time a caregiver had given care to a particular patient and the caregiver's subjective feelings of caregiver burden. It found a significant, moderate correlation between caregiver burden and the patient's functional ability. It found that caregivers' subjective feelings and needs best predict their feelings of burden. This report concludes with suggestions on how to improve support for caregivers in light of these findings.
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Moraes, Sandra Renata Pinatti de, and Luis Sidônio Teixeira da Silva. "An evaluation of the burden of Alzheimer patients on family caregivers." Cadernos de Saúde Pública 25, no. 8 (August 2009): 1807–15. http://dx.doi.org/10.1590/s0102-311x2009000800017.

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Caregivers are indispensable to persons living with Alzheimer's disease; however, such care involves hard work, and the consequences of this activity on caregivers are often neglected. The objective of this study was to construct a profile for caregivers of Alzheimer patients and to evaluate the burden such care imposes on them. It is a transversal study of 122 caregivers from the metropolitan region of Londrina, Paraná State, Brazil. Socio-demographic data for the caregivers were analyzed, while the Katz scale and Lawton index were used to evaluate the functionality of Alzheimer's patients, and the Burden Interview Scale assessed the burden these patients impose on caregivers. Caregivers are predominantly married, are daughters who have learned to care for the patient on a daily basis, usually with some help, and they do so out of love. The caregiver's age (p < 0.01), whether or not the caregiver had help (p < 0.01), and the number of hours caring for the patient (p = 0.01) were associated with the impact. Results showed that the burden imposed on caregivers by Alzheimer patients is a heavy one.
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Kaufer, Daniel I., Soo Borson, Paul Kershaw, and Kay Sadik. "Reduction of Caregiver Burden in Alzheimer's Disease by Treatment with Galantamine." CNS Spectrums 10, no. 6 (June 2005): 481–88. http://dx.doi.org/10.1017/s1092852900023178.

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AbstractAlzheimer's disease is a progressive condition characterized by a loss of cognition, altered behavior, and a loss of functional ability, such as bathing, dressing, toileting, and organizing finances. Family and friends provide nearly three quarters of all care for patients with Alzheimer's disease. This informal care results in significant burden to caregivers. Caregiver burden is the set of physical, psychological or emotional, social, and financial problems that family members may experience when caring for impaired older adults. Caregivers of Alzheimer's disease patients report higher rates of physical symptoms, mortality, depression, and fatigue, as well as adverse effects on employment compared with those who are not caregivers for Alzheimer's disease patients. In many cases, the same family members are responsible for both out-of-pocket expenditures and caregiving duties. For this article, a MEDLINE search using the key words “caregiver and Alzheimer's disease” and “cost and Alzheimer's disease” was performed. The purpose of this article is to review the literature on caregiver burden, the components of caregiver burden, effects of caregiving on the health of caregivers, the cost of Alzheimer's disease on the caregiver and society, and the benefits attainable with treatment.
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Al-Zyoud, Eman, Mahmoud Maharmeh, and Muayyad Ahmad. "Family experiences of caregiving to patients with Alzheimer." Working with Older People 25, no. 2 (February 22, 2021): 115–22. http://dx.doi.org/10.1108/wwop-02-2020-0006.

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Purpose This paper aims to describe and understand the family experience of caregiving to their Alzheimer patients and to explore the impact of caregiving on the family’s caregiver well-being. Design/methodology/approach The study involved eight family caregivers from the outpatient department, specifically from the neurology-medical clinic. A descriptive phenomenological approach was used for data collection through in-depth semi-structured interviews. Findings Four themes emerged: caregiver perception, tension, the sense of duty and commitment and altruism and sacrifice. The experience of family caregivers was different from their experiences with other chronic illnesses. Originality/value The family caregivers experience new life when providing care to their patients with Alzheimer's. The impact of the process of caregiving on whole life appeared in both positive and negative aspects. The perception and awareness of family caregivers toward Alzheimer’s disease were poor.
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Liu, Shuai, Jing Liu, Xiao-Dan Wang, Zhihong Shi, Yuying Zhou, Jing Li, Tao Yu, and Yong Ji. "Caregiver burden, sleep quality, depression, and anxiety in dementia caregivers: a comparison of frontotemporal lobar degeneration, dementia with Lewy bodies, and Alzheimer's disease." International Psychogeriatrics 30, no. 8 (December 10, 2017): 1131–38. http://dx.doi.org/10.1017/s1041610217002630.

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ABSTRACTBackground:Very few recent studies are available that compare caregiver burden, sleep quality, and stress in caregivers of different types of dementia. We aimed to investigate caregiver burden, sleep quality, and stress in caregivers of patients with frontotemporal lobar degeneration and dementia with Lewy bodies, as compared with caregivers of patients with Alzheimer's disease.Methods:This study was carried out from March 2011 to January 2014. In total, 492 dyads of patient and caregiver (frontotemporal lobar degeneration, n = 131; dementia with Lewy bodies, n = 36; Alzheimer's disease, n = 325) participated in this study. We compared patients with respect to the Neuropsychiatric Inventory and caregivers with respect to the Zarit Caregiver Burden Interview, Pittsburgh Sleep Quality Index, Patient Health Questionnaire-9, and Generalized Anxiety Disorder scale.Results:Frontotemporal lobar degeneration and dementia with Lewy bodies patients presented significantly more neuropsychiatric symptoms compared to Alzheimer's disease patients. Caregivers of frontotemporal lobar degeneration and dementia with Lewy bodies patients experienced significantly more burden compared to Alzheimer's disease caregivers. Furthermore, among caregivers of both frontotemporal lobar degeneration and dementia with Lewy bodies patients burden was predicted by the neuropsychiatric symptoms, PHQ-9 scores, and GAD-7 scores.Conclusions:The frequency and severity of behavioral disturbances in patient and caregiver stress accounted for the increased caregiver burden, which suggests that frontotemporal lobar degeneration and dementia with Lewy bodies caregivers should receive more support than is currently available.
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Fillit, Howard M., Elane M. Gutterman, and Rachelle L. Brooks. "Impact of Donepezil on Caregiving Burden for Patients With Alzheimer's Disease." International Psychogeriatrics 12, no. 3 (September 2000): 389–401. http://dx.doi.org/10.1017/s1041610200006499.

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Comprehensive Alzheimer's disease (AD) treatment should address caregiver well-being. We predicted that caregiver burden would be lower among caregivers of AD patients who received donepezil relative to caregivers of patients not treated with donepezil. A self-administered, nationwide survey of AD caregivers was used to match caregivers of patients treated with donepezil (n = 274) to caregivers of patients not treated with donepezil (n = 274). The Caregiver Burden Scale measured time demands and distress linked to commonly performed caregiving tasks. Respondents were three-quarters female, with an average age of 60 years. Results demonstrated that donepezil caregivers reported significantly lower scores on difficulty of caregiving. This difference remained when statistical controls for multiple patient and caregiver variables were imposed. However, selection factors must be recognized as a possible explanation for differences. The groups reported no difference on the time-demand subscale. In conclusion, better management of AD symptoms through donepezil treatment may reduce the burden of caregiving, providing physicians with a pharmacologic approach to improving quality of life for AD patients and their families.
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Medrano, Martin, Rebeca López Rosario, Anyolina Núñez Payano, and Natacha Reynoso Capellán. "Burden, anxiety and depression in caregivers of Alzheimer patients in the Dominican Republic." Dementia & Neuropsychologia 8, no. 4 (December 2014): 384–88. http://dx.doi.org/10.1590/s1980-57642014dn84000013.

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Alzheimer's disease (AD) has a major impact by limiting the ability to live independently. This condition of dependency involves all members of the family, particularly those who take direct care of patients. The changes that take place in caregivers' lives may alter their health and have an effect on the care of the sick. OBJECTIVE: To determine the presence of burden, anxiety and depression in caregivers of Alzheimer's patients. METHOD: A descriptive cross-sectional study was performed in 67 family caregivers from the Alzheimer's Clinic Research Unit, Memory and Alzheimer, in the city of Santiago, Dominican Republic. Caregivers were evaluated for burden intensity with the Zarit scale and for both depression and anxiety using the respective Hamilton scales. Descriptive statistical analysis and Pearson correlation were used. RESULTS: 84% of caregivers were female, and 52% were older than 50 years. A total of 36% exhibited caregiver burden; 19% anxiety symptoms; and 43% depressive symptoms. No statistical significance was found between age, sex and number of hours of care. A significant association was found in the Pearson correlation coefficient between caregiver burden, anxiety and depression. CONCLUSION: Caregiver burden was associated with anxiety and depression. It is important for health professionals to include caregiver assessments in the treatment protocols of dementia. Policy should include support programs for carers.
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Creese, Joy, Michel Bédard, Kevin Brazil, and Lori Chambers. "Sleep disturbances in spousal caregivers of individuals with Alzheimer's disease." International Psychogeriatrics 20, no. 1 (February 2008): 149–61. http://dx.doi.org/10.1017/s1041610207005339.

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ABSTRACTBackground: Although sleep problems are commonly reported among dementia caregivers, the nature and frequency of caregiver sleep disruptions, and their relationship to health status, has received little empirical attention to date.Methods: The current study investigated the sleep situations of a sample of 60 spousal caregivers currently residing with a Alzheimer disease care recipient, including the frequency of nocturnal disruptions by the care recipient, and the reasons for these disruptions. In addition, exploratory correlations were computed between caregiver sleep variables and health outcomes.Results: Some 63% of spousal caregivers reported sleep disruptions due to the nocturnal behavior of the recipients of their care. Poorer caregiver sleep quality was associated with higher frequency of nocturnal disruptions by the care recipient, the care recipient needing to use the bathroom, and wandering, higher caregiver depressive symptoms, and higher levels of caregiver role burden. The frequency of nocturnal disruptions was associated with poorer mental health status and a greater number of depressive symptoms.Conclusions: Results suggest that nocturnal disruptions by the care recipient may have adverse health consequences for spousal caregivers, and that further study of the determinants of caregiver sleep quality and health outcomes are warranted.
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Schmidt, Melanie Scheneider, Melissa Orlandi Honório Locks, Karina Silveira de Almeida Hammerschmidt, Darla Lusia Ropelato Fernandez, Francisco Reis Tristão, and Juliana Balbinot Reis Girondi. "Challenges and technologies of care developed by caregivers of patients with Alzheimer's disease." Revista Brasileira de Geriatria e Gerontologia 21, no. 5 (October 2018): 579–87. http://dx.doi.org/10.1590/1981-22562018021.180039.

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Abstract Objective: to identify the challenges and technologies of care developed by caregivers of patients with Alzheimer's disease. Method: an exploratory study with a qualitative approach was carried out with nine caregivers of elderly people with Alzheimer's disease from the mutual help group of a university hospital in the south of Brazil. Data collection took place between May and August 2017 through a semi-structured interview. Content analysis was used to analyze the data. Results: two categories emerged from the analysis of the data: the challenges faced by caregivers of elderly people with Alzheimer's Disease and the care technologies developed by caregivers of elderly people with Alzheimer's disease. Conclusion: the study showed that the care strategies elaborated by the caregiver can enhance understanding, reflection and discussion among health professionals, caregivers and family members about quality care for the elderly and minimize the difficulties of care in order to provide greater quality of care for the elderly.
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Kawada, Tomoyuki. "Risk of caregiver burden in patients with three types of dementia." International Psychogeriatrics 31, no. 1 (January 2019): 153. http://dx.doi.org/10.1017/s1041610218000662.

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Liu et al. (2017) investigated caregiver burden of patients with frontotemporal lobar degeneration (FTD) and dementia with Lewy bodies (DLB), which was compared with caregivers of patients with Alzheimer's disease. The authors concluded that the frequency and severity of behavioral disturbances in caregiver of patients with FTD and DLB were higher than those with caregivers of patients with Alzheimer's disease. I have some concerns about their study.
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Dissertations / Theses on the topic "Caregivers Alzheimer's disease"

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Doran, Florence Louise 1934. "Alzheimer's disease: Perceptions of husband caregivers." Thesis, The University of Arizona, 1992. http://hdl.handle.net/10150/291859.

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This exploratory study was designed to describe, analyze and understand from the perspective of a primary caregiver husband, what it is like to care for a wife with middle stage Alzheimer's Disease. Using the ethnographic approach, three spouses with wives suffering from Alzheimer's Disease were interviewed and two spouses were observed in their home during one dinnertime period. Analysis of data yielded five domains of meaning: lifestyle change concerns, helplessness/powerlessness, care for own, concerns for future and coping. Two cultural themes emerged as "alone" and "hopeless". Implications for nursing practice include increasing the awareness and understanding among health care professionals of the desperate nature of the caregiver' s burden. Additionally, the caregiver's coping skills need to be maintained and enhanced as they "care for their own" and attempt to keep themselves mentally and physically healthy.
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Lipkowitz, Rochelle. "Alzheimer's disease : the conflict of the caregiver : a grounded theory study /." Access Digital Full Text version, 1991. http://pocketknowledge.tc.columbia.edu/home.php/bybib/11041730.

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Thesis (Ed.D)--Teachers College, Columbia University, 1991.
Typescript; issued also on microfilm. Sponsor: Patricia L. Munhall. Dissertation Committee: Elizabeth H. Tucker. Includes bibliographical references (p. 153-161).
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Salinas, Maureen R. "Caregiver Burden and Depressive Symptoms in Hispanic Caregivers of Alzheimer's Disease Patients." Scholarship @ Claremont, 2016. http://scholarship.claremont.edu/scripps_theses/795.

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Caregiving for a close family member with Alzheimer’s disease is a stressful situation to be in, that often leads to high levels of caregiver burden and subsequent stress and depressive symptoms, and while there are numerous community and government resources available to caregivers, there are aspects of Hispanic cultures that may lead Hispanic caregivers to have higher levels of caregiver burden and depressive symptoms than White caregivers. 80 Hispanic caregivers and 80 White caregivers, with 40 males and 40 females within each group, will be recruited to participate in this study. Scales will be administered to both Hispanic and White caregivers in order to assess levels of caregiver burden, depressive symptoms, familism values, gender role beliefs, acculturation levels, and knowledge, comfort, and use of community resources. Hispanic caregivers will have higher levels of caregiver burden and depressive symptom scores than White caregivers, while women will have higher scores overall than men overall. Hispanic caregivers will have less knowledge, comfort, and use of community resources than White caregivers, while gender role views, familism values, and acculturation levels will be mediating factors of these relationships. Cultural differences in caregiver burden need to be assessed further, so that clinical and practical implications for community and government resources can be discussed.
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Ramsey, Nina Sharp. "Caregiver coping with dementia : relationships among patient characteristics, caregiver coping styles, and consequences of caregiving /." Thesis, Connect to this title online; UW restricted, 1990. http://hdl.handle.net/1773/11178.

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Vasseur, Janis S. "The geographical implications of Alzheimer's disease : an examination of the impact that Alzheimer's disease hs on family caregivers in Connecticut /." Abstract Full Text (PDF), 2008. http://eprints.ccsu.edu/archive/00000509/02/1965FT.pdf.

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Thesis (M.S.) -- Central Connecticut State University, 2008.
Thesis advisor: Cynthia Pope. "... in partial fulfillment of the requirements for the degree of Master of Science in Geography." Includes bibliographical references (leaves 85-90). Also available via the World Wide Web.
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Jones, Phyllis L. (Phyllis Lee). "Caregivers' Appraisal of Alzheimer's Disease Symptoms and the Relationship to Decisions About Care." Thesis, University of North Texas, 1994. https://digital.library.unt.edu/ark:/67531/metadc278991/.

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The purpose of the present study was to compare 42 community-dwelling spouse and child Alzheimer's Disease caregivers with 38 community-dwelling potential caregivers on salience of illness symptoms, and accuracy of judging symptoms of illnesses.
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Hanna, Essam. "Psychoeducational program for Alzheimer's disease caregivers| A grant proposal." Thesis, California State University, Long Beach, 2015. http://pqdtopen.proquest.com/#viewpdf?dispub=1586506.

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The purpose of this project was to write a grant to fund a psychoeducational program for caregivers of individuals with Alzheimer's disease (AD). The goals of this program are to: (a) increase their knowledge about (AD) and the caregiving role, (b) increase their skills in caregiving individuals with (AD), (c) enhance their competence as caregivers, and (d) decrease caregiver distress. An extensive literature review was performed to assess the needs of caregivers and support the method of this proposed program. Archstone Foundation was identified as a potential funder for this program. Tri-City Mental Health Center (TCMHC) in Pomona is selected as the host agency for this psychoeducational program. The psychoeducational program will consist of 2-hours sessions delivered once a week for 6 weeks, providing both educational and supportive interventions. Actual submission of the grant was not required for successful completion of this project.

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Taylor, Karen Jackqueline. "Impacting the awareness of God's presence within the challenges of giving full time care to one diagnosed with Alzheimer's disease." Theological Research Exchange Network (TREN), 2007. http://www.tren.com/search.cfm?p028-0274.

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Wisneski, Jennifer Lynne. "Social Support, Gender, and Burden in Caregivers of Patients with Alzheimer's Disease." ScholarWorks, 2018. https://scholarworks.waldenu.edu/dissertations/4898.

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There are 15.9 million adults in the United States providing care to a family member diagnosed with Alzheimer's disease. Family member caregivers experience detrimental physical and mental health stress because of their caregiving role. The purpose of this study was to determine if the independent variables of marital status, perceived social support, and gender of family member caregivers of patients with Alzheimer's disease were related to the dependent variable of caregiver burden. The variables were examined through the lens of John Bowlby's attachment theory using archival data (n = 586) from the REACH II program. The results of the analysis of variance indicated that marital status did not affect level of burden. The outcome of a correlational analysis indicated a positive linear association between burden and social support. The result of an independent samples t test was that females reported higher burden than males. The outcome of a linear regression identified marital status, social support, and gender as predictors of caregiver burden. Positive social change implications of this study include contributing to scholarly literature, providing information for families to consider when implementing a plan for long-term care, and encouraging caregivers to seek professional support to minimize burden and maximize quality of life for themselves and the care receiver. Female caregivers with many social supports were identified as high risk for severe burden, an important factor for clinicians, agencies, and healthcare providers who work with family caregivers to consider. Identifying factors that contribute to burden and developing strategies to manage these factors may reduce severity of burden and improve quality of life for both caregivers and care recipients.
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Shaunfield, Sara. ""The Long Goodbye": Uncertainty Management in Alzheimer's Caregivers." Thesis, University of North Texas, 2011. https://digital.library.unt.edu/ark:/67531/metadc67947/.

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Caregivers for individuals diagnosed with Alzheimer's disease (AD) shoulder a remarkably complex burden as compared to other caregivers of elderly individuals. For long distance caregivers, geographical separation further compounds the problems experienced by AD caregivers, as they are isolated from family members and support networks. Both on-site and long-distance AD caregivers experience uncertainty; the findings from this study illustrate how AD caregivers manage the uncertainty of the disease and primary care, as well as how uncertainty differs between on-site and long-distance caregivers. AD caregiver (N = 13) interviews were transcribed and qualitatively analyzed using uncertainty management theory as a thematic lens. The analysis revealed that AD caregivers experience overwhelming feelings of burden, guilt, and doubt; however, these feelings manifest differently depending on caregiver type. The findings of this study demonstrate that sources for obtaining information regarding AD and caregiving were useful for on-site caregivers; however, the sources did not account for the needs of long-distance caregivers or the psychosocial needs of on-site caregivers. Furthermore, AD caregivers did not seek support or information about AD and caregiving from health care professionals. Implications for future research regarding long-distance and on-site AD caregiving are discussed.
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Books on the topic "Caregivers Alzheimer's disease"

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C, Hamdy R., ed. Alzheimer's disease: A handbook for caregivers. 2nd ed. St. Louis: Mosby-Year Book, Inc., 1994.

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Coughlan, Patricia Brown. Facing Alzheimer's: Family caregivers speak. New York: Ballantine Books, 1993.

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Ali, Naheed. Understanding Alzheimer's: An introduction for patients and caregivers. Lanham, Md: Rowman & Littlefield Publishers, 2012.

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The Alzheimer's family: Helping caregivers cope. New York: W.W. Norton, 2011.

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Adams, Martha O. Alzheimer's disease: A call to courage for caregivers. St. Meinard, Ind: Abbey Press, 1986.

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Rector, Rebecca. Alzheimer's disease and family caregivers: A selective bibliography. Monticello, Ill., USA: Vance Bibliographies, 1987.

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Living with Alzheimer's. Pittsburgh, Pa: Dorrance Pub. Co., 2010.

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Massachusetts. Executive Office of Elder Affairs. Alzheimers disease: Principles of caregiving and resources for caregivers. Boston, Mass.?]: Executive Office of Elder Affairs, 1986.

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Massachusetts. Executive Office of Elder Affairs. Alzheimers disease: Principles of caregiving and resources for caregivers. Boston, Mass.]: The Office, 1996.

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The caregiver: A life with Alzheimer's. South Royalton, Vt: Steerforth Press, 1999.

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Book chapters on the topic "Caregivers Alzheimer's disease"

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Blank, Robert H. "Caregivers, Long-Term Care, and Social Health." In Social & Public Policy of Alzheimer's Disease in the United States, 75–99. Singapore: Springer Singapore, 2018. http://dx.doi.org/10.1007/978-981-13-0656-3_4.

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Burke, Anna, Geri R. Hall, Roy Yaari, Adam Fleisher, Jan Dougherty, Jeffery Young, Helle Brand, and Pierre Tariot. "Supporting Caregiver Health." In Pocket Reference to Alzheimer's Disease Management, 89–92. Tarporley: Springer Healthcare Ltd., 2015. http://dx.doi.org/10.1007/978-1-910315-22-4_7.

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Milićević-Kalašić, Aleksandra. "Caregivers Care with Alzheimer’s Disease, Prevention of Caregivers Burn-Out." In Self Management of Chronic Disease, 67–71. Berlin, Heidelberg: Springer Berlin Heidelberg, 2009. http://dx.doi.org/10.1007/978-3-642-00326-4_5.

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Schwartz, Jack, and Leslie B. Fried. "Legal Issues for Caregivers of Individuals with Alzheimer’s Disease." In Caregiving for Alzheimer’s Disease and Related Disorders, 165–79. New York, NY: Springer New York, 2012. http://dx.doi.org/10.1007/978-1-4614-5335-2_11.

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Robinson, Karen Meier. "Faith and Spirituality: Supporting Caregivers of Individuals with Dementia." In Caregiving for Alzheimer’s Disease and Related Disorders, 91–106. New York, NY: Springer New York, 2012. http://dx.doi.org/10.1007/978-1-4614-5335-2_6.

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Nichols, Jeffrey N. "Family Caregivers as Members of the Alzheimer’s Treatment Team." In Caregiving for Alzheimer’s Disease and Related Disorders, 107–20. New York, NY: Springer New York, 2012. http://dx.doi.org/10.1007/978-1-4614-5335-2_7.

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Byrne, Kerry, and J. B. Orange. "Communication Enhancement for Family Caregivers of Individuals with Alzheimer’s Disease." In Alzheimer Talk, Text and Context, 169–89. London: Palgrave Macmillan UK, 2005. http://dx.doi.org/10.1057/9780230502024_9.

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Siskowski, Connie, and Lisa Gwyther. "Education, Training, and Support Programs for Caregivers of Individuals with Alzheimer’s Disease." In Caregiving for Alzheimer’s Disease and Related Disorders, 35–48. New York, NY: Springer New York, 2012. http://dx.doi.org/10.1007/978-1-4614-5335-2_3.

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Mittelman, Mary. "Psychosocial Interventions to Address the Emotional Needs of Caregivers of Individuals with Alzheimer’s Disease." In Caregiving for Alzheimer’s Disease and Related Disorders, 17–34. New York, NY: Springer New York, 2012. http://dx.doi.org/10.1007/978-1-4614-5335-2_2.

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Cohen, Donna. "End-of-Life Issues for Caregivers of Individuals with Alzheimer’s Disease and Related Dementias." In Caregiving for Alzheimer’s Disease and Related Disorders, 121–35. New York, NY: Springer New York, 2012. http://dx.doi.org/10.1007/978-1-4614-5335-2_8.

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Conference papers on the topic "Caregivers Alzheimer's disease"

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Balog, Kornelija Petr, Sanjica Faletar Tanackovic, and Sanda Erdelez. "Information support system for Alzheimer’s disease patients’ caregivers in Croatia: a phenomenological approach." In ISIC: the Information Behaviour Conference. University of Borås, Borås, Sweden, 2020. http://dx.doi.org/10.47989/irisic2011.

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Introduction. The paper presents findings from a study that investigated information needs of caregivers of Alzheimer’s disease patients’ in Croatia, a country in which health and social care systems for such persons are insufficiently developed. Special emphasis is put on the barriers caregivers face in obtaining required information or services. Methods. Interviews with 11 Alzheimer’s disease patients’ caregivers from the area of Eastern Croatia were conducted. Interpretative phenomenological analysis was chosen as the best method to interpret the caregivers’ experience of information support received from the Croatian system. Analysis. Topics were defined for each interview and then superordinate topics were defined for the whole sample. Results. Results show that Alzheimer’s disease patients’ caregivers in Croatia are faced with numerous obstacles. No organised information support system was detected. Conclusions. A more holistic approach to information support is needed. Authors suggest an Alzheimer’s disease information package to be distributed through the family doctors’ practices.
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Bastani, Farideh. "Caregivers’ Burden of Women as Family member of Elders with Alzheimer Disease." In Annual Global Healthcare Conference. Global Science and Technology Forum (GSTF), 2012. http://dx.doi.org/10.5176/2251-3833_ghc12.24.

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Caciula, Ioana, Moglan Maria, and Boscaiu Voicu. "THE ELMI ONLINE COURSE - AN IMPORTANT TOOL FOR CAREGIVERS IN MANAGEMENT OF ALZHEIMER’S DISEASE PATIENT IN ROMANIA." In Psiworld 2016. Romanian Journal of Experimental Applied Psychology, 2017. http://dx.doi.org/10.15303/rjeap.2017.si1.a2.

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Chang, Hyo Jung (Julie) Julie, Nancy J. Hodges, and Su-Jeong Hwang Hwang Shin. "Exploring Caregivers’ Clothing Choices for Individuals with Severe Alzheimer’s Disease: An Application of the Theories of Self-Complexity and Choosing for Others." In Pivoting for the Pandemic. Iowa State University Digital Press, 2020. http://dx.doi.org/10.31274/itaa.12147.

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Animashaun, Aisha, and Gilberto Bernardes. "Noise promotes disengagement in dementia patients during non-invasive neurorehabilitation treatment." In 4th Symposium on Occupational Safety and Health. FEUP, 2021. http://dx.doi.org/10.24840/978-972-752-279-8_0009-0014.

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Introduction:The lack of engagement and the shortage of motivation and drive, also referred to as apathy, negatively impacts the effectiveness and adherence to treatment and the general well-being of people with neurocognitive disorders (NCDs), such as dementia. Methodology:The hypothesis raised states that the engagement of people with dementia during their non-invasive treatments for NCDs is affected by the noisy source levels and negative auditory stimuli present within environmental treatment settings. An online survey was conducted with the study objectives to assess 1) the engagement levels of dementia patients while interacting with others at home versus in therapy facilities, 2) the emotions perceived when interacting with people at home compared to therapy sessions, 3) the perceived loudness of the environment at home versus in therapy facilities, and 4) which source sounds negatively impact the patients at home and during therapy sessions. A purposive sampling (n=62) targeting relatives, friends, and caregivers of dementia patients was conducted via online community forums in the DACH region. Moreover, a recording session was conducted in a psychotherapist’s office to verify the answer tothe questionnaire on the noise sources perceived in therapy facilities. Results and Discussion:The raised hypothesis that disruptive auditory stimuli and noise levels influence the engagement levels of demented individuals during treatment is confirmed as the engagement is affected by the perceived noise disruptions when comparing perceived noise levels and engagement at home to those in treatment facilities.Significant statistical results were found between the lower engagement of demented individuals when interacting with people during therapy sessions compared to higher engagement in-home interactions. Furthermore, negatively perceived sound sources can be found in both therapy facilities and home settings. The noise sound sources identified, such as human voices, household appliances and household noises, while recording inthe psychotherapist’s office align with the questionnaire responses received on this topic. The findings indicate that the perceived heightened noise levels in therapy facilities stand in correlation with the lowered engagement rate perceived during the therapy session compared to the lower noise level and higher engagement encountered when demented individuals interact at home. Conclusion:If the identified noise elements are masked or replaced by other auditory stimuli that promote a soothing soundscape, the original disturbances encountered during therapy and the lack of engagement can possibly be minimized. Further studies need to be conducted in the prototyping of a noise intervention tool to analyze the impact on lack of engagement through noise disturbances.Keywords. Noise, Engagement, Dementia, Therapy, Apathy.INTRODUCTIONNeurocognitive disorders (NCDs) are a steadily rising global public health concern. In 2020, around 50 million people worldwide lived with major NCDs, specifically dementia, with nearly 10 million new cases per year1NCDs can be found in many diseases, including Alzheimer, Parkinson, Huntington, and Creutzfeldt-Jakob (Reith, 2018). The causes of NCDs are typically associated with advanced age. Still, it can occur from incidents such as traumatic brain injuries, infections, thyroid problems, damage to the blood vessels, and other causes (Kane et al., 2017), increasingly affecting a wide range of people and age groups. Successful treatment methods are limited and can be split into two main categories, invasive and non-invasive methods.Invasive treatment methods are surgical procedures, such as Deep Brain Stimulation (DBS), a neurosurgical procedure in which a neurotransmitter is placed in the brain to send electrical 1World Health Organization, Dementia [website] https://www.who.int/news-room/fact-sheets/detail/dementia(accessed 12 April 2021)
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Reports on the topic "Caregivers Alzheimer's disease"

1

Duncan, Marie. Alzheimer's Disease Caregivers: The Transition from Home Care to Formal Care. Portland State University Library, January 2000. http://dx.doi.org/10.15760/etd.3220.

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2

Stapleton, Greta. Serving primary caregivers of persons with Alzheimer's disease : an integrated service delivery model. Portland State University Library, January 2000. http://dx.doi.org/10.15760/etd.5571.

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