Journal articles: 'Caregivers Alzheimer's disease'

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Novak, Mark, and Carol Guest. "Caregiver Response to Alzheimer's Disease." International Journal of Aging and Human Development 28, no. 1 (January 1989): 67–79. http://dx.doi.org/10.2190/4w02-hlmk-hamj-utqp.

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Research on Alzheimer's Disease caregivers has tried to find a link between 1) the length of time a caregiver has been giving care; or 2) the physical condition of the patient and the experiences and needs of the caregiver. This study found no significant correlation between length of time a caregiver had given care to a particular patient and the caregiver's subjective feelings of caregiver burden. It found a significant, moderate correlation between caregiver burden and the patient's functional ability. It found that caregivers' subjective feelings and needs best predict their feelings of burden. This report concludes with suggestions on how to improve support for caregivers in light of these findings.

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Moraes, Sandra Renata Pinatti de, and Luis Sidônio Teixeira da Silva. "An evaluation of the burden of Alzheimer patients on family caregivers." Cadernos de Saúde Pública 25, no. 8 (August 2009): 1807–15. http://dx.doi.org/10.1590/s0102-311x2009000800017.

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Caregivers are indispensable to persons living with Alzheimer's disease; however, such care involves hard work, and the consequences of this activity on caregivers are often neglected. The objective of this study was to construct a profile for caregivers of Alzheimer patients and to evaluate the burden such care imposes on them. It is a transversal study of 122 caregivers from the metropolitan region of Londrina, Paraná State, Brazil. Socio-demographic data for the caregivers were analyzed, while the Katz scale and Lawton index were used to evaluate the functionality of Alzheimer's patients, and the Burden Interview Scale assessed the burden these patients impose on caregivers. Caregivers are predominantly married, are daughters who have learned to care for the patient on a daily basis, usually with some help, and they do so out of love. The caregiver's age (p < 0.01), whether or not the caregiver had help (p < 0.01), and the number of hours caring for the patient (p = 0.01) were associated with the impact. Results showed that the burden imposed on caregivers by Alzheimer patients is a heavy one.

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Kaufer, Daniel I., Soo Borson, Paul Kershaw, and Kay Sadik. "Reduction of Caregiver Burden in Alzheimer's Disease by Treatment with Galantamine." CNS Spectrums 10, no. 6 (June 2005): 481–88. http://dx.doi.org/10.1017/s1092852900023178.

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AbstractAlzheimer's disease is a progressive condition characterized by a loss of cognition, altered behavior, and a loss of functional ability, such as bathing, dressing, toileting, and organizing finances. Family and friends provide nearly three quarters of all care for patients with Alzheimer's disease. This informal care results in significant burden to caregivers. Caregiver burden is the set of physical, psychological or emotional, social, and financial problems that family members may experience when caring for impaired older adults. Caregivers of Alzheimer's disease patients report higher rates of physical symptoms, mortality, depression, and fatigue, as well as adverse effects on employment compared with those who are not caregivers for Alzheimer's disease patients. In many cases, the same family members are responsible for both out-of-pocket expenditures and caregiving duties. For this article, a MEDLINE search using the key words “caregiver and Alzheimer's disease” and “cost and Alzheimer's disease” was performed. The purpose of this article is to review the literature on caregiver burden, the components of caregiver burden, effects of caregiving on the health of caregivers, the cost of Alzheimer's disease on the caregiver and society, and the benefits attainable with treatment.

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Al-Zyoud, Eman, Mahmoud Maharmeh, and Muayyad Ahmad. "Family experiences of caregiving to patients with Alzheimer." Working with Older People 25, no. 2 (February 22, 2021): 115–22. http://dx.doi.org/10.1108/wwop-02-2020-0006.

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Purpose This paper aims to describe and understand the family experience of caregiving to their Alzheimer patients and to explore the impact of caregiving on the family’s caregiver well-being. Design/methodology/approach The study involved eight family caregivers from the outpatient department, specifically from the neurology-medical clinic. A descriptive phenomenological approach was used for data collection through in-depth semi-structured interviews. Findings Four themes emerged: caregiver perception, tension, the sense of duty and commitment and altruism and sacrifice. The experience of family caregivers was different from their experiences with other chronic illnesses. Originality/value The family caregivers experience new life when providing care to their patients with Alzheimer's. The impact of the process of caregiving on whole life appeared in both positive and negative aspects. The perception and awareness of family caregivers toward Alzheimer’s disease were poor.

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Liu, Shuai, Jing Liu, Xiao-Dan Wang, Zhihong Shi, Yuying Zhou, Jing Li, Tao Yu, and Yong Ji. "Caregiver burden, sleep quality, depression, and anxiety in dementia caregivers: a comparison of frontotemporal lobar degeneration, dementia with Lewy bodies, and Alzheimer's disease." International Psychogeriatrics 30, no. 8 (December 10, 2017): 1131–38. http://dx.doi.org/10.1017/s1041610217002630.

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ABSTRACTBackground:Very few recent studies are available that compare caregiver burden, sleep quality, and stress in caregivers of different types of dementia. We aimed to investigate caregiver burden, sleep quality, and stress in caregivers of patients with frontotemporal lobar degeneration and dementia with Lewy bodies, as compared with caregivers of patients with Alzheimer's disease.Methods:This study was carried out from March 2011 to January 2014. In total, 492 dyads of patient and caregiver (frontotemporal lobar degeneration, n = 131; dementia with Lewy bodies, n = 36; Alzheimer's disease, n = 325) participated in this study. We compared patients with respect to the Neuropsychiatric Inventory and caregivers with respect to the Zarit Caregiver Burden Interview, Pittsburgh Sleep Quality Index, Patient Health Questionnaire-9, and Generalized Anxiety Disorder scale.Results:Frontotemporal lobar degeneration and dementia with Lewy bodies patients presented significantly more neuropsychiatric symptoms compared to Alzheimer's disease patients. Caregivers of frontotemporal lobar degeneration and dementia with Lewy bodies patients experienced significantly more burden compared to Alzheimer's disease caregivers. Furthermore, among caregivers of both frontotemporal lobar degeneration and dementia with Lewy bodies patients burden was predicted by the neuropsychiatric symptoms, PHQ-9 scores, and GAD-7 scores.Conclusions:The frequency and severity of behavioral disturbances in patient and caregiver stress accounted for the increased caregiver burden, which suggests that frontotemporal lobar degeneration and dementia with Lewy bodies caregivers should receive more support than is currently available.

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Fillit, Howard M., Elane M. Gutterman, and Rachelle L. Brooks. "Impact of Donepezil on Caregiving Burden for Patients With Alzheimer's Disease." International Psychogeriatrics 12, no. 3 (September 2000): 389–401. http://dx.doi.org/10.1017/s1041610200006499.

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Comprehensive Alzheimer's disease (AD) treatment should address caregiver well-being. We predicted that caregiver burden would be lower among caregivers of AD patients who received donepezil relative to caregivers of patients not treated with donepezil. A self-administered, nationwide survey of AD caregivers was used to match caregivers of patients treated with donepezil (n = 274) to caregivers of patients not treated with donepezil (n = 274). The Caregiver Burden Scale measured time demands and distress linked to commonly performed caregiving tasks. Respondents were three-quarters female, with an average age of 60 years. Results demonstrated that donepezil caregivers reported significantly lower scores on difficulty of caregiving. This difference remained when statistical controls for multiple patient and caregiver variables were imposed. However, selection factors must be recognized as a possible explanation for differences. The groups reported no difference on the time-demand subscale. In conclusion, better management of AD symptoms through donepezil treatment may reduce the burden of caregiving, providing physicians with a pharmacologic approach to improving quality of life for AD patients and their families.

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Medrano, Martin, Rebeca López Rosario, Anyolina Núñez Payano, and Natacha Reynoso Capellán. "Burden, anxiety and depression in caregivers of Alzheimer patients in the Dominican Republic." Dementia & Neuropsychologia 8, no. 4 (December 2014): 384–88. http://dx.doi.org/10.1590/s1980-57642014dn84000013.

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Alzheimer's disease (AD) has a major impact by limiting the ability to live independently. This condition of dependency involves all members of the family, particularly those who take direct care of patients. The changes that take place in caregivers' lives may alter their health and have an effect on the care of the sick. OBJECTIVE: To determine the presence of burden, anxiety and depression in caregivers of Alzheimer's patients. METHOD: A descriptive cross-sectional study was performed in 67 family caregivers from the Alzheimer's Clinic Research Unit, Memory and Alzheimer, in the city of Santiago, Dominican Republic. Caregivers were evaluated for burden intensity with the Zarit scale and for both depression and anxiety using the respective Hamilton scales. Descriptive statistical analysis and Pearson correlation were used. RESULTS: 84% of caregivers were female, and 52% were older than 50 years. A total of 36% exhibited caregiver burden; 19% anxiety symptoms; and 43% depressive symptoms. No statistical significance was found between age, sex and number of hours of care. A significant association was found in the Pearson correlation coefficient between caregiver burden, anxiety and depression. CONCLUSION: Caregiver burden was associated with anxiety and depression. It is important for health professionals to include caregiver assessments in the treatment protocols of dementia. Policy should include support programs for carers.

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Creese, Joy, Michel Bédard, Kevin Brazil, and Lori Chambers. "Sleep disturbances in spousal caregivers of individuals with Alzheimer's disease." International Psychogeriatrics 20, no. 1 (February 2008): 149–61. http://dx.doi.org/10.1017/s1041610207005339.

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ABSTRACTBackground: Although sleep problems are commonly reported among dementia caregivers, the nature and frequency of caregiver sleep disruptions, and their relationship to health status, has received little empirical attention to date.Methods: The current study investigated the sleep situations of a sample of 60 spousal caregivers currently residing with a Alzheimer disease care recipient, including the frequency of nocturnal disruptions by the care recipient, and the reasons for these disruptions. In addition, exploratory correlations were computed between caregiver sleep variables and health outcomes.Results: Some 63% of spousal caregivers reported sleep disruptions due to the nocturnal behavior of the recipients of their care. Poorer caregiver sleep quality was associated with higher frequency of nocturnal disruptions by the care recipient, the care recipient needing to use the bathroom, and wandering, higher caregiver depressive symptoms, and higher levels of caregiver role burden. The frequency of nocturnal disruptions was associated with poorer mental health status and a greater number of depressive symptoms.Conclusions: Results suggest that nocturnal disruptions by the care recipient may have adverse health consequences for spousal caregivers, and that further study of the determinants of caregiver sleep quality and health outcomes are warranted.

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Schmidt, Melanie Scheneider, Melissa Orlandi Honório Locks, Karina Silveira de Almeida Hammerschmidt, Darla Lusia Ropelato Fernandez, Francisco Reis Tristão, and Juliana Balbinot Reis Girondi. "Challenges and technologies of care developed by caregivers of patients with Alzheimer's disease." Revista Brasileira de Geriatria e Gerontologia 21, no. 5 (October 2018): 579–87. http://dx.doi.org/10.1590/1981-22562018021.180039.

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Abstract Objective: to identify the challenges and technologies of care developed by caregivers of patients with Alzheimer's disease. Method: an exploratory study with a qualitative approach was carried out with nine caregivers of elderly people with Alzheimer's disease from the mutual help group of a university hospital in the south of Brazil. Data collection took place between May and August 2017 through a semi-structured interview. Content analysis was used to analyze the data. Results: two categories emerged from the analysis of the data: the challenges faced by caregivers of elderly people with Alzheimer's Disease and the care technologies developed by caregivers of elderly people with Alzheimer's disease. Conclusion: the study showed that the care strategies elaborated by the caregiver can enhance understanding, reflection and discussion among health professionals, caregivers and family members about quality care for the elderly and minimize the difficulties of care in order to provide greater quality of care for the elderly.

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Kawada, Tomoyuki. "Risk of caregiver burden in patients with three types of dementia." International Psychogeriatrics 31, no. 1 (January 2019): 153. http://dx.doi.org/10.1017/s1041610218000662.

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Liu et al. (2017) investigated caregiver burden of patients with frontotemporal lobar degeneration (FTD) and dementia with Lewy bodies (DLB), which was compared with caregivers of patients with Alzheimer's disease. The authors concluded that the frequency and severity of behavioral disturbances in caregiver of patients with FTD and DLB were higher than those with caregivers of patients with Alzheimer's disease. I have some concerns about their study.

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Zawadzki, L., K. Mondon, N. Peru, C. Hommet, T. Constans, Ph Gaillard, and V. Camus. "Attitudes towards Alzheimer's disease as a risk factor for caregiver burden." International Psychogeriatrics 23, no. 9 (May 4, 2011): 1451–61. http://dx.doi.org/10.1017/s1041610211000640.

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ABSTRACTBackground: There is abundant literature on the determinants of caregiver burden in Alzheimer's disease (AD), but little is known about the possible implication of specific patterns of a caregiver's attitudes towards the disease that could increase their risk of – or protect them from – emotional distress and burden. The aim of this study was to test the hypothesis that negative attitudes towards AD are associated with an increased level of burden experienced by caregivers of AD patients.Methods: Family caregivers of 51 patients with AD were asked to complete a questionnaire regarding their attitudes towards AD. In addition, we assessed the level of their quality of life, anxiety and depression as well as their perceived level of burden. In parallel, we documented the patients’ characteristics: global cognitive efficiency (Mini-Mental State Examination), behavioral and affective symptoms (Neuropsychiatric Inventory) and functional level (Instrumental Activities of Daily Living).Results: The score of caregiver burden was positively correlated with negative attitudes such as authoritarianism (r = 0.41, p < 0.01) and social restrictiveness (r = 0.49, p < 0.001) as well as emotional reactions of anxiety (r = 0.44, p < 0.01) and aggressiveness (r = 0.47, p < 0.001). In addition, scores of social restrictiveness, rejection and anxiety were significantly higher in women than in men.Conclusion: These results may have implications in terms of the prevention of caregiver burden. In particular, educational and support programs for caregivers should not be limited to developing their knowledge and skills but should also target attitudes towards the disease.

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Cachioni, Meire, Thaís Bento Lima-Silva, Tiago Nascimento Ordonez, Juliana Galo-Tiago, Ana Regina Alves, Milena Yuri Suzuki, and Deusivania Vieira da Silva Falcão. "Elderly patients with Alzheimer's disease and their family relationships: Caregiver perspectives." Dementia & Neuropsychologia 5, no. 2 (June 2011): 114–22. http://dx.doi.org/10.1590/s1980-57642011dn05020010.

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Abstract Objective: The present study was to investigate the status of the family relationships of elderly patients with Alzheimer's disease from a caregiver's perspective. Methods: A total of sixteen relatives/caregivers of AD patients were assessed by applying a semi-structured questionnaire about family relationships. Frequency tables containing categorical variables (gender, schooling, personal income and current occupation) were compiled. Descriptive statistics were calculated of continuous variables such as age. Answers to open questions were submitted to Bardin's content analysis. The data were held on the Epidata program and statistical analysis was performed using the SPSS v.17.0 software package. Results: In line with the literature, the family was the main source of caregivers and the typical caregiver profile was female. In contrast to other studies, emotional burnout was not a major complaint in the sample studied. The ties created among family members and the life experience of each individual influences how interviewees cope with AD. Conclusion: The family relationships of caregivers of AD patients represent a constant challenge, due to changes in roles within the family structure as well as to disease progression. However, participation in psychological and socio-educational activities run by pioneering institutions in Brazil, act as a mediator of stress in the lives of both caregivers and patients.

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Kochhann, Renata, Ericksen Borba, Maria Otília Cerveira, Diego Onyszko, Alyne de Jesus, Letícia Forster, Luisa Franciscatto, Cláudia Godinho, Ana Luiza Camozzato, and Márcia Lorena F. Chaves. "Neuropsychiatric symptoms as the main determinant of caregiver burden in Alzheimer's disease." Dementia & Neuropsychologia 5, no. 3 (September 2011): 203–8. http://dx.doi.org/10.1590/s1980-57642011dn05030008.

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Abstract Caregiver burden is common in Alzheimer's disease (AD), decreasing the quality of life among caregivers and patients. Projections of aging and aging-related diseases such as AD in developing countries justify additional data about this issue because people living in these countries have shown similarly high levels of caregiver strain as in the developed world. Objective: The aim of this study was to analyze the association of AD caregivers' burden with patients' neuropsychiatric symptoms (NPS), cognitive status, severity of dementia, functional capacity, caregiver sociodemographic characteristics, and the characteristics of care provided by caregivers. Methods: A cross-sectional study was conducted in a sample of 39 consecutive AD patients and their primary caregivers. NPS were evaluated using the Neuropsychiatric Inventory (NPI). Severity of dementia was assessed with the Clinical Dementia Rating (CDR) scale. Functional capacity was assessed using the Katz and Lawton scales. The burden level was rated using the Burden Interview (BI). Sociodemographic characteristics of caregivers and the characteristics of care provided by them were evaluated. The Mann-Whitney U-test, Kruskal-Wallis test and Spearman's rho coefficient were performed. Results: The BI had a moderate correlation with NPI intensity (rho=0.563), p<001. Female caregivers reported a greater level of burden (p=0.031) than male caregivers. The other variables were not significantly associated to caregiver burden. Conclusion: NPS were the main determinant of burden in primary caregivers of AD patients. This result underscores the need for prevention and treatment of these symptoms. Sex also had an effect on caregiver burden, but the small male sample in this study precludes the generalization of this finding.

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Mittelman, Mary S. "Effect of Support and Counseling on Caregivers of Patients With Alzheimer's Disease." International Psychogeriatrics 12, S1 (July 2000): 341–46. http://dx.doi.org/10.1017/s1041610200007250.

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Since 1987, the New York University Alzheimer's Disease Center Caregiver Research Program has evaluated the benefits of a multifaceted, structured treatment program for spouse-caregivers of patients with Alzheimer's disease (AD). This intervention strategy for caregivers was based on the clinical experience of counselors who worked with families of AD patients both individually and in support groups for many years. The unifying theme of the intervention is that improving social support and mastery improves the ability of the caregiver to withstand the difficulties of caregiving. The intervention takes into account the diversity and variability in caregiver problems, and is not time limited.

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Dhooper, Surjit SINGH. "Caregivers of Alzheimer's Disease Patients." Journal of Gerontological Social Work 18, no. 1-2 (June 1992): 19–37. http://dx.doi.org/10.1300/j083v18n03_03.

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Whitlatch, Ann M., Dorothy I. Meddaugh, and Kristen J. Langhout. "Religiosity among Alzheimer's disease caregivers." American Journal of Alzheimer's Care and Related Disorders & Research 7, no. 6 (November 1992): 11–20. http://dx.doi.org/10.1177/153331759200700603.

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Stowell, Elizabeth, Yixuan Zhang, Carmen Castaneda-Sceppa, Margie Lachman, and Andrea G. Parker. "Caring for Alzheimer's Disease Caregivers." Proceedings of the ACM on Human-Computer Interaction 3, CSCW (November 7, 2019): 1–27. http://dx.doi.org/10.1145/3359232.

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Beck, Cornelia. "Evaluation of Interventions in Alzheimer's Disease." International Psychogeriatrics 8, S1 (October 1996): 17–20. http://dx.doi.org/10.1017/s104161029600302x.

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To address the development of studies for behavioral problems in patients with Alzheimer's disease (AD), a framework is used that includes the patient, the caregiver (formal or informal), the patient-caregiver interaction, the environment, the organization of care within institutions, and systems for the delivery of care to patients and caregivers. Within each of these components, there will be indicated the areas that are ready for testing using a clinical trial design and the areas that need further study using less controlled designs. Finally, recommendations will be made that address all components of the framework.

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Sarikaya, Suna, and Musa Toprak. "Which Is More Challenging? To Be An Alzheimers Patient, Or To Be A Caregiver For One." JOURNAL OF SOCIAL SCIENCE RESEARCH 8, no. 3 (July 22, 2015): 1651–56. http://dx.doi.org/10.24297/jssr.v8i3.6605.

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The behavioral and psychological symptoms of Alzheimer's disease impose a significant burden on the patients family and caregiver. Objectives: The purpose of this study was to assess the health of individuals who care for Alzheimers patients by using the World Health Organization Quality of Life Questionnaire (WHOQoL-Bref) and the Caregiver Stress Scale, and also to evaluate the relationship between the health and demographic data of these caregivers.

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Park, Myonghwa, Mira Sung, Sun Kyung Kim, Sungjin Kim, and Dong Young Lee. "Multidimensional determinants of family caregiver burden in Alzheimer's disease." International Psychogeriatrics 27, no. 8 (April 8, 2015): 1355–64. http://dx.doi.org/10.1017/s1041610215000460.

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ABSTRACTBackground:Caregiver burden is a complex and multidimensional construct. Although previous studies have explored numerous factors associated with caregiver burden, these factors have not been identified with a large population-based sample in a theory-based multidimensional way. This study explores multidimensional determinants associated with family caregiver burden to determine the main contributors of caregiver burden in Alzheimer's disease (AD) using a large community dataset.Methods:A retrospective secondary data analysis was conducted on 1,133 patients with AD and 1,133 primary caregivers who were registered in a metropolitan city dementia center in South Korea. The patient data included socio-demographic and disease profiles. The caregiver data consisted of socio-demographic and caregiving profiles.Results:The study results identified that dementia-related factors were the most significant factors, representing 25.6% of caregiver burden and were followed by caregiving-related factors explaining caregiver burden significantly. Behavioral problems and instrumental activities of daily living (IADL) dependency of the patient, spousal relationship, hours of caregiving, and the number of diseases associated with the caregiver were found to be significant individual variables.Conclusions:It is vital to develop a service and support program with a greater emphasis on the behavioral problems and IADL deficiency of patients with AD as well as on improving the competence ability of caregivers to deal with such difficulties.

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Godinho, Cláudia, Analuiza Camozzato, Renata Kochhann, and Márcia Lorena Fagundes Chaves. "Association of caregiver demographic variables with neuropsychiatric symptoms in Alzheimer's disease patients for distress on the Neuropsychiatric Inventory (NPI)." Dementia & Neuropsychologia 2, no. 3 (September 2008): 211–16. http://dx.doi.org/10.1590/s1980-57642009dn20300009.

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Abstract Behavioral symptoms are frequently observed in Alzheimer's disease patients and are associated to higher distress for patients and caregivers, early institutionalization, worst prognosis and increased care. Objectives: The objective of the present study was to evaluate the frequency of neuropsychiatric symptoms in a sample of Alzheimer's disease patients and to analyze association between caregiver demographic characteristics and patient symptoms. Methods: Sixty Alzheimer's disease patients (NINCDS-ADRDA) and their caregivers were consecutively included in the investigation by the Dementia Outpatient clinic of Hospital de Clínicas de Porto Alegre. The Neuropsychiatric Inventory (NPI) was applied to evaluate behavioral symptoms and their impact upon caregivers. Age, sex, educational attainment, relationship to the patient, and time as caregiver were obtained from all caregivers. Results: Apathy was the symptom responsible for the highest distress level, followed by agitation and aggression. A significant correlation between total severity NPI and distress NPI was observed. None of the caregiver demographic data showed association to distress. The most frequent symptoms were apathy and aberrant motor behavior. Patients' relatives also considered apathy as the most severe symptom, followed by depression and agitation. Conclusions: Apathy was the most frequent and severe neuropsychiatric symptom. No relationship between caregiver demographic characteristics and distress was observed.

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Indelicato, Alyssa, Lauren Germain, Liliana Barros Una, Alice Krueger, Ann Ludwig, Sharon Brangman, and Telisa Stewart. "Using a Virtual Curriculum to Provide Interprofessional Student Education in Alzheimer’s Disease." Innovation in Aging 4, Supplement_1 (December 1, 2020): 4–5. http://dx.doi.org/10.1093/geroni/igaa057.013.

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Abstract As Alzheimer’s disease increases in prevalence among older adults, there is an increased need for health professionals to effectively communicate with patients and their caregivers. Interactions between providers and Alzheimer’s patients differ from a typical patient-physician encounter. The project created a virtual learning environment (VLE) to better prepare students to engage with Alzheimer's patients and their caregivers. The VLE includes a clinical space, clinical office, and a patient’s home environment for students to practice their health communication skills and to better understand the lived experience. Nursing, MD, and Physician Assistants students were recruited and assigned a virtual provider (avatar). Students engage with a virtual patient (bot) in an exam room and then are directed to engage with a virtual caregiver (bot) in a clinical office. The virtual patient and caregiver have been programmed to respond to questions respectively and provide detailed insight into their lived experiences. After these encounters, the student is asked to react on the information obtained. The student is asked to explore the virtual home environment and triangulate the home experience, the caregiver’s perspective, and the patient’s responses. We are enrolling students to participate in the project and will complete the evaluation data. Students will be assessed for knowledge, self-efficacy, and their overall satisfaction with the virtual learning environment. We anticipate students will have an increase in each of these areas and will have improved communication skills with this at-risk, older adult population.

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Souza, Marina Celly Martins Ribeiro de, Diana Da Silva, Natália De Cássia Horta, Júnia Andressa Rodrigues Melgaço, Lorraine Baêta Viana Martins, and Carolina Marques Borges. "Perceptions on the Quality of Life of Caregivers Caring for Older Adults With Alzheimer's Disease in Brazil: An Urgent Need for Social and Health Policies." International Journal of Studies in Nursing 5, no. 4 (December 30, 2020): 26. http://dx.doi.org/10.20849/ijsn.v5i4.844.

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The aim of this research was to analyze the perceptions on the quality of life of caregivers who care for older adults with Alzheimer's disease. This study was conducted in the municipality of Betim, located in the metropolitan area of Belo Horizonte, Brazil. Thirty-two interviews were conducted with formal and informal caregivers. Data were organized into two empirical categories which affect the quality of life of caregivers: 1) older adult’s familial support, and 2) the burden of caregiver’s extensive workload. Results indicate that the quality of life of a caregiver can be elevated and improved through social support services provided by healthcare professionals, as well as health and social policies which allow a stronger support of caregivers through governmental programs.

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Grobelny, Bartosz, Małgorzata Awdziejczyk, Wojciech Gorczyński, Marcin Janczyk, Marta Leszczyńska, Katarzyna Meissner, Agnieszka Roszyk, et al. "Analysis of benefits from being in a Alzheimer Internet support group for the caregivers of the people suffering from Alzheimer’s disease." Journal of Medical Science 83, no. 1 (March 30, 2014): 65–72. http://dx.doi.org/10.20883/medical.e47.

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Both emotional and physical demands faced by Alzheimer's disease caregivers are very difficult to meet. Often, the amount of strength and calmness needed to fulfil the role of caregiver is beyond the person’s adaptability. The aim of this article is the data analysis of the Alzheimer’s disease caregivers online support groups and problems the caregivers face on the daily basis. Authors compared discussions and solutions available in polish language with methods used in other countries. The study was conducted in late April and May of 2013 by analyzing the user posts found on Polish webistes that associates the caregivers of people suffering form Alzheimer’s disease. Authors assumed that there is a difference between citizens of different countries in the access to useful information that may help in solving daily problems. Confirmation of this hypothesis may indicate the need for modifications by creating a professional platform that associates Alzheimer’s disease caregivers. Authors also analyzed remedies caregivers use and emotional functioning. By presenting recurring problems regarding diagnosis, burnout and coping with daily stress. They try to answer important question: what must be done to meet the needs of caregivers presented via the message boards. They are trying to prove that access to professional knowledge and presence in the environment that brings together caregivers can significantly improve level of performance and satisfaction. Even if the aid is granted only through an online platform of information sharing, the support effects are clearly visible.

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Lima-Silva, Thais Bento, Valéria Santoro Bahia, Viviane Amaral Carvalho, Henrique Cerqueira Guimarães, Paulo Caramelli, Márcio Luiz Balthazar, Benito Damasceno, et al. "Neuropsychiatric Symptoms, Caregiver Burden and Distress in Behavioral-Variant Frontotemporal Dementia and Alzheimer's Disease." Dementia and Geriatric Cognitive Disorders 40, no. 5-6 (2015): 268–75. http://dx.doi.org/10.1159/000437351.

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Background/Aims: We aimed to compare caregiver burden and distress in behavioral-variant frontotemporal dementia (bvFTD) and Alzheimer's disease (AD) and to investigate which factors contribute to caregivers' burden and distress. Methods: Fifty patients and their caregivers were invited to participate. Among the patients, 20 had a diagnosis of bvFTD and 30 had AD. Caregivers and patients were statistically equivalent for age, sex, education and dementia severity according to Clinical Dementia Rating. The protocol included the Short Zarit Burden Inventory, the Neuropsychiatric Inventory (NPI), Disability Assessment for Dementia (DAD), the Cornell Scale for Depression in Dementia (CSDD), Addenbrooke's Cognitive Examination-Revised, the Executive Interview with 25 Items, Direct Assessment of Functional Status and the Geriatric Anxiety Inventory (GAI). Results: In the NPI, caregivers of bvFTD patients reported a higher presence and severity of neuropsychiatric symptoms and caregiver distress compared to caregivers of AD patients. There was no significant difference in the perceived burden. In bvFTD, DAD and GAI scores were significantly correlated with burden, whereas in AD, burden was correlated with CSDD and NPI scores. Psychiatric symptoms were associated with distress in both groups. Conclusions: Caregivers of bvFTD patients experienced higher levels of distress than caregivers of AD patients. Patients' functional limitations were associated with burden of caregivers of bvFTD patients, whereas neuropsychiatric symptoms were associated with caregiver strain in both groups.

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Yildizhan, E., N. Ören, and A. Erdoğan. "Burden of care of the caregivers of Alzheimer's disease patients and relationship with burnout syndromes." European Psychiatry 41, S1 (April 2017): S178. http://dx.doi.org/10.1016/j.eurpsy.2017.01.2081.

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IntroductionIncreased caregiver burden and burn out in Alzheimer disease is associated with a spectrum of problems, like depression or anxiety.ObjectivesTo examine the relationship between the burden of care and burnout level of professional staff dealing with Alzheimer's disease patients in geriatric inpatient centers in Turkey.MethodsZarit Caregiver Burden Scale to measure the level of burden of care, and Maslach Burnout Inventory were used to measure the level of burnout. Relationships between the socio-demographic data of the sample group, burden of care and burnout level were investigated. Sample group was consisting of 203 caregivers working in 8 geriatric care centers in Istanbul.ResultsThe surveyed caregivers’ “burden of care giving” level was low (35.3 ± 9.9); “emotional exhaustion” level was weak (2.3 ± 0.8); “depersonalization” level was weak (1.9 ± 0.6); “a feeling of low personal accomplishment” level was weak (2.5 ± 0.8); “general burnout” level was weak (2.3 ± 0.5). There was positive correlation between caregiver burden and burnout level. According to the sociodemographic data, married women with children were especially in increased risk for burnout. Low level of education was associated with increased caregiver burden and burnout. Caregiver burden and depersonalization points were also higher with increasing age.ConclusionsSupportive interventions are needed to decrease the burnout and caregiver burden especially for the caregivers with increased risk.Disclosure of interestThe authors have not supplied their declaration of competing interest.

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Kim, Sun Kyung, Myonghwa Park, Yunhwan Lee, Seong Hye Choi, So Young Moon, Sang Won Seo, Kyung Won Park, et al. "Influence of personality on depression, burden, and health-related quality of life in family caregivers of persons with dementia." International Psychogeriatrics 29, no. 2 (October 26, 2016): 227–37. http://dx.doi.org/10.1017/s1041610216001770.

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ABSTRACTBackground:Personality may predispose family caregivers to experience caregiving differently in similar situations and influence the outcomes of caregiving. A limited body of research has examined the role of some personality traits for health-related quality of life (HRQoL) among family caregivers of persons with dementia (PWD) in relation to burden and depression.Methods:Data from a large clinic-based national study in South Korea, the Caregivers of Alzheimer's Disease Research (CARE), were analyzed (N = 476). Path analysis was performed to explore the association between family caregivers’ personality traits and HRQoL. With depression and burden as mediating factors, direct and indirect associations between five personality traits and HRQoL of family caregivers were examined.Results:Results demonstrated the mediating role of caregiver burden and depression in linking two personality traits (neuroticism and extraversion) and HRQoL. Neuroticism and extraversion directly and indirectly influenced the mental HRQoL of caregivers. Neuroticism and extraversion only indirectly influenced their physical HRQoL. Neuroticism increased the caregiver's depression, whereas extraversion decreased it. Neuroticism only was mediated by burden to influence depression and mental and physical HRQoL.Conclusions:Personality traits can influence caregiving outcomes and be viewed as an individual resource of the caregiver. A family caregiver's personality characteristics need to be assessed for tailoring support programs to get the optimal benefits from caregiver interventions.

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Ripich, Danielle N., May Wykle, and Sheila Niles. "Alzheimer's disease caregivers: The FOCUSED program." Geriatric Nursing 16, no. 1 (January 1995): 15–19. http://dx.doi.org/10.1016/s0197-4572(05)80073-4.

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Jenkins, Terry S., Iris A. Parham, and Larry R. Jenkins. "Alzheimer's Disease: Caregivers' Perceptions of Burden." Journal of Applied Gerontology 4, no. 2 (December 1985): 40–57. http://dx.doi.org/10.1177/073346488500400206.

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McGrath, William L., Monica M. Mueller, Christine Brown, Jodi Teitelman, and Janet Watts. "Caregivers of Persons with Alzheimer'S Disease." Physical & Occupational Therapy In Geriatrics 18, no. 2 (January 2000): 51–69. http://dx.doi.org/10.1080/j148v18n02_04.

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McGrath, William, Monica Mueller, Christine Brown, Jodi Teitelman, and Janet Watts. "Caregivers of Persons with Alzheimer'S Disease." Physical & Occupational Therapy In Geriatrics 18, no. 2 (December 1, 2000): 51–69. http://dx.doi.org/10.1300/j148v18n02_04.

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Moscoso, Marco Antonio, Rita de Cássia Gomes Marques, Salma Rose Imanari Ribeiz, Lysandra dos Santos, Diana Moitinho Bezerra, Wilson Jacob Filho, Ricardo Nitrini, and Cássio Machado de Campos Bottino. "Profile of caregivers of Alzheimer's disease patients attended at a reference center for cognitive disorders." Dementia & Neuropsychologia 1, no. 4 (December 2007): 412–17. http://dx.doi.org/10.1590/s1980-57642008dn10400015.

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Abstract This is a study on burden of caregivers of patients with Alzheimer's disease attended at a Reference Center for Cognitive Disorders. Objective: To evaluate the profile and burden on caregivers of patients with Alzheimer's disease attended at a Reference Center for Cognitive Disorders. Methods: We collected demographic information and data on the relationship with the patient from caregivers, and measured burden with the Zarit scale. The patients were evaluated with the following scales: the Cambridge Cognitive Test (CAMCOG); Mini Mental State Examination, the Neuropsychiatric Inventory for neuropsychiatry symptoms, and Functional Activities Questionnaire - FAQ for functional impairment. Results: Of the 31 caregivers, 77.4% were female, predominantly, and daughters, having a mean age of 58.6 years, educational level of 8.1 years, 70% of caregivers co-resided with the patient and 71% did not work. The mean time as a caregiver was 3 years. Twenty-seven percent of the caregivers presented mild to severe burden. The variables presenting significant association with caregiver burden were scores on the NPI and CAMCOG. Conclusion: The social demographic characteristics of the sample were similar to those of studies performed in other countries. The average time as a caregiver and the frequency of caregivers with mild to intense burden were lower than those reported in international studies. Neuropsychiatric symptoms and severity of cognitive decline were the main factors associated to burden in this sample of mostly mild to moderate demented AD patients. Further studies are necessary to verify whether the burden is indeed less intense in our milieu.

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Riepe, Matthias, John Weinman, Judith Osae-Larbi, Amy Mulick Cassidy, Sean Knox, Ricardo Chaves, and Beate Müller. "Factors Associated with Greater Adherence to and Satisfaction with Transdermal Rivastigmine in Patients with Alzheimer's Disease and Their Caregivers." Dementia and Geriatric Cognitive Disorders 40, no. 1-2 (2015): 107–19. http://dx.doi.org/10.1159/000381894.

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Background/Aims: Adherence to cholinesterase inhibitors is important in order to maximise treatment efficacy. This study aimed to investigate patient and caregiver factors associated with adherence to and satisfaction with transdermal rivastigmine treatment. Methods: Sociodemographic, clinical and psychosocial data were collected from 127 patients and their caregivers during the first follow-up visit after prescription. At the second follow-up, data were collected on 110 of the dyads. Adherence to and satisfaction with the treatment were assessed using the Medication Adherence Report Scale and an adapted version of the Alzheimer's Disease Caregiver Preference Questionnaire. Results: 66.2% of the caregivers reported being adherent to, and 77.0% were satisfied with, the patch at the second follow-up. Factors predicting higher adherence at the second follow-up were caregivers' greater frequency of contact with patients, greater satisfaction with the information received about the patch, better tolerability of the patch and living at home with their caregivers. Greater concerns of the caregivers about the patch and the patients' belief in ‘other' causes of their Alzheimer's disease predicted a lower adherence at the second follow-up. Conclusions: Assessing and addressing caregivers' concerns about transdermal rivastigmine, improving doctor-patient/caregiver communication to increase caregiver satisfaction with information about the patch as well as providing education and support around patients' beliefs and tolerability of the patch could improve adherence to transdermal rivastigmine.

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Shimizu, Marta Maria, I. Raicher, Daniel Yasumasa Takahashi, Paulo Caramelli, and Ricardo Nitrini. "Disclosure of the diagnosis of Alzheimer's disease: caregivers' opinions in a Brazilian sample." Arquivos de Neuro-Psiquiatria 66, no. 3b (2008): 625–30. http://dx.doi.org/10.1590/s0004-282x2008000500004.

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BACKGROUND: Disclosure of the diagnosis of Alzheimer's disease (AD) remains a contentious issue, and has been little studied in developing countries. OBJECTIVE: To investigate the influence of socio-demographic factors and the experience of being a caregiver on opinion about disclosing AD diagnosis to the patient in a Brazilian sample. METHOD: Caregivers of 50 AD patients together with 50 control participants that did not have the experience of being a caregiver of AD patient were interviewed using a structured questionnaire. RESULTS: Most of the participants (73.0%) endorsed disclosure of the diagnosis, while caregivers were less prone to disclose (58.0%) than controls (88.0%; p=0.0007). Logistic regression confirmed that only the experience of being a caregiver was associated with a lesser tendency for disclosure endorsement. CONCLUSION: The majority of participants was in favor of disclosing the diagnosis, but caregivers were less willing to disclose the diagnosis to the AD patient.

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Fuh, Jong-Ling, Ching-Kuan Liu, Michael S. Mega, Shuu-Jiun Wang, and Jeffrey L. Cummings. "Behavioral Disorders and Caregivers' Reaction in Taiwanese Patients With Alzheimer's Disease." International Psychogeriatrics 13, no. 1 (March 2001): 121–28. http://dx.doi.org/10.1017/s1041610201007517.

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Objectives: To evaluate the applicability of the Chinese version of the Neuropsychiatric Inventory Scale (NPI), and to explore the neuropsychiatric manifestations of Taiwanese patients with Alzheimer's disease (AD) and caregiver distress. Method: The Mini-Mental State Examination (MMSE) was administered to 95 patients with AD, and their caregivers were interviewed with the NPI. To assess the test-retest reliability of the Chinese version of the NPI, 86 caregivers underwent a second NPI 3 weeks later. Results: The Cronbach's alpha coefficient of the Chinese version of the NPI was .76. The test-rest reliabilities of frequency, severity, and caregiver burden scores were significantly correlated; overall correlations were .85 for frequency (p < .001), .82 for severity (p < .001), and .79 (p < .001) for distress. Factor analysis was carried out, and three groups, “mood and psychosis,” “psychomotor regulation,” and “social engagement,” were found. Aberrant motor behavior was the most frequently recorded behavior; euphoria was the least. There was no significant correlation between the patient's MMSE and the caregiver distress score, except for aberrant motor activity (r = −.23, p = .03). The symptoms most frequently reported to be severely distressing to caregivers were aberrant motor activity, anxiety, agitation, and delusions. Conclusions: These results indicate that the NPI is a reliable tool to assess behavioral disturbance and caregiver distress in Taiwanese AD patients. These findings also confirm the high prevalence of psychopathology among AD patients and the marked distress produced by many of these behaviors.

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Cassimjee, Nafisa, Anita D. Stuart, and Maria Marchetti-Mercer. "Non-Cognitive Disturbances and Patient Characteristics: Prevalence and Relationship in Alzheimer's Disease." South African Journal of Psychology 35, no. 2 (June 2005): 225–43. http://dx.doi.org/10.1177/008124630503500205.

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The primary aim of this exploratory study was to determine the spectrum of non-cognitive symptom manifestation in a cohort with Alzheimer's disease. The secondary aim was to explore the relationship between non-cognitive indices and patient characteristics. Information was elicited from 63 primary caregivers using a biographical questionnaire, the Behaviour Rating Scale for Dementia and the Blessed Dementia Scale. Symptoms clustered under the neuropsychiatrie nomenclature included mood-related behaviours, which occurred in over 50% of the sample. Agitation, irritability and apathy were the most common neuro-behavioural dysregulatory behaviours reported by caregivers. The correlation between non-cognitive symptoms and patient characteristics revealed that lower cognitive functioning is significantly associated with aggressive actions and higher levels of cognitive functioning with the manifestation of depressive symptoms. These findings have implications for caregiver distress and caregiver management of non-institutionalised Alzheimer's patients.

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Bergvall, Niklas, Per Brinck, Daniel Eek, Anders Gustavsson, Anders Wimo, Bengt Winblad, and Linus Jönsson. "Relative importance of patient disease indicators on informal care and caregiver burden in Alzheimer's disease." International Psychogeriatrics 23, no. 1 (July 12, 2010): 73–85. http://dx.doi.org/10.1017/s1041610210000785.

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ABSTRACTBackground: Cognition, abilities in activities of daily living (ADL), and behavioral disturbances in patients with Alzheimer's disease (AD) all influence the number of hours informal caregivers spend caring for their patients, and the burden caregivers experience. However, the direct effect and relative importance of each disease severity measure remains unclear.Methods: Cross-sectional interviews were conducted with 1,222 AD patients and primary caregivers in Spain, Sweden, the U.K. and the U.S.A. Assessments included informal care hours, caregiver burden (Zarit Burden Inventory; ZBI), cognition (Mini-mental State Examination; MMSE), ADL-abilities (Disability Assessment for Dementia scale; DAD), and behavioral symptoms (Neuropsychiatric Inventory Questionnaire; NPI-severity).Results: Multivariate analyses of 866 community-dwelling patients revealed that ADL-ability was the strongest predictor of informal care hours (36% decrease in informal care hours per standard deviation (SD) increase in DAD scores). Severity of behavioral disturbances was the strongest predictor of caregiver burden (0.35 SD increase in ZBI score per SD increase in NPI-Q severity score). In addition, the effect of ADL-abilities was, although attenuated, not negligible (0.28 SD increase in ZBI score per SD increase in DAD score). Decreasing cognition (MMSE) was associated with more informal care hours and increased caregiver burden in univariate, but not in adjusted analyses.Conclusions: For patients residing in community dwellings, the direct influence of patients’ cognition on caregiver burden is limited and rather mediated by other disease indicators. Instead, the patients’ ADL-abilities are the main predictor of informal care hours, and both ADL-abilities and behavioral disturbances are important predictors of perceived caregiver burden, where the latter has the strongest effect. These results were consistent across Sweden, U.K. and the U.S.A.

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Luque-Carrillo, Patricia, Ignacio Morales-Cané, Juan Manuel Carmona-Torres, Roberto Manfredini, Mª Aurora Rodríguez Borrego, and Pablo Jesús López-Soto. "Women with high level of education, victims of the care of people with Alzheimer's." Enfermería Global 19, no. 2 (March 14, 2020): 390–420. http://dx.doi.org/10.6018/eglobal.392231.

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Objetivo: Conocer la relación existente entre la tarea de cuidar a pacientes con Enfermedad de Alzheimer, el Género de los cuidadores y su nivel de formación académica. Método: Estudio descriptivo, como sujetos de estudio 69 personas diagnosticadas de Enfermedad de Alzheimer y sus respectivos cuidadores familiares. En los cuidadores se analizó: la edad, el género, el nivel de estudios, carga, depresión, nivel de ansiedad, calidad de vida y soledad social. En los pacientes se valoró la edad, género, nivel de dependencia y estado neuropsicológico. La recogida de datos se realizó en 2016. Entre otros análisis se realizó análisis de regresión logística.Resultados: Se obtuvo que los cuidadores con estudios superiores sufrían mayor carga, siendo mujeres en su mayoría. Mujeres con más probabilidad de presentar soledad social, altos niveles de ansiedad y peor calidad de vida que los hombres. La carga puede ser debida al gran número de responsabilidades y a la imposibilidad de combinarlas con el papel de cuidador. Se puede concluir que las mujeres llegan a ser víctimas del cuidado de personas con Enfermedad de Alzheimer. The aim of this job is to know the existing relationship between the task of caring patients with Alzheimer's disease, caregivers' gender and their level of academic studies. Descriptive study, 69 persons diagnosed with Alzheimer’s disease and their respective familiar caregivers as subjects of the study. Age, gender, academic level, burden, depression, anxiety level, quality of life and social loneliness have been measured in caregivers. Age, gender, dependency level and neuropsychological state have been measured in patients. Data collection was done in 2016. Logistic regression analysis was performed. Caregivers with high levels of academic studies suffer more burden, being women in their majority. They are more likely to present social loneliness and higher levels of anxiety and a worse quality of life than men. The burden may be due to a greater number of responsibilities to respond to, and to the inability to combine it with the role of caregiver. We can conclude that women become victims of caring Alzheimer' patients.

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Finkel, Sanford I. "Research Methodologic Issues in Evaluating Behavioral Disturbances of Dementia." International Psychogeriatrics 8, S2 (February 1996): 149–50. http://dx.doi.org/10.1017/s104161029700330x.

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Behavioral disturbances of dementia have been noted by early researchers in the field, including Esquirol (1838) and Alzheimer in his seminal case description (1907). Increasingly, family members, healthcare providers, and policy makers are realizing that neuropsychiatric symptoms and behavioral problems are an intrinsic component of Alzheimer's disease and result in caregiver psychopathology, early institutionalization, substantial societal costs, and detriment in the quality of life for the patient and caregivers.

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Nogueira, Marcela Moreira Lima, Jose Pedro Simões Neto, Maria Fernanda B. Sousa, Raquel L. Santos, Rachel D. L. Rosa, Tatiana Belfort, Bianca Torres, and Marcia Cristina Nascimento Dourado. "Spouse-caregivers’ quality of life in Alzheimer's disease." International Psychogeriatrics 27, no. 5 (December 11, 2014): 837–45. http://dx.doi.org/10.1017/s1041610214002646.

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ABSTRACTBackground:The relationship between sexuality and quality of life (QoL) of spouse-caregivers remains unclear. We designed this study to evaluate the relationship between sexual satisfaction and spouse-caregivers’ QoL, and to determine the influence of the clinical characteristics of people with dementia (PWD) on spouse-caregivers’ self-reported QoL.Methods:Using a cross-sectional design, 54 PWD and their spouse-caregivers completed the QoL in Alzheimer's Disease scale (QoL-AD), questionnaire on sexual experience and satisfaction (QSES), Mini-Mental State Examination (MMSE), Clinical Dementia Rating scale (CDR), Assessment Scale of Psychosocial Impact of the Diagnosis of Dementia (ASPIDD), Pfeffer functional activities questionnaire (FAQ), the Cornell scale for depression in dementia (CSDD) and Zarit burden interview (ZBI). Univariate and multivariate regression analyses were conducted to identify the factors that influenced the spouse-caregivers’ QoL ratings.Results:We did not find a significant difference in QoL between male and female spouse-caregivers (p = 0.71). We also found that 13% of males and 48.1% of females demonstrated moderate to severe sexual dissatisfaction. However, we did not find a significant correlation between spouse-caregivers’ QoL and sexual satisfaction (p = 0.41). The linear regression indicated that impaired awareness and lower QoL of PWD were significantly related to spouse-caregivers’ QoL (p = 0.000).Conclusions:The spouse-caregivers’ QoL is influenced by awareness of disease and PWD QoL. Our study would be helpful for the development of adequate psycho-educational approaches to increase spouse-caregivers’ QoL, considering the specificities of the couples’ relationship.

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Liken, Michelle A. "Caregivers in Crisis: Moving a Relative with Alzheimer's to Assisted Living." Clinical Nursing Research 10, no. 1 (February 1, 2001): 52–68. http://dx.doi.org/10.1177/c10n1r6.

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The experience of moving a relative with Alzheimer's disease (AD) to an assisted living facility (ALF) was examined in this secondary data analysis of 20 interviews with family caregivers. Crisis theory was used as guiding framework for the analysis. Findings indicate that all elements of a crisis were evident among caregivers in the process of moving their relatives to ALFs. Dangerous behaviors resulting from the relative' s cognitive decline led to caregiver fear and anxiety, which served as crisis precipitants. Perceived lack of family support in conjunction with physical and psychological exhaustion were crisis mediators. These factors, along with the caregiver's failed attempts to keep their relative at home, caused the crisis process to move toward the outcome of ALF placement. A better understanding of the crises that surround placement issues will assist nurses in planning interventions for the growing number of families faced with this issue.

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Ponce, Cinthia Costa, Tiago Nascimento Ordonez, Thaís Bento Lima-Silva, Glenda Dias dos Santos, Luciane de Fátima Viola, Paula Villela Nunes, Orestes Vicente Forlenza, and Meire Cachioni. "Effects of a psychoeducational intervention in family caregivers of people with Alzheimer's disease." Dementia & Neuropsychologia 5, no. 3 (September 2011): 226–37. http://dx.doi.org/10.1590/s1980-57642011dn05030011.

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Abstract Psychoeducational activities are a way of promoting help for caregivers of patients with Alzheimer's disease, representing a forum for knowledge sharing, and in which the primary focus is on psychological themes aimed at carers developing coping skills and strategies. Objective: The main objective of this study was to gauge perceptions about care and its impact among family caregivers of patients with AD participating in a psychoeducational group intervention, as well as the possible positive and negative aspects associated with this role. The subjective impact of AD on the lives of these caregivers was assessed on each of the dimensions of the Caregiver Burden Scale using a semi-directed interview on perceptions about care. Methods: This was a prospective study, in which information was collected twice, before and after, psychoeducational intervention. Through the application of the scale, benefits were evident for all dimensions assessed in the instrument (general strain, isolation, disappointment, emotional involvement and environment). Results: The results showed that after the psychoeducational intervention, caregivers felt less burdened by care compared to pre-intervention. Conclusion: These findings confirm that expanded implementation of psychoeducational interventions for caregivers of patients with AD can be beneficial for both caregivers and patients.

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Diel, Lusiêni, Letícia M. K. Forster, Renata Kochhann, and Márcia Lorena Fagundes Chaves. "Sociodemographic profile and level of burden of dementia patients' caregivers who participate in a support group." Dementia & Neuropsychologia 4, no. 3 (September 2010): 232–37. http://dx.doi.org/10.1590/s1980-57642010dn40300012.

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Abstract The Brazilian Alzheimer's Association recommend the dementia patient's caregiver to attend group meetings which aim to give information and enable them to express and share feelings with individuals who are facing similar difficulties. Objectives: To identify the sociodemographic profile of the individuals who attend the Support Group for Family Members of Individuals with Alzheimer's disease at Hospital de Clínicas de Porto Alegre, and to verify the degree of burden associated to the care given to this kind of patient. Methods: Forty-eight participants were sub-divided into two groups: 23 non-caregivers and 25 caregivers. All participants answered a sociodemographic questionnaire, and the caregivers also answered the Zarit Burden Interview (ZBI). Student's t test was used for comparison of parametric data, and Chi-square test for categorical data between caregivers and non-caregivers. Spearman's rho correlation analysis was performed for the ZBI and the studied variables. Results: Participants were predominantly women. Only age differentiated one subgroup from the other. The mean score on the ZBI was 35.1 (14.7), and most of the caregivers presented up to moderate burden. Conclusions: Women attended the Support Group either as caregiver or non-caregiver. The level of burden among caregivers of high educational attainment was relatively high besides the short time as caregiver (up to a year).

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Spencer, Mindi, Maggi Miller, Diana Jahries, James Davis, and S. Melinda Spencer. "Adapting Resources for Enhancing Alzheimer's Caregiver Health for Dementia-Capable Services." Innovation in Aging 4, Supplement_1 (December 1, 2020): 55. http://dx.doi.org/10.1093/geroni/igaa057.179.

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Abstract The overall goal of the PRISMA Health - REACH (PH-REACH) project was to reduce caregiver burden and improve caregiving skills among caregivers of community-living Alzheimer's disease and related dementia patients and, as a result, improve care and quality of life for both the patients and their caregivers. This evidence-based, person-centered program emphasizes positive aspects of caregiving and provides tools to improve stress management, caregiver self-care, and coping skills for managing problem behaviors. PH-REACH provided in-home caregiver training, support, and service referral to 126 caregivers in the Greenville area. Trained coaches delivered the program to caregivers of persons with moderate to severe dementia in its original format but later adapted it to better fit the caregivers’ needs. Analysis of pre- and post-test data showed that both the standard and adapted interventions provided benefits across multiple caregiver outcomes, including reduced caregiver burden, ability to manage disruptive behaviors of the care recipient, increased caregiver self-efficacy, reduced depression, and a slight improvement in the number of chronic health conditions. This supports and expands on previous research that has demonstrated the ability of this program to translate across different community-based and clinical settings. The tailored version of PH-REACH succeeded in assisting these caregivers, meeting them where they were in their caregiving journey, and provided measurable benefits to both their mental and physical health. Overall, this project provided evidence of the utility of the PH-REACH intervention and laid the groundwork to extend caregiver training and support to other institutions, both inside and outside the health system.

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Wilson, Holly Skodol. "Family caregivers: The experience of Alzheimer's disease." Applied Nursing Research 2, no. 1 (February 1989): 40–45. http://dx.doi.org/10.1016/s0897-1897(89)80024-2.

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Ries, Daryl T. "Caregivers and the ministry in Alzheimer's disease." American Journal of Alzheimer's Care and Related Disorders & Research 8, no. 6 (November 1993): 31–36. http://dx.doi.org/10.1177/153331759300800604.

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Lucero, Mary. "Book Review: Alzheimer's Disease: Caregivers Speak Out." American Journal of Alzheimer's Disease & Other Dementiasr 16, no. 6 (November 2001): 381–82. http://dx.doi.org/10.1177/153331750101600602.

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Ripich, Danielle N., Elaine Ziol, Thomas Fritsch, and Ellen J. Durand. "Training Alzheimer's Disease Caregivers for Successful Communication." Clinical Gerontologist 21, no. 1 (February 4, 2000): 37–56. http://dx.doi.org/10.1300/j018v21n01_05.

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Ayalon, Liat, and Margaret Hellie Huyck. "Latino Caregivers of Relatives with Alzheimer's Disease." Clinical Gerontologist 24, no. 3-4 (July 31, 2002): 93–106. http://dx.doi.org/10.1300/j018v24n03_08.

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Correia, Sheilla de Medeiros, Lilian Schafirovits Morillo, Wilson Jacob Filho, and Leticia Lessa Mansur. "Swallowing in moderate and severe phases of Alzheimer's disease." Arquivos de Neuro-Psiquiatria 68, no. 6 (December 2010): 855–61. http://dx.doi.org/10.1590/s0004-282x2010000600005.

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OBJECTIVE: To characterize the problems of feeding and swallowing in individuals with moderate and severe Alzheimer´s disease (AD) and to correlate these with functional aspects. METHOD: Fifty patients with AD and their caregivers participated in this study. The instruments used were: Clinical Dementia Rating (CDR), Mini-Mental State Examination, Index of Activities of Daily Living, Assessment of Feeding and Swallowing Difficulties in Dementia, Functional Outcome Questionnaire for Aphasia, and Swallowing Rating Scale. RESULTS: Problems with passivity, distraction and refusal to eat were encountered in the CDR2 group. Distraction, passivity and inappropriate feeding velocity were predominant in the CDR3 group. The problems were correlated with communication, swallowing severity of AD individuals and caregiver schooling. CONCLUSION: Given the inexorable functional alterations during the course of the disease, it is vital to observe these in patients with a compromised feeding and swallowing mechanism. The present study supplies the instruments to orient caregivers and professionals.

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Journal articles on the topic 'Caregivers Alzheimer's disease'

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