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Relevant bibliographies by topics / Caregivers Families

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Academic literature on the topic 'Caregivers Families'

Author: Grafiati

Published: 4 June 2021

Last updated: 1 February 2022

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Journal articles on the topic "Caregivers Families"

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Everhart, Robin S., Sarah Miller, Gillian G. Leibach, Alexandra L. Dahl, and Daphne Koinis-Mitchell. "Caregiver Asthma in Urban Families." Journal of School Nursing 34, no. 2 (January 17, 2017): 108–13. http://dx.doi.org/10.1177/1059840516689326.

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Asthma is a significant contributor to missed school days, especially for children living in urban settings. This preliminary study examined the impact of caregiver asthma on school absenteeism in a sample of 102 urban children with asthma from African American, Latino, and non-Latino White backgrounds. Caregivers and children participated in a single research session; 32 caregivers had asthma. Children of caregivers with asthma missed more days of school than children whose caregivers did not have asthma (3.97 vs. 2.43 days, p < .05, Cohen’s d = .40). Other indicators of child asthma morbidity (e.g., hospitalizations) did not differ across caregiver asthma status. Findings highlight that caregiver asthma may be an added risk factor for school absenteeism among children with asthma. For children with a high frequency of asthma-related school absenteeism, school nurses may find it useful to provide educational resources and referrals for caregivers with asthma.

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Strang, Susann, Josefin Fährn, Peter Strang, Agneta Ronstad, and Louise Danielsson. "Support to informal caregivers of patients with severe chronic obstructive pulmonary disease: a qualitative study of caregivers’ and professionals’ experiences in Swedish hospitals." BMJ Open 9, no. 8 (August 2019): e028720. http://dx.doi.org/10.1136/bmjopen-2018-028720.

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ObjectivesInformal caregivers of patients with chronic obstructive pulmonary disease (COPD) experience a heavy caregiver burden, but few studies have explored what support they need. The aim of this study was to describe perceptions of healthcare support to informal caregivers, both from the family caregiver’s and the staff’s perspective.DesignA qualitative interview study involving semi-structured interviews and analysed with content analysis.ParticipantsIn total, 54 participated: 36 informal caregivers of patients with severe (stage 3–4) COPD and 17 healthcare staff.ResultsTwo main themes emerged from the analysis: (1) Ambiguity impedes provision of support. Both caregivers and staff experienced ambiguity. The informal caregivers needed emotional, practical and informational support but talked about unclear expectations, while the staff described an uncertainty about their duties regarding the families. There were no routines to unburden the families. Moreover, language and cultural barriers hampered their efforts. (2) Knowledgeable and perceptive communication is key to support. Both caregivers and staff described positive experiences of dialogue. The dialogue may facilitate means to caregiver support and was a support in itself.ConclusionsOur findings suggest that strategies and routines for caregiver support, including communication skills among the staff, should be developed, to move toward the family perspective advocated in palliative- and nursing family care.

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Woerpel, Allison J., Willie Winston, and Sonya S. Brady. "Stressful Life Circumstances, Resources for Support, and African American Children’s Psychological Symptoms." Journal of Black Psychology 43, no. 4 (April 26, 2016): 327–44. http://dx.doi.org/10.1177/0095798416645717.

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This brief report examines African American children’s and caregivers’ exposure to stressors and perceived support in relation to children’s internalizing and externalizing symptoms. Forty-six children aged 8 to 12 years and their primary caregivers were recruited from an urban school in the Midwestern United States and interviewed separately. Adjusting for child’s age and gender, caregiver’s gender, and number of caregivers in the family, child-reported stressful life events were associated with child-reported internalizing and externalizing symptoms. When children reported greater support from caregivers, children reported fewer externalizing symptoms and caregivers reported fewer oppositional behaviors and ADHD symptoms on the part of their child. Caregivers’ health- and relationship-related stressors were associated with child-reported externalizing symptoms, as well as caregiver-reported ADHD symptoms. Family-based mental health services within schools and communities may improve caregiver and child support systems, reduce caregiver-child conflict, and promote resilience to stress among urban, low-income African American families.

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Wojtaszczyk, Ann, Myra Glajchen, Russell K. Portenoy, Maria Berdella, Patricia Walker, Malcolm Barrett, Jack Chen, et al. "Trajectories of caregiver burden in families of adult cystic fibrosis patients." Palliative and Supportive Care 16, no. 6 (October 17, 2017): 732–40. http://dx.doi.org/10.1017/s1478951517000918.

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ABSTRACTObjectives:Little is known about the experience of family caregivers of adults with cystic fibrosis (CF). This information is important for the identification of caregivers at risk for burden.Methods:This was a longitudinal analysis of survey data obtained from caregivers of adult CF patients participating in an early intervention palliative care trial. Caregivers completed the validated Brief Assessment Scale for Caregivers (BASC) repeatedly over a 28-month period. Mixed-effects modeling evaluated multivariate associations with positive and negative caregiver perceptions over time.Results:Of the 54 caregivers, 47.9% were spouses. The mean age was 50.9 years (SD = 13.2); 72.2% were women; 75.9% were married; and 63.0% were employed. At baseline, the BASC revealed large variations in positive and negative perceptions of caregiving. Although average scores over time were unchanging, variation was greater across caregivers than within caregivers (0.49 vs. 0.27, respectively). At baseline, the positive impact of caregiving in the sample was higher than the negative impact. Multivariate analysis revealed that patients' baseline pulmonary function and their full-time employment status predicted caregiver burden over time.Significance of results:Caregivers of CF patients varied in their positive and negative caregiving experiences, although burden levels in individual caregivers were stable over time. When the disease was advanced, caregivers of CF patients experienced more overall burden but also more positive impact. This suggests that the role of caregivers may become more meaningful as disease severity worsens. In addition, full-time patient employment was associated with lower caregiver burden regardless of disease severity. This suggests that burden in CF caregivers may be predicted by financial strain or benefits conferred by patient employment. These associations require further investigation to determine whether highly burdened caregivers can be identified and assisted using tailored interventions.

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Roberto, Karen, Jyoti Savla, and Steven Zarit. "When the Day Goes Awry: Families Caring for Persons With Dementia." Innovation in Aging 4, Supplement_1 (December 1, 2020): 638–39. http://dx.doi.org/10.1093/geroni/igaa057.2190.

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Abstract The daily lives of family caregivers of persons with dementia (PwD) often require that they manage multiple competing demands in a context of unpredictability. Memory and behavior changes associated with dementia can cause PwD to act in random and irrational ways that create stress and influence all aspects of caregivers’ everyday life. Supportive others, including informal helpers and formal service professionals, should provide relief to primary caregivers; however, help may not alleviate caregiver stress and can sometimes compound the burden of care. This symposium draws on daily diary surveys and face-to-face interviews to focus on four aspects of managing everyday care of PwD among family caregivers in rural areas. Brandy Renee McCann explores how caregivers’ vigilance on behalf of PwD care quality interacts with service use. Karen Roberto examines the ways in which caregivers manage PwD resistance to help, including their use of forceful care strategies. Rosemary Blieszner focuses on competing caregiver roles and demands that may contribute to or alleviate caregiver stress. Tina Savla addresses the unexpected, and often hidden, challenges involved in using formal services. Collectively, the four presentations provide in-depth insight into the complicated daily lives of families coping with dementia and the ways in which they meet the demands of full-time caregiving under often difficult and challenging circumstances. Discussant Steve Zarit considers the efficacy of these management strategies for various aspects of everyday care and offers suggestions for future research and person-centered programs and interventions to reduce health disparities among caregivers in rural areas.

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Su, Jian-An, and Chih-Cheng Chang. "Association Between Family Caregiver Burden and Affiliate Stigma in the Families of People with Dementia." International Journal of Environmental Research and Public Health 17, no. 8 (April 17, 2020): 2772. http://dx.doi.org/10.3390/ijerph17082772.

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Family caregivers of people with dementia (PWD) have a heavy care burden. Affiliate stigma is the stigma internalized by individuals associated with PWD. Limited research has addressed the affiliate stigma among caregivers of PWD and its influence on caregiver burden. Thus, our study investigated the burden of caregivers of PWD and its relationship with affiliate stigma. In addition, we examined the factors related to affiliate stigma. This cross-sectional study was conducted in a general hospital in Taiwan. We recruited 270 PWD and their family caregivers from the outpatient department. Relevant demographic and clinical assessment data of the patients and caregivers were evaluated. Regression analysis was performed to examine the factors associated with affiliate stigma. In total, 23.7% of the family caregivers had depression and 37.4% had anxiety. Male caregivers had higher levels of anxiety and heavier care burdens related to affiliate stigma compared with female caregivers. Moreover, characteristics such as younger age and low levels of dependence in daily activities among PWD were associated with increased affiliate stigma. A higher family caregiver burden was related to more severe affiliate stigma. Interventions for decreasing the family caregiver burden might reduce the effect of affiliate stigma.

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Wang, Tianqian, and Jeffrey Alvin Anderson. "Predicting Caregiver Strain to Improve Supports for the Caregivers of Children With Emotional and Behavioral Disorders." Journal of Family Issues 39, no. 4 (December 26, 2016): 896–916. http://dx.doi.org/10.1177/0192513x16683986.

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Caregivers of children/youth with emotional and behavioral disorders often can experience significant strain associated with the day-to-day care of their children, and reducing strain can bring tremendous advantages to children, caregivers, and families. This study examines several predictors of caregiver strain hypothesized to be related to caring for children with emotional and behavioral disorders. Specifically, children’s symptoms, child and caregiver demographics, caregiver mental health, and caregiver relationship to child were examined to better understand both objective and subjective strain among a sample of families participating in a system of care in southeast Indiana. Regression analyses demonstrated that children’s externalizing symptoms are the strongest predictor for both objective strain and subjective strain. Moreover, caregivers who had experienced mental health issues reported higher levels of subjective externalized strain; biological parents tend to experience higher subjective internalized strain than other relative caregivers do. Implications for practitioners, caregivers, and future research are also discussed.

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Hwang, Boyoung, Kirsten E. Fleischmann, Jill Howie-Esquivel, Nancy A. Stotts, and Kathleen Dracup. "Caregiving for Patients With Heart Failure: Impact on Patients’ Families." American Journal of Critical Care 20, no. 6 (November 1, 2011): 431–42. http://dx.doi.org/10.4037/ajcc2011472.

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Background Factors that affect the impact of caregiving on patients’ family members who provide care to patients with heart failure have not been adequately addressed. In addition, social support and positive aspects of caregiving have received little attention. Objective To identify factors associated with the impact of caregiving. Methods Self-report data were collected from 76 dyads of patients with heart failure and their family caregivers. Clinical data were obtained from medical records. Results A sense of less family support for caregiving was associated with a higher New York Heart Association class of heart failure, being a nonspousal caregiver, lower caregivers’ perceived control, and less social support. More disruption of caregivers’ schedules was associated with higher class of heart failure, more care tasks, and less social support. Greater impact of caregiving on caregivers’ health was related to more recent patient hospitalization, lower caregivers’ perceived control, and less social support. Nonwhite caregivers and caregivers whose family member had fewer emergency department visits felt more positive about caregiving than did other caregivers. Social support had a moderating effect on the relationship between patients’ comorbid conditions and positive aspects of caregiving. Conclusions Caregiving has both positive and negative effects on family caregivers of patients with heart failure. The findings suggest the need for interventions to increase caregivers’ sense of control and social support. Family caregivers may need additional support immediately after patient hospitalizations to minimize the negative impact of caregiving.

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McKee, Grace B., Laiene Olabarrieta-Landa, Paula K. Pérez-Delgadillo, Ricardo Valdivia-Tangarife, Teresita Villaseñor-Cabrera, Daniela Ramos-Usuga, Paul B. Perrin, and Juan Carlos Arango-Lasprilla. "Longitudinal Growth Curve Trajectories of Family Dynamics after Pediatric Traumatic Brain Injury in Mexico." International Journal of Environmental Research and Public Health 17, no. 22 (November 17, 2020): 8508. http://dx.doi.org/10.3390/ijerph17228508.

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Pediatric traumatic brain injury (TBI) represents a serious public health concern. Family members are often caregivers for children with TBI, which can result in a significant strain on familial relationships. Research is needed to examine aspects of family functioning in the context of recovery post-TBI, especially in Latin America, where cultural norms may reinforce caregiving by family members, but where resources for these caregivers may be scarce. This study examined caregiver-reported family satisfaction, communication, cohesion, and flexibility at three time points in the year post-injury for 46 families of a child with TBI in comparison to healthy control families. Families experiencing pediatric TBI were recruited from a large hospital in Guadalajara, Mexico, while healthy controls were recruited from a local educational center. Results from multilevel growth curve models demonstrated that caregivers of children with a TBI reported significantly worse family functioning than controls at each assessment. Families experiencing pediatric TBI were unable to attain the level of functioning of controls during the time span studied, suggesting that these families are likely to experience long-term disruptions in family functioning. The current study highlights the need for family-level intervention programs to target functioning for families affected by pediatric TBI who are at risk for difficulties within a rehabilitation context.

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Verma, Rahul, Yasna Mehdian, Neel Sheth, Kathy Netten, Jean Vinette, Ashley Edwards, Joanna Polyviou, Julia Orkin, and Reshma Amin. "101 Screening for Psychosocial Risk in Families of Children with Medical Complexity (CMC)." Paediatrics & Child Health 25, Supplement_2 (August 2020): e42-e42. http://dx.doi.org/10.1093/pch/pxaa068.100.

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Abstract Background Children with medical complexity (CMC) are defined by their medical fragility, dependence on assistive technology and substantial care needs. Family caregivers of CMC have unique challenges, such as prolonged hospitalizations and poor care coordination, which result in extensive caregiver stress. There is a great need to quantify the level of psychosocial stress and resilience in these caregivers to allow for appropriate allocation of health care resources. The Psychosocial Assessment Tool (PAT) is a brief parent-reported screening tool for measuring psychosocial risk in caregivers of pediatric populations. This is the first study to use the PAT in children with medical complexity. Objectives To quantify psychosocial risk in family caregivers of children diagnosed with medical complexity. To identify predictors of caregiver distress based on their sociodemographic factors. It was hypothesized that the extensive health demands of CMC will result in high amounts of chronic, ongoing caregiver distress relative to the previously studied pediatric populations. Design/Methods This cross-sectional study was conducted at The Hospital for Sick Children, Toronto, Canada. Family caregivers of children with medical complexity completed the PAT questionnaires during regularly scheduled Long-Term Ventilation and Complex Care clinic visits. Based on the overall PAT scores, caregivers were stratified as “Universal” low risk (<1.0), “Targeted” intermediate risk (1.0 to 1.9), or “Clinical” high risk (≥2.0). Multiple linear regression analysis was performed to examine the effect of sociodemographic variables and illness severity on total PAT scores. Comparisons with previous pediatric studies were made using T-test statistics. Results 136 [103 females (76%)] family caregivers completed the study. Mean PAT score was 1.17 (SD = 0.740). 61 (44.85%) caregivers were classified as Universal risk, 60 (44.12%) as Targeted risk, and 15 (11.03%) as Clinical risk. Compared to previously studied pediatric populations, our CMC have the second-highest overall PAT scores, which are also substantially weighted towards the higher risk categories (Table 1). Multiple linear regression analysis demonstrated that subjective report of financial hardship by caregivers is a significant predictor of total PAT scores (p < 0.05). Conclusion Family caregivers of children with medical complexity report PAT scores amongst the highest of all pediatric populations. These caregivers experience significant psychosocial distress, demonstrated by larger proportions of caregivers in the Targeted and Clinical risk categories. Therefore, psychosocial interventions including financial assistance are urgently needed in this population.

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Dissertations / Theses on the topic "Caregivers Families"

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Leung, Cheuk-man Maria. "Needs of families with depression in Hong Kong." Click to view the E-thesis via HKUTO, 2003. http://sunzi.lib.hku.hk/hkuto/record/B31972858.

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Stehle, Peter A. "The caregiving relationship : palliative caregivers' relationships with patients and families." Thesis, Regent's University, 2001. http://openaccess.city.ac.uk/7608/.

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The purpose of this study was to investigate the relationship- and communication experiences of hospice caregivers with patients and families. Two research questions were addressed: 1. How do caregivers experience these relationships and what is the nature of this relationship?, and 2. what role does communication play in the development and maintenance of these relationships? The study was designed as a field study using in-depth interviewing as the principal data collection strategy and a phenomenological-psychologicaal pproach as an analytical technique. The research inquiry consisted of three separate but linked parts: a pilot study with ten participants at a hospice in Great Britain, a subsequent focus group interview with seven of these ten caregivers at the same site, and a followup study with twenty-six participants at four different hospices in Great Britain. A total of thirty-six individual interviews were conducted using a long-interview design. The analyses of the data in this study suggested that the relationship experiences of hospice caregivers with patients and families are grounded in a particular mode of relating or relationship conduct characterized by a display of feelings, closeness, and solicitude. This conduct is the basis on which the caregiving relationship develops. The development and maintenance of this relationship also depends on caregivers' ability and willingness to involve themselves in the total situation of patients and families, to keep essential boundaries intact, and to find the right balance between distance and closeness. The themes of communication that were identified in this study (communicating about diagnosis and prognosis, telling and accepting the truth, facing and accepting death) - as well as the subthemes (finishing "unfinished business", resolving unresolved conflicts, "letting go"), and the communication problems that arise in this context - are all part of the meta-theme of preparing the patient/family unit for the occurrence of death.

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Kao, Hsueh-fen. "Caregiver burden and institutionalization of the elderly in Taiwanese families /." Digital version accessible at:, 1999. http://wwwlib.umi.com/cr/utexas/main.

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McEwen, Marylyn. "Family adaptability, family cohesion, spirituality and caregiver strain in women as caregivers of elder kin." Thesis, The University of Arizona, 1987. http://hdl.handle.net/10150/558069.

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Rugkasa, J. "Cultures of care : perspectives of mental health caregivers in ethnic minority families." Thesis, Queen's University Belfast, 2011. http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.546420.

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Ruuth, Martina, and Madeleine Karlsson. "Transnational Families in the Philippines : Grandmothers and Children Left Behind." Thesis, Mittuniversitetet, Institutionen för socialt arbete, 2012. http://urn.kb.se/resolve?urn=urn:nbn:se:miun:diva-18110.

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Summary: Qualitative interviews were conducted to grandmothers and children living in transnational families in the Philippines. The study aims to examine how they experience their life situation and how they find strategies to cope with difficulties that may appear in transnational family life. Findings: The grandmothers experience difficulties with ageing and health problems in their role as caregivers, and the children experience difficulties with new responsibilities such as household chores, taking care of younger siblings and manage school. For both respondents the financial benefits with having a family member working abroad is the most important. Applications: The results are discussed in the context of globalization, transnational families and gender.

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Matlala, Lebogang Millicent. "The cultural beliefs of families affected by mental illness : the perspectives of caregivers." Diss., University of Pretoria, 2015. http://hdl.handle.net/2263/57202.

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The community of Ntwane lives in a small village unknown to many people. Like most communities, its people are faced with challenges which require the intervention of a multidisciplinary team in order to enhance their quality of life. The prevalence of mental illness, as reported by community members, is high and knowledge in this regard is minimal. This study, which explored the cultural beliefs of families affected by mental illness, was informed by the prevalence of mental illness, as well as a concern regarding the lack of education and knowledge on mental illness. The community members fail to recognise the influence of culture on their beliefs regarding mental illness. Mental illness is viewed as being caused by elements such as witchcraft and supernatural forces, yet culture is not seen as influencing this belief. The goal of this study was to explore and describe caregivers perspectives on the cultural beliefs regarding mental illness of families affected in the small village of Ntwane. The cultural beliefs of families affected by mental illness were explored using snowball sampling. The research approach utilised in this study is qualitative as it sought to gain an understanding through rich, insightful information. A total of twelve participants were drawn from this community with the caregiver representing the family. The findings of the study indicated that there were cultural influences on the view of mental illness in the study community. Witchcraft, punishment for failing to appease the ancestors, as well as supernatural forces and the abnormal movement of blood were perceived to be the causes of mental illness in the community. The study concludes that culture does in fact inform views of mental illness in the study community. The study proposes the need for community education in order to enhance the mental wellness of community members. An education system catering to the needs of individuals with a mental illness is also needed. Specialised mental health services within the reach of community members is also seen as vital and needed in this community.
Mini Dissertation (MSW)--University of Pretoria, 2015.
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Social Work and Criminology
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Leung, Cheuk-man Maria, and 梁卓敏. "Needs of families with depression in Hong Kong." Thesis, The University of Hong Kong (Pokfulam, Hong Kong), 2003. http://hub.hku.hk/bib/B31972858.

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Brown, Mallory. "Caregiver Depression and Social Support in Families with Children with Autism." Thesis, University of Oregon, 2014. http://hdl.handle.net/1794/18306.

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Parents of young children with autism spectrum disorders (ASDs) often report heightened levels of parental distress. An increasing amount of attention is being directed to parental mental health and addressing the well-being of the entire family system. In order to best serve families raising children with ASDs, the present study sought to better understand the relation between social support, various risk factors, and caregiver depression. Data were collected from 60 families with children 2—7 years with ASDs through the use of extensive, in-home interviews with primary caregivers. Mothers reported the availability and helpfulness of both formal and informal supports. Similar to previous research, mothers also reported elevated levels of depression. In the present sample, more than half of mothers reported depressive symptoms at or above the cut-off for mild depressive symptomatology. Both child-related variables (autism symptomatology, atypical behavior) and service-related variables (satisfaction with the education eligibility process, satisfaction with sources of information about ASDs) were predictive of maternal depression. Social support and maternal depression were not related.

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Jooste, Jane Louise Hayslip Bert. "Antecedents of the psychological adjustment of children and grandparent caregivers in grandparent-headed families." [Denton, Tex.] : University of North Texas, 2007. http://digital.library.unt.edu/permalink/meta-dc-5157.

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Books on the topic "Caregivers Families"

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Keene, Nancy. Childhood leukemia: A guide for families, friends & caregivers. 4th ed. Beijing: O'Reilly, 2010.

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Couper, Donna P. Aging and our families: Handbook for family caregivers. New York, N.Y: Human Sciences Press, 1989.

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Keene, Nancy. Childhood leukemia: A guide for families, friends & caregivers. 4th ed. Beijing: O'Reilly, 2010.

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Keene, Nancy. Childhood leukemia: A guide for families, friends & caregivers. Cambridge, [England]: O'Reilly, 1997.

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Keene, Nancy. Childhood leukemia: A guide for families, friends & caregivers. 2nd ed. Beijing: O'Reilly, 1999.

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Alzheimer's shadow: Families facing critical decisions. [Place of publication not identified]: [publisher not identified], 2013.

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Quiet moments for caregivers. Wheaton, Ill: Tyndale House Publishers, 2002.

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Peter, Hayward, ed. Coping with schizophrenia: A guide for patients, families and caregivers. Oxford, England: Oneworld Pub., 2004.

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Fiedler, Barrie. Young carers - making a start: Report of the SSI fieldwork project on families with disability or illness: October 1995 - January 1996. Weatherby: Department of Health, 1993.

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Ott, Peter. Getting families together. Milpitas, CA: Family Services Institute, 1992.

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Book chapters on the topic "Caregivers Families"

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Callahan, Daniel. "Families as Caregivers." In Aging And Ethics, 155–70. Totowa, NJ: Humana Press, 1992. http://dx.doi.org/10.1007/978-1-4612-0423-7_7.

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Jensen, Deborah Ann, and Jennifer A. Tuten. "Involving Parents, Caregivers, and Families." In Successful Reading Assessments and Interventions for Struggling Readers, 189–208. New York: Palgrave Macmillan US, 2012. http://dx.doi.org/10.1057/9781137028655_10.

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Moody-Williams, Jean. "Consumer Information for Patients, Families, and Caregivers." In A Journey towards Patient-Centered Healthcare Quality, 47–59. Cham: Springer International Publishing, 2019. http://dx.doi.org/10.1007/978-3-030-26311-9_5.

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Shankar, Radha, and Kiran Rao. "From Burden to Empowerment: The Journey of Family Caregivers in India." In Families and Mental Disorders, 259–90. Chichester, UK: John Wiley & Sons, Ltd, 2005. http://dx.doi.org/10.1002/0470024712.ch12.

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Monk, Hilary. "Australian Intergenerational Families Valuing the Great Outdoors: A Tapestry of Children’s Cultural Learning Through Specific Parenting Practices." In Parents and Caregivers Across Cultures, 283–97. Cham: Springer International Publishing, 2020. http://dx.doi.org/10.1007/978-3-030-35590-6_20.

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Hossain, Ziarat, and Giovanna Eisberg. "Parenting and Academic Socialization of Young Children: Sociocultural Context for Early Childhood Development in South Asian Families." In Parents and Caregivers Across Cultures, 89–103. Cham: Springer International Publishing, 2020. http://dx.doi.org/10.1007/978-3-030-35590-6_7.

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Brandon-Friedman, Richard A., Rand Warden, Rebecca Waletich, and Kelly L. Donahue. "Supporting caregivers and families of transgender and nonbinary youth." In Social Work and Health Care Practice with Transgender and Nonbinary Individuals and Communities, 194–207. Abingdon, Oxon ; New York, NY : Routledge, 2020.: Routledge, 2020. http://dx.doi.org/10.4324/9780429443176-17.

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Pratt, Helen D. "Working with Families and Caregivers of Individuals with Developmental Disabilities." In Neurodevelopmental Disabilities, 381–87. Dordrecht: Springer Netherlands, 2011. http://dx.doi.org/10.1007/978-94-007-0627-9_24.

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Rosa, Dinelia, and Milton A. Fuentes. "Grief, Loss, and Depression in Latino Caregivers and Families Affected by Dementia." In Caring for Latinxs with Dementia in a Globalized World, 247–64. New York, NY: Springer New York, 2020. http://dx.doi.org/10.1007/978-1-0716-0132-7_14.

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McCorkle, Ruth, and Barbara Given. "The Emotional Responses of Family Caregivers: Living with Cancer and Helping Families Cope." In Cancer Caregiving in the United States, 39–62. New York, NY: Springer New York, 2012. http://dx.doi.org/10.1007/978-1-4614-3154-1_3.

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Conference papers on the topic "Caregivers Families"

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Parks, Michellai K., and Lisa W. Zetley. "Housing Instability Among Families and Caregivers of Children in Foster Care." In AAP National Conference & Exhibition Meeting Abstracts. American Academy of Pediatrics, 2021. http://dx.doi.org/10.1542/peds.147.3_meetingabstract.90.

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Brito da Silva, Andressa, Gabriela Gonzaga Magalhães da Silva, Caroline de Souza e Silva Guimarães, Carla Aparecida Lourdesdos S. de Azevedo, and Patrick Wagner de Azevedo. "Taking care of the caregiver: the meanings unveiled to the caregiver of people with disabilities." In 7th International Congress on Scientific Knowledge. Perspectivas Online: Humanas e Sociais Aplicadas, 2021. http://dx.doi.org/10.25242/8876113220212450.

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In the act of caring, it was widely disseminated as important lookingat the person being cared for and the needs that could be revealedin the construction of the relationship throughout the care process with the caregiver. In this research, our gaze is directed to the caregiver, making it possible to enablewhich meanings, values and beliefs are presentedin the conduct of their lives and how thedialogue with the current speechesin society try to capture them from modelsthat obscure the production of their subjectivity. In this regard, human relationships can be created and always recreated,and any dogmatic forms of relationship can produce limitations of meaning and existential suffering. As a general objective, we sought to understand the production of subjectivity of the caregiver of people with disabilities in the encounter with the disabled subject to be cared for. As specific objectives, to analyze the meanings that permeate the relationship between the caregiver and the person with a disability, in addition to investigatethe meanings unveiled in work relationships and in the affectiverelationships between the caregiver and the person with a disability. The specific objectives analyze the meanings related to the work relationship and affection that goesthrough the crossingswith a care character. In this way, families received specialattention, as many caregivers are family members, withoutdisregardingthe importance of professionals hired to exercise the role of caregiver. With regard to methodology, the guiding methods of the research were Cartography and Phenomenology, using semi-open interviews, as well as a systematic literature review. Ten interviews were produced frompeople of the professional field tocaregivers whose familymembers demanded care due to being disabled. It was possible to noticeresults about the phenomenonand singularities of the established relationshipsthat care implied in a deep existential investment by all respondents, both those who proposed to be involved by job function and those which life directed them in favor of a family member or close person. The speeches that initially seemed well structured, gradually unveiled meanings that indicated a deep regret for the suffering and the severe condition of limitation of the person to be cared for. The searchingfor meaning went beyond mere rationality, and spirituality became a key element in the attempt to nurture existential anxieties. Several participants emphasized that despite the constant physical fatigue and emotional exhaustion, consideringthe complexity of each case in particular, the satisfaction of being able to help, reciprocate or even be useful by applying care made this relationship lighter and more meaningful. Contradictory feelings such as love and a feeling that the caregiver's life is paralyzed, due to the dedication to the person to becared for, clearly emerged

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Zhu, Yiwen. "Socioeconomic Status and Family Structure: A Qualitative Investigation of Female Caregivers in Families Coping with Pneumoconiosis." In International Academic Conference on Research in Social Sciences. Acavent, 2019. http://dx.doi.org/10.33422/iacrss.2019.11.635.

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Vierhout, Megan, Jaymie Varenbut, Elizabeth Amos, Sandy Buchman, Russell Goldman, Amna Husain, James Meuser, and Mark Bernstein. "1 Loss of relationship: a qualitative study of families and caregivers after home-based palliative care ends." In The APM’s Annual Supportive and Palliative Care Conference, In association with the Palliative Care Congress, “Towards evidence based compassionate care”, Bournemouth International Centre, 15–16 March 2018. British Medical Journal Publishing Group, 2018. http://dx.doi.org/10.1136/bmjspcare-2018-aspabstracts.1.

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Carreon, Richie Paul, Julie Ann Hayes, Donal Deehan, and Conan Leavey. "H02 ‘There is this big gap’: the unmet needs of people with advanced hd, families and caregivers." In EHDN Abstracts 2021. BMJ Publishing Group Ltd, 2021. http://dx.doi.org/10.1136/jnnp-2021-ehdn.102.

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Runcan, Remus. "SOCIAL WORK IN ROMANIA IN THE TIME OF THE COVID-19 PANDEMIC: STRENGTHS AND WEAKNESSES." In NORDSCI International Conference. SAIMA Consult Ltd, 2020. http://dx.doi.org/10.32008/nordsci2020/b1/v3/28.

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The Covid-19 pandemic has posed great challenges for all social work clients and their families, caregivers, medical and mental health care providers, and support systems. Social work clients are vulnerable to the detrimental effects of restrictions (isolation) and are confronted with adverse consequences from distancing and new rules, which may trigger or worsen psychiatric disorders (anxiety, depression, self-harm, substance abuse, suicidal behaviour and thoughts), according to recent literature (March-May 2020). This paper presents the results of a survey of Romanian social workers aimed at identifying both positive and negative effects of the Covid-19 pandemic on both social workers and their clients.

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Regazzoni, Daniele, Andrea Vitali, Filippo Colombo Zefinetti, and Caterina Rizzi. "Gait Analysis in the Assessment of Patients Undergoing a Total Hip Replacement." In ASME 2019 International Mechanical Engineering Congress and Exposition. American Society of Mechanical Engineers, 2019. http://dx.doi.org/10.1115/imece2019-10491.

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Abstract Nowadays, healthcare centers are not familiar with quantitative approaches for patients’ gait evaluation. There is a clear need for methods to obtain objective figures characterizing patients’ performance. Actually, there are no diffused methods for comparing the pre- and post-operative conditions of the same patient, integrating clinical information and representing a measure of the efficiency of functional recovery, especially in the short-term distance of the surgical intervention. To this aim, human motion tracking for medical analysis is creating new frontiers for potential clinical and home applications. Motion Capture (Mocap) systems are used to allow detecting and tracking human body movements, such as gait or any other gesture or posture in a specific context. In particular, low-cost portable systems can be adopted for the tracking of patients’ movements. The pipeline going from tracking the scene to the creation of performance scores and indicators has its main challenge in the data elaboration, which depends on the specific context and to the detailed performance to be evaluated. The main objective of this research is to investigate whether the evaluation of the patient’s gait through markerless optical motion capture technology can be added to clinical evaluations scores and if it is able to provide a quantitative measure of recovery in the short postoperative period. A system has been conceived, including commercial sensors and a way to elaborate data captured according to caregivers’ requirements. This allows transforming the real gait of a patient right before and/or after the surgical procedure into a set of scores of medical relevance for his/her evaluation. The technical solution developed in this research will be the base for a large acquisition and data elaboration campaign performed in collaboration with an orthopedic team of surgeons specialized in hip arthroplasty. This will also allow assessing and comparing the short run results obtained by adopting different state-of-the-art surgical approach for the hip replacement.

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Reports on the topic "Caregivers Families"

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Leones, Tiffany, Danae Kamdar, Kayla Huynh, Melissa Gedney, and Ximena Dominguez. Splash and Bubbles for Parents App: Station Study Report. Digital Promise, June 2021. http://dx.doi.org/10.51388/20.500.12265/120.

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This report, prepared for The Jim Henson Company, shares findings of a sub-study investigating the types of support parents and caregivers need when navigating and using the second-screen Splash and Bubbles for Parents app. This study originated from a prior field study finding indicating families would benefit from support around the app since it represents a new kind of digital tool. In partnership with local Public Broadcasting Service (PBS) stations, we provided parents and caregivers more detailed support around the features of the app. Based on survey and interview findings, parents and caregivers found the app helpful for supporting their children’s science learning, thus validating the field study findings. We also found that all sections of the app were used and could help promote conversations between parent/caregiver and child. Moreover, families expressed choosing to use a specific app section when they felt it was more relevant or developmentally appropriate for their child.

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Dominguez, Ximena, Elizabeth Rood, Danae Kamdar, Tiffany Leones, and Kayla Huynh. Splash and Bubbles for Parents App: Field Study Report. Digital Promise, June 2021. http://dx.doi.org/10.51388/20.500.12265/119.

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This report prepared for The Jim Henson Company shares findings of a field study examining the promise of the Splash and Bubbles for Parents app, a second-screen digital resource designed for parents and caregivers to support young children’s learning of ocean science. The study conducted in 2020 involved a two-group, quasi-experimental design in which family participants were randomly assigned to either the intervention condition (who watched the show and used the app) or the comparison condition (who watched the show but did not have access to the app). Findings from this study provided information about how the app supported families to talk about science together; what science concepts and practices children learned through engaging with the app and related science activities; and how families shifted their attitudes, beliefs, or practices around science and media. Another finding highlighted parents and caregivers’ need for support around ways to engage with and use the app given that this represents a new type of digital tool.

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Homan, Rick, and Catherine Searle. Programmatic implications of a cost study of home-based care programs in South Africa. Population Council, 2005. http://dx.doi.org/10.31899/hiv14.1001.

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The HIV/AIDS epidemic has meant that an increasing number of chronically ill people need ongoing assistance with care and support. Programs providing home-based care (HBC) services are a key component of the response to HIV/AIDS. However, few programs are using operations research, including cost studies, to decide what services to provide and how to structure their services. In 2004, the Horizons Program undertook a study of six HBC programs from different South African provinces to provide key information to NGOs, government ministries, donors, and the programs themselves to inform decisions about service delivery. The study analyzed the cost of HBC services, the best use of resources, and how well programs are able to meet the needs of beneficiaries and their families. The sample represents programs that operate in rural areas and informal settlements. This brief focuses on the coverage, organization, volume, and costs of the services and on findings from two of the methods of data collection: financial records and service statistics, and interviews with financial officers, program managers, and caregivers.

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