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1
Leung, Cheuk-man Maria. "Needs of families with depression in Hong Kong." Click to view the E-thesis via HKUTO, 2003. http://sunzi.lib.hku.hk/hkuto/record/B31972858.
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Stehle, Peter A. "The caregiving relationship : palliative caregivers' relationships with patients and families." Thesis, Regent's University, 2001. http://openaccess.city.ac.uk/7608/.
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The purpose of this study was to investigate the relationship- and communication experiences of hospice caregivers with patients and families. Two research questions were addressed: 1. How do caregivers experience these relationships and what is the nature of this relationship?, and 2. what role does communication play in the development and maintenance of these relationships? The study was designed as a field study using in-depth interviewing as the principal data collection strategy and a phenomenological-psychologicaal pproach as an analytical technique. The research inquiry consisted of three separate but linked parts: a pilot study with ten participants at a hospice in Great Britain, a subsequent focus group interview with seven of these ten caregivers at the same site, and a followup study with twenty-six participants at four different hospices in Great Britain. A total of thirty-six individual interviews were conducted using a long-interview design. The analyses of the data in this study suggested that the relationship experiences of hospice caregivers with patients and families are grounded in a particular mode of relating or relationship conduct characterized by a display of feelings, closeness, and solicitude. This conduct is the basis on which the caregiving relationship develops. The development and maintenance of this relationship also depends on caregivers' ability and willingness to involve themselves in the total situation of patients and families, to keep essential boundaries intact, and to find the right balance between distance and closeness. The themes of communication that were identified in this study (communicating about diagnosis and prognosis, telling and accepting the truth, facing and accepting death) - as well as the subthemes (finishing "unfinished business", resolving unresolved conflicts, "letting go"), and the communication problems that arise in this context - are all part of the meta-theme of preparing the patient/family unit for the occurrence of death.
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Kao, Hsueh-fen. "Caregiver burden and institutionalization of the elderly in Taiwanese families /." Digital version accessible at:, 1999. http://wwwlib.umi.com/cr/utexas/main.
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McEwen, Marylyn. "Family adaptability, family cohesion, spirituality and caregiver strain in women as caregivers of elder kin." Thesis, The University of Arizona, 1987. http://hdl.handle.net/10150/558069.
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Rugkasa, J. "Cultures of care : perspectives of mental health caregivers in ethnic minority families." Thesis, Queen's University Belfast, 2011. http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.546420.
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Ruuth, Martina, and Madeleine Karlsson. "Transnational Families in the Philippines : Grandmothers and Children Left Behind." Thesis, Mittuniversitetet, Institutionen för socialt arbete, 2012. http://urn.kb.se/resolve?urn=urn:nbn:se:miun:diva-18110.
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Summary: Qualitative interviews were conducted to grandmothers and children living in transnational families in the Philippines. The study aims to examine how they experience their life situation and how they find strategies to cope with difficulties that may appear in transnational family life. Findings: The grandmothers experience difficulties with ageing and health problems in their role as caregivers, and the children experience difficulties with new responsibilities such as household chores, taking care of younger siblings and manage school. For both respondents the financial benefits with having a family member working abroad is the most important. Applications: The results are discussed in the context of globalization, transnational families and gender.
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Matlala, Lebogang Millicent. "The cultural beliefs of families affected by mental illness : the perspectives of caregivers." Diss., University of Pretoria, 2015. http://hdl.handle.net/2263/57202.
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The community of Ntwane lives in a small village unknown to many people. Like
most communities, its people are faced with challenges which require the
intervention of a multidisciplinary team in order to enhance their quality of life. The
prevalence of mental illness, as reported by community members, is high and
knowledge in this regard is minimal. This study, which explored the cultural beliefs of
families affected by mental illness, was informed by the prevalence of mental illness,
as well as a concern regarding the lack of education and knowledge on mental
illness. The community members fail to recognise the influence of culture on their
beliefs regarding mental illness. Mental illness is viewed as being caused by
elements such as witchcraft and supernatural forces, yet culture is not seen as
influencing this belief.
The goal of this study was to explore and describe caregivers perspectives on the
cultural beliefs regarding mental illness of families affected in the small village of
Ntwane. The cultural beliefs of families affected by mental illness were explored
using snowball sampling. The research approach utilised in this study is qualitative
as it sought to gain an understanding through rich, insightful information. A total of
twelve participants were drawn from this community with the caregiver representing
the family.
The findings of the study indicated that there were cultural influences on the view of
mental illness in the study community. Witchcraft, punishment for failing to appease the ancestors, as well as supernatural forces and the abnormal movement of blood
were perceived to be the causes of mental illness in the community.
The study concludes that culture does in fact inform views of mental illness in the
study community. The study proposes the need for community education in order to
enhance the mental wellness of community members. An education system catering
to the needs of individuals with a mental illness is also needed. Specialised mental
health services within the reach of community members is also seen as vital and
needed in this community.Mini Dissertation (MSW)--University of Pretoria, 2015.
tm2016
Social Work and Criminology
MSW
Unrestricted
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Leung, Cheuk-man Maria, and 梁卓敏. "Needs of families with depression in Hong Kong." Thesis, The University of Hong Kong (Pokfulam, Hong Kong), 2003. http://hub.hku.hk/bib/B31972858.
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Brown, Mallory. "Caregiver Depression and Social Support in Families with Children with Autism." Thesis, University of Oregon, 2014. http://hdl.handle.net/1794/18306.
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Parents of young children with autism spectrum disorders (ASDs) often report heightened levels of parental distress. An increasing amount of attention is being directed to parental mental health and addressing the well-being of the entire family system. In order to best serve families raising children with ASDs, the present study sought to better understand the relation between social support, various risk factors, and caregiver depression. Data were collected from 60 families with children 2—7 years with ASDs through the use of extensive, in-home interviews with primary caregivers. Mothers reported the availability and helpfulness of both formal and informal supports. Similar to previous research, mothers also reported elevated levels of depression. In the present sample, more than half of mothers reported depressive symptoms at or above the cut-off for mild depressive symptomatology. Both child-related variables (autism symptomatology, atypical behavior) and service-related variables (satisfaction with the education eligibility process, satisfaction with sources of information about ASDs) were predictive of maternal depression. Social support and maternal depression were not related.
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Jooste, Jane Louise Hayslip Bert. "Antecedents of the psychological adjustment of children and grandparent caregivers in grandparent-headed families." [Denton, Tex.] : University of North Texas, 2007. http://digital.library.unt.edu/permalink/meta-dc-5157.
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Jooste, Jane Louise. "Antecedents of the Psychological Adjustment of Children and Grandparent Caregivers in Grandparent-Headed Families." Thesis, University of North Texas, 2007. https://digital.library.unt.edu/ark:/67531/metadc5157/.
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Grandparent-headed families are diverse in nature and represent a rapidly growing family type. While challenges facing grandparent caregivers are well documented, less is known about the well-being of their grandchildren, with many early studies relying on small samples of convenience. This study used an existing large national database, the National Survey of America's Families (NSAF), to compare differences in well-being of both children and grandparent caregivers across the independent variables of family type, ethnicity, gender, and age. Findings suggested better mental health and less parental aggravation for caregivers in traditional two parent intact families as compared to grandparents co-parenting in a multi-generation home, skipped generation grandparents (raising their grandchild with no parent present) or single parents. Skipped generation grandparents in particular reported most caregiver aggravation. Child physical health was reported to be worse by skipped generation grandparent caregivers. Behavior problems were reported to be worse for children in grandparent headed households than those in traditional families, particularly for teenagers raised in skipped generation households by their grandmothers. Specific results, limitations and future directions for research on grandparent-headed households were discussed.
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Ray, Lynne. "Promoting the health of families raising a child with a chronic condition : directions for outcomes research /." Thesis, Connect to this title online; UW restricted, 1997. http://hdl.handle.net/1773/7256.
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Radina, M. Elise. "The process of preparing for the care of aging parents : views of Mexican-American sibings /." free to MU campus, to others for purchase, 2002. http://wwwlib.umi.com/cr/mo/fullcit?p3060134.
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Hodgdon, Barbara T. "Work and Family Spillover on Aspects of Well-being in Sandwiched and Filial Caregivers." The Ohio State University, 2018. http://rave.ohiolink.edu/etdc/view?acc_num=osu1523916385728928.
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Cruikshank, Sheila Ann. "Chinese families in supportive care." Thesis, University of British Columbia, 1990. http://hdl.handle.net/2429/28762.
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This study was designed to explore how Chinese families managed the care of an adult member with advanced cancer both in home and hospital settings, to identify factors that affected care management, to examine the influence of cultural beliefs and practices on caregiving, and to examine the preference for location of care, from the perspective of one family member. The method used in conducting this study was the grounded theory approach of qualitative research.
Data were collected through a series of interviews with six Chinese informants (five adult children and one spouse). The initial interviews were guided by the research questions. Constant comparative analysis was employed throughout data collection to permit analytic material to guide and focus the process of constructing the core social process. The informants' degree of ethnic identity was measured using the Ethnic Identity Questionnaire to further validate the researcher's observations pertaining to cultural orientation.
The results indicated that Chinese families managed the care of an adult member with advanced cancer through the balancing process. This process, used when patients were in hospital and home, characterized the struggle the families experienced in managing everchanging caregiving demands and everyday family demands. Balancing was comprised of four interrelated management strategies: gauging, anticipating, sharing the load, and resourcing. It was concluded that the process is not culturally-bound although activities of trying out and patterns of help-seeking were thought to be
culturally based. Factors which were found to influence the balancing process were past experiences and the patients' and family members' style or previous patterns of coping. Cultural beliefs influenced family members' actions and the reasons given for their actions.
The results also indicated that Chinese families preferred care at home to care in the hospital. However, care at home was contingent on four factors: availability and ability of caregivers, family support, information from physician, and patients' physical condition and symptom management. The hospital setting was identified as the place where the ill family would die.
In terms of nursing practice, the results support the need for nurses to be family-focused and support the actions of family members as the families manage the care. The results also suggest nurses to explore their own beliefs as well as beliefs of patients and families to ensure sensitivity is shown to differences. The findings reinforce the importance of educating families, as well as other health care professionals, about nursing's role in providing care, especially in the community. With regard to nursing research, the results reinforce the need to conduct family unit research and further explore the validity of the balancing process with more Chinese families and other ethnic groups.Applied Science, Faculty of
Nursing, School of
Graduate
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McIntyre, Carol Lynne. "The role of competency-enhancing helpgiving practices in parental adaptation for families of children with special needs /." Full text (PDF) from UMI/Dissertation Abstracts International, 2000. http://wwwlib.umi.com/cr/utexas/fullcit?p3004337.
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Schreiber, Emily Garber. "Comparison of Reported Social Support in Single and Two Caregiver Families with a Child with an Autism Spectrum Disorder." Xavier University / OhioLINK, 2015. http://rave.ohiolink.edu/etdc/view?acc_num=xavier1443536114.
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Gallardo, Alejandra. "A support group for families and caregivers of children, youth, and adults with developmental disabilities| A grant proposal." Thesis, California State University, Long Beach, 2015. http://pqdtopen.proquest.com/#viewpdf?dispub=1588610.
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The purpose of this proposed program was to link with a local host agency, discover a potential funding source and write a grant in order to obtain funding for a support group for families of individuals with developmental disabilities (DD). Moreover, the purpose of the project was to provide funding for a family support group by partnering with South Central Los Angeles Regional Center (SCLARC). The program will be implemented at SCLARC, located in Los Angeles, CA. The support group was designed to provide families with interventions, resources, and the skills needed to continue caring for family members with DDs in the best way possible without reaching burnout. A literature review was conducted to thoroughly study the impact DDs have on the affected individuals and their family members. Research demonstrates that there are numerous families in need of emotional, social, and educational support as it also suggest the need of interventions for families.
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Soji, Zoleka. "Practice guidelines for supporting youth-headed families to enhance their resilience." Thesis, Nelson Mandela Metropolitan University, 2013. http://hdl.handle.net/10948/d1016381.
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The topic of the research is derived from the researcher‟s own interest as a social worker and observations of reality within youth-headed families. Over the past few years the number of published studies on child and youth-headed households has grown out of the realisation that this multi-faceted phenomenon is growing in numbers and complexity. Most of these studies and reports concentrate on the issue of scale and the severity of the crisis of child and youth-headed households (UNICEF, 2002; Maqoko & Dryer, 2007 & Kuhanen, Shemeikka, Notkola & Nghixulifwa, 2008). These studies reveal the complex nature of the phenomenon of child and youth-headed families and the challenges that face young people within these families which impact on their growth and development. In most of the studies, the phenomenon of child and youth-headed households has been reported to have an impact on societal framework as a result of its complexity (UNICEF, 2002, 2008; van Dijk, 2008; Kuhanen et al., 2008; Evans, 2010). Over the past years there has been a steady increase in studies that has focussed on coping and resilience of children and young people. Many of these studies have identified resilience-related factors through quantitative ecological approaches to research. To date, there seems to be very few qualitative studies that have been undertaken to delineate the construct of resilience in child and youth-headed families within the South African context from the perspectives of children and young people growing up in these families (Beeka, 2008; Nkomo, 2008; Leatham, 2005). McCubbin (1999, in Smith 2006:48) argues that qualitative research is well suited to understanding processes and strategies in the study of resilience. This study therefore corresponds to McCubbin‟ calling by employing a qualitative research to the study of resilience in youth-headed families. The first goal of this study was to gain a deeper understanding of the experiences and needs of youth-headed families in Port Elizabeth, South Africa, as well as to enhance understanding of the protective factors and processes within youth-headed families and their environment that enable them to cope with their circumstances. The secondary goal of this study was to formulate practice guidelines for supporting members of youth-headed families that could be used by social workers and other service providers rendering services to these families in order to enhance their coping and resilience. The following objectives were formulated to guide the research process: - To explore and describe the experiences and needs of youth-headed families; - To explore the perceptions of community members regarding the needs of youth-headed families, as well as their perceptions regarding how these needs are addressed at community level; - To identify and describe the protective factors and/or processes within individual members of youth-headed families, their families and community context that promote the coping and resilience of youth-headed families; - To explore the views of service providers rendering services to youth-headed families regarding the nature of interventions and programmes rendered to these families; - To review the literature on existing family support programmes in order to identify good practice examples to inform the formulation of practice guidelines for supporting members of youth-headed families.
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Iyalomhe, Nwanyieze. "The impact of the Adoption And Safe Families Act of 1997 on African American kinship caregivers| A policy analysis." Thesis, California State University, Long Beach, 2016. http://pqdtopen.proquest.com/#viewpdf?dispub=10065206.
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The purpose of this thesis was to analyze the Adoptions and Safe Families Act (ASFA) of 1997 and how it has affected African American kinship caregivers. This study utilized David Gil’s policy analysis framework to analyze the ASFA of 1997 as well as primary and secondary data. This analysis specifically examines whether the provisions within the legislature have provided adequate support to African American kinship caregivers toward accomplishing the intended goal of achieving permanency for foster children. The study also explores how the ASFA of 1997 has impacted parents’ ability to reunify with their children within the time frames set by the policy. In addition, the types of services received, the characteristics of the African American kinship caregivers, the barriers that they come across, and the consequences for this population are discussed. Finally, the implications for social work practice and policy are discussed.
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Nwakasi, Candidus C. "Exploring the Experiences of Nigerian Female Dementia Caregivers." Miami University / OhioLINK, 2019. http://rave.ohiolink.edu/etdc/view?acc_num=miami1574869417297074.
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Howard, Arianna. "ILLUMINATING PRACTICES OF EDUCATIONAL CARE AMONG FEMALE AFRICAN AMERICAN CAREGIVERS." The Ohio State University, 2016. http://rave.ohiolink.edu/etdc/view?acc_num=osu1480516735305684.
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Glenn-Applegate, Katherine. "Caregivers’ Preschool Selection Factors and Their Degree of Agency in Selecting High Quality Preschools." The Ohio State University, 2011. http://rave.ohiolink.edu/etdc/view?acc_num=osu1306413949.
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Minor, Penny S. "THE CAREGIVING EXPERIENCES OF ADULT CHILDREN WHO WERE PRIMARY CAREGIVERS TO A PARENT WITH DEMENTIA: A PHENOMENOLOGICAL STUDY." Kent State University / OhioLINK, 2020. http://rave.ohiolink.edu/etdc/view?acc_num=kent1595184216344991.
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Gordon, Diandra Renee. "Caregivers’ Perspectives on Family Participation in the Family Time Initiative Program: Nutrition, Physical Activity, and Cultural Perceptions." The Ohio State University, 2018. http://rave.ohiolink.edu/etdc/view?acc_num=osu1534749935795187.
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Regan, Kenyan W. "Equipping select members of Heritage Heights Baptist Church, Laurel, Mississippi, to become pastoral caregivers to victims of domestic violence." Theological Research Exchange Network (TREN), 2008. http://www.tren.com/search.cfm?p053-0333.
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Chan, Lung-fai, and 陳龍輝. "Mental health of Chinese spousal caregivers of frail elderly: the role of the traditional Chinese familyvalues." Thesis, The University of Hong Kong (Pokfulam, Hong Kong), 2007. http://hub.hku.hk/bib/B38482034.
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Hyde, Emily. "Perception of healthcare professionals and use of formal-informal resources by families with son with chronic mental/physical illness." Virtual Press, 1995. http://liblink.bsu.edu/uhtbin/catkey/1020157.
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The purpose of this secondary analysis of Malone's (1993) study was to identify formal and informal resources used by families with an adult son with chronic mental or physical illness. It also explored the identified perceptions of health care providers by the families in this study. This study was guided by the Resiliency Model of Family Stress, Adjustment and Adaptation (McCubbin & McCubbin, 1993).The sample population was patients who were receiving outpatient care from Valley Mental Health Center and University Hospital Neurology Clinic in Salt Lake City, Utah, and families which met certain criteria. The data of 42 respondents of the original 68 in Malone's (1993) study were perused for trends and themes about the use of formal and informal resources and perceptions of health care professionals using the process of secondary analysis.Findings revealed that the outpatients and families used six formal resources and seven informal resources. Family resources accounted for 44 percent of the total utilization of informal resources by the respondents. Hospital/clinics accounted for 24.3 percent of the total formal resources used by the respondents. Findings also revealed that perceptions of health care professionals by the respondents was negative.With the increase of chronic illnesses, the recommendations and implications for nursing identify that patient education in the future will undoubtedly be the most vital and crucial component to an individual's success/failure to adjust to the chronic illness. With the additional knowledge base, prevention of unnecessary anxiety related to the chronic illness would promote a more positive environment for the patient. In addition, both the patient and family could make that smooth transition into the adaptation phase and function effectively with the chronic mental or physical illness.School of Nursing
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Dolan, Mary L. "Living with Alzheimer's Disease: An Examination of Caregiver Coping Mechanisms." Ohio University Honors Tutorial College / OhioLINK, 2010. http://rave.ohiolink.edu/etdc/view?acc_num=ouhonors1276009587.
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Hunter, Jennifer J. "Revealing Grace: The Lived Experiences of America's Post-9/11 Military Caregivers." Antioch University / OhioLINK, 2017. http://rave.ohiolink.edu/etdc/view?acc_num=antioch1505240652588097.
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Earnshaw, Samantha Sibusisiwe. "The health and living conditions of children in child-headed households in Siteki, Swaziland." Diss., Access to E-Thesis, 2007. http://upetd.up.ac.za/thesis/available/etd-05312010-142537/.
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Forde, Susan Chanderbhan. "West Indian parents', guardians', and caregivers' perceptions, understandings, and role beliefs about K-12 public schooling in the United States." [Tampa, Fla] : University of South Florida, 2008. http://purl.fcla.edu/usf/dc/et/SFE0002457.
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Costa, Rosangela Xavier da. "Entrelaçando os fios da vida: concepções dos cuidadores-familiares de crianças/adolescentes com câncer acerca da morte." Universidade Federal da Paraíba, 2010. http://tede.biblioteca.ufpb.br:8080/handle/tede/4160.
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The subject of the death as part of the human being existence, is still a taboo in the occidental society where we live. As an unpleasant subject, badly understood and, many times denied, the death is not part of people's daily most frequent conversations and reflections, even though the adolescent children/with cancer tutors. Trough this vision, it is relevant to interlace life wires for one better understanding and awareness for such a human experience complex and provocative that is the death. The objective of this study is to analyze the conceptions of the caregivers-families of adolescent children/with cancer concerning the death, and has, as universe, the institution Casa da Criança - Núcleo de Apoio à Criança com Câncer do Estado da Paraíba (NACC-PB) [House of the Child - Support Nucleus to the Cancer Child of the Paraíba State]. Searchs to identify the dimensions of spiritualty that involve this subject, analyzing the care as significant support in the life and the death. The research is qualitative and quantitative, and is classified as exploratory. We use the structuralized and semistructuralized interview and the field note book for the data collection. The analysis corpus was constructed, for tables and graphs, the use of the software Microsoft Excell, associate to the discourse analysis as determinative mechanism for the conclusions and the results of this work. The conceptual base is sedimented in the studies of Elizabeth Kübler-Ross, Philippe Ariès, Edgar Morin, Maria Júlia Kovács, Eymard Mourão Vasconcelos and Vera Regina Waldow, among other authors. The results point to the necessity of including clarifications and quarrels about death in the daily life of the adolescent children/with cancer tutor-families, as form of contribution for the confrontation of a phenomenon that is a part of life.
O tema da morte, como parte da existência humana, ainda é um tabu na sociedade ocidental em que vivemos. Como um assunto desagradável, mal compreendido e, muitas vezes, negado, a morte não faz parte das conversas e das reflexões mais frequentes no cotidiano das pessoas, até mesmo dos cuidadores de crianças/adolescentes com câncer. Diante dessa visão, é relevante entrelaçarmos os fios da vida para uma melhor compreensão e conscientização de uma experiência humana complexa e instigante que é a morte. O objetivo deste estudo é analisar as concepções dos cuidadores-familiares de crianças/adolescentes com câncer acerca da morte, e tem, como universo, a instituição Casa da Criança Núcleo de Apoio à Criança com Câncer do Estado da Paraíba (NACC-PB). Busca identificar, também, as dimensões da espiritualidade que envolve esse tema, analisando o cuidar como suporte significativo na vida e na morte. A pesquisa é qualitativa e quantitativa e se classifica como exploratória. Utilizamos a entrevista estruturada, a semiestruturada e o caderno de campo para a coleta dos dados. O corpus da análise foi construído, para as tabelas e os gráficos, a partir da utilização do programa Microsoft Excell, associado à análise do discurso, como mecanismo determinante para as conclusões e os resultados deste trabalho. A base conceitual está sedimentada nos estudos de Elizabeth Kübler-Ross, Philippe Ariès, Edgar Morin, Maria Júlia Kovács, Eymard Mourão Vasconcelos e Vera Regina Waldow, entre outros autores. Os resultados apontam para a necessidade de se incluírem os esclarecimentos e as discussões sobre a morte, no cotidiano dos cuidadores-familiares de crianças/adolescentes com câncer, como forma de contribuir para o enfrentamento de um fenômeno que faz parte da vida.
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Pfirrman, Jami L. "Children’s Grief Resources: A Website for Children Grieving the Loss of a Parent and their Caregivers." Wright State University Professional Psychology Program / OhioLINK, 2012. http://rave.ohiolink.edu/etdc/view?acc_num=wsupsych1307712808.
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Morrison, Laura. "An ethical framework for pastorally counseling those who love the mentally ill." Theological Research Exchange Network (TREN) Access this title online, 2005. http://www.tren.com.
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Vice, Sara J. "Caregiver Involvement, Psychiatric Services, Caregiver Stress, and Treatment Outcomes for Maltreated Preschoolers." Xavier University / OhioLINK, 2019. http://rave.ohiolink.edu/etdc/view?acc_num=xavier1531162075036221.
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Mahabee-Gittens, E. Melinda, Robert T. Ammerman, Jane C. Khoury, Lara Stone, Gabe T. Meyers, John K. Witry, Ashley L. Merianos, et al. "Healthy families: study protocol for a randomized controlled trial of a screening, brief intervention, and referral to treatment intervention for caregivers to reduce secondhand smoke exposure among pediatric emergency patients." BIOMED CENTRAL LTD, 2017. http://hdl.handle.net/10150/624340.
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Background: Involuntary exposure to secondhand smoke (SHSe) is an important cause of morbidity in children who present to the pediatric emergency department (PED) and urgent care (UC). SHSe interventions delivered in the PED and UC would benefit both the smoker and child, but there have been no large trials testing the efficacy of such interventions. The Healthy Families program is the first randomized controlled trial to test whether a screening, brief intervention, and referral to treatment (SBIRT) intervention delivered in the PED and UC will be effective in decreasing SHSe in children and increasing cessation in smokers. Methods/design: This trial uses a randomized, two-group design in which caregiver-smokers of children 0-17 years old are recruited from the PED and UC. Eligible caregiver-smokers are randomized to either the: 1) SBIRT Condition with face-to-face, tailored counseling that focuses on the child's illness, the importance of reducing child SHSe, caregiver smoking cessation, and the option to receive nicotine replacement therapy; or 2) Healthy Habits Control Condition which includes face-to-face, tailored attention control "5-2-1-0" counseling that focuses on improving the child's health. Dyadic assessments are conducted in-person at baseline, and via email, phone, or in-person at 6-weeks and 6-months. The primary outcomes are biochemically-verified, 7-day point prevalence and prolonged smoking abstinence. Secondary outcomes are cigarettes smoked per week, 24 h quit attempts, and biochemically validated child SHSe at each time point. The costs of this intervention will also be analyzed. Discussion: This study will test an innovative, multilevel intervention designed to reduce child SHSe and increase smoking cessation in caregivers. If effective and routinely used, this SBIRT model could reach at least one million smokers a year in the U.S., resulting in significant reductions in caregivers' tobacco use, SHSe-related pediatric illness, and healthcare costs in this population of children.
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Horstman, Lori A. "Humor as a Coping Mechanism in Caregiver Stress." Miami University / OhioLINK, 2013. http://rave.ohiolink.edu/etdc/view?acc_num=miami1377785245.
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Norman, Teresa, and Maria Prytz. "Närståendes upplevelser av att vårda en anhörig i ett palliativt skede : En litteraturöversikt." Thesis, Ersta Sköndal högskola, Institutionen för vårdvetenskap, 2014. http://urn.kb.se/resolve?urn=urn:nbn:se:esh:diva-4283.
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Bakgrund: Inom den palliativa vården är närstående ofta en förutsättning för att den anhörige ska kunna vårdas i hemmet, trots hjälp från ett vårdteam. De närstående är en viktig del av vården då de känner den anhörige bäst och kan fungera som ett stöd i anpassningen till en ny situation. Den palliativa vården vilar på fyra hörnstenar där närståendestöd ingår. Det ligger också i sjuksköterskans ansvar att stödja närstående i syfte att främja hälsa och förhindra ohälsa. Syfte: Syftet var att beskriva närståendes upplevelser av att vårda en anhörig i ett palliativt skede i hemmet. Metod: Litteraturöversikten baserades på tio vetenskapliga artiklar med kvalitativ ansats, publicerade mellan åren 2003-2011. Artiklarna togs fram via databaserna CINAHL plus with full text och PubMed. Artiklarna analyserades med hjälp av Fribergs analysmetod och det skapades nya teman. Resultat: Resultatet i studien visade att närstående som vårdar en anhörig i hemmet ofta möts av ett tungt ansvar som följs av negativa upplevelser och känslor. Dock kunde en del närstående uttrycka positiva upplevelser av vårdandet. Närstående upplevde en fysisk och psykisk utmattning och en tillvaro där deras egna behov åsidosattes. Närstående hade svårt att bevittna den anhöriges försämring och många påtalade att deras vardagsliv hade blivit starkt påverkat. Stödet från hälso- och sjukvården lyftes ofta av närstående där de beskrev sina upplevelser av hur stödet fungerat. Likaså upplevelser av stöd från familj och vänner. Diskussion: Resultatet har diskuterats mot litteraturöversiktens bakgrund, nya vetenskapliga artiklar och Meleis transitionsteori. I diskussionen lyftes närståendes risk för ohälsa och ett bristande stöd från hälso- och sjukvården. Författarna lyfte också hur sjuksköterskors medvetenhet om transitioner kan vara en hjälp i mötet och stödet av närstående.Background: In palliative care family often is a prerequisite to make care for a relative at home possible despite support of a medical team. Family is an important part of the care since they are familiar to the needs of the relative and can act as support in adapting to a new situation. Palliative care rests on four cornerstones, including support of families. Moreover, it is the nurse's responsibility to support relatives in order to promote health and prevent illness. Aim: The aim was to describe families’ experiences of caring for a relative in a palliative stage at home. Method: The literature review was based on ten scientific articles with a qualitative approach, published between the years 2003-2011. The articles were found in the databases CINAHL plus with full text and PubMed. The articles were analyzed with the help of Friberg’s method of analysis and new themes emerged. Result: The results of the study showed that families who care for a relative at home often face a heavy responsibility followed by negative experiences and feelings. However, some family members expressed positive experiences as a result of the care. Family members experienced a physical and mental exhaustion and a life where their needs were neglected. Family members found it difficult to witness the relative's deterioration and many complained about their everyday life being strongly affected. The support of health care services was often highlighted by family members, describing their experiences of how the support functioned. In addition, experiences of support from family and friends were expressed. Discussion: The result has been discussed against the background of the literature review, new scientific articles and Meleis’ transition theory. The discussion highlighted family members being at risk of developing illness and a lack of support from health care services. The authors also emphasized that nurses' awareness of transitions can be of help in the meeting with and support of family members caring for a relative.
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Owoo, Francesca K. "A Phenomenological Study of the Lived Experiences of Caregivers of Children with Sickle Cell Disease." University of Akron / OhioLINK, 2017. http://rave.ohiolink.edu/etdc/view?acc_num=akron149149171461742.
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Lane, Tyler J. "Health and responsibility : the relationship between parental illness and children's work in South Africa." Thesis, University of Oxford, 2013. http://ora.ox.ac.uk/objects/uuid:d5e4439b-bac8-45fb-a124-cf3e43d65a3a.
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South Africa faces a high disease burden and a limited public capacity to provide care to the ill. Research from the UK and sub-Saharan Africa suggests the burden often falls to children, who also take over domestic responsibilities necessary for household survival. To date, there is limited research exploring the relationship between parental illness and children’ responsibilities, or the moderating effect of socio-demographic variables. The thesis is comprised of three research phases. The first is a literature review to summarise existing research and identify substantial gaps, which included limited amounts of quantitative evidence on this topic and a lack of a tool to as-sess child responsibility that had both been adapted to the South African context and included caring responsibilities. The second research phase consists of an exploratory study of n = 349 children living with ill adults in urban and rural communities in the Western Cape province of South Africa to investigate their range of responsibility, which included caring for an ill parent, household chores, childcare, and income-generation. The resulting data were used to create the Child Responsibility Measure, which assesses the range and time burden of re-sponsibilities among South African children. The third research phase is a cross-sectional quantitative survey of n = 2,476 pairs of children and parents from urban and rural communities in KwaZulu-Natal province, South Africa. Resulting data on parental health, socio-demographics, and child responsibilities were analysed with multiple regres-sions to determine drivers of children’s responsibility. Among the findings were that parental illnesses increase the likelihood children provide care and have larger responsibility workloads, and girls are more likely to take on all types of responsibility excluding income-generating activities, which were more common in boys. Additionally, while urban children were more likely to provide personal care, rural children had greater responsibility workloads.
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Velasco, Caroline de Cássia Francisco Buosi. "Programa de Capacitação de Cuidadores de Famílias Acolhedoras: a contribuição da análise do comportamento." Pontifícia Universidade Católica de São Paulo, 2016. https://tede2.pucsp.br/handle/handle/19602.
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Coordenação de Aperfeiçoamento de Pessoal de Nível Superior - CAPES
Inadequate educational practices may worsen the children´s development problems, and some behavior analysts have been concerned to develop interventions that aims to capacity parents and caregivers to educate their children in order to avoid or soften possible problems in this interaction. A population that deserves attention are the Welcoming Families that introduce in their own home, children who were legally departed of their biological families because they are in a social or personal risk. The present research had the objective of implement and evaluate an intervention in Welcoming Family situation for the handling of relationships among caregivers and child six to nine years old that are welcomed. Participants were five welcoming mothers and their welcomed child, divided in Experimental Group and Control. The procedure involves informative lectures cycle about Welcoming Families and a Training Program. The Training Program was realized in groups and individually. The planned delimitation had the starting evaluation (direct observation of interaction among caregiver and child; interviews and application of the Parenting Style Inventory; intervention group; evaluation after the group interventions, individual intervention, evaluation after individual orientation; removing of group and individual orientation conditions and evaluations after intervention in two different moments. The group intervention had ten meetings in which many themes were discussed. The individual intervention happened at residence and the caregiver orientation occurred in school task doing with the welcoming child. The results demonstrated that the caregivers of Experimental Group increased the positive educational practice happenings and decreased the aversive educational practices and they didn´t return to the levels gained at base line during the follow up. There was also a difference in the results of this group, after the Individual Training. The caregivers of Control Group didn´t change their interaction practices with the welcoming child. One limitation of this study was the lack of objective measures of the child in the school task performance. It is suggested new studies that verify the effectiveness of intervention with teenagers Welcoming Families, doing the adaptations that were necessary to this age
Práticas educativas inadequadas podem agravar problemas comportamentais ao longo do desenvolvimento infantil, e alguns analistas do comportamento têm se preocupado em desenvolver intervenções que visam capacitar pais e cuidadores para educar suas crianças de forma a evitar ou amenizar possíveis dificuldades nessa interação. Uma população que merece atenção são as Famílias Acolhedoras, que inserem em seu próprio lar, as crianças que foram afastadas juridicamente de suas famílias biológicas por se encontrarem em risco social ou pessoal. A presente pesquisa teve como objetivo implementar e avaliar uma intervenção em situação de Acolhimento Familiar para o manejo das relações entre cuidadores e crianças acolhidas de seis a nove anos. Os participantes foram cinco mães acolhedoras, divididas em Grupo Experimental e Controle. O procedimento envolveu ciclo de palestras informativas sobre Famílias Acolhedoras e um Programa de Capacitação. O Programa de Capacitação foi realizado em grupo e individualmente. O delineamento planejado contou com avaliação inicial dos dois Grupos (observação direta da interação entre cuidador e criança; entrevistas e aplicação do Inventário de Estilos Parentais); intervenção de grupo; avaliação após intervenção de grupo, intervenção individual, avaliação após orientação individual; retirada das condições de orientação de grupo e individual e avaliações pós-intervenção em dois momentos diferentes (dos dois Grupos). A intervenção em grupo contou com dez Encontros nos quais se discutiram diversas temáticas sobre relacionamento cuidador-criança, sob a ótica da Análise do Comportamento. A intervenção individual foi realizada na residência das famílias quando houve a orientação da cuidadora na realização de uma tarefa escolar com a criança acolhida. Os resultados demonstraram que as cuidadoras do Grupo Experimental aumentaram as ocorrências de práticas educativas positivas e diminuíram as de práticas educativas aversivas e não retornaram aos níveis obtidos na linha de base durante o follow up. Também houve diferenças importantes entre os resultados do Grupo Experimental após a Capacitação de grupo e individual. As cuidadoras do Grupo Controle não alteraram suas práticas com a criança acolhida. Uma das limitações desse estudo foi a ausência de medidas objetivas de avaliação da criança no desempenho da tarefa escolar. Sugere-se também que novos estudos verifiquem a efetividade de intervenções com Famílias Acolhedoras de adolescentes, realizando as adaptações necessárias para essa faixa etária
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Gonçalves, Sofia Patrícia da Costa. "Conhecimento dos cuidadores informais no cuidar do seu familiar idoso dependente." Bachelor's thesis, [s.n.], 2016. http://hdl.handle.net/10284/5496.
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Projeto de Graduação apresentado à Universidade Fernando Pessoa como parte dos requisitos para obtenção do grau de licenciada em EnfermagemO estudo realizado intitulado “Conhecimento dos cuidadores informais no cuidar do seu familiar idoso dependente” tem como objetivo primordial identificar os conhecimentos e competências dos cuidadores informais no cuidar do seu familiar idoso dependente, melhorando a assistência dos enfermeiros ao indivíduo dependente e sua família e a sua qualidade de vida. Com o aumento progressivo do número de idosos, tem aumentado a ocorrência de situação de dependência física, psíquica e social. Assim, surge uma preocupação dos enfermeiros em dotar os cuidadores informais de um conjunto de conhecimentos e competências que lhes permitam ajudar o seu familiar dependente nas tarefas do quotidiano. Neste estudo a questão de investigação que desencadeou a problemática foi: “Quais são os conhecimentos dos cuidadores informais, face à prestação de cuidados a um familiar idoso dependente?”. Para a sua realização enveredamos por um estudo de natureza quantitativa, descritivo simples, em meio natural, selecionando 15 cuidadores de pessoas idosas dependentes inscritas no ACES de Gondomar. Como instrumento de recolha de dados recorremos a um questionário já validado para a população portuguesa, que aplicamos aos cuidadores informais. Após o tratamento informático dos dados e da sua análise estatística, os resultados evidenciam que na sua maioria, os cuidadores são maioritariamente femininos, com idades compreendidas entre 31 e 80 anos, de baixa escolaridade, prestando cuidados permanentemente, com uma duração média de 5,7 anos. A causa de dependência prevalecente foi o AVC. Em termos de funcionalidade, verifica-se que estes cuidadores cuidam de idosos totalmente dependentes nas atividades básicas de vida diária.
The study entitled "Knowledge of informal caregivers in caring for their dependent elderly family member" has the primary objective to identify the knowledge and skills of informal caregivers in the care of their elderly dependent relative, improving the care of nurses to the dependent individual and his family and their quality of life. With the increasing number of elderly, has increased the occurrence of physical addiction situation, psychological and social. Thus arises a concern of nurses in providing informal caregivers of a set of knowledge and skills that enable them to help your family dependent on everyday tasks. In this study the research question that triggered the problem was, "What are the knowledge of informal carers, due to the care of an elderly dependent relative?". For its realization we set out quantitative study, simple descriptive in natural environment, selecting 15 caregivers of dependent elderly people enrolled in ACES Gondomar. As data collection instrument we used a questionnaire already validated for the Portuguese population, which apply to informal caregivers. After computer processing of the data and their statistical analysis, the results show that the majority of caregivers are predominantly female, aged between 31 and 80 years, with low education, providing care permanently, with an average of 5, 7 years. The cause of the prevailing dependency was stroke. In terms of functionality, it is found that these caregivers care for totally dependent elderly in basic activities of daily living.
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Morais, Camila de Aquino. "Saúde, doença mental e serviços de saúde na visão de adolescentes e seus cuidadores." reponame:Biblioteca Digital de Teses e Dissertações da UFRGS, 2008. http://hdl.handle.net/10183/16665.
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O estudo investigou a visão de adolescentes e seus cuidadores sobre saúde/doença mental, estereótipos e acessibilidade aos serviços de saúde, bem como as principais redes de apoio e estratégias de cuidado utilizadas pelos adolescentes. Participaram do estudo 30 adolescentes de ambos os sexos da periferia de Porto Alegre com idades entre 14 a 18 anos e 28 cuidadores destes, 10 do sexo masculino com idade entre 27 a 55 anos e 18 do sexo feminino com idade entre 31 a 67 anos. Da amostra total dos adolescentes foram entrevistadas 20 famílias de variada configuração. Como instrumentos foram utilizados: diário de campo, roteiro de entrevista da família e questionários auto-aplicáveis. Os resultados dos questionários foram analisados através do SPSS 13.0, sendo levantadas estatísticas descritivas. Para os diários de campo e roteiro de entrevista utilizou-se a análise de conteúdo. Os resultados destes dois instrumentos mostraram a implicação dos aspectos socioeconômicos e dos acontecimentos estressantes da história de vida familiar na saúde mental dos adolescentes e membros da família. Os resultados dos questionários revelaram que a visão de saúde mental dos adolescentes estava associada à capacidade de pensar de forma crítica e relacionar-se bem com os outros. Da doença mental, os adolescentes apresentaram uma visão integradora entre corpo-mente. Os profissionais de saúde, os pais e amigos constaram como as principais redes de apoio. Foram encontradas mais barreiras ideológicas do que estruturais para o acesso aos serviços de saúde. As estratégias de cuidado variaram entre comportamentos em busca de mudança e fuga do problema. Na visão dos cuidadores, saúde mental esteve associada com o bom funcionamento físico, cognitivo e com a satisfação pessoal, apresentando algumas diferenças entre a visão do cuidador e da cuidadora. Da doença mental, identificou-se uma visão integradora corpo-mente e associação com problemas de concentração. A escola, o profissional de saúde e a mídia foram os principais formadores de opinião sobre a visão de saúde/doença mental. Dos estereótipos, foram identificadas mais barreiras ideológicas do que estruturais. Acerca da busca de ajuda e rede de apoio, a mãe, o pai e profissionais de saúde foram citados. Das estratégias de cuidado incentivadas aos adolescentes, a busca de mudança foi mais freqüente. Intervenções sociais e meios de melhorar a prestação de serviços em saúde mental aos adolescentes são discutidos.The aim of this study was to investigate adolescents' and their caregivers' perspective about mental health and illness, stereotypes and accessibility to mental health services, as well as the main support networks and strategies used by adolescen ts to look after themselves. 30 female and male adolescents living in the suburb of Porto Alegre aged 14 to 18; and 28 caregivers, 10 male aged 27 to 55 and 18 female aged 31 to 67 participated in the study. 20 out of 30 adolescents' families were intervie wed during home visits. Families showed different configuration. Field diary, family interview, self-applicable questionnaires on mental health and illness were applied. Questionnaires results were analyzed with SPSS 13.0 and descriptive statistics was mad e for all items. Content analysis was adopted to analyze qualitative data in field diary and family interview. Results from those two instruments showed the implication of socioeconomic aspects and stressful occurrences of family history on adolescents and other family members' mental health. Questionnaire results unveil that adolescents' mental health was associated to the ability of thinking critically and getting along well with others. Adolescents presented an integrated view of health and body. Health professionals, parents and friends formed the main support networks for adolescents. Ideological barrier with regard to access to health services were found more than structural. Adolescents presented care strategies that varied from behaviors in search of change and scape from the problem. Caregivers' mental health perspective was associated with good physical and cognitive functioning and personal satisfaction, presenting some difference between male and female caregivers' perspective. About mental illnes s, caregivers presented an integrated view of body and mind and associated with concentration problems. School, health professional and media are the main opinion boosters about mental health and illness. About stereotypes was found more ideological barriers than structural. Mother, father and health professionals were the main help - seeking. Care strategies motivated to adolescents' indicates search of change when feeling mentally sick. Social interventions and ways to improve health services for adolescents were discussed.
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Dalbosco, Simone Nenê Portela. "O idoso hospitalizado : perspectivas do próprio sujeito a respeito de si mesmo, dos familiares e dos profissionais cuidadores." reponame:Biblioteca Digital de Teses e Dissertações da UFRGS, 2009. http://hdl.handle.net/10183/18267.
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O envelhecimento populacional é um processo universal, que não afeta apenas o indivíduo, mas também a família e a sociedade. No Brasil, o número de idosos está crescendo, o que torna necessário discutir sobre o exercício do cuidado destinado ao sujeito idoso, sobretudo o hospitalizado, bem como as perspectivas que este possui a respeito de si mesmo, dos familiares e dos profissionais cuidadores. O objetivo geral desta pesquisa qualitativa consistiu, assim, em conhecer e compreender a percepção do sujeito idoso hospitalizado a respeito de si mesmo e dos cuidadores familiares e profissionais. Foram sujeitos da pesquisa 19 idosos hospitalizados, com 60 anos ou mais, capazes de responder às questões aplicadas oralmente, a partir de um roteiro prévio, após várias observações, no período de 2007 e 2008, numa instituição hospitalar privada do RS. Tais respostas foram analisadas com base nas seguintes noções: conceitos e preconceitos relativos ao sujeito idoso; o autocuidado e o cuidado prestado por familiares e profissionais; perda de autonomia e institucionalização: a relação do idoso com o profissional cuidador; profissionais cuidadores da área da saúde; o profissional cuidador e a profissional cuidadora: a desigualdade entre os gêneros; qualidade de vida e saúde dos profissionais "cuida(dores)"; o surgimento dos hospitais; a ética, o SUS e as políticas públicas de saúde do idoso. Por meio da análise dos conteúdos, chegou-se a quatro categorias, definidas pelas respostas e não pelas questões: 1) "o idoso fala sobre si e sua doença"; 2) "a percepção do idoso com relação ao cuidador: os âmbitos familiar e profissional"; 3) "percepção do idoso em relação à instituição hospitalar"; 4) "percepção do idoso com relação aos seus direitos e deveres". A partir das respostas analisadas, concluiu-se que muitos sujeitos idosos não tinham clareza sobre a "sua" patologia; verificou-se a esperança em relação à vida e à cura de sua doença geralmente associada à religiosidade e à fé; esteve presente, ainda, a preocupação de se constituir um paciente permanente, com dependência irreversível dos medicamentos ou dos "cuida(dores)", perdendo, assim, a sua autonomia como sujeito. Em relação à instituição, embora tenha se constatado um atendimento ético e parcimonioso, nem sempre isso foi evidenciado pelos sujeitos idosos. O idoso com patologias graves referiu sentir-se mais seguro no hospital por ter ali o apoio técnico indispensável, preferindo, nessa ocasião, o cuidador profissional. Apesar da intenção explícita nas políticas públicas em considerar o idoso como sujeito em uma nova fase de vida, com necessidades e cuidados específicos, verificou-se que os direitos dos idosos ainda são desconhecidos pela sociedade e por eles próprios. A geriatria, a gerontologia e os novos conceitos delas decorrentes não alcançaram, ainda, todos os profissionais cuidadores de idosos, e menos ainda os seus familiares. Daí a urgência de um processo educativo e educador em torno do novo paradigma que busca, entre outras coisas, "pagar uma dívida" para com os idosos e resgatar o sujeito que a modernidade relegou a um lugar periférico e de invisibilidade.The population ageing is a universal process that does not affect only the individual, but also the family and the community. In Brazil, the number of senior citizens is increasing and because of that it is necessary to discuss about the care of the elderly, especially the hospitalized one, as well as to reflect about their perspectives concerning themselves, the family and the professional caregivers. The goal of this qualitative research was to identify and to comprehend the perception of the hospitalized senior citizen concerning themselves, their family and the professional caregiver. The research subjects were 19 hospitalized senior citizens - 60 years old or more - who were able to answer the oral interviews, which were performed, based on a previous script and after several observations, in the period of 2007 and 2008, in a private hospital in the state of Rio Grande do Sul. The criteria used to subdivide the analysis in four categories were defined by the answers and not by the questions. Here they are: Talking about the senior citizens: some concepts and prejudices; The auto-care and the care rendered by family and professionals; Loss of autonomy and institutionalization: the relationship between the elder and the caregiver; Professional caregiver in the health area; From the female caregiver to the male one: the inequality between the genders; Life quality and the caregiver’s health; The hospitals beginning; Ethics and public health policies for the elderly. By the analysis of the contents, four categories were identified: first - "the elder speaks about himself and his disease"; second - "the perception of the elder regarding the caregiver: the familiar and professional scope"; third - "the perception of the elder regarding the hospital institution"; fourth - "the perception of the elder regarding their rights and duties." Based on the analysis realized, it was possible to conclude that many senior citizens did not have clearness about their pathology; the hope regarding life and the cure of the disease was almost associated to the religiosity and faith; the preoccupation of being a permanent patient, with irreversible dependence of medicines or caregivers, losing, thus, their autonomy. Considering the institution, although it was verified an ethical and parsimonious assistance, it was not always evidenced by the senior citizens. The ones with serious pathologies affirm to feel safer in hospital because of its indispensable technical support, desiring, so, the professional caregiver. Besides the explicit intention in the public policies of considering the senior citizen someone in a new phase of life, with specific needs and cares, it was not always verified, making it possible to believe that the rights of the elderly are still unknown by society and also themselves. The geriatrics and gerontology specialties and their new concepts have not reached, yet, all the senior caregivers or families. From that situation, there is the urgency of an educational process around the new paradigm that aims, among other things, to "pay a debt" to the senior citizen, rescuing the individual that modernity has relegated to a peripheral and invisible place.
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Garbelini, Adriana dos Santos. "Funcionamento familiar como mediador da sobrecarga percebida, qualidade de vida, ansiedade e depressão de cuidadores familiares." Universidade de São Paulo, 2014. http://www.teses.usp.br/teses/disponiveis/22/22131/tde-09012015-100223/.
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Considerando a importância da família nos processos de saúde e adoecimento, especialmente quando um familiar torna-se cuidador, o objetivo desse estudo foi verificar associações entre o funcionamento familiar e a sobrecarga percebida, qualidade de vida, ansiedade e depressão do cuidador familiar. Optou-se por um delineamento transversal, descritivo, não experimental, com abordagem quantitativa dos dados. A amostra ficou composta por 101 cuidadores familiares recrutados nos ambulatórios e enfermarias do HCFMRP-USP. Para coleta de dados foram utilizados o Questionário de informações sociodemográficas e familiares; a Escala Zarit Burden Interview (ZBI); o WHOQOL-breve; o Inventários Beck de Ansiedade (BAI) e de Depressão (BDI-II) e a FACES IV para avaliação familiar. A média de idade dos cuidadores foi de 49,7 anos; o tempo médio de cuidado foi 33 meses; a maioria mulheres (88%); com companheiro (74%) e pessoas com até 8 anos de escolaridade (55%). Dentre os participantes, 76,3% apresentaram sobrecarga, 49,5% apresentaram sintomas de ansiedade, 45,5 sintomas de depressão e 23,8% avaliaram suas famílias como disfuncionais. Na comparação entre os subgrupos diferenciados pelo perfil familiar, as famílias funcionais tiveram resultados significativamente superiores nas subescalas coesão, flexibilidade, comunicação e satisfação familiares e nos domínios físico, social e ambiental de qualidade de vida, enquanto as famílias disfuncionais tiveram resultados mais elevados nas subescalas desengajada e caótica e na ZBI. Comparando-se os subgrupos diferenciados por sobrecarga observou-se que cuidadores com ausência ou pouca sobrecarga apresentaram escores significativamente mais elevados na subescala flexibilidade, comunicação e satisfação familiares e nos domínios físico, psicológico, social e ambiental de qualidade de vida, enquanto os cuidadores com algum nível clínico de sobrecarga tiveram resultados superiores na subescala caótica e nos escores de ansiedade e depressão. A análise de regressão logística mostrou que conforme aumenta a sobrecarga aumenta a chance de pertencer a uma família disfuncional e que pertencer à classe social mais baixa também aumenta esta chance. Parte dos resultados deste estudo reafirmam dados de outras pesquisas, especialmente ao apontar que, em geral, as mulheres (filhas ou esposas) assumem o papel de cuidador informal, independentemente de manterem suas atividades de rotina (em casa ou no trabalho). Funcionamento familiar, conforme medido pela FACES IV, mostrou associação com a sobrecarga do cuidador e com qualidade de vida, confirmando, em parte a hipótese deste trabalho de que sintomas de depressão e ansiedade seriam mais evidentes e a qualidade de vida mais comprometida para os cuidadores familiares que participam de famílias disfuncionais do que naquelas consideradas funcionais. Exceto coesão, todas as outras variáveis familiares mostraram melhores resultados na avaliação dos cuidadores familiares que não apresentaram indicadores clínicos de sobrecarga. Ainda, as análises indicaram que conforme aumenta flexibilidade diminui a sobrecarga; o mesmo ocorrendo para comunicação. Isto reforça a hipótese de que a família possa mediar, em alguma medida, a percepção de sobrecarga e os efeitos desta sobre a saúde mental e qualidade de vida do cuidador. Os resultados oferecem subsídios para estudos voltados ao desenvolvimento de intervenções no âmbito familiar, para o cuidado integral de pacientes acometidos por doenças crônicas e limitadoras da funcionalidadeConsidering the importance of the family in health and illness processes, especially when a family member becomes a caregiver, the aim of this study was to investigate associations between family functioning and perceived burden, quality of life, anxiety and depression of family caregivers. We decided by a cross-sectional, descriptive, non-experimental design, with quantitative data approach. The sample was composed of 101 family caregivers recruited in outpatient clinics and wards of HCFMRP-USP. For data collection the questionnaire sociodemographic and family information, Zarit Burden Interview Scale (ZBI); WHOQOL- brief; the Beck Anxiety (BAI) and Depression (BDI-II) Inventories and the FACES IV (to family assessment) were used. The mean age of caregivers was 49.7 years; the average care time was 33 months; most of them was women (88%); with a partner (74%) and people with up to 8 years of schooling (55%). Among the participants, 76.3% presented burden, 49.5% had symptoms of anxiety, 45.5% had symptoms of depression 45.5% and 23.8% assessed their families as dysfunctional. Comparing the subgroups distinguished by family profile, functional families had significantly higher results on the family cohesion, flexibility, communication and satisfaction subscales and on the physical, social and environmental domains of quality of life, while dysfunctional families had higher results on the disengaged and chaotic subscales and ZBI. Comparing the subgroups divided by care burden was observed that caregivers with no or little burden had significantly higher scores on the family flexibility, communication and satisfaction subscales and on the physical, psychological, social and environmental domains of quality of life, while caregivers with some clinical burden level had superior results in chaotic subscale and in anxiety and depression scores. The logistic regression analysis showed that as increases burden increases the chance of belonging to a dysfunctional family and that belonging to the lower social class also increases this chance. Part of the results of this study confirm data from other researches, especially to point out that, in general, women (wives or daughters) take on the role of informal caregivers, regardless of maintaining their routine activities (at home or at work). Family functioning, as measured by the FACES IV, was associated with caregiver burden and quality of life, partially confirming the hypothesis of this study that symptoms of depression and anxiety would be more evident and the quality of life more committed for family caregivers participating in dysfunctional families than those that participating in functional families. Except cohesion, all other family variables showed better results in the assessment of family caregivers who did not have clinical indicators of burden. Further, these results indicate that as increases flexibility decreases the burden, the same occurs for communication. This reinforces the hypothesis that the family can mediate, to some extent, the burden perceived, and its effects on mental health and quality of life of the caregiver. The findings offer subisidies for studies focused on development of interventions within the family, for the comprehensive care of patients suffering from chronic diseases and limiting functionality
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Allred, Diane W. "Caregiver Burden and Sibling Relationships in Families Raising Children with Disabilities." BYU ScholarsArchive, 2013. https://scholarsarchive.byu.edu/etd/3771.
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The purpose of this study was to examine sibling relationships and caregiver burden in families raising children with disabilities (CWD). In order to determine (a) are there differences in caregiver burden according to parent gender and types of disability (b) are there differences in sibling relationships according to parent gender and type of disability and (c) is there a relationship between caregiver burden and sibling relationships after controlling for CWD and sibling gender and age, and type of disability? After IRB approval, 166 families living in the west and raising typically developing children (TDC) or a CWD participated. Disabilities included autism; Down syndrome (DS); other disabilities (OD), which included orthopedic impairment, intellectual disabilities, emotional or physical disabilities, health impairment; and multiple disabilities (MD), which included both physical and intellectual disabilities. After consenting, both parents independently completed the 28-item Schaefer Sibling Inventory of Behavior. This inventory ranked sibling behaviors in relation to kindness, involvement, empathy,and avoidance. Additionally a revised version of the Caregiver Strain Index (Robinson, 1983) measuring hassle and frequency of burden was utilized. Mothers completed a demographic questionnaire. Analyses included descriptive statistics, a MANOVA, correlations, and multiple regressions. Results indicated mothers perceived more burden than fathers for all disability types. Parents of children with autism perceived the highest burden, and mothers of TDC and fathers of children with DS perceived the least amount burden. Mothers rated female siblings higher in kindness, involvement, and empathy than male siblings. Whereas, fathers rated siblings of children with OD as least avoidant; as did mothers of children with DS. The highest sibling relationship scores were fathers' rating of empathy in families raising children with DS and mothers' rating of empathy in families raising children with MD. There was a positive relationships between caregiver burden for both parents and between both parent's ratings of sibling empathy, kindness, and involvement. A negative relationship was found between parents'ratings of avoidance and empathy, kindness and involvement. All caregiver burden variables were positively related to avoidance. Siblings may benefit from information regarding a child's disability in order to decrease avoidance behavior. It would also be important to provide interventions/information about respite care and other appropriate community resources to parents of children with autism in order to help decrease the burden they experience. Finally, parents of CWD may benefit from information regarding the effect their perception of burden has on relationships between the child and siblings.
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Oliveira, Silvia Lúcia de Castro. "Dinâmica da vivência do familiar que assume o cuidado de um paciente insulino-requerente." reponame:Repositório Institucional da FURG, 2003. http://repositorio.furg.br/handle/1/2573.
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Dissertação(mestrado) - Universidade Federal do Rio Grande, Programa de Pós-Graduação em Enfermagem, Escola de Enfermagem, 2003.Submitted by eloisa silva (eloisa1_silva@yahoo.com.br) on 2012-08-21T20:17:17Z No. of bitstreams: 1 silviadecastro.pdf: 620606 bytes, checksum: 08166996dcdcc9bcb58d5e75b90df4db (MD5)
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Este é um estudo qualitativo, que teve por objetivo compreender como é vivenciada a relação do cuidado familiar ao paciente diabético, baseado na Teoria do Vínculo de Pichon Rivière, subsidiada por conceitos de Caplan, Bronfenbrenner e Yunes. Com sua realização, buscou-se conhecer o impacto que esta doença provoca no contexto familiar, principalmente em relação à personagem cuidador. O estudo foi realizado em um Centro de Saúde, no município de Rio Grande, junto a familiares de pacientes vinculados ao Programa Municipal de Assistência ao Diabetes. A coleta de dados aconteceu por meio de oito reuniões semanais com este grupo de cuidadores e de entrevistas individuais com cada uma das pessoas participantes do grupo de pesquisa. Com as sucessivas reuniões, através dos depoimentos e das trocas havidas entre as mesmas, pôde ser compreendido como é distribuída a responsabilidade familiar de cuidar de uma pessoa com diabetes, sendo possível identificar fatores como preparo para a função, informação recebida, disponibilidade emocional e vital. Os aspectos políticos sociais foram abordados como forma de contextualizar o trabalho. Foram, ainda, levadas informações aos cuidadores, de forma a possibilitar, não apenas conhecer seu nível de conhecimento e sua capacidade crítica, mas, principalmente, para auxiliá-los a promover melhoras em suas condições de vida.
This qualitative study aimed to understand the interpersonal aspects of the relationship between diabetes patients and their familiar caregivers. The whole study was based in the Pichon Rivière's Link Theory, with the background of Caplan, Bronfenbrenner and Yunes's concepts. The main goal was to discover the way family members, mainly the caregiver, react to the disease. group. It was also conducted individuals interviews with each member of the group The study was developed in a Health Center, Rio Grande County. It was created a group with the family members of the County Diabetes Care Project's patients. During the study period it was conducted weekly meetings with the caregivers. The statements obtained during the meetings and the interpersonal exchanges permit to understand how the family members share the responsibilities of diabetes patient care. These factors were identified: the function readiness, the amount of received information, and the vital and emotional availability. The social politics aspects were studied to give a context to the study. The caregivers have received a lot of information to make possible know their knowledge level, critical capacity, but, mainly, improve their live conditions.
Este estudio cualitativo apuntó entiender los aspectos interpersonales de la relación de cuidado familiar al paciente de diabetes. El trabajo fue baseado en la Teoria del Vinculo de Pichon-Riviere, subsidiada por conceptos de Caplan, Bronfrenbrenner y Yunes. La meta principal fue descubrir el impacto que la enfermedad produce en el contexto familiar, principalmente en relacion a el personaje cuidador. El estudio fue desarrollado en un Centro Médico, Condado de Rio Grande. Fue creado un grupo con los miembros de la familia de los pacientes de Proyecto de Cuidado de Diabetes de Condado. Durante el estudia fueran conducidos las reuniones semanales con el cuidadores. Las declaraciones obtuvieron durante las reuniones y el interpersonal cambia permite entiender cómo la acción de miembros de familia distribue las responsabilidades de cuidado del el cuidado paciente diabetico. Fueran identificados factores como: el preparo para la funcion, informacion previa recebida, disponibilidad emocional y vital. Aspectos politico sociales fueram abordados de manera a contextualizar el trabajo. A los cuidadores fueran prestadas informaciones, de modo a possibilitar, no apenas conocer su nivel de conocimiento y su capacidad critica, todavia tambien promover mejoras en su condicion de vida.
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Torres, Misty Dawn. "Finding Childcare for the Disabled Child: The Process and Decisions Through the Primary Caregiver’s Lens." Antioch University / OhioLINK, 2015. http://rave.ohiolink.edu/etdc/view?acc_num=antioch1433776716.
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Jordão, Carina Daniela Santos. "Relações de cuidado: Sobrecarga no cuidador informal, coesão e flexibilidade familiar na doença de Alzheimer." Master's thesis, ISPA -Instituto Universitário, 2013. http://hdl.handle.net/10400.12/2809.
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Dissertação de Mestrado em Psicologia Clínica apresentada ao ISPA - Instituto UniversitárioO presente estudo tem como objectivo avaliar a sobrecarga física, emocional e social dos cuidadores informais de idosos com Doença de Alzheimer e explorar o funcionamento familiar destes, antes e depois, do aparecimento da doença. Para tal, foi aplicado, a 91 cuidadores informais de idosos com Doença de Alzheimer, os questionários de sobrecarga do cuidador informal (QASCI) (Martins, Ribeiro & Garrett, 2006) e a Escala de Avaliação da Flexibilidade e Coesão Familiar (FACES IV) (Olson, 2011). A análise dos resultados demonstrou que a maioria dos cuidadores informais são do sexo feminino e filhas dos doentes, sendo que a maioria dispõe de apoio formal para lidar com a situação do familiar. Foram encontrados efeitos de interacção em duas das dimensões do questionário de sobrecarga do cuidador informal bem como efeitos principais em todas as dimensões do instrumento. No que concerne à duração dos cuidados prestados, não foram verificadas diferenças estatisticamente significativas pelo que não podemos afirmar que o tempo como cuidador se relaciona com a sobrecarga física, emocional e social. Além disto, os resultados sugeriram efeitos de interacção numa das dimensões da Escala de Avaliação da Flexibilidade e Coesão Familiar e efeitos principais em todas as dimensões da mesma. As conclusões e limitações do estudo são apresentadas e discutidas.
This study aims to evaluate the physical, emotional, and social burden of informal caregivers of elderly people with Alzheimer’s Disease as well as explore how their families function, before and after the emergence of the disease. For these purposes the Assessment Questionnaire of Caregiver Burden (QASCI) (Martins, Ribeiro & Garrett, 2006) and the Family Adaptability and Cohesion Evaluation Scale (FACES-IV) (Olson, 2011), were applied to 91 ICs of elderly people with Alzheimer’s Disease. The results suggest that most of the informal caregivers are female and daughters of the sick elderly person they attend to, most of them having access to formal support in dealing with their family situation. Effects of interaction were found in two dimensions of questionnaire of caregiver burden as well as main effects in all dimensions. About the duration of care giving, there were no statistically significant differences, which prevent us from alleging that the time spent as an informal caregiver relates to physical, emotional, and social burden. Furthermore, the results suggest interaction effects in one of the dimensions of the Family Adaptability and Cohesion Evaluation Scale and main effects in all of the scales’ dimensions. The study’s conclusions as well as its limitations are presented and discussed.