Relevant bibliographies by topics / Caregivers – Social aspects

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  1. Journal articles
  2. Dissertations / Theses
  3. Books
  4. Book chapters

Academic literature on the topic 'Caregivers – Social aspects'

Author: Grafiati
Published: 4 June 2021
Last updated: 28 January 2023

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Journal articles on the topic "Caregivers – Social aspects"

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Hu, Mengyao, Dena Schulman-Green, Emma Zang, and Bei Wu. "POSITIVE ASPECTS OF CAREGIVING IN DIFFERENT CAREGIVER GROUPS." Innovation in Aging 6, Supplement_1 (November 1, 2022): 66–67. http://dx.doi.org/10.1093/geroni/igac059.264.

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Abstract Previous studies have disproportionately focused on caregivers’ negative experiences while overlooking the positive aspects of caregiving (e.g., quality of caregiver – care recipient relationship, meaningfulness of caregiving, and family cohesiveness) especially for caregivers of older adults with cognitive impairment. Therefore, we aim to identify how positive aspects of caregiving varied by care recipients’ cognitive status (e.g., normal, mild cognitive impairment, dementia) and caregivers’ relation to care recipients (e.g., spouse, adult child, other family member). We applied multilevel mixed-effects models on pooled three-wave data from the National Study of Caregiving and the National Health and Aging Trends Study (N = 2,717). The findings suggested that dementia and spouse caregivers had worse relationship with their counterparts. Overall, future research needs to study caregiver’s experience integratively and focuses on caregiver’s individual need. Policy makers need to fulfill caregiver’s demands by establishing socially supportive programs.
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Frias, Cindy E., Esther Cabrera, and Adelaida Zabalegui. "Informal Caregivers’ Roles in Dementia: The Impact on Their Quality of Life." Life 10, no. 11 (October 23, 2020): 251. http://dx.doi.org/10.3390/life10110251.

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The constantly changing process of caring for a person with dementia affects the informal caregivers’ role due to its psychosocial impact. This cross-sectional study aimed to analyze the impact of the Person with Dementia informal caregiver’s role caregiver to a person with dementia on the self-perceived quality of life (QoL) of the caregiver. In total, 160 informal caregivers were recruited between January and December 2019. Informal caregivers’ quality of life was assessed using the European Quality of Life 5-Dimension scale, burden with the Zarit Burden Scale, emotional wellbeing using the General Health Questionnaire, and caregiver reactions using Caregiver Reaction Aspects. Patients’ cognitive impairment was assessed with the Mini-Mental State Examination, their quality of life using Quality of Life in Alzheimer’s Disease, and neuropsychiatric symptoms using the Neuropsychiatric Inventory. Outcomes were studied using the Pearson correlation coefficient and ANOVA test. Most informal caregivers’ outcomes were significantly associated with their quality of life. Male informal caregivers have a slightly better quality of life than female caregivers (p < 0.001). Caregiver burden (p < 0.001), psychological wellbeing (p < 0.001) and negative aspects of caregiving on health (p < 0.001) correlated moderately with informal caregivers’ quality of life. Factors associated with dementia, including the course of the illness and its severity with the presence of neuropsychiatric symptoms can negatively affect the informal caregiver’s role and produce a low self-perception of quality of life; thus, social and professional support for informal caregivers is essential.
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de Rosa, Cristina, Ashleigh Holmes, Weijun Wang, and Yu-Ping Chang. "POSITIVE CAREGIVING AND CAREGIVING RELATIONSHIP ASSOCIATION WITH MENTAL HEALTH AND PERCEIVED GENERAL HEALTH." Innovation in Aging 6, Supplement_1 (November 1, 2022): 542. http://dx.doi.org/10.1093/geroni/igac059.2057.

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Abstract Caregiver burden is well understood as an important contributor to caregiver health. However, little is known about how positive aspects of caregiving (i.e., personal growth, gratitude, finding meaning) and the quality of caregivers’ relationships with care recipients might play a role in caregiver health. The study aimed to examine whether positive caregiving and caregivers’ relationship with care recipients were associated with caregiver mental health (depression and anxiety) and perceived general health. The sample consisted of 2,652 family caregivers in the National Study of Caregiving (NSOC) III (2017) providing care to older adults. A series of multiple regression models with covariate adjustments (i.e., caregiver’s age, sex, and race/ethnicity) were performed to examine the associations. Results indicated that positive aspects of caregiving predicted caregiver mental health but did not predict perceived general health. Caregivers’ relationship with care recipients and caregiver burden significantly predicted caregiver mental health (b = 0.285 [S.E. = 0.045], p &lt; .001) and perceived general health (b = 0.096 [0.016], p &lt; .001). After controlling for caregiver burden, only caregivers’ relationship with care recipients remained a significant predictor of caregiver mental health (b = 0.182 [0.041], p &lt; .001) and perceived general health (b = 0.077 [0.018], p &lt; .001). Our results suggest that positive caregiving perceptions and quality of relationships between caregivers and care recipients are linked to better caregiver mental health. Interventions to reduce caregiver burden, including strategies to help caregivers maintain positive attitudes and positive relationships with care recipients, might be beneficial to improving caregiver health.
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Stevens, Alan, Thomas Birchfield, Kira Swensen, Joseph Banda, and Jinmyoung Cho. "User Interface and User Experience Testing of an Online Translation of the REACH II Intervention: GamePlan4Care." Innovation in Aging 5, Supplement_1 (December 1, 2021): 4. http://dx.doi.org/10.1093/geroni/igab046.013.

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Abstract GamePlan4Care (GP4C) is a web-based adaptation of the Resources for Enhancing Alzheimer’s Caregiver Health II (REACH II) caregiver intervention, redesigned and reformatted for online delivery. The goal of GP4C is to create an online family caregiver support platform that facilitates self-directed exposure to evidence-based skills-training and support for dementia caregivers. This approach of utilizing technology enhanced with live support has the potential for scalability and sustainability. In preparation for an ongoing randomized clinical trial, the GP4C platform underwent industry standard user interface/user experience (UI/UX) testing with dementia caregivers as part of an iterative design process. Testing of caregiver’s reaction to technical and content-related aspects of the system was conducted with 31 caregivers. The thematic analysis revealed three themes for technical aspects (logical flow, suggestions on features, innovative resource) and two themes for content aspects (satisfaction and engagement). We will discuss technical and content modifications resulting from UI/UX.
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Savla, Jyoti, Karen Roberto, and Jennifer Margrett. "Aspects of Grit Among Dementia Family Caregivers." Innovation in Aging 5, Supplement_1 (December 1, 2021): 8. http://dx.doi.org/10.1093/geroni/igab046.029.

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Abstract Dementia family caregivers often show deep devotion and a strong sense of purpose and duty toward their relatives needing care. The concept of grit, which includes aspects of commitment, purpose, perseverance, and resilience, is a novel theoretical approach to expanding understanding of dementia family caregiver strengths amidst the challenges they face. Multiple psychosocial and contextual factors are likely to interact with and influence grit among these caregivers. This symposium addresses commitment to the family dementia caregiver role, willingness to embrace the stressful work of caregiving, and perseverance in finding ways to sustain caregiving roles under typical and adverse circumstances. Blieszner focuses on associations between grit and stressors and strains that challenge caregiver well-being and jeopardize continued caregiving. Wilks considers the impact of spiritual support on sustaining resilience among Caucasian and African American dementia caregivers. McCann explores caregivers’ responses to changes in informal support and social interactions available to assist with home care tasks over the course of the COVID-19 pandemic. Albers examines the strengths and resources caregivers draw upon to manage the challenges of caring for and supporting a relative in long-term residential care during the pandemic. Collectively, these presentations provide new insights into the range of influences on aspects of grit and circumstances in which grit sustains caregiving. Discussant Margrett considers the value of the concept of grit for furthering understanding of caregivers’ abilities to manage typical and unique challenges in their caregiver roles and offers suggestions for future research and interventions to enhance grit among dementia family caregivers.
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Ramasamy, Thendral, Surendran Veeraiah, and Kalpana Balakrishnan. "Psychosocial Issues Among Primary Caregivers of Patients with Advanced Head and Neck Cancer - A Mixed-method Study." Indian Journal of Palliative Care 27 (November 25, 2021): 503–12. http://dx.doi.org/10.25259/ijpc_76_21.

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Objectives: This study aims to explore the psychosocial issues faced by the primary caregivers of advanced head and neck cancer patients with the primary objective to understand their experiences within social context. Materials and Methods: Burden and QOL of caregivers (n = 15) were quantified using Zarit Burden Interview schedule and caregiver quality of life index-cancer (CQOLC), respectively. Primary caregivers (n = 10) were interviewed using semi-structured interview schedule. Thematic analysis was employed to analyse the qualitative data. Descriptive statistics was used for quantitative data. Results: Four major themes emerged: (1) Impacts of caregiving, (2) coping with caregiving, (3) caregiver’s appraisal of caregiving and (4) caregiver’s perception of illness. Majority (73.3%) of the caregivers had QOL below 100. The mean CQOLC score was 73.07 (SD 24.17) and most (46.7%) of the caregivers reported mild-to-moderate burden, while 27% had little to no burden. The mean ZBI score was 32.4 (SD 18.20). Conclusion: Caregiving impacts the physical, emotional, financial and social aspects of caregiver’s life. Caregivers adopt active coping strategies to overcome the impacts of caregiving. Family acts as a major source of strength to manage the emotional constraints faced by Indian caregivers. Cultural beliefs and values of caregivers influence their appraisal of caregiving situation. Majority of the caregivers experienced mild-to-moderate burden while most of the caregivers scored low on QOL.
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Baik, Sol, and Jiweon Jun. "Social Isolation, Caregiving Alone, and Caregiving Stress in Family Caregivers of Older Adults in Korea." Innovation in Aging 5, Supplement_1 (December 1, 2021): 981–82. http://dx.doi.org/10.1093/geroni/igab046.3530.

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Abstract The tendency of caregiving alone is increasing, and these solo caregivers often perceive caregiving responsibilities as a burden. Still, literature on positive aspects of caregiving shows that not all caregivers experience severe distress. Little is known on which factors make a difference in experiencing caregiving distress among solo caregivers. We focused on the empirical findings on the negative impact of social isolation on caregiver’s mental health, examining if and how the intersection of solo caregiving and social isolation is related to severe caregiving stress among caregivers of older adults in Korea. We analyzed 501 family caregivers of older adults in Korea using survey data from the Care Work and the Economy research project (2018). We conducted ordinal logistic regression analysis. The findings show that solo caregivers with a lack of social time fall under the most at-risk group of caregivers in terms of experiencing severe stress (OR=3.72, SE=0.93) whereas solo caregivers with enough social time did not show significantly higher stress compared to the reference group (OR=1.50, SE=0.43). Being socially isolated caregivers still had high levels of stress despite the division of care (OR=2.16, SE=0.55), implying the need to provide caregivers more time for social interaction with others. The current public long-term care insurance in Korea provides limited hours of in-home care aide services to enable aging in place of older adults. To reduce the social isolation of caregivers, it is necessary to extend the service hours and provide support, such as creating online caregiver networks.
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Opara, Józef, and W. Brola. "Quality of Life and Burden in caregivers of Multiple Sclerosis patients." Physiotherapy and Health Activity 25, no. 1 (March 1, 2018): 9–16. http://dx.doi.org/10.1515/pha-2017-0002.

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Abstract Multiple sclerosis (MS) is one of the most disabling disorders of the central nervous system. Caregivers of individuals with MS may experience unique caregiver strain due to the age at onset and progressive nature of the disease. Additionally, because MS is more prevalent in women, men often become spousal caregivers. This places women in the position of being care recipients rather than caregivers. Some results also supported hypothesis that female caregivers reported a higher need for emotional support than male caregivers. As with female caregivers, decreased emotional support predicted poorer QoL among male caregivers. Caring for a MS patient may negatively impact several objective and subjective aspects of caregiver's life, such as physical and emotional health, morale, work life, finances, social mobility, interpersonal relationships and sexual life. In studies assessing the psychological consequences of care a higher level of anxiety and depression in caregivers than in the general population has been reported. Caregivers who experience burden are more likely to have a higher risk of depression and a lower quality of life. Early recognition of caregiver burden is important in determining appropriate interventions. In this review report the current state of knowledge about the QoL of MS caregivers as well the burden of MS caregivers has been described.
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Liu, Chelsea, Victoria Marino, Virginia Howard, William Haley, and David Roth. "Positive Aspects of Caregiving in Incident and Long-Term Caregivers: Role of Social Engagement and Distress." Innovation in Aging 5, Supplement_1 (December 1, 2021): 252–53. http://dx.doi.org/10.1093/geroni/igab046.978.

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Abstract Positive aspects of caregiving (PAC) are positive appraisals that caregivers report about their role such as feeling appreciated or important, and may increase with caregiver adaptation over time. We aimed to examine differences in PAC by caregiving duration and social engagement, controlling for measures of distress. A total of 283 African American or White caregivers from the Caregiving Transitions Study with a wide range of caregiving durations were included in our analysis. We used multivariable linear regressions to model total PAC score on years of caregiving and social engagement (social network, monthly social contact), adjusting for age, sex, race, marital status, relationship to care recipient, dementia status of care recipient and measures of distress (depressive symptoms, perceived stress, caregiving strain). Caregivers with higher social engagement reported significantly higher PAC while caregivers with longer duration of care reported marginally higher PAC in most analytic models. African American caregivers reported higher PAC compared to White caregivers. Dementia caregivers reported lower PAC than non-dementia caregivers in models that adjusted for demographic variables and social network size, but the association was attenuated with the addition of caregiving strain. In summary, higher social engagement and longer care duration were associated with higher PAC after adjusting for demographic variables and measures of distress. Future studies should aim to understand how caregivers shift appraisal to positive aspects of their role and explore implementation of interventions targeting PAC in order to improve the caregiving experience.
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Meyer, Kylie, Sara Masoud, Ashlie Glassner, Kevin Hamilton, Ariel Chinea, Darpan Patel, Jing Wang, and Carole White. "13623 Daily relationship between social connectedness and health behaviors among dementia family caregivers." Journal of Clinical and Translational Science 5, s1 (March 2021): 97–98. http://dx.doi.org/10.1017/cts.2021.651.

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ABSTRACT IMPACT: Knowledge of which aspects of social connectedness most strongly associate with caregiver health and health behaviors can inform intervention targets to improve caregiver health OBJECTIVES/GOALS: Stressed dementia caregivers are at risk of poor health. Social connectedness may reduce adverse health effects, yet it is unknown about which aspects relate most strongly to health. This is a barrier to intervention development. Our study identifies aspects of social connectedness most strongly associate with caregivers’ daily health behaviors. METHODS/STUDY POPULATION: Data. Enrolled spousal caregivers completed 14 consecutive days of online surveys. Measures. We examined multiple health behaviors each day, which included: 1) number of occurrences of 3 potential binge-eating behaviors (range 0 to 30), 2) whether participants engaged in at least 30 minutes of physical activity, and 3) perceived sleep quality, rated 1 (very bad) to 5 (very good). We also examined a count of health symptoms caregivers experienced (e.g., backache; range: 0 to 7). Measures of social connectedness included: spousal emotional support, perceived spousal appreciation, emotional support from any source, and loneliness. Analysis. We applied bivariate multi-level mixed effects models to examine the association between each aspect of social connectedness and health behaviors day-to-day. RESULTS/ANTICIPATED RESULTS: Since November 2020, 5 of N=40 participants were enrolled, of whom 3 had completed all diary surveys. Participants were women ages 59 to 73, and included 4 non-Hispanic white and 1 Hispanic caregivers. Data included 51 days of surveys (93% adherence). No differences in eating behaviors nor physical activity according to social connectedness were found. Emotional support from any source was positively associated with sleep quality (B= 0.20; SE=0.08; p-value 0.015). On days when caregivers indicated their spouse appreciated them ‘A lot’ versus ‘Not at all,’ sleep quality was marginally better (B=0.73, SE=0.42; p-value-0.08). Finally, days when caregivers felt lonely at least ‘Some of the time’ versus ‘Not at all’ were associated with experiencing more adverse health symptoms (B=1.54; SE=0.58; p-value<0.001). DISCUSSION/SIGNIFICANCE OF FINDINGS: Improved emotional support from any source may support better sleep quality among caregiving spouses, while loneliness appears to contribute to more adverse health symptoms. Findings, if confirmed, can be translated to develop intervention programs that target loneliness and perceived emotional support among caregivers.
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Dissertations / Theses on the topic "Caregivers – Social aspects"

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Fiello, Cynthia Ann. "An examination of pet ownership among elderly caregivers and how it contributes to their well-being." CSUSB ScholarWorks, 2002. https://scholarworks.lib.csusb.edu/etd-project/2063.

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As the older population increases, there is a need for increased support for caregivers most of them older themselves. Owning a pet may providesome of this support. This study looked at caregivers age 55 and older of brain-impaired adults and examined whether or not the social support provided by pets during the caregiving time contributes to their well-being.
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Hodgdon, Barbara T. "Work and Family Spillover on Aspects of Well-being in Sandwiched and Filial Caregivers." The Ohio State University, 2018. http://rave.ohiolink.edu/etdc/view?acc_num=osu1523916385728928.

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Giraldo, Clara. "The Social Construction of Huntington's Disease Caregivers in Colombia, South America." Thesis, University of North Texas, 2005. https://digital.library.unt.edu/ark:/67531/metadc4966/.

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This study is a multi-method, two-city, intensive, in-depth qualitative study of Huntington's disease (HD) caregivers (HDCs) in Colombia. I explored the Colombia HDCs' experience through the Hispanic culture of caring. I develop the theory of the subrogate agency based on 5 functional stages of HD from Shoulson and Fanh (1979). This study was conducted in two different regions of Colombia, Medellin and Juan de Acosta, in which high rates of HD cases have been identified. The data were collected through three methods: (a) 56 interviews with HDCs and 8 with physicians; (b) 28 participant observations of Huntington's disease sufferers (HDSs); (c) 4 interviews and 8 focus groups of 6 members each with HDCs of late HDSs. Human agency is the ability to monitor one's own action. This study showed that the gradual and serious loss of all capabilities in HDSs has a social effect on the HDSs' agency. HDSs' survival depends on the subrogation that the HDC offers to the HDS. The HDS retains self-hood, i.e. agency, through the HDC's action. This subrogation causes a paradoxical consequence, resulting in both negative and positive effects on the caregiver. The theory of surrogate agency is supported by the data. Through the progressive phases, the capacity of the sufferer for expressing suffering, and social embarrassment, as well as the capacity to fight against the illness and provide reciprocity to their caregivers, deceases. The reason is that physical and cognitive impairments, as well as depression and anger, continue to increase. The study also documented important socio-cultural differences among the study regions. For instance, HDC's solidarity was based on blood and friendship; in larger cities, HD fragmented families. The study also found that HD is taking an immense toll on caregivers, sufferers and families because they are excluded from the Colombia's Basic Health Plan.
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Fraser, Kathryn. "The role of professional caregivers : supporting children in local authority care." Thesis, University of Warwick, 2010. http://wrap.warwick.ac.uk/36733/.

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Children looked after by local authorities are considered to be some of the most vulnerable in society, often having experienced histories of abuse, neglect, conflict within their family of origin or other traumas. As a consequence, substitute care e.g. foster care or residential care is often used as a therapeutic intervention. The focus of this thesis is the role that professional caregivers play in supporting children in local authority care. Chapter I provides a critique of the research exploring the efficacy of therapeutic interventions designed to facilitate the attachment relationship between looked after children and their professional caregiver. Due to controversy surrounding the therapeutic application of attachment theory and a number of methodological limitations, a limited evidence-base was found. The clinical implications and directions for future research are discussed. Chapter II investigates Residential Children’s Workers experience of caring for looked after children, from a psychological perspective. Results revealed that their role and relationship with the children in their care, is affected by their emotional and psychological ability to cope with push and pull factors within a complex system. The clinical implications are discussed, and recommendations for future research made. Chapter III explores a reflective account of the author’s experience of both working clinically and carrying out research in this field. As many of the ideas were generated whilst conducting the doctoral research, the author applies the proposed model from the empirical paper to the reflections. Chapter III is written in a first person account.
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Oliveira, Amanda Marques de 1982. "A invenção do cuidado : entre o dom e a profissão." [s.n.], 2015. http://repositorio.unicamp.br/jspui/handle/REPOSIP/281151.

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Orientador: Guita Grin Debert
Tese (doutorado) - Universidade Estadual de Campinas, Instituto de Filosofia e Ciências Humanas
Made available in DSpace on 2018-08-27T09:15:19Z (GMT). No. of bitstreams: 1 Oliveira_AmandaMarquesde_D.pdf: 1894413 bytes, checksum: a268c1fd2eeb576e35abaf0d99adc6fe (MD5) Previous issue date: 2015
Resumo: Vemos a dependência surgir como uma preocupação e o cuidado como um trabalho e uma nova profissão. Através da análise de conteúdo realizada em publicações oficiais e de etnografia entre entre militantes, especialistas, e em cursos de formação de cuidadores de idosos, este trabalho analisa as arenas de conflitos em torno da construção do cuidador de idosos como trabalho e profissão em contexto brasileiro
Abstract: Dependence has arisen as a concern and care has become a work and a new profession. Therefore, through etnography in oficial publications, among activists and experts, as well as in training courses and among caregivers of elders, this work shows the arena of conflict around the construction of elderly care as a profession in the Brazilian context
Doutorado
Ciencias Sociais
Doutora em Ciências Sociais
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Lomax, Claire Louise. "Clinical, psychological and social aspects of degenerative neurological diseases : a multi-dimensional study of patients and their caregivers." Thesis, King's College London (University of London), 2003. http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.406116.

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Stead, Jennifer. "Emergent literacy and agency among disadvantaged parents and caregivers." Thesis, Cape Peninsula University of Technology, 2017. http://hdl.handle.net/20.500.11838/2659.

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Thesis (MEd)--Cape Peninsula University of Technology, 2017.
A qualitative investigation into the emergence of literacy among five adult socio-economically disadvantaged subjects in a semi-rural setting complements concerns that a lack of specific forms of cognitive input during pre-school years has a negative impact on later progress in formal schooling. The subjects achieved levels of literacy that enabled them to play leadership roles in their communities although they had experienced limited or no formal education during their formative years. Using a GTM process the researcher identifies seven common themes that emerge from analysis of data from interviews and focus groups that explore the subjects’ perceptions of conditions that had promoted their literacy. These themes suggest that the subjects’ competence in literacy was facilitated by non-cognitive conditions including personal aspirations; resilience; disciplinary regimes in the home; voice; a nurturing mentor; community resources and ability to exercise agency. The researcher concludes that these themes could be important in contributing towards an understanding that developing children’s agency during early childhood may be more significant to achieving effective levels of literacy than the current focus on attaining academic skills at standards that disadvantaged children have difficulty in achieving.
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Dimaggio, Eveleen Irene, and Nicole Renee Hughes. "The effects of pet ownership and attachment on caregivers' mental health." CSUSB ScholarWorks, 2005. https://scholarworks.lib.csusb.edu/etd-project/2846.

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The purpose of this project was to examine whether or not caregivers who own pets experience less loneliness, depression, anxiety and stress as compared to caregivers who do not own pets. Quantitative data was obtained through a sample survey of 150 random caregivers served by Inland Caregiver Resource Center (ICRC). Qualitative data was obtained through five open-ended questions included in the survey. The study found a significant increase in loneliness among caregivers who own pets.
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Sitney, Miranda. "The Role of Caregiver Disruption in the Development of Juvenile Sexual Offenders." PDXScholar, 2018. https://pdxscholar.library.pdx.edu/open_access_etds/4474.

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In the last decade, it has been recognized that juveniles commit as much as 20% of all sexual offenses in the United States (DOJ, 2004). Research that attempts to understand why young people commit sex crimes points to an array of family factors that may uniquely contribute to the development of sexual offending over and above general juvenile delinquency. This study specifically examines disrupted caregiving, or receiving insufficient or substitute care, as a potential moderator in the relationship between offense status and caregiver-child relationship quality. Four distinct moderators were tested: gender of caregiver, biological relationship between caregiver and child, number of times the youth has changed caregivers, and child maltreatment history. Results indicate that juvenile sexual offenders have particularly poor relationships with their primary caregivers, and that caregiver gender, biological relationship between caregiver and child, and child maltreatment history act as moderators. Thus, while juvenile sexual offenders in general have poor relationships with their caregivers, those with male caregivers and those who have experienced physical abuse, sexual abuse, and neglect, have relationships that are even worse. In contrast, sexual offenders raised by non-biological caregivers showed better relationship quality than did youth raised by their biological parents. These findings suggest opportunities for early intervention, before caregiving is disrupted. Furthermore, additional supports may be offered to youth whose family structures suggest that they may be at increased risk.
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Joseph, Vanessa Belinda. "Care, caring and coping: attitudes of children orphaned by HIV/AIDS and their caregivers towards schooling in a South African Township." Thesis, University of the Western Cape, 2007. http://etd.uwc.ac.za/index.php?module=etd&action=viewtitle&id=gen8Srv25Nme4_2383_1256282262.

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In many countries, the scale of poverty, and the alarming number of children now being orphaned by HIV and AIDS, has increased the roles and responsibilities of grandparents as caregivers in their grandchildren's lives. Not only do grandparents have to care for their grandchildren on a daily basis but they also carry the burden of seeing them through school, possibly with the fear that they might not be able to see them achieve all their dreams. This study examined the complex issues surrounding school attendance for orphaned children in Mbekweni, a township in the Western Province, in South Africa. The study explored the relationship between the attitudes of orphaned learners and their caregivers towards education and schooling itself, uncovering the struggles and the strengths of caregivers and orphaned children that directly relate to success or faiolure in school.

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Books on the topic "Caregivers – Social aspects"

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C, Hamdy R., ed. Alzheimer's disease: A handbook for caregivers. 3rd ed. St. Louis: Mosby, 1998.

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Paul, Reed. Serenity: Support and guidance for people with HIV, their families, friends, and caregivers. 2nd ed. Berkeley, Calif: Celestial Arts, 1990.

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C, Hamdy R., ed. Alzheimer's disease: A handbook for caregivers. 2nd ed. St. Louis: Mosby-Year Book, Inc., 1994.

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Ramchand, Rajeev. Hidden heroes: America's military caregivers : Executive summary. Santa Monica, CA: Rand Corporation, 2014.

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Clinical practice with caregivers of dementia patients. Washington, D.C: Taylor & Francis, 1996.

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Silva, Leticia Robles. La invisibilidad del cuidado a los enfermos crónicos: Un estudio cualitativo en el barrio de Oblatos. Guadalajara, Jalisco: Editorial Universitaria, 2007.

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Silva, Leticia Robles. La invisibilidad del cuidado a los enfermos crónicos: Un estudio cualitativo en el barrio de Oblatos. Guadalajara, Jalisco: Editorial Universitaria, 2007.

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Hancock, Ruth. Long term effects of being a carer: Main findings from a research study. London: Age Concern Institute of Gerontology, 1994.

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Mary, Fisher. Angels in our midst. Wakefield, R.I: Moyer Bell, 1997.

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Shriver, Maria, Matt Hickey, Dale Fetherling, and Karen Skelton. Alzheimer's in America: The Shriver report on women and Alzheimer's : a study. New York: Free Press, 2011.

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Book chapters on the topic "Caregivers – Social aspects"

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Saunders, Mitzi M. "The Patient’s Informal Caregiver." In Psychological, Emotional, Social and Cognitive Aspects of Implantable Cardiac Devices, 231–42. Cham: Springer International Publishing, 2017. http://dx.doi.org/10.1007/978-3-319-55721-2_14.

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Downe, Soo, Claudia Meier Magistretti, Shefaly Shorey, and Bengt Lindström. "The Application of Salutogenesis in Birth, Neonatal, and Infant Care Settings." In The Handbook of Salutogenesis, 465–77. Cham: Springer International Publishing, 2022. http://dx.doi.org/10.1007/978-3-030-79515-3_43.

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AbstractIn this chapter, the relation of salutogenesis to maternity care is discussed by giving a critical overview of studies in perinatal care, primarily measuring and promoting parental sense of coherence (SOC) and well-being.An overview is given on salutogenic approaches to neonatal and infant service provision. Important aspects of and salutogenic interventions for parent–child attachment in the first year of a child’s life are examined. Parents’ and caregivers’ relationship with their infants and newborns plays a critical role in shaping the emotional, cognitive, and social development of their child. Different interventions of early support to optimize parenting capacity and their impact are also discussed.Although the chapter focuses only on examples of salutogenic approaches based on reasonable evidence, there is a growing awareness of the value of salutogenic approaches to the provision of maternity care, and to facilities and services to enhance parenting and well-being in infancy and early childhood. Research gaps are identified, and suggestions for the direction of future research are outlined.
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Cox, Vanessa, Treena Orchard, Pamela Cushing, and Elizabeth Anne Kinsella. "Mediators of Inclusion." In Research Involving Participants with Cognitive Disability and Difference, 109–20. Oxford University Press, 2019. http://dx.doi.org/10.1093/oso/9780198824343.003.0010.

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Adults with mild intellectual disability (MID) often rely on professionals and family for support, giving caregivers the power to control many aspects of their daily lives This extends to research, where investigators wanting to include adults with MID must seek the cooperation of caregivers. This chapter features data from a qualitative study conducted in London, Ontario, that explored independence, sexuality, and social relationships in 15 adults with MID, six family caregivers, and six professionals. Key findings discussed here include the ways in which caregivers influence socio-sexual relationships in adults with MID, the challenges to including adults with MID in research, and the experiences of adults with MID as study participants. These findings contribute new insights to the disability literature that explores research inclusion in adults with MID, as well as the nature of socio-sexual life among these adults, whose first-hand experiences are rarely included in qualitative research.
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Holland, Jimmie C., and Jessica Stiles. "Psychiatric aspects of cancer." In New Oxford Textbook of Psychiatry, 1100–1105. Oxford University Press, 2012. http://dx.doi.org/10.1093/med/9780199696758.003.0143.

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Psycho-oncology addresses the two major psychiatric and psychological dimensions of cancer: first, the responses of patients and their families at all stages of disease and the psychological stresses on health professionals delivering their care. The patient and physician relationship, dependent on effective communication, impacts the care of all patients, at every visit, at all sites and stages of cancer, and during all treatments. The second dimension addresses the psychological, behavioural, and social factors that influence cancer risk, detection, and survival. Many cancer centres and hospitals now have multi-disciplinary psychosocial teams consisting of clinicians and clinical investigators from psychology, psychiatry, social work, nursing, and clergy. These teams provide consultation for patients and their caregivers, psychosocial education for oncology staff, and collaboration in studies in which quality of life is important. In addition, active research in brain, immune, and endocrine links is occurring, particularly in the mechanism of cytokines in producing ‘sickness behaviour’ that may provide a biological basis for common symptoms of fatigue, depression, anxiety, weakness, and cognitive chances in cancer patients. Despite the fact that many cancer centres and oncology divisions now have a psycho-oncology or psychosocial unit, only a few centres have programmes that include both research and training. This chapter describes the common psychiatric disorders and psychosocial challenges experienced by cancer patients and the range of interventions available.
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Bentenuto, Arianna, Silvia Perzolli, Simona de Falco, and Paola Venuti. "Play in Children With Autism Spectrum Disorder." In Advances in Psychology, Mental Health, and Behavioral Studies, 240–67. IGI Global, 2022. http://dx.doi.org/10.4018/978-1-6684-5068-0.ch013.

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During play activities, children express behaviors, emotions, ways of thinking and learning, as well as social skills, desires, and fears. Differences in the play of children with ASD appear during the first year of life and remain during development. Impairment in symbolic play constitutes one of the most relevant clinical aspects observed during a clinical assessment in young children. However, caregiver involvement in child activities enhances the frequency, duration, and complexity of child play. Given the importance for children with ASD to maintain routines and stability, hospitalization constitutes a challenging moment since they are removed from their familiar environment. In this chapter, the focus will be on the characteristics of play of children with ASD during interaction with caregivers, and on the attention to be used in the context of hospitalization.
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Noble, James M. "Lifestyle Management and Nonpharmacologic Therapies for People with Dementia and Their Caregivers." In Navigating Life with Dementia, 163—C12.F1. Oxford University PressNew York, 2022. http://dx.doi.org/10.1093/oso/9780190495688.003.0013.

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Abstract This chapter highlights the role of lifestyle management and nonpharmacologic therapies in the treatment and prevention of dementia. Once dementia is diagnosed, it is important to consider non-medication approaches that may help with memory loss. Diet and exercise have the potential to address some of the early brain changes in dementia, but their role in controlling or delaying dementia symptoms remains uncertain. In addition to diet and physical exercise, activities involving socialization and cognitive stimulation may help aspects of dementia and have overlapping benefits, such as the physical activity involved in leaving the home to attend a social activity. Some aspects of lifestyle management may have no proven bearing on dementias, but these practices are still important in managing the long-term health needs associated with aging, including fighting frailty; maintaining muscle strength, mobility, and balance; and reducing cardiovascular risks. The chapter then considers the importance of developing a prescriptive, proactive plan of care. It also looks at methods to support the health and well-being of caregivers.
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Lysaught, M. Therese. "Catholicism and the Neonatal Context." In Religion and Ethics in the Neonatal Intensive Care Unit, 37–64. Oxford University Press, 2019. http://dx.doi.org/10.1093/med/9780190636852.003.0003.

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Roman Catholics comprise the largest single denomination in the United States and are the nation’s largest group of not-for-profit healthcare providers. Yet, there is little or no available literature to assist neonatal caregivers in understanding how religious beliefs and values might influence parents’ responses to the challenges posed by their newborn’s care. Equally, there is little or no available literature on the academic or pastoral side addressing questions of neonatal medicine from a theological perspective. This chapter addresses how Roman Catholic teachings might affect the ways in which parents and caregivers make treatment decisions. It examines the neonatal context in light of five aspects of Catholic teaching—the dignity of the human person, patient decision making, withholding and withdrawing treatment, palliative care, and Catholic social thought—as well as three important Catholic practices—baptism, the anointing of the sick, and the care of babies’ bodies, living and dead.
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Rao, Vani. "Traumatic Brain Injury." In Psychiatric Aspects of Neurologic Diseases. Oxford University Press, 2008. http://dx.doi.org/10.1093/oso/9780195309430.003.0011.

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Traumatic brain injury (TBI) is a significant cause of disability in the United States, with an incidence of about 1.5 million cases per year (National Institutes of Health Consensus Development Panel, 1999). It is associated with both neurologic and psychiatric consequences. Although the neurologic problems usually stabilize with time, the psychiatric disorders often continue to remit and relapse. Factors associated with the development of psychiatric disorders include older age, arteriosclerosis, and chronic alcoholism, all of which interfere with the reparative process within the central nervous system. Other contributors to psychiatric disability include a pre-TBI history of psychiatric illness, illicit drug abuse, and lack of social support. Because post-TBI psychiatric disturbances interfere with rehabilitation and cause emotional and financial burden for patients and caregivers, early diagnosis and treatment are important. Post-TBI psychiatric disturbances are best classified according to their clinical presentation. These disturbances are discussed below and their pharmacologic and nonpharmacologic treatment strategies are recommended. The mood disturbances most commonly associated with TBI are major depression, mania, anxiety, and apathy. Major depression is seen in about 25% of people with TBI. Symptoms of major depression include persistent sadness; guilt; feelings of worthlessness; hopelessness; suicidal thoughts; anhedonia; and changes in patterns of sleep, appetite, and energy. Sometimes these symptoms may be associated with psychotic features such as delusions and hallucinations. It is important to remember that changes in sleep, appetite, or energy are not specific to the syndrome of major depression and may be due to the brain injury itself, or to the noise, stimulation, or deconditioning associated with hospitalization. If due to the latter conditions, gradual improvement occurs with time in most patients. Sadness in excess of the severity of injury and poor participation in rehabilitation are strong indicators of the presence of major depression. The presence of poor social functioning pre-TBI and left dorsolateral frontal and/or left basal ganglia lesion have been associated with an increased probability of developing major depression following brain injury ( Jorge et al., 1993a; Jorge et al., 2004). Major depression should be differentiated from demoralization, primary apathy syndrome, and pathologic crying.
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Veronese, Fabio, Hassan Saidinejad, Sara Comai, and Fabio Salice. "Elderly Monitoring and AAL for Independent Living at Home." In Advances in Medical Technologies and Clinical Practice, 154–81. IGI Global, 2016. http://dx.doi.org/10.4018/978-1-4666-9530-6.ch007.

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The population ageing is inevitably going to change the society and the elderly living dynamics. Optimization of resources, independent living and enhancement of elderly's social, working, and physical activities are the key aspects of this changing. The current paradigm is Ambient Assisted Living (AAL), where the elderly person is enabled to live an independent and high-quality life by empowering the ambient around him/her. Home Automation can provide a two-way contribution: it represents an opportunity to help overcoming difficulties; while its pervasive instrumentation provides precious information. Being aware of the elderly's activities has several applications: for the families, reassuring them about their beloved's safety, for the caregivers, enabling them to provide prompt interventions. To highlight this aspect, it is possible to refer to AAML: Ambient Assisted and Monitored Living. This chapter introduces the design procedure of AAML systems, and their main challenges: user's needs centrality, data visualization and dependability.
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Tunçel, Özlem Kuman, and Hayriye Elbi. "Turkey." In Dementia Care: International Perspectives, 279–82. Oxford University Press, 2019. http://dx.doi.org/10.1093/med/9780198796046.003.0037.

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Turkey has a rapidly ageing population, the issues of which are new to the country. To date, there is no National Dementia Strategy. The strong tradition of family caregiving in Turkey has perhaps influenced the demand for access to formal care services. Informal care provided by families, which includes living together with the elders and providing the most comfort, is one of the strongest aspects of dementia care in Turkey. Another positive aspect is new legal regulation of the social security system for the elderly. Moreover, there is an increasing awareness of dementia and dementia care, which will hopefully give new impetus to further advancements in dementia care. The future of dementia care in Turkey should ideally include: (1) the development of a National Dementia Strategy, (2) improvement of informal care, including support for caregivers, and (3) an increase in the number, as well as improved quality, of in-hospital geriatric services.
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