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1
Kaushik, Sanjana. "Social Networks of Technology Caregivers and Caregivees." University of Cincinnati / OhioLINK, 2020. http://rave.ohiolink.edu/etdc/view?acc_num=ucin1613749933487134.
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Nauser, Julie Ann. "Heart failure family caregivers psychometrics of a new quality of life scale and variables associated with caregiver outcomes /." Connect to resource online, 2007. http://hdl.handle.net/1805/1139.
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Thesis (Ph.D.)--Indiana University, 2007.<br>Title from screen (viewed on September 21, 2007). School of Nursing, Indiana University-Purdue University Indianapolis (IUPUI). Advisor(s): Tamilyn Bakas, Sharon Sims, Mary L. Fisher, Janet Welch. Includes vitae. Includes bibliographical references (leaves 228-244).
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Kum, Cleopatra Eghem. "Theoretically Based Factors Affecting Health in Stroke Family Caregivers." University of Cincinnati / OhioLINK, 2021. http://rave.ohiolink.edu/etdc/view?acc_num=ucin1627660913055465.
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Kimemia, Veronica. "CAREGIVER BURDEN AND COPING RESPONSES FOR FEMALES WHO ARE THE PRIMARY CAREGIVER FOR A FAMILY MEMBER LIVING WITH HIV/AIDS IN KENY." Doctoral diss., University of Central Florida, 2006. http://digital.library.ucf.edu/cdm/ref/collection/ETD/id/2682.
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Caring for a family member who is ill can be a draining experience (Cooper et al., 2006; Daire, 2002; Zarit et al, 1980). Providing care for a family member that is living with HIV/AIDS is potentially even more stressful because of social meanings associated with HIV/AIDS infection (Stajduhar, 1998) and the contagious nature of the HIV virus (Powell-Cope & Brown, 1992). Research indicates that most caregivers are female (Bunting, 2001; Songwathana, 2000). In Africa women bear the brunt of the burden of providing care for family members who are living with HIV/AIDS (Mushonga, 2001; Olenja, 1999). This study examined coping factors and caregiver burden among female caregivers (N=116) of a family member living with HIV/AIDS in Kenya. Coping factors were derived from a principal components factor analysis of the fourteen scales on the Brief Cope (Carver, 1997). Caregiver burden was measured using the Zarit Caregiver Burden Inventory. Multiple regression analysis was used to investigate the relationships between caregiver burden and coping factors. Post–hoc multiple regression analyses further investigated the relationship between caregiver burden and caregiver demographic characteristics. The relationship between caregiver burden and care recipient characteristics was also investigated. The principle components factor analysis of the Brief Cope yielded five coping factors that were labeled: Social support, Hope, Acceptance, Planning, and Disposition. The regression analysis that was conducted to investigate the relationships between these five coping factors and caregiver burden indicated a significant inverse relationship between Hope and caregiver burden. The post-hoc analyses investigating the relationship between various caregiver and care recipient characteristics indicated a significant relationship between the caregiver's age and caregiver burden, and education level and caregiver burden. An increase in age correlated with a decrease in caregiver burden. An increase in education level correlated with reduced caregiver burden. Implications of the findings for research and practice are discussed.<br>Ph.D.<br>Department of Child, Family and Community Sciences<br>Education<br>Counselor Education
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Demirtepe, Dilek. "Testing The Caregiver Stress Model With The Caregivers Of Children With Leukemia." Master's thesis, METU, 2008. http://etd.lib.metu.edu.tr/upload/12609327/index.pdf.
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The aim of the present study was to investigate the relationship between the stressors
of the caregiving process and the health related outcomes (depression, anxiety, and
general psychological health) in caregivers of children with leukemia. Caregiver
Stress Model was used as the conceptual framework for the study. In order to
measure the stressors of the caregivers, caregiver well-being scale was adapted to
Turkish culture as the study 1 by using the caregivers of family members with
various chronic illnesses. The analyses showed that Turkish version of the caregiver
well-being scale had satisfactory psychometric properties for Turkish caregivers. The
sample of the study 2 was composed of 100 caregivers of children with leukemia,
who were treated at oncology or hematology departments of hospitals in Ankara and
izmir, Turkey. Nine mediation models were tested using problem focused coping,
emotion focused coping, and social support as mediators. The models included
primary stressors (caregiving tasks and basic needs) and secondary stressors
(interpersonal relationships and role strain) as independent variables<br>and depression,
anxiety, and general psychological health as dependent variables. The findings
suggested that emotion focused coping and social support were significant mediators
of the relationships between the stressors and the outcomes, however, problem
focused coping was not a significant mediator. Different patterns of significant
relationships were found between the primary stressors, secondary stressors, and the
outcome variables. However, caregiving tasks was not significantly predicting of any
of the outcome variables. The strengths and limitations, as well as the implications of
the findings, were discussed.
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Konag, Ozlem. "Testing The Caregiver Stress Model With The Primary Caregivers Of Schizophrenic Patients." Master's thesis, METU, 2011. http://etd.lib.metu.edu.tr/upload/12613797/index.pdf.
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The aim of this study was to examine the relationship between the stressors of
caregiving for a schizophrenic patient and related outcomes. The Caregiver Stress
Model was used as the conceptual framework for the current study. The sample of
the study was composed of 98 Turkish caregivers of schizophrenic patients who were
treated at psychiatry clinics of hospitals in Ankara. Twelve mediation models were
tested using marital satisfaction and social support as mediators. The models
contained primary stressor (basic needs), secondary stressor (activities of living), and
intrapsychic strain (parental efficacy) as independent variables<br>and depression and
general psychological health as dependent variables. The results suggested both
social support and marital satisfaction as significant mediators of the relationships of both primary and secondary stressors with the outcome variables<br>however, social
support and marital satisfaction were not significant mediators of the relationships
between parental efficacy and outcome variables. The significant implications and
limitations of the study were also discussed.
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Coolbear, Jennifer. "Caregiver-infant interactions and caregivers' representations of relationships in failure to thrive." Thesis, National Library of Canada = Bibliothèque nationale du Canada, 2000. http://www.collectionscanada.ca/obj/s4/f2/dsk2/ftp02/NQ56222.pdf.
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Salinas, Maureen R. "Caregiver Burden and Depressive Symptoms in Hispanic Caregivers of Alzheimer's Disease Patients." Scholarship @ Claremont, 2016. http://scholarship.claremont.edu/scripps_theses/795.
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Caregiving for a close family member with Alzheimer’s disease is a stressful situation to be in, that often leads to high levels of caregiver burden and subsequent stress and depressive symptoms, and while there are numerous community and government resources available to caregivers, there are aspects of Hispanic cultures that may lead Hispanic caregivers to have higher levels of caregiver burden and depressive symptoms than White caregivers. 80 Hispanic caregivers and 80 White caregivers, with 40 males and 40 females within each group, will be recruited to participate in this study. Scales will be administered to both Hispanic and White caregivers in order to assess levels of caregiver burden, depressive symptoms, familism values, gender role beliefs, acculturation levels, and knowledge, comfort, and use of community resources. Hispanic caregivers will have higher levels of caregiver burden and depressive symptom scores than White caregivers, while women will have higher scores overall than men overall. Hispanic caregivers will have less knowledge, comfort, and use of community resources than White caregivers, while gender role views, familism values, and acculturation levels will be mediating factors of these relationships. Cultural differences in caregiver burden need to be assessed further, so that clinical and practical implications for community and government resources can be discussed.
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King, Jennifer Kay. "Caregiving Style in Diverse Samples of Caregivers." Thesis, University of North Texas, 2006. https://digital.library.unt.edu/ark:/67531/metadc5363/.
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With three homogenous caregiver groups (i.e., Alzheimer's caregivers, grandparents raising grandchildren, parents), caregiving styles were explored to determine their reliability and validity, their unique role in predicting caregiver outcomes, and their differences between groups of caregivers. A conceptual framework was adapted to determine the impact of contextual variables, caregiving styles, caregiver appraisal, and mediating variables on caregiving outcomes. A more concise version of the Caregiving Style Scale (CSS) was developed with 49 items yielding an internal consistency coefficient of .74. As expected, three caregiving styles emerged and were positively related to the parallel parenting styles. Across the caregiver samples, there were positive relationships among caregiving style dimensions within the same caregiving style, while those from opposing caregiving styles tended to have negative relationships indicating good convergent and discriminant validity. Authoritative caregiving style dimensions were generally associated with healthier functioning, while authoritarian and permissive caregiving style dimensions were correlated with less healthy functioning. Caregiving style dimensions were among the predictors of several outcome measures, highlighting the importance of their placement in the conceptual framework for caregiver stress and coping. Generally, an unexpected finding was that authoritative caregiving style dimensions tended to predict less adaptive caregiving outcomes, particularly for parents and grandparents, while the impact upon caregiver well-being by authoritarian caregiving style dimensions varied throughout the caregiver groups. Results further indicated that different groups of caregivers tend to take on different caregiving styles, with grandparents and parents tending to differ significantly from Alzheimer's caregivers in their approaches to caregiving.
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Patel, Bina Ranjit. "A Mixed Methods Inquiry of Caregivers of Veterans with Sustained Serious "Invisible" Injuries in Iraq and/or Afghanistan." Scholar Commons, 2016. http://scholarcommons.usf.edu/etd/6562.
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Currently, there are approximately 1.1 million caregivers who are caring for veterans who have served in the military following September 11 (9/11), 2001 (Ramchand et al., 2014). In this study, a mixed methods analysis of post 9/11 caregivers enrolled in the North Florida South Georgia Caregiver Support Program was completed with a convenience sample of 172 participants for quantitative analysis which included 16 participants for the phenomenological query. Correlations, t-tests, and ANOVAs were used to determine the associations among race, gender, age, caregiver type, diagnosis, tier level, and the presence of children in the home with caregiver burden as measured by the Zarit caregiver burden inventory (ZBI). T-tests resulted in a significantly higher ZBI with caregivers who had children in the home (M = 6.84; SD = 3.21) versus those who did not (M = 5.57; SD = 2.75), t (160) = -2.36, p=.02. An ANOVA was conducted across caregiver role (parent, spouse, significant other and other) and the ZBI and a significant difference was found (F [3, 159] = 1.59, p < .01, with spousal caregivers having a significantly higher ZBI score (M=6.83; SD=3.10) than parental caregivers (M = 4.46; SD=2.70).
The phenomenological research focused on shared lived experiences of post 9/11 caregivers of seriously injured veterans, including their experiences with the Caregiver Support Program, the impact of having children in the home, and the utilization of technology and online support with caregiving. Differences between spousal and parental caregivers were also explored. The caregivers’ shared experiences resulted in 22 major themes which included family adjustment, subjective demands, coping techniques, social support, Veterans Affairs (VA) and Department of Defense (DOD) services, self-care, intimacy, role strain, financial resources, and life course changes as the most prevalent. Caregivers and their families had a difficult time adjusting post injury, particularly with subjective demands. Caregivers relied mainly on their own coping mechanisms to adapt to their new role and did not find social support to be helpful with caregiving. Spousal caregivers tended to have more difficulty adjusting than did parental caregivers, which was also found in the quantitative study. While the Caregiver Support Program provided many services that were helpful to the caregivers, including a financial stipend, they wanted additional services which included additional financial support and services while citing issues with program implementation and staffing as major barriers. Children added complexity to the caregiving relationship and increased burden. Children displayed behavioral changes, mostly negative, but some positive such as giving both the caregiver and the veteran a sense of purpose. Lastly, technology and online support with caregiving was used more often than not with mixed feelings about the technology and its trustworthiness; with parents not utilizing these resources as much as spousal caregivers. The study concludes with implications for current and future social work practice and research, as well as the study’s strengths and limitations.
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Clements, Linda. "CAREGIVERS’ INFLUENCE ON PATIENTS’ HEART FAILURE SELF-CARE, HOSPITAL READMISSION AND MORTALITY." UKnowledge, 2019. https://uknowledge.uky.edu/nursing_etds/48.
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Background: Heart failure (HF) is a leading cause of hospitalization, readmissions, and death in the United States. Patients hospitalized for HF are at risk for readmission, in- hospital mortality, and early post-discharge death. In the United States, inpatient care has been estimated to cost $83,980 over the lifetime of each patient with HF. The majority of patients with HF depend on caregiver support for successful HF self-care, which is essential for optimal patient outcomes. Support from caregivers is thought to be important for better self-care, and lower readmission and mortality rates. Yet, there are few studies considering the influence of caregivers on HF patient self-care, readmission, and mortality.
Objective: The purpose of my dissertation was to determine the influence of HF caregivers on patient self-care, readmission, and mortality. The specific aims of this dissertation were to: (1) to determine if caregiver depressive symptoms mediate the relationship between family functioning and caregiver quality of life, (2) to determine if there is an association between living arrangements (living with someone vs. living alone) and all-cause readmission and death in patients with HF, and (3) to determine the efficacy of an in-hospital, multi-session, educational intervention for caregivers on heart failure patients’ self-care and 30 day readmission rate, and to evaluate the efficacy of the intervention on caregivers’ knowledge, self-efficacy and perceived control.
Methods: Specific aim one was addressed by a secondary analysis of data from one- hundred and forty-three HF caregivers recruited from an outpatient clinic. Multiple regression with mediation analysis was used to determine whether depressive symptoms mediated the relationship between family functioning as measured using the three scales of the Family Assessment Device (i.e., general, problem-solving, communication) and caregiver quality of life. Specific aim two was addressed by a retrospective chart review of all 398 patients with a primary diagnosis of HF admitted to an academic medical center in one year. We collected data on patient sociodemographic, clinical characteristics, and patient living condition. The independent association of living alone with all-cause readmission or all-cause death was evaluated using Cox proportional hazards modeling adjusting for covariates. Specific aim three was addressed using a two-group (educational intervention for caregivers of patients with heart failure vs. usual educational care), prospective, repeated measures randomized controlled trial of 37 patient and caregiver dyads in which caregivers only received in-hospital HF education. Outcome measures included patient self-care, and patient all-cause readmission or all- cause death, as well as caregiver self-efficacy, knowledge, and perceived control. Patient self-care, and caregiver self-efficacy, knowledge, and perceived control were assessed at baseline (in hospital), at discharge, 7 and 30-days after patient discharge. Patient readmissions and death were assessed by a phone call at 30-days follow-up. The intervention directed only at caregivers consisted of three in-hospital, educational sessions with telephone follow-up. The educational sessions were designed to deliver HF information and skills to caregivers, thereby providing them with the resources needed to improve their self-efficacy, perceived control and HF knowledge thus improving patient self-care and readmission rates.
Results: Specific aim one: The three subscales of the Family Assessment Device predicted depressive symptoms (p < 0.001) and caregiver quality of life (p < 0.001). Depressive symptoms also predicting caregiver quality of life (p < 0.001). The inclusion of depressive symptoms in the final model with each subscale of the Family Assessment Device (i.e., general family functioning, problem-solving, communication) decreased the significance of family functioning as a predictor of caregiver quality of life indicating mediation by depressive symptoms. Specific aim two: Heart failure patients living with someone experienced a significantly longer time to rehospitalization than those living alone (290 vs. 201 days, p=0.005). In a Cox regression hazard regression model, adjusting for covariates, patients who lived alone were 1.42 times more likely to be rehospitalized one year after discharge than those who lived with someone (p=0.013). The relationship between living alone and all-cause death was not significant after adjustment for covariates. Specific aim three: A linear mixed-model analysis revealed that patients whose caregiver was in the intervention group had significantly better self- care maintenance (p < 0.001) and self-care management (p < 0.001) across time. Cox survival analysis demonstrated that patients whose caregiver did not receive the educational intervention were 11 times more likely (p=0.002) to experience cardiac readmission than patients whose caregiver did receive the educational intervention. Caregivers who received the educational intervention had higher perceived control (p < 0.001) for up to 30-days post-intervention versus the control group, however, there were no differences between caregiver groups in self-efficacy and HF knowledge.
Conclusion: In this dissertation, we found caregivers to play an important part in improving patient outcomes of self-care and readmission after discharge from a hospitalization for HF. Future large-scale studies are needed to develop and test interventions focused on caregivers to improve both patient and caregiver outcomes. Such studies will assist clinicians in understanding how better to support caregivers in their ability to positively influence HF self-care and readmission rates in patients with HF.
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Weierbach, Florence M. "Health Caregivers Workshop." Digital Commons @ East Tennessee State University, 2012. https://dc.etsu.edu/etsu-works/7405.
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Amini, Pay Noura. "Patient handling activities by informal caregivers: Informal caregiver’s biomechanical loads during patient repositioning." The Ohio State University, 2019. http://rave.ohiolink.edu/etdc/view?acc_num=osu1563462946325851.
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Glaze, Joy Adella. "The Lived Experiences of Caregivers of Lung Transplant Recipients." FIU Digital Commons, 2018. https://digitalcommons.fiu.edu/etd/3683.
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Lung transplantation is a treatment for patients with end stage lung disease; they will not survive without such surgery. A caregiver is essential for a patient to become eligible for a lung transplant and the caregiver plays an essential role in the transplant recipient’s care both before and after transplant surgery. Most caregiver research has been conducted on caregivers of persons with Alzheimer’s disease, dementia or on elderly patients, however, it is important to examine caregivers’ experiences caring for other patient groups with disabling conditions. Caregivers of transplant recipients are one such group.
The purpose of this qualitative study, using a hermeneutic phenomenological approach, was to examine the lived experiences of caregivers of lung transplant recipients pre- and post-lung transplantation. The study used semi- structured, face to face, tape recorded in- depth interviews to document the experiences of a purposive sampling of 20 caregivers of lung transplant recipients. Interviews (English, Spanish) were transcribed verbatim and analyzed for emerging themes. The resulting 4 themes and 12 sub themes were: 1) Establishing the diagnosis; 2) Caregivers roles; 3) Caregivers psychological and psychosocial Issues; and 4) Support. The 12 sub themes were:1) Caregivers reaction to transplant option; 2) Caregivers’ lack of basic knowledge as related to lung transplant 3) Disease progression: Reality of unanticipated changes/fear of death; 4) Pre- transplant experiences; 5) Hospital course; 6) Home care; 7) Lifestyle changes and Social activities;8) Physical health and Emotional health ; 9) Financial and Employment issues;10) Family/Friends;11) Professional support; 12) Support groups. Study results demonstrated caregivers’ lack of knowledge about transplantation, dramatic changes in caregivers ‘family life, social activities, employment, and often financial status. Results also demonstrated a need for health care providers and policy makers to recognize caregivers’ stressful life changes and implement informational, psychological and emotional interventions and policies to assist these caregivers during their stressful and tedious experiences.
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Plange-Kaye, Elizaebth. "Caregivers' Burden| A Phenomenological Study of the Lived Experiences of Informal Caregivers." Thesis, University of Phoenix, 2018. http://pqdtopen.proquest.com/#viewpdf?dispub=10744463.
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<p>ABSTRACT
The current increase in the population of older adults has created a high demand for more
informal caregivers. Informal caregivers complain of many problems in providing care including psychological stresses and anxieties, as well as physical, emotional, financial, and other social burdens. The purpose of this phenomenological study was to understand and describe the essence of the lived experiences of informal caregivers. The study was also intended to make health professionals and policy makers aware of such problems. The study adopted a qualitative methodology and a hermeneutical phenomenological design. Purposeful sampling was used in selecting participants with informal caregiving experience. Eleven informal caregivers were interviewed via telephone for data collection. Data was analyzed using Nvivo 11 for the identification and description of patterns and themes from the perspectives of participants. Eight themes that emerged from data analysis were: (a) Gender, many females engaging in caregiving, (b) Caregivers feeling stressful, (c) Love played a crucial role in caregiving, (d) Need for training for caregivers, (e) Being cared for by loved family members, (f) Impacts on job performance, (g) Living arrangements between caregiver and care receiver, and (h) Lack of support from family, community or state agencies. The conclusions focused on the need for support to informal caregivers such as caregiver training, adult day care services, care leave or respite care, increased access to services, care payments, and expansion in the informal caregiver workforce.
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Sawyer, Mary Rachel. "Caregiver Training: Increasing Generalization of Parenting Skills Through Teaching Caregivers to Recognize Child Behavior." Scholar Commons, 2012. http://scholarcommons.usf.edu/etd/4220.
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Previous research has demonstrated the efficacy of a behavioral parent training program for increasing the accuracy of trained skills; however, few studies have examined the extent to which those skills generalize to the natural environment (i.e., the home) and are used with the target individual (i.e., the child). In addition, little is known about the direct effect that caregiver implementation of the skills has on child behavior. A multiple baseline across participants design was used to (a) assess caregiver accuracy with implementation of three parenting skills, and (b) assess subsequent effects of the parenting skills on child behavior. Results demonstrated that three caregiver participants successfully generalized parenting skills taught during behavioral skills training (BST) to naturally occurring routines by recognizing appropriate and inappropriate child behaviors as opportunities to implement the trained skills. In addition, the behavior of each caregiver's child improved following BST, suggesting that the parenting skills were effective in addressing challenging child behavior. All caregivers rated the training and skills to be highly socially valid. Limitations and suggestions for future research are discussed.
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Stacy, Kelly E. "Needs and Concerns of Family Caregivers of Persons with Lewy Body Disease (LBD)." University of Cincinnati / OhioLINK, 2021. http://rave.ohiolink.edu/etdc/view?acc_num=ucin1627663824224801.
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Kietzman, Kathryn Gail. "A reason to care motivation to assume a paid caregiver role and correlates of well-being among family members and friends /." Diss., Restricted to subscribing institutions, 2008. http://proquest.umi.com/pqdweb?did=1666115091&sid=3&Fmt=2&clientId=1564&RQT=309&VName=PQD.
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Lezotte, Edna Mae. "Use of religious and spiritual resources as a means of self care for coping with vicarious traumatization." Theological Research Exchange Network (TREN), 2000. http://www.tren.com.
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Clear, Mike. "Public discourse personal reality : disablement and a re-search for caring culture /." View thesis View thesis, 1996. http://library.uws.edu.au/adt-NUWS/public/adt-NUWS20030529.110649/index.html.
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Thesis (PhD. Philiosophy)--University of Western Sydney, Hawkesbury, 1996.<br>"This thesis is presented for the degree of Doctor of Philosophy, University of Western Sydney, 1996." Includes bibliographical references (p. 288-306).
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Hamdy, Ronald C., J. V. Lewis, Rebecca Copeland, Audrey Depelteau, Amber Kinser, Tracey Kendall-Wilson, and Kathleen Whalen. "Repetitive Questioning Exasperates Caregivers." Digital Commons @ East Tennessee State University, 2018. https://dc.etsu.edu/etsu-works/2739.
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Repetitive questioning is due to an impaired episodic memory and is a frequent, often presenting, problem in patients with Alzheimer’s disease (amnestic type). It is due to the patients’ difficulties learning new information, retaining it, and recalling it, and is often aggravated by a poor attention span and easy distractibility. A number of factors may trigger and maintain repetitive questioning. Caregivers should try to identify and address these triggers. In the case discussion presented, it is due to the patient’s concerns about her and her family’s safety triggered by watching a particularly violent movie aired on TV. What went wrong in the patient/caregiver interaction and how it could have been avoided or averted are explored. Also reviewed are the impact of repetitive questioning, the challenges it raises for caregivers, and some effective intervention strategies that may be useful to diffuse the angst that caregivers experience with repetitive questioning.
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Anderson, Cristina L. (Cristina Lee). "Caregiver Personality as a Contributing Factor in Caregiver Burden." Thesis, University of North Texas, 1994. https://digital.library.unt.edu/ark:/67531/metadc500270/.
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Personality characteristics of spousal and adult children and active potential caregivers of persons with Alzheimer's Disease were studied in order to better predict caregiver burden and aspects of well-being. Contrary to prediction, no differences were found between spouse and adult children active caregivers on measures of well-being. Additionally, adult children potential caregivers indicated feeling less control over their lives than spouse potential caregivers. When social desirability was controlled, active caregivers reported greater fluctuations in affect than did potential caregivers. As predicted, personality characteristics of individuals were found to have the biggest role in determining which individuals experience stress or burden.
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Slade, Rebecca. "Examination of dementia caregivers' experiences : the role of suffering and empathy in the caregiving relationship and a review of the evidence base for interventions targeting caregiver anxiety." Thesis, University of Edinburgh, 2015. http://hdl.handle.net/1842/33301.
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Background: Dementia, which affects an estimated 35 million individuals worldwide, is now recognised as a growing health and economic problem. With insufficient levels of health and welfare services in many nations, there exists a reliance on family caregivers to provide care for individuals with dementia (IWDs). However, the potential negative psychological and physical consequences of the caregiving role cannot be ignored. A growing literature base has improved the theoretical understanding of mental health difficulties (e.g. depression, burden) in caregivers. However, significant gaps in the research remain. These include understanding outcomes such as caregiver anxiety and examining the role of potentially crucial variables, such as levels of suffering and empathy. Objectives: An empirical study was conducted in order to add to the literature regarding depression and anxiety in spousal caregivers of IWDs. This research conducted exploratory analyses of the relationships between the suffering of IWDs, IWDs' depression and anxiety, caregivers' levels of empathy, caregiver satisfaction and caregiver anxiety and depression. Caregivers' anxiety and depression is considered in the context of research on co-morbidity. In addition, the levels of discrepancy between ratings of suffering, whereby caregivers frequently report IWDs to be suffering more than IWDs self-report, were also examined. A systematic review was conducted in order to evaluate the effectiveness of psychosocial interventions for anxiety in informal caregivers of IWDs. Method: For the empirical study, a cross-sectional survey methodology was employed where dyads of caregivers and IWDs completed questionnaires during face-to-face interviews. Primary variables examined were the suffering of IWDs, IWDs' levels of depression and anxiety, and caregivers' levels of empathy, satisfaction, depression and anxiety. The suffering of IWDs was rated both by the IWDs (self-reported suffering) and the caregivers (perceived suffering). Descriptive statistics and exploratory correlational analyses were used to address a number of exploratory research questions regarding the relationships between the investigated variables. For the systematic review, five scientific databases were searched for relevant randomised controlled trials (RCT). Study quality was assessed according to standardised, recommended criteria and a qualitative synthesis of the evidence, including effect sizes, is described. Results Results from the empirical study suggest high levels of clinical anxiety in the caregiver population. In the current sample, there was a high prevalence rate of anxiety (52.5%) and a lower rate of depression (15.0%). However, there were no statistically significant correlates for caregiver anxiety and depression found. Findings are discussed in the context of previous research, the demographics of the current sample and difficulties with recruitment. For the systematic review, twenty studies with substantially different methodological quality were included. Anxiety was rarely identified as the primary outcome measure. However, the evidence suggests that Cognitive Behavioural skills training and psycho-educational interventions can be effective in treating caregiver anxiety. Some preliminary evidence for interventions underpinned by Mindfulness-based strategies was also found. Conclusions: The empirical study found that a large proportion of Scottish spousal caregivers experience clinical levels of anxiety. This suggests that caregiver anxiety must be a key priority for both clinicians and researchers alike. In addition, further research examining these understudied variables and using dyadic methods remains crucial to increasing understanding into caregivers' outcomes. The systematic review demonstrated that research regarding interventions for anxiety in caregivers is growing and there is now a greater emphasis on the underlying theoretical models of delivered interventions. There is also growing evidence that interventions with clear theoretical basis may be more likely to be effective. However, both the empirical study and the systematic review highlight further questions that remain to be addressed in the literature. Further research continues to be necessary in this area to ensure that services are appropriately meeting the needs of both caregivers and IWDs.
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McBride, Sara. "Understanding the cognitive processes of problem detection and decision making among assisted living caregivers." Diss., Georgia Institute of Technology, 2014. http://hdl.handle.net/1853/51797.
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It is estimated that by 2050 the proportion of older adults in the U.S. will reach 20% (U.S. Census Bureau, 2008). This increase in the elderly population will likely be associated with a greater need for supportive services in various sectors, including healthcare and housing, such as assisted living communities. Many older adults choose to reside in assisted living communities due to increased difficulty managing health conditions or performing activities of daily living (e.g., bathing, toileting, walking). A primary goal of assisted living communities is to help residents maintain their health and well-being. However, little is known about how caregiving staff detect and interpret relevant cues, and what behaviors are taken to address concerns about residents. In addition to investigating these questions, the role of experience in the job was examined by comparing workers with a relatively low level of experience (1 month-16 months) to those with a relatively high level of experience (3+ years). These questions were addressed using a Critical Incident Interview and a Scenario-based Interview. The cues discussed by participants were categorized as Cognitive, Physical, or Emotional in nature. Participants reacted with concern to most of the scenarios, although the ratings they assigned to indicate their level of concern showed a high level of variability across participants. The explanations participants generated for the various scenarios were classified as either general or specific, with the majority of explanations coded as specific. Specific explanations were primarily that the situation was the result of a Cognitive/Emotional/Social issue or a Physical health issue. Of the actions participants described taking to handle the scenarios, gathering and using information was discussed far more than any other action. Participants discussed needing information related to the resident, such as their health, current and recent state, and personal history, as well as elaboration of the cues that initiated the concern in the first place, such as how long the symptom had been present. Participants also discussed various types of knowledge that they used in their decision making process. The most frequently discussed type of knowledge was health conditions and symptoms. Lastly, the data from the current study did not generally reveal differences between the two levels of experience that were examined. A revised model of caregiver decision making and practical contributions are discussed.
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Miller, Meagan. "Claiming a life of permanence: Filipina caregivers' migration experiences in Canada's live-in caregiver program." Thesis, McGill University, 2011. http://digitool.Library.McGill.CA:80/R/?func=dbin-jump-full&object_id=96836.
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Drawing on in-depth interviews with migrant caregivers, community workers and government employees, this thesis explores the dream among Filipina women working in Canada's Live-In Caregiver Program (LCP) to build a life in Canada. Uncovering the actions they take on the path to realizing this dream, I first examine the common challenges caregivers encounter while working as temporary workers in the LCP. The analysis deepens to reveal the struggles caregivers engage in to improve their lives, despite institutional obstacles to exercising their rights. Ultimately, the analysis addresses the wider institutional context by examining Canada's contemporary citizenship regime. Throughout their journey to claiming a permanent home in Canada, caregivers are confronted with vulnerabilities rooted in this regime. However, those who experience greater social inclusion in the local community find strength and courage to overcome adversity.<br>Basée sur des entrevues approfondies avec des aides familiales immigrantes, ainsi que des employés provenant des milieux communautaire et gouvernemental, cette thèse explore le rêve des femmes philippines travaillant dans le cadre du Programme des aides familiaux résidants (PAFR) de s'établir au Canada. Tout en retraçant les actions qu'elles entreprennent pour réaliser ce rêve, j'examine d'abord les défis auxquels ces femmes sont confrontées et ensuite les épreuves qu'elles tentent de surmonter pour améliorer leur vie malgré la présence de plusieurs obstacles institutionnels à l'exercice de leurs droits. Finalement, l'analyse se concentre sur le contexte institutionnel plus général en examinant le régime de citoyenneté du Canada. Tout au long de leur parcours vers l'obtention de la résidence permanente, les aides familiales sont confrontées aux faiblesses de ce régime. Par contre, celles qui sont mieux intégrées à leur communauté locale trouvent la force et le courage de surmonter l'adversité.
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McEwen, Marylyn. "Family adaptability, family cohesion, spirituality and caregiver strain in women as caregivers of elder kin." Thesis, The University of Arizona, 1987. http://hdl.handle.net/10150/558069.
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VanMeter, Adrianna J. "The Impact of Dementia Caregiving on Caregiver Cognitive Health." Ohio University / OhioLINK, 2017. http://rave.ohiolink.edu/etdc/view?acc_num=ohiou1508854228522232.
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Williams, Elizabeth A. "Caregiving Burden and Heart Rate Variability: Differences by Race and Gender." Case Western Reserve University School of Graduate Studies / OhioLINK, 2020. http://rave.ohiolink.edu/etdc/view?acc_num=case1586291354640556.
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Halpern, Michael T., Mallorie H. Fiero, and Melanie L. Bell. "Impact of caregiver activities and social supports on multidimensional caregiver burden: analyses from nationally-representative surveys of cancer patients and their caregivers." SPRINGER, 2017. http://hdl.handle.net/10150/626018.
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Informal caregivers of individuals with cancer may experience substantial burdens. To develop interventions to support these caregivers, it is crucial to quantify and understand the domains of burdens potentially experienced by caregivers and factors contributing to each domain. Using data from two national surveys, the National Survey of Caregiving (NSOC) linked to the National Health and Aging Trends Survey (NHATS), we identified all participants in the NHATS diagnosed with cancer who had a caregiver participating in the NSOC. Guided by a theoretical model, twenty-two items in the NSOC related to caregiver health, mood and outlook were included in factor analysis to develop scales capturing domains of burden. Multivariable regression analyses examined whether activities performed by caregivers and supports for caregivers were associated with these burden scales. Analysis of responses from 373 caregivers of cancer patients identified three scales: emotional burden; psychological burden; and relationship with the patient. Providing assistance managing medical care was associated with increased emotional and psychological burden, while assistance with non-medical issues increased psychological burden and worsened relationships with patients. Caregiver provision of direct patient care activities was also associated with increased burden but improved relationships with patients. Use of caregiver supports showed mixed associations with burden. Using a nationally-representative sample of cancer patients and their caregivers and brief publicly-available survey questions, we present three scales addressing different aspects of caregiver burden that are responsive to caregiver activities and social supports. This may assist in developing and evaluating intervention to decrease caregiver burden.
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Zerth, Erin O. "Applying a manualized intervention for rural caregivers to caregivers of older medical rehabilitation patients /." Available to subscribers only, 2008. http://proquest.umi.com/pqdweb?did=1594477041&sid=10&Fmt=2&clientId=1509&RQT=309&VName=PQD.
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Holroyd, Eleanor Anne. "Chinese family caregivers : dilemmas at the extremity of public and private obligations /." Thesis, Hong Kong : University of Hong Kong, 1998. http://sunzi.lib.hku.hk/hkuto/record.jsp?B20715353.
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Dick, Suzanne. "The needs of informal caregivers." Thesis, National Library of Canada = Bibliothèque nationale du Canada, 1997. http://www.collectionscanada.ca/obj/s4/f2/dsk3/ftp05/mq23276.pdf.
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Wolff, Megan, Kelly Daniel, Julia Najm, and Diana PhD Morelen. "Taking Care of the Caregivers." Digital Commons @ East Tennessee State University, 2021. https://dc.etsu.edu/asrf/2021/presentations/32.
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The present study examined the impact of COVID-related stress on the mental health and professional burnout in the infant and early childhood mental health (IECMH) workforce and to examine reflective supervision and consultation (RSC) as a possible protective factor that buffers against the detrimental impact of COVID-related stress. Participants included 123 adults (n = 121 female, modal age range 30-39 years) in the TN IECMH workforce (mean years of experience = 13.6 years) surveyed in June/July 2020. Sector representation was quite varied (home-visiting, childcare, child welfare, early intervention). Results indicated that 46% of the sample had depression symptoms (18% in the moderate-severe range) and 75% of the sample had anxiety symptoms (33% in the moderate-severe range). Higher COVID stress was associated with higher internalizing symptoms and burnout levels and this relationship was mediated by self-care behaviors, such that the more COVID stress one reported, the fewer self-care behaviors they engaged in, and the higher the risk for internalizing symptoms and burnout. Finally, the pathway from COVID stress to self-care behaviors was moderated by RSC such that IECMH professionals who received 1 year or more of RSC were buffered against the detrimental impact of COVID stress on lowering self-care behaviors whereas this protective effect of RSC was not present for individuals with less than 1 year (or no experience of) RSC.
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Spearman, Marilyn S. "The expressions of male caregivers /." The Ohio State University, 1999. http://rave.ohiolink.edu/etdc/view?acc_num=osu1487952208105824.
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Nunez, Guero. "BELIEFS ABOUT RESPITE AMONG CAREGIVERS." CSUSB ScholarWorks, 2016. https://scholarworks.lib.csusb.edu/etd/298.
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The emphasis of this research was to evaluate the beliefs about respite among caregivers of the clients associated with Inland Caregiver Resource Center. The caregivers of the elderly and those who suffer from Alzheimer’s and dementia, or suffer from traumatic brain injury that was organic in nature were the population of interest. These caregivers were unpaid persons who help to keep those with such conditions at home as long as possible. This study used an exploratory pilot survey instrument to assess the perception of benefit of respite used as seen from the view of the caregiver. The primary theory used to support this project was Abraham H. Maslow’s Hierarchy of Needs. Data analysis used standard statistical methodology. The benefit to the profession of social work was seen in the addition of knowledge to the fast growing field of organizational respite services. The results of the research indicated that when respite was seen as beneficial the caregiver was more able to complete activities while using respite, the caregiver believed the person or agency who cared for their loved one was professional and trusting, and the care receiver was treaded well and was more easier to care for after being cared for by another person or agency.
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Gideon, Clare A. "SOCIAL ENVIRONMENTS OF DEMENTIA CAREGIVERS: RELATIONSHIPS BETWEEN SOCIAL SUPPORT, NEGATIVE SOCIAL INTERACTIONS, AND CAREGIVER EMOTIONAL DISTRESS." online version, 2007. http://rave.ohiolink.edu/etdc/view?acc%5Fnum=case1158541315.
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Zhao, Yuxin. "Exploring the Effect of Caregiver Burden among Alzheimer's Caregivers: A Test of The Stress Process Model." Thesis, Virginia Tech, 2019. http://hdl.handle.net/10919/86840.
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The diagnosis of Alzheimer's disease (AD) is stressful for both patients and their family caregivers (FCG). As the disease progresses, the patient's memory, functioning status, and behavioral problems get worse, and the needs of the patient that must be addressed by family caregivers increase dramatically. This research examines the impact of the subjective burden with the objective stressors on FCG's depression and to determines which psychosocial resources can be used to either mediate or moderate this relationship.
I examine the baseline data that was collected from 670 family caregivers of Alzheimer's patients in the Resources for Enhancing Alzheimer's Caregiver Health (REACH) II clinical trial (REACH II), 2001-2004. The measurements used in the current study are caregivers' background and context factors, objective stressors, subjective burden, psychosocial resources, and symptoms of depression.
Three research questions will be investigated in this study: (1) How do the caregivers' background and context factors affect FCGs experiences of objective stressors and subjective burden during the caregiving process? (2) What is the relationship between the objective stressors and subjective burdens, and what impact, if any, do they have on FCGs'depressive symptoms? (3) How do psychosocial resources mediate and or moderate the relationship between the primary stressors and FCGs'depression experiences?<br>Master of Science<br>The diagnosis of Alzheimer’s disease (AD) is stressful for both patients and their family caregivers (FCG). In 2018, an estimated 5.7 million Americans have been diagnosed with Alzheimer’s disease (Alzheimer’s Association 2018). As the disease progresses, the patient’s memory, functioning status, and behavioral problems get worse, and the needs of the patient that must be addressed by family caregivers increase dramatically. As Aneshensel, Carol S., Leonard I. Pearlin, Joseph T. Mullan, Steven H. Zarit, and Carol J. Whitlatch (1995) noted in their book Profiles in Caregiving: The Unexpected Career, the role of caregiving is generally an ‘unexpected job’ for FCGs (Aneshensel et al. 1995). Based on Pearlin’s stress process model (SPM), the primary goal of my thesis is to compare the impact of the subjective burden of caregiving with that of objective stressors on FCG’s depression, and to determine whether psychosocial resources can either mediate or moderate this relationship. Objective stressors refer to the AD patient’s memory and behavior problems, his or her cognitive impairment, self-care activities, and functional status. Subjective burden is the FCG’s emotional response to objective stressors. Objective stressors and subjective burden are associated with each other, and they are primary stressors in the SPM. Psychosocial resources include FCG’s religious coping, their positive experiences of caregiving, their social networks and whether they were satisfied with social support that they received from others. The present study is important for two reasons. First, rather than focusing on subjective burden alone, the model examined how objective stressors (i.e. burden) influence mental health through their impact on subjective burden. Second, previous influential studies of the stressors of caregiving either did not include the moderating effects of psychosocial resources (Pearlin et al., 1999), or included a limited number of resources and found that they did not play a significant role in how caregiving stress influences caregivers mental health (Aneshensel et al. 1995). In my thesis, I will explore both of the mediating and moderating effects of four types of psychosocial resources. I examine the baseline data that was collected from 670 family caregivers of Alzheimer’s patients from the Resources for Enhancing Alzheimer’s Caregiver Health (REACH) II clinical trial (REACH II), 2001–2004 (Schulz, Burgio, and Stevens 2006). The study participants target on FCGs who are vulnerable to the caregiving stressors. The purpose of the baseline data was to describe the AD patients’ cognitive impairment and behavior problems at the initial stage of the REACH II study, the demands caused by the impairments imposed upon FCGs, the psychosocial resources adopted by FCGs to relieve the caregiving stress, and the consequences of the primary stressors on FCGs’ daily lives. I will explore three research questions in the current study: (1) How do the caregivers’ background and context factors affect FCGs experiences of objective stressors and subjective burden during the caregiving process? (2) What is the relationship between the objective stressors and subjective burdens, and what impact, if any, do they have on FCGs’ depressive symptoms? (3) How do psychosocial resources mediate or moderate the relationship between the primary stressors and FCGs’ depression experiences? The measurements used in the current study are caregivers’ background and context factors, objective stressors, subjective burden, psychosocial resources, and symptoms of depression. Data analysis is primarily based on multiple linear regression. I will also use the post-hoc probing methods to specifically test the significance of the moderating test. There are four key findings in the present study. First, caregivers’ background and context factors have some significant associations with objective stressors and subjective burden, but overall, their impact is minimal. Second, subjective burden has a stronger impact on depressive symptoms than all of the objective stressors do. Third, subjective burden undermines all four psychosocial resources tested in the current study. Fourth, the mediating and moderating effects of psychosocial resources have a negligible impact in the caregiving stress process. Surprisingly, the effect of subjective burden on depressive symptoms among FCGs remained largely unchanged after all psychosocial resources were included in the model as mediators and moderators. In the mediational test, the effects of subjective burden on depression decreased by only 14 percent after all psychosocial resources were taken into account. Likewise, each of these psychosocial resources had only a negligible effect on moderating the impacts of stressors. The study suggests that unless there is a full understanding of the effects of these stressors on caregivers’ well-being, any interventions or preventive actions will be of limited utility. Future research should pay more attention to exploring the relationships between the subjective burden and objective stressors, and examining their different impacts on FCGs’ depression experience. Additionally, the fact that none of the psychosocial resources have a buffering effect in the caregiving process suggests that there is little in the lives of caregivers that mitigates the deleterious effects of caregiving stress on Alzheimer’s caregivers. Policymakers and mental health providers should consider the stress of caregiving, as reflected in both its objective and subjective aspects, as a major risk factor in the lives of those who care for family members with Alzheimer’s disease. Those factors may play a causal role in caregivers’ mental disorders and suicidal ideation.
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Lee, Jaime. "Why Technology for Caregivers Fail| A Qualitative Study of GPS-Based Technology Supporting Alzheimer's Caregivers." Thesis, University of Baltimore, 2018. http://pqdtopen.proquest.com/#viewpdf?dispub=10746907.
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<p> The purpose of this research is to understand the usability challenges of wearable Global Positioning System (GPS)-based technologies for at home caregivers managing wandering effects for loved ones with Dementia, specifically those with Alzheimer's disease. A total of four devices and 14 U.S. participants were studied using semi-structured, in-person qualitative usability methodology and an open coding system in the style of Grounded Theory. Though the study evaluated issues solely related to usability, the results expanded to a much larger design paradigm to be considered for improved and more directed solutions for future advancements that is symbiotic between a company and its end user. The proposed "life-proofing ecosystem", which contains eight pillars within its framework (user experience, customer experience, accessibility, governance, marketing, business, technology, cultural sensitivity) aims for more balanced product evolutions and progressive innovation. Future studies may provide scalar measurements for assessments beyond the proposed framework and ecosystem. Ultimately, the goal is to provide practical guidelines for designing life-proof solutions in today's highly connected society.</p><p>
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Cornu, Matthew. "CAREGIVERS OF PARENTS WITH AlZHEIMER’S DISEASE: QUALITY OF LIFE FOR CAREGIVERS: PERSPECTIVES & FAMILY DYNAMICS." UKnowledge, 2019. https://uknowledge.uky.edu/hes_etds/75.
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This study furthers Alzheimer’s family literature regarding the impact of caregiver attachment, readiness to provide care, and caregiver quality of life. A sample of 33 participants caring for a parent with Alzheimer’s disease in the state of Kentucky was recruited to complete a questionnaire for the study. The questionnaire consisted of an online survey about participants’ experiences and attachments growing up with their parents, their experiences becoming caregivers to their parents with Alzheimer’s disease, and participants’ current perspectives of their own quality of life. Positive perspectives in regards to quality of life among caregivers seem to be a predictor of both stronger readiness to care and stronger attachments. These finding inform therapists about the importance of recognizing a caregiver’s presenting problems of burden and their significance to attachment and readiness to provide such care. This recognition may impact therapy to strengthen a caregiver’s positive adaption, thus it may also decrease burden.
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Stebbins, Peter. "Predictors of psychological distress in caregivers of people with acquired brain injury : a cognitive behavioural analysis /." [St. Lucia, Qld.], 2005. http://www.library.uq.edu.au/pdfserve.php?image=thesisabs/absthe19107.pdf.
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Simmons, Barbara. "Perceptions of Well-being and Coping Mechanisms from Caregivers of Individuals with Autism." ScholarWorks, 2019. https://scholarworks.waldenu.edu/dissertations/6671.
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Caregivers of individuals with autism often report increased levels of stress and a lack of social support to help them cope with various stressors as they provide care. Without coping mechanisms or social support, as individuals with autism present various behavioral and emotional challenges, caregivers can experience a decline in well-being. Thus, the purpose of this qualitative study was to explore the processes that caregivers of individuals between the ages of 9-18 diagnosed with autism use to cope with stress and social support in Southeast Georgia. Grounded theory was used to describe the perceived thoughts caregivers have about stress and well-being and how they gain control over their situation through adaptation. Individual semi-structured interviews were used to collect data from 20 caregivers of children (ages 9-18) with at least a moderate to severe autism spectrum disorder. Findings reveal that caregivers used problem-focused coping in the identification of stressors that impacted them physically and emotionally. The degree to which stress impacts a caregivers' life is dependent on the way caregivers respond to the stressor. Because coping strategies play a role in response to stress, those strategies led to the development of a theoretical model that aim to understand the processes that generate a response to stress. Data were coded and organized into themes using open and axial coding procedures; a theory was then generated using selective coding, yielding a theory of caregiver coping processes. The improved understanding of the challenges that caregivers face as they provide care for individuals with autism holds potential to minimize the negative outcomes of stressors and harness the potential for more positive coping mechanisms to improve caregiver well-being and promote positive social change.
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Taylor, Karen Jackqueline. "Impacting the awareness of God's presence within the challenges of giving full time care to one diagnosed with Alzheimer's disease." Theological Research Exchange Network (TREN), 2007. http://www.tren.com/search.cfm?p028-0274.
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Ng, Ka-man Carmen. "An exploration of experiential learning with carers participating in a multi-skills training course on care of the elderly." Hong Kong : University of Hong Kong, 2000. http://sunzi.lib.hku.hk/hkuto/record.jsp?B22331463.
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Koumoutzis, Athena N. "Age Differences in Stressors and Outcomes Among Young Adult, Midlife, and Older Adult Caregivers." Kent State University / OhioLINK, 2019. http://rave.ohiolink.edu/etdc/view?acc_num=kent1553839757877709.
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Aguirre, Monique LaShone. "Social Support, Psychological Distress, and Behavioral Outcomes Among Palliative Care Caregivers." ScholarWorks, 2018. https://scholarworks.waldenu.edu/dissertations/6159.
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Social support and acute care facility providers need information about how to help improve the practices and knowledge of caregivers related to the stages of palliative care. The purpose of this study was to examine whether there was a significant association between social support and psychological distress and behavioral outcomes among palliative care caregivers, and to determine to what extent social support buffered psychological distress and behavioral outcomes. The quality-of-life model guided the study. The study used a quantitative cross-sectional research design with secondary data analyses. The sample included 320 adult family caregivers who were part of a telephone survey on caregiver burden collected in 2000 representing the U.S. population. The independent variable was social support (caregivers' awareness of resources and receipt of direct support) and the dependent variables were psychological distress (anxiety, stress, and depression) and behavioral outcomes (sleep deprivation and patient abuse). Caregivers' receipt of direct social support significantly predicted reduction of psychological distress: anxiety (OR = .434, p < .001), stress (OR = .603, p < .041), and depression (OR = .464, p < .013). Social support was not a predictor of behavioral outcomes. The positive social change implications of this study include use of findings by healthcare providers and social service agents to formulate services to aid caregivers in reducing the burden of negative behavioral outcomes and improve quality of life of caregivers and their families.
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Price, Katey A. "Aphasia and the identity of Alzheimer’s family caregivers: The effect of communication ability on caregiver identity gaps." The Ohio State University, 2014. http://rave.ohiolink.edu/etdc/view?acc_num=osu1387538328.
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Alva, Jessica Isabel. "Family Caregiver Interdependence: A Dyadic Analysis of Primary and Secondary Caregivers of Relatives with Major Neurocognitive Disorder." Case Western Reserve University School of Graduate Studies / OhioLINK, 2016. http://rave.ohiolink.edu/etdc/view?acc_num=case1465660522.
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Bryant, Jonanna R. "Characteristics of the Informal Caregiver: An Integrative Literature Review." ScholarWorks, 2016. https://scholarworks.waldenu.edu/dissertations/2397.
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The needs of the informal caregiver can be difficult to determine apart from those related to caring for the terminally ill loved one. Often, informal caregivers' individual needs are lost because of their day-to-day responsibility and care of their terminally ill loved one. The purpose of this project was to discover the characteristics of informal caregivers of the terminally ill. An integrated literature review was conducted using the Fineout-Overhalt, Melnyk, Stillwell, and Williamson's (2010) analytical approach to reviewing the evidence. The approach consisted of 7 levels for evaluating the hierachy of evidence. Inclusion criteria were studies limited from January 2004 to October 2015, English language, and full text. A total of 22 studies were reviewed and categorized according to 1 of the 7 hierachial levels, and findings related to the characteristics of informal caregivers were summarized at each appropriate level. Characteristics of informal caregivers were described regarding sociodemogrphics, such as age, gender, relationship with family members, financial status, and educational level. Characteristics of informal caregivers were discussed in relationship to the terminally ill loved one. The evidence did not concentrate on who the informal caregiver was without assessing their relationship to the terminally ill patient. It is recommended that a mixed-method approach be conducted to indentify characteristics of informal caregivers outside of their relationship with the terminally ill. Gaining a new perspective about the characteristics of informal caregivers for the terminally ill patient would help health care providers to more effectively meet their needs independent of the needs of the terminally ill loved one.
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Waterfall, A. Christine. "Needs of caregivers of stroke survivors." Virtual Press, 2002. http://liblink.bsu.edu/uhtbin/catkey/1246469.
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Stroke is a medical event that has serious consequences for the survivor, his family, and society. Stroke is the third leading cause of death in the United States, and two-thirds of stroke survivors are permanently disabled with one-half of these survivors considered severely impaired. The economic burden from stroke is estimated to be $30 billion annually in health care costs and lost productivity.This study described the needs of 35 caregivers of stroke survivors within 24 hours of discharge to home from an acute care "safety net" teaching hospital in Indiana and how well those needs were met. Two subscales, (a) the Need for Information and (b) Patient Care Needs, of the Home Caregiver Need Survey were used. The theoretical framework for this study was the Neuman Systems Model.The stroke survivors were over 50 years old (77.1 %), half were African-American and half were Caucasian, and about a quarter were minimally impaired (25.8%) and less than a quarter were very impaired (22.9%) cognitively and/or physically upon discharge to home. Their caregivers were their children (48.6%) or spouses (28.6%), half of whom worked full-time outside the home. Most (85.7%) caregivers were female, in good health, and with no experience (81.8%) in caring for patients at home.<br>School of Nursing
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Anyabolu, Oliver Ifeanyi. "Understanding Caregivers' Perceptions of Childhood Immunization." Thesis, Walden University, 2016. http://pqdtopen.proquest.com/#viewpdf?dispub=10180866.
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<p> Low immunization in Nigeria is associated with high prevalence of childhood diseases. The purpose of this qualitative phenomenological study was to describe caregivers’ perceptions of routine immunization of their children ages 24 to 36 months. Caregivers’ attitudes, cultural beliefs, and knowledge regarding immunization were examined. The health belief model was used to guide study. Interviews were conducted with 5 caregivers of fully immunized and 5 caregivers of partially and nonimmunized children. Digital recordings were analyzed using NVivo 10 to identify themes and subthemes. Attitudes of caregivers with fully immunized children included both perceived barriers (distance to health center, lack of information) and perceived benefits (vaccine safety and effectiveness), whereas caregivers with incomplete vaccinations reported multiple transportation-related barriers. Cultural beliefs were limited to religious beliefs and emerged as a theme among both caregiver groups, where full vaccination associated with Christian beliefs and lack of vaccination with belief in traditional healers. Caregivers’ knowledge associated with full vaccination included cues to action (information from nurses and reminders by others) and self-efficacy (kept vaccination cards ready and prepared for vaccination day), and incomplete vaccination associated with lack of reminders and preparation. Perceived severity, susceptibility, and benefits were associated with full vaccination status, while lack of perceived severity, susceptibility, cues to action, and self-efficacy constituted barriers to vaccination. Social change implications include education on disease severity, susceptibility, and vaccination safety, and expanding transportation, access to vaccination centers, and religious outreach programs to increase immunization of Nigerian children.</p>