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Journal articles on the topic 'Caregivers'

Author: Grafiati

Published: 4 June 2021

Last updated: 25 July 2025

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1

Savla, Jyoti, Karen Roberto, and Rosemary Blieszner. "CARE NETWORKS OF RURAL APPALACHIAN FAMILY CAREGIVERS AND PERSONS LIVING WITH DEMENTIA." Innovation in Aging 6, Supplement_1 (2022): 194. http://dx.doi.org/10.1093/geroni/igac059.776.

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Abstract Dementia care research typically focuses on primary family caregivers with limited consideration of their engagement with a broader care network and the geographic area in which they reside. Using a mixed-methods approach, we analyzed care networks of 163 primary caregivers and their relative living with dementia in rural Virginia. Six distinct care network types emerged based on the primary caregiver's gender, relationship to the person living with dementia, and presence of other informal caregivers. Networks differed by the caregiver’s emotional connectivity with family/friends and

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Buchanan, Robert J., and Chunfeng Huang. "The Need for Mental Health Care Among Informal Caregivers Assisting People with Multiple Sclerosis." International Journal of MS Care 15, no. 2 (2013): 56–64. http://dx.doi.org/10.7224/1537-2073.2012-030.

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The objective of this study was to identify characteristics of informal caregivers and people with multiple sclerosis (MS) receiving assistance that are associated with the caregiver's perceived need for mental health care. Survey data were collected in interviews with 530 caregivers and analyzed using a logistic regression model. We found that older caregiver age significantly decreased the odds of caregivers' perceived need for mental health treatment. Better mental health domains of health-related quality of life among caregivers, as measured by the 8-item Short Form Health Status Survey (S

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Messias, Lisiane Alves dos Santos, Fátima Adriana D'Almeida Gazetta, Pedro Marco Karan Barbosa, and Zamir Calamita. "Conhecimento prático e sobrecarga na vida de cuidadores de idosos com demência." Scientia Medica 28, no. 3 (2018): 30569. http://dx.doi.org/10.15448/1980-6108.2018.3.30569.

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AIMS: To analyze the level of knowledge and the life overload of caregivers of elderly people with dementia, correlating these variables with sociodemographic aspects and type of relationship between caregiver and elderly.METHODS: A cross-sectional study was conducted between 2016 and 2017, with caregivers of elderly people with dementia seen at the Geriatrics outpatient clinic of the Hospital das Clínicas, Medical School of Marília, in Marília / SP, Brazil. The study included caregivers who accompanied the elderly to the consultations and participated in an important way in their care, compri

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Frias, Cindy E., Esther Cabrera, and Adelaida Zabalegui. "Informal Caregivers’ Roles in Dementia: The Impact on Their Quality of Life." Life 10, no. 11 (2020): 251. http://dx.doi.org/10.3390/life10110251.

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The constantly changing process of caring for a person with dementia affects the informal caregivers’ role due to its psychosocial impact. This cross-sectional study aimed to analyze the impact of the Person with Dementia informal caregiver’s role caregiver to a person with dementia on the self-perceived quality of life (QoL) of the caregiver. In total, 160 informal caregivers were recruited between January and December 2019. Informal caregivers’ quality of life was assessed using the European Quality of Life 5-Dimension scale, burden with the Zarit Burden Scale, emotional wellbeing using the

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Angelika, Putu Veby, The Maria Meiwati Widagdo, Widya Christine Manus, and Silvester Haripurnomo. "CORRELATION STUDY BETWEEN BURDENS AND THE QUALITY OF LIFE IN CAREGIVERS OF DEPENDENT ELDERLY IN PRAWIRODIRJAN VILLAGE." Journal of Widya Medika Junior 4, no. 2 (2022): 114–24. http://dx.doi.org/10.33508/jwmj.v4i2.3779.

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Background: Aging is synonymous with decreased body function due to natural factors (aging process) and diseases. The elderly who are unable to do their activities can cause dependence on the caregiver. In carrying out its role, the caregiver has burdens that can affect their life quality. Objective: To measure the correlation between the burden and the quality of life in caregivers of dependent elderly in Prawirodirjan Sub-district, Gondomanan District, Yogyakarta Municipality. Materials and Methods: This study used a cross-sectional method with a total sample of 33 participants. Caregiver bu

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Yousaf, Aiza, Hira Iqbal, Rabeea Zubair, Muhammad Kashif, Danish Hassan, and Rizwan Ahmed. "Factors associated with caregiver burden among caregivers of cerebral palsy children." Professional Medical Journal 27, no. 08 (2020): 1555–59. http://dx.doi.org/10.29309/tpmj/2020.27.08.3781.

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Cerebral palsy(CP) is the term for a group of brain disorders, caused by damage to parts of the developing brain that control muscle movement, balance, and posture before birth, during birth, or immediately after birth. Caregivers of children with CP often experience high levels of caregiving burden. Objectives: The aim of this study was to explore correlation of factors with the presence of burden on primary caregivers of CP children. Study Design: Cross-Sectional study. Setting: Department of Physiotherapy, Children Hospital, Lahore. Period: March 2017 to June 2017. Material & Methods: W

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Chou, Yueh-Ching, Li-yeh Fu, Li-Chan Lin, and Yue-Chune Lee. "Predictors of subjective and objective caregiving burden in older female caregivers of adults with intellectual disabilities." International Psychogeriatrics 23, no. 4 (2010): 562–72. http://dx.doi.org/10.1017/s1041610210001225.

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ABSTRACTBackground: Informal, unpaid, and lifelong older caregivers of adults with intellectual disabilities (ID) are usually female and most often are mothers of adults with ID. However, research exploring different predictors of subjective and objective burden among these older female caregivers is sparse. The objective of this study was to examine whether the subjective and objective burden as well as positive appraisals are predicted by the same or different variables linked to the caregivers and the adults with ID.Methods: Face-to-face interview questionnaires were administered in a city

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Krishnan, Shilpa, Haobin Tony Chen, Sarah Caston, and Seunghwa Rho. "Physical and Psychological Burden among Caregivers of Latinx Older Adults with Stroke and Multimorbidity." Ethnicity & Disease 33, no. 4 (2023): 156–62. http://dx.doi.org/10.18865/ed.33.4.156.

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Objective To investigate the association between Latinx older adults’ stroke, multimorbidity, and caregiver burden. Methods For this retrospective cohort study, we used the Hispanic Established Populations for the Epidemiologic Study of the Elderly (H-EPESE) Wave-7 data set. The caregiver’s physical burden was defined by using the Level of Burden Index. The caregiver’s psychological burden was measured by using the Perceived Stress Scale (PSS-4). Multimorbidity was defined as the presence of 3 or more chronic conditions. Results The average age of the Latinx adults was 86 years, and the caregi

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Braun, Michal, Mario Mikulincer, Anne Rydall, Andrew Walsh, and Gary Rodin. "Hidden Morbidity in Cancer: Spouse Caregivers." Journal of Clinical Oncology 25, no. 30 (2007): 4829–34. http://dx.doi.org/10.1200/jco.2006.10.0909.

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Purpose This study assesses psychological distress among advanced cancer patients and their spouse caregivers, while examining the relative contribution of caregiving burden and relational variables (attachment orientation and marital satisfaction) to depressive symptoms in the spouse caregivers. Methods A total of 101 patients with advanced GI or lung cancer and their spouse caregivers were recruited for the study. Measures included Beck Depression Inventory–II (BDI-II), Caregiving Burden scale, Experiences in Close Relationships scale, and ENRICH Marital Satisfaction scale. Results A total o

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Grivel, Charlotte, Pierre Nizet, Manon Martin, et al. "The experience of being a caregiver of patients with digestive cancer, from patients and caregivers’ perception: A mixed study." PLOS ONE 18, no. 7 (2023): e0287335. http://dx.doi.org/10.1371/journal.pone.0287335.

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Backgrounds Caregivers are essential in the care of a patient with digestive cancer. Considering their experience and needs is crucial. Objectives To explore the experience of caregivers of patients with digestive cancer and to compare the perspectives of patients and caregivers. Methods A mixed-methods study with a cross-sectional prospective and a comprehensive qualitative dimension was performed in a medical oncology unit in a French tertiary hospital. Dyads made of patients with digestive cancer and their caregiver were recruited. The Caregiver Reaction Assessment (CRA) and the Supportive

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Davis, Abigail Oluwadunni, Oladapo Michael Olagbegi, Kayode Orekoya, et al. "Burden and quality of life of informal caregivers of children with cerebral palsy." Rev Rene 22 (May 3, 2021): e61752. http://dx.doi.org/10.15253/2175-6783.20212261752.

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Objective: to analyze the caregiver burden and the quality of life of informal caregivers of children with cerebral palsy. Methods: the cross-sectional survey involved 109 caregivers of children with cerebral palsy recruited from physiotherapy clinic at a tertiary hospital. The quality of life and caregiver burden were assessed using the Personal Wellbeing Index Scale and the Modified Caregivers’ Strain Index, respectively. Data were analysed using descriptive and inferential statistics. Results: the mean strain index and quality of life scores of the participants were 11.85 ± 5.72 and 64.68 ±

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Novak, Mark, and Carol Guest. "Caregiver Response to Alzheimer's Disease." International Journal of Aging and Human Development 28, no. 1 (1989): 67–79. http://dx.doi.org/10.2190/4w02-hlmk-hamj-utqp.

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Research on Alzheimer's Disease caregivers has tried to find a link between 1) the length of time a caregiver has been giving care; or 2) the physical condition of the patient and the experiences and needs of the caregiver. This study found no significant correlation between length of time a caregiver had given care to a particular patient and the caregiver's subjective feelings of caregiver burden. It found a significant, moderate correlation between caregiver burden and the patient's functional ability. It found that caregivers' subjective feelings and needs best predict their feelings of bu

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Parker Oliver, Debra, George Demiris, Karla Washington, Robin L. Kruse, and Greg Petroski. "Hospice Family Caregiver Involvement in Care Plan Meetings: A Mixed-Methods Randomized Controlled Trial." American Journal of Hospice and Palliative Medicine® 34, no. 9 (2016): 849–59. http://dx.doi.org/10.1177/1049909116661816.

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Background and Objective: Untrained family caregivers struggle with complicated medical management regimens for hospice patients. An intervention was tested to improve caregiver’s perception of pain management and patient’s pain. Design, Setting, and Participants: The intervention was tested with a 2-group (usual care vs intervention) randomized controlled trial using parallel mixed-methods analysis of 446 caregivers in 3 Midwestern hospice programs representing rural and urban settings. Intervention: Web conferencing or telephones were used to connect caregivers with the hospice care team dur

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Chiari, Annalisa, Barbara Pistoresi, Chiara Galli, et al. "Determinants of Caregiver Burden in Early-Onset Dementia." Dementia and Geriatric Cognitive Disorders Extra 11, no. 2 (2021): 189–97. http://dx.doi.org/10.1159/000516585.

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<b><i>Introduction:</i></b> Caregivers of patients with early-onset dementia (EOD) experience high levels of burden, which is known to be affected by caregivers’ psychological features as well as by patients’ and caregivers’ demographical and social variables. Although potential clinical, demographical, and social determinants have been separately examined, it is not known how they reciprocally interact. <b><i>Methods:</i></b> Ninety-two consecutive patient-caregiver dyads were recruited from the Cognitive Neurology Clinics of Modena, Northern It

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Kim, Sun Kyung, Myonghwa Park, Yunhwan Lee, et al. "Influence of personality on depression, burden, and health-related quality of life in family caregivers of persons with dementia." International Psychogeriatrics 29, no. 2 (2016): 227–37. http://dx.doi.org/10.1017/s1041610216001770.

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ABSTRACTBackground:Personality may predispose family caregivers to experience caregiving differently in similar situations and influence the outcomes of caregiving. A limited body of research has examined the role of some personality traits for health-related quality of life (HRQoL) among family caregivers of persons with dementia (PWD) in relation to burden and depression.Methods:Data from a large clinic-based national study in South Korea, the Caregivers of Alzheimer's Disease Research (CARE), were analyzed (N = 476). Path analysis was performed to explore the association between family care

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Savitri, Wenny, and Suwarno. "Kualitas Hidup Family Caregiver Pasien Kanker dan Faktor-Faktor yang Mempengaruhinya." MEDIA ILMU KESEHATAN 11, no. 1 (2023): 46–55. http://dx.doi.org/10.30989/mik.v11i1.667.

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Background: The increase of cancer diagnosis in Indonesia needs special attention because cancer causes crisis not only in patient’s life but also to family caregivers. Studies depict that a family caregiver’s quality of life (QOL) influences patient’s. Therefore, it is necessary to pay special attention to the caregiver’s QOL to generate a holistic approach for cancer patients.Objective: This study aimed to portray family caregivers of cancer patients’ QOL and its associated factors.Methods: In this analytical crossectional study, 60 family caregivers of cancer patients were recruited. The Ca

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Woerpel, Allison J., Willie Winston, and Sonya S. Brady. "Stressful Life Circumstances, Resources for Support, and African American Children’s Psychological Symptoms." Journal of Black Psychology 43, no. 4 (2016): 327–44. http://dx.doi.org/10.1177/0095798416645717.

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This brief report examines African American children’s and caregivers’ exposure to stressors and perceived support in relation to children’s internalizing and externalizing symptoms. Forty-six children aged 8 to 12 years and their primary caregivers were recruited from an urban school in the Midwestern United States and interviewed separately. Adjusting for child’s age and gender, caregiver’s gender, and number of caregivers in the family, child-reported stressful life events were associated with child-reported internalizing and externalizing symptoms. When children reported greater support fr

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Meinertz, Naomi. "POWERFUL TOOLS FOR CAREGIVERS: THE ESTABLISHED BENEFITS OF A PERSON-CENTERED CARE INTERVENTION." Innovation in Aging 7, Supplement_1 (2023): 369–70. http://dx.doi.org/10.1093/geroni/igad104.1227.

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Abstract Family caregivers account for 89% of caregivers in the United States, yet few evidence-based family care programs focus specifically on the caregiver’s needs rather than the care receiver. The challenges that caregivers experience, such as increased depression symptoms and feelings of burden, impede their ability to fulfill their role as care partner and can lead to lasting health and financial issues. Intervention literature underscores the importance of using person-centered models to incite behavior change, yet many caregiver interventions do not address the caregiver’s needs and i

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Leung, D. Y. P. "13 Caregiving Burden and Unmet Support Needs in Chinese Caregivers and Cancer Patients." Age and Ageing 50, Supplement_1 (2021): i1—i6. http://dx.doi.org/10.1093/ageing/afab028.13.

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Abstract Introduction Cancer burden continues to rise globally and locally. Due to the shift of the cancer care from the hospital to the community, many cancer patients requiring needs in palliative care from their informal caregivers. Many caregivers often taking up the important roles and responsibilities but their own needs are largely neglected, and hence may induce caregiving burden. This study aims to explore the relationships of caregiving burden with unmet support needs in both cancer patients and their caregivers. Method A convenience sample of 280 patient-caregiver dyads was recruite

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Jutkowitz, Eric, Daniel Scerpella, Katherine Prioli, et al. "CHANGE IN DEMENTIA FAMILY CAREGIVERS’ WILLINGNESS TO PAY FOR A NONPHARMACOLOGIC INTERVENTION." Innovation in Aging 3, Supplement_1 (2019): S551. http://dx.doi.org/10.1093/geroni/igz038.2030.

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Abstract Family caregivers provide a majority of care for persons with dementia (PwD); however, little is known about caregiver’s willingness to pay (WTP) for an intervention to help them manage dementia symptoms. To fill this gap, caregiver/PwD dyads (n=223) were recruited to participate in a randomized trial evaluating tailored activities to minimize behavioral symptoms and functional decline. At baseline and 6-months caregivers were asked their WTP per session for the 8-session 3-month program compared to caregiver education/support only. At baseline, treatment caregivers were WTP $26.20, w

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de Rosa, Cristina, Ashleigh Holmes, Weijun Wang, and Yu-Ping Chang. "POSITIVE CAREGIVING AND CAREGIVING RELATIONSHIP ASSOCIATION WITH MENTAL HEALTH AND PERCEIVED GENERAL HEALTH." Innovation in Aging 6, Supplement_1 (2022): 542. http://dx.doi.org/10.1093/geroni/igac059.2057.

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Abstract Caregiver burden is well understood as an important contributor to caregiver health. However, little is known about how positive aspects of caregiving (i.e., personal growth, gratitude, finding meaning) and the quality of caregivers’ relationships with care recipients might play a role in caregiver health. The study aimed to examine whether positive caregiving and caregivers’ relationship with care recipients were associated with caregiver mental health (depression and anxiety) and perceived general health. The sample consisted of 2,652 family caregivers in the National Study of Careg

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Lambert, Paula. "Reducing Violence Risk." Home Healthcare Now 42, no. 6 (2024): 337–46. http://dx.doi.org/10.1097/nhh.0000000000001302.

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An expanding body of literature suggests that informal caregiver burden is a growing issue that negatively impacts care recipients, informal caregivers, and formal care providers. Costs associated with informal caregiver burden include risk to the informal caregiver's physical, emotional, and psychological well-being and increased potential to perpetrate violence. By identifying interventions to support informal caregivers, home healthcare nurses can help decrease the risk of negative outcomes and reduce the burden on informal caregivers. This paper examines home healthcare nurses' role in hel

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Kristina, Hana, The Maria Meiwati Widagdo, and Teguh Kristian Perdamaian. "STUDY CORRELATION BETWEEN BURDEN AND QUALITY OF LIFE OF DEPENDENT ELDERLY CAREGIVERS IN KLITREN, YOGYAKARTA." Journal of Widya Medika Junior 4, no. 1 (2022): 1. http://dx.doi.org/10.33508/jwmj.v4i1.3321.

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Introduction: Elderly with disability need caregiver’s assistance in their activities of daily living. The caregiver can experience burden during caring for dependent elderly. The burden can affect caregiver’s quality of life. Objectives: to measure and test the correlation between dependent elderly’s caregiver burden and quality of life in Klitren Kampong, Gondokusuman District, Yogyakarta Municipality. Materials and Methods: The subjects were primary informal caregivers aged ≥ 18 years with good cognitive functions who caring for the elders with ADL score <12. Respondents were selected us

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Reckrey, Jennifer, Deborah Watman, and Emma Tsui. "Whose Decision Is It? Perspectives on Agency Involvement in Determining Paid Caregivers' Roles in Dementia Care." Innovation in Aging 5, Supplement_1 (2021): 217. http://dx.doi.org/10.1093/geroni/igab046.836.

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Abstract Individuals living at home with dementia often rely on a team of caregivers and health care providers. Yet little is known about how the role of paid caregivers within this team is determined. We identified patients with moderate to severe dementia (n=9) and conducted individual interviews with their care teams (family caregiver, paid caregiver, physician) (n=27) to explore perspectives on paid caregiver roles. Participants disagreed on who determined the paid caregiver’s role. Agencies were perceived to set limitations on the scope of care (particularly by physicians) but agency care

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Currie, Janet M., Michele Mercer, Russ Michael, and Daniel Pichardo. "New Caregiver Diagnoses of Severe Depression and Child Asthma Controller Medication Adherence." International Journal of Environmental Research and Public Health 20, no. 11 (2023): 5986. http://dx.doi.org/10.3390/ijerph20115986.

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Background and Objectives: Children with asthma who have depressed caregivers are known to be less adherent to medication regimes. However, it is less clear how adherence responds to a caregiver’s new diagnosis of severe depression or whether there is a similar relationship with other serious caregiver diagnoses. The hypothesis is that adherence worsens both with new diagnoses of depression and possibly with new diagnoses of other serious conditions. Methods: This study follows a cohort of 341,444 continuously insured children with asthma before and after a caregiver’s new diagnosis of severe

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Joy, Jomon, Hussain Khan T. J., Pretty M. Abraham, and Sreedas Gopalakrishnan. "Burden and resilience in caregivers of patients on maintenance haemodialysis." International Journal of Research in Medical Sciences 7, no. 11 (2019): 4033. http://dx.doi.org/10.18203/2320-6012.ijrms20194586.

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Background: Chronic renal failure is one among the chronic illness which due to persistence of the disease has various effects on the physiological, psychological and functional ability of the patient and his family. Although haemodialysis has become a highly safe medical procedure that significantly extended life of such patients, it is nevertheless a stressful and lengthy treatment process. The task of personal life care for such patients falls primarily on the family members. The caregiver is expected to aid in patient’s daily life activities resulting in increased physical and emotional bu

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Kim, Yoonjoo. "The Impact of Depression on Quality of Life in Caregivers of Cancer Patients: A Moderated Mediation Model of Spousal Relationship and Caring Burden." Current Oncology 29, no. 11 (2022): 8093–102. http://dx.doi.org/10.3390/curroncol29110639.

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Family caregivers play an important role in managing and supporting cancer patients. Although depression in family caregivers is known to negatively affect caregiver health, the mechanism by which it affects caregivers is not clear. The purpose of this study was to explore the influence of depression on quality of life (QoL) in family caregivers of patients with cancer. Specifically, this study examined (1) whether caring burden mediates the relationship between depression and QoL, and (2) how this mediating effect varies depending on the caregiver’s relationship with the patient. This study p

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Li, Lun, and Yeonjung Lee. "Caregiving Choice and Caregiver-Receiver Relation: Effects on Psychological Well-being of Family Caregivers in Canada." Canadian Journal on Aging / La Revue canadienne du vieillissement 39, no. 4 (2020): 634–46. http://dx.doi.org/10.1017/s0714980819000825.

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ABSTRACTThe psychological well-being of family caregivers is influenced by their relations with care receivers, and whether they have choice in becoming a caregiver. Limited study has explored the interaction effect of caregiver-receiver relations and caregiving choice on caregivers’ psychological well-being. This study examines whether the caregiver’s perceived choice moderates the association between caregiver-receiver relation and psychological well-being. Using population-based data from the 2012 Canada General Social Survey – Caregiving and Care Receiving (n = 5,285), this study applies r

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Beverly, Alexis, Christina Baucco, Seho Park, et al. "THE RELATIONSHIP BETWEEN SOCIOECONOMIC DISADVANTAGE AND DEMENTIA CAREGIVER BURDEN." Innovation in Aging 6, Supplement_1 (2022): 769. http://dx.doi.org/10.1093/geroni/igac059.2786.

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Abstract More than 16 million people provide unpaid care to someone with Alzheimer’s disease or a related dementia (ADRD) in the United States. These caregivers frequently report experiencing psychological and physical burden. Prior research shows that socioeconomic disadvantaged neighborhoods have higher rates of ADRD, but little is known about caregiver burden. We hypothesized more socioeconomic disadvantage is associated with higher caregiver burden. We performed a secondary analysis using baseline data on dementia caregivers (n=132) enrolled in the Indiana University Telephone Acceptance a

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Ramasamy, Thendral, Surendran Veeraiah, and Kalpana Balakrishnan. "Psychosocial Issues Among Primary Caregivers of Patients with Advanced Head and Neck Cancer - A Mixed-method Study." Indian Journal of Palliative Care 27 (November 25, 2021): 503–12. http://dx.doi.org/10.25259/ijpc_76_21.

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Objectives: This study aims to explore the psychosocial issues faced by the primary caregivers of advanced head and neck cancer patients with the primary objective to understand their experiences within social context. Materials and Methods: Burden and QOL of caregivers (n = 15) were quantified using Zarit Burden Interview schedule and caregiver quality of life index-cancer (CQOLC), respectively. Primary caregivers (n = 10) were interviewed using semi-structured interview schedule. Thematic analysis was employed to analyse the qualitative data. Descriptive statistics was used for quantitative

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Putri, Yossie Susanti Eka, I. Gusti Ngurah Edi Putra, Annida Falahaini, and Ice Yulia Wardani. "Factors Associated with Caregiver Burden in Caregivers of Older Patients with Dementia in Indonesia." International Journal of Environmental Research and Public Health 19, no. 19 (2022): 12437. http://dx.doi.org/10.3390/ijerph191912437.

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This cross-sectional study aimed to identify caregiver burden and its determinants in the informal caregivers of older patients with dementia (PWDs) aged ≥ 60 years in Java, Indonesia. Data were collected from 207 caregivers of older PWDs using self-administered questionnaires. The dependent variable was caregiver subjective burden, assessed using the Zarit Burden Interview (ZBI). The independent variables included the socio-demographic characteristics of PWDs and caregivers, the caregiver’s perceived social support, and the behavioural and psychological symptoms of dementia (BPSD). Linear reg

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Jiang, Hantao, and Xueqing Wang. "HEALTHY CAREGIVER SELECTION AMONG DEMENTIA CAREGIVERS: THE ROLE OF SOCIAL SUPPORT." Innovation in Aging 6, Supplement_1 (2022): 872–73. http://dx.doi.org/10.1093/geroni/igac059.3117.

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Abstract As of 2019, more than 4 million older adults aged 65+ in the United States are cognitively impaired, including the diagnoses of mild cognitive impairment (MCI) and dementia. Caregivers to these older adults bear significant burden, reflected as high prevalence of chronic stress and mental health problems among the caregiver population. It is thus crucial to understand the wellbeing of the caregiver population to design effective policies. Previous studies have documented survival advantage of dementia caregivers compared to non-caregiving individuals as well as other types of caregive

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Kulkarni, Shubham S., Chaitanya Patil, Yogesh S. Anap, Prasad K. Tanawade, Parag J. Watve, and Aditya S. Pawar. "Quality of Life of Primary Caregivers Attending a Rural Cancer Centre in Western Maharashtra: A Cross-Sectional Study." Indian Journal of Medical and Paediatric Oncology 42, no. 03 (2021): 268–72. http://dx.doi.org/10.1055/s-0041-1735664.

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Abstract Introduction Caregiver plays a vital role in taking good care of a cancer patient. But often, the caregiver’s quality of life (QOL) is overlooked. Objectives This study aimed to understand the Caregiver QOL Index—Cancer (CQOL-C) score of the primary caregivers and to find the significant predictors affecting CQOL-C. Materials and Methods A cross-sectional study was conducted among the caregivers attending a rural cancer center in western Maharashtra. The primary caregiver is an immediate relative who assists the patient in most routine activities and is not a professional caregiver. A

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Hu, Mengyao, Dena Schulman-Green, Emma Zang, and Bei Wu. "POSITIVE ASPECTS OF CAREGIVING IN DIFFERENT CAREGIVER GROUPS." Innovation in Aging 6, Supplement_1 (2022): 66–67. http://dx.doi.org/10.1093/geroni/igac059.264.

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Abstract Previous studies have disproportionately focused on caregivers’ negative experiences while overlooking the positive aspects of caregiving (e.g., quality of caregiver – care recipient relationship, meaningfulness of caregiving, and family cohesiveness) especially for caregivers of older adults with cognitive impairment. Therefore, we aim to identify how positive aspects of caregiving varied by care recipients’ cognitive status (e.g., normal, mild cognitive impairment, dementia) and caregivers’ relation to care recipients (e.g., spouse, adult child, other family member). We applied mult

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Ruisoto, Pablo, Marina Ramírez, Belén Paladines-Costa, Silvia Vaca, and Vicente Javier Clemente-Suárez. "Predicting Caregiver Burden in Informal Caregivers for the Elderly in Ecuador." International Journal of Environmental Research and Public Health 17, no. 19 (2020): 7338. http://dx.doi.org/10.3390/ijerph17197338.

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Informal caregivers are the main providers of care for the elderly. The aim of this study is to examine the predictive value of different variables regarding caregivers and their elderly patients with respect to the caregiver’s burden. A convenience sample of 688 informal caregivers and 688 elderly people from Ecuador was surveyed. Only households with one caregiver and one elderly person were considered for the study. For informal caregivers, the following standardized measures were obtained: burden (Zarit Burden Interview), neuroticism (Eysenck Personality Questionnaire Revised-Abbreviated,

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Gallanis, Tony. "THE EFFECT OF ACTIVITIES OF DAILY LIVING ON FAMILY CAREGIVER SOCIAL ISOLATION." Innovation in Aging 3, Supplement_1 (2019): S899. http://dx.doi.org/10.1093/geroni/igz038.3286.

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Abstract Social isolation has been shown to associate with negative health outcomes including depression and stress. For family caregivers of older adults, the demands on the caregiver often are associated with increasing feelings of loneliness and decreased social contact. The degree to which the caregiver’s social isolation is related to the complexity of the caregiving situation remains unknown. Through a cross-sectional analysis of 526 family caregivers from the Family Caregiver Alliance client record database, an association has been established between care recipient functional decline a

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Zuo, Yan, Bi-Ru Luo, Wen-Tao Peng, Xin-Ru Liu, Ya-Lin He, and Jian-Jun Zhang. "Informal caregiver burden and influencing factors in gynaecological oncology patients hospitalized for chemotherapy: a cross-sectional study." Journal of International Medical Research 48, no. 11 (2020): 030006052097492. http://dx.doi.org/10.1177/0300060520974927.

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Objective To determine the level and influencing factors of informal caregiver burden in gynaecological oncology inpatients receiving chemotherapy. Methods This cross-sectional study enrolled gynaecological oncology patients and their informal caregivers between May 2018 and November 2018 and measured the caregivers’ burden using the Caregiver Burden Inventory. The influencing factors were evaluated with univariate regression analysis and multivariate linear stepwise regression analysis. Results A total of 138 patients and their informal caregivers completed the questionnaire. The mean ± SD to

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Lee, Cecilia, Jessica Brian, Yona Lunsky, et al. "17 Caregiver Mental Health Needs in Caregiver-Mediated Early Intervention." Paediatrics & Child Health 28, Supplement_1 (2023): e7-e8. http://dx.doi.org/10.1093/pch/pxad055.017.

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Abstract Background Caregivers of autistic children face high levels of stress and are at risk of developing mental health disorders. Caregivers participating in caregiver-mediated early interventions (CMIs), such as the Social ABCs, where they provide the intervention to their young child, juggle many responsibilities to their child and family, leaving self-care as the last priority. Caregivers may not seek mental health support, though interventions for caregiver stress, such as acceptance and commitment therapy (ACT), exist. This study represents the first step in addressing the gap in ment

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Yu, Hua, Li Wu, Shu Chen, Qing Wu, Yuan Yang, and Helen Edwards. "Caregiving burden and gain among adult-child caregivers caring for parents with dementia in China: the partial mediating role of reciprocal filial piety." International Psychogeriatrics 28, no. 11 (2016): 1845–55. http://dx.doi.org/10.1017/s1041610216000685.

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ABSTRACTBackground:The majority of the family caregivers are adult children in China. The aim of this study was to examine the mediating role of reciprocal filial piety (RFP) between the care recipient's behavioral and psychological symptoms of dementia (BPSD) and the caregiver's burden or gain among adult-child caregivers caring for parents with dementia in China.Methods:Using Kramer's caregiver adaptation model as the research framework, a cross-sectional survey collected data from 401 adult-child caregivers caring for parents with dementia from hospitals in China.Results:Results of the regr

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Opara, Józef, and W. Brola. "Quality of Life and Burden in caregivers of Multiple Sclerosis patients." Physiotherapy and Health Activity 25, no. 1 (2018): 9–16. http://dx.doi.org/10.1515/pha-2017-0002.

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Abstract Multiple sclerosis (MS) is one of the most disabling disorders of the central nervous system. Caregivers of individuals with MS may experience unique caregiver strain due to the age at onset and progressive nature of the disease. Additionally, because MS is more prevalent in women, men often become spousal caregivers. This places women in the position of being care recipients rather than caregivers. Some results also supported hypothesis that female caregivers reported a higher need for emotional support than male caregivers. As with female caregivers, decreased emotional support pred

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Andruccioli, Jessica, Maria Maffia Russo, Angela Bruschi, et al. "Death Representation of Caregivers in Hospice." American Journal of Hospice and Palliative Medicine® 29, no. 7 (2012): 531–35. http://dx.doi.org/10.1177/1049909111432623.

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In this study, we investigated caregiver’s death representation in hospice. The results presented here are a further analysis of the data collected in our previous study, concerning the evaluation of the caregiver in hospice. The data analysis of 24 caregivers of patients hospitalized in Rimini Hospice (Italy) underlined that caregivers avoiding death representation of the patient admitted to hospice had fewer protective factors (52.3%) and more risk factors (47.7%) than caregivers nonavoiding (66.5% and 33.5%, respectively). Caregivers avoiding death representation, moreover, experienced a gr

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Williams, Anna-Leila, and Ruth McCorkle. "Cancer family caregivers during the palliative, hospice, and bereavement phases: A review of the descriptive psychosocial literature." Palliative and Supportive Care 9, no. 3 (2011): 315–25. http://dx.doi.org/10.1017/s1478951511000265.

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AbstractObjective:Because caregiving to an adult with cancer is a dynamic process, a caregiver's perceived burden and psychosocial concerns may be different at different phases of the patient's disease. There is evidence of escalation in caregiver anxiety, depression, and psychological distress as the patient's functional status declines and as the patient nears death. The purpose of this review was to organize the literature in a meaningful way that can potentially capture the unique needs of caregivers to patients receiving palliative and/or hospice care, and caregivers who are in the post-d

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Bjørge, Heidi, Kari Kvaal, Milada Cvancarova Småstuen, and Ingun Ulstein. "Relationship Quality and Distress in Caregivers of Persons With Dementia: A Cross-Sectional Study." American Journal of Alzheimer's Disease & Other Dementiasr 32, no. 3 (2017): 157–65. http://dx.doi.org/10.1177/1533317517691121.

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This cross-sectional study aimed to investigate the relationship between caregivers and care receivers, defined as home-dwelling family members with dementia. We used a self-rating questionnaire, the Felt Expressed Emotion Rating Scale (FEERS; 6 simple questions), to measure caregiver perceptions of the care receiver’s criticisms (CCs) and emotional overinvolvement (EOI) toward the caregiver. We performed factor analyses to rank single items on the FEERS pertaining to CC and EOI. We included 208 caregiver/care receiver pairs. Logistic regression analyses tested associations between FEERS items

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Lerdal, Anners, Caryl L. Gay, Elisabeth Saghaug, et al. "Sleep in family caregivers of patients admitted to hospice: A pilot study." Palliative and Supportive Care 12, no. 6 (2013): 439–44. http://dx.doi.org/10.1017/s1478951513000357.

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AbstractObjectives:Caring for a dying family member is known to interfere with sleep, yet little is known about caregiver sleep once the patient is admitted to hospice. The aim of this pilot study was to describe the sleep of partners and other family caregivers of patients in hospice.Methods:The pilot study used a cross-sectional, descriptive, and comparative design. Participants included the primary family caregivers of patients recently admitted to a hospice in Norway. Caregiver sleep during the prior month was measured with the Pittsburgh Sleep Quality Index (PSQI). During the patient's ho

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Alberts, Nicole M., Heather D. Hadjistavropoulos, Nicole E. Pugh, and Shannon L. Jones. "Dementia anxiety among older adult caregivers: an exploratory study of older adult caregivers in Canada." International Psychogeriatrics 23, no. 6 (2011): 880–86. http://dx.doi.org/10.1017/s1041610211000299.

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ABSTRACTBackground: Although caring for individuals with dementia is known to result in increased burden and depression among caregivers, little research has investigated caregiver's anxiety or concern about eventually developing dementia themselves (i.e. dementia anxiety). Existing research reports mixed findings regarding variables (e.g. relationship to care recipient, sex, education) that predict dementia anxiety among caregivers and non-caregivers. Potential relationships among burden, depression and dementia anxiety have not been extensively examined. The present study explored caregiver

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Jütten, Linda Helena, Ruth Elaine Mark, Ben Wilhelmus Jacobus Maria Janssen, Jan Rietsema, Rose-Marie Dröes, and Margriet Maria Sitskoorn. "Testing the effectivity of the mixed virtual reality training Into D’mentia for informal caregivers of people with dementia: protocol for a longitudinal, quasi-experimental study." BMJ Open 7, no. 8 (2017): e015702. http://dx.doi.org/10.1136/bmjopen-2016-015702.

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IntroductionInformal caregivers for people with dementia (hereafter: caregivers) often feel (over)burdened by the care for a loved one with dementia, and this can have various deleterious effects on both caregivers and patients. Support for caregivers is urgently needed, and for this reason, a dementia simulator (Into D’mentia) was developed in which caregivers experience what it is like to have dementia. The simulator attempts to heighten caregivers’ empathy and understanding for the patient and, in turn, diminish their own caregiver burden. The current study evaluates whether the simulator i

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Selin, Jennifer, Mary Schmitt, and Margaret Hill. "Caregivers' Perceptions of Their Child's Language Disorder: Alignment between Caregivers and Speech–Language Pathologists." Seminars in Speech and Language 39, no. 05 (2018): 427–42. http://dx.doi.org/10.1055/s-0038-1670671.

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AbstractCaregivers' perceptions regarding their child's language disorder may influence caregivers' involvement in therapy as well as daily home interactions, thus impacting developmental outcomes. However, little is known about the alignment between caregivers' perceptions of their child's language disorder and those of speech–language pathologists (SLPs), nor of factors that might relate to alignment between caregivers and SLPs. This study addressed three aims: (1) to characterize caregivers' perceptions regarding children's quality of communicative interactions, competence in communicative

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Sawyer, Jean, Colleen Matteson, Hua Ou, and Takahisa Nagase. "The Effects of Parent-Focused Slow Relaxed Speech Intervention on Articulation Rate, Response Time Latency, and Fluency in Preschool Children Who Stutter." Journal of Speech, Language, and Hearing Research 60, no. 4 (2017): 794–809. http://dx.doi.org/10.1044/2016_jslhr-s-16-0002.

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Purpose This study investigated the effects of an intervention to reduce caregivers' articulation rates with children who stutter on (a) disfluency, (b) caregiver and child's articulation rates, and (c) caregiver and child's response time latency (RTL). Method Seventeen caregivers and their preschool children who stuttered participated in a group study of treatment outcomes. One speech sample was collected as a baseline, and 2 samples were collected after treatment. Posttreatment samples were of caregivers speaking as they typically would and using reduced articulation rates. Results Caregiver

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Meriggi, Fausto, Federica Andreis, Veronica Premi, et al. "Assessing cancer caregivers' needs for an early targeted psychosocial support project: The experience of the oncology department of the Poliambulanza Foundation." Palliative and Supportive Care 13, no. 4 (2014): 865–73. http://dx.doi.org/10.1017/s1478951514000753.

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AbstractObjective:Caregivers play a key role in the management of patients with cancer. However, some studies have suggested that caregivers have even more unmet needs than the patients.Method:To better identify the needs and changes in the lifestyles of the caregivers in our practice and to plan a targeted support project to decrease caregiver burden, we administered the Caregiver's QoL Index–Cancer (CQoLC) to 200 consecutive caregivers. This questionnaire assesses psychological well-being, the relationship with healthcare professionals, administration of finances, lifestyle disruption, and p

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Pooyania, Sepideh, Michelle Lobchuk, Wanda Chernomas, and Ruth Ann Marrie. "Examining the Relationship Between Family Caregivers' Emotional States and Ability to Empathize with Patients with Multiple Sclerosis." International Journal of MS Care 18, no. 3 (2016): 122–28. http://dx.doi.org/10.7224/1537-2073.2015-023.

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Background: Multiple sclerosis (MS) is the most common nontraumatic cause of disability affecting young adults in Canada. Caregivers of patients with MS are highly psychologically burdened. Empathy and helping behaviors are hallmarks of quality care, but when they are challenged, suboptimal patient care can result. We aimed to evaluate the prevalence of negative emotional states among primary caregivers of people with MS; the association between the caregiver's empathy-related behavior and the physical and cognitive impairment of the person with MS; and the association between the caregiver's

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