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Journal articles on the topic 'Carers'

Author: Grafiati

Published: 4 June 2021

Last updated: 25 July 2025

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1

Mitchell, Eileen. "Managing Carer Stress: An Evaluation of a Stress Management Programme for Carers of People with Dementia." British Journal of Occupational Therapy 63, no. 4 (2000): 179–84. http://dx.doi.org/10.1177/030802260006300407.

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This article examines the effect of carer stress management using the Carers' Checklist (Hodgson et al 1998) as a measure of outcome. Pre-course and post-course questionnaires were used with carers, identified by health and social services professionals, who agreed to attend a structured stress management course. Seven out of the 10 identified carers, who resided in the West Dorset area, participated. Only one carer's wife was a resident in a nursing home; the others were caring actively at home. The main measures of outcome were the burden of care, including social, financial and physical dem

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2

Elshafei, Ahmed, Martina Heisig, and Amanda Fuller. "Carer Engagement and Support in North and West Kent Rehabilitation Services." BJPsych Open 10, S1 (2024): S229—S230. http://dx.doi.org/10.1192/bjo.2024.562.

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AimsTo compare current practice in local Rehabilitation in audit across North and West Rehab Kent units against standards of ‘Triangle of Care’.Standard 1.3:Carer's views and knowledge are sought throughout the assessment and treatment process.Standard 5.2:An early formal appointment is offered to the carer to hear their story, and history and address the carer's concerns.Standard 5.10:The carer is involved in the discharge planning process.A previous audit was conducted in 2019 using Triangle of Care and AIMS standards. We decided to see whether the standards have been upheld.MethodsWe includ

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Court, Susan S. "10 ’Thinking about you and your loved one’: session developed to support mnd carers in wales as part of the marie curie caring for carers initiative in wales." BMJ Supportive & Palliative Care 7, no. 3 (2017): A350.2—A351. http://dx.doi.org/10.1136/bmjspcare-2017-001407.10.

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IntroductionSessions were designed around the practical information and emotional support needs of carers looking after relatives or friends living with MND.More than half (56%) of MND carers spend more than 100 hours every week on their caring role.1Aim and methodTo provide tailored support, information and advice, leading to clear improvements in well-being for carers.Our approach was to provide a safe, supportive environment to enable carers to learn and develop useful coping strategies for their futures.Experienced facilitation allowed conversations the space to emerge and voices to be hea

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Julieta, Camino, Khondoker Mizanur, Kishita Naoko, and Mioshi Eneida. "537 - Reported and observed task performance in dementia and the role of the carer management style." International Psychogeriatrics 33, S1 (2021): 81. http://dx.doi.org/10.1017/s1041610221002325.

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Background:Consistency between carers’ report of the people with dementia’s (PwD) performance of activities of daily living (ADLs) and observed performance has been an important topic in the literature, but most studies have investigated whether carer’s burden and depression affect this report.Objectives:To (1) investigate if carer’s report of PwD’s performance of ADLs is consistent with PwD’s observed performance; and to (2) evaluate if carer management style has an effect on this discrepancy.Methods:Sixty-four PwD completed a performance-based ADL assessment (Assessment of Motor and Process

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Fitzgerald, Leslie R., Michael Bauer, Susan H. Koch, and Susan J. King. "Hospital discharge: recommendations for performance improvement for family carers of people with dementia." Australian Health Review 35, no. 3 (2011): 364. http://dx.doi.org/10.1071/ah09811.

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Background. It is acknowledge that discharge planning benefits both consumers and hospitals. What is not widely understood is the experience that the family carer of a person with a dementia has and whether the hospitals meet their in-hospital and post-hospital needs. Objective. To explore whether metropolitan and rural hospital discharge practices meet the needs of the family carer of a person with dementia. Results. Although this and other research indicates that a continuum of care model is beneficial to family caregivers, no evidence has been identified that family carers currently experie

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Berk, Lesley, and Michael Berk. "Who cares about carers?" Australian & New Zealand Journal of Psychiatry 49, no. 10 (2015): 936–37. http://dx.doi.org/10.1177/0004867415605621.

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7

Pring, Tim. "Who cares for carers?" Aphasiology 13, no. 12 (1999): 914–17. http://dx.doi.org/10.1080/026870399401687.

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McConachy, Diana, and Karalyn McDonald. "Issues for Primary, Informal, Home-based Carers of People Living with AIDS." Australian Journal of Primary Health 5, no. 1 (1999): 30. http://dx.doi.org/10.1071/py99004.

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Central to the Australian national strategic response to HIV/AIDS is the need for training and support for volunteer carers of people with HIV/AIDS. However, the role of primary, informal, home-based carers of people with AIDS (PWA) is not clearly defined and the research about carers undertaken in Australia has not specifically looked at this group. The aim of the study described was to examine the experiences of primary, home-based carers of people with AIDS in order to inform policy and program development. Data were collected from 47 carers in New South Wales and Victoria between August an

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van Haeften-van Dijk, A. Marijke, Franka J. M. Meiland, Bart J. J. Hattink, Ton J. E. M. Bakker, and Rose-Marie Dröes. "Community day care with carer support versus usual nursing home-based day care: effects on needs, behavior, mood, and quality of life of people with dementia." International Psychogeriatrics 28, no. 4 (2015): 631–45. http://dx.doi.org/10.1017/s1041610215001921.

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ABSTRACTBackground:Several studies have shown that the combined community-based Meeting Centres Support Programme (MCSP) for people with mild to moderate dementia and their carers were more effective in reducing behavior and mood problems of people with dementia than traditional nursing home-based (NH) day care. We therefore investigated in this study whether community-based (CO) psychogeriatric day care for people with mild to severe dementia combined with carer support (in accordance with the MCSP), is more effective than regular NH day care.Methods:A pre-test–post-test control group design

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Merchant, E., S. Abdelaziz, B. D. Franklin, D. Tetteh, and S. Garfield. "461 Developing a Carer-Led Intervention Supporting older people and their carers with Medicines Management through pathways of care using interviews: a qualitative service evaluation." International Journal of Pharmacy Practice 31, Supplement_1 (2023): i17—i18. http://dx.doi.org/10.1093/ijpp/riad021.019.

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Abstract Introduction Previous studies have shown that informal carers involved in assisting with patients’ medicines have considerable knowledge about patients’ usual medication management (1). This could be helpful for healthcare professionals (HCPs) in secondary care caring for such patients and facilitate their safe discharge. However, carer involvement is often lost during patients’ hospital admissions, as carers report feeling excluded from decisions surrounding patients’ medicines management (2). Aim To assess the opinions of HCPs, patients and carers on strategies in place for HCPs to

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Ewing, Gail, and Gunn Grande. "51 How do family carers feature in end of life care policy? scoping review and narrative summary of uk national policy/guidelines on implementing carer assessment and support." BMJ Supportive & Palliative Care 8, no. 3 (2018): 379.1–379. http://dx.doi.org/10.1136/bmjspcare-2018-mariecurie.51.

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BackgroundThe ethos of end-of-life-care (EOLC) embraces both carers and patients. For over a decade UK healthcare policy has acknowledged that carers’ needs should be assessed and addressed in EOLC.AimTo review national policy/guidelines on carers and EOLC examine how policy addresses carer assessment/support and its implementation in practice.MethodsScoping review through searches of public body websites (e.g., Department of Health and NICE); provider organisations (e.g., National Council for Palliative Care Hospice UK) and charities (e.g., Carers UK Carers Trust) personal sources (researcher

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Graham, Candida R., Sube Banerjee, and Randeep S. Gill. "Using postal questionnaires to identify carer depression prior to initial patient contact." Psychiatric Bulletin 33, no. 5 (2009): 169–71. http://dx.doi.org/10.1192/pb.bp.108.020982.

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Aims and MethodTo assess whether postal questionnaires, used as a local initiative, were useful in identifying carer depression allowing early support for community-dwelling carers of older adults with mental health needs. the Geriatric Depression Scale and a questionnaire collecting information on the carer's circumstances were sent to carers of consecutive patients routinely referred to a community mental health team for older adults in south London. Rates of carer depression between postal questionnaire responders and non-responders were compared.ResultsThe response rate to the postal quest

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de Andrés-Jiménez, Elena, Rosa Mª Limiñana-Gras, and Encarna Fernández-Ros. "Personality and Dementia: an Approach to Differential Profile of the Caregiver." European Journal of Investigation in Health, Psychology and Education 1, no. 3 (2011): 85–94. http://dx.doi.org/10.1989/ejihpe.v1i3.7.

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The aim of this study is to determine the existence of a characteristic personality profile of family carers of people with dementia. The correct knowledge and use of psychological variables which affect the carer, helps to promote appropriate actions to mitigate the impact of care and improve the carer’s quality of life and likewise the one of the person cared for. The study population consists of 69 family carers of people with dementia, members of various associations and care centers. The results allow us to identify a characteristic personality profile for these carers and it reveals a sp

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de Andrés-Jiménez, Elena, Rosa Mª Limiñana-Gras, and Encarna Fernández-Ros. "Personality and Dementia: an Approach to Differential Profile of the Caregiver." European Journal of Investigation in Health, Psychology and Education 1, no. 3 (2011): 85–94. http://dx.doi.org/10.3390/ejihpe1030007.

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The aim of this study is to determine the existence of a characteristic personality profile of family carers of people with dementia. The correct knowledge and use of psychological variables which affect the carer, helps to promote appropriate actions to mitigate the impact of care and improve the carer’s quality of life and likewise the one of the person cared for. The study population consists of 69 family carers of people with dementia, members of various associations and care centers. The results allow us to identify a characteristic personality profile for these carers and it reveals a sp

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Sunny Blaney, Peter, Oladayo Bifarin, Mikolaj Zarzycki, Pooja Saini, and Rosanna Cousins. "Exploring the Intersection Between Informal Carers’ Experiences, Digital Poverty and Poor Socioeconomic Status, Protocol." BJPsych Open 11, S1 (2025): S24. https://doi.org/10.1192/bjo.2025.10201.

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Aims: In 2021–2022, 10.5% of UK citizens provided unpaid informal care, saving the government £162 bn annually. Many carers reside in high-deprivation areas, where access to appropriate health and social care services is limited. Previous studies indicate that carers are more prone to depression, anxiety, and physical symptoms, and these negative outcomes are higher among socio-economically disadvantaged carers. The shift of some health and social care services online, combined with ‘digital poverty’ (having no suitable electronic devices with Internet access or limited access or skills concer

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Mowforth, Oliver Daniel, Benjamin Marshall Davies, and Mark Reinhard Kotter. "Quality of Life Among Informal Caregivers of Patients With Degenerative Cervical Myelopathy: Cross-Sectional Questionnaire Study." Interactive Journal of Medical Research 8, no. 4 (2019): e12381. http://dx.doi.org/10.2196/12381.

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Background Degenerative cervical myelopathy (DCM) is a common, chronic neurological condition that severely affects individuals by causing a range of disabling symptoms, frequently at a time around the peak of their careers. Subsequently, individuals with DCM often become dependent on informal care arrangements. The significant economic contribution of informal care and its burden on care providers are becoming increasingly recognized. Objective This study aimed to measure the quality of life of DCM informal caregivers and provide preliminary insight into possible contributing factors. Methods

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Barber, Chris. "Informal carers: their roles and support needs." British Journal of Healthcare Assistants 17, no. 9 (2023): 333–37. http://dx.doi.org/10.12968/bjha.2023.17.9.333.

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This series will explore the several aspects of informal carers, including their roles, definitions and lived experiences, as well as the legal and Government strategies regarding informal caring as a practice. It will also explore the role of the nurse, nursing associate (NA) and healthcare assistant (HCA) in supporting the informal carer. This third article will briefly explore the experiences and support needs of five specific informal carer sub-groups: young carers; older carers; BAME carers; male carers; and disabled carers.

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Kirtley, Jenna, John Chiocchi, Jon Cole, and Mark Sampson. "Stigma, Emotion Appraisal, and the Family Environment as Predictors of Carer Burden for Relatives of Individuals Who Meet the Diagnostic Criteria for Borderline Personality Disorder." Journal of Personality Disorders 33, no. 4 (2019): 497–514. http://dx.doi.org/10.1521/pedi_2018_32_355.

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There is some research exploring carers’ experiences within the National Health Service in the UK, but only one has focused on carers of individuals with borderline personality disorder (BPD). Ninety-eight carers completed a questionnaire-based study; 57 carers of individuals who meet the diagnostic criteria for BPD were compared to 41 carers of individuals with other mental health problems. The study aimed to investigate whether perceived stigma, perceived threat of strong emotions, and expressed emotion (EE) within the family environment predicted carer burden. The results showed that carers

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Bell, Lorraine, Kate Anderson, Afaf Girgis, et al. "“We Have to Be Strong Ourselves”: Exploring the Support Needs of Informal Carers of Aboriginal and Torres Strait Islander People with Cancer." International Journal of Environmental Research and Public Health 18, no. 14 (2021): 7281. http://dx.doi.org/10.3390/ijerph18147281.

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Informal carers provide an important role in supporting people with cancer. Aboriginal and Torres Strait Islander peoples experience higher cancer mortality than other Australians. To date, very little is known about the support needs of carers of Aboriginal and Torres Strait Islander adults with cancer. This article explored these needs through a qualitative study. Twenty-two semi-structured qualitative interviews and one focus group were conducted with carers of Aboriginal and Torres Strait Islander adults with cancer (n = 12) and Aboriginal and Torres Strait Islander cancer survivors (n = 1

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Poon, A. W. C., C. Harvey, A. Mackinnon, and L. Joubert. "A longitudinal population-based study of carers of people with psychosis." Epidemiology and Psychiatric Sciences 26, no. 3 (2016): 265–75. http://dx.doi.org/10.1017/s2045796015001195.

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Aims.Few studies have examined the experiences of carers of people with psychosis using a representative sample. Aiming to obtain generalisable results concerning carers in the context of increased emphasis on involving carers in Australian mental health service delivery and policy frameworks, this study recruited carers within the second Australian national survey of psychotic disorders (Survey of High Impact Psychosis, SHIP). Given that most SHIP participants had long-term illness and extended relationships with carers, the health and wellbeing of carers as a group were expected to be relati

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Davies, Andrew, Jennifer Todd, Fiona Bailey, Amanda Gregory, and Melanie Waghorn. "Good concordance between patients and their non-professional carers about factors associated with a ‘good death’ and other important end-of-life decisions." BMJ Supportive & Palliative Care 9, no. 3 (2016): 340–45. http://dx.doi.org/10.1136/bmjspcare-2015-001085.

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ObjectivesThe aim of this study was to investigate concordance between patients and non-professional carers about factors associated with a ‘good death’ and other end-of-life decisions.MethodsPatients completed a questionnaire about end-of-life care issues, and were asked to rank the importance of factors linked to a ‘good death’. Carers also completed a questionnaire about end-of-life care issues relating to the patient, and whether or not they agreed with those choices (ie, medical treatments, PPD). Carers were also asked to rank the importance of factors linked to a ‘good death’ to the pati

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Ewing, Gail, Sarah Croke, Christine Rowland, and Gunn Grande. "14 Enabling tailored and coordinated support for family carers of people with motor neurone disease through adaptation of a carer support needs assessment tool (CSNAT) intervention." BMJ Supportive & Palliative Care 8, no. 3 (2018): 365.1–365. http://dx.doi.org/10.1136/bmjspcare-2018-mariecurie.14.

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IntroductionFamily carers provide vital support for people with Motor Neurone Disease (MND) but caregiving can be very physically and mentally demanding. It is therefore crucial to ensure healthcare practitioners (HCPs) can provide timely support to carers fitting their individual needs. Currently there are no UK interventions for this.AimTo adapt an existing carer support needs assessment tool (CSNAT) intervention to support the needs and situation of family carers of people with MND.MethodsStages:Focus groups and interviews with 33 carers (14 bereaved 19 current carers) to capture support ne

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Larkin, Mary, and Alisoun Milne. "Carers and Empowerment in the UK: A Critical Reflection." Social Policy and Society 13, no. 1 (2013): 25–38. http://dx.doi.org/10.1017/s1474746413000262.

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This article provides a critical reflection on carer empowerment in the UK, an issue which has received limited attention in policy and research. The arena is characterised by considerable conceptual confusion around key terminology, carer, care and caring, and by limited understanding of the meaning and outcomes of carer empowerment. Despite increased national acknowledgment of carers, a politically active carers' movement and a number of policies intended to enhance the recognition and rights of carers, many carers remain invisible and receive little support from services, to the detriment o

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Braham, Meg, and Mary Banks. "Who cares for the carers?" Nursing Standard 2, no. 31 (1988): 13. http://dx.doi.org/10.7748/ns.2.31.13.s55.

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Armon, Carmel. "Who cares for the carers?" Amyotrophic Lateral Sclerosis 7, no. 3 (2006): 131. http://dx.doi.org/10.1080/14660820600600384.

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Kelly, Mike. "WHO CARES…………FOR THE CARERS?" Journal of Renal Care 36, no. 1 (2010): 16–20. http://dx.doi.org/10.1111/j.1755-6686.2010.00139.x.

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Williams, Tracey. "Who cares for the carers?" Journal of Perioperative Practice 29, no. 7-8 (2019): 195. http://dx.doi.org/10.1177/1750458919858862.

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D'Cruz, L. "Who cares for the carers?" British Dental Journal 207, no. 1 (2009): 11–12. http://dx.doi.org/10.1038/sj.bdj.2009.557.

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Sturge, C., A. Frank, and T. Coster. "Who cares for young carers?" BMJ 308, no. 6942 (1994): 1510–11. http://dx.doi.org/10.1136/bmj.308.6942.1510b.

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Travis, M. J., and T. Bruce. "Who cares for young carers?" BMJ 309, no. 6950 (1994): 341. http://dx.doi.org/10.1136/bmj.309.6950.341a.

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Jenkins, S., and C. Wingate. "Who cares for young carers?" BMJ 308, no. 6931 (1994): 733–34. http://dx.doi.org/10.1136/bmj.308.6931.733.

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Pilkington, Paulina. "Who Cares for the Carers?" Journal of Advanced Nursing 18, no. 12 (1993): 1855–56. http://dx.doi.org/10.1046/j.1365-2648.1993.18121855.x.

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Fuller, Alice. "Who cares for the carers?" British Journal of Neuroscience Nursing 8, no. 5 (2012): 311. http://dx.doi.org/10.12968/bjnn.2012.8.5.311.

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Diminic, S., E. Hielscher, M. G. Harris, Y. Y. Lee, J. Kealton, and H. A. Whiteford. "A profile of Australian mental health carers, their caring role and service needs: results from the 2012 Survey of Disability, Ageing and Carers." Epidemiology and Psychiatric Sciences 28, no. 6 (2018): 670–81. http://dx.doi.org/10.1017/s2045796018000446.

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AbstractAimsPlanning mental health carer services requires information about the number of carers, their characteristics, service use and unmet support needs. Available Australian estimates vary widely due to different definitions of mental illness and the types of carers included. This study aimed to provide a detailed profile of Australian mental health carers using a nationally representative household survey.MethodsThe number of mental health carers, characteristics of carers and their care recipients, caring hours and tasks provided, service use and unmet service needs were derived from t

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Gresswell, I., L. Lally, D. Adamis, and G. M. McCarthy. "Widening the net: exploring social determinants of burden of informal carers." Irish Journal of Psychological Medicine 35, no. 1 (2017): 43–51. http://dx.doi.org/10.1017/ipm.2017.36.

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ObjectivesProviding care for a person with dementia or other chronic illness at home often places stress on the primary caregiver. In an Irish population, ~67% of carers reported experiencing extreme physical or mental tiredness. This study aimed to identify factors that influence carer burden and identify the sub-populations of carers who are most susceptible to burden.MethodsConsecutive carers referred to a local carers’ support organisation completed the following measurements: the Neuropsychiatric Inventory, Zarit Burden Interview, Social Network Index, General Health Questionnaire, Short

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Kouroupa, A., E. Petkari, and D. Giacco. "Carer involvement in the transition from inpatient to community mental healthcare: Experiences of stakeholders." European Psychiatry 65, S1 (2022): S610. http://dx.doi.org/10.1192/j.eurpsy.2022.1563.

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Introduction The involvement of informal carers (family and friends) in the care of people with severe mental illness (SMI) contributes to positive clinical outcomes, such as relapse prevention and symptom reduction. To date, the care pathway between inpatient and community care is not clearly defined impeding the smooth transition for patients, whilst carers are still barely involved in shared decision-making processes. Objectives To investigate the views and experiences of patients with SMI, carers and clinicians regarding the transition from inpatient to community mental health services. Me

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Perera, Sharnel Miriam, Clare O’Callaghan, Anna Ugalde, et al. "Codesigning a supportive online resource for Australian cancer carers: a thematic analysis of informal carers’ and healthcare professionals’ perspectives about carers’ responsibilities and content needs." BMJ Open 11, no. 10 (2021): e055026. http://dx.doi.org/10.1136/bmjopen-2021-055026.

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ObjectiveTo gather preliminary qualitative data that will assist in the codesign and development of a new informational and supportive website to assist informal cancer carers in Australia.Design and settingUtilising a previously tested codesign process, informal carers’ experiences and perspectives, including those of healthcare professionals’, were examined via focus groups and/or interviews. Data were analysed via thematic analysis.ParticipantsRural (n=9) and urban (n=11) carers’, and healthcare professionals’ (n=8) perspectives were collected. Carers participated in a focus group (n=9) or

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Bruce, Remia, Wendy Murdoch, Ashley Kable, et al. "Evaluation of Carer Strain and Carer Coping with Medications for People with Dementia after Discharge: Results from the SMS Dementia Study." Healthcare 8, no. 3 (2020): 248. http://dx.doi.org/10.3390/healthcare8030248.

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This study reports carer strain and coping with medications for people with dementia with an unplanned admission to hospital, and it evaluates the impact of a safe medication intervention on carer coping and carer strain. This was a quasi-experimental pre/post-controlled trial that included a survey of carers about managing medications for people with dementia after discharge. For 88 carers who completed surveys, 33% were concerned about managing medications, and 40% reported difficulties with medication management, including resistive behaviours by people with dementia. Dose administration ai

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Swan, Susan, Richard Meade, and Emma Carduff. "10 Timely identification and support for carers of people at the end of life through the adult carer support plan: triangulating three data sources." BMJ Supportive & Palliative Care 8, no. 3 (2018): 363.2–363. http://dx.doi.org/10.1136/bmjspcare-2018-mariecurie.10.

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IntroductionThe Carers (Scotland) Act (2016) places a duty on local authorities to prepare an Adult Carer Support Plan (ACSP) and Young Carer Statement for any carer who requests one or is identified as such. From 2019 this will be assisted by a fast track process for carers of people in their last six months of life. Timely identification of unpaid carers assessment and support can; reduce the overwhelming pressure of caregiving increase competence confidence satisfaction and the quality of the care given.AimTo provide evidence on the supportive needs of carers to inform recommendations regar

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Camden, Andrew, Gill Livingston, and Claudia Cooper. "Reasons why family members become carers and the outcome for the person with dementia: results from the CARD study." International Psychogeriatrics 23, no. 9 (2011): 1442–50. http://dx.doi.org/10.1017/s1041610211001189.

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ABSTRACTBackground: Using a representative secondary care survey for the first time, we explored family carers’ reasons for providing care. We hypothesized that carers with a positive rather than negative motivation for caring would be less abusive towards the care recipient and more likely to be caring for someone still living at home a year later.Methods: We interviewed 220 consecutively referred dementia family/friend carers from UK Community Mental Health Teams. We asked non-spousal carers why they were the main carer. Our main outcomes were the revised Modified Conflict Tactics Scale scor

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Berry, Katherine, Jenna King, Anvita Vikram, and Claire Muller. "How carers' needs can be met by staff within inpatient settings: a qualitative study." British Journal of Mental Health Nursing 13, no. 2 (2024): 1–8. http://dx.doi.org/10.12968/bjmh.2023.0003.

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Background/Aims Inpatient admissions can increase carer stress rather than provide respite. The aim of this study was to gain carers' perspectives about how their needs can be met during an inpatient admission. Methods Semi-structured interviews were conducted with 12 carers whose relatives had been admitted to inpatient care at least once. Interviews were analysed thematically. Results Carers described a fear of relinquishing responsibility for care, which was exacerbated by concerns about the quality of care provided by staff. Better experiences were possible when carers were given informati

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Kuipers, E., P. Bebbington, G. Dunn, et al. "Influence of carer expressed emotion and affect on relapse in non-affective psychosis." British Journal of Psychiatry 188, no. 2 (2006): 173–79. http://dx.doi.org/10.1192/bjp.bp.104.007294.

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BackgroundHigh expressed emotion in carers predicts relapse in psychosis, but it is not known why this is so. In our cognitive model of psychosis, we postulated that the effect is mediated through affective changes.AimsTo investigate the relationships between carer expressed emotion, patients' symptoms and carer characteristics during a recent relapse of psychosis.MethodA total of 86 patients and carers were investigated in a cross-sectional design.ResultsPatients whose carers showed high expressed emotion had significantly higher levels of anxiety and depression, but not more psychotic sympto

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Linacre, Stephen, Suzanne Heywood-Everett, Vishal Sharma, and Andrew J. Hill. "Comparing carer wellbeing: implications for eating disorders." Mental Health Review Journal 20, no. 2 (2015): 105–18. http://dx.doi.org/10.1108/mhrj-12-2014-0046.

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Purpose – Around 50 per cent of carers of people with eating disorders (EDs) experience mental health difficulties. The purpose of this paper is to investigate well-being of carers of people with ED and carers of people with severe and enduring eating disorders (SEEDs). Design/methodology/approach – Carers (n=104) were recruited from UK support groups and stratified using duration of the care recipient’s ED (0-2, 2-6, > 6 years), with the > 6 years category classified as SEED. Data were compared with existing carer well-being studies of other patient groups. Findings – Carers of people w

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Lalor, A., K. Ip, and D. Parikh. "P065 Sleep Perceptions of Carers in Palliative Care: A Qualitative Study." SLEEP Advances 3, Supplement_1 (2022): A51. http://dx.doi.org/10.1093/sleepadvances/zpac029.136.

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Abstract Introduction Carers of individuals receiving palliative care have heightened responsibilities as part of their role which significantly affects their sleep. Despite the recognised importance of sleep, and the evidence regarding the impact of disturbed sleep on one’s physical and psychological wellbeing, sleep of carers is often overlooked. Furthermore, research regarding the lived experience of carers regarding their sleep is limited. This study aimed to explore carers’ sleep experiences, perceived factors related to sleep, and sleep management strategies that they adopt, in order to

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Jackson, Haley, Jane Wray, Eric Gardiner, and Tracy Flanagan. "Involving carers in risk assessment: a study of a structured dialogue between mental health nurses and carers." Journal of Research in Nursing 24, no. 5 (2019): 330–41. http://dx.doi.org/10.1177/1744987119851533.

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Background Involving carers is a key priority in mental health services. Carers report the sharing of service users’ safety information by mental health nurses is problematic and seldom takes place. Aims The impact of an intervention on consensus between nurses and carers on perceptions of risk was investigated. Methods Carer–nurse risk consensus scores were measured pre- and post-introduction of a structured dialogue (paired t-test/ANOVA). Carer experience with involvement was surveyed pre-test ( n = 60) and compared with the post-test intervention group ( n = 32) (chi-square tests of linear-

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Raune, D., E. Kuipers, and P. E. Bebbington. "Expressed emotion at first-episode psychosis: investigating a carer appraisal model." British Journal of Psychiatry 184, no. 4 (2004): 321–26. http://dx.doi.org/10.1192/bjp.184.4.321.

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BackgroundEven at the first episode of psychosis, high expressed emotion (EE) characterises over half of patient–carer relationships. This study compared a carer appraisal model of EE with the ability of illness factors to predict EE at the first episode.AimsTo investigate the utility of a carer appraisal model of EE in first-episode psychosis.MethodWe compared high- and low-EE carers of people who had first-episode psychosis (n=46).ResultsHigh EE in carers was associated with higher avoidant coping, higher subjective burden and lower perceived patient interpersonal functioning. Patient illnes

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Ewing, Gail, Sarah Croke, Christine Rowland, and Gunn Grande. "Suitability and acceptability of the Carer Support Needs Assessment Tool (CSNAT) for the assessment of carers of people with MND: a qualitative study." BMJ Open 10, no. 12 (2020): e039031. http://dx.doi.org/10.1136/bmjopen-2020-039031.

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ObjectivesMotor neurone disease (MND) is a progressive, life-limiting illness. Caregiving impacts greatly on family carers with few supportive interventions for carers. We report Stages 1 and 2 of a study to: (1) explore experiences of MND caregiving and use carer-identified support needs to determine suitability and acceptability of the Carer Support Needs Assessment Tool (CSNAT), (2) adapt the CSNAT as necessary for comprehensive assessment and support of MND carers, prior to (Stage 3) feasibility testing.DesignQualitative: focus groups, interviews and carer workshops.SettingThree UK MND spe

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Harris-Roxas, Ben, Alamgir Kabir, Rachael Kearns, Gurdive Webster, Lisa Woodland, and Margo Barr. "Characteristics and Health Service Use of a Longitudinal Cohort of Carers Aged over 45 in Central and Eastern Sydney, Australia." Health & Social Care in the Community 2023 (August 16, 2023): 1–10. http://dx.doi.org/10.1155/2023/5032583.

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Carers are a large portion of the Australian community. In 2018, 2.65 million Australians identified as carers, and almost one-third (32.6%) of this group were primary carers. There is currently a lack of understanding of the impact of being a carer on a person’s health and wellbeing compared to non-carers. This research was undertaken to understand the health status, health risks, and health outcomes for carers in Central and Eastern Sydney, Australia (CES), who are 45 years of age or over. A record linkage study using data from the 45 and Up Study, Medicare Benefit Scheme claims, hospitalisa

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Iskov, Leonie, Kurt Andersson-Noorgard, and Greg Fairbrother. "Working with carer grief in community palliative care nursing." International Journal of Palliative Nursing 30, no. 10 (2024): 556–66. http://dx.doi.org/10.12968/ijpn.2024.30.10.556.

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Background: Community nurses (CN), both generalist and palliative care-specific, are key to supporting the carer with their experience of grief. Aim: To identify the grief-related needs of carers and the capacity of CNs to provide for those needs. Methods: A convergent parallel mixed-methods study which employed i) a needs questionnaire among carers of palliative care patients who had recently died; ii) a qualitative interview study among carers and iii) a questionnaire among CNs which canvassed their confidence and skills in working with carer grief. Findings: In the carer survey, just one-th

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Szmukler, George I., Til Wykes, and Sue Parkman. "Care-giving and the impact on carers of a community mental health service." British Journal of Psychiatry 173, no. 5 (1998): 399–403. http://dx.doi.org/10.1192/bjp.173.5.399.

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BackgroundWe examined: care-giving activities in a population-based sample of carers of sufferers from psychotic disorders; putative determinants of care-giving; and changes in care-giving in an intensive community psychiatric service.MethodsIn the PRiSM interview sample 170 people had a carer; 124 were interviewed. Care-giving activities, dissatisfaction with these, and carers General Health Questionnaire (GHQ) scores were measured. Patient and illness characteristics were examined as predictors of the carer measures. The carer measures were reassessed for 62 carers after two years in two ser

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