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1

India. National Commission for Protection of Child Rights. Rights and entitlements of children affected and infected by HIV/AIDS, 2010-2011. New Delhi: National Commission for Protection of Child Rights, 2010.

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2

Education, Botswana Ministry of. The voice of the HIV infected and affected school age children in Botswana: A cross-sectional psychosocial survey : final report/study conducted by the Botswana-Baylor Children's Clinical Centre of Excellence for the Ministry of Education and Skills Development, Botswana. Gaborone: Ministry of Education and Skills Development, 2011.

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3

National Paediatric Conference on Children Infected and Affected by HIV & AIDS 2007 (3rd 2007 Kigali, Rwanda). 3rd National Paediatric Conference on Children Infected and Affected by HIV & AIDS 2007: A focus on decentralisation, Kigali, 2nd to 4th December 2007 : book of abstracts. [Kigali]: CNLS, 2007.

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4

Office, Great Britain Scottish. Guidance on children infected or affected by HIV. [Edinburgh]: Scottish Office, 1992.

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5

United States. Agency for International Development. USAID project profiles: Children affected by HIV/AIDS. Washington, DC: Synergy Project, 2001.

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6

United States. Agency for International Development. USAID project profiles: Children affected by HIV/AIDS. 2nd ed. Washington, DC: Synergy Project, 2002.

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7

Mallmann, Silke-Andrea. Building resilience in children affected by HIV/AIDS. 2nd ed. Cape Town, South Africa: Maskew Miller Longman, 2003.

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8

United States. Agency for International Development. USAID project profiles: Children affected by HIV/AIDS. 3rd ed. Washington, DC: Synergy Project, 2003.

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9

United States. Agency for International Development. USAID project profiles: Children affected by HIV/AIDS. 4th ed. [Washington, DC: U.S. Agency for International Development], 2005.

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10

United States. Agency for International Development. USAID project profiles: Children affected by HIV/AIDS. 3rd ed. Washington, DC: Synergy Project, 2003.

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11

United States. Agency for International Development. USAID project profiles: Children affected by HIV/AIDS. Washington, DC: Synergy Project, 2001.

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12

Nyeko, Janet A. Gender focused responses to HIV/AIDS in Swaziland: The needs of women infected and affected by HIV/AIDS. Mbabane: United Nations Development Programme, 2002.

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13

(Organization), Human Rights Watch, ed. Future forsaken: Abuses against children affected by HIV/AIDS in India. New York: Human Rights Watch, 2004.

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14

Hope amidst despair: HIV/AIDS-affected children in Sub-Saharan Africa. London: Pluto Press, 2011.

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15

Munthali, Alister C. Identifying opportunities for skills building among youth infected and affected by HIV/AIDS in Malawi: A final report. [Zomba, Malawi]: University of Malawi, Centre for Social Research, 2002.

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16

Mwangi, Mary W. The psycho-social needs and support systems of children affected by HIV/AIDS: Final report. Addis Ababa, Ethiopia: [s.n., 2001.

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17

The impact of social cash transfers on children affected by HIV and AIDS. Lilongwe: Unicef, 2007.

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18

National Consultation on Children Affected or Vulnerable to HIV/AIDS (2005 New Delhi, India). National Consultation on Children Affected or Vulnerable to HIV/AIDS, 28-29 March, 2005. [New Delhi: Dept. of Women & Child Development, Ministry of Human Resource Development, 2005.

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19

Papua New Guinea. Department of Justice, Papua New Guinea. Department of Attorney General, and National AIDS Council (Papua New Guinea), eds. An assessment of the inheritance rights of children affected by HIV and AIDS and other vulnerable children. Papua New Guinea: Dept. for Community Development, 2008.

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20

Association, Health Visitors', ed. Positive practice: An HVA guide to caring for families and children affected by HIV/AIDS. London: Health Visitors' Association, 1994.

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21

Windhoek, Namibia) Eastern and Southern Africa Regional Workshop on Children Affected by HIV/AIDS (2002. 2002 Eastern and Southern Africa Regional Workshop on Children Affected by HIV/AIDS: 25-29 November 2002, Windhoek, Namibia. S.l: s.n., 2002.

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22

Potter, David. Selina's story: A story book for children aged 4-8 who are affected by HIV/AIDS. Barkingside: Barnardo's, 1995.

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23

Hunter, Susan S. HIV/AIDS orphans and NGOs in Zambia: Strategy development for USAID/Zambia Mission programming for family and community care of children affected by HIV/AIDS. [Lusaka: s.n., 1997.

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24

Malawi, UNICEF. Vulnerability & child protection in the face of HIV: Report of the United Nations Technical Review Team on programming for children affected by HIV and AIDS in Malawi. [Lilongwe, Malawi]: UNICEF, 2011.

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25

WHO recommendations on the management of diarrhoea and pneumonia in HIV-infected infants and children. [Geneva?]: World Health Organization, Departments of Child and Adolescent Health and Development (CAH) and HIV/AIDS, 2010.

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26

Fox, Susan. Investing in our future: Psychosocial support for children affected by HIV/AIDS : a case study in Zimbabwe and the United Republic of Tanzania. Geneva: UNAIDS, 2001.

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27

Harber, Mary. Who will care for the children?: Social policy implications for the care and welfare of children affected by HIV/AIDS in KwaZulu-Natal. [Durban]: School of Development Studies, incorporating the Centre for Social & Development Studies, University of Natal, 1999.

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28

Chakanyuka, Kennedy. Farm Orphan Support Trust of Zimbabwe: An analysis of the provision for very young children (0-8 years) affected by HIV and AIDS in commercial farm worker and former farm worker communities. Harare: Tallymark Ltd., 2004.

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29

McVicker, Carrie. Children and the HIV/AIDS Crisis: Youth Who Are Infected & Affected. Youth Advocate Program International, 1999.

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30

Cynthy, Haihambo, ed. An assessment of services provided to children affected and infected by HIV/AIDS in Windhoek, Namibia. Windhoek, Namibia: University of Namibia, 2004.

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31

Haihambo, Cynthy. An Assessment of Services Provided to Children Affected and Infected by HIV/AIDS in Windhoek, Namibia. Univ. of Namibia Press, 2006.

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32

Kapetanovic, Suad, Lori Wiener, Lisa Tuchman, and Maryland Pao. Childhood and Adolescence. Edited by Mary Ann Cohen, Jack M. Gorman, Jeffrey M. Jacobson, Paul Volberding, and Scott Letendre. Oxford University Press, 2017. http://dx.doi.org/10.1093/med/9780199392742.003.0033.

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Mental health professionals need to understand how the psychosocial and mental health needs of HIV-infected youth evolve over time and to be able to identify salient clinical challenges that present with each developmental stage. It is also important to understand that HIV/AIDS affects children’s lives indirectly, by the presence of HIV/AIDS in a family member, even if the child is not HIV infected. This chapter uses a developmental perspective to introduce key mental health objectives in the lives of developing HIV-infected children and adolescents and provides an overview of epidemiological, psychosocial, and clinical parameters to be considered in their clinical care and management. The chapter also addresses issues facing perinatally and behaviorally HIV-infected children and adolescents. Separate sections of the chapter discuss biopsychosocial factors salient to children and adolescents who are affected by HIV infection in the family.
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33

Children Affected by HIV/AIDS. Save the Children, 2001.

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34

Centre, UNICEF Innocenti Research, ed. Caring for children affected by HIV and AIDS. [Florence, Italy]: UNICEF, Innocenti Research Centre, 2006.

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35

Centre, UNICEF Innocenti Research, ed. Caring for children affected by HIV and AIDS. [Florence, Italy]: UNICEF, Innocenti Research Centre, 2006.

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36

Centre, UNICEF Innocenti Research, ed. Caring for children affected by HIV and AIDS. [Florence, Italy]: UNICEF, Innocenti Research Centre, 2006.

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37

United States. Agency for International Development., ed. USAID project profiles: Children affected by HIV/AIDS. 3rd ed. Washington, DC: Synergy Project, 2003.

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38

Compassionate care for children affected by HIV/AIDS. Monrovia, Calif: MARC Publications, 2002.

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39

Centre, UNICEF Innocenti Research, ed. Caring for children affected by HIV and AIDS. [Florence, Italy]: UNICEF, Innocenti Research Centre, 2006.

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40

Makurumidze, Getrude, Anna Gamell, and Emili Letang. AIDS Orphans and Other Children Affected by HIV. Edited by Mary Ann Cohen, Jack M. Gorman, Jeffrey M. Jacobson, Paul Volberding, and Scott Letendre. Oxford University Press, 2017. http://dx.doi.org/10.1093/med/9780199392742.003.0005.

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Since the beginning of the HIV/AIDS epidemic, the number of deaths in reproductive age groups has led to nearly 18 million children being left orphaned. Orphans are not only faced with the loss of one or both parents but may also suffer loss of property and inheritance, disruption from school, and psychosocial distress from the stigma associated with HIV/AIDS. This chapter explores the psychological, social, and cultural aspects of HIV/AIDS orphanhood. It addresses the financial and emotional support that orphans and their caregivers need, as well as key strategies shown to be effective to protect, support, and empower orphans and vulnerable children (OVC). Such strategies include providing education, psychosocial care and support, household economic strengthening, social protection, health and nutrition, child and legal protection, and capacity building. However, despite the considerable progress achieved, multiple challenges still prevent many OVC from receiving effective care and support. These aspects need to be urgently addressed in order to build evidence-based programs, respond to the needs of all AIDS-affected children, and achieve the dream of an AIDS-free generation.
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41

USAID project profiles: Children affected by HIV/AIDS. Washington, DC: Synergy Project, 2001.

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42

Susan, Hunter, ed. Families and children affected by HIV/AIDS and other vulnerable children in Papua New Guinea. Port Moresby: UNICEF Papua New Guinea Country Office, 2006.

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43

Stepping Stones with Children: A Transformative Training for Children Affected by HIV and Their Caregivers. Practical Action Publishing, 2016.

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44

(Editor), Susan Taylor-Brown, and Alejandro Garcia (Editor), eds. HIV Affected And Vulnerable Youth: Prevention Issues and Approaches. Haworth Press, 2000.

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45

Denis, Philippe. Case Study: Memory Work with Children Affected by HIV/AIDS in South Africa. Edited by Donald A. Ritchie. Oxford University Press, 2012. http://dx.doi.org/10.1093/oxfordhb/9780195339550.013.0011.

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This article focuses on working with children affected by HIV/AIDS in South Arica. In the early years of the AIDS epidemic, relief organizations focused their efforts on the material needs of children, but their psychological and emotional needs are no less important. Recognizing this, the Sinomlando Centre for Oral History and Memory Work in Africa, a research and community development center located at the University of KwaZulu-Natal, in Pietermaritzburg South Africa, has pioneered a model of psychosocial intervention for children in grief—particularly but not exclusively in the context of HIV/AIDS. This model uses the methodology of oral history in a novel manner, combined with other techniques such as life story work and narrative therapy. During the early years of the project, the model followed for the family visits was the oral history interview. A discussion on caregiver as the narrator and skills required in memory work especially in these cases concludes this article.
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46

UNICEF and Malawi, eds. Early childhood care and support to families affected by HIV/AIDS: Programme plan of operations, 2002-2006. [Lilongwe]: UNICEF, 2002.

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47

Huxter, Will. Evaluation of the social work assessment service for children and families affected by HIV/AIDS at London East AIDS Network. University of East London, 1995.

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48

M, Oleske James, Academy of Medicine of New Jersey., and New Jersey. State Dept. of Health., eds. Identification and initial management of HIV-infected infants and children in New Jersey: A practical protocol for New Jersey clinicians. [Lawrenceville, NJ: The Academy], 1992.

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49

National counseling guidelines for children and adolescents most-at-risk of or affected by HIV and AIDS. Dhaka: National AIDS/STD Programme, 2010.

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50

Consortium, Kenya AIDS NGOs, ed. Enhancement of psychosocial support programs and service delivery to children affected by HIV & AIDS in Kenya: Lessons learnt and good practices. Nairobi: Kenya AIDS NGOs Consortium, 2005.

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