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1

Moody, Harry R. "From Informed Consent to Negotiated Consent1." Gerontologist 28, Suppl (1988): 64–70. http://dx.doi.org/10.1093/geront/28.suppl.64.

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2

Danhauser, Katharina, Larissa Dorothea Lina Mantoan, Jule Marie Dittmer, et al. "On-site electronic consent in pediatrics using generic Informed Consent Service (gICS): Creating a specialized setup and collecting consent data." PLOS Digital Health 3, no. 11 (2024): e0000661. http://dx.doi.org/10.1371/journal.pdig.0000661.

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Enrolling in a clinical trial or study requires informed consent. Furthermore, it is crucial to ensure proper consent when storing samples in biobanks for future research, as these samples may be used in studies beyond their initial purpose. For pediatric studies, consent must be obtained from both the child and their legal guardians, requiring the recording of multiple consents at once. Electronic consent has become more popular recently due to its ability to prevent errors and simplify the documentation of multiple consents. However, integrating consent capture into existing study software s
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3

Raghu, Suneetha, Krishnappa J. Dr., and Zeanath C. J. Prof. "Adherence to Informed Consent and its Completeness in a selected Tertiary Care Hospital." Adherence to Informed Consent and its Completeness in a selected Tertiary Care Hospital. 11, no. 1 (2024): 10–15. https://doi.org/10.5281/zenodo.10474714.

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<strong><em>Background:</em></strong><em> The process of obtaining permission from a patient and their families to operate, conduct a test, or begin treatment is known as informed consent. Patient-centred medical care requires informed consent. The&nbsp;</em><strong><em>objective</em></strong><em> was to assess compliance with the essential Components to be filled in the Informed consent for surgery in a tertiary care hospital and to analyse the deficiencies in informed consent for surgery. </em><strong><em>Methods</em></strong><em>: A survey was conducted at different surgical departments of
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4

White, Alfred C. "Consent or no consent." Psychiatric Bulletin 18, no. 8 (1994): 507. http://dx.doi.org/10.1192/pb.18.8.507-a.

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5

Rowbotham, Michael C., John Astin, Kaitlin Greene, and Steven R. Cummings. "Interactive Informed Consent: Randomized Comparison with Paper Consents." PLoS ONE 8, no. 3 (2013): e58603. http://dx.doi.org/10.1371/journal.pone.0058603.

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6

Hadden, Kristie B., Latrina Y. Prince, Tina D. Moore, Laura P. James, Jennifer R. Holland, and Christopher R. Trudeau. "Improving readability of informed consents for research at an academic medical institution." Journal of Clinical and Translational Science 1, no. 6 (2017): 361–65. http://dx.doi.org/10.1017/cts.2017.312.

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IntroductionThe final rule for the protection of human subjects requires that informed consent be “in language understandable to the subject” and mandates that “the informed consent must be organized in such a way that facilitates comprehension.” This study assessed the readability of Institutional Review Board-approved informed consent forms at our institution, implemented an intervention to improve the readability of consent forms, and measured the first year impact of the intervention.MethodsReadability assessment was conducted on a sample of 217 Institutional Review Board-approved informed
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7

YU, Ho-Jong. "Doctors Duty of Informed Consent and Patient Informed Consent Form." Korean Journal of Medical Ethics 5, no. 1 (2002): 27–41. http://dx.doi.org/10.35301/ksme.2002.5.1.27.

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1. When a patient goes to a hospital, he is expected to give consent to the treatment his/her doctor may provide. The initial consent, however, does not include all the consents to the following treatment a patient is going to receive. For further treatments, especially for concrete treatments, the doctor must seek for additional consents. 2. A doctor must offer sufficient informations to his patient when getting a consent. While doing this a pre-written patient informed consent form can be convenient as well as effective. The doctor can explain systematically without leaving out any important
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8

Sheehan, M. "Broad consent is informed consent." BMJ 343, no. 01 3 (2011): d6900. http://dx.doi.org/10.1136/bmj.d6900.

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9

MANSON, NEIL C. "Normative Consent Is Not Consent." Cambridge Quarterly of Healthcare Ethics 22, no. 1 (2012): 33–44. http://dx.doi.org/10.1017/s0963180112000369.

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10

Gerver, Mollie. "Consent for Data on Consent." Ethical Theory and Moral Practice 18, no. 4 (2014): 799–816. http://dx.doi.org/10.1007/s10677-014-9553-5.

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11

Erlen, Judith A. "Informed Consent: The Consent Component." Orthopaedic Nursing 13, no. 4 (1994): 65–67. http://dx.doi.org/10.1097/00006416-199407000-00011.

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12

&NA;. "CONSENT ISSUE APPLYING IMPLIED CONSENT." Nursing 23, no. 6 (1993): 66–67. http://dx.doi.org/10.1097/00152193-199306000-00024.

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13

Gerver, Mollie. "Inferring Consent without Communication." Social Theory and Practice 46, no. 1 (2020): 27–53. http://dx.doi.org/10.5840/soctheorpract202021478.

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Some claim that consent requires common knowledge. For a doctor to obtain consent, a doctor must know that her patient has given her permission to perform surgery, and her patient must know the doctor knows that he has given this permission. Some claim that such common knowledge requires communication, and so consent requires communication: the patient must tell the doctor he consents for both to know consent took place, and for both to know the other knows consent took place. I first defend the claim that consent requires common knowledge, responding to recent objections. I then argue that, t
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14

Walsh, Peter. "Consent." Clinical Risk 22, no. 1-2 (2016): 4–5. http://dx.doi.org/10.1177/1356262216664247.

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15

Fong, Y., P. Lewis, and MH Lewis. "Consent." Annals of The Royal College of Surgeons of England 89, no. 1 (2007): 87–88. http://dx.doi.org/10.1308/003588407x155626.

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16

Hope, Tony. "Consent." Medicine 28, no. 10 (2000): 5–10. http://dx.doi.org/10.1383/medc.28.10.5.27971.

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Hope, Tony. "Consent." Medicine 33, no. 2 (2005): 3–7. http://dx.doi.org/10.1383/medc.33.2.3.58378.

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18

Constant, Chris. "Consent." Surgery (Oxford) 23, no. 12 (2005): 439–40. http://dx.doi.org/10.1383/surg.2005.23.12.439.

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19

Worlock, Peter H. "Consent." Bone & Joint 360 5, no. 3 (2016): 38–40. http://dx.doi.org/10.1302/2048-0105.53.360434.

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20

Hope, Tony. "Consent." Foundation Years 2, no. 5 (2006): 194–98. http://dx.doi.org/10.1053/j.mpfou.2006.06.005.

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21

Markus, P. M. "Consent." Viszeralchirurgie 40, no. 4 (2005): 288–90. http://dx.doi.org/10.1055/s-2005-836755.

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22

Hain, Richard. "Consent." Medicine 44, no. 10 (2016): 593–95. http://dx.doi.org/10.1016/j.mpmed.2016.07.009.

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23

White, Stuart M., and Mark Ashley. "Consent." Anaesthesia & Intensive Care Medicine 13, no. 4 (2012): 141–44. http://dx.doi.org/10.1016/j.mpaic.2012.01.005.

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24

White, Stuart M., and Mark Ashley. "Consent." Anaesthesia & Intensive Care Medicine 16, no. 4 (2015): 151–54. http://dx.doi.org/10.1016/j.mpaic.2015.01.009.

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25

Love, Christopher, and Nick Pace. "Consent." Anaesthesia & Intensive Care Medicine 19, no. 5 (2018): 263–66. http://dx.doi.org/10.1016/j.mpaic.2018.02.009.

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26

Kaye, Andrew. "Consent." Journal of Clinical Neuroscience 1, no. 2 (1994): 77. http://dx.doi.org/10.1016/0967-5868(94)90079-5.

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27

Srivastava, CP. "Consent." Journal of Universal College of Medical Sciences 1, no. 4 (2014): 69–70. http://dx.doi.org/10.3126/jucms.v1i4.9581.

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28

Bogod, David. "Consent." Annals of The Royal College of Surgeons of England 93, no. 4 (2011): 265–67. http://dx.doi.org/10.1308/147870811x571127.

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29

Wheeler, R. "Consent." Annals of The Royal College of Surgeons of England 93, no. 7 (2011): 562–63. http://dx.doi.org/10.1308/147870811x598560.

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30

Shepard, Karen. "Consent." Ploughshares 46, no. 2 (2020): 133–45. http://dx.doi.org/10.1353/plo.2020.0115.

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31

Gillon, R. "Consent." BMJ 291, no. 6510 (1985): 1700–1701. http://dx.doi.org/10.1136/bmj.291.6510.1700.

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32

Moreno, María, and Paco Brito Núñez. "Consent." Critical Times 5, no. 2 (2022): 434–43. http://dx.doi.org/10.1215/26410478-9799752.

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Abstract María Moreno begins by examining the limits of our common legal and psychological understandings of consent. She examines how the self who gives consent fluctuates in a way occluded by the liberal notion of the contract and proceeds to consider consent in the broadest sociopolitical context, as a minor part or element of a greater instrument of control: rape itself. Through a consideration of a series of violations committed in Argentina, some by civilians, others by agents of the state during the country's last civico-military dictatorship, Moreno illustrates how the contradictions i
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33

Chuchalin, Alexandr G. "Consent. Modern interpretation: "Voluntary Informed Consent"." Terapevticheskii arkhiv 93, no. 5 (2021): 640–44. http://dx.doi.org/10.26442/00403660.2021.05.200797.

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The article is devoted to voluntary informed consent. It considers the historical issues of the formation of this concept in modern health care and medical science. The article highlights a historical role of the Nuremberg Code which was taken as the basis for the Universal Declaration of Human Rights, the World Medical Association (WMA) Code of Ethics, the Declaration on Bioethics and Human Rights, i.e. documents that defined the world order after the end of World War II.
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34

Hendershot, Marcus E. "From Consent to Advice and Consent." Political Research Quarterly 63, no. 2 (2008): 328–42. http://dx.doi.org/10.1177/1065912908329354.

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35

Sheehan, M. "Can Broad Consent be Informed Consent?" Public Health Ethics 4, no. 3 (2011): 226–35. http://dx.doi.org/10.1093/phe/phr020.

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36

Boers, Sarah N., Johannes J. M. van Delden, and Annelien L. Bredenoord. "Broad Consent Is Consent for Governance." American Journal of Bioethics 15, no. 9 (2015): 53–55. http://dx.doi.org/10.1080/15265161.2015.1062165.

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37

Wendler, David, and Alan Wertheimer. "Why is Coerced Consent Worse Than No Consent and Deceived Consent?" Journal of Medicine and Philosophy: A Forum for Bioethics and Philosophy of Medicine 42, no. 2 (2017): 114–31. http://dx.doi.org/10.1093/jmp/jhw064.

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38

Alcock, S., B. Blackwood, M. Ayroso, and J. Shankar. "P.035 Using deferred consent in emergency research: an evaluation of two prospective CT-perfusion studies." Canadian Journal of Neurological Sciences / Journal Canadien des Sciences Neurologiques 52, s1 (2025): S25—S26. https://doi.org/10.1017/cjn.2025.10216.

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Background: Informed consent is not always possible in emergency research particularly during life threatening situations. Deferral of consent is an acceptable method in consenting patients; however, it is underutilized. We aim to share our experience with deferred consent. Methods: Participants in two prospective studies underwent a CT-Perfusion scan (intervention) at the time of first hospital imaging, in order not to impact clinical treatment. Deferred consent was then obtained. The primary outcome was the rate of deferred consent. The number of days to obtain consent, refusal rate, and wai
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39

Mhaske, Sunil, Vineetranjan Gupta, Ramesh Kothari, and Ninza Rawal. "Consent in Paediatrics." Pediatric Education and Research 5, no. 3 (2017): 233–35. http://dx.doi.org/10.21088/per.2321.1644.5317.12.

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40

Rangaramanujam, ATM. "Liberalizing consent - Supreme Court′s preference for ′real consent′ over ′informed consent′." Indian Journal of Radiology and Imaging 18, no. 03 (2008): 195–97. http://dx.doi.org/10.1055/s-0041-1734428.

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41

Lie, Rico, and Loes Witteveen. "Visual informed consent: informed consent without forms." International Journal of Social Research Methodology 20, no. 1 (2015): 63–75. http://dx.doi.org/10.1080/13645579.2015.1116835.

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42

Souhami, R. L., and J. S. Tobias. "Informed consent Consent requires a flexible approach." BMJ 308, no. 6923 (1994): 271. http://dx.doi.org/10.1136/bmj.308.6923.271a.

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43

Aitkenhead, A. "Anaesthetists need consent, but not written consent." BMJ 319, no. 7217 (1999): 1135. http://dx.doi.org/10.1136/bmj.319.7217.1135.

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44

Merz, Jon F., and Baruch Fischhoff. "Informed consent does not mean rational consent." Journal of Legal Medicine 11, no. 3 (1990): 321–50. http://dx.doi.org/10.1080/01947649009510831.

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45

Finch, John. "Consent conundrums: patient consent in neuroscience nursing." British Journal of Neuroscience Nursing 16, no. 1 (2020): 48–52. http://dx.doi.org/10.12968/bjnn.2020.16.1.48.

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In BJNN 15(4) and BJNN 15(5), John Finch looked in detail at the role of the Mental Capacity Act 2005 and its accompanying Code in the practice of neuroscience nurses. He concluded, as have others, that the guidance offered by the Act and the Code falls short of what neuroscience nurses need in their practice. In this article, he turns his attention to the treatment of patients who can and do consent to proposed treatment. The law relating to such patients in this matter offers neither an act nor a code. The law is to be found in court decisions. It might, at first sight, appear that a practic
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46

Topolovec-Vranic, Jane, Marlene Santos, Andrew J. Baker, Orla M. Smith, and Karen EA Burns. "Deferred Consent in a Minimal-Risk Study Involving Critically Ill Subarachnoid Hemorrhage Patients." Canadian Respiratory Journal 21, no. 5 (2014): 293–96. http://dx.doi.org/10.1155/2014/719270.

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INTRODUCTION: Alterations from first-party and surrogate decision-maker consent can enhance the feasibility of research involving critically ill patients.OBJECTIVE: To describe the use of a deferred-consent model to enable participation of critically ill patients in a minimal-risk biomarker study.METHODS: A prospective observational study was conducted in which serum biomarker samples were collected three times daily over the first 14 days following aneurysmal subarachnoid hemorrhage. Sample collection was initiated on intensive care unit admission and consent was obtained when research person
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47

Sibold, Hannah Claire, Gavin Paul Campbell, John Bourgeois, Margie D. Dixon, R. Donald Harvey, and Rebecca D. Pentz. "Improving consent forms for first-in-human trials through participant feedback." Journal of Clinical Oncology 39, no. 15_suppl (2021): e13563-e13563. http://dx.doi.org/10.1200/jco.2021.39.15_suppl.e13563.

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e13563 Background: Risks and benefits of investigational agents that have not been tested in humans are, at best, incompletely characterized in nonclinical investigations. Despite the growing emphasis to include patient voices in clinical trial design, no published research has explored patient preferences on how best to convey the information that the agent has not been tested in humans. This study established that First in Human (FIH) consent forms present this information in different locations and queried participants for their input on the preferable FIH consent form structure. Methods: C
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48

Adhayati, Baety, Diyanthie Aulia Putrihamidah, Melva Louisa, and Ali Sodikin. "The Accuracy of Information Recipients and Consent Givers for Informed Consent in Hospitals." Journal of Health and Nutrition Research 3, no. 3 (2024): 207–10. https://doi.org/10.56303/jhnresearch.v3i3.296.

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This study aimed to assess the accuracy of the party receiving information and giving consent in the hospital. This type of research is observational and was conducted at Public Hospital of Banten Province (RSUD Banten) and Dr. Drajat Prawiranegara Public Hospital in 2024. The minimum sample size used was 94 samples taken using consecutive sampling methods. This study used a checklist as a record to check the completeness of the informed consent form and approval sheet by the SOP and applicable legal basis. Data analysis is descriptive of the accuracy of the party receiving information and giv
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49

Law, Zhe Kang, Jason P. Appleton, Polly Scutt, et al. "Brief Consent Methods Enable Rapid Enrollment in Acute Stroke Trial: Results From the TICH-2 Randomized Controlled Trial." Stroke 53, no. 4 (2022): 1141–48. http://dx.doi.org/10.1161/strokeaha.121.035191.

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Background: Seeking consent rapidly in acute stroke trials is crucial as interventions are time sensitive. We explored the association between consent pathways and time to enrollment in the TICH-2 (Tranexamic Acid in Intracerebral Haemorrhage-2) randomized controlled trial. Methods: Consent was provided by patients or by a relative or an independent doctor in incapacitated patients, using a 1-stage (full written consent) or 2-stage (initial brief consent followed by full written consent post-randomization) approach. The computed tomography-to-randomization time according to consent pathways wa
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50

Ulum, Miftachul. "PENERAPAN KOMUNIKASI EFEKTIF DI UNIT PUSAT ADMINSTRASI TERPADU RSUD KANJURUHAN KABUPATEN MALANG." JRMIK 3, no. 2 (2022): 56–62. http://dx.doi.org/10.58535/jrmik.v3i2.19.

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ABSTRAK Komunikasi efektif merupakan sebuah komunikasi yang mampu menghasilkan perubahansikap (attitude change)pada orang yang terlibat komunikasi. General Consent atau lembar persetujuan umum merupakan lembar persetujuan yang diberikan kepada pasien atau keluarga setelah mendapat penjelesan secara lengkap dari petugas pendaftaran. Tujuan penelitian ini untuk mengetahui apakah para petugas di bagian PAT telah menerapakan komunikasi efektif dalam menjelaskan isi dan maksud dari General Consent kepada pasien. Pada penelitian kali ini, peniliti menggunakan kuisioner yang dibagikan kepada 62 pasie
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