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Journal articles on the topic 'Contested illness'

Author: Grafiati

Published: 4 June 2021

Last updated: 1 February 2022

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1

Armentor, Janet L. "Living With a Contested, Stigmatized Illness." Qualitative Health Research 27, no. 4 (2016): 462–73. http://dx.doi.org/10.1177/1049732315620160.

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This study focuses on the negotiation of relationships among women living with the chronic illness fibromyalgia. Twenty in-depth, semistructured interviews were conducted with women diagnosed with fibromyalgia. Drawing from interactional and constructionist perspectives, the analysis focuses on participants’ approaches to communicating with others about their illness, the reactions of others to their experiences, and participants’ strategies to manage stigma. Participants attempted to describe their illness experience to others through direct and educational approaches. Often, in the managemen

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Aronoff, Gerald M., Steven Mandel, Elizabeth Genovese, et al. "Evaluating Malingering in Contested Injury or Illness." Pain Practice 7, no. 2 (2007): 178–204. http://dx.doi.org/10.1111/j.1533-2500.2007.00126.x.

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Fair, Brian. "Morgellons: contested illness, diagnostic compromise and medicalisation." Sociology of Health & Illness 32, no. 4 (2010): 597–612. http://dx.doi.org/10.1111/j.1467-9566.2009.01227.x.

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4

Bülow, Pia H. "Sharing Experiences of Contested Illness by Storytelling." Discourse & Society 15, no. 1 (2004): 33–53. http://dx.doi.org/10.1177/0957926504038943.

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5

Ballard, Dustin. "The Medicalization of Human Condition and Contested Illness." Emergency Medicine News 33 (January 2011): 1. http://dx.doi.org/10.1097/01.eem.0000393506.71508.cc.

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6

Cable, Sherry, Steve Kroll-Smith, Phil Brown, and Valerie J. Gunter. "Illness and the Environment: A Reader in Contested Medicine." Contemporary Sociology 32, no. 1 (2003): 78. http://dx.doi.org/10.2307/3089861.

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Johnson, Branden B. "Illness and the Environment: A Reader in Contested Medicine." Risk Analysis 23, no. 1 (2003): 238. http://dx.doi.org/10.1111/1539-6924.t01-1-00303.

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8

Tanaka, K. M. "Contested Histories and Happiness: Leprosy literature in Japan." Health, Culture and Society 5, no. 1 (2013): 99–118. http://dx.doi.org/10.5195/hcs.2013.133.

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At the turn of the twentieth century, the Japanese government passed a series of laws targeting people diagnosed with Hansen’s Disease (leprosy). As a result, many patients were quarantined in public leprosaria, often for life. In order to cope with both the diagnosis of a heavily stigmatized illness and a lifetime in isolation, patients began to write. The works produced by sufferers became so popular that by the mid-1930s their writing was referred to as a distinct literary genre, “leprosy literature.” Studies of leprosy literature have focused on its depiction of human rights violations, st

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E. Shriver, Thomas, and Dennis D. Waskul. "Managing the Uncertainties of Gulf War Illness: The Challenges of Living with Contested Illness." Symbolic Interaction 29, no. 4 (2006): 465–86. http://dx.doi.org/10.1525/si.2006.29.4.465.

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Thomas, Carol. "Negotiating the contested terrain of narrative methods in illness contexts." Sociology of Health & Illness 32, no. 4 (2010): 647–60. http://dx.doi.org/10.1111/j.1467-9566.2010.01239.x.

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Murphy, Michael, Nicholas Kontos, and Oliver Freudenreich. "Electronic Support Groups: An Open Line of Communication in Contested Illness." Psychosomatics 57, no. 6 (2016): 547–55. http://dx.doi.org/10.1016/j.psym.2016.04.006.

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Cable, Sherry, Thomas E. Shriver, and Tamara L. Mix. "Risk Society and Contested Illness: The Case of Nuclear Weapons Workers." American Sociological Review 73, no. 3 (2008): 380–401. http://dx.doi.org/10.1177/000312240807300302.

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13

Swoboda, Debra A. "The social construction of contested illness legitimacy: a grounded theory analysis." Qualitative Research in Psychology 3, no. 3 (2006): 233–51. http://dx.doi.org/10.1191/1478088706qrp061oa.

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14

Wright, Sara. "Book Review: Illness and the Environment: A Reader in Contested Medicine." Public Health Reports 117, no. 6 (2002): 587–89. http://dx.doi.org/10.1093/phr/117.6.587.

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15

Rebman, Alison W., John N. Aucott, Eric R. Weinstein, Kathleen T. Bechtold, Katherine C. Smith, and Lori Leonard. "Living in Limbo." Qualitative Health Research 27, no. 4 (2016): 534–46. http://dx.doi.org/10.1177/1049732315619380.

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Persistent, subjective symptoms of unknown etiology following treatment for Lyme disease have been termed post- treatment Lyme disease syndrome or chronic Lyme disease (PTLDS/CLD). The objective of this study was to give primacy to the patient experience of this medically contested condition by eliciting patient illness narratives and identifying emergent issues through semistructured interviews conducted among 29 participants. We used thematic narrative analysis to identify three predominant themes: (a) Physical and social limitations lead to a “new normal” characterized by fundamental shifts

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Barker, Kristin K. "Electronic Support Groups, Patient-Consumers, and Medicalization: The Case of Contested Illness." Journal of Health and Social Behavior 49, no. 1 (2008): 20–36. http://dx.doi.org/10.1177/002214650804900103.

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This article illustrates the role electronic support groups play in consumer-driven medicalization. The analysis is based on an observational study of a year in the life of an electronic support group for sufferers of the contested illness fibromyalgia syndrome. The analysis builds on and extends scholarship concerning the growing influence of lay expertise in the context of medical uncertainty by showing how the dominant beliefs and routine practices of this electronic community simultaneously (and paradoxically) challenge the expertise of physicians and encourage the expansion of medicine's

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17

Jacobson, Ginger, and Alison E. Adams. "Understanding Environmental Risk Perceptions: A Case of Contested Illness in South Florida." Sociological Inquiry 87, no. 4 (2017): 659–84. http://dx.doi.org/10.1111/soin.12175.

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18

Bland, Robert, and Michele Foster. "Families and Mental Illness: Contested Perspectives and Implications for Practice and Policy." Australian Social Work 65, no. 4 (2012): 517–34. http://dx.doi.org/10.1080/0312407x.2011.646281.

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19

Barker, Kristin K. "Gruppi di sostegno telematici, pazienti-consumatori e medicalizzazione: il caso delle patologie controverse." SALUTE E SOCIETÀ, no. 1 (May 2009): 179–202. http://dx.doi.org/10.3280/ses2009-su1015.

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- This article illustrates the role electronic support groups play in consumerdriven medicalization. The analysis is based on an observational study of a year in the life of an electronic support group for sufferers of the contested illness fibromyalgia syndrome. The analysis builds on and extends scholarship concerning the growing influence of lay expertise in the context of medical uncertainty by showing how the dominant beliefs and routine practices of this electronic community simultaneously (and paradoxically) challenge the expertise of physicians and encourage the expansion of medicine's

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20

Phillips, Tarryn. "Repressive authenticity in the quest for legitimacy: Surveillance and the contested illness lawsuit." Social Science & Medicine 75, no. 10 (2012): 1762–68. http://dx.doi.org/10.1016/j.socscimed.2012.07.026.

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21

Måseide, Per. "Sociologies of disability and illness: contested ideas in disability studies and medical sociology." Scandinavian Journal of Disability Research 11, no. 3 (2009): 233–35. http://dx.doi.org/10.1080/15017410902753979.

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22

Shriver, Thomas E., and Aysha Bodenhamer. "The enduring legacy of black lung: environmental health and contested illness in Appalachia." Sociology of Health & Illness 40, no. 8 (2018): 1361–75. http://dx.doi.org/10.1111/1467-9566.12777.

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23

Caleb, Amanda. "Contested Spaces: The Heterotopias of the Victorian Sickroom." Humanities 8, no. 2 (2019): 80. http://dx.doi.org/10.3390/h8020080.

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Both the invalid and the sickroom pervade the writings of the Victorian period, particularly in fiction, medical guidebooks, and autobiographies. The sickroom is a space that separates the invalid from the healthy space of the house and defines the invalid body as other. However, as a space that is both marginalized and central, the sickroom is molded by the medical and social views of sickness and the individualized experience of illness. This article contextualizes the Victorian sickroom by conceptualizing it through the lens of Foucault’s heterotopia of deviation, which represents the medic

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24

Snyder, Robert B., and James B. Talmage. "Medical Aspects of Causation for COVID-19." Guides Newsletter 25, no. 4 (2020): 8–11. http://dx.doi.org/10.1001/amaguidesnewsletters.2020.julaug02.

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Abstract The decision about whether a case of documented COVID-19 illness is accepted as occupationally acquired and thus work compensable is made by insurers, or if contested, by judges or administrative bureaus. Causation for COVID-19 may be difficult to show because of the lack of accurate information and difficulty in meeting some of the criteria established by Bradford Hill. Nevertheless, physicians will be asked for medical records and documentation of illness. This article provides preliminary guidance to assist physicians in responding to insurers or workers compensation agencies' requ

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25

Shriver, Thomas E., Sherry Cable, and Dennis Kennedy. "Mining for Conflict and Staking Claims: Contested Illness at the Tar Creek Superfund Site." Sociological Inquiry 78, no. 4 (2008): 558–79. http://dx.doi.org/10.1111/j.1475-682x.2008.00258.x.

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26

Clark, Shannon, and Linda Courtenay Botterill. "Contesting facts about wind farms in Australia and the legitimacy of adverse health effects." Health: An Interdisciplinary Journal for the Social Study of Health, Illness and Medicine 22, no. 4 (2017): 337–55. http://dx.doi.org/10.1177/1363459317693407.

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The development of wind energy in Australia has been subject to ongoing public debate and has been characterised by concerns over the health impacts of wind turbines. Using discursive psychology, we examine ‘wind turbine syndrome’ as a contested illness and analyse how people build and undermine divergent arguments about wind-farm health effects. This article explores two facets of the dispute. First, we consider how participants construct ‘facts’ about the health effects of wind farms. We examine rhetorical resources used to construct wind farms as harmful or benign. Second, we examine the lo

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27

Keyzer, Patrick. "Law, Environmental Illness and Medical Uncertainty: The Contested Governance of Health, by Dr Tarryn Phillips." Psychiatry, Psychology and Law 22, no. 6 (2015): 949–50. http://dx.doi.org/10.1080/13218719.2015.1113610.

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28

Mony, Annie Thébaud. "Compensation of Occupational Illnesses in France." NEW SOLUTIONS: A Journal of Environmental and Occupational Health Policy 4, no. 2 (1994): 57–61. http://dx.doi.org/10.2190/ns4.2.j.

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Workers' compensation is an insurance program in which employers pay for job-related injuries and occupational disease. This no-fault insurance coverage pays medical bills and lost wages, without assigning blame to workers or their employers. Payment is supposed to be prompt and usually covers 100 percent of medical costs and two-thirds of wages. In the United States, state departments of labor and insurance regulate coverage by this 82-year-old program. In the absence of uniform federal standards, the laws, administration, coverage, and ability to receive compensation vary widely from state t

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29

Wright, Jerome, and Limbika Maliwichi-Senganimalunje. "Pluralism and practicality: village health workers’ responses to contested meanings of mental illness in Southern Malawi." Anthropology & Medicine 27, no. 1 (2019): 32–48. http://dx.doi.org/10.1080/13648470.2018.1507103.

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30

Bülow, Pia H., and Lars-Christer Hydén. "Patient School as a Way of Creating Meaning in a Contested Illness: The Case of CFS." Health: An Interdisciplinary Journal for the Social Study of Health, Illness and Medicine 7, no. 2 (2003): 227–49. http://dx.doi.org/10.1177/1363459303007002876.

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31

Moore, Lauren Renée. "“But we're not hypochondriacs”: The changing shape of gluten-free dieting and the contested illness experience." Social Science & Medicine 105 (March 2014): 76–83. http://dx.doi.org/10.1016/j.socscimed.2014.01.009.

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32

Robertson, Steve. "Sociologies of Disability and Illness: Contested Ideas in Disability Studies and Medical Sociology - by Thomas, C." Sociology of Health & Illness 29, no. 7 (2007): 1108–9. http://dx.doi.org/10.1111/j.1467-9566.2007.01059_2.x.

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33

Phillips, Tarryn. "Debating the legitimacy of a contested environmental illness: a case study of multiple chemical sensitivities (MCS)." Sociology of Health & Illness 32, no. 7 (2010): 1026–40. http://dx.doi.org/10.1111/j.1467-9566.2010.01255.x.

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34

Allen, Barbara L. "Strongly Participatory Science and Knowledge Justice in an Environmentally Contested Region." Science, Technology, & Human Values 43, no. 6 (2018): 947–71. http://dx.doi.org/10.1177/0162243918758380.

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This article draws insights from a case study examining unanswered health questions of residents in two polluted towns in an industrial region in southern France. A participatory health study, as conducted by the author, is presented as a way to address undone science by providing the residents with relevant data supporting their illness claims. Local residents were included in the health survey process, from the formulation of the questions to the final data analysis. Through this strongly participatory science (SPS) process, the townspeople offered many creative ideas in the final report for

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35

MacLachlan, Malcolm, Rebecca Murphy, Michael Daly, and Philip Hyland. "Why it’s time to stop saying “mental illness”: A commentary on the revision of the Irish Mental Health Act." HRB Open Research 4 (March 19, 2021): 28. http://dx.doi.org/10.12688/hrbopenres.13235.1.

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The Irish Mental Health Act (2001) is undergoing revision. In 2014 an Expert Review Group recommended that the term currently used in the act “mental disorder”, should be replaced with the term “mental illness”. We argue that the proposed change, while well intentioned, contradicts the internationally adopted terminology of “mental disorder” used by the United Nations, World Health Organisation and European Commission. The term “mental illness” is atavistic, it implies an unsupported cause, it contravenes the United Nations Convention on the Rights of Persons with Disabilities (UNCRPD), and it

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36

Chrisp, TAC, S. Tabberer, and BD Thomas. "Bounded autonomy in deciding to seek medical help: Carer role, the sick role and the case of dementia." Journal of Health Psychology 18, no. 2 (2012): 272–81. http://dx.doi.org/10.1177/1359105312437265.

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Social psychological theories of illness and health decision making place the individual with the symptoms at the centre. In the case of dementia it is often a relative who is first to contact health care professionals. The article illustrates how the autonomy of both the individual with symptoms and their carers is bounded by the actions of others. An over arching theme of ‘bounded autonomy in decision making’, and four subthemes emerged. Bounded autonomy is where a person’s actions are constrained or contested by another person. There are implications for interventions to bring forward the p

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37

Jithoo, Vinitha. "Contested meanings of mental health and well-being among university students." South African Journal of Psychology 48, no. 4 (2017): 453–64. http://dx.doi.org/10.1177/0081246317731958.

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Emerging adults are an important group not only because their opinions and knowledge will determine future attitudes but also because of the emergence of mental health problems during young adulthood. In order to provide relevant support, academics, health care providers as well as policy makers need to be more cognisant of how emerging adults make meaning of their psycho-social developmental context. The objective of the study was to explore how a cohort of 150 university students made meaning of emotional well-being and mental illness, the causes of mental health problems, the negative conno

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Severin, M. J. "Acquired immunodeficiency syndrome: more than a health-related dilemma." Clinical Microbiology Reviews 2, no. 4 (1989): 425–36. http://dx.doi.org/10.1128/cmr.2.4.425.

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Many legal issues will affect the health care worker during the AIDS pandemic. These issues are now beginning to be contested in our courts. It is certain that their numbers will continue to grow in the foreseeable future. As local, state, and federal governments design and implement new laws concerning PWA, mechanisms for surveillance, and control of AIDS, new issues are sure to arise. These will undoubtedly involve persons concerned with providing service to those afflicted with this illness. The direction of health care research has already been altered by AIDS. Societal relationships have

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Williams, Simon, Ellen Annandale, and Jonathan Tritter. "The Sociology of Health and Illness at the Turn of the Century: Back to the Future?" Sociological Research Online 3, no. 4 (1998): 64–79. http://dx.doi.org/10.5153/sro.204.

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A ‘think piece’ in both style and content, this article offers some thoughts and reflections on selected themes and issues which, we believe, provide some important indicators not simply of the sociology of health and illness’ current status, but also of its future prospects. Four key themes have been chosen: (i) social inequalities in health; (ii) emotions and embodiment; (iii) (bio)technology, and finally; (iv) the shifting configuration of health care in Britain. Underlying these four themes, and running through the discussion as a whole, are two further key issues, namely, the contested na

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40

Østbye, Silje Vagli, Maria Fredriksen Kvamme, Catharina Elisabeth Arfwedson Wang, Hanne Haavind, Trond Waage, and Mette Bech Risør. "‘Not a film about my slackness’: Making sense of medically unexplained illness in youth using collaborative visual methods." Health: An Interdisciplinary Journal for the Social Study of Health, Illness and Medicine 24, no. 1 (2018): 38–58. http://dx.doi.org/10.1177/1363459318785696.

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Persistent medically unexplained symptoms have debilitating consequences for adolescents, dramatically altering their social world and future aspirations. Few studies have focused on social and moral aspects of illness experience relevant to adolescents. In this study, the aim is to explore these aspects in depth by focusing on a single case and to address how young people attempt to create social accountability in a search for meaning when facing illness and adversity. The study is based on a view of meaning as dialogically constituted during the research process, which calls for the use of c

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Hinds, Kate, and Katy Sutcliffe. "Heterodox and Orthodox Discourses in the Case of Lyme Disease: A Synthesis of Arguments." Qualitative Health Research 29, no. 11 (2019): 1661–73. http://dx.doi.org/10.1177/1049732319846170.

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In this article, we examine the arguments made by authors of published academic articles concerning the debates surrounding chronic Lyme disease (CLD). CLD is an example of a contested condition and shares problems of legitimacy with other medically unexplained conditions such as chronic fatigue syndrome. We use a critical discourse analysis (CDA) approach to understand the arguments of the authors to establish the legitimacy, or not, of a CLD diagnosis. This enabled us to make sense of the nature of the stalemate between patient groups and advocates of the medical establishment, as performed

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42

Cooper, Silvie, and Leah Gilbert. "An exploratory study of the experience of fibromyalgia diagnosis in South Africa." Health: An Interdisciplinary Journal for the Social Study of Health, Illness and Medicine 21, no. 3 (2016): 337–53. http://dx.doi.org/10.1177/1363459316677623.

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Within the conceptual framework of ‘medically-ill-defined’ conditions, this article focuses on the experiences of ‘diagnosis’ through a narrative analysis of fibromyalgia (a chronic musculoskeletal pain disorder) in South Africa. In-depth interviews were used to collect narratives from 15 participants. The findings show how the contested and confusing experience of fibromyalgia diagnosis can be understood, by viewing the interactions that patients have with their practitioners, families, peers and colleagues. The currency of fibromyalgia as a diagnosis and the inequalities present in the South

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Germov, John, and Lauren Williams. "The Sexual Division of Dieting: Women's Voices." Sociological Review 44, no. 4 (1996): 630–47. http://dx.doi.org/10.1111/j.1467-954x.1996.tb00440.x.

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This article reports the findings of focus group research on Australian women who have engaged in dieting practices to lose weight. There have been few qualitative sociological studies on dieting, despite it being a common practice among western women. From the empirical data in this study three distinct themes emerged: women participate in the perpetuation and reinforcement of the thin ideal; women clearly trade-off health in the pursuit of dieting to lose weight; and the dominant discourse of the thin ideal is not only mediated in various ways, but is also contested by a reverse discourse of

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44

Ronchetti, Caterina, Veronica Toffolutti, Martin McKee, and David Stuckler. "The quantification of the psychiatric revolution: a quasi-natural experiment of the suicide impact of the Basaglia Law." European Journal of Public Health 30, no. 3 (2020): 492–96. http://dx.doi.org/10.1093/eurpub/ckaa011.

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Abstract Background The Italian 180/1978 reform abolishing asylums is one of the most contested mental health programs ever implemented. It aimed to shift care of mental illness into the community improving outcomes and reducing expenditure. It was a model for successive deinstitutionalization initiatives across Europe and North America. However, there were longstanding concerns that, without expansion of community care, it may have deprived patients with mental illness access to support, placing them at increased risk of suicide. Methods Regression discontinuity models were used to quantify t

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Hinton, Lisa, Alison Chisholm, Beth Jakubowski, et al. "“You Probably Won’t Notice Any Symptoms”: Blood Pressure in Pregnancy—Discourses of Contested Expertise in an Era of Self-Care and Responsibilization." Qualitative Health Research 31, no. 9 (2021): 1632–44. http://dx.doi.org/10.1177/10497323211003067.

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Pregnancy is not a disease or illness, but requires clinical surveillance as life-threatening complications can develop. Preeclampsia, one such potentially serious complication, puts both mother and baby at risk. Self-monitoring blood pressure in the general population is well established, and its potential in pregnancy is currently being explored. In the context of self-monitoring, the information and guidance given to women regarding hypertension, and the literature they themselves seek out during pregnancy, are vital to perceptions of disease risk and subsequent responses to, and management

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46

Bowman, Deborah, and Joanna Bowman. "The seeing place: Talking theatre and medicine." Arts and Humanities in Higher Education 17, no. 1 (2018): 166–81. http://dx.doi.org/10.1177/1474022217732873.

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A Professor of Medical Ethics and a theatre director, also mother and daughter, talk about health, illness, suffering, performance and practice. Using the lenses of ethical and performance theory, they explore what it means to be a patient, a spectator and a practitioner and cover many plays, texts and productions: Samuel Beckett’s Not I and All That Fall, Sarah Kane’s Crave, Tim Crouch’s An Oak Tree, Enda Walsh’s Ballyturk, Annie Ryan’s adaptation of Eimear McBride’s novel A Girl Is a Half-Formed Thing, Duncan MacMillan’s People, Place and Things and Henrik Ibsen’s Hedda Gabler. These were se

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47

Stone, Louise, and Jill Gordon. "Learning to provide patient-centered care with patients with medically unexplained symptoms: a grounded theory study in Australian general practice." International Journal of Person Centered Medicine 4, no. 3 (2015): 173–79. http://dx.doi.org/10.5750/ijpcm.v4i3.411.

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Background Culture shapes the way illness is experienced and disease is understood. Patients with medically unexplained symptoms describe feeling their suffering is not valued because they lack a “legitimate” diagnosis. Doctors also describe feeling frustrated with these patients. This is particularly problematic for young general practitioners (GPs) who lack experience in managing patients with medically unexplained symptoms in primary care settings.Objectives To explore how general practice supervisors help registrars to provide patient-centered care for patients with medically unexplained.

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48

Brookes, Gavin. "Insulin restriction, medicalisation and the Internet." Communication and Medicine 15, no. 1 (2019): 14–27. http://dx.doi.org/10.1558/cam.33067.

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Diabulimia is a contested eating disorder characterised by the deliberate restriction of insulin by people with type 1 diabetes in order to lose and control body weight. This article reports the first discourse-based study of diabulimia. It employs a combination of quantitative and qualitative techniques afforded by corpus linguistics, a methodology for examining extensive collections of digitised language data, to interrogate the discourse surrounding diabulimia in an approx. 120,000-word collection of messages posted to three English-speaking online diabetes support groups. The analysis show

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49

Long, Vicky. "‘Often there is a Good Deal to be Done, But Socially Rather Than Medically’: The Psychiatric Social Worker as Social Therapist, 1945–70." Medical History 55, no. 2 (2011): 223–39. http://dx.doi.org/10.1017/s0025727300005779.

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Seeking to align psychiatric practice with general medicine following the inauguration of the National Health Service, psychiatric hospitals in post-war Britain deployed new treatments designed to induce somatic change, such as ECT, leucotomy and sedatives. Advocates of these treatments, often grouped together under the term ‘physical therapies’, expressed relief that the social problems encountered by patients could now be interpreted as symptomatic of underlying biological malfunction rather than as a cause of disorder that required treatment. Drawing on the British Journal of Psychiatric So

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50

Donnelly, S., T. Kroll, H. Mannan, C. DIX, and A. G. Wilson. "PARE0033 I’M HERE BUT I’M NOT: A PHOTOVOICE STUDY OF THE LIVED EXPERIENCE OF SELF-MANAGING RHEUMATOID ARTHRITIS." Annals of the Rheumatic Diseases 79, Suppl 1 (2020): 1302.1–1303. http://dx.doi.org/10.1136/annrheumdis-2020-eular.4198.

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Background:Rheumatoid arthritis (RA) is a widespread chronic disease affecting about 1% of the population in the West. It is characterised by pain, fatigue and inflammation that can flare-up without warning. This makes the condition difficult to predict and manage. Bury (1982) introduced the concept of chronic illness as a disruptive experience to one’s self-identity. This is often an invisible part of managing the illness and taken for granted by others, such as family members, friends and health care professionals. Thus, there is a need to raise awareness of the patients’ lived experiences o

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