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1

An Alpha-1 COPD love story. Amherst, MA: Small Batch Books, 2011.

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2

K, Levine Stacie, and American Academy of Hospice and Palliative Medicine, eds. Unipac 9: Caring for patients with chronic illnesses : dementia, COPD, and CHF. 4th ed. Glenview, IL: American Academy of Hospice and Palliative Medicine, 2012.

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3

Estate and financial planning for people living with COPD. New York, NY: Demos Medical Pub., 2013.

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4

Carter, Rick. Courage and information for life with chronic obstructive pulmonary disease: The handbook for patients, families, and care givers managing COPD (emphysema, asthmatic bronchitis, or chronic bronchitis). Onset, MA: New Technology Pub., 1999.

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5

The silver cord: A novel. Greenville, PA: Fireheart, 2003.

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6

M, Eltorai Ibrahim, Schmitt James K, and Eastern Paralyzed Veterans Association (U.S.), eds. Emergencies in chronic spinal cord injury patients. 3rd ed. Jackson Heights, NY: Eastern Paralyzed Veterans Association, 2001.

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7

Nezu, Arthur M., Christine Maguth Nezu, Stephanie H. Friedman, Shirley Faddis, and Peter S. Houts. Helping cancer patients cope: A problem-solving approach. Washington: American Psychological Association, 1998. http://dx.doi.org/10.1037/10283-000.

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8

Michelle, Buchman, ed. After the diagnosis: How patients react and how to help them cope. Clifton Park, N.Y: Delmar, 2011.

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9

Virshup, Bernard. How to cope with your doctor: A step-by-step guide for getting what you really need and want! San Bernardino, Calif: Borgo Press, 1989.

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10

Spinal tumors: Treatment guide for patients and family. Sudbury, Mass: Jones and Bartlett Publishers, 2010.

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11

Parker, James N., and Philip M. Parker. The official patient's sourcebook on spinal cord injury. Edited by Icon Group International Inc. San Diego, Calif: Icon Health Publications, 2002.

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12

Parker, James N., and Philip M. Parker. The official patient's sourcebook on the common cold. Edited by Icon Group International Inc. San Diego, Calif: Icon Health Publications, 2002.

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13

Leyson, Jose Florante J., ed. Sexual Rehabilitation of the Spinal-Cord-Injured Patient. Totowa, NJ: Humana Press, 1991. http://dx.doi.org/10.1007/978-1-4612-0467-1.

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14

Ngonyani, Joachim Burchard. Living with spinal cord injury disability. [Dar es Salaam: Peramiho Print. Press, 2008.

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15

Younis, Ahmed Ayish. The social reintegration of patients with spinal cord injury in Palestine. [s.l: The Author], 1998.

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16

Hammell, Karen Whalley. Spinal cord injury rehabilitation. London: Chapman & Hall, 1995.

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17

C, Field-Fote Edelle, ed. Spinal cord injury rehabilitation. Philadelphia, PA: F. A. Davis, 2009.

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18

Heiney, Sue P. Cancer in our family: Helping children cope with a parent's illness. 2nd ed. Atlanta, GA: American Cancer Society, 2010.

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19

Madrid), Europharmacy '93 (1993. Towards effective patient management and care in the pharmacy. London: Royal Society of Medicine Services, 1993.

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20

Sarah, Hendrickx, ed. Asperger syndrome and alcohol drinking to cope? London: Jessica Kingsley Publishers, 2008.

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21

Parker, James N., and Philip M. Parker. The official patient's sourcebook on brain and spinal cord tumors. Edited by Icon Group International Inc and NetLibrary Inc. San Diego, Calif: Icon Health Publications, 2002.

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22

Sykes, Laura. Evaluation of a hybrid walking orthosis in patients with spinal cord lesions. Manchester: University of Manchester, 1996.

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23

Dernoot, Peter Van. Helping your children cope with your cancer: A guide for parents and families. New York: Hatherleigh Press, 2002.

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24

Dorris, Michael. The broken cord. New York: HarperPerennial, 1990.

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25

Sisto, Sue Ann. Spinal cord injuries: Management and rehabilitation. St. Louis, Mo: Mosby, 2009.

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26

Frontline Advice for COPD Patients: A Monograph for COPD Patients. Snowdrift Pulmonary Foundation, 2002.

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27

Thomas, &. Good James Jr Petty. Frontline Advice for COPD Patients. Xlibris Corporation, 2005.

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28

Thomas & Good, James Jr. Petty. Frontline Advice for COPD Patients. Xlibris Corporation, 2005.

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29

Probst, Vanessa S. Rehabilitation in Copd Patients With Acute Exacerbations. Leuven University Press, 2005.

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30

Russell, Richard, Barnes Peter, and Paul Ford. Managing COPD. Springer Healthcare, 2012.

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31

Russell, Richard, Barnes Peter, and Paul Ford. Managing COPD. Springer Healthcare, 2012.

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32

Bashir, Dr Shumail, ed. Microbial Patters in Acute Severe Exacerbation of COPD Patients Requiring Ventillatory Support. AkiNik Publications, 2022. http://dx.doi.org/10.22271/ed.book.1819.

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33

Stec, Patricia Ashford. COPD clients in the emergency department: Presentation and dyspnea characteristics. 1991.

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34

American Lung Association of Southwestern Pennsylvania. Self-Help: Your Strategy for Living With Copd : A Special Handbook for Respiratory Patients. 3rd ed. Bull Publishing Company, 1992.

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35

RPE as an indirect measure of percent MVV in normal subjects and patients with COPD. 1987.

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36

Preusser, Barbara Ann. THE EFFECTS OF HIGH VERSUS LOW-INTENSITY INSPIRATORY MUSCLE INTERVAL TRAINING IN PATIENTS WITH COPD. 1992.

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37

RPE as an indirect measure of percent MVV in normal subjects and patients with COPD. 1985.

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38

Nong Foon Ruth.* Lee. Relationships between oxygen dependent COPD patients' perceived mood, symptoms, social support and their level of functioning. 1988.

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39

Rocker, Graeme M., Joanne Michaud-Young, and Robert Horton. Caring for the patient with advanced chronic obstructive pulmonary disease. Oxford University Press, 2015. http://dx.doi.org/10.1093/med/9780199656097.003.0152.

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The global prevalence of chronic obstructive pulmonary disease (COPD) is high and rising. Patients and families living with advanced disease often experience biopsychosocial symptom burdens over a long trajectory, leaving them housebound when they require support the most. Current models of care, by placing a disproportionate focus on the provision of acute and facility-based services, do little to address the complex needs of those vulnerable patients and families who struggle to easily access primary care services. This chapter provides an overview of conventional COPD treatments and highlights some newer understandings and management approaches for patients living with high symptom burden despite optimized conventional treatments, including the use of opioids. It provides some concrete examples of models of care that employ interventions and holistic approaches to care that can improve patient and family outcomes. The move towards an integrated care approach to COPD will help patients and their families reach informed decisions about their care throughout the trajectory of COPD.
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40

Pitta, Fabio. Physical Activities in Daily Life in Patients With Copd: Characterization, Impact of Acute Exacerbations & Pulmonary Rehabilitation (Acta Biomedica Lovaniensia). Leuven University Press, 2005.

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41

Carter, Rick, Richard Knowles, Jo-Von Tucker, Thomas Petty, and Brian Tiep. Courage and Information for Life with Chronic Obstructive Pulmonary Disease: The Handbook for Patients, Families and Care Givers Managing COPD, Emphysema, Bronchitis. 2nd ed. New Technology Publishing, 2001.

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42

News, PM Medical Health. 21st Century Complete Medical Guide to Chronic Obstructive Pulmonary Disease (COPD) and Emphysema, Authoritative Government Documents, Clinical References, ... for Patients and Physicians (CD-ROM). Progressive Management, 2004.

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43

Timperley, Jonathan, and Sandeep Hothi. Acute breathlessness. Edited by Patrick Davey and David Sprigings. Oxford University Press, 2018. http://dx.doi.org/10.1093/med/9780199568741.003.0012.

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Acute breathlessness or dyspnoea is the new onset of an unpleasant awareness of breathing, at rest or at a level of exercise, which did not previously cause symptoms. It is often associated with other symptoms—including wheeze, cough, chest pain, and palpitation—which, together with the patient’s comorbidities, help shape the differential diagnosis. Five disorders—decompensated heart failure, exacerbations of asthma or chronic obstructive pulmonary disease, pneumonia, and pulmonary embolism—account for 80% of diagnoses. In older patients, acute breathlessness often results from multiple interrelated pathologies (e.g. pneumonia on a background of COPD, triggering acute atrial fibrillation). This chapter describes the clinical approach to the patient presenting with acute breathlessness.
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44

Wignal, M. COPD Revolution: Patient to Patient. Independently Published, 2019.

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45

Tuxen, David V. Pathophysiology and causes of airflow limitation. Oxford University Press, 2016. http://dx.doi.org/10.1093/med/9780199600830.003.0110.

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Exacerbations of asthma or chronic obstructive pulmonary disease (COPD) can be life-threatening emergencies, and require careful management to minimize the risks of morbidity and mortality. Prompt, full bronchodilator therapy, careful observation and appropriate mechanical ventilation technique is required. Dynamic hyperinflation of the lungs occurs in all patients, and must be careful assessed and regulated. Excessive dynamic hyperinflation can result in respiratory tamponade, hypotension, circulatory failure, pneumothoraces and, in severe cases, cardiac arrest. Intravenous or continuous nebulized salbutamol commonly causes lactic acidosis that should be detected and managed. Prolonged paralysis during difficult mechanical ventilation can result in severe necrotizing myopathy. Pneumothoraces in ventilated patients with asthma are usually under tension, redistribute ventilation to the contralateral lung, and risk a second tension pneumothorax. Patients surviving mechanical ventilation for asthma and COPD have an increased risk of recurrence and death. All these problems require awareness, avoidance or detection and management
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46

Sentissi, Kinza, and Stephanie Yacoubian. Physiologic Airflow Disruption. Edited by Matthew D. McEvoy and Cory M. Furse. Oxford University Press, 2017. http://dx.doi.org/10.1093/med/9780190226459.003.0017.

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Airflow disruption can be triggered through multiple mechanisms. The obstruction can stem from within the airway lumen, airway walls, or the tissues surrounding it. This section focuses on airflow disruption initiated by bronchospasm, obstructive lung disease, asthma and status asthmaticus. Bronchospasm presents with increased airway resistance secondary to airway hyperreactivity or anaphylaxis. Asthma and chronic obstructive pulmonary disease (COPD) are obstructive and inflammatory lung pathologies. Airflow disruption in asthma is reversible between exacerbations. The airway obstruction in COPD is not fully reversible. Status asthmaticus is the most severe presentation of asthma and can be life threatening. Poorly controlled obstructive lung disease can result in perioperative complications. Patients should therefore be medically optimized before undergoing operative procedures.
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47

Davey, Patrick, Sherif Gonem, Salman Siddiqui, and David Sprigings. Chronic obstructive pulmonary disease. Edited by Patrick Davey and David Sprigings. Oxford University Press, 2018. http://dx.doi.org/10.1093/med/9780199568741.003.0134.

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The Global Initiative for Chronic Lung Disease (GOLD) states that ‘chronic obstructive pulmonary disease (COPD), a common preventable and treatable disease, is characterised by persistent airflow limitation that is usually progressive and is associated with an enhanced chronic inflammatory response in the airways and the lung to noxious particles and gases. Exacerbations and comorbidities contribute to the overall severity in individual patients.’
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48

COPE for cervical cancer: A toolbook to accompany the COPE handbook. New York, NY: EngenderHealth, 2004.

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49

Ostrander, Lee E., and Bok Y. Lee. Spinal Cord Injured Patient. Springer Publishing Company, Incorporated, 2002.

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50

Gerovasili, Vasiliki, and Serafim N. Nanas. Neuromuscular Electrical Stimulation: A New Therapeutic and Rehabilitation Strategy in the ICU. Oxford University Press, 2014. http://dx.doi.org/10.1093/med/9780199653461.003.0044.

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Many critically ill patients undergo a period of immobilization with detrimental effects on skeletal muscle, effects which seem most pronounced in the first days of critical illness. Diagnosis of intensive care unit muscle weakness (ICUAW) is often made after discontinuation of sedation when significant nerve and/or muscle damage may already have occurred. Recently, there has been interest in early mobilization during the acute phase of critical illness, with the goal of preventing ICUAW. Neuromuscular electrical stimulation (NEMS) is an alternative form of exercise that has been successfully used in patients with advanced chronic obstructive pulmonary disease (COPD) and chronic heart failure. NEMS is a rehabilitation tool that can be used in critically ill, sedated patients, does not require patient cooperation, and is therefore a promising intervention to prevent muscle dysfunction in the critically ill. When applied early during the course of critical illness, NEMS can preserve muscle morphology and function. Available evidence suggests that NEMS may have a preventive role in the development of ICUAW and could even contribute to a shorter duration of weaning from mechanical ventilation. Studies are needed to evaluate the long-term effect of NEMS and to explore NEMS settings and delivery characteristics most appropriate for different subgroups of critically ill patients.
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