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1

Schmitt, Gustel Matthias. Cystische Fibrose: Leben mit einer chronischen Krankheit. Göttingen: Hogrefe, 1991.

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2

Solomon-Scherzer, C. Ruth. Is there a need for early psychological intervention with families with children suffering from Cystic Fibrosis? =: Est-ce que l'intervention psychologique précoce est nécessaire auprès des familles d'enfants atteints de fibrose kystique? : final report. [Quebec: s.n., 1994.

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3

Psychosoziale Versorgung bei Mukoviszidose: Ergebnisse einer multizentrischen Studie. Frankfurt am Main: P. Lang, 1993.

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4

The art of dying: A jungian view of patients' drawings. Springfield, Ill: Charles C Thomas, Publishers, 1999.

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5

In the shadow of illness: Parents and siblings of the chronically ill child. Princeton, N.J: Princeton University Press, 1996.

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6

Giddings, Sharon. Cystic fibrosis. New York: Chelsea House, 2009.

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7

1953-, Cleghorn Geoffrey J., ed. Cystic fibrosis: Nutritional and intestinal disorders. Boca Raton, Fla: CRC Press, 1989.

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8

Payne, Kim. Savory solutions: A collection of unique recipes benefiting those with cystic fibrosis. Stillwater, OK: Savory Solutions, 1998.

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9

Wackym, Phillip A. Molecular temporal bone pathology, parts III and IV. Philadelphia, PA: Lippincott-Raven, 1998.

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10

1932-, Elston Robert C., ed. Multipoint mapping and linkage based upon affected pedigree members: Genetic Analysis Workshop 6, proceedings of a workshop held at Gulf Park, Long Beach, Mississippi, October 10-12, 1988. New York: Liss, 1988.

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11

Gregory, Pemberton Stephen, ed. The troubled dream of genetic medicine: Disease and ethnicity in Tay-Sachs, cystic fibrosis, and sickle cell disease. Baltimore: Johns Hopkins University Press, 2006.

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12

Wailoo, Keith. The troubled dream of genetic medicine: Ethnicity and innovation in Tay-Sachs, cystic fibrosis, and sickle cell disease. Baltimore: Johns Hopkins University Press, 2006.

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13

1960-, Williams Martha, ed. Naked before God: The return of a broken disciple. Harrisburg, Pa: Morehouse Pub., 1998.

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14

1960-, Williams Martha, ed. Naked before God: The return of a broken disciple. Harrisburg, Pa: Morehouse Pub., 2001.

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15

Association, American Diabetes, ed. American Diabetes Association guide to medical nutrition therapy for diabetes. 2nd ed. Alexandria, Va: American Diabetes Association, 2012.

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16

Bryan, Lask, Angst Denise B, and Bluebond-Langner Myra 1948-, eds. Psychosocial aspects of cystic fibrosis. London: Arnold, 2001.

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17

Bluebond-Langner, Myra. In the Shadow of Illness. Princeton University Press, 2000.

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18

A, Frizzell Raymond, ed. Physiology of cystic fibrosis. Bethesda, MD: American Physiological Society, 1999.

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19

Copeland, Shane. Acute Pancreatitis: Health Effects, Clinical Aspects and Emerging Therapies. Nova Science Publishers, Incorporated, 2016.

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20

Bush, Andrew, 1954 Apr. 24-, ed. Cystic fibrosis in the 21st century. Basel: Karger, 2006.

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21

Carsten, Schultz, ed. Defects of secretion in cystic fibrosis. New York: Springer, 2005.

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22

Moss, Richard B. Cystic Fibrosis: "Infection, Immunopathology, And Host Response". Springer, 2013.

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23

B, Moss Richard, ed. Cystic fibrosis: Infection, immunopathology, and host response. Clifton, N.J: Humana Press, 1990.

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24

Horsley, Alex, Steve Cunningham, and J. Alastair Innes, eds. Cystic Fibrosis (Oxford Respiratory Medicine Library). Oxford University Press, 2015. http://dx.doi.org/10.1093/med/9780198702948.001.0001.

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Cystic Fibrosis (CF) is a multi-system disorder, requiring not just respiratory expertise but also management of nutrition, diabetes, musculoskeletal and psychosocial issues. This online resource is a concise companion for all health care professionals who manage patients with CF, and it covers all aspects of care, including both paediatric and adult-specific issues, and summarizes up-to-date literature in a concise and focussed style. There is an emphasis on the practical aspects of management with separate chapters covering the effects of CF in the lung, the microbiology of pulmonary CF, and management of exacerbations. Psychosocial aspects of CF care, end of life care and lung transplantation are also covered, and potential future therapies reviewed. This second edition has been extensively updated to reflect the UK CF Trust Standards of Care, treatment guidelines and Cochrane reviews, and it also includes updates on emerging organisms, an expanded section on physiotherapy, and a new pharmacopeia that covers all common CF medications.
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25

United States. Congress. Office of Technology Assessment., ed. Cystic fibrosis and DNA tests: Implications of carrier screening : summary. Washington, D.C: Congress of the U.S., Office of Technology Assessment, 1992.

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26

Multipoint mapping and linkage based upon affected pedigree members: Genetic Analysis Workshop 6, proceedings of a workshop held at Gulf Park, Long Beach, ... in clinical and biological research). Liss, 1989.

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27

United States. Congress. Office of Technology Assessment., ed. Genetic counseling and cystic fibrosis carrier screening: Results of a survey. Washington, DC: Congress of the U.S., Office of Technology Assessment, 1992.

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28

US GOVERNMENT. Genetic Counseling and Cystic Fibrosis Carrier Screening: Results of a Survey (Background Paper). Office of Technology Assessment, 1992.

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29

Multipoint Mapping & Linkage Based Upon Affect Pedigree Mem. John Wiley & Sons, 1990.

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30

J, Franz Marion, Bantle John P. 1947-, and American Diabetes Association, eds. American Diabetes Association guide to medical nutrition therapy for diabetes. Alexandria, Va: American Diabetes Association, 1999.

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31

Association, American Diabetes. American Diabetes Association Guide to Medical Nutrition Therapy for Diabetes (Clinical Education Series). American Diabetes Association, 2003.

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