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Journal articles on the topic 'Decision making, placebo, patient involvement, culture'

Author: Grafiati

Published: 4 June 2021

Last updated: 6 February 2022

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1

Geers, Andrew L., Jason P. Rose, Stephanie L. Fowler, and Jill A. Brown. "Patient Involvement in Treatment Decision Making Can Help or Hinder Placebo Analgesia." Zeitschrift für Psychologie 222, no. 3 (2014): 165–70. http://dx.doi.org/10.1027/2151-2604/a000179.

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Experiments have found that choosing between placebo analgesics can reduce pain more than being assigned a placebo analgesic. Because earlier research has shown prior experience moderates choice effects in other contexts, we tested whether prior experience with a pain stimulus moderates this placebo-choice association. Before a cold water pain task, participants were either told that an inert cream would reduce their pain or they were not told this information. Additionally, participants chose between one of two inert creams for the task or they were not given choice. Importantly, we also meas

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2

Mejia, A., G. D. Smith, R. E. Curiel, W. Barker, R. Behar, and M. J. Armstrong. "Value Assessment in Healthcare Decision-Making of Ethnically and Cognitively Diverse Older Adults." Archives of Clinical Neuropsychology 34, no. 7 (2019): 1260. http://dx.doi.org/10.1093/arclin/acz029.27.

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Abstract Objective Little is known regarding the values that patients with mild cognitive impairment (MCI) incorporate into healthcare decision-making or how culture may affect such values. Even if values overlap across cultures, cultural groups may emphasize the importance of specific values differently since values emanate, at least in part, from cultural and life-long learning. The aim of this study was to explore and compare values that older adults of different ethnicities and cognitive statuses incorporate in their medical decisions. Participants and Method Four focus groups were establi

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Tan, Andy S. L., Kathleen M. Mazor, Daniel McDonald, et al. "Designing Shared Decision-Making Interventions for Dissemination and Sustainment: Can Implementation Science Help Translate Shared Decision Making Into Routine Practice?" MDM Policy & Practice 3, no. 2 (2018): 238146831880850. http://dx.doi.org/10.1177/2381468318808503.

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Shared decision making (SDM) is not widely practiced in routine care due to a variety of organizational, provider, patient, and contextual factors. This article explores how implementation science—which encourages attention to the multilevel contextual factors that influence the adoption, implementation, and sustainment of health care practices—can provide useful insights for increasing SDM use in routine practice. We engaged with stakeholders representing different organizations and geographic locations over three phases: 1) multidisciplinary workgroup meeting comprising researchers and clini

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Beltran, Susanny J. "LATINO HOSPICE PATIENTS’ INVOLVEMENT IN CARE DECISIONS AND PLANNING: FACTORS THAT SHAPE PARTICIPATION PREFERENCES." Innovation in Aging 3, Supplement_1 (2019): S927. http://dx.doi.org/10.1093/geroni/igz038.3376.

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Abstract Patient participation in care decisions is a primary tenet of patient-centered care and has been emphasized in policies and programs shaping clinical practice. Patient self-determination and involvement is associated with improved outcomes, including patient satisfaction and compliance. However, studies exploring Latino patients’ care involvement preferences find a cultural preference for limited autonomy and shared or family-based decision-making. This study describes terminally-ill older Latinos and their proxies’ preferences regarding involvement in decision-making and care plannin

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Utami, Reni Sulung, Ahmat Pujianto, Dody Setyawan, Elsa Naviati, and Nana Rochana. "Critical Care Nurses’ Experiences of End-of-Life Care: A Qualitative Study." Nurse Media Journal of Nursing 10, no. 3 (2020): 260–74. http://dx.doi.org/10.14710/nmjn.v10i3.31302.

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Background: Patients admitted to the intensive care unit (ICU) may face terminal illness situations, which may lead to death. In this case, the role of critical care nurses shifts from life-sustaining to end-of-life care (EOLC). Nurses’ involvement in EOLC varies between countries, even in one country due to differences in religion, culture, organization, laws, cases and patient quality. In Indonesia, research on EOLC in ICU has not been carried out.Purpose: This study aimed to explore the experiences of critical care nurses in providing EOLC.Methods: A qualitative study with a phenomenologica

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Manchikanti, Laxmaiah. "The Impact of Comparative Effectiveness Research on Interventional Pain Management: Evolution from Medicare Modernization Act to Patient Protection and Affordable Care Act and the Patient-Centered Outcomes Research Institute." Pain Physician 3;14, no. 3;5 (2011): E249—E282. http://dx.doi.org/10.36076/ppj.2011/14/e249.

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The Patient-Centered Outcomes Research Institute (PCORI) was established by the Affordable Care Act of 2010 to promote comparative effectiveness research (CER) to assist patients, clinicians, purchasers, and policy-makers in making informed health decisions by advancing the quality and relevance of evidence concerning the manner in which diseases, disorders, and other health conditions can effectively and appropriately be prevented, diagnosed, treated, monitored, and managed through research and evidence synthesis. The development of PCORI is vested in the Medicare Modernization Act (MMA) and

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Lang, Amy, and David Wells. "OP30 From Framework To Action: Implementing Patient Engagement." International Journal of Technology Assessment in Health Care 34, S1 (2018): 12–13. http://dx.doi.org/10.1017/s0266462318000909.

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Introduction:This session will share lessons learned from implementing a comprehensive patient and public engagement framework (developed by winners of the 2017 Egon Jonsson Award) in one government agency's health technology assessment (HTA) process. The presentation will share strategic and operational considerations for successful implementation, and the early effects of patient involvement activities on the agency's HTA recommendations.Methods:This presentation used a case study approach to understand the application of the framework described above.Results:The comprehensive framework by A

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Laohapensang, Kamphol, Robert B. Rutherford, Jitwadee Supabandhu, and Nongnuch Vanittanakom. "Vascular Pythiosis in a Thalassemic Patient." Vascular 17, no. 4 (2009): 234–38. http://dx.doi.org/10.2310/6670.2008.00073.

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Pythium insidiosum is a fungus that causes disease in both animals and humans. Human pythiosis is an emerging disease in the tropical, subtropical, and temperate regions of the world, occurring in localized and systemic or vascular forms. Most patients with arterial pythiosis have an underlying hemoglobinopathy, such as thalassemia. A case is presented of a thalassemic horse stable worker who developed an ulcerative cutaneous lesion on the lower left leg followed by progressive ascending involvement of the arteries of that extremity with a necrotizing arteritis with aneurysm formation. P. insi

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O’Hara, Rachel, Maxine Johnson, Enid Hirst, et al. "A qualitative study of decision-making and safety in ambulance service transitions." Health Services and Delivery Research 2, no. 56 (2014): 1–138. http://dx.doi.org/10.3310/hsdr02560.

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BackgroundDecisions made by front-line ambulance staff are often time critical and based on limited information, but wrong decisions in this context could have serious consequences for patients. There has been little research carried out in the ambulance service setting to identify areas of risk associated with decisions about patient care.AimThe aim of this study was to qualitatively examine potential system-wide influences on decision-making in the ambulance service setting and to identify useful areas for future research and intervention.MethodsWe used a multisite, multimethod qualitative a

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Bielinska, Anna-Maria, Stephanie Archer, Catherine Urch, and Ara Darzi. "7 Exploring healthcare professionals’ attitudes to future care planning with older adults in hospital: qualitative research co-design through multi-professional patient and carer involvement." BMJ Supportive & Palliative Care 8, no. 3 (2018): 362.2–362. http://dx.doi.org/10.1136/bmjspcare-2018-mariecurie.7.

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IntroductionDespite evidence that advance care planning in older hospital inpatients improves the quality of end-of-life care (Detering 2010) future care planning (FCP) with older adults remains to be normalised in hospital culture. It is therefore crucial to understand the attitudes of healthcare professionals to FCP in older patients in the hospital setting. Co-design with patients carers and healthcare professionals can generate more detailed meaningful data through better conversations.AimsTo co-design a semi-structured interview (SSI) topic guide to explore healthcare professionals’ attit

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XU, Hanhui. "家庭成員共同決定——儒家家庭本位思想在臨床決定中的體現". International Journal of Chinese & Comparative Philosophy of Medicine 11, № 1 (2013): 9–20. http://dx.doi.org/10.24112/ijccpm.111527.

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LANGUAGE NOTE | Document text in Chinese; abstract also in English.儒家家庭本位思想對於中國傳統社會有著極其深刻的影響，而這種影響直到今天仍然發揮著巨大的作用，並由此形成了中國特有的社會結構和家庭觀念。在中國家庭中，家庭成員之間的關係更加密切，遇到重大事情，往往會由家庭成員共同做出決定。由於這種特殊的文化氛圍，在臨床決定的時候，應該用家庭共同決定代替個人自主決定，這種模式既能保障個人權利，維護個人利益，同時也是尊重家庭決定，營造和諧的家庭關係。Family involvement in medical decision making is a common practice in China due to the influence of Confucianism, which emphasizes the family as an organic unit. Instead of speaking of the individual’s right to choose and make a decision, the Confucian model for “informed consent” calls for “family co-decision making” or “co-determination.”

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CAI, Yu. "論醫療中的家庭決策". International Journal of Chinese & Comparative Philosophy of Medicine 8, № 2 (2010): 33–45. http://dx.doi.org/10.24112/ijccpm.81490.

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LANGUAGE NOTE | Document text in Chinese; abstract also in English.本文首先通過引入“家庭決策”揚棄“家屬決策”之概念而統一了家庭、患者和家屬之意願，消弭了長久以來醫療決策領域存在的患者決策和家屬決策之矛盾與紛爭。其後，文章從中國儒家文化中的“仁愛”、“孝悌”與“家庭觀”之視角立論了家庭決策的妥當性與可行性，並在西方倫理的自由主義和主體性思想中找到了家庭決策之落腳點。This paper begins with a definition of “family decisions.” I emphasize that family decisions are made jointly by all close family members on a voluntary basis. This decision-making mechanism is designed to embody the spirit of Confucian family ethics and maximize the benefit of family involvement in medical decision making.Introducing this concept allows us to abandon the outdate

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Lamontagne, Alexandrine J., Sandra Peláez, Roland Grad, et al. "Facilitators and Solutions for Practicing Optimal Guided Asthma Self-Management: The Physician Perspective." Canadian Respiratory Journal 20, no. 4 (2013): 285–93. http://dx.doi.org/10.1155/2013/146839.

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OBJECTIVE: To identify key solutions that facilitate the prescription of long-term asthma controller and provision of written self-management plans by physicians.METHODS: One hour individualized semistructured interviews were conducted with physicians. Interviews were transcribed verbatim and analyzed independently by two trained qualitative researchers. A taxonomy of facilitators (contemplated solutions) and experienced solutions was achieved by consensus within the research team.RESULTS: Forty-two physicians (family physicians, pediatricians, emergency physicians, pulmonologists and allergis

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Ahmed, Tahera. "Editorial Vol.5(2)." Bangladesh Journal of Bioethics 5, no. 2 (2014): 43. http://dx.doi.org/10.3329/bioethics.v5i2.19621.

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The Bangladesh Journal of Bioethics is an open access journal and open to all interested and involved persons in this or related fields. The journal seeks to bring to the forefront current challenges and issues within this important sector. As a result research articles from many different countries depicting current or ongoing research, latest technological break- through, experiences from the field or literature reviews are shared with all. With the Millennium Development Goals (MDG) coming to an end in 2015, the need to assess and evaluate the progress in the 8 goals is being undertaken by

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Jacquier, Marine, Nicolas Meunier-Beillard, Fiona Ecarnot, et al. "Non-readmission decisions in the intensive care unit: A qualitative study of physicians’ experience in a multicentre French study." PLOS ONE 16, no. 1 (2021): e0244919. http://dx.doi.org/10.1371/journal.pone.0244919.

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Purpose Deciding not to re-admit a patient to the intensive care unit (ICU) poses an ethical dilemma for ICU physicians. We aimed to describe and understand the attitudes and perceptions of ICU physicians regarding non-readmission of patients to the ICU. Materials and methods Multicenter, qualitative study using semi-directed interviews between January and May 2019. All medical staff working full-time in the ICU of five participating centres (two academic and three general, non-academic hospitals) were invited to participate. Participants were asked to describe how they experienced non-readmis

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Surbone, Antonella. "Onclogists' Difficulties in Facing and Disclosing Medical Errors: Suggestions for the Clinic." American Society of Clinical Oncology Educational Book, no. 32 (June 2012): e24-e27. http://dx.doi.org/10.14694/edbook_am.2012.32.305.

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Overview: Along with improved safety measures and changes in the culture of medicine, communication is key to reducing the effect of medical errors and to easing the medical, psychologic, and existential burdens they impose on all parties. Disclosure demonstrates respect for patients' autonomy and promotes patient's involvement in informed decision making about ways to correct or alleviate the effects of the error. It also enhances oncologists' integrity and helps restore trust in the patient-doctor relationship. Because of the complexity of cancer treatments and the uncertainty regarding outc

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Reitz, Katherine Moll, Christopher W. Seymour, Jennifer Vates, et al. "Strategies to Promote ResiliencY (SPRY): a randomised embedded multifactorial adaptative platform (REMAP) clinical trial protocol to study interventions to improve recovery after surgery in high-risk patients." BMJ Open 10, no. 9 (2020): e037690. http://dx.doi.org/10.1136/bmjopen-2020-037690.

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IntroductionAs the population ages, there is interest in strategies to promote resiliency, especially for frail patients at risk of its complications. The physiological stress of surgery in high-risk individuals has been proposed both as an important cause of accelerated age-related decline in health and as a model testing the effectiveness of strategies to improve resiliency to age-related health decline. We describe a randomised, embedded, multifactorial, adaptative platform (REMAP) trial to investigate multiple perioperative interventions, the first of which is metformin and selected for it

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Pietrzykowski, Tomasz, and Katarzyna Smilowska. "The reality of informed consent: empirical studies on patient comprehension—systematic review." Trials 22, no. 1 (2021). http://dx.doi.org/10.1186/s13063-020-04969-w.

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Abstract Background Informed consent is a basic concept of contemporary, autonomy-based medical practice and facilitates a shared decision-making model for relations between physicians and patients. Thus, the extent to which patients can comprehend the consent they grant is essential to the ethical viability of medicine as it is pursued today. However, research on patients’ comprehension of an informed consent’s basic components shows that their level of understanding is limited. Methods Systemic searches of the PubMed and Web of Science databases were performed to identify the literature on i

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McDermott, Clare, Jane Vennik, Carl Philpott, et al. "Maximising recruitment to a randomised controlled trial for chronic rhinosinusitis using qualitative research methods: the MACRO conversation study." Trials 22, no. 1 (2021). http://dx.doi.org/10.1186/s13063-020-04993-w.

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Abstract Background Randomised controlled trials (RCTs) are considered the ‘gold standard’ of medical evidence; however, recruitment can be challenging. The MACRO trial is a NIHR-funded RCT for chronic rhinosinusitis (CRS) addressing the challenge of comparing surgery, antibiotics and placebo. The embedded MACRO conversation study (MCS) used qualitative research techniques pioneered by the University of Bristol QuinteT team to explore recruitment issues during the pilot phase, to maximise recruitment in the main trial. Methods Setting: Five outpatient Ear Nose and Throat (ENT) departments recr

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Persson, Maiken Hjuler, Christian Backer Mogensen, Jens Søndergaard, Helene Skjøt-Arkil, and Pernille Tanggaard Andersen. "Healthcare professionals’ practice and interactions in older peoples’ cross-sectoral clinical care trajectories when acutely hospitalized - a qualitative observation study." BMC Health Services Research 21, no. 1 (2021). http://dx.doi.org/10.1186/s12913-021-06953-9.

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Abstract Background Healthcare services have become more complex, globally and nationally. Denmark is renowned for an advanced and robust healthcare system, aiming at a less fragmented structure. However, challenges within the coordination of care remain. Comprehensive restructures based on marketization and efficiency, e.g. New Public Management (NPM) strategies has gained momentum in Denmark including. Simultaneously, changes to healthcare professionals’ identities have affected the relationship between patients and healthcare professionals, and patient involvement in decision-making was ack

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Harrison, C., J. Boivin, and G. Sofia. "P–503 Focus groups with health care professionals, patient advocates and patients to explore how the potential need for multiple cycles is managed during fertility treatment consultations." Human Reproduction 36, Supplement_1 (2021). http://dx.doi.org/10.1093/humrep/deab130.502.

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Abstract Study question How is possibility of failure and potential need for multiple cycles discussed with patients during the first or repeat IVF/ICSI treatment consultation? Summary answer Health Care Professionals plan treatment on a cycle-by-cycle basis because it is the normative way to plan treatment, but patients see advantages in multi-cycle planning. What is known already Many patients need more than one round of IVF/ICSI stimulation to achieve their parenthood goals. A recent study has found around 60% of patients to be willing to plan for multiple cycles of treatment. However, it i

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Harrison, C., J. Boivin, and G. Sofia. "P-503 Focus groups with health care professionals, patient advocates and patients to explore how the potential need for multiple cycles is managed during fertility treatment consultations." Human Reproduction 36, Supplement_1 (2021). http://dx.doi.org/10.1093/humrep/deab125.060.

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Abstract Study question How is possibility of failure and potential need for multiple cycles discussed with patients during the first or repeat IVF/ICSI treatment consultation? Summary answer Health Care Professionals plan treatment on a cycle-by-cycle basis because it is the normative way to plan treatment, but patients see advantages in multi-cycle planning What is known already Many patients need more than one round of IVF/ICSI stimulation to achieve their parenthood goals. A recent study has found around 60% of patients to be willing to plan for multiple cycles of treatment. However, it is

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Johnson, Sophia Alice. "‘Getting Personal’: Contemplating Changes in Intersubjectivity, Methodology and Ethnography." M/C Journal 18, no. 5 (2015). http://dx.doi.org/10.5204/mcj.1019.

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Introduction In the following self-reflexive (examining my own experiences) piece I discuss the methodology of my PhD thesis which, completed in 2014 (Johnson On a Tightrope), focused on how women negotiate, reject and embody the expectations associated with contemporary pregnancy and mothering. In this qualitative research project I examined the types of pregnancy and parenting practices (defined as those practices undertaken to manage and maximise the success of women’s pregnancies and parenting) women engage in with reference to contemporary sources of information. Central to this, I studie

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