Journal articles: 'Disability narrative'

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Bérubé, Michael. "Disability and Narrative." PMLA/Publications of the Modern Language Association of America 120, no. 2 (March 2005): 568–76. http://dx.doi.org/10.1632/s0030812900167914.

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After a decade of working in disability studies, I still find myself surprised by the presence of disability in narratives I had never considered to be “about” disability—in animated films from Dumbo to Finding Nemo; in literary texts from Huckleberry Finn to Joan Didion's Play It As It Lays; and, most curiously, even in the world of science fiction and superheroes, a world that turns out to be populated by blind Daredevils, mutant supercrips, and posthuman cyborgs of all kinds. Indeed, I now consider it plausible that the genre of science fiction is as obsessed with disability as it is with space travel and alien contact. Sometimes disability is simply underrecognized in familiar sci-fi narratives: ask Philip K. Dick fans about the importance of disability in Do Androids Dream of Electric Sheep? and you'll probably get blank stares. But the Voigt-Kampff empathy test by which the authorities distinguish humans from androids was, Dick tells us, actually developed after World War Terminus to identify “specials,” people neurologically damaged by radioactive fallout, so that the state could prevent them from reproducing. That aspect of the novel's complication of the human-android distinction is lost in the film Blade Runner, but the film does give us an engineer with a disability that involves premature aging, which links him intimately to the androids who have life spans of only four years.

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Dunn, Dana S., and Shane Burcaw. "Disability identity: Exploring narrative accounts of disability." Rehabilitation Psychology 58, no. 2 (May 2013): 148–57. http://dx.doi.org/10.1037/a0031691.

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Engel, David M., and Frank Munger. "Narrative, Disability, and Identity." Narrative 15, no. 1 (2007): 85–94. http://dx.doi.org/10.1353/nar.2007.0004.

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Grue, Jan. "Ablenationalists Assemble." Journal of Literary & Cultural Disability Studies: Volume 15, Issue 1 15, no. 1 (February 1, 2021): 1–17. http://dx.doi.org/10.3828/jlcds.2021.1.

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Superheroes are often disabled, either literally or metaphorically. Their exceptional powers and abilities may be balanced by weakness in order to engender audience sympathy or identification, or to provide a source of narrative obstacles. Although superhero stories are not necessarily about disability, they have become one of the most accessible and popular formats in which disability is a consistently salient trope and integral part of the narrative machinery. The article argues that the use of disability in current superhero narratives, exemplified by the Marvel Cinematic Universe (MCU), is best understood through the theoretical lens of narrative prosthesis and ablenationalism. In the MCU, a core function of disability is to provide heroes with a yearning for normality and a desire to be productive members of a community. The interlinked narratives of the MCU effectively depict many of its protagonists as supercrips, framing disability as intrinsically linked to a heroic struggle to fit in with non-disabled society.

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Butler, Samantha. "Review of Malhotra & Rowe, Exploring Disability Identity and Disability Rights through Narratives." Canadian Journal of Disability Studies 5, no. 3 (October 31, 2016): 135. http://dx.doi.org/10.15353/cjds.v5i3.300.

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In their book, Exploring Disability Identity and Disability Rights through Narratives, Ravi Malhotra and Morgan Rowe show the importance of the in-depth narrative method in discerning the personal affects of oppression on the lives of disabled persons. Through the stories of the 12 disabled post-secondary students with physical impairments in their study, Malhotra and Rowe reveal the relationship between rights advocacy and personal identity.

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Couser, G. Thomas. "Disability, Life Narrative, and Representation." PMLA/Publications of the Modern Language Association of America 120, no. 2 (March 2005): 602–6. http://dx.doi.org/10.1632/s0030812900167975.

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Disability is an inescapable element of human existence and experience. Although it is rarely acknowledged as such, it is also a fundamental aspect of human diversity. It is so, first, in the sense that, worldwide, an enormous number of people are disabled. The proportion of disabled people in different national populations varies significantly with factors such as economic development, quality and availability of health care, and the age distribution of the population. (In the United States, people with disabilities make up the population's largest minority: Census 2000 found nearly twenty percent of the population over five years of age to be affected by some sort of disability [United States, Census Bureau].) Furthermore, because of the way this minority is constituted, it is arguably more diverse than those of race, gender, class, and sexual orientation. Disabilities may affect one's senses or one's mobility; they may be static or progressive, congenital or acquired, formal (affecting the shape of the body) or functional, visible or invisible.

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Minich, J. A. "Disability, Losers, and Narrative Remediation." Comparative Literature 66, no. 1 (March 10, 2014): 35–42. http://dx.doi.org/10.1215/00104124-2414914.

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Michie, Marsha, and Debra Skinner. "Narrating Disability, Narrating Religious Practice: Reconciliation and Fragile X Syndrome." Intellectual and Developmental Disabilities 48, no. 2 (April 1, 2010): 99–111. http://dx.doi.org/10.1352/1934-9556-48.2.99.

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Abstract This article examines the place of religion in the narratives of mothers of children with fragile X syndrome. In semistructured interviews, a majority of women combined narratives of religious practice with illness narratives, interpreting their children's disabilities within a religious framework. Informed by Arthur Frank's (1995) concept of “wounded storytellers,” the authors articulate a reconciliation narrative that mothers commonly used to describe their transition from viewing disability as a burden or challenge to seeing it as a blessing, or as a part of God's purpose or plan for their lives. The authors discuss the significance of narrative for better understanding religious perspectives on disability and conclude with the implications of these findings for practitioners and future research.

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Trevisan, Filippo. "Crowd-sourced advocacy: Promoting disability rights through online storytelling." Public Relations Inquiry 6, no. 2 (May 2017): 191–208. http://dx.doi.org/10.1177/2046147x17697785.

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This article sheds light on the emergent advocacy technique of building policy counter-narratives by crowd-sourcing, organizing, and disseminating personal life stories online. Focusing on the case of disability rights groups in the United Kingdom, this article uses qualitative in-depth content analysis to examine 107 blog posts containing personal disability stories published in 2012–2013 by two anti-austerity groups. Although each of these groups managed its blogs differently, with one carefully curating stories and the other publishing crowd-sourced narratives without any form of editing, they generated virtually identical counter-narratives. These accounts challenged the dominant news narrative that presented disability welfare claimants as ‘cheats’ and ‘scroungers’. They did so by retaining the overarching structure of the dominant narrative – which functioned as the de facto coordinating mechanism for the crowd-sourced counter-narrative – and replacing its content with three alternative arguments drawn from personal life stories. The implications of this new advocacy technique for disabled people and other marginalized groups are discussed. This includes considerations about the development of a form of story-based advocacy that is both effective and respectful of the people who ‘lend’ their lived experiences for advocacy purposes. This article concludes by highlighting the need for research to investigate whether the new voices that emerge through these processes are ‘being heard’ and can successfully re-frame public discourse about sensitive policy issues.

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Niemeijer, Alistair, and Merel Visse. "Challenging Standard Concepts of ‘Humane’ Care through Relational Auto-Ethnography." Social Inclusion 4, no. 4 (November 10, 2016): 168–75. http://dx.doi.org/10.17645/si.v4i4.704.

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What is deemed ‘good’ or ‘humane’ care often seems to be underpinned by a standard ideal of an able-bodied, autonomous human being, which not only underlies those ‘social and professional structures within which narratives and decisions regarding various impairments are held’ (Ho, 2008), but also co-shapes these structures. This paper aims to explore how a relational form of auto-ethnography can promote good care. Rather than being based on and focused toward this standard ideal, it challenges ‘humanity’ by showing how illness narratives, public discourse, and policy are framed by ethical questions. It illustrates how normative ideas dictate policy and public discourse. It critically questions this constitutive power by shifting attention to the lived experiences of people with chronic illness and disability. By highlighting and reflecting together on the first author’s life with a chronic illness and his son’s disability, and thereby framing the narrative, it will be argued that, in order to improve care practices, personal illness and disability narratives and the way they interlock with public narrative and auto-ethnographic methodologies should be investigated.

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Pohjola, Hanna, and Merja Tarvainen. "Identity and Masculinity in Two Cases of Early-Onset Disability Autobiography." Narrative Works 9, no. 2 (April 19, 2021): 71–87. http://dx.doi.org/10.7202/1076526ar.

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This article examines the construction of identity and masculinity in two cases of disability autobiography. Retrospectively written autobiographical accounts of early-onset disability were analyzed abductively by using the model of narrative circulation (MNC), with a thematic content analysis being used to organize the data. Both narrators constructed their adult identity as men in relation to the available disability narratives and living conditions. Three intertwined dimensions regarding the construction of identity could be observed: external expectations, internal intentions, and locally situated narratives of work. The narratives may be considered to represent an alternative way to bypass, overcome, and refresh the culturally dominant stock of stories.

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Cattell, Alec. "“Hopefully I Won’t Be Misunderstood.” Disability Rhetoric in Jürg Acklin’s Vertrauen ist gut." Humanities 7, no. 3 (July 17, 2018): 71. http://dx.doi.org/10.3390/h7030071.

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This essay brings together the fields of German literature, disability studies, and rhetoric in an analysis of the rhetorical strategies and representational implications of disability in Jürg Acklin’s 2009 novel Vertrauen ist gut. Resting on the theory of complex embodiment, the analysis considers the rhetoric of anmut as a literary strategy that invites readers to share imperfect, yet profound, embodied rhetorical connections with the protagonist without rendering invisible the differences that shape embodied experience. Although the characters in Vertrauen ist gut are fictional, this novel provides important insights regarding experiences of precarious embodiment and affirms the value of interdependence while challenging ideals of autonomy and independence. Furthermore, the novel’s narrative within a narrative—and the consequences of the narrator’s interpretation of their significance—challenges readers to use caution when interpreting literary narratives, as their relationship to personal narratives may not always be straightforward.

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Baumgartner, Chelsea Fay. "Bodies of Knowledge: Politics of Archive, Disability, and Fandom." Canadian Journal of Disability Studies 8, no. 2 (April 28, 2019): 221–46. http://dx.doi.org/10.15353/cjds.v8i2.499.

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The work of critical theory cannot stop when it leaves the classroom, but must encompass the lived experience of the everyday. This essay combines personal narrative, disability theory, and a discussion of archiving strategies to question the boundaries of disability, injury and impairment. Although fandom has an interesting and constructive relationship with disability, injury, and impairment, this paper does not focus on individual fan-works that feature these topics. This essay is instead an examination of the macro-structure of two different archives: TV Tropes and Archive of Our Own. TV Tropes is an informal encyclopedia of narrative devices that uses community engagement to read narratives in a critical yet accessible way. Employing the macro-structure organization of the database, users frame the linkage of pity and disability in an atypical manner that subverts mainstream ableist assertions. This shows us that the structure of the archive allows for opportunities to resist oppressive ideologies. Rather than subverting official archival methods, Archive of Our Own instead provides space for users to create intersectional spaces through personally generated tags. While these websites are examples of how diverse archival strategies can positively engage with disability narratives, the decision to separate the labels of disability and injury is indicative of tensions around the categorization of the body. Examining how the division can be broken in both theory and fandom creates new, productive models of activism.

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Belser, Julia Watts. "Disability and the Social Politics of “Natural” Disaster." Worldviews 19, no. 1 (2015): 51–68. http://dx.doi.org/10.1163/15685357-01901004.

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The stories we tell about crisis and catastrophe often intensify structural violence, augmenting existing dynamics of racism, sexism, classism, and ableism. Disaster stories often reinforce cultural narratives of suffering womanhood and tragic stories of disability to portray people with disabilities—especially women—as “natural” and “inevitable” victims of a harsh new world. Examining both contemporary rhetoric in the wake of Hurricane Katrina and classical rabbinic Jewish narrative, I argue that tales of communities in crisis commonly depoliticize disaster. By inscribing the disabled body with a narrative of “natural” vulnerabilities and inevitable suffering, conventional disaster discourse obscures the political significance of structural inequalities that render people with disabilities more at risk in disaster. Bringing together disability studies scholarship and Jewish feminist ethics, I challenge the discursive tendency to portray disabled individuals as symbols of suffering—and to focus on the pathos of an individual in distress instead of critiquing social inequality. I advocate a constructive, redemptive storytelling that illuminates and critiques social and political exclusion, that underscores the agency and dignity of people in crisis, that valorizes the disability justice movement’s call for interdependence in community, and that captures the artistry and resiliency of disabled lives.

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ESTIGARRIBIA, BRUNO, GARY E. MARTIN, JOANNE E. ROBERTS, AMY SPENCER, AGNIESZKA GUCWA, and JOHN SIDERIS. "Narrative skill in boys with fragile X syndrome with and without autism spectrum disorder." Applied Psycholinguistics 32, no. 2 (March 25, 2011): 359–88. http://dx.doi.org/10.1017/s0142716410000445.

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ABSTRACTWe examined recalled narratives of boys with fragile X syndrome with autism spectrum disorder (FXS-ASD; N = 28) and without ASD (FXS-O; N = 29), and compared them to those of boys with Down syndrome (N = 33) and typically developing (TD) boys (N = 39). Narratives were scored for mentions of macrostructural story grammar elements (introduction, relationship, initiating events, internal response, attempts/actions, and ending). We found that narrative recall is predicted by short-term memory and nonverbal mental age levels in almost all groups (except TD), but not by expressive syntax or caregiver education. After adjusting for these covariates, there were no differences between the three groups with intellectual disability. The FXS-ASD group, however, had significantly poorer performance than the TD group on the overall story grammar score, and both the FXS-O and FXS-ASD groups had lower attempts/actions scores than the TD group. We conclude that some form of narrative impairment may be associated with FXS, that this impairment may be shared by other forms of intellectual disability, and that the presence of ASD has a significantly detrimental effect on narrative recall.

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Hutton, Mathew, Philip Bohle, and Maria Mc Namara. "Disability and Job Search Among Older Workers: A Narrative Review." International Journal of Disability Management 7 (October 30, 2012): 27–34. http://dx.doi.org/10.1017/idm.2012.6.

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This article reviews published research on the effects of disability, age and gender on the job search process. Electronic databases (Medline [via Ovid], OT Seeker, CINAHL, AMED, and Proquest 5000) were used to identify studies focusing on job search and employment, disability, age, gender and other barriers to workforce participation. There has been extensive research on the effects of age and gender on the job search process, and the available evidence indicates that disability, age and gender play significant roles in shaping the job search processes of older workers. However, there has been little rigorous investigation of the role of disability and research specifically examining the relationships between disability, job search behaviours and employment outcomes was not identified. This is a significant gap in the literature on disability and participation in the labour market. Overall, this narrative review indicates that older workers with a disability face multiple disadvantages when seeking work, which impairs their ability to fully engage in the labour market.

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John, Aesha, and Lucy E. Bailey. "Multiple selves." Storytelling in the Digital Age 27, no. 2 (October 6, 2017): 357–77. http://dx.doi.org/10.1075/ni.27.2.08joh.

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Abstract The paper presents findings from narrative analyses of interviews with 16 Gujarati women caring for a child with an intellectual disability in a midsized city in India. Participants’ mothering narratives articulate the multiple selves (or identities) they have constructed in the context of their child’s disability. In efforts to align with the cultural discourse on good mothering, women in this study sometimes narrate themselves as knowledge bearers and as agents, as people who labor and triumph over difficult circumstances, but at other times vulnerable and victimized as they navigate both their daily responsibilities and the social expectations and discourses regarding mothering. The identity narratives educate the audience of what mothering a child with an intellectual disability means in this unique sociocultural context.

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Kusumastuti, Frida, Jeanne Leonardo, and Radityo Widiatmojo. "NARASI TENTANG AUTISM DI FACEBOOK (Studi Autoetnografi pada Status K.W)." Interaksi: Jurnal Ilmu Komunikasi 8, no. 2 (December 11, 2019): 57. http://dx.doi.org/10.14710/interaksi.8.2.57-67.

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The narrative of a mother who is directly involved in living with a child with an autistic child's lifetime is worth noting because it can complement the narrative of the Professionals (doctors, psychiatrists, psychologists, educators). Especially if the narrative is done openly on social media such as Facebook. Social Media gives the opportunity of public voices that were originally being repossessed by large narratives. Thus the purpose of this research is to interpret the narrative of the subject about autism based on daily experience (everyday life). Narrative is the way someone tells his experience. The narrative about Autism, commonly referred to as "disability", is not necessarily the same as the people's narration or family. The narrative of experts and the general public about defects is often done in a dichotomistic, i.e. only when defects – including autism – are seen as sadness or suffering, and when a defective individual is successful with extraordinary achievement. This research was conducted on a Facebook social account, which is a KW account – a single-parent mother claiming to have five children, of which three of them (15 years old, 10 years old and 7 years old) were autistic. The choice on the subject of the study because the KW handled the children's autism with a full involvement with no shadower nor professional caregiver. Secondly, KW is capable of conducting autism narrative through social media (Facebook) which is open. The results showed (1) Narrative about the nature, attitudes, and principles of Autism, (2) narrative on the achievement of autism.

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Garland-Thomson, R. "Narrative Prosthesis: Disability and the Dependencies of Discourse." American Literature 78, no. 2 (June 1, 2006): 411–12. http://dx.doi.org/10.1215/00029831-2006-018.

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Smith, Brett, and Andrew C. Sparkes. "Narrative and its potential contribution to disability studies." Disability & Society 23, no. 1 (December 5, 2007): 17–28. http://dx.doi.org/10.1080/09687590701725542.

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Carr, Diane. "Bodies That Count: Augmentation, Community, and Disability in a Science Fiction Game." Journal of Literary & Cultural Disability Studies: Volume 14, Issue 4 14, no. 4 (October 1, 2020): 421–36. http://dx.doi.org/10.3828/jlcds.2020.28.

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The article examines the overlaps between disability studies and digital game studies through an analysis of the science fiction digital game Deus Ex: Mankind Divided. Using an adaptation of Mitchell and Snyder’s work on disability and narrative prosthesis in literature, the power implied by erasure-by-metaphor is considered, as are issues of migration, appropriation, and the grotesque. By examining ability, disability, and tangibility in relation to the game’s rules, game-play, and narrative elements, this analysis demonstrates the relevance of disability theory to science fiction games.

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Huff, Joyce L. "Disability Discourse: Disability, Human Rights and Society, and: Narrative Prosthesis: Disability and the Dependencies of Discourse (review)." NWSA Journal 14, no. 3 (2002): 201–4. http://dx.doi.org/10.1353/nwsa.2003.0008.

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McParland, James. "Narrative therapy in a learning disability context: a review." Tizard Learning Disability Review 20, no. 3 (July 6, 2015): 121–29. http://dx.doi.org/10.1108/tldr-08-2014-0028.

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Purpose – Narrative therapy is aligned with government priorities for learning disabilities as it promotes inclusion and seeks to empower. While research on narrative therapy in learning disability services is emerging, it has not been critically evaluated. The purpose of this paper is to identify, summarise and critique the extant literature that has explored narrative therapy for adults with learning disabilities, and consider the implications for research and clinical practice. Design/methodology/approach – A literature search identified seven relevant case studies that described individual narrative therapy interventions for adults with learning disabilities. A qualitative review of these studies was carried out. Findings – Overall, the reviewed studies offer tentative evidence for the short-term usefulness of narrative therapy for difficulties with anger and qualitative benefits for ritualistic behaviour, social anxiety and stealing behaviour. Research limitations/implications – A number of methodological issues are identified, particularly concerning the use of outcome measures and the generalisability of findings. The research is limited due to a reliance on case study evidence and outcome measures that lack validity and reliability. Both larger scale and more robust research, and high quality practice-based evidence, are required. Practical implications – Learning disability services could consider providing narrative therapy for people with learning disabilities experiencing anger problems and other psychological difficulties. Clinical practice suggestions are identified, such as choosing relevant metaphors and including the individual’s wider system. Originality/value – This paper provides an up-to-date, comprehensive review of the literature on narrative therapy for people with learning disabilities that will be of use to clinicians providing therapeutic support and to people commissioning such services.

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Barton-Hulsey, Andrea, Rose A. Sevcik, and MaryAnn Romski. "Narrative Language and Reading Comprehension in Students With Mild Intellectual Disabilities." American Journal on Intellectual and Developmental Disabilities 122, no. 5 (September 1, 2017): 392–408. http://dx.doi.org/10.1352/1944-7558-122.5.392.

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Abstract Past research shows positive correlations between oral narrative skill and reading comprehension in typically developing students. This study examined the relationship between reading comprehension and narrative language ability of 102 elementary students with mild levels of intellectual disability. Results describe the students' narrative language microstructure and relative strengths and weaknesses in narrative macrostructure. Students' narrative macrostructure accounted for significant variance in reading comprehension beyond what was accounted for by narrative microstructure (i.e., mean length of utterance in morphemes, number of different words, total utterances). This study provides considerations for measuring narrative quality when characterizing the functional language skills of students with mild levels of intellectual disability. Measurement tools that quantify the quality of language provide important information regarding targets of intervention beyond grammar and vocabulary.

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Perrier, Marie-Josée, Shaelyn M. Strachan, Brett Smith, and Amy E. Latimer-Cheung. "Narratives of Athletic Identity After Acquiring a Permanent Physical Disability." Adapted Physical Activity Quarterly 31, no. 2 (April 2014): 106–24. http://dx.doi.org/10.1123/apaq.2012-0076.

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Individuals with acquired physical disabilities report lower levels of athletic identity. The objective of this study was to further explore why athletic identity may be lost or (re)developed after acquiring a physical disability. Seven women and four men (range = 28–60 years) participated in approximately 1-hour-long semi-structured interviews; data were subjected to a narrative analysis. The structural analysis revealed three narrative types. The nonathlete narrative described physical changes in the body as reasons for diminished athletic identity. The athlete as a future self primarily focused on present sport behavior and performance goals such that behavior changes diminished athletic identity. The present self as athlete narrative type focused on the aspects of their present sport involvement, such as feedback from other athletes and skill development, which supported their athletic identity. Implications of these narrative types with respect to sport promotion among people with acquired physical disabilities are discussed.

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Parayre, Catherine. "“Madness” and Desire: Jane Eyre and Wittgenstein’s Nephew." Brock Review 10, no. 2 (June 15, 2009): 1–9. http://dx.doi.org/10.26522/br.v10i2.48.

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This comparative study of “madness” applies David Mitchell’s concept of “narrative prosthesis,” by which is meant that “disability has been used throughout history as a crutch on which literary narratives lean for their representational power,” to Jane Eyre by Charlotte Brontë and Wittgenstein’s Nephew by the Austrian writer Thomas Bernhard. In particular, it examines the ways in which cognitive disability in one character is instrumental in the development and success of other characters’ undertakings, and argues that the treatment of madness highlights first and foremost the two novels’ emphasis on social achievement.

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Ojrzyńska, Katarzyna. "Nabil Shaban’s Dialogue with the Non-Disabled Centre." Tekstualia 4, no. 51 (December 19, 2017): 163–76. http://dx.doi.org/10.5604/01.3001.0013.3557.

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The article centres on the literary output of the Jordanian-British artist Nabil Shaban. In his texts, Shaban often rewrites various historical and popular narratives from the perspective of a person with a disability. This strategy, for instance, involves the investigation of the lives of certain historical fi gures, such as Ivar the Boneless, whom Shaban brings out of the disability closet. The concept of what may be termed „writing back to the non-disabled centre” is also conspicuous in Shaban’s rewritings of popular narratives, the best example being the parody of a zombie apocalypse narrative in the screenplay entitled Hoodies and the Crips. Taking recourse to such concepts as Julia Kristeva’s „the abject”, Barbara Creed’s „monstrous feminine” and Tobin Siebers’s „disability drag”, the article examines the subversive strategies used by Shaban in order to enter a dialogic relationship with non-disabled culture and history.

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Su Jung Um. "Potentials and Possibilities of Narrative Inquiry in Disability Research." Korean Journal of Visual Impairment 33, no. 2 (June 2017): 79–103. http://dx.doi.org/10.35154/kjvi.2017.33.2.79.

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Westerveld, Marleen F., and Gail T. Gillon. "Oral narrative intervention for children with mixed reading disability." Child Language Teaching and Therapy 24, no. 1 (February 2008): 31–54. http://dx.doi.org/10.1177/0265659007084567.

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Mhaka‐Mutepfa, Magen. "Unfitting Stories: Narrative approaches to disease, disability and trauma." International Journal of Disability, Development and Education 56, no. 3 (September 2009): 307–8. http://dx.doi.org/10.1080/10349120903102353.

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Harter, Lynn M., Jennifer A. Scott, David R. Novak, Mark Leeman, and Jerimiah F. Morris. "Freedom Through Flight: Performing a Counter-Narrative of Disability." Journal of Applied Communication Research 34, no. 1 (February 2006): 3–29. http://dx.doi.org/10.1080/00909880500420192.

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Lovesey, Oliver. "Disenabling Fame: Rock ‘n’ Recovery Autobiographies and Disability Narrative." a/b: Auto/Biography Studies 26, no. 2 (January 2011): 297–322. http://dx.doi.org/10.1080/08989575.2011.10846811.

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Day, Christine, Alexandra Lampraki, Dean Ridings, and Karen Currell. "Intellectual disability and substance use/misuse: a narrative review." Journal of Intellectual Disabilities and Offending Behaviour 7, no. 1 (March 14, 2016): 25–34. http://dx.doi.org/10.1108/jidob-10-2015-0041.

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Purpose – The purpose of this paper is to provide a narrative review of the literature on substance use/misuse within an intellectual disability (ID) population. The paper is focused on the prevalence, motivation and implications of substance use as well as the interventions for misuse. Design/methodology/approach – Research focused on substance use and ID (IQ of 70 or less with onset in the developmental period) were considered. Findings – The findings indicate a disparity between research findings regarding the prevalence of substance use/misuse within ID populations. Previous research indicates that individuals with ID may use/misuse substances as a form of relief or respite from negative experiences. Although there is a clear need for intervention, many of the ID population do not engage with generic interventions for substance misuse. Additionally, professionals responsible for the provision of interventions identify a lack of training and support to meet the needs of ID populations. Research limitations/implications – Minimal research in this areas, barriers to language and demographics being underreported. Practical implications – Highlights problems with the current evidence base and barriers this poses indicates a need for further research and intervention. Social implications – Implications for the equality for individuals with an ID and their access to appropriate intervention. Focus on prevention of offending behaviour and intervention as appose to management. Originality/value – In order to build a greater understanding of this issue, a shared universal language and definition of ID must be implemented. Further research to improve the understanding of why those with ID misuse substances is imperative before designing and implementing useful interventions.

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Loja, Ema. "Reading embodied citizenship: disability, narrative, and the body politic." Disability & Society 29, no. 2 (January 10, 2014): 334–36. http://dx.doi.org/10.1080/09687599.2013.864850.

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Hustis, Harriet. "“Universal Mixing” and Interpenetrating Standing." Nineteenth-Century Literature 69, no. 1 (June 1, 2014): 26–55. http://dx.doi.org/10.1525/ncl.2014.69.1.26.

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Harriet Hustis, “‘Universal Mixing’ and Interpenetrating Standing: Disability and Community in Melville’s Moby-Dick” (pp. 26-55) This essay examines whether the representation of disability and community in Herman Melville’s Moby-Dick (1851) is limited to the narcissistic determinism of Ahab. It argues that although Ahab perceives his disability as unusual, when set against the backdrop of the novel and the realities of the whaling profession in the nineteenth century, it is not. The essay claims that Ishmael’s status as “Isolatoe” is redefined through his act of narrative remembrance and his function as storyteller. Ultimately, the essay concludes that Ishmael’s retrospective offers a unique gloss on the interruptive nature of disability and its moral and narrative implications.

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Noson, Kate. "Fromsuperabilitàtotransabilità: towards an Italian disability studies." Modern Italy 19, no. 2 (May 2014): 135–45. http://dx.doi.org/10.1080/13532944.2014.910503.

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This article discusses recent academic and theoretical approaches to disability in Italy, situating them in relation to Anglo-American disability studies as well as within the Italian academic context, and sketches out the contours of an emergent Italian disability studies. The discussion centres on three terms that have emerged recently in Italy:superabilità(implying both ‘ability to overcome’ and ‘exceptional ability’);diversabilità(being ‘differently abled’); andtransabilità(the desire for, or identification with, a disabled body by a non-disabled subject). The article considers the role of narrative in each of these categories, as well as the way that each deals with the question of limits. While discourses in each category construct or confirm a strong disabled identity, the article argues thattransabilitàmight also be understood as the transcendence of identity on the basis of ability. This alternative understanding puts pressure on the question of identity itself and challenges the very need for narrative (re)construction.

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Flynn, Susan. "Rethinking Debates in Narrative Methods: Narrative Orthodoxy and Research Challenges with Children with Intellectual Disability." Scandinavian Journal of Disability Research 21, no. 1 (2019): 167–76. http://dx.doi.org/10.16993/sjdr.613.

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Gibson, Richard. "Graphic illustration of impairment: science fiction, Transmetropolitan and the social model of disability." Medical Humanities 46, no. 1 (September 18, 2018): 12–21. http://dx.doi.org/10.1136/medhum-2018-011506.

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The following paper examines the cyberpunk transhumanist graphic novel Transmetropolitan through the theoretical lens of disability studies to demonstrate how science fiction, and in particular this series, illustrate and can influence how we think about disability, impairment and difference. While Transmetropolitan is most often read as a scathing political and social satire about abuse of power and the danger of political apathy, the comic series also provides readers with representations of impairment and the source of disability as understood by the Social Model of Disability (SMD). Focusing on the setting and fictional world in which Transmetropolitan takes place, as well as key events and illustration styling, this paper demonstrates that the narrative in this work encompasses many of the same theoretical underpinnings and criticisms of society’s ignorance of the cause of disability as the SMD does. This paper aims, by demonstrating how Transmetropolitan can be read as an allegory for the disabling potential of society as experienced by individuals with impairments, to prompt readers into thinking more creatively about how narratives, seemingly unconcerned with disability, are informed and can be understood via disability theory.

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Kazemi, Sona. "Whose Disability (Studies)?" Canadian Journal of Disability Studies 8, no. 4 (July 1, 2019): 195–226. http://dx.doi.org/10.15353/cjds.v8i4.530.

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This article is part of a larger inquiry into the production of disabled bodies due to violence. I examine processes of disablement in the global south, namely Iran and Iraqi Kurdistan, by wars launched and nurtured by both the local nation-states in the Middle East as well as the global north - the United States, Russia, and Western Europe. Utilizing a dialectical and historical materialist approach, I studied the Iran-Iraq war, the longest war of the 20th century. I explore how the disablement of global southern bodies in imperialist and nationalist wars is persistently naturalized – that is, attributed to the natural state of affairs in those regions, with the inevitable consequence that they cannot be connected to the violence of ongoing global and regional imperialism. This paper briefly touches upon the theoretical framework and methodology utilized to conduct this research, as well as the “problem” of disability in Iran. Subsequently, it goes on to extensively discuss the living conditions of the surviving Iranian veterans and surviving civilians of the Iran-Iraq war told through their own resilient voices. The veterans’ narratives expose their post-war experiences, including poverty, unemployment, inadequate medical-care, lack of medication due to the U.S.-imposed economic sanctions, and the presence of a dysfunctional disability-measurement system employed by the Iranian state. As a survivor of this war myself, I invite the reader to bear witness to how the violence of imperialism and nationalism not only renders people disabled, but also fetishizes their disablement by masking/mystifying the socio-political and economic relations that mediate the violent processes that render people disabled. By focusing on the veterans’ actual living conditions, this paper seeks to defetishize disablement, shifting the narrative of disabled veterans and civilians from tales of terrorism, heroism, living martyrdom, and patriotism, towards recognition of disability of/in human beings in need of care and support.

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Kirakosyan, Lyusyena. "Challenging Gender and Disability Stereotypes: Narrative Identities of Brazilian Female Paralympians." Disabilities 1, no. 4 (November 4, 2021): 420–37. http://dx.doi.org/10.3390/disabilities1040029.

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The purpose of this narrative inquiry is two-fold: first, to illuminate the views and experiences of Brazilian female Paralympians that helped shape their narrative identities, and second, to develop a better understanding of the reasons behind the gender inequality in Paralympic sports. According to the International Paralympic Committee, 1671 female athletes competed in the Rio 2016 Paralympics, representing almost 40 percent of the participating Paralympians. In Rio, Brazil had the largest Paralympic delegation in its history, with 287 Paralympians, of which only 102 were women (about 35 percent). The reasons why there is a significant discrepancy between male and female Paralympic participation are highly complex and little researched, particularly in Latin American contexts. In examining the complexities of these women’s narrative identities and their relationship with social norms, I draw on the insights from disability feminism, identity theory, and disability sport to analyze and interpret the Paralympic sportswomen’s narrative accounts. Individual interviews with 20 Brazilian female Paralympians from nine different sports revealed the intricate relationships each has with social norms regarding gender, disability, sport, and the body.

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Weingarten, Richard, and Maria E. Restrepo-Toro. "Recovery narratives: 'see how far i've come'." Cadernos Saúde Coletiva 20, no. 4 (2012): 448–52. http://dx.doi.org/10.1590/s1414-462x2012000400007.

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As the paradigm shift towards a recovery-oriented mental health system becomes more prominent, individuals with lived experience of mental illness will continue to write and speak their narratives of mental illness and recovery. This article discusses the social reality of people with mental illness: how they are stigmatized by the media and how competing narratives within the mental health system afflict people with this disability. It also discusses the empowering process of constructing a narrative that enables the narrator/speaker to find meaning in her/his experience while putting a realistic 'face' on mental illness and recovery for the general public. It further describes how telling a narrative to diverse audiences, including a college class of 'people in recovery' enhances the author's personal recovery by giving his life new meaning and purpose.

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Wegner, Gesine. "Relocating the Freak Show: Disability in the Medical Drama." Zeitschrift für Anglistik und Amerikanistik 67, no. 1 (March 26, 2019): 19–36. http://dx.doi.org/10.1515/zaa-2019-0003.

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Abstract Through an analysis of various negotiations of disability in House, M.D. and Grey’s Anatomy, my paper discusses the narrative and non-narrative means that make the medical drama such an appealing genre to contemporary audience members. As the most successful medical dramas of the post-millennial era, House, M.D. and Grey’s Anatomy rely heavily on the exhibition of non-normative bodies, the humorous device of re-naming patients, and the narrative construction of disability as unbearable deviance. While Laura Backstrom locates the freak show in non-fictional television formats like the talk show and documentary, my paper illustrates how the medical drama, although at times highly self-reflexive, has become another pervasive relocation of the freak show into contemporary television. In a close reading of Grey’s Anatomy, I further demonstrate how the portrayal of a disabled doctor as a series regular both manifests and challenges some of the normative perceptions of the body that the genre relies on.

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Young, Kathryn S. "I have a student who…" Narrative Inquiry 19, no. 2 (December 16, 2009): 356–71. http://dx.doi.org/10.1075/ni.19.2.08you.

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This article investigates the use of co-constructed narrative strands to better understand the function of institutional narratives in teacher education. It uses data drawn from a large ethnographic study of talk in interaction in teacher education coursework. The analysis demonstrates how a series of similar small stories functions together to create a larger message about social categories in schooling. Narratives created by preservice teachers, through shared understanding of category systems like gender and disability, penetrate stories told in coursework and impact understandings of students in schools.

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Wälivaara, Josefine. "Marginalized Bodies of Imagined Futurescapes: Ableism and Heteronormativity in Science Fiction." Culture Unbound 10, no. 2 (October 30, 2018): 226–45. http://dx.doi.org/10.3384/cu.2000.1525.2018102226.

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This article aims to contribute to an understanding of marginalized bodies in science fiction narratives by analyzing how physical disability and homosexuality/bisexuality have been depicted in popular science fiction film and television. Specifically, it analyzes what types of futures are evoked through the exclusion or inclusion of disability and homo/bisexuality. To investigate these futurescapes, in for example Star Trek and The Handmaid’s Tale, the paper uses film analysis guided by the theoretical approach of crip/queer temporality mainly in dialogue with disability/crip scholar Alison Kafer. Although narratives about the future in popular fiction occasionally imagines futures in which disability and homo/bisexuality exist the vast majority do not. This article argues that exclusion of characters with disabilities and homo/bisexual characters in imagined futures of science fiction perpetuate heteronormative and ableist normativity. It is important that fictional narratives of imagined futures do not limit portrayals to heterosexual and able-bodied people but, instead, take into account the ableist and heteronormative imaginaries that these narratives, and in extension contemporary society, are embedded in. Moreover, it is argued that in relation to notions of progression and social inclusion in imagined futurescapes portrayals of homo/bisexuality and disability has been used as narrative devices to emphasis “good” or “bad” futures. Furthermore, homo/bisexuality has increasingly been incorporated as a sign of social inclusion and progression while disability, partly due to the perseverance of a medical understanding of disability, instead is used as a sign of a failed future. However, the symbolic value ascribed to these bodies in stories are based on contemporary views and can thus change accordingly. To change the way the future is envisioned requires challenging how different types of bodies, desires, and notions of normativity are thought about. Sometimes imaginary futures can aid in rethinking and revaluating these taken-for-granted notions of normativity.

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Haydon-Laurelut, Mark Andrew. "Commentary on “Narrative therapy groups for people with intellectual disability: a critical review of the literature”." Tizard Learning Disability Review 25, no. 4 (November 25, 2020): 223–27. http://dx.doi.org/10.1108/tldr-10-2020-0031.

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Purpose This paper is a commentary inspired by Laura McKenzie-Smith’s review paper. Design/methodology/approach This commentary provides a personal perspective on the intersections of narrative practice and the support of people with a learning disability. Findings This commentary highlights some further possibilities of narrative ideas beyond therapy. This paper explores examples of record keeping and research as sites for story construction about lives and identities. Research limitations/implications This is a personal perspective of a systemic psychotherapist and academic working with people with a learning disability. Practical implications This paper argues that the stories we tell ourselves and others about our work and the people we support are powerful in ways of which we may not always be aware. Social implications In common with person-centred planning, narrative ideas highlight the power of the stories circulating about a person and their network and the implications they may have for their lives and identities. Originality/value This commentary explores narrative practices beyond the context of therapy, highlighting organisational, administrative and research practices as story-constructing activities that co-create identities of persons with a learning disability, their networks of support and health and social care professionals.

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Malinowska, Anna. "Lost in representation: Disabled sex and the aesthetics of the ‘norm’." Sexualities 21, no. 3 (April 19, 2017): 364–78. http://dx.doi.org/10.1177/1363460716688678.

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This article examines depictions of disabled sex as mediated by normative representations of sexual performance and popular images of disability. It analyzes the ways in which disabled intimacies become encoded for mainstream reception through adaptation strategies that adjust disabled sexuality to a normative representational demand. Contextualizing recent popular images of disabled sex with studies on representing disability in popular media, the article shows how, despite the emergence of a new disability paradigm, the experience of sex and sexuality by people with disabilities becomes aesthetically subjugated to the ‘tyranny of the normal’. The author provides an insight into narrative strategies of the popular as well as examining methods used for relating disability and sex in popular culture. The article also advocates for the extension of popular narrative codes to ensure a more inclusive depiction of sexual pleasures, which although deemed ‘disabled’ are, nevertheless, erotic.

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Monaco, Angelo. "Narrative Empathy in James Bradley’s Clade: Disability, Ecosickness and Hope." Le Simplegadi, no. 19 (November 2019): 206–17. http://dx.doi.org/10.17456/simple-138.

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Stramondo, Joseph A. "Disability and the Damaging Master Narrative of an Open Future." Hastings Center Report 50 (May 2020): S30—S36. http://dx.doi.org/10.1002/hast.1153.

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Fine, Zoe DuPree. "The ripples, post-pebble: phenomenological explorations of disability through narrative." Journal of Medicine and the Person 13, no. 2 (March 6, 2015): 82–90. http://dx.doi.org/10.1007/s12682-015-0204-y.

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Sasinthar, Karthikayini, Abhijit V. Boratne, Arun Sugumaran, and Raj Kumar Patil. "Measuring health-related quality of life of intellectually disabled children: a narrative review." International Journal Of Community Medicine And Public Health 8, no. 7 (June 25, 2021): 3652. http://dx.doi.org/10.18203/2394-6040.ijcmph20212628.

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To identify currently available measures of Health-related quality of life (HRQOL) for intellectually disabled children and to describe their content. A comprehensive retrieval of the English literature from 2001 to 2021 was done in the PubMed and Google Scholar. The terms ‘Intellectual disability’, ‘Differently abled’, ‘Special children’, ‘Differently challenged’, ‘Mental retardation’, ‘Health-related quality of life’, ‘Quality of life’, ‘Burden of intellectual disability’ and ‘India’ were used to identify measures of HRQOL for children’s with intellectual disability. Several tools were identified to measure HRQOL for children with intellectual disability. Many have parent proxy as well as self-report form with good validity and reliability. Though, they were often developed with minimal involvement from families, focus on functioning rather than wellbeing, and have items that sometimes may cause emotional upset. When children with different health problems are compared, the degree of their particular health condition should be measured. Furthermore, overlap of items seems not to be a problem when the HRQOL of children with intellectually disability is studied. Hence, HRQOL assessments are useful for collecting information beyond the clinical symptoms of a health problem thus improving quality of care.

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Journal articles on the topic 'Disability narrative'

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