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Journal articles on the topic 'End-of-life choice'

Author: Grafiati

Published: 9 March 2023

Last updated: 31 July 2025

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1

Kirby, Roger. "Choice at the end of life?" Trends in Urology & Men's Health 9, no. 1 (2018): 4. http://dx.doi.org/10.1002/tre.612.

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2

Nasser, Norman, Nadia J. Pruett, Jason Sawyer, and Amy E. Nolen. "Supporting patient choice at end of life." Canadian Medical Association Journal 194, no. 28 (2022): E990—E992. http://dx.doi.org/10.1503/cmaj.220338.

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3

Drought, Theresa S., and Barbara A. Koenig. ""Choice" in End-of-Life Decision Making." Gerontologist 42, suppl_3 (2002): 114–28. http://dx.doi.org/10.1093/geront/42.suppl_3.114.

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4

Colenda, C. C. "Patient Choice and End-of-Life Decisions." American Journal of Geriatric Psychiatry 11, no. 1 (2003): 113–14. http://dx.doi.org/10.1176/appi.ajgp.11.1.113.

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5

Wilkinson, Dominic. "Safeguarding choice at the end of life." Journal of Medical Ethics 41, no. 8 (2015): 575–76. http://dx.doi.org/10.1136/medethics-2015-102990.

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6

Wilkinson, Dominic, Laura Gilbertson, Justin Oakley, and Julian Savulescu. "Expanding choice at the end of life." Journal of Medical Ethics 49, no. 4 (2023): 269–70. http://dx.doi.org/10.1136/jme-2023-109081.

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7

Betteley, Adrienne. "Giving people choice at the end of life." International Journal of Palliative Nursing 18, no. 10 (2012): 472–73. http://dx.doi.org/10.12968/ijpn.2012.18.10.472.

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8

Froggatt, Katherine. "‘Choice over care at the end of life’." Journal of Research in Nursing 10, no. 2 (2005): 189–202. http://dx.doi.org/10.1177/174498710501000205.

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9

Cheung, Gary, and Adam Sims. "Unintended consequences of the End of Life Choice Act." New Zealand Medical Journal 136, no. 1578 (2023): 123–25. http://dx.doi.org/10.26635/6965.6115.

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10

Chumbley, Karen. "O-18 Delivering choice in end of life care." BMJ Supportive & Palliative Care 5, Suppl 3 (2015): A79.2—A79. http://dx.doi.org/10.1136/bmjspcare-2015-001026.220.

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11

MacCallum, Annie. "The Ultimate Choice: An end-of-life care conference." British Journal of Cardiac Nursing 3, no. 7 (2008): 330–31. http://dx.doi.org/10.12968/bjca.2008.3.7.30505.

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12

Williams, J. "Ensuring Quality and Choice in End of Life Care." BMJ Supportive & Palliative Care 1, no. 1 (2011): 66. http://dx.doi.org/10.1136/bmjspcare-2011-000053.2.

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13

MEEKER, MARY ANN, and MARY ANN JEZEWSKI. "Family decision making at end of life." Palliative and Supportive Care 3, no. 2 (2005): 131–42. http://dx.doi.org/10.1017/s1478951505050212.

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Objective: To enhance understanding of the phenomenon of family surrogate decision-making at the end of life (EOL) by means of a systematic review and synthesis of published research reports that address this phenomenon.Methods: Garrard's (1999) methods for conducting a systematic review of the literature were followed. Fifty-one studies focusing on family decision-making experiences, needs, and processes when assisting a dying family member were selected following electronic database searches and ancestry searches.Results: In studies using hypothetical scenarios to compare patients' choices a

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14

Nazarko, Linda. "Bowel care at end of life." British Journal of Community Nursing 28, no. 3 (2023): 138–42. http://dx.doi.org/10.12968/bjcn.2023.28.3.138.

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Most people, given a choice prefer to die at home. As death approaches the dying person may say “please let me die at home, in my own bed”. Many relatives promise their loved ones that they can remain at home until the end. One issue that can cause great distress and at times lead to unnecessary hospital admission is poorly managed bowel care. This article will examine how ageing, illness and medication can affect bowel function and quality of life.

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15

D’Errico, Ellen M. "Teaching Facilitation of Patient Choice at the End of Life." Journal of Nursing Education 52, no. 2 (2013): 120. http://dx.doi.org/10.3928/01484834-20130123-11.

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16

Sullivan, Mark D. "The Illusion of Patient Choice in End-of-Life Decisions." American Journal of Geriatric Psychiatry 10, no. 4 (2002): 365–72. http://dx.doi.org/10.1097/00019442-200207000-00003.

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17

Orentlicher, D. "The illusion of patient choice in end-of-life decisions." JAMA: The Journal of the American Medical Association 267, no. 15 (1992): 2101–4. http://dx.doi.org/10.1001/jama.267.15.2101.

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18

Orentlicher, David. "The Illusion of Patient Choice in End-of-Life Decisions." JAMA: The Journal of the American Medical Association 267, no. 15 (1992): 2101. http://dx.doi.org/10.1001/jama.1992.03480150107047.

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19

Singleton, Carol. "Choice and fairness are key to end of life care." Nursing Standard 25, no. 28 (2011): 32. http://dx.doi.org/10.7748/ns.25.28.32.s45.

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20

Fischhoff, Baruch, and Amber E. Barnato. "Value Awareness: A New Goal for End-of-life Decision Making." MDM Policy & Practice 4, no. 1 (2019): 238146831881752. http://dx.doi.org/10.1177/2381468318817523.

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The principal policy tool for respecting the preferences of patients facing serious illnesses that can prompt decisions regarding end-of-life care is the advance directive (AD) for health care. AD policies, decision aids for facilitating ADs, and clinical processes for interpreting ADs all treat patients as rational actors who will make appropriate choices, if provided relevant information. We review barriers to following this model, leading us to propose replacing the goal of rational choice with that of value awareness, enabling patients (and, where appropriate, their surrogates) to be as ra

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21

Natsume, Maika, Kiyotaka Watanabe, Satoko Matsumoto, et al. "Factors Influencing Cancer Patients' Choice of End-of-Life Care Place." Journal of Palliative Medicine 21, no. 6 (2018): 751–65. http://dx.doi.org/10.1089/jpm.2017.0481.

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22

Callahan, Daniel. "End-of-Life Care: A Philosophical or Management Problem?" Journal of Law, Medicine & Ethics 39, no. 2 (2011): 114–20. http://dx.doi.org/10.1111/j.1748-720x.2011.00581.x.

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Early in 1970, just as we were organizing The Hastings Center, we had to decide which issues on a long menu of possibilities should receive our early attention. At the top of our list was end-of-life care. Complaints about care for the dying had mounted during the 1960s, fueled by technological progress in sustaining life, by too many patients abandoned by physicians as they lay dying, by a lack of patient choice on how their lives should end, and by woefully inadequate pain management. After a few years of study, the care of the dying seemed to admit of a solution: giving patients more choice

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23

Wilson, F., M. Gott, and C. Ingleton. "Perceived risks around choice and decision making at end-of-life: A literature review." Palliative Medicine 27, no. 1 (2011): 38–53. http://dx.doi.org/10.1177/0269216311424632.

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Background: the World Health Organization identifies meeting patient choice for care as central to effective palliative care delivery. Little is known about how choice, which implies an objective balancing of options and risks, is understood and enacted through decision making at end-of-life. Aim: to explore how perceptions of ‘risk’ may inform decision-making processes at end-of-life. Design: an integrative literature review was conducted between January and February 2010. Papers were reviewed using Hawker et al.’s criteria and evaluated according to clarity of methods, analysis and evidence

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24

Marquis, Don. "Abortion and the Beginning and End of Human Life." Journal of Law, Medicine & Ethics 34, no. 1 (2006): 16–25. http://dx.doi.org/10.1111/j.1748-720x.2006.00004.x.

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How can the abortion issue be resolved? Many believe that the issue can be resolved if, and only if, we can determine when human life begins. Those opposed to abortion choice typically say that human life begins at conception. Many who favor abortion choice say that we will never know when human life begins. The importance of the when-does-human-life-begin issue is not so much argued for as it is taken to be self-evident. Furthermore, belief that this issue is fundamental is taken for granted – at least outside of philosophy – by many of the people who seem to disagree about almost everything

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25

Cassidy, Helen, Adam Sims, and Susanna Every-Palmer. "Psychiatrists’ views on the New Zealand End of Life Choice Act." Australasian Psychiatry 30, no. 2 (2022): 254–61. http://dx.doi.org/10.1177/10398562221077889.

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Objective This cross-sectional survey aimed to establish the views and intentions of New Zealand (NZ) psychiatrists regarding their role as competence assessors in the NZ End of Life Choice Act (‘Act’). Some questions were replicated from a pre-existing Ministry of Health workforce survey regarding the Act, for comparative analysis between psychiatrists and other health professionals. Methods The survey was disseminated via email to all NZ psychiatrists registered with the Royal Australia and NZ College of Psychiatry and promoted by snowballing methods to reach non-members. Results There were

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26

Geddis, Andrew. "New Zealand votes on end of life choice and cannabis legalisation." Australian Health Review 44, no. 6 (2020): 819. http://dx.doi.org/10.1071/ahv44n6_ed4.

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27

ROSENBERGER, NANCY. "Final Days: Japanese Culture and Choice at the End of Life." American Anthropologist 108, no. 4 (2006): 906–8. http://dx.doi.org/10.1525/aa.2006.108.4.906.

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28

Glasper, Alan. "The Government's progress in promoting choice in end-of-life care." British Journal of Nursing 26, no. 22 (2017): 1256–57. http://dx.doi.org/10.12968/bjon.2017.26.22.1256.

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29

Tucker, Kathryn L., and Fred B. Steele. "Patient Choice at the End of Life: Getting the Language Right." Journal of Legal Medicine 28, no. 3 (2007): 305–25. http://dx.doi.org/10.1080/01947640701554427.

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30

Yang, Liu (Cathy), Olivier Toubia, and Martijn G. de Jong. "Attention, Information Processing, and Choice in Incentive-Aligned Choice Experiments." Journal of Marketing Research 55, no. 6 (2018): 783–800. http://dx.doi.org/10.1177/0022243718817004.

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In incentive-aligned choice experiments, each decision is realized with some probability, Prob. In three eye-tracking experiments, we study the impact of varying Prob from 0 (as in purely hypothetical choices) to 1 (as in real-life choices) on attention, information processing, and choice. Consistent with the bounded rationality literature, we find that as Prob increases from 0 to 1, consumers process the choice-relevant information more carefully and more comprehensively. Consistent with the psychological distance literature, we find that as Prob increases from 0 to 1, consumers become less n

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31

Lamas, Daniela, and Lisa Rosenbaum. "Freedom from the Tyranny of Choice — Teaching the End-of-Life Conversation." New England Journal of Medicine 366, no. 18 (2012): 1655–57. http://dx.doi.org/10.1056/nejmp1201202.

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32

Wilson, Fiona, Christine Ingleton, Merryn Gott, and Clare Gardiner. "HOW DO PERCEPTIONS OF RISK SHAPE 'CHOICE' IN END-OF-LIFE CARE?" BMJ Supportive & Palliative Care 4, Suppl 1 (2014): A28.2—A28. http://dx.doi.org/10.1136/bmjspcare-2014-000654.77.

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33

Robinson, Louise, Julian Hughes, Sarah Daley, John Keady, Clive Ballard, and Ladislav Volicer. "End-of-life care and dementia." Reviews in Clinical Gerontology 15, no. 2 (2005): 135–48. http://dx.doi.org/10.1017/s0959259806001833.

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In the UK, research continues to confirm that people with certain chronic illnesses, such as chronic lung disease and cardiac failure, represent the ‘disadvantaged dying’ compared to those with terminal cancer. But what is the situation for people dying with advanced dementia and what is the experience of their carers? Practical guidance for clinicians is scarce. In Standard 7 of the National Service Framework for Older People, which covers mental health, there is mention neither of how care should be provided nor of how patient choice should be ensured for people with dementia at the end of l

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34

Fenton, Wendy. "Inpatient care at end of life is a positive choice for some." Nursing Standard 25, no. 24 (2011): 32. http://dx.doi.org/10.7748/ns.25.24.32.s44.

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35

Nakano, Lynne Y. "Final Days: Japanese Culture and Choice at the End of Life (review)." Journal of Japanese Studies 33, no. 1 (2007): 239–43. http://dx.doi.org/10.1353/jjs.2007.0029.

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36

Krakauer, Randall. "Invictus: Increasing Patient Choice in Advanced Illness and End-of-Life Care." Frontiers of Health Services Management 27, no. 3 (2011): 43–48. http://dx.doi.org/10.1097/01974520-201101000-00006.

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37

Thomas, Keri. "Matters of life and death: the new Government report on choice in end-of-life care." British Journal of Community Nursing 21, no. 10 (2016): 528–30. http://dx.doi.org/10.12968/bjcn.2016.21.10.528.

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38

Reed, Frances M., Les Fitzgerald, and Melanie R. Bish. "Rural District Nursing Experiences of Successful Advocacy for Person-Centered End-of-Life Choice." Journal of Holistic Nursing 35, no. 2 (2016): 151–64. http://dx.doi.org/10.1177/0898010116646643.

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Choices in care during the end stages of life are limited by the lack of resources and access for rural people. Nursing advocacy based on the holistic understanding of people and their rural communities may increase the opportunity for choice and improve the quality of care for people living and dying at home. Pragmatism and nurse agency theory were used for a practical exploration of how district nurses successfully advocate for rural Australian end-of-life goals to begin the development of a practice model. In two stages of data collection, rural district nurse informants ( N = 7) were given

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39

Turley, Alan, Emma B. Larson, Jenny Silver, and Catherine Klingler. "Religious Preference and Hospice Choice." OMEGA - Journal of Death and Dying 81, no. 2 (2018): 319–29. http://dx.doi.org/10.1177/0030222818774205.

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This article will employ a database from a large hospice provider with offices in 16 states to examine the impact of religious preference on hospice choice. Little work has been done on this issue, even though religion is the only social institution that specifically addresses the end of life. Hospice work, in particular, has drawn little attention despite it effecting millions of patients and their families. Of all the medical subspecialties, hospice is one of the most effected by society’s views on death and religious views of dying. It is also the only government-funded medical service that

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40

Waller, Amy, Rob Sanson-Fisher, Scott D. Brown, Laura Wall, and Justin Walsh. "Quality versus quantity in end-of-life choices of cancer patients and support persons: a discrete choice experiment." Supportive Care in Cancer 26, no. 10 (2018): 3593–99. http://dx.doi.org/10.1007/s00520-018-4226-x.

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41

Stajduhar, Kelli I. "Burdens of Family Caregiving at the End of Life." Clinical & Investigative Medicine 36, no. 3 (2013): 121. http://dx.doi.org/10.25011/cim.v36i3.19722.

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A patient’s ability to be cared for and to die at home is heavily dependent upon the efforts of family caregivers. Considerable stresses are associated with such caregiving, including physical, psychosocial and financial burdens. Research has shown that unmet needs and dissatisfaction with care can lead to negative outcomes for caregivers. While many family caregivers also report caregiving as life-enriching, some report that they would prefer alternatives to care at home, primarily because of these associated burdens. Little is known about which interventions are most effective to support fam

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42

Whitty-Rogers, Joanne, Marion Alex, Cathy MacDonald, Donna Pierrynowski Gallant, and Wendy Austin. "Working with Children in End-of-Life Decision Making." Nursing Ethics 16, no. 6 (2009): 743–58. http://dx.doi.org/10.1177/0969733009341910.

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Traditionally, physicians and parents made decisions about children’s health care based on western practices. More recently, with legal and ethical development of informed consent and recognition for decision making, children are becoming active participants in their care. The extent to which this is happening is however blurred by lack of clarity about what children — of diverse levels of cognitive development — are capable of understanding. Moreover, when there are multiple surrogate decision makers, parental and professional conflict can arise concerning children’s ‘best interest’. Giving c

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43

Borgstrom, Erica. "Planning for an (un)certain future: Choice within English end-of-life care." Current Sociology 63, no. 5 (2015): 700–713. http://dx.doi.org/10.1177/0011392115590084.

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44

Shah, Koonal K., Aki Tsuchiya, and Allan J. Wailoo. "Valuing health at the end of life: A stated preference discrete choice experiment." Social Science & Medicine 124 (January 2015): 48–56. http://dx.doi.org/10.1016/j.socscimed.2014.11.022.

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45

Burt, Robert A. "The Medical Futility Debate: Patient Choice, Physician Obligation, and End-of-Life Care." Journal of Palliative Medicine 5, no. 2 (2002): 249–54. http://dx.doi.org/10.1089/109662102753641223.

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46

Karasz, Alison, Galit Sacajiu, Misha Kogan, and Liza Watkins. "The Rational Choice Model in Family Decision Making at the End of Life." Journal of Clinical Ethics 21, no. 3 (2010): 189–200. http://dx.doi.org/10.1086/jce201021302.

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47

Fischer, Barbara, Harry Telser, and Peter Zweifel. "End-of-life healthcare expenditure: Testing economic explanations using a discrete choice experiment." Journal of Health Economics 60 (July 2018): 30–38. http://dx.doi.org/10.1016/j.jhealeco.2018.06.001.

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48

Filus, Ania, Katie T. Harmeyer, Steven M. Brunelli, and Francesca Tentori. "Preferences for End-of-Life Care Among Dialysis Patients: A Discrete Choice Experiment." Journal of the American Society of Nephrology 33, no. 11S (2022): 5. http://dx.doi.org/10.1681/asn.20223311s15c.

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49

Djulbegovic, Benjamin, Athanasios Tsalatsanis, Rahul Mhaskar, Iztok Hozo, Branko Miladinovic, and Howard Tuch. "Improving Hospice Referral: Application of Regret-Based Decision Modeling at End-of-Life Care." Blood 128, no. 22 (2016): 535. http://dx.doi.org/10.1182/blood.v128.22.535.535.

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Abstract Introduction: Terminally ill patients are often faced with the decision to forgo potentially life-prolonging treatment or to accept hospice care leading to a peaceful death. The decision process in such situations is heavily affected by emotions, chief among them is regret. Modern cognitive science increasingly accepts a dual processing approach to human cognition which takes into account both emotion-based (type 1) and analytical-based (type 2) cognitive processing. Because regret is a human emotion (type 1), which involves counterfactual deliberations (type 2), we have previously pr

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50

Agbodjavou, Mena K., Pierre C. Mêliho, Eric A. Akpi, and Adolphe C. Kpatchavi. "Dying in hospital or at home? a systematic review of the literature on the motivations for choosing the place of end of life for patients with chronic diseases." International Journal Of Community Medicine And Public Health 9, no. 11 (2022): 4246. http://dx.doi.org/10.18203/2394-6040.ijcmph20222923.

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In many countries, palliative care is provided in hospitals and hospices. Over time, palliative care has developed outside general health care and is provided in the patient's home. We examine the motivations for preferences for place of care at the end of life, and the reasons for changes in these preferences in so-called developed and developing countries. Pubmed, Google Scholar and Social Sciences Citation Index databases were searched as of January 2021. Qualitative and mixed studies on terminal care, preferences for end-of-life care settings and palliative care settings were considered. T

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