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1

LeighAnne, Olsen, Saunders Robert S, and McGinnis J. Michael, eds. Patients charting the course: Citizen engagement and the learning health system : workshop summary. Washington, D.C: National Academies Press, 2011.

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2

Lean hospitals: Improving quality, patient safety, and employee engagement. 2nd ed. New York: Productivity Press/Taylor & Francis, 2012.

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3

Pomey, Marie-Pascale, Jean-Louis Denis, and Vincent Dumez, eds. Patient Engagement. Cham: Springer International Publishing, 2019. http://dx.doi.org/10.1007/978-3-030-14101-1.

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4

Moy, Marilyn L., Felicity Blackstock, and Linda Nici, eds. Enhancing Patient Engagement in Pulmonary Healthcare. Cham: Springer International Publishing, 2020. http://dx.doi.org/10.1007/978-3-030-44889-9.

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5

Tritle, Brad, Dave Chase, Jan Oldenburg, and Kate T. Christensen. Engage!: Transforming healthcare through digital patient engagement. Chicago, IL: HiMSS, 2013.

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6

Pettit, Lorren. Cultivating a Digital Culture for Effective Patient Engagement. Boca Raton : Taylor & Francis, 2020.: Productivity Press, 2020. http://dx.doi.org/10.4324/9780429399657.

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7

Graffigna, Guendalina, Serena Barello, and Stefano Triberti, eds. Patient Engagement A Consumer-Centered Model to Innovate Healthcare. Warsaw, Poland: De Gruyter Open, 2015. http://dx.doi.org/10.1515/9783110452440.

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8

Inc, Youth in Need, ed. Strengths-based engagement and practice: Creating effective helping relationships. Boston: Allyn & Bacon, 2010.

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9

Engagement strategies in health and disease management: Best practices for boosting participation. Marblehead, MA: HCPro, 2007.

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10

Seduction, surrender, and transformation: Emotional engagement in the analytic process. Hillsdale, N.J: Analytic Press, 2002.

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11

Kramer, Peter D. Moments of engagement: Intimate psychotherapy in a technological age. New York: Penguin Books, 1994.

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12

Mackoff, Barbara. Nurse manager engagement: Strategies for excellence and committment. Sudbury, Mass: Jones and Bartlett Publishers, 2011.

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13

Therapeutic engagement of children and adolescents: Play, symbol, drawing, and storytelling strategies. Lanham: Jason Aronson, 2008.

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14

Nurse manager engagement: Strategies for excellence and committment. Sudbury, Mass: Jones and Bartlett Publishers, 2011.

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15

Modes of therapeutic action: Enhancement of knowledge, provision of experience, and engagement in relationship. Northvale, N.J: Jason Aronson, 1999.

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16

Psychotherapy isn't what you think: Bringing the psychotherapeutic engagement into the living moment. Phoenix, Ariz: Zeig, Tucker, 1999.

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17

Bugental, James F. T. Psycho-therapy isn't what you think: Bringing the psychotherapeutic engagement into the living moment. Phoenix, Ariz: Zeig, Tucker, 1999.

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18

Addis, Donna Rose. Terms of engagement: Investigating the engagement of the hippocampus and related structures during autobiographical memory retrieval in healthy individuals and temporal lobe epilepsy patients. 2005.

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19

Therapeutic Communication in Mental Health Nursing: Aesthetic and Metaphoric Processes in the Engagement with Challenging Patients. Taylor & Francis Group, 2017.

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20

Nyquist Potter, Nancy. The Virtue of Defiance and Psychiatric Engagement. Oxford University Press, 2016. http://dx.doi.org/10.1093/med/9780199663866.001.0001.

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The Virtue of Defiance and Psychiatric Engagement argues that defiance sometimes is a virtue even for those with mental illnesses. It also argues that defiance is sometimes mistaken as a sign of mental disorder when it may have other, reasonable explanations. This book offers a nuanced and complex look at defiance, taking seriously issues of mental disorders while also attending to social contexts in which defiant behavior may arise. Arguments are presented for how to understand defiance as different from noncompliance, resistance, and other related concepts, and how defiance is related to living a life with a realistic understanding of a flourishing life and its limits in our everyday world. A framework for differentiating different forms of defiance is offered, and a realistic picture of phronesis—practical reasoning—is presented that makes room for clinicians as well as patients to assess the degree to which defiance is reasonable. The concept of intersectionality as it relates to child development is worked through to highlight some of the challenges clinicians face when interpreting defiant behavior. Particular attention is given to issues of race and gender as factors that need to be considered when evaluating defiant behavior as reasonable, virtuous, bad, or symptomatic. Practical applications for psychiatric engagement are threaded throughout this book through case studies and personal narratives. The virtue of giving uptake is introduced to assist psychiatrists in being responsible and ethical knowers when working with people who are or seem to be defiant.
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21

Affinito, Letizia. Socialize Your Patient Engagement Strategy. Routledge, 2016. http://dx.doi.org/10.4324/9781315609713.

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22

Denis, Jean-Louis, Marie-Pascale Pomey, and Vincent Dumez. Patient Engagement: How Patient-provider Partnerships Transform Healthcare Organizations. Palgrave Macmillan, 2019.

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23

Burns, Tom, and Mike Firn. Engagement. Edited by Tom Burns and Mike Firn. Oxford University Press, 2017. http://dx.doi.org/10.1093/med/9780198754237.003.0010.

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Engagement is defined and a classification of engagement-related activity presented, underlining the centrality of individual and team relationships in delivering health and social care to individuals. Case studies provide practical illustration of differing approaches in the hierarchy of engaging individuals in treatment, from mutually constructive strategies to more restrictive tactics for people who avoid services. Throughout, the patient and service perspective is compared, for example, when does conscientious follow-up become perceived as harassment? Critique and evidence from research and patient testimony is provided. The value of engagement measures are discussed, including patient reported attachment and proxy measures of missed appointments and dropout.
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24

Weiss, Jeffrey J., and Michael J. Stirratt. Psychiatric Aspects of Care Engagement and Medication Adherence in Antiretroviral-Based HIV Treatment and Prevention. Edited by Mary Ann Cohen, Jack M. Gorman, Jeffrey M. Jacobson, Paul Volberding, and Scott Letendre. Oxford University Press, 2017. http://dx.doi.org/10.1093/med/9780199392742.003.0029.

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Care engagement and treatment adherence are directly related to HIV treatment outcomes and to mortality. Active drug use and psychiatric illness such as depressive and addictive disorders are significant barriers to care engagement and treatment adherence among persons living with HIV and those at high risk for HIV infection and eligible for pre-exposure prophylaxis (PrEP). This chapter addresses (1) psychiatric aspects of PrEP for HIV prevention, (2) the care continuum for individuals living with HIV infection, (3) psychiatric determinants of HIV care engagement, (4) behavioral interventions to improve HIV care engagement, (5) psychiatric determinants of antiretroviral (ART) adherence, (6) interventions to improve ART adherence, and (7) implications of research findings for the medical and mental health clinician working with patients with psychiatric illness who are living with HIV or at risk for infection.
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25

Graffigna, Guendalina, Serena Barello, and Stefano Triberti. Patient Engagement: A Consumer-Centered Model to Innovate Healthcare. De Gruyter, Inc., 2015.

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26

Davidson, Judy E., and Giora Netzer. Family Response to Critical Illness. Oxford University Press, 2017. http://dx.doi.org/10.1093/med/9780199398690.003.0008.

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Family members of ICU patients can have mental, physical, and social responses to critical illness. These responses can begin when their loved ones are in the ICU and persist after discharge. Interventions in the ICU could have long-term effects on family members. Communication, proximity, engagement, maintaining family integrity, optimizing sleep, and conflict resolution may all play a role in family health following the discharge or death of the patient. Research is needed to further quantify the epidemiology, mechanisms of action, and efficacy of interventions to optimize the health of this large group of people. While waiting for research results to definitively point us towards effective preventive measures and early interventions, it is prudent to optimize communication, encourage proximity and engagement, and support the health of family members while caring for the critically ill and injured. As patients and their families move into the home environment, it is important to consider their long-term health as well.
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27

Krist, Alex H., and Vivian Jiang. Provider-Level Factors Influencing Implementation. Edited by David A. Chambers, Wynne E. Norton, and Cynthia A. Vinson. Oxford University Press, 2018. http://dx.doi.org/10.1093/med/9780190647421.003.0016.

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Cancer treatment is increasingly complex. The tools for diagnosis, staging, and predicting prognosis are rapidly evolving, as are the therapies, treatment modalities, and treatment protocols. The complexity of care, the need for a multidisciplinary team across settings, and patient-level factors all present providers with a unique set of challenges. The three case studies presented in this chapter explore strategies that help providers by (1) ensuring low-income patients with breast cancer receive care consistent with guidelines through patient engagement and navigation, (2) promoting and incorporating the routine use of shared decision-making in determining prostate cancer treatment, and (3) supporting the adoption of concurrent palliative care for patients with advanced cancer. The specific challenges and needs for future implementation science are highlighted throughout each case.
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28

Tolchin, Benjamin, and Gaston Baslet. Readiness to Start Treatment and Obstacles to Adherence. Edited by Barbara A. Dworetzky and Gaston C. Baslet. Oxford University Press, 2017. http://dx.doi.org/10.1093/med/9780190265045.003.0013.

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Effective evidence-based psychotherapeutic regimens for psychogenic nonepileptic seizures (PNES) are available, but several obstacles still contribute to poor adherence to treatment. This chapter reviews the three stages at which patient dropout tends to occur in clinical practice and in studies. Patient-related, provider-related, and systemic causes of nonadherence are reviewed. Patient-related factors include a failure to accept or understand the diagnosis, psychiatric comorbidities, and ambivalence about change. Provider-related and systemic factors include a shortage of behavioral health specialists, gaps in care between neurologists and mental health providers, a lack of familiarity with the disorder, and stigmatization of patients. The chapter concludes with a review of potential interventions to address obstacles to treatment, including an integrated treatment team with joint presentation of the diagnosis, rapid and streamlined transition into psychotherapy, motivational interviewing, and engagement of patients’ family members and support systems.
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29

Nici, Linda, Marilyn L. Moy, and Felicity Blackstock. Enhancing Patient Engagement in Pulmonary Healthcare: The Art and Science. Humana, 2020.

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30

Graffigna, Guendalina, and Elena Vegni, eds. Patient Engagement in Health and Well-being: Theoretical and Empirical Perspectives in Patient Centered Medicine. Frontiers Media SA, 2018. http://dx.doi.org/10.3389/978-2-88945-370-2.

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31

Lipman, Meegan, Jacqueline Calderone, Joel Yager, and Maryann Waugh. Wellness. Edited by Robert E. Feinstein, Joseph V. Connelly, and Marilyn S. Feinstein. Oxford University Press, 2017. http://dx.doi.org/10.1093/med/9780190276201.003.0022.

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Lifestyle behaviors that contribute to wellness, specifically those involving physical exercise, healthy nutrition and weight management, healthy sleep patterns, and stress reduction, are of significant concern to clinicians and patients. Attending to these areas is critical, not only to prevent illness but also to reduce the deleterious impacts of existing chronic diseases on morbidity and mortality. Integrated primary care practices can readily establish and employ protocols for systematically addressing these important areas of overall physical and emotional functioning. This chapter discusses ways that primary care practices and team members can emphasize wellness in their integrated care services. The discussion covers assessing patients’ lifestyle choices, providing advice for improving health behaviors, developing agreed-upon interventions, assisting patients with related health behavior modifications and alterations, and arranging for improved patient access to and engagement with resources and programs that promote overall wellness.
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32

Phillips, Katharine A., and Rachel A. Simmons. Treating a Patient with Body Dysmorphic Disorder Using Medication and Cognitive-Behavioral Therapy: An Illustrative Case Example. Edited by Katharine A. Phillips. Oxford University Press, 2017. http://dx.doi.org/10.1093/med/9780190254131.003.0027.

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This chapter illustrates how the authors treated a representative patient with body dysmorphic disorder (BDD) using both medication and cognitive-behavioral therapy (CBT). The case example illustrates engagement strategies, treatment selection, implementation of recommended treatment strategies, approaches to some commonly encountered decision points, and possible solutions to frequently encountered treatment challenges. Following the case example, the authors comment on these issues. The chapter discusses approaches to patients who desire cosmetic treatment rather than mental health treatment. Factors involved in the decision to use CBT, pharmacotherapy, or both treatment modalities for BDD are also covered.
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33

Bhugra, Dinesh, Antonio Ventriglio, and Kamaldeep S. Bhui. Psychotherapy: Specific psychotherapies. Oxford University Press, 2018. http://dx.doi.org/10.1093/med/9780198723196.003.0008.

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Specific psychotherapies bring specific challenges with them. Engagement with cognitive behaviour therapy and its success depends upon how the individual’s cognitions are affected by cultures and how amenable these are for therapy. Similarly, family therapy carries with it different roles of different members across cultures, and not everyone’s role will be the same. Minority therapists may face potential difficulties while looking after patients from majority cultures. General principles of psychotherapy across cultures will apply but they may carry different meanings for each individual. It is essential that therapists are flexible enough to ensure the best patient engagement, and additional modifications may be required. Each of these therapies can be reductive, reconstructive, or supportive, and a mixture of more than one approach can be utilized. Assessment must explore very carefully needs and indications for therapy. In many cultures these words have very different meanings with personal and social expectations.
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34

Maroda, Karen J. Seduction, Surrender, and Transformation: Emotional Engagement in the Analytic Process. Taylor & Francis Group, 2016.

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35

Krauter, Cheryl. Roots of Authenticity. Edited by Cheryl Krauter. Oxford University Press, 2018. http://dx.doi.org/10.1093/med/9780190636364.003.0001.

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This chapter demonstrates the value of incorporating the humanistic–existential psychotherapy framework into the cancer healthcare provider–patient relationship. The existential humanistic framework focuses on helping people free themselves from obsessive worries and scary stories by assisting them to understand and work with the reality of living with uncertainty. A humanistic approach is oriented toward a compassionate, nonpathological frame that promotes acceptance, reflection, and relationship. This viewpoint suggests redefining professional competence as something that allows for compassionate engagement with patients, other professionals, and most important, with oneself. Presenting the foundations of humanistic psychology, the chapter illustrates the benefits of this type of relational perspective as it translates to working with life-threatening illness and post-treatment cancer care.
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36

S, Garfield David A., and Mackler Daniel 1972-, eds. Beyond medication: Therapeutic engagement and the recovery from psychosis. Hove: Routledge, 2009.

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37

Lucinda, Jarrett, ed. Creative engagement in palliative care: New perspectives on user involvement. Oxford: Radcliffe, 2007.

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38

Maroda, Karen J. Seduction, Surrender, and Transformation: Emotional Engagement in the Analytic Process (Relational Perspectives Book Series). Analytic Press, 1999.

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39

Krauter, Cheryl. The Healing Power of Authenticity. Edited by Cheryl Krauter. Oxford University Press, 2018. http://dx.doi.org/10.1093/med/9780190636364.003.0003.

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This chapter translates a humanistic therapeutic approach to cancer survivorship care. Being seen, heard, and understood for who you are and where you are in the given moments of your life is a basic human need; this essential aspect of relationship is the bedrock of effective communication. To present practical approaches in clinical practice to enhance relationships with patients, topics in this chapter include engagement with patients; utilization of here-and-now communication; use of empathy in interactions; the powerful uses of bringing presence into the work of helping patients face emotional distress; the existential dilemma of meaning; the differences between fixing a problem and being present; doing versus being. This chapter illustrates the importance of developing the practice of listening as a guide for assessment and making appropriate referrals to psychotherapy or other integrative practices.
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40

Socialize Your Patient Engagement Strategy: How Social Media and Mobile Apps Can Boost Healthcare Outcomes. Taylor & Francis Group, 2015.

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41

Realizing the Promise of Precision Medicine: The Role of Patient Data, Mobile Technology, and Consumer Engagement. Elsevier Science & Technology Books, 2017.

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42

Burns, Tom, and Mike Firn. The role of medication. Edited by Tom Burns and Mike Firn. Oxford University Press, 2017. http://dx.doi.org/10.1093/med/9780198754237.003.0007.

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This chapter focuses mainly on the importance of maintenance antipsychotic medication and mood stabilizers. It examines procedures to support persistence with these drugs and maintain engagement. The techniques for initiating and monitoring clozapine therapy in the community for patients with resistant schizophrenia are outlined. The practical processes for ensuring and conducting regular structured reviews of long-term medication, both to assess progress and to identify side effects, are described in detail. In addition, the judicious use of antidepressants and benzodiazepines is outlined.
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43

Kellum, John A. Rapid Response System. Edited by Raghavan Murugan and Joseph M. Darby. Oxford University Press, 2018. http://dx.doi.org/10.1093/med/9780190612474.001.0001.

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This handbook provides a practical approach to the evaluation, differential diagnosis, and management of common medical and surgical emergencies such as cardiac arrest, acute respiratory failure, seizures, and hemorrhagic shock occurring in hospitalized patients. Less common and special circumstances such as pediatric, obstetric, oncologic, neurologic, and behavioral emergencies as well as palliative care for terminally ill patients encountered in the context of rapid response team (RRT) events are also discussed. An overview of commonly performed bedside emergency procedures by rapid response team members complements the clinical resources that may need to be brought to bear during the course of the rapid response team event. Finally, an overview of organization, leadership, communication, quality, and patient safety surrounding rapid response team events is provided. This book is written with medical students, junior physicians, and nursing staff in mind working in both academic and community hospital settings. Both a novice and an experienced healthcare provider involved in a rapid response system (RRS) will find this handbook to be a valuable supplement to the clinical experiences gained through active engagement in the system. Hospital administrators and senior management staff will also find this book to be useful in the evaluation of quality and performance of the rapid response system, management of staff attitudes and behavior, performance of peer review, care for second victims, and implementation of countermeasures for patient safety problems discovered in the course of rapid response system reviews.
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44

Winters, Bradford D., and Peter J. Pronovost. Patient safety in the ICU. Oxford University Press, 2016. http://dx.doi.org/10.1093/med/9780199600830.003.0016.

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While patient safety and quality have become a major focus of health care providers, policy makers, and customers over the last decade and a half, progress has been limited and wide quality gaps, where patient do not receive the care they should, remain. While technical improvements have gone a long way in these efforts, adaptive improvements in the culture of safety need to be more vigorously addressed. Likewise, quality metrics and a scientific approach to patient safety is necessary to ensure that interventions actually work. The Comprehensive Unit Safety Program (CUSP) strategy and its embedded Learning from Defects (LFD) process are central to creating a sustainable improvement in the culture of patient safety and quality, and in real outcomes and process improvements. CUSP is a bottom-up approach that relies on the wisdom and efforts of front-line providers who best know the safety issues in their immediate environment. The LFD process seeks to translate evidence into practice (TRiP model) building interventions and tools to improve safety and close the quality gap. The development of these interventions and tools are guided by the principles of safe design and the application of the four E’s (engagement, education, execution, and evaluation) can be successfully implemented into the health care environment with substantial improvements in safety and quality.
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45

Busch, Fredric, Barbara Milrod, Cory Chen, and Meriamne Singer. Trauma Focused Psychodynamic Psychotherapy. Oxford University Press, 2021. http://dx.doi.org/10.1093/med/9780197574355.001.0001.

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This book, which operationalizes and articulates in detail a unique, brief, tested psychodynamic psychotherapy for Post-Traumatic Stress Disorder, Trauma Focused Psychodynamic Psychotherapy [TFPP], describes how to perform this helpful treatment. The book provides tailored psychodynamic background that underpins these approaches, and explains the different phases of treatment. Additionally, it articulates common underlying dynamics of PTSD that the treatment commonly addresses in patients to bring about symptomatic relief. TFPP is being tested in two diverse populations: military Veterans with PTSD who are receiving care at three Veterans Administration Hospitals, and also among LGBTQ patients with PTSD. The book is focused on the authors’ experiences treating Veterans and many clinical examples are provided demonstrating how to work with these principles and approaches. In general, patients and therapists have found the treatment to be an extremely useful tool. Veterans have gained insight into the impact of traumatic experiences on various aspects of their lives and had improvements in dissociation, interpersonal engagement, anxiety, and anger/hostility. TFPP appears to be particularly effective for patients with prominent avoidance symptoms and those who are unwilling or unable to recount the details of their trauma directly. Patients have been found to be more affectively engaged and better connected to others (including the therapist) following treatment.
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46

Pettit, Lorren. Cultivating a Digital Culture for Effective Patient Engagement: A Strategic Framework and Toolkit for Health-Provider Websites. Productivity Press, 2020.

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47

Saxton, James W., Esq, and Esq. and Maggie M. Finkelstein. Operation Five-Star: Service Excellence in the Medical Practice - Cultural Competency, Post-Adverse Events, and Patient Engagement. Greenbranch Publishing, 2014.

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48

Pettit, Lorren. Cultivating a Digital Culture for Effective Patient Engagement: A Strategic Framework and Toolkit for Health-Provider Websites. Productivity Press, 2020.

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49

Pettit, Lorren. Cultivating a Digital Culture for Effective Patient Engagement: A Strategic Framework and Toolkit for Health-Provider Websites. Productivity Press, 2020.

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50

Pettit, Lorren. Cultivating a Digital Culture for Effective Patient Engagement: A Strategic Framework and Toolkit for Health-Provider Websites. Productivity Press, 2020.

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