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Journal articles on the topic 'Ethical end-of-life care'

Author: Grafiati

Published: 4 June 2021

Last updated: 1 February 2022

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1

Akdeniz, Melahat, Bülent Yardımcı, and Ethem Kavukcu. "Ethical considerations at the end-of-life care." SAGE Open Medicine 9 (January 2021): 205031212110009. http://dx.doi.org/10.1177/20503121211000918.

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The goal of end-of-life care for dying patients is to prevent or relieve suffering as much as possible while respecting the patients’ desires. However, physicians face many ethical challenges in end-of-life care. Since the decisions to be made may concern patients’ family members and society as well as the patients, it is important to protect the rights, dignity, and vigor of all parties involved in the clinical ethical decision-making process. Understanding the principles underlying biomedical ethics is important for physicians to solve the problems they face in end-of-life care. The main sit

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2

Childress, Sue. "Ethics at the End of Life." Home Health Care Management & Practice 20, no. 5 (2007): 414–17. http://dx.doi.org/10.1177/1084822307311829.

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Patients, families, and health care providers all face ethical issues at the end of life. Related to increased technology, decreased resources, and immense cultural diversity, these controversies are a common concern to providers in home care. Increased knowledge and skills related to ethical discussions are crucial tools for providers in home care. Providers'abilities to facilitate these discussions with families and patients at the end of life can ease the transition from aggressive care to hospice care. This article describes basic principles of an ethical discussion and discusses the commo

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3

Finlay, Ilora G. "Ethical principles in end-of-life care." Medicine 48, no. 1 (2020): 61–63. http://dx.doi.org/10.1016/j.mpmed.2019.10.007.

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4

Scanlon, Colleen. "Ethical Concerns in End-of-Life Care." AJN, American Journal of Nursing 103, no. 1 (2003): 48–55. http://dx.doi.org/10.1097/00000446-200301000-00021.

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5

Reed, Claudia Jean. "Ethical dilemmas and end-of-life care." Nursing Made Incredibly Easy! 13, no. 6 (2015): 16–24. http://dx.doi.org/10.1097/01.nme.0000470083.25349.8d.

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6

Walker, Robert M. "Ethical Issues in End-of-Life Care." Cancer Control 6, no. 2 (1999): 162–67. http://dx.doi.org/10.1177/107327489900600204.

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7

Greenberger, Chaya. "Enteral nutrition in end of life care." Nursing Ethics 22, no. 4 (2014): 440–51. http://dx.doi.org/10.1177/0969733014538891.

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Providing versus foregoing enteral nutrition is a central issue in end-of-life care, affecting patients, families, nurses, and other health professionals. The aim of this article is to examine Jewish ethical perspectives on nourishing the dying and to analyze their implications for nursing practice, education, and research. Jewish ethics is based on religious law, called Halacha. Many Halachic scholars perceive withholding nourishment in end of life, even enterally, as hastening death. This reflects the divide they perceive between allowing a fatal disease to naturally run its course until an

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8

Izumi, Shigeko. "Ethical practice in end-of-life care in Japan." Nursing Ethics 17, no. 4 (2010): 457–68. http://dx.doi.org/10.1177/0969733010364584.

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Nurses are obliged to provide quality nursing care that meets the ethical standards of their profession. However, clear descriptions of ethical practice are largely missing in the literature. Qualitative research using a phenomenological approach was conducted to explicate ethical nursing practice in Japanese end-of-life care settings and to discover how ethical practices unfold in clinical situations. Two paradigm cases and contrasting narratives of memorable end-of-life care from 32 Japanese nurses were used to reveal four levels of ethical practice: ethical, distressed, uncertain, and uneth

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9

Chaloner, Chris. "End of life care needs ethical reference points." Nursing Standard 24, no. 18 (2010): 33. http://dx.doi.org/10.7748/ns.24.18.33.s44.

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10

Larcher, Vic. "Ethical considerations in neonatal end-of-life care." Seminars in Fetal and Neonatal Medicine 18, no. 2 (2013): 105–10. http://dx.doi.org/10.1016/j.siny.2012.10.011.

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11

McCurdy, Dennis. "Ethical Spiritual Care at the End of Life." AJN, American Journal of Nursing 108, no. 5 (2008): 11. http://dx.doi.org/10.1097/01.naj.0000317969.72264.96.

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12

O'Keefe, Mary E., and Kate Crawford. "End-of-life care: Legal and ethical considerations." Seminars in Oncology Nursing 18, no. 2 (2002): 143–48. http://dx.doi.org/10.1053/sonu.2002.32512.

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13

Rejnö, Åsa, and Linda Berg. "Strategies for handling ethical problems in end of life care: obstacles and possibilities." Nursing Ethics 22, no. 7 (2014): 778–89. http://dx.doi.org/10.1177/0969733014547972.

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Background: In end of life care, ethical problems often come to the fore. Little research is performed on ways or strategies for handling those problems and even less on obstacles to and possibilities of using such strategies. A previous study illuminated stroke team members’ experiences of ethical problems and how the teams managed the situation when caring for patients faced with sudden and unexpected death from stroke. These findings have been further explored in this study. Objective: The aim of the study was to illuminate obstacles and possibilities perceived by stroke team members in usi

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14

Smithard, David, Laura Mitchell, and Farica Patel. "Ethical considerations of care towards the end of life." Nursing and Residential Care 21, no. 3 (2019): 146–50. http://dx.doi.org/10.12968/nrec.2019.21.3.146.

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15

Fetherston, Anne A., Grace Rowley, and Charlotte L. Allan. "Challenges in end-of-life dementia care." Evidence Based Mental Health 21, no. 3 (2018): 107–11. http://dx.doi.org/10.1136/eb-2018-102889.

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Dementia is a chronic, progressive disease that is now much more widely recognised and treated. Patients with dementia may require palliative care when they reach the end stage of their illness, or they may have mild–moderate cognitive symptoms comorbid with a life-limiting illness. The variety of presentations necessitates a highly individual approach to care planning, and patients should be encouraged to set their own goals and contribute to advanced care planning where possible. Assessment and management of distressing symptoms at the end of life can be greatly helped by a detailed knowledg

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16

Hernández-Marrero, Pablo, Emília Fradique, and Sandra Martins Pereira. "Palliative care nursing involvement in end-of-life decision-making: Qualitative secondary analysis." Nursing Ethics 26, no. 6 (2018): 1680–95. http://dx.doi.org/10.1177/0969733018774610.

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Background: Nurses are the largest professional group in healthcare and those who make more decisions. In 2014, the Committee on Bioethics of the Council of Europe launched the “Guide on the decision-making process regarding medical treatment in end-of-life situations” (hereinafter, Guide), aiming at improving decision-making processes and empowering professionals in making end-of-life decisions. The Guide does not mention nurses explicitly. Objectives: To analyze the ethical principles most valued by nurses working in palliative care when making end-of-life decisions and investigate if they a

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17

Allmark, Peter, and Angela Tod. "End of life care pathways: ethical and legal principles." Nursing Standard 24, no. 14 (2009): 35–39. http://dx.doi.org/10.7748/ns2009.12.24.14.35.c7434.

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18

Allmark, Peter, and Angela Tod. "End of life care pathways: ethical and legal principles." Nursing Standard 24, no. 14 (2009): 35–39. http://dx.doi.org/10.7748/ns.24.14.35.s46.

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19

Thorns, Andrew. "Ethical and legal issues in end-of-life care." Clinical Medicine 10, no. 3 (2010): 282–85. http://dx.doi.org/10.7861/clinmedicine.10-3-282.

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20

Chessa, Frank, and Fernando Moreno. "Ethical and Legal Considerations in End-of-Life Care." Primary Care: Clinics in Office Practice 46, no. 3 (2019): 387–98. http://dx.doi.org/10.1016/j.pop.2019.05.005.

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21

Casarett, David. "Ethical Considerations in End-of-Life Care and Research." Journal of Palliative Medicine 8, supplement 1 (2005): s—148—s—160. http://dx.doi.org/10.1089/jpm.2005.8.s-148.

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22

Kyba, Ferne C. "Legal and ethical issues in end-of-life care." Critical Care Nursing Clinics of North America 14, no. 2 (2002): 141–55. http://dx.doi.org/10.1016/s0899-5885(01)00004-1.

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23

Giebel, Heidi. "Ethical end-of-life palliative care: response to Riisfeldt." Journal of Medical Ethics 46, no. 1 (2019): 51–52. http://dx.doi.org/10.1136/medethics-2019-105451.

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In a recent article, 1 Riisfeldt attempts to show that the principle of double effect (PDE) is unsound as an ethical principle and problematic in its application to palliative opioid and sedative use in end-of-life care. Specifically, he claims that (1) routine, non-lethal opioid and sedative administration may be “intrinsically bad” by PDE’s standards, (2) continuous deep palliative sedation (or “terminal sedation”) should be treated as a bad effect akin to death for purposes of PDE, (3) PDE cannot coherently be applied in cases where death “indirectly” furthers an agent’s intended end of pai

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24

Matzo, Marianne LaPorte, Deborah Witt Sherman, Paula Nelson-Marten, Anne Rhome, and Marcia Grant. "Ethical and Legal Issues in End-of-Life Care." Journal for Nurses in Staff Development (JNSD) 20, no. 2 (2004): 59–66. http://dx.doi.org/10.1097/00124645-200403000-00001.

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25

Kim, Hyejin, Janet A. Deatrick, and Connie M. Ulrich. "Ethical frameworks for surrogates’ end-of-life planning experiences." Nursing Ethics 24, no. 1 (2016): 46–69. http://dx.doi.org/10.1177/0969733016638145.

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Background: Despite the growing body of knowledge about surrogate decision making, we know very little about the use of ethical frameworks (including ethical theories, principles, and concepts) to understand surrogates’ day-to-day experiences in end-of-life care planning for incapacitated adults. Objectives and Methods: This qualitative systematic review was conducted to identify the types of ethical frameworks used to address surrogates’ experiences in end-of-life care planning for incapacitated adults as well as the most common themes or patterns found in surrogate decision-making research.

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26

Rosenberg, Tziporah, and Jenny Speice. "Integrating care when the end is near: Ethical dilemmas in end-of-life care." Families, Systems, & Health 31, no. 1 (2013): 75–83. http://dx.doi.org/10.1037/a0031850.

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27

Potvin, Noah, Cathleen Flynn, and Jillian Storm. "Ethical Decision-Making at Intersections of Spirituality and Music Therapy in End-of-Life Care." Music Therapy Perspectives 38, no. 1 (2020): 20–24. http://dx.doi.org/10.1093/mtp/miz027.

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Abstract Music therapists in end-of-life care settings are commonly requested by patients to self-disclose their spiritual beliefs and to participate in explicit spiritual practices or rituals. Four potential courses of action available to music therapists will be framed using an integrative ethical decision-making model in context of the American Music Therapy Association Code of Ethics. Stakeholdership, moderating obligations, and ethical values are concepts integral to this examination, providing music therapists dynamic constructs to continuously utilize when determining effective, cultura

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28

Akpinar, Aslihan, Muesser Ozcan Senses, and Rahime Aydin Er. "Attitudes to End-of-Life Decisions in Paediatric Intensive Care." Nursing Ethics 16, no. 1 (2009): 83–92. http://dx.doi.org/10.1177/0969733008097994.

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The aim of this study was to assess attitudes of intensive care nurses to selected ethical issues related to end-of-life decisions in paediatric intensive care units. A self-administered questionnaire was distributed in 2005 to intensive care nurses at two different scientific occasions in Turkey. Of the 155 intensive care nurse participants, 98% were women. Fifty-three percent of these had intensive care experience of more than four years. Most of the nurses failed to agree about withholding (65%) or withdrawing (60%) futile treatment. In addition, 68% agreed that intravenous nutrition must c

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29

Hiruy, Kiros, and Lillian Mwanri. "End-of-life experiences and expectations of Africans in Australia." Nursing Ethics 21, no. 2 (2013): 187–97. http://dx.doi.org/10.1177/0969733012475252.

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The ageing and frail migrants who are at the end of life are an increasing share of migrants living in Australia. However, within such populations, information about end-of-life experiences is limited, particularly among Africans. This article provides some insights into the sociocultural end-of-life experiences of Africans in Australia and their interaction with the health services in general and end-of-life care in particular. It provides points for discussion to consider an ethical framework that include Afro-communitarian ethical principles to enhance the capacity of current health service

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30

Schaffer, Marjorie A. "Ethical Problems in End-of-Life Decisions for Elderly Norwegians." Nursing Ethics 14, no. 2 (2007): 242–57. http://dx.doi.org/10.1177/0969733007073707.

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Norwegian health professionals, elderly people and family members experience ethical problems involving end-of-life decision making for elders in the context of the values of Norwegian society. This study used ethical inquiry and qualitative methodology to conduct and analyze interviews carried out with 25 health professionals, six elderly people and five family members about the ethical problems they encountered in end-of-life decision making in Norway. All three participant groups experienced ethical problems involving the adequacy of health care for elderly Norwegians. Older people were con

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31

Pinheiro, Anielli, Marcelo Arruda Nakazone, Fernanda Silva Leal, Marcela Augusta Souza Pinhel, Dorotéia Rossi Silva Souza, and José Paulo Cipullo. "Medical students' knowledge about end-of-life decision-making." Revista Brasileira de Educação Médica 35, no. 2 (2011): 171–76. http://dx.doi.org/10.1590/s0100-55022011000200005.

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The influence of medical students' knowledge concerning end-of-life care, considering ethical theories and clinical practice, remains controversial. We aimed to investigate medical students' knowledge of bioethical concepts related to moral kinds of death (euthanasia, disthanasia, and orthothanasia) and to analyze the influence of their clinical experience on practicing such approaches in a tertiary hospital in the state of São Paulo, Brazil. We interviewed 180 medical students [distributed in Group 1 (G1) - first to third- year students, and Group 2 (G2) - fourth to sixth-year students] to ev

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32

Pleschberger, Sabine, Jane E. Seymour, Sheila Payne, Reginald Deschepper, Bregje D. Onwuteaka-Philipsen, and Mette L. Rurup. "Interviews on End-of-Life Care With Older People." Qualitative Health Research 21, no. 11 (2011): 1588–600. http://dx.doi.org/10.1177/1049732311415286.

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Qualitative research provides important insights into the experiences and perspectives of older people on end-of-life issues, but such research is methodologically and ethically complex. We offer a set of reflections from six end-of-life care studies conducted with older people in four European countries: Belgium, Germany, the Netherlands, and the United Kingdom. The reflection process was informed by four full-day meetings between the authors and referral to sources including the study interview guides, summary “pen portraits” about key issues encountered in the interviews, and key sections o

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33

Laskar, Shamima Parvin. "Challenges of Palliative Care." Bangladesh Journal of Bioethics 4, no. 3 (2013): 19–24. http://dx.doi.org/10.3329/bioethics.v4i3.17374.

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It has been moral duty of physicians to save and prolong patients? life for as long as possible. But the philosophy of treatment regime for terminally ill patients had been changed. To save and prolong human life if it is meaningful has got added value. Many criticizes the modern way of death. Palliative sedation, euthanasia as a good death model is criticized for medicalization of management of death. Currently, end of life issues are one of the top 10 health care ethics challenges facing the public. There is a new ethical challenge that human life can be ended by a doctor, passively or activ

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34

Karnik, Sameera, and Amar Kanekar. "Ethical Issues Surrounding End-of-Life Care: A Narrative Review." Healthcare 4, no. 2 (2016): 24. http://dx.doi.org/10.3390/healthcare4020024.

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35

Ayyub, Rehana. "Case Study: An Ethical Dilemma in End of Life Care." International Journal of Nursing Education 7, no. 3 (2015): 33. http://dx.doi.org/10.5958/0974-9357.2015.00129.4.

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36

Moss, Erin L., and Keith S. Dobson. "Psychology, spirituality, and end-of-life care: An ethical integration?" Canadian Psychology/Psychologie canadienne 47, no. 4 (2006): 284–99. http://dx.doi.org/10.1037/co2006019.

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37

Cartwright, Colleen. "Ethical Challenges in End-of-Life Care for GLBTI Individuals." Journal of Bioethical Inquiry 9, no. 1 (2011): 113–14. http://dx.doi.org/10.1007/s11673-011-9345-8.

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38

Ortega-Galán, Ángela M. "Compassionate care at the end of life: An ethical question." Enfermería Clínica (English Edition) 29, no. 1 (2019): 1–2. http://dx.doi.org/10.1016/j.enfcle.2019.01.003.

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39

Rady, Mohamed Y., and Joseph L. Verheijde. "Scientific and Ethical Challenges in End-of-Life Organ Donation." Critical Care Medicine 43, no. 11 (2015): e526. http://dx.doi.org/10.1097/ccm.0000000000001182.

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40

Robinson, Louise, Julian Hughes, Sarah Daley, John Keady, Clive Ballard, and Ladislav Volicer. "End-of-life care and dementia." Reviews in Clinical Gerontology 15, no. 2 (2005): 135–48. http://dx.doi.org/10.1017/s0959259806001833.

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In the UK, research continues to confirm that people with certain chronic illnesses, such as chronic lung disease and cardiac failure, represent the ‘disadvantaged dying’ compared to those with terminal cancer. But what is the situation for people dying with advanced dementia and what is the experience of their carers? Practical guidance for clinicians is scarce. In Standard 7 of the National Service Framework for Older People, which covers mental health, there is mention neither of how care should be provided nor of how patient choice should be ensured for people with dementia at the end of l

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41

İbrahimoğlu, Özlem. "Ethical problems and ethical approach of the end of life patients in intensive care." Health Care Academician Journal 4, no. 3 (2017): 216. http://dx.doi.org/10.5455/sad.13-1504687755.

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42

Hemberg, Jessica, and Elisabeth Bergdahl. "Dealing with ethical and existential issues at end of life through co-creation." Nursing Ethics 27, no. 4 (2019): 1012–31. http://dx.doi.org/10.1177/0969733019874496.

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Background In research on co-creation in nursing, a caring manner can be used to create opportunities for the patient to reach vital goals and thereby increase the patient’s quality of life in palliative home care. This can be described as an ethical cornerstone and the goal of palliative care. Nurses must be extra sensitive to patients’ and their relatives’ needs with regard to ethical and existential issues and situations in home care encounters, especially at the end of life. Aim The aim of this study was to explore nurses’ experiences of dealing with ethical and existential issues through

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43

Whitty-Rogers, Joanne, Marion Alex, Cathy MacDonald, Donna Pierrynowski Gallant, and Wendy Austin. "Working with Children in End-of-Life Decision Making." Nursing Ethics 16, no. 6 (2009): 743–58. http://dx.doi.org/10.1177/0969733009341910.

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Traditionally, physicians and parents made decisions about children’s health care based on western practices. More recently, with legal and ethical development of informed consent and recognition for decision making, children are becoming active participants in their care. The extent to which this is happening is however blurred by lack of clarity about what children — of diverse levels of cognitive development — are capable of understanding. Moreover, when there are multiple surrogate decision makers, parental and professional conflict can arise concerning children’s ‘best interest’. Giving c

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44

Rejnö, Åsa, Gunilla Silfverberg, and Britt-Marie Ternestedt. "Reasoning about truth-telling in end-of-life care of patients with acute stroke." Nursing Ethics 24, no. 1 (2016): 100–110. http://dx.doi.org/10.1177/0969733016664974.

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Background: Ethical problems are a universal phenomenon but rarely researched concerning patients dying from acute stroke. These patients often have a reduced consciousness from stroke onset and thereby lack ability to convey their needs and could be described as ‘incompetent’ decision makers regarding their own care. Objective: The aim of the study was to deepen the understanding of stroke team members’ reasoning about truth-telling in end-of-life care due to acute stroke. Research design: Qualitative study based on individual interviews utilizing combined deductive and inductive content anal

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45

SCHOENHOLTZ, JACK C. "Life and Death Decisions: Psychological and Ethical Considerations in End-of-Life Care." American Journal of Psychiatry 161, no. 10 (2004): 1934–36. http://dx.doi.org/10.1176/ajp.161.10.1934.

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46

Holmberg, Bodil, Ingrid Hellström, and Jane Österlind. "End-of-life care in a nursing home: Assistant nurses’ perspectives." Nursing Ethics 26, no. 6 (2018): 1721–33. http://dx.doi.org/10.1177/0969733018779199.

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Background: Worldwide, older persons lack access to palliative care. In Sweden, many older persons die in nursing homes where care is provided foremost by assistant nurses. Due to a lack of beds, admission is seldom granted until the older persons have complex care needs and are already in a palliative phase when they move in. Objective: To describe assistant nurses’ perspectives of providing care to older persons at the end of life in a nursing home. Research design: Data were collected in semi-structured individual interviews and analyzed with inductive qualitative content analysis. Particip

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47

Meyer, Star. "Care Management Role in End-of-Life Discussions." Care Management Journals 13, no. 4 (2012): 180–83. http://dx.doi.org/10.1891/1521-0987.13.4.180.

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How do we prepare our patients for decisions that will need to be made for end-of-life care? End-of-life care discussions should occur early on in the patient’s disease process and often requires a great deal of coordination between multiple caregivers. There are also ethical, cultural, social, and spiritual considerations during this very important time in the disease process. Research suggests that we are not doing an adequate job of addressing end-of-life care with our patients and that a great deal of money and resources are being spent in the last days of life when there may be no clinica

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48

Wiegand, Debra L., Julia MacMillan, Maiara Rogrigues dos Santos, and Regina Szylit Bousso. "Palliative and End-of-Life Ethical Dilemmas in the Intensive Care Unit." AACN Advanced Critical Care 26, no. 2 (2015): 142–50. http://dx.doi.org/10.4037/nci.0000000000000085.

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Critical care nurses and advanced practice registered nurses frequently face bioethical dilemmas in clinical practice that are related to palliative and end-of-life care. Many of these dilemmas are associated with decisions made concerning continuing, limiting, or withdrawing life-sustaining treatments. The purpose of this article is to describe common ethical challenges through case study presentations and discuss approaches that critical care nurses and advanced practice registered nurses in collaboration with the interdisciplinary team can use to address these challenges. Resources that may

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49

DooRee Kim, 김경남, Taewha Lee, Eun Kyoung Han, and 김상희. "Factors Influencing Nurses’ Ethical Decision-Making Regarding End-of-Life Care." Korean Journal of Medical Ethics 17, no. 1 (2014): 34–47. http://dx.doi.org/10.35301/ksme.2014.17.1.34.

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50

Pinho-Reis, Cintia, António Sarmento, and Manuel Luís Capelas. "Nutrition and Hydration in the End-of-Life Care: Ethical Issues." Acta Portuguesa de Nutrição 15 (December 31, 2018): 36–40. http://dx.doi.org/10.21011/apn.2017.1507.

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