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1

Ferrer, Ilyan. "Exploring older people's everyday experiences of loss in late life." Thesis, McGill University, 2009. http://digitool.Library.McGill.CA:80/R/?func=dbin-jump-full&object_id=116002.

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Normative ideas of age and stage-based transitions are built into policies and practices related to aging. However, how the issues of loss and depression impact older people's experiences of transition are often less prevalent. This paper discusses the sub-theme of loss identified within data from the Late Life Transitions Project; a SSHRC funded research project. In this thesis, qualitative interviews were analyzed from 30 community-residing seniors from diverse social backgrounds. Focused exploration of the everyday ways in which older people discussed major transitions and turning points revealed a strong subtheme of loss. Findings presented are related to the types of loss, the various barriers to integrating loss, coping mechanisms and the impact of social location on loss. Such discussions inform understandings of the ways in which older people discuss and make sense of their loss, and may provide guidance to plan interventions that are more relevant to older people's late life experiences.
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2

Arteaga, Perez Maria. "Life must go on : everyday experiences of colorectal cancer treatments in London." Thesis, University College London (University of London), 2018. http://discovery.ucl.ac.uk/10061403/.

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This thesis examines the everyday experiences of colorectal cancer treatments in London (UK) through an analysis of the caregiving practices that both structure the treatment pathway and afford research participants the possibility of 'getting on with life'. Drawing on 17 months of ethnographic fieldwork inside and outside a publicly funded gastro-intestinal cancer clinic, this thesis mobilises the perspectives of patients, caregivers and health professionals to complicate what patient experience consists of. In parallel to national efforts that gather standardised metrics to measure patient experience as something that is the exclusive responsibility of the cancer clinic, this thesis offers a detailed and context-specific analysis of the ways in which 10 cancer patients and their support networks deal with and make sense of the requirements, side effects and consequences of colorectal cancer treatments. The chapters unpack the relentless but fragile everyday work that is done by research participants to continue living, foregrounding the ethical, material and affective dimensions at stake in navigating the interruption that bowel cancer treatments pose to their lives. Developing the concept of caregiving as a world-making project, this thesis unpacks the potential of care practices to create different possibilities of experience by improvising, crafting and staging environments for comfortable living. In contrast to ethnographic work that conceives of caregiving through its ritual dimensions and performative effects, this thesis makes an argument for the usefulness of exploring caregiving as moral projects that are organised by the values that participants seek to realise. As such, caregiving understood as world-making not only offers a challenging perspective about the ways in which we cope and make sense of the suffering, frustration and anxiety of being confronted with death, but it also foregrounds the practices through which cancer patients and their support networks strive to reconfigure bodies, selves and relationships for an ongoing life.
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3

Dhiman, Raman Preet. "Negotiating identity in everyday life, the experiences of Canadian women of South Asian origin." Thesis, National Library of Canada = Bibliothèque nationale du Canada, 1997. http://www.collectionscanada.ca/obj/s4/f2/dsk2/ftp01/MQ33363.pdf.

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4

Forslin, Elina, and Weldekiros Weldekiros. "Integration of non-European elderly migrants in Sweden: With focus on everyday-life experiences." Thesis, Högskolan i Gävle, Avdelningen för socialt arbete och kriminologi, 2019. http://urn.kb.se/resolve?urn=urn:nbn:se:hig:diva-30483.

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The aim of this study is to explore the integration of non-European elderly migrants in Sweden with focus on everyday-life experiences. The study has an explorative design attempting at problematizing the integration of this group and finding new aspects that previous research has not addressed. A qualitative method with semi-structured interviews with four non-European elderly migrants has been carried out. The theories utilized for analyzing the research material are social integration theory and social exclusion theory. This study shows that non-European elderly migrants face linguistic and cultural barriers in their social integration and when seeking social support. They experienced lack of support in their integration into the everyday life of the society, risking of being lonely, isolated and marginalized. Late-in-life migrants appeared to be the most vulnerable.
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5

Li, Qiunan. "Everyday life in the puppet state : a study of ordinary people's experiences in Manchukuo." Thesis, University of Sheffield, 2018. http://etheses.whiterose.ac.uk/22326/.

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This thesis explores the experiences of ordinary people living under Japanese occupation in Manchukuo from 1932 to 1945. By examining the harsh nature of colonial rule and the impact on the people, this dissertation shows the multiple ways in which the everyday life of ordinary people was influenced by the various upheavals and hardships. This research mainly uses newspapers, primary published materials, documents, compilations, dictations and other Chinese language sources. This thesis thus establishes a detailed account of the sufferings that colonial subjects encountered in their daily lives and the coping methods that they employed to circumvent them. The experiences of the people were highlighted through the role of education, access to and rationing of goods, the sense of homelessness in the midst of ongoing housing crises, as well as sanitation and hygienic issues, which constituted altogether the core aspects of the everyday life of the people. In essence, ordinary people of Manchukuo lived a life overwhelmed by shortages, misfortunes and difficulties. Focusing on both rural and urban areas, this thesis argues how the people of Manchukuo were passive in face of the various policies implemented by the regime, but yet active in face of the hardships that followed. This sense of passivity, or the general lack of initiative, demonstrates in fact how motives of self-protection and survival beneath the acts of superficial compliance directed the people’s everyday life in Manchukuo. With the current literature’s emphasis on the economic and social structures of the puppet state, this thesis seeks to fill the gap by recognizing the importance of the everyday experiences of the colonial subjects.
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6

Sipos, Michal. "War, asylum, and everyday life : the experiences of Chechen and Ingush refugees in Poland." Thesis, Goldsmiths College (University of London), 2016. http://research.gold.ac.uk/16597/.

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This doctoral thesis builds upon long-term and predominantly single-sited ethnographic fieldwork conducted with Chechen and Ingush asylum seekers in one particular asylum centre in Eastern Poland between 2007 and 2009. It is concerned with some of the processes that constitute what some scholars have regarded as the unsettled and uprooted identity of refugees. Acknowledging that the thing that all immigrants from the North Caucasus had in common was the fact that their lives had been dramatically affected by the post-socialist Russo-Chechen wars, I consider war and displacement to be extreme disruptive events. Focusing on refugees’ voices, their narratives, life stories, utterances, paintings, but also silences, I examine the variety of ways in which these subjects attempted to make sense of a world, which had been radically changed by violence. Besides, the thesis does not overlook that refugee identity is also produced through the historically specific institutional practices and discourses of those who take part in political and humanitarian intervention. After delineating the way in which the notion ‘refugee’ was constructed in post-socialist Poland, I describe this political-legal construction as it existed and reproduced itself in the context of everyday life. Last, I consider the way in which these definitions became part of refugees’ lived experiences. Describing the people I encountered in the field—mostly refugees but also low-level bureaucrats, social workers, teachers, or local inhabitants of the surrounding urban and economically deprived neighbourhood—this doctoral thesis explores how violent disruption becomes integrated in the everyday life of victims of war and displacement within a specific political, socio-economic and historical setting.
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Brian, Robin Lynne. "The Experiences of Living with Excess Weight as an Adolescent: Everyday Life and Healthcare Encounters." Kent State University / OhioLINK, 2011. http://rave.ohiolink.edu/etdc/view?acc_num=kent1300370920.

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8

Larsson, Lund Maria. "Living with physical disability : experiences of the rehabilitation process, occupations and participation in everyday life." Doctoral thesis, Umeå : Univ, 2004. http://urn.kb.se/resolve?urn=urn:nbn:se:umu:diva-317.

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9

Jones, Emma. "Locating citizenship within everyday life;perceptions and experiences from Kwoi, southern Kaduna State, northern Nigeria." Thesis, University of Sussex, 2006. http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.526828.

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10

Olsson, Malin. "Expressions of freedom in everyday life : the meaning of women's experiences of living with multiple sclerosis." Licentiate thesis, Luleå : Luleå University of Technology, 2007. http://epubl.ltu.se/1402-1757/2007/19/.

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11

Blom, Johansson Monica. "Aphasia and Communication in Everyday Life : Experiences of persons with aphasia, significant others, and speech-language pathologists." Doctoral thesis, Uppsala universitet, Forskning om funktionshinder och habilitering, 2012. http://urn.kb.se/resolve?urn=urn:nbn:se:uu:diva-173130.

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The aims of this thesis were to describe the experiences of persons with aphasia and their significant others of their conversations and use of communication strategies, examine current practice of family-oriented speech-language pathology (SLP) services, and test a family-oriented intervention in the early phase of rehabilitation. The persons with aphasia valued having conversations despite perceiving their aphasia as a serious social disability. They acknowledged the importance of the communication partners’ knowledge and understanding of aphasia and their use of supporting conversation strategies. Their own use of communication strategies varied considerably. The persons with aphasia longed to regain language ability and to be active participants in society. A majority of the significant others perceived their conversations with the person with aphasia as being less stimulating and enjoyable than conversations before stroke onset. Aphasia was considered a serious problem. The significant others took on increased communicative responsibility, where two thirds had changed their communicative behaviour to facilitate conversations. Type and severity of aphasia were especially related to the communicative experiences of the significant others and their motivation to be involved in SLP services. Thirty percent of the speech-language pathologists worked with people with aphasia and typically met with their families. They considered the involvement of significant others in SLP services as very important, especially in providing information about aphasia and communication partner training (CPT). However, involvement of significant others was restricted because of a time shortage and perceived limited skills and knowledge. In addition, there were national differences regarding aphasia rehabilitation services. The intervention consisted of three sessions directed to significant others (primarily emotional support and information) and three directed to the dyads (a person with aphasia and a significant other) (primarily CPT). All six participants (three dyads) felt that their knowledge and understanding of aphasia had increased and that their conversations had improved. These improvements were also evident to some extent with formal assessments. These results suggest the following: CPT should be an integral part of SLP services, national clinical guidelines are needed, and further education of speech-language pathologists and implementation of new knowledge into clinical practice requires consideration.
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Quaye, Esther. "A Qualitative Study of the Everyday Life Experiences of Working Mothers and their Children in Accra, Ghana." Thesis, Norges teknisk-naturvitenskapelige universitet, Psykologisk institutt, 2011. http://urn.kb.se/resolve?urn=urn:nbn:no:ntnu:diva-13157.

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This is an exploratory study which sought to know the everyday life experiences of working mothers in the financial sector of Accra, Ghana and their children. The hub of the study was to know how the family life looks like with the new demands of career women. Amongst the aims of the study was to investigate the working mothers ‟involvement in the everyday life of their children and how the children live their everyday lives with a working mother. A qualitative study, using a semi-structured interview guide was employed in gathering the data. The pattern of the questions that were asked was first, a narrative, followed by problem focused questions. Six pairs of families consisting of one mother working in the bank and one of her children were interviewed. The children were elementary school children within the age range of 10-12 years. The Qualitative Content Analysis was used in analysing the data. The results show that, the working mothers experience some form of stress in integrating their work and family roles. They expressed that, they mostly get home tired as a result of working throughout the day. A deep sense of motherhood was clear in their everyday routine, in that, they cared and thought of their children as it is expected of mothers. Their major challenge related to family life had to do with the amount of time they spend with their children which was reduced because of their work. It was also evident from the responses that, the working mothers needed and valued assistance with child care and domestic work because of their multiple roles.
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13

Mahir-Metinsoy, Ikbal Elif. "Poor Ottoman Turkish women during World War I : women’s experiences and politics in everyday life, 1914-1923." Thesis, Strasbourg, 2012. http://www.theses.fr/2012STRAG004/document.

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Cette thèse de doctorat examine l’impact social de la Première Guerre mondiale dans l’Empire ottoman sur les femmes turques défavorisées et la réaction quotidienne de ces femmes aux conditions négatives de la guerre et aux mesures de l’État concernant les femmes. Elle utilise l’approche de l’histoire populaire et des nouvelles sources des archives ottomanes pour démontrer les voix et les expériences des femmes ordinaires, surtout leur lutte contre l’appauvrissement à cause de la guerre et les politiques sociales insuffisantes. Par conséquent, elle contribue à combler une grande lacune dans l’historiographie sur l’Empire ottomane et les études sur les femmes qui examinent rarement les femmes turques ordinaires. Elle renforce l’idée que les femmes ottomanes ont eu des grandes difficultés à cause de la guerre contrairement aux comptes de modernisation soulignant seulement les développements positifs concernant les libertés et les droits des femmes après la guerre. Elle réfute les comptes acceptant la guerre comme une période pendant laquelle toutes les femmes turques ont vécu une « émancipation. » D’ailleurs, elle met en lumière les formes et les aspects des points de vue critiques des femmes et de la politique quotidienne des femmes pour survivre les conditions négatives de la guerre, pour faire entendre leurs voix, pour protéger leurs droits et pour recevoir des aides sociales
This dissertation examines the social impact of World War I in the Ottoman Empire on ordinary poor Turkish women and their everyday response to the adverse wartime conditions and the state policies concerning them. Based on new archival sources giving detailed information about the voice, experience and agency of these women and based on the history from below approach, this study focuses on poor, underprivileged and working Turkish women’s everyday experiences, especially their struggle against and perception of wartime conditions, mobilization and state policies about them. By doing so, it contributes to filling the great gap in late Ottoman historiography and women’s studies, which rarely examine ordinary women and their everyday problems and struggles for survival and rights. First, it scrutinizes how ordinary women experienced the war and argues that, in contrast to the modernization accounts that overlook women’s sufferings at the cost of post-war developments in women’s rights and liberties, ordinary Turkish women had great difficulties during the war years. It presents a major caveat to the accounts accepting the war years as a period during which Turkish women monolithically experienced a gradual liberty and « emancipation. » Second, it brings the unexamined forms and aspects of women’s critical and subjective views, their everyday politics to circumvent the adverse conditions and state policies, to make their voices heard, to pursue their rights, and to receive government support into the light
Bu doktora tezi Osmanlı İmparatorluğu’nda Birinci Dünya Savaşı’nın sıradan yoksul Türk kadınları üzerindeki sosyal etkilerini ve kadınların olumsuz savaş koşullarına ve kendileriyle ilgili devlet politikalarına yönelik tavırlarını incelemektedir. Kadınların sesleri, deneyimleri ve tarihsel rolleri hakkında detaylı bilgiler veren yeni arşiv kaynaklarına ve aşağıdan tarih yaklaşımına dayanan bu tez yoksul, temel sosyal haklardan yoksun ve çalışan Türk kadınlarının gündelik deneyimlerine, özellikle de savaş koşulları, seferberlik ve devlet politikalarını algılayış ve bunlarla mücadele biçimlerine odaklanmaktadır. Dolayısıyla, bu tez, sıradan kadınları ve onların gündelik problemleriyle hayatta kalma ve hak mücadelelerini çok az inceleyen Osmanlı tarihçiliği ve kadın araştırmalarındaki büyük bir boşluğu doldurmaya katkıda bulunmaktadır. Bu tez, bu anlamda, iki temel temaya odaklanmaktadır. Öncelikle, sıradan kadınların savaşı nasıl deneyimlediklerini mercek altına almakta ve onların çektikleri acıları savaş sonrası kadın hak ve özgürlüklerindeki ve üst ve orta sınıf eğitimli kadınların etkinlik ve deneyimlerindeki gelişmelerin bir bedeli olarak algılayıp gözden kaçıran modernleşmeanlatılarının tersine sıradan kadınların savaş yıllarında büyük güçlükler çektiğini savunmaktadır. Bu bağlamda, bu çalışma, Türk kadınlarının savaş yıllarında bütün olarak görece bir “özgürleşme” yaşadıklarını kabul eden anlatılara önemli bir uyarıdır. İkincil olarak, bu tez, kadınların zorluklarla gündelik mücadelelerine odaklanarak kadınların eleştirel ve öznel tutumlarının ve olumsuz koşullar ve devlet politikalarından kaçmak, seslerini duyurmak, haklarının peşine düşmek ve destek görebilmek amaçlı gündelik politikalarının keşfedilmemiş biçim ve yönlerini gün ışığına çıkarmaktadır
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14

Persson, Sara. "Experiences of Maternal Birth Injuries : How Gender and Sexuality Norms Affect Diagnostics, Everyday Life and Healthcare in Sweden." Thesis, Uppsala universitet, Centrum för genusvetenskap, 2018. http://urn.kb.se/resolve?urn=urn:nbn:se:uu:diva-376733.

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This thesis explores women’s experiences of maternal birth injuries, focusing on how gender and sexuality norms affect diagnostics, everyday life and healthcare in Sweden. The empirical material consists of 383 answers to an online questionnaire. The theoretical approaches are centred on how bodies are viewed and valued in a Western society, especially in connection to the social construction of health and illness in relation to gender and reproduction. Existing medical descriptions of maternal birth injuries are explored in comparison to the participants’ own definitions. No clear definition is found and the analysis demonstrates that maternal birth injuries can cause both mental and physical injuries/consequences, arising from both vaginal and caesarean births, and a shift away from mainly focusing on physical damage caused by vaginal delivery is suggested. Everyday life is affected in several ways by the complications that the birth injuries lead to, and many participants suffer severely, both physically and mentally. A majority of the participants seek care for these complications, and their experiences of Swedish healthcare reveal an attitude wherein maternal birth injuries are seen as something normal. Many do not receive sufficient care, if treated at all, and gender and sexuality norms affect how medical personnel act and speak. This demonstrates patriarchal structures, medical hierarchies and heterosexual norms within Swedish healthcare, which devalue female-coded bodies as well as their pain and pleasures. Hence, this thesis addresses the importance of researching the effect of underlying structures on care of women in general, and of maternal birth injuries in particular.
Den här uppsatsen handlar om förlossningsskador och utgår från kvinnors erfarenheter av bemötande och behandling i Sverige. Materialet består av 383 enkätsvar. De teoretiska utgångspunkterna fokuserar på hur kroppar är värderade samt hur sjukdom och hälsa är socialt konstruerade, speciellt i relation till genus och reproduktion i västerländska kontexter. Existerande medicinska förklaringar av förlossningsskador jämförs med deltagarnas egna definitioner och det framkommer att ingen entydig definition existerar. Nuvarande fokus är främst på fysiska skador från vaginala förlossningar men eftersom analysen visar att kejsarsnittsförlossningar också kan leda till förlossningsskador samt resultera i både mentala och fysiska komplikationer/skador, föreslås ett vidgande av innebörden i termen. Vardagen påverkas påtagligt för de flesta med förlossningsskador, och många lider både fysiskt och mentalt. En majoritet av deltagarna har sökt vård men deras erfarenheter av svensk sjukvård visar på flera brister och främst en attityd av att förlossningsskador är något normalt. Flertalet får bristfällig vård om de ens behandlas, och normativa föreställningar om genus samt sexualitet påverkar hur personalen talar och agerar. Underliggande patriarkala maktstrukturer och medicinska hierarkier som nedvärderar kvinnligt-kodade kroppars erfarenheter, lust och smärta blir framträdande. Den här uppsatsen visar därför på vikten av att utforska underliggande strukturers påverkan på vård av kvinnor generellt och speciellt i relation till förlossningsskador.
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del, Busso Lilliana. "Being-in-Motion: movement, femininity and space in young women's narratives of their embodied experiences in everyday life." Thesis, London South Bank University, 2009. http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.503691.

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This thesis explores young women's embodied experiences in everyday life. Three empirical studies utilising different methods were conducted exploring specific topics relating to women's everyday embodiment. Firstly, life history interviewing and participants' own pre-existing photographs from different time periods were used to explore specific, meaningful experiences in relation to women's embodiment over time. Secondly, diary writing and photo-production was used to explore heterosexual women's experiences of embodying pleasure in everyday life. And lastly, a memory work group method was used to explore heterosexual feminists' experiences of embodying anger in specific interactions with sexual partners. The accounts produced were analysed using a poststructuralist hermeneutic phenomenological narrative method of analysis, exploring simultaneously the embodied and phenomenological detail of specific experiences and the grounding of such experiences in wider sociopolitical processes and contexts. Women's accounts of their everyday embodiment suggested that experiences of being treated as object-like and experiences of movement were central. As such, incidents of being treated as object-like were experienced as disempowering and contrasted with experiences of movement felt as positive and liberating. Furthermore, aspects of time and space were central to women's explorations of their embodied experiences in everyday life. This thesis enjoins poststructuralist and phenomenological principles in proposing a critical feminist social psychological approach to women's embodiment, which theorises embodied experience as sensuous process lived through the spatial, material and socio-political world. This approach allows explicit embodied focus on how persons negotiate, accept or resist power dynamics, and thus live through and embody social practices and action.
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Jumisko, Eija. "Being forced to live a different everyday life : the experiences of people with traumatic brain injury and those of their close relatives." Licentiate thesis, Luleå, 2005. http://epubl.luth.se/1402-1757/2005/52.

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Öhman, Annika. "Navigating in a changing world : experiences of everyday life from the perspective of persons with cognitive impairment or dementia /." Stockholm, 2007. http://diss.kib.ki.se/2007/978-91-7357-132-6/.

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18

Hay, Frances Lily. "Incapacity, indebtedness and illegality : everyday experiences of poverty and barriers to better life and mobility for a migrant community in Delhi, India." Thesis, University of East Anglia, 2012. https://ueaeprints.uea.ac.uk/48692/.

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This research offers an ethnographic account of what can be learned about poverty and mobility from Bhatu people’s biographical narratives and everyday experiences. Historically nomadic and labelled a ‘criminal caste’ and ‘backward class’, this migrant community from village Rajasthan now lives in a ‘slum’ resettlement colony on the margins of Delhi. The findings show that Bhatu people’s experiences are shaped by accumulative, interlinked barriers of incapacity, illegality and indebtedness, which leave them most concerned with meeting their basic needs in everyday life. Influenced by cultural norms, their main opportunities for learning are earning and caring roles through which boys and girls prepare for adult life. However, these apprenticeships leave people unable to apply for government posts, unprepared for the formal job market and unskilled for more regular work with higher earnings. In addition, joint-family living perpetuates hierarchy and dependency between household members. The extreme inequalities of power that result not only feed children’s obligations to take on roles and meet responsibilities, but also fuel parent’s rights to expect their children to shoulder their roles and responsibilities on top of their own as they get older. Bhatu people’s illegality of status is intimately linked with their caste, class and gender identities. These are in turn the bases for discrimination, stigmatisation and corruption in their interactions with state representatives while accessing places to live and earn. Marginalised and isolated, their reliance on deviant and criminal activity is an expression of the extent of their needs, indicating the variation with which different peoples in India are able to access constitutional rights or pursue societal approved goals. Bhatu people’s ways of living and earning are further challenged by substance misuse and dependency, which are escalating particularly among men. The deterioration in health, followed by their premature deaths means women increasingly take on supplementary or sole earning roles while at the same time facing marital estrangement or widowhood. In desperate, often tragic circumstances people in general and women in particular turn to unrelenting community saving and borrowing schemes which attract high interest rates and late payment penalties. Such struggles lead households spiralling into indebtedness and leave them unable to create and maintain the conditions for life to continue, let alone pursue a better life. Only in a few cases are women and men successful in their pursuit of more subtle, culturally embedded claims to mobility. However, they are only recognised and legitimised within the Bhatu community and frequently challenged in everyday life.
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Åkerlind, Charlotta. "eHomecare – for safety and communication in everyday life : The perspectives of older users, relatives and care managers." Doctoral thesis, Mälardalens högskola, Hälsa och välfärd, 2017. http://urn.kb.se/resolve?urn=urn:nbn:se:mdh:diva-36717.

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The overall aim of this thesis was to examine how eHomecare affects the daily lives of older users and their relatives, with a focus on safety and communication. A further aim was to explore care managers’ perspectives, expectations and experiences of eHomecare and its implementation. Methods: Participants in study one and two were older people with granted eHomecare and eight relatives and, care managers in study three and four. Data were collected through four qualitative studies, using individual interviews in the first and second studies before the introduction and after six months’ use of eHomecare, by individual vignette-based interviews in the third study, and with focus-group interviews in the fourth study. Data were analysed using different qualitative content analyses. Results: The participants described safety as a part of everyday life. eHomecare was found to facilitate a ‘new safety’ for older people and a ‘re-established safety’ for relatives, yet its use raised concerns about ethical considerations and reduced human contact. Participants could attain feelings of togetherness and affection through communication, although this was also considered a vulnerable activity due to physical changes and loss of other people. Used correctly, eHomecare increased communication and thus closeness and participation for the participants. For older participants unable to use the technology as hoped, eHomecare led to disappointment. Care managers expressed that eHomecare can increase older peoples’ everyday life-quality if they receive the right tools at the right time. Care managers, however, have difficulties with eHomecare’s management process. While they struggle with their own attitudes, lack of time and high workloads, their decisions are also influenced by surrounding organisations and the older people’s relatives. Care managers’ own organisations, work situations, relevant stakeholders and society in general can hinder them in managing eHomecare as a new homecare service. Widespread information about eHomecare and opportunities for relevant stakeholders to participate in its implementation are good preconditions for fulfilling the mission of care managers. Conclusions: The findings describe eHomecare from the perspectives of its older users, their relatives and the care managers responsible for managing the service. Used correctly, eHomecare increases possibilities for communication and provides safety. However, care managers have a complex mission when managing the service and they express a need for support and knowledge. The findings can be used clinically to develop older peoples’ utilization of eHomecare and to develop support for the fulfilment of care managers’ mission. Keywords: care managers, content analysis, communication, eHomecare, experiences, information and communication technology, older people, participation, perceptions, relatives, safety, welfare technology
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Skundberg, Kletthagen Hege. "Everyday life of relatives of persons suffering from severe depression : Experiences of health, burden, sense of coherence and encounters with psychiatric specialist health services." Doctoral thesis, Karlstads universitet, Institutionen för hälsovetenskaper, 2015. http://urn.kb.se/resolve?urn=urn:nbn:se:kau:diva-35936.

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Aim: The overall aim of this thesis was to investigate and describe everyday life among relatives of inpatients with severe depression and their encounter with the psychiatric specialist health services (PSHS). Methods: A descriptive design with a qualitative and quantitative approach was used. Data was collected by means of a questionnaire responded to by 68 relatives and analysed with descriptive statistics (I, III). Individual interviews with 24 relatives were carried out and analysed with phenomenography (II, IV). Main findings: The everyday life of relatives to persons suffering from severe depression was affected. They reported burden and influence on their own health to a various degree (I). The relatives experienced that they were, “Living on the other person’s terms”. Relatives described ambivalent relationships, as they had to adjust their daily life in attempting to manage the situation (II). When the relatives encountered the PSHS, it may have been a long time of worries and struggles for help. They wanted to be a resource and a participant, and to be confident with the health care (IV). The need for support from the PSHS was greater than what they received. Relatives who reported receiving less information had higher burden scores than the others (III). Conclusions: Everyday life of relatives of persons suffering from severe depression is demanding. To be acknowledged as a resource in the treatment and care for the person suffering from depression is important. The mental health nurses being present at the wards 24 hours a day, are in a unique position to support the relatives.
Depression is one of ten global diseases entailing the greatest loss of life quality and years of life, which also gives consequences for the relatives. The overall aim of this thesis was to investigate and describe everyday life among relatives of inpatients with severe depression and their encounter with the psychiatric specialist health service (PSHS). The relatives experienced objective and subjective burden, and their own health was affected. Everyday life needed to be adjusted in line with the severity of the next-of-kin’s depression. When the relatives encountered the PSHS a long time of worries and struggles had passed from the onset of the depression until the next-of–kin was hospitalized. To be acknowledged as a resource, invited to collaborate and to share their knowledge was of great importance to the relatives. Addtionally, to receive information concerning the treatment and care was crucial. The mental health nurses are in a unique position to support the relatives.
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Adams, Lyngbäck Liz. "Experiences, networks and uncertainty : parenting a child who uses a cochlear implant." Doctoral thesis, Stockholms universitet, Institutionen för pedagogik och didaktik, 2016. http://urn.kb.se/resolve?urn=urn:nbn:se:su:diva-134901.

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The aim of this dissertation project is to describe the ways people experience parenting a deaf child who uses a cochlear implant. Within a framework of social science studies of disability this is done by combining approaches using ethnographic and netnographic methods of participant observation with an interview study. Interpretations are based on the first-person perspective of 19 parents against the background of their related networks of social encounters of everyday life. The netnographic study is presented in composite conversations building on exchanges in 10 social media groups, which investigates the parents’ meaning-making in interaction with other parents with similar living conditions. Ideas about language, technology, deafness, disability, and activism are explored. Lived parenting refers to the analysis of accounts of orientation and what 'gets done' in respect to these ideas in situations where people utilize the senses differently. In the results, dilemmas surrounding language, communication and cochlear implantation are identified and explored. The dilemmas extend from if and when to implant, to decisions about communication modes, intervention approaches, and schools. An important finding concerns the parents’ orientations within the dilemmas, where most parents come up against antagonistic conflicts. There are also examples found of a development process in parenting based on lived, in-depth experiences of disability and uncertainty which enables parents to transcend the conflictive atmosphere. This process is analyzed in terms of a social literacy of dis/ability.
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Franzén, Sofie, and Spire Ohlsson. "Upplevelser av att leva med inflammatorisk tarmsjukdom (IBD) : En litteraturstudie." Thesis, Högskolan i Gävle, Medicin- och vårdvetenskap, 2016. http://urn.kb.se/resolve?urn=urn:nbn:se:hig:diva-22795.

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Bakgrund: Inflammatorisk tarmsjukdom (IBD) innefattar sjukdomarna Ulcerös kolit och Morbus Crohn. Miljöfaktorer och förändrade kostvanor tros vara anledningar till att IBD-fallen ökat i USA och västra Europa på kort tid. I Sverige drabbas cirka 500 personer av Morbus Crohn varje år och Ulcerös kolit drabbar ca 900 personer per år. Sjukdomen yttrar sig i fysiska symtom som diarré, smärta och viktnedgång men påverkar även individen psykosocialt. Syfte: Syftet var att beskriva människors upplevelser av att leva med inflammatorisk tarmsjukdom samt att presentera vilken undersökningsgrupp som beskrivits i de inkluderade vetenskapliga artiklarna. Metod: Studien är en beskrivande litteraturstudie där 11 kvalitativa artiklar användes. Databaserna PubMed och Cinahl användes för att söka artiklar. Sökorden som användes var: Inflammatory Bowel Diseases, Qualitative, Everyday life och Lived experiences. Huvudresultat: IBD är en kronisk sjukdom. Fysiska symtom som illamående, viktnedgång, smärta och trötthet vilket även ses som ett psykiskt symtom. Oro, depression och dålig självkänsla upplevdes också. Sjukdomen visade sig påverka individens vardagsliv, kostvanor, familjeliv, och sociala relationer. Alla inkluderade artiklar presenterade undersökningsgruppen. Slutsats: IBD blir allt vanligare i världen. Symtomen är både fysiska och psykosociala och påverkar den drabbades vardagsliv, sociala liv och kosthållning. Sjuksköterskan möter en stor utmaning i att kunna bemöta och vårda dessa patienter då varje enskild individ har olika upplevelser av samma diagnos.
Background: Inflammatory bowel disease (IBD) includes the diseases Ulcerative Colitis and Morbus Crohn. Environmental factors and changing diets are thought to be reasons for IBD cases has increased in the US and Western Europe in a short time. It is in Sweden about 500 people affected of Morbus Crohn every year and Ulcerative colitis affects about 900 people per year. The disease has physical symptoms such as diarrhea, pain and weight loss, but also affects an individual psychosocial. Aim: The aim was to describe people's experiences of living with inflammatory bowel disease, and to present the study group as described in the included articles. Methods: This study is a descriptive literature study and 11 qualitative articles were used. PubMed and Cinahl were used to search for articles. Keywords used were: Inflammatory Bowel Diseases, Qualitative, Everyday Life and Lived Experiences. Main results: IBD is a chronic disease. Physical symptoms such as nausea, pain and fatigue which is also seen as a mental symptoms. The disease was found to influence the individual's daily life, eating habits, family life, and social relationships. All included articles presented the study group. Conclusion: IBD are becoming more common in the world. The symptoms are both physical and psychosocial and affects the afflicted person everyday life, social life and diet. Nurses face a big challenge in being able to confronting and care for these patients, since each individual has different perceptions of the same diagnosis.
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Svensson, Anton, and Matilda Case. "”Jag kommer aldrig att bli frisk igen” : Barns upplevelser av att leva med diabetes mellitus." Thesis, Högskolan i Halmstad, Akademin för hälsa och välfärd, 2015. http://urn.kb.se/resolve?urn=urn:nbn:se:hh:diva-28366.

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Diabetes typ 1 (DM typ 1) är en av de mest förekommande kroniska sjukdomarna och drabbar främst barn och tonårningar. DM typ 1 kräver en livslång övervakning och behandling med insulininjektioner vilket ställer höga ansvarskrav på den drabbade. Barn- och tonåren karaktäriseras av olika stadium. För att främja utvecklandet av en god patientdelaktighet under hela mognadsprocessen är det viktigt att sjuksköterskan besitter fördjupad kunskap om barns upplevelser av att leva med DM typ 1. Syftet med litteraturstudien var att beskriva barn i åldrarna 10-18 års upplevelser av att leva med DM typ 1. Metoddelen var en litteraturstudie som bestod av tio vetenskapliga artiklar. Resultatet framfördes genom tre huvudteman och tre underkategorier: Upplevelsen av egenvård, upplevelsen av stöd med underkategorierna; stöd genom föräldrar, stöd genom vänner och stöd genom sjukvårdsteamet och skolan. Det sista temat beskrev upplevelsen av sjukdomens påverkan på vardagen. Över tid upplevdes förståelsen och kunskapen av sjukdomen öka vilket genererade i förbättrad egenvård. Barn upplevde att en god problemlösningsförmåga var nyckeln till en välfungerande vardag. Varje patientmöte måste på en djupare nivå anpassas efter individen för att optimera vardagsupplevelsen för en person med DM typ 1. Sjuksköterskans roll i förbättringen av den unge individens vardagsupplevelser bör därför diskuteras mer.
Diabetes type 1 (DM type 1) is one ofe the most common chronical diseases and affects mainly children and adolescents. DM type 1 requires a lifelong monitoring and treatment with insulin injections, which sets high standards of responsibility on the affected person. Childhood and adolescence is characterized by different phases. To foster the development of a good patient participation thoughout the maturation process, it is important that nurses possess indepth knowledge about youth´s experiences. The aim of this study was to describe children´s, in the age of 10-18, experiences of livning with DM type 1. The method was a literature study which consisted of ten scientific articles. The findings was performed by three main themes and three sub-categories: the experience of self-care, the experience of support with the sub-categories: support from parents, support from friends and support through the healtcare team and the school. The last theme described the experience of the diseases impact on everyday life. Over time the experienced understanding and knowledge of the disease increased, which generated in improved self-care. Children experienced that good problem solvning skills were the key to a functioning everyday life. Each meeting with a patient must in a deeper way be adapted to the individual to optimize the experience of everyday life for a young person with DM type 1. The nurses role in improvning young people´s experiences of everyday life should therefore be discussed further.
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Frimpong, Elizabeth, and Munira Kaneza. "Patienters upplevelser av det dagliga livet efter stroke : En litteraturöversikt." Thesis, Ersta Sköndal högskola, Institutionen för vårdvetenskap, 2016. http://urn.kb.se/resolve?urn=urn:nbn:se:esh:diva-5689.

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Bakgrund: Stroke är en av de vanligaste folksjukdomarna som kan drabba unga och äldre och är en av de vanligaste dödsorsakerna i Sverige. Varje år insjuknar ca 30 000 svenskar i stroke varav ungefär 8 000 avlider. Att drabbas av stroke innebär också ofta rollförändringar när det gäller roller i hemmet, på arbetet också vidare. Detta i sin tur ställer höga krav på samhället och närstående. Vård av personer med stroke har stor tonvikt på omvårdnad, som ska grunda sig på vetenskap och beprövad erfarenhet, samt finna omvårdnadsinsatser som är anpassade efter patientens behov. Syfte: Syftet med studien var att beskriva patienters upplevelser av det dagliga livet efter stroke. Metod: Litteraturöversikt är baserad på tio vetenskapliga artiklar varav nio var kvalitativa medan en hade mixad metod. Vid datainsamlingen användes databaserna CINHAL complete, Medline och Pubmed. Sökningen begränsades med Peer reviewed, abstract och full text samt en avgränsning mellan år 2004 till 2016 Resultat: Fem teman och två sub-teman identifierades: 1. Upplevelser av den förändrade kroppen, 2. Upplevelser av hinder i praktiska aktiviteter, 3. Upplevelser av förändringar i det sociala livet med två sub-teman: Social interaktion och Hinder som begränsar deltagandet i sociala aktiviteter, 4. Självuppfattning och emotionella upplevelser samt 5. Upplevelser i nära relationer.  Diskussion: Metodens styrkor och svagheter diskuteras. Resultatet diskuterades utifrån Roys adaptionsmodellens fyra adaptiva funktionsområden: fysiologiska funktioner, självuppfattning, rollfunktioner samt relationer och samhörigheter samt konsensus begreppet människa och andra studier.
Background: Stroke is one of the most common diseases that can affect both young and older people. This disease is one of the most common causes of death in Sweden.  Every year almost 30 000 of the population becomes diagnosed with stroke of which 8000 die as a result. When a person is affected by stroke, different stages in life changes such as the role the individual has or bares at home, at work, at school and many more. This disease can sometimes create a higher demand on the society, family members and even the people in your surroundings. The role of a healthcare professional in caring for people with stroke is to have emphasis on care which must be based on scientific and proven experience and have a nursing intervention that is suitable for the patient’s needs.  Aim: To describe patients’ experiences of everyday life after stroke Method: Literature review was based on ten scientific articles of which nine have qualitative design and one uses mixed method design. Data were collected through the databases CINAHL complete, Medline and Pubmed. The searching of data was limited with peer reviewed, abstract, full text and a limitation between the year of 2004 and 2016. Results: Five main themes and two sub-themes were identified: 1. Experience of changed body, 2. Experiences of barriers in practical activities, 3. Experiences of changes in the social life with two sub- themes: Social interaction and Barriers limiting participation in social activities, 4. self- concept and emotional experiences and 5. Experience in close relationships. Discussion: The methods strength and weakness were discussed. The results were discussed based on Roy adaptations model’s four adaptive modes (physiological needs, self-concept, role function and interdependence) and consensus concept of person and other studies.
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Magnusson, Louise, and Frida Svensson. "Grädden är inte längre lika fluffig som förut : En självbiografistudie av kvinnors erfarenheter av utmattningssyndrom." Thesis, Högskolan i Skövde, Institutionen för hälsa och lärande, 2017. http://urn.kb.se/resolve?urn=urn:nbn:se:his:diva-13495.

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Bakgrund: Dagens samhälle ställer allt högre krav på individens anpassningsbarhet och en kraftig ökning av stressrelaterad ohälsa, exempelvis utmattningssyndrom, ses idag. Kvinnor drabbas i högre utsträckning och yrken inom vård och omsorg ses som en riskgrupp. Sjukdomen medför en ökad ohälsa och innebär ett lidande för individen. Syfte: Syftet var att beskriva kvinnors erfarenheter av vad som förändras i det dagliga livet vid utmattningssyndrom. Metod: En induktiv ansats valdes. Sju självbiografier analyserades med kvalitativ innehållsanalys. Resultat: Ur analysen framträdde fyra kategorier, Svårt att hantera vardagen, Annorlunda samspel med de närmaste och Välja nya levnadsvanor med tio underkategorier. Konklusion: Studien visar att utmattningssyndrom ökar ohälsan, minskar livskvaliteten och medför ett lidande för individen. Det är därför av stor vikt att arbeta för att minska stress och förebygga uppkomsten av psykisk ohälsa. Sjuksköterskan har en viktig roll i att stödja individen för att främja hälsa.
Background: Today’s society is having increasing demands on individual adaptability. With a significant increase in stress-related illness and increased prevalence of burnout being seen today. Women are affected more often and professions in health care are seen as a risk category. The disease entails an increased illness and suffering for the individual. Aim: The aim was to describe women’s experiences of what has been changed in their daily life at burnout. Method: An inductive approach was chosen. Seven autobiographies were analysed using qualitative content analysis. Results: From the analysis four categories emerged, Difficult to deal with everyday life, Different interaction with the next and select new habits with ten subcategories. Conclusion: The study shows that burnout is increasing illness, decreases quality of life and cause a hardship for the individual. It is therefore of great importance to make an effort to reduce stress and prevent the onset of mental illness. The nurse has an important role in supporting the individual to promote health.
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Westher, Elina, and Victoria Wester. "Personers erfarenheter av dagligt liv efter en Gastric ByPass-operation : En narrativ analys av bloggar." Thesis, Högskolan i Skövde, Institutionen för hälsa och lärande, 2017. http://urn.kb.se/resolve?urn=urn:nbn:se:his:diva-13528.

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Bakgrund: Fetma är ett hot mot folkhälsan och har ökat snabbt de senaste årtiondena. I Sverige utförs många operationer mot fetma vilket kan minska sjukdomsföljder samt ge en förbättrad livskvalitet. Det finns olika typer av överviktskirurgi där gastric bypassoperationen är den vanligaste. Hälsa är sammankopplat med självuppfattning vilket är av betydelse för de personer som väljer att genomgå en operation. Egenvård används för att bibehålla hälsa i det dagliga livet. Syfte: Syftet med denna studie var att beskriva personers erfarenheter av dagligt liv efter en gastric bypassoperation. Metod: Den metod som användes var narrativ analys av sex bloggar skrivna av kvinnor. Resultat: Ur analysen av datamaterialet framträdde tre kategorier; anpassa till en ny vardag, svårigheter att leva ett normalt liv och medaktör i den fortsatta planeringen med sju underkategorier. Slutsats: Studiens resultat har genererat information som med fördel kan användas för att förstå hur personer som genomgått en gastric bypassoperation erfar det dagliga livet. Denna kunskap kan hjälpa sjuksköterskor till att få en djupare förståelse för dessa personer, kunna tillämpa patientcentrerad vård och därmed bedriva en god omvårdnad.
Background: Obesity is a threat against public health and has grown rapidly the last decades. Many surgeries against obesity are done in Sweden which may reduce disease outcomes as well as providing an improved quality of life. There are different types of obesity surgery where gastric bypass is the most common. Health is connected to self-perception which is important for those who choose to undergo surgery. Self-treatment are used to maintain health in daily life. Objective: The aim of this study was to describe people´s experiences of everyday life after a gastric bypass surgery. Method: The method used was a narrative analysis of six blogs written by women. Result: Three categories emerged from the analysis; adjust to a new daily life, difficulties to live a normal life and co-actors in the continued planning with seven subcategories. Conclusion: The study’s results have generated information that can be advantageously used to understand how people who have undergone a gastric bypass surgery experiencing daily life. This knowledge can help nurses to get a deeper understanding of these people, be able to apply patient-centered care and therefore operate good care.
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Dahl, Johanna, and Christine Frej. "Kvinnors upplevelser av att leva med multipel skleros." Thesis, Hälsohögskolan, Högskolan i Jönköping, HHJ, Avd. för omvårdnad, 2019. http://urn.kb.se/resolve?urn=urn:nbn:se:hj:diva-47403.

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Bakgrund: Multipel skleros är en kronisk neurologisk sjukdom där dubbelt så många kvinnor än män drabbas. Sjukdomen ger olika symtom som innebär stor förändring för personen, därför är det viktigt att sjuksköterskan har kompetensen som krävs för att kunna ge relevant omvårdnad. Syfte: Att beskriva kvinnors upplevelser av att leva med multipel skleros. Metod: En litteraturöversikt med kvalitativ ansats genomfördes för att svara på syftet. Sökningar gjordes i databaserna Cinahl, Medline och PsycInfo. Relevanta artiklar kvalitetsgranskades och 12 artiklar analyserades enligt Fribergs femstegsanalys. Resultat: Kvinnor med multipel skleros upplevde förändrad identitet och förändrad livssituation. Sjukdomen skapade hinder och begränsningar som påverkade vardagen och oro kring hur sjukdomen skulle utvecklas i framtiden. Sjukvårdspersonal hade en viktig roll för att underlätta vardagen och minska stressen hos kvinnorna. Informationen om sjukdomen som sjukvårdspersonalen gav upplevdes betydelsefull för att hjälpa kvinnorna. Slutsats: Multipel skleros påverkar kvinnornas vardag och upplevelser som förändrad identitet och förändrad livssituation förekommer vid multipel skleros. Om sjuksköterskan har ett personcentrerat förhållningsätt i arbetet kan det inge trygghet för personen.
Background: Multiple sclerosis is a chronic neurological disease from which twice as many women than men suffer. The disease causes various symptoms that mean a great change for the person therefore, it is important that the nurse has the skills necessary to provide relevant nursing care. Purpose: To describe women's experience of living with multiple sclerosis. Method: A literature review with a qualitative approach was conducted to answer the purpose. Searches were made in the databases Cinahl, Medline and PsycInfo. Relevant articles were quality audited and 12 articles analyzed according to Friberg's five-step analysis. Results: Women with multiple sclerosis experienced a change of identity and a change of life situation. The disease created obstacles and limitations that affected everyday life and concerns about how the disease would develop in the future. Healthcare professionals played an important role in facilitating everyday life and reducing stress in women. The information about the illness that the health care provider gave was important in helping the women. Conclusion: Multiple sclerosis affects women's everyday lives where changed identity and changed life situation are common experiences in multiple sclerosis. If the nurse has a person-centered approach at work, it can provide security for the person.
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Nilsson, Laila, and Charlotte Kvist. "En aha-upplevelse mellan städ och disk : kvinnors upplevelser av att få en AD/HD diagnos i vuxen ålder." Thesis, University West, Division of Social Pedagogy and Sociology, 2010. http://urn.kb.se/resolve?urn=urn:nbn:se:hv:diva-2337.

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Syftet med vår studie är att undersöka kvinnors upplevelser av att få en AD/HD diagnos i vuxen ålder och vilka sociala konsekvenser det ger. Då många studier inriktar sig på AD/HD ur ett neuropsykiatriskt perspektiv, anser vi det intressant att i stället ha ett socialt fokus. Den teori vi huvudsakligen använder oss av är social konstruktionism då vi tycker den är relevant i detta sammanhang. Vi undersöker i studien om, och i så fall hur kvinnorna upplever att diagnosen har förändrat deras vardag, bemötandet från myndigheter och arbetskamrater, självkänsla/självuppfattning och relationen till vänner och nära anhöriga. För att göra detta möjligt formulerade vi fyra frågeställningar som passade studiens syfte. I studien använde vi oss av kvalitativa forskningsintervjuer med fyra kvinnor, detta för att få fram deras upplevelser på bästa sätt. Det resultat vi funnit visar att diagnosen haft stor betydelse för kvinnorna i den meningen att den gjort dem mer medvetna om sina brister och som en frigörande förklaring på sin känsla av att vara annorlunda. För att kunna analysera texten använde vi oss av de teman som formades utifrån frågeställningarna för att kunna hitta mönster i kvinnornas berättelser. Därefter tolkade vi materialet med hjälp av tidigare forskning och relevanta teorier. Den slutsats vi kommit fram till är att diagnosen stärker kvinnornas självkänsla/självuppfattning vilket gör att de kan hantera sina liv och sin vardag på ett bättre sätt, men också att diagnosen i sig inte förändrar de faktiska bristerna i någon större utsträckning.


The aim of our studie is to examine womens experiences of recieving a diagnosis of AD/HD as an adult and what social consequences this brings. As many studies focus on AD/HD from a neuropsychiatric perspective, we regard it interesting to look at it from a social perspective rather then psychiatric. The theory we mainly used is social constructionism as we think it relevant in this coherece. In the study we examine if and in that case how these women feel that the diagnosis has changed there everyday life, treatment by authority and colleagues, self-esteem/self-perception and relation to friends and close relatives. To make this possible we worded four questions at issue that was suitable for the purpose of the study. In the study we used qualitative research interviews whit four women, this as to bring forward there experiences in the best possible way. The result we found show that diagnosis has had great importance for the women as it has made them more aware of there scarcity and as a liberating explanation of there feeling of being different. To be able to analyze the text we used the theme as shaped from the questions to be able to find a pattern in the womens story. We then interpreted the material with the help of prior and relevant theories. Our conclusion is that the diagnosis strengthens the womens self-esteem/self-perception which means that they can handle there everyday life in a better way, but also that the diagnosis in it self does not change the real lack in extent any greater.

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Weimand, Bente Margrethe. "Experiences and Nursing Support of Relatives of Persons with Severe Mental Illness." Doctoral thesis, Karlstads universitet, Avdelningen för omvårdnad, 2012. http://urn.kb.se/resolve?urn=urn:nbn:se:kau:diva-12821.

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Aim: The overall aim of this thesis was to illuminate experiences of relatives of persons with severe mental illness, and their need for support from formal care. Furthermore, to illuminate nursing support of relatives of persons with severe mental illness. Methods: A mixed methods design was used. In study I, data was collected with a questionnaire responded by 226 relatives and analysed with statistics. In study II, data was gathered with interviews with a strategic sample of 18 relatives, analysed with phenomenography. Study III gathered data from 216 relatives using open-ended questions in the questionnaire (I), analysed with qualitative content analysis. In study IV, data was collected by means of focus-group interviews with 4 groups of nurses, working in mental healthcare and analysed with phenomenography. Main findings: The relatives experienced that their lives were intertwined with the life of their severely mentally ill next of kin. The relatives experienced burden and a poor health, and there were associations between burden and health (I). The relatives had to balance between multiple concerns and make choices on behalf of others and themselves, constantly struggling between opposing feelings and between reflections (II). Relatives’ encounters with mental health personnel were mainly negative, although some had positive experiences. They strived for involvement in mental healthcare for the sake of their severely mentally ill next of kin, and wanted inclusion and support for their own sake, but mostly felt left alone with straining but inescapable responsibilities (III). The nurses conceived that their responsibility was first and foremost the patient and to develop an alliance with him or her. The nurses often felt they had to exclude relatives, but were sometimes able to support them (IV). Conclusions: Relatives’ lives are intertwined with the life of their severely mentally ill next of kin. Relatives’ overall demanding life situation means that the mental health services must involve relatives for the sake of the severely mentally ill person but also include them for their own sake. They need practical and emotional support. Guidelines must be designed to address relatives’ needs, and support must be adapted to the individual relative.
Hensikt: Avhandlingens overordnete hensikt var å belyse erfaringer med å være pårørende til personer med alvorlig psykisk lidelse, og deres behov for støtte fra helsevesenet. Videre å belyse støtte fra sykepleiere til pårørende til personer med alvorlig psykisk lidelse. Metode: Mixed methods design ble benyttet. I studie I ble data samlet med spørreskjema besvart av 226 pårørende, og analysert med statistikk. I studie II ble data samlet ved hjelp av intervju med et strategisk utvalg av 18 pårørende, analysert med fenomenografi. I studie III ble data samlet gjennom åpne spørsmål i et spørreskjema (I), besvart av 216 pårørende og analysert med kvalitativ innholdsanalyse. I studie IV ble data samlet ved hjelp av fokusgruppeintervju med 4 grupper sykepleiere fra psykisk helsevern, analysert med fenomenografi. Hovedfunn: Pårørende opplevde at deres liv var sammenvevd med livet til den som hadde en alvorlig psykisk lidelse. De pårørende opplevde byrde og dårlig helse, og det var sammenheng mellom byrde og helse (I). De pårørende måtte balansere en rekke hensyn, gjøre valg på vegne av andre og seg selv, og samtidig kjempe med motstridende følelser og motstridende tanker (II). Pårørendes erfaringer med møter med helsepersonell i psykisk helsevern var hovedsakelig negative, men noen hadde positive opplevelser. De strevde for å bli involvert i behandlingen for familiemedlemmet med den alvorlige psykiske lidelsen sin del, de ønsket å bli inkludert og motta støtte for egen del, men følte seg overlatt med strevsomt ansvar som de ikke kunne unnslippe (III). Sykepleierne anså at deres ansvar først og fremst var overfor pasienten, og å skape en allianse med vedkommende. Sykepleierne opplevde ofte at de måtte ekskludere pårørende, men var noen ganger i stand til å støtte dem (IV). Konklusjoner: Pårørendes liv er sammenvevd med livet til den som har en alvorlig psykisk lidelse. Pårørendes krevende livssituasjon innebærer at psykisk helsevern må involvere dem for den som har den alvorlige psykiske lidelsen, samt inkludere pårørende for deres egen del. De har behov for praktisk og emosjonell støtte. Retningslinjer må på plass for å ivareta pårørendes behov, og støtten må tilpasses den enkelte pårørende
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30

Schweitzer, Pierre. "Cognitive ageing in everyday life." Thesis, Paris Sciences et Lettres (ComUE), 2017. http://www.theses.fr/2017PSLEP061/document.

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Les objectifs de cette thèse sont multiples: 1. concevoir un nouvel outil d'échantillonnage des expériences utilisant les technologies mobiles, qui soit durable et évolutif, et qui permette d'implémenter des tests cognitifs mobiles; 2. utiliser cet outil pour obtenir des informations écologiques sur les comportements et les performances cognitives; 3. valider la méthode; 4. analyser les interactions entre comportement et performance afin d'identifier les comportements sains ou à risque
This thesis has several objectives: 1. design a new experience sampling tool that is durable and evolutive, and allows to implement mobile cognitive tests; 2. use this tool to obtain ecological information on behaviors and cognitive performance; 3. validate the method; 4. analyze the relationships between behavior and performance to identify which behaviors are healthy or risky
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31

Reeve, Donna. "Negotiating disability in everyday life : the experience of psycho-emotional disablism." Thesis, Lancaster University, 2008. http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.505986.

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32

de, Belder Caroline. ""Det virtuella samhället" : En studie om ungdomars ökade Internetanvändning." Thesis, Uppsala University, Department of Information Science, 2005. http://urn.kb.se/resolve?urn=urn:nbn:se:uu:diva-6032.

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Abstract

Purpose: The purpose is to try to map todays research in the subject field, structure the problems dealt with and compile the empirical results obtained. In expectation of creating new moods of thought, approaches and ideas.

Method: Secondary analyses on relevante literature

Main results: The usage of Internet will continue to increase, new habits will develop, the Internet will develop more and more to a hobby, the usage of Internet functions will increase.

Keywords: Youth, Internet usage, Social changes, Everyday life, New styles of communications, New habits and experiences.

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Sugg, Laura S. "The experience of God in everyday life in Alexander Carmichael's Carmina Gadelica." Thesis, University of Edinburgh, 1997. http://hdl.handle.net/1842/30803.

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Before examining the texts of Carmina Gadelica, the man who collected them, Alexander Carmichael, is considered. His life and social milieu inform an understanding of the collection. A Gaelic speaker, exciseman, folklorist and avid advocate for the crofters with whom he lived and worked, Carmichael's motives for publishing Carmina Gadelica included a desire to portray the Highlander in a more positive light to a world which often saw stereotypes, rather than reality. The long history of the publication of the five volumes of texts and a volume of indices also assists the reader in understanding the texts more fully. For example, the title caused some concern for Carmichael and his colleagues. This discussion shows a certain ambivalence about the nature of the contents of the collection. Related to this question is the definition of prayer, so a brief one is provided. In the twentieth century, Carmina Gadelica has been popularized by the publication of selections from its volumes. Some of these works are mentioned. Lastly, similar publications contemporary with Carmina Gadelica are noted. In beginning to explore the experience of God is everyday life-immanence-in the texts themselves, definitions of immanence and transcendence are offered. The two are seen as complementary characteristics of God, not contradictory. Next, an investigation is made of the various arenas in which God is experienced in Carmina Gadelica: space, time, work and home activities. The marking and use of spatial and temporal liminalities is particularly significant in assisting the believer's experience of God's pervasive presence. The parameters for this thesis are the English translation of the published Carmina Gadelica texts. The language, even in translation, informs the reader about the experience of God in the collection. For instance, many of the prayers do not address God directly. Other texts echo the early "breastplate" tradition by surrounding the believer with God's presence by using various spatial prepositions. Many anthropomorphic images of God are pointed out. Also, there is significant use of language from the Christian tradition-scriptural allusion, liturgical prayers-which illuminates the believer's experience of God. Lastly, the names for God in the collection exhibit the relation of the one who prays to his/her God.
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Kurtyka, Faith. "Rhetorics and Literacies of Everyday Life of First-Year College Students." Diss., The University of Arizona, 2012. http://hdl.handle.net/10150/217110.

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This project presents results from a year-long teacher-research study of 50 students in two sections of first-year composition. The goal of this project is to create writing pedagogy in touch with first-year students' everyday worlds and to represent students as people who enter the classroom with literacies, knowledge, and resources. Using funds of knowledge methodology, this project shows how to use students' existing literacy practices and rhetorical skills to move them to deeper levels of critical literacy. Employing frame analysis, this research shows how contemporary consumerist ideologies inform students' orientations towards their education and demonstrates how to use these ideologies as a bridge to getting students to both question the meaning of a college degree and take an active role in their education. To show some of the tensions that emerge for students moving between the spaces of student life, this project uses activity theory to compare the everyday practices of lecture-hall classes and composition classes. "Third Space" theory is suggested as a way for students and teachers to leave familiar practices and scripts to question larger assumptions about the creation of knowledge. Activity theory is also used to examine students' experiences in campus communities, where it is argued that students feel they are engaging in more authentic learning experiences, though they retain some of the attitudes they have towards their academic work in these communities. Combining activity theory, pedagogical action research, and principles of student-centered teaching, conclusions argue for a paradigm for "student engagement research," a methodology for teacher-researchers to both study students' everyday lives and incorporate student culture into the teaching of writing.
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Hayes, Gillian Rachael. "Documenting and Understanding Everyday Activities through the Selective Archiving of Live Experiences." Diss., Georgia Institute of Technology, 2007. http://hdl.handle.net/1853/16222.

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This research focuses on the development and study of socially appropriate ways to archive data about important life experiences during unexpected and unstructured situations. This work involves three significant phases: formative studies to understand the data capture needs of particular populations of users in these situations; design and development of a technical architecture for capture and access in these settings coupled with design and development of applications for two specific domain problems; and evaluation of this solution as it pertains to these domain problems. The underlying solution presented in this dissertation is known as selective archiving, in which services are always on and available for recording but require some explicit action to archive data. If no such action is taken, recorded data is deleted automatically after a specified time. Selectively archived segments of data can provide an efficient way to recover and to analyze high quality data that traditionally available. The projects presented in this dissertation provide insight about the ways in which we can support record-keeping in informal and unstructured settings. Furthermore, when examined together, these projects provide a view into the larger generalized problem of unstructured capture and access and the acceptability of capture technologies. These considerations evolved into a set of seven tensions surrounding recording technologies that are presented in this dissertation. Furthermore, the experiences surrounding the deployment and evaluation of selective archiving technologies demonstrate the ways in which people use different types of knowledge and cues from the world to determine their reactions to and adoption of such technologies.
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Hayes, Gillian R. "Documenting and understanding everyday activities through the selective archiving of live experiences." Available online, Georgia Institute of Technology, 2007, 2007. http://etd.gatech.edu/theses/available/etd-05172007-161038/.

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Thesis (Ph. D.)--Computing, Georgia Institute of Technology, 2008.
Abowd, Gregory, Committee Chair ; Grinter, Rebecca, Committee Member ; Starner, Thad, Committee Member ; Guzdial, Mark, Committee Member ; Bell, Genevieve, Committee Member.
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Grimm, Carsten. "Well-Being in its Natural Habitat: Orientations to Happiness and the Experience of Everyday Activities." Thesis, University of Canterbury. Psychology, 2013. http://hdl.handle.net/10092/8040.

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Peterson, Park, and Seligman (2005) have proposed that individuals seek to increase their well-being through three behavioural orientations; via pleasure, meaning, and engagement. The current study investigated how orientations to happiness influenced the pursuit and experience of daily activities using an experience sampling methodology (ESM). Daily activities were experienced as a blend of both hedonic and eudaimonic characteristics. Dominant orientation to happiness did not predict engaging in different daily activities. Trait orientations to happiness had some influence on the momentary experience of behaviour. Those scoring highest on all three orientations to happiness also rated their daily activities highest on momentary pleasure, meaning, engagement, and happiness. The results suggest that increasing all three orientations is a pathway to the full life and a balanced well-being portfolio.
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Engelberg, Marcel Francis D\'Angio. "A invenção cotidiana do aluno: relações de poder, experiências escolares e possibilidades de existência." Universidade de São Paulo, 2010. http://www.teses.usp.br/teses/disponiveis/48/48134/tde-11112010-162524/.

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O aluno é uma invenção. Nem sempre existiu na história essa categoria que entendemos por aluno. A partir apenas do final do século XIX é que se pode falar em sua emergência. Assim, é também a partir daí que se inicia o processo de produção de uma nova subjetividade das crianças e dos jovens. A escola, instituição responsável por acolhê-los, é o principal agente dessa produção. Fabricar alunos torna-se sua especialização. O presente trabalho procurou discutir, ao mesmo tempo, dois aspectos dessa questão: a) a invenção do aluno como algo não acabado e definitivo, sendo produzida diariamente no cotidiano escolar; b) a associação da invenção do aluno não ao poder possuído pela escola, mas às relações de poder exercidas no seu interior. Para isso, foi desenvolvida uma pesquisa de campo no intuito de observar práticas e discursos escolares que tomavam o aluno como questão. Uma escola pública estadual de ensino médio foi escolhida e o trabalho de campo realizado no decorrer dos anos de 2008 e 2009. Conversas com os alunos foram registradas no final de cada um dos anos e completaram o material de pesquisa. Inspirada na concepção de relações de poder do pensador francês Michel Foucault (1926-1984), elaborou-se uma análise que pretendeu explorar algumas das possibilidades e dos efeitos das relações de poder estabelecidas no interior da escola em termos de uma invenção cotidiana do aluno. Uma das ideias que pôde ser extraída daí é que a invenção do aluno não necessita de práticas e discursos fixos e específicos para sua realização, mas pode ser pensada como inúmeras invenções que seriam possíveis a partir de jogos, disputas, imprevisibilidades e possibilidades de inversão, abertas pelas relações escolares de poder. Ademais, procurou-se experimentar um olhar e uma escrita aberta ao acaso, ao singular, ao imprevisto, ao variado e ao repetido, multiplicados pela concepção de poder que foi assumida.
The student is an invention. Such category has not always existed in History. Only after the late 19th century it is possible to speak not only of its emergence but also the process of producing a new subjectivity of the child and the young. The school, responsible for welcoming them, is the principal agent of this production whose expertise is to make students. The present study outlines two aspects of that at the same time: a) the invention of the student as a non-ending process, being produced daily in the school routine, b) the association of the student invention not with the power possessed by school, but with the power relations exercised inside of it. In order to do so, a field research has been developed to observe practices and student discourses which took the student as an issue. A state high school was chosen and the field work conducted during the years 2008 and 2009. Conversations with students were registered at the end of each year and completed the research material. Inspired by the conception of power relations developed by French philosopher Michel Foucault (1926-1984), an analysis has been carried out which sought to explore some of the possibilities and the effects of power relations established within the school in terms of an everyday invention of the student. This brought the idea that the invention of the student does not require fixed and specific practices and discourses to its implementation. Instead, it can be thought of an array of inventions made possible through games, contests, unpredictability as well as possibilities of inversion, that would possible by the school power relations. Furthermore, we have tried to adopt a look and a written open to fortuitousness, the singular, the unexpected, the varied and repeated, multiplied by the conception of power that was hereby assumed.
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Karanja, Tania Njoki. "The Tales of Interracial Relationships - How Interracial Couples in Sweden Experience Being Treated in Everyday Life." Thesis, Malmö universitet, Fakulteten för hälsa och samhälle (HS), 2019. http://urn.kb.se/resolve?urn=urn:nbn:se:mau:diva-25302.

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Rasideologier och tankar om rashygien är något som präglat svensk historia sedan andra världskriget. Begreppet ras har varit, och är fortfarande idag ett kontroversiellt ämne i Sverige, och har såväl i den akademiska världen som i dagligt tal kommit att bytas ut mot begreppet etnicitet. Tankar om ras och/ eller etnicitet kopplat till sexualitet är i dagsläget föga beforskat i den svenska kontexten. Denna uppsats har som fokus att studera hur ras och/eller etniskt blandade par definierar sig själva, samt hur de upplever att de blir bemötta av sin sociala omgivning i en svensk kontext. Resultaten visar att paren definierar sig på olika sätt, med hänvisning till etnisk tillhörighet eller beskrivningar av synliga skillnader vad gäller hud- och hårfärg. Det är mindre vanligt att par talar om sig själva i termer av skillnader i rastillhörighet. Resultaten visar även att paren bemöts av stereotypa föreställningar kopplat till rasblandade relationer, mer specifikt kopplat till den icke-vita partnern, i både nära så väl som mer avlägsna sociala sammanhang. Dessa föreställningar har inte sällan både en exotifierande och sexualiserande karaktär, där antagandet om den icke-vita partnern som sexuellt exotisk görs.
Race ideologies and thoughts about racial hygiene are things that have characterized Swedish history since World War II. The term race has been, and still is today, a controversial topic in Sweden, and has been replaced by the concept of ethnicity both in the academic and public world. Thoughts of race and/ or ethnicity linked to sexuality have been explored to little extent within the Swedish context. The focus of this thesis is on how interracial and/ or interethnic couples define themselves, and how they experience being perceived and treated by their social surroundings in a Swedish context. The results reveal that the couples define themselves in different ways, referring to ethnic origin or descriptions of visible differences in regard to skin and hair color. It is less common for couples to talk about themselves in terms of racial differences. The results also show that the couples experience that they are met by stereotypical notions of interracial relationships, more specifically linked to the non-white partner, in both close as well as more distant social settings. These notions often have an exotifying and sexualized character, where the assumptions of the non-white partner being sexually exotic is made.
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40

Kim, Youna. "Women, television and everyday life : Korean women's reflexive experience of television mediated by generation and class." Thesis, Goldsmiths College (University of London), 2003. http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.404962.

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41

Morris, Brian John. "Journeys in extraordinary everyday culture : walking in the contemporary city /." Connect to thesis, 2001. http://eprints.unimelb.edu.au/archive/00002256.

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42

Fletcher, Luke. "Understanding the experience of job engagement within everyday working life : a mixed methods study across six organisational settings." Thesis, University of Kent, 2014. http://publications.aston.ac.uk/29426/.

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Engagement has emerged as an important psychological state that may optimise the wellbeing and performance of employees (Truss, Delbridge et al, 2013). Utilising Kahn's (1990) theorising on engagement, this PhD thesis aimed to examine, in close detail, how employees experience engagement in everyday working life. A mixed methods study (Creswell and Plano-Clarke, 2011), incorporating quantitative work diaries and semi-structured interviews, was conducted across six matched paired small and medium sized organisations (SMEs) representing manufacturing, professional services and public sectors. 124 employees participated in both the interviews and the six-day work diary. At each organisation, managers with people management responsibilities were interviewed and a small number of employee observations were undertaken. The study, as a whole, sought to address two research questions.
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43

Awino, Adongo Dorcus. "Life in Child/Adolescent Headed Households : Aqualitative study on everyday life experience of children living in child/adolescent headed households in Western Kenya region." Thesis, Umeå universitet, Sociologiska institutionen, 2010. http://urn.kb.se/resolve?urn=urn:nbn:se:umu:diva-38662.

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This thesis focuses on the everyday life experience of children living in household headed by a child or an adolescent after the loss of both parents in the rural communities in Western Kenya Region. Child/Adolescent headed household is a rapidly growing form of family in Sub-Saharan Africa mainly due to increased deaths rates of parents caused by HIV/AIDS, civil wars and the weakened state of traditional family safety nets in taking up care and raising responsibilities of orphaned children. Majority of these households are often headed by the eldest child/adolescent left in the family who takes up huge responsibility of heading and fending for the younger siblings. The family as an institution has over the years been changing in its structure and function that have brought both negative and positive impact on society. In this study I investigate how children in child headed households make meaning of their lives by engaging them in giving short narrations of their everyday life experiences with the guide of open-ended interviews. Using purposive sampling method, I sampled nine household heads that were identified and interviewed, but only responses from six household are used in the analysis. Those who participated were between ages 15 and 23 years old. Later qualitative content analysis method was used to code the data, establish themes and patterns describing the children‟s life experience. And final social ecological systems theory, resilience theory and symbolic interaction theoretical frameworks were used to interpret the results. The results show that the interactions and relations in the children‟s lives changed a great deal after the loss of both parents which led to social isolation and loneliness, changed childhood experiences, burdening parenting roles and responsibilities, difficult economic situation, and limited support systems. Despite all the obstacles the children/adolescents were still optimistic about their future and those of their siblings. This led to the conclusion that children in child/adolescent headed families even though were living in a disrupted and broken down immediate nurturing environment, if provided with all the support they needed within and outside the home environment were still capable of building resilience and achieving positive development. Therefore strategies and interventions initiated towards ensuring that all children experience positive growth and development should be based on a joint effort from all stakeholders; the children, communities, organizations and the government. Keywords   ; Child headed household, everyday life experience, HIV/AIDS, ecological systems, resilience, symbolic interaction, development, environment.
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44

Gradner, Wictor, and Tara Mahfoudh. ""Det ser inte bra ut" : en studie om uppfattningen av gatutiggeri i Kristianstad." Thesis, Högskolan Kristianstad, Sektionen för hälsa och samhälle, 2013. http://urn.kb.se/resolve?urn=urn:nbn:se:hkr:diva-11075.

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Begging as a phenomenon has again become a hot topic of debate both in the public and the media. Actions have been discussed and motions have been given to social authorities in the country. During the last two years people from other parts of Europe who engage in street begging have been seen on the streets of Kristianstad. The purpose of this paper is to find out the individuals, certain authorities and other participants experiences of people begging in public places in Kristianstad. We have used a combination of qualitative, quantitative and literature review method and we have a social constructionist perspective as a basis. The participants and authorities we have included in the study are the police, the social services, security guards, a shop owner and two other assistance agencies. Interviews have been carried out with participants and authorities, and a survey has been done by individuals. A series of articles and history books have been reviewed since the begging is a historical phenomenon as well as a contemporary. The results show a clear division into two camps regarding experiences and opinions about street beggars and begging as a phenomenon. The majority expresses dissatisfaction and many propose measures and actions. Our final discussion is marked by our own thoughts and values ​​that emerged during the work, which we tried to moderate through the rest of the essay.
Tiggeri som fenomen har på nytt blivit ett hett ämne för debatt både för allmänhet och i media. Åtgärder har diskuterats och motioner om förbud lämnas till socialnämnder i landet. I Kristianstad har det under de senaste två åren kommit personer hit från andra delar av Europa som ägnar sig åt gatutiggeri. Syftet med denna uppsats är att ta reda på privatpersoners, vissa myndigheters och andra aktörers uppfattning av personer som tigger på offentlig plats i Kristianstad. Vi har använt oss av en kombination av kvalitativ, kvantitativ och litteraturstudie som metod och vi har ett socialkonstruktionistiskt perspektiv som grund. De aktörer och myndigheter vi tagit med i undersökningen är polis, socialtjänst, vakter, butiksägare och två andra biståndsverksamheter. Intervjuer har gjorts med aktörerna och myndigheterna och en enkätundersökning har gjorts med privatpersoner. En rad artiklar och historieböcker har gåtts igenom då tiggeri ju är ett historiskt fenomen såväl som ett nutida. Resultatet visar på en klar uppdelning i två läger gällande uppfattningar och åsikter om gatutiggare och tiggeri som fenomen. Majoriteten uttrycker ett missnöje och många föreslår åtgärder och insatser. Vår slutdiskussion präglas av våra egna tankar och värderingar som framkommit under arbetets gång, vilka vi försökt tona ner i resten av uppsatsen.
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Gilhuber, Christina. "How children of parents with intellectual disabilities experience their everyday life : A systematic literature review from 1985 to 2017." Thesis, Högskolan för lärande och kommunikation, Jönköping University, HLK, CHILD, 2017. http://urn.kb.se/resolve?urn=urn:nbn:se:hj:diva-36217.

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Various findings indicate that children of parents with intellectual disabilities have a higher risk for various difficulties, but only few studies interview children for an account of their experiences. This study aimed at assessing how children of parents with intellectual disabilities reflected their upbringing and their everyday life regarding their parent’s disability. Eight studies were identified through a systematic literature review, with publication ranging from 1985 to 2017. Results show that the accounts contain both positive and negative experiences and reflect an ambivalent relationship towards the parents. The small population of the analyzed studies, as well as differences in the context and the method of the studies, allowed no general conclusions to be drawn. Further research is required to allow an evaluation of the experiences of children of parents with intellectual disabilities in a bigger context.
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Håkanson, Cecilia. "Living with irritable bowel syndrome : A patient perspective on everyday life, health care encounters and patient education." Doctoral thesis, Ersta Sköndal högskola, Enheten för forskning i palliativ vård, 2010. http://urn.kb.se/resolve?urn=urn:nbn:se:esh:diva-1712.

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Lopes, Vanessa Alves. "Experiência de profissionais de saúde em unidades prisionais localizadas em Cuiabá/MT." Universidade Federal de Mato Grosso, 2014. http://ri.ufmt.br/handle/1/479.

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Este estudo tem por objetivo analisar a experiência de profissionais de saúde que atuam em unidades prisionais de regime fechado localizadas em Cuiabá- Mato Grosso. Para tanto o referencial teórico metodológico empregado foi o da Fenomenologia, de Alfred Schutz, retendo dela os conceitos pertinentes a esta pesquisa, devido a adequação da abordagem a que nos propomos. Assim, nosso objeto de estudo foram os profissionais de saúde de três penitenciárias localizadas em Cuiabá. As técnicas utilizadas foram entrevistas com roteiro semi estruturado e observações, que ocorreram de junho a dezembro de 2013, nos quais 25 profissionais foram entrevistados. A discussão e a análise de dados foram organizadas a partir de temas que emergiram dos dados e que permitiram que desvelássemos parcialmente o cotidiano dos profissionais de saúde, imersos no contexto penitenciário. Assim pudemos identificar e analisar as estratégias elaboradas para atuação neste lugar de conflitos e tensões que, entre outros, particulariza a unidade de saúde penitenciária. A entrada dos profissionais no Sistema Penitenciário foi marcada por situações de tensão e medo, sobressaindo sobre a satisfação da aprovação em concurso público. O ingresso não seguiu uma lógica de treinamento, assim o desconhecimento sobre a prisão foi unânime entre os entrevistados. A unidade de saúde torna-se peculiar pelas características que lhes são impostas no ambiente penitenciário, como presença de agentes penitenciários, grades, algemas, o que demarca parte da particularidade deste ambiente. Os profissionais mostraram-se desacreditados frente à função ressocializadora e são contraditórios perante as relações com os presos, ora este é paciente, ora preso perigoso, impondo situações de insegurança e desconfiança perante estes. Notamos que a rotina diferenciada influencia no atendimento e que muitos objetos tomam outras funções das que inicialmente são propostos. Os códigos internos são apreendidos pelos profissionais na tentativa de manter a comunicação com os presos, além do que percebem alterações comportamentais que incidem sobre suas vidas. Assim, o cotidiano dos profissionais de saúde ganha contornos singulares dentro da prisão.
This study aims to analyze the experience of health professionals working in prison units located in Cuiabá- Mato Grosso. The theoretical and methodological reference employed was the Phenomenology by Alfred Schütz, selecting from it the concepts concerning this research in order to adequate the approach we set ourselves. Our subject of study were the health professionals of three correctional facilities of Cuiabá. The techniques used were semi-structured interviews and observations, which took place from June to December 2013, with 25 professionals interviewed. The discussion and data analysis were organized based on the themes that emerged from the data, which allowed us to partially unveil the health professionals daily lives immersed in the prison context. This way we could identify and analyze the strategies elaborated to work in this tense and full of conflict atmosphere that builds the singularity of the place. The entry of the professionals in the prison system was marked with tension and fear situations, surpassing the satisfaction of a public contest approval. The entry did not follow a training logic, making the lack of knowledge about the prison unanimous among the subject. The health unit becomes something very peculiar for them because of the imposed characteristics of the prison environment, such the presence of warders, bars and handcuffs, which demarcates part of the particularity of this environment. The respondents demonstrated great disbelief about the socialization function, they also reveal contradiction relating to the inmates, sometimes they are a patient, sometimes a hazard, imposing mistrust and insecurity towards the professionals. We noticed that this unique routine influences the job to be done and many of the subject end up doing a different job than the initially proposed. The internal codes are learned by the professionals in an attempt to maintain communication with the prisoners. They also reveal that they perceived some behavioral changes affecting their lives. Thus, the daily lives of the health professionals gain unique shapes inside the prison.
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48

Essemo, Lorenzen Sara, and Hanna Jarl. "Att återgå till vardagen : En kvalitativ litteraturöversikt om strokedrabbade patienters upplevelser." Thesis, Högskolan i Skövde, Institutionen för hälsa och lärande, 2019. http://urn.kb.se/resolve?urn=urn:nbn:se:his:diva-17853.

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Bakgrund: Stroke är en av Sveriges folksjukdomar och den främsta anledningen till att vuxna personer drabbas av funktionsnedsättningar. Sjukdomen innebär en stor omställning för patienten då den medför en förändrad vardag. Det är en av många faktorer som påverkar patientens livskvalitet. Rehabilitering och stöd från interdisciplinärt team och närstående är viktiga delar för snabbare återhämtning. Syfte: Syftet var att beskriva patienters upplevelser av vardagslivet efter stroke. Metod: Metoden var en litteraturöversikt baserad på kvalitativa artiklar som analyserades med kvalitativ innehållsanalys. Resultat: Analysen resulterade i tre huvudkategorier; förändrad tillvaro, förändrad identitet och behov av hjälp framåt. Patienterna upplevde en förändrad vardag på grund av de omständigheter stroke gav. Hemmet och anhöriga var två viktiga faktorer för att patienterna skulle känna trygghet. Fysiska och psykiska förändringar till följd av stroke gjorde att patienterna upplevde sin kropp som främmande. De fick lära sig att tolka sin nya kropp vilket upplevdes påfrestande. De behövde verktyg för att kunna hantera sin nya vardag och den förändrade kroppen vilket de erhöll från det interdisciplinära teamet. Konklusion: Patienternas upplevda livskvalitet påverkades negativt på grund av livsomställningarna efter stroke. Vad som gav mening och sammanhang blev tydligare för patienterna och att återgå till sitt ”gamla jag” var något som patienterna prioriterade högt. Viktigt för återhämtningen var det sociala och professionella stödet. De bildade tillsammans ett säkerhetsnät för patienten och möjliggjorde en meningsfull framtid.
Background: Stroke is one of the most common diseases in Sweden and the primary reason why adults get disabilities. Stroke means a great conversion for the patient which leads to a changed everyday life. There are many factors that affects the patients’ quality of life. Rehabilitation and support from the interdisciplinary team and family are important for efficiency of the recovery. Aim: The aim of this study was to describe patients’ experiences of everyday life after stroke. Method: The method was a literature review based on qualitative studies and were analyzed with qualitative content analysis. Results: The analyses resulted in three main catagories; changed living, changed identity and needs of help forward. Patients experienced a changed living because of the circumstances their stroke gave them. Their home and closest family were two main factors for the patients to feel safe. Because of the stroke patients received a new body that meant both physical and psychological changes. The patients got to learn their new body which was experienced as demanding. Patients needed tools to be able to handle their new everyday life and changed body, which they received from the interdisciplinary team. Conclusion: Patients experienced that their quality of life was affected negativly because of the life adjusment after the stroke. What gave the patients meaning and connection became more clear after the stroke, to revert the ”old me” were highly priotitized. The social and profesional support was important for the rehabilitation. Together they created a saftey net for the patient and enabled a meaningful future.
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49

Emilsson, Carl-Fredrik, and Fatma Ziyara. "Upplevelser av att vara anhörig till en person med cancersjukdom : en litteraturstudie." Thesis, Högskolan i Gävle, Avdelningen för hälso- och vårdvetenskap, 2017. http://urn.kb.se/resolve?urn=urn:nbn:se:hig:diva-23968.

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Bakgrund: År 2014 registrerade 60 524 patienter med maligna tumörer i cancerregistret i Sverige. Fördelningen av maligna tumörer var 52 procent hos män och 48 procent hos kvinnor. Anhöriga spelar en viktig roll för en person med cancersjukdom och för dessa anhöriga sker det stora förändringar i vardagen. Sjuksköterskor har en viktig roll att stärka dessa drabbade familjer och stötta alla medlemmar i familjen. Syfte: Syftet med denna studie var att beskriva anhörigas upplevelser av att vara anhörig till en person med cancersjukdom samt att beskriva undersökningsgrupperna i de inkluderade artiklarna. Metod: En litteraturstudie med deskriptiv design baserad på 13 kvalitativa vetenskapliga artiklar. Materialet analyserades och delades in i ämnesrubriker. Huvudresultat: Resultatet visade att anhöriga till personer med cancersjukdom lever i en förändrar vardag med förändrade roller. Anhöriga kunde uppleva ångest och oro över livssituationen samt hjälplöshet. Det var viktigt för anhöriga att hålla familjen samman för deras eget bästa och för personen med cancersjukdom. Upplevelsen av vårdpersonal varierade bland anhöriga. Slutsats: Anhöriga påverkas på många olika sätt. Att kämpa är en vardag för anhöriga och hjälp från vänner, familj samt vårdpersonal är viktigt för anhöriga. Det är relevant med information i lagom mängd och visad empati från sjuksköterskan. Det är viktigt att sjuksköterskan ser hela familjen i fokus och inte bara personen med cancersjukdom.
Background: In 2014, 60 524 patients with malignant tumours were registered in the Swedish Cancer Registry. The distribution of malignant tumours was 52 percent for men and 48 percent for women. Relatives play an important role in the life of a person with cancer, and these families are facing major changes in everyday life. Nurses have an important role to give support to these affected families. Purpose: The purpose of this study was to describe family members’ experiences of being a relative of a person with cancer and to describe research groups in the included studies. Method: A literature review with descriptive design based on 13 qualitative scientific studies. The material was analysed and divided into subject headings. Main Results: The results displayed that relatives of people with cancer are living in a family with major changes of their roles and in everyday life. Relatives could experience anxiety and concerns about life situation and helplessness. It was important for family members to keep the family together for their own sake and for the person with cancer. The experience of healthcare professionals varied among these family members. Conclusion: Relatives are affected in many ways. Facing challenges is everyday life for these relatives, and help from friends, family and health professionals are important for family members with a person with cancer. It is relevant with information in just the right amount and that the nurse is showing empathy towards relatives. Finally, it’s relevant that the nurse also sees the whole family and not just the person with cancer.

mailto:hfk13gsm@student.hig.se

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50

Cameron, Colin. "Does anybody like being disabled? : a critical exploration of impairment, identity, media and everyday experience in a disabling society." Thesis, Queen Margaret University, 2010. https://eresearch.qmu.ac.uk/handle/20.500.12289/7340.

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I offer a critical exploration of tensions experienced by disabled people in the construction of positive identities in everyday contexts in which self-understanding is shaped both by social structural relations of inequality and unique individual experience. The empirical evidence I use to develop and support my thesis involves data I have generated using a variety of data collection tools, through a series of interviews, conversations and observations carried out with sixteen disabled people across Scotland and England. I argue that while certain barriers to participation in ordinary community life may be being removed, perceptions of impairment as something ‘wrong’ with the bodies of disabled people remain embedded in dominant disability discourse. There is a structural purpose underlying the continued representation of impairment as misfortune, involving the ascription of a negative role – the disabled role – to those whose bodily configurations pose a challenge to requirements of conformity. Drawing on insights generated in my research, and building on an idea originally proposed by John Swain and Sally French in 2000, I have developed a clarified affirmative model of disability. This I intend as a tool to be used by people with impairments in making sense of the disabling social relations they encounter in everyday contexts, to be used alongside the social model in gaining knowledge to unsettle mainstream assumptions which can only recognise impairment as personal tragedy.
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