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Journal articles on the topic 'Experience and patient'

Author: Grafiati

Published: 4 June 2021

Last updated: 10 February 2022

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1

Outlaw, Peter, Shiva Tripathi, and Jacqueline Baldwin. "Using patient experiences to develop services for chronic pain." British Journal of Pain 12, no. 2 (February 28, 2018): 122–31. http://dx.doi.org/10.1177/2049463718759782.

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Purpose: The aim of this study was to improve the overall experience for patients using chronic pain services at a large teaching hospital in England. Experience-based co-design methodology was used to gain a greater understanding of patients’ experiences and to produce a list of priorities for change when improving the patient experience. Method: A total of seven video-recorded patient interviews were conducted to capture a range of patient experiences of using the chronic pain service. The interviews were analysed to identify ‘touchpoints’ which are areas in which patients experienced a heightened emotional response to their interaction with the service or staff. A short trigger film was compiled to illustrate these touchpoints to staff and gain their commitment to improve patients’ experiences when using the service. A patient experience event was held at which patients discussed the touchpoints and identified the most significant areas for change that would improve their experiences of using the chronic pain service. Results: A wide range of touchpoints were identified. The lack of information provided before arriving for a procedure and the need for a short debrief after clinic were prioritised for improvement. Patients valued the development of good relationships with clinic staff and feeling properly listened to for the first time. The patient experience event allowed the key points patients would like to know before a procedure, to be drawn up in a list, which could be passed onto staff. Conclusion: This study featured collaboration between patients and staff to improve patients’ experiences of using chronic pain services. Through patient participation, a comprehensive list of recommendations for service improvement was produced, and possible solutions were identified. The involvement of patients in driving change and re-designing services is shaping a more patient-centred chronic pain clinic and improving the experience for all the patients who use the service.

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Ambrose, Kate. "Patient experience." Emergency Nurse 17, no. 7 (November 4, 2009): 9. http://dx.doi.org/10.7748/en.17.7.9.s14.

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Williams, Ruth. "Patient experience." Nursing Management 19, no. 2 (April 26, 2012): 11. http://dx.doi.org/10.7748/nm.19.2.11.s7.

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Niederhauser, Victoria, and Jason Wolf. "Patient Experience." Nursing Administration Quarterly 42, no. 3 (2018): 211–16. http://dx.doi.org/10.1097/naq.0000000000000293.

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Wolf, Jason A. "Patient Experience." Frontiers of Health Services Management 33, no. 3 (2017): 3–16. http://dx.doi.org/10.1097/hap.0000000000000002.

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Guler, Pamela H. "Patient Experience." Frontiers of Health Services Management 33, no. 3 (2017): 17–29. http://dx.doi.org/10.1097/hap.0000000000000003.

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Fox, Susan. "Patient Experience." Frontiers of Health Services Management 33, no. 3 (2017): 42–48. http://dx.doi.org/10.1097/hap.0000000000000004.

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Kneeland, Patrick P. "Patient Experience." Hospital Medicine Clinics 5, no. 1 (January 2016): 137–51. http://dx.doi.org/10.1016/j.ehmc.2015.08.011.

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Davidson, Lea, Jason Scott, and Natalie Forster. "Patient experiences of integrated care within the United Kingdom: A systematic review." International Journal of Care Coordination 24, no. 2 (March 27, 2021): 39–56. http://dx.doi.org/10.1177/20534345211004503.

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Introduction Integrated care and patient experience are central to the coordination and delivery of high quality health and social care in the UK, but their joint application is poorly understood. This systematic review aimed to gain an understanding of patient experience within current integrated care services in the UK, and specifically, whether they reflect person-centred coordinated care (PCCC). Methods Following PRISMA, electronic databases (ProQuest, EBSCO and Cochrane Library) were searched from 2012 to 2019 for primary, peer-reviewed literature. Papers were included where patients’ or carers’ experiences of integrated care were reported. Papers were excluded where they focused on acute integrated care interventions, measured experience via satisfaction scores only, or findings lacked sufficient depth to answer the research question. Quality was assessed using Mixed Methods Appraisal Tool, and findings synthesised using a framework approach, incorporating the Rainbow Model of Integrated Care and Measuring Integrated Care Patient Framework. Results Sixteen studies were included. Person-centred and shared responsibility experiences were most often discussed. Experiences were not always described as positive and some patients experienced a lack of PCCC. Clinical, professional/organisational and functional integration processes were associated with experiencing domains of PCCC. Discussion People with complex needs experience a lack of coordination across teams and wider community resources, and limited associations were made between integration processes and patient experience. Further research which gives context to individual experience, provides greater detail of integration processes and utilises validated patient experience measures of PCCC is required to understand the association between integration processes and domains of PCCC.

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Castaldi, Maria, Geena George, Pamela Turner, and John McNelis. "NSQIP Impacts Patient Experience." Journal of Patient Experience 7, no. 1 (December 9, 2018): 89–95. http://dx.doi.org/10.1177/2374373518817081.

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National Quality Improvement Project (NSQIP) semiannual reports (SARs) revealed high observed to expected ratios for venous thromboembolic events (VTEs) on the surgical service. Press Ganey scores identified an area of particular weakness in shared decision-making in patient care. Patients reported little to no participation in shared decision-making. A performance improvement project was developed with a 2-fold objective: decrease the percentages of patients sustaining VTE through adequate screening and prophylaxis (VTEP) and to engage patients in shared decision-making to accept VTEP through enhanced patient-centered discussions and education on the risks and benefits of VTEP. A clinical pathway was developed to implement VTEP using a standardized risk assessment tool. Patient-centered discussion introduced VTEP and impact on perioperative safety. Results included telephone survey, NSQIP SARs, and Press Ganey patient experience survey. Using NSQIP data and a pathway developed for both VTE risk assessment and patient engagement, the authors observe immediate improvements in patient experience and decreased rates of VTE.

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Lockhart, Lisa. "Delivering patient experience." Nursing Made Incredibly Easy! 17, no. 2 (2019): 56. http://dx.doi.org/10.1097/01.nme.0000553095.31950.90.

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Meloncon, Lisa K. "Patient experience design." Communication Design Quarterly 5, no. 2 (August 4, 2017): 19–28. http://dx.doi.org/10.1145/3131201.3131203.

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Redding, Don. "The patient experience." British Journal of Healthcare Management 15, no. 2 (February 2009): 96. http://dx.doi.org/10.12968/bjhc.2009.15.2.39185.

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Harbeck, Nadia, and Renate Haidinger. "The patient experience." Breast Cancer Research and Treatment 105, S1 (October 2007): 91–103. http://dx.doi.org/10.1007/s10549-007-9703-8.

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Harbeck, Nadia, and Renate Haidinger. "The patient experience." Breast Cancer Research and Treatment 112, no. 2 (December 13, 2007): 375. http://dx.doi.org/10.1007/s10549-007-9852-9.

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Hu, Guangyu, Yin Chen, Qiannan Liu, Shichao Wu, Jing Guo, Shiyang Liu, Zijuan Wang, et al. "Patient experience of hospital care in China: major findings from the Chinese Patient Experience Questionnaire Survey (2016–2018)." BMJ Open 9, no. 9 (September 2019): e031615. http://dx.doi.org/10.1136/bmjopen-2019-031615.

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ObjectivesChina launched the National Healthcare Improvement Initiative (NHII) in 2015 to improve patient experiences in healthcare. This study aimed to generate evidence of hospital care quality from the patients’ perspective.DesignThis nationwide cross-sectional study interviewed participants from 31 provinces, municipalities and autonomous regions across China.SettingA total of 117 tertiary hospitals in mainland China.Participants48 422 responses from outpatients and 35 957 responses from inpatients were included in this study.Primary outcome measureThe scores of six predefined domains in the Chinese Patient Experience Questionnaire, five of which were designed to reflect specific dimensions of care, and one of which indicated the overall rating.ResultsMore than 80% of the respondents viewed their care experiences as positive. The NHII seems to have had a positive impact, as indicated by the steady, although unremarkable, increase in the patient experience scores over the 2016–2018 period. The Chinese patients generally reported a positive experience with the clinical aspects of care, but reported a less positive experience with the environmental, interpersonal and social services aspects of care. The institutional factors, including region and type of hospital, and personal factors, such as gender, age, education and occupation, were factors affecting the patient experience in China. Humanistic care was the aspect of care with the greatest association with the overall patient experience rating in both the outpatient and inpatient settings.ConclusionsThe national survey indicated an overall positive patient perspective of care in China. Older age, higher education level and formal employment status were found to be correlated with positive care experiences, as were higher levels of economic development of the region, a more generous insurance benefits package and a higher degree of coordinated care. The interpersonal-related initiatives had substantial roles in the improvement of the patient experience. In the regions where farmers and users of traditional Chinese medicine services constitute a greater proportion of the population, improvement of patient experiences for these groups deserves special policy attention.

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Wahyuni, Sri Eka, Mahnum Lailan Nst, and Wardiyah Daulay. "The Patient Experiences Hallucinations with Schizophrenia." Open Access Macedonian Journal of Medical Sciences 9, T3 (June 10, 2021): 112–15. http://dx.doi.org/10.3889/oamjms.2021.6350.

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BACKGROUND: Hallucination is the psychosis symptom which mostly experienced by patients with schizophrenia. It is also the experience of false perception undergone by patients without any stimulus from the environment. That experience of perception is real to the patients but not for others who do not have similar perception of experience with the patients. AIM: This research is phenomenological and aims for describing experiences of patients with schizophrenia who had hallucination. MATERIALS AND METHODS: This research took 15 patients. In this research, approaches and trust-building were accomplished before conducting deep interview process. This research was conducted at Prof. Ildrem Asylum – Medan. The data analysis was Colaizzi’s method. RESULT: This research resulted in six themes, namely hallucination content, predisposition factor that causes hallucination, patients’ subjective response when hallucinating, the distress facing by the patients with hallucination, actions taken when hallucinating and the obstacles experienced by the patients. CONCLUSION: This research provides description to all medical officers to prioritize giving therapy in order to overcome patients’ hallucination.

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Choi, Eun Young, Jeehee Pyo, Won Lee, Seung Gyeong Jang, Young-Kwon Park, Minsu Ock, and Sang-Il Lee. "Nurses’ experiences of patient safety incidents in Korea: a cross-sectional study." BMJ Open 10, no. 10 (October 2020): e037741. http://dx.doi.org/10.1136/bmjopen-2020-037741.

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ObjectivesThe aim of this study was to investigate the scope and severity of the second victim problem among nurses by examining the experiences and effects of patient safety incidents (PSIs) on them.Participants/setting492 nurses who had experienced PSIs and provide direct care in South Korean medical institutions.DesignA cross-sectional study with anonymous online self-report questionnaires was conducted to nurses in order to examine the experiences and effects of PSIs. Scales measuring post-traumatic stress disorder (PTSD) and post-traumatic embitterment disorder (PTED) were used for a more quantitative examination of the effects of PSIs. A χ2 test was administered to find any difference in responses to difficulties due to PSIs between the direct and indirect experience of PSIs. Furthermore, linear regression analysis was conducted to investigate the factors related to scores on the PTSD and PTED scales.ResultsA statistically significant difference was observed for participants who reported having experienced sleeping disorders, with those with direct experience showing 42.4% sleeping disorders and indirect experience at 21.0%. Also, there was a statistically significant difference between the 34.3% with direct experience and the 22.1% with indirect experience regarding having considered duty or job changes (resignation). Regression analysis showed total PTSD scores for indirect experience at 11.97 points (95% CI: −17.31 to −6.63), lower than direct experience. Moreover, those who thought the medical error was not involved in PSI had a total PTED score 4.39 points (95% CI: −7.23 to −1.55) lower than those who thought it was involved.ConclusionsA considerable number of nurses experienced psychological difficulties due to PSIs at levels that could interfere with their work. The effect of PSIs on nurses with direct experience of PSIs was greater compared with those with indirect experience. There need to be psychological support programmes for nurses to alleviate the negative effects of PSIs.

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Burt, Jenni, John Campbell, Gary Abel, Ahmed Aboulghate, Faraz Ahmed, Anthea Asprey, Heather Barry, et al. "Improving patient experience in primary care: a multimethod programme of research on the measurement and improvement of patient experience." Programme Grants for Applied Research 5, no. 9 (April 2017): 1–452. http://dx.doi.org/10.3310/pgfar05090.

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BackgroundThere has been an increased focus towards improving quality of care within the NHS in the last 15 years; as part of this, there has been an emphasis on the importance of patient feedback within policy, through National Service Frameworks and the Quality and Outcomes Framework. The development and administration of large-scale national patient surveys to gather representative data on patient experience, such as the national GP Patient Survey in primary care, has been one such initiative. However, it remains unclear how the survey is used by patients and what impact the data may have on practice.ObjectivesOur research aimed to gain insight into how different patients use surveys to record experiences of general practice; how primary care staff respond to feedback; and how to engage primary care staff in responding to feedback.MethodsWe used methods including quantitative survey analyses, focus groups, interviews, an exploratory trial and an experimental vignette study.Results(1)Understanding patient experience data. Patients readily criticised their care when reviewing consultations on video, although they were reluctant to be critical when completing questionnaires. When trained raters judged communication during a consultation to be poor, a substantial proportion of patients rated the doctor as ‘good’ or ‘very good’. Absolute scores on questionnaire surveys should be treated with caution; they may present an overoptimistic view of general practitioner (GP) care. However, relative rankings to identify GPs who are better or poorer at communicating may be acceptable, as long as statistically reliable figures are obtained. Most patients have a particular GP whom they prefer to see; however, up to 40% of people who have such a preference are unable regularly to see the doctor of their choice. Users of out-of-hours care reported worse experiences when the service was run by a commercial provider than when it was run by a not-for profit or NHS provider. (2)Understanding patient experience in minority ethnic groups. Asian respondents to the GP Patient Survey tend to be registered with practices with generally low scores, explaining about half of the difference in the poorer reported experiences of South Asian patients than white British patients. We found no evidence that South Asian patients used response scales differently. When viewing the same consultation in an experimental vignette study, South Asian respondents gave higher scores than white British respondents. This suggests that the low scores given by South Asian respondents in patient experience surveys reflect care that is genuinely worse than that experienced by their white British counterparts. We also found that service users of mixed or Asian ethnicity reported lower scores than white respondents when rating out-of-hours services. (3)Using patient experience data. We found that measuring GP–patient communication at practice level masks variation between how good individual doctors are within a practice. In general practices and in out-of-hours centres, staff were sceptical about the value of patient surveys and their ability to support service reconfiguration and quality improvement. In both settings, surveys were deemed necessary but not sufficient. Staff expressed a preference for free-text comments, as these provided more tangible, actionable data. An exploratory trial of real-time feedback (RTF) found that only 2.5% of consulting patients left feedback using touch screens in the waiting room, although more did so when reminded by staff. The representativeness of responding patients remains to be evaluated. Staff were broadly positive about using RTF, and practices valued the ability to include their own questions. Staff benefited from having a facilitated session and protected time to discuss patient feedback.ConclusionsOur findings demonstrate the importance of patient experience feedback as a means of informing NHS care, and confirm that surveys are a valuable resource for monitoring national trends in quality of care. However, surveys may be insufficient in themselves to fully capture patient feedback, and in practice GPs rarely used the results of surveys for quality improvement. The impact of patient surveys appears to be limited and effort should be invested in making the results of surveys more meaningful to practice staff. There were several limitations of this programme of research. Practice recruitment for our in-hours studies took place in two broad geographical areas, which may not be fully representative of practices nationally. Our focus was on patient experience in primary care; secondary care settings may face different challenges in implementing quality improvement initiatives driven by patient feedback. Recommendations for future research include consideration of alternative feedback methods to better support patients to identify poor care; investigation into the factors driving poorer experiences of communication in South Asian patient groups; further investigation of how best to deliver patient feedback to clinicians to engage them and to foster quality improvement; and further research to support the development and implementation of interventions aiming to improve care when deficiencies in patient experience of care are identified.FundingThe National Institute for Health Research Programme Grants for Applied Research programme.

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Sieck, Cynthia J., Jennifer L. Hefner, and Ann Scheck McAlearney. "Improving the patient experience through patient portals: Insights from experienced portal users." Patient Experience Journal 5, no. 3 (November 6, 2018): 47–54. http://dx.doi.org/10.35680/2372-0247.1269.

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Lawrence, M. "The unconscious experience." American Journal of Critical Care 4, no. 3 (May 1, 1995): 227–32. http://dx.doi.org/10.4037/ajcc1995.4.3.227.

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BACKGROUND: Although considerable research has been done on pathophysiology, metabolic and physical causes, and prognostic indicators, little is known about unconsciousness or coma from the perspective of the patient. OBJECTIVE: To describe the experiences of patients who were once documented as being unconscious. METHODS: Phenomenologic interviews were conducted with 100 patients whose records indicated that they had been unconscious during hospitalization. Interviews were also attempted with primary family members, significant others, or other external observers. Chart audits documenting the unconscious episode, medications, and diagnoses were also carried out. Data were compared, using van Kaam's method, and contrasted. RESULTS: Patients experienced one or more of five states: unconsciousness, inner consciousness, perceived unconsciousness, distorted consciousness, and paranormal experiences. They described hearing, understanding, and responding emotionally to what was being said when it was assumed they were not aware. In addition, 23 subjects reported near-death experiences or visits, out-of-body experiences, or some other paranormal experience. CONCLUSION: Patients' unconscious experiences can cause long-term effects. Patients often need reassurance that other patients subjected to similar conditions also have these experiences.

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Khairat, Saif, Malvika Pillai, Barbara Edson, and Robert Gianforcaro. "Evaluating the Telehealth Experience of Patients With COVID-19 Symptoms: Recommendations on Best Practices." Journal of Patient Experience 7, no. 5 (September 4, 2020): 665–72. http://dx.doi.org/10.1177/2374373520952975.

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Positive patient experiences are associated with illness recovery and adherence to medication. To evaluate the virtual care experience for patients with COVID-19 symptoms as their chief complaints. We conducted a cross-sectional study of the first cohort of patients with COVID-19 symptoms in a virtual clinic. The main end points of this study were visit volume, wait times, visit duration, patient diagnosis, prescriptions received, and satisfaction. Of the 1139 total virtual visits, 212 (24.6%) patients had COVID-19 symptoms. The average wait time (SD) for all visits was 75.5 (121.6) minutes. The average visit duration for visits was 10.5 (4.9) minutes. The highest volume of virtual visits was on Saturdays (39), and the lowest volume was on Friday (19). Patients experienced shorter wait times (SD) on the weekdays 67.1 (106.8) minutes compared to 90.3 (142.6) minutes on the weekends. The most common diagnoses for patients with COVID-19 symptoms were upper respiratory infection. Patient wait times for a telehealth visit varied depending on the time and day of appointment. Long wait times were a major drawback in the patient experience. Based on patient-reported experience, we proposed a list of general, provider, and patient telehealth best practices.

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Kapoor, Neena. "Patient Experience and Radiology: The Role for Nonproprietary Patient Experience Surveys." Journal of the American College of Radiology 17, no. 3 (March 2020): 421–22. http://dx.doi.org/10.1016/j.jacr.2019.11.008.

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Siddiqui, Zishan K., Sarah Johnson Conway, Mohammed Abusamaan, Amanda Bertram, Stephen A. Berry, Lisa Allen, Ariella Apfel, et al. "Patient isolation for infection control and patient experience." Infection Control & Hospital Epidemiology 40, no. 2 (December 18, 2018): 194–99. http://dx.doi.org/10.1017/ice.2018.324.

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AbstractObjectiveHospitalized patients placed in isolation due to a carrier state or infection with resistant or highly communicable organisms report higher rates of anxiety and loneliness and have fewer physician encounters, room entries, and vital sign records. We hypothesized that isolation status might adversely impact patient experience as reported through Hospital Consumer Assessment of Healthcare Providers and Systems (HCAHPS) surveys, particularly regarding communication.DesignRetrospective analysis of HCAHPS survey results over 5 years.SettingA 1,165-bed, tertiary-care, academic medical center.PatientsPatients on any type of isolation for at least 50% of their stay were the exposure group. Those never in isolation served as controls.MethodsMultivariable logistic regression, adjusting for age, race, gender, payer, severity of illness, length of stay and clinical service were used to examine associations between isolation status and “top-box” experience scores. Dose response to increasing percentage of days in isolation was also analyzed.ResultsPatients in isolation reported worse experience, primarily with staff responsiveness (help toileting 63% vs 51%; adjusted odds ratio [aOR], 0.77; P = .0009) and overall care (rate hospital 80% vs 73%; aOR, 0.78; P < .0001), but they reported similar experience in other domains. No dose-response effect was observed.ConclusionIsolated patients do not report adverse experience for most aspects of provider communication regarded to be among the most important elements for safety and quality of care. However, patients in isolation had worse experiences with staff responsiveness for time-sensitive needs. The absence of a dose-response effect suggests that isolation status may be a marker for other factors, such as illness severity. Regardless, hospitals should emphasize timely staff response for this population.

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Molley, Scott, Amy Derochie, Jessica Teicher, Vibhuti Bhatt, Shara Nauth, Lynn Cockburn, and Sylvia Langlois. "Patient Experience in Health Professions Curriculum Development." Journal of Patient Experience 5, no. 4 (May 15, 2018): 303–9. http://dx.doi.org/10.1177/2374373518765795.

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To enhance student learning, many health profession programs are embracing involvement of patients in their curricula, yet little is known about the impact of such an experience on patients. Objective: To understand the experiences of patients who contributed to the creation of a Verbatim Reader’s Theater used in health professions curriculum. Methods: A semi-structured interview was conducted with a focus group of 3 patients who participated in curriculum development. The interview was recorded, transcribed verbatim, and analyzed for themes using van Manen approach to hermeneutic phenomenology. Results: Five themes emerged: (1) contextualizing contribution, (2) addressing expectations, (3) changing health-care service delivery, (4) sharing common experiences, and (5) coordinating participation. Conclusion: Patients had a positive experience contributing to curriculum development and found meaning in sharing their lived experience to shape the values of future clinicians. Strategies to promote continued success in partnership between patients and health professional curriculum developers include clear communication about the project’s direction and early discussion of patient role and expectations.

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Holt, Kelsey, Svetlana V. Doubova, Dennis Lee, Ricardo Perez-Cuevas, and Hannah H. Leslie. "Factors associated with positive user experience with primary healthcare providers in Mexico: a multilevel modelling approach using national cross-sectional data." BMJ Open 10, no. 1 (January 2020): e029818. http://dx.doi.org/10.1136/bmjopen-2019-029818.

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ObjectiveThis study aimed to investigate factors associated with patient experience with primary care in a large public health system in Mexico and determine the amount of variability in experience attributable to facility-level and state-level factors.MethodsWe analysed cross-sectional 2016 national satisfaction survey data from the Mexican Social Security Institute (IMSS). Patient-level data were merged with facility-level data and information on poverty by state. We assessed general contextual effects and examined the relationship of patient, facility and state factors with four patient experience measures using random effects logistic regression.Results25 745 patients’ responses from 319 facilities were analysed. The majority experienced good communication (78%), the opportunity to share health concerns (91%) and resolution of doubts (85%). 29% of visits were rated as excellent. Differences between facilities and states accounted for up to 12% and 6% of the variation in patient experience, respectively. Inclusion of facility-level contextual effects improved model predictions by 8%–12%; models with facility random effects and individual covariates correctly predicted 64%–71% of individual outcomes. In adjusted models, larger patient population was correlated with worse reported communication, less opportunity to share concerns and less resolution of doubts. Men reported more positive communication; older individuals reported more positive communication and experiences overall, but less opportunity to share concerns; and more educated individuals were less likely to report positive communication but more likely to report resolution of doubts and overall positive experiences. Preventive care visits were rated higher than curative visits for resolution of doubts, but lower for opportunity to share concerns, and specific conditions were associated with better or worse reported experiences in some cases.ConclusionQuality improvement efforts at IMSS facilities might bolster individual experiences with primary care, given that up to 12% of the variation in experience was attributable to facility-level differences. The relationship between individual characteristics and experience ratings reinforces the importance of patients’ expectations of care and the potential for differential treatment by providers to impact experience.

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Tanniru, Mohan, and Jiban Khuntia. "Dimensions of Patient Experience and Overall Satisfaction in Emergency Departments." Journal of Patient Experience 4, no. 3 (February 13, 2017): 95–100. http://dx.doi.org/10.1177/2374373517692914.

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Objective: To determine the correlation between individual patient experience dimensions and overall patient satisfaction using text-based analysis of subjective comments of patients treated in emergency departments. Methods: Open-ended comments from 331 patients who visited the emergency departments of 4 hospitals were used for coding different dimensions of patient experience. Regression coefficients were calculated to assess the relationships between dimensions of patient experiences with overall satisfaction. Results: Positive and negative experience of nursing, communications, and infrastructure influence the overall satisfaction. Positive experience attributes of overall care quality influence overall satisfaction, whereas negative experience of the same does not have any influence. Further, experiences of interactions with doctors and scheduling do not have any effect on overall satisfaction in emergency departments. Conclusions: Emergency departments may get higher overall patient evaluations by focusing on positive aspects of care, nursing, communication, and infrastructure attributes. Doctors and scheduling (emergency) may be considered as expected quality attributes and so not surprising that they did not play a role in overall satisfaction.

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Mäkeläinen, Paula, Katri Vehviläinen-Julkunen, and Anna-Maija Pietilä. "Rheumatoid arthritis patient education: RA patients’ experience." Journal of Clinical Nursing 18, no. 14 (July 2009): 2058–65. http://dx.doi.org/10.1111/j.1365-2702.2008.02763.x.

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McGurk, Valerie, Dorothy Bean, Tania Gooney, Jessica Markland, Kim Fillingham, Tracy Tebbutt, and Peter Brewer. "Treating Patients Well: Improving the patient experience." Journal of Neonatal Nursing 13, no. 6 (December 2007): 225–30. http://dx.doi.org/10.1016/j.jnn.2007.09.004.

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Kumah, Emmanuel. "To what extent does patient experience account for variation in patient satisfaction with a healthcare system?" European Journal for Person Centered Healthcare 5, no. 2 (July 6, 2017): 191. http://dx.doi.org/10.5750/ejpch.v5i2.1281.

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Background: Patient experience and patient satisfaction, the two recognized indicators for assessing the quality of healthcare, are related, but distinct concepts. While there is existing evidence concerning a statistically significant association between these two concepts, research on the extent to which patient experience accounts for variation in patients’ overall satisfaction with health services has produced contradictory results. Objectives: The primary aim of this paper was to determine the extent to which satisfaction with a healthcare system is explained by patient experience. A secondary objective was to identify the aspects of patient experience that relate most strongly to satisfaction with health services.Methods: The study was a secondary analysis of quantitative data from the 2006 Consumer Assessment of Healthcare Providers and Systems (CAHPS) Survey. Multivariate regression analysis was used to assess the association between global satisfaction and CAHPS domains of patient-reported experience with healthcare. Pearson product moment correlation coefficients were computed to ascertain the aspects of patients’ experiences that have strong association with their overall satisfaction. Findings: Much (67.4%) of the variation in overall patient satisfaction was accounted for by patient experience. Factors related to patient-professional relationship related strongly with patients’ overall satisfaction with health servicesConclusion: Patient experience of care is a major determinant of patients’ overall satisfaction with a healthcare system and the two concepts are not marginally related.

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Eng, Kelly, Caitlin C. Donohue, Andrew J. Wagner, David W. Dougherty, Elahi Salehi, Carol Lowenstein, Daniel A. Gundersen, Ruth Lederman, and Sarah Kadish. "Assessing oncology patient and provider telehealth experience." Journal of Clinical Oncology 39, no. 28_suppl (October 1, 2021): 284. http://dx.doi.org/10.1200/jco.2020.39.28_suppl.284.

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284 Background: Due to COVID-19, telehealth volume at our comprehensive cancer center rose from less than 5% of exam visits to over 25% in April 2020. We sought to understand the experience of telehealth and compare it to in-person experiences for patients and providers (physicians, nurse practitioners, and physician assistants) to identify areas for improvement. Methods: A multidisciplinary team adapted our existing patient satisfaction survey to incorporate telehealth, defined as phone and video exam visits. A technology section was created to assess aspects unique to telehealth. Questions about the patient-provider experience were the same for telehealth and in-person visits. A provider experience survey was conducted during a two-week period in May and June 2020. The provider survey aligned questions with the patient survey to compare the perceptions of the provider-patient interaction. Results: Patient experience scores for in-person and telehealth visits were comparable, with a slightly higher mean score for in-person visits. The mean scores for patient perception of care given at our cancer center was 97.5 (n=11,969) and 96.9 (n=4670) and the likelihood to recommend was 97.8 (n=12,072) and 97.4 (n=4,398) for in-person and telehealth, respectively, between June and December 2020. Patient feedback prioritized addressing technical barriers. We implemented several interventions and increased the telehealth technology section mean scores from 93.2 (n=1,095) to 95.2 (n=700) between June and December 2020. When comparing the percent of respondents scoring good or very good, provider scores showed sizable gaps between in-person and telehealth experiences on all questions (see table). The question “degree to which the care team was well coordinated” had the largest difference between in-person and telehealth scores for both patients and providers. Several interventions to adapt staffing and workflows have been implemented to improve care telehealth coordination. Conclusions: While patients reported similar satisfaction between in-person and telehealth visits, increasing coordination remains vital to improving the experience for both patients and providers. Furthermore, understanding the gap in the provider experience between in-person and telehealth is critical for successful adoption of telehealth as a long-term strategy for healthcare delivery.[Table: see text]

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Bose, Catarina Nahlén, Fredrik Saboonchi, Hans Persson, Gunilla Björling, and Magnus L. Elfström. "Adaptation of Coping Effectiveness Training for Patients With Heart Failure and Patient-Reported Experience of the Intervention." Journal of Patient Experience 7, no. 6 (April 2, 2020): 1054–61. http://dx.doi.org/10.1177/2374373520916012.

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Although patients with chronic heart failure (CHF) often experience psychological distress, psychosocial aspects are not an integral part of their treatment and care. The aim is to describe the adaptation of Coping Effectiveness Training for patients with CHF and the participants’ reported experiences. The intervention workbook and manual were translated into Swedish and adapted for patients with CHF. Patient-reported experience from 33 of 35 participants, that had completed the psychosocial intervention, was measured with an evaluation form consisting of closed and open-ended questions. Most participants thought they benefited from the intervention, were pleased with the structure and did not want to add anything to the program. The benefits experienced were learning how to cope with the illness and meeting other people to share and discuss experiences. There was a variation concerning the group process of how much direction should be given during the discussions. Overall, unique data from patient-reported experience measure showed that the participants were satisfied with the psychosocial intervention, applied for the first time to patients with CHF.

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Banister, Alison. "Patient experience opens eyes." Nursing Standard 18, no. 39 (June 9, 2004): 30. http://dx.doi.org/10.7748/ns.18.39.30.s46.

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Ziering, Craig L. "Toppik Enhances Patient Experience." International Society of Hair Restoration Surgery 13, no. 1 (January 2003): 257. http://dx.doi.org/10.33589/13.1.0257.

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Lees, Carolyn. "Measuring the patient experience." Nurse Researcher 19, no. 1 (October 21, 2011): 25–28. http://dx.doi.org/10.7748/nr2011.10.19.1.25.c8768.

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Sonis, Jonathan D., Emily L. Aaronson, Rebecca Y. Lee, Lisa L. Philpotts, and Benjamin A. White. "Emergency Department Patient Experience." Journal of Patient Experience 5, no. 2 (September 29, 2017): 101–6. http://dx.doi.org/10.1177/2374373517731359.

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Introduction: Patient experience with emergency department (ED) care is an expanding area of focus, and recent literature has demonstrated strong correlation between patient experience and meeting several ED and hospital goals. The objective of this study was to perform a systematic review of existing literature to identify specific factors most commonly identified as influencing ED patient experience. Methods: A literature search was performed, and articles were included if published in peer-reviewed journals, primarily focused on ED patient experience, employed observational or interventional methodology, and were available in English. After a structured screening process, 107 publications were included for data extraction. Result: Of the 107 included publications, 51 were published before 2011, 57% were conducted by American investigators, and 12% were published in nursing journals. The most commonly identified themes included staff-patient communication, ED wait times, and staff empathy and compassion. Conclusion: The most commonly identified drivers of ED patient experience include communication, wait times, and staff empathy; however, existing literature is limited. Additional investigation is necessary to further characterize ED patient experience themes and identify interventions that effectively improve these domains.

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Mahan, Jennifer. "Learning the patient experience." Journal of the American Academy of Physician Assistants 31, no. 5 (May 2018): 1–2. http://dx.doi.org/10.1097/01.jaa.0000532121.07789.2b.

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Volante, Margaret. "Changing the patient experience." Practice Development in Health Care 6, no. 4 (2007): 201–2. http://dx.doi.org/10.1002/pdh.235.

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Bartol, Tom. "Enhancing the patient experience." Nurse Practitioner 41, no. 8 (August 2016): 14–15. http://dx.doi.org/10.1097/01.npr.0000488712.59820.ad.

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Rees, Lynne. "Enhance the patient experience." Vital 6, no. 1 (December 2008): 38–39. http://dx.doi.org/10.1038/vital897.

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Dempsey, Christina, Barbara Reilly, and Nell Buhlman. "Improving the Patient Experience." JONA: The Journal of Nursing Administration 44, no. 3 (March 2014): 142–51. http://dx.doi.org/10.1097/nna.0000000000000042.

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Horton, Laura. "Developing your patient experience." BDJ In Practice 32, no. 8 (August 2019): 20–21. http://dx.doi.org/10.1038/s41404-019-0134-0.

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Doucette, Jeffrey N. "Prioritize the patient experience." Nursing Management (Springhouse) 47, no. 11 (November 2016): 56. http://dx.doi.org/10.1097/01.numa.0000502799.06930.17.

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Dellosso, Michael. "Improving the Patient Experience." Home Healthcare Now 38, no. 3 (2020): 173–74. http://dx.doi.org/10.1097/nhh.0000000000000883.

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Zverev, Samuel. "Experiencing the Patient Experience." Academic Medicine 96, no. 4 (March 30, 2021): 557. http://dx.doi.org/10.1097/acm.0000000000003919.

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Cathcart, R. A., and J. A. Wilson. "Catarrh - the patient experience." Rhinology journal 49, no. 4 (October 1, 2011): 387–91. http://dx.doi.org/10.4193/rhino11.055.

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Background: No study to date has looked at the symptoms of chronic catarrh as defined by the patients themselves. We looked to explore the catarrh experience through the eyes of patients using a qualitative approach. Methodology/principal: Forty-eight patients referred to Secondary Care with chronic catarrh, postnasal drip or persistent throat clearing completed an open-ended questionnaire from which a comprehensive symptom list was generated. Nineteen of these patients undertook semi-structured interviews to explore symptomatic themes relating to their catarrh using grounded theory analysis. Results: A standardised list of 38 catarrh-related symptoms was generated covering a wide topography. A common theme amongst interviewees was the frustration of being unable to expectorate mucus rather than expelling too much. Conclusions: Difficulties exist in establishing whether the extensive list of symptoms associated with catarrh is a result of differing experiences for patients or simply differing lexicon describing the same experience. Many of these symptoms are not included in the most commonly used nose/throat symptom instruments. Furthermore a distinction should be made between patients with true rhinitis who expel mucus and those who present with apparent postnasal drip or throat clearing but who cannot expectorate, whose management ought be focused more on symptom-coping strategies rather than medication or investigation.

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Bull, Claudia, Sharon Latimer, Julia Crilly, and Brigid M. Gillespie. "A systematic mixed studies review of patient experiences in the ED." Emergency Medicine Journal 38, no. 8 (March 4, 2021): 643–49. http://dx.doi.org/10.1136/emermed-2020-210634.

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BackgroundUnderstanding patient experiences is crucial to evaluating care quality in EDs. However, while previous reviews describe the determinants of ED patient experiences (ie, factors that influence patient experiences), few have described actual patient experiences. The aim of this systematic mixed studies review was to describe patient experiences in the ED from the patient’s perspective.MethodsEmbase, Medline, ProQuest Nursing and Allied Health, the Cumulative Index to Nursing and Allied Health Literature and the Cochrane Library electronic databases were searched, with publication dates limited between 1 January 2001 and 16 September 2019. Studies describing adult patient experiences in the ED were included. Studies describing patient satisfaction, proxy-reported experiences or child/adolescent experiences were excluded. The quality of included studies was appraised using the Mixed Methods Appraisal Tool (2018 version). An inductive, convergent qualitative synthesis of the extracted data was undertaken following Thomas and Harden’s (2008) methods.ResultsFifty-four studies were included and of those, only five (9%) studies included a standardised definition of patient experience. Two inter-related themes emerged: Relationships between ED patients and care providers; and Spending time in the ED environment. The first theme included four subthemes regarding respect, communication, caring behaviours and optimising patient confidence. A key finding related to the potential for power imbalances between patients and their care providers. The second theme included two subthemes regarding physical aspects of the ED environment and patients’ waiting experience. Patients attributed more importance to the waiting experience itself rather than the duration they had to wait.ConclusionsPatients in the ED have unique and complex experiences. Greater research is needed to understand the relational and environmental factors that contribute to power imbalances between patients and care providers, how to support more positive waiting experiences, and developing a standardised definition of patient experience in the ED.PROSPERO registration numberCRD42020150154.

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Lyratzopoulos, Georgios, Catherine L. Saunders, Silvia Mendonca, and Gary Abel. "Understanding disparities and organisational variation in cancer patient experience: Lessons from the English National Cancer Patient Experience survey." Journal of Clinical Oncology 32, no. 30_suppl (October 20, 2014): 181. http://dx.doi.org/10.1200/jco.2014.32.30_suppl.181.

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181 Background: Surveys of the experience of cancer patients are currently being introduced in several countries, including the U.S. and Canada. Insights to inform the development and use of such surveys can be acquired from the English Cancer Patient Experience Survey programme. Methods: Each of the three national surveys (2010, 2011/12 and 2012/13) had a responder sample of ~70,000 patients (response rate 64-67%) and included about 60 evaluative questions on all domains of experience, from cancer diagnosis to care after hospital treatment. Anonymous data were analysed, using appropriate logistic regression models for positive/negative experience outcomes, based on public reporting conventions. We illustrate a research programme using the survey data focusing on two questions. 1. Who are the patients at greater risk of a negative experience? 2. Does case-mix explain apparent variation between hospitals? Results: There was evidence of socio-demographic variation in cancer patient experience, consistently across questions: younger and very old patients, ethnic minorities, and women reported poorer experience. Regarding variation between patients with 36 common and rarer tumours, those with hepato-biliary and thyroid cancers were most likely to be less satisfied with their overall experience, whereas patients with breast cancer were least likely (top-to-bottom odds ratio 3.7, p<0.0001). There were disparities in experience between patients treated by the same specialty for 5/9 services (p<0.0001). For example, patients with ovarian, multiple myeloma, anal and renal cancer reported worse experiences than patients with other gynaecological, haematological and urological malignancies, respectively. There was high concordance between crude and adjusted ranks of hospital scores (median Kendall's τ=0.84; interquartile range: 0.82-0.88). Conclusions: Initiatives to improve cancer patient experience may be suitably targeted on patients at higher risk of poorer experience. Evidence about disparities in experience and the effect of case-mix provide useful priors to motivate similar inquiries in other healthcare settings.

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Gomez-Cano, Mayam, Georgios Lyratzopoulos, and Gary A. Abel. "Patient Experience Drivers of Overall Satisfaction With Care in Cancer Patients: Evidence From Responders to the English Cancer Patient Experience Survey." Journal of Patient Experience 7, no. 5 (November 25, 2019): 758–65. http://dx.doi.org/10.1177/2374373519889435.

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Background: Surveys collecting patient experience data often contain a large number of items covering a wide range of experiences. Knowing which areas to prioritize for improvements efforts can be difficult. Objective: To examine which aspects of care experience are the key drivers of overall satisfaction with cancer care. Methods: Secondary analysis of the National Cancer Patient Experience Survey. Logistic regression was used to examine the relationship between overall satisfaction and 10 core questions covering aspects of experience applicable to all patients. Supplementary analyses examined a further 16 questions applying only to patients in certain groups or on specific treatment pathways. Results: Of 68 340 included patients, 58 697 (86%) rated overall satisfaction highly (8 or more out of 10). The strongest predictors of overall satisfaction across all models were responses to 2 questions on experience of care administration and care coordination (odds ratio [OR] = 2.11, 95% confidence interval [95% CI = 2.05-2.17, P < .0001; OR = 2.03, 95% CI = 1.97-2.09, P < .0001, respectively, per 1 standard deviation change). Conclusion: Focusing improvement efforts on care administration and coordination has potential to improve overall satisfaction with oncological care across diverse patient groups/care pathways.

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Hirshberg, Eliotte L., Jorie Butler, Morgan Francis, Francis A. Davis, Doriena Lee, Fahina Tavake-Pasi, Edwin Napia, et al. "Persistence of patient and family experiences of critical illness." BMJ Open 10, no. 4 (April 2020): e035213. http://dx.doi.org/10.1136/bmjopen-2019-035213.

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ObjectiveTo investigate: (1) patient and family experiences with healthcare and the intensive care unit (ICU); (2) experiences during their critical illness; (3) communication and decision making during critical illness; (4) feelings about the ICU experience; (5) impact of the critical illness on their lives; and (6) concerns about their future after the ICU.DesignFour semistructured focus group interviews with former ICU patients and family members.SettingsMulticultural community group and local hospitals containing medical/surgical ICUs.ParticipantsPatients and family who experienced a critical illness within the previous 10 years.InterventionsNone.Measurements and main resultsFour separate focus groups each lasting a maximum of 150 min and consisting of a total of 21 participants were held. Focus groups were conducted using a semistructured script including six topics relating to the experience of critical illness that facilitated deduction and the sorting of data by thematic analysis into five predominant themes. The five main themes that emerged from the data were: (1) personalised stories of the critical illness; (2) communication and shared decision making, (3) adjustment to life after critical illness, (4) trust towards clinical team and relevance of cultural beliefs and (5) end-of-life decision making. Across themes, we observed a misalignment between the medical system and patient and family values and priorities.ConclusionsThe experience of critical illness of a diverse group of patients and families can remain vivid for years after ICU discharge. The identified themes reflect the strength of memory of such pivotal experiences and the importance of a narrative around those experiences. Clinicians need to be aware of the lasting effects of critical illness has on patients and families.

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