Relevant bibliographies by topics / Family caregiving, dementia, family-centered care

Contents

  1. Journal articles
  2. Dissertations / Theses
  3. Books
  4. Book chapters

Academic literature on the topic 'Family caregiving, dementia, family-centered care'

Author: Grafiati
Published: 4 June 2021
Last updated: 1 February 2022

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Journal articles on the topic "Family caregiving, dementia, family-centered care"

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Parmar, Jasneet, Lisa Poole, Sharon Anderson, et al. "Co-Designing Caregiver-Centered Care: Training the Health Workforce to Support Family Caregivers." Innovation in Aging 4, Supplement_1 (2020): 15–16. http://dx.doi.org/10.1093/geroni/igaa057.051.

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Abstract Family caregivers [FCGs] provide over 80% of the care for people with dementia, chronic illness and impairments. Despite evidence of their contributions and consequences of caregiving, support for FCGs has not been a health system priority. Our innovative solution, to reduce caregiver distress and support caregivers’ wellbeing, is to educate the health workforce in a meaningful manner based on evidence. We validated Caregiver-Centered Care Core Competencies required to address the gap between what FCGs report they need and preparation of healthcare providers to meet those needs. This
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Prins, Marleen, Bernadette Willemse, Marlous Tuithof, Henriëtte van der Roest, and Anne Margriet Pot. "409 - Trends in Involvement, Perceived Role, Role Overload and Self-efficacy of Family Carers of People with Dementia in Care Homes." International Psychogeriatrics 32, S1 (2020): 125. http://dx.doi.org/10.1017/s1041610220002628.

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IntroductionThe quality of long-term care provided to people with dementia (PwD) in care homes can be improved by implementing person-centered care. Family carers of PwD living in care homes are an important part of person-centered care. However, they often experience high levels of burden, even when a family member with dementia lives in a care home. This study examines trends in the involvement of family carers and their perceived role, role overload and self-efficacy.MethodsData from the Living Arrangements for People with Dementia study, a cross-sectional monitoring study that evaluates de
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Wermuth, Laurie. "Caregiving to Family Members with Dementia." Californian Journal of Health Promotion 9, no. 1 (2011): 86–98. http://dx.doi.org/10.32398/cjhp.v9i1.2061.

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The emotional and physical stress experienced by family caregivers of individuals with dementia is well known (Vitaliano, Jianping, Young, Caswell, Scanlan, Echeverria, 2009). Pearlin and colleagues (1990) noted that caregiving is complex, involving a variety of resources and strategies. The purpose of this qualitative study was to better understand careproviders‟ situations in context, including the resources they had available, the meaning of their care, and the strategies they employed to cope. Sixteen family care providers of adults with dementia were recruited through an adult services ag
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Wang, Jing, and Bei Wu. "Caregiving Arrangements and Health Outcomes of Chinese Older Adults With Disability in Cross-National Settings." Innovation in Aging 4, Supplement_1 (2020): 750. http://dx.doi.org/10.1093/geroni/igaa057.2702.

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Abstract This symposium focuses on the wellbeing of older adults with disability/cognitive impairment and their family caregivers. More specifically, it aims to understand how familly support, community resources utilization, internal migration, and immigrant status impact older adults’ caregiving arrangement, health outcomes and end-of-life preferences and family caregivers’ caregiving burden in China and the U.S. The first study explored how perceived spousal relationships and support impact dyadic experiences of living with cognitive impairment through a person-centered care lens during a t
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Yap, LKP, CCD Seow, LM Henderson, and YNJ Goh. "Family caregivers and caregiving in dementia." Reviews in Clinical Gerontology 15, no. 3-4 (2005): 263–71. http://dx.doi.org/10.1017/s0959259806001900.

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The alarming statistics of dementia are now widely acknowledged. The most recent estimates indicate 24.3 million suffer from this condition worldwide, with a new case being diagnosed every seven seconds. For the person afflicted, it robs him of his identity and, in the opinion of many, even his personhood. For family members, bereavement can begin from the early stages of the disease where a once-treasured relationship is gradually eroded. Family carers remain the main persons providing care, having to face much emotional, practical and economic strain in the process. Although there is no stan
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Choy, Jacky C. P. "DEVELOPING A CONCEPTUAL MODEL OF FAMILY PREPAREDNESS FOR FUTURE DEMENTIA CAREGIVING IN CHINESE FAMILIES." Innovation in Aging 3, Supplement_1 (2019): S467. http://dx.doi.org/10.1093/geroni/igz038.1744.

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Abstract Dementia is a growing health challenge that demands better public preparedness. Persons with dementia often lack the capacity to make and execute plans such that family involvement in care preparation becomes necessary. It is commonly observed in Chinese societies that there are more than one family members involved in the taking care of the person with dementia. The current qualitative study aims to understand preparedness for dementia caregiving of a family as unit in a Chinese society. In-depth interviews with 10 family units of dementia caregivers were conducted. Participants (4 s
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Brewster, Glenna S., Kalisha Bonds, Susan McLennon, Karen O. Moss, Fayron Epps, and Ruth Palan Lopez. "Missing the Mark: The Complexity of African American Dementia Family Caregiving." Journal of Family Nursing 26, no. 4 (2020): 294–301. http://dx.doi.org/10.1177/1074840720945329.

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Alzheimer’s disease and related dementias (ADRDs) have a significant impact on families. Family nurses are in an ideal position to address the needs of families affected by ADRD. However, to be most effective, family nurses and researchers need culturally appropriate theories to guide practice and research. On November 17, 2018, five nurse researchers presented findings of their research with African American families at the Gerontological Society of America’s annual meeting. The results reported and the lively discussion that ensued suggested that the current paradigms framing research and pr
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Oh, Seieun, Mi Yu, Young Mi Ryu, Haejin Kim, and Haeyoung Lee. "Changes in Family Dynamics in Caregiving for People With Dementia in South Korea: A Qualitative Meta-Synthesis Study." Qualitative Health Research 30, no. 1 (2019): 60–72. http://dx.doi.org/10.1177/1049732319871254.

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Living with a person with dementia considerably affects the lives of both the primary caregiver and the entire family. This study aimed to synthesize the findings of qualitative studies that explored dementia caregivers’ experiences, to further understand the impact of dementia caregiving on family dynamics. Thirty-seven qualitative studies were analyzed and synthesized according to the meta-synthesis methods suggested by Sandelowski and Barroso. Four themes were identified to describe the impact of dementia caregiving on the family: cracked foundation of the family caused by dementia, volunta
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Asirot, Mary Grace, Anna Papazyan, and Yeonsu Song. "Positive Aspects of Caregiving Among Family Caregivers of Individuals With Dementia." Innovation in Aging 4, Supplement_1 (2020): 358–59. http://dx.doi.org/10.1093/geroni/igaa057.1153.

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Abstract Traditionally, caregiving for individuals with dementia has been viewed as a negative experience. Understanding positive aspect of caregiving and related factors is important to improve health among family caregivers. We analyzed baseline data from an ongoing dyadic sleep education trial for individuals with dementia and their caregivers (N=21 dyads; mean age 70.8± 11.1 for caregivers, 80.5± 8.3 for care-recipients). The Positive Aspects of Caregiving (PAC 9-item) was used to assess subjective satisfaction with caregiving. Other measures included Zarit Burden Interview (ZBI), SF-12 He
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Badana, Adrian, and William E. Haley. "USING A STRESS PROCESS MODEL TO EXAMINE RACIAL DIFFERENCES IN CAREGIVER WELL-BEING AND HEALTH." Innovation in Aging 3, Supplement_1 (2019): S487. http://dx.doi.org/10.1093/geroni/igz038.1807.

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Abstract Current research must utilize nationally-representative samples of older adults and their family caregivers to accurately reflect the growing diversity of the United States. This study aims to use a stress process model to examine potential racial differences in caregiving in a population-based sample of 844 White and 389 Black family caregivers in the United States. We conducted 3 x 2 x 2 (relationship type x race x dementia care status) factorial ANOVAs to examine potential differences in caregiving stressors, appraisals, resources, and mental and physical health outcomes among prim
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Dissertations / Theses on the topic "Family caregiving, dementia, family-centered care"

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Reep, Jennifer Kebeh. "Family Caregiving beyond Institution Doors." Miami University / OhioLINK, 2016. http://rave.ohiolink.edu/etdc/view?acc_num=miami1461910478.

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Logan, Caroline. "Caregiving to older people who have a dementia : an investigation of stress and coping in carers." Thesis, University of Oxford, 1995. http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.306888.

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Moon, Heehyul. "CARE RECIPIENT AND FAMILY CAREGIVER PERCEPTIONS OF EVERYDAY CARE IN EARLY-STAGE DEMENTIA: THE EFFECT OF INCONGRUENCE ON QUALITY OF LIFE AND THE MEDIATING EFFECT OF DYADIC RELATIONSHIP STRAIN." Case Western Reserve University School of Graduate Studies / OhioLINK, 2013. http://rave.ohiolink.edu/etdc/view?acc_num=case1343412823.

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Nwakasi, Candidus C. "Exploring the Experiences of Nigerian Female Dementia Caregivers." Miami University / OhioLINK, 2019. http://rave.ohiolink.edu/etdc/view?acc_num=miami1574869417297074.

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Robertson, Jane M. "Making sense and finding meaning : comparing narratives of older people with dementia and carers about the quality of an ordinary life." Thesis, University of Stirling, 2010. http://hdl.handle.net/1893/2530.

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This research examines narratives about the quality of everyday life with dementia. The aim of the study is to compare and contrast differing perspectives about the impact of ageing and dementia upon the lives of older people with dementia. A total of 50 interviews with six older people with dementia and ten family and paid carers were conducted over a two-year period. Narrative analysis was used to examine the content and structure of their accounts to understand their perspectives on what matters most to people living with dementia. This in-depth analysis enabled an exploration of different
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Hasselfeld, Karolyn A. "A Caregiver's Guide to Developing A Personalized Activity for a Loved One Living with Dementia." University of Cincinnati / OhioLINK, 2021. http://rave.ohiolink.edu/etdc/view?acc_num=ucin1623165808180786.

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Al, Awar Zeina. "Using HIT to Support Informal Caregivers of Cancer Patients at Home: a Needs Assessment." Thesis, Université d'Ottawa / University of Ottawa, 2016. http://hdl.handle.net/10393/34112.

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Introduction: This research investigated the requirements of an HIT solution that is usable and useful to informal caregivers of cancer patients on home palliative care. Methodology: A needs assessment method was used with an exploratory and a confirmatory stage. Eight semi-structured interviews and two focus groups were used for data collection. Qualitative content analysis was used to analyse caregiver experiences with both inductive and deductive coding. Results/Discussion: Expressed and unexpressed caregiver needs were extracted into four categories, Implementation, Presentation, In
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Lundgren, Ann-Cristine, and Özlem Sener. "Personcentrerad vård av personer med demenssjukdom : Anhörigas upplevelser." Thesis, Röda Korsets Högskola, 2020. http://urn.kb.se/resolve?urn=urn:nbn:se:rkh:diva-3395.

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Nowik, Iwona. "Sjuksköterskors erfarenhet av samtal med närstående till personer med demenssjukdom vid övergången till sen palliativ fas : en kvalitativ studie." Thesis, Sophiahemmet Högskola, 2017. http://urn.kb.se/resolve?urn=urn:nbn:se:shh:diva-2696.

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Demens är en obotlig sjukdom som leder till döden. En stor andel personer som bor i permanenta särskilda boendeformer i Sverige lider av demenssjukdom. Det ligger ett stort ansvar för omvårdnaden av personer med demenssjukdom på sjuksköterskan, som bland annat informerar och samtalar med närstående när livet hos den demenssjuke närmar sig slutet. Identifiering av hinder och förutsättningar för genomförande av dessa samtal bidrar till en bättre förståelse och utveckling av detta område. Syftet med denna studie var att belysa sjuksköterskors erfarenheter av att samtala med närstående till person
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Clune, Tarynn N. "Experiences and Perspectives of Activity Facilitators in Memory Care." Bowling Green State University / OhioLINK, 2020. http://rave.ohiolink.edu/etdc/view?acc_num=bgsu1586808219109459.

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Books on the topic "Family caregiving, dementia, family-centered care"

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1930-, Glenner Joy A., ed. When your loved one has dementia: A simple guide for caregivers. Johns Hopkins University Press, 2005.

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Mace, Nancy L. The 36-hour day: A family guide to caring at home for people with Alzheimer's disease and other confusional illnesses. Hodder & Stoughton with Age Concern, 1992.

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V, Rabins Peter, ed. The 36-hour day: A family guide to caring for people with Alzheimer disease, other dementias, and memory loss in later life. 4th ed. Johns Hopkins University Press, 2006.

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Mace, Nancy L. The 36-hour day: A family guide to caring for persons with Alzheimer disease, related dementing illnesses, and memory loss in later life. 3rd ed. Johns Hopkins University Press, 1999.

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Mace, Nancy L. The 36-hour day: A family guide to caring for persons with Alzheimer disease, related dementing illnesses, and memory loss in later life. Warner, 2001.

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V, Rabins Peter, ed. The 36-hour day: A family guide to caring for people who have Alzheimer disease, other dementias, and memory loss in later life. 4th ed. Wellness Central, 1999.

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V, Rabins Peter, ed. The 36-hour day: A family guide to caring for persons with Alzheimer's disease, related dementing illnesses, and memory loss in later life. Johns Hopkins University Press, 1991.

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Mace, Nancy L. The 36-hour day: A family guide to caring for persons with Alzheimer disease, related dementing illnesses, and memory loss in later life. 3rd ed. Johns Hopkins University Press, 2000.

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Mace, Nancy L. Cuando el día tiene 36 horas: Una guía para cuidar a enfermos con alzheimer, pérdida de memoria y demencia senil. 2nd ed. Editorial Pax Mexico, 1997.

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Mace, Nancy L. The 36-hour day. Warner Books, 1991.

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Book chapters on the topic "Family caregiving, dementia, family-centered care"

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Varghese, Mathew, Upasana Baruah, and Santosh Loganathan. "Family Caregiving in Dementia in India: Challenges and Emerging Issues." In Dementia Care. Springer Singapore, 2021. http://dx.doi.org/10.1007/978-981-16-3864-0_8.

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Gitlin, Laura N., and Nancy Hodgson. "Caregivers as Therapeutic Agents in Dementia Care." In Family Caregiving in the New Normal. Elsevier, 2015. http://dx.doi.org/10.1016/b978-0-12-417046-9.00017-9.

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Wittenberg, Elaine, Joy V. Goldsmith, Sandra L. Ragan, and Terri Ann Parnell. "The Family Caregiving Imperative." In Caring for the Family Caregiver. Oxford University Press, 2020. http://dx.doi.org/10.1093/med/9780190055233.003.0001.

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The majority of adults will develop or contract one or more chronic illnesses in the latter third of their lives. They will live protractedly with illness for years before death. About one in six Americans (adult aged, as there are no reliable numbers on caregivers under the age of 18) provide an estimated 37 billion hours of unpaid care to family or friends. This population of caregivers shoulders a heavy load with little support, putting their own health in peril. A description of the caregiving population, their tasks, and financial costs are detailed. The four most common chronic illnesses of dementia, cancer, diabetes, and heart disease are specifically examined from a caregiving perspective. An argument is presented that situates the patient and caregiver as one unit of care, prioritizing family communication as a key part of health communication and decision-making. The summative force of perceived, experienced, and anticipated communication for the caregiver with patient, providers, family, and system is described. Caregiver effectiveness and well-being can be improved through better communication and improved health literacy, which also improves patient outcomes. The integration of family illness narratives that situate the informal caregiver’s experiences are presented. Four featured caregiver stories are detailed and set the stage for a typology of caregivers, which will unfold across the volume.
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Wangmo, Tenzin. "Caring for Older Adults with Dementia." In Intelligent Assistive Technologies for Dementia, edited by Fabrice Jotterand, Marcello Ienca, Tenzin Wangmo, and Bernice S. Elger. Oxford University Press, 2019. http://dx.doi.org/10.1093/med/9780190459802.003.0006.

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In light of increasing life expectancy and population aging, healthcare systems today face the challenge of addressing the care-related needs of an increasingly aging population. Aging compounded with physical and neurological deteriorations means greater caregiving demands for both the formal healthcare sector and informal care from family members and friends. Unpaid informal caregiving is cost effective for the healthcare system as a whole; however, providing care for a family member with dementia can negatively impact the health of the caregiver. The increasing development and deployment of assistive technology is predicted to alleviate caregiving burden and allow the older person with dementia to remain independent and continue to live at home for as long as possible. This chapter presents the landscape of information on informal caregiving for patients with dementia and its associated caregiving burden. It also discusses the evidence available on the potential of assistive technology for alleviating informal caregiving burden. The chapter concludes with some considerations about the governance of assistive technology. It argues that assistive technologies that are proven to be clinically effective should be made fairly and ubiquitously available to improve the quality of life of the person with dementia and his or her family caregiver. This is important to ensure the sustainability of the overall healthcare system.
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Tunçel, Özlem Kuman, and Hayriye Elbi. "Turkey." In Dementia Care: International Perspectives. Oxford University Press, 2019. http://dx.doi.org/10.1093/med/9780198796046.003.0037.

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Turkey has a rapidly ageing population, the issues of which are new to the country. To date, there is no National Dementia Strategy. The strong tradition of family caregiving in Turkey has perhaps influenced the demand for access to formal care services. Informal care provided by families, which includes living together with the elders and providing the most comfort, is one of the strongest aspects of dementia care in Turkey. Another positive aspect is new legal regulation of the social security system for the elderly. Moreover, there is an increasing awareness of dementia and dementia care, which will hopefully give new impetus to further advancements in dementia care. The future of dementia care in Turkey should ideally include: (1) the development of a National Dementia Strategy, (2) improvement of informal care, including support for caregivers, and (3) an increase in the number, as well as improved quality, of in-hospital geriatric services.
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Maslow, Katie, David M. Bass, and Julie H. Rentsch. "Update on the status of effective programs to help dementia family caregivers in the United States: Observations from the search for programs to include in Best Practice Caregiving." In Bridging the Family Care Gap. Elsevier, 2021. http://dx.doi.org/10.1016/b978-0-12-813898-4.00008-7.

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Kondo, Katsunori. "Dementia and Healthy Ageing in Older People." In Health in Japan. Oxford University Press, 2020. http://dx.doi.org/10.1093/oso/9780198848134.003.0009.

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As a front runner of population ageing, Japan faces a future that the human species has never experienced. While we rejoice in longevity, it can bring financial and social challenges resulting from loss of independence. Frailty and dementia are important in this context. To meet those challenges, the Japanese government has been making efforts to reform public health and social care systems, and to develop a trans-sectoral social policy programme for dementia. Culturally, the Japanese value seniority and family traditions of caregiving. Drastic demographic change, and the subsequent decrease in household capacity for informal caregiving, requires a cultural and normative reform in society. An ongoing dialogue between social determinants of health and policy responses in Japan can provide valuable lessons for other countries with a growing ageing population, including the UK.
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Hashimoto, Hideki. "Health and Financial Sustainability in Ageing Japan." In Health in Japan. Oxford University Press, 2020. http://dx.doi.org/10.1093/oso/9780198848134.003.0008.

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As a front runner of population ageing, Japan faces a future that the human species has never experienced. While we rejoice in longevity, it can bring financial and social challenges resulting from loss of independence. Frailty and dementia are important in this context. To meet those challenges, the Japanese government has been making efforts to reform public medical and social care systems, and to develop a trans-sectoral social policy programme for dementia. Culturally, the Japanese value seniority and family traditions of caregiving. Drastic demographic change, and the subsequent decrease in household capacity for informal caregiving, requires cultural and normative reform in society. An ongoing dialogue between social determinants of health and policy responses in Japan can provide valuable lessons for other countries with a growing ageing population, including the UK.
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Jecker, Nancy S. "Healthcare Across the Lifespan." In Ending Midlife Bias. Oxford University Press, 2020. http://dx.doi.org/10.1093/oso/9780190949075.003.0006.

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Part II draws on the philosophical framework set forth in Part I to tackle practical and policy concerns. Chapter 6 demonstrates the tendency toward midlife bias in both geriatric and pediatric bioethics and counters it with techniques that use life stage sensitive values. The chapter puts forth a 3-step dignity-guided method for addressing paradigmatic geriatric cases, such as dementia, where central capabilities are at-risk. The chapter also interrogates Joel Feinberg’s influential view that stresses children’s future autonomy. It argues that this approach overlooks children’s life stage–related capabilities and the value of nurturing care during early childhood. Chapters 7 and 8 turn to long-term care and assess 3 options for meeting the needs of care-dependent older adults: family caregiving, migrant caregiving, and robotic caregiving. It highlights the dignity of family and migrant caregivers as well as their elderly care recipients. It cautions against midlife bias in designing and deploying robotic caregivers and underscores the importance of sociable robots that offer companionship for older end users. Chapter 9 turns to ageism and its appearance in polices ranging from selecting subjects for clinical research to allocating scarce healthcare resources and mandating retirement. Chapter 10 applies a dignity analysis to the end of life, exploring respect for dignity of dying, newly dead, and long-gone human beings. Using narrative analysis, the chapter invites thinking about the end of life and the period following as the winding down of a story, which does not necessarily occur in a linear fashion or simultaneous with human biological death. The closing chapters spotlight the future of population aging (Chapter 11) and make a pitch for life stage sensitive moral theory (Chapter 12).
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Wittenberg, Elaine, Joy V. Goldsmith, Sandra L. Ragan, and Terri Ann Parnell. "Health Literacy." In Caring for the Family Caregiver. Oxford University Press, 2020. http://dx.doi.org/10.1093/med/9780190055233.003.0002.

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Caregivers require the skills needed to support complex medical conditions and utilize opportunities to access, understand, and share reliable health information with care recipients to advocate for successful disease management and decisions. This chapter addresses the unique characteristics of caregiver health literacy and the burden of navigating increasingly complex healthcare systems. The connection and consequence between health literacy and social determinants of health upon caregiving, the implications of caregiver health literacy skills, and the influence of culturally and linguistically appropriate standards on enhanced caregiver health literacy, clear communication, and family-centered care are discussed. Health literacy involves not only caregivers’ and patients’ cognitive and functional skills, but also the collaborative efforts among patients, caregivers, healthcare organizations, healthcare providers, and communities. This collaborative view of health literacy underscores the synergy among healthcare recipients, formal and informal healthcare providers, and resources from healthcare systems to reduce health literacy barriers, ease communication burden, and lessen inequities in health.
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