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Journal articles on the topic 'Family caregiving, dementia, family-centered care'

Author: Grafiati

Published: 4 June 2021

Last updated: 1 February 2022

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1

Parmar, Jasneet, Lisa Poole, Sharon Anderson, et al. "Co-Designing Caregiver-Centered Care: Training the Health Workforce to Support Family Caregivers." Innovation in Aging 4, Supplement_1 (2020): 15–16. http://dx.doi.org/10.1093/geroni/igaa057.051.

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Abstract Family caregivers [FCGs] provide over 80% of the care for people with dementia, chronic illness and impairments. Despite evidence of their contributions and consequences of caregiving, support for FCGs has not been a health system priority. Our innovative solution, to reduce caregiver distress and support caregivers’ wellbeing, is to educate the health workforce in a meaningful manner based on evidence. We validated Caregiver-Centered Care Core Competencies required to address the gap between what FCGs report they need and preparation of healthcare providers to meet those needs. This

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Prins, Marleen, Bernadette Willemse, Marlous Tuithof, Henriëtte van der Roest, and Anne Margriet Pot. "409 - Trends in Involvement, Perceived Role, Role Overload and Self-efficacy of Family Carers of People with Dementia in Care Homes." International Psychogeriatrics 32, S1 (2020): 125. http://dx.doi.org/10.1017/s1041610220002628.

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IntroductionThe quality of long-term care provided to people with dementia (PwD) in care homes can be improved by implementing person-centered care. Family carers of PwD living in care homes are an important part of person-centered care. However, they often experience high levels of burden, even when a family member with dementia lives in a care home. This study examines trends in the involvement of family carers and their perceived role, role overload and self-efficacy.MethodsData from the Living Arrangements for People with Dementia study, a cross-sectional monitoring study that evaluates de

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Wermuth, Laurie. "Caregiving to Family Members with Dementia." Californian Journal of Health Promotion 9, no. 1 (2011): 86–98. http://dx.doi.org/10.32398/cjhp.v9i1.2061.

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The emotional and physical stress experienced by family caregivers of individuals with dementia is well known (Vitaliano, Jianping, Young, Caswell, Scanlan, Echeverria, 2009). Pearlin and colleagues (1990) noted that caregiving is complex, involving a variety of resources and strategies. The purpose of this qualitative study was to better understand careproviders‟ situations in context, including the resources they had available, the meaning of their care, and the strategies they employed to cope. Sixteen family care providers of adults with dementia were recruited through an adult services ag

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Wang, Jing, and Bei Wu. "Caregiving Arrangements and Health Outcomes of Chinese Older Adults With Disability in Cross-National Settings." Innovation in Aging 4, Supplement_1 (2020): 750. http://dx.doi.org/10.1093/geroni/igaa057.2702.

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Abstract This symposium focuses on the wellbeing of older adults with disability/cognitive impairment and their family caregivers. More specifically, it aims to understand how familly support, community resources utilization, internal migration, and immigrant status impact older adults’ caregiving arrangement, health outcomes and end-of-life preferences and family caregivers’ caregiving burden in China and the U.S. The first study explored how perceived spousal relationships and support impact dyadic experiences of living with cognitive impairment through a person-centered care lens during a t

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Yap, LKP, CCD Seow, LM Henderson, and YNJ Goh. "Family caregivers and caregiving in dementia." Reviews in Clinical Gerontology 15, no. 3-4 (2005): 263–71. http://dx.doi.org/10.1017/s0959259806001900.

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The alarming statistics of dementia are now widely acknowledged. The most recent estimates indicate 24.3 million suffer from this condition worldwide, with a new case being diagnosed every seven seconds. For the person afflicted, it robs him of his identity and, in the opinion of many, even his personhood. For family members, bereavement can begin from the early stages of the disease where a once-treasured relationship is gradually eroded. Family carers remain the main persons providing care, having to face much emotional, practical and economic strain in the process. Although there is no stan

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Choy, Jacky C. P. "DEVELOPING A CONCEPTUAL MODEL OF FAMILY PREPAREDNESS FOR FUTURE DEMENTIA CAREGIVING IN CHINESE FAMILIES." Innovation in Aging 3, Supplement_1 (2019): S467. http://dx.doi.org/10.1093/geroni/igz038.1744.

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Abstract Dementia is a growing health challenge that demands better public preparedness. Persons with dementia often lack the capacity to make and execute plans such that family involvement in care preparation becomes necessary. It is commonly observed in Chinese societies that there are more than one family members involved in the taking care of the person with dementia. The current qualitative study aims to understand preparedness for dementia caregiving of a family as unit in a Chinese society. In-depth interviews with 10 family units of dementia caregivers were conducted. Participants (4 s

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Brewster, Glenna S., Kalisha Bonds, Susan McLennon, Karen O. Moss, Fayron Epps, and Ruth Palan Lopez. "Missing the Mark: The Complexity of African American Dementia Family Caregiving." Journal of Family Nursing 26, no. 4 (2020): 294–301. http://dx.doi.org/10.1177/1074840720945329.

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Alzheimer’s disease and related dementias (ADRDs) have a significant impact on families. Family nurses are in an ideal position to address the needs of families affected by ADRD. However, to be most effective, family nurses and researchers need culturally appropriate theories to guide practice and research. On November 17, 2018, five nurse researchers presented findings of their research with African American families at the Gerontological Society of America’s annual meeting. The results reported and the lively discussion that ensued suggested that the current paradigms framing research and pr

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Oh, Seieun, Mi Yu, Young Mi Ryu, Haejin Kim, and Haeyoung Lee. "Changes in Family Dynamics in Caregiving for People With Dementia in South Korea: A Qualitative Meta-Synthesis Study." Qualitative Health Research 30, no. 1 (2019): 60–72. http://dx.doi.org/10.1177/1049732319871254.

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Living with a person with dementia considerably affects the lives of both the primary caregiver and the entire family. This study aimed to synthesize the findings of qualitative studies that explored dementia caregivers’ experiences, to further understand the impact of dementia caregiving on family dynamics. Thirty-seven qualitative studies were analyzed and synthesized according to the meta-synthesis methods suggested by Sandelowski and Barroso. Four themes were identified to describe the impact of dementia caregiving on the family: cracked foundation of the family caused by dementia, volunta

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Asirot, Mary Grace, Anna Papazyan, and Yeonsu Song. "Positive Aspects of Caregiving Among Family Caregivers of Individuals With Dementia." Innovation in Aging 4, Supplement_1 (2020): 358–59. http://dx.doi.org/10.1093/geroni/igaa057.1153.

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Abstract Traditionally, caregiving for individuals with dementia has been viewed as a negative experience. Understanding positive aspect of caregiving and related factors is important to improve health among family caregivers. We analyzed baseline data from an ongoing dyadic sleep education trial for individuals with dementia and their caregivers (N=21 dyads; mean age 70.8± 11.1 for caregivers, 80.5± 8.3 for care-recipients). The Positive Aspects of Caregiving (PAC 9-item) was used to assess subjective satisfaction with caregiving. Other measures included Zarit Burden Interview (ZBI), SF-12 He

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Badana, Adrian, and William E. Haley. "USING A STRESS PROCESS MODEL TO EXAMINE RACIAL DIFFERENCES IN CAREGIVER WELL-BEING AND HEALTH." Innovation in Aging 3, Supplement_1 (2019): S487. http://dx.doi.org/10.1093/geroni/igz038.1807.

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Abstract Current research must utilize nationally-representative samples of older adults and their family caregivers to accurately reflect the growing diversity of the United States. This study aims to use a stress process model to examine potential racial differences in caregiving in a population-based sample of 844 White and 389 Black family caregivers in the United States. We conducted 3 x 2 x 2 (relationship type x race x dementia care status) factorial ANOVAs to examine potential differences in caregiving stressors, appraisals, resources, and mental and physical health outcomes among prim

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Roberto, Karen A., and J. Tina Savla. "EXPANDING RELATIONAL BOUNDARIES OF DEMENTIA CARE." Innovation in Aging 3, Supplement_1 (2019): S187—S188. http://dx.doi.org/10.1093/geroni/igz038.671.

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Abstract Rapid changes in family structures have expanded caregiving boundaries beyond the level of lineal kin to include extended and fictive kin. Guided by stress process and health behavior models, we analyzed semi-structured interviews with 120 family caregivers of persons with dementia (PWD) in rural Appalachia to explore personal/family circumstances that influence the responsibilities nonlineal kin assumed to meet the needs of PwD. Compared to spouse and adult children caregivers, nonlineal caregivers reported that PWD had similar behavioral problems, but greater ADL limitations. They a

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Lim, Kyung Choon. "Influencing Factors on Care Burden among Family Caregivers for Elders with Dementia: Focusing on Family Caregivers using a Support Center for Dementia." Journal of Korean Academic Society of Nursing Education 25, no. 1 (2019): 136–47. http://dx.doi.org/10.5977/jkasne.2019.25.1.136.

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Purpose: This study aimed to explore influencing factors on care burden among family caregivers for elders with dementia living at home. Methods: Participants in this study were 211 family caregivers who were taking care of elders registered at a support center for dementia located in S-gu, Seoul. Data were collected using a structured questionnaire. Data were analyzed with descriptive statistics, t-test, ANOVA, Pearson correlation coefficients, and multiple regression in SPSS WIN 23.0. Results: The care burden of family caregivers was mild to moderate ($40.31{pm}21.50$) in this study. The fac

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Davis, Linda Lindsey. "Dementia Caregiving Studies: A Typology for Family Interventions." Journal of Family Nursing 2, no. 1 (1996): 30–55. http://dx.doi.org/10.1177/107484079600200103.

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Reckrey, Jennifer, Evan Bollens-Lund, Emma Tsui, Kathrin Boerner, and Katherine Ornstein. "Dementia Caregiving: The Association Between Family Caregiving Strain and Receipt of Paid Care." Innovation in Aging 4, Supplement_1 (2020): 572. http://dx.doi.org/10.1093/geroni/igaa057.1898.

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Abstract family caregivers. Using data from three waves (2011, 2015, 2017) of the National Health and Aging Trends Study (NHATS) linked to the National Study of Caregiving (NSOC), we identified family caregivers of those with advanced dementia and compared caregiving strain among those with zero, &lt;20, and 20+ hours/week paid care. Family caregivers of those who received 20+ hours (26% of the sample) reported less caregiver strain (mean score 3.27 vs 4.15, p=0.04) and less frequently reported having more to do than they could handle (46.1% vs 67.9%, p=0.01) or not having enough time for

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Tam, Wai Jia, Gerald Choon-Huat Koh, Helena Legido-Quigley, Ngoc Huong Lien Ha, and Philip Lin Kiat Yap. "“I Can't Do This Alone”: a study on foreign domestic workers providing long-term care for frail seniors at home." International Psychogeriatrics 30, no. 9 (2017): 1269–77. http://dx.doi.org/10.1017/s1041610217002459.

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ABSTRACTBackground:Foreign domestic workers (FDWs) play an important role in long-term caregiving of seniors at home. However, how FDWs cope with the caregiving demands, the dynamic interaction between familial and FDW caregivers and its impact on care recipients remain largely un-explored. Existing caregiver interventions mainly target familial caregivers; little assistance is available for FDW caregivers. This study explores FDWs’ challenges, coping strategies, and the support they need in caring for seniors.Methods:FDWs were recruited from a geriatric ward and outpatient clinic of a tertiar

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Basu, Ipsita, and Susmita Mukhopadhyay. "Factors related to adverse mental health condition of demented family caregivers: A study in West Bengal, India." Anthropological Review 82, no. 4 (2019): 373–88. http://dx.doi.org/10.2478/anre-2019-0028.

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Abstract Dementia caregiving is a unique and the caregivers faces extreme challenges which affect care-giver’s mental health adversely. Family caregiving towards elderly individuals with dementia is becoming widespread. The study aims to evaluate the mental health status of dementia family caregivers and some related factors that affect their mental health condition. Present cross sectional study includes a total of 134 family caregivers. Socio-demographic and caregiving related data were collected using pre-tested questionnaires. Standardized questionnaires were used to collect data on caregi

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Lee, Sang E., Banghwa Lee Casado, and Michin Hong. "Exploring experience and perspectives of foreign-born direct care workers in dementia care: Accounts of Korean American personal care aides caring for older Korean Americans with dementia symptoms." Dementia 17, no. 4 (2016): 423–38. http://dx.doi.org/10.1177/1471301216647832.

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This focus group study explored experience of Korean American personal care aides caring for older Korean Americans with dementia symptoms. Personal care aides described dementia caregiving as challenging, demanding and stressful, yet they cared for their clients with love and affection, particularly with jeong (i.e., a Korean cultural concept of love, affection, sympathy, and bondage). They learned about dementia mostly through their caregiving experience and expressed their need and strong desire to learn more about dementia. They felt for family struggle and observed family conflict and fil

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Yu, Doris, and Sheung Tak cheng. "WHAT DETERMINES THE USE OF MEANING FOCUSED COPING IN DEMENTIA CAREGIVING?" Innovation in Aging 3, Supplement_1 (2019): S809. http://dx.doi.org/10.1093/geroni/igz038.2981.

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Abstract Meaning-focused coping has been identified as an important factor contributing to more positive adjustment and health outcomes for family caregivers of persons with dementia. Yet, there is less evidence about what determines the use of this coping strategy. Based on the Meaning Making Model, this quantitative exploratory study identified the relationship between meaning focused coping and intrinsic motivation towards caregiving, quality of relationship between the care dyads and level of religiosity. Two hundreds and five family caregivers of PWD were recruited from a geriatric clinic

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Henderson, J. Neil. "American Indian Family Caregiving: Cultural Context and Dementia Patient Care." Anthropology News 50, no. 8 (2009): 13–15. http://dx.doi.org/10.1111/j.1556-3502.2009.50813.x.

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Egset, Anne Sofie, and Jon Olav Myklebust. "Dementia in the family: Two Norwegian case studies." Dementia 10, no. 4 (2011): 571–85. http://dx.doi.org/10.1177/1471301211415315.

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With increasing longevity the numbers of people suffering from dementia are rising. This development creates problems and dilemmas for public health care agencies as well as close relatives who are expected to provide care. This article is based on two Norwegian case studies of spouses and adult children who give care to elderly people – both males and females – with dementia. Nine families were included in these studies, and a total of 27 persons were interviewed (husbands, wives, sons and daughters). Central topics discussed in this article are the initial phases of the illness, the heavy de

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Smith, Lourett, Dalena van Rooyen, and David G. Morton. "Silent voices: Transition experiences of family members caring for relatives with dementia." Dementia 19, no. 6 (2018): 2114–27. http://dx.doi.org/10.1177/1471301218815037.

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Worldwide 46.8 million persons are living with dementia and many are requiring assistance with performing daily living or instrumental functions. It is often the task of family members to provide care for their relatives with dementia. However, they are often the silent, unseen and unacknowledged figures in the lives of people living with dementia. In 2015, we used a phenomenological design utilising visual participatory methods in the form of collages and interviews to explore and describe the transition experiences of eight family members (seven females and one male) living in a South Africa

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Sheehan, Orla C., William E. Haley, Virginia Howard, Jin Huang, J. David Rhodes, and David L. Roth. "DEMENTIA CAREGIVING NEGATIVELY AFFECTS THE HEALTH OF CAREGIVER AND CARE RECIPIENT. CAREGIVING TRANSITIONS STUDY." Innovation in Aging 3, Supplement_1 (2019): S219. http://dx.doi.org/10.1093/geroni/igz038.801.

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Abstract Dementia is one of the most common reasons for needing a caregiver (CG). Few studies have compared dementia and non-dementia caregivers who have transitioned into family caregiving roles. Participants in the REasons for Geographic and Racial Differences in Stroke (REGARDS) study who transitioned into a significant caregiving role were recruited to participate in the Caregiving Transitions Study (CTS). Of 11,483 REGARDS participants who were not caregivers at baseline, 1229 (11%) transitioned into a family caregiving role. Eligibility criteria were met by 251 and they were enrolled alo

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Parmar, Jasneet, Sharon Anderson, Lisa Poole, et al. "Caregiver-Centered Care Health Workforce Competencies: Developing Consistent Support for Family Caregivers." Innovation in Aging 4, Supplement_1 (2020): 15. http://dx.doi.org/10.1093/geroni/igaa057.050.

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Abstract Family caregivers [FCGs] are the backbone of the health system. They provide over 80% of the care for people with dementia, chronic illnesses and impairments. Despite evidence of their contributions and consequences of caregiving, support for FCGs has not been a health system priority. Education to prepare health providers to effectively identify, engage, assess, and support FCGs throughout the care trajectory is an innovative approach in addressing inconsistent system of supports for FCGs. We report on development and validation of the Caregiver-Centered Care Competency Framework to

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Savla, Jyoti, Karen A. Roberto, and Rosemary Blieszner. "CAREGIVING CULTURES: RACE, REGION, AND RELATIONS." Innovation in Aging 3, Supplement_1 (2019): S186—S187. http://dx.doi.org/10.1093/geroni/igz038.667.

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Abstract Although families have always cared for their aging members, changes in contemporary society have added to the stress and challenges of providing daily care and support for relatives experiencing physical and/or cognitive decline. Personal characteristics, geographic location, and family structures and relationships influence beliefs about family care; thus, recognizing differences within and across families is crucial for developing culturally informed caregiving programs and practices. This symposium focuses on four diverse groups of caregivers. Recognition of caregiving cultures an

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Lindeman, David, and Katherine K. Kim. "STRENGTHENING FAMILY CAREGIVING THROUGH INNOVATIVE TECHNOLOGY SOLUTIONS." Innovation in Aging 3, Supplement_1 (2019): S439. http://dx.doi.org/10.1093/geroni/igz038.1648.

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Abstract Technology has the potential to enhance the repertoire of tools for family caregiving to address the complexities of caring for older adults. There are examples of technology-enabled interventions helping older adults remain independent and safe in their home; easing the financial, physical, and psychological challenges of family caregiving; assisting in the management of chronic illness; improving socialization and support; offering information and resources on a “just in time” basis; and improving the quality of care and quality of life for both older adults and their family caregiv

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Rentsch, Julie H., David Bass, Kathy Kelly, et al. "BEST PRACTICE CAREGIVING: DIFFERENCES AND GAPS AMONG DEMENTIA SUPPORT PROGRAMS FOR FAMILY & FRIEND CAREGIVERS." Innovation in Aging 3, Supplement_1 (2019): S957. http://dx.doi.org/10.1093/geroni/igz038.3471.

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Abstract Family members and friends are the main providers of care for persons living with dementia. However, dementia caregivers are at greater risk than other caregivers of experiencing negative caregiving consequences. Despite the development of evidence-based programs to support dementia caregivers, few health or social service organizations offer any of these programs due, in part, to a lack of knowledge about their availability. Best Practice Caregiving is a newly launched website where professionals can get detailed information about these programs. Data collected to develop Best Practi

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Jacklin, Kristen, Jessica E. Pace, and Wayne Warry. "Informal Dementia Caregiving Among Indigenous Communities in Ontario, Canada." Care Management Journals 16, no. 2 (2015): 106–20. http://dx.doi.org/10.1891/1521-0987.16.2.106.

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Recent studies suggest dementia is an emerging health issue for Indigenous peoples in Canada. In this article, we explore findings concerning informal dementia caregiving in Indigenous communities. Our research has been carried out in partnership with Indigenous communities in Ontario, Canada, over the past 4 years. Semistructured in-depth interviews were carried out with informal Indigenous caregivers (primarily family) to Indigenous people with dementia at 7 geographically and culturally diverse research sites (n = 34). We use a critical interpretive and postcolonial lens to explore common c

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Kosberg, Jordan I., Allan V. Kaufman, Louis D. Burgio, James D. Leeper, and Fei Sun. "Family Caregiving to Those With Dementia in Rural Alabama." Journal of Aging and Health 19, no. 1 (2007): 3–21. http://dx.doi.org/10.1177/0898264306293604.

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Smaling, Hanneke J. A., Karlijn J. Joling, Peter M. van de Ven, et al. "Effects of the Namaste Care Family programme on quality of life of nursing home residents with advanced dementia and on family caregiving experiences: study protocol of a cluster-randomised controlled trial." BMJ Open 8, no. 10 (2018): e025411. http://dx.doi.org/10.1136/bmjopen-2018-025411.

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IntroductionQuality of life of people with advanced dementia living in nursing homes is often suboptimal. Family caregivers can feel frustrated with limited contact with their relatives, which results in visits that are perceived as stressful and not very meaningful. Few psychosocial interventions are specifically developed for people with advanced dementia, and actively involve family caregivers or volunteers. Also, interventions usually stop when it becomes difficult for people to participate. The Namaste Care Family programme aims to increase the quality of life of people with advanced deme

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Martire, Lynn M., and Martica Hall. "Dementia Caregiving: Recent Research on Negative Health Effects and the Efficacy of Caregiver Interventions." CNS Spectrums 7, no. 11 (2002): 791–96. http://dx.doi.org/10.1017/s1092852900024305.

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ABSTRACTProvision of care to an older adult with dementia is an important societal resource. This resource may also come at a high cost to informal caregivers, most of whom are family members. In this paper we provide an overview of recent research on dementia caregiving and caregiver interventions. First, we provide background information on the prevalence and costs of Alzheimer's disease and related disorders. Second, we describe the specific stressors and broader mental and physical health outcomes of dementia caregiving. Third, recent evidence of the efficacy of caregiver interventions for

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Ritchie, Louise, Anna Jack-Waugh, Elsa Sanatombi Devi, et al. "Understanding family carer experiences of advanced dementia caregiving in India: towards a vision for integrated practice." Journal of Integrated Care 28, no. 4 (2020): 337–48. http://dx.doi.org/10.1108/jica-02-2020-0006.

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PurposeMany individual and family hardships are associated with poorly understood palliative care needs arising from advanced dementia within India. The purpose of this paper is to explore the experiences of people in India affected by advanced dementia and to shape educational approaches for practitioners and the local community.Design/methodology/approachThree focus groups with family carers of people (n = 27) with advanced dementia were undertaken with local communities in South India. One focus group was carried out in English and two in the local language (Kannada) and translated to Engli

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Baker, Zachary, Eric Jutkowitz, and Joseph Gaugler. "A Systematic Review of Interventions That Reduce Family and Friend Caregiving Time." Innovation in Aging 4, Supplement_1 (2020): 350. http://dx.doi.org/10.1093/geroni/igaa057.1126.

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Abstract The decreasing number of family/friend caregivers available to help the rising number of older adults is creating a critical family care gap. For this reason, there is a growing need for interventions that reduce family/friend caregiving time. We systematically reviewed five electronic databases to identify randomized trials, case control, quasi-experimental, and cross-sectional studies that evaluated a modifiable element that could be targeted for interventions with care recipients 65+ and/or their family/friend caregivers and reported on an outcome of time spent caregiving. We exclu

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Epps, Fayron, Elizabeth Maloch, Patricia Griffiths, and Ken Hepburn. "THE IMPACT OF “TELE-SAVVY” ON THE CAREGIVING EXPERIENCE OF DEMENTIA FAMILY CAREGIVERS: QUALITATIVE FINDINGS." Innovation in Aging 3, Supplement_1 (2019): S871. http://dx.doi.org/10.1093/geroni/igz038.3196.

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Abstract Tele-Savvy is a 3-arm randomized controlled trial (RCT) of a psychoeducation intervention that equips family caregivers of people living with dementia with the knowledge and skills they need to provide care to their person, while also caring for themselves. This RCT is currently underway, with cohorts rotating through over a period of 12 months. The purpose of this presentation is to describe the effectiveness of Tele-Savvy (active) versus Healthy Living Intervention (attention control) or usual care (wait-list) on the caregiving experience among dementia family caregivers. We conduct

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Wyman, Mary, Nickolas Lambrou, Debra Miller, et al. "Perspectives on Dementia Service Use and Family Caregiving Among the Oneida Nation of Wisconsin." Innovation in Aging 4, Supplement_1 (2020): 710. http://dx.doi.org/10.1093/geroni/igaa057.2498.

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Abstract Prevalence of dementia among American Indian/Alaska Natives (AI/AN) is higher than in white populations, and AI/AN communities experience dementia care service gaps. This study explored perspectives within AI/AN communities regarding dementia, the family caregiver role, and home and community-based service use. Using tenets of Community-Based Participatory Research, qualitative interviews and a brief survey were conducted with 22 members of the Oneida Nation of Wisconsin (mean age 71 years, 73% female). Of the sample, 63.6% identified as a past or current family caregiver for a loved

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Prieto, Lucas R., Fei Sun, Wenwu Zhang, and Anastasia Kononova. "TECHNOLOGY USE IN RURAL DEMENTIA CARE: PERSPECTIVES FROM FAMILY CAREGIVERS, PWD, AND SERVICE PROFESSIONALS." Innovation in Aging 3, Supplement_1 (2019): S860. http://dx.doi.org/10.1093/geroni/igz038.3161.

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Abstract Purpose: The use of technology in dementia care has shown promising benefits for both people living with dementia and their family caregivers, however, little is known regarding how technology is used among families affected by dementia who reside in rural communities. The purpose of this study was to explore technology use and barriers among people living with dementia, family caregivers, and service professionals who live in rural areas of Michigan. Methods: This study was based upon focus group data from six groups of family caregivers (n=32); one group of people living with early

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Hwang, Yeji, LaShauna M. Connell, Anjali R. Rajpara, and Nancy A. Hodgson. "Impact of COVID-19 on Dementia Caregivers and Factors Associated With their Anxiety Symptoms." American Journal of Alzheimer's Disease & Other Dementiasr 36 (January 1, 2021): 153331752110087. http://dx.doi.org/10.1177/15333175211008768.

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Little is known about the family experience of caregiving for persons living with dementia (PLWD) at home during the COVID-19 pandemic. The purpose of this study was to examine the influence of COVID-19 on concerns of current family caregivers of PLWD. Study participants were recruited from the parent study, Healthy Patterns Clinical Trial (NCT03682185). Data was collected from 34 caregivers via semi-structured telephone interviews. Over 70% of the study participants reported worrying about spreading COVID-19 to the PLWD, 41% reported they had taken on additional caregiving duties for others i

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Sherrell, Kathleen, Kathleen C. Buckwalter, and Darby Morhardt. "Negotiating Family Relationships: Dementia Care as a Midlife Developmental Task." Families in Society: The Journal of Contemporary Social Services 82, no. 4 (2001): 383–92. http://dx.doi.org/10.1606/1044-3894.188.

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This article is based on interviews with a 44-year-old woman who exemplified the concepts of filial anxiety and filial maturity. These two concepts were initially defined by Blenkner in 1965, but more recently they were developed into a conceptual framework for understanding adult child caregiving responsibilities. The process of becoming “filially mature” is one of grieving, mourning, and letting go of previously secure rules and regulations about relationships with parents. This adds to a previously mandated imperative of developmental tasks that one must face at midlife (e.g. dealing with m

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Ihara, Emily, Catherine Tompkins, William Kennedy, Rhea Vance-Cheng, Bianca Kwan, and Kendall Barrett. "Emotional Experiences of Dementia Caregiving Transitions." Innovation in Aging 4, Supplement_1 (2020): 72. http://dx.doi.org/10.1093/geroni/igaa057.236.

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Abstract Research indicates that family caregivers of individuals living with dementia are at risk for high levels of stress, depression, physical health declines, and illness. The health and well-being of family caregivers is critically important to a long-term care system that is dependent on them to continue their caregiving role. In-depth individual and focus group interviews of 16 dementia caregivers were conducted to explore the emotional experiences of caregiving stress during transitions of individuals living with dementia to a higher level of care. Data were transcribed verbatim, chec

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Cohen, Carole A., Dorothy Pringle, and Linda LeDuc. "Dementia Caregiving: The Role of the Primary Care Physician." Canadian Journal of Neurological Sciences / Journal Canadien des Sciences Neurologiques 28, S1 (2001): S72—S76. http://dx.doi.org/10.1017/s0317167100001232.

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Background:Family and friends play an important role in caring for individuals with dementia living in the community. In preparation for the Canadian Consensus Conference on Dementia held in Montreal, Canada in February 1998, the subject of dementia caregiving was reviewed in order to provide primary care physicians with some guidelines for their practice. The review was updated in June 2000 in preparation for this article.Method:Pertinent English-language publications and resources from the Alzheimer Society of Canada were reviewed from 1985 onwards. Findings related to the consequences of ca

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Abe, Koji. "A Pilot Study of the Effects of Formal Service on Japanese Family Caregivers’ Daily Fluctuation of Stress." Innovation in Aging 4, Supplement_1 (2020): 355–56. http://dx.doi.org/10.1093/geroni/igaa057.1144.

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Abstract Purpose: Recent studies report daily fluctuations in stress among family caregivers of older individuals with dementia. Several studies focused on daily stressors or behavioral and psychological symptoms of dementia and use of adult day services. Most previous studies on daily fluctuations of caregivers’ stress have used a daily diary approach. This approach involves creating multiple daily reports, making it possible to examine between-person differences and within-person processes of change. However, only few studies used this approach for family caregivers in Asian countries. There

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Macleod, Ashley, Gemma Tatangelo, Marita McCabe, and Emily You. "“There isn't an easy way of finding the help that's available.” Barriers and facilitators of service use among dementia family caregivers: a qualitative study." International Psychogeriatrics 29, no. 5 (2017): 765–76. http://dx.doi.org/10.1017/s1041610216002532.

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ABSTRACTBackground:Family caregivers of people with dementia have significant unmet needs in regard to their caregiving role. Despite this, they are reluctant to utilize services to reduce their burden. The aim of this study was to examine the barriers and facilitators of service use among family caregivers of people with dementia.Method:Semi-structured interviews were conducted with 24 family caregivers of community-dwelling people with dementia. Of these, 12 were partner caregivers (4 men, 8 women) and 12 were offspring caregivers (2 men, 10 women). The interviews were transcribed and analyz

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Perion, Jennifer, April Ames, and Victoria Steiner. "TASKS AND EDUCATION RESOURCES OF ADOLESCENTS WHO ASSIST WITH CAREGIVING FOR A FAMILY MEMBER WITH DEMENTIA." Innovation in Aging 3, Supplement_1 (2019): S466. http://dx.doi.org/10.1093/geroni/igz038.1740.

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Abstract An abundance of research involving adults who care for family members with dementia has guided the creation of supportive programs/services. Much less is known about adolescents who are dementia caregivers. This descriptive secondary analysis utilized data collected during a qualitative examination into the psychological well-being of adolescent dementia caregivers. Eleven adolescent/adult dyads who provided dementia care for a family member completed surveys prior to the adolescents’ participation in focus groups. Five male and six female adolescents ages 12 to 17 and eleven female a

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Elmståhl, Sölve, Ingegerd Stenberg, Lena Annerstedt, and Bengt Ingvad. "Behavioral Disturbances and Pharmacological Treatment of Patients With Dementia in Family Caregiving: A 2-Year Follow-Up." International Psychogeriatrics 10, no. 3 (1998): 239–52. http://dx.doi.org/10.1017/s1041610298005353.

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Behavioral disturbances are common in dementia. Polypharmacy due to progression of disease and fluctuation of symptoms among patients might increase risk of overtreatment and/or undertreatment. Drug prescription habits were studied in relationship to symptoms of dementia after relocation of patients to group-living care units (GC). Seventy-six demented patients (mean age 81 years) were assessed before, 12 months after, and 24 months after relocation to GC. Vascular dementia was found in 47%, Alzheimer's dementia in 46%, and other dementias in 7%. Medications, regular or as required, were recor

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Manthorpe, Jill, Kritika Samsi, and Joan Rapaport. "When the profession becomes personal: dementia care practitioners as family caregivers." International Psychogeriatrics 24, no. 6 (2012): 902–10. http://dx.doi.org/10.1017/s1041610211002882.

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ABSTRACTBackground: Little is known about the impact of caring experience on the practice of dementia care professionals. Few research studies covering dementia practice ask about personal experiences of providing care or having a family member with dementia. In England and Wales, the Mental Capacity Act (MCA) 2005 provided a new legal framework for planning and decision-making in the event of possible loss of capacity. Professional activities in this area include advice and assistance with arranging proxy decision-making, establishing wishes, and advance decisions. The aim of this paper is to

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Cho, Jinmyoung, and Alan B. Stevens. "SUCCESSES IN THE TRANSLATION OF CAREGIVER INTERVENTIONS IN COMMUNITY-BASED ORGANIZATIONS AND HEALTH CARE SYSTEMS." Innovation in Aging 3, Supplement_1 (2019): S439—S440. http://dx.doi.org/10.1093/geroni/igz038.1649.

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Abstract Family caregiving of an older adult has become an essential element of the U.S. health care system, with 83 percent of long-term care provided to older adults coming from family members or other unpaid helpers. With the amount and type of care provided by families expected to increase, caregiving demands should be coupled with community and health care systems-based supports. While scientific research has demonstrated the value of providing education, skills training and support to family caregivers, health care and social service providers do not systematically include these interven

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George, Nika R., and Ann M. Steffen. "Predicting perceived medication-related hassles in dementia family caregivers." Dementia 16, no. 6 (2015): 797–810. http://dx.doi.org/10.1177/1471301215618570.

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Objective This study examined predictors of medication administration hassles reported by intergenerational dementia family caregivers. Methods A sample of 53 women who aided a cognitively impaired older adult with healthcare and who identified as inter-generational caregivers provided self-report medication management and psychosocial data. Results Hierarchical multiple regression analyses revealed that six independent variables hypothesized for this model, the total number of prescription medications managed by caregivers, educational attainment, care-recipient functional impairment, care-re

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Basu, Rashmita. "Dementia Caregiving, Care Recipient Health, and Financial Burdens." Innovation in Aging 4, Supplement_1 (2020): 56. http://dx.doi.org/10.1093/geroni/igaa057.183.

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Abstract Objective: While about 75% of people with ADRD receive care informally by their family members, relatively little is known about the effect of the quality of caregiving on maintaining carerecipient’s health and financial burden of out-of-pocket (OOP) healthcare costs. The goal of this study is to examine the quality of caregiving on the out-of-pocket healthcare costs among ADRD patients and if caregiving prevents deterioration of physical health of carerecipients. Data and Sample: We used a nationally representative sample of people diagnosed with ADRD from the Aging Demographic and M

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Werner, Nicole, Barbara Stanislawski, Katherine Marx, et al. "Getting what they need when they need it." Applied Clinical Informatics 26, no. 01 (2017): 191–205. http://dx.doi.org/10.4338/aci-2016-07-ra-0122.

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SummaryBackground: Consumer health informatics (CHI) such as web-based applications may provide the platform for enabling the over 15 million family caregivers of patients with Alzheimer’s Disease or related dementias the information they need when they need it to support behavioral symptom management. However, for CHI to be successful, it is necessary that it be designed to meet the specific information needs of family caregivers in the context in which caregiving occurs. A sociotechnical systems approach to CHI design can help to understand the contextual complexities of family caregiving an

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Ahmad, Menal, Jennifer van den Broeke, Sawitri Saharso, and Evelien Tonkens. "Persons With a Migration Background Caring for a Family Member With Dementia: Challenges to Shared Care." Gerontologist 60, no. 2 (2019): 340–49. http://dx.doi.org/10.1093/geront/gnz161.

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Abstract Background and Objectives By shedding light on the reasons why persons with a migration background (PwM) may take up the role of family caregiver of a person with dementia, and how this relates to gender norms, we aim to elucidate cultural and social dynamics that impede care sharing. Research Design and Methods A qualitative study of 12 PwM who provide care, or have recently provided care, for a family member with dementia was conducted through semi-structured interviews. Identified themes and patterns were analyzed with the help of Hochschild’s interpretive framework of framing and

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Bond, John. "The Politics of Caregiving: The Professionalisation of Informal Care." Ageing and Society 12, no. 1 (1992): 5–21. http://dx.doi.org/10.1017/s0144686x00004645.

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ABSTRACTThis article reviews some of the literature on caregiving from social policy and on professionalisation from sociology. The context of the article is the care of dementia sufferers with particular reference to the role of family and other informal caregivers. The theoretical contributions on informal and formal caregiving have been dominated by the gender order and the professional order to the detriment of other aspects of structure. In the light of these theoretical contributions the article explores the inherent contradiction in society's desire to provide care to dementia sufferers

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