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Kirk, C., and Jean Croce Hemphill. "Family Centered Care for the Homeless." Digital Commons @ East Tennessee State University, 1992. https://dc.etsu.edu/etsu-works/7599.
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Pollock-Robinson, M. Catherine. "Family-centered care, patient-centered care, and culturally competent care common themes and background meanings /." Pullman, Wash. : Washington State University, 2009. http://www.dissertations.wsu.edu/Thesis/Spring2009/m_pollockrobinson_042409.pdf.
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Blackwelder, Reid B. "Patient-Centered Care." Digital Commons @ East Tennessee State University, 2010. https://dc.etsu.edu/etsu-works/6982.
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Bloch, Elise M. "Occupational therapists' attitudes toward family-centered care." FIU Digital Commons, 2004. http://digitalcommons.fiu.edu/etd/2016.
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The purpose of this study was to examine pediatric occupational therapists attitudes towards family-centered care. Specific attributes identified by the literature (professional characteristics, educational experiences and organizational culture) were investigated to determine their influence on these attitudes. Study participants were 250 pediatric occupational therapists who were randomly selected from the American Occupational Therapy Association special interest sections.
Participants received a mail packet with three instruments to complete and mail back within 2 weeks. The instruments were (a) the Professional Attitude Scale (b) the Professional Characteristics Questionnaire, and (c) the Family-Centered Program Rating Scale. There was a 50% return rate. Data analysis was conducted in SPSS using descriptive statistics, correlations and regression analysis.
The analysis showed that pediatric occupational therapists working in various practice settings demonstrate favorable attitudes toward family-centered care as measured by the Professional Attitude Scale. There was no correlation between professional characteristics and educational experiences to therapists' attitudes. A moderate correlation (r=.368, p
These study findings suggest that organizational culture has some influence on occupational therapists attitudes toward family-centered care (R2 =.16). These findings suggest educators should consider families as valuable resources when considering program planning in family-centered care at preservice and workplace settings.
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MacKay, Lyndsay Jerusha, and University of Lethbridge Faculty of Health Sciences. "Exploring family-centered care among pediatric oncology nurses." Thesis, Lethbridge, Alta. : University of Lethbridge, Faculty of Health Sciences, c2009, 2009. http://hdl.handle.net/10133/2483.
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Family-centered care (FCC) is important within the practice of pediatric oncology nurses. Such nurses face challenges and barriers when attempting to provide FCC. The purpose of this study was to understand the experiences of pediatric oncology nurses in relation to FCC; identify how pediatric oncology nurses implemented FCC into their practice; identify what facilitated and enabled pediatric oncology nurses to implement FCC; and discern the barriers and challenges that were present in their setting when implementing FCC. A qualitative approach utilizing person-centered interviewing was used to collect data. Nurses (N=20) from the Alberta Children‟s Hospital were recruited through purposeful convenience sampling and were then interviewed. Five major themes were identified from the data set: ACH support f FCC, How participants defined FCC, Establishing FCC, Enhancing FCC, and Barriers and Challenges to providing FCC. Recommendations for future research and implications for practice and education are offered.xii, 191 leaves ; 29 cm
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Blackwelder, Reid B. "Patient-Centered Care: Transforming Our Practices." Digital Commons @ East Tennessee State University, 2007. https://dc.etsu.edu/etsu-works/6984.
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Rose, Douglas, Leonard Brian Cross, and Ivy A. Click. "The Patient-Centered Care Committee (PC3)." Digital Commons @ East Tennessee State University, 2013. https://dc.etsu.edu/etsu-works/6396.
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Mayo-Bruinsma, Liesha. "Family-centered Care Delivery: Comparing Models of Primary Care Service Delivery in Ontario." Thèse, Université d'Ottawa / University of Ottawa, 2011. http://hdl.handle.net/10393/19952.
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Family-centered care (FCC) focuses on considering the family in planning/implementing care and is associated with increased patient satisfaction. Little is known about factors that influence FCC. Using linear mixed modeling and Generalized Estimating Equations to analyze data from a cross-sectional survey of primary care practices in Ontario, this study sought to determine whether models of primary care service delivery differ in their provision of FCC and to identify characteristics of primary care practices associated with FCC.
Patient-reported scores of FCC were high, but did not differ significantly among primary care models. After accounting for patient characteristics, practice characteristics were not significantly associated with patient-reported FCC. Provider-reported scores of FCC were significantly higher in Community Health Centres than in Family Health Networks. Higher numbers of nurse practitioners and clinical services on site were associated with higher FCC scores but scores decreased as the number of family physicians at a site increased.
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Jagani, Tasnim-e.-zehra. "Barriers in the implementation of family-centered care during pediatric hospitalizations." Honors in the Major Thesis, University of Central Florida, 2010. http://digital.library.ucf.edu/cdm/ref/collection/ETH/id/1429.
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This item is only available in print in the UCF Libraries. If this is your Honors Thesis, you can help us make it available online for use by researchers around the world by following the instructions on the distribution consent form at http://library.ucf.edu/Systems/DigitalInitiatives/DigitalCollections/InternetDistributionConsentAgreementForm.pdf You may also contact the project coordinator, Kerri Bottorff, at kerri.bottorff@ucf.edu for more information.Bachelors
Nursing
Nursing
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Kirk, C., and Jean Croce Hemphill. "Outcomes of Family Centered Care in a Nurse Managed Homeless Clinic." Digital Commons @ East Tennessee State University, 1994. https://dc.etsu.edu/etsu-works/7594.
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Hemphill, Jean Croce, and C. Kirk. "Outcomes of Family Centered Care in a Nurse Managed Homeless Clinic." Digital Commons @ East Tennessee State University, 1993. https://dc.etsu.edu/etsu-works/7597.
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Marti-Morales, Madeline. "Care coordination, family-centered care and functional ability in children with special health care needs in the United States." ScholarWorks, 2011. https://scholarworks.waldenu.edu/dissertations/870.
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Children with special health care needs (CSHCN) generally have physical, mental, or emotional conditions that require a broader range and greater quantity of health and related services compared to typical children. Care coordination (CC) and family-centered care (FCC) are necessary in the quality of health care for CSHCN. A gap exists in the literature regarding the impact of CC and FCC on children's functional ability (FA). Previous researchers have focused on met and unmet health care needs, but not on health outcomes or functionality. The purpose of this study was to determine if there was an association between CC, FCC, and FA in CSHCN. The design of this study was a secondary analysis of data from the 2005--2006 National Survey of CSHCN. The study was guided by an adapted socioecological multilevel conceptual framework. Statistical methods included univariate, bivariate, and multiple logistic regression analysis. Results indicated that CC was associated with FA in CSHCN. CSHCN that did not receive CC had a 53% increased risk (OR =1.53, 95%CI 1.21--1.94, p < 0.001) for a limitation in FA compared to CSHCN that received CC, controlling for age, gender, number of conditions, household poverty level, parental educational level, and health insurance. FCC was not associated with a limitation in FA in CSHCN ( p = 0.61). Findings from this study were consistent with the socioecological multilevel framework and the literature on care coordination. This study contributed to positive social change by providing information that can be used by public health officials, health care providers and policy makers in developing policies to assure that care coordination is provided to CSHCN and their families in order to improve their health outcomes and functionality.
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Reep, Jennifer Kebeh. "Family Caregiving beyond Institution Doors." Miami University / OhioLINK, 2016. http://rave.ohiolink.edu/etdc/view?acc_num=miami1461910478.
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Khan, Tasrina. "Staff and Family Perspectives Regarding Person Centered Care for Adults With Intellectual Disability." ScholarWorks, 2019. https://scholarworks.waldenu.edu/dissertations/6593.
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Individuals with intellectual disabilities often require additional support in performing daily activities as compared to individuals without intellectual disabilities. New York's Office for Developmental Disabilities developed the eight hallmarks of person centered planning to help individuals with intellectual disabilities understand the options available to them regarding care and support and to advocate for themselves and their rights. Researchers have yet to articulate how guardians and professional care providers of individuals with intellectual disabilities experience person centered planning in day habilitation. Thus, using a qualitative phenomenological approach, 5 direct care staff and 5 guardians of individuals with intellectual disabilities were interviewed to understand their perspectives on the 8 hallmarks of person centered planning. The conceptual framework of this study was Piaget's theory of constructivism and Bandura's theory of social learning. I used the Colaizzi method for phenomenological analysis. Following that I used the NVivo 11 qualitative data analysis software package for finding common themes. The results of this study showed that guardians and professional care providers desired more communication and training about the 8 hallmarks of person centered planning to provide the greatest benefit to individuals with intellectual disabilities. Implications for further training of staff and families, and tracking the outcomes of the eight hallmarks of person centered planning for quality of life in clients could result in policy changes for the frame of care offered to people with intellectual disability.
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Baning, Karla M. "Outcomes of a Comprehensive Patient and Family-Centered Program in an Adult Intensive Care Unit." Diss., The University of Arizona, 2012. http://hdl.handle.net/10150/228151.
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Background: Intensive care unit (ICU) admission is often life threatening, and may cause severe anxiety within the family system. Anxiety can impair decision-making ability. A majority of ICU patients cannot direct their own treatment; therefore, family members are often required to make major decisions under stressful conditions. Patient and family-centered care (PCFF) has been shown to reduce anxiety, improve decision-making, and improve outcomes for patients and their families. However, no published study has examined outcomes of a comprehensive PFCC program in the ICU. Purpose: The study purposes were to evaluate a comprehensive program to improve PFCC within an adult ICU, and to determine the usefulness of specific PFCC interventions. Methods: An exploratory comparative design was used. Data from ICU patients' family members and ICU nurses, before and after implementation of a PFCC program, were compared using the 30-item combined Critical Care Family Needs Inventory/Needs Met Inventory (CCFNI/NMI). Convenience samples of 49 adult family members of patients admitted to the ICU for at least 36 hours and 85 nurses employed in the ICU full-time for at least six months were recruited from an adult ICU in a 337-bed tertiary care hospital in the southwestern region of the United States. The program was conducted in 3 stages: baseline assessment, program development and implementation, and evaluation. Results: After the PFCC implementation statistically significant differences between nurses' and family members' responses were reported for18 items on the CCFNI and 20 items on the NMI. Five of the10 items family members ranked highest at baseline remained in the top 10 after PFCC implementation, and 3 needs ranked lowest at baseline moved up to the top 10. Conclusions: The results show that the nurses' education was likely the most efficacious program intervention. There may be a hierarchy of needs specific to ICU patients' family members, similar to those described by Maslow. Further study is needed to determine the effectiveness of the CCFNI/NIM in measuring outcomes before and after a PFCC intervention.
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Sheets, Anna M. "Use of a Shared Decision-Making Aid in Pediatric Autism Spectrum Disorder." Xavier University / OhioLINK, 2018. http://rave.ohiolink.edu/etdc/view?acc_num=xavier1525290115971692.
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Fults, Rachel M. "A Qualitative Examination of the Barriers and Facilitators of Family Centered Care and Service Provision in the Natural Environment." Scholarly Repository, 2011. http://scholarlyrepository.miami.edu/oa_dissertations/569.
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Although family centered care and natural environment services have been heralded as the ideal model in early childhood intervention and have been mandated by Part C of IDEA, research demonstrates that family centered principles are still not adhered to in many early childhood programs. Previous research in this area is lacking with regard to the limited diversity of participants (i.e., white, middle-class woman) and perspectives (i.e., childcare providers). This dissertation reports the results of a study that took into account perspectives of multiple stakeholders in early intervention including families, service providers, and program directors in order to understand the full range of difficulties and supports experienced when providing family centered care in the natural environment. This qualitative study used grounded theory methods to analyze information gathered through semi-structured interviews to elaborate the barriers and facilitators experienced in family centered care and natural environment services. The core theme identified in the data was the tension between the resources available to early intervention and the ideals of best practice. This core finding was supported by three themes regarding facilitators and barriers to service provision. Two of these, the need for theoretical buy-in to the model and the challenges of negotiating roles in family centered care, emerged as either facilitators or barriers, depending on service provider roles. The third theme was common across the data and indicated that the major barrier to natural environment services was the management of scarce resources.
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Huist, Melissa Ellen. "The Potential Benefit of Child Life Servicies for U.S. Army Soldiers and Their Families." Ohio University / OhioLINK, 2010. http://rave.ohiolink.edu/etdc/view?acc_num=ohiou1282268571.
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Ananian, Lillian Virginia. "Relationship Based Care: Exploring the Manifestations of Health as Expanding Consciousness within a Patient and Family Centered Medical Intensive Care Unit." Thesis, Boston College, 2014. http://hdl.handle.net/2345/bc-ir:103534.
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Thesis advisor: Dorothy JonesA family's unique way of being, formulated through social, economic, environmental and political factors, becomes fractured during a loved one's critical illness. Family members experience burdensome physical and emotional symptoms as they transition through the marked uncertainty endemic to high acuity illness. For some, this burden results in long term psychiatric disturbances. Assessment tools and interventions have been proposed for family members experiencing a loved one's critical illness. However, ongoing suffering suggests inherent limitations within these reductionist approaches. The need for a more encompassing disciplinary perspective is suggested. Margaret Newman's (1986, 1994, 2008) theory of Health as Expanding Consciousness (HEC) and its praxis research method was employed to explore relationship based care among intensive care unit (ICU) family members and registered nurses. HEC retains person/environmental integrity through unfolding of unitary knowledge via exploration of meaning. Additionally, its holistic perspective aligns philosophically with the belief in nursing science as the study of caring in the human health experience, endorsing both the mutuality of the nurse/client relationship and pattern recognition's capacity to inspire transformational growth. The study was performed in an eighteen bed medical ICU in the northeast region of the United States. This unit's design includes an integrated critical/palliative care model. Exploration of the study's two research questions was accomplished using the practice and research components of HEC within a sample of eight family members and six registered nurses. Results demonstrated family members' capacity to achieve consciousness expansion within the context of a loved one's critical illness. Registered nurses revealed their ability to steadfastly partner with both patients and families. Repetitive elements distinguished as thematic commonalities were recognized among both family member and registered nurse participants. Additionally, thematic integration between family members and registered nurses was appreciated. HEC was found to offer unique insights into caring relationships between ICU family members and registered nurses
Thesis (PhD) — Boston College, 2014
Submitted to: Boston College. Connell School of Nursing
Discipline: Nursing
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Stadd, Karen. "Initiating Kangaroo Care in the Neonatal Intensive Care Unit." ScholarWorks, 2018. https://scholarworks.waldenu.edu/dissertations/5267.
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Kangaroo care (KC) is a cost-efficient method to increase infant-parent bonding and neonatal health outcomes worldwide. Despite evidence supporting KC in critically ill infants, nursing perceptions regarding patient safety and interrupted work flow continued to impede practice in the local high-tech neonatal intensive care unit (NICU). Their current policy failed to address the 2-person transfer method recommended for safe practice. In addition, both staff and parents lacked training and education regarding the benefits and feasibility of KC. This doctoral project aimed to decrease practice barriers and promote earlier and more frequent KC by developing and integrating an evidence-based clinical pathway within a multifaceted champion-based simulated educational training program for NICU staff and parents. Published outcomes and generated organizational data for program synthesis connected the gap in practice. Kolcaba's comfort theory served as the guiding framework to ensure a partnership in care. This quasi-experimental quantitative study used the generalized liner model for data analysis. Study findings indicated that KC occurred 2.4 more times after the intervention compared to before (p = 0.001). Descriptive data revealed that KC episodes for intubated patients nearly doubled after implementation (11.1% from 6.2%). Post-survey scores for nursing knowledge and comfort level also improved after the intervention. Although earlier KC practice was non-conclusive (p = 0.082), future trials should control groups for day of life since admission. Disseminating the KC pathway can have a positive social change on family-centered care by increasing NICU nurses' knowledge, comfort, and adoption of this evidence-based practice as an expected routine standard of care.
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Magnusson, Mira. "Nurses’ experiences of involving family members in home-based care : A qualitative study with nurses working in home-based care provided out of consultorios in Havana, Cuba." Thesis, Ersta Sköndal högskola, Institutionen för vårdvetenskap, 2015. http://urn.kb.se/resolve?urn=urn:nbn:se:esh:diva-4632.
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Background: In Havana, Cuba, they have established a great availability of health centers that work close to the patients and their families, both geographically and socially. Family-centered nursing is something that is sought within the health care in the Western world. Numerous studies have shown that family-centered nursing increases patient safety and patient satisfaction and to provide psychological support to family members has shown to contribute to a better well-being to both them and the patient. Aim: To describe nurses’ experiences of involving family members in home-based care provided through consultorios in Havana, Cuba. Method: A qualitative study was completed with semi-structured interviews with five nurses that was currently working or had been working at consultorios in Havana, Cuba. Analysis was done according to qualitative content analysis based on the approach presented by Graneheim and Lundman. Results: The data resulted in two main-themes. The family members were presented as informants to the nurses, psychological support to the patients and as an asset to the nurse. The nurses further explained the importance of seeing the whole picture of their patient’s situation, how they educate family members to be involved in the care and how they support the family members psychologically. Discussion: The nurses’ experience of family members' role and their work to involve them was discussed in relation to previous research and the concept of family-centered care as presented by Benzein, Hagberg and Saveman.Bakgrund: I Havanna, Kuba, har de upprättat en stor tillgänglighet av sjukvårdsinstanser och hälsocenter som arbetar nära patienterna och deras familjer, både geografiskt och socialt, så kallade consultorios. Familjecentrerad omvårdnad är något som eftersträvas inom sjukvård i västvärlden. Ett flertal studier har visat att familjecentrerad omvårdnad ökat patientsäkerheten och patientens tillfredställelse av vården och att psykologiskt stöd för anhöriga bidrar till en bättre hälsa både för dem och patienten. Syfte: Att beskriva sjuksköterskors erfarenheter av att involvera familjemedlemmar i hemsjukvård som bedrivs utifrån consultorios i Havanna, Kuba. Metod: En kvalitativ studie med semistrukturerade intervjuer genomfördes och fem sjuksköterskor som arbetade eller har arbetat på consultorios i Havanna, Kuba, deltog. Resultatet bearbetades utifrån kvalitativ innehållsanalys baserad på den strategi som beskrivits av Graneheim och Lundman. Resultat: I resultatet framkom två huvudteman. Familjemedlemmarna presenterades dels som informanter men också som en tillgång i sjuksköterskans arbete samt som ett psykologiskt stöd till patienterna. Vidare berättade sjuksköterskorna vikten av att se hela bilden av deras patienters situation, hur de utbildar familjemedlemmar i omvårdnaden och hur de stödjer familjemedlemmar psykologiskt. Diskussion: Sjuksköterskornas upplevelse av familjemedlemmars roll och deras arbete med att involvera dessa diskuterades i relation till tidigare forskning och begreppet familjecentrerad omvårdnad som det beskrivits av Benzein, Hagberg och Saveman.
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Blomqvist, Isabella, and Jeanette Albrektsson. "Att överleva sitt barn och fortsätta leva : En litteraturstudie om föräldrars erfarenheter av vård av deras palliativt sjuka barn." Thesis, Högskolan Väst, Avdelningen för omvårdnad - grundnivå, 2020. http://urn.kb.se/resolve?urn=urn:nbn:se:hv:diva-16306.
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Background: Every year, 480 families in Sweden are informed that their child is diagnosed with an incurable disease. Everyone involved is affected by the death of a child. When a familymember becomes incurably ill it affects the entire family. The family's commitment is vital in pediatric care, as the family is the child's greatest source of security. It is of great importance that the nurse who works in palliative care, has to be person oriented and family centered to meet the needs of the whole family. Aim: The aim of this study was to highlight parents’ experiences of having a child in palliative care. Method: A literature study based on 11 qualitative articles is performed. The analysis of these articles resulted in three main themes and seven sub themes. Results: Parents wanted, as far as possible, to be involved in their child’s care. They perceived a high quality of care when the care was provided with continuity and when a trustful relationship was created. A sense of security was experienced when the staff were compassionate and were able to take care of the whole family. The family also strived for a sense of normality in family life. Conclusion: Parents experienced that they were in an increased need of support from healthcare both during the palliative process but also after death. It was supportive and appreciated when the nurse encouraged the parents to take a more active role in their child’s care.Syftet med detta examensarbete var att belysa föräldrars erfarenheter av vård av sitt palliativt sjuka barn. Barn som drabbas av en obotlig sjukdom och är i behov av vård som inte längre har ett botande syfte uppgår till en procent av den palliativa vården i Sverige. Palliativ vård av barn syftar till en vård som skall lindra symtom och skapa bästa möjliga förutsättningar för en god livskvalitet för barnet med en livsavgörande sjukdom. I examensarbetes resultat påvisades att familjen var betydelsefull och väsentlig i vården av det sjuka barnet och skulle ses som en enhet. Föräldrarna till ett döende barn gick igenom en känslomässig berg- och dalbana där känslor pendlade stundvis av optimism, hopp och perioder av ångest, skuld, stress, förlust och sorg upplevdes dagligen. Att ett barn dör är onaturligt och alla involverade påverkas av den betungande situationen. Sjuksköterskan möter ofta svårigheter i att stödja familjerna i sjukdomsprocessen av det sjuka barnet. Sorgen och kampen familjen går igenom i samband med deras barns sjukdomsprocess var genomgående i resultatet. Föräldrar beskrev sina erfarenheter av livet med det sjuka barnet som utmattande både fysiskt och psykiskt. Känslomässiga behov som föräldrarna upplevde var att känna tillit till och delaktighet i vården relaterat till barnets behandling och omvårdnadsåtgärder. Detta var faktorer som ledde till en ökad trygghet för familjen. Föräldrarna känner sitt barn bäst och har det fulla ansvaret för barnet och det var därför av yttersta vikt att sjuksköterskan hade förståelse för hur stöd och kommunikation kunde påverka föräldrarna till att fortsätta känna hopp och mening i en påfrestande livssituation. För att kunna belysa föräldrars erfarenheter har en kvalitativ litteraturstudie utförts i detta examensarbete där resultatet av 11 vetenskapliga artiklar har analyserats och nyckelfynden har skapat tre teman och sju underteman. Litteraturstudien beskriver två vårdvetenskapliga begrepp, lidande och hälsa, som är centrala i omvårdnad och är relevanta för syftet. I examensarbetes diskussionsdel lyfts diskussioner kring sjuksköterskans funktion i lindrandet av föräldrars lidande kring den förväntade och upplevda förlusten av sitt barn. Hinder som kan uppstå och förhindra att föräldrars förväntningar uppfylls, könsnormer och social hållbarhet lyfts också. Diskussionen behandlar begreppen familjecentrerad vård, hälsa och lidande som genomsyrar studien.
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Hughes, LaTonya Dickerson. "The Nurse and Certified Nursing Assistant Perception of Person-Centered Care." ScholarWorks, 2019. https://scholarworks.waldenu.edu/dissertations/6585.
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Over the last decade, long-term care facilities have transitioned from institutional care models that focus on person-centered care, in which the resident is the center of the care. The purpose of this study is to explore the nurse and certified nursing assistant perception of the person-centered care services they deliver. Jean Watson's theory of human caring is the theoretical framework that guided this study. The theory focusing on the human caring experiences and person-centered care is being characterized as a caring feeling. The carative factors of Watson's theory, the fundamental concept of caring, has been associated with improved outcomes for the resident and the caregiver. Using a phenomenology research design, 3 focus groups of 15 nurses and 10 certified nursing assistants (CNA), working in a long-term care facility, were asked questions to describe their perception of person-centered care. The responses from the 25 participants were stored and organized using Nvivo. The thematic analysis revealed that the nurses and CNAs perceived person-centered care to include the caring and compassionate approach taken when care is being delivered. The participants also shared that person-centered care included involving the resident in decision making through communicating openly and developing relationships. The discussions revealed that 8 carative factors influenced their understanding, with the main factor being the creative problem-solving method for decision making. The �ndings from this study have the potential to impact positive social change at the organizational level, influencing the delivery of care within long-term care settings.
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Hooshmand, Mary A. "Comparison of Telemedicine to Traditional Face-to-Face Care for Children with Special Health Care Needs: Analysis of Cost, Caring, and Family- Centered Care, Family Cost Survey, Caring Professional Scale, Measure of Processes of Care 20-Item Scale." Scholarly Repository, 2010. http://scholarlyrepository.miami.edu/oa_dissertations/408.
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It is estimated that one out of every five household with children in the United States includes a Child with Special Health Care Needs (CSHCN). Families of CSHCN face many challenges including financial burdens beyond that of other families and difficulty accessing much needed pediatric specialty care. Telemedicine provides a potential solution or, at the least, an alternative to the traditional system of care, for health care providers and communities to address access and financial concerns of families of CSHCN. A quasi-experimental research design was used in this study to examine the differences in cost, caring, and family-centered care in relation to pediatric specialty services utilizing telemedicine technology compared to traditional face-to-face care. The study sample included a convenience sample of 222 parents/ guardians of CSHCN residing in rural, remote and medically underserved areas of Southeast Florida enrolled in the Children's Medical Services (CMS) program. The sample was comprised of two study groups: traditional (n = 110) which included families receiving traditional face-to-face pediatric specialty care; and the telemedicine group (n = 112) which included families who have received telemedicine visits along with traditional face-to-face pediatric specialty care. Measures of cost, caring, and family-centered care were obtained using three instruments including a Family Cost Survey, Caring Professional Scale (CPS), and Measure of Processes of Care- 20 Item Scale (MPOC-20). Results indicated that there were no significant differences in family costs when telemedicine was available locally compared to traditional face-to-face care in the local community. Family costs were anticipated to be significantly higher if telemedicine was not available in their communities. There were no differences in the families' perceptions of care as caring for the telemedicine and traditional groups. Results indicated significant differences between the groups in regards to family-centered care, with telemedicine group parents/ guardians reporting more positive perceptions of the system of care as family-centered compared to families receiving traditional face-to-face pediatric specialty care. These results together underscore the importance of assuring and facilitating access to pediatric specialty care for CSHCN and their families by further reducing their burdens and costs. The use of innovative systems of care such as telemedicine has promise to promote caring, family-centered systems of care in their home communities. Future research is recommended to further examine nursing roles and interventions in telemedicine programs, measurement tools, and family perceptions of systems of care across different populations.
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Ström, Sofia. "How care providers work with nursing on a rehabilitation center for children with disabilities in rural Peru : An observational study." Thesis, Röda Korsets Högskola, 2016. http://urn.kb.se/resolve?urn=urn:nbn:se:rkh:diva-2239.
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Background: In Peru it is estimated that ten percent of the population suffers from a disability. Nursing in rehabilitation setting is when the nurse aims to maximize the quality of life for a patient suffering from disability or chronic disease. Aim: The aim is to describe nursing by care providers on a rehabilitation center in rural Peru. Method: The method in this thesis is observational study with ethnographic approach. The observations is performed on a rehabilitation center in rural Peru. Result: Two themes and four sub-themes were identified from the collected data. Nursing care with including sub-themes clinical investigation and family-centered care. Mobilization and independency with including sub themes improve the chance to mobilize and promote self-management. Conclusion: The Peruvian nursing care provided through a rehabilitation center in rural Peru shows that care providers are working with very basic equipment and limited instructions about how to maximize the patient outcome with very few recourses. Education methods are adjusted to their patient group to promote family centered care. Further research: Guidelines for rehabilitation nursing should be developed for settings without high technologized equipment as well as how to maximize the patient and family outcome through family centered care with limited resources.Bakgrund: I Peru beräknas tio procent av befolkningen vara drabbad av ett funktionshinder. Rehabiliterings-omvårdnad syftar till att maximera livskvalitén för den patient som lider av ett handikapp eller en kronisk sjukdom. Syfte: Syftet är att beskriva vårdgivarens omvårdnad vid ett rehabiliteringscenter på Perus landsbygd. Metod: Metoden i denna studie är en observationsstudie med etnografisk ansats. Observationerna är utförda vid ett rehabiliteringscenter på Perus landsbygd. Resultat: Två teman och fyra sub-teman har identifierats utifrån insamlad data. Omvårdnad som inkluderar klinisk undersökning och familjecentrerad vård. Mobilisering och ökad självständighet som inkluderar ökad chans till mobilisering och främjande av egenvård. Slutsats: Den peruanska omvårdnaden som erbjuds vid ett rehabiliteringscenter på landsbygden i Peru visar att vårdgivare arbetar med väldigt basal utrustning samt begränsade instruktioner för att patienten ska kunna uppnå maximal funktion med få resurser. Undervisningsmetoder är anpassade till deras patientgrupp för att främja familje-centrerad omvårdnad. Vidare forskning: Riktlinjer för rehabiliteringsomvårdnad bör utvecklas avsett för en miljö utan högteknologisk utrustning samt beskriva hur patienter tillsammans med sin familj uppnår maximalt resultat med få resurser att tillgå.
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Boreson, Hedvig, and Lisanja Askesjö. "Nepalese nurses' experiences of the family´s importance in health care : An interview study conducted in Kathmandu, Nepal." Thesis, Ersta Sköndal högskola, Institutionen för vårdvetenskap, 2015. http://urn.kb.se/resolve?urn=urn:nbn:se:esh:diva-4929.
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Ekstam, Bodil. "Familjecentrerad omvårdnad till familjer med barn som har funktionsnedsättning." Thesis, Högskolan Dalarna, Omvårdnad, 2016. http://urn.kb.se/resolve?urn=urn:nbn:se:du-24477.
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Bakgrund: Hälsan hos barn med funktionsnedsättning är sämre än hos andra barn. Tillståndet påverkas av den familj som barnet lever i samt den omgivande miljön. Familjerna har många samarbetspartners i vård och omsorg och barnet kräver mer stöd och omvårdnad än barn i allmänhet behöver av sina föräldrar. Det är viktigt att hitta metoder som sänker påfrestningarna samt förebygger ohälsa i familjen. Syfte: Syftet med denna uppsats har varit att beskriva föräldrars, barns och vårdgivares upplevelse av familjecentrerad omvårdnad, FCC, som riktar sig till familjer som har barn med funktionsnedsättning. Metod: Litteraturöversikt valdes som metod och baseras på 13 vetenskapliga artiklar med både kvalitativ och kvantitativ ansats som analyserats. Resultat: FCC definieras i artiklarna i termer av kvalitét och tillgänglighet men även som att som förälder bli lyssnad på, få tillräckligt med tid, bli bemött med respekt, ha ett gemensamt beslutsfattande mellan föräldrar och professionella och att få information, vid behov anpassad. Genom flexibla arbetssätt som är anpassade efter barnet och familjens behov både inom sluten och öppen vård och inom habilitering, kan stress minska både i familj och hos vårdpersonal. Det finns dock grupper med funktionsnedsättning som uppfattar vården som lägre familjecentrerad än andra familjer. Slutsats: Hörnstenen i familjecentrerad omvårdnad är samarbete mellan vårdgivare och familj vilket främjas av att vårdgivare tar hänsyn till och respekterar familjens kultur och bakgrund. Artiklarna i studien visar på att familjecentrerad omvårdnad ger stöd för att vara en framgångsfaktor inom vården. FCC främjar barnets och familjens hälsa vilket gynnar samhällsekonomin på sikt.Background: The health of children with disabilities is worse than other children. The state is influenced by the family that the child live in and the surrounding environment. The families have many partners in health care and the child needs more support and care than children in general need of their parents. It is important to find ways to reduce stress and prevent illness in the family. Purpose: The purpose of this study was to describe parents, children and healthcare experience of family-centered care, the FCC, which is aimed at families who have children with disabilities. Method: Literature review was elected as a method and is based on 16 scientific articles with both qualitative and quantitative approach analyzed. Results: The FCC defined in the Articles in terms of quality and availability, but also as a parent to be listened to, given enough time, be treated with respect, have a joint decision between parents and professionals and to get information, if necessary, adapted. Through flexible approaches that are tailored to the child and family's needs both in inpatient and outpatient care, and in rehabilitation, stress can reduce both the family and the health professionals. However, there are groups with disabilities who perceive health care as a less family-centered than other families. Conclusion: The cornerstone of family-centered care is the collaboration between caregivers and family, which is promoted by the health care provider will take into account and respect the family's culture and background. Articles in the study shows that family-centered care provides support to be a success factor in health care. FCC promotes child and family health, which benefits the economy in the long term.
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Rosdahl, Johanna, Pernilla Agmyr, and Jenny Örnstedt. "Sjuksköterskors erfarenheter av familjecentrerad neonatalvård - en pilotstudie." Thesis, Högskolan i Halmstad, Sektionen för hälsa och samhälle (HOS), 2014. http://urn.kb.se/resolve?urn=urn:nbn:se:hh:diva-24410.
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På sjukhus i Sverige arbetar sjuksköterskor på neonatalavdelningar med att ta hand om de allra minsta barnen och deras speciella behov. Barnen är i behov av specialistsjukvård, ibland intensivvårdskrävande med högteknologisk utrustning, samtidigt som de behöver påbörja den viktiga anknytningen till sin familj. Sjuksköterskor behöver specialkompetens för att arbeta i den krävande vårdmiljön, där de skall ta hand om ett vårdkrävande barn samt familjen till barnet och arbeta familjecentrerat. Syftet med studien var att belysa sjuksköterskors erfarenhet av att arbeta med familjecentrerad neonatalvård. Fokusgruppsintervjuer genomfördes som senare analyserades med kvalitativ innehållsanalys. Resultatet presenteras i fyra kategorier ” familjen i centrum”, ”sjuksköterskans roll”, ”sjuksköterskans inställning” och ”miljöns betydelse”. Av resultatet framkom att familjecentrerad neonatalvård ställer höga krav på personalen som arbetar där samt att miljöns utformning är av betydelse. Personalen måste vara lyhörd för såväl barnets behov som föräldrarnas, i en vårdmiljö som inte alltid är ändamålsenligt utformad. I framtida utbyggnad av familjecentrerad neonatalvård är det önskvärt att ta del av den erfarenhet som finns bland så väl sjuksköterskor som föräldrar för att få framtidens familjecentrerade neonatalvård så god som möjligt.At hospitals in Sweden, nurses are working in neonatal units caring for the youngest infants and their special needs. The infants are in need of specialist care, sometimes even intensive care with high technology equipment, at the same time the infants needs to start improve the important connection to his family. The nurses needs specialized skills to be able to work in these demanding healthcare environment. They are supposed to take care of infants with special needs, care for the family and do this with focus on family centered care. The aim of this study was to illuminate nurses ‘experiences of working at neonatal care units engaged to family centered care. The interviews were conducted in focus groups. They were subsequently analyzed by qualitative content analysis. The results are presented in four categories “the family in the center”, “nurses´ role”, “nurses´ attitude” and “importance of the environment”. The result showed that it requires a lot from the nurses, but also from the environment that prevails. The nurses need to be responsive as well to the needs of the infant as to the family’s needs, in an environment which is not always made for its intended use. In future expansion of family centered neonatal care units, it´s desirable to take advantage of the experiences that exists among nurses as well as parents, to make the future family centered neonatal care units as good as possible.
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Larocque, Catherine. "Are We on the Same Page About Skin-to-Skin Care? A Descriptive Correlational Study Exploring Skin-to-Skin Care for Postoperative NICU Infants." Thesis, Université d'Ottawa / University of Ottawa, 2020. http://hdl.handle.net/10393/41079.
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Family-centered care (FCC) is considered the gold standard for care delivery in the Neonatal Intensive Care Unit (NICU). However, there are challenges with the implementation of FCC in practice and there is limited literature about how to tailor this approach for specialized NICU populations.
To explore FCC for surgical neonates in the NICU, the concept was explored using Roger’s evolutionary concept analysis. Results illustrate that FCC in the NICU is a philosophy or care, rather than a set of interventions. The subsequent cross-sectional descriptive exploratory study showed that the surgical infants in our sample (n=11) received a limited amount of skin-to-skin care (median 0 mins/day) and parents reported challenges to being involved in their infant’s care.
This thesis supports the challenges with the implementation of FCC in practice and both the need to consider multiple perspectives and the need for broader systemic change in order to support a FCC philosophy.
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Melis, Ellen Helena. "Understanding the Context and Social Processes that Shape Person- and Family-Centered Culture in Long-Term Care: The Pivotal Role of Personal Support Workers." Antioch University / OhioLINK, 2020. http://rave.ohiolink.edu/etdc/view?acc_num=antioch1587396741841116.
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Steiner, Adrienne Claire. "The Effect of Family Centered Music Therapy Sessions on Relaxation States of Informal Caregivers of Hospice and Palliative Care Patients." UKnowledge, 2014. http://uknowledge.uky.edu/music_etds/33.
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Advances in healthcare and shifts toward patient and family centered care have allowed healthcare professionals to focus on the entirety of a patient and what affects his/her health. In noting such changes, and in consideration of what affects quality of life, findings in the literature address the physiological and physiological differences between those who are caregivers versus those who are not caregivers. This study investigated the relaxation state of those who were considered informal caregivers of hospice and palliative patients in an acute hospitalized setting.
A family centered music therapy session was conducted utilizing a music-‐ assisted relaxation intervention incorporating a loving-‐kindness meditation. A total of 29 participants, 15 males and 13 females, took part in the study and 28 participants were included in data analysis. Findings from the study suggest an increase in relaxation scores after taking part in the brief intervention. Participant survey responses indicated participants’ agreement with feeling more relaxed and supported as a caregiver after the intervention. Survey results also indicated participants’ willingness to try some relaxation techniques from the study intervention on their own.
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Hasselfeld, Karolyn A. "A Caregiver's Guide to Developing A Personalized Activity for a Loved One Living with Dementia." University of Cincinnati / OhioLINK, 2021. http://rave.ohiolink.edu/etdc/view?acc_num=ucin1623165808180786.
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NAGATA, Masako, Mariko IWAYAMA, Saori YAMASHITA, 雅子 永田, 真理子 岩山, and 沙織 山下. "低出生体重児の超早期介入に関する研究の展望." 名古屋大学大学院教育発達科学研究科, 2013. http://hdl.handle.net/2237/19531.
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Martinez, Mariel de la Paz. "A Family-Centered Intervention to Improve Palliative Care Communication for Pediactric Patients Diagnosed with Cancer: Implementation of the My Wish Policy." Thesis, The University of Arizona, 2012. http://hdl.handle.net/10150/271611.
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The purpose of this project is to propose implementation and evaluation of a best practice policy to initiate a continuous conversation about palliative care with pediatric patients diagnosed with cancer, their parents, and the medical team. From a thorough review of recent, relevant literature, strong evidence supports the need to increase communication efforts between pediatric patients, their parents, and the medical team when it comes to discussing palliative care. There is no existing protocol or defined guidelines for implementing a palliative care discussion with pediatric oncologic patients. The proposed policy guidelines focus on exacting a time and protocol for initiating palliative care discussions with this population. An implementation plan and evaluation plan are proposed in accordance with the diffusion of innovation theory.
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Bark, Malin, and Annelie Kilersjö. "Närståendes upplevelse av inskrivningssamtal till palliativt team." Thesis, Sophiahemmet Högskola, 2017. http://urn.kb.se/resolve?urn=urn:nbn:se:shh:diva-2725.
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Inom palliativ vård är stödet till närstående en av fyra hörnstenar som möjliggör god livskvalitet för patient och närstående. Förutom att stödja patienten behöver närstående även hantera sin egen sorg vilket gör att närstående både ger och behöver stöd. Familjefokuserad omvårdnad är ett förhållningssätt som utgår ifrån familjens betydelse för patientens upplevelse av sjukdom och ohälsa. Vid palliativa teams första möte, inskrivningssamtal, kartläggs patientens och närståendes situation och behov samt, är tänkt att skapa förutsättning för en trygg och tillitsfull vårdrelation. Syftet med studien var att undersöka närståendes upplevelse av inskrivningssamtalet i palliativt team då det inom berörda team inte har skett någon utvärdering av inskrivningssamtalet. Metoden som användes var semistrukturerade intervjuer av närstående som nyligen varit med på inskrivningssamtal i palliativt team. Studien utfördes på de två författarnas respektive arbetsplatser och åtta närstående deltog. Genom analys och tolkning av det insamlade datamaterialet framkom ett resultat med tre kategorier under två teman; Frihet utan ansvar och Befinna sig i en trygg och tillitsfull vårdrelation. Frihet utan ansvar innebar att närstående upplevde en delaktighet utan att vara ansvarig. Att befinna sig i en trygg och tillits vårdrelation innebar att närstående upplevde en känsla av tillit till teamet som hade en empatisk förmåga och svarade för en bekräftande kommunikation. Slutsatsen var att närstående var nöjda och såg mötet som mycket positivt. Det framkom faktorer som påverkade mötet negativt såsom otydlighet kring mötets struktur, språksvårigheter och stressig bemötande.In palliative care, supporting the family is one of the four cornerstones that enable quality of life for the patient and family. In addition to supporting the patient, the family also need to handle their own grief which means that the family both provide and need support. Palliative care teams have a first meeting, a sign-up call, to identify the patient and family's situation and needs and to create the conditions for a safe and confident care relationship. The aim of this study was to investigate familymembers experience of the first meeting with the palliative care team, because it previously has been no evaluation of the enrollment call. The method used was semi-structured interviews with family members recently been taking part in enrollment call to the palliative care team. The study was conducted at the two authors' respective workplaces and eight family members attended. Through analysis and interpretation of the collected data revealed a result of three categories within two themes; Freedom without responsibility and Being in a safe and confident care relationship. Freedom without responsibility meant that family members experienced a participation without being responsible. Being in a safe and confident care relationship meant that the family members experienced a sense of confidence in the team that had a capacity for empathy and accounted for a confirmatory communication. The conclusion was that the family members were satisfied and saw the meeting as very positive. It emerged factors that negatively impacted the meeting such ambiguity about the meeting, language difficulties and a stressful approach.
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Rippin, Allyn Sager. ""Challenging families": the roles of design and culture in nurse-family interactions in a high acuity intensive care unit." Thesis, Georgia Institute of Technology, 2011. http://hdl.handle.net/1853/43614.
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The trend towards patient-and family-centered care (PFCC) invites families of critically ill patients to participate more fully in the care and recovery of their loved ones through partnerships with the medical team and personalized care that respects the values, beliefs and experiences of the individual. In response to the growing needs of families, healthcare institutions are re-designing the way patient and family care is delivered in terms of policy, culture and the physical environment. Despite the many benefits that come with closer collaboration, nurses report that "challenging" families are a key source of workplace stress. This exploratory case study documents some of these challenges as perceived by staff nurses at Emory University Hospital's Neuro ICU while examining the role the built environment plays in shaping such perceptions. Through a series of ethnographic interviews and observational methodologies, the study identifies some of the challenges and benefits that come with balancing patient and family needs. Nurse strategies developed to reassert spatial and temporal control over work environments are also identified. The second phase of research compares communication patterns generated from two different ICUs to explore the link between unit design and the frequency and quality of nurse-family interactions. Findings suggest that space plays a role in moderating the degree of nurse exposure to the often unstructured and unpredictable aspects of family interactions. These encounters, set within a highly charged critical care setting, may contribute to these perceived challenges. Healthcare stands at an important moment of transition in which attitudes, behaviors and expectations are changing. Together these results reinforce the need for adequate tools, training and education to further support nurses in the transition to this new care culture.
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Ribeiro, Jéssica Sâmia Silva Torres. "Atitudes de Enfermeiros nos Cuidados com Famílias no Contexto do Parto e Puerpério Imediato." Universidade Federal do Maranhão, 2016. http://tedebc.ufma.br:8080/jspui/handle/tede/1362.
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Introduction: Family-Centered Healthcare has been adopted as a philosophy of care in nursing and means that nurses incorporate into their care the knowledge and conviction that families represent a constant in the life of their members. The investigated object was delimited from the healthcare practices of nurses in the context of childbirth and postpartum and the attitudes of these professionals toward familycentered care, supported by the following research question: What attitudes are adopted by nurses in the context of childbirth and postpartum concerning the importance of the family in the healthcare process? Objectives: To identify nurses’ attitudes about the importance of families in the healthcare process, in the context of childbirth and postpartum according to the dimensions of the IFCE-AE Scale (A Importância das Famílias nos Cuidados de Enfermagem – Atitudes dos Enfermeiros [Importance of Families in Nursing Care – Nurses’ Attitudes); To relate the attitudes of nurses about the importance of families in the process of childbirth and postpartum healthcare with the professional training time and the degree of the nurses; To describe the attitudes that contribute to and/or suggest the valuation of families in the healthcare practices of nurses. Method: Descriptive and correlational cross-sectional study, carried out in the Housing and Obstetric Center of two reference health institutions in the state of Maranhão assisting with childbirth and postpartum: Hospital Universitário Unidade Materno Infantil (HUMI/UFMA) and Marly Sarney Maternity. The population was composed of seventy-six nurses, using two questionnaires to collect the data: IFCE-AE Scale (referenced above) and the Academic Professional Questionnaire. Software Stata 12.1 and the Pearson Correlation and t-student tests were used for the statistical analysis of the data. Results: Nurses held supportive attitudes toward families, with the average of 74.5 points in the area of Family: conversational partner and coping resource were 35.6; in the area of Family: resource in nursing care was 30.8 points and in the area of Family: Burden, the average was 8.01 points. A weak correlation was verified between the number of the nurses’ post-graduate studies in the area of Family: Burden; among the nurses with post-graduate studies in ICU with the area of Family: conversational partner and coping resource and a negative correlation between the attitude of the nurse toward the family and the attainment of the Family Nursing degree upon graduation. Conclusion: It would be opportune on the part of the studied instituions to invest in continued focused education in family care practices, with courses that involve this theme. For educational institutions for nurses, changing curriculum that suits the reality found outside of the walls of universities is essential.
Introdução: O Cuidado Centrado na Família tem sido adotado como filosofia do cuidar na enfermagem e significa que os enfermeiros incorporam no cuidado o conhecimento e a convicção de que as famílias representam uma constante na vida dos seus membros. O objeto investigado delimitou-se a partir das práticas de cuidados dos enfermeiros no contexto do parto e puerpério e as atitudes desses profissionais para o cuidado centrado na família, apoiado na seguinte pergunta de pesquisa: Quais atitudes são adotadas pelos enfermeiros no contexto do parto e puerpério imediato face à importância da família no processo de cuidar? Objetivos: Identificar atitudes de enfermeiros sobre a importância das famílias no processo de cuidado, no contexto do parto e puerpério segundo as dimensões da Escala “A Importância das Famílias nos Cuidados de Enfermagem – Atitudes dos Enfermeiros (IFCE – AE)”; Relacionar as atitudes dos enfermeiros sobre a importância das famílias no processo de cuidado no contexto do parto e puerpério, com o tempo de exercício profissional e a titulação dos enfermeiros; Descrever as atitudes que contribuem e/ou implicam para a valorização das famílias nas práticas de cuidados dos enfermeiros. Método: Estudo transversal, descritivo e correlacional, de abordagem quantitativa, realizado no Serviço de Alojamento Conjunto e Centro Obstétrico de duas instituições de saúde de referência no Estado do Maranhão na assistência ao parto e puerpério: Hospital Universitário Unidade Materno Infantil – HUMI/UFMA e Maternidade Marly Sarney. A população foi composta por 76 enfermeiros, utilizando dois questionários para coleta de dados: escala A Importância das Famílias nos Cuidados de Enfermagem - Atitudes dos Enfermeiros - IFCE-AE e o Questionário Acadêmico Profissional. Para a análise estatística utilizou-se o Software Stata 12.1 e os testes de Correlação de Pearson e t-student. Resultados: Os enfermeiros detinham atitudes de suporte para com as famílias, com média da escala total de 74,5 pontos enquanto na dimensão Família: parceiro dialogante e recurso de coping a média foi de 35,6 pontos; na dimensão Família: recurso nos cuidados de enfermagem de 30,8 pontos e na dimensão Família: Fardo, a média foi de 8,01 pontos. Verificou-se correlação fraca entre o número de pós-graduações dos enfermeiros na dimensão Família: Fardo; entre os enfermeiros com pós-graduação em UTI com a dimensão Família: parceiro dialogante e recurso de coping a correlação foi negativa entre a atitude do enfermeiro face à família e a realização da disciplina de Enfermagem de Família em sua graduação. Conclusão: Seria oportuno por parte das instituições estudadas investir em formação continuada voltadas para as práticas de cuidado de famílias, com cursos que envolvessem essa temática. Para as instituições formadoras de enfermeiros, é imprescindível mudança na estrutura curricular que contempla os componentes curriculares com suas ementas e referências para que se adeque à realidade encontrada fora dos doa muros das universidades.
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Eliasson, Carina, and Daniela Loderini. "Specialistsjuksköterskors upplevelser av att vårda barn i livets slutskede inom barnintensivvård." Thesis, Högskolan i Borås, Akademin för vård, arbetsliv och välfärd, 2015. http://urn.kb.se/resolve?urn=urn:nbn:se:hb:diva-9992.
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Bakgrund: Specialistsjuksköterskans uppgifter på en barnintensivvårdsavdelning (BIVA) är att vårda barn och det innefattar även att vårda barn i livets slutskede. Av de barn som vårdas på en barnintensivavdelning avlider cirka två procent. Att vårda barn och familjen i en situation där fortsatt vård och överlevnad för barnet är utsiktslöst är en tung och ansvarsfull uppgift. Syfte: Studiens syfte var att belysa specialistsjuksköterskors upplevelser av att ha vårdat ett barn vid livets slutskede på en BIVA. Metod: Som datasamlingsmetod användes semistrukturerade intervjuer med sju specialistutbildade sjuksköterskor. Intervjuerna genomfördes med hjälp av en intervjuguide bestående av en huvudfråga och därefter följdfrågor. Data bearbetades utifrån kvalitativ innehållsanalys med en beskrivande ansats. Resultat: Resultatet presenteras i tre kategorier och tio subkategorier. De tre kategorierna var följande: Att känna sig trygg och erfaren i att vårda ett döende barn, familjen i fokus samt upplevelsen av stöd och strategier i det komplexa vårdandet. Diskussion: Trots att upplevelsen av att vårda barn i livets slut är en tung och känslomässig uppgift ansåg samtliga informanter det som en ansvarsfull och positiv uppgift där de kunde göra föräldrarnas sista stund med sina barn till ett fint och ljust minne.One of the caring tasks that specialist nurses, working in the (PICU) perform, and have to face in the daily profession is to care for children who are facing the end of life in Sweden. Approximately two percent of all the children being cared for in the PICU dies. To care for children and their families when further treatment is futile is a heavy surrounding life and death. The goal of this study was to investigate the experiences of specialist nurses caring for children at the end of life. Qualitative content analyze were used as a method. Seven semi-structured interviews, with a descriptive approach, were transcribed to condensed meanings. Finally, the meaning was coded into ten subcategories within three main categories. Conclusion of this study indicated that pediatric intensive care nurses indicated their work heavy emotionally. The nurses play a vital role to the family´s final time whit their children. It is in the hands of the nurses to support and make the final time as valuable and beautiful as possible for the family.
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Svedhult, Melissa, and Carolina Wikberg. "Familjers delaktighet när ett barn är sjukt : En litteraturstudie med ett nordiskt perspektiv." Thesis, Röda Korsets Högskola, 2015. http://urn.kb.se/resolve?urn=urn:nbn:se:rkh:diva-1872.
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Bakgrund: Familjer har inte alltid deltagit i omvårdnaden på det sätt de gör idag. Under de senaste decennierna har begreppet familjefokuserad omvårdnad lyfts fram och blivit till en central del inom barnsjukvården. Familjefokuserad omvårdnad lägger tonvikt på familjers deltagande och engagemang i sitt barns vård. Syfte: Syftet är att undersöka hur familjer och sjukvårdspersonal beskriver familjers delaktighet inom barnsjukvården i Norden. Metod: Litteraturstudie av tio vetenskapliga artiklar med kvalitativ design. Resultat: Resultatet presenteras utifrån tre huvudteman. Stöd var en av de viktigaste beståndsdelarna och som också väckte intresse till ökad delaktighet i barnsjukvården. Stöd presenteras i avsnittet familjernas behov av stöd. När ett barn blir sjukt är det inte bara barnets liv som påverkas, utan en hel familjs, vilket presenteras i avsnittet en livsvärld som vänds upp och ner. En svår tid följde de flesta familjer under tiden de försökte vänja sig vid sin nyfunna livssituation. I avsnittet att vårda en hel familj presenteras att varje familj var unik och att de hanterar olika situationer på olika sätt. Slutsats: Resultatet i denna litteraturstudie har visat på att stöd är en viktig faktor för familjer när ett barn är sjukt. Både stöd från vården och socialt stöd från släkt och vänner är viktigt när det kommer till att stärka familjer samt att få familjen delaktig i barnets omvårdnad. Klinisk betydelse: Denna litteraturstudie kan bidra bredare med kunskap om familjefokuserad omvårdnad samt familjers delaktighet inom barnsjukvården. Calgarymodellen i den familjefokuserade omvårdnaden kan hjälpa sjukvårdspersonal att göra familjer delaktiga genom hela omvårdnadsprocessen.Background: Families has not always been a part of the pediatric care. Family-centered care is a phenomenon which has been highlighted during the past decades and has become a central part of pediatric care as it is today. Family-centered care includes family participation and family involvement in the child’s care. Aim: To explore how families and nurses define family participation in Nordic Pediatric care. Method: The aim was answered with a literature review of ten scientific qualitative articles. Results: The result is presented in three head themes. Support was one of the most important elements and contributed to participation in the pediatric care. Support is presented in the theme families’ need for support. When a child becomes ill it’s not only the child’s, but the whole families lifeworld that gets affected, which is presented in another theme, a lifeworld up-side-down. Most families had a hard time adjusting to their new life situation. In the third theme, to care for the whole family, we present that every family is unique and handle situations different. Conclusion: The result of this literature review has shown that support is an important factor when a child is ill. Good support from health care and social support from family and friends is important to the family members, especially when it comes to family strengthening and to encourage families to participate in the care. Clinical significance: This literature review can contribute knowledge about family-centered care and participation in pediatric care. The Calgary Family Assessment Model can help create good family-centered care and encourage family members to participate in care.
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Engström, Rickard, and Håkan Marsh. "Närståendes upplevelse av delaktighet inom intensivvård." Thesis, Uppsala universitet, Institutionen för folkhälso- och vårdvetenskap, 2016. http://urn.kb.se/resolve?urn=urn:nbn:se:uu:diva-295148.
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Intensivvårdspatienter är ofta sederade och intuberade och kan därmed ej vara delaktiga i sin vård. Närstående har enligt svensk lag rätt att delta i planering och utförande av vården för patienter som inte kan tala för sig. Studier har undersökt och belyst närståendes behov vid vård av intensivvårdspatienter. Få studier har fokuserat på närståendes uppfattning om delaktighet i vården av intensivvårdspatienter. Syfte Att undersöka hur närstående upplever sin delaktighet i beslutsfattande och omvårdnad av intensivvårdspatienter. Metod En deskriptiv kvalitativ design med semistrukturerade intervjuer användes, med en fenomenografisk ansats. Nio närstående intervjuades. Resultat Fem kvalitativt skilda beskrivningskategorier framkom och ordnades hierarkiskt; Beslutsfattandets betydelse – medicinska beslut överlämnas, Delta i omvårdnad – både positivt och skrämmande, Positivt bemötande avdramatiserar, Viktigt att vara fysiskt nära och Tydlig information underlättar delaktighet. Beskrivningskategorin Tydlig information underlättar delaktighet placerades högst i hierarkin eftersom informanterna angav att informationen hade störst betydelse för upplevelsen av delaktighet i vården. Slutsats Kännedom om närståendes olika upplevelser av delaktighet, i synnerhet vikten av rak och tydlig information kan möjliggöra för personalen att bättre inkludera närstående och därigenom öka deras upplevelse av delaktighet i vården av intensivvårdspatienter.Intensive care patients are often sedated and intubated and can not participate in their care. Swedish law states that when a patient can not participate in care, relatives should be invited to participate in his/her place. Many studies have been conducted focusing on relatives’ needs, but very few focus on their perception of participation in care of intensive care patients. Aim This study was conducted to explore how relatives perceive their participation in care of intensive care patients, with regards to decision making and participating in physical care. Method A descriptive, qualitative design was used, with semi-structured interviews and with a phenomenographic approach. Nine relatives were interviewed. Results Five qualitatively differing categories of description appeared and were organized in a hierarchy; The importance of decision making – medical decisions are handed over, Participating in physical care – both positive and scary, A welcoming atmosphere helps ease the mood, Important to be physically near, Clear information helps the perceived participation. The category Clear information helps the perceived participation was placed the highest in the hierarchy because the informants described information as the most important for the perceived participation in care. Conclusion Knowledge about relatives’ different perceptions of participation in care, especially the importance of straight forward and direct information, may enable the nursing staff to better include relatives and increase their satisfaction and perceived participation in care of the intensive care patients.
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Pedersen, Hanna, and Matilda Wahlqvist. "Familjecentrerad vård inom barnsjukvård : Verklighet eller filosofi." Thesis, Högskolan i Halmstad, Sektionen för hälsa och samhälle (HOS), 2015. http://urn.kb.se/resolve?urn=urn:nbn:se:hh:diva-27339.
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Sjuksköterskors syn på familjens närvaro och delaktighet i barnets vård har pendlat under det senaste seklet. I relation till uppkommen evidens genom forskning har familjecentrerad vård blivit ett alltmer vedertaget begrepp inom barnsjukvård. Familjens delaktighet i barnets vård har visat sig vara en hälsofrämjande resurs för hela familjen. Sjuksköterskor har en viktig roll i att engagera och involvera familjen i omvårdnaden, således kan sjuksköterskors synsätt påverka i vilken mån det utförs. Syftet med föreliggande litteraturstudie var att belysa sjuksköterskors synsätt på familjecentrerad vård när ett barn vårdas på sjukhus, och resultatet utgörs av 11 vetenskapliga artiklar. Tre kategorier med subkategorier presenterar resultatet i form av sjuksköterskors syn på familjecentrerad vård och vilka förutsättningar som krävs och kan underlätta implementering av omvårdnadsmodellen. Sjuksköterskor har generellt en positiv syn på vad familjecentrerad vård innefattar. Det råder skilda meningar inom roll- och ansvarsfördelning sjuksköterskor och familj emellan, vilket försvårar samarbetet. Det framkommer samtidigt hur brist på resurser, förståelse och medvetenhet ytterligare problematiserar applicering av familjecentrerad vård. Utbildning, erfarenhet och organisatoriskt stöd krävs för att skapa en gemensam syn och öka förståelsen kring familjecentrerad vård.Nurses’ approaches to families’ involvement and participation in the child’s care have fluctuated over the last century. In relation to emerging evidence through research, family-centered care has become an increasingly accepted concept in pediatric care. The family's involvement in the child's care has proven to be a health promotion resource for the whole family. Nurses have an important role to engage and involve the family in care, thus the nurses' approach affect the extent to which it is performed. The aim of the present literature review was to elucidate nurses' approach to family-centered care when a child is in hospital, and the result is based on 11 research articles. Three categories with subcategories present the results in terms of nurses' approach to family-centered care and the necessary conditions that may facilitate the implementation of the nursing model. Nurses generally have a positive approach to what family-centered care concerns. There are different opinions about the roles and responsibilities of nurses and families in between, making co-operation difficult. It also emerges that the lack of resources, understanding and awareness further problematize the application of family-centered care. Education, experience, and organizational support are required to create a shared vision and to improve understanding of family-centered care.
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Hudon, Catherine. "Développement d'un questionnaire mesurant la perception du patient atteint de maladies chroniques de l'habilitation par le médecin de famille." Thèse, Université de Sherbrooke, 2011. http://hdl.handle.net/11143/5816.
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Rationale: Chronic diseases represent an important health burden that often involves major adaptations to manage the disease on a daily basis. Health professionals, such as the family physician, can help a person acquire more power over his or her health (enablement). While it would be useful to measure patient perception of enablement by the family doctor with a valid questionnaire, existing tools present important gaps. Aim and objectives: This study aimed at developing a self-administered questionnaire to measure the perception of patients with chronic diseases of enablement by their family physician. The objectives were: 1) To deepen the conceptualization of enablement by validating the proposed conceptual framework with patients presenting with chronic diseases and to specify the relative importance of its dimensions; 2) To operationalise the dimensions by proposing indicators of these dimensions (pool of items); 3) To verify the content validity of the questionnaire. Methods: An exploratory sequential mixed-method research design was chosen. The descriptive qualitative study (objectives 1 and 2) used in-depth interviews with 30 patients aged 35 to 75 presenting with at least one chronic disease, having the same family doctor for at least one year and recruited through maximum variation sampling. Taped interviews were transcribed and analyzed using Miles and Huberman's mixed coding method (2003a). A three-round e-Delphi study (objective 3) involved 15 Canadian experts in family medicine, able to read in French. The experts scored the items proposed on a 9-point scale (1 = Inappropriate to 9 = Very appropriate) and could suggest rewording and additions. Items scored 7-9 by the experts were considered consensual and were not presented in the following round. Items that were not consensual after the third round were decided upon by the team of researchers. Results: The partnership (the trusting relationship and decisions to be taken) that develops over time was found to be a major component of enablement. The enablement role of the physician goes beyond the medical consultation to defend the interests and safety of the patient's journey through the healthcare system. The trusting relationship combined with a good knowledge of the person may help the family physician better understand and legitimize the various feelings experienced while offering realistic hope . The family physician is in a privileged position to help patients develop their own expertise . Sixty-six items classified into six dimensions were submitted to the experts during the first round of the E-Delphi method. The first round was completed by 13 experts: 21 items were consensual; 25 items were resubmitted without any modification; 16 items were modified and four were rejected. Forty-one items were submitted during the second round, completed by 13 experts: eight items were consensual; 20 items were submitted without any modification; 12 items were modified and one item was rejected. Thirty-three items were submitted during the third round completed by nine experts: 29 items remained intact; three items were modified and one item was rejected. Conclusion: An initial 61-item questionnaire is proposed.
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Nordberg, Emma. "Familjecentrerad vård inom akutsjukvård för barn." Thesis, Sophiahemmet Högskola, 2016. http://urn.kb.se/resolve?urn=urn:nbn:se:shh:diva-2400.
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Familjecentrerad vård har visat sig leda till bättre hälsoresultat och tillfredsställelse hos patienten och dess familj. Inom familjecentrerad vård ska familjen ses som en helhet och där barnet, familjen och sjukvårdsteamet bildar ett partnerskap där alla parter ska känna sig respekterade och arbeta tillsammans. Många familjer ser det som deras rätt att vara närvarande vid återupplivning och invasiva procedurer. Därför behöver sjuksköterskor vara förberedda på att stödja familjen i dessa akuta situationer. Syftet var att beskriva vilken betydelse familjecentrerad vård har för vårdkvaliteten inom akutsjukvården för barn. En litteraturstudie med en strukturerad litteratursökning utfördes som metod. Studier som belyste familjecentrerad vård inom akutsjukvård för barn inkluderades med avsikt att svara på syftet. Studier med kvalitativ och kvantitativ ansats samt med mixad metod som integrerar både kvalitativ och kvantitativ data inkluderades. Datainsamlingen gjordes i databaserna PubMed och CINAHL och dataanalysen gjordes utifrån Whittemore och Knafls (2005) integrativa översiktsmetod. I denna studie identifierades två teman, partnerskap samt familjenärvaro. Delaktighet i vården och respekt för familjen utformades som underkategorier till partnerskap. Påverkan på vården skapades som underkategori till familjenärvaro. Resultatet i föreliggande studie visar på att familjemedlemmars delaktighet i barnets vård är en viktig faktor för familjecentrerad vård. Detta genom att familjemedlemmarna deltar aktivt, närvarar vid invasiva procedurer och återupplivning, är med och planerar och utför omvårdnad samt bidrar med information om barnet. Inom familjecentrerad vård är sjuksköterskans roll att finnas där och lyssna till familjen. Familjecentrerad vård kan vara en strategi för att förbättra akutsjukvården för barn. Denna studie visar på att ett partnerskap mellan sjukvårdspersonal och familjemedlemmar och familjenärvaro vid invasiva procedurer och återupplivning är betydelsefulla faktorer för familjecentrerad vård. Familjemedlemmars delaktighet i barnets vård och att familjen är närvarande i alla situationer och finns där för sitt barn hjälper både dem och barnet i dess akuta tillstånd. Sjuksköterskors inställning om att föräldrar har rätt att finnas där och att tid finns för sjuksköterskorna att stötta familjen spelar också roll inom den familjecentrerade vården.Family-centered care has been shown to lead to better health results and satisfaction for the patient and their family. In family-centered care the family is seen as a whole unit and where the child, the family and the health care team form a partnership where all parties feel respected and work together. Many families see it as their right to be present during resuscitation and invasive procedures. Therefore nurses should be prepared to support the family in these acute situations. The aim was to describe which importance family-centered care has for the quality of care in the emergency care for children. A literature review with a structured literature research was conducted as a method. Studies which elucidated family-centered care in emergency care for children were included with the intention to answer the aim. Studies using qualitative and quantitative approach and the mixed method that integrates both qualitative and quantitative data were included. The data was collected in the databases PubMed and CINAHL, and the data analysis was based on Whittemore and Knafls (2005) integrative review method. In this study two themes, partnership and family presence were identified. Participation in the care and respect for the family were conceived as subcategories of partnership. Impact on health care was created as a subcategory of family presence. The results of the present study show that family members’ involvement in the child’s care is an important element of family-centered care. This is achieved by the family members being participating actively, being present during invasive procedures and resuscitation, being involved in planning and nursing and contributing with information about the child. In family-centered care the nurse’s role is to be there and listen to the family. Family-centered care can be a strategy to improve emergency care for children. This study shows that a partnership between medical staff and family members and family presence during invasive procedures and resuscitation are significant factors for family-centered care. Family members’ involvement in the child’s care and that the family is present in all situations and are there for their children helps both them and the child in its acute condition. Nurses’ attitude that parents have the right to be there and that time is available for the nurses to support the family also plays a role in family-centered care.
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Garlington, Jennifer Erin, and Jennifer Erin Garlington. "Exploring Family Perceptions About Primary Care Management Following Diagnosis of Type 1 Diabetes in Preschool-Age Children." Diss., The University of Arizona, 2016. http://hdl.handle.net/10150/621004.
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Purpose: To describe family perceptions about pediatric primary care management following diagnosis of type 1 diabetes mellitus (T1DM) in preschool-aged children living in the Pacific Northwest region of the United States. Study Design and Method: Mothers of children diagnosed with T1DM before the fifth birthday and within the past two years were recruited anonymously through two regional support groups. Perceptions about pediatric primary care management following T1DM diagnosis were elicited through an anonymous 30-item online survey. Demographic characteristics of mother and child were obtained as well as information about five important domains of health care management for a young child with T1DM: (1) multidisciplinary, (2) holistic and compassionate, (3) accessible and communicative, (4) uses current standards and technology, and (5) actively promotes safe self-management. Results: Twenty-one biological mothers participated in this study, each on behalf of a child diagnosed with T1DM who fit inclusion criteria. Overall mothers held positive perceptions about care management by PCPs and endocrinologists within context of each of the five domains. Most mothers felt included in care planning, valued periodic well-child exams, and believed the child's providers were accessible, communicated effectively, and usually demonstrated consideration/compassion for the family. Although a majority of mothers at least somewhat agreed that the PCP used current standards and technology to care for the child, and functioned as the center of his/her health care coordination, these domains elicited a slightly greater number of responses indicating uncertainty or disagreement. Clinical Implications: Nurses and pediatric practitioners can use findings from this study to plan continued exploration into the perceptions and care management needs of families following diagnosis of a very young child with T1DM. The domains of care used to assess mothers' perceptions about care management-based on tenets of the Chronic Care Model (CCM) and Patient Centered Medical Home (PCMH)-can be used by pediatric PCPs and endocrinologists to dialogue with patients and staff about how care management may be improved for these families. Providing opportunities for feedback to the families of young children with T1DM should be encouraged so future research can examine relationships between care management variables and clinical outcomes.
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Berglund, Nils, and Elin Nilsson. "Närståendes närvaro vid återupplivningsförsök : En litteraturstudie." Thesis, Röda Korsets Högskola, 2014. http://urn.kb.se/resolve?urn=urn:nbn:se:rkh:diva-855.
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Bakgrund: Sjukdom och ohälsa kan orsaka påfrestningar och innebära en omställning för hela familjen, detta blir tydligt då en familjemedlem genomgår återupplivningsförsök. Antalet närstående som önskar närvara vid återupplivningsförsök har ökat, det är därför av stor vikt att möta familjers behov vid återupplivningsförsöket. Samtidigt upplever sjuksköterskor att de inte har kompetens nog eller adekvat utbildning för att göra det. Syfte: Syftet med studien är att beskriva upplevelser av närståendes närvaro vid återupplivningsförsök ur dels sjukvårdspersonals och dels närståendes perspektiv. Metod: En litteraturstudie gjordes på 15 vetenskapliga studier med kvalitativ, kvantitativ och mixad ansats. Resultat: I resultatet framkom att närstående och vårdpersonal upplevde att möjligheten att närvara gav tillfälle att ta farväl på ett värdigt sätt. Vårdpersonal kände sig ansvariga för både patient och familj, men vården av familjen var lägre prioriterat än vården av patienten i den akuta situationen. Både vårdpersonal och närstående upplevde att närstående var delaktiga i vården av patienten genom att ha rollen som informatör, att stötta och trösta patienten, eller att medverka vid beslutsfattning. Närståendes närvaro distraherar vårdpersonalen på olika sätt. I de studier som presenterade negativa upplevelser framgick dels att det saknades riktlinjer och dels att personalen var underbemannade. Slutsats: Det finns många faktorer som påverkar både vårdpersonals och närståendes upplevelser av närståendes närvaro vid återupplivningsförsök, bland annat vårdpersonalens erfarenhet och kompetens. Närstående bör få möjligheten att närvara om resurserna tillåter det. Klinisk relevans: Ökad förståelse för vilka faktorer som styr omhändertagandet av närstående i den akuta situationen, kan göra sjuksköterskan bättre förberedd inför dessa situationer.Background: Disease and illness can cause stress and lead to a change for the whole family; this becomes evident when a family member is undergoing resuscitation attempts. The number of relatives who wish to be present during resuscitation has increased; it is therefore important to meet the needs of families during resuscitation. At the same time nurses experience that they are not competent enough or have adequate training to do so. Objective: The aim of this study is to describe the experiences of family presence during resuscitation from both health professionals and also relatives’ perspective. Method: A literature review was done on 15 scientific articles with qualitative, quantitative and mixed approach. Results: The results revealed that relatives and healthcare professionals felt that the opportunity to attend provided the opportunity to say goodbye in a dignified manner. Healthcare professionals felt responsible for both patient and family, but the care of the family had lower priority than the care of the patient in the acute situation. Both healthcare professionals and relatives’ experiences showed that relatives were involved in the care of the patient by having the role as an informant, to support and comfort the patient, or to participate in decision making. Family presence distracts medical staff in various ways. In the studies that presented negative experiences it appeared partly because of lack of guidelines and the fact that the healthcare professionals were understaffed. Conclusion: There are many variables that influence both health professionals and relatives experiences of family presence during resuscitation, including health professionals' experience and expertise. Relatives should have the opportunity to attend if resources allow. Clinical relevance: Increased understanding of the variables that determine the care of relatives in the acute situation, can prepare the nurse for these situations.
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Boswell, Suzanne M. "The Effect of Closed versus More Liberal Visitation Policies on Work Satisfaction Beliefs and Nurse Retention." [Johnson City, Tenn. : East Tennessee State University], 2004. http://etd-submit.etsu.edu/etd/theses/available/etd-0405104-170949/unrestricted/BoswellS040704f.pdf.
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Thesis (M.S.)--East Tennessee State University, 2004.Title from electronic submission form. ETSU ETD database URN: etd-0405104-170949. Includes bibliographical references. Also available via Internet at the UMI web site.
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Heinemann, Ann-Britt. "Faktorer med inverkan på föräldrars närvaro hos sitt extremt underburna barn på intensivvårdssal." Thesis, Uppsala universitet, Institutionen för folkhälso- och vårdvetenskap, 2011. http://urn.kb.se/resolve?urn=urn:nbn:se:uu:diva-175723.
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Syfte:Att beskriva föräldrars upplevelse av faktorer om har inverkan på deras närvaro hos sitt extremt underburna barn som vårdats på intensivvårdssal på neonatalavdelning. Material och metod: Semistrukturerade djupintervjuer utifrån en intervjuguide genomfördes under 2010 och 2011. Tretton föräldrar deltog i studien. De inspelade intervjuerna transkiberades ordagrant, och bearbetades med kvalitativ innehållsanalys. Resultat:Föräldrar till extremt underburna barn som vårdais på intensivvårdssal beskrev skilda upplevelser av vården och uttryckte olika behov. Vårdtiden innebar ett känslomässigt pendlande från chock till en känsla av kontroll. Faktorer som underlättade närvaron hos barnet var möjlighet till boende på avdelningen. Att få ökade kunskaper och ta över vården av barnet stärkte föräldrarna i föräldrarollen och ökade motivationen till att vara hos barnet. Genom att känguruvårda barnet kände sig föräldrarna behövda vilket ökade deras närvaro. Försvårande faktorer var miljön på intensivvårdssalen som ibland upplevdes stressfylld med oacceptabelt hög ljudnivå vilket gjorde det svårt att sova och övernatta hos barnet. Personalens arbetssituation hade inverkan på möjlighet till känguruvård eftersom det ledde till väntan på att få hjälp vid förflyttning av barnet från kuvös till förälder. Närvaro vid smärtsamma procedurer upplevdes som försvårande för många av informanterna.Aim:To describe parents’ experiences of factors that have an impact on their presence with their extremely premature infant who is cared in an intensive care nursery at a neonatal unit. Materials and method:Semi structured interviews based on an interview guide were conducted in 2010 and 2011. Thirteen parents participated in the study. The recorded interviews were transcribed verbatim and processed by qualitative content analysis. Result: Parents of extremely preterm infants, who wore treated in an intensive care nursery, had different experiences of care and expressed different needs. The infant’s hospital stay was an emotional pendulum from chock to a sense of control. A factor that facilitated the parents’ presence with the child was the possibility to live in the neonatal unit. Attainment of more knowledge and taking over their infants’ care empowered the parents in their parental role, which increased their motivation to stay with their infant. Kangaroo Mother Care made parents feel needed which increased their presence. A hindering factor was the environment in the intensive care nursery. This was sometimes experienced as stressful with unacceptable levels of sound which rendered in sleeping difficulties and made it hard for the parents to stay over the night with the infant. Staff working conditions had an impact on their opportunities for Kangaroo Mother Care because this sometimes meant that parents had to wait for assistance with transfer of the infant from incubator to parent. Presence during painful procedures was perceived as an obstacle by several informants.
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Bokegård, Ida, and Fredrik Siderud. "Den oinbjudne observatören : en litteraturöversikt om närståendes upplevelser av att närvara vid omhändertagandet av en akut sjuk familjemedlem." Thesis, Sophiahemmet Högskola, 2021. http://urn.kb.se/resolve?urn=urn:nbn:se:shh:diva-4015.
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Att bedriva personcentrerad vård vid ett akut omhändertagande kan vara utmanande. Situationerna är ofta kritiska och stressfulla vilket kan försvåra patientens delaktighet. Patienten söker ofta stöd hos närstående, då situationen kan upplevas både obehaglig och skrämmande. I de fall då närstående närvarar kan de stödja patienten och samtidigt bidra med viktig information till vårdpersonalen. Trots att patienter oftast upplever stöd från sina närstående förlitar sig vårdpersonal fortfarande på sina egna uppfattningar om vad som är bäst för familjen. Syftet var att belysa närståendes upplevelser av att närvara vid omhändertagandet av en akut sjuk familjemedlem. Metoden var en litteraturöversikt med ett systematiskt sätt tillämpades. Databaserna PubMed och CINAHLComplete användes för att söka efter vetenskapliga artiklar med både kvalitativ och kvantitativ ansats. När sökningen avslutades återstod 14 artiklar som granskades och analyserades. I litteraturöversiktens resultat framkom två kategorier och nio underkategorier. Kategorin Upplevelser som försvårade närvaron med underkategorierna Känslor, Negativt bemötande, Brist på kommunikation och Lokaler, regler och policys. Kategorin Upplevelser som underlättar närvaro med underkategorierna Vårdpersonalens kompetens, God kommunikation, tidigare erfarenheter och Religion, tro och stöd. Slutsatsen var att trots att närstående upplever olika former av obehag, finns en önskan hos de allra flesta att bli inbjudna. Vårdpersonal bör därför bjuda in och tillmötesgå även närstående behov och ge dem det stöd de behöver för att kunna närvara. På så vis skapas ett partnerskap med patient och närstående i fokus.Providing person-centered care in an emergency setting can be challenging. Situations are often critical and stressful, which can make it difficult for the patient to participate. The patient often seeks support from close relatives, as the situation can be experienced as both unpleasant and frightening. In cases where close relatives are present, they can support the patient and at the same time contribute important information to the care staff. Despite the fact that patients often experience support from their loved ones, healthcare professionals still rely on their own perceptions of what is best for the family. The aim was to illuminate relatives' experiences of attending the care of an acutely ill family member. A literature review in a systematic way was applied as a method. Used databases were PubMed and CINAHL Complete. Articles with both a qualitative and quantitative approach that corresponded to the purpose of the literature review were included. When the search was completed, 14 articles remained that corresponded to the purpose which were examined and analyzed. In the results of the literature review, two categories and nine subcategories emerged. The category Experiences that made presence more difficult with the subcategories Emotions, Negative treatment, Lack of communication and premises, Rules and policies. The category Experiences that facilitate attendance with the subcategories Staff competence, Good communication, Previous experiences and Religion, faith and support. The conclusion were that despite the fact that relatives experience various forms of discomfort, there is a desire in most relatives to be invited. Healthcare staff should therefore invite and meet the needs of close relatives and give them the support they need to be able to attend. In this way, a partnership is created with the patient and relatives in focus.
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Karlsson, Cecilia, and Åsa Strandberg. "Att möta familjer med prematurfödda barn i barnhälsovården : en kvalitativ studie av barnhälsovårdssjuksköterskors erfarenheter." Thesis, Linnéuniversitetet, Institutionen för hälso- och vårdvetenskap (HV), 2019. http://urn.kb.se/resolve?urn=urn:nbn:se:lnu:diva-90051.
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Bakgrund: Barnhälsovårdens uppdrag är att arbeta hälsofrämjande och förebyggande med alla barn och deras familjer. Att bli förälder till ett prematurfött barn har i studier visat sig ha långtgående effekter på familjen. Krisreaktioner som stress, ångest och oro är vanliga hos föräldrarna. I takt med att fler barn som föds för tidigt överlever, förändras kraven på barnhälsovårdssjuksköterskorna och familjernas behov av insatser från barnhälsovården. Syfte: Syftet med studien var att beskriva barnhälsovårdssjuksköterskors erfarenheter av att möta familjer med prematurfödda barn inom barnhälsovården. Metod: Kvalitativ metod med induktiv ansats. Semistrukturerade intervjuer med åtta barnhälsovårdssjuksköterskor. Data analyserades genom kvalitativ innehållsanalys. Resultat: Resultatet visar att barnhälsovårdssjuksköterskorna värdesätter tidigare yrkeserfarenhet och kunnighet i mötet med familjerna. Oavsett erfarenhet, var de i behov av och värdesatte kontinuerlig fortbildning. Möten med familjer i kris gjorde barnhälsovårdssjuksköterskorna osäkra eftersom de saknade formell utbildning kring sådana samtal. Barnhälsovårdssjuksköterskorna arbetar familjefokuserat och anpassar barnhälsovårdens program efter barnets och familjens behov. Utgångspunkten var barnets hälsa snarare än dess prematuritet. Barnhälsovårdssjuksköterskorna framhöll att tidig kontakt med familjen stärkte den kommande relationen. Slutsats: Barnhälsovårdssjuksköterskorna är i behov av kontinuerlig fortbildning samt utbildning i hur man möter en familj i kris. Genom att arbeta familjefokuserat, stöttar de familjerna till en fungerande vardag och att se det friska hos barnet. Tidig kontakt med familjen främjar relationen mellan dem och barnhälsovårdssjuksköterskorna. Få studier är gjorda där barnhälsovårdssjuksköterskors erfarenheter beskrivs, vilket motiverar nyttan med studien.Background: Primary child health care offer health support and promotion to all families. Studies have shown that the birth of a premature child has long-term effects on the family. Stress reactions such as worrying and anxiety were common with the parents. Improved survival rates in premature children therefore create new demands on primary child health care nurses and the support families need from the primary child health care. Aim: The aim of this study was to describe primary health care nurses’ experiences of meeting families with premature children in a primary child health care context. Method: Qualitative research design with inductive approach. Semistructured interviews with eight primary child health care nurses. Data was analysed with qualitative content analysis. Results: The result implies that the nurses value professional experience and knowledge. Regardless of work life experience, all nurses requested further training. Meeting families with traumatic experiences, made the nurses insecure since they lacked formal training in dealing with such situations. The nurses applied family-centered care to all meetings with the families, adapting the child health care program to the needs of the child and its family. Health rather than conditions related to the prematurity was the center of attention. The nurses agreed that meeting the families at an early stage was imperative to building their forthcoming relationship. Conclusion: The nurses need further professional knowledge and as well as training in how to respond to a family crisis. By applying family-centered care to all families, the nurses give families support in day-to-day life and promote child health. Early connection between nurses and families boosts their relationship. Research into primary child health care nurses’ experiences is limited which motivates this study’s relevance.
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Tillquist, Maria. "Caring for the Critically Ill at the End-of-Life : Nurses’ Experiences of Palliative Care in Brazilian ICUs – a Minor Field Study." Thesis, Högskolan i Borås, Akademin för vård, arbetsliv och välfärd, 2015. http://urn.kb.se/resolve?urn=urn:nbn:se:hb:diva-9990.
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Background: Critical care is a relatively young speciality with its intention to treat critical illness equally all around the world. Patients admitted to ICUs receive advanced treatments in order to save lives, however some patients will pass away during critical care, which put family members in great physical and emotional distress. It is important to support family needs and keep core principles of palliative care in mind in order for patients and family members to cope with current situation. The need for palliative care is greater than ever, but in most parts of the world it is poorly developed. Brazil struggles with several challenges regarding implementation of a palliative approach within ICU settings. Aim: the aim was to explore nurses’ experiences of palliative care, focusing on family involvement in Brazilian ICUs. Method: semi-structured interviews were analysed using content analysis. Five female nurses were included from one public and one private hospital in the city of Rio de Janeiro, with an average ICU working experience of nine years. Results: three main categories were identified describing nurses’ experiences of palliative care and family involvement: to care for a dignified death, to promote family involvement and areas for future improvement. Discussion: the results reveal that the nurses, even though lack of professional training, believe that palliative care is important for both patient and their family members at the EOL. Brazilian nurses also face several challenges in order to perform palliative care successfully within ICUs. They struggle with strict visiting policy and the perception of nurses being inferior to physicians. There is a wish for acknowledgement of the nursing profession during EOLC in Brazilian ICUs, since nurses spend most time at each patient’s bedside along with their family members.