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Journal articles on the topic 'Family centred care discourse'

Author: Grafiati

Published: 4 June 2021

Last updated: 18 February 2022

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1

Heap, Cheyann J., and Emma Wolverson. "Intensive Interaction and discourses of personhood: A focus group study with dementia caregivers." Dementia 19, no. 6 (December 4, 2018): 2018–37. http://dx.doi.org/10.1177/1471301218814389.

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Introduction Societal discourses of dementia are medicalised and dehumanising. This leads to a social problem: the loss of personhood in dementia care. The communication technique Intensive Interaction, however, honours personhood. The current study aimed to explore how paid caregivers of people with dementia enact societal discourses of dementia, with and without the context of Intensive Interaction. This was to explore ways to address the loss of personhood in dementia care. Method Paid caregivers from two residential care homes attended an Intensive Interaction training day. Caregivers part

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2

Olaison, Anna, and Elisabet Cedersund. "Home care as a family matter? Discursive positioning, storylines and decision-making in assessment talk." Communication and Medicine 5, no. 2 (March 14, 2009): 145–58. http://dx.doi.org/10.1558/cam.v5i2.145.

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Home care arrangements for older people are coordinated via a client-centred assessment process. This article describes how storylines and discursive positioning are used among older people and their relatives when divergent opinions of care needs are expressed. Eleven assessment interviews were studied using discourse analysis. The results show that relatives and older people advanced three major storylines, and positioned themselves within them with respect to the need for help. These storylines were based on whether the persons viewed home care as an intrusion into daily routines and relati

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Bentwich, Miriam Ethel, Ya'arit Bokek-Cohen, and Nomy Dickman. "How figurative language may be related to formal care-givers’ person-centred approach toward their patients with dementia." Ageing and Society 39, no. 12 (July 17, 2018): 2653–70. http://dx.doi.org/10.1017/s0144686x18000685.

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AbstractPerson-centred care that respects a patient's personhood is the gold standard in dementia care, which is often difficult to achieve given the complexity of caring for people with dementia. This article delves into the narration style of formal care-givers from a variety of ethno-cultural backgrounds in search of linguistic cues that may be related to their emphasis on a person-centred approach to care. A qualitative study, using a discourse analysis of semi-structured interviews with 20 formal care-givers in an institutional setting, was employed. The care-givers fell into three groups

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4

Tefre, Øyvind S. "The Child’s Best Interests and the Politics of Adoptions from Care in Norway." International Journal of Children’s Rights 28, no. 2 (June 17, 2020): 288–321. http://dx.doi.org/10.1163/15718182-02802004.

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This paper examines how Norway turned to a more active policy on adoption in the child welfare system. It examines the full public records from all four times that the government and Storting debated adoption from care, over the period 2002–2013. I analyse the empirical and normative arguments that shaped policy, through a discourse theoretical framework (Habermas, 1996) to distinguish different types of arguments. The Article contributes an empirical case for analysing the normative aspects of social and welfare policy. The findings show that an active adoption policy is justified by strength

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Rodrigo, María José, Ana Delia Correa, María Luisa Máiquez, Juan Carlos Martín, and Guacimara Rodríguez. "Family Preservation Services on the Canary Islands." European Psychologist 11, no. 1 (January 2006): 57–70. http://dx.doi.org/10.1027/1016-9040.11.1.57.

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This article describes the results of a parenting program “Apoyo Personal y Familiar,” (APF; Personal and Family Support program) targeted at parents of families at high psychosocial risk. APF aims at preventing unnecessary placement of children from vulnerable families into foster-care by increasing parental competence in order to improve their autonomous functioning. The program is implemented through group meetings in community centers. The method involves exposing the parents to parental views and practices in specific child-rearing episodes and encouraging them to reflect on their own vie

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6

Bogdanova, Elena. "Russian SOS Children’s Villages and Deinstitutionalisation Reform: Balancing between Institutional and Family Care." Journal of Social Policy Studies 15, no. 3 (September 25, 2017): 395–406. http://dx.doi.org/10.17323/727-0634-2017-15-3-395-406.

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 Elena Bogdanova – PhD (Kandidat Nauk) in Sociology, Research Fellow, Centre for Independent Social Research; Visiting Lecturer, University of Eastern Finland, European University at St. Petersburg, Russian Federation. Email: bogdanova.nova@gmail.com  This article examines how Russian SOS Villages are undergoing foster reform, which prescribes a transition from institutional care for children deprived of parental care to family care model. The article analyses the problems and transformations experienced by SOS Villages, outlining the aims, instruments, and priorities of the

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7

Wilbur, Jane, Tess Bright, Thérèse Mahon, Shaffa Hameed, Belen Torondel, Wakisa Mulwafu, Hannah Kuper, and Sarah Polack. "Developing Behaviour Change Interventions for Improving Access to Health and Hygiene for People with Disabilities: Two Case Studies from Nepal and Malawi." International Journal of Environmental Research and Public Health 15, no. 12 (December 5, 2018): 2746. http://dx.doi.org/10.3390/ijerph15122746.

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Limited evidence exists about how to design interventions to improve access to health care for people with disabilities in low and middle-income countries (LMICs). This paper documents the development of two behaviour change interventions. Case study one outlines the design of an intervention to improve uptake of referral for ear and hearing services for children in Malawi. Case study two describes the design of an intervention to improve menstrual hygiene management for people with intellectual impairments in Nepal. Both followed existing approaches—Medical Research Council Guidance for devel

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8

Noyes, Jane P., Lesley Lowes, Rhiannon Whitaker, Davina Allen, Cynthia Carter, Rhiannon T. Edwards, Joanne Rycroft-Malone, et al. "Developing and evaluating a child-centred intervention for diabetes medicine management using mixed methods and a multicentre randomised controlled trial." Health Services and Delivery Research 2, no. 8 (March 2014): 1–442. http://dx.doi.org/10.3310/hsdr02080.

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AimTo develop and evaluate an individually tailored age-appropriate diabetes diary and information pack for children and young people aged 6–18 years with type 1 diabetes to support decision-making and self-care with a specific focus on insulin management and blood glucose monitoring, compared with available resources in routine clinical practice.DesignFour-stage study following the Medical Research Council framework for designing and evaluating complex interventions. Stage 1: context – brief review of reviews and mixed-method systematic review; updating of database of children’s diabetes info

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9

Hughes, Thomas, Mikkel Brok-Kristensen, Yosha Gargeya, Anne Mette Worsøe Lottrup, Ask Bo Larsen, Ana Torres-Ortuño, Nicki Mackett, and John Stevens. "“He's a normal kid now”: an ethnographic study of challenges and possibilities in a new era of haemophilia care." Journal of Haemophilia Practice 7, no. 1 (December 17, 2020): 150–57. http://dx.doi.org/10.17225/jhp00167.

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AbstractBackgroundRecent treatment option advances in haemophilia care have contributed to a discourse of ‘normality’ around the condition, in which people with haemophilia (PwH) are increasingly expected to live ‘normal’ lives unburdened by their condition.AimThe aim of this article is to explore notions of ‘normality’ in the experience of haemophilia across generations. This is one of the main themes identified in a large-scale ethnographic study of the everyday life of PwH, a broad qualitative investigation of beliefs and experiences related to condition, treatment, and personal ways of man

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10

Isaacs, David. "Family‐centred care." Journal of Paediatrics and Child Health 56, no. 1 (January 2020): 3–4. http://dx.doi.org/10.1111/jpc.14664.

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11

Mitchell, Marion L. "Patient, Family Centred Care." Australian Critical Care 29, no. 4 (November 2016): 176–77. http://dx.doi.org/10.1016/s1036-7314(16)30091-1.

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12

Shields, Linda. "Questioning family-centred care." Journal of Clinical Nursing 19, no. 17-18 (August 15, 2010): 2629–38. http://dx.doi.org/10.1111/j.1365-2702.2010.03214.x.

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13

Westbrook, Kevin W., Cori Cohen Grant, Ed Rafalski, and Emin Babakus. "Patient-family Centred Care." Journal of Health Management 17, no. 3 (August 24, 2015): 304–15. http://dx.doi.org/10.1177/0972063415589232.

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14

Valentine, Fay. "Empowerment: family-centred care." Paediatric Nursing 10, no. 1 (February 1, 1998): 24–27. http://dx.doi.org/10.7748/paed.10.1.24.s26.

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15

Fox, Jennifer A., John Rosenberg, Stuart Ekberg, and Danette Langbecker. "Palliative care in the context of immune and targeted therapies: A qualitative study of bereaved carers’ experiences in metastatic melanoma." Palliative Medicine 34, no. 10 (April 27, 2020): 1351–60. http://dx.doi.org/10.1177/0269216320916154.

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Background: Immune and targeted therapies continue to transform treatment outcomes for those with metastatic melanoma. However, the role of palliative care within this treatment paradigm is not well understood. Aim: To explore bereaved carers’ experiences of immune and targeted therapy treatment options towards end of life for patients with metastatic melanoma. Design: An interpretive, qualitative study using a social constructivist framework was utilised. Interviews were recorded, transcribed and analysed using grounded theory methods. Setting/participants: Participants ( n = 20) were bereave

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16

Harding, Rebecca. "Reflections on family-centred care." Paediatric Nursing 9, no. 9 (November 1997): 19–21. http://dx.doi.org/10.7748/paed.9.9.19.s21.

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17

Bubear, Tina Ann. "Family-centred care in brunei." Nursing Standard 9, no. 10 (November 30, 1994): 12. http://dx.doi.org/10.7748/ns.9.10.12.s72.

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18

Walton, Mary K. "Person- and family-centred care." British Journal of Nursing 23, no. 17 (September 25, 2014): 949. http://dx.doi.org/10.12968/bjon.2014.23.17.949.

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19

Shields, Linda. "WHAT IS “FAMILY-CENTRED CARE”?" European Journal for Person Centered Healthcare 3, no. 2 (June 3, 2015): 139. http://dx.doi.org/10.5750/ejpch.v3i2.993.

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Family-centred care is a ubiquitous term in paediatric health facilities. It means that an admitted child can never be treated as a single individual patient, that the family is the unit of care, as the parents and family are central to the child’s wellbeing, especially during traumatic experiences. There is no rigorous evidence that family-centred care works, but qualitative research is drawing out some grave concerns with how it is implemented. Part of the problem is that there are many descriptions of family-centred care, but few definitions, and some of its component parts may be in place

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20

Nijhuis, B. J. G., H. A. Reinders-Messelink, A. C. E. de Blécourt, W. M. G. C. Hitters, J. W. Groothoff, H. Nakken, and K. Postema. "Family-centred care in family-specific teams." Clinical Rehabilitation 21, no. 7 (July 2007): 660–71. http://dx.doi.org/10.1177/0269215507077304.

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21

Jordan, P. J. "Family-centred care in intensive care units." Southern African Journal of Critical Care 34, no. 2 (November 8, 2018): 34. http://dx.doi.org/10.7196/sajcc.2018.v34i2.369.

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22

McLaughlin, Kieran, Vidar Melby, and Vivien Coates. "Family-centred care during resuscitation events." Emergency Nurse 21, no. 3 (June 2013): 28–34. http://dx.doi.org/10.7748/en2013.06.21.3.28.e1152.

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23

Hjorngaard, Tina. "Family-Centred Care: A Critical Perspective." Physical & Occupational Therapy In Pediatrics 31, no. 3 (June 28, 2011): 243–44. http://dx.doi.org/10.3109/01942638.2011.589728.

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24

Mushtaq, Ammara, and Farooq Kazi. "Family-centred care in the NICU." Lancet Child & Adolescent Health 3, no. 5 (May 2019): 295–96. http://dx.doi.org/10.1016/s2352-4642(19)30089-6.

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25

Bradshaw, Maureen, Valerie Coleman, and Lynda Smith. "Interprofessional learning and family-centred care." Paediatric Nursing 15, no. 7 (September 2003): 30–33. http://dx.doi.org/10.7748/paed.15.7.30.s26.

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26

Hutchfield, Kay. "Family‐centred care: a concept analysis." Journal of Advanced Nursing 29, no. 5 (May 1999): 1178–87. http://dx.doi.org/10.1046/j.1365-2648.1999.00987.x.

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27

Polfrey, Katrina. "Family-centred care: theory to practice." British Journal of Nursing 22, no. 22 (December 12, 2013): 1319. http://dx.doi.org/10.12968/bjon.2013.22.22.1319.

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28

While, Alison. "Family centred nursing care of children." Nurse Education Today 11, no. 6 (December 1991): 481. http://dx.doi.org/10.1016/0260-6917(91)90026-7.

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29

Dan, Bernard. "Postmodern family‐centred care for disability." Developmental Medicine & Child Neurology 63, no. 7 (June 2, 2021): 760. http://dx.doi.org/10.1111/dmcn.14905.

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30

Baker, Sarah. "Family centred care: a theory practice dilemma." Paediatric Nursing 7, no. 6 (July 1995): 17–20. http://dx.doi.org/10.7748/paed.7.6.17.s22.

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31

Crawford, Doreen. "From iron lungs to family-centred care." Nursing Children and Young People 24, no. 5 (June 7, 2012): 6. http://dx.doi.org/10.7748/ncyp2012.06.24.5.6.p8527.

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32

Crawford, Doreen. "From iron lungs to family-centred care." Nursing Children and Young People 24, no. 5 (June 7, 2012): 7. http://dx.doi.org/10.7748/ncyp.24.5.7.s11.

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33

Arabiat, Diana, Lisa Whitehead, Mandie Foster, Linda Shields, and Linda Harris. "Parents' experiences of Family Centred Care practices." Journal of Pediatric Nursing 42 (September 2018): 39–44. http://dx.doi.org/10.1016/j.pedn.2018.06.012.

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34

Turrill, Sue. "Interpreting family-centred care within neonatal nursing." Paediatric Nursing 11, no. 4 (May 1, 1999): 22–24. http://dx.doi.org/10.7748/paed.11.4.22.s24.

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35

Bradshaw, Maureen, Valerie Coleman, Shirley Cutts, Christine Guest, and Julia Twigg. "Family-centred care: A step too far?" Paediatric Nursing 12, no. 10 (December 1, 2000): 6–7. http://dx.doi.org/10.7748/paed.12.10.6.s8.

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36

Geurts, Esther M. W., Janet Boddy, Marc J. Noom, and Erik J. Knorth. "Family-centred residential care: the new reality?" Child & Family Social Work 17, no. 2 (April 4, 2012): 170–79. http://dx.doi.org/10.1111/j.1365-2206.2012.00838.x.

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37

Uniacke, Suzanne, Tamara Kayali Browne, and Linda Shields. "How should we understand family-centred care?" Journal of Child Health Care 22, no. 3 (January 18, 2018): 460–69. http://dx.doi.org/10.1177/1367493517753083.

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What is family-centred care of a hospitalized child? A critical understanding of the concept of family-centred care is necessary if this widely preferred model is to be differentiated from other health care ideals and properly evaluated as appropriate to the care of hospitalized children. The article identifies distinguishable interpretations of family-centred care that can pull health professionals in different, sometimes conflicting directions. Some of these interpretations are not qualitatively different from robust interpretations of the ideals of parental participation, care-by-parent and

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38

Ochieng, Bertha M. N. "Minority Ethnic Families and Family-Centred Care." Journal of Child Health Care 7, no. 2 (June 2003): 123–32. http://dx.doi.org/10.1177/1367493503007002006.

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39

Becker, Patricia T. "Family Centred Care: Concept, Theory and Practice." Journal of Advanced Nursing 40, no. 6 (December 2002): 747. http://dx.doi.org/10.1046/j.1365-2648.2002.24402.x.

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40

Clarke, Sean P. "Patient- and Family-Centred Care: Some Solutions." Canadian Journal of Nursing Research 46, no. 3 (September 2014): 3–5. http://dx.doi.org/10.1177/084456211404600301.

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41

McHugh, Gretl. "Family centred care—concept, theory and practice." International Journal of Nursing Studies 39, no. 8 (November 2002): 879–80. http://dx.doi.org/10.1016/s0020-7489(02)00026-3.

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42

Rasmussen, Shayne, Tineke Water, and Annette Dickinson. "Children’s perspectives in family-centred hospital care." Contemporary Nurse 53, no. 4 (April 13, 2017): 445–55. http://dx.doi.org/10.1080/10376178.2017.1315829.

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43

Shields, Linda. "Family-centred care: the ‘captive mother’ revisited." Journal of the Royal Society of Medicine 109, no. 4 (November 25, 2015): 137–40. http://dx.doi.org/10.1177/0141076815620080.

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44

Westrup, B. "Family Centred Care - from a Systems Perspective." Pediatric Research 70 (November 2011): 48. http://dx.doi.org/10.1038/pr.2011.273.

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45

Caruana, Emily. "Family-centred care for children in hospital." Journal of Advanced Nursing 63, no. 1 (July 2008): 26. http://dx.doi.org/10.1111/j.1365-2648.2008.04674.x.

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46

Bergbom, Ingegerd. "Family centred care across the life continuum." Connect: The World of Critical Care Nursing 6, no. 3 (September 2008): 44–50. http://dx.doi.org/10.1891/1748-6254.6.3.44.

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47

Reid, Shelley, Sandie Bredemeyer, and Mary Chiarella. "The evolution of neonatal family centred care." Journal of Neonatal Nursing 27, no. 5 (October 2021): 327–33. http://dx.doi.org/10.1016/j.jnn.2021.03.002.

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48

Cullinane, A. M. "PAEDIATRIC CRITICAL CARE NURSES??? PERCEPTIONS OF FAMILY-CENTRED CARE." Pediatric Critical Care Medicine 6, no. 2 (March 2005): 247. http://dx.doi.org/10.1097/00130478-200503000-00085.

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49

ROETS, LIZETH, NATASJA ROWE-ROWE, and RIETTE NEL. "Family-centred care in the paediatric intensive care unit." Journal of Nursing Management 20, no. 5 (April 24, 2012): 624–30. http://dx.doi.org/10.1111/j.1365-2834.2012.01365.x.

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50

Davidson, Judy E., and Steffanie A. Strathdee. "The future of family-centred care in intensive care." Intensive and Critical Care Nursing 50 (February 2019): 3–4. http://dx.doi.org/10.1016/j.iccn.2018.03.003.

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