Academic literature on the topic 'Hospice Care Architecture of Dying'

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Journal articles on the topic "Hospice Care Architecture of Dying"

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Bellamy, Annie. "4 Designing dying well: toward a new architectural approach of in-patient palliative care environments." BMJ Supportive & Palliative Care 8, no. 3 (2018): 361.1–361. http://dx.doi.org/10.1136/bmjspcare-2018-mariecurie.4.

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Neither a ‘hospital’ nor a ‘home’; the in-patient hospice has a unique architectural identity remaining largely undocumented. There is a plethora of architectural research regarding more common-place healthcare buildings such as hospitals and care-homes. (RIBA n.d) However the architecture of in-patient hospices is misunderstood in the role it can play in supporting the holistic principles of palliative care as backdrops for ‘not just a good death but a good life to the very end’ (Gawande 2014, pg. 245).Reconciling the social and spatial this research aims to establish an authentic identity for in-patient hospices; developing opportunities and situations for environments that become ‘sympathetic extensions of our sense of ourselves’ (Bloomer KC + Moore CW 1977, pg. 78) enabling those at the end of their life to dwell with dignity.An ethnographic study involving practise led design research; the research engages with experiences of the researcher and users of Welsh in-patient hospices alongside interrogations of existing architectural strategies. This inter-disciplinary methodology will provide a ‘back and forth’ movement to reflect with the community of practise upon design projects and fieldwork.Foundation work concluded that ‘homely’ is a too broad and subjective concept with which to define meaningful architectural responses for the variety of users and uses of in-patient hospices. Building upon this initial visits to Welsh in-patient hospices and design primers of key moments of inhabitation aims to provide conclusions on how architecture can create and balance the individual phenomenological experiences and needs of patients family and staff.References. RIBA. Health buildings and hospitals [Online] (n.d). Available at https://www.ribabookshops.com/books/health-buildings-and-hospitals/010503/ (Accessed: 31 May 2018). Gawande A. Being mortal: Medicine and what matters in the end2014;245. New York: Metropolitan Books Henry Holt and Company.. Kent BC, Charles MW. Body memory and architecture1977;78. New Haven & London: Yale University Press.
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CORLESS, INGE B. "Dying Well: Symptom Control Within Hospice Care." Annual Review of Nursing Research 12, no. 1 (1994): 125–46. http://dx.doi.org/10.1891/0739-6686.12.1.125.

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Montana, Bridget J. "Is hospice care dying in the USA?" International Journal of Palliative Nursing 19, no. 7 (2013): 316–17. http://dx.doi.org/10.12968/ijpn.2013.19.7.316.

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Franco, Vincent W. "The hospice: Humane care for the dying." Journal of Religion & Health 24, no. 1 (1985): 79–89. http://dx.doi.org/10.1007/bf01533262.

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Ashton, Joyce Marsden. "Bereavement Care in Home Care and Hospice." Home Health Care Management & Practice 20, no. 5 (2008): 394–99. http://dx.doi.org/10.1177/1084822307311840.

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The diagnosis of a chronic or terminal illness causes a variety of emotions for the patient and the care giver. Often bereavement and grief are not addressed by health care professionals. This article seeks to assist the health care provider in understanding the grief process and in offering interventions to aid the ill and dying.
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Clark, Peter A. "Palliative Care and Hospice: A Paradigm for End-of-Life Care in Developing Nations." Journal of Advances in Internal Medicine 6, no. 2 (2017): 38–44. http://dx.doi.org/10.3126/jaim.v6i2.18541.

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Traditionally, medical care has had two mutually exclusive goals: either to cure disease and to prolong life or to provide comfort care. Given this dichotomy, the decision to focus on reducing suffering is made usually only after life-prolonging treatment has been ineffectual and death is imminent, usually by days or hours. As a result, one of the best kept secrets in a hospital today in the United States is palliative care and hospice care. We estimate that of the 2.4 million Americans that die each year, about 80% end their lives in hospitals attached to the latest advances in technology; 300,000 die at home under hospice care. The reasons why more people do not receive palliative or hospice care range from the patient’s fear of abandonment and the unknown, the family’s denial of the inevitability of death of their loved one, and physician’s denial of medicine’s limitations. Unless the options of palliative or hospice care are given to patients the fears that people have of dying--fear of dying alone and fear of dying in pain--will continue to make the dying process one that lacks dignity and respect. In this review article we have reviewed the state of palliative and hospice care in the United States through a historical, ethical and legal perspective. We have discussed its scope in the developing world and the potential challenges.Journal of Advances in Internal Medicine 2017;06(02):38-44.
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Boquet, Jaime R., Debra Parker Oliver, Elaine Wittenberg-Lyles, Ardith Z. Doorenbos, and George Demiris. "Taking Care of a Dying Grandparent." American Journal of Hospice and Palliative Medicine® 28, no. 8 (2011): 564–68. http://dx.doi.org/10.1177/1049909111405644.

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This study aims to provide insight into the role of grandchildren as informal hospice caregivers. It presents 4 cases that highlight the challenges and perceptions of grandchildren who care for a grandparent at the end of life. A researcher met regularly with family caregivers to discuss the problems or challenges during hospice caregiving. Although each caregiver presented unique individual experiences, several themes are common among the family caregivers including fatigue, stress, guilt, and loss of the “grandchild” identity. Grandchildren caregivers often take care of 3 generations (grandparents, parents, and children) and in many cases need additional assistance to help them overcome the challenges associated with managing a household, career, family, and caregiving roles.
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Broom, Alex. "On Euthanasia, Resistance, and Redemption." Qualitative Health Research 22, no. 2 (2011): 226–37. http://dx.doi.org/10.1177/1049732311421181.

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Euthanasia/assisted dying, the desire to hasten death, and religious supportive care at the end of life are controversial issues that have been heavily debated within the academic and medical communities. Little research has been done on hospice patients’ views, despite hospices being political spaces, espousing a range of perspectives on assisted dying, religiosity, and “good deaths.” In this article I document the presence, articulation, and significance of these issues as perceived and experienced by 20 hospice inpatients in the last 4 weeks of their lives. Key themes to emerge included polarization in desire for hastened death and assisted dying in the hospice; the hospice as a morally bound space situated within particular notions of “dying well”; and the divisive character of religion as part of formalized hospice care. Theoretically, the participants’ perspectives on euthanasia/assisted dying and religiosity in the hospice provide a means of unpacking and revealing the moral economy of modern dying practices and the institutional governance and production of “timely deaths.”
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Morrow, Barbara R., J. Maier, and Walter Kelley. "Dying with Dignity: Hospice Care on the Unit." Journal of Psychosocial Nursing and Mental Health Services 27, no. 11 (1989): 10–13. http://dx.doi.org/10.3928/0279-3695-19891101-09.

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Rutland-Wallis, Martha Ann. "When Dying is Living: Hospice Pastoral Care and Education." Journal of Pastoral Care 50, no. 1 (1996): 41–48. http://dx.doi.org/10.1177/002234099605000105.

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Explores the relevance of Robert Kegan's concepts to the practice of pastoral care in a hospice context and illustrates the explanatory power of the concepts through the use of case histories. Outlines the implications of Kegan's theory for supervision in Clinical Pastoral Education within a hospice environment.
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Dissertations / Theses on the topic "Hospice Care Architecture of Dying"

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Schreur, Kevin A. "The Architecture of Dying: Understanding the Role of Architecture in the Hospice Community." University of Cincinnati / OhioLINK, 2009. http://rave.ohiolink.edu/etdc/view?acc_num=ucin1251132243.

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Sharifi, Nahal Alsadat. "Children's Hospice Care." Thesis, Virginia Tech, 2016. http://hdl.handle.net/10919/71772.

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With advancements in medical technology, the mechanics of dying and death has changed significantly. Centuries ago, people mostly died of infectious diseases. From the time they were diagnosed, to the time of their death did not take long. Today, public health has improved remarkably. We have a better control over infectious diseases, but we have to deal with cancer and other chronic illnesses. The long period of treatment for such illnesses makes us spend a lot of our time in healthcare facilities such as hospitals, hospices, and care homes. Unfortunately, in many cases, these facilities do not pay much attention to emotional and spiritual needs of their patients and are mostly designed around their own institutional and technological needs. In that regard, these buildings become pretty awful places with no natural light and long corridors. Today, due to the nature of chronic diseases that we mostly deal with, hospice care facilities are becoming more popular. The idea of a hospice is to focus on quality of the place for families and patients who have already spent a lot of their time in a hospital setting. The goal is provide humane care for patients who do not have much time left, to make sure that they live the remainder of their lives as comfortably and as fully as possible. It is important to remember that when such facilities are designed for children, we need to pay extra attention to their unique needs. It is important to provide opportunities for children with terminal illnesses to continue to learn and grow. This thesis is exploration of an architectural setting in which children with a terminal prognosis would spend the last few weeks of their lives. Located in Old Town Alexandria, Virginia, this project takes advantage of the existing nature of the site to create an oasis for families who have gone through an exhausting battle with an untreatable disease. The goal is to shift the focus from curing to healing and to create a nurturing place that helps to bring normalcy back to the lives of patients and their families.<br>Master of Architecture
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Wilson, Monika Anne. "Accompanying them home : the ethics of hospice palliative care." Queensland University of Technology, 2009. http://eprints.qut.edu.au/20536/.

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This inquiry, which employed a narrative research approach, critically explored the ethical dimension of hospice palliative care. Hospice palliative care is the profession specifically developed to care for the dying. The development of this practice has grown significantly since the 1980s in Australia, yet ethical inquiry into this professional practice has largely focused on particular issues, problems or dilemmas, such as euthanasia. Although particular ethical issues are important considerations, a broader investigation of the ethics of hospice palliative care practice has not been given sufficient consideration in the growing accumulation of the research literature in Australia. Jennings (1997) surmises that “systematic reflection on ethics in the hospice field is curiously underdeveloped” (p. 2). This study goes someway towards filling this gap. In building upon the Pallium research by European scholars and integrating a social practice framework (Isaacs, 1998) this inquiry provides an alternative account of the ethical agenda and one which has privileged an internal exploration, rather than assume that the ethics would be the same as any other health care modality or to simply adopt a dominant, principles-based approach. These internal explorations were located in the storied accounts of thirty interdisciplinary hospice palliative care professionals. This thesis provides a thorough, textual conversation into the realm of ethical caregiving at the end of life. Several key insights were illuminated. Firstly, total care must be central to the philosophy underpinning hospice palliative care practice, but this concept and practice of total care was being eroded and contested. Secondly, a predominantly modernist account of personhood was located in the narrative accounts. This modernist account of personhood was thought to be insufficient for the practice of total care and needed to be reconceptualised. An embedded ontological account was provided which would assist with the understanding and practice of total care. Thirdly, initially it was thought that there was no common, shared understanding of the purpose of the practice. It was suggested that the profession was “wandering in the wilderness” when it came to the aim of its practice. However, the professionals did share a common telos (aim towards a good) and it was overwhelmingly relational. This led to the proposal of a new telos for hospice palliative care practice centered on the creation and maintenance of unique relationships which would assist people in their final stage of life. Lastly, the ethical frameworks which guided practice for the professionals were presented. In these frameworks it was significant values (acceptance of human mortality, total care and honest and open communication) and relationships (how we treat each other) which played the main role in what constituted hospice palliative care ethics. An account of a hospice palliative care ethical relationship was provided which included a proximity stance of in-between. Overall, any ethic for hospice palliative care must have at the heart the relationship between professional caregiver and living-dying person. The relationships in this social practice, between each other, accompanying one another, are our ethical compass. This thesis concluded that hospice palliative care, as a social practice, has a rich ethical dimension as understood and articulated by its professional members. These insights have resulted in the construction of a new ethical framework reflecting, formalising and adapting the ethical dimension as understood by its professional members. This ethical framework - A Relational Ethic of Accompanying - is needed to help maintain, sustain and protect the unique identity of this profession. This framework adds to the “moral vocabulary” (Jennings, 1997) and “moral specificity” (ten Have & Clark, 2002) of hospice palliative care practice. In addition, it would provide important guidance to palliateurs reflecting on how best to provide quality, compassionate and ethical care at the end of life.
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Russell, Sarah. "Advance care planning and living with dying : the views of hospice patients." Thesis, University of Hertfordshire, 2017. http://hdl.handle.net/2299/17474.

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Advance care planning for adults is a process of consideration, discussion and decisions about care at the end of life. There is evidence that advance care planning improves outcomes such as the achievement of preferred place of death and the quality of dying. However, the uptake of advance care planning is variable. There are calls for more research to understand what influences people to carry it out to plan services and improve the quality of life of patients and their families. This dissertation reports on a qualitative, video interview study of 15 adult hospice patients. The study was interpretative influenced by the narrative approach with data driven thematic analysis and a video aide memoir. Coding was carried out using the Computer Assisted Qualitative Data Software programme Transana. The rigour and credibility of the study was viewed through the lens of trustworthiness which included the development of a Continuous Conversation Framework. The aim of the study was to investigate what would influence hospice patients to discuss their advance care planning to develop future education programmes based upon the perspectives of people at the end of their life: 1. What influences hospice patients in their advance care planning? 2. What communication skills do hospice patients find helpful when clinicians discuss advance care planning? Three findings are reported. These suggest that the influences on advance care planning activity and conversations is the less reported relationship of the personal context of a person's life (as well as services, diagnosis and prognosis considerations). First, the findings highlight the relevance of how people with an incurable illness live with and talk about their dying within the individual context of their daily lives. Secondly, differences are illustrated between how people prepare (for themselves) and plan (for others) in their dying. Thirdly, clinician communication behaviours such as empathy (through mutual connection and visible behaviours), tailored conversations (through accessible and selective honesty) and the design and use of space empower people to carry out conversations which support them as they live with, prepare and plan for dying. The three findings contribute to the perspective which supports the complexity of advance care planning that should focus on the context of person's life as well as the paperwork, prognosis or diagnosis. A contribution to person-centred care is suggested through a model of relational advance care planning.
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Hopper, Ann. "Dying values : a study of professional knowledge and values in health care practice." Thesis, University of Exeter, 2000. http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.312282.

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Corker, Deborah Jo. "PHYSICIAN'S EXPERIENCES WITH DEATH AND DYING: A PHENOMENOLOGICAL STUDY." OpenSIUC, 2010. https://opensiuc.lib.siu.edu/dissertations/212.

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This qualitative phenomenological study attempts to gain the physician's essences, meanings and understanding surrounding death and dying. Starting with themes revealed in literature, in-depth interviews were used to ask selected physicians providing care: How does death affect them? Are physicians receiving adequate training in end-of-life care? Does the medical culture still see death as failure? How do they find meaning in end-of-life care? Using three different groups of physicians: early in career, mid-career, and retired, this research attempted to examine the phenomena of death and dying over apparent time and developmental experiences of physicians. Results: Physicians have not been adequately trained to handle end-of-life care. Communications skills, specific end-of-life care training and support for physicians dealing with death and dying are needed.
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Atala, Sarah R. "How Hospice Nurses' Beliefs About Death and Dying Frame Their Caregiving." Miami University / OhioLINK, 2014. http://rave.ohiolink.edu/etdc/view?acc_num=miami1397755066.

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Klein, Ellen W. "Changing Landscapes: End-of-Life Care & Communication at a Zen Hospice." Scholar Commons, 2014. https://scholarcommons.usf.edu/etd/5364.

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This dissertation examines end-of-life experiences at a small Zen hospice in the Pacific Northwest region of the United States. Through an exploration of how end-of-life communication, sense-making, decision-making, and care in this setting differ from that of typical clinical settings, this project highlights and interrogates the experiences of dying as spiritually, rhetorically, narratively, relationally, and communally bound events. Keywords: Zen hospice, end of life, narrative sensemaking, medical-ethical decision making, spirituality, healing rhetoric, communities of practice
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Mak, Kiu-yan Wayne. "Towards nirvanna : a Buddhist hospice /." Hong Kong : University of Hong Kong, 1996. http://sunzi.lib.hku.hk/hkuto/record.jsp?B25955585.

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Källström, Karlsson Inga-Lill. "Att leva nära döden : patienters och vårdpersonals erfarenheter inom hospicevård." Doctoral thesis, Örebro universitet, Hälsoakademin, 2009. http://urn.kb.se/resolve?urn=urn:nbn:se:oru:diva-5439.

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This research focused on experiences of dying patients and hospice nurses in a hospice unit. The research objectives were to (i) acquire more extensive knowledge about how dying patients and hospice nurses experience life and death and (ii) describe patients who were cared for during a 10-year period in an inpatient hospice ward. Data were gathered via interviews with 19 nurses and 11 patients. An interpretive description method was used to analyze interview results. Data were also gathered from institutional care records that included gender, age, marital status, diagnosis, referral source, and length of stay (666 women and 555 men). Descriptive statistics were used to describe basic features of the study's data and to compare differences between women and men. The main finding from interviewing the nurses was that they were struggling to acknowledge and unveil the person within the weakening body. In doing so, they used various strategies such as (i) striving to understand patients’ experiences of body function loss; (ii) encouraging patients to uphold body functions and daily habits; (iii) acknowledging and balancing patients’ need for body control; and (iv) providing tender care for the body. After 2 years of work in hospice care, nurses described that facing the dying and death of many patients had an impact on daily work and private life. The close relationship with the dying patient led to existential issues concerning the meaning of life and death, which were conceptualized into this theme: death as an agent of change. Eleven years later, the presence of death took a less dominant place in the nurses’ lives, and the theme became: death as a companion in life. In the long-term, nurses emphasized that their relationships with dying patients fostered their professional and personal growth. The findings from interviewing the patients revealed that when death became a reality, life took on new meaning, and they acquired new values that were important to preserve or protect; this triggered need for feeling secure within this situation. These revelations were manifest in three sub-themes: (i) when possible death becomes a reality; (ii) living with death as a reality, and (iii) a need for a feeling of security. And this main theme was conceptualized: making sense of life close to death. Results regarding patients in hospice ward care over a 10-year period revealed significant differences between women and men. More women than men were single, had cancer with relatively short trajectories, and were referred from the oncology department. More men than women were diagnosed with types of cancer with somewhat longer trajectories. Despite longer trajectories, length of stay was shorter for men than for women. The most frequent referral source was the hospital. But compared to women, men (particularly younger men) were more often referred from home-based hospice care. The findings expand knowledge about dying and its various configurations; consequently, care and support needs will vary. For the dying person, it is important to know that care is provided according to the person’s preferences and given when needed.
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Books on the topic "Hospice Care Architecture of Dying"

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Dying for care: Hospice care or euthanasia. NC Press, 1992.

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Chase, Deborah. Dying at home with hospice. C.V. Mosby Co., 1986.

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Resnik, David B. Dying declarations: Notes from a hospice volunteer. Haworth Pastoral Press, 2005.

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Rodney, Smith. Lessons from the dying. 2nd ed. Wisdom Publications, 2015.

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Rodney, Smith. Lessons from the dying. Wisdom Publications, 1998.

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Foundation, Irish Hospice, ed. Audacity to love: The story of Hospice Africa : bringing hope and peace for the dying. Irish Hospice Foundation, 2010.

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At home with dying: A Zen hospice approach. Shambhala, 1999.

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Life in a hospice: Reflections on caring for the dying. Radcliffe Publishing, 2007.

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Lembke, Janet. The quality of life: Living well, dying well. Lyons Press, 2003.

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1949-, Refuerzo Ben J., ed. Innovations in hospice architecture. Taylor and Francis, 2006.

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Book chapters on the topic "Hospice Care Architecture of Dying"

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Verderber, Stephen, and Ben J. Refuerzo. "On dying, nature, and the machine." In Innovations in Hospice Architecture. Routledge, 2019. http://dx.doi.org/10.4324/9780429316104-2.

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McGilly, Helena, and Florence Haines. "Care in a hospice." In Caring for the Dying Patient and the Family. Springer US, 1995. http://dx.doi.org/10.1007/978-1-4899-3376-8_18.

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Verderber, Stephen, and Ben J. Refuerzo. "Designing for palliative care." In Innovations in Hospice Architecture. Routledge, 2019. http://dx.doi.org/10.4324/9780429316104-4.

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Pope, Gail, and Amir Shanan. "Comfort Care During Active Dying." In Hospice and Palliative Care for Companion Animals. John Wiley & Sons, Inc., 2017. http://dx.doi.org/10.1002/9781119036722.ch22.

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Cruz-Oliver, Dulce M. "Hospice/Palliative Care: Concepts of Disease and Dying." In Ethnogeriatrics. Springer International Publishing, 2016. http://dx.doi.org/10.1007/978-3-319-16558-5_10.

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"Inpatient hospice care." In The Dying Process. Routledge, 2002. http://dx.doi.org/10.4324/9780203130278-7.

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"On dying, nature, and the machine." In Innovations in Hospice Architecture. Taylor & Francis, 2003. http://dx.doi.org/10.4324/9780203358597-6.

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Clark, David. "Hospice Care of the Dying." In Death, Dying, and Bereavement. Springer Publishing Company, 2014. http://dx.doi.org/10.1891/9780826171429.0010.

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Maruyama, Teresa Chikako. "The Western Attitude to Death and Dying." In Hospice Care and Culture. Routledge, 2018. http://dx.doi.org/10.4324/9780429453892-5.

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Maruyama, Teresa Chikako. "The Japanese Attitude to Death and Dying." In Hospice Care and Culture. Routledge, 2018. http://dx.doi.org/10.4324/9780429453892-6.

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Conference papers on the topic "Hospice Care Architecture of Dying"

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Mazerolle, Emma, and Ross Chirgwin. "P-253 Dealing with dying educational workshops." In Transforming Palliative Care, Hospice UK 2018 National Conference, 27–28 November 2018, Telford. British Medical Journal Publishing Group, 2018. http://dx.doi.org/10.1136/bmjspcare-2018-hospiceabs.278.

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Thomas, Keri, Julie Armstrong Wilson, and Collette Clifford. "P-178 Can we give dying hospital patients better care?" In Leading, Learning and Innovating, Hospice UK 2017 National Conference, 22–24 November 2017, Liverpool. British Medical Journal Publishing Group, 2017. http://dx.doi.org/10.1136/bmjspcare-2017-hospice.203.

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Birch, Helen, Debbie Lawson, and Rachel Kennedy. "P-40 Guide to opening up hospice care." In Dying for change: evolution and revolution in palliative care, Hospice UK 2019 National Conference, 20–22 November 2019, Liverpool. British Medical Journal Publishing Group, 2019. http://dx.doi.org/10.1136/bmjspcare-2019-huknc.64.

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Reeves, Helen, Katie Taroni, Joe Potts, and Jeanette McCartney. "P-178 Widening access to hospice care – supporting end of life care in care homes." In Dying for change: evolution and revolution in palliative care, Hospice UK 2019 National Conference, 20–22 November 2019, Liverpool. British Medical Journal Publishing Group, 2019. http://dx.doi.org/10.1136/bmjspcare-2019-huknc.200.

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Atkinson, Joanne, Monique Lhussier, and Susan Carr. "P-13 Dying through the looking glass-media influences on death and dying." In Dying for change: evolution and revolution in palliative care, Hospice UK 2019 National Conference, 20–22 November 2019, Liverpool. British Medical Journal Publishing Group, 2019. http://dx.doi.org/10.1136/bmjspcare-2019-huknc.37.

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Lane, Claire, Rachel Morris, and Lorna Richardson. "P-37 Normalising death and dying: an introduction to hospice care for children." In Dying for change: evolution and revolution in palliative care, Hospice UK 2019 National Conference, 20–22 November 2019, Liverpool. British Medical Journal Publishing Group, 2019. http://dx.doi.org/10.1136/bmjspcare-2019-huknc.61.

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Tolliday, Elaine. "P-17 Understanding young people’s experience of hospice care." In Dying for change: evolution and revolution in palliative care, Hospice UK 2019 National Conference, 20–22 November 2019, Liverpool. British Medical Journal Publishing Group, 2019. http://dx.doi.org/10.1136/bmjspcare-2019-huknc.41.

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Allen, Gemma, Sharon Hudson, Alice Spearing, et al. "P-23 Hospice pride." In Dying for change: evolution and revolution in palliative care, Hospice UK 2019 National Conference, 20–22 November 2019, Liverpool. British Medical Journal Publishing Group, 2019. http://dx.doi.org/10.1136/bmjspcare-2019-huknc.47.

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Johnston, Mary, Louise Free, Ruth Bacon, and David Barclay. "P-112 Individualised care planning for dying patients – audits to improve practice." In Leading, Learning and Innovating, Hospice UK 2017 National Conference, 22–24 November 2017, Liverpool. British Medical Journal Publishing Group, 2017. http://dx.doi.org/10.1136/bmjspcare-2017-hospice.137.

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Herring, Mhairi, and Hayley Purser. "P-51 Death cafés: opening up about death, dying and bereavement." In Transforming Palliative Care, Hospice UK 2018 National Conference, 27–28 November 2018, Telford. British Medical Journal Publishing Group, 2018. http://dx.doi.org/10.1136/bmjspcare-2018-hospiceabs.76.

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