To see the other types of publications on this topic, follow the link: Hospice Care Architecture of Dying.
Dissertations / Theses on the topic 'Hospice Care Architecture of Dying'
Create a spot-on reference in APA, MLA, Chicago, Harvard, and other styles
Consult the top 50 dissertations / theses for your research on the topic 'Hospice Care Architecture of Dying.'
Next to every source in the list of references, there is an 'Add to bibliography' button. Press on it, and we will generate automatically the bibliographic reference to the chosen work in the citation style you need: APA, MLA, Harvard, Chicago, Vancouver, etc.
You can also download the full text of the academic publication as pdf and read online its abstract whenever available in the metadata.
Browse dissertations / theses on a wide variety of disciplines and organise your bibliography correctly.
1
Schreur, Kevin A. "The Architecture of Dying: Understanding the Role of Architecture in the Hospice Community." University of Cincinnati / OhioLINK, 2009. http://rave.ohiolink.edu/etdc/view?acc_num=ucin1251132243.
Full text
2
Sharifi, Nahal Alsadat. "Children's Hospice Care." Thesis, Virginia Tech, 2016. http://hdl.handle.net/10919/71772.
Full textAbstract:
With advancements in medical technology, the mechanics of dying and death has changed significantly. Centuries ago, people mostly died of infectious diseases. From the time they were diagnosed, to the time of their death did not take long. Today, public health has improved remarkably. We have a better control over infectious diseases, but we have to deal with cancer and other chronic illnesses. The long period of treatment for such illnesses makes us spend a lot of our time in healthcare facilities such as hospitals, hospices, and care homes.
Unfortunately, in many cases, these facilities do not pay much attention to emotional and spiritual needs of their patients and are mostly designed around their own institutional and technological needs. In that regard, these buildings become pretty awful places with no natural light and long corridors.
Today, due to the nature of chronic diseases that we mostly deal with, hospice care facilities are becoming more popular. The idea of a hospice is to focus on quality of the place for families and patients who have already spent a lot of their time in a hospital setting. The goal is provide humane care for patients who do not have much time left, to make sure that they live the remainder of their lives as comfortably and as fully as possible.
It is important to remember that when such facilities are designed for children, we need to pay extra attention to their unique needs. It is important to provide opportunities for children with terminal illnesses to continue to learn and grow.
This thesis is exploration of an architectural setting in which children with a terminal prognosis would spend the last few weeks of their lives. Located in Old Town Alexandria, Virginia, this project takes advantage of the existing nature of the site to create an oasis for families who have gone through an exhausting battle with an untreatable disease. The goal is to shift the focus from curing to healing and to create a nurturing place that helps to bring normalcy back to the lives of patients and their families.<br>Master of Architecture
3
Wilson, Monika Anne. "Accompanying them home : the ethics of hospice palliative care." Queensland University of Technology, 2009. http://eprints.qut.edu.au/20536/.
Full textAbstract:
This inquiry, which employed a narrative research approach, critically explored the ethical dimension of hospice palliative care. Hospice palliative care is the profession specifically developed to care for the dying. The development of this practice has grown significantly since the 1980s in Australia, yet ethical inquiry into this professional practice has largely focused on particular issues, problems or dilemmas, such as euthanasia. Although particular ethical issues are important considerations, a broader investigation of the ethics of hospice palliative care practice has not been given sufficient consideration in the growing accumulation of the research literature in Australia. Jennings (1997) surmises that “systematic reflection on ethics in the hospice field is curiously underdeveloped” (p. 2). This study goes someway towards filling this gap. In building upon the Pallium research by European scholars and integrating a social practice framework (Isaacs, 1998) this inquiry provides an alternative account of the ethical agenda and one which has privileged an internal exploration, rather than assume that the ethics would be the same as any other health care modality or to simply adopt a dominant, principles-based approach. These internal explorations were located in the storied accounts of thirty interdisciplinary hospice palliative care professionals.
This thesis provides a thorough, textual conversation into the realm of ethical caregiving at the end of life. Several key insights were illuminated. Firstly, total care must be central to the philosophy underpinning hospice palliative care practice, but this concept and practice of total care was being eroded and contested. Secondly, a predominantly modernist account of personhood was located in the narrative accounts. This modernist account of personhood was thought to be insufficient for the practice of total care and needed to be reconceptualised. An embedded ontological account was provided which would assist with the understanding and practice of total care. Thirdly, initially it was thought that there was no common, shared understanding of the purpose of the practice. It was suggested that the profession was “wandering in the wilderness” when it came to the aim of its practice. However, the professionals did share a common telos (aim towards a good) and it was overwhelmingly relational. This led to the proposal of a new telos for hospice palliative care practice centered on the creation and maintenance of unique relationships which would assist people in their final stage of life. Lastly, the ethical frameworks which guided practice for the professionals were presented. In these frameworks it was significant values (acceptance of human mortality, total care and honest and open communication) and relationships (how we treat each other) which played the main role in what constituted hospice palliative care ethics. An account of a hospice palliative care ethical relationship was provided which included a proximity stance of in-between. Overall, any ethic for hospice palliative care must have at the heart the relationship between professional caregiver and living-dying person. The relationships in this social practice, between each other, accompanying one another, are our ethical compass.
This thesis concluded that hospice palliative care, as a social practice, has a rich ethical dimension as understood and articulated by its professional members. These insights have resulted in the construction of a new ethical framework reflecting, formalising and adapting the ethical dimension as understood by its professional members. This ethical framework - A Relational Ethic of Accompanying - is needed to help maintain, sustain and protect the unique identity of this profession. This framework adds to the “moral vocabulary” (Jennings, 1997) and “moral specificity” (ten Have & Clark, 2002) of hospice palliative care practice. In addition, it would provide important guidance to palliateurs reflecting on how best to provide quality, compassionate and ethical care at the end of life.
4
Russell, Sarah. "Advance care planning and living with dying : the views of hospice patients." Thesis, University of Hertfordshire, 2017. http://hdl.handle.net/2299/17474.
Full textAbstract:
Advance care planning for adults is a process of consideration, discussion and decisions about care at the end of life. There is evidence that advance care planning improves outcomes such as the achievement of preferred place of death and the quality of dying. However, the uptake of advance care planning is variable. There are calls for more research to understand what influences people to carry it out to plan services and improve the quality of life of patients and their families. This dissertation reports on a qualitative, video interview study of 15 adult hospice patients. The study was interpretative influenced by the narrative approach with data driven thematic analysis and a video aide memoir. Coding was carried out using the Computer Assisted Qualitative Data Software programme Transana. The rigour and credibility of the study was viewed through the lens of trustworthiness which included the development of a Continuous Conversation Framework. The aim of the study was to investigate what would influence hospice patients to discuss their advance care planning to develop future education programmes based upon the perspectives of people at the end of their life: 1. What influences hospice patients in their advance care planning? 2. What communication skills do hospice patients find helpful when clinicians discuss advance care planning? Three findings are reported. These suggest that the influences on advance care planning activity and conversations is the less reported relationship of the personal context of a person's life (as well as services, diagnosis and prognosis considerations). First, the findings highlight the relevance of how people with an incurable illness live with and talk about their dying within the individual context of their daily lives. Secondly, differences are illustrated between how people prepare (for themselves) and plan (for others) in their dying. Thirdly, clinician communication behaviours such as empathy (through mutual connection and visible behaviours), tailored conversations (through accessible and selective honesty) and the design and use of space empower people to carry out conversations which support them as they live with, prepare and plan for dying. The three findings contribute to the perspective which supports the complexity of advance care planning that should focus on the context of person's life as well as the paperwork, prognosis or diagnosis. A contribution to person-centred care is suggested through a model of relational advance care planning.
5
Hopper, Ann. "Dying values : a study of professional knowledge and values in health care practice." Thesis, University of Exeter, 2000. http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.312282.
Full text
6
Corker, Deborah Jo. "PHYSICIAN'S EXPERIENCES WITH DEATH AND DYING: A PHENOMENOLOGICAL STUDY." OpenSIUC, 2010. https://opensiuc.lib.siu.edu/dissertations/212.
Full textAbstract:
This qualitative phenomenological study attempts to gain the physician's essences, meanings and understanding surrounding death and dying. Starting with themes revealed in literature, in-depth interviews were used to ask selected physicians providing care: How does death affect them? Are physicians receiving adequate training in end-of-life care? Does the medical culture still see death as failure? How do they find meaning in end-of-life care? Using three different groups of physicians: early in career, mid-career, and retired, this research attempted to examine the phenomena of death and dying over apparent time and developmental experiences of physicians. Results: Physicians have not been adequately trained to handle end-of-life care. Communications skills, specific end-of-life care training and support for physicians dealing with death and dying are needed.
7
Atala, Sarah R. "How Hospice Nurses' Beliefs About Death and Dying Frame Their Caregiving." Miami University / OhioLINK, 2014. http://rave.ohiolink.edu/etdc/view?acc_num=miami1397755066.
Full text
8
Klein, Ellen W. "Changing Landscapes: End-of-Life Care & Communication at a Zen Hospice." Scholar Commons, 2014. https://scholarcommons.usf.edu/etd/5364.
Full textAbstract:
This dissertation examines end-of-life experiences at a small Zen hospice in the Pacific Northwest region of the United States. Through an exploration of how end-of-life communication, sense-making, decision-making, and care in this setting differ from that of typical clinical settings, this project highlights and interrogates the experiences of dying as spiritually, rhetorically, narratively, relationally, and communally bound events.
Keywords: Zen hospice, end of life, narrative sensemaking, medical-ethical decision making, spirituality, healing rhetoric, communities of practice
9
Mak, Kiu-yan Wayne. "Towards nirvanna : a Buddhist hospice /." Hong Kong : University of Hong Kong, 1996. http://sunzi.lib.hku.hk/hkuto/record.jsp?B25955585.
Full text
10
Källström, Karlsson Inga-Lill. "Att leva nära döden : patienters och vårdpersonals erfarenheter inom hospicevård." Doctoral thesis, Örebro universitet, Hälsoakademin, 2009. http://urn.kb.se/resolve?urn=urn:nbn:se:oru:diva-5439.
Full textAbstract:
This research focused on experiences of dying patients and hospice nurses in a hospice unit. The research objectives were to (i) acquire more extensive knowledge about how dying patients and hospice nurses experience life and death and (ii) describe patients who were cared for during a 10-year period in an inpatient hospice ward. Data were gathered via interviews with 19 nurses and 11 patients. An interpretive description method was used to analyze interview results. Data were also gathered from institutional care records that included gender, age, marital status, diagnosis, referral source, and length of stay (666 women and 555 men). Descriptive statistics were used to describe basic features of the study's data and to compare differences between women and men. The main finding from interviewing the nurses was that they were struggling to acknowledge and unveil the person within the weakening body. In doing so, they used various strategies such as (i) striving to understand patients’ experiences of body function loss; (ii) encouraging patients to uphold body functions and daily habits; (iii) acknowledging and balancing patients’ need for body control; and (iv) providing tender care for the body. After 2 years of work in hospice care, nurses described that facing the dying and death of many patients had an impact on daily work and private life. The close relationship with the dying patient led to existential issues concerning the meaning of life and death, which were conceptualized into this theme: death as an agent of change. Eleven years later, the presence of death took a less dominant place in the nurses’ lives, and the theme became: death as a companion in life. In the long-term, nurses emphasized that their relationships with dying patients fostered their professional and personal growth. The findings from interviewing the patients revealed that when death became a reality, life took on new meaning, and they acquired new values that were important to preserve or protect; this triggered need for feeling secure within this situation. These revelations were manifest in three sub-themes: (i) when possible death becomes a reality; (ii) living with death as a reality, and (iii) a need for a feeling of security. And this main theme was conceptualized: making sense of life close to death. Results regarding patients in hospice ward care over a 10-year period revealed significant differences between women and men. More women than men were single, had cancer with relatively short trajectories, and were referred from the oncology department. More men than women were diagnosed with types of cancer with somewhat longer trajectories. Despite longer trajectories, length of stay was shorter for men than for women. The most frequent referral source was the hospital. But compared to women, men (particularly younger men) were more often referred from home-based hospice care. The findings expand knowledge about dying and its various configurations; consequently, care and support needs will vary. For the dying person, it is important to know that care is provided according to the person’s preferences and given when needed.
11
Davis, Justin. "Examining Disparities Related to the Use of Hospice Care: Cancer vs. Non-cancer Diagnoses." Digital Archive @ GSU, 2012. http://digitalarchive.gsu.edu/iph_theses/228.
Full textAbstract:
Americans often face end-of-life with ineffective pain/symptom control. While hospice care prevents suffering for the terminally ill, only around 40% of individuals access services. Although few studies describe differences in terms of cancer vs. non- cancer diagnoses, hospice utilization/access disparities appear to exist. Analyzing 14 sociodemographic and clinical variables for 3,905 hospice discharge cases, this study highlights observed disproportions between cancer and non-cancer groups, identifying significant relationships amongst patient characteristics and hospice diagnosis. Factors found significantly related to diagnosis include components of the following: age, primary payment source, mortality status at discharge, hospice initiation location, length of stay, physical function, cognitive function, and presence of pain symptoms. Results confirm low overall hospice utilization rates, while validating diagnosis-specific differences driven by individual and population-based characteristics. In order to increase utilization/access rates and eliminate current disparities, patients presenting with certain terminal diseases may require greater provider flexibility in terms of hospice eligibility requirements.
12
Kaufman, Isabel Esther. "Assessing Spirituality Among Hospice Patients: A Phenomenological Study of Hospice Nurses." ScholarWorks, 2015. https://scholarworks.waldenu.edu/dissertations/1518.
Full textAbstract:
The shift in health care and nursing philosophy and practice from a holistic approach to a highly technological, cure-oriented approach has been attributed to effective pharmaceuticals made to prolong life. Recently medical professionals have shifted their focus to a combination of spiritual healing and medicine. Hospice care in particular have taken a key interest in integrating spirituality within their health care. The problem is that due to the complications in defining spirituality and appropriate training and education of spirituality within nursing curriculum, assessing patients' spiritual distress may be difficult for many hospice nurses which may be at a loss when attempting to integrate spirituality within their practice. This study used a phenomenological approach to explore the infusion of spirituality in nursing practice and the hospice nurses perceptions of assessing spiritual distress needs of terminally ill patients. Frankl's existential theory and Kubler- Ross's stages of grief theory framed the study. Participants included 8 hospice nurses working in a Pacific Northwestern state. Face-to-face interviews were conducted to explore the essence of the experience of integrating spirituality as well as their views and concerns regarding assessment instruments used to assess spiritual distress. Data was analyzed for content themes. The study found that spiritual courses were merged into hospice nursing as a teaching unity making it difficult for hospice nurses in a Pacific Northwestern State to fully grasp the concept of spirituality. Further findings suggested that only a handful of schools had spiritual nursing as an independent course. The study may impact social change by informing the advancement of hospice nurses and hospice administrators in the practice of including spirituality within healthcare and integrating extensive existential support training within nurses' curriculum.
13
Lark, Elise. "Making Space for Dying: Portraits of Living with Dying." Antioch University / OhioLINK, 2014. http://rave.ohiolink.edu/etdc/view?acc_num=antioch1413217166.
Full text
14
Swift, Thomas Madison. "Psalms for the journey a study using the Psalter to help the dying find peace /." Theological Research Exchange Network (TREN), 2007. http://www.tren.com/search.cfm?p062-0319.
Full text
15
Bergendal, Adam. "Architecture as medicine : Rethinking care for the terminally ill." Thesis, KTH, Arkitektur, 2015. http://urn.kb.se/resolve?urn=urn:nbn:se:kth:diva-163431.
Full textAbstract:
Societies have an ethical responsibility to provide the dying with the highest possible quality of care. Yet, terminal patients are sometimes lost in a healthcare system that emphasizes procedure over the individual. This project envisions a new approach - a restructuring of the current system. A shared facility that combines rehabilitation and home care with end of life care, promoting flexible treatment to be tailored to each patient according to their individual needs.<br>Vårt samhälle har ett etiskt ansvar att tillhandahålla döende med högsta möjliga vårdkvalitet. Trots det åsidosätts ibland döende patienter i ett sjukvårdssystem som betonar metod över individen. Detta projekt föreslår en ny strategi - en omstrukturering av det nuvarande systemet. Istället för uppdelade vårdstrukturer föreslås en sammansatt vårdanläggning som kombinerar rehabilitering och avancerad hemsjukvård med sluten palliativ vård, som främjar flexibel behandling och som skräddarsys för varje patient utifrån dess individuella behov.
16
Bidii, Dempto Boniface. "An exploration into nephrology nurses' lived experiences of caring for dying patients with end stage kidney disease following withdrawal of dialysis." Master's thesis, Faculty of Health Sciences, 2019. http://hdl.handle.net/11427/31477.
Full textAbstract:
The aim of this study sets out to better understand nephrology nurses’ lived experiences of dying and deaths of patients with ESKD following withdrawal of dialysis. A qualitative research design using an interpretative phenomenological approach was used to explore the experiences of a purposive heterogeneous sample of eight nephrology nurses who were working in private dialysis units. Information was gathered by phenomenological conversations and feed-back sessions. Colaizzi’s phenomenological method was employed to formulate four main themes:
1. Emotional trauma
2. Detachment
3. Loss of altruistic values in nursing
4. being-with-death
For the participants in this study, emotional trauma was the most significant. The participants experienced a sense of powerlessness which caused emotions of hopelessness and anger and subsequently a sense of premature mourning and detachment. This state of hopelessness proved to be an obstacle in patient care, resulting in the altruistic values of nursing to be no longer applied. The participants’ ontological confrontation of being-with-death was evident, as they came to terms with the reality of their own death. Recommendations are offered to address the educational aspects of death and dying for nephrology nurses. This study endorses the need for further research into patients with ESKD ‘end-of-life’ which can influence how healthcare professionals should treat these patients during this phase.
17
Mak, Kiu-yan Wayne, and 麥喬恩. "Towards nirvanna: a Buddhist hospice." Thesis, The University of Hong Kong (Pokfulam, Hong Kong), 1996. http://hub.hku.hk/bib/B31983546.
Full text
18
Alexander-Goreá, Trenika. "Development of a Guideline for Hospice Staff, Patients, and Families on Appropriate Opioid Use." ScholarWorks, 2017. https://scholarworks.waldenu.edu/dissertations/4496.
Full textAbstract:
There is an identified problem with patients receiving suboptimal pain management at a hospice agency in the northwestern United States. At this agency, undertreatment of pain is prevalent. Evidence indicates that this may be a result of a lack of guidelines, education, and knowledge of appropriate prescribing. Known barriers to the correct prescription and administration of potent opioids in the hospice setting include prevailing beliefs, knowledge, skills, and attitudes, all of which can impact care negatively. Contextually, hospice principles mandate patient comfort and caregiver involvement in continuous quality improvement, which includes adequate and informed pain management. Moreover, hospice metrics demand requisite knowledge, skills, and attitudes for optimal care, including pain management at the end of life. The Academic Center for Evidence-Based Practice (ACE) star model was used to guide the development of an evidence-based, guideline-supported educational program that will improve pain management at the hospice agency when implemented. The purpose of this project was to use transdisciplinary expertise and team collaboration to develop the program and then to conduct a formative and summative evaluation utilizing experts to prepare the guidelines and process for implementation. Ten experts reviewed the guideline, the educational materials, the process, and the evaluation plan and conducted reviews using the AGREE II tool. The panel of experts agreed within the 6 AGREE domains. Future implementation of this guideline, translation process, and evaluation tool will impact social change through the empowerment of the clinical staff, patients, and caregivers to provide the best pain control and comfort at end of life, a vulnerable time for all patients.
19
Björklund, Daniel. ""Det här är inte ett hospice" : Konstruktioner av död och döende på en avdelning för palliativ vård." Thesis, Linköpings universitet, Institutionen för samhälls- och välfärdsstudier, 2013. http://urn.kb.se/resolve?urn=urn:nbn:se:liu:diva-94228.
Full textAbstract:
The study aims to analyze conceptions of death and dying at a clinic for palliative care, using a constructivist perspective and a discourse analytical approach. The empirical material consists of interviews with staff members, documents and photographs of the environment, taking both space and materiality into account. I conclude that the studied practice is mainly characterized by a tension between a caring discourse and a medical discourse.
20
Gryglewicz, Kimberley A. "The Mediating Role of Social Support and Fulfillment of Spiritual Needs in End of Life Care." Scholar Commons, 2011. http://scholarcommons.usf.edu/etd/3131.
Full textAbstract:
End of life (EOL) caregiving can be a daunting and challenging endeavor as caregivers adjust to the ever-changing care demands associated with dying. Increased personal care, assisting with symptom and medication management, and attending to the emotional and spiritual needs of the dying person require caregivers to learn new tasks and to assume new roles such as social worker, nurse, and chaplain. As families continue to play an essential role in meeting the health care needs of their dying loved ones, it is imperative for social workers to understand the complexities of the end of life caregiving experience in order to better serve this population. One way to better understand this experience is by examining it within the context of the stress process model of caregiving. This model provides a comprehensive way to examine the relationship among multiple risk and protective factors within the "caregiver-in-environment" context. Using a secondary dataset, the best fit predictive model of caregiver depression included a mix of sociodemographic characteristics, primary objective and subjective stressors, and mediating variables. Two protective factors, social support and the fulfillment of spiritual needs lessened the effects of caregiver depression among the most vulnerable caregivers. Findings from this study help to bridge the gap between theory and social work practice. The stress process model of caregiving is a well-tested theoretical model, which can be utilized to guide social workers in developing comprehensive assessment measures and interventions that target specific aspects and sources of stress within the EOL caregiving experience.
21
Hughes, Catherine Rose. "Palliative care in context: an ethnographic account of the journey from diagnosis to the end of life." Thesis, University of Canterbury. School of Social and Political Sciences, 2010. http://hdl.handle.net/10092/3813.
Full textAbstract:
This thesis provides an ethnographic account of the journey from diagnosis with a life-limiting illness to the end of life. It tracks the lives and eventual deaths of eight people and 83 family members for a period of three and a half years in total. Culture is located as a central element or lens by which to view this journey. The role, function and issues for social work as a profession are discussed in various chapters. The theoretical underpinnings of the thesis are informed by the ecological perspective combined with psychosocial theories of loss and grief. Drawing on a broad social systems theory, in conjunction with an ethnographic methodology and grounded theory analysis, contributes to the development of research which firmly takes culture into account. Four primary topic areas are presented: a narrative exploration of diagnosis, the changing landscape that participants encounter, the embodiment of new places and spaces, and finally, the journey’s end. The themes from the four topic areas contribute to the development of the two core categories “time and place” and “preparedness for death”. A schematic representation of the paths participants took is provided in the discussion of the core categories. Lastly, the New Zealand Palliative Care Strategy (Ministry of Health, 2001) is drawn on to aid the discussion of issues arising from the research and the implications for practice in this field.
22
Rosenberg, John Patrick. "A study of the integration of health promotion principles and practice in palliative care organisations." Queensland University of Technology, 2007. http://eprints.qut.edu.au/16586/.
Full textAbstract:
The modern hospice movement emerged in the 1960s as a grassroots social movement that attempted to restore an holistic and contextualised approach to the care of people at the end of life. This approach embraced the lived experience of the dying person at the centre of care across physical, emotional, social and spiritual domains of life. To achieve this, the care of dying people was largely removed from mainstream health care systems to promote more holistic and socially contextualised dying. In recent decades, the evolution of palliative care demonstrates the gradual return of palliative care services to the mainstream. It has been asserted that, in this process, palliative care services have progressively abandoned the social context of dying people, increasing instead an emphasis on "physical care [while] simultaneously de-emphasizing psychological, social and spiritual care" (Kellehear, 1999a, p.76). Kellehear and others have proposed that the repositioning of palliative care within mainstream health care systems has increased a focus upon illness and disease at the expense of health and wellbeing. Subsequently, conventional palliative care services have been criticised for not adequately locating end of life care within the social contexts in which death and dying take place. In an attempt to address this problem, Australian sociologist Allan Kellehear proposed an approach to end of life care that brought together the core concerns of palliative care with the principles and practices of health promotion (Kellehear, 1999b). Whilst their congruence is not immediately apparent, these two fields have been increasingly examined for their potential benefits in the provision of end of life care. In the current policy climate in Australia, there is an imperative to consider how end of life support services might be improved through adopting a health promoting palliative care approach. The aim of this study has been to investigate the integration of health promotion principles and practice by a selected palliative care service by examining the qualitative impact of this change on the organisation. Specifically, it endeavoured to identify the factors that advanced or impeded this integration by examining how the structures and processes of, and outcomes for, the organisation reflected a health promoting approach. To meet these aims, this study undertook an in-depth examination of the implementation of a health promoting palliative care model by a community based palliative care organisation. Based in a constructionist-interpretivist paradigm, a mixed-method (QUAL+quant), instrumental case study research design was utilised to capture multiple perspectives of the implementation process. Data collection comprised examination of 127 organisational documents, 32 in-depth interviews with staff, volunteers and consumers, 5 focus groups with staff and volunteers, and 25 carer questionnaires. Qualitative data were subject to thematic analysis, with supplementary quantitative data analysed to generate descriptive statistics. The findings demonstrated a large number of complex and interrelated enabling and impeding factors to the implementation in the case study site. These factors have been grouped into four key themes which have been examined in light of the aims of this study and the issues identified in a comprehensive review of the literature. This study found that: ◦ Conceptual congruence between health promotion and palliative care was a fundamental starting point in the implementation of a health promoting palliative care model. ◦ Where conceptual congruence was clear, activities associated with the model that were regarded as beyond conventional approaches to palliative care core business were viewed favourably by stakeholders and were less likely to encounter resistance within the organisation. ◦ When systematic approaches to organisational change, such as quality improvement systems, were rigorously applied, the impact of the transition upon stakeholders was qualitatively less. ◦ Where this transition had been effectively made, consumers, staff, volunteers and members of the wider community were seen to benefit. This study adds to the current discourse regarding the intersection between end of life support and health promotion, and provides insight into how palliative care organisations might undertake the transition from conventional models to a health promoting palliative care approach.
23
Baumgartner, Maria Elizabeth. "Constructing meaning - a model for hospice design in rural Manitoba." 2010. http://hdl.handle.net/1993/3956.
Full textAbstract:
This practicum focuses on end-of-life care for older adults in rural
Canada. Specifically, it addresses links between domesticity and terminal
illness amongst adults within the building typology of hospice.
The objective of the practicum is the creation of a model for hospice
design in rural Manitoba. The hospice will be supported in pre-fabricated
housing. The practicum will address contemporary issues arising from
publicly-funded healthcare, the aging Canadian population, and cultural
issues surrounding dying, death, and grieving.
The main goals to be achieved with this project were the creation of
care facilities that encourage dialogue, education, and wellbeing for all
users. Additionally, the facilities will be designed as multi-sensory
environments where all human senses can be stimulated, expanding
beyond typical visual stimuli.
24
Wu, Hung-Lan. "The lived experiences of Taiwanese hospice nurses caring for dying patients." 2008. http://hdl.handle.net/2152/18317.
Full textAbstract:
Hospice nurses are primary professional caregivers providing end-of-life care to dying patients and their families. The terminal care practices often place heavy physical, emotional, and spiritual demands on hospice nurses. The purpose of this hermeneutic phenomenological study was to explore the experiences of Taiwanese nurses who care for dying patients in hospices. The research question that guided this study was: What is the lived experience of Taiwanese hospice nurses who caring for dying patients? The conceptual orientation of this study was based on Paterson and Zderad’s (1976) Humanistic Nursing Theory, which is rooted in phenomenology, intersubjectivity, and existential thought. A snowball sampling technique was employed to recruit 14 female participants who worked in six different hospices in central and southern Taiwan. Semi-structured, face-to-face interviews were conducted and transcribed by the researcher. The data analysis was based on Colaizzi’s (1978) guidelines. Four main themes and three sub-themes emerged from thematic analysis. The four main themes are: (1) entering the specialty of hospice, (2) managing everyday work, (3) living with the challenges, and (4) reaping the rewards. Three sub-themes of managing everyday work include providing holistic, meaningful care through close relationships; confronting and managing negative beliefs about hospice; and managing the dying process. These main themes and subthemes constituted the fundamental structure of these hospice nurses’ caregiving experiences which was an evolving journey. The results of this study provide nursing educators, students, staff and administrators insights into the hospice nurses’ experience and hospice care in Taiwan. They can use these data to improve nursing education and change nursing practice. Additionally, researchers can design further studies to expand nursing knowledge to advance staff development and improve quality care for dying patients and their families.<br>text
25
Chen, Yi Ting, and 陳怡婷. "Quality of pain management for dying cancer patients: Comparison between hospice and non-hospice care." Thesis, 2013. http://ndltd.ncl.edu.tw/handle/90963799386060099972.
Full textAbstract:
碩士<br>長庚大學<br>護理學系<br>101<br>This study aimed to understand the quality of pain management for patients with cancer before death and to compare the quality of pain management between patients receiving hospice and non-hospice care. This study used retrospective chart review design. A stratified random sampling was used to draw a sample of 511 cancer patients (non-hospice = 307, hospice = 204) who died in 2011 from three hospitals of the same medical system located in northern Taiwan. The data collection tools included demographic questionnaire, analgesics use form, and quality indicators for cancer pain management.
The results showed that the overall achievement rate for process quality indicators was 17.6%. Among the 11 process indicators, two had more than 50% of patients reached the standard: "re-assessment for moderate to severe pain" and "bowel regiment initiated for patients with opioids”. Four indicators had less than 10% of patients met the standards: "comprehensive assessment-other", "analgesic side effects monitored", "non-pharmacological therapies used" and "pain education to patients or families".
Regarding the outcome indicators (i.e., pain relief), compared to the initial pain intensity, the averaged 72-hour pain intensity reduced by 1.02 points (SD = 3.56). However, the averaged pain intensity within 3 days before death increased by 0.13 points (SD = 2.97). The multivariate analysis showed that patients receiving hospice and non-hospice care only differed on two process quality indicators: "use of valid pain scale at admission or initial pain" and "bowel regiment initiated for patients with opioids".
26
"Sociology, dying and AIDS: learning from Hospice Care in South Africa." Thesis, 2008. http://hdl.handle.net/10210/1325.
Full textAbstract:
M.A.<br>In sub-Saharan Africa the importance of understanding the illness and dying experiences of people living with HIV/AIDS (PLWHAs) is underlined by the fact that some 30 million people are already infected with HIV. Yet, there has been precious little research on chronic illness and dying within the sociology of health and illness. This dissertation begins to address this gap by considering the question ‘how does care of AIDS patients inform a sociology of illness and dying?’ It is argued that AIDS related chronic illness and dying are best understood within the AIDS care context. A theoretical model of quality AIDS care (QACM) was constructed, and highlights access, physical and psychosocial aspects of care. This was evaluated in relation to two South African hospices, both located on the Witwatersrand. In addition, a telephonic survey was undertaken in order to situate the two case studies within a national context of hospice-based AIDS-care. Some of the valuable refinements made to the literature QACM include new staff motivators, self-contained funding, additional dietary concerns, more cost-effective treatments, the importance of stigma, patient-patient support and the advent of hospice day-care centres. It was concluded that caregiver and patient needs must be met to ensure quality care provision. Three noteworthy conclusions were drawn. Firstly, the QACM was found to be a sound reflection of hospice AIDS-care reality. Secondly, the case hospices sufficiently subscribed to the required care standards, but improvements are warranted. Thirdly, and most importantly, the study highlights the impact of stigma on the chronic illness and dying experiences of PLWHAs. This study has taken a small step in the right direction by providing some sociological insights into chronic illness and dying, by the application of Northern-centric literature to the developing context of South African hospice AIDS-care. Further investigations may serve to bear these conclusions out, in alternative care settings, in order to further develop the sociology of illness and dying.<br>Prof. J.M. Uys Prof. P. Alexander.
27
Liang, Limei, and Lingli Hu. "Nurses’ experience of taking care of dying patients in hospice care : A descriptive literature review." Thesis, 2018. http://urn.kb.se/resolve?urn=urn:nbn:se:hig:diva-27378.
Full text
28
Ho, Yu-yun, and 何玉雲. "A Research on Dying Experience of Terminal Cancer Patients by Hospice Shared Care Model." Thesis, 2009. http://ndltd.ncl.edu.tw/handle/04425428864011171565.
Full textAbstract:
碩士<br>南華大學<br>生死學研究所<br>98<br>This research aims at exploring cancer patients'' terminal experience under the hospice shared care model. Through depth-interviews, we learn to know the eight categories of their terminal experience in the general wards: the medical situation, the situatedness, temporal process of illness, connected relationship, religious belief, the view of life-and-death, feeling towards therapy, and the psychological dimension of cancer patients. The research field is located in the non-hospice ward of a regional teaching hospital in southern Taiwan. The research adopts the purposive sampling method and collects the data through actual care, participatory observation and depth-interview from three participants. The data are analyzed by the phenomenological qualitative method. The results are as follows:
Firstly, regarding the terminal situation of cancer patients under the hospice shared care model. Due to the physical erosion by the cancer cells, the patients encountered multiple sufferings of discomfort in the terminal situation. They ate less, could not fall sleep, could not urinate, hard to move due to swollen body, and could not accept the physical image changed. All the signs made them aware of the approaching death. Under the model of hospice shared care, they hoped to reduce the physical discomforts, and to be warmly surrounded by the family members.
Secondly, regarding the terminal pressure and challenges encountered. Encountering the physical, psychological and spiritual pain, the terminal patients explored the life meanings by way of life-reviewing, repentance and saying good-bye. They gradually recognized that life can still have meaning and value toward the end of life if we simply follow the natural flow of life.
Thirdly, regarding the patients'' adaptation to the pressure and challenges encountered. By way of having dialogue and telepathy with the Supreme High Beings, such as Buddha, Bodhisattva, Jesus Christ, Mother Maria, and so on, the terminal patients tend to have their spiritual refuge at the end.
Fourthly, regarding the comparison between the terminal experience under hospice shared care model and that under hospice care. The terminal patients receiving the hospice shared care significantly improve the quality of life in the terminal situation. While the physical discomfort was reduced, the psychological anxiety caused by the physical pain was also cared. The myth, that hospice ward is a place for awaiting death, is then broken. The hospice shared care has set the fine example for the humane way of terminal caring.
29
James, Rachel. "To Care for the Dying: A Sonic Exploration." 2011. http://hdl.handle.net/1807/30163.
Full textAbstract:
This audio documentary explores the contemporary landscape of death and dying with specific focus on caregiving, the process of cultivating personal death value systems, and the importance of intergenerational exchange for fostering inquiry and acceptance of the aging process. The audio thesis is fluidly presented in three parts, with an accompanying annotation to be read after listening. For the sake of textual clarity, the annotation is separated into chapters. Chapter I explores hospice care and the complexities of the dying process, leading the listener to consider what it is like to work professionally in the field of end-of-life care. Chapter II explores implications of highly technological medical care and advancements in health sciences. Finally, Chapter III implicitly suggests through personal narrative that embodied experiences of caregiving and intergenerational exchange create spaces that subvert cultural and temporal fears of aging and the dying process.
30
Wen, Kao Hung, and 高鴻文. "— The effects of Palliative Care Health Education Program on good dying belief, Knowledge and Acceptance of Hospice Care with a college student." Thesis, 2003. http://ndltd.ncl.edu.tw/handle/50232883572492867638.
Full textAbstract:
碩士<br>臺中健康暨管理學院<br>健康管理研究所<br>91<br>ABSTRACT
The research purposes is to discuss the related believe of Good dying, knowledge, acceptance intention of hospice care for the college student, and to evaluate the influence of palliative care health education program. The research uses pretest-posttest quasi-experimental design and structured questionnaires to evaluate the effect of the instruction program. This researchable object are college students of Teaching, in purposive sampling, There are totally 116 college students who completed pre-test and post- test questionnaire, the experimental group contains 46 students, the control group I contains 40 students, the control group II contains 30 students. Only the experimental group is educated with the instruction program after the pretest trial.
The major results were as follow: Over 80% of the subjects had hospice/ palliative care. The students’ sources of the hospice/ palliative care knowledge are from “Media advertising” .36.2﹪of the samples’ had that family death by cancer, only14﹪that family had hospice care. Overall, the higher the scores of the good-death belief, and the meddler scores of the knowledge in pretest trail.The subjects of experimental group had significantly better improvement in belief of good dying, hospice knowledge, and the higher acceptance of hospice care. The correlation of the acceptance and the good-death index scores is positive.
Overall, our research of the instruction program for the college student is effective on the belief of good dying, knowledge growing, acceptance of hospice care and it is a good assistant tool that needed to be popularized by everyone.
31
SEKYRKOVÁ, Michaela. "Hospice a péče orientovaná na potřeby jejich klientů." Master's thesis, 2007. http://www.nusl.cz/ntk/nusl-46769.
Full textAbstract:
This diploma work deals with hospice and a quality of care given to the clients of the hospice, that fully covers complex needs, changing during a life limiting illness, taking in account the dignity of the human being to the very last moment of his life. This care is a promise for a man, that he won´t be alone in the burdensome moments of his life. There are a hospice management and various forms of hospice care in Czech Republic described in a theoretical part of the work. This chapter is to be a handbook for providing companionship to the dying person and is to draw our attention not only to the changing priorities of the dying person and to stages, that he is to go through, but to an irreplaceable role of a caregiver at his bed. In a practical part of this work there are investigated the attitudes of the caregivers in hospice and public to the process of dying of the human being. The founded results of the research show, that people finding themselves in a final stage of the life-limiting illness change their priorities; the spiritual needs become more important, especially to attain a peace with self, with other people; clients trusting in God long for consilience with God; the results of the research show however, that most public is not familiar enough with the problem of dying and death, and that there is generally low knowledge on how to provide companionship to the dying person.
32
Fox, John Martin. "Respirators, morphine and trocars: Cultures of death and dying in medical institutions, hospices and funeral work." 2010. https://scholarworks.umass.edu/dissertations/AAI3427528.
Full textAbstract:
In this dissertation I explore the cultures of death and dying in medical institutions, hospices and funeral work. I argue that not only are there competing cultures of death and dying in American society, but within these institutions that produce tension and conflict, sometimes among the workers, other times between the workers and those they serve, and other times between the institution and outside organizations. Medical institutions, by medicalizing death and dying, constructed a “death as enemy” orientation in which doctors fight death with the use of medical technology, practice detached concern from their patients, and marginalize religion and spirituality. On the other hand, a “suffering as enemy” orientation has also emerged, primarily in the form of palliative medicine, in which needless suffering is considered worse than death, therefore life-saving technology is removed, doctors empathize with patients and families, and spirituality is incorporated. Hospice started as a social movement to change how dying patients were treated at the end of life, addressing patients' physical, spiritual and emotional pain. However, the bureaucratization of hospice, particularly the Medicare Hospice Benefit, has led to a compromise of the social movement's ideals and these competing orientations shape how hospice workers, particularly nurses and social workers, express frustrations with their work. Funeral directors assert their jurisdictional claims of the right to handle the corpse and assuage the grief of the bereaved, through embalming, informal grief counseling and the funeral performance, but funeral directors encounter resistance from large funeral corporations and the funeral societies. Large corporations centralize embalming, turning the corpse from a craft to a product, recruit other professionals to practice grief counseling, and sell standardized funeral packages. Funeral societies challenge the necessity of embalming and funeral directors' expertise in grief counseling, and focusing on the value of simple, dignified and affordable funerals. I conclude this dissertation by showing how orientations toward death and dying vary in American society and these institutions because of tension between experts who espouse a particular orientation and challenges from within and outside these institutions.
33
Kubíčková, Ruth. "Vývoj hospicové paliativní péče se zaměřením na Německo a Českou republiku." Master's thesis, 2011. http://www.nusl.cz/ntk/nusl-312616.
Full textAbstract:
Vývoj hospicové paliativní péče se zaměřením na Německo a Českou Republiku Development of hospice-palliative care with focus on Germany and the Czech Republic Ruth Kubíčková The aim of the thesis was to map the development, crucial moments and current .shape of hospice-palliative care and simultaneously confirm the thesis that the care of spiritual feature of dying persons has been an integral part of organized development of hospice care since its beginning and nowadays, it is still one of its principal themes. The first chapter deals with branch terminology since its clear definition is essential, not only for dialogue inside the system of palliative care providers and experts, but for interdisciplinary communication and cooperation which is - according to the definition of palliative care - the foundation of its holistic approach to patients. The second and third chapters are concerned with the development of nursing care since the ancient times to the diversification of modern hospice-palliative care at the end of the twentieth century. They deduce that the Christianity, with its central commandment to love thy neighbour as thyself, has changed the attitude to care of suffering persons, both in the nursing care and in shapes and ways of providing care. In the response to revolutionary changes in...
34
Lam, Andrea Wing-San. "Our Last Home: Designing for Care at the End of Life." Thesis, 2013. http://hdl.handle.net/10012/7340.
Full textAbstract:
In the last fifty years, hospice palliative care has changed the modern understanding of dying. Rather than focusing on death, it promotes the facilitation of optimizing life for patients whose conditions have worsened beyong the possibility of recovery or cure. As such, this thesis is a response to the demands of architecture to support this unique stage of life. It analyzes and posits guidelines for designing spaces which must cater to the specific and vastly different needs of the palliative care specialists, family members, and the patients themselves. Also, it seeks to examine the nuanced complexities and poetics involved in a proposed architectural design for a hospice in downtown Toronto.
The typology for a hospice is one that is both complex and evolving. It must combine the domestic scale of a home with the efficiency and standardization of an institution. The contemporary hospice must also accommodate rituals and beliefs surrounding the end of life that vary greatly from the many cultures that make up the contemporary city. At the very least, the building must provide inspiration and a hope for a peaceful and dignified transition, recognizing also that this is no longer a traditional place for cure. The distinctions suggest a reconsideration of what is needed and what is expected for those involved in and affected by the dying process.
This thesis will explore the architectural possibilities inherent in a new social understanding of the end of life that defies the fatalistic view of an inevitable death, in favour of a hope for dying with dignity while embracing an opportunity to experience liminality during our final days.
35
Hoskovcová, Žaneta. "Dobrovolníci v hospicové péči v ČR." Master's thesis, 2016. http://www.nusl.cz/ntk/nusl-343177.
Full textAbstract:
The main topic of this dissertation is Volunteers in hospice care in the Czech Republic. The aim was find the role of volunteers in hospices and benefit of their work for clients of these institutions. The work is divided into six chapters. Theoretical part consists of five chapters focused on death and dying and of ethical issues of the end of life. The research and its results are described in sixth chapter. The overall goal of this dissertation is to talk about end of life dying and death because it is a taboo in our society.
36
NOVÁKOVÁ, Markéta. "PÉČE O ONKOLOGICKY NEMOCNÉHO JEDINCE V HOSPICI A V NEMOCNICI." Master's thesis, 2012. http://www.nusl.cz/ntk/nusl-116891.
Full textAbstract:
The diploma thesis addresses in detail the issue of a terminally ill individual and things closely associated with this topic including spiritual direction of the bereaved after the death of a close relative. Based on information from the literature it tries to reflect the basic conditions of approach to an oncology patient and his relatives (including the necessity of truthful communication and abidance by basic ethic rules). In order to provide a comprehensive view of the topic, the work includes research among the patient?s relatives realized in 4 out of the 14 hospice centers in the Czech Republic. On the basis of this research some positive aspects have been revealed on one hand, which are worthy acknowledgement and appreciation. On the other hand, there are areas and restraints motivating and challenging both types of healthcare centres to take steps that would lead to a better quality of care provided in the future.
37
LASCHOVÁ, Daniela. "Paliativní a hospicová péče." Master's thesis, 2010. http://www.nusl.cz/ntk/nusl-49144.
Full textAbstract:
The thesis deals with palliative and hospice care. The thesis is divided into two parts - theoretical and practical. In the theoretical part there are provided with basic information about palliative care, it describes aspects of palliative care in terms of spiritual, social, psychological and physical. There are also recorded information on facilities that provide palliative care, their characteristic, mission and goals. The thesis is also reported on problems of dying, suffering and death. The work also records a pastoral and social care about dying seniors, a description of a multidisciplinary team of hospice care. The practikal part of the thesis is reported on a detection rate of awareness of palliative and hospice care at the clients of caritas Týn nad Vltavou. Next the research found out the respondents opinion of dignified dying in a domestic care
38
Cheu, Mei-Cheng Tammy. "Critical nursing behaviors in care of the dying patient and family hospice and hospital nurses' self evaluation : a research report submitted in partial fulfillment ... for the degree of Master of Science (Geriatric Nurse Practitioner) ... /." 1999. http://catalog.hathitrust.org/api/volumes/oclc/68901170.html.
Full text
39
DOSTÁLOVÁ, Zdislava. "Analýza služeb domácí hospicové péče s ohledem na potřeby uživatelů." Master's thesis, 2011. http://www.nusl.cz/ntk/nusl-54413.
Full textAbstract:
In the theoretical part the terms hospice, home hospice care and palliative care are defined. History, principles, objectives and the concept of hospice care in the Czech Republic are mentioned. The phases of psychological responses to a serious illness undergone by a patient and the patients´ reaction to impending death are described. The traditional model of dying in the Czech Republic in the home environment, the gradual institutionalization and the taboos surrounding death, and the new inception of humane methods in the care for the dying after the year 1989 are particularized. The current types of hospice care in the Czech Republic and especially home hospice care are described in detail, and also the needs of the dying and those of their loved ones, which is the main topic of my thesis. The aim of this work is to survey the availability of palliative home care services in the Vysočina region, to compare the range of offered services, to map the users´ experience and to identify the risk factors in providing this care. In the realized qualitative research the availability of these services was surveyed through the content analysis of data by the technique of official documents and virtual data analysis. In order to map the users´ experience, managers of two agencies providing home hospice care in the town of Třebíč were addressed, as well as the users or their families to whom these agencies provide their services. The interview method, the technique of a semi-structured interview was used. There are eight providers of home hospice care in the Vysočina region. The Vysočina region supports not only home hospice care, but also supported the establishment of residential hospice services in the Long-Term Care Hospitals in three towns in the Vysočina region and the Palliative Care Department in the Jihlava hospital. These facilities have partially substituted a non-existent hospice in the Vysočina region. Hospice care in the Vysočina region is relatively new. It is necessary to get some experience and discover possible shortcomings. The complexity of the care for the seriously ill can be extended, which may enable the seriously ill patients to stay at home with their relatives as long as possible. Although home hospice care has its limits in terms of pain alleviation and complications resulting from a disease, the users´ experience is satisfactory and meets their expectations. The contribution of the thesis lies in uncovering deficiencies in home hospice care and the provision of identified information to the care providers and other health care workers, thus enhancing the awareness of this care among health professionals and family members of seriously ill patients.
40
NECHVÁTALOVÁ, Daniela. "Potřebnost domácí hospicové péče na Písecku." Master's thesis, 2016. http://www.nusl.cz/ntk/nusl-254128.
Full textAbstract:
This dissertation addresses the need for domestic hospice care in Písek region. The aim of this study was to determine whether there is an interest in the provision of such comprehensive care that seeks to satisfy a physical, mental, social and spiritual need of a person. Investigated was not only view on the need for specialist palliative care, but also reasons why families would chose care in a domestic environment. The theoretical part focuses on the problems linked with hospice care. The study mentions history, presence, legislation and financing of hospice care in Czech Republic. The next chapter deals in detail with one of the forms of palliative care, which is a domestic hospice care. Another part of this study is also dedicated to the needs of 'a dying person' and his or her family which is vitally important in care for people terminally ill. The practical part is processed by a form of qualitative research and for this purpose a methodology of questioning and interview techniques by instructions were used. In total 18 communication partners participated in this research. The data obtained from these interviews were evaluated by a method of an open coding. The research result shows that both professional community members and caring families of are interested in a provision of specialised palliative care. The professional community welcomes an offer of domestic hospice care and considers it important and necessary in offering various types of care for people who are terminally ill. Families of terminally ill people are also interested in domestic hospice care as one of the options being offered. The reasons why families would opt for a care in a domestic environment are healthy and strong relations to their terminally ill relative a 'dying person'. The conclusions from this research may contribute to a closer view on this issue or may become a source of information for families facing difficult decisions regarding care for terminally ill relative in a domestic environment.
41
Nová, Alena. "Sociální práce v domácím hospici Cesta domů, z. ú." Master's thesis, 2018. http://www.nusl.cz/ntk/nusl-384172.
Full textAbstract:
This diploma thesis is focused on social work in home hospice care. The aim of the thesis is to map and describe the specifics of social work in particular mobile hospice organization Cesta domů, z. ú.. First, a palliative and hospice care is defined in the thesis with respect to current situation in the Czech republic. In the following part I define the needs of a dying person in home care. I also discuss potential sources of financial support for the families. Part of the thesis contains investigation based on interviews with social workers from organization Cesta domů, z .ú.
42
ČERNÍKOVÁ, Monika. "Etické aspekty doprovázení umírajících a pečujících v hospicové péči." Master's thesis, 2017. http://www.nusl.cz/ntk/nusl-317886.
Full textAbstract:
This thesis concerns the ethical aspects of accompanying the caregivers and the dying in hospice care and problematic situations in this care. This thesis is comprised of four chapters. The first chapter concerns hospice care - form, goals and definitions of hospice care. The second chapter focuses on hospice care in social work, which belongs to hospices. The third chapter concerns the ethics in social work, ethical dilemmas in social work and the importance of ethics in social work itself. The fourth chapter is focused on ethics in hospice care, dilemmas and ethical aspects of communication and mourning within hospice care.
43
Chmelíková, Nikola. "Právní úprava hospicové péče v ČR." Master's thesis, 2014. http://www.nusl.cz/ntk/nusl-333217.
Full textAbstract:
CHMELÍKOVÁ, Nikola. The Hospice Care Regulation in the Czech Republic: Charles University in Prague, Faculty of Social Sciences, Institute of Sociological Studies, Department of Public and Social Policy, 2014. Thesis Supervisor Mgr. Ing. Olga Angelovská The thesis titled "The Hospice Care Regulation in the Czech Republic" is about hospice care in the Czech Republic of its development due to the following important foreign and Czech documents in health and social care. The main reason that leads me to the elaboration of this work is particularly ambiguous and rather one-sided definition of hospice palliative care in the Czech Republic in terms of health care. In the analysis and evaluation, which is the main part of the paper I will draw on already existing documents and data that relate to the topic immediately. Another integral part of the consultation and discussion with experts from the ranks of both health and social services in providing care face barriers that currently has inadequate definition of the operation itself. The aim of the thesis is the analysis of documents and data relating to the regulation of hospice care in the Czech Republic, and their subsequent reflection of professionals who care about the issue of dying deal in their working lives. Keywords hospice care, legislation,...
44
ŠVEJDOVÁ, Kristýna. "Umírání v hospicové péči jakožto specifická podoba (ne)jednání." Master's thesis, 2017. http://www.nusl.cz/ntk/nusl-381733.
Full textAbstract:
The first part of my Diploma Thesis is dedicated to dying, it focuses on the perspective of the dying person. It also deals with the essential topics as hospice and palliative care. The second part tries to analyse ethically and evaluate in what sense is dying activity or inactivity and what possible moral attitudes may engage dying person in process of dying. At the beginning of the second part, there are defined the key words activity and inactivity. Basically, I'm trying to use this analysis to ethnically evaluate in which sense of dying is the dying person actually conducting and in which failures to act. Then follows simple typological analysis and evalauation based on inspiring typology of German philosopher Robert Spaemann. In the final part of the Thesis there are implied some connections between dying and the problem of sense of life. The most important is the answer of this question if needs of the sense is belong to everyone (included of dying people) in the same way. Also, how important is the influence in moral attitude of actual human after the sense of life.
45
Havelková, Denisa. "Využití podpůrných terapií a stimulací v hospicové péči." Master's thesis, 2017. http://www.nusl.cz/ntk/nusl-356275.
Full textAbstract:
Title of the diploma thesis: Use of promotive therapy and stimulation in hospice care Aim of the thesis: Possible use of promotive therapy and stimulation in therapy of patients in hospice care is discussed in this diploma thesis. The aim of thesis is to compare use these therapies in hospice facilities that provide accommodation for clients or in home hospice care in the Czech Republic and the Slovak Republic and to analyze way of its use in praxis. For purpose of this thesis following promotive therapies and stimulation were selected: music therapy, art therapy, bibliotherapy, basal stimulation and concept Snoezelen. Methods of work: Quantitative and qualitative investigation was used for research. Quantitative investigation in form of questionnaires provided to hospice facilities with accommodation for clients was utilized as a method for data acquisition. Observation of practical promotive therapies processes in hospice facilities with accommodation for clients was included in methodology of qualitative investigation. Results: Research deals with death and dying which is still quite often taboo theme in our conditions. This fact is perceptible in results of research investigation. It was revealed that offer of promotive therapies, which are provided professionally and defined in advance, is not...
46
Timm, Victoria Margaret. "Exploring the role of the hospice volunteer: a qualitative study." Diss., 2003. http://hdl.handle.net/10500/1451.
Full textAbstract:
The hospice volunteer is viewed as an integral member of a multidisciplinary team, with various roles directed at enhancing the quality of life of patients and their families. The purpose of this study is to provide an integrated picture of the hospice volunteer, their role, the human dimensions of this role and the impact this has on their lives as not much has been written in literature about this specific sub-group of hospice workers.
The context of the study is a hospice in Gauteng where the researcher works as a volunteer. The ethnographic case study has been chosen as an appropriate research design as it explores the above phenomenon from the volunteers' point of view. The subjects are three volunteers who have been active at the hospice for at least twelve months. Evidence in terms of specific interviews and observations are used to draw conclusions. The interviews are based on a minimal number of open-ended questions.
The primary method of analysis is the examination of transcripts from these in-depth interviews. A thematic analysis is carried out in which a detailed description of the emerging themes are given. Four major themes are identified and explored: Description of the role; The experience of being a volunteer; A way of coping; and The influence of the hospice culture. Sub-themes that emerge within each case study vary due to the individual nature of the experience of the role. Themes are explored in light of current theory and findings. This was to note the similarities and differences of this specific sub-group of volunteers compared to others found in the literature reviewed for this study. As there is a scarcity of literature pertaining specifically to hospice volunteers, the study depends mostly on writings pertaining to hospice staff and volunteers in general.
A summary and integration of the core findings of the three case studies is given and their similarities and differences are explored. How some of the different themes interlink is also discussed. Although various sub-themes found in the individual case studies are significant to the individual cases, some of them can be incorporated into common themes when looking at the volunteers as a group. The strengths and limitations of the study are discussed as well as recommendations for the hospice organisation and further research.<br>Psychology<br>M.A. (Psychology)
47
PTÁČEK, Jan. "Péče o umírající v hospicích." Master's thesis, 2007. http://www.nusl.cz/ntk/nusl-47563.
Full textAbstract:
This Thesis deals with the issue of illness and dying, and the care for the dying in different hospice facilities. In describes typical features of palliative medicine, it´s practical use in hospices and also the lack thereof in current Czech Medicine. The legislative side of this issue is discussed in this thesis as well.
48
KRATOCHVÍLOVÁ, Lucie. "Etická dilemata v hospicovém zařízení." Master's thesis, 2013. http://www.nusl.cz/ntk/nusl-151812.
Full textAbstract:
The work is written in order to create an ethical justification for each of the considered solutions to the ethical dilemmas with which hospice workers can meet. The thesis is divided into three blocks. The first block is focused on the palliative, hospice care, on the issue of dying and death. Second block deals with general ethical issues, explaining the basic ethical concepts needed for my thesis and also contains my selected ethical theories that are relevant to meet the objectives of my thesis. The last block contains specific ethical dilemmas I have observed and experienced during my training in the Hospice of St. John N. Neumann based in Prachatice. First in this block are shown the values, which in my opinion, affect the decisions of workers. Subsequently is taken in account each identified ethical dilemma and is determined by its possible solution. Each option of the solution is justified by the argument supported by ethical theories, principles and values.
49
KADLECOVÁ, Lucie. "Využití prvků paliativní hospicové péče v domově důchodců." Master's thesis, 2014. http://www.nusl.cz/ntk/nusl-172727.
Full textAbstract:
The thesis focuses on the possibilities to use elements of palliative hospice care in the retirement home. The work describes basic theoretical themes such as human dignity, its interpretation and dignified dying. It also presents basic issues concerning dying and death, ethical problems of different phases of dying, as well as the dying person's needs. The thesis tries to answer the question about the possibility of dignified dying through the use of hospice care. It also defines palliative care provided in hospices as one of the approaches to long-term care of dying people. The research analyses two standards of nursing care in retirement homes The care of a dying person and The care of a dead person. It presents results of its own research method realized through semi-structured interviews with clients of a retirement home. The aim of the research is to find out whether the clients themselves are interested in application of hospice palliative care in the retirement home.
50
KUČEROVÁ, Tereza. "Paliativní péče poskytovaná rodinou pacienta v domácím prostředí." Master's thesis, 2016. http://www.nusl.cz/ntk/nusl-260903.
Full textAbstract:
The thesis, titled Palliative Care Provided by Patient's Family in Home Environment, discusses the specific care needs of a terminally ill patient in his/her own home. Caring for an ill person in a home environment is beginning to be a growing trend in home care, but also it is an increasingly common wish of the patients themselves. The family is therefore required to have enough theory and practical knowledge in order to deliver a highly demanding personal care for their close family members. The aim of the thesis is to summarize the current situation of delivering palliative care in home environment in Czech Republic whilst concentrating on the specific needs of the patient and the needs of their family. The objectives of the research were to determine whether family members were introduces to the specifics of palliative care of terminally ill patients; to map their skills in delivering palliative care in home environment and to reveal the most common issues that family members come across in that home environment. The final objective was to map out services in regions of Central Bohemia and Liberec that are accessible to family members whilst caring for a terminally ill patient. The research part of the thesis was completed employing a method of qualitative investigation using semi-structured interviews with patient's family members and nurses providing hospice care in home environment. It emerged from the analytical interviews that the family's knowledge level regarding support for palliative care in home environment is very limited and in hospitals families are only given minimal or no support or information. As a final document for the thesis an informative educational brochure was created based on the results of aforementioned research, primarily targeting patient's family; its core objective is to improve information and collate the specifics of care that would allow the patient a dignified end to their life.